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Speaker 1: Well, as you might recall a little bit earlier in

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Speaker 1: the week, I spoke to Jene Jags from NT Parkinson's

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Speaker 1: Support Group, who'd raised concerns that the territory could soon

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Speaker 1: lose its only movement disordered specialist nurse, with federal funding

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Speaker 1: for that role running out in March. We followed it

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Speaker 1: up with the Northern Territory Health Minister to see if

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Speaker 1: there was anything that the Northern Territory government could do

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Speaker 1: to ensure the vital role continued, and yesterday on the

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Speaker 1: show Well, the Health Minister, Steve Edgington announced that a

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Speaker 1: funding extension would be in place until twenty twenty five

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Speaker 1: twenty six. Now joining me on the line is NT

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Speaker 1: Parkinson's Support Group coordinator Gene Jagged. Good morning to you, Jeene.

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Speaker 2: Good morning Katie. Up on you?

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Speaker 1: Yeah, Jean, how did you were you listening to the interview?

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Speaker 1: What did you think when you heard the news?

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Speaker 2: We were on our way to the support group meeting yesterday.

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Speaker 2: We meet on the third thirsday of the lad month

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Speaker 2: and when I arrived a number of the group had

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Speaker 2: been listening and told me the good news is fantastic.

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Speaker 2: So our meeting was very uppy, very happy. Yeah, it

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Speaker 2: was great.

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Speaker 1: I mean, so what is it going to mean for

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Speaker 1: you guys? Is it going to mean that you can

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Speaker 1: have the wonderful Yolanda continue on.

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Speaker 2: That's right, Yeah, at least for another year, and so

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Speaker 2: that that's a big it's a big thing off our shoulders.

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Speaker 2: It's a great relief. A lot of people, you know,

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Speaker 2: they're just ecstatic about it. So big thanks to you

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Speaker 2: for advocating for us, and to the minister or whoever

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Speaker 2: made the decision. And also two MLAs who's are number

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Speaker 2: forwarded information onto the minister and spoke to them. Of course,

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Speaker 2: we're still a bit concerned about the long term. After

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Speaker 2: twelve months, we'd like to ask the government to find

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Speaker 2: a permanent solution so that the funding will continue in

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Speaker 2: the long term and the nurse and also the people

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Speaker 2: she supports don't have the same issue again next year.

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Speaker 2: We need to continuity of care. Yeah. I looked up

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Speaker 2: the report of the position online yesterday and I knew

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Speaker 2: that the nurse went to Yorlanda, went to Catherine and

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Speaker 2: Nullam by Tannet Greek Alice Springs as well as Dawa.

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Speaker 2: I didn't realize she also went to Borolula she's been

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Speaker 2: to Maningrida, what I and other communities in Central Australia.

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Speaker 2: So it's not only the large number, it's it's the

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Speaker 2: vastness of the anti yeah. Yeah, So ideally we do

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Speaker 2: need another one, another nurse to help her and to

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Speaker 2: learn the ropes so that there is continuity of care

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Speaker 2: in the future.

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Speaker 1: Well, and look, this is an excellent step, you know,

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Speaker 1: having that, having that extended for another year is wonderful.

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Speaker 1: But like I said, you've really got to now sit

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Speaker 1: down with the Health Minister or sit down with unbodied

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Speaker 1: and work out you know, how this can continue on

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Speaker 1: long term because that you know, the benefits to those

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Speaker 1: with movement disorders and also with Parkinson's is enormous. And

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Speaker 1: if this role doesn't continue, well it's going to need

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Speaker 1: you know, the needs of those people are going to

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Speaker 1: need to be picked up somewhere else across the health system.

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Speaker 2: So it's not.

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Speaker 1: That mean it goes away. Yeah, that's the thing.

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Speaker 2: They just clog up the system with things that I mean,

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Speaker 2: sometimes people with movement disorders do have to go to

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Speaker 2: hospital obviously, but there are issues that the movement disorders

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Speaker 2: nurse can sort out have already in hospital going to

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Speaker 2: hospital and you know, it's just that helps all the

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Speaker 2: way around. It benefits everybody. I mean, we've been fortunate

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Speaker 2: to have the Moving Disorders nurse the last three years.

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Speaker 2: West Australia for instance, have had someone for twenty five years,

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Speaker 2: so it's not like it's a new issue and it's

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Speaker 2: proved it's effectiveness in other areas. So yeah, so thank

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Speaker 2: you so much for what you've done. And yeah, I

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Speaker 2: also spoke on the ABC radio and they did a

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Speaker 2: bit too, which I'm thankful for as well. And the

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Speaker 2: anti news guy happened to be there yesterday. I think

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Speaker 2: he's going to put something in the weekend paper.

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Speaker 1: Yeah. Well, look, I think when something like this happens,

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Speaker 1: it's pretty common sense to absolutely everybody that you know

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Speaker 1: that there needs to be some follow up and and

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Speaker 1: you know, a big thanks to Krystal, my producer, who

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Speaker 1: does that behind the scenes work for us and make

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Speaker 1: sure that we do actually follow up because to me,

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Speaker 1: it's not just an interview. It's not just about you

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Speaker 1: coming on and having a chat with us, but it's

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Speaker 1: also about trying to you know, trying to make sure

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Speaker 1: that the minister is indeed aware of the way in

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Speaker 1: which it's going to impact you guys.

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Speaker 2: Yeah, yeah, get them up.

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Speaker 1: No worries at all, and keep us in the Loopers

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Speaker 1: well as some of those discussions happen and as you

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Speaker 1: get you know, that further bit of detail about what

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Speaker 1: you know, what the future is longer term.

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Speaker 2: Yeah, thank you so very much.

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Speaker 1: No worries at all, Jane, appreciate it anytime. Thank you

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Speaker 1: you too. Have a great weekend.