WEBVTT - Talking Vision 695 Week Beginning 25th of September 2023

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<v S1>From Vision Australia. This is talking vision. And now here's

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<v S1>your host, Sam Colley.

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<v S2>Hello, everyone. It's great to be here with you. And

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<v S2>for the next half hour, we talk matters of blindness

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<v S2>and low vision.

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<v S3>So the Blind Australian of the Year Awards demonstrate the

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<v S3>capacity of people living with blindness to contribute powerfully to

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<v S3>society and still live really purposeful, meaningful lives, even in

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<v S3>our vision centric society. You know, anybody who experiences difference

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<v S3>in a social context gets to have that narrative shifted.

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<v S3>So that's really what this blind Australian of the Year

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<v S3>awards seeks to disrupt.

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<v S2>Welcome to the program. As we draw closer to the

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<v S2>end of the year with October just around the corner,

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<v S2>that means the Blind Australian of the Year awards are

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<v S2>almost upon us and this year they are hosted in

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<v S2>Brisbane on the 28th of October. And to have a

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<v S2>chat with me today about the awards, it's my great

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<v S2>pleasure to welcome Mary Bampton who you'll hear from very shortly.

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<v S2>So make sure to stick around to hear that interview.

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<v S2>And then later on in the show, after you hear

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<v S2>from Mary Frances, Kaitlyn joins the program with a reader recommended.

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<v S2>I hope you enjoy this week's episode of Talking Vision.

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<v S2>In late October, Brisbane will be host to one of

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<v S2>the Knights of the Blind and Low Vision calendar, the

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<v S2>Blind Australian of the Year Awards, hosted by Link Vision

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<v S2>and to have a chat with me all about the awards.

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<v S2>It's my great pleasure to welcome Engagement and Inclusion Manager

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<v S2>from Link Vision Murray Bampton. Murray, welcome to Talking Vision.

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<v S2>Thanks so much for your time today.

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<v S3>Thanks so much for having me, Sam.

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<v S2>Now firstly, Murray, what are the Blind Australian of the

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<v S2>Year Awards?

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<v S3>Well, the Blind Australian of the Year Awards are an

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<v S3>annual awards program, and they actually consist of two different

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<v S3>kinds of awards. So one is the Blind Australian of

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<v S3>the Year award that is conferred on an individual. And

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<v S3>the second one is the Employer of Choice Award, and

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<v S3>that's conferred on a workplace educational, social environment who employs

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<v S3>people living with low vision and blindness and and other

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<v S3>disabilities and demonstrates the attributes of an inclusive workplace.

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<v S2>Okay. And Murray, what are the Blind Australian of the

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<v S2>Year awards all about? What's the purpose there?

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<v S3>Yeah, great question, Sam. So the Blind Australian of the

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<v S3>Year awards were designed to highlight what is possible in

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<v S3>life using blindness as the conduit. They're about challenging limiting

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<v S3>beliefs about disability and creating opportunities for people living with blindness,

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<v S3>low vision and other disabilities. So the Blind Australian of

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<v S3>the Year awards actively promote the contribution that over half

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<v S3>a million people who live with low vision and blindness

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<v S3>make to Australian society. And they do that through business, government,

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<v S3>corporate health, education and the community sectors. So they capture

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<v S3>the spirit of innovation, resilience and enterprise required to perform

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<v S3>in a vision centric world. And I think anyone living

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<v S3>with low vision or blindness really appreciates how vision centric

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<v S3>we are.

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<v S2>And you know, following on from that point you make

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<v S2>there about society being quite vision centric, why centre blindness

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<v S2>over various other disabilities? What sort of things are the

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<v S2>awards looking to achieve from that side of things?

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<v S3>Yeah, it's a really great point, Sam. So look, singling

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<v S3>out blindness over any other disability, there really is, at

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<v S3>least in a felt experience, I suppose a hierarchy of

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<v S3>disabilities and at the top of that hierarchy sets blindness.

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<v S3>This is a quite uncomfortable conversation for people to have

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<v S3>at times, but this is what's been confirmed by research

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<v S3>that blindness is recognised as the most feared of all

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<v S3>conditions by many people in the community, even above terminal

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<v S3>cancer and other like really, really challenging conditions to deal with.

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<v S3>So the Blind Australian of the Year awards demonstrate the

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<v S3>capacity of people living with blindness to contribute powerfully to

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<v S3>society and still live really purposeful, meaningful lives, even in

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<v S3>our vision centric society. So by highlighting innovation and the

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<v S3>achievements of individuals living with low and no vision, we

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<v S3>provide evidence of the capacity and contribution that all people

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<v S3>with disability possess and demonstrate. And so that somebody with

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<v S3>the know, quote unquote worst disability imaginable still has the

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<v S3>capacity equal to that of able bodied persons. So we're

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<v S3>really changing the narratives about disability because those narratives are

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<v S3>mainly based in fear, ignorance and a lack of imagination.

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<v S3>To be blunt about what's possible for people with really

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<v S3>diverse life experiences and conditions. And so that is way

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<v S3>beyond just the lived experience of low and no vision.

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<v S3>That's even beyond the lived experience of disability. You know,

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<v S3>anybody who experiences difference in a social context gets to

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<v S3>have that narrative shifted. So that's really what this blind

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<v S3>Australian of the Year awards seeks to disrupt.

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<v S2>Yeah. Okay. No, there's a lot of important messages in

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<v S2>there for sure, Murray because a lot of people do

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<v S2>get quite scared if they feel they are experiencing vision

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<v S2>loss or they're not really sure where to turn next.

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<v S2>There are a lot of messages out there around that

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<v S2>fear and ignorance and all that sort of thing, and

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<v S2>people perhaps feel their lives are over if they no

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<v S2>longer have the vision that they once did. But, you know,

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<v S2>this is why these sort of things are so important

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<v S2>to dispel those myths and really, you know, say to people,

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<v S2>you can do something, you do matter. You're still so

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<v S2>capable and can adapt and do amazing things. And so

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<v S2>these awards really. Do a fantastic job there. Now, moving

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<v S2>on from that, let's have a chat about the criteria

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<v S2>for nomination for both the awards. So that's Blind Australian

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<v S2>of the Year, which is the individual award, plus the

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<v S2>employer of Choice Awards. So that's corporate or business or organisation.

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<v S2>What are they sort of looking at from that side

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<v S2>of things?

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<v S3>No problems. So, you know, they're obviously quite distinct awards.

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<v S3>So the Blind Australian of the Year, the individual award,

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<v S3>you need to be an Australian citizen or permanent resident

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<v S3>currently living in Australia to be eligible for nomination. The

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<v S3>criteria are around the demonstration of the impact that that

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<v S3>person is having in their environment. So the person needs

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<v S3>to demonstrate excellence and high achievement in their chosen field

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<v S3>and that can be really diverse. They might demonstrate a

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<v S3>real contribution to community and the contribution, the impact of

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<v S3>that contribution either has made or will continue to make

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<v S3>a significant impact for their community. They're a person who

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<v S3>embodies the values of the Blind Australian of the Year awards,

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<v S3>which are many and varied, but some examples might be excellence, innovation, creativity, perseverance, courage,

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<v S3>self determination. They're someone who demonstrates achievements that align with

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<v S3>the blind Australian of the Year Awards mission, which is

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<v S3>of community impact and improving inclusion within Australian workplaces and society.

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<v S3>And they possess personal attributes that would make them an

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<v S3>excellent ambassador of these awards. So we're really looking at

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<v S3>character there. It's broad, purposefully, somewhat loose if you like,

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<v S3>because we don't want to conscript nominations to fit a

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<v S3>particular viewpoint or aspect. We've had nominations for people who

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<v S3>have achieved incredible things academically. We've had nominations for artists, music,

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<v S3>fine arts, we've had nominations for people who are chefs

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<v S3>or fashion designers. So these are unusual pursuits for somebody

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<v S3>with low or no vision. Like somebody was nominated last

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<v S3>year from Tasmania who's extraordinary, creates beautiful furniture, you know,

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<v S3>So there's a whole range as well as people that

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<v S3>are out there doing amazing advocacy work, particularly in digital mediums.

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<v S3>So yeah, community engagement, there's a whole raft of areas

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<v S3>of life that people can excel in and and we

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<v S3>would frankly love to hear about them all.

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<v S2>Yes. Now, you know, there's a lot of amazing categories

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<v S2>in there and a lot of really incredible criteria for

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<v S2>people to really get excited around, you know, perhaps nominating

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<v S2>someone that they do know who would be perfect and,

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<v S2>you know, really deserving of such an award like this.

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<v S2>So how can people nominate, for example, an individual for

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<v S2>Blind Australian of the Year? Or perhaps I want to

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<v S2>nominate someone for employer of choice. What's the best way

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<v S2>for them to do that?

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<v S3>Well, so I'm the best way is actually to go

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<v S3>to the Blind Australian of the Year website, which is

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<v S3>W-w-what Blind Australian of the Year comma you and click

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<v S3>on the Nominate tab. It's a simple online form that's

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<v S3>available for both the individual and the employer of Choice Awards.

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<v S3>We recommend that people draft up their nomination pitch in

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<v S3>a word document, for example, or something similar, and then

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<v S3>cut and paste the pitch into the online form so

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<v S3>that way you can massage, you know, your words, make

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<v S3>sure it's the correct length of around 750 words. Edit

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<v S3>Where necessary. Workshop it, if you like, with the nominee,

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<v S3>the person that you're wanting to nominate. These are all

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<v S3>really great strategies for creating an excellent nomination because the

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<v S3>reality is that the panel members that will be judging

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<v S3>all of our nominations received and they look at every

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<v S3>single nomination received, they have to go on only what

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<v S3>is written in that nomination. So it needs to be

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<v S3>as comprehensive and as descriptive as possible to introduce the

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<v S3>panel to this phenomenal person so that they can have

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<v S3>an understanding of what this person is about, what they've achieved,

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<v S3>what they are looking to achieve and to consider. How

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<v S3>would receiving the Blind Australian of the Year award help

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<v S3>them to create even more impact? Like we really want

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<v S3>to see that their receipt of the award will make

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<v S3>a difference for their life in the future. So we'd

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<v S3>really like to hear that. So those are all the

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<v S3>things that we'd love. See included in the nomination. So

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<v S3>it really does require quite a bit of work. And

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<v S3>we really acknowledge our nominators for the effort that's required

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<v S3>to put in a really good nomination.

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<v S2>And nominations do close quite soon. Marie So people should

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<v S2>absolutely get around it sooner rather than later if they

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<v S2>haven't done so already. So what day and time in

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<v S2>particular do those nominations closed for people out there?

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<v S3>Awesome, Sam. So the nominations closed at 11:59 p.m. so

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<v S3>nearly midnight on Sunday, the 1st of October. So that's

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<v S3>next Sunday. I'm aware that it's a really big weekend

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<v S3>for footy fans and it's also a long weekend. So

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<v S3>we really implore people to, you know, take a little

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<v S3>bit of time and get those nominations in.

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<v S2>I'm Sam Kelly and you're listening to Talking Vision on

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<v S2>Vision Australia Radio, Associated Stations of Air and the Community

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<v S2>Radio Network. I hope you enjoyed the first half of

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<v S2>that interview with Murray Bampton from Linc Vision talking to

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<v S2>me all about the upcoming Blind Australian of the Year

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<v S2>awards taking place in Brisbane. Now please enjoy the second

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<v S2>half of my interview with Murray as we chat about

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<v S2>the Employer of Choice Award. So we've had a chat

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<v S2>about the criteria and the nomination process for the individual award,

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<v S2>The Blind Australian of the Year. But what about the

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<v S2>Employer of Choice Award? What some the nomination process and

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<v S2>the criteria around that one.

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<v S3>Nomination process is exactly the same. You just go to

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<v S3>the same spot and you just pick the link that

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<v S3>works for you. Like if you want, it'll say employer

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<v S3>of choice or blind Australian of the Year individual. Okay,

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<v S3>so you go into the same tab on our website.

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<v S2>Perfect.

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<v S3>And in terms of employers of choice, these can be

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<v S3>any Australian businesses, corporations, government departments, education facilities or community

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<v S3>organisations that employ people with low or no vision. An

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<v S3>organisation who demonstrates leadership as an inclusive employer might be

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<v S3>one that has these following attributes. So they have a

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<v S3>diverse workforce, including current employees with low or no vision.

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<v S3>They provide tools and resources that accommodate the person's particular

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<v S3>needs in relation to their disability. They have created a

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<v S3>culture of teamwork and valuing every person's contribution they value

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<v S3>and promote collaboration, innovation and flexibility. They provide a voice

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<v S3>for all members of their workforce, including those with a

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<v S3>lived experience of disability. And they foster engagement between all

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<v S3>members of their workforce, including between management and workers. They

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<v S3>provide a purposeful pathway for growth and advancement of all employees,

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<v S3>including those with the lived experience of disability, which is

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<v S3>really important because what we do know about employment of

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<v S3>people with disability is that often they're at the lowest

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<v S3>levels with very little career progression opportunities. So we're really

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<v S3>wanting to disrupt that pattern. So the organisation or employer

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<v S3>provides a positive workplace. It's a place where people actually

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<v S3>want to go to work.

0:15:46.829 --> 0:15:51.989
<v S2>Yeah, no, we had absolutely no, we've had somebody on

0:15:51.989 --> 0:15:55.409
<v S2>the show, I think you've mentioned very briefly made reference

0:15:55.409 --> 0:15:59.579
<v S2>to Craig Shanahan, the blind chef who was also star

0:15:59.579 --> 0:16:02.969
<v S2>of one of the Big Visions books and, you know,

0:16:02.969 --> 0:16:07.109
<v S2>doing an amazing job there and getting a really incredible

0:16:07.109 --> 0:16:10.949
<v S2>message across to kids across the country who are blind

0:16:10.949 --> 0:16:15.149
<v S2>or have low vision. So great to have some involvement there.

0:16:15.149 --> 0:16:18.539
<v S2>And and he was absolutely over the moon to receive

0:16:18.539 --> 0:16:21.749
<v S2>that Employer of choice award when that did come across

0:16:21.749 --> 0:16:22.559
<v S2>at the time.

0:16:22.739 --> 0:16:28.139
<v S3>Absolutely. Absolutely. And he's been just an amazing champion for

0:16:28.139 --> 0:16:34.529
<v S3>inclusive employment and for letting both organisations and individuals see

0:16:34.529 --> 0:16:39.029
<v S3>what is possible. So it's one thing to like know or,

0:16:39.029 --> 0:16:42.779
<v S3>you know, like have some sort of cognitive understanding, like,

0:16:42.779 --> 0:16:45.419
<v S3>you know, like there's all this research that says if

0:16:45.419 --> 0:16:48.869
<v S3>you have a diverse workforce and by diversity we mean

0:16:48.869 --> 0:16:52.499
<v S3>inclusive of people with the lived experience of disability, that

0:16:52.499 --> 0:16:56.519
<v S3>there's better business outcomes. It affects the bottom line. They

0:16:56.519 --> 0:16:59.459
<v S3>make more money. This is a good thing in business.

0:16:59.459 --> 0:17:00.809
<v S2>Yes, certainly.

0:17:00.809 --> 0:17:05.309
<v S3>Is. So Craig has been an extraordinary champion of what's possible,

0:17:05.309 --> 0:17:05.939
<v S3>you know.

0:17:06.089 --> 0:17:10.469
<v S2>I'm sure has been. Now, how can people access tickets

0:17:10.469 --> 0:17:14.399
<v S2>to the Blind Australian of the Year Awards gala dinner,

0:17:14.399 --> 0:17:19.649
<v S2>which is taking place on Saturday, the 28th of October

0:17:19.649 --> 0:17:24.029
<v S2>at the Pullman Hotel at King George Square in Brisbane.

0:17:24.029 --> 0:17:26.849
<v S2>People might be listening to this and thinking, Wow, this

0:17:26.849 --> 0:17:29.909
<v S2>sounds incredible. I'd love to head along. How can they

0:17:29.909 --> 0:17:30.539
<v S2>do that?

0:17:31.139 --> 0:17:33.209
<v S3>Oh, we would love them to head along. It'll be

0:17:33.209 --> 0:17:37.319
<v S3>a night to remember. So the tickets are available from

0:17:37.319 --> 0:17:40.169
<v S3>the Blind Australian of the Year website. There is a

0:17:40.169 --> 0:17:44.039
<v S3>tickets tab. If you click there, it'll take you through

0:17:44.039 --> 0:17:47.339
<v S3>to a shopping cart. Now there is a drop down

0:17:47.339 --> 0:17:50.159
<v S3>menu in the shopping cart and all of this is

0:17:50.159 --> 0:17:54.179
<v S3>accessible and if there's any challenges with using any of

0:17:54.179 --> 0:17:58.109
<v S3>the technology, people are free to ring me or email

0:17:58.109 --> 0:18:00.959
<v S3>me direct. That's no problem as well. But in the

0:18:00.959 --> 0:18:04.799
<v S3>shopping cart, there are a range of specific ticket types

0:18:04.799 --> 0:18:08.549
<v S3>that can be accessed from a dropdown menu. So guests

0:18:08.549 --> 0:18:11.819
<v S3>who live with low or no vision and their companions,

0:18:11.819 --> 0:18:14.669
<v S3>should they choose to bring someone, have their ticket prices.

0:18:14.919 --> 0:18:19.029
<v S3>Sad eyes. So they're about half price. So be sure

0:18:19.029 --> 0:18:22.599
<v S3>to choose the correct ticket type is is the first thing. Yes.

0:18:22.779 --> 0:18:26.439
<v S3>There's also early bird prices that are currently available for

0:18:26.439 --> 0:18:30.429
<v S3>general entry tickets. So it's going to be a great night.

0:18:30.429 --> 0:18:35.109
<v S3>We've got award winning artist Blind Ambition and Steve Sparrow

0:18:35.109 --> 0:18:39.319
<v S3>playing like providing the entertainment for the evening along with

0:18:39.339 --> 0:18:42.489
<v S3>a three course dinner, drinks and other forms of entertainment

0:18:42.489 --> 0:18:46.299
<v S3>for everyone. So it's a fully inclusive event and it's

0:18:46.299 --> 0:18:49.209
<v S3>an evening gala like no other. So there may be

0:18:49.209 --> 0:18:50.859
<v S3>a few surprises for people.

0:18:50.859 --> 0:18:55.539
<v S2>Yes, super exciting. And something else that's quite exciting is

0:18:55.539 --> 0:19:00.509
<v S2>the Community Inclusion Expo, which is going on from 3

0:19:00.509 --> 0:19:05.379
<v S2>to 6 p.m. on the same day at the same location.

0:19:05.379 --> 0:19:08.559
<v S2>So tell us a bit about that finally before we

0:19:08.559 --> 0:19:09.159
<v S2>wrap up.

0:19:09.279 --> 0:19:12.459
<v S3>Thanks, Sam. Yeah, I'd love to. So this is the

0:19:12.459 --> 0:19:16.179
<v S3>first year that we've incorporated a fully fledged expo as

0:19:16.179 --> 0:19:18.969
<v S3>part of the Blind Australian of the Year program. So

0:19:18.969 --> 0:19:21.249
<v S3>we dipped our toe in the water last year and

0:19:21.249 --> 0:19:25.299
<v S3>it was really well received. So the purpose of the Expo,

0:19:25.299 --> 0:19:29.079
<v S3>there's three key reasons for doing it. The first is

0:19:29.079 --> 0:19:32.229
<v S3>to provide opportunities for people living with blindness and low

0:19:32.229 --> 0:19:36.939
<v S3>vision to access new information, products and resources to find

0:19:36.939 --> 0:19:40.389
<v S3>out about services and expand their capacity to live really

0:19:40.389 --> 0:19:45.489
<v S3>full lives through engagement with the trade exhibitors. And we've

0:19:45.489 --> 0:19:50.109
<v S3>got a really broad, really diverse range of exhibitors, so

0:19:50.109 --> 0:19:55.269
<v S3>we've got warmly nourished. So Pat is a chef and

0:19:55.269 --> 0:19:59.319
<v S3>specialises in working with people who are losing their sight

0:19:59.319 --> 0:20:02.679
<v S3>or who are blind to be safe and competent in

0:20:02.679 --> 0:20:06.849
<v S3>the kitchen and to prepare their own nourishing meals. She'll

0:20:06.849 --> 0:20:12.009
<v S3>be there. We'll have personal trainers, physiotherapists, occupational therapists will

0:20:12.009 --> 0:20:17.019
<v S3>have people who can demonstrate the latest in assistive technologies.

0:20:17.019 --> 0:20:20.139
<v S3>So there's going to be such an incredibly broad range

0:20:20.139 --> 0:20:24.249
<v S3>of people there that can support people living with low

0:20:24.249 --> 0:20:28.569
<v S3>and low vision and other disabilities to live really full

0:20:28.569 --> 0:20:32.769
<v S3>and healthy lives. So the second point is that we're

0:20:32.769 --> 0:20:38.049
<v S3>there to educate interested community members, health and education professionals

0:20:38.049 --> 0:20:41.349
<v S3>and trainees by exposing them to a range of resources

0:20:41.349 --> 0:20:45.189
<v S3>and professional networking opportunities. So this equips them to work

0:20:45.189 --> 0:20:48.429
<v S3>more effectively with people living with blindness and low vision.

0:20:48.429 --> 0:20:50.889
<v S3>And the flow on effect of that, of course, is

0:20:50.889 --> 0:20:53.889
<v S3>that they'll be more effective at working with all people,

0:20:53.889 --> 0:20:57.279
<v S3>presenting with a whole range of conditions. As a former nurse,

0:20:57.279 --> 0:21:01.749
<v S3>you know, I think things like this are phenomenally valuable

0:21:01.749 --> 0:21:06.699
<v S3>and we're really wanting to engage, particularly our undergrads. So

0:21:06.699 --> 0:21:10.449
<v S3>I'll be engaging with the TAFEs and universities in the

0:21:10.449 --> 0:21:15.609
<v S3>surrounding areas to make this opportunity available for undergrad teachers

0:21:15.609 --> 0:21:19.929
<v S3>and nurses and other allied health professionals. So that's the

0:21:19.929 --> 0:21:22.869
<v S3>second purpose of the Expo. And the third is to

0:21:22.869 --> 0:21:30.399
<v S3>enable cross-sectoral connections. So resource sharing, collaboration between our trade exhibitors.

0:21:30.399 --> 0:21:34.209
<v S3>So you could consider that sort of business to business interactions,

0:21:34.209 --> 0:21:38.709
<v S3>because all of us, it's really unbelievably valuable to know

0:21:38.709 --> 0:21:41.919
<v S3>what others are doing and looking at ways in which

0:21:41.919 --> 0:21:46.119
<v S3>we can collaborate or refer so that we're making it

0:21:46.119 --> 0:21:50.139
<v S3>easier for people who are accessing our services to get

0:21:50.139 --> 0:21:52.599
<v S3>everything that they need. So that's the point of the

0:21:52.599 --> 0:21:56.919
<v S3>Community Inclusion Expo, and we'd love to see the expo

0:21:56.919 --> 0:21:57.999
<v S3>well attended.

0:21:58.179 --> 0:22:00.639
<v S2>Oh well, no, it sounds like there's going to be

0:22:00.639 --> 0:22:05.289
<v S2>some incredible things going on on the 28th of October

0:22:05.289 --> 0:22:09.009
<v S2>up in Brisbane. So a lot of exciting things for

0:22:09.009 --> 0:22:12.699
<v S2>people to head along and check out for sure. Thank

0:22:12.699 --> 0:22:17.259
<v S2>you so much, Murray. I've been speaking today with Murray Bampton,

0:22:17.259 --> 0:22:23.049
<v S2>engagement and Inclusion Manager from Link Vision, the organisation which

0:22:23.049 --> 0:22:28.929
<v S2>is hosting the Blind Australian of the Year Awards in 2023. Murray,

0:22:28.929 --> 0:22:31.569
<v S2>thank you so much for your time today and all

0:22:31.569 --> 0:22:33.759
<v S2>the best for the upcoming awards.

0:22:34.299 --> 0:22:36.789
<v S3>Thank you so much, Sam, and we look forward to

0:22:36.789 --> 0:22:41.409
<v S3>seeing lots of beautiful people there at the Expo and

0:22:41.409 --> 0:22:44.979
<v S3>at the gala and I really look forward to being

0:22:44.979 --> 0:22:49.209
<v S3>flooded with an influx of nominations this week. So thank

0:22:49.209 --> 0:22:50.199
<v S3>you so much.

0:22:57.209 --> 0:23:00.809
<v S2>And now here's Francis Kelland with a reader recommended.

0:23:00.959 --> 0:23:04.739
<v S4>This is Before I Forget, and it's by Christine Bryden.

0:23:04.919 --> 0:23:09.179
<v S4>When she was just 46, Christine Bryden, science adviser to

0:23:09.179 --> 0:23:12.239
<v S4>the prime minister and a single mother of three daughters,

0:23:12.239 --> 0:23:16.949
<v S4>was diagnosed with younger onset dementia. Doctors told her to

0:23:16.949 --> 0:23:19.109
<v S4>get her affairs in order as she would soon be

0:23:19.109 --> 0:23:23.219
<v S4>incapable of doing so. 20 years later, she is still thriving,

0:23:23.219 --> 0:23:26.609
<v S4>still working hard to rewire her brain even as it

0:23:26.609 --> 0:23:31.289
<v S4>loses its function. The unusually slow progress of her condition

0:23:31.289 --> 0:23:34.619
<v S4>puts Christine in a unique position to describe the lived

0:23:34.619 --> 0:23:38.399
<v S4>experience of dementia, a condition affecting tens of millions of

0:23:38.399 --> 0:23:42.689
<v S4>people worldwide. In this revealing memoir, she looks back on

0:23:42.689 --> 0:23:45.719
<v S4>her life in an effort to understand how her brain,

0:23:45.719 --> 0:23:50.279
<v S4>once her greatest asset, now her greatest challenge, works now.

0:23:50.369 --> 0:23:53.279
<v S4>She shares what it's like to start grasping for words

0:23:53.279 --> 0:23:56.579
<v S4>that used to come easily to be exhausted from visiting

0:23:56.579 --> 0:23:59.519
<v S4>a new place, to suddenly realize you don't remember how

0:23:59.519 --> 0:24:03.239
<v S4>to drive, to challenge every day the stereotype of the

0:24:03.239 --> 0:24:07.799
<v S4>empty shell. Brave and inspiring. This is Christine's legacy for

0:24:07.799 --> 0:24:11.609
<v S4>people with dementia and those who care about them. Let's

0:24:11.609 --> 0:24:15.299
<v S4>hear a sample of Before I Forget by Christine Bryden

0:24:15.299 --> 0:24:19.739
<v S4>with Sarah Minns. It's narrated by Jackie Halliday.

0:24:20.339 --> 0:24:23.519
<v S5>There's a clear dichotomy to my adult life, and it

0:24:23.519 --> 0:24:26.699
<v S5>is divided by the moment. Doctor told me I had dementia.

0:24:27.089 --> 0:24:31.019
<v S5>Before that day, I was a whip smart, multitasking scientist

0:24:31.019 --> 0:24:34.799
<v S5>on a clear career trajectory that seemed sky high. I

0:24:34.799 --> 0:24:37.709
<v S5>was also a dedicated mother, aware of all that was

0:24:37.709 --> 0:24:40.649
<v S5>going on in my children's lives, spending all my spare

0:24:40.649 --> 0:24:44.549
<v S5>time with them, talking, reading, sitting with them. As soon

0:24:44.549 --> 0:24:46.949
<v S5>as I was told that my brain had a degenerative,

0:24:46.949 --> 0:24:50.999
<v S5>incurable disease, I felt exiled from my former self in life.

0:24:51.599 --> 0:24:55.229
<v S5>In 1995. My divorce from a long, unhappy marriage has

0:24:55.229 --> 0:24:59.489
<v S5>just been finalized. My two youngest daughters, then aged 14

0:24:59.489 --> 0:25:02.189
<v S5>and nine, and I had spent the weekend moving into

0:25:02.189 --> 0:25:05.579
<v S5>our new home, a house in Canberra we had just bought.

0:25:05.879 --> 0:25:10.529
<v S5>My eldest daughter, aged 20, was in Sydney University. I

0:25:10.529 --> 0:25:12.869
<v S5>was finally out of a marriage that had caused me

0:25:12.869 --> 0:25:17.309
<v S5>a great deal of pain, humiliation and self-doubt over many years.

0:25:17.729 --> 0:25:21.029
<v S5>I held a senior job in the public service. I

0:25:21.029 --> 0:25:23.819
<v S5>was the first Assistant Secretary in the department of the

0:25:23.819 --> 0:25:27.599
<v S5>Prime Minister and Cabinet, heading up a division and advising

0:25:27.599 --> 0:25:31.439
<v S5>the Prime Minister on science and technology. I could hold

0:25:31.439 --> 0:25:33.809
<v S5>so much in my head. At the same time I

0:25:33.809 --> 0:25:37.529
<v S5>could juggle multiple tasks. I was highly organized and you

0:25:37.529 --> 0:25:39.899
<v S5>only had to tell me something once and I'd hold

0:25:39.899 --> 0:25:43.679
<v S5>on to that piece of information forever. I was also,

0:25:43.679 --> 0:25:46.769
<v S5>it should be noted, a little bit dismissive of people

0:25:46.769 --> 0:25:49.559
<v S5>who weren't as capable as me. I had no idea

0:25:49.559 --> 0:25:53.699
<v S5>that fast thinking creativity and super memory were not usual.

0:25:53.819 --> 0:25:57.869
<v S5>It's strange, but I barely recognise the woman I'm writing about.

0:25:57.899 --> 0:26:00.719
<v S5>It certainly doesn't feel like me. I feel as though

0:26:00.719 --> 0:26:03.329
<v S5>I'm talking about someone I used to know. A long

0:26:03.329 --> 0:26:05.879
<v S5>lost sister or friend who used to be a big

0:26:05.879 --> 0:26:08.549
<v S5>part of my life, but whom I can now only

0:26:08.549 --> 0:26:13.139
<v S5>vaguely identify with. But for the previous year or so,

0:26:13.139 --> 0:26:17.319
<v S5>something hadn't been right. I was having trouble coping at work.

0:26:17.339 --> 0:26:20.339
<v S5>A few things were slipping through my hitherto vice like

0:26:20.339 --> 0:26:23.759
<v S5>brain and I was suffering from crippling migraines that would

0:26:23.759 --> 0:26:27.059
<v S5>last for days, sometimes occurring up to once a week.

0:26:27.539 --> 0:26:29.669
<v S5>I had put it all down to stress and had

0:26:29.669 --> 0:26:32.129
<v S5>continued to cope with the help of my wonderful personal

0:26:32.129 --> 0:26:34.919
<v S5>assistant and some strong pain medication.

0:26:35.849 --> 0:26:39.869
<v S4>That was a sample of Before I Forget by Christine Bryden.

0:26:40.109 --> 0:26:53.369
<v S4>Christine is Christine. Cristina Brighton is b. R. Y. D. N. B. R. Y. D. E. N.

0:26:53.459 --> 0:26:57.809
<v S4>Written in conjunction with Sarah Minns. That book goes for

0:26:58.349 --> 0:27:01.139
<v S4>six hours and 45 minutes.

0:27:01.349 --> 0:27:04.619
<v S2>And that's all we have time for today. You've been

0:27:04.619 --> 0:27:08.969
<v S2>listening to Talking Vision. Talking Vision is a production of

0:27:08.969 --> 0:27:12.959
<v S2>Vision Australia Radio. Thanks to all involved with putting the

0:27:12.959 --> 0:27:16.799
<v S2>show together. And remember, we love your feedback and comments,

0:27:16.799 --> 0:27:20.429
<v S2>so please do get in touch on Talking vision at

0:27:20.429 --> 0:27:27.239
<v S2>Vision australia.org. That's talking vision all one word at Vision australia.org.

0:27:27.239 --> 0:27:31.259
<v S2>But until next week it's Sam Colley saying bye for now.

0:27:34.949 --> 0:27:38.999
<v S1>You can contact Vision Australia by phoning us anytime during

0:27:38.999 --> 0:27:46.919
<v S1>business hours on one 308 4746. That's one 308 474

0:27:46.949 --> 0:27:53.159
<v S1>W6 or by visiting Vision australia.org that's Vision australia.org.