WEBVTT - Get connected with `Connect up`

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<v S1>Hello and welcome to In Plain Sight, a program where

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<v S1>we highlight people who are making a positive impact in

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<v S1>the community and disability sector.

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<v S2>Shining a light on those who would be otherwise hidden

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<v S2>in plain sight.

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<v S1>And it's a pleasure to bring you these stories on

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<v S1>a weekly basis with you here on Vision Australia Radio.

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<v S1>Hi there Simon, how are you this week?

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<v S2>I'm great Andrew. It's good to be here in studio two.

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<v S2>Any keen listeners might notice that there's a difference in

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<v S2>the sound when there is studio one, studio two. And um,

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<v S2>this week we're in studio two because we had two guests.

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<v S2>And Andrew, can you tell us a little bit about

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<v S2>the subject matter in which we will be discussing in

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<v S2>our interview today?

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<v S1>Yes. The subject matter is a new online platform and

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<v S1>app called Connect Up, which is in its first rollout,

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<v S1>I guess, and it's an app that's designed for connecting

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<v S1>people with their local area and so forth. So primarily,

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<v S1>of course, it's for people with disability and their carers

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<v S1>and it's all about inclusive physical activities. Finding where they

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<v S1>are near where you live. You can also share feedback

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<v S1>on the experiences that you've had. It's also about connecting

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<v S1>up with people, which is an all important thing, and

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<v S1>making friends. And there's also a map of all these

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<v S1>various locations that, um, you can continue to contribute to

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<v S1>about places to go that are accessible and so forth.

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<v S1>So whether it's about a gentle walking group or a

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<v S1>quiet park that's got good accessibility, that's what this is

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<v S1>all about is connecting up with all those different places

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<v S1>and all those different people.

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<v S2>That's right. And we're highlighting this today, um, just to

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<v S2>demonstrate a different method, a new method of connecting up

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<v S2>as the app is called with people who have similar

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<v S2>interests as yourself. If you have a disability or if

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<v S2>you're a carer with someone who has a disability or

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<v S2>support worker perhaps, but it's connecting up with a purpose

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<v S2>and the purpose is some form of leisure or recreation

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<v S2>or even sports in a similar method to organisations like

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<v S2>Disability Sports or Blind Sports Western Australia, or even walking

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<v S2>groups that are run by organisations like visibility. To highlight

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<v S2>the fact that people need to get out and about,

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<v S2>but need to find avenues to do so in a

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<v S2>safe and inclusive and accessible manner. And this particular new platform,

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<v S2>which is an app component and a website component, um,

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<v S2>is both a social connector and a recreational connector. Um,

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<v S2>as I often say within these broadcasts, we are always

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<v S2>keen to hear from our listeners. So if you'd like

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<v S2>to contact us here at Vision Australia Radio, please do so.

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<v S2>Or on our program in particular, our email address is

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<v S2>in plain sight at vision australia.org. That's in plain sight

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<v S2>at vision australia.org. And I'd also like to give a

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<v S2>shout out to Darryl Davenport from Ballroom Fit, who recommended

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<v S2>this and introduced me to this program. And I'd also

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<v S2>like to thank Nina, who will be hearing from shortly,

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<v S2>who is a keen listener to the program, and a

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<v S2>special hello and shout out to her. And if you

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<v S2>are like Nina and you listen regularly and you would

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<v S2>like to be part of the program, please get in touch.

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<v S2>And I'd love to hear from you sometime. Anyway, now

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<v S2>we will hand you over to Nina and Craig to

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<v S2>tell us all about the Connect Up app and program.

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<v S2>And this week we have two guests in the studio,

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<v S2>and we are going to be talking about a new project,

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<v S2>a new app, and a website called Connect Up. And

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<v S2>the guests we have in the studio are Craig Thompson. Hi, Craig.

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<v S3>Hi, Simon.

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<v S2>And we also have Nina Marie Butler. Hi, Nina. Hello, Craig.

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<v S2>I'll start with you. Can you tell us firstly, what

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<v S2>the Connect Up app is and your involvement with it, please?

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<v S3>The Connect up is an app which was designed, um,

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<v S3>for people with disabilities to, um, connect socially with people

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<v S3>close to them. Um, you know, people with disabilities and carers,

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<v S3>I should say connect socially, um, and through physical activity. Um,

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<v S3>and it also works through a web, you know, it's

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<v S3>also a web based app as well. So, um, people

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<v S3>who find it easier to use, use computers can access

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<v S3>it there. And the idea is, is that we're trying

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<v S3>to help people expand their social networks, but also participate

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<v S3>in a little bit more activity as well.

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<v S2>What was the impetus for getting this app and project

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<v S2>up and running? What was the motivation to do that?

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<v S3>We've started a long time ago with some discussions with

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<v S3>some people at Carers Western Australia, um, in terms of

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<v S3>some of the things that they'd seen in the people

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<v S3>that they work with. Um, but the things that really

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<v S3>drove it from, I suppose my perspective as a, as

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<v S3>an occupational therapist and a researcher is, um, that social

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<v S3>exclusion or being, you know, being socially isolated is, um,

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<v S3>as bad a negative impact on your health as smoking. Um,

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<v S3>and the same thing with, um, same thing with low

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<v S3>levels of physical activity. So they're, they're really modifiable risk

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<v S3>factors for um, poor health. Um, so we wanted to

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<v S3>look for strategies for people to connect, um, so that

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<v S3>they can hopefully be more, you know, have a greater

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<v S3>social network. So they're not as socially isolated, but also

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<v S3>build some, do some physical activity and like everyone, um,

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<v S3>you know, we're all attached to our phones. Um, so we, we,

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<v S3>and it's certainly an area of opportunity in terms of

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<v S3>looking at how we can help people connect in that

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<v S3>in that way. So lots of conversations with, with carers,

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<v S3>WA and other people with disabilities and other and carers

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<v S3>looking at what they wanted to see.

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<v S2>So Craig Thomson, you're currently with Curtin University, is that right?

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<v S3>That's right. Yeah. So I, I teach occupational therapy and

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<v S3>I do research in the area of. I do a

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<v S3>lot of research in co-design with with people with various disabilities.

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<v S3>And that's why I'm involved in the connector project.

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<v S2>And I believe there are, um, backing support from other

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<v S2>universities across Australia.

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<v S3>There are. So, um, we also have, um, in, in

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<v S3>the project, we have researchers from University of Melbourne, Deakin University,

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<v S3>University of Queensland and Swinburne University as well. I think um,

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<v S3>it's a very broad network. Um, and we even have

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<v S3>some involvement from um, some, some from the CSIRO to

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<v S3>help us with, uh, the, you know, the development of

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<v S3>the app and how we can utilise that, make most

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<v S3>of that going forward.

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<v S2>I've downloaded the app, I haven't done anything on it

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<v S2>yet because I haven't gone through the process of trying

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<v S2>to find people and so on. And I've looked at

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<v S2>the website, it looks pretty good over my time. Even

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<v S2>before apps and websites. There was newsletters. This idea that

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<v S2>people with a disability are isolated, lonely and inactive is

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<v S2>not new. And it's true for whatever reason, many people

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<v S2>with a disability are not connected and are inactive. So

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<v S2>what's the difference with this new Connect Up app and

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<v S2>what are the main aims like? Connect up? It does

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<v S2>sound like other things, and it does have a hint

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<v S2>that it might be a not a dating app, but

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<v S2>a social connection app, but your connection with a purpose

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<v S2>would that be?

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<v S3>I think connection with the purpose is most definitely true.

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<v S3>It's the idea that you're trying to find people who

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<v S3>have similar interests to you. So when you when you

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<v S3>do go and actually set up your profile, you'll identify

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<v S3>what types of activities you're interested in, um, how far

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<v S3>you're interested to travel and move. Um, and then it

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<v S3>will actually suggest some people who could be connections for you.

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<v S3>But the major difference between this and, um, you know,

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<v S3>some of the other apps or programs that might be

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<v S3>out there is that, you know, while we started with

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<v S3>an idea, it's been driven and, and designed and influenced

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<v S3>by people with disabilities and carers as well. So if

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<v S3>they told us that they wanted colours to change, if

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<v S3>they wanted a different features, we would, um, to a point,

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<v S3>we would make those changes so that it's an app

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<v S3>for people with disabilities and carers as opposed to a very,

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<v S3>an open app. And as we were going through the

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<v S3>co-design process, we would ask, you know, why is why

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<v S3>is this important? Um, and a lot of people were saying, well,

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<v S3>the key thing is that it's authenticity about the information

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<v S3>that's in the app. Um, so I, if, if I

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<v S3>was using the app, I can go and identify some,

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<v S3>you know, a place where I might go and meet

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<v S3>people and actually, um, outline exactly what it's like to

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<v S3>to visit there instead of what's actually on the web.

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<v S3>What's on the website. Because sometimes it'll say, yes, we're,

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<v S3>we're disabled friendly, we've got a, we've got a ramp, etc.

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<v S3>but when you get there, you find that the ramp

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<v S3>is stuck on the edge. You have to access it by,

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<v S3>you know, going all the way around the edge of

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<v S3>the building. Disabled toilets are hidden away and they can't

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<v S3>be accessed.

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<v S4>Or if they're like.

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<v S2>This building we are broadcasting from today, there's a cafe

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<v S2>downstairs that has an accessible toilet that's also used as

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<v S2>a storeroom.

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<v S3>And also it has a change table in there for

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<v S3>changing your baby's nappy. So it's not really I mean,

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<v S3>that's one of the other things that people wanted to

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<v S3>be able to actually say, what is it really like? Because,

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<v S3>you know, people with disabilities were telling us that they

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<v S3>go to places and then they find that the reality

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<v S3>is actually they say there's an Akron parking bay or

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<v S3>there's several, but it's it's actually a long way from

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<v S3>the entrance or it's actually not as accessible as what

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<v S3>people like to portray it on the website so they

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<v S3>can give the warts and all. This is what it

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<v S3>really looks like and would be really like to visit.

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<v S2>Now I'll bring in Nina. Nina, can you introduce yourself

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<v S2>and how did you get involved with this project?

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<v S5>Well, I'm Nina, um, I'm a disability advocate, and sometimes

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<v S5>I am also a writer and a speaker. I joined

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<v S5>the Connect Up project in, I think, February 2025, when

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<v S5>they were actually beginning the build process of the app.

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<v S5>I was actually introduced to the project by a friend

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<v S5>who had a friend already involved. And so she said

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<v S5>to me, I think this is something that would be

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<v S5>right up your alley. And it was, um, so I

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<v S5>went to the first meeting and wasn't thrown out. So

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<v S5>I'm still involved.

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<v S2>And just to explain the nature of your disabilities, uh,

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<v S2>because you have a variety of different things going on. Nina?

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<v S2>Can you tell the people what your main disabilities are, please?

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<v S5>Yes. I am deaf, blind, and I've been deaf blind

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<v S5>for about 17 years. Um, but my overall disability is

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<v S5>called incontinentia pigmenti, which no one's ever heard of. It's

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<v S5>very rare, but it involves general muscle weakness and nerve thing.

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<v S5>So occasionally I twitch and that sort of stuff. It

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<v S5>impairs my ability to walk great distances. So today I

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<v S5>have my walking frame with me, which I lovingly call Cecilie. Um,

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<v S5>but sometimes I also use a wheelchair.

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<v S2>You're the second person I've met that's named their walker.

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<v S2>I find that quite intriguing and fun. Um, there is

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<v S2>a debate in the blindness circle about decorating and bedazzling

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<v S2>and so on. White canes. It's a whole movement. And

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<v S2>there's very gorgeous pretty women across the world who want

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<v S2>to be glamorous and who are blind and have sparkly

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<v S2>white canes. So, Nina, how do you find this app?

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<v S2>Have you been using it?

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<v S5>Um, yes, the app itself I don't use on the phone.

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<v S5>I use it on the website. Um, because I use

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<v S5>jaws software, screen reading software, and it's just easier for

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<v S5>me to use it via the website than the app.

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<v S5>It will do everything I need it to do, but

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<v S5>mainly my interest is in finding out whether places I

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<v S5>want to go are going to accommodate me, or looking

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<v S5>for places that will accommodate me that I might not

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<v S5>have been to before it. You know, it does take

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<v S5>a little bit of effort sometimes to organize yourself when

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<v S5>you've got a disability to get somewhere, but also to

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<v S5>psych yourself up to leave the house and then to

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<v S5>get to a venue and find that after you've psyched

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<v S5>yourself up, that it's not going to work for you

0:13:33.563 --> 0:13:38.723
<v S5>and you've gone there for nothing is really disappointing and annoying.

0:13:39.003 --> 0:13:43.683
<v S5>So that's my main interest. Um, but I also like

0:13:43.723 --> 0:13:48.003
<v S5>the idea that I can put my $0.02 worth in

0:13:48.043 --> 0:13:53.763
<v S5>as well and talk about how venues or activities are

0:13:53.803 --> 0:13:59.603
<v S5>for me with my specific combination of disabilities, I might have, um,

0:13:59.603 --> 0:14:04.923
<v S5>a different perspective that someone else hasn't had and vice versa.

0:14:04.923 --> 0:14:06.563
<v S5>So we can learn from each other.

0:14:06.843 --> 0:14:08.643
<v S2>Craig, I'll bring you in at this point. Can you

0:14:08.643 --> 0:14:12.763
<v S2>tell us the main key features of the Connect Up

0:14:12.803 --> 0:14:13.963
<v S2>app and project?

0:14:14.003 --> 0:14:15.963
<v S3>I mean, you sort of mentioned it at the beginning,

0:14:16.003 --> 0:14:18.403
<v S3>so I'm probably the one of the main features is

0:14:18.403 --> 0:14:23.803
<v S3>the ability to connect between individuals. Um, so when you

0:14:23.843 --> 0:14:28.263
<v S3>create your profile, you can, you can form connections and friendships.

0:14:28.263 --> 0:14:30.823
<v S3>There is a text chat function where you can chat

0:14:30.823 --> 0:14:33.903
<v S3>with with people you connect with. You can also do

0:14:33.903 --> 0:14:36.503
<v S3>that within a group. Then. Then some of the other

0:14:36.503 --> 0:14:40.423
<v S3>main features are there's a, there's a map which we can,

0:14:40.463 --> 0:14:44.063
<v S3>we can add events and comments in the map. And

0:14:44.063 --> 0:14:47.103
<v S3>then there's a calendar of events. And in that we,

0:14:47.143 --> 0:14:51.463
<v S3>we can get information from various websites. You know, we

0:14:51.503 --> 0:14:55.143
<v S3>scrape the web and, and it, it updates automatically of

0:14:55.423 --> 0:14:58.543
<v S3>events that are in certain areas using disability sports groups

0:14:58.543 --> 0:15:01.623
<v S3>and things like that. But also, you know, a user

0:15:01.623 --> 0:15:05.023
<v S3>can create an event that they invite people to and

0:15:05.023 --> 0:15:07.903
<v S3>organize that and they can have the choices of how

0:15:07.903 --> 0:15:10.423
<v S3>those things are organized, but they can create that and

0:15:10.663 --> 0:15:13.103
<v S3>put that on there. And as Nina was saying that

0:15:13.103 --> 0:15:18.303
<v S3>people can for events and activities and places that users

0:15:18.303 --> 0:15:22.423
<v S3>can rate, um, rate how accessible it really was, you know,

0:15:22.423 --> 0:15:24.423
<v S3>it's not just giving it a star rating or it's five,

0:15:24.583 --> 0:15:29.293
<v S3>five stars. It's it's giving ratings on the aspects of

0:15:29.333 --> 0:15:32.653
<v S3>the venue, which is important, which were deemed important by

0:15:32.693 --> 0:15:36.773
<v S3>our Co-designers. Mhm. Such as accessibility. And the other the

0:15:36.773 --> 0:15:38.893
<v S3>other thing I should say is that, as Nina highlighted,

0:15:38.893 --> 0:15:41.093
<v S3>that we. The other thing we pull into the into

0:15:41.093 --> 0:15:43.533
<v S3>the app are things like where, believe it or not, there's,

0:15:43.773 --> 0:15:47.173
<v S3>there's a database of where disabled parking bays are and

0:15:47.173 --> 0:15:50.653
<v S3>disabled toilets and they get populated into the app. So,

0:15:50.773 --> 0:15:54.293
<v S3>you know, there's some general information stuff which is there,

0:15:54.293 --> 0:15:56.693
<v S3>which is populated into the app and you can turn

0:15:56.693 --> 0:15:59.253
<v S3>some of those features on and off. People can change

0:15:59.253 --> 0:16:01.653
<v S3>the colours and font size and those sorts of things

0:16:01.653 --> 0:16:05.253
<v S3>to make it easier to read. Yeah. And as Nina said,

0:16:05.253 --> 0:16:09.173
<v S3>the the website works much better than much better for

0:16:09.213 --> 0:16:12.333
<v S3>a screen reader. Yeah. Um, so we've tried to include

0:16:12.333 --> 0:16:15.933
<v S3>as many accessible features as we could within the, within

0:16:15.973 --> 0:16:18.173
<v S3>the tight constraints of our budget.

0:16:18.213 --> 0:16:20.213
<v S2>One of your colleagues who I spoke to on the

0:16:20.213 --> 0:16:22.173
<v S2>phone about this when we were getting this set up,

0:16:22.453 --> 0:16:26.633
<v S2>talked about that chat function and the the social aspect

0:16:26.633 --> 0:16:30.433
<v S2>of it. Now, I was intrigued to find out about

0:16:30.433 --> 0:16:34.033
<v S2>that because we do know that you this is aimed

0:16:34.033 --> 0:16:36.273
<v S2>for people with disabilities. And some of those people are

0:16:36.273 --> 0:16:40.713
<v S2>very vulnerable, especially if they are already isolated and really

0:16:40.753 --> 0:16:43.033
<v S2>hanging out to meet new people. I believe there are

0:16:43.073 --> 0:16:46.953
<v S2>safeguards within this, especially regarding the chat process and the

0:16:46.953 --> 0:16:49.793
<v S2>connecting process, like it's monitored and so on.

0:16:50.153 --> 0:16:54.273
<v S3>I mean, within it, there's, um, one, we set up the, um,

0:16:54.393 --> 0:16:57.913
<v S3>the guidelines in terms of what, what's expected in terms

0:16:57.913 --> 0:17:00.833
<v S3>of the members of connect up in terms of what, um,

0:17:00.833 --> 0:17:04.673
<v S3>what behaviours are promoting, which is, I suppose you know,

0:17:04.673 --> 0:17:09.073
<v S3>all about inclusion and um, being kind etc. to each other,

0:17:09.113 --> 0:17:12.073
<v S3>you know, we, we do need someone to let us

0:17:12.072 --> 0:17:16.673
<v S3>know that there's some been some, um, something that was inappropriate. Um,

0:17:16.673 --> 0:17:19.152
<v S3>and then they can let us know and what happens

0:17:19.153 --> 0:17:21.753
<v S3>is that we then go and investigate it, but initially

0:17:21.753 --> 0:17:25.023
<v S3>that suspend the other person's account, and then we will

0:17:25.062 --> 0:17:29.183
<v S3>investigate and see what's see what's actually happened. And because

0:17:29.183 --> 0:17:32.542
<v S3>it's a, it's a text function, we can actually, um,

0:17:32.542 --> 0:17:34.822
<v S3>go back and review all of those things in terms

0:17:34.822 --> 0:17:37.223
<v S3>of what was said and actually follow up from there.

0:17:37.263 --> 0:17:40.863
<v S3>You know, we had some co-designers that wanted either a voice,

0:17:41.062 --> 0:17:44.783
<v S3>voice chat or a video chat. Um, and if we

0:17:44.782 --> 0:17:46.743
<v S3>were to use that, it would mean actually we'd have

0:17:46.743 --> 0:17:51.102
<v S3>less opportunity to go and investigate what actually happened because those,

0:17:51.142 --> 0:17:53.822
<v S3>those voice or video chats disappear and we can't check

0:17:53.822 --> 0:17:57.822
<v S3>what's happened, what was actually said. So if it was

0:17:57.862 --> 0:18:00.263
<v S3>said that someone was being inappropriate, you know, we can

0:18:00.302 --> 0:18:04.062
<v S3>actually remove them from the app. And so that they don't,

0:18:04.342 --> 0:18:06.782
<v S3>you know, continue to do that. Um, because that was

0:18:06.822 --> 0:18:09.702
<v S3>the safety quite rightly, is one of the most important

0:18:09.703 --> 0:18:12.823
<v S3>aspects that people ask for within this. And we're going

0:18:12.862 --> 0:18:14.142
<v S3>to do the best we can, and we're going to

0:18:14.142 --> 0:18:16.503
<v S3>continue to work on that because this is the first

0:18:16.503 --> 0:18:20.303
<v S3>iteration of the app. And we'll no doubt find, um,

0:18:20.622 --> 0:18:22.492
<v S3>new things that we need to do, whether it be

0:18:22.493 --> 0:18:25.333
<v S3>related to safety or other features as well. So we'll

0:18:25.332 --> 0:18:26.532
<v S3>see where it goes with that.

0:18:27.092 --> 0:18:30.173
<v S1>You're listening to In Plain Sight on Vision Australia Radio

0:18:30.372 --> 0:18:33.932
<v S1>with Simon Cheung and me, Andrew Williams. Our guests this

0:18:33.933 --> 0:18:38.373
<v S1>week are Nina Butler, a disability advocate and design consultant

0:18:38.372 --> 0:18:41.253
<v S1>for Connect Up, which is a new app and online

0:18:41.253 --> 0:18:46.052
<v S1>platform co-designed for people with disability and carers. And Craig Thomson,

0:18:46.253 --> 0:18:50.212
<v S1>researcher at Curtin Uni and co-creator of Connect Up. And

0:18:50.213 --> 0:18:52.693
<v S1>now it's back to Simon, Craig and Nina.

0:18:53.292 --> 0:18:57.052
<v S2>So, Nina, you spoke earlier about a friend recommended you

0:18:57.052 --> 0:19:00.213
<v S2>going on to this co-design panel and process for this

0:19:00.213 --> 0:19:03.812
<v S2>particular project, because it was right up your alley. So

0:19:03.852 --> 0:19:06.133
<v S2>give us a little bit of background. Nina, I've looked

0:19:06.132 --> 0:19:07.612
<v S2>you up on the internet. You have a bit of

0:19:07.612 --> 0:19:10.453
<v S2>a presence there. You have a blog, you have other

0:19:10.733 --> 0:19:13.253
<v S2>things going on. Can tell us a little bit about

0:19:13.253 --> 0:19:15.853
<v S2>yourself and some of the other interests that you have.

0:19:15.973 --> 0:19:20.993
<v S5>Well, I'm, um, funny looking and because I'm funny looking,

0:19:21.792 --> 0:19:28.192
<v S5>people make assumptions about my capabilities, and because of that,

0:19:28.433 --> 0:19:31.193
<v S5>I have a bit of a fire in my belly

0:19:31.392 --> 0:19:35.233
<v S5>to prove that what someone looks like or how someone

0:19:35.233 --> 0:19:40.953
<v S5>presents isn't necessarily gospel. So yes, I do have a blog.

0:19:40.953 --> 0:19:44.112
<v S5>It's called Inner Musings of a Funny Looking Kid, and

0:19:44.153 --> 0:19:49.513
<v S5>I write about my experiences as a funny looking person

0:19:49.513 --> 0:19:54.592
<v S5>in a normal person's world. So, you know, highlighting discrimination

0:19:54.592 --> 0:19:59.273
<v S5>or inappropriate contact, that sort of stuff. And I like

0:19:59.273 --> 0:20:03.592
<v S5>to be part of projects like this because it allows

0:20:03.592 --> 0:20:08.433
<v S5>people with disabilities to not only meet each other and

0:20:08.433 --> 0:20:13.193
<v S5>make friends and, you know, compare notes and know that

0:20:13.193 --> 0:20:19.152
<v S5>they're not the only person experiencing discrimination or isolation or

0:20:19.263 --> 0:20:23.143
<v S5>anything like that. But they're also it gives us the

0:20:23.142 --> 0:20:26.542
<v S5>ability to be out and about. And I think the

0:20:26.542 --> 0:20:30.463
<v S5>more a person with a disability, any kind of disability

0:20:30.463 --> 0:20:34.583
<v S5>is out and about, the more quote unquote normalized it

0:20:34.582 --> 0:20:39.383
<v S5>is and the less of a novelty we become. And

0:20:39.382 --> 0:20:45.503
<v S5>I think the novelty aspect of it is what drives

0:20:45.503 --> 0:20:52.542
<v S5>the discrimination or the unwanted help or unwanted attention. So

0:20:52.542 --> 0:20:57.023
<v S5>I think if we can, quote unquote, normalize being out

0:20:57.062 --> 0:21:02.023
<v S5>and about and accessing the community and, um, make it

0:21:02.062 --> 0:21:08.263
<v S5>more accepted that if there's a ramp or if there's,

0:21:08.542 --> 0:21:14.183
<v S5>you know, an accessible anything, it benefits everybody. It's not

0:21:14.183 --> 0:21:17.223
<v S5>just something that you've put there so that you can

0:21:17.223 --> 0:21:21.122
<v S5>be woke and I can join in if I want to.

0:21:21.322 --> 0:21:26.282
<v S5>It's something that. It means that I'm included and I'm

0:21:26.322 --> 0:21:32.042
<v S5>thought of. And I'm a normal person, just like everybody else.

0:21:32.082 --> 0:21:35.163
<v S5>You know, I'm respected in the same way that someone

0:21:35.163 --> 0:21:35.803
<v S5>else is.

0:21:35.923 --> 0:21:40.402
<v S2>With your experience using the website for Connect Up, you

0:21:40.403 --> 0:21:43.483
<v S2>say you're a Jaws user. We've only just met today.

0:21:43.483 --> 0:21:48.922
<v S2>Your vision is quite low. How do you find the website?

0:21:49.042 --> 0:21:53.802
<v S2>In regards to accessibility. Ah. I often find those interactive

0:21:53.802 --> 0:21:58.842
<v S2>maps to be quite tricky and not as interactive as

0:21:59.082 --> 0:22:01.322
<v S2>they're designed to be. With my vision and the method,

0:22:01.322 --> 0:22:03.362
<v S2>I use a computer. And so can you tell us

0:22:03.362 --> 0:22:06.443
<v S2>your your experience, not just with the map, but with

0:22:06.443 --> 0:22:07.523
<v S2>the website itself?

0:22:07.562 --> 0:22:11.523
<v S5>Well, the interactive map is probably the least accessible thing

0:22:11.523 --> 0:22:16.122
<v S5>because by design a map is a visual tool, but

0:22:16.122 --> 0:22:20.432
<v S5>you can go from pin to pin. It'll tell you

0:22:20.713 --> 0:22:22.833
<v S5>there's a pin here, so you can go and have

0:22:22.832 --> 0:22:25.513
<v S5>a look and see what that pin is. You can um,

0:22:25.552 --> 0:22:29.312
<v S5>it's easy to with the tab or the, the arrows

0:22:29.473 --> 0:22:33.313
<v S5>up and down, and it'll take you from pin to pin.

0:22:33.552 --> 0:22:37.313
<v S5>It'll tell you that there is um, something there to

0:22:37.352 --> 0:22:40.153
<v S5>look at. So then it will open it and you

0:22:40.153 --> 0:22:43.832
<v S5>can read any reviews or you can read what that

0:22:43.832 --> 0:22:51.152
<v S5>specific venue lists as their facilities or their accessibility accommodations

0:22:51.433 --> 0:22:56.112
<v S5>and gives you the option as well to leave a

0:22:56.153 --> 0:23:00.673
<v S5>bit of a review about what your experience was.

0:23:00.713 --> 0:23:05.112
<v S2>Craig, did people from the back end review the reviews?

0:23:05.392 --> 0:23:09.432
<v S2>Because that is, uh, problematic sometimes, isn't it, when people

0:23:09.473 --> 0:23:12.112
<v S2>might we hear about that give a bad review about

0:23:12.112 --> 0:23:15.273
<v S2>a restaurant just because they had one bad day and

0:23:15.273 --> 0:23:17.612
<v S2>didn't like it? Does it ever get reviewed?

0:23:17.852 --> 0:23:19.933
<v S3>I suppose it's down to the users in a way

0:23:19.933 --> 0:23:23.812
<v S3>to to flag that a review is um, say inappropriate. Um,

0:23:23.852 --> 0:23:26.213
<v S3>and there's an opportunity to flag that up and we can,

0:23:26.253 --> 0:23:28.292
<v S3>we can remove that. One thing I do want to

0:23:28.292 --> 0:23:31.013
<v S3>stress is that, for example, you're giving you the description

0:23:31.013 --> 0:23:33.692
<v S3>a little bit of how she uses her, the screen

0:23:33.693 --> 0:23:37.413
<v S3>reader to me as a researcher and trying to make

0:23:37.413 --> 0:23:42.453
<v S3>this as user friendly as possible. That's absolutely invaluable. Yes. Um, because,

0:23:42.973 --> 0:23:45.972
<v S3>you know, I while my vision is not perfect, but

0:23:45.973 --> 0:23:47.572
<v S3>I can correct it with glasses so I can, so

0:23:47.572 --> 0:23:50.612
<v S3>I can manage that. I wouldn't know what, what Nina's

0:23:50.612 --> 0:23:54.052
<v S3>experience was. Um, so yeah, I've got to say every

0:23:54.052 --> 0:23:58.013
<v S3>single time we were meeting as a researcher, we were

0:23:58.013 --> 0:24:02.092
<v S3>learning heaps and heaps of information about what people wanted,

0:24:02.092 --> 0:24:04.892
<v S3>what worked, what didn't work, and, um, all sorts of

0:24:04.892 --> 0:24:07.972
<v S3>different workarounds that people might have had to do in

0:24:07.973 --> 0:24:09.692
<v S3>the past. But hopefully we don't have to do in

0:24:09.693 --> 0:24:10.213
<v S3>the future.

0:24:10.213 --> 0:24:13.492
<v S2>Craig so I'll just ask you to explain some of

0:24:13.532 --> 0:24:16.322
<v S2>the how it works. So like I logged in, I

0:24:16.322 --> 0:24:19.243
<v S2>used all my real names and birth dates and everything

0:24:19.243 --> 0:24:22.203
<v S2>like that. Tried to be a good person. I don't

0:24:22.203 --> 0:24:25.203
<v S2>know if I put in that I'm vision impaired. I

0:24:25.203 --> 0:24:29.483
<v S2>did choose some recreational activities, leisure activities that I like,

0:24:29.483 --> 0:24:33.003
<v S2>including dancing. So when I logged on to the website again,

0:24:33.003 --> 0:24:36.243
<v S2>after I did all that sign up process, it came

0:24:36.243 --> 0:24:40.683
<v S2>up with a recommendation near me for ballroom fit. Now,

0:24:40.842 --> 0:24:44.122
<v S2>is that because Ballroom Fit is the only registered dance troupe?

0:24:44.122 --> 0:24:47.282
<v S2>Or somehow, does the app know that I'm visually impaired

0:24:47.282 --> 0:24:50.203
<v S2>because it's reading my data? How did that actually work?

0:24:50.243 --> 0:24:54.082
<v S3>No. So I mean, it, um, looked at what you

0:24:54.122 --> 0:24:57.403
<v S3>flagged as your interests. Uh, it's not, we're not specified

0:24:57.403 --> 0:24:59.442
<v S3>based on disability. And in fact, that was one of

0:24:59.443 --> 0:25:02.562
<v S3>the things that the, the co-design group wanted. They didn't

0:25:02.562 --> 0:25:05.963
<v S3>want people to be defined by their disability. They wanted

0:25:06.243 --> 0:25:10.443
<v S3>to be connecting with people because they had similar interests. Um,

0:25:10.443 --> 0:25:14.503
<v S3>so ballroom fit is an organization, um, which is registered

0:25:14.503 --> 0:25:17.663
<v S3>with registered in connect up as well. So the other

0:25:17.663 --> 0:25:21.143
<v S3>groups of people that can register are organizations. Now they

0:25:21.263 --> 0:25:24.823
<v S3>effectively apply to go in and we vet them and

0:25:25.263 --> 0:25:28.182
<v S3>allow them into the system as as appropriate. So it

0:25:28.183 --> 0:25:33.503
<v S3>will have just matched up. It said what organisations run some.

0:25:33.542 --> 0:25:34.023
<v S2>Dancing.

0:25:34.062 --> 0:25:38.263
<v S3>Dancing for for that are accessible that um, you know,

0:25:38.423 --> 0:25:43.503
<v S3>cater for people, um, with various disabilities and you know, so. Darryl.

0:25:43.542 --> 0:25:45.862
<v S3>Darryl Davenport from Ballroom fit. Hello.

0:25:46.302 --> 0:25:48.663
<v S2>Thanks for recommending this conversation.

0:25:48.703 --> 0:25:51.183
<v S3>I mean, Darryl's actually been a great supporter of, of

0:25:51.183 --> 0:25:54.542
<v S3>us in terms of, um, joining in when, you know,

0:25:54.582 --> 0:25:57.983
<v S3>we have a meeting every year where we invite every,

0:25:58.023 --> 0:26:00.782
<v S3>all the researchers from around the country who invite, um,

0:26:00.782 --> 0:26:04.382
<v S3>people with disabilities and carers to the co-designers to come

0:26:04.382 --> 0:26:08.142
<v S3>and organisations as well. So Darryl's come in and given

0:26:08.142 --> 0:26:11.343
<v S3>us again, some amazing pieces of advice about what we

0:26:11.342 --> 0:26:13.133
<v S3>can do and how we can set it up to

0:26:13.173 --> 0:26:16.173
<v S3>develop the app. Um, to answer the original question, it's

0:26:16.173 --> 0:26:19.733
<v S3>not hasn't somehow picked up that you're vision impaired. It's

0:26:19.733 --> 0:26:22.612
<v S3>not we don't have, we don't, there's no, um big

0:26:22.612 --> 0:26:24.933
<v S3>brother trying to work those things out. It's just gone off.

0:26:24.933 --> 0:26:26.292
<v S3>What were your preferences?

0:26:26.332 --> 0:26:26.812
<v S4>Okay.

0:26:26.973 --> 0:26:30.493
<v S2>So can I ask how do people, individuals and how

0:26:30.493 --> 0:26:35.013
<v S2>do groups register become part of this, especially groups?

0:26:35.013 --> 0:26:37.612
<v S3>Well, they either go to the they go to the website,

0:26:37.612 --> 0:26:44.173
<v S3>which is ww.connect.org.au. Um, and they scroll down and there's

0:26:44.173 --> 0:26:47.252
<v S3>a button there that says um, join, um, and it

0:26:47.253 --> 0:26:50.652
<v S3>will ask you which category you're falling into and you'll

0:26:50.653 --> 0:26:54.373
<v S3>fill in your profile details. If you're a regular person

0:26:54.372 --> 0:26:57.693
<v S3>like you, me, Nina, you know, we, we put in

0:26:57.693 --> 0:27:00.813
<v S3>our details of us personally and, um, put a photo

0:27:00.812 --> 0:27:03.373
<v S3>in there. Um, and these photos in our age were

0:27:03.372 --> 0:27:06.013
<v S3>actually some of the safety features people wanted. So they

0:27:06.052 --> 0:27:08.973
<v S3>see that it's a real individual. This is who, who

0:27:08.973 --> 0:27:11.953
<v S3>I'm meeting in terms of their age and then sends

0:27:11.953 --> 0:27:15.153
<v S3>you an email to then verify your account. Then you're

0:27:15.153 --> 0:27:18.713
<v S3>set up as an individual. The organization's very similar apart

0:27:18.713 --> 0:27:22.153
<v S3>from it then goes through, you know, gets doesn't get

0:27:22.153 --> 0:27:25.873
<v S3>activated immediately get gets sent through to um, Dom who

0:27:25.872 --> 0:27:29.352
<v S3>is the, you know, will go and review that. And um, if,

0:27:29.352 --> 0:27:32.233
<v S3>if the person's from a real organization that really exists

0:27:32.233 --> 0:27:35.552
<v S3>that really is working for people with disabilities or for carers.

0:27:35.872 --> 0:27:39.753
<v S3>She'll activate that. Um, and then they can then start,

0:27:40.273 --> 0:27:42.513
<v S3>you know, putting things into the app. That's what the,

0:27:42.673 --> 0:27:47.233
<v S3>the organisation's there to effectively say, uh, like Darryl Baldwin

0:27:47.433 --> 0:27:51.153
<v S3>would say, I'm running a certain event on in, you know,

0:27:51.193 --> 0:27:53.393
<v S3>in High Wycombe and it's at this time you can

0:27:53.392 --> 0:27:54.032
<v S3>come along.

0:27:54.032 --> 0:27:57.753
<v S2>Nina, when you after you got through the co-design process.

0:27:57.753 --> 0:28:00.472
<v S2>And I really like the everything I've read about the

0:28:00.473 --> 0:28:03.552
<v S2>co-design process and what you've told us so far. What

0:28:03.552 --> 0:28:06.392
<v S2>were some of the interests and hobbies and leisure activities

0:28:06.392 --> 0:28:08.832
<v S2>that you put down as your your things that you

0:28:08.872 --> 0:28:09.473
<v S2>like to do?

0:28:09.913 --> 0:28:13.023
<v S5>Um, well, dancing was one of mine. Um, I think

0:28:13.062 --> 0:28:16.702
<v S5>lots of us said dancing, but that was on my list. Also,

0:28:16.743 --> 0:28:21.623
<v S5>at the time I was training for the city to surf,

0:28:21.622 --> 0:28:26.622
<v S5>so I had walking as well, and my interest was

0:28:26.822 --> 0:28:34.422
<v S5>walking tracks specifically. So not necessarily in the neighborhood or

0:28:34.782 --> 0:28:37.942
<v S5>even in a stadium, but, you know, at a park.

0:28:38.383 --> 0:28:43.983
<v S5>And I am a regular gym user and a regular Pilates.

0:28:44.383 --> 0:28:44.903
<v S4>So how did.

0:28:44.903 --> 0:28:48.223
<v S2>You find this in regards to doing something like the gym,

0:28:48.223 --> 0:28:51.182
<v S2>for instance, and using this type of system, rather than

0:28:51.503 --> 0:28:55.183
<v S2>hiring your own support worker to accompany you to the gym?

0:28:55.423 --> 0:28:58.703
<v S2>Can you compare and contrast those types? Two little experiences?

0:28:58.983 --> 0:29:04.222
<v S5>Well, with me, I need to have because of my blindness,

0:29:04.223 --> 0:29:08.263
<v S5>but also my mobility issues. I need to have a

0:29:08.303 --> 0:29:12.123
<v S5>support worker or a companion with me when I'm out

0:29:12.123 --> 0:29:17.283
<v S5>in a new place. So regardless of whether I meet

0:29:17.323 --> 0:29:20.363
<v S5>someone on the app to do it with, I would

0:29:20.363 --> 0:29:25.003
<v S5>also have to take somebody with me. But it is,

0:29:25.203 --> 0:29:30.003
<v S5>I think, comforting to know that when you meet somebody

0:29:30.043 --> 0:29:33.763
<v S5>on the app and you connect with them and, um,

0:29:33.803 --> 0:29:36.843
<v S5>find that you have a mutual interest in a specific

0:29:37.203 --> 0:29:41.923
<v S5>activity or sport that they are already open to the

0:29:41.923 --> 0:29:46.843
<v S5>idea that your body might move in a different way

0:29:47.203 --> 0:29:51.323
<v S5>and they might need to make accommodations for you. So

0:29:51.563 --> 0:29:56.123
<v S5>for me personally, it is a bit of a.

0:29:56.563 --> 0:29:57.523
<v S2>Extra bonus.

0:29:57.683 --> 0:30:00.323
<v S5>A bit of a bonus because it means that, you know,

0:30:00.363 --> 0:30:02.763
<v S5>there's lots of activities that I would love to do,

0:30:03.043 --> 0:30:06.402
<v S5>but I'm a bit slower at doing them.

0:30:06.443 --> 0:30:06.883
<v S2>I think what.

0:30:06.883 --> 0:30:07.603
<v S4>You've highlighted.

0:30:07.603 --> 0:30:10.713
<v S2>There, Nina is you can have a paid support worker

0:30:10.713 --> 0:30:14.073
<v S2>with you who understands your physical needs and your emotional

0:30:14.073 --> 0:30:16.952
<v S2>needs and whatever you need support for. But then you

0:30:16.953 --> 0:30:19.473
<v S2>can also then go along for someone who has an

0:30:19.473 --> 0:30:23.113
<v S2>expertise in the activity. So just saying that we need

0:30:23.113 --> 0:30:26.313
<v S2>to finish up now. Nina, could you leave us with

0:30:26.313 --> 0:30:30.193
<v S2>something that you'd like to tell people about yourself and

0:30:30.233 --> 0:30:31.233
<v S2>this app, please?

0:30:31.993 --> 0:30:36.233
<v S5>Um, well, I really like connect up because as I say,

0:30:36.233 --> 0:30:40.712
<v S5>it gives me, um, the option of the ability, I

0:30:40.713 --> 0:30:44.273
<v S5>should say, to connect with other people, but to do

0:30:44.553 --> 0:30:48.633
<v S5>physical activities that I might not have thought were possible. Um,

0:30:48.633 --> 0:30:52.353
<v S5>and the confidence to do them because I know that

0:30:52.392 --> 0:30:56.513
<v S5>even if I'm meeting with another person with disability who

0:30:56.513 --> 0:31:00.073
<v S5>has a different disability to mine, they may, you know,

0:31:00.353 --> 0:31:03.513
<v S5>be more open to waiting a few minutes for me

0:31:03.513 --> 0:31:06.553
<v S5>to catch up to them, etc.. So I would definitely

0:31:06.553 --> 0:31:10.133
<v S5>recommend that everyone gets on board and, you know, sign

0:31:10.133 --> 0:31:12.613
<v S5>up and have a go. You know, you can use

0:31:12.613 --> 0:31:15.412
<v S5>it as much or as little as you want. And it's,

0:31:15.413 --> 0:31:20.333
<v S5>it's not a, it's not a confronting in your face app. So,

0:31:20.373 --> 0:31:22.773
<v S5>you know, you can take it at your own pace,

0:31:22.773 --> 0:31:23.853
<v S5>which is what I like.

0:31:24.133 --> 0:31:27.252
<v S2>Thanks, Nina. Craig, something you like to finish up with

0:31:27.493 --> 0:31:31.093
<v S2>in regards to the connect app and project for me?

0:31:31.253 --> 0:31:33.573
<v S3>You know, one of the things I'm passionate about is

0:31:33.573 --> 0:31:36.373
<v S3>people being able to do the things that they want

0:31:36.373 --> 0:31:39.653
<v S3>to do regardless, um, of, you know what that is,

0:31:39.653 --> 0:31:42.212
<v S3>no one should have a, you know, society putting limits,

0:31:42.253 --> 0:31:44.932
<v S3>limits on them. Um, from my perspective, it would be

0:31:44.933 --> 0:31:49.413
<v S3>amazing if connect up allows people to meet new people and,

0:31:49.413 --> 0:31:54.133
<v S3>and find new things. If it helps even one person's enough.

0:31:54.133 --> 0:31:57.172
<v S3>But what I, you know, what I'm hoping for is

0:31:57.173 --> 0:32:00.893
<v S3>that we can, um, gradually, you know, we've rolled this

0:32:00.892 --> 0:32:03.973
<v S3>out in WA and we're aiming to roll it out

0:32:04.333 --> 0:32:07.922
<v S3>through in other states and hopefully that we'll get can

0:32:07.923 --> 0:32:11.243
<v S3>be used by people with disabilities by and care and

0:32:11.243 --> 0:32:14.722
<v S3>carers so that they can actually connect and um, you know,

0:32:14.763 --> 0:32:17.683
<v S3>get something out of it. Um, any small numbers is great,

0:32:17.683 --> 0:32:20.443
<v S3>but um, you know, I think as Nina said, if people,

0:32:20.483 --> 0:32:22.603
<v S3>you know, give it a go and explore it, if it's,

0:32:22.642 --> 0:32:24.603
<v S3>if it's not for you, then that's fine. But I

0:32:24.603 --> 0:32:28.242
<v S3>think just, you know, taking that opportunity, that's what I

0:32:28.243 --> 0:32:29.603
<v S3>hope people get out of this.

0:32:30.003 --> 0:32:32.403
<v S2>Okay. So that's all we have time for. I really

0:32:32.403 --> 0:32:36.003
<v S2>recommend people having a look at this website and app, uh,

0:32:36.003 --> 0:32:39.243
<v S2>and the connect up app. We will, if you're listening

0:32:39.283 --> 0:32:41.963
<v S2>to the podcast, we will put the details of that

0:32:42.243 --> 0:32:46.402
<v S2>on our show notes in our podcast description. And if

0:32:46.403 --> 0:32:48.603
<v S2>you're on the radio and you didn't catch all that,

0:32:48.603 --> 0:32:52.283
<v S2>contact us here at Vision Australia Radio Perth and our

0:32:52.843 --> 0:32:56.643
<v S2>In Plain Sight email, which is in plain sight at

0:32:56.642 --> 0:32:59.803
<v S2>vision australia.org. And we can find out more. So I'd

0:32:59.803 --> 0:33:04.162
<v S2>like to thank Craig Thompson from Curtin University, who's representing

0:33:04.323 --> 0:33:08.343
<v S2>the Connect Up project. And Nina Butler, and thank you

0:33:08.383 --> 0:33:10.743
<v S2>both for coming in and telling us all about this

0:33:10.743 --> 0:33:13.262
<v S2>wonderful project. Thanks a lot. Thanks a lot, guys. And

0:33:13.263 --> 0:33:15.662
<v S2>that was really great. Thanks for joining us once again

0:33:15.663 --> 0:33:18.063
<v S2>on In Plain Sight and Vision Australia Radio. Look forward

0:33:18.063 --> 0:33:20.343
<v S2>to speaking to you next time. Bye for now. Cheers.

0:33:31.103 --> 0:33:33.743
<v S1>That concludes in Plain Sight for this week. Join us

0:33:33.743 --> 0:33:36.863
<v S1>at the same time next week on Vision Australia Radio,

0:33:37.183 --> 0:33:42.023
<v S1>VA radio Digital and online at VA radio.org. You can

0:33:42.023 --> 0:33:45.503
<v S1>also listen on demand by searching for In Plain Sight

0:33:45.503 --> 0:33:49.383
<v S1>by Vision Australia Radio. Wherever you get your podcasts, or

0:33:49.383 --> 0:33:52.703
<v S1>ask your smart device to play in Plain Sight by

0:33:52.703 --> 0:33:55.103
<v S1>Vision Australia Radio. Thanks for listening.

0:33:55.343 --> 0:33:55.983
<v S2>Thank you.