WEBVTT - I see the I-Sight support group

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<v S1>Hello and welcome to In Plain Sight, a program where

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<v S1>we highlight people who are making a positive impact in

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<v S1>the community and disability sector.

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<v S2>Shining a light on those who would be otherwise hidden

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<v S2>in plain sight.

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<v S1>And it's a pleasure to bring you these stories on

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<v S1>a weekly basis with you here on Vision Australia Radio.

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<v S1>Hi there Simon, how are you this week?

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<v S2>Hi, Andrew. I'm great. And hello to you out there listening.

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<v S2>Thanks for joining us. And how's things with you, Andrew?

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<v S1>Yeah. Really good. Thank you. We're still getting plenty of

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<v S1>rain here in Perth. So yeah, it's good for the garden.

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<v S1>Good for the weeds. Yes. Good for the exercise to

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<v S1>get into the garden and pull out said weeds. Mhm, mhm.

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<v S2>So this week Andrew we've got an interesting program as

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<v S2>always lined up for everyone. And we are going to

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<v S2>be speaking to Lina, who is the coordinator and facilitator

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<v S2>of the Vision Australia EyeSight Group. It's sort of like

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<v S2>a support group, but sort of not. Now, Andrew, you've

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<v S2>got some information there because we broadcast across the world

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<v S2>and across the nation. And there are similar groups. Either

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<v S2>they're called community groups or support groups in different locations.

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<v S2>Throughout Australia and beyond. Let's look at some of these

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<v S2>groups now, Andrew, because they're really great to find out

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<v S2>about these different groups that people with a vision impairment

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<v S2>and low vision supporting one another.

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<v S1>Yes, that's right. There's one in in Adelaide. It's actually

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<v S1>run by See Differently, which is a kind of a

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<v S1>new name, I guess, for the Royal Society for the blind,

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<v S1>which has been around for something like 140 years. And

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<v S1>they offer all kinds of services from low vision optometry

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<v S1>and occupational therapy, peer support groups and employment support. And

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<v S1>to contact them, you can just send them an email,

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<v S1>which is intake@sea.org.au. And pretty much most of what they

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<v S1>do is actually covered by the NDS or my aged care,

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<v S1>but send them an email and see what services they

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<v S1>can they like an offer for you. There's a support

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<v S1>group that is run out of Vision Australia in Kooyong.

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<v S1>Um and you can contact the organiser of that. And

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<v S1>it's called the Kooyong Client Support group. And the person

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<v S1>who is running that is called Fiona. And you can

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<v S1>send an email to Fiona Lee. That's fionalea@tpg.com.au. And also

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<v S1>in the south eastern suburb of Melbourne, there's the Dandenong

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<v S1>Low Vision Group that meets every second Tuesday of each month.

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<v S1>And they have an outing on the fourth Tuesday of

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<v S1>each month. And they meet at the Dandenong RSL. And

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<v S1>you can contact Carol on Graham monger@bigpond.com. And I'll spell

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<v S1>that for you grahamunger@bigpond.com. And there's also one in East

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<v S1>Gippsland at the Bairnsdale RSL club. That's the East Gippsland

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<v S1>VIPs in Bairnsdale. They meet on the first Wednesday of

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<v S1>each month and that's at 11:00. As I say, it's

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<v S1>located at the Barnsdale RSL.

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<v S2>Hello to everyone down in Bairnsdale. I know they've always

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<v S2>been a very community minded area down there, and they

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<v S2>always been very supportive to the vision impaired people down there. VIPs.

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<v S2>That was a very common terminology that a lot of

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<v S2>us used for vision impaired persons.

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<v S1>Yeah, a great term. Yes. And you can contact Brenda

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<v S1>at that group again by email at brenke@bigpond.com. So it's brenke@bigpond.com.

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<v S2>And there are other organisations as well, like Blind Citizens Australia,

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<v S2>that have different kinds of specialty peer support groups. Um,

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<v S2>there is the general kind of peer support groups that

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<v S2>they do as well as having specific ones that are for,

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<v S2>if you're interested in playing guitar, if you're interested in

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<v S2>cooking or if you're interested in gardening, there's different ways.

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<v S2>And they usually conduct those groups via the telephone or

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<v S2>via Zoom or any kind of online contact. And just

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<v S2>like Vision Australia itself have a support group, which is

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<v S2>a more formal than the eyesight group here than in

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<v S2>Western Australia, which is called the quality living groups. And

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<v S2>they usually conducted via tele link, either telephone or online.

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<v S2>And they are really worth checking out as well. And

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<v S2>they're a more structured formal type of support group, different

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<v S2>to a community group that is comes out of the

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<v S2>Vision Australia offices and well worth checking those out. If

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<v S2>you're in a position where you might be new to

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<v S2>your eyesight condition or still learning, or would like to

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<v S2>support people who are blind or have low vision. Check

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<v S2>out these different kinds of support groups, community groups, and

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<v S2>get involved with whatever community you feel linked with. Something

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<v S2>we talk about here a lot on this particular radio station,

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<v S2>because we are all about community and bringing people together.

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<v S2>And I just wanted to remind people, too, that we

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<v S2>here at Vision Australia Radio in Perth, most of us

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<v S2>volunteers and the main emphasis we have here at Vision

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<v S2>Australia Radio, as well as presenting great shows like this

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<v S2>one you're listening to now, is to provide reading services

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<v S2>for the blind and print handicapped as it was known.

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<v S2>So that is, anyone who cannot read regular print in

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<v S2>the regular sort of inverted commas normal way. That might

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<v S2>be because their vision impaired. It might be because they're dyslexic,

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<v S2>or it might be that you have a physical disability

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<v S2>that doesn't allow you to either use a computer or

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<v S2>pick up a piece of paper and that type of thing.

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<v S2>You might have limitations with your mobility or whatever it

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<v S2>might be. So shout out to the great people at

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<v S2>Vision Australia Radio across the network who are doing these

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<v S2>reading services, reading out newspaper articles and so on to

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<v S2>assist people in the broader community to give them news

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<v S2>and information in a manner that is accessible. And we're

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<v S2>all about accessibility, inclusion and community here on Vision Australia Radio.

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<v S1>That's great. Thanks, Simon. And just before we go into

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<v S1>your interview with Lina, just some information about the eyesight

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<v S1>group that Lina will be talking about. It meets here

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<v S1>in Perth at the census WA building, which is in

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<v S1>Osborne Park. It meets on the third Wednesday of every

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<v S1>month from 10 a.m. to 11:30 a.m., and you can

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<v S1>contact them at perth@australia.org. That's Perth at vision australia.org, and

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<v S1>it's available to anyone who is blind or low vision,

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<v S1>and you can meet and have a chat with like

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<v S1>minded individuals. And the other interesting thing that Lina talks

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<v S1>about in the interview as well is that there's friendships

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<v S1>that do develop in the group, and the people that

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<v S1>become friends in the group also meet outside of the group.

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<v S1>So it kind of blossoms from there. So it's a fantastic, um,

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<v S1>springboard if you like, from, uh, from the, you know,

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<v S1>a more structured group that meets once a month into

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<v S1>longer lasting friendships. So here's your interview, Simon with Lena

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<v S1>from the EyeSight Support Group.

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<v S2>And this week we have a guest. Her name is

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<v S2>Lena Adams and she is the volunteer coordinator and facilitator

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<v S2>of the Vision Australia EyeSight Group. And welcome, Lena.

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<v S3>Thanks, Simon. Thanks for having me.

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<v S2>Now, Lena, I'll start by asking you, how did you

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<v S2>get involved with this eyesight group?

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<v S3>Well, it happened a few years ago. Back in 2022,

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<v S3>I'd started a new job with a company that was

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<v S3>very passionate about giving back and volunteering, and they encouraged

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<v S3>us all to spend seven days a year at least, um,

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<v S3>giving back and volunteering. So I was looking for opportunities

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<v S3>to leverage that time in a, in a way that

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<v S3>really kind of spoke to me and aligned with my

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<v S3>own values, I guess. And so I was doing a

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<v S3>lot of research in some of those opportunities. And it

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<v S3>was interesting. I found there were opportunities to kind of

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<v S3>do one off day volunteering or hyper regular volunteering, you know,

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<v S3>maybe half a day or a day a week, which

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<v S3>was a little bit too much for, I felt pushing

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<v S3>the the bounds of the the friendship to have paid

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<v S3>time off to volunteer. But I came across an advertisement

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<v S3>actually a bit like a job advertisement to support the

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<v S3>eyesight group at Vision Australia. So at the time I

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<v S3>reached out to Donna, who was the state manager back then,

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<v S3>and she was really excited to have me kind of

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<v S3>come on board. I think at that time the group

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<v S3>had been without a coordinator for several months, so she

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<v S3>got me on board and took it from there. And

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<v S3>ever since then I've been coordinating the group and really

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<v S3>enjoyed my time. So, you know, it's once a month

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<v S3>that we meet. So it's a perfect kind of, I guess,

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<v S3>balance to give back and have that connection in community,

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<v S3>you know, be able to continue with my full time job.

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<v S2>And just to restate, that's a volunteer role that you're doing.

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<v S2>And I want to give a shout out to all

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<v S2>the volunteers out there, including Andrew and myself, because most

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<v S2>of the people in the Vision Australia Radio Studios here

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<v S2>in Perth are volunteers. We have one staff person that

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<v S2>works here in their Perth studios, and our volunteers give

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<v S2>up so much of their time to give back to

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<v S2>the community or do whatever they're doing. And it's a

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<v S2>really wonderful thing that people do. And, um, often not

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<v S2>rewarded in the way that people think. But I know

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<v S2>there's a lot of satisfaction in being a volunteer and

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<v S2>being part of the community. Now, Linda, can you tell

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<v S2>us what the eyesight group is, please?

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<v S3>The eyesight Group is a community group, essentially a social

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<v S3>group for low people with low vision, no matter where

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<v S3>they are on that journey. So we have a wide

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<v S3>variety of of members or participants, if you like that,

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<v S3>join us in our meetings and at all different stages.

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<v S3>So some have maybe have been blind for life and

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<v S3>some are only just starting to lose their vision. It's

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<v S3>really an opportunity for the community to, to get together

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<v S3>and to share knowledge and ideas and have a cuppa

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<v S3>and talk about things that they're struggling with or wins

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<v S3>that they've had. It's really just a social community group.

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<v S3>And I think importantly, it's in person, which is really great.

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<v S3>It's an opportunity to come together in one place and

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<v S3>just connect over a cup of tea, a bit of

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<v S3>morning tea, and maybe, you know, occasionally we do do

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<v S3>activities depending on what the group wants to do. And

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<v S3>we always kind of it's very collaborative actually. We will

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<v S3>talk around some ideas. Sometimes we have a guest speaker

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<v S3>come in. We love to, uh, go and see what

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<v S3>the Vision Australia store, which is quite close by, they

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<v S3>often have new products, so they'll come in and kind

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<v S3>of showcase those or yeah, all kinds of things.

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<v S2>Actually, I wanted to pick up on that really important

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<v S2>point that that's an in-person group and people physically meet

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<v S2>once a month.

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<v S3>Is it once a month? We meet on the third

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<v S3>Wednesday of every month.

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<v S2>Yeah. And you're currently located where.

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<v S3>We're located currently at the census WA office, which is

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<v S3>also where the Vision Australia store has relocated to. So

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<v S3>I'm sure some of your listeners might recall the store

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<v S3>in Leederville, which is where we used to meet in

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<v S3>the offices there when that moved to the sensor's location,

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<v S3>which is in Osborne Park on Parkland Road. Sensors WA

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<v S3>were very kind to accommodate and give us one of

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<v S3>them large meeting spaces on an ongoing basis. So we're

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<v S3>really grateful to sensors for supporting us and giving us

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<v S3>that meeting space. It was important that we had a

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<v S3>space that was accessible and that was also as a

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<v S3>single volunteer and supporting often, you know, 10 or 12

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<v S3>or sometimes more people in the group that I had

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<v S3>a bit of support around me just in case, God forbid,

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<v S3>something might happen or go wrong. It was important for me,

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<v S3>rather than just meeting at a coffee shop or a, um,

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<v S3>a third space, if that makes sense. I think having

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<v S3>it at a more coordinated and organized spot, personally for

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<v S3>me as a volunteer, I felt was quite important because

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<v S3>I want to make sure that everybody is safe. First

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<v S3>and foremost.

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<v S2>It is a big undertaking to be a coordinator and

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<v S2>facilitator of a group of that nature. And obviously not

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<v S2>all blind people are vulnerable, but some people are, and

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<v S2>like you say, people on different lengths of the journey,

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<v S2>so to speak, within their, um, vision loss or vision impairment.

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<v S3>The idea was that it was meant to be more

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<v S3>of a social group and an idea to kind of

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<v S3>just meet in person and get together, rather than being

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<v S3>some of those other groups, you know, designed around, you know,

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<v S3>a book club or a specific special interest group. And

0:12:46.043 --> 0:12:48.603
<v S3>I think they do meet online. This was really designed

0:12:48.603 --> 0:12:52.163
<v S3>to be in person. And I understand that they have

0:12:52.163 --> 0:12:55.243
<v S3>probably had or still continue to have similar groups in

0:12:55.243 --> 0:12:56.763
<v S3>other states around the country.

0:12:56.803 --> 0:13:00.363
<v S2>Now, I'm really pleased that there is, firstly, a service

0:13:00.363 --> 0:13:03.323
<v S2>like this coming out of Virgin Australia here in Perth,

0:13:03.363 --> 0:13:05.483
<v S2>and I've said just before too, I'm glad that it's

0:13:05.523 --> 0:13:08.883
<v S2>an in person group because that brings so much more

0:13:08.923 --> 0:13:11.923
<v S2>than doing it online or on the phone or however

0:13:11.923 --> 0:13:14.763
<v S2>it might be, whilst they can be beneficial. There's nothing

0:13:14.763 --> 0:13:17.483
<v S2>more rewarding than being amongst other people, right?

0:13:17.683 --> 0:13:19.603
<v S3>I agree. And personally for me, I get a lot

0:13:19.603 --> 0:13:23.603
<v S3>out of that community and that in-person connection. But more importantly, yes,

0:13:23.603 --> 0:13:26.243
<v S3>it's a very safe place. And people just come together

0:13:26.243 --> 0:13:28.123
<v S3>and we talk about all kinds of things. So there's

0:13:28.123 --> 0:13:31.083
<v S3>a lot of discussion around things that obviously are affecting

0:13:31.083 --> 0:13:33.923
<v S3>people with low vision, but sometimes it's just day to

0:13:33.963 --> 0:13:36.883
<v S3>day life as well. And we have a cohort of

0:13:36.883 --> 0:13:40.613
<v S3>quite regular members who come that are there most months,

0:13:40.853 --> 0:13:43.253
<v S3>but then we have another cohort that tends to kind

0:13:43.253 --> 0:13:45.852
<v S3>of just come, you know, a bit more occasionally fitting

0:13:45.853 --> 0:13:48.573
<v S3>the group around different commitments that they might have, whether

0:13:48.573 --> 0:13:51.853
<v S3>it be work or other social commitments. So it really

0:13:51.853 --> 0:13:55.133
<v S3>just depends. And we do welcome anyone with low vision. And,

0:13:55.173 --> 0:13:57.893
<v S3>you know, typically I'll put out a call every or

0:13:57.893 --> 0:14:01.373
<v S3>an invitation by email every month, just reminding people that

0:14:01.373 --> 0:14:03.492
<v S3>the group is, is happening and where we might be

0:14:03.493 --> 0:14:06.573
<v S3>meeting occasionally we might meet offsite. But yeah, I do

0:14:06.613 --> 0:14:09.133
<v S3>encourage anyone if they're curious or they would like to

0:14:09.173 --> 0:14:11.612
<v S3>come along, please just drop in. Like I said, it's

0:14:11.613 --> 0:14:15.213
<v S3>the third Wednesday of every month, 10 to 1130. Um,

0:14:15.253 --> 0:14:17.133
<v S3>so it's a really lovely amount of time to kind

0:14:17.133 --> 0:14:20.013
<v S3>of come and connect and, and see what it's all

0:14:20.013 --> 0:14:22.213
<v S3>about and see if, if there's something of value that

0:14:22.213 --> 0:14:24.293
<v S3>you might pick up in the conversation.

0:14:24.293 --> 0:14:27.093
<v S2>And if you're looking for information about these types of groups,

0:14:27.093 --> 0:14:29.173
<v S2>wherever you might be, there are all sorts of community

0:14:29.173 --> 0:14:31.653
<v S2>groups that you can find on the Vision Australia website.

0:14:31.653 --> 0:14:34.813
<v S2>If you just look up community groups on Vision Australia website,

0:14:34.813 --> 0:14:37.853
<v S2>you'll find them there. I did see that in regards

0:14:37.853 --> 0:14:40.783
<v S2>to the eyesight group, which I must tell listeners that

0:14:40.783 --> 0:14:45.943
<v S2>it's spelt I. Capital I dash site. Very catchy title

0:14:45.943 --> 0:14:48.103
<v S2>like that. I like a play on words, I like puns.

0:14:48.103 --> 0:14:52.583
<v S2>So that's that's fun that it's open to anyone that

0:14:52.583 --> 0:14:55.623
<v S2>is blind or low vision. But it did say that

0:14:55.623 --> 0:14:57.823
<v S2>for Vision Australia clients. Is that right?

0:14:57.823 --> 0:15:00.543
<v S3>Well, yes. I mean, I think originally it was primarily

0:15:00.543 --> 0:15:04.063
<v S3>designed for Vision Australia clients. However, I guess given that

0:15:04.063 --> 0:15:07.623
<v S3>Vision Australia in Perth no longer has clients, we would

0:15:07.623 --> 0:15:09.263
<v S3>like to have that open to anyone. And of course,

0:15:09.263 --> 0:15:11.183
<v S3>the stories there as well. And anyone is able to

0:15:11.223 --> 0:15:13.103
<v S3>come into the store and look at all of the

0:15:13.103 --> 0:15:16.863
<v S3>amazing gadgets and gizmos and magnifiers and all kinds of

0:15:16.863 --> 0:15:18.703
<v S3>things in there. And if any of your listeners haven't

0:15:18.703 --> 0:15:21.343
<v S3>been to the store, I would highly recommend going and

0:15:21.383 --> 0:15:22.943
<v S3>going into the store and talking to the girls there

0:15:22.943 --> 0:15:25.823
<v S3>because they just know so much. And their new space

0:15:25.823 --> 0:15:28.663
<v S3>actually is really lovely in the way that it's laid out.

0:15:28.663 --> 0:15:31.903
<v S3>So definitely worth a look. They get new, new things

0:15:31.903 --> 0:15:34.023
<v S3>all the time. They've got things like the new meta

0:15:34.263 --> 0:15:37.743
<v S3>Ray-Ban glasses and you know, but then also something as

0:15:37.743 --> 0:15:40.593
<v S3>simple as a physical watch or like they've got, you know,

0:15:40.633 --> 0:15:42.753
<v S3>it's very low tech stuff and also very high tech stuff.

0:15:42.753 --> 0:15:44.593
<v S3>So there's something there for everyone.

0:15:44.633 --> 0:15:47.953
<v S2>I'm led to believe that the new location that they

0:15:47.953 --> 0:15:51.353
<v S2>share with Sensis is a much more easier place to

0:15:51.393 --> 0:15:54.793
<v S2>get to and more physically accessible location.

0:15:54.993 --> 0:15:57.433
<v S3>Yes, the group have definitely kind of shared that with me.

0:15:57.433 --> 0:16:00.393
<v S3>So the store and the census office is in Osborne

0:16:00.393 --> 0:16:03.193
<v S3>Park on Parkland Road. It's quite close to the Montessori

0:16:03.193 --> 0:16:04.873
<v S3>school if anyone is there. So I know a lot

0:16:04.873 --> 0:16:08.913
<v S3>of the group members have been coming to the group

0:16:08.953 --> 0:16:11.313
<v S3>by getting the train to Glendalough, and then there's a

0:16:11.313 --> 0:16:14.073
<v S3>bus that basically drops them off pretty much right outside.

0:16:14.073 --> 0:16:17.073
<v S3>So they've reported that that's been a really easy and

0:16:17.073 --> 0:16:19.273
<v S3>accessible way to get there. Others will get dropped off

0:16:19.273 --> 0:16:22.793
<v S3>by a carer or a taxi and then come in there.

0:16:22.793 --> 0:16:25.993
<v S3>There's also a great number of car parks that sensors

0:16:25.993 --> 0:16:27.793
<v S3>have made available for us to use as well. They've

0:16:27.793 --> 0:16:30.833
<v S3>got quite a number, and in the email I share

0:16:30.873 --> 0:16:33.873
<v S3>details about where to find those parks. So there's really

0:16:33.873 --> 0:16:36.073
<v S3>a lot of different ways that people can come into

0:16:36.113 --> 0:16:37.273
<v S3>that location.

0:16:37.633 --> 0:16:40.523
<v S1>On Vision Australia Radio. You're listening to In Plain Sight

0:16:40.523 --> 0:16:43.843
<v S1>with Simon Chong and me, Andrew Williams. Our guest this

0:16:43.843 --> 0:16:47.163
<v S1>week is Lionel Adams, who is the coordinator of the

0:16:47.203 --> 0:16:50.523
<v S1>Perth based Vision Australia EyeSight Community Group. And now it's

0:16:50.523 --> 0:16:51.843
<v S1>back to Simon and Lina.

0:16:52.043 --> 0:16:54.443
<v S2>So you said you have a regular cohort of people.

0:16:54.483 --> 0:16:56.363
<v S2>Lina how how many would that be?

0:16:56.643 --> 0:16:59.723
<v S3>We normally get, as I said, probably between 10 and

0:16:59.723 --> 0:17:03.883
<v S3>12 people. And there's probably a cohort of maybe eight

0:17:03.923 --> 0:17:06.723
<v S3>of those that come. Most months, I would say. And

0:17:06.723 --> 0:17:09.523
<v S3>then we have a few others that will, like I said,

0:17:09.523 --> 0:17:11.523
<v S3>maybe they can't come every single month, but they'll come

0:17:11.562 --> 0:17:15.483
<v S3>a few times a year. Particularly, we do try and

0:17:15.483 --> 0:17:17.323
<v S3>organise 2 or 3 times a year. We'll go and

0:17:17.322 --> 0:17:19.243
<v S3>have lunch somewhere instead of having a meeting, just to

0:17:19.282 --> 0:17:21.403
<v S3>kind of mix things up a bit. And that's an

0:17:21.403 --> 0:17:25.562
<v S3>opportunity too, for group members to maybe bring their support partner,

0:17:25.603 --> 0:17:28.322
<v S3>a support worker with them or their partner to those

0:17:28.322 --> 0:17:30.682
<v S3>lunches as well to kind of expand the group. And,

0:17:31.082 --> 0:17:34.042
<v S3>you know, oftentimes that appeals to a lot more other people.

0:17:34.042 --> 0:17:36.243
<v S3>And so they'd like to come to those excursions, or

0:17:36.243 --> 0:17:39.122
<v S3>sometimes we've organised things like indoor skydiving. That was a

0:17:39.123 --> 0:17:43.403
<v S3>really exciting activity that we organized. Or another time we

0:17:43.403 --> 0:17:46.763
<v S3>organized to go to a, a shop. It was a

0:17:46.763 --> 0:17:50.723
<v S3>specialty kitchen shop actually out at Osborn. Sorry. Balcatta. And uh,

0:17:50.763 --> 0:17:52.882
<v S3>that was really interesting as well, where the owners of

0:17:52.923 --> 0:17:56.642
<v S3>that shop had again, some, some different devices and really

0:17:56.642 --> 0:17:58.802
<v S3>kind of helped take our members through how they might

0:17:58.842 --> 0:18:01.362
<v S3>be able to be used at home. So again, if

0:18:01.362 --> 0:18:04.882
<v S3>anyone's got some ideas, we kind of talk about those.

0:18:04.923 --> 0:18:07.042
<v S3>The other thing that we'll do is have guest speakers.

0:18:07.042 --> 0:18:08.802
<v S3>So I make sure that in the invite I include

0:18:08.802 --> 0:18:11.122
<v S3>those because again, it might be a topic of interest

0:18:11.122 --> 0:18:13.082
<v S3>that someone's very, very interested in and they might make

0:18:13.082 --> 0:18:15.003
<v S3>some arrangements to join for that.

0:18:15.003 --> 0:18:17.643
<v S2>And what types of topics would you be discussing when

0:18:17.642 --> 0:18:20.322
<v S2>you have the guest speakers or we have your regular meetings?

0:18:20.322 --> 0:18:23.403
<v S3>Yeah. So we've had all kinds of different speakers. Actually.

0:18:23.443 --> 0:18:25.882
<v S3>The store is a great guest speaker. We love having

0:18:25.882 --> 0:18:29.082
<v S3>in to kind of showcase their, their different new things

0:18:29.082 --> 0:18:31.963
<v S3>that they have in store. We've had either Vision Australia

0:18:31.963 --> 0:18:33.842
<v S3>or next month actually, or this month we're going to

0:18:33.842 --> 0:18:36.042
<v S3>have census wa, one of the OTS come in and

0:18:36.042 --> 0:18:37.813
<v S3>give a bit of an overview of the services that

0:18:37.812 --> 0:18:40.652
<v S3>they're offering. We actually had someone from Centrelink come in,

0:18:40.653 --> 0:18:43.013
<v S3>which was fantastic. They were able to talk to the

0:18:43.013 --> 0:18:46.413
<v S3>group around the entitlements that they can get through, whether

0:18:46.413 --> 0:18:49.253
<v S3>it's their disability pension or their aged pension and those

0:18:49.253 --> 0:18:52.372
<v S3>types of things. So that was really interesting. Um, so yeah,

0:18:52.413 --> 0:18:55.812
<v S3>all kinds of different topics. We're hoping to get like a,

0:18:55.852 --> 0:18:57.773
<v S3>what is it, an end of life, you know, kind

0:18:57.773 --> 0:19:01.013
<v S3>of estate planning conversation because again, it's a topic that

0:19:01.013 --> 0:19:03.572
<v S3>people are quite keen and interested in because everybody I

0:19:03.572 --> 0:19:06.052
<v S3>think has, um, it's a bit dark. We're going now,

0:19:06.052 --> 0:19:08.172
<v S3>but someone who's died or close to them and they

0:19:08.173 --> 0:19:09.973
<v S3>want to make sure that they're prepared as, as much

0:19:09.973 --> 0:19:10.773
<v S3>as possible.

0:19:10.812 --> 0:19:14.733
<v S2>How do people get involved with this ice like group? Lena.

0:19:15.092 --> 0:19:18.052
<v S3>What would be great is if they can reach out

0:19:18.052 --> 0:19:22.332
<v S3>to the Perth at Vision australia.org website, it's probably the

0:19:22.332 --> 0:19:24.453
<v S3>easiest way and just let them know that they are

0:19:24.453 --> 0:19:26.933
<v S3>interested in learning a little bit more about the eyesight group,

0:19:26.933 --> 0:19:29.173
<v S3>and then I can share with them the information and

0:19:29.173 --> 0:19:31.452
<v S3>get them on our mailing list. That will then mean

0:19:31.453 --> 0:19:33.933
<v S3>that they get those invites every single month to let

0:19:33.933 --> 0:19:36.613
<v S3>them know, or to remind them when our meeting is

0:19:36.612 --> 0:19:39.063
<v S3>for that month where we're going to be meeting and

0:19:39.102 --> 0:19:41.583
<v S3>if applicable, what the, uh, the guest speaker will be.

0:19:41.622 --> 0:19:43.302
<v S3>And that way we can make sure I know to

0:19:43.342 --> 0:19:44.983
<v S3>expect them and I can help them if they need

0:19:44.983 --> 0:19:47.743
<v S3>a little bit of extra assistance finding the location on

0:19:47.743 --> 0:19:51.103
<v S3>the first day. Um, and then yeah, come along, have

0:19:51.102 --> 0:19:52.942
<v S3>a cuppa, have some morning tea. We always have a

0:19:52.943 --> 0:19:53.862
<v S3>good chat as well.

0:19:54.142 --> 0:19:55.303
<v S2>So the groups are free.

0:19:55.663 --> 0:19:58.662
<v S3>The groups are absolutely free. There's no cost to participate

0:19:58.663 --> 0:20:00.183
<v S3>at all unless we go out for lunch, in which

0:20:00.183 --> 0:20:01.903
<v S3>case it's usually self-funded. Yeah.

0:20:02.263 --> 0:20:05.263
<v S2>From your experience, what are some of the reasons why

0:20:05.263 --> 0:20:06.622
<v S2>people go to the group?

0:20:07.743 --> 0:20:10.062
<v S3>In my experience, people are going to the group to

0:20:10.102 --> 0:20:13.463
<v S3>learn and to share information. So one of the things

0:20:13.463 --> 0:20:17.382
<v S3>that I've heard in facilitating the group and coordinating is

0:20:17.382 --> 0:20:20.062
<v S3>that depending on where people are in their journey, there's

0:20:20.062 --> 0:20:23.143
<v S3>a lot that they don't know. And even if you're

0:20:23.142 --> 0:20:25.383
<v S3>very far along in your journey, there's still a lot

0:20:25.382 --> 0:20:27.902
<v S3>that you don't know. And so everybody will learn something,

0:20:27.903 --> 0:20:30.982
<v S3>and everybody often has a perspective that they can share

0:20:30.983 --> 0:20:33.103
<v S3>that other people will get value from. So we do

0:20:33.102 --> 0:20:35.183
<v S3>have some people who are very vocal in the group.

0:20:35.183 --> 0:20:37.233
<v S3>They've got a lot of opinions and they talk a lot.

0:20:37.233 --> 0:20:38.992
<v S3>And then we've got some others who tend to be

0:20:38.993 --> 0:20:40.912
<v S3>a little bit quieter. And I think that's very normal

0:20:40.913 --> 0:20:43.753
<v S3>as well. I do try and ensure that everybody has

0:20:43.753 --> 0:20:47.233
<v S3>an opportunity to talk or ask a question, but I know, again,

0:20:47.233 --> 0:20:49.833
<v S3>some of the feedback I've got is that people sometimes

0:20:49.832 --> 0:20:52.552
<v S3>are very happy just to listen and, and hear all

0:20:52.552 --> 0:20:55.273
<v S3>of that interesting stories and some of the challenges and

0:20:55.273 --> 0:20:58.032
<v S3>know that they are not alone and that they've, they've

0:20:58.032 --> 0:21:00.792
<v S3>had it before. And we've had some people that have. Yeah,

0:21:00.832 --> 0:21:03.273
<v S3>it's a, it's a particularly if people have lost their

0:21:03.273 --> 0:21:07.072
<v S3>vision very rapidly, it's accelerating or they're feeling very isolated

0:21:07.433 --> 0:21:11.072
<v S3>coming along to the group. They've really valued that connection.

0:21:11.072 --> 0:21:14.673
<v S3>And they've shared with us that it's been really, really

0:21:14.673 --> 0:21:17.193
<v S3>important to them as they're kind of navigating this stage

0:21:17.193 --> 0:21:17.833
<v S3>of their life.

0:21:18.233 --> 0:21:20.633
<v S2>Do people tell you how they found out about the

0:21:20.632 --> 0:21:22.433
<v S2>group and why they were motivated to come along?

0:21:22.473 --> 0:21:26.032
<v S3>MM. I think most people that have come from the group,

0:21:26.072 --> 0:21:28.312
<v S3>they have been referred by Vision Australia as they were

0:21:28.312 --> 0:21:31.112
<v S3>clients of Vision Australia. A lot of the staff who

0:21:31.112 --> 0:21:33.713
<v S3>were working at Vision Australia before now are actually working

0:21:33.713 --> 0:21:36.153
<v S3>at senses. So some of a lot of the OTS

0:21:36.153 --> 0:21:38.963
<v S3>and a lot of the other stuff are at sensors now.

0:21:38.963 --> 0:21:41.683
<v S3>So again, a hint for any listeners who might be

0:21:41.683 --> 0:21:44.202
<v S3>missing some of their their staff members from Vision Australia,

0:21:44.243 --> 0:21:46.362
<v S3>they could be there. So that's often where we get

0:21:46.362 --> 0:21:48.562
<v S3>our referrals from. And like I said, this is a

0:21:48.642 --> 0:21:52.002
<v S3>definitely a Vision Australia group, but personally, I'm happy to

0:21:52.003 --> 0:21:55.203
<v S3>take referrals from from any other locations as well.

0:21:55.203 --> 0:21:56.922
<v S2>So to join the group, Leonard, do you have to

0:21:56.963 --> 0:22:00.683
<v S2>be legally blind or registered as a blind person?

0:22:00.683 --> 0:22:03.843
<v S3>There's no there's no legal requirement. I again, I would

0:22:03.842 --> 0:22:06.642
<v S3>say it's open to everybody. Look, one of the things

0:22:06.642 --> 0:22:08.562
<v S3>when we moved to senses, I'll be honest with you,

0:22:08.562 --> 0:22:11.923
<v S3>because obviously census deals with more than just blindness. I

0:22:11.923 --> 0:22:13.602
<v S3>asked the group, I said, look, what do we want

0:22:13.602 --> 0:22:16.163
<v S3>this group to be? You know, it's not my group.

0:22:16.163 --> 0:22:19.523
<v S3>It's your group. Um, and they were very passionate that

0:22:19.523 --> 0:22:21.523
<v S3>they wanted to do that. They wanted to keep it

0:22:21.523 --> 0:22:24.923
<v S3>as a low vision and vision impaired group, support group.

0:22:25.163 --> 0:22:27.682
<v S3>So I think no matter where you are in that journey,

0:22:27.683 --> 0:22:29.882
<v S3>I'm not I wouldn't call myself vision impaired, but I

0:22:29.882 --> 0:22:31.962
<v S3>wear spectacles. So does that mean I'm vision impaired? I

0:22:31.963 --> 0:22:34.883
<v S3>don't I don't think it really matters terribly much as

0:22:34.882 --> 0:22:38.322
<v S3>long as people understand that that's the that's the connection.

0:22:38.322 --> 0:22:40.083
<v S3>That's the thread that connects us all together.

0:22:40.082 --> 0:22:42.482
<v S2>I've said this before and I'll say it once again,

0:22:42.523 --> 0:22:45.642
<v S2>I'm sorry for repeating myself, but you can learn how

0:22:45.642 --> 0:22:49.362
<v S2>to do all the technical things about your vision, like

0:22:49.683 --> 0:22:52.163
<v S2>if you have mobility issues, learning how to use white cane,

0:22:52.163 --> 0:22:54.042
<v S2>or if you need a guide dog or a seeing

0:22:54.082 --> 0:22:56.163
<v S2>eye dog, you can learn how to do that. You

0:22:56.163 --> 0:22:59.162
<v S2>can learn how to use computers and do all that

0:22:59.163 --> 0:23:01.643
<v S2>type of thing, but you can't really learn how to

0:23:01.802 --> 0:23:04.923
<v S2>deal with your blindness or your low vision until you

0:23:04.923 --> 0:23:07.883
<v S2>mix with people who are in a similar position. Do

0:23:07.882 --> 0:23:09.483
<v S2>you get that kind of feedback where you are?

0:23:09.523 --> 0:23:11.802
<v S3>Lena I think so, and I think that's learned experience.

0:23:11.802 --> 0:23:14.322
<v S3>That's very difficult for people that don't have that to

0:23:14.362 --> 0:23:16.123
<v S3>be able to share and to be able to explain

0:23:16.122 --> 0:23:19.162
<v S3>it in a way that's relatable to some other people.

0:23:19.163 --> 0:23:22.602
<v S3>So I'm trying to think of an example actually. I mean, actually,

0:23:22.602 --> 0:23:24.842
<v S3>one of the things that I found super interesting, because

0:23:24.842 --> 0:23:27.082
<v S3>I wasn't sure about it was Charles Bonnet syndrome, which

0:23:27.082 --> 0:23:30.123
<v S3>I'm sure you probably have heard about. Oh, you haven't see. Oh,

0:23:30.163 --> 0:23:33.683
<v S3>this is an amazing thing. So Charles Bonnet syndrome is

0:23:33.683 --> 0:23:38.372
<v S3>where people with who lose their vision start to have hallucinations.

0:23:38.372 --> 0:23:42.172
<v S3>But the way that that actually expressed itself in the

0:23:42.173 --> 0:23:44.852
<v S3>different people in the group, some people hadn't experienced it

0:23:44.852 --> 0:23:47.012
<v S3>at all, but others had experienced it, but in all

0:23:47.013 --> 0:23:50.173
<v S3>different ways. And I just found that so incredibly interesting

0:23:50.173 --> 0:23:52.613
<v S3>that it's the same kind of syndrome. But the way

0:23:52.612 --> 0:23:55.173
<v S3>it expressed itself was interesting. And I thought that could

0:23:55.173 --> 0:23:58.292
<v S3>be a particular subject where if you didn't know what

0:23:58.292 --> 0:24:01.572
<v S3>it was, it might be actually quite scary to see

0:24:01.572 --> 0:24:03.973
<v S3>things that, you know, are not there, but to hear

0:24:03.973 --> 0:24:07.372
<v S3>how that presented itself with real life examples, with people

0:24:07.372 --> 0:24:10.292
<v S3>that you know and are friends with. And trust is

0:24:10.292 --> 0:24:11.572
<v S3>incredibly powerful.

0:24:11.572 --> 0:24:14.572
<v S2>I think I have spoken to people in the past

0:24:14.612 --> 0:24:19.332
<v S2>who have spoken about the actual adaption that the brain makes,

0:24:19.653 --> 0:24:22.933
<v S2>and it guesses what we see a lot of the time,

0:24:22.933 --> 0:24:26.213
<v S2>and we actually think we're seeing something and our logic says, no,

0:24:26.213 --> 0:24:28.653
<v S2>I'm not seeing that because I can't physically see that.

0:24:28.653 --> 0:24:30.013
<v S2>But the brain adapts.

0:24:30.052 --> 0:24:32.973
<v S3>And maybe even just movement, right? So the way that

0:24:32.973 --> 0:24:36.582
<v S3>different people with low vision have adapted to moving in spaces.

0:24:36.582 --> 0:24:39.183
<v S3>I'm always amazed. We've got one member who's been blind

0:24:39.183 --> 0:24:42.542
<v S3>from birth and he's like a bat. He can, he can.

0:24:42.582 --> 0:24:45.342
<v S3>I'm amazed the way that he navigates without much guidance

0:24:45.342 --> 0:24:47.743
<v S3>compared to maybe someone who's lost their vision more recently

0:24:47.782 --> 0:24:50.342
<v S3>and who does require a little bit more assistance. And

0:24:50.342 --> 0:24:52.382
<v S3>it's all normal. It's all right.

0:24:52.423 --> 0:24:54.463
<v S2>It's all when you say it's like a bat, does

0:24:54.463 --> 0:24:56.822
<v S2>he actually do the clicking? I'm not saying that as

0:24:56.822 --> 0:24:57.622
<v S2>a joke. People do.

0:24:57.663 --> 0:25:01.542
<v S3>Oh, maybe he does. He's it's obviously just his superpower. Right. But, um,

0:25:01.542 --> 0:25:04.582
<v S3>and we've all got superpowers. But yeah, it's I just

0:25:04.582 --> 0:25:06.143
<v S3>find it amazing.

0:25:06.342 --> 0:25:10.503
<v S2>So Leanna, we'll start winding up the conversation now. So

0:25:10.503 --> 0:25:14.742
<v S2>just remind people that the eyesight group is held at

0:25:14.743 --> 0:25:17.262
<v S2>the census building in Osborne Park and you meet how

0:25:17.263 --> 0:25:18.103
<v S2>often do you meet?

0:25:18.142 --> 0:25:20.743
<v S3>We meet once a month, every month on the third

0:25:20.743 --> 0:25:23.663
<v S3>Wednesday of the month, and we meet between 10 a.m.

0:25:23.663 --> 0:25:27.463
<v S3>to 11:30 a.m. and we're meeting at the Census Building,

0:25:27.463 --> 0:25:30.782
<v S3>which is 20 Parkland Road in Osborne Park.

0:25:30.943 --> 0:25:33.943
<v S2>And just give us an example of, say, the next

0:25:33.943 --> 0:25:36.513
<v S2>couple of months, what you've got on the agenda.

0:25:36.832 --> 0:25:39.112
<v S3>Next month or this month? We're in. It's already October.

0:25:39.153 --> 0:25:41.432
<v S3>The month is. The year is getting away from us. Uh,

0:25:41.473 --> 0:25:44.233
<v S3>we'll be meeting in the office at the census WA office,

0:25:44.233 --> 0:25:46.393
<v S3>and we're going to have a bit of an overview

0:25:46.392 --> 0:25:49.152
<v S3>and an update from census WA on the types of

0:25:49.433 --> 0:25:52.353
<v S3>services that they can offer. So when I say we've

0:25:52.352 --> 0:25:54.872
<v S3>got a guest speaker, typically it's 15 or 20 minutes

0:25:54.872 --> 0:25:57.593
<v S3>and it just helps guide the conversation a little bit.

0:25:57.592 --> 0:26:00.032
<v S3>We still have plenty of time to have our usual

0:26:00.233 --> 0:26:04.872
<v S3>chats about anything and everything that's topical and hot with

0:26:04.872 --> 0:26:08.632
<v S3>our members. We are also planning on having a Christmas lunch.

0:26:08.632 --> 0:26:10.832
<v S3>I think we've decided that we'll be doing that in

0:26:11.312 --> 0:26:14.552
<v S3>November rather than in December, because the third Wednesday in

0:26:14.552 --> 0:26:17.352
<v S3>December is a little bit close to Christmas. Um, so

0:26:17.392 --> 0:26:19.673
<v S3>we'll be going out for lunch in November. And then

0:26:19.673 --> 0:26:24.113
<v S3>December and January are interesting because often it's a silly season.

0:26:24.112 --> 0:26:25.993
<v S3>But actually last year I remember they were some of

0:26:25.993 --> 0:26:29.233
<v S3>our busiest, busiest meetings. We were packed to the rafters. Uh,

0:26:29.273 --> 0:26:33.273
<v S3>we will, I think January, uh, personally, I'm going on holidays.

0:26:33.273 --> 0:26:36.113
<v S3>So I will be I'm going to Norway. I'm very excited.

0:26:36.112 --> 0:26:38.352
<v S3>So we'll probably skip January.

0:26:38.632 --> 0:26:41.632
<v S2>And if you're listening to this program via the podcast,

0:26:41.993 --> 0:26:45.473
<v S2>welcome and thank you. I'll put those details of how

0:26:45.473 --> 0:26:48.273
<v S2>to get involved with this group on the show notes

0:26:48.273 --> 0:26:52.072
<v S2>in the show description. If you're listening to this, wherever

0:26:52.072 --> 0:26:54.432
<v S2>you might be throughout Australia, if on the podcast throughout

0:26:54.433 --> 0:26:57.273
<v S2>the world, there are lots of little groups like this,

0:26:57.273 --> 0:27:00.833
<v S2>wherever you are, some are in person and some are

0:27:00.832 --> 0:27:05.673
<v S2>on the telephone or internet, and some are support groups

0:27:05.673 --> 0:27:10.952
<v S2>hidden in disguise by being connected to craft or sport

0:27:10.993 --> 0:27:14.233
<v S2>or walking or whatever it might be. I know that,

0:27:14.233 --> 0:27:17.152
<v S2>for instance, other group here in Perth, they have a

0:27:17.153 --> 0:27:21.152
<v S2>walking group, and I know also that Blind sports Western

0:27:21.193 --> 0:27:25.672
<v S2>Australia don't just hold sporting events, they often have social

0:27:25.673 --> 0:27:29.713
<v S2>events as well. And that's other ways of keeping connected

0:27:29.713 --> 0:27:31.872
<v S2>with the community. And in this sense, we're talking about

0:27:31.872 --> 0:27:34.673
<v S2>the blind community and the low vision community, and it's

0:27:34.673 --> 0:27:37.643
<v S2>a really valuable resource that you're helping to provide there.

0:27:37.842 --> 0:27:39.483
<v S2>And I'd like to thank you for coming into the

0:27:39.483 --> 0:27:41.643
<v S2>studio at Vision Australia to talk with us today.

0:27:41.683 --> 0:27:43.362
<v S3>Thank you so much for having me.

0:27:43.403 --> 0:27:45.802
<v S2>Thanks, Lena, and thank you too for listening. And that's

0:27:45.802 --> 0:27:47.723
<v S2>all we've got time for this week, folks. Join us

0:27:47.723 --> 0:27:49.202
<v S2>again next time and I'll speak to you then. Bye

0:27:49.243 --> 0:27:50.122
<v S2>for now. Cheers.

0:28:02.082 --> 0:28:04.683
<v S1>That concludes in plain sight for this week. Join us

0:28:04.683 --> 0:28:07.842
<v S1>at the same time next week on Vision Australia Radio,

0:28:08.163 --> 0:28:13.003
<v S1>VA radio digital and online at VA radio.org. You can

0:28:13.003 --> 0:28:16.483
<v S1>also listen on demand by searching for In Plain Sight

0:28:16.483 --> 0:28:20.363
<v S1>by Vision Australia Radio. Wherever you get your podcasts, or

0:28:20.362 --> 0:28:23.643
<v S1>ask your smart device to play in Plain Sight by

0:28:23.642 --> 0:28:26.042
<v S1>Vision Australia Radio. Thanks for listening.

0:28:26.322 --> 0:28:26.922
<v S2>Thank you.