1 00:00:00,040 --> 00:00:01,600 Speaker 1: Now we know that there is going to be a 2 00:00:01,639 --> 00:00:05,360 Speaker 1: special walk happening in Darwin this weekend. It's aimed at 3 00:00:05,360 --> 00:00:10,400 Speaker 1: defeating motor neuron disease. Now the event raised fifteen thousand 4 00:00:10,520 --> 00:00:13,960 Speaker 1: dollars to provide vital equipment and support to people living 5 00:00:14,320 --> 00:00:17,400 Speaker 1: with the disease since it started in twenty twenty one. 6 00:00:17,720 --> 00:00:20,280 Speaker 1: And joining us on the line to tell us more 7 00:00:20,920 --> 00:00:25,680 Speaker 1: is the Walk to Defeat Motor neuron Disease. Ambassador Tomara Henderson, 8 00:00:25,720 --> 00:00:27,440 Speaker 1: Good morning to you, Tomorraw. 9 00:00:28,120 --> 00:00:29,840 Speaker 2: Good morning Katie, Good morning listeners. 10 00:00:29,920 --> 00:00:32,920 Speaker 1: Thanks so much for your time this morning. Now, now 11 00:00:32,960 --> 00:00:35,240 Speaker 1: tell me for anybody who might not know a lot 12 00:00:35,360 --> 00:00:41,240 Speaker 1: about the illness, what exactly is motor neuron disease, Katie. 13 00:00:41,240 --> 00:00:44,839 Speaker 2: Motor neuron disease is basically where all your muscles the 14 00:00:44,920 --> 00:00:48,080 Speaker 2: neurons in your brain path it starts breaking down, So 15 00:00:48,120 --> 00:00:52,080 Speaker 2: your muscles start to deteriorate and you can't use them anymore. 16 00:00:52,640 --> 00:00:55,440 Speaker 2: So I think not being able to blink, not being 17 00:00:55,480 --> 00:00:59,000 Speaker 2: able to swallow, not being able to move do anything. 18 00:01:00,080 --> 00:01:03,800 Speaker 2: But your brain's still alive, so you're essentially you were 19 00:01:03,840 --> 00:01:05,839 Speaker 2: actually become a prisoner within your own body. 20 00:01:07,120 --> 00:01:10,400 Speaker 1: Tamara. You know, look to me, I think this is 21 00:01:10,640 --> 00:01:13,880 Speaker 1: a great thing to organize, to have this event happening. 22 00:01:13,920 --> 00:01:16,760 Speaker 1: What prompted you guys to make it happen in the 23 00:01:16,760 --> 00:01:17,679 Speaker 1: Northern Territory. 24 00:01:19,480 --> 00:01:22,959 Speaker 2: Kirsty, who's the other lady who helped, Well, it was 25 00:01:23,040 --> 00:01:26,320 Speaker 2: Kirsty's idea. Her aunt died from murdering your own disease. 26 00:01:27,280 --> 00:01:32,680 Speaker 2: She took three years to pass from it from diagnosis 27 00:01:32,760 --> 00:01:39,959 Speaker 2: until she left. So Kirsty her family were getting involved 28 00:01:40,000 --> 00:01:42,280 Speaker 2: in the MND walk down in Paris because that's where 29 00:01:42,319 --> 00:01:44,280 Speaker 2: she's from, so she decided she wanted to bring it 30 00:01:44,360 --> 00:01:48,200 Speaker 2: up here to Darlin. I decided I was going to 31 00:01:48,200 --> 00:01:50,520 Speaker 2: help out, just to help her out because she was 32 00:01:50,560 --> 00:01:54,520 Speaker 2: doing it by herself, and initially it was just to 33 00:01:54,600 --> 00:01:58,360 Speaker 2: help Kirsty, and then having met people who have been 34 00:01:58,400 --> 00:02:03,120 Speaker 2: affected directly by their way, I keep helping. 35 00:02:03,520 --> 00:02:08,040 Speaker 1: Yeah, do you know how many people are affected by 36 00:02:08,080 --> 00:02:09,720 Speaker 1: the disease in the Northern Territory? 37 00:02:10,960 --> 00:02:14,200 Speaker 2: In the Northern Territory there's currently seven people registered with 38 00:02:14,240 --> 00:02:19,000 Speaker 2: them ND New South Wales and that number seems to 39 00:02:19,000 --> 00:02:24,639 Speaker 2: be fairly consistent, so with people here, people being diagnosed 40 00:02:25,120 --> 00:02:30,840 Speaker 2: and other people leaving leaving it all behind. So yeah, 41 00:02:30,880 --> 00:02:34,200 Speaker 2: it's one of those diseases where your diagnosis rate is 42 00:02:34,320 --> 00:02:38,960 Speaker 2: very similar to the death rate. And yes, we've got 43 00:02:39,040 --> 00:02:41,160 Speaker 2: seven people here at the moment and we would love 44 00:02:41,200 --> 00:02:42,680 Speaker 2: to be able to make their lives a little bit 45 00:02:42,720 --> 00:02:44,519 Speaker 2: easier for lat of the time that they have left. 46 00:02:44,600 --> 00:02:48,320 Speaker 1: Yeah, absolutely, So what kinds of support do they need? 47 00:02:48,400 --> 00:02:51,600 Speaker 1: And you know, with the fundraising efforts, what will it go. 48 00:02:51,600 --> 00:02:55,920 Speaker 2: Towards all the money that we raising. The NT stays 49 00:02:55,960 --> 00:03:00,880 Speaker 2: for the NT people. So recently near South Miles have 50 00:03:00,960 --> 00:03:04,120 Speaker 2: just sent up a big list of that's just about 51 00:03:04,160 --> 00:03:07,760 Speaker 2: fourteen thousand dollars worth of equipment to the MT. So 52 00:03:08,240 --> 00:03:11,840 Speaker 2: this is just for Darlin. So there's wheelchairs, there's things 53 00:03:11,840 --> 00:03:16,320 Speaker 2: to help people in the showers because obviously they're not 54 00:03:16,400 --> 00:03:19,560 Speaker 2: able to stand properly sometimes, so something to help them 55 00:03:19,880 --> 00:03:26,200 Speaker 2: be able to shower by themselves, and just anything that 56 00:03:26,240 --> 00:03:27,480 Speaker 2: makes their lives easier. 57 00:03:29,160 --> 00:03:32,320 Speaker 1: Now, the event is happening, tell me when exactly it's 58 00:03:32,360 --> 00:03:34,160 Speaker 1: happening and how people get involved. 59 00:03:35,400 --> 00:03:39,320 Speaker 2: Okay, So the event is on Sunday. The walk itself 60 00:03:39,360 --> 00:03:43,440 Speaker 2: starts at nine o'clock, so you can register. There's if 61 00:03:43,480 --> 00:03:48,360 Speaker 2: you just google MND walk down twenty twenty four and 62 00:03:48,400 --> 00:03:50,480 Speaker 2: that will come up, or you can look for our 63 00:03:50,920 --> 00:03:56,560 Speaker 2: Facebook page which is MND Community Down and all the 64 00:03:56,600 --> 00:04:00,480 Speaker 2: information's on there, so you don't, you know, to support it. 65 00:04:00,560 --> 00:04:02,680 Speaker 2: To help support it, you don't need to actually come 66 00:04:02,720 --> 00:04:04,720 Speaker 2: and do the five k walk. If you don't feel 67 00:04:04,720 --> 00:04:08,320 Speaker 2: that you're capable of that, come down by a sausage physics. 68 00:04:08,520 --> 00:04:11,480 Speaker 2: We're having a sausage Fizzle. We've got raffles. We've had 69 00:04:11,480 --> 00:04:14,320 Speaker 2: some amazing people come and donate some rapple items for 70 00:04:14,360 --> 00:04:17,920 Speaker 2: this year's raffle, and we will also have a face 71 00:04:17,960 --> 00:04:21,200 Speaker 2: painter there. So if you come down you're not directly 72 00:04:21,240 --> 00:04:23,400 Speaker 2: involved in the walk, come down, give us a gold 73 00:04:23,640 --> 00:04:26,440 Speaker 2: coin donation and get your face painted well tomorrow. 74 00:04:26,520 --> 00:04:28,479 Speaker 1: It's great to speak with you this morning. It's a 75 00:04:28,480 --> 00:04:31,479 Speaker 1: wonderful thing that you and Kirsty with it. I know 76 00:04:31,520 --> 00:04:36,080 Speaker 1: it's a small committee organizing this and such a very 77 00:04:36,320 --> 00:04:39,760 Speaker 1: very worthy cause. Just remind our listeners again where they 78 00:04:39,800 --> 00:04:44,040 Speaker 1: should go for that further info online, so. 79 00:04:44,000 --> 00:04:47,159 Speaker 2: You can go to our Facebook page which is MND 80 00:04:47,360 --> 00:04:51,760 Speaker 2: Community Darwin, or if you go online and google MND 81 00:04:52,000 --> 00:04:54,160 Speaker 2: Walk down in twenty twenty four and you'll have all 82 00:04:54,160 --> 00:04:55,080 Speaker 2: the information there. 83 00:04:55,440 --> 00:04:58,360 Speaker 1: Tamara Henderson, thank you so much for your time. This morning. 84 00:04:58,400 --> 00:04:59,599 Speaker 1: I really appreciate it. 85 00:05:00,680 --> 00:05:02,039 Speaker 2: Thank you, Katie, thank you