1 00:00:00,120 --> 00:00:02,040 Speaker 1: Joining me on the line is Lee. 2 00:00:02,600 --> 00:00:02,760 Speaker 2: Now. 3 00:00:02,840 --> 00:00:05,800 Speaker 3: Lee had a had her baby and had a three 4 00:00:05,880 --> 00:00:09,879 Speaker 3: month stay in the neonatal intensive care unit. 5 00:00:10,280 --> 00:00:14,200 Speaker 1: Good morning to you, Lee, Hi, good morning, Thanks so 6 00:00:14,320 --> 00:00:15,640 Speaker 1: much for your time this morning. 7 00:00:16,400 --> 00:00:16,880 Speaker 2: Lee. 8 00:00:17,200 --> 00:00:19,640 Speaker 1: How early was your bub born? 9 00:00:21,040 --> 00:00:24,560 Speaker 2: She was twenty six weeks back in twenty ten. 10 00:00:25,160 --> 00:00:29,120 Speaker 3: Oh wow, that is such It's so early. It must 11 00:00:29,120 --> 00:00:30,800 Speaker 3: have been quite frightening for you. 12 00:00:31,880 --> 00:00:34,840 Speaker 2: Yeah, it was a pretty horrendous time in our life. 13 00:00:34,840 --> 00:00:38,000 Speaker 2: I have to say. She weighed seven hundred and eighty 14 00:00:38,040 --> 00:00:41,240 Speaker 2: three grams and my wedding rings set up her thigh, 15 00:00:41,840 --> 00:00:43,120 Speaker 2: so she was very tiny. 16 00:00:43,479 --> 00:00:48,360 Speaker 3: Oh my goodness, me, Lee, I cannot even imagine, you know, 17 00:00:48,479 --> 00:00:50,479 Speaker 3: some of the emotions, some of the fear that you 18 00:00:50,560 --> 00:00:53,440 Speaker 3: must have felt when your bub was born and so early. 19 00:00:54,840 --> 00:01:00,960 Speaker 2: Yeah, and the next unexpected nature of it was what 20 00:01:01,120 --> 00:01:04,759 Speaker 2: really kind of flawed us. She was our first baby, 21 00:01:04,880 --> 00:01:11,040 Speaker 2: and I honestly didn't know that the NICU world existed 22 00:01:11,640 --> 00:01:17,759 Speaker 2: until I had her so early, and we were thrust 23 00:01:17,840 --> 00:01:21,280 Speaker 2: into that world. So I can only imagine. There was 24 00:01:21,319 --> 00:01:24,760 Speaker 2: a time when she was really unwell where there was 25 00:01:25,160 --> 00:01:29,240 Speaker 2: conversation about her having to be sent to Royal Melbourne 26 00:01:29,920 --> 00:01:33,600 Speaker 2: because she was too unwell for the local NICU team 27 00:01:33,640 --> 00:01:37,480 Speaker 2: to treat her that she was too unwell to send. 28 00:01:38,840 --> 00:01:42,880 Speaker 2: Luckily for us and thanks to the NICKU angels as 29 00:01:42,920 --> 00:01:45,880 Speaker 2: I like to call them, because they do an amazing 30 00:01:46,080 --> 00:01:52,559 Speaker 2: job and I'm forever grateful to them, she pulled through 31 00:01:52,680 --> 00:01:57,360 Speaker 2: and we didn't have to. So our ninety two days 32 00:01:58,200 --> 00:02:02,240 Speaker 2: of her being in hospital from was based here in 33 00:02:02,280 --> 00:02:04,320 Speaker 2: the Darwen Loy Darwin Hospital. 34 00:02:04,760 --> 00:02:06,000 Speaker 1: Oh my goodness. 35 00:02:06,040 --> 00:02:08,359 Speaker 3: So, Lee, Look, there's a couple of things that I'm 36 00:02:08,400 --> 00:02:10,520 Speaker 3: taking from what you've just said there when I look 37 00:02:10,560 --> 00:02:13,200 Speaker 3: at the cut to these services and I know that 38 00:02:13,320 --> 00:02:15,360 Speaker 3: you know, by the sounds of it, it seems as 39 00:02:15,440 --> 00:02:18,560 Speaker 3: though it's temporary and they're they're trying to, you know, 40 00:02:18,680 --> 00:02:22,040 Speaker 3: to to do various different things. But first off, the 41 00:02:22,080 --> 00:02:25,600 Speaker 3: fact that you said that that for your child, that 42 00:02:25,720 --> 00:02:27,839 Speaker 3: they went through a they went through a stage where 43 00:02:27,880 --> 00:02:30,840 Speaker 3: they were really quite unwell and wouldn't have been able 44 00:02:30,960 --> 00:02:34,400 Speaker 3: to travel. You know, that makes me now question, well, 45 00:02:34,440 --> 00:02:37,480 Speaker 3: what happens if there is another family that's in the 46 00:02:37,520 --> 00:02:40,839 Speaker 3: situation that you guys were in, you know, all those 47 00:02:40,919 --> 00:02:44,480 Speaker 3: years ago, and they're not they're not able to be 48 00:02:44,560 --> 00:02:45,720 Speaker 3: cared for here. 49 00:02:46,840 --> 00:02:50,600 Speaker 2: Absolutely, and you know, it does happen there is definitely 50 00:02:50,639 --> 00:02:54,040 Speaker 2: the need for a baby to be sent into States. 51 00:02:55,080 --> 00:02:58,720 Speaker 2: From my understanding from my time back then, you know, 52 00:02:58,800 --> 00:03:02,799 Speaker 2: it doesn't happen too and the hospital is extremely experienced 53 00:03:03,680 --> 00:03:06,240 Speaker 2: with the air transport team and all of that kind 54 00:03:06,280 --> 00:03:11,440 Speaker 2: of thing. I have no concern about the hospital's intentions 55 00:03:11,720 --> 00:03:16,200 Speaker 2: or the transport or anything like that. For me, my 56 00:03:16,320 --> 00:03:20,200 Speaker 2: main concern is if you so, any woman who's pregnant 57 00:03:20,280 --> 00:03:26,280 Speaker 2: in Darwin at this time who goes into emergency labor 58 00:03:26,480 --> 00:03:32,600 Speaker 2: or spontaneous labor prior to thirty two weeks, all of 59 00:03:32,600 --> 00:03:36,040 Speaker 2: them are looking down the gauntlet of having to go 60 00:03:36,680 --> 00:03:41,760 Speaker 2: into stage because of the lack of doctors who are 61 00:03:41,760 --> 00:03:45,800 Speaker 2: able to intubate and whatever else that CAP had said. 62 00:03:48,640 --> 00:03:53,840 Speaker 2: But the other thing about that is, and also so 63 00:03:54,600 --> 00:03:58,160 Speaker 2: they said about intubator babies and babies on seapap, which 64 00:03:58,200 --> 00:04:03,320 Speaker 2: is breathing assistance. Now, our daughter was on sepats for 65 00:04:03,400 --> 00:04:07,440 Speaker 2: seven weeks so for us to have. Luckily for us, 66 00:04:07,600 --> 00:04:11,840 Speaker 2: she was our first child. The families who have businesses 67 00:04:11,880 --> 00:04:14,640 Speaker 2: and jobs and other children and all of that kind 68 00:04:14,640 --> 00:04:18,839 Speaker 2: of thing having to uproot purely because there's a lack 69 00:04:18,880 --> 00:04:23,880 Speaker 2: of staff in your local excellent nicou is a serious problem. 70 00:04:24,000 --> 00:04:26,960 Speaker 2: And while we were there, we dealt with a huge 71 00:04:27,040 --> 00:04:30,400 Speaker 2: range of staff, probably fifty in the time across those 72 00:04:30,440 --> 00:04:34,680 Speaker 2: months we were there, and there was a really good, 73 00:04:35,200 --> 00:04:38,880 Speaker 2: well trained pool of staff who worked across the three 74 00:04:38,920 --> 00:04:44,160 Speaker 2: different areas of the NIKU and in that high dependency 75 00:04:44,480 --> 00:04:49,279 Speaker 2: ICU kind of station. So my concern is why all 76 00:04:49,279 --> 00:04:52,719 Speaker 2: of a sudden is they're not enough staff. What is 77 00:04:52,760 --> 00:04:56,640 Speaker 2: going on within that nickum unit for there not to 78 00:04:56,720 --> 00:05:00,000 Speaker 2: be enough staff, because there certainly has been over the years. 79 00:05:00,080 --> 00:05:02,719 Speaker 2: Where is this coming from? Why don't people want to 80 00:05:02,760 --> 00:05:03,320 Speaker 2: work in there? 81 00:05:04,320 --> 00:05:07,119 Speaker 3: Well, this is you know, that's a good point to make. 82 00:05:07,400 --> 00:05:10,000 Speaker 3: And and you know, then as you've touched on as well, 83 00:05:10,040 --> 00:05:13,040 Speaker 3: like you said that you and your bub were in 84 00:05:13,080 --> 00:05:13,600 Speaker 3: there for. 85 00:05:14,320 --> 00:05:18,279 Speaker 1: Ninety something days, like that's months. Can you imagine that. 86 00:05:18,880 --> 00:05:21,720 Speaker 2: There was another family here we met who had already 87 00:05:21,760 --> 00:05:25,640 Speaker 2: been there for six months when we arrived. You know, 88 00:05:25,680 --> 00:05:29,920 Speaker 2: we were very lucky our daughter on the you know, 89 00:05:30,120 --> 00:05:33,599 Speaker 2: the overall she was very healthy. Yeah, there are some 90 00:05:33,720 --> 00:05:37,920 Speaker 2: incredibly sick babies that get born and as a result 91 00:05:37,960 --> 00:05:41,839 Speaker 2: of prematurity, you know, they can be in hospital for 92 00:05:42,120 --> 00:05:43,080 Speaker 2: twelve months more. 93 00:05:43,360 --> 00:05:45,080 Speaker 1: Yep, And this is it. 94 00:05:45,160 --> 00:05:48,280 Speaker 3: And then how on earth would you cope as like 95 00:05:48,279 --> 00:05:51,440 Speaker 3: a first time mom's, second time mom, anytime mom or 96 00:05:51,560 --> 00:05:55,520 Speaker 3: dad or family being away for that period of time. 97 00:05:56,080 --> 00:06:01,520 Speaker 2: That's right. Yeah, and the financial implications for us specifically, yeah, 98 00:06:01,920 --> 00:06:04,560 Speaker 2: suddenly going on Malee. You know, I worked for True 99 00:06:04,560 --> 00:06:07,320 Speaker 2: as the mentee, so I was able to fall back 100 00:06:07,400 --> 00:06:11,000 Speaker 2: on paid print leave. If that hadn't have been there, 101 00:06:11,040 --> 00:06:13,600 Speaker 2: we would have been in all sorts of hot water 102 00:06:13,839 --> 00:06:17,640 Speaker 2: with our mortgage and things that. You know, if you 103 00:06:17,640 --> 00:06:21,919 Speaker 2: don't have those systems or support systems, or your partner 104 00:06:21,960 --> 00:06:24,760 Speaker 2: can't be with you into your faith, it's you know, 105 00:06:24,880 --> 00:06:28,920 Speaker 2: it's a long haul. I have post traumatic stress disorder 106 00:06:29,839 --> 00:06:33,159 Speaker 2: as a result of our NICU journey. You know, the 107 00:06:33,279 --> 00:06:37,920 Speaker 2: risks to families, not just the babies, but too families 108 00:06:38,120 --> 00:06:43,200 Speaker 2: as a result of our local NIKU being understar. Really 109 00:06:43,240 --> 00:06:44,200 Speaker 2: it's unacceptable. 110 00:06:45,040 --> 00:06:48,000 Speaker 3: I'm so glad you called this morning ly, you know, 111 00:06:48,080 --> 00:06:51,880 Speaker 3: because I think so often you actually we need this perspective, 112 00:06:52,520 --> 00:06:55,200 Speaker 3: and you know, you need to know the impact that 113 00:06:55,360 --> 00:06:59,560 Speaker 3: this could potentially have on different families. And I understand 114 00:06:59,680 --> 00:07:02,479 Speaker 3: that you know that that that Royal Darwin Hospital and 115 00:07:02,560 --> 00:07:05,200 Speaker 3: certainly the department must be trying to work their butts 116 00:07:05,240 --> 00:07:08,240 Speaker 3: off to make some change to ensure that this works. 117 00:07:08,279 --> 00:07:10,960 Speaker 3: But you know, we live in a capital city. We 118 00:07:11,040 --> 00:07:14,480 Speaker 3: don't live you know, we're not living in a really 119 00:07:14,520 --> 00:07:18,160 Speaker 3: regional area. We live in a capital city, a location 120 00:07:18,320 --> 00:07:20,960 Speaker 3: that we t to out as you know, a place 121 00:07:20,960 --> 00:07:23,880 Speaker 3: that we want to be, like the capital of Northern Australia. 122 00:07:24,000 --> 00:07:26,600 Speaker 3: We've got to have these services for families. 123 00:07:27,520 --> 00:07:31,840 Speaker 2: That's right. And you know, if you think about remote 124 00:07:31,840 --> 00:07:37,320 Speaker 2: Indigenous communities, you're in the top end. Darwin is part 125 00:07:37,360 --> 00:07:41,320 Speaker 2: of a hub of where family members may be. So 126 00:07:41,640 --> 00:07:44,640 Speaker 2: if someone has had to come from norm Boy to 127 00:07:44,840 --> 00:07:48,240 Speaker 2: the Darwin Nikkey because their baby is so unwell or 128 00:07:48,280 --> 00:07:54,680 Speaker 2: so early, then and sorry, yes it's not just premature 129 00:07:54,760 --> 00:07:59,400 Speaker 2: babies who might need intubations. Babies can be just as 130 00:07:59,480 --> 00:08:03,240 Speaker 2: ill for various reason. So you know what's going on 131 00:08:03,240 --> 00:08:06,280 Speaker 2: with damn, I'm not sure, but you know, so if 132 00:08:06,320 --> 00:08:09,000 Speaker 2: you've got Indigenous women who are coming to have a 133 00:08:09,000 --> 00:08:12,360 Speaker 2: baby and you know, throwing into that Nico world as well, 134 00:08:12,960 --> 00:08:15,400 Speaker 2: but then they don't get to stay and do and 135 00:08:15,480 --> 00:08:17,440 Speaker 2: where there might be some support, and they've got to 136 00:08:17,440 --> 00:08:20,560 Speaker 2: be sent to Melbourne where there's no support. You know, 137 00:08:21,240 --> 00:08:25,600 Speaker 2: it's a whole other level of Oh, it's creation. 138 00:08:25,840 --> 00:08:28,040 Speaker 3: Well, this is the thing, and you're at such a 139 00:08:28,160 --> 00:08:31,360 Speaker 3: vulnerable time of your life anyway as a mom, right, 140 00:08:31,520 --> 00:08:34,080 Speaker 3: like when particularly is the first time Mum. 141 00:08:35,160 --> 00:08:39,640 Speaker 2: Yeah, I was actually a private patient and they were 142 00:08:39,679 --> 00:08:43,480 Speaker 2: really good to me and let me have my room 143 00:08:43,520 --> 00:08:46,800 Speaker 2: at the private hospital for about I think five days 144 00:08:47,400 --> 00:08:51,000 Speaker 2: after our daughter was born, and they were stuffing food 145 00:08:51,080 --> 00:08:52,880 Speaker 2: in the fridge for me and all of that kind 146 00:08:52,920 --> 00:08:55,319 Speaker 2: of thing, you know, because you don't get fed over 147 00:08:55,400 --> 00:08:57,640 Speaker 2: at the public where you do at the private kind 148 00:08:57,679 --> 00:09:02,120 Speaker 2: of stuff. But the day I was discharged from the 149 00:09:02,120 --> 00:09:07,000 Speaker 2: private hospital and I had to drive away from the 150 00:09:07,080 --> 00:09:12,360 Speaker 2: hospital ground and leave my baby in a hospital, I 151 00:09:12,520 --> 00:09:14,880 Speaker 2: was just destroyed. I sat there howling in the car 152 00:09:14,960 --> 00:09:16,760 Speaker 2: for about an hour and a half. You know. It 153 00:09:16,880 --> 00:09:22,000 Speaker 2: was just such a terrible time. And I'm sure like 154 00:09:22,320 --> 00:09:26,160 Speaker 2: we are still patients of RDIH. I've never had an 155 00:09:26,160 --> 00:09:30,800 Speaker 2: issue with RDIH that My concern is what is happening 156 00:09:30,840 --> 00:09:35,199 Speaker 2: within that nicky unit that is making people not want 157 00:09:35,240 --> 00:09:37,760 Speaker 2: to be there. Why is there a staff shortage? It's 158 00:09:37,760 --> 00:09:40,720 Speaker 2: not just about COVID. It must there must be something 159 00:09:40,760 --> 00:09:44,600 Speaker 2: else going on, Lee, I really millions of dollars worth 160 00:09:44,600 --> 00:09:48,760 Speaker 2: of equipment that people are fundraised for and here it's 161 00:09:48,920 --> 00:09:49,880 Speaker 2: very well equipped. 162 00:09:50,679 --> 00:09:54,000 Speaker 3: So well, let us look, we'll continue to speak about 163 00:09:54,040 --> 00:09:56,280 Speaker 3: it and continue to try and get some answers, because 164 00:09:56,320 --> 00:09:59,160 Speaker 3: I think you've raised some really really important points. Lee, 165 00:09:59,320 --> 00:10:02,200 Speaker 3: Before I let you go very quickly, your daughter must 166 00:10:02,240 --> 00:10:03,920 Speaker 3: be thirteen or fourteen now. 167 00:10:03,800 --> 00:10:06,439 Speaker 2: Is she? Yeah, she's about to turn fourteen. 168 00:10:07,880 --> 00:10:10,360 Speaker 3: It's a good age and interesting age. My daughter is 169 00:10:10,400 --> 00:10:11,440 Speaker 3: just a little bit younger. 170 00:10:13,240 --> 00:10:17,360 Speaker 2: We've actually run into you and spotlight on my daughter 171 00:10:17,480 --> 00:10:18,400 Speaker 2: was all taken with you. 172 00:10:20,160 --> 00:10:24,080 Speaker 3: I love it, or Lee, I am so grateful that 173 00:10:24,160 --> 00:10:27,040 Speaker 3: you called this morning. I just think it's I reckon, 174 00:10:27,080 --> 00:10:29,800 Speaker 3: it's so important. It provides that perspective for us. And 175 00:10:30,080 --> 00:10:32,160 Speaker 3: the point you've made then as well about all the 176 00:10:32,240 --> 00:10:35,040 Speaker 3: money that's been raised for the NIKU over the years 177 00:10:35,040 --> 00:10:39,320 Speaker 3: as well through those private fundraisers. It's like, you know, 178 00:10:39,400 --> 00:10:41,640 Speaker 3: we've got to there's got to be a closer look 179 00:10:41,679 --> 00:10:42,000 Speaker 3: into this. 180 00:10:42,040 --> 00:10:43,679 Speaker 1: There's got to be some kind of change here. 181 00:10:44,559 --> 00:10:46,320 Speaker 2: Well. I think the other point that I wanted to 182 00:10:46,400 --> 00:10:49,959 Speaker 2: raise quickly is that, Okay, so we've got South Australian 183 00:10:50,000 --> 00:10:53,640 Speaker 2: Police officers coming to help in our spring. I'm sure 184 00:10:53,720 --> 00:10:57,040 Speaker 2: that there could be some kind of national pool that 185 00:10:57,080 --> 00:11:02,439 Speaker 2: could be utilized of NIKU trained nurses that could be 186 00:11:02,520 --> 00:11:03,960 Speaker 2: pulled in when it's needed. 187 00:11:04,240 --> 00:11:05,960 Speaker 1: That is good point. 188 00:11:06,040 --> 00:11:10,000 Speaker 2: It's got to be something that's really much more dynamically 189 00:11:10,080 --> 00:11:13,319 Speaker 2: thought about than individual employment through NTG. 190 00:11:14,040 --> 00:11:16,240 Speaker 1: That is a really really good point. 191 00:11:16,840 --> 00:11:17,040 Speaker 2: Lee. 192 00:11:17,080 --> 00:11:18,480 Speaker 3: I'm going to have to run. We've got to get 193 00:11:18,480 --> 00:11:20,960 Speaker 3: to the national news. Thank you for having a chat 194 00:11:20,960 --> 00:11:23,520 Speaker 3: with us. I'll see you again in spotlight maybe sometimes 195 00:11:23,520 --> 00:11:26,760 Speaker 3: so thank you. 196 00:11:26,800 --> 00:11:27,000 Speaker 1: See