WEBVTT - MINI: Adeena's Story

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<v Speaker 1>Christ Yeah, welcome friends to the Christian O'Connell Show podcast.

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<v Speaker 2>Let's have a chat with a big arted listener called

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<v Speaker 2>Heidi who sent me an email over a week ago,

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<v Speaker 2>and as soon as I read the email, I thought,

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<v Speaker 2>you need to hear about what Heidi is trying to

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<v Speaker 2>raise money for and I want to do everything we

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<v Speaker 2>can on the show this week to support that. Heidi.

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<v Speaker 1>Good morning, Good morning Christian.

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<v Speaker 2>So Heidi, tell everyone what you do and about an

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<v Speaker 2>amazing woman called Adena.

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<v Speaker 1>I'm a disability support worker, have been for fifteen years.

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<v Speaker 1>I care for a young lady and mum of two

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<v Speaker 1>young children, aDNA, and Adena has got mode and your

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<v Speaker 1>own disease MND. She's had it for three years. The

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<v Speaker 1>lifespan is normally three to five years. The first couple

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<v Speaker 1>of years of her diagnosis, we're in COVID lockdown, so

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<v Speaker 1>she couldn't get out. Now we're allowed out, and Adena's

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<v Speaker 1>made ability has decreased that much that it's actually a

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<v Speaker 1>struggle for her to get transferred by carry in and

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<v Speaker 1>out of a normal car. It's causing a lot of

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<v Speaker 1>distress at the moment. And I had a meeting with

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<v Speaker 1>her in one of her medical team a couple of

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<v Speaker 1>weeks ago, and it really touched my heart because that

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<v Speaker 1>was all the meeting was about, and trying to raise

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<v Speaker 1>fund to get a visibility support vehicle for her. And

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<v Speaker 1>I went home really really broken emotionally about it. And

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<v Speaker 1>so I went on a mission to try and see

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<v Speaker 1>what I can do to try and raise some funds

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<v Speaker 1>to get a Dina mobile and out in the community

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<v Speaker 1>so she can take her kids to school, and she

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<v Speaker 1>can take them to birthday parties and go and have

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<v Speaker 1>a coffee with a girlfriend, things that we take for

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<v Speaker 1>granted that she can't actually do anymore.

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<v Speaker 2>Well, Heidi, Also, you know you're one of In your email,

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<v Speaker 2>you said, so you're one of ten cares that work

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<v Speaker 2>around the Clockdina and other people I sadly have MMD.

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<v Speaker 1>Yeah, so she's got twenty four seven care now, and yeah,

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<v Speaker 1>there's a whole whole care team that works and we

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<v Speaker 1>make sure all the ships acovered for as much as

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<v Speaker 1>we can because we're there as there. She actually can't

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<v Speaker 1>get out of bed in the morning.

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<v Speaker 2>It's heartbreak. And as soon as I saw your email,

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<v Speaker 2>I was blown away by your generosity because obviously it's

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<v Speaker 2>amazing what you and your team are doing for her

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<v Speaker 2>right and then that you're trying to now to personally

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<v Speaker 2>get involved to raise the money for this disability support vehicle.

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<v Speaker 2>And as soon as I heard you describe it that

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<v Speaker 2>she just wants me to get in the and to

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<v Speaker 2>get in a car and be with the kids in

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<v Speaker 2>the school run to sit in between them. Is like,

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<v Speaker 2>I want to do everything we can on the show

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<v Speaker 2>to make that happen. So how much money does she need?

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<v Speaker 2>Do you guys need them to get this vehicle?

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<v Speaker 1>Well, she's she doesn't want a brand new vehicle. She's

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<v Speaker 1>happy with anything as long as her real check and

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<v Speaker 1>sit between her children in the back. She had some

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<v Speaker 1>one that kicks all the boxes and it's twenty two

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<v Speaker 1>and a half thousand. Yeah, wait a minute, sorry.

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<v Speaker 2>That's okay. You don't need to say sorry. I mean,

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<v Speaker 2>you know, to us, we're we're just hearing it. You know,

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<v Speaker 2>you know, you know what this means to the family,

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<v Speaker 2>what you're trying to do for us. So it's yeah,

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<v Speaker 2>they're so close to you in your heart. So that's

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<v Speaker 2>you for trying to actually make a change in your

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<v Speaker 2>life already more than you do day to day.

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<v Speaker 1>Yeah. So yeah, so her day to day at the moment,

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<v Speaker 1>depending on her care and what kind of care has

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<v Speaker 1>she can't actually get out during the day because some

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<v Speaker 1>cares vehicles, we physically can't transfer from a wheelchair into

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<v Speaker 1>a normal car anymore. And it comes down to her

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<v Speaker 1>safety and the care of safety as well. But little

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<v Speaker 1>things like that day that I emailed you. It was

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<v Speaker 1>her son's birthday, sixth birthday the next day, and she

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<v Speaker 1>got me to go and pick up his birthday presence.

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<v Speaker 1>She couldn't go and pick them up like and that

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<v Speaker 1>was my breaking point with her. It's like I said

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<v Speaker 1>to her at the end, I said, a Dinna, let's

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<v Speaker 1>just in fundraising. Let's do a movie night at trivia

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<v Speaker 1>night raised the money, and she actually turned around me

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<v Speaker 1>and said, if I was you, no, I'd rather raise

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<v Speaker 1>money for the M and D Society to help find

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<v Speaker 1>a cure for people in the future. That's sort of

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<v Speaker 1>what the tougher, gorgeous human being she is like. And

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<v Speaker 1>that's when I went on this mission to try and

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<v Speaker 1>raise money to get her a car. So there was

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<v Speaker 1>how long ever we have with a dinna, She's got

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<v Speaker 1>quality of life, like she can go out and do

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<v Speaker 1>the thing she wants with her family on the weekends

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<v Speaker 1>and with her careage during the week Yeah.

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<v Speaker 2>I mean we all saw last week the amazing work

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<v Speaker 2>that you know, Neil danaher and his family have done

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<v Speaker 2>and everyone does all over Australia, you know, raising millions

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<v Speaker 2>over the years, and they're actually leading research into M

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<v Speaker 2>and D all over the world. The cutting edge research

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<v Speaker 2>is coming out of the money they raise. But we

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<v Speaker 2>we see the big freeze and we donate. I think

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<v Speaker 2>we often sometimes we're still removed from what it's like

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<v Speaker 2>for people actually that in that situation out I've got

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<v Speaker 2>to be answer. I felt terrible when I read your email.

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<v Speaker 2>I just you just don't know because it's kind of

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<v Speaker 2>out of sight of what you don't know what that

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<v Speaker 2>really means to a family and a young muma to

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<v Speaker 2>have a diagnosis like that. And when you said, you know,

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<v Speaker 2>three to five years, it was like, gosh, she's at

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<v Speaker 2>year three. I want to do everything we can on

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<v Speaker 2>the show. I don't want to make because I said

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<v Speaker 2>to you, any want to applied quickly and said we'll

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<v Speaker 2>definitely do something, But I can't make promises that we

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<v Speaker 2>can't keep. But I really hope this week we can

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<v Speaker 2>try and raise the money to get her at least

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<v Speaker 2>get at the vehicle so that she can while she

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<v Speaker 2>can just get out of her house and spend some time,

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<v Speaker 2>just try it around with her kids doing stuff You're right,

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<v Speaker 2>we take for granted, like the school run.

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<v Speaker 1>Yeah, yeah, all right, So this is what.

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<v Speaker 2>We're gonna do. OK, We're gonna, we're gonna we're gonna

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<v Speaker 2>rely on the kind people listen to the show, and

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<v Speaker 2>we've been we've been showing time and time again that

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<v Speaker 2>they do want to help. People do want to help.

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<v Speaker 2>And so let's get to that vehicle this week by Friday.

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<v Speaker 1>That would be amazing, like amazing.

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<v Speaker 2>Thank you very much for sending me in the email

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<v Speaker 2>and trusting us as well. I think you're amazing. A

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<v Speaker 2>Dina sounds amazing. You're an angel. Honestly, you and people

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<v Speaker 2>like you and your team are that. The people that

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<v Speaker 2>we don't even know about are just incredible. What you do.

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<v Speaker 2>It's selfless, it's tired as it's hard work, but thank

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<v Speaker 2>you very much. Let's get to the vehicle then. So

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<v Speaker 2>we've set up a go fund me a page, a

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<v Speaker 2>brand new page. It's set at zero. I urge you,

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<v Speaker 2>whether it's five bucks or ten bucks. Every single dollar

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<v Speaker 2>will go towards that twenty two and it's twenty two

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<v Speaker 2>and a half thousand. That's what we need to get

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<v Speaker 2>a second hand one for edema.

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<v Speaker 1>Yeah, that's all we Yeah, it would change your family's world. Natively.

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<v Speaker 2>We're going to do everything we can on the show,

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<v Speaker 2>and I know that our people listening right now will

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<v Speaker 2>want to donate. So easiest way for define the go

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<v Speaker 2>fund me page then is if you go to our

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<v Speaker 2>Facebook page, The Christian O'Connell Show. Everyone to live us

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<v Speaker 2>on Facebook still these days, if you head to the

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<v Speaker 2>Christian O'Connell Show on Facebook, you can also find us

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<v Speaker 2>on Instagram again, the Christian O'Connell Show, it will be there.

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<v Speaker 2>It's the link to the go fund me campaign. It's

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<v Speaker 2>at zero. We have nothing. I'm asking you to give

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<v Speaker 2>whatever you can. If that's five dollars, great, five dollars

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<v Speaker 2>is amazing. Thank you very very much, Heidi. Let's see

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<v Speaker 2>what happens this week.

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<v Speaker 1>Thank you so much.

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<v Speaker 2>No, no, no, thank you.

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<v Speaker 1>Honestly, this day amazing.

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<v Speaker 2>The least we can do. We're lucky to have this

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<v Speaker 2>show and this platform. It's nice sometimes be a little one.

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<v Speaker 2>Hopefully make a difference in a Deemer's life.

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<v Speaker 1>I hope we can would be amazing.

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<v Speaker 2>I hope we can get that vehicle by Friday. I

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<v Speaker 2>really really do we do all we can. Heidi, thank

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<v Speaker 2>you so much for everything you do. You're you're awesome,

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<v Speaker 2>I mean all of you.

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<v Speaker 1>Thank you for replying.

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<v Speaker 2>Hey, that's all right, listen, let's see what happens this week.

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<v Speaker 1>Okay, all right ya, thanks Sardi, speaking to no worries.

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<v Speaker 1>Thank you.

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<v Speaker 2>Do only want to get to that vehicle, honestly, five

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<v Speaker 2>or ten dollars. I know you probably think that that

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<v Speaker 2>isn't going to do it. It will. We know so

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<v Speaker 2>many people listen to the show. One dollar will get

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<v Speaker 2>the honesty. If it's five bucks ten dollars, that's all

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<v Speaker 2>you can give right now, that's amazing. If you're not

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<v Speaker 2>able to give anything, just even knowing that you're listening

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<v Speaker 2>and just thinking of somebody else in a really, really

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<v Speaker 2>really hard spot is enough as well. But if you

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<v Speaker 2>can check out our Facebook page, Christian O'Connell's show, you'll

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<v Speaker 2>find us there on Instagram as well. Whatever you can give,

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<v Speaker 2>thank you very very much. Let's get to that vehicle

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<v Speaker 2>this week.

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<v Speaker 1>Carl a brighter not you're listening to the Christian o'conl

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<v Speaker 1>Show podcast