1 00:00:00,160 --> 00:00:04,240 Speaker 1: And we know that you might recall earlier in the week. Obviously, 2 00:00:04,280 --> 00:00:07,800 Speaker 1: the final report was indeed released into the development of 3 00:00:07,840 --> 00:00:11,000 Speaker 1: a framework for voluntary assisted dying in the Northern Territory. 4 00:00:11,280 --> 00:00:14,200 Speaker 1: The panel made twenty two recommendations after a number of 5 00:00:14,200 --> 00:00:19,079 Speaker 1: public hearings, meetings with organizations and reviewing written submissions. Now, 6 00:00:19,160 --> 00:00:22,560 Speaker 1: if re elected, Labor have committed to reviewing the recommendations 7 00:00:22,560 --> 00:00:26,599 Speaker 1: and move forward with proposed legislation to introduce a voluntary 8 00:00:26,640 --> 00:00:29,960 Speaker 1: assisted dying scheme, while the COLP says it will heavily 9 00:00:29,960 --> 00:00:33,720 Speaker 1: scrutinize the feedback from the committee, deeming it a conscience 10 00:00:33,840 --> 00:00:36,280 Speaker 1: vote for party members. Now joining us on the line 11 00:00:36,520 --> 00:00:40,760 Speaker 1: to talk through the recommendations is the Independent Expert Advisory 12 00:00:40,760 --> 00:00:44,120 Speaker 1: Panel co chair, the Honorable Vicky o'haller. And good morning 13 00:00:44,120 --> 00:00:50,360 Speaker 1: to you, Vicky. Let me try that again. Good morning again, Vicki. 14 00:00:50,479 --> 00:00:52,040 Speaker 2: Good morning again, Katie. 15 00:00:52,159 --> 00:00:54,040 Speaker 1: You've got to make sure I'm pressing the button to 16 00:00:54,080 --> 00:00:59,920 Speaker 1: get you on air now, Vicki. Firstly, what consultation will 17 00:01:00,160 --> 00:01:01,720 Speaker 1: undertaken by the paddel. 18 00:01:03,560 --> 00:01:08,400 Speaker 2: Katie. We had a dedicated survey line because we were 19 00:01:08,400 --> 00:01:12,200 Speaker 2: aware that not everybody wanted to make a submission. We 20 00:01:12,240 --> 00:01:17,400 Speaker 2: went out and engaged with sixty organizations. Some we reached 21 00:01:17,440 --> 00:01:20,960 Speaker 2: out to, some reached out to us. Our survey responses 22 00:01:21,040 --> 00:01:25,640 Speaker 2: were around fourteen hundred. We received ninety eight written submissions 23 00:01:26,240 --> 00:01:30,760 Speaker 2: and three hundred and fifty individuals, and again a lot 24 00:01:30,760 --> 00:01:33,800 Speaker 2: of those reached out to us to have a couple 25 00:01:33,800 --> 00:01:35,880 Speaker 2: of tea in their lounge rooms, talk to us about 26 00:01:35,880 --> 00:01:40,640 Speaker 2: their personal very poignant experiences, or wanted to come in 27 00:01:40,680 --> 00:01:43,560 Speaker 2: and have a chat as a family group, or wanted 28 00:01:43,640 --> 00:01:47,880 Speaker 2: us to go out to their their organization and have 29 00:01:47,960 --> 00:01:50,520 Speaker 2: a chat, or out to their age care facility, or 30 00:01:50,560 --> 00:01:53,360 Speaker 2: meet with a seniors group. And we were really flexible 31 00:01:53,400 --> 00:01:58,040 Speaker 2: and just available as as much as was required from territorians. 32 00:01:58,080 --> 00:02:01,120 Speaker 2: There are also those territorians that didn't want to identify, 33 00:02:01,320 --> 00:02:03,160 Speaker 2: We didn't want to talk about death or dying. That 34 00:02:03,200 --> 00:02:04,520 Speaker 2: we had to respect as well. 35 00:02:05,120 --> 00:02:09,760 Speaker 1: It must have been some pretty difficult conversations because I 36 00:02:09,800 --> 00:02:12,600 Speaker 1: think on both sides here or there's a lot of 37 00:02:12,639 --> 00:02:15,560 Speaker 1: shades of gray as well. People are they have very 38 00:02:15,600 --> 00:02:18,320 Speaker 1: personal stories that I'm assuming that they want to share. 39 00:02:19,639 --> 00:02:22,440 Speaker 1: It would have been tough some of those conversations. 40 00:02:23,800 --> 00:02:26,600 Speaker 2: Yeah, very much, because I think we were all involved 41 00:02:26,600 --> 00:02:29,640 Speaker 2: as a panel either through our work experience or our 42 00:02:29,680 --> 00:02:35,520 Speaker 2: own life experiences and wanted this report that was commissioned 43 00:02:35,560 --> 00:02:39,040 Speaker 2: by the Chief Minister to reflect what we've heard and 44 00:02:39,080 --> 00:02:42,600 Speaker 2: be informed by the views of territorians. 45 00:02:42,960 --> 00:02:47,280 Speaker 1: Now talk me through the report recommending obviously implementing voluntary 46 00:02:47,280 --> 00:02:52,120 Speaker 1: assisted dying legislation consistent with other states and territories. So 47 00:02:52,440 --> 00:02:54,720 Speaker 1: was there overwhelming support for it? 48 00:02:56,160 --> 00:02:58,679 Speaker 2: Yes, there was on the whole. I mean, we respect 49 00:02:58,760 --> 00:03:04,840 Speaker 2: those that were conscientiously objecting to any form of voluntari 50 00:03:04,840 --> 00:03:08,360 Speaker 2: as sister dying at any time now and into the future. 51 00:03:08,800 --> 00:03:12,880 Speaker 2: But overall, as we discussed euthanasia of voluntari as sister 52 00:03:13,080 --> 00:03:15,560 Speaker 2: dying across the territory, there was support. 53 00:03:16,400 --> 00:03:19,040 Speaker 1: Now tell me what were some of the other key 54 00:03:19,080 --> 00:03:21,320 Speaker 1: recommendations that have been made in the report. 55 00:03:23,400 --> 00:03:27,520 Speaker 2: Ok. I think the important thing to discuss today is 56 00:03:28,360 --> 00:03:32,320 Speaker 2: where we have agreed with other states and territories, and 57 00:03:32,560 --> 00:03:35,440 Speaker 2: also to point out that, although not in our terms 58 00:03:35,440 --> 00:03:42,640 Speaker 2: of reference, dementia is a really difficult circumstance for discussion. 59 00:03:42,720 --> 00:03:46,760 Speaker 2: At every turn that we landed on the fact that 60 00:03:46,800 --> 00:03:50,080 Speaker 2: people must have decision making capacity, and we did that 61 00:03:50,200 --> 00:03:55,280 Speaker 2: because it's complex, it's knowing when where I think Soushiras 62 00:03:55,600 --> 00:03:59,200 Speaker 2: pointed out from the Council of the Aging that you 63 00:03:59,240 --> 00:04:02,240 Speaker 2: have to consider safeguards. You have to consider safeguards for 64 00:04:02,320 --> 00:04:07,920 Speaker 2: the patient, safeguards for the staff administering the family, the 65 00:04:07,960 --> 00:04:11,600 Speaker 2: burden on caregivers. So although not in our terms of reference, 66 00:04:11,640 --> 00:04:14,600 Speaker 2: we did convey clearly in our report that there was 67 00:04:14,600 --> 00:04:17,920 Speaker 2: a strong body of opinion that's been expressed during our 68 00:04:17,960 --> 00:04:21,279 Speaker 2: consultation and engagement that there should in the future be 69 00:04:21,360 --> 00:04:25,600 Speaker 2: legislation to enable a person to access voluntary assists a 70 00:04:25,760 --> 00:04:30,279 Speaker 2: dying why they still have capacity, and that could be 71 00:04:30,320 --> 00:04:34,040 Speaker 2: done in their advanced personal plan or their health directives 72 00:04:35,040 --> 00:04:37,200 Speaker 2: in preparation for their end of life. And I wanted 73 00:04:37,240 --> 00:04:41,040 Speaker 2: to say that because dementia consideration is a whole body 74 00:04:41,040 --> 00:04:46,240 Speaker 2: of new work, and ideally that body of work would 75 00:04:46,240 --> 00:04:49,920 Speaker 2: be undertaken across all jurisdictions in Australia. 76 00:04:50,000 --> 00:04:52,320 Speaker 1: I was going to ask that do we know or 77 00:04:52,360 --> 00:04:54,520 Speaker 1: what are they doing in other states? Now were able 78 00:04:54,600 --> 00:04:56,960 Speaker 1: to sit in line with those other states, But it 79 00:04:57,000 --> 00:04:58,840 Speaker 1: sounds like it's a body of work that's happening right 80 00:04:58,880 --> 00:05:00,680 Speaker 1: across Australia. 81 00:05:00,839 --> 00:05:03,719 Speaker 2: Yes it is, because it's such a such a challenge. 82 00:05:04,240 --> 00:05:07,360 Speaker 2: But you know. In the twenty two recommendations we put forward, 83 00:05:07,520 --> 00:05:13,720 Speaker 2: we focused also on residency and probably stand alone in 84 00:05:13,760 --> 00:05:18,400 Speaker 2: that space, although Western Australia and Queensland are having a 85 00:05:18,440 --> 00:05:20,880 Speaker 2: look at what they have in place where they have 86 00:05:20,960 --> 00:05:26,440 Speaker 2: restrictions around residency. We took into consideration the transiency that 87 00:05:26,760 --> 00:05:29,599 Speaker 2: exists here in the Northern Territory and a number of 88 00:05:29,640 --> 00:05:32,839 Speaker 2: stories that we've been told. So we thought that a 89 00:05:32,880 --> 00:05:35,960 Speaker 2: person should have resided in Australia for a couple of 90 00:05:36,040 --> 00:05:39,920 Speaker 2: years and in the territory for twelve months, but exception 91 00:05:40,000 --> 00:05:43,760 Speaker 2: should apply to that for cross border communities, with people 92 00:05:43,760 --> 00:05:47,440 Speaker 2: who have personal connections here in the NTU or for 93 00:05:47,560 --> 00:05:49,919 Speaker 2: family or cultural reasons. We spoke to a lot of 94 00:05:49,920 --> 00:05:53,120 Speaker 2: people that have resided here all their life but move 95 00:05:53,200 --> 00:05:56,279 Speaker 2: into State to be with family, but then want to 96 00:05:56,920 --> 00:06:00,159 Speaker 2: if they had access to voluntarist if a dying to 97 00:06:00,240 --> 00:06:03,840 Speaker 2: die at home here in the Northern Territory, or people 98 00:06:03,920 --> 00:06:07,440 Speaker 2: who are in another situation have lived for a long 99 00:06:07,480 --> 00:06:10,960 Speaker 2: time into State but they were born here and want 100 00:06:11,000 --> 00:06:12,880 Speaker 2: to come home, or this is where their children are 101 00:06:12,920 --> 00:06:14,320 Speaker 2: and this is where they want to spend the last 102 00:06:14,320 --> 00:06:16,440 Speaker 2: part of their lives. So we thought there needed to 103 00:06:16,480 --> 00:06:17,640 Speaker 2: be flexibility there. 104 00:06:19,120 --> 00:06:23,760 Speaker 1: It sounds like it's been really complex and a lot 105 00:06:24,040 --> 00:06:27,800 Speaker 1: of work to get to this point, and obviously that 106 00:06:27,880 --> 00:06:31,719 Speaker 1: report handed over before we kicked into caretaker mode. 107 00:06:31,839 --> 00:06:33,920 Speaker 2: What are the next what are the next steps? From 108 00:06:33,960 --> 00:06:38,480 Speaker 2: your perspective, look from our perspective as a panel, our 109 00:06:38,520 --> 00:06:43,960 Speaker 2: work has concluded. The report is with the Chief Minister now, 110 00:06:44,240 --> 00:06:49,960 Speaker 2: but our final recommendation was that voluntary assisted dying services 111 00:06:50,720 --> 00:06:56,159 Speaker 2: should be ready for operational implementation within eighteen months of 112 00:06:56,240 --> 00:07:00,560 Speaker 2: the legislation being enacted. Now, whether the legisl will be 113 00:07:00,600 --> 00:07:03,359 Speaker 2: an actor is really a matter for the Government of 114 00:07:03,440 --> 00:07:07,800 Speaker 2: the day, although as you mentioned, Katie, we have been 115 00:07:07,839 --> 00:07:12,120 Speaker 2: advised that it will come down to a conscience vote. 116 00:07:11,320 --> 00:07:13,520 Speaker 1: Now in terms of because I know there will be 117 00:07:13,600 --> 00:07:16,280 Speaker 1: some people listening this morning thinking are there going to 118 00:07:16,360 --> 00:07:19,160 Speaker 1: be safeguards in place? And I'm assuming that this was 119 00:07:19,200 --> 00:07:22,600 Speaker 1: also part of the large body of work that was completed. 120 00:07:24,040 --> 00:07:29,920 Speaker 2: Absolutely, we can't emphasize enough the importance of safeguards, safeguards 121 00:07:29,920 --> 00:07:35,240 Speaker 2: to everybody involved, for the patient, the person making decisions 122 00:07:35,280 --> 00:07:39,920 Speaker 2: about their end of life, for the administering doctor should 123 00:07:39,920 --> 00:07:43,400 Speaker 2: that be the case, for the family, for the caregivers, 124 00:07:43,720 --> 00:07:46,320 Speaker 2: and we put a lot of work into that into 125 00:07:46,360 --> 00:07:51,640 Speaker 2: our report, and hence that's why we have put the 126 00:07:51,680 --> 00:07:55,160 Speaker 2: time frame as twelve months. At this stage, we wanted 127 00:07:55,200 --> 00:07:57,880 Speaker 2: to do everything that we could, I suppose, not only 128 00:07:57,920 --> 00:08:01,200 Speaker 2: to put into the report what we've but to give 129 00:08:01,720 --> 00:08:08,920 Speaker 2: our recommendations and the legistrate slation every chance to be passed. Well. 130 00:08:09,040 --> 00:08:13,480 Speaker 1: Independent Expert Advisory Panel co chair the Honorable Vicki o'haleran, 131 00:08:13,800 --> 00:08:15,680 Speaker 1: really good to speak to you this morning. Thanks so 132 00:08:15,760 --> 00:08:18,960 Speaker 1: much for your time and for the work that you've done. 133 00:08:19,320 --> 00:08:20,600 Speaker 2: Thank you, Katie, thank you