1 00:00:01,000 --> 00:00:03,160 Speaker 1: Here at Two Good Sports, we would like to acknowledge 2 00:00:03,160 --> 00:00:05,440 Speaker 1: the traditional owners of the land on which we record 3 00:00:05,480 --> 00:00:08,800 Speaker 1: this podcast. The were innerie people. This land was never seated, 4 00:00:09,000 --> 00:00:17,200 Speaker 1: always was, always will be. Hello, Hello, hello, and welcome 5 00:00:17,280 --> 00:00:20,480 Speaker 1: to another episode of Two Good Sports Sports Newstyles Differently, 6 00:00:20,520 --> 00:00:21,560 Speaker 1: I'm Georgie Tunney and. 7 00:00:21,560 --> 00:00:23,920 Speaker 2: I'm maybe Jialmy and is it too beolishous? So this 8 00:00:23,960 --> 00:00:26,520 Speaker 2: is my favorite episode already. Oh, I think this is 9 00:00:26,560 --> 00:00:28,960 Speaker 2: our favorite guest that we've had. It's going to be 10 00:00:29,000 --> 00:00:31,440 Speaker 2: a massive episode for a cause very close to both 11 00:00:31,440 --> 00:00:33,000 Speaker 2: of our hearts. But I like you to make big 12 00:00:33,000 --> 00:00:33,560 Speaker 2: claims early. 13 00:00:33,680 --> 00:00:35,360 Speaker 3: I'm not you're the big claims early. 14 00:00:35,560 --> 00:00:37,680 Speaker 2: I like to reserve judgment, but I'm just I'm going 15 00:00:37,760 --> 00:00:38,519 Speaker 2: to go out there and say it. 16 00:00:38,520 --> 00:00:39,520 Speaker 4: But George, has your week. 17 00:00:39,400 --> 00:00:41,600 Speaker 5: Been not too bad? Not too bad? 18 00:00:41,640 --> 00:00:45,040 Speaker 1: This week's been pretty busy. I've been interstate for different shoots. 19 00:00:45,080 --> 00:00:47,840 Speaker 1: I've been in Melbourne for different shoots. But we've both 20 00:00:47,880 --> 00:00:50,240 Speaker 1: found the time to any celeb since I last spoke 21 00:00:50,280 --> 00:00:52,280 Speaker 1: to you. Ah yet do you know what I've got 22 00:00:52,840 --> 00:00:55,440 Speaker 1: this week? We've got Cynthia Rivo coming up. A chat 23 00:00:55,480 --> 00:00:58,080 Speaker 1: with Cynthia Rivo. Your mate, my mate, my mate, my mate, 24 00:00:58,400 --> 00:01:01,360 Speaker 1: my best friend. And also I got to have a 25 00:01:01,400 --> 00:01:03,720 Speaker 1: lovely sit down chat with Jared Butler. 26 00:01:03,760 --> 00:01:07,360 Speaker 5: Do you remember Jered Butler? Gerard Butler, Gerard Butler, Yeah, 27 00:01:07,560 --> 00:01:08,360 Speaker 5: I mean Jared to me? 28 00:01:08,440 --> 00:01:12,440 Speaker 3: Do I remember Gerard Butler? Sometimes? I swear to God, 29 00:01:13,920 --> 00:01:17,039 Speaker 3: it's like, you're trolling me with this friendship? Do you 30 00:01:17,080 --> 00:01:17,800 Speaker 3: know Gard Butler? 31 00:01:17,800 --> 00:01:18,160 Speaker 2: I don't know. 32 00:01:18,200 --> 00:01:21,319 Speaker 3: Ps, I love you. Never cried watching that? Are you 33 00:01:21,480 --> 00:01:22,080 Speaker 3: off your head? 34 00:01:22,200 --> 00:01:22,400 Speaker 6: Yeah? 35 00:01:22,480 --> 00:01:25,039 Speaker 5: Yeah, yeah, yeah, So that's that's gonna be that's gonna 36 00:01:25,040 --> 00:01:25,399 Speaker 5: be coming. 37 00:01:25,600 --> 00:01:28,119 Speaker 3: He's so delightful. And he was in that rom com 38 00:01:28,240 --> 00:01:33,360 Speaker 3: with Catherine Yeah yeah about men sucking and then they 39 00:01:33,400 --> 00:01:36,240 Speaker 3: go in the hot air balloon. Of course, Butler is 40 00:01:36,760 --> 00:01:38,959 Speaker 3: he is hang on is a geredal Gerard? 41 00:01:39,160 --> 00:01:40,840 Speaker 5: I mean I called him Jared the whole time, So 42 00:01:40,880 --> 00:01:41,839 Speaker 5: I'm hoping it to Jared. 43 00:01:46,560 --> 00:01:50,120 Speaker 1: So you know, you say potato, I say potatos in origin? 44 00:01:50,200 --> 00:01:52,760 Speaker 3: She fine, don't need to fact check? 45 00:01:53,840 --> 00:01:56,600 Speaker 1: Yah, fine, that's amazing. 46 00:01:56,960 --> 00:01:58,400 Speaker 3: How have you not brought that up with me? 47 00:01:58,560 --> 00:01:58,720 Speaker 2: Well? 48 00:01:59,440 --> 00:02:00,360 Speaker 5: One of those things? You know what? 49 00:02:00,440 --> 00:02:02,920 Speaker 1: It's like, I was last night, I don't know, it 50 00:02:02,960 --> 00:02:05,480 Speaker 1: was last minute involved. They're like, hey, are you able 51 00:02:05,520 --> 00:02:08,200 Speaker 1: to like have some time out of your weekend. It 52 00:02:08,320 --> 00:02:09,679 Speaker 1: was on a weekend. Yes, I'm a hero. 53 00:02:11,760 --> 00:02:13,200 Speaker 5: Can you talk to Jared Butler? 54 00:02:13,240 --> 00:02:17,000 Speaker 1: And I said, oh, okay, all right, I will, I will, 55 00:02:17,080 --> 00:02:21,240 Speaker 1: And he was absolutely of course, he was delightful. He 56 00:02:21,400 --> 00:02:24,360 Speaker 1: was delightful and spoiler, I'm not sure exactly when the 57 00:02:24,400 --> 00:02:28,000 Speaker 1: chat is going to air, but we do talk a 58 00:02:28,000 --> 00:02:33,440 Speaker 1: lot about family for him, and he is he is really, really, 59 00:02:33,480 --> 00:02:35,400 Speaker 1: really really lovely. We also talk about PS I Love 60 00:02:35,440 --> 00:02:37,920 Speaker 1: You that's in there, and I nearly get him to cry. 61 00:02:38,680 --> 00:02:40,960 Speaker 2: Dear listener, you just got an insight into what it's 62 00:02:41,040 --> 00:02:42,040 Speaker 2: like to be Georgie's friend. 63 00:02:42,520 --> 00:02:44,839 Speaker 3: She's like, oh, during the week, what did I do? 64 00:02:45,080 --> 00:02:45,720 Speaker 3: What did I? 65 00:02:45,919 --> 00:02:46,040 Speaker 1: Uh? 66 00:02:47,160 --> 00:02:47,359 Speaker 5: Oh? 67 00:02:47,440 --> 00:02:50,240 Speaker 3: Cynthia Rivo and draw Butler? But are you good? Are 68 00:02:50,240 --> 00:02:52,440 Speaker 3: you good? How was the grocery store the other day? 69 00:02:52,560 --> 00:02:52,760 Speaker 6: Gone? 70 00:02:52,800 --> 00:02:54,240 Speaker 3: Well? Go well for you? 71 00:02:54,960 --> 00:02:56,919 Speaker 5: A'le nine? How that what's in there? 72 00:02:57,880 --> 00:03:03,760 Speaker 3: Probably a DVD P Yes I Love You Classic? If 73 00:03:03,760 --> 00:03:05,840 Speaker 3: you will, okay, we need to push on. That can 74 00:03:05,840 --> 00:03:09,280 Speaker 3: be your good sports good spot. But is he divine? 75 00:03:09,400 --> 00:03:10,880 Speaker 5: Is he divine with a capital D? 76 00:03:11,200 --> 00:03:11,440 Speaker 7: Oh? 77 00:03:11,520 --> 00:03:12,600 Speaker 5: My goodness? Lovely? 78 00:03:12,680 --> 00:03:15,880 Speaker 3: It was one of sometimes they're not sometimes and you're like. 79 00:03:16,000 --> 00:03:17,320 Speaker 5: Mariah, we love you, babe. 80 00:03:17,320 --> 00:03:18,240 Speaker 4: But what's going on? 81 00:03:19,240 --> 00:03:24,000 Speaker 3: Oh my god, I didn't know that we were all okay, 82 00:03:24,360 --> 00:03:26,280 Speaker 3: good sports, bastball going out the window. When you talk 83 00:03:26,320 --> 00:03:29,880 Speaker 3: about this, you didn't interview with Mariah Carey recently where 84 00:03:29,880 --> 00:03:30,799 Speaker 3: she looked like she. 85 00:03:30,919 --> 00:03:34,400 Speaker 1: Was a I yes, yes, it's one of those ones 86 00:03:34,440 --> 00:03:37,240 Speaker 1: where I was so thrilled and excited to talk to 87 00:03:37,280 --> 00:03:41,280 Speaker 1: her because it's Mariah and so many different factors, like 88 00:03:41,320 --> 00:03:43,920 Speaker 1: when you have these zoom chats sometimes like the setups 89 00:03:43,920 --> 00:03:45,880 Speaker 1: and things can be really tricky. So I'm sure that 90 00:03:45,960 --> 00:03:48,840 Speaker 1: I was on like a little screen in the corner, 91 00:03:49,160 --> 00:03:51,520 Speaker 1: you know, just for her, and she's like, you can't really, 92 00:03:51,680 --> 00:03:53,560 Speaker 1: she doesn't know who she's talking to. She's looking at 93 00:03:53,560 --> 00:03:54,720 Speaker 1: the Camera's not a thing, but it. 94 00:03:54,800 --> 00:03:56,720 Speaker 3: Was she might have to perform. 95 00:03:57,280 --> 00:03:58,520 Speaker 5: It was just one. It was. 96 00:03:58,560 --> 00:04:00,840 Speaker 1: It was a It was a hard, a hard chat, 97 00:04:00,880 --> 00:04:04,000 Speaker 1: and I was working real hard, working, real hard. 98 00:04:04,040 --> 00:04:07,480 Speaker 2: When there are follow up articles to your interview about 99 00:04:07,480 --> 00:04:10,480 Speaker 2: the fact that she may not have been real, yeah, 100 00:04:10,560 --> 00:04:13,560 Speaker 2: I mean we've done robotic chats with people that give 101 00:04:13,600 --> 00:04:15,560 Speaker 2: you one word answers before, but it's different when it 102 00:04:15,600 --> 00:04:18,520 Speaker 2: actually hits the newstream, being like, well the real Mariah 103 00:04:18,520 --> 00:04:19,240 Speaker 2: please tend up? 104 00:04:19,839 --> 00:04:22,919 Speaker 3: Does she have some sort of paralysis going on? 105 00:04:23,320 --> 00:04:24,640 Speaker 5: Do you know what? She's still? 106 00:04:24,960 --> 00:04:27,320 Speaker 1: There were moments where she was Mariah, do you know 107 00:04:27,320 --> 00:04:28,680 Speaker 1: what I mean? There were moments that I was like, 108 00:04:28,720 --> 00:04:30,440 Speaker 1: she was the Maria I was expecting that's what I 109 00:04:30,480 --> 00:04:32,960 Speaker 1: should say in that She's still. 110 00:04:33,040 --> 00:04:35,600 Speaker 5: There was parts where she's like, you know, basically and 111 00:04:35,680 --> 00:04:36,159 Speaker 5: like you know what. 112 00:04:36,200 --> 00:04:37,840 Speaker 1: I was like, Oh, people assholes, and she just goes 113 00:04:37,880 --> 00:04:39,599 Speaker 1: basically and I was like, there's the Queen. 114 00:04:39,640 --> 00:04:41,080 Speaker 3: There, she is, there she is. 115 00:04:41,080 --> 00:04:42,800 Speaker 2: Do you want to talk about the other article that 116 00:04:42,880 --> 00:04:46,799 Speaker 2: you made from that interview and what happened with the koalas? 117 00:04:48,040 --> 00:04:48,920 Speaker 5: I forgot about that? 118 00:04:49,360 --> 00:04:50,400 Speaker 4: Yeah? Yeah, yeah yeah. 119 00:04:50,400 --> 00:04:54,880 Speaker 1: Did I maybe maybe suggest that if Mariah truly did 120 00:04:54,880 --> 00:04:56,720 Speaker 1: want to have a koala as her writer, and that's 121 00:04:56,720 --> 00:04:59,080 Speaker 1: the thing that people have backstage to make them feel 122 00:04:59,080 --> 00:05:01,360 Speaker 1: more comfortable, if she did want to have a koala there. 123 00:05:01,320 --> 00:05:04,279 Speaker 5: She better watch out because you might get chlamydia from koa's. 124 00:05:05,520 --> 00:05:07,400 Speaker 1: I just needed to tell her it was a PSA 125 00:05:07,920 --> 00:05:11,159 Speaker 1: and Mariah again, the Queen stood up and she said no, 126 00:05:11,360 --> 00:05:12,120 Speaker 1: I wouldn't. 127 00:05:15,560 --> 00:05:19,920 Speaker 4: Okay, So this is this week's around to Mariah Carey 128 00:05:20,920 --> 00:05:27,120 Speaker 4: and just the little Shaded Families with dra Butler, I 129 00:05:27,160 --> 00:05:28,800 Speaker 4: will very very quickly have a good sport that is 130 00:05:28,800 --> 00:05:31,360 Speaker 4: a sport because we better I mean entertainment and sport blur, 131 00:05:31,480 --> 00:05:34,200 Speaker 4: but probably not that far my. 132 00:05:34,279 --> 00:05:35,279 Speaker 3: Good sport of the week. 133 00:05:35,400 --> 00:05:39,320 Speaker 2: Look, could I talk about Joe Monteburerou being finally announced 134 00:05:39,640 --> 00:05:41,520 Speaker 2: as a Matilda's coach and Water signing. 135 00:05:41,200 --> 00:05:42,920 Speaker 5: With Waiting, Yeah? 136 00:05:43,040 --> 00:05:43,400 Speaker 4: I could. 137 00:05:43,600 --> 00:05:44,120 Speaker 3: But what I. 138 00:05:44,200 --> 00:05:46,919 Speaker 2: Wanna highlight here is Mary Fowler. Now we know that 139 00:05:46,920 --> 00:05:49,000 Speaker 2: she's injured at the moment, but she's actually come out 140 00:05:49,000 --> 00:05:52,200 Speaker 2: and said this, And I find this so interesting, Georgie, 141 00:05:52,200 --> 00:05:52,880 Speaker 2: I'd love your take. 142 00:05:53,400 --> 00:05:56,359 Speaker 6: I enjoy playing football, but I wouldn't say it's my passion. 143 00:05:56,720 --> 00:05:58,760 Speaker 6: There are a lot of things that I enjoy about it, 144 00:05:58,839 --> 00:06:02,200 Speaker 6: and I really enjoy traveling and being with my teammates 145 00:06:02,240 --> 00:06:03,120 Speaker 6: and the people. 146 00:06:02,880 --> 00:06:04,040 Speaker 3: That I've met through football. 147 00:06:04,279 --> 00:06:07,440 Speaker 6: But like if I finished it tomorrow, like I probably 148 00:06:07,480 --> 00:06:10,520 Speaker 6: wouldn't have any regrets. I think there's other things outside 149 00:06:10,520 --> 00:06:12,279 Speaker 6: of football that I am more passionate about. 150 00:06:12,480 --> 00:06:16,719 Speaker 2: Normalize your occupation, not having to be the be all 151 00:06:16,800 --> 00:06:19,919 Speaker 2: and end all of your entire being and personality. I 152 00:06:20,200 --> 00:06:23,120 Speaker 2: love that she came out and said this, particularly with 153 00:06:23,160 --> 00:06:27,240 Speaker 2: football fans who can be so aggressive. We've only had 154 00:06:27,279 --> 00:06:28,839 Speaker 2: them on the side of if you don't pronounce something 155 00:06:28,880 --> 00:06:30,080 Speaker 2: absolutely perfectly, they. 156 00:06:29,960 --> 00:06:30,960 Speaker 5: Come for you, don't like you. 157 00:06:31,200 --> 00:06:33,480 Speaker 2: But I love that she's had the confidence here to say, look, 158 00:06:33,520 --> 00:06:35,280 Speaker 2: I love it and I love traveling like it, but 159 00:06:35,520 --> 00:06:38,280 Speaker 2: it's not who I am. 160 00:06:38,360 --> 00:06:41,200 Speaker 1: Yeah, and do you know what, I think that this 161 00:06:41,360 --> 00:06:45,120 Speaker 1: honesty from Mary Fowler, we still aren't used to seeing 162 00:06:45,160 --> 00:06:47,760 Speaker 1: it in world sport, even though I think that it 163 00:06:47,880 --> 00:06:50,600 Speaker 1: is such a healthy perspective to have. I mean, Nick 164 00:06:50,680 --> 00:06:53,599 Speaker 1: Kurios tries to have this opinion and everyone loathes him 165 00:06:54,000 --> 00:06:55,880 Speaker 1: for it. Right, there's a lot of other different issues 166 00:06:55,920 --> 00:06:59,040 Speaker 1: going on there too. It doesn't take Yeah, there's things 167 00:06:59,080 --> 00:07:01,480 Speaker 1: happening that's just for me. But essentially one of Nick 168 00:07:01,520 --> 00:07:04,640 Speaker 1: Curios's biggest crimes is that basketball is actually his passion, 169 00:07:04,720 --> 00:07:07,240 Speaker 1: not tennis. Right, It was a shame that he wasn't 170 00:07:07,279 --> 00:07:09,400 Speaker 1: as good as that as he is at tennis. But 171 00:07:09,480 --> 00:07:12,920 Speaker 1: I think when you're treating your sport as an actual job, 172 00:07:13,440 --> 00:07:15,880 Speaker 1: that is a far healthier way to approach it sometimes 173 00:07:15,960 --> 00:07:18,960 Speaker 1: rather than having it be your one thousand percent identity. 174 00:07:19,000 --> 00:07:20,760 Speaker 2: And I love that people can use that in their 175 00:07:20,800 --> 00:07:23,200 Speaker 2: own life, and so many people look up to people 176 00:07:23,200 --> 00:07:26,400 Speaker 2: at Mary Fowler and go oh, but being all consumed 177 00:07:26,480 --> 00:07:28,880 Speaker 2: by what you do often means the win and loss 178 00:07:28,920 --> 00:07:32,080 Speaker 2: can really devastate you on a level that isn't healthy. 179 00:07:32,640 --> 00:07:33,480 Speaker 3: I love that from her. 180 00:07:33,640 --> 00:07:36,880 Speaker 1: Well, it brings perspective, doesn't it. It brings absolute perspective. 181 00:07:37,040 --> 00:07:40,600 Speaker 1: And what a lovely little tie into my good sport 182 00:07:40,600 --> 00:07:42,960 Speaker 1: of the week, which actually happens to be a great sport. 183 00:07:43,520 --> 00:07:45,560 Speaker 1: And that is our next guest who is going to 184 00:07:45,600 --> 00:07:47,320 Speaker 1: give us their perspective on life. 185 00:07:47,320 --> 00:07:49,920 Speaker 5: And everyone better be listening. 186 00:07:49,000 --> 00:08:05,040 Speaker 1: Away, Jelmy. We talk about family a lot on this 187 00:08:05,160 --> 00:08:08,520 Speaker 1: podcast because to succeed in any code or league or competition, 188 00:08:08,640 --> 00:08:10,160 Speaker 1: we know that it takes a village. 189 00:08:10,600 --> 00:08:13,120 Speaker 5: And just as there's no iron team, there's no one 190 00:08:13,320 --> 00:08:14,000 Speaker 5: in family. 191 00:08:14,480 --> 00:08:18,720 Speaker 1: Families build footballers, they support clubs, They carve legacies, some 192 00:08:19,360 --> 00:08:22,840 Speaker 1: more than most, like the Danaher family. What they mean 193 00:08:22,880 --> 00:08:25,239 Speaker 1: to the AFL world is hard to put into words. 194 00:08:25,280 --> 00:08:29,160 Speaker 1: Danaher is one of those names. It's both whispered with 195 00:08:29,280 --> 00:08:32,880 Speaker 1: reverence and yelled with either triumph or despair, depending on 196 00:08:32,920 --> 00:08:36,960 Speaker 1: who you support. It's also one that now transcends sport. 197 00:08:37,520 --> 00:08:41,800 Speaker 1: In twenty thirteen, bona Fide Legend certified Neil Danaher was 198 00:08:41,840 --> 00:08:44,920 Speaker 1: diagnosed with motor neurone disease. Now, at that time, most 199 00:08:44,920 --> 00:08:47,480 Speaker 1: people would have only known MND as the thing that 200 00:08:47,520 --> 00:08:50,920 Speaker 1: Stephen Hawking had. It's not an exaggeration to say that 201 00:08:51,320 --> 00:08:54,040 Speaker 1: because of Neil and his family, that's no longer the case. 202 00:08:54,679 --> 00:08:58,000 Speaker 1: Their charity five MND has raised not only one hundred 203 00:08:58,040 --> 00:09:00,880 Speaker 1: and fifteen million dollars to find a cue, but it's 204 00:09:00,920 --> 00:09:04,760 Speaker 1: also raised awareness, so much so that come Monday, the 205 00:09:04,920 --> 00:09:07,920 Speaker 1: MCG will be filled with one hundred thousand people, each 206 00:09:07,960 --> 00:09:10,920 Speaker 1: head donning a blue pattern beanie for the eleventh edition 207 00:09:11,000 --> 00:09:13,760 Speaker 1: of The Big Freeze, a match dedicated to ending this 208 00:09:13,880 --> 00:09:17,960 Speaker 1: god awful disease, each person knowing and understanding in part 209 00:09:18,440 --> 00:09:22,040 Speaker 1: what MND does to a family. Now, someone who understands 210 00:09:22,080 --> 00:09:25,480 Speaker 1: better than most, better than anyone, really is Beck Danaher, 211 00:09:25,960 --> 00:09:29,080 Speaker 1: Neil's daughter and an executive director at Fire MND. She's 212 00:09:29,160 --> 00:09:32,920 Speaker 1: responsible for designing the very first Big Freeze beanie, and 213 00:09:33,000 --> 00:09:35,440 Speaker 1: we are thrilled that she's taken time out of her 214 00:09:35,480 --> 00:09:38,920 Speaker 1: outrageously busy schedule. Jelmy did say the words she's busier 215 00:09:38,920 --> 00:09:44,760 Speaker 1: than the Queen to join two good sports today. Please welcome, 216 00:09:47,480 --> 00:09:48,280 Speaker 1: Thank you very. 217 00:09:48,280 --> 00:09:49,480 Speaker 3: Much, thank you. 218 00:09:49,800 --> 00:09:51,600 Speaker 4: I don't want to take credit for the design of 219 00:09:51,600 --> 00:09:53,920 Speaker 4: the first beanie because if you look back, that's a shocker, 220 00:09:54,640 --> 00:09:56,440 Speaker 4: a shocker. We've come a long way. 221 00:09:57,040 --> 00:10:00,200 Speaker 1: We have our beanies on today in support for Big 222 00:10:00,200 --> 00:10:03,320 Speaker 1: Freeze eleven. What you have been able to do in 223 00:10:03,360 --> 00:10:06,640 Speaker 1: this space is unbelievable. 224 00:10:06,800 --> 00:10:07,840 Speaker 5: We're going to get to it. 225 00:10:07,880 --> 00:10:10,199 Speaker 1: But I've heard you say, Beck that one of your 226 00:10:10,280 --> 00:10:12,360 Speaker 1: ultimate goals, though, is that you're in the business for 227 00:10:12,400 --> 00:10:13,240 Speaker 1: going out of business. 228 00:10:13,360 --> 00:10:14,640 Speaker 5: Can you kind of explain what that? 229 00:10:14,640 --> 00:10:14,679 Speaker 6: Do? 230 00:10:14,880 --> 00:10:15,199 Speaker 2: You say? 231 00:10:15,640 --> 00:10:17,800 Speaker 4: We are working towards a day where there are treatments 232 00:10:17,840 --> 00:10:19,559 Speaker 4: and a cure for M and D. Fighter men D 233 00:10:19,720 --> 00:10:23,000 Speaker 4: doesn't exist. You don't see the blue beanies anywhere other 234 00:10:23,120 --> 00:10:25,439 Speaker 4: than pulling it out to remember what we've done. So 235 00:10:25,480 --> 00:10:28,920 Speaker 4: we want to just not need to be here, and 236 00:10:29,240 --> 00:10:31,760 Speaker 4: really I just go I reflect back to when Dad 237 00:10:31,760 --> 00:10:33,760 Speaker 4: sat across from me at the cafe and he said, 238 00:10:34,160 --> 00:10:35,959 Speaker 4: I've been diagnosed with M and D. I didn't know 239 00:10:36,000 --> 00:10:39,559 Speaker 4: what that was. I had no idea. And the thing 240 00:10:39,600 --> 00:10:42,920 Speaker 4: that just was like the focus of that was there's 241 00:10:42,960 --> 00:10:45,760 Speaker 4: no treatments, there's no cure. Twenty seven months as average 242 00:10:45,800 --> 00:10:47,400 Speaker 4: life span. So we want to be in a position 243 00:10:47,960 --> 00:10:51,800 Speaker 4: one day where a daughter or son isn't sitting across 244 00:10:51,880 --> 00:10:55,079 Speaker 4: from a family member and hearing the news. So that 245 00:10:55,280 --> 00:10:57,880 Speaker 4: is absolutely we are in the business of going out. 246 00:10:57,880 --> 00:11:00,240 Speaker 4: We don't want to exist. That is the time when 247 00:11:00,240 --> 00:11:04,080 Speaker 4: I lose my job. Hopefully because it's when we go 248 00:11:04,240 --> 00:11:08,160 Speaker 4: out of business, we will be popping champagnes and celebrating 249 00:11:08,200 --> 00:11:08,760 Speaker 4: every moment. 250 00:11:09,360 --> 00:11:11,080 Speaker 2: Can you take us back to that moment in the 251 00:11:11,120 --> 00:11:14,160 Speaker 2: cafe because I think, and again we were talking off air, 252 00:11:14,240 --> 00:11:18,400 Speaker 2: We're so grateful for you always unboxing this moment which 253 00:11:18,440 --> 00:11:21,720 Speaker 2: is so personal, like family, family health and family issues 254 00:11:21,720 --> 00:11:24,120 Speaker 2: are usually so personal. And your family have been so 255 00:11:24,240 --> 00:11:26,560 Speaker 2: courageous in putting this on the wider scale for the 256 00:11:26,559 --> 00:11:29,200 Speaker 2: betterment of everyone else. If and Neil has often said, 257 00:11:29,240 --> 00:11:31,440 Speaker 2: you know, this might not help me, but this will 258 00:11:31,440 --> 00:11:33,880 Speaker 2: help someone else. And I'm out here doing this for 259 00:11:33,920 --> 00:11:37,679 Speaker 2: the wider community. And but that moment, I mean, I'll 260 00:11:37,720 --> 00:11:40,040 Speaker 2: speak for myself, and especially I think when your dad's 261 00:11:40,040 --> 00:11:44,120 Speaker 2: sort of into sport dad superman, Dad's meant to be bulletproof. 262 00:11:44,200 --> 00:11:48,160 Speaker 2: He's your protector, he's you know, and particularly kneel Dana 263 00:11:48,240 --> 00:11:51,400 Speaker 2: her with this you know, feared but loved figure in 264 00:11:51,440 --> 00:11:52,559 Speaker 2: our brutal game. 265 00:11:54,040 --> 00:11:55,040 Speaker 3: How did you feel? 266 00:11:56,120 --> 00:11:58,920 Speaker 4: I think I was so naive. I was twenty two, 267 00:11:59,040 --> 00:12:01,360 Speaker 4: twenty three when he sat down and I was I'd 268 00:12:01,400 --> 00:12:04,040 Speaker 4: made the Australian team for rowing and I missed out 269 00:12:04,080 --> 00:12:06,800 Speaker 4: and missed out and this was like the ultimate goal fulfilled, 270 00:12:06,800 --> 00:12:08,719 Speaker 4: like I was pulling on the green and gold. And 271 00:12:09,320 --> 00:12:11,200 Speaker 4: Dad asked me. I think it was about two months 272 00:12:11,240 --> 00:12:16,840 Speaker 4: before I went overseas to Korea, South Korea, and he 273 00:12:16,880 --> 00:12:18,679 Speaker 4: sat me down and he just said, oh, I've got 274 00:12:18,679 --> 00:12:20,680 Speaker 4: something to tell you. And he was living in Wa 275 00:12:20,800 --> 00:12:22,840 Speaker 4: and I was like, oh, great, like let's have a chat, 276 00:12:23,240 --> 00:12:24,959 Speaker 4: and no doubt I sat down and was probably talking 277 00:12:25,000 --> 00:12:27,280 Speaker 4: about myself and rowing and everything I was going through 278 00:12:27,280 --> 00:12:28,360 Speaker 4: in Oh, it's so tough. 279 00:12:28,440 --> 00:12:29,839 Speaker 3: I'm twenty two. 280 00:12:31,960 --> 00:12:35,120 Speaker 4: And he just said, oh, I'd lived it in quite 281 00:12:35,160 --> 00:12:37,720 Speaker 4: a cavalier way. Because I think Dad's always protective. And 282 00:12:38,160 --> 00:12:40,720 Speaker 4: when I looked at him, he was fifty three, he 283 00:12:40,840 --> 00:12:43,560 Speaker 4: was so robust. He was my same dad. I couldn't 284 00:12:43,600 --> 00:12:47,280 Speaker 4: see any changes in him. He had just some weaknesses 285 00:12:47,320 --> 00:12:49,480 Speaker 4: in his body that he noticed that we hadn't seen 286 00:12:49,559 --> 00:12:51,839 Speaker 4: just yet. And he's like, okay, well I need to 287 00:12:51,880 --> 00:12:54,360 Speaker 4: tell you. I've come over here. It's I've just been 288 00:12:54,400 --> 00:12:57,760 Speaker 4: at Saint Vincent's got my second diagnosis, and they've told 289 00:12:57,760 --> 00:13:01,160 Speaker 4: me that I have MND. And I was like, I'm 290 00:13:01,240 --> 00:13:04,480 Speaker 4: not across that. Like you said, I just knew Steven 291 00:13:04,480 --> 00:13:06,880 Speaker 4: Hawking had it. He had it for a really long time. 292 00:13:07,640 --> 00:13:10,200 Speaker 4: So we like talking about a chronic illness. So what 293 00:13:10,240 --> 00:13:12,480 Speaker 4: do we do? And the first question is okay, cool, 294 00:13:12,760 --> 00:13:14,960 Speaker 4: So what do we do? What treatments? How do you 295 00:13:15,000 --> 00:13:20,360 Speaker 4: attack this beast? And he's just like, there's no treatments. Yeah, 296 00:13:20,400 --> 00:13:23,439 Speaker 4: there's nothing we can do, but that's okay. And he 297 00:13:23,840 --> 00:13:25,040 Speaker 4: this is what he said to me, and I still 298 00:13:25,040 --> 00:13:26,839 Speaker 4: remember He's like, you know, I could walk out today 299 00:13:26,840 --> 00:13:29,040 Speaker 4: and get hit by a bus. Like, you know, we 300 00:13:29,120 --> 00:13:31,920 Speaker 4: just need to focus on what we've got. We've got today, 301 00:13:31,920 --> 00:13:34,280 Speaker 4: We've got now you know, there will be battles ahead 302 00:13:34,280 --> 00:13:36,079 Speaker 4: of us, but we just need to take it one 303 00:13:36,120 --> 00:13:38,839 Speaker 4: day at a time. And for our family, play on 304 00:13:38,960 --> 00:13:42,920 Speaker 4: became our mantra. So Dad had this amazing way and 305 00:13:42,960 --> 00:13:45,240 Speaker 4: for me, I talk about this that this was the 306 00:13:45,240 --> 00:13:48,199 Speaker 4: most pivotal thing that someone has done in my life. 307 00:13:49,400 --> 00:13:52,040 Speaker 4: He chose to listen to mister positive, not to listen 308 00:13:52,040 --> 00:13:54,760 Speaker 4: to mister negative. So He led from the front and 309 00:13:54,800 --> 00:13:58,000 Speaker 4: set our family up with how we would approach this 310 00:13:58,520 --> 00:14:01,760 Speaker 4: really unknown challenge. He said, Okay, this is how we 311 00:14:01,800 --> 00:14:03,560 Speaker 4: can fight back. So he gave us a way to 312 00:14:04,320 --> 00:14:08,160 Speaker 4: not just get locked into just watching your dad's slowly decline. 313 00:14:08,559 --> 00:14:10,920 Speaker 4: He gave us a way to fight back, to find 314 00:14:10,920 --> 00:14:14,560 Speaker 4: a way that we could feel in control and take 315 00:14:14,600 --> 00:14:17,400 Speaker 4: on the fight. And for me, that was it is 316 00:14:17,440 --> 00:14:20,920 Speaker 4: the most powerful thing to have someone not just tell 317 00:14:20,960 --> 00:14:22,800 Speaker 4: you what to do, but to model it and to 318 00:14:22,960 --> 00:14:25,640 Speaker 4: show you the way and give you an avenue to 319 00:14:25,680 --> 00:14:28,520 Speaker 4: be like, Okay, I'm with you. I want to support you. 320 00:14:29,040 --> 00:14:31,760 Speaker 4: I am so grateful for his mindset. He's incredible. 321 00:14:31,840 --> 00:14:33,600 Speaker 5: When is it hardest to play on? Though? 322 00:14:34,920 --> 00:14:39,760 Speaker 4: Many, many times, many times I think, so M and 323 00:14:39,800 --> 00:14:42,960 Speaker 4: D is a slow progression. We're lucky. So I got 324 00:14:43,000 --> 00:14:45,680 Speaker 4: to put it, We're very lucky. The average last band 325 00:14:45,760 --> 00:14:47,960 Speaker 4: is twenty seven months. That's very real. I had a 326 00:14:47,960 --> 00:14:51,600 Speaker 4: friend from diagnosis. I had a friend who lasted six weeks. 327 00:14:52,200 --> 00:14:54,720 Speaker 4: So when I talk about a slow progression, I'm talking 328 00:14:54,720 --> 00:14:56,920 Speaker 4: about Dad's journey, not others. It's very different. 329 00:14:57,160 --> 00:15:00,200 Speaker 1: That's a misconception is that there are many different times 330 00:15:00,360 --> 00:15:02,480 Speaker 1: categories when it comes to MNDS. 331 00:15:02,560 --> 00:15:04,280 Speaker 4: Yeah, and we're still trying to work that out. So 332 00:15:04,440 --> 00:15:07,240 Speaker 4: that's why we're more we learn about M and D, 333 00:15:07,320 --> 00:15:09,440 Speaker 4: the more complicated is and the more that we realize 334 00:15:09,480 --> 00:15:11,960 Speaker 4: we've got So we've got to find the answer to 335 00:15:12,000 --> 00:15:14,200 Speaker 4: how do we categorize them so that we're putting them 336 00:15:14,200 --> 00:15:16,400 Speaker 4: in the right avenue. When you talk about M and D, 337 00:15:17,280 --> 00:15:19,400 Speaker 4: you can sort of like cancer has different forms of 338 00:15:19,440 --> 00:15:21,880 Speaker 4: cancer and you don't treat them the same. So we're 339 00:15:21,880 --> 00:15:24,360 Speaker 4: in that sort of same boat. But we're lucky that 340 00:15:24,760 --> 00:15:28,600 Speaker 4: Dad is a slow progressing and when it gets hard, 341 00:15:28,680 --> 00:15:32,400 Speaker 4: it's it's the moments where you come up to like 342 00:15:32,480 --> 00:15:34,680 Speaker 4: a milestone and you realize you're not going to get 343 00:15:34,680 --> 00:15:37,680 Speaker 4: it back. So once something happens, so for example, Dad's 344 00:15:37,680 --> 00:15:39,560 Speaker 4: now in a wheelchair, we know he's not going to 345 00:15:39,600 --> 00:15:42,560 Speaker 4: get better. That's a moment and a really visible moment 346 00:15:42,600 --> 00:15:45,119 Speaker 4: where he's not walking anymore and he's in a wheelchair. 347 00:15:45,680 --> 00:15:48,520 Speaker 4: I've got one coming up on Monday, and I still 348 00:15:48,560 --> 00:15:51,320 Speaker 4: get a little bit emotional about this one. But we 349 00:15:51,360 --> 00:15:53,560 Speaker 4: can't get him on the stage, so he's going to 350 00:15:53,560 --> 00:15:55,800 Speaker 4: be down on the ground. He'll be there as long 351 00:15:55,840 --> 00:15:58,320 Speaker 4: as it's not running sideways, he's gonna be on that 352 00:15:58,520 --> 00:16:02,520 Speaker 4: stage at the bottom. But you know, for me, I've 353 00:16:02,560 --> 00:16:04,640 Speaker 4: been up there on that stage with him pretty much 354 00:16:04,680 --> 00:16:09,360 Speaker 4: from the beginning. It's this joint memories that we have together. 355 00:16:09,440 --> 00:16:12,280 Speaker 4: We celebrate it, like we I get to watch his 356 00:16:12,400 --> 00:16:14,640 Speaker 4: face and he lights up when those sliders go down. 357 00:16:15,560 --> 00:16:17,480 Speaker 4: You've seen him. It's just like it gets so much 358 00:16:17,480 --> 00:16:19,720 Speaker 4: a joyment out of seeing someone submerged in eye. 359 00:16:21,080 --> 00:16:24,920 Speaker 2: I genuinely like, short of my immediate family, I don't 360 00:16:24,920 --> 00:16:26,640 Speaker 2: know that anyone's looked at me with that much. 361 00:16:26,560 --> 00:16:28,400 Speaker 3: Joy as that. 362 00:16:28,480 --> 00:16:33,600 Speaker 2: You just feel this really palpable gratitude and joy and 363 00:16:33,960 --> 00:16:36,360 Speaker 2: coming from someone that you admire so much, if like, 364 00:16:36,440 --> 00:16:38,880 Speaker 2: it is the most special and one of the greatest 365 00:16:38,880 --> 00:16:41,280 Speaker 2: honors of not only my career and my life to 366 00:16:41,280 --> 00:16:43,720 Speaker 2: receive the invitation from the Dannahs to be one of 367 00:16:43,720 --> 00:16:47,480 Speaker 2: the sliders that But you're right though, in those sort 368 00:16:47,520 --> 00:16:50,320 Speaker 2: of moments, you treasure them more though, don't you. Yeah. 369 00:16:50,440 --> 00:16:50,680 Speaker 7: Yeah. 370 00:16:50,720 --> 00:16:53,040 Speaker 4: And to not have him up there, that's another thing, 371 00:16:53,080 --> 00:16:55,920 Speaker 4: because I know, and God willing he's there next year, 372 00:16:56,640 --> 00:16:58,600 Speaker 4: that means he's always going to be down And so 373 00:16:58,800 --> 00:17:01,760 Speaker 4: when it gets hard, it's when they're you just reminded 374 00:17:02,080 --> 00:17:04,400 Speaker 4: about what's happening. You can sort of let it sit 375 00:17:04,480 --> 00:17:07,440 Speaker 4: in the background, and each day you've got your new 376 00:17:07,480 --> 00:17:09,960 Speaker 4: normal and you know, okay, well, dad's like this, and 377 00:17:10,000 --> 00:17:11,560 Speaker 4: this is how we're going to interact with him. He's 378 00:17:11,560 --> 00:17:13,800 Speaker 4: a bit tired, he's up and about. You know, it changes. 379 00:17:14,600 --> 00:17:17,040 Speaker 4: You just have those sort of reminders where okay, there 380 00:17:17,119 --> 00:17:19,800 Speaker 4: is something that's you know, a bit more has changed 381 00:17:19,840 --> 00:17:22,919 Speaker 4: and you're just like, wow, okay, got to be focused. 382 00:17:22,920 --> 00:17:24,960 Speaker 4: That's our new normal. But that's crap. 383 00:17:25,080 --> 00:17:27,600 Speaker 2: It's hard to be mister positive when yeah, yeah, all 384 00:17:27,640 --> 00:17:28,879 Speaker 2: the time, no one can be missed. 385 00:17:28,880 --> 00:17:31,320 Speaker 4: I keep going back like if he's mister positive about this, 386 00:17:31,520 --> 00:17:32,760 Speaker 4: like I can't get stuck. 387 00:17:32,840 --> 00:17:34,200 Speaker 3: Yeah, exactly, I can't get stuck. 388 00:17:34,240 --> 00:17:36,120 Speaker 4: Like sometimes I will walk in I was like, oh, yes, 389 00:17:36,160 --> 00:17:39,200 Speaker 4: the kids are being a pain, and I'm fine. I'm good. 390 00:17:39,200 --> 00:17:43,600 Speaker 4: I'm really good. Actually I'm great, up and about. 391 00:17:43,760 --> 00:17:45,960 Speaker 2: Yes, you know you said that your dad armed you 392 00:17:46,000 --> 00:17:47,560 Speaker 2: with the tools of going right. We're going to do 393 00:17:47,640 --> 00:17:51,159 Speaker 2: There's nothing anyone can do, but we're going to do something. 394 00:17:51,800 --> 00:17:54,439 Speaker 2: When you started fight M and D in the Big Freeze, 395 00:17:54,560 --> 00:17:58,359 Speaker 2: not only did nothing like this exist in Melbourne, nothing 396 00:17:58,400 --> 00:18:02,359 Speaker 2: like this existed in earlier or the world. So this 397 00:18:02,480 --> 00:18:05,760 Speaker 2: was a concept that was very first conceptualized by you 398 00:18:05,840 --> 00:18:08,439 Speaker 2: and this team that are just the most phenomenal people. 399 00:18:09,480 --> 00:18:12,080 Speaker 2: Did you ever think that you could possibly just be 400 00:18:12,119 --> 00:18:15,879 Speaker 2: walking down the street in any city and see people 401 00:18:15,920 --> 00:18:17,200 Speaker 2: donning the beanie which. 402 00:18:16,960 --> 00:18:19,960 Speaker 1: Happens to me this morning driving into the studio and 403 00:18:20,000 --> 00:18:22,840 Speaker 1: they crossed the street and I was like, oh my god. 404 00:18:23,320 --> 00:18:26,720 Speaker 2: You watched broadcasts at Opta Stadium and it's more blue 405 00:18:26,760 --> 00:18:28,119 Speaker 2: than it is purple. 406 00:18:27,920 --> 00:18:29,040 Speaker 3: Or the yellow and golf. 407 00:18:29,240 --> 00:18:31,359 Speaker 1: The big thing is that people will choose to wear 408 00:18:31,440 --> 00:18:34,520 Speaker 1: this beanie instead of their team's beanie. Yeah, which you 409 00:18:34,560 --> 00:18:36,360 Speaker 1: know what I mean. And that's the cut through. Yeah, 410 00:18:36,640 --> 00:18:37,520 Speaker 1: that's the cut through. 411 00:18:37,960 --> 00:18:40,600 Speaker 4: On the Big Freeze day, you don't see Collingwen colors, 412 00:18:40,600 --> 00:18:43,399 Speaker 4: you don't see Melbourne colors. No, you just see the 413 00:18:43,520 --> 00:18:46,600 Speaker 4: Fighter man d the Big Freeze blue. And that is powerful. 414 00:18:46,720 --> 00:18:49,159 Speaker 4: It's so powerful. But I think that just speaks to 415 00:18:49,200 --> 00:18:51,359 Speaker 4: the power of the game, like Foot is just so 416 00:18:51,440 --> 00:18:54,640 Speaker 4: much more than the marks and disposals and the handbles. 417 00:18:55,320 --> 00:18:59,240 Speaker 4: It is this game that can bring you such joy's sorrow. 418 00:19:00,080 --> 00:19:01,840 Speaker 4: You connect to you, it can give you an escape 419 00:19:01,880 --> 00:19:04,679 Speaker 4: to get away from what's happening, and it just brings 420 00:19:04,720 --> 00:19:08,000 Speaker 4: communities together. And what I've learned from the Big Freeze 421 00:19:08,200 --> 00:19:10,760 Speaker 4: across that it like it's like hope's contagious. If you 422 00:19:10,760 --> 00:19:13,040 Speaker 4: can give someone something to believe on and a way 423 00:19:13,080 --> 00:19:16,000 Speaker 4: to act, they can move mountains. And that's what they've proven. 424 00:19:16,080 --> 00:19:20,080 Speaker 4: We went into this absolutely not knowing anything about fundraising. 425 00:19:20,800 --> 00:19:23,240 Speaker 4: Was I was a roller, Dad was a coach. 426 00:19:23,320 --> 00:19:25,960 Speaker 2: We had a touch on you were a very very 427 00:19:26,000 --> 00:19:27,720 Speaker 2: impressive athlete. 428 00:19:27,840 --> 00:19:30,200 Speaker 3: We could have had you on as an athlete full stop. 429 00:19:30,240 --> 00:19:34,520 Speaker 2: There where so obviously rolling and it's such a competitive field. 430 00:19:35,240 --> 00:19:38,359 Speaker 2: Did this diagnosis and this shift of purpose change that 431 00:19:38,480 --> 00:19:40,600 Speaker 2: path for you at the ripe old age of twenty two? 432 00:19:40,800 --> 00:19:41,080 Speaker 7: Ah? 433 00:19:41,160 --> 00:19:45,320 Speaker 4: Yes, I just I was on the team and I 434 00:19:45,400 --> 00:19:47,840 Speaker 4: like finished the team Australia. 435 00:19:48,080 --> 00:19:49,879 Speaker 5: Yeah, it seems national. 436 00:19:50,920 --> 00:19:55,600 Speaker 4: And I'd been away from home for over six months. 437 00:19:56,240 --> 00:19:59,560 Speaker 4: And then about two months before I left, Dad told 438 00:19:59,600 --> 00:20:01,439 Speaker 4: me and he's like, oh, I might you know, I 439 00:20:01,520 --> 00:20:03,639 Speaker 4: might be lucky to have twenty seven months. I might not. 440 00:20:03,840 --> 00:20:06,600 Speaker 4: You know again, we just see where their cards fall. 441 00:20:06,600 --> 00:20:08,560 Speaker 4: And I was like, well, I don't want to be 442 00:20:08,600 --> 00:20:12,119 Speaker 4: away for six months of that, and you know I 443 00:20:12,160 --> 00:20:14,679 Speaker 4: love sportsport is just ingrained in us and it's so 444 00:20:14,720 --> 00:20:18,439 Speaker 4: important to us. But for me at that moment, I 445 00:20:18,520 --> 00:20:21,639 Speaker 4: found it really challenging to focus all my attention on 446 00:20:21,800 --> 00:20:26,920 Speaker 4: improving myself and getting faster and getting stronger and really 447 00:20:26,960 --> 00:20:29,920 Speaker 4: putting all at the end of the day. Sport does 448 00:20:29,960 --> 00:20:32,119 Speaker 4: have a lot of self because you have to, like 449 00:20:32,240 --> 00:20:34,119 Speaker 4: you have to get the best out of yourself to 450 00:20:34,119 --> 00:20:37,600 Speaker 4: be able to perform on the top stage. And for 451 00:20:37,640 --> 00:20:40,439 Speaker 4: a long time I was driven by that and the 452 00:20:40,480 --> 00:20:44,000 Speaker 4: sense of achievement that you get from that. Once Dad 453 00:20:44,000 --> 00:20:47,119 Speaker 4: told me what was happening, I lost the passion to 454 00:20:47,240 --> 00:20:50,200 Speaker 4: focus on improving myself and I wanted to figure out 455 00:20:50,240 --> 00:20:54,000 Speaker 4: how can I help beyond just me. So I was like, 456 00:20:54,800 --> 00:20:57,479 Speaker 4: I've been a very driven individual if I do something, 457 00:20:57,560 --> 00:20:58,840 Speaker 4: even when I got itch. 458 00:20:58,840 --> 00:21:01,359 Speaker 2: Oh, I can pick up on that now by the 459 00:21:01,400 --> 00:21:03,400 Speaker 2: fact that you've literally moved mountains. 460 00:21:03,600 --> 00:21:05,560 Speaker 1: Yeah, Like, I know you're a rower, but I'm pretty 461 00:21:05,560 --> 00:21:07,200 Speaker 1: sure you got sturdy shoulders anyway. 462 00:21:06,960 --> 00:21:10,000 Speaker 4: Because it a lot, I just wanted to I'm a 463 00:21:10,000 --> 00:21:12,320 Speaker 4: person that would throw everything at it, Like I'd choose 464 00:21:12,320 --> 00:21:14,800 Speaker 4: one thing and I'd just go crazy for it. So 465 00:21:14,840 --> 00:21:17,680 Speaker 4: it was swimming, then it became rowing, and then when 466 00:21:17,800 --> 00:21:20,119 Speaker 4: Dad told me this. I was just like, I don't 467 00:21:20,160 --> 00:21:23,560 Speaker 4: think I can put one hundred and ten percent focus, 468 00:21:23,560 --> 00:21:25,119 Speaker 4: which you have to be at the top level. You 469 00:21:25,160 --> 00:21:26,600 Speaker 4: can't think about anything else. 470 00:21:26,760 --> 00:21:28,960 Speaker 3: And rowing into a storm that got. 471 00:21:29,080 --> 00:21:32,160 Speaker 4: Yeah, I just I can't put that level attention. And 472 00:21:32,200 --> 00:21:33,960 Speaker 4: it's moall than love. I don't have the love, I 473 00:21:34,000 --> 00:21:36,720 Speaker 4: don't have the passion because I want to focus on 474 00:21:36,720 --> 00:21:39,760 Speaker 4: something else. And so you know, it is always hard 475 00:21:39,800 --> 00:21:43,359 Speaker 4: to retire, especially at twenty two to twenty three. But 476 00:21:43,800 --> 00:21:46,399 Speaker 4: it was something that I felt very comfortable with at 477 00:21:46,440 --> 00:21:48,240 Speaker 4: the end of the day because I had something that 478 00:21:48,280 --> 00:21:50,120 Speaker 4: I felt was like a high purpose in a way, 479 00:21:50,160 --> 00:21:52,439 Speaker 4: like it was beyond me, and I was very content 480 00:21:52,520 --> 00:21:52,920 Speaker 4: to do that. 481 00:21:53,040 --> 00:21:54,760 Speaker 5: Have you ever asked yourself, what if. 482 00:21:55,359 --> 00:21:58,600 Speaker 4: Watching the rowing all the time, even watching the footy 483 00:21:58,640 --> 00:22:04,320 Speaker 4: and seeing the AFLW girl, Yeah, you're. 484 00:22:04,119 --> 00:22:13,600 Speaker 3: A father daughter waiting Daisy Taylor, who come on? But 485 00:22:13,640 --> 00:22:14,680 Speaker 3: I think we all do that now. 486 00:22:14,680 --> 00:22:16,600 Speaker 2: We look at the path, but we also look and 487 00:22:16,640 --> 00:22:19,560 Speaker 2: we see that there's forty three thousand people at a Matilda's. 488 00:22:19,680 --> 00:22:25,960 Speaker 2: I know only and just go how fantastic the women's sports. 489 00:22:25,000 --> 00:22:28,840 Speaker 4: Amount of opportunity to play women's spot at the top 490 00:22:28,920 --> 00:22:32,800 Speaker 4: league is so good. I'm looking at my girls growing 491 00:22:32,880 --> 00:22:37,800 Speaker 4: up and your opportunities a't real. I'm going to be like, 492 00:22:37,840 --> 00:22:40,720 Speaker 4: come on, take me back. 493 00:22:43,000 --> 00:22:45,080 Speaker 2: But it's amazing that you talk about, you know, that 494 00:22:45,160 --> 00:22:49,760 Speaker 2: passion and that drive for achievement. I mean, now you 495 00:22:49,840 --> 00:22:52,199 Speaker 2: stand and there's one hundred thousand people cheering for you 496 00:22:52,240 --> 00:22:54,200 Speaker 2: at one of the biggest sporting stadiums. I mean, it's 497 00:22:54,240 --> 00:22:56,159 Speaker 2: not how you would have imagined growing up that you 498 00:22:56,160 --> 00:22:59,080 Speaker 2: would have received this sort of love, but the general 499 00:22:59,160 --> 00:23:02,000 Speaker 2: love that the higher Australia community has for you and 500 00:23:02,040 --> 00:23:08,520 Speaker 2: your family and your dad, genuinely being Australian. Have there 501 00:23:08,560 --> 00:23:11,960 Speaker 2: ever been such a unanimous Oh well obviously yeah, I 502 00:23:12,000 --> 00:23:12,960 Speaker 2: mean clearly knew. 503 00:23:13,200 --> 00:23:14,800 Speaker 3: How have we not done this? We got to big 504 00:23:14,840 --> 00:23:17,600 Speaker 3: phrase eleven without this happening? Come? 505 00:23:18,600 --> 00:23:21,440 Speaker 5: Was that something that? Was that a pinch me moment 506 00:23:21,520 --> 00:23:22,200 Speaker 5: for the family. 507 00:23:22,440 --> 00:23:25,119 Speaker 4: Yes, yeah, we didn't know and we didn't have the 508 00:23:25,119 --> 00:23:31,280 Speaker 4: same sort of confidence. Were naturally pessimistic bunch. So we're 509 00:23:31,320 --> 00:23:34,520 Speaker 4: just missed a positive pessimistic Yeah exactly exactly, isn't it? 510 00:23:35,320 --> 00:23:37,880 Speaker 4: I think for anything around us, Like you know, Dad 511 00:23:37,920 --> 00:23:40,600 Speaker 4: never set out to get the accolades. That was never 512 00:23:41,640 --> 00:23:43,919 Speaker 4: what he was after and when he was nominated, you 513 00:23:43,960 --> 00:23:45,640 Speaker 4: have to accept it. And there was actually a long 514 00:23:45,640 --> 00:23:48,040 Speaker 4: period of time where he's like, is this the right thing? 515 00:23:48,119 --> 00:23:51,280 Speaker 4: And we're like, we were like, think about what it 516 00:23:51,280 --> 00:23:53,960 Speaker 4: will do for a course. You know, He's always driven like, 517 00:23:53,960 --> 00:23:56,040 Speaker 4: whatever we can do for fight him and D, that's 518 00:23:56,119 --> 00:23:59,560 Speaker 4: what I'm after. And so we were at the awards 519 00:23:59,560 --> 00:24:02,439 Speaker 4: ceremony and I think I was on a table with 520 00:24:02,480 --> 00:24:04,280 Speaker 4: my family and it was beautiful that we could all 521 00:24:04,280 --> 00:24:06,000 Speaker 4: be there, but we were just rocking back and forth, 522 00:24:06,119 --> 00:24:10,280 Speaker 4: just stress, heartbeats up, so stressed because I was just like, 523 00:24:10,359 --> 00:24:13,200 Speaker 4: you know, even for Dad to get to Canberra was 524 00:24:13,359 --> 00:24:15,919 Speaker 4: such a big deal. It was a lot of effort 525 00:24:16,040 --> 00:24:17,719 Speaker 4: went to get him up there, and I was just 526 00:24:17,800 --> 00:24:22,840 Speaker 4: like so so nervous. And then when they read out 527 00:24:22,840 --> 00:24:25,680 Speaker 4: his name was just like these release of emotions and 528 00:24:25,800 --> 00:24:28,440 Speaker 4: to see him on the stage and it's just always 529 00:24:28,480 --> 00:24:32,240 Speaker 4: when I see Dad smile, unjust that gets me. So 530 00:24:32,359 --> 00:24:34,960 Speaker 4: he was up there with this big smile and again 531 00:24:35,040 --> 00:24:38,800 Speaker 4: he had this beautiful speech talking about fight M and 532 00:24:38,840 --> 00:24:40,720 Speaker 4: D's goal was always to live in a world free 533 00:24:40,720 --> 00:24:42,840 Speaker 4: from M and D. People may say it's a dream, 534 00:24:42,920 --> 00:24:45,159 Speaker 4: but I don't believe it's an impossible one. And you know, 535 00:24:45,480 --> 00:24:48,120 Speaker 4: just he just brings that. It was called the Reverend 536 00:24:48,160 --> 00:24:50,199 Speaker 4: when he played was a coach at Melbourne and you 537 00:24:50,200 --> 00:24:54,240 Speaker 4: can see that ability of storytelling. He's got still so 538 00:24:54,480 --> 00:24:56,399 Speaker 4: much to give. It's really amazing. 539 00:24:56,080 --> 00:24:58,320 Speaker 2: Because when he was a coach, Melbourne wasn't necessarily one 540 00:24:58,320 --> 00:25:01,119 Speaker 2: of the powerhouse teams. He had to almost recruit people 541 00:25:01,160 --> 00:25:02,639 Speaker 2: to get involved, didn't he They were on the. 542 00:25:02,600 --> 00:25:08,320 Speaker 4: Bottom of the ladder. Get the new guy from over 543 00:25:08,359 --> 00:25:10,440 Speaker 4: in the west. I'm sure he doesn't know what he's 544 00:25:10,480 --> 00:25:10,800 Speaker 4: in for. 545 00:25:12,840 --> 00:25:18,040 Speaker 1: But then that kind of mentality though, of battling, right, Yeah, 546 00:25:18,119 --> 00:25:21,320 Speaker 1: like that also has to be ingrained, not only within 547 00:25:21,359 --> 00:25:25,000 Speaker 1: your dad but within you. And is that something that 548 00:25:25,040 --> 00:25:26,640 Speaker 1: you're looking to pass on to the girls now? 549 00:25:26,880 --> 00:25:32,639 Speaker 4: Yes, absolutely so. My little Hazel, her middle name is 550 00:25:32,720 --> 00:25:35,320 Speaker 4: Gene and that's after my great aunt who lived to 551 00:25:35,320 --> 00:25:37,800 Speaker 4: one hundred and four, who lost her husband during the war. 552 00:25:37,880 --> 00:25:40,520 Speaker 4: So like along, she was young when she lost her husband. 553 00:25:40,960 --> 00:25:45,639 Speaker 4: Independence firecracker. I remember her in her late nineties chasing 554 00:25:45,680 --> 00:25:48,600 Speaker 4: me my brother around the backyard. At one hundred. She 555 00:25:48,680 --> 00:25:51,400 Speaker 4: went up to get a driver's license, said I don't 556 00:25:51,400 --> 00:25:52,959 Speaker 4: need ten years, to just give me five and they 557 00:25:52,960 --> 00:25:56,080 Speaker 4: gave her a driver's last she drove every week to 558 00:25:56,119 --> 00:25:58,879 Speaker 4: go watch the d's play Like to me, she was 559 00:25:58,920 --> 00:26:01,080 Speaker 4: a firecracker five and I was like, that is what 560 00:26:01,119 --> 00:26:03,560 Speaker 4: we want to instill. And I am so lucky with 561 00:26:03,600 --> 00:26:05,359 Speaker 4: what Dad's doing. He wrote a book and it was 562 00:26:05,400 --> 00:26:09,200 Speaker 4: about their learnings. He never expected to really even meet 563 00:26:09,280 --> 00:26:12,560 Speaker 4: his grandkids, and now he's met six of them and 564 00:26:12,680 --> 00:26:15,760 Speaker 4: he's writing what starters as a letter over achiever went 565 00:26:15,800 --> 00:26:19,560 Speaker 4: into a book. But it's a life lessons And I've 566 00:26:19,640 --> 00:26:23,000 Speaker 4: learned so much from Dad and I still do every day, 567 00:26:23,440 --> 00:26:26,600 Speaker 4: and I really want them to see who Pop was, 568 00:26:27,440 --> 00:26:30,720 Speaker 4: what he achieved, what he learned, and more to the 569 00:26:30,800 --> 00:26:33,240 Speaker 4: cases like he's a fighter, bit like how he thought 570 00:26:33,240 --> 00:26:37,160 Speaker 4: about things like you can everything can be taken away 571 00:26:37,200 --> 00:26:40,560 Speaker 4: from you, but your ability to choose your attitude, you can't. 572 00:26:40,600 --> 00:26:43,320 Speaker 4: You've got no say in what will happen to you. 573 00:26:43,320 --> 00:26:45,600 Speaker 4: You've always got to say in your response. And that 574 00:26:45,720 --> 00:26:49,560 Speaker 4: was the leading I think lesson he's taught us. And 575 00:26:49,600 --> 00:26:52,800 Speaker 4: it's so powerful that you can walk out something can happen. 576 00:26:53,359 --> 00:26:55,320 Speaker 4: You've got a moment to choose which way are you're 577 00:26:55,320 --> 00:26:57,880 Speaker 4: going to go, Mister positive or mister negative? And That's 578 00:26:57,920 --> 00:26:59,560 Speaker 4: what I want our kids to learn, because if you 579 00:26:59,560 --> 00:27:02,600 Speaker 4: can listen to mister positive, you're gonna fight. You're gonna 580 00:27:02,600 --> 00:27:04,639 Speaker 4: be a fighter. If you listen to mister negative, you 581 00:27:04,680 --> 00:27:05,680 Speaker 4: won't be in the fight. 582 00:27:06,520 --> 00:27:08,679 Speaker 5: Yeah, the fight will be over before it's even begun. 583 00:27:08,800 --> 00:27:10,959 Speaker 1: In all honesty, Well, I think the beautiful thing is 584 00:27:11,000 --> 00:27:12,919 Speaker 1: now is that people are always going to tell your 585 00:27:13,000 --> 00:27:16,239 Speaker 1: kids how amazing your pop was and through of how 586 00:27:16,359 --> 00:27:20,360 Speaker 1: vulnerable and your family have been with all of us. 587 00:27:20,960 --> 00:27:23,919 Speaker 3: We feel like we know Neil, and we feel like 588 00:27:24,000 --> 00:27:24,480 Speaker 3: we know. 589 00:27:24,760 --> 00:27:25,840 Speaker 5: I feel like I know the smile. 590 00:27:25,960 --> 00:27:29,199 Speaker 2: Yeah yeah, and like what a blessing that is to 591 00:27:29,200 --> 00:27:31,040 Speaker 2: have someone doing such good. 592 00:27:31,800 --> 00:27:32,159 Speaker 4: I have it. 593 00:27:32,320 --> 00:27:32,680 Speaker 5: I have it. 594 00:27:32,840 --> 00:27:36,080 Speaker 1: We like to talk maths on this podcast sometimes because 595 00:27:36,560 --> 00:27:42,919 Speaker 1: it is early. No, no, we're not, don't worry. We're just 596 00:27:42,920 --> 00:27:45,679 Speaker 1: not your typical sports podcast. We do use phrases like 597 00:27:45,720 --> 00:27:47,320 Speaker 1: abacus on here every now and then. 598 00:27:47,920 --> 00:27:52,120 Speaker 5: And I just wanted to kind of look numbers. I'm 599 00:27:52,119 --> 00:27:53,080 Speaker 5: going to show myself here. 600 00:27:53,480 --> 00:27:55,919 Speaker 1: Numbers can sometimes mean nothing, right, like they're just like 601 00:27:55,960 --> 00:27:58,040 Speaker 1: you quite understand them. 602 00:27:58,400 --> 00:27:59,680 Speaker 5: It's difficult to comprehend. 603 00:27:59,720 --> 00:28:03,159 Speaker 1: But one hundred and fifteen million dollars, I think it's 604 00:28:03,240 --> 00:28:04,960 Speaker 1: even more than that now, so more than one hundred 605 00:28:04,960 --> 00:28:08,320 Speaker 1: and fifty million dollars vi MND has raised. Where does 606 00:28:08,400 --> 00:28:10,919 Speaker 1: that go and what does it change? 607 00:28:11,040 --> 00:28:14,680 Speaker 4: Yeah, so when dad was diagnosed, I'll take you back 608 00:28:14,720 --> 00:28:17,240 Speaker 4: so we can see what the difference is. When dad 609 00:28:17,280 --> 00:28:21,119 Speaker 4: was diagnosed. We a year later, the ice Pocket Challenge 610 00:28:21,160 --> 00:28:23,200 Speaker 4: swept across the world and two hundred and twenty million 611 00:28:23,240 --> 00:28:25,440 Speaker 4: dollars was raised for M and D, which is incredible. 612 00:28:26,000 --> 00:28:28,639 Speaker 4: So we raised a million here and a lot of 613 00:28:28,640 --> 00:28:31,400 Speaker 4: the time where my frustrations was because I had some 614 00:28:31,600 --> 00:28:33,720 Speaker 4: my dad was going through it. They were calling it als. 615 00:28:33,800 --> 00:28:35,600 Speaker 4: I actually had no idea what it was, so it 616 00:28:35,760 --> 00:28:38,680 Speaker 4: like sparked a little bit of awareness, but there wasn't much. 617 00:28:38,720 --> 00:28:41,600 Speaker 4: And then add onto that, the National Health and Medical 618 00:28:41,720 --> 00:28:44,920 Speaker 4: Research Council, we're putting zero point six percent of the 619 00:28:44,920 --> 00:28:46,840 Speaker 4: funding pool to M and D research, So we're just like, 620 00:28:47,400 --> 00:28:50,600 Speaker 4: there's no treatment, there's no cure. We really have no 621 00:28:50,720 --> 00:28:54,000 Speaker 4: funding to be able to change that. And that's there. 622 00:28:54,120 --> 00:28:57,720 Speaker 4: All that was happening is really small scale grants because 623 00:28:57,720 --> 00:29:00,640 Speaker 4: that's the funding pool you had, and that's not going 624 00:29:00,680 --> 00:29:02,040 Speaker 4: to get us where we need to get to. 625 00:29:02,280 --> 00:29:04,880 Speaker 3: So we're getting to change it. The researchers. 626 00:29:05,000 --> 00:29:06,760 Speaker 4: A couple of years in we were trying to get 627 00:29:06,760 --> 00:29:10,560 Speaker 4: the first Australian clinical trial here to Australia and when 628 00:29:10,600 --> 00:29:13,040 Speaker 4: we were talking to the overseas counterpart, they're like, listen, 629 00:29:13,160 --> 00:29:17,320 Speaker 4: that's cute. You're in Australia. Yes, so far away. That's 630 00:29:17,360 --> 00:29:19,080 Speaker 4: too hard. We don't want to talk to you like 631 00:29:19,160 --> 00:29:21,720 Speaker 4: we're not coming. So well, we'll do it. We'll do 632 00:29:21,760 --> 00:29:24,080 Speaker 4: it ourselves. So we started fundraising more and we brought 633 00:29:24,360 --> 00:29:28,240 Speaker 4: Now we brought fifteen clinical trials here in Australia, so 634 00:29:28,280 --> 00:29:30,640 Speaker 4: we've been able to allow people with MND to be 635 00:29:30,720 --> 00:29:34,120 Speaker 4: part of the solution apart to fight back. But more importantly, 636 00:29:34,120 --> 00:29:36,760 Speaker 4: we're now the third biggest fun funder in the world 637 00:29:36,880 --> 00:29:40,240 Speaker 4: Little Australia, third biggest funder in MD research. And just 638 00:29:40,360 --> 00:29:43,720 Speaker 4: last year we had sixty delegates from across the world 639 00:29:44,160 --> 00:29:45,920 Speaker 4: come to Australia. They don't like coming here because it 640 00:29:46,000 --> 00:29:46,960 Speaker 4: is far away. 641 00:29:47,160 --> 00:29:53,920 Speaker 7: The American Oh, Americans, they're unhappy, so they came here 642 00:29:53,960 --> 00:29:56,040 Speaker 7: because they can see what we're doing is all about 643 00:29:56,080 --> 00:29:57,280 Speaker 7: disrupting and changing. 644 00:29:57,760 --> 00:30:01,520 Speaker 4: So it's dramatically shifted the land escape. It is such 645 00:30:01,520 --> 00:30:04,680 Speaker 4: an impressive number, but it's not there yet, So we 646 00:30:04,800 --> 00:30:06,880 Speaker 4: just have to keep going. We can see the changes 647 00:30:06,960 --> 00:30:09,920 Speaker 4: that are happening, and we can see the excitement building, 648 00:30:09,920 --> 00:30:12,040 Speaker 4: and I can meet these families that are like, Okay, 649 00:30:12,120 --> 00:30:14,560 Speaker 4: well there's so much going on. There's lots of talk. Okay, 650 00:30:14,560 --> 00:30:17,720 Speaker 4: how can we move it faster? And that's our every 651 00:30:17,760 --> 00:30:20,520 Speaker 4: intention is to figure out how can we accelerate that. 652 00:30:21,200 --> 00:30:23,760 Speaker 4: But we just have to keep going. I'm just as 653 00:30:23,760 --> 00:30:26,080 Speaker 4: a family member, I get frustrated with the process because 654 00:30:26,120 --> 00:30:28,000 Speaker 4: I just want to be there tomorrow. I want I 655 00:30:28,040 --> 00:30:31,280 Speaker 4: want like the COVID vaccination time. 656 00:30:31,080 --> 00:30:32,200 Speaker 3: Level of intensity. 657 00:30:32,240 --> 00:30:34,120 Speaker 4: But I'm pretty sure there was a lot more than 658 00:30:34,160 --> 00:30:36,120 Speaker 4: a one hundred and fifteen million that went into that 659 00:30:36,200 --> 00:30:39,280 Speaker 4: and a worldwide approach, but you can't sort of focus 660 00:30:39,320 --> 00:30:42,240 Speaker 4: on that. I just want to see it accelerate quicker. Yes, 661 00:30:42,280 --> 00:30:44,280 Speaker 4: I wish there was a Neil dunherth thirty years ago 662 00:30:44,360 --> 00:30:46,560 Speaker 4: so we could have been ahead. But again, the cards, 663 00:30:46,560 --> 00:30:48,520 Speaker 4: these are our cards. We're going to take them and 664 00:30:48,520 --> 00:30:51,280 Speaker 4: we're going to find a way to use them in 665 00:30:51,320 --> 00:30:52,200 Speaker 4: the best possible way. 666 00:30:52,320 --> 00:30:54,840 Speaker 2: And you can't overestimate the power of hope. And that's 667 00:30:54,840 --> 00:30:56,920 Speaker 2: what clinical trials give someone to be able to go 668 00:30:56,960 --> 00:30:59,400 Speaker 2: well I can't do anything, and MEGA will actually in 669 00:30:59,440 --> 00:31:01,480 Speaker 2: Australia is a clinical trial that you can be a 670 00:31:01,520 --> 00:31:03,440 Speaker 2: part of. We can't tell you it's going to make 671 00:31:03,480 --> 00:31:05,680 Speaker 2: things better, but we're trying exactly and it feels like 672 00:31:05,680 --> 00:31:08,360 Speaker 2: a step that people can take and without fundiment defunding 673 00:31:08,400 --> 00:31:11,040 Speaker 2: that that doesn't exist, so they do hit a roadblock, 674 00:31:11,080 --> 00:31:12,920 Speaker 2: going well, there's nothing I can do but wait. 675 00:31:13,480 --> 00:31:14,840 Speaker 3: To feel like you can be a part of the 676 00:31:14,880 --> 00:31:16,160 Speaker 3: difference is incredible. 677 00:31:16,200 --> 00:31:18,320 Speaker 1: It's the control I think that you mentioned at the 678 00:31:18,320 --> 00:31:21,680 Speaker 1: start of this chat, like being able to give people 679 00:31:21,800 --> 00:31:25,600 Speaker 1: back a sense of that, you know, not really knowing 680 00:31:25,920 --> 00:31:29,000 Speaker 1: exactly how effective it's going to be, but just even 681 00:31:29,040 --> 00:31:32,600 Speaker 1: that sense of control over your own life is so key. 682 00:31:32,720 --> 00:31:36,560 Speaker 4: And these people are so beautiful. When I speak to them, 683 00:31:36,960 --> 00:31:39,760 Speaker 4: it's they're like, Okay, I'm in a clinical control. It 684 00:31:39,800 --> 00:31:42,000 Speaker 4: gives me hope. It gives me hope. But sometimes I'm 685 00:31:42,200 --> 00:31:45,240 Speaker 4: realistic that I don't I might be getting laid down 686 00:31:45,280 --> 00:31:48,040 Speaker 4: and I'm like, Okay, well I don't think it's going 687 00:31:48,080 --> 00:31:51,680 Speaker 4: to help me, but I am now part of the solution. Yeah, 688 00:31:51,720 --> 00:31:54,760 Speaker 4: I'm a part. What I'm doing is adding value to 689 00:31:55,080 --> 00:31:59,000 Speaker 4: our research journey. That is powerful. As well, like I 690 00:31:59,040 --> 00:32:02,040 Speaker 4: just think they're just like I am doing something. I'm 691 00:32:02,520 --> 00:32:05,120 Speaker 4: fighting back in some way to be told just to 692 00:32:05,120 --> 00:32:07,600 Speaker 4: sit back. And Dad was told tick off the bucket 693 00:32:07,600 --> 00:32:09,600 Speaker 4: list and he's like, I don't get any joy from that, 694 00:32:09,720 --> 00:32:12,040 Speaker 4: Like that is not something that will make me bounce 695 00:32:12,040 --> 00:32:16,120 Speaker 4: out of bed. The what lights of fire inside of 696 00:32:16,200 --> 00:32:18,800 Speaker 4: him is fighting back, is finding a way to do something, 697 00:32:18,960 --> 00:32:22,120 Speaker 4: is taking control of your situation. And that's what clinical 698 00:32:22,200 --> 00:32:22,720 Speaker 4: trials can do. 699 00:32:22,840 --> 00:32:24,760 Speaker 2: And we're not done yet. We'd love to be done yet. 700 00:32:24,760 --> 00:32:26,360 Speaker 2: We'd love you to be out of a job. We'd 701 00:32:26,400 --> 00:32:28,240 Speaker 2: love you to be out there on the picket line 702 00:32:28,320 --> 00:32:30,840 Speaker 2: going someone, but we're not there yet. 703 00:32:31,040 --> 00:32:31,880 Speaker 3: But what we do do. 704 00:32:31,880 --> 00:32:34,040 Speaker 2: On this podcast is have fun facts. And I've got 705 00:32:34,080 --> 00:32:36,440 Speaker 2: a fun fact for you, Georgie, because there has been 706 00:32:36,440 --> 00:32:39,400 Speaker 2: a launch of a virtual beanie and this is a 707 00:32:39,440 --> 00:32:42,200 Speaker 2: new concept because d they just don't rest do that. 708 00:32:42,280 --> 00:32:44,800 Speaker 3: They're like, well, don't do it different. 709 00:32:44,800 --> 00:32:47,400 Speaker 2: And we talk about that visual and if you're lucky 710 00:32:47,480 --> 00:32:49,880 Speaker 2: enough to be at the MCG on the King's birthday 711 00:32:49,920 --> 00:32:52,120 Speaker 2: or was the Queen's birthday match and to look out 712 00:32:52,160 --> 00:32:54,440 Speaker 2: and see that sea of blue, it's one of the 713 00:32:54,480 --> 00:32:57,920 Speaker 2: most powerful moments for mine in Australian sports. Oh yeah, period, 714 00:32:59,080 --> 00:33:01,280 Speaker 2: we're going to do that and we know the power 715 00:33:01,280 --> 00:33:03,320 Speaker 2: of social media. Now, as you said, it's still about 716 00:33:03,360 --> 00:33:05,600 Speaker 2: awareness and the awareness has gone so far, but we 717 00:33:05,640 --> 00:33:07,200 Speaker 2: can always always do more. 718 00:33:07,320 --> 00:33:08,280 Speaker 3: So I think. 719 00:33:08,160 --> 00:33:11,200 Speaker 2: McGrath pink MCG. You're filling it up with the seats, 720 00:33:11,400 --> 00:33:14,120 Speaker 2: you can now do the same with a virtual beanie. 721 00:33:14,160 --> 00:33:15,960 Speaker 2: So talk us through this concept because it's new and 722 00:33:16,000 --> 00:33:17,320 Speaker 2: we're hoping to fill the MCG. 723 00:33:17,520 --> 00:33:19,960 Speaker 4: Yes, so we talk about how M and D doesn't 724 00:33:19,960 --> 00:33:21,800 Speaker 4: know bort us, so neither deleet. We don't want to 725 00:33:21,920 --> 00:33:24,600 Speaker 4: restrict what we're trying to achieve just to the MCG 726 00:33:24,800 --> 00:33:28,520 Speaker 4: because everywhere in Australia there are people impacted or inspired 727 00:33:28,560 --> 00:33:30,800 Speaker 4: by the fight. I want to get involved. So this 728 00:33:30,920 --> 00:33:34,080 Speaker 4: year we're launching our digital Beanie, which is a fun 729 00:33:34,120 --> 00:33:36,080 Speaker 4: way to get involved with the call. So you jump 730 00:33:36,120 --> 00:33:39,440 Speaker 4: on to Big Freeze, dot com dot au. You donate 731 00:33:39,520 --> 00:33:41,840 Speaker 4: so it's all tax deductible for those that are getting 732 00:33:41,880 --> 00:33:42,760 Speaker 4: ready for tax time. 733 00:33:43,120 --> 00:33:49,520 Speaker 3: Businesses rude by everyone. How many employees do you have? Deduction? 734 00:33:50,880 --> 00:33:52,760 Speaker 3: Capital D deduction? 735 00:33:53,680 --> 00:33:56,600 Speaker 4: And so you donate and in return you get a 736 00:33:56,640 --> 00:33:58,880 Speaker 4: digital beanie. You write your name you might write your 737 00:33:58,880 --> 00:34:01,360 Speaker 4: family name, you might write the name of someone that's 738 00:34:01,400 --> 00:34:02,880 Speaker 4: doing it tough and might not be able to do 739 00:34:02,920 --> 00:34:05,720 Speaker 4: it themselves. So it just gives a really fun way 740 00:34:05,760 --> 00:34:08,160 Speaker 4: to get involved with the cause. Pop on socials show 741 00:34:08,160 --> 00:34:10,440 Speaker 4: that you're backing the cause. We want to say not 742 00:34:10,600 --> 00:34:13,280 Speaker 4: just the mcg blue, we want to say social media 743 00:34:13,360 --> 00:34:15,600 Speaker 4: go blue as well. So that's what we're really hoping 744 00:34:15,600 --> 00:34:17,920 Speaker 4: over the next couple of days if you're able to 745 00:34:18,080 --> 00:34:21,319 Speaker 4: people at getting involved in that fun, different, different way 746 00:34:21,440 --> 00:34:21,960 Speaker 4: to donate. 747 00:34:22,080 --> 00:34:24,800 Speaker 3: So the beanie you can wear in all weather, oh yeah, oh. 748 00:34:24,760 --> 00:34:28,840 Speaker 5: One hundred, the benie you go weather. 749 00:34:28,640 --> 00:34:31,920 Speaker 2: And it is like again if you watch and again 750 00:34:32,040 --> 00:34:36,040 Speaker 2: Neil is doing interviews still and you're again busier than 751 00:34:36,080 --> 00:34:37,600 Speaker 2: anyone that we know. So the fact that you found 752 00:34:37,640 --> 00:34:39,520 Speaker 2: this time for us this morning, thank you so much. 753 00:34:39,960 --> 00:34:43,279 Speaker 2: If you see this and go gee, like how like 754 00:34:43,400 --> 00:34:45,320 Speaker 2: what can I do? Pick up the phone? 755 00:34:45,640 --> 00:34:45,960 Speaker 6: Do it? 756 00:34:46,600 --> 00:34:50,680 Speaker 2: Donate because if everyone does it, then these clinical trials 757 00:34:50,680 --> 00:34:53,359 Speaker 2: can go further. And yes there's a lot of money raised, 758 00:34:53,400 --> 00:34:56,040 Speaker 2: but they're still so far to go, and I know 759 00:34:56,120 --> 00:34:58,640 Speaker 2: that we're giving the money to the right people. There's 760 00:34:58,680 --> 00:35:00,799 Speaker 2: so many causes where you sit back and go, yeah, 761 00:35:00,800 --> 00:35:04,040 Speaker 2: but what's actually happening. If ever, you're going to have 762 00:35:04,080 --> 00:35:07,480 Speaker 2: confidence that you're supporting something that's going to do everything 763 00:35:07,560 --> 00:35:09,719 Speaker 2: they can to make the world better by getting rid 764 00:35:09,760 --> 00:35:12,960 Speaker 2: of this awful beasts to fight him and d team oh. 765 00:35:12,840 --> 00:35:15,840 Speaker 1: It is, and beg a little bit of a curly 766 00:35:15,880 --> 00:35:19,239 Speaker 1: one for me just to finish this delightful chat. I 767 00:35:19,280 --> 00:35:23,279 Speaker 1: mean in a future many many years away, hopefully a 768 00:35:23,320 --> 00:35:25,960 Speaker 1: future without your dad, are you still fighting? 769 00:35:26,680 --> 00:35:32,040 Speaker 4: Always? Always? Dad is creating a legacy that will change 770 00:35:32,040 --> 00:35:36,120 Speaker 4: the world, and the greatest designer we could do is 771 00:35:36,160 --> 00:35:38,799 Speaker 4: to not see that through. So it is up to 772 00:35:38,840 --> 00:35:41,879 Speaker 4: all of us to make sure that when the day 773 00:35:41,920 --> 00:35:45,560 Speaker 4: comes at our leader is no longer able to lead, 774 00:35:45,800 --> 00:35:48,120 Speaker 4: that we pick up the charge and we carry on. 775 00:35:48,320 --> 00:35:52,120 Speaker 4: Because this is about people's lives. There is a one 776 00:35:52,160 --> 00:35:54,560 Speaker 4: in three hundred chants of someone getting M and D, 777 00:35:54,640 --> 00:35:56,440 Speaker 4: So if you're at the MCG, you think about how 778 00:35:56,440 --> 00:35:58,960 Speaker 4: many people will get an M and D diagnosis. So 779 00:35:59,040 --> 00:36:01,200 Speaker 4: we just have to stop that. We just have to 780 00:36:01,239 --> 00:36:04,520 Speaker 4: find a way to close off this beast of a disease. 781 00:36:04,640 --> 00:36:08,040 Speaker 4: And that means we've come so far we cannot stop. 782 00:36:08,080 --> 00:36:11,080 Speaker 4: We can't stop until there is this eureka moment where 783 00:36:11,120 --> 00:36:15,200 Speaker 4: everyone across Australia is celebrating because everyone across Australia, they're 784 00:36:15,200 --> 00:36:17,040 Speaker 4: the ones that have made this possible. We talk about 785 00:36:17,239 --> 00:36:19,920 Speaker 4: this isn't about one person. We talk about Dad a lot, 786 00:36:19,960 --> 00:36:22,600 Speaker 4: but this is not about one person. This is about 787 00:36:22,640 --> 00:36:26,120 Speaker 4: the thousands and thousands of people that have taken notice, 788 00:36:26,160 --> 00:36:29,319 Speaker 4: bought a beanie, gonna buy a digital beanie, donated. It's 789 00:36:29,320 --> 00:36:33,319 Speaker 4: a fundraising like it's the power of people. They can 790 00:36:33,400 --> 00:36:35,680 Speaker 4: move mountains. They've made this possible. So I want to 791 00:36:35,760 --> 00:36:38,400 Speaker 4: make sure that we are celebrating as a collective because 792 00:36:38,440 --> 00:36:41,399 Speaker 4: we would be nowhere if they didn't listen to when 793 00:36:41,480 --> 00:36:42,640 Speaker 4: dad said he needed help. 794 00:36:43,400 --> 00:36:47,719 Speaker 1: The Dan and her family, My god, we're right on 795 00:36:47,719 --> 00:36:48,000 Speaker 1: the tuch. 796 00:36:48,120 --> 00:36:49,080 Speaker 5: I'm so behind you. 797 00:36:49,480 --> 00:36:51,400 Speaker 2: We speak a lot about your dad and how inspirational 798 00:36:51,440 --> 00:36:53,520 Speaker 2: he is. You are one of the most inspirational people 799 00:36:53,560 --> 00:36:54,160 Speaker 2: I know and. 800 00:36:54,719 --> 00:36:58,960 Speaker 5: Through all look no deal listeners backs getting like moving. 801 00:36:58,760 --> 00:37:02,839 Speaker 2: Around truly because the way that you also you mentioned 802 00:37:02,880 --> 00:37:04,239 Speaker 2: you've got a one year old and a three year 803 00:37:04,280 --> 00:37:07,680 Speaker 2: old that has also happened through different levels of pregnancy 804 00:37:07,719 --> 00:37:10,560 Speaker 2: and sleep through all of this, and again you wouldn't 805 00:37:10,560 --> 00:37:12,839 Speaker 2: know because you're always there with a big smile, and 806 00:37:12,880 --> 00:37:15,840 Speaker 2: this is a massive organization to be fronting and to 807 00:37:15,920 --> 00:37:18,760 Speaker 2: front up time and time again in front of cameras, 808 00:37:18,760 --> 00:37:21,319 Speaker 2: in front of all different media. Again, this wasn't your 809 00:37:21,400 --> 00:37:24,000 Speaker 2: chosen career path, and yet today you're like going to 810 00:37:24,000 --> 00:37:26,399 Speaker 2: speak to this club, going to interview this person. It's 811 00:37:26,520 --> 00:37:28,839 Speaker 2: just it's relentless on you and I'm sure it takes 812 00:37:28,880 --> 00:37:30,560 Speaker 2: a big toll in your family life too, And we're 813 00:37:30,600 --> 00:37:34,600 Speaker 2: just so so grateful for you. And anyone who has 814 00:37:34,640 --> 00:37:36,719 Speaker 2: the privilege of being in your presence knows they're in 815 00:37:36,760 --> 00:37:40,239 Speaker 2: the presence of just this kind, wonderful, giving person and 816 00:37:40,280 --> 00:37:42,279 Speaker 2: we're just you should be so proud of you. I 817 00:37:42,280 --> 00:37:44,239 Speaker 2: know you're proud of dad, but we are so immensely 818 00:37:44,280 --> 00:37:47,319 Speaker 2: proud of you. And again, your girls will grow up 819 00:37:47,360 --> 00:37:50,120 Speaker 2: knowing how great their granddad was, but they're going to 820 00:37:50,160 --> 00:37:53,040 Speaker 2: see this powerhouse of a woman who has also moved 821 00:37:53,080 --> 00:37:54,840 Speaker 2: mountains love you. 822 00:37:54,960 --> 00:37:57,640 Speaker 4: That's very kind. I say, this is a privilege to 823 00:37:57,640 --> 00:37:58,920 Speaker 4: be a part of and to be able to do 824 00:37:59,000 --> 00:38:02,120 Speaker 4: this and find an hour outlet for a really difficult 825 00:38:02,120 --> 00:38:05,200 Speaker 4: situation and find the positive. So it's a privilege to 826 00:38:05,200 --> 00:38:06,680 Speaker 4: be able to do this and to talk to you, 827 00:38:06,760 --> 00:38:08,960 Speaker 4: both of you, so thank you so much for inviting 828 00:38:08,960 --> 00:38:10,719 Speaker 4: me in today. I was so excited when I got 829 00:38:10,760 --> 00:38:11,240 Speaker 4: the call. 830 00:38:11,200 --> 00:38:12,440 Speaker 3: Don't be too cold on Monday. 831 00:38:12,880 --> 00:38:15,080 Speaker 2: Oh I don't love this slide, but there's a big 832 00:38:15,120 --> 00:38:16,920 Speaker 2: fun of me that's like, I don't really want to 833 00:38:16,920 --> 00:38:18,040 Speaker 2: be Virginie. 834 00:38:18,920 --> 00:38:21,399 Speaker 1: One of my favorite moments of my life was when 835 00:38:21,480 --> 00:38:24,640 Speaker 1: Jelmy told me that she was going to Jesus and 836 00:38:24,680 --> 00:38:26,920 Speaker 1: I got so excited because I knew she'd commit one 837 00:38:26,920 --> 00:38:30,680 Speaker 1: thousand percent. And then the outfit was impec It was amazing, 838 00:38:30,680 --> 00:38:33,000 Speaker 1: but I was like, you know who hates being cold 839 00:38:33,040 --> 00:38:35,520 Speaker 1: more than anyone on this planet? 840 00:38:35,680 --> 00:38:39,280 Speaker 3: Dressed for the Arctic in a studio She's got fifteen. 841 00:38:41,080 --> 00:38:42,799 Speaker 5: And as she was going down the thing, I was like, 842 00:38:42,880 --> 00:38:43,400 Speaker 5: here we go. 843 00:38:43,520 --> 00:38:44,960 Speaker 3: And as soon as she came out, I was. 844 00:38:45,000 --> 00:38:49,719 Speaker 4: Like, cold, so thank you as well. 845 00:38:50,040 --> 00:38:55,400 Speaker 2: We're also grat Oh god, we cannot wait to watch again. 846 00:38:55,680 --> 00:38:58,960 Speaker 2: Virtual beanies go online, get your axle beanie out and 847 00:38:59,040 --> 00:39:01,800 Speaker 2: wear it. It's cold, particularly if you're Melbourne today, so 848 00:39:01,840 --> 00:39:02,920 Speaker 2: it's a perfect day to get it. 849 00:39:02,920 --> 00:39:05,239 Speaker 3: You can get it at Cole's Bunnings and Poles as. 850 00:39:05,160 --> 00:39:08,359 Speaker 4: Well Cole's Bunning's Shell Ready express and online at fight 851 00:39:08,480 --> 00:39:10,719 Speaker 4: MND dot org dot au. And to be annoying and 852 00:39:10,760 --> 00:39:14,040 Speaker 4: throw another website. Of course, the digital beanie head to 853 00:39:14,160 --> 00:39:16,600 Speaker 4: Big Freeze. It is Big Freese time, Big Freeze dot 854 00:39:16,680 --> 00:39:18,800 Speaker 4: com dot au. You'll be able to get your digital 855 00:39:18,800 --> 00:39:21,240 Speaker 4: beanie there. It's a lot of fun. It's such an 856 00:39:21,280 --> 00:39:25,840 Speaker 4: easy way to get involved, personalize it, take just do 857 00:39:25,920 --> 00:39:28,759 Speaker 4: whatever you want with it. Just don't We've taken out 858 00:39:28,800 --> 00:39:29,920 Speaker 4: swear words, so just fair one. 859 00:39:30,000 --> 00:39:37,200 Speaker 3: Yeah, she needs another bean be I love you, thanks 860 00:39:37,200 --> 00:39:37,839 Speaker 3: so much for coming. 861 00:39:37,880 --> 00:39:39,319 Speaker 4: You so much, guys, appreciate it. 862 00:39:39,360 --> 00:39:41,400 Speaker 1: Actually, Beck before you go, because we have wrapped up 863 00:39:41,400 --> 00:39:44,600 Speaker 1: this episode now jell me so until next week, dear 864 00:39:44,600 --> 00:39:44,960 Speaker 1: listener 865 00:39:45,480 --> 00:39:48,400 Speaker 4: Be a good sport and help fight MND mald She 866 00:39:48,520 --> 00:39:49,960 Speaker 4: nailed it.