1
00:00:00,160 --> 00:00:02,840
Speaker 1: I have heard over the last year or so that

2
00:00:02,880 --> 00:00:04,920
Speaker 1: there are some real issues for a lot of families

3
00:00:04,960 --> 00:00:08,760
Speaker 1: at the moment trying to access the NDEs and trying to,

4
00:00:09,160 --> 00:00:11,640
Speaker 1: you know, to get the support that they require for

5
00:00:11,680 --> 00:00:15,240
Speaker 1: their children or require four family members. And joining me

6
00:00:15,280 --> 00:00:18,599
Speaker 1: on the line right now is Jamie. Good morning to you, Jamie.

7
00:00:18,320 --> 00:00:19,160
Speaker 2: Good morning Katie.

8
00:00:19,200 --> 00:00:19,599
Speaker 3: How are you?

9
00:00:19,800 --> 00:00:21,280
Speaker 4: Yeah, not too bad now, Jamie.

10
00:00:21,320 --> 00:00:23,639
Speaker 1: I understand that you are having some issues at the

11
00:00:23,640 --> 00:00:26,320
Speaker 1: moment with the NDEs.

12
00:00:26,320 --> 00:00:27,960
Speaker 4: Can you talk us through what's going on?

13
00:00:28,480 --> 00:00:28,680
Speaker 3: Yeah?

14
00:00:28,720 --> 00:00:32,360
Speaker 2: Sure. Look so basically in my situation with the NDIS,

15
00:00:32,600 --> 00:00:36,280
Speaker 2: which is the National Disabibility Insurance Scheme, is that my

16
00:00:36,320 --> 00:00:39,720
Speaker 2: beautiful son who's nearly three, he has a development delay

17
00:00:39,840 --> 00:00:43,479
Speaker 2: and we're just in the process of getting him an

18
00:00:43,520 --> 00:00:47,360
Speaker 2: assessment done for autism, which it most likely is. We

19
00:00:47,440 --> 00:00:51,239
Speaker 2: have received funding from the NDAs, which is fantastic that

20
00:00:51,320 --> 00:00:55,880
Speaker 2: happened back in April. But obviously with COVID and yeah,

21
00:00:55,960 --> 00:00:58,600
Speaker 2: if it's just COVID or just you know, our services

22
00:00:58,600 --> 00:00:59,440
Speaker 2: are limited here.

23
00:01:00,920 --> 00:01:02,200
Speaker 3: Yeah, We've just there's a lack of.

24
00:01:02,160 --> 00:01:05,000
Speaker 2: Services available at the moment, at the moment in Darwin.

25
00:01:05,200 --> 00:01:07,720
Speaker 2: So we've got all this money, We've got this funding

26
00:01:07,880 --> 00:01:10,680
Speaker 2: but we cannot get in to see any specialists.

27
00:01:11,240 --> 00:01:12,720
Speaker 3: There's just no support out there.

28
00:01:13,000 --> 00:01:15,760
Speaker 2: We've been on a waiting list for eight months to

29
00:01:15,800 --> 00:01:21,120
Speaker 2: get into a clinic that provides psychology, ot and speech pathology.

30
00:01:22,160 --> 00:01:24,080
Speaker 2: So yeah, there's a real struggle at the moment.

31
00:01:24,400 --> 00:01:26,360
Speaker 4: That must be really hard for you guys.

32
00:01:26,440 --> 00:01:28,039
Speaker 1: I mean you're trying to do the best that you

33
00:01:28,080 --> 00:01:30,800
Speaker 1: can as a parent to get the support that your

34
00:01:30,840 --> 00:01:33,680
Speaker 1: little fellow requires and you're not actually able to get it.

35
00:01:35,080 --> 00:01:37,399
Speaker 3: Yeah, it's very frustrating.

36
00:01:37,440 --> 00:01:42,000
Speaker 2: It's very upsetting, especially knowing and seeing how your child

37
00:01:42,200 --> 00:01:49,880
Speaker 2: desperately needs these services. For us personally, Ari, he he's

38
00:01:49,960 --> 00:01:54,280
Speaker 2: become aggressive. So the poor darling, because he's nonverbal, he

39
00:01:55,400 --> 00:01:58,880
Speaker 2: gets very frustrated and he gets very aggressive and also

40
00:01:59,240 --> 00:02:02,960
Speaker 2: you know himself, so you know, we don't know how

41
00:02:02,960 --> 00:02:06,000
Speaker 2: to deal with this, so we can't access you know,

42
00:02:06,080 --> 00:02:10,640
Speaker 2: professional help to help him. Which, yeah, it's very frustrating.

43
00:02:10,280 --> 00:02:10,440
Speaker 1: You know.

44
00:02:10,600 --> 00:02:11,000
Speaker 4: Jamie.

45
00:02:11,160 --> 00:02:15,040
Speaker 1: Firstly, good on you for bringing this up, because it's

46
00:02:15,080 --> 00:02:19,280
Speaker 1: really hard as a parent. I would imagine to just

47
00:02:19,400 --> 00:02:22,440
Speaker 1: make sure that you've got everything you need for your

48
00:02:22,480 --> 00:02:24,960
Speaker 1: little fella. And and I just think that this is

49
00:02:24,960 --> 00:02:27,840
Speaker 1: something that there's probably so many parents out there listening

50
00:02:27,960 --> 00:02:30,800
Speaker 1: right now who are also going through a similar situation.

51
00:02:32,040 --> 00:02:34,280
Speaker 1: Are there many places where you can actually get that

52
00:02:34,320 --> 00:02:35,960
Speaker 1: support in the Northern Territory.

53
00:02:37,840 --> 00:02:40,360
Speaker 2: Well? Yeah, firstly, you know, I'm sure and I've heard

54
00:02:40,400 --> 00:02:44,520
Speaker 2: of many, many families that are going through this, and

55
00:02:44,720 --> 00:02:46,840
Speaker 2: you know, people that are close to me and also

56
00:02:46,880 --> 00:02:49,320
Speaker 2: people that I've met at learning centers along the way,

57
00:02:49,800 --> 00:02:54,520
Speaker 2: and you know, the struggle is real and everyone's in

58
00:02:54,560 --> 00:02:57,880
Speaker 2: the same boat there. I haven't actually been in touch

59
00:02:57,919 --> 00:02:59,080
Speaker 2: with any support groups.

60
00:02:59,120 --> 00:03:01,240
Speaker 3: We've tried to contact Autism andtee.

61
00:03:01,600 --> 00:03:05,560
Speaker 2: We haven't had any response back, but I'm sure they

62
00:03:05,600 --> 00:03:09,680
Speaker 2: will eventually get back to us. But no, yeah, there hasn't.

63
00:03:09,720 --> 00:03:12,960
Speaker 2: Actually I haven't personally been in touch with in support

64
00:03:12,960 --> 00:03:15,760
Speaker 2: groups or any type of organizations that do help you

65
00:03:15,800 --> 00:03:18,919
Speaker 2: along the way if you know you're stuck in limbo

66
00:03:19,080 --> 00:03:20,240
Speaker 2: like we are, yeap.

67
00:03:20,280 --> 00:03:22,440
Speaker 1: So what can we kind of do, I guess to

68
00:03:22,520 --> 00:03:24,640
Speaker 1: help this morning? Is it a situation where we can

69
00:03:24,680 --> 00:03:28,600
Speaker 1: maybe ask the Health minister next time she's on you know,

70
00:03:28,680 --> 00:03:32,239
Speaker 1: why it's taking so long for some families in the territory, why.

71
00:03:32,040 --> 00:03:34,880
Speaker 4: There are these delays? What can we do to try

72
00:03:34,880 --> 00:03:35,240
Speaker 4: and help?

73
00:03:35,280 --> 00:03:38,400
Speaker 2: Oh, definitely, definitely Katie, and you know, I do really

74
00:03:38,480 --> 00:03:42,040
Speaker 2: appreciate that, you know, just to make people aware of

75
00:03:42,080 --> 00:03:45,280
Speaker 2: what's happening, and also for the Health Minister to be aware.

76
00:03:45,400 --> 00:03:49,280
Speaker 2: You know, the government needs to support us as families

77
00:03:49,360 --> 00:03:53,080
Speaker 2: and also needs to support these organizations and private practices

78
00:03:53,480 --> 00:03:56,560
Speaker 2: who can't feel these positions for specialists. So what's happening is,

79
00:03:57,000 --> 00:04:00,360
Speaker 2: you know a lot of these private clinics cannot find

80
00:04:00,520 --> 00:04:03,600
Speaker 2: a psychologist for example, you're no te you know, a

81
00:04:03,800 --> 00:04:06,480
Speaker 2: speech pathologist. People are not coming up to Dawe to

82
00:04:06,560 --> 00:04:09,160
Speaker 2: work and I feel sorry for them as well because

83
00:04:09,440 --> 00:04:13,400
Speaker 2: they're also getting very frustrated and abused by people that

84
00:04:13,480 --> 00:04:16,320
Speaker 2: are trying to get in to see them. So you know,

85
00:04:16,440 --> 00:04:19,520
Speaker 2: something has to change. The government has to help, you know,

86
00:04:19,640 --> 00:04:22,479
Speaker 2: we can't. And the funny thing is to tell you that,

87
00:04:22,920 --> 00:04:26,520
Speaker 2: you know, if you go through the public system, so

88
00:04:27,520 --> 00:04:29,960
Speaker 2: you know, if you go and see the child Children's

89
00:04:30,000 --> 00:04:35,080
Speaker 2: Development Clinic, that's fine, you can access those services. They're

90
00:04:35,120 --> 00:04:37,520
Speaker 2: really good, you can see them regularly. As soon as

91
00:04:37,640 --> 00:04:42,320
Speaker 2: you have NDIS funding, you aren't able to attend those clinics.

92
00:04:42,640 --> 00:04:44,159
Speaker 3: So you know, what is the answer.

93
00:04:44,240 --> 00:04:48,120
Speaker 2: Is the answer not getting NDIS funding and just going.

94
00:04:47,839 --> 00:04:48,960
Speaker 3: Through the public system.

95
00:04:49,279 --> 00:04:52,719
Speaker 2: It's quite flawed really because you're damned if you're doing

96
00:04:52,760 --> 00:04:54,560
Speaker 2: you're damned if you don't. You're just trying to do

97
00:04:54,600 --> 00:04:57,840
Speaker 2: the best for your child and you can't say really, yeah, look,

98
00:04:57,960 --> 00:05:00,640
Speaker 2: you know, anything you could do to speak to the minister.

99
00:05:00,960 --> 00:05:02,560
Speaker 3: And also the more people that.

100
00:05:02,560 --> 00:05:05,200
Speaker 2: Speak up about it and.

101
00:05:04,720 --> 00:05:05,599
Speaker 3: Tell their stories.

102
00:05:05,760 --> 00:05:08,760
Speaker 2: I think you know, if we, you know, make some noise,

103
00:05:08,800 --> 00:05:09,640
Speaker 2: something could happen.

104
00:05:09,880 --> 00:05:13,320
Speaker 1: You are spot on and Jamie, what a bloody wonderful mum.

105
00:05:13,360 --> 00:05:15,720
Speaker 4: You are bringing it to the four for everybody case

106
00:05:15,839 --> 00:05:17,719
Speaker 4: as well, and you know, I.

107
00:05:18,320 --> 00:05:21,200
Speaker 1: Know it's so it's it's tough being a parent sometimes

108
00:05:21,240 --> 00:05:23,680
Speaker 1: as it is let alone when you're dealing with this

109
00:05:23,800 --> 00:05:26,000
Speaker 1: type of thing. So I really appreciate you coming on

110
00:05:26,000 --> 00:05:27,840
Speaker 1: this morning and telling us a bit more about it.

111
00:05:28,080 --> 00:05:30,119
Speaker 3: Thank you, Katie. I really appreciate your time.

112
00:05:30,560 --> 00:05:32,720
Speaker 1: Let's see what we can what we can do and

113
00:05:32,760 --> 00:05:34,479
Speaker 1: we will make sure that we raise this with the

114
00:05:34,480 --> 00:05:35,479
Speaker 1: Health minister as well.

115
00:05:35,560 --> 00:05:37,440
Speaker 4: Jamie. Thank you. We'll talk to you again soon.

116
00:05:37,520 --> 00:05:39,760
Speaker 3: Thank you, Katie. Have a lovely day you too.

117
00:05:39,920 --> 00:05:42,240
Speaker 1: By now, if you want to get in contact with

118
00:05:42,320 --> 00:05:45,200
Speaker 1: us on that topic, please do eight nine four one

119
00:05:45,440 --> 00:05:47,320
Speaker 1: one O four nine. If you don't want to speak

120
00:05:47,360 --> 00:05:49,480
Speaker 1: to us on air about it, that's okay as well.

121
00:05:49,520 --> 00:05:52,160
Speaker 1: You can send us a text message zero four one

122
00:05:52,240 --> 00:05:54,600
Speaker 1: eight nine five seven three six nine. You can even

123
00:05:54,640 --> 00:05:57,600
Speaker 1: send us an email if you'd like, three sixty at

124
00:05:57,600 --> 00:06:00,160
Speaker 1: Mix one O four nine dot com dot au because

125
00:06:00,160 --> 00:06:02,440
Speaker 1: I know that some people, you know, you might not

126
00:06:02,480 --> 00:06:05,680
Speaker 1: want to come on and get into the details about

127
00:06:05,720 --> 00:06:09,159
Speaker 1: the issues that you're going through with a similar situation.

128
00:06:09,279 --> 00:06:10,960
Speaker 1: But if you do want to email us, if you

129
00:06:11,000 --> 00:06:12,760
Speaker 1: need us to keep it anonymous, we can do that

130
00:06:12,800 --> 00:06:15,919
Speaker 1: as well. But you know, I think Jamie's she's brought

131
00:06:15,960 --> 00:06:19,440
Speaker 1: something to the forefront that's really important this morning, And

132
00:06:19,720 --> 00:06:21,800
Speaker 1: if you are in a similar situation or you want

133
00:06:21,839 --> 00:06:23,640
Speaker 1: to give us a bit further detail, we would love

134
00:06:23,680 --> 00:06:24,479
Speaker 1: to hear from you