WEBVTT - Life in a Cult and a Devastating Diagnosis  - Uncut with Megan Marx

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<v Speaker 1>Life Uncut acknowledges the traditional custodians of country whose lands

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<v Speaker 1>were never seated. We pay our respects to their elders

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<v Speaker 1>past and present.

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<v Speaker 2>Always was, always will be Aboriginal Land. This episode was

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<v Speaker 2>recorded on de rug Wallamuta Land. Hey guys, and welcome

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<v Speaker 2>back to another episode of Life Uncut. I'm Brittany, I'm Laura,

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<v Speaker 2>and today I feel like.

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<v Speaker 1>It's a very special interview. Now, I feel like we

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<v Speaker 1>do say that all the time, don't We're always like

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<v Speaker 1>this is super special, We're super pumped about this, but

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<v Speaker 1>it really is because we're interviewing a wonderful Australian woman

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<v Speaker 1>named Megan Marx. Now, Meghan is actually a friend of

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<v Speaker 1>mine because we did a TV show together the last year.

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<v Speaker 1>We did The Challenge Australia, which you may or may

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<v Speaker 1>not watch. Chances are you didn't watch it.

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<v Speaker 3>We're basically put.

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<v Speaker 1>In a house, Heather, how are the ratings on that one?

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<v Speaker 1>For it?

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<v Speaker 4>I don't even know. I didn't watch it.

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<v Speaker 1>It was like a Big Brother kind of house where

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<v Speaker 1>you like, you know, mix with survivor.

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<v Speaker 2>A little bit.

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<v Speaker 3>It was a weird thing.

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<v Speaker 1>But basically, for like a month, Meghan and I were

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<v Speaker 1>together in this house with no connection to the outside world,

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<v Speaker 1>you did know what was going on, very much like

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<v Speaker 1>The Bachelor, So we really got to know each other

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<v Speaker 1>on a deeper level there because you talk all day,

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<v Speaker 1>you genuinely are present with people in your life, which

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<v Speaker 1>was probably my favorite thing about it. No phones, no news,

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<v Speaker 1>no phone calls outside. But you also might know Megan

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<v Speaker 1>from our TV screens on another TV show, because she

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<v Speaker 1>was on Richie Strawn's season of The Bachelor, and she

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<v Speaker 1>was probably actually know she was. She was the first

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<v Speaker 1>bisexual woman that we saw on our screens. And if

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<v Speaker 1>you remember that time, if all of you at home,

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<v Speaker 1>know what I'm talking about, Because Meghan left the show

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<v Speaker 1>and she ended up being in a relationship with another

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<v Speaker 1>female contestant afterwards, the scrutiny that she faced around that

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<v Speaker 1>time and the public backlash was truly horrific.

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<v Speaker 2>Well, Megan ended up in a relationship with Tiffany, who

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<v Speaker 2>was also a contestant on Richie's scene, and I think

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<v Speaker 2>there was so much speculation as to whether it was

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<v Speaker 2>a real relationship, as to whether it was just for publicity,

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<v Speaker 2>Like people honestly couldn't fathom or get the head around

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<v Speaker 2>the fact that these two women were together, and also

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<v Speaker 2>it was just like the point of gossip within media

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<v Speaker 2>for so long, and I think the way in which

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<v Speaker 2>a bisexual relationship was viewed then is so vastly different

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<v Speaker 2>to how it is viewed now on reality TV. But

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<v Speaker 2>I mean, I have to admit when brit said that

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<v Speaker 2>she really wanted to interview Megan and her story, which

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<v Speaker 2>it is incredible. Her story from the time that she

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<v Speaker 2>was born and to where she's at now is an

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<v Speaker 2>incredible life story. I had my own biases around it

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<v Speaker 2>because I didn't know Megan apart from watching The Bachelor myself,

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<v Speaker 2>and so I had this perceived idea around who she was.

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<v Speaker 2>I wasn't sure as to whether I wanted to do

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<v Speaker 2>the interview, and Britt, you very much sort of said that,

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<v Speaker 2>I mean, you had a personal relationship with her, but

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<v Speaker 2>you really spoke about her experience, what she grew up

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<v Speaker 2>in as a child. She grew up in a cult.

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<v Speaker 2>It is fascinating, but also it really makes you question

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<v Speaker 2>this idea of judging a book by its cover. And

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<v Speaker 2>I am so grateful that I got the opportunity to

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<v Speaker 2>interview her. She's incredible, the things that she's been through

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<v Speaker 2>and also her resilience is something that shines through in

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<v Speaker 2>this episode and I'm so.

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<v Speaker 1>Glad that you listen to me on that aspect, Laura.

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<v Speaker 1>But apart from just you know her truly incredible story,

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<v Speaker 1>which does involve growing up in a cult, it does

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<v Speaker 1>involve getting married at the age of eighteen and then

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<v Speaker 1>getting divorced again.

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<v Speaker 4>Going on these TV shows.

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<v Speaker 1>She gives a really fascinating insight into what that life

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<v Speaker 1>looks like. But there's another layer to her story and

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<v Speaker 1>it was what really drove me to do this interview.

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<v Speaker 1>So Megan has recently been diagnosed with a neurological condition

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<v Speaker 1>called spino cerebella a taxia, and we are going to

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<v Speaker 1>speak about it, so I'm not going to get too

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<v Speaker 1>much into it, but it's basically a condition where she

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<v Speaker 1>is going to deteriorate and she doesn't know how quickly.

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<v Speaker 1>And this idea of knowing your mortality but not knowing

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<v Speaker 1>when and not knowing how fast it's coming. And I

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<v Speaker 1>guess I felt like I had this little connection because

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<v Speaker 1>she started to notice some symptoms when we're in the

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<v Speaker 1>house together for this TV show, So she didn't have

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<v Speaker 1>that diagnosis then, but there are a lot of little

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<v Speaker 1>things that we would laugh about, and now it's horrible

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<v Speaker 1>that we laughed about it, but you know, her balance

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<v Speaker 1>would be off on a lot of activities and things

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<v Speaker 1>like that, and different memory and she couldn't find a

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<v Speaker 1>word sometimes and it wasn't enough to be alarming at all,

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<v Speaker 1>which is why we would laugh about it. And that

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<v Speaker 1>turns out the start of this condition, and I really

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<v Speaker 1>wanted to give Megan the space to talk about that

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<v Speaker 1>and educate people on what.

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<v Speaker 4>She's going through.

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<v Speaker 2>Yeah, and I guess the other thing that we touched on,

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<v Speaker 2>Like we said, there's so much, but Meghan also very

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<v Speaker 2>generously donated her eggs to a couple to have a baby.

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<v Speaker 2>And so when you found out that you have a

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<v Speaker 2>genetic condition, and it is a terminal genetic condition in

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<v Speaker 2>the long run, how do you then grasp with the

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<v Speaker 2>fact that this generous, active kindness that you did where

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<v Speaker 2>you gave your eggs to someone could also then have

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<v Speaker 2>implications for them as well.

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<v Speaker 3>There's so much of this.

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<v Speaker 2>We hope that you enjoy the episode, and it truly

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<v Speaker 2>was such a privilege to interview Megan.

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<v Speaker 4>Welcome officially to life on cut Nah.

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<v Speaker 3>Thank you for having me.

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<v Speaker 2>You have had so many pivotal and interesting things happening

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<v Speaker 2>in your life over the last little bit, so many

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<v Speaker 2>of them which we're gonna unpack and get into. But

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<v Speaker 2>before we get into any of the serious stuff, we

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<v Speaker 2>start every episode in the same way, and that is,

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<v Speaker 2>without accidentally unfilled. The story is your most embarrassing story,

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<v Speaker 2>which you just said, you have a good one. You're like,

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<v Speaker 2>I have some money, but I picked up the one

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<v Speaker 2>that is possibly the most humiliating.

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<v Speaker 3>I was actually thinking back recently to when I first

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<v Speaker 3>started dating after my divorce, and I had come out

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<v Speaker 3>of kind of like a semi cult at the time,

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<v Speaker 3>and so I'd moved to the city, and like I

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<v Speaker 3>was studying full time, working full time, I didn't know

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<v Speaker 3>anyone because I had no social circle because I was

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<v Speaker 3>sort of excommunicated from the church and I'm single. I

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<v Speaker 3>start dating, and I started going to this yoga studio,

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<v Speaker 3>which I wasn't allowed to do in the church either.

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<v Speaker 3>Yoga yoga was the devil. And this really hot guy

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<v Speaker 3>comes up next to me and like, you know, he's

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<v Speaker 3>doing yoga, doing all the moves next to me, and

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<v Speaker 3>I'm like, oh, this is great, and he starts chatting

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<v Speaker 3>to me, and he's like, hey, do you want to

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<v Speaker 3>just like come to a work event with me? And

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<v Speaker 3>I'm like, oh, I don't know anyone here. It's a

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<v Speaker 3>bit weird, like going as a date to a work event.

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<v Speaker 3>But yeah, like, oh yeah, sure, why not? I was

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<v Speaker 3>in my yes era. So I get dressed up, like

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<v Speaker 3>I put makeup on, and I'm like feeling all nervous

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<v Speaker 3>going going with this hot guy to this work event

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<v Speaker 3>where I don't know anyone anyway. So I walk in

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<v Speaker 3>and there's like people on stage clapping and I'm like,

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<v Speaker 3>oh my gosh and singing and like all wearing suits,

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<v Speaker 3>and I'm like, I've just entered into another you know,

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<v Speaker 3>this is a church event? I think, is this what

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<v Speaker 3>work is for? Is he a past daisy? A preacher?

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<v Speaker 3>And I walk in the first thing he does is

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<v Speaker 3>introduce me to his girlfriend, and I'm like, what the fuck.

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<v Speaker 2>Is going on?

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<v Speaker 3>And I realized it's one of those multi level marketing schemes,

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<v Speaker 3>like a pyramid. It's a pyramid scheme. So I've come

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<v Speaker 3>along thinking that I'm going on a hot date and

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<v Speaker 3>he's introduced me to his girlfriend and I'm like, how

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<v Speaker 3>am I going to get out of this, and what

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<v Speaker 3>do you know, another girl ends up coming thinking she's

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<v Speaker 3>also his date, and we're standing there, me, this guy,

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<v Speaker 3>his girlfriend, and me and the girl end up just

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<v Speaker 3>leaving on our own. But it was pretty kind of

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<v Speaker 3>embarrassing for me thinking I was like, this is gonna

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<v Speaker 3>be my first date after my divorce, and.

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<v Speaker 2>It was a pyramid shame he signed up to cannot

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<v Speaker 2>possibly be an effective way of signing up people, because like,

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<v Speaker 2>if everyone's arriving thinking that they're on a date, who

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<v Speaker 2>is signing up to be part of this pyramid scheme?

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<v Speaker 3>Well, it was like him and his girlfriend knew what

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<v Speaker 3>was going on too, Like his girlfriend was like, you know,

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<v Speaker 3>like trying to get sign ups through a hot boyfriend.

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<v Speaker 1>Well you're more life you to get the sign ups.

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<v Speaker 1>If you're a smoke show, for sure, whatever, I'll do it.

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<v Speaker 2>Nigan, you just mentioned, and we've only been speaking for

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<v Speaker 2>like a couple of minutes, that you grew up as

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<v Speaker 2>a kid and you came out of this olt like environment.

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<v Speaker 2>Can you explain to us what that was, what your

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<v Speaker 2>upbringing was like, and how you kind of slotted into

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<v Speaker 2>this life.

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<v Speaker 3>Well, I was born into it, so my mom joined

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<v Speaker 3>when she was pregnant with me, and she met a

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<v Speaker 3>man who eventually adopted me and became my father. So

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<v Speaker 3>it was more like, I don't know if i'd go

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<v Speaker 3>so far as to call it a cult. I mean,

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<v Speaker 3>sixty minutes recently did an episode about what I was

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<v Speaker 3>brought up in. Actually, it was very much like, you're

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<v Speaker 3>sort of cut off from society a bit. So you're

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<v Speaker 3>not allowed to watch movies, you're not low to listen

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<v Speaker 3>to what they'd call secular music, you're not a low

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<v Speaker 3>to dance, you know, all how to spend time with

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<v Speaker 3>people that aren't part of the church. You know, you're

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<v Speaker 3>not all travel unless it's for if you think of

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<v Speaker 3>like the Westboro Baptist Church, if you've heard of them,

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<v Speaker 3>they carry signs on the streets, you know, saying like

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<v Speaker 3>gays are going to Hell and things like that. So

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<v Speaker 3>as a kid, that was me carrying signs on the

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<v Speaker 3>street and like preaching on the street and door knocking,

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<v Speaker 3>the whole thing. And so I got married when I

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<v Speaker 3>was eighteen, you know, to a guy from the church,

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<v Speaker 3>and it was just, I don't know, it was different

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<v Speaker 3>to the way most people are brought up. And I

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<v Speaker 3>left when I was twenty four, so me and my

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<v Speaker 3>husband left together, but our relationship didn't really last six months.

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<v Speaker 1>I mean, I remember when you were talking a lot

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<v Speaker 1>to me about this in the house, and when I

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<v Speaker 1>say the house, it's the TV show The Challenge where

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<v Speaker 1>it's like it's like The Bachelor or anything else. You

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<v Speaker 1>don't have phones in there, you don't have anything, so

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<v Speaker 1>you just talk to each other, which I think is incredible.

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<v Speaker 1>But everything you told me from your life was like

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<v Speaker 1>an oh my God moment to me because I'm so

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<v Speaker 1>far removed from that world. I didn't grow up in

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<v Speaker 1>a church. I didn't up religious at all, so everything

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<v Speaker 1>felt extreme. But I don't think it's just for me.

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<v Speaker 1>It does sound like your upbringing the church was extreme

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<v Speaker 1>compared to other people's experience in the church. Can you

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<v Speaker 1>talk about some of the other things that were really

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<v Speaker 1>kind of left field, Like, you know, you couldn't even

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<v Speaker 1>do yoga, you couldn't watch TV. What was some other

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<v Speaker 1>things that were real stand out to you.

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<v Speaker 3>Ah, it's funny because these things, you know, they've only

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<v Speaker 3>really come up for me in the last couple of

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<v Speaker 3>years because you're so used to you know, it was

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<v Speaker 3>just my life, you know, it was felt so normal

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<v Speaker 3>to me. But I was talking. When the sixty minutes

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<v Speaker 3>episode came out, I reconnected with a lot of people

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<v Speaker 3>from my church, you know, people I grew up with.

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<v Speaker 3>And our church was kind of like half underground with

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<v Speaker 3>all these different rooms. And I remember when I was

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<v Speaker 3>a kid, for Halloween, every year the church would hold

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<v Speaker 3>a Halloween event, so all these different rooms they would

0:10:36.040 --> 0:10:40.680
<v Speaker 3>have a different scene. So, for example, I remember my

0:10:40.840 --> 0:10:44.520
<v Speaker 3>mum playing a car accident victim, so they had like

0:10:45.240 --> 0:10:47.080
<v Speaker 3>the hood of a car and then she was like

0:10:47.160 --> 0:10:50.000
<v Speaker 3>sprawled out on top with like blood all over her.

0:10:50.440 --> 0:10:53.080
<v Speaker 3>So they would invite people to come in and go

0:10:53.120 --> 0:10:55.080
<v Speaker 3>into these different rooms and it would be more about

0:10:55.440 --> 0:10:57.200
<v Speaker 3>this is how you're going to end up if you

0:10:57.240 --> 0:11:00.400
<v Speaker 3>don't get saved by Jesus kind of thing. I remember

0:11:00.440 --> 0:11:05.360
<v Speaker 3>my friend playing an aborted baby, and my husband as

0:11:05.400 --> 0:11:08.040
<v Speaker 3>a kid, he had nightmares because he was sort of

0:11:08.080 --> 0:11:11.000
<v Speaker 3>forced to participate, or maybe not forced. I mean we

0:11:11.040 --> 0:11:13.280
<v Speaker 3>all wanted to be involved, you know. It was like

0:11:13.400 --> 0:11:16.920
<v Speaker 3>you want to impress the elders and your parents and everyone,

0:11:17.200 --> 0:11:19.000
<v Speaker 3>but it was quite traumatic. So we weren't allowed to

0:11:19.000 --> 0:11:23.360
<v Speaker 3>watch movies, but they did let us watch from you know,

0:11:24.080 --> 0:11:26.240
<v Speaker 3>there was no age. It wasn't like you had to

0:11:26.240 --> 0:11:28.360
<v Speaker 3>be a certain age to watch these films. But they

0:11:28.480 --> 0:11:33.240
<v Speaker 3>had these films more about the rapture. And I don't

0:11:33.280 --> 0:11:34.920
<v Speaker 3>know if you know what the rapture is, like the

0:11:35.040 --> 0:11:38.480
<v Speaker 3>end of days? I don't, yeah, like the end of days.

0:11:38.520 --> 0:11:40.480
<v Speaker 3>So we'd watch these movies about the end of days.

0:11:40.520 --> 0:11:43.800
<v Speaker 3>And so the idea is that God comes at the

0:11:43.880 --> 0:11:47.199
<v Speaker 3>end of days and takes the bodies of everyone that

0:11:48.000 --> 0:11:51.880
<v Speaker 3>Jesus has accepted, and everyone else is left behind. So

0:11:52.240 --> 0:11:55.640
<v Speaker 3>for example, you would get home, say your parents wouldn't

0:11:55.679 --> 0:11:57.960
<v Speaker 3>be there, or there'd be a parlor clothes on the

0:11:58.320 --> 0:12:00.760
<v Speaker 3>floor because their bodies have been take up to heaven.

0:12:01.320 --> 0:12:03.520
<v Speaker 3>And so it was always this big fear as kids

0:12:03.520 --> 0:12:05.240
<v Speaker 3>that you would be left behind. If we used to

0:12:05.240 --> 0:12:07.559
<v Speaker 3>prank each other, you leave piles of clothes and hide

0:12:07.679 --> 0:12:10.839
<v Speaker 3>for your friends, you know, and your friend would get

0:12:10.880 --> 0:12:13.280
<v Speaker 3>back and be like, oh my god. I remember a

0:12:13.320 --> 0:12:16.920
<v Speaker 3>few situations, you know, kids freaking out and absolutely losing

0:12:16.920 --> 0:12:19.120
<v Speaker 3>it because they thought they'd be left behind. And if

0:12:19.160 --> 0:12:21.920
<v Speaker 3>you get left behind, the only thing that you can

0:12:21.920 --> 0:12:24.319
<v Speaker 3>do is be a martyr in order to get to heaven.

0:12:25.040 --> 0:12:27.760
<v Speaker 3>So the films would be about heads being chopped off

0:12:27.800 --> 0:12:31.480
<v Speaker 3>and women being pulled screaming through streets and and so

0:12:32.600 --> 0:12:35.800
<v Speaker 3>you know, you're not really desensitized to film, but these

0:12:35.800 --> 0:12:37.560
<v Speaker 3>are the kind of films that you're watching. So as

0:12:37.600 --> 0:12:40.840
<v Speaker 3>a kid, I had a lot of sleep issues. You know,

0:12:40.960 --> 0:12:43.000
<v Speaker 3>there were exorcisms in the church, and they didn't call

0:12:43.040 --> 0:12:47.080
<v Speaker 3>them exoricisms, but it was casting the demons out, so

0:12:47.800 --> 0:12:50.679
<v Speaker 3>you know, we all had our chance to be exercised,

0:12:51.880 --> 0:12:54.640
<v Speaker 3>that's what you call it. So, yeah, it's interesting. And

0:12:54.679 --> 0:12:57.840
<v Speaker 3>I didn't think that I had, you know, issues from

0:12:58.160 --> 0:12:59.960
<v Speaker 3>growing up in the church when I left, because you

0:13:00.080 --> 0:13:03.320
<v Speaker 3>really just want to put it aside and distract yourself

0:13:03.440 --> 0:13:06.520
<v Speaker 3>and live your life. Finally, you know, I hadn't traveled,

0:13:07.160 --> 0:13:09.040
<v Speaker 3>I hadn't dated, I hadn't you know, I lost my

0:13:09.120 --> 0:13:11.960
<v Speaker 3>virginity or my wedding night. It was, yeah, it's a

0:13:11.960 --> 0:13:14.880
<v Speaker 3>different world. And then it's not till you get outside

0:13:14.920 --> 0:13:17.360
<v Speaker 3>of that you're like, wow, there's a whole life to

0:13:17.400 --> 0:13:18.000
<v Speaker 3>be lived here.

0:13:18.240 --> 0:13:22.280
<v Speaker 2>When you got married at nineteen, eighteen eighteen, when you

0:13:22.280 --> 0:13:23.839
<v Speaker 2>got married at eighteen.

0:13:24.320 --> 0:13:27.200
<v Speaker 3>Stupid, don't recommend it, no, I mean.

0:13:27.760 --> 0:13:30.200
<v Speaker 2>Like, I can't even relate to the environment in which

0:13:30.200 --> 0:13:31.520
<v Speaker 2>you grew up in but I used to be part

0:13:31.559 --> 0:13:34.800
<v Speaker 2>of an evangelical Christian church and they were very very

0:13:35.360 --> 0:13:38.240
<v Speaker 2>strong in encouraging people to marry young so that they

0:13:38.240 --> 0:13:40.960
<v Speaker 2>didn't sin, so that they didn't have sex out of wedlock.

0:13:41.200 --> 0:13:43.120
<v Speaker 2>There was a huge encouragement. And I would have been

0:13:43.280 --> 0:13:45.480
<v Speaker 2>fifteen sixteen at the time, and there were people who

0:13:45.480 --> 0:13:47.839
<v Speaker 2>were eighteen who were getting married. And did you feel

0:13:47.840 --> 0:13:50.600
<v Speaker 2>as though that was the natural progression of your relationship

0:13:50.640 --> 0:13:53.040
<v Speaker 2>with your husband at the time, or did you feel

0:13:53.040 --> 0:13:55.280
<v Speaker 2>as though it was forced in an expectation of the

0:13:55.360 --> 0:13:56.880
<v Speaker 2>church that you would get married so young.

0:13:57.320 --> 0:13:59.680
<v Speaker 3>It was definitely like I was in love. He was like,

0:13:59.720 --> 0:14:03.600
<v Speaker 3>my fat He's an amazing person, Like he's great, he's

0:14:03.640 --> 0:14:07.160
<v Speaker 3>you know, good looking, smart, surfer kind of guy. He's great.

0:14:07.400 --> 0:14:10.080
<v Speaker 3>So it wasn't that it was like I was forced

0:14:10.720 --> 0:14:14.440
<v Speaker 3>into marrying someone. It was like, you know, we fell

0:14:14.440 --> 0:14:17.280
<v Speaker 3>in love. But it was very much like you can't

0:14:17.280 --> 0:14:19.920
<v Speaker 3>have sex until you get married. It was kind of like, oh, well,

0:14:19.960 --> 0:14:22.840
<v Speaker 3>I guess we have to get married, you know, because

0:14:22.880 --> 0:14:23.440
<v Speaker 3>we're horny.

0:14:23.560 --> 0:14:23.760
<v Speaker 1>Yeah.

0:14:23.800 --> 0:14:25.960
<v Speaker 3>I mean we wouldn't have gotten married if if it

0:14:26.000 --> 0:14:28.360
<v Speaker 3>wasn't expected of us. We would have dated like normal

0:14:28.400 --> 0:14:31.120
<v Speaker 3>people and maybe in our twenties at some point got

0:14:31.200 --> 0:14:34.920
<v Speaker 3>married or but yeah, it was I guess it was expected.

0:14:34.960 --> 0:14:37.479
<v Speaker 3>And it was also if you wanted to be in ministry,

0:14:37.880 --> 0:14:41.040
<v Speaker 3>which my husband wanted to be what they call sent out,

0:14:41.120 --> 0:14:43.280
<v Speaker 3>so you become like a pastor and you become the

0:14:43.280 --> 0:14:46.320
<v Speaker 3>pastor's wife, you have to be married. So it was

0:14:46.480 --> 0:14:50.160
<v Speaker 3>just what was done. I remember I was a bridesmaid

0:14:50.200 --> 0:14:52.400
<v Speaker 3>five times by the time I was nineteen.

0:14:52.760 --> 0:14:53.280
<v Speaker 4>Wow.

0:14:53.440 --> 0:14:55.640
<v Speaker 3>And the wedding was it wasn't your own. You got

0:14:55.720 --> 0:14:58.960
<v Speaker 3>married in the middle of a church service, so it

0:14:59.000 --> 0:15:01.280
<v Speaker 3>wasn't like you had your own day either. I remember

0:15:01.480 --> 0:15:04.160
<v Speaker 3>hating my wedding day so much. I'd invited a few

0:15:04.160 --> 0:15:09.560
<v Speaker 3>people from my work and it was basically the sermon

0:15:10.280 --> 0:15:13.040
<v Speaker 3>was just about hell. It was about sinning and hell

0:15:13.520 --> 0:15:16.040
<v Speaker 3>and this pastors screaming at all my work colleagues, and

0:15:16.080 --> 0:15:19.400
<v Speaker 3>it was I remember feeling really embarrassed and also a

0:15:19.400 --> 0:15:23.720
<v Speaker 3>bit like should I you know, is this the right idea?

0:15:24.160 --> 0:15:27.040
<v Speaker 3>My best friend at the time wasn't part of the church,

0:15:27.120 --> 0:15:29.400
<v Speaker 3>and she was one of my bridesmaids, which wasn't looked

0:15:29.480 --> 0:15:33.160
<v Speaker 3>upon well, and I remember her being like, come on,

0:15:33.240 --> 0:15:34.400
<v Speaker 3>let's just fucking run.

0:15:34.560 --> 0:15:35.520
<v Speaker 2>Let's just go.

0:15:36.960 --> 0:15:38.960
<v Speaker 3>To being a little bit tempting, but I you know,

0:15:39.040 --> 0:15:42.080
<v Speaker 3>I loved I loved who I was marrying, and that

0:15:42.160 --> 0:15:43.480
<v Speaker 3>was the most important thing at the time.

0:15:44.880 --> 0:15:48.280
<v Speaker 1>In twenty sixteen, Australia met you on Richie Strawn's season

0:15:48.280 --> 0:15:50.120
<v Speaker 1>of The Bachelor, So that was I think, I guess

0:15:50.120 --> 0:15:52.200
<v Speaker 1>seven years ago. I can't do math quickly seven years ago.

0:15:52.640 --> 0:15:54.960
<v Speaker 1>And what we did see, which I think is the

0:15:55.000 --> 0:15:58.520
<v Speaker 1>first representation really that I can think of on TV

0:15:58.640 --> 0:16:02.479
<v Speaker 1>of bisexuality, was you left that season with another female contestant.

0:16:02.840 --> 0:16:04.800
<v Speaker 1>I do want to talk about what that time was like,

0:16:04.920 --> 0:16:07.160
<v Speaker 1>but I want to take that back first to when

0:16:07.240 --> 0:16:09.560
<v Speaker 1>you were a teenager or growing up and you were

0:16:09.600 --> 0:16:13.680
<v Speaker 1>still in the church. Did you know that you were

0:16:13.680 --> 0:16:15.720
<v Speaker 1>bisexual at that time and it was something you had

0:16:15.760 --> 0:16:17.920
<v Speaker 1>to hide because I guess you were going to hell?

0:16:18.480 --> 0:16:21.880
<v Speaker 1>Or is that something that you didn't even let yourself explore.

0:16:22.440 --> 0:16:25.800
<v Speaker 3>My first few kisses were with girls in the church,

0:16:25.880 --> 0:16:27.520
<v Speaker 3>and part of me is like, how did I get

0:16:27.520 --> 0:16:29.880
<v Speaker 3>them to kiss me? It was like it was preached

0:16:29.920 --> 0:16:33.600
<v Speaker 3>so much that, you know, homosexuality was a sin. So

0:16:34.160 --> 0:16:38.480
<v Speaker 3>I definitely had that deep seated shame not just about

0:16:39.040 --> 0:16:42.080
<v Speaker 3>liking girls, but about the facts that I'd followed through

0:16:42.160 --> 0:16:45.480
<v Speaker 3>with some things, and it was very much hidden, like

0:16:45.640 --> 0:16:48.360
<v Speaker 3>no one knew. You didn't tell anyone. So I knew

0:16:48.480 --> 0:16:51.520
<v Speaker 3>growing up that I was attracted to women, but when

0:16:51.520 --> 0:16:54.240
<v Speaker 3>I married Chris, I was all about him, so it

0:16:54.280 --> 0:16:57.520
<v Speaker 3>wasn't really in my mind until we split up and

0:16:57.560 --> 0:17:01.520
<v Speaker 3>then I started dating women. But it was hard in

0:17:01.560 --> 0:17:04.439
<v Speaker 3>the way of you know, I think one of the

0:17:04.440 --> 0:17:10.760
<v Speaker 3>worst effects from being part of such a fundamentalist church,

0:17:11.040 --> 0:17:13.439
<v Speaker 3>if you could call it that, is the sort of

0:17:13.440 --> 0:17:16.000
<v Speaker 3>shame and guilt that carries on that has been about

0:17:16.000 --> 0:17:18.480
<v Speaker 3>my sexuality and about other things too, Like someone will

0:17:18.520 --> 0:17:20.840
<v Speaker 3>cut me off in traffic. I mean, I'll cut someone

0:17:20.840 --> 0:17:22.640
<v Speaker 3>off in traffic, and I'll think about it all week.

0:17:23.080 --> 0:17:25.640
<v Speaker 3>I'm useless. I shouldn't have done that, And you know,

0:17:25.800 --> 0:17:29.159
<v Speaker 3>just this shame and guilt that sort of stays with

0:17:29.200 --> 0:17:31.840
<v Speaker 3>you and you try and attach it to things even

0:17:31.880 --> 0:17:35.359
<v Speaker 3>if you've done nothing wrong. And I certainly felt that

0:17:35.480 --> 0:17:38.680
<v Speaker 3>about my sexuality, but you know, it gets better with time.

0:17:39.240 --> 0:17:42.640
<v Speaker 2>How do you come to a decision to leave an

0:17:42.640 --> 0:17:45.679
<v Speaker 2>institution like the church that you're involved in when so

0:17:45.840 --> 0:17:48.639
<v Speaker 2>much of your life, your identity, your belief system is

0:17:48.640 --> 0:17:50.800
<v Speaker 2>wrapped up in it. What changed for you and what

0:17:50.840 --> 0:17:52.600
<v Speaker 2>was the catalyst that made you want to leave.

0:17:53.200 --> 0:17:55.919
<v Speaker 3>I had wanted to leave for a while. It was

0:17:55.920 --> 0:17:57.920
<v Speaker 3>actually my wedding day. That was one of the first

0:17:57.960 --> 0:18:00.439
<v Speaker 3>things that I was like, this doesn't feel right. It

0:18:00.520 --> 0:18:03.240
<v Speaker 3>was so controlled, you know, it was like meant to

0:18:03.280 --> 0:18:05.960
<v Speaker 3>be your one day, especially as part of the church,

0:18:06.040 --> 0:18:08.240
<v Speaker 3>because you're not allowed to do much, so it's meant

0:18:08.280 --> 0:18:10.439
<v Speaker 3>to be your one day where you can it's about

0:18:10.480 --> 0:18:12.639
<v Speaker 3>you and you can enjoy yourself. And it just it

0:18:12.720 --> 0:18:14.960
<v Speaker 3>wasn't like that at all, and there were just so

0:18:15.040 --> 0:18:18.760
<v Speaker 3>many rules, and I had a lot of questions. You know,

0:18:18.800 --> 0:18:22.800
<v Speaker 3>I've always had a lot of questions, and you start

0:18:22.800 --> 0:18:25.560
<v Speaker 3>to be seen as what they'd call a Jezebel for

0:18:25.640 --> 0:18:29.359
<v Speaker 3>having questions, and you start to get socially excluded. There

0:18:29.359 --> 0:18:31.240
<v Speaker 3>were a lot of things that didn't add up for

0:18:31.280 --> 0:18:34.600
<v Speaker 3>me personally in the Bible. So I'd wanted to leave

0:18:34.600 --> 0:18:36.440
<v Speaker 3>for a while, and I'd sort of brought these things

0:18:36.520 --> 0:18:38.720
<v Speaker 3>up with my partner because I still wanted to be

0:18:38.800 --> 0:18:42.640
<v Speaker 3>with him, and he was kind of like, no, you've

0:18:42.640 --> 0:18:45.040
<v Speaker 3>got to pray about it. You've got to pray and fast.

0:18:45.080 --> 0:18:47.399
<v Speaker 3>What they'd say, you'd fast for three days and pray

0:18:48.000 --> 0:18:49.399
<v Speaker 3>and then God would listen to you and give you

0:18:49.440 --> 0:18:51.280
<v Speaker 3>the answers. And I was trying all these things, but

0:18:51.359 --> 0:18:53.399
<v Speaker 3>nothing was happening. So I'd wanted to leave for a

0:18:53.400 --> 0:18:57.000
<v Speaker 3>really long time. And then one day my husband said

0:18:57.040 --> 0:19:01.000
<v Speaker 3>to me, hey, like, I've got to tell you something like, oh, okay,

0:19:01.200 --> 0:19:03.439
<v Speaker 3>and he's like, I don't believe in any of this anymore.

0:19:03.440 --> 0:19:05.720
<v Speaker 3>I want to leave, And I was like, sweet, that's it.

0:19:05.920 --> 0:19:09.880
<v Speaker 3>He struggled a lot because his sister had died of cancer,

0:19:10.359 --> 0:19:13.560
<v Speaker 3>and so she'd been married like six weeks or something

0:19:13.560 --> 0:19:15.600
<v Speaker 3>when she died. We're all part of this church, and

0:19:16.080 --> 0:19:19.240
<v Speaker 3>he always believed that she would get healed, that God

0:19:19.240 --> 0:19:21.679
<v Speaker 3>would heal her and she would be okay. And she

0:19:21.720 --> 0:19:26.000
<v Speaker 3>had a severe liver cancer, which is pretty bad. She died,

0:19:26.080 --> 0:19:29.040
<v Speaker 3>and he always I think he carried a little bit

0:19:29.080 --> 0:19:31.800
<v Speaker 3>of guilt for not spending more time with her because

0:19:31.840 --> 0:19:33.960
<v Speaker 3>she thought she would always be around, Like, you really

0:19:33.960 --> 0:19:34.960
<v Speaker 3>believe this stuff.

0:19:35.000 --> 0:19:39.040
<v Speaker 1>You know, you've done everything right by the church do

0:19:39.280 --> 0:19:41.800
<v Speaker 1>so why wouldn't she survive? From what them was saying.

0:19:41.600 --> 0:19:43.880
<v Speaker 3>Exactly, And so I think he carried a lot of

0:19:44.080 --> 0:19:45.800
<v Speaker 3>you know, pain about that, and it was just a

0:19:45.840 --> 0:19:49.199
<v Speaker 3>slow progression. And maybe it's also like you're young and

0:19:49.240 --> 0:19:52.359
<v Speaker 3>you're looking out of the church and seeing people do

0:19:52.480 --> 0:19:56.040
<v Speaker 3>these amazing things, and you're so you know, you're spending

0:19:56.080 --> 0:19:59.320
<v Speaker 3>your saturdays down the street preaching and door knocking, and

0:19:59.400 --> 0:20:01.760
<v Speaker 3>like we literally he had events on every morning and

0:20:01.800 --> 0:20:04.880
<v Speaker 3>every night, so before work and then like after work

0:20:04.920 --> 0:20:07.320
<v Speaker 3>it'd be a Bible study or a concert, or you'd

0:20:07.359 --> 0:20:10.760
<v Speaker 3>be door knocking or street preaching or whatever it was.

0:20:10.840 --> 0:20:12.520
<v Speaker 3>And it was like your whole life is taken up

0:20:12.520 --> 0:20:14.840
<v Speaker 3>by it. And I think, I don't It's funny because

0:20:14.840 --> 0:20:17.000
<v Speaker 3>I don't feel like I've really talked. We didn't really

0:20:17.080 --> 0:20:19.640
<v Speaker 3>talk that much about it, about the reasons for leaving.

0:20:19.680 --> 0:20:21.600
<v Speaker 3>It was just like he didn't believe anymore, and I'd

0:20:21.640 --> 0:20:23.159
<v Speaker 3>wanted to leave for a long time, and it was

0:20:23.200 --> 0:20:25.920
<v Speaker 3>just like we did. But a big problem that people

0:20:25.960 --> 0:20:28.159
<v Speaker 3>have when they leave the church is a lot of

0:20:28.200 --> 0:20:33.480
<v Speaker 3>people end up it sounds wild, but becoming drug addicts

0:20:33.480 --> 0:20:36.760
<v Speaker 3>and alcoholics and really messing their lives up because you

0:20:36.800 --> 0:20:40.040
<v Speaker 3>have no sense of what morality is. You know, you

0:20:40.119 --> 0:20:43.600
<v Speaker 3>have to redefine that, and it's very easy to leave

0:20:43.640 --> 0:20:45.760
<v Speaker 3>the church and kind of go off the rails, and

0:20:45.800 --> 0:20:47.399
<v Speaker 3>I'm sure a lot of people would think that about me.

0:20:48.119 --> 0:20:48.359
<v Speaker 2>You know.

0:20:48.520 --> 0:20:50.520
<v Speaker 3>I left and it was like, well, I've never drunk

0:20:50.560 --> 0:20:54.520
<v Speaker 3>alcohol before, you know, and you don't know where the

0:20:54.560 --> 0:20:57.320
<v Speaker 3>limits are, and you've had no one teach you the limits.

0:20:57.960 --> 0:21:02.640
<v Speaker 3>You know, celibacy is taught not safe sex for example. Yeah,

0:21:02.680 --> 0:21:07.040
<v Speaker 3>it was definitely hard. And Chris and I both dealt

0:21:07.040 --> 0:21:10.040
<v Speaker 3>with being in the world differently. For me, I wanted

0:21:10.080 --> 0:21:12.800
<v Speaker 3>to travel. I just got a promotion at work, which

0:21:12.800 --> 0:21:15.399
<v Speaker 3>meant I was able to move. And for him, I

0:21:15.440 --> 0:21:17.320
<v Speaker 3>think he is not like that now, but at the

0:21:17.359 --> 0:21:19.119
<v Speaker 3>time he was like, well, I want to party and

0:21:19.160 --> 0:21:21.240
<v Speaker 3>I want to meet people and I want to you know,

0:21:21.280 --> 0:21:23.880
<v Speaker 3>which is understandable. And I eventually got to that stage too.

0:21:24.000 --> 0:21:27.119
<v Speaker 3>But it's yeah, it's hard. It's like, morally, where do

0:21:27.200 --> 0:21:29.520
<v Speaker 3>I stand, Like, I don't have a God telling me

0:21:29.560 --> 0:21:31.359
<v Speaker 3>what to do or a church telling me what to do.

0:21:31.400 --> 0:21:33.040
<v Speaker 3>I have to make these decisions on my own.

0:21:33.640 --> 0:21:34.240
<v Speaker 4>How did the.

0:21:34.200 --> 0:21:36.960
<v Speaker 2>People around you respond when you decided to separate.

0:21:37.720 --> 0:21:40.159
<v Speaker 3>I didn't really have anyone around me. I know that

0:21:40.200 --> 0:21:43.600
<v Speaker 3>sounds strange, but well, we had left the church and

0:21:44.160 --> 0:21:47.120
<v Speaker 3>I didn't have any friends, and that was another thing.

0:21:47.119 --> 0:21:50.480
<v Speaker 3>That was really intimidating because it was like you're cut

0:21:50.480 --> 0:21:53.359
<v Speaker 3>off from your friends in the church, and I would

0:21:53.359 --> 0:21:56.560
<v Speaker 3>still be in contact with them occasionally, but they were

0:21:56.560 --> 0:21:58.960
<v Speaker 3>only allowed to be in contact with me to witness

0:21:58.960 --> 0:22:00.560
<v Speaker 3>to me, to like try and bring me back to

0:22:00.600 --> 0:22:05.119
<v Speaker 3>the church, and so like I didn't have anyone, you know,

0:22:05.840 --> 0:22:08.159
<v Speaker 3>so in terms of how people responded, like there was

0:22:08.200 --> 0:22:11.159
<v Speaker 3>our families that were very upset, and you know, I

0:22:11.200 --> 0:22:16.240
<v Speaker 3>had left him and it just wasn't where I wanted

0:22:16.240 --> 0:22:21.080
<v Speaker 3>to be anymore, you know. I wanted to have new experiences,

0:22:21.160 --> 0:22:23.320
<v Speaker 3>and it was hard. It was hard for a couple

0:22:23.359 --> 0:22:26.000
<v Speaker 3>of years. Like in many ways, he's the only person

0:22:26.040 --> 0:22:29.840
<v Speaker 3>that really understands what it was like being brought up

0:22:29.840 --> 0:22:33.040
<v Speaker 3>in that church that sort of essentially knows you as well.

0:22:33.440 --> 0:22:36.119
<v Speaker 1>Well. It almost is like a literal rebirth again, like

0:22:37.000 --> 0:22:40.120
<v Speaker 1>you've never had to make a decision for yourself. Really,

0:22:40.119 --> 0:22:41.920
<v Speaker 1>You've always been told what to do, where to go,

0:22:42.080 --> 0:22:43.760
<v Speaker 1>when to do it, how to do it, And all

0:22:43.760 --> 0:22:48.320
<v Speaker 1>of a sudden, you're in an adult body, but I'm

0:22:48.400 --> 0:22:51.320
<v Speaker 1>imagining it like you're a child, because you've never had

0:22:51.359 --> 0:22:53.439
<v Speaker 1>your own autonomy in your entire life. And then all

0:22:53.440 --> 0:22:55.439
<v Speaker 1>of a sudden You're trying to make these life decisions

0:22:55.480 --> 0:22:57.439
<v Speaker 1>in a world that you've got no one to support

0:22:57.480 --> 0:22:59.480
<v Speaker 1>you because they won't come along with you because you've left.

0:22:59.800 --> 0:23:02.760
<v Speaker 1>I know now that you have a relationship with your family,

0:23:02.800 --> 0:23:04.720
<v Speaker 1>but how long did that take to come back around

0:23:04.800 --> 0:23:06.639
<v Speaker 1>until they sort of accepted you back again and you

0:23:06.680 --> 0:23:08.320
<v Speaker 1>formed that relationship. Well.

0:23:08.400 --> 0:23:10.440
<v Speaker 3>I was actually one of the last to leave the church,

0:23:11.119 --> 0:23:13.640
<v Speaker 3>which is crazy. My dad was the last to leave

0:23:13.960 --> 0:23:17.879
<v Speaker 3>and he's still super religious. But I mean, my family's

0:23:17.920 --> 0:23:19.960
<v Speaker 3>been okay. My mum left to church when I was

0:23:20.000 --> 0:23:23.719
<v Speaker 3>about thirteen fourteen, and we were pretty much excommunicated from

0:23:23.760 --> 0:23:27.240
<v Speaker 3>her at the time, which was tough not having your mum,

0:23:27.240 --> 0:23:29.040
<v Speaker 3>and it was very hard for my mum as well.

0:23:29.359 --> 0:23:31.080
<v Speaker 3>And there's a lot of things that could be could

0:23:31.080 --> 0:23:33.000
<v Speaker 3>have been done differently. But my sister, you know, she

0:23:33.119 --> 0:23:35.880
<v Speaker 3>left when she was eighteen, just like I don't want

0:23:35.920 --> 0:23:38.280
<v Speaker 3>anything to do with this, and just left home and

0:23:38.359 --> 0:23:41.160
<v Speaker 3>left the church and lived her life. And my brother

0:23:41.359 --> 0:23:45.960
<v Speaker 3>just slowly stopped going. So everyone had kind of left

0:23:46.280 --> 0:23:48.879
<v Speaker 3>by that time anyway, so it wasn't really a huge issue.

0:23:48.920 --> 0:23:51.760
<v Speaker 3>I was probably the biggest problem. I was the judgmental

0:23:51.840 --> 0:23:54.600
<v Speaker 3>church goer. Which is funny to look back on now,

0:23:54.800 --> 0:23:57.440
<v Speaker 3>you know, I sort of complain a little bit about

0:23:57.800 --> 0:24:00.000
<v Speaker 3>some of the people and the way that made me feel.

0:24:00.119 --> 0:24:02.160
<v Speaker 3>But I used to be that person that would make

0:24:02.200 --> 0:24:05.040
<v Speaker 3>people feel that type of way. And you know you're

0:24:05.080 --> 0:24:07.560
<v Speaker 3>going to hell because you've done this and that, And

0:24:07.760 --> 0:24:09.480
<v Speaker 3>it's funny. It makes you have a little bit more

0:24:09.520 --> 0:24:13.119
<v Speaker 3>empathy when you you know you've been on both sides

0:24:13.160 --> 0:24:13.400
<v Speaker 3>of it.

0:24:13.600 --> 0:24:16.240
<v Speaker 2>What about when it came to dating again. I mean, obviously,

0:24:16.600 --> 0:24:19.520
<v Speaker 2>when you very first came onto the screens and became

0:24:20.040 --> 0:24:22.640
<v Speaker 2>somewhat of a public figure, it was through the Bachelor.

0:24:23.480 --> 0:24:24.720
<v Speaker 3>How was that experience?

0:24:24.760 --> 0:24:27.920
<v Speaker 2>And how is dating when you've not had any one

0:24:28.000 --> 0:24:30.119
<v Speaker 2>experience in dating, but you've had nothing to compare it to,

0:24:30.160 --> 0:24:32.080
<v Speaker 2>you know, no idea of like what's normal, how to

0:24:32.080 --> 0:24:34.280
<v Speaker 2>be treated in a relationship, how to put rules in.

0:24:34.240 --> 0:24:37.120
<v Speaker 4>Place or boundaries? Like how did you navigate that period?

0:24:37.520 --> 0:24:40.199
<v Speaker 3>I think I did pretty well, actually, like I was

0:24:40.240 --> 0:24:43.760
<v Speaker 3>pretty excited to sort of start dating again. I think

0:24:43.800 --> 0:24:47.760
<v Speaker 3>the biggest issue was as a woman, you're meant to

0:24:47.760 --> 0:24:51.080
<v Speaker 3>be compliant to men, and so I struggled a lot

0:24:51.119 --> 0:24:55.200
<v Speaker 3>with people pleasing and saying yes to things that I

0:24:55.200 --> 0:24:57.879
<v Speaker 3>should have said no to. That was the biggest thing,

0:24:57.920 --> 0:24:59.800
<v Speaker 3>and I think, you know, I look at some of

0:24:59.800 --> 0:25:03.560
<v Speaker 3>the relationships I've had more recently where I've been treated

0:25:03.680 --> 0:25:09.320
<v Speaker 3>terribly and have been way too forgiving and not judgmental

0:25:09.440 --> 0:25:13.639
<v Speaker 3>enough kind of thing. Just accepted that it's going to

0:25:13.680 --> 0:25:17.960
<v Speaker 3>be it's my fault because I'm the woman, and that's

0:25:18.000 --> 0:25:18.840
<v Speaker 3>been the hardest thing.

0:25:19.200 --> 0:25:22.600
<v Speaker 1>I don't even think that that is just something you know,

0:25:22.680 --> 0:25:25.440
<v Speaker 1>that someone in your position would experience coming from such

0:25:25.440 --> 0:25:27.640
<v Speaker 1>a strict upbringing. I think that women in general, that's

0:25:27.640 --> 0:25:28.440
<v Speaker 1>what we want to do. Right.

0:25:28.520 --> 0:25:30.679
<v Speaker 4>We're brought up to please, no matter what family you're in.

0:25:30.680 --> 0:25:32.600
<v Speaker 1>You brought up to not make too much commotion, to

0:25:33.280 --> 0:25:35.399
<v Speaker 1>accept things that we probably shouldn't have to accept. I

0:25:35.400 --> 0:25:37.280
<v Speaker 1>don't know what it is. I think it's exactly that.

0:25:37.320 --> 0:25:40.000
<v Speaker 1>I think it goes back way way before, like the church.

0:25:40.040 --> 0:25:41.320
<v Speaker 1>I think it goes back to the fact that like

0:25:41.359 --> 0:25:44.159
<v Speaker 1>women never used to have jobs. Our sole purpose was

0:25:44.200 --> 0:25:46.240
<v Speaker 1>to keept married and make the man happy, be the

0:25:46.280 --> 0:25:49.240
<v Speaker 1>perfect housewife. Whatever he said goes is what it is,

0:25:49.280 --> 0:25:51.960
<v Speaker 1>and for some reason it has seeped through generations and

0:25:52.040 --> 0:25:53.360
<v Speaker 1>we're still experiencing it now.

0:25:53.680 --> 0:25:55.760
<v Speaker 3>It's crazy to me that it's still a thing. But

0:25:55.800 --> 0:25:59.040
<v Speaker 3>I've got so many friends who just don't put up

0:25:59.080 --> 0:26:01.639
<v Speaker 3>with bullshit, you know, and I really admire them the

0:26:01.680 --> 0:26:03.040
<v Speaker 3>first red flag, they're like, no.

0:26:03.560 --> 0:26:06.199
<v Speaker 2>We did a really interesting episode with elist Loan all

0:26:06.240 --> 0:26:09.320
<v Speaker 2>around the good girl mentality and how it's something that

0:26:09.680 --> 0:26:12.119
<v Speaker 2>is almost like a social condition that's bread into us,

0:26:12.160 --> 0:26:15.359
<v Speaker 2>this need and want to quote unquote behave in a

0:26:15.400 --> 0:26:18.359
<v Speaker 2>certain way, and how the flow on effect that we

0:26:18.359 --> 0:26:20.400
<v Speaker 2>can all think that we're above the patriarchy, but it's

0:26:20.440 --> 0:26:21.560
<v Speaker 2>like how it has.

0:26:21.440 --> 0:26:22.879
<v Speaker 4>Affected us in so many ways.

0:26:22.880 --> 0:26:25.760
<v Speaker 2>But also I think in your case, you have dealt

0:26:25.800 --> 0:26:27.959
<v Speaker 2>with all the things that every other female has dealt with,

0:26:28.000 --> 0:26:31.560
<v Speaker 2>but with such an added layer of complexities with religion

0:26:31.600 --> 0:26:34.840
<v Speaker 2>thrown on top. When you hear that story about your

0:26:34.880 --> 0:26:38.040
<v Speaker 2>childhood and your upbringing, it's even more fascinating to me

0:26:38.080 --> 0:26:39.840
<v Speaker 2>that you could put yourself into a position where you

0:26:39.840 --> 0:26:42.320
<v Speaker 2>would go and do something like The Bachelor. You know,

0:26:42.359 --> 0:26:46.000
<v Speaker 2>it's just so otherworldly in comparison to where you came from.

0:26:46.520 --> 0:26:49.040
<v Speaker 3>I think it's also, you know, like I was talking before,

0:26:49.160 --> 0:26:51.600
<v Speaker 3>people they leave the church and they're so desperate to

0:26:51.640 --> 0:26:54.440
<v Speaker 3>have real life experiences that they really dive in deep

0:26:54.480 --> 0:26:56.960
<v Speaker 3>and sometimes dive too deep. And I think I was

0:26:57.000 --> 0:26:59.960
<v Speaker 3>definitely one of those people. I did all the things

0:27:00.000 --> 0:27:02.320
<v Speaker 3>that I wasn't meant to do, or I took a

0:27:02.320 --> 0:27:05.320
<v Speaker 3>lot of drugs in my twenties because it was just like,

0:27:05.400 --> 0:27:08.280
<v Speaker 3>well I can, I can now. I drank a lot,

0:27:08.400 --> 0:27:10.720
<v Speaker 3>I traveled a lot, I lived in different countries, I

0:27:10.880 --> 0:27:13.520
<v Speaker 3>went on a reality TV dated a woman, was on

0:27:13.560 --> 0:27:16.080
<v Speaker 3>the cover of a men's magazine, all these things that

0:27:16.280 --> 0:27:18.800
<v Speaker 3>were so looked down upon, and I think I did

0:27:18.880 --> 0:27:21.280
<v Speaker 3>a lot of them to try. And I don't know,

0:27:21.440 --> 0:27:23.720
<v Speaker 3>I don't know what it was like remove the shame,

0:27:23.920 --> 0:27:26.600
<v Speaker 3>trying to do as much extreme things as possible to

0:27:26.640 --> 0:27:28.520
<v Speaker 3>sort of desensitize yourself to the shame.

0:27:29.080 --> 0:27:32.679
<v Speaker 1>It's also like what an ultimate stuff for you to

0:27:32.720 --> 0:27:34.160
<v Speaker 1>the church. He's like, I'm going to date a woman

0:27:34.200 --> 0:27:38.400
<v Speaker 1>publicly on natural television, Like fuck you exactly.

0:27:39.040 --> 0:27:41.520
<v Speaker 3>I think I became a lost cause then where no

0:27:41.600 --> 0:27:43.879
<v Speaker 3>one wanted to, you know, preach to me anymore. They're like,

0:27:43.880 --> 0:27:47.960
<v Speaker 3>she's too she's never coming back. We don't want to back.

0:27:48.280 --> 0:27:49.760
<v Speaker 4>Yeah, but what was that time like?

0:27:49.920 --> 0:27:52.000
<v Speaker 1>Because I do feel like you were the early days,

0:27:52.040 --> 0:27:54.200
<v Speaker 1>and I remember I didn't know you from bar soap.

0:27:54.200 --> 0:27:55.160
<v Speaker 4>Obviously I knew on the.

0:27:55.080 --> 0:27:57.840
<v Speaker 1>TV, but I remember and correct me if I'm wrong,

0:27:57.920 --> 0:28:01.040
<v Speaker 1>But I remember there see being this mental floating around

0:28:01.160 --> 0:28:03.679
<v Speaker 1>where you and Tiffany, who was the woman that you

0:28:03.760 --> 0:28:06.080
<v Speaker 1>left with, you were getting a lot of heat about

0:28:06.720 --> 0:28:09.360
<v Speaker 1>faking the relationship, like there's no way these two women

0:28:09.440 --> 0:28:11.280
<v Speaker 1>would have ever. You know, you've gone on a show

0:28:11.320 --> 0:28:12.959
<v Speaker 1>to meet a man. As if two women are going

0:28:13.000 --> 0:28:14.640
<v Speaker 1>to get together on the show and leave, they're doing

0:28:14.680 --> 0:28:17.720
<v Speaker 1>it for publicity. I remember something nasty comments floating around.

0:28:17.760 --> 0:28:20.159
<v Speaker 1>What was it like for you to live that experience?

0:28:20.800 --> 0:28:23.600
<v Speaker 3>It was pretty shit, like I feel like, you know,

0:28:23.680 --> 0:28:26.000
<v Speaker 3>And this was seven years ago, which I mean is

0:28:26.040 --> 0:28:28.439
<v Speaker 3>a while ago, but also not that long ago. And

0:28:28.520 --> 0:28:31.159
<v Speaker 3>I remember we were one of the first people on

0:28:31.280 --> 0:28:37.200
<v Speaker 3>reality TV representing bisexual people, and I was actually pretty

0:28:37.400 --> 0:28:40.880
<v Speaker 3>surprised by the amount of hate that we got in general,

0:28:41.240 --> 0:28:44.640
<v Speaker 3>and not just of people accusing us of faking the relationship,

0:28:44.720 --> 0:28:49.240
<v Speaker 3>but just the fact that we were queer. There was

0:28:49.280 --> 0:28:52.720
<v Speaker 3>so much hate. And again, like you know, coming from

0:28:52.760 --> 0:28:55.720
<v Speaker 3>the church and then into the world, I had a

0:28:55.840 --> 0:29:00.640
<v Speaker 3>sh wrongfully assumed that people would be accepting of who

0:29:00.680 --> 0:29:03.920
<v Speaker 3>I actually was, and I was so wrong. You know,

0:29:04.480 --> 0:29:08.120
<v Speaker 3>I remember us going to like a couple of festivals

0:29:08.120 --> 0:29:11.880
<v Speaker 3>and just being absolutely mobbed and yelled at and I

0:29:11.920 --> 0:29:14.680
<v Speaker 3>got spat on once. Like it was. Yeah, it wasn't

0:29:14.680 --> 0:29:18.520
<v Speaker 3>a nice experience at all, and it almost put me

0:29:18.560 --> 0:29:21.320
<v Speaker 3>off dating women all together. It was shit, and it

0:29:21.360 --> 0:29:23.000
<v Speaker 3>was kind of like we were able to pave the

0:29:23.040 --> 0:29:29.320
<v Speaker 3>way for other people. But it's nice to be the

0:29:29.360 --> 0:29:32.160
<v Speaker 3>person after the way it's been paved. But it didn't

0:29:32.200 --> 0:29:35.560
<v Speaker 3>feel like that at the time that yeah, it felt

0:29:35.560 --> 0:29:36.479
<v Speaker 3>like we were the first.

0:29:37.000 --> 0:29:38.680
<v Speaker 2>It's actually so interesting that you put it like that

0:29:38.760 --> 0:29:40.800
<v Speaker 2>because even when you say seven years it's not that

0:29:40.880 --> 0:29:43.280
<v Speaker 2>long ago. You think about how far we've come in

0:29:43.320 --> 0:29:47.160
<v Speaker 2>the reality TV landscape, in the representation landscape. It's not

0:29:47.280 --> 0:29:50.880
<v Speaker 2>rare now to have a bisexual personality represented on the screen.

0:29:50.880 --> 0:29:52.520
<v Speaker 2>There have been so many people who have come from

0:29:52.560 --> 0:29:55.280
<v Speaker 2>the Batch franchise that. I mean, we had Brooke Blurton

0:29:55.320 --> 0:29:59.320
<v Speaker 2>who was the Bachelorette and she was bisexual. So now

0:29:59.480 --> 0:30:02.240
<v Speaker 2>it's some that we have been way more conditioned to

0:30:02.360 --> 0:30:05.800
<v Speaker 2>and I think overarchingly people are like very accepting of it.

0:30:06.240 --> 0:30:09.400
<v Speaker 2>But to think that that was your experience seven years ago,

0:30:09.400 --> 0:30:11.480
<v Speaker 2>and I don't think there's been very many discussions around

0:30:11.480 --> 0:30:15.880
<v Speaker 2>the fact that as somebody who pioneered that space, the

0:30:15.960 --> 0:30:18.440
<v Speaker 2>backlash that you received for it, it kind of was

0:30:18.480 --> 0:30:21.840
<v Speaker 2>like somebody had to be on that first wave in

0:30:21.960 --> 0:30:24.120
<v Speaker 2>order for everybody else to have it so much easier

0:30:24.240 --> 0:30:25.239
<v Speaker 2>as they should have it.

0:30:25.520 --> 0:30:29.440
<v Speaker 3>And it's interesting because we received not most of the brunt,

0:30:29.440 --> 0:30:32.479
<v Speaker 3>but a lot of brunt from the network saying that

0:30:32.520 --> 0:30:36.240
<v Speaker 3>it was embarrassing that we were in embarrassment. And what's

0:30:36.240 --> 0:30:39.720
<v Speaker 3>funny about that is the year after Tiffany and I

0:30:39.760 --> 0:30:41.680
<v Speaker 3>broke up, they asked me if I'd be interested in

0:30:41.720 --> 0:30:45.200
<v Speaker 3>being the bachelorette and being the first bisexual bachelorette, And

0:30:45.240 --> 0:30:47.040
<v Speaker 3>that was the year that Sophie Monk did it, which

0:30:47.080 --> 0:30:49.960
<v Speaker 3>I understand why they where they took her and not me,

0:30:50.680 --> 0:30:53.720
<v Speaker 3>but I mean it came down to public opinion. You know,

0:30:54.480 --> 0:30:59.480
<v Speaker 3>we receiving so much hate from the Bachelor community, from

0:30:59.800 --> 0:31:03.000
<v Speaker 3>even co stars. You know, like Brittany, you said you

0:31:03.040 --> 0:31:06.360
<v Speaker 3>had this attitude about who I was before you met me,

0:31:06.960 --> 0:31:10.880
<v Speaker 3>and I've done my best not to feel like I

0:31:10.920 --> 0:31:14.000
<v Speaker 3>have to go online and explain myself constantly with a

0:31:14.000 --> 0:31:16.360
<v Speaker 3>lot of things. It's like, oh, well, if people are

0:31:16.360 --> 0:31:18.560
<v Speaker 3>going to feel that way, then they can. It's kind

0:31:18.560 --> 0:31:19.520
<v Speaker 3>of nothing to do with me.

0:31:19.680 --> 0:31:22.200
<v Speaker 1>No, I would be embarrassed to say my attitude to

0:31:22.200 --> 0:31:25.320
<v Speaker 1>you was you're so and I've told you this, you're

0:31:25.400 --> 0:31:29.800
<v Speaker 1>so ridiculously good looking, and you're even better good looking

0:31:29.920 --> 0:31:31.880
<v Speaker 1>in real life. And I say that because sometimes you

0:31:31.920 --> 0:31:35.400
<v Speaker 1>think that when someone's online that everything's photoshopped, everything's their

0:31:35.440 --> 0:31:36.320
<v Speaker 1>best face forward, you know.

0:31:36.400 --> 0:31:37.840
<v Speaker 4>And I just thought you were so.

0:31:37.920 --> 0:31:41.800
<v Speaker 1>Ridiculously good looking that I made a very naive and

0:31:42.160 --> 0:31:45.160
<v Speaker 1>ignorant assumption that I probably wouldn't get along with you

0:31:45.160 --> 0:31:45.600
<v Speaker 1>because I.

0:31:45.560 --> 0:31:47.080
<v Speaker 4>Just felt and this is a reflection of me.

0:31:47.520 --> 0:31:51.320
<v Speaker 1>Your persona online looks like you're really girly. Not now

0:31:51.360 --> 0:31:53.120
<v Speaker 1>because I've done a week diet. No, not now, just

0:31:53.200 --> 0:31:55.040
<v Speaker 1>because I didn't know you. I just looked at beautiful

0:31:55.040 --> 0:31:58.440
<v Speaker 1>swim streets photos and modeling photos. You're an amazing model.

0:31:58.960 --> 0:32:00.960
<v Speaker 1>But when I got to know you, you're a tom boy.

0:32:01.000 --> 0:32:04.480
<v Speaker 1>You ride motorbikes and you scuba dive, and you with

0:32:04.600 --> 0:32:06.120
<v Speaker 1>sharks all the time, and you surf and you do

0:32:06.160 --> 0:32:07.520
<v Speaker 1>all this kind of stuff, and we got along like

0:32:07.520 --> 0:32:09.280
<v Speaker 1>a house on fire. So I had definitely had these

0:32:09.320 --> 0:32:12.240
<v Speaker 1>preconceived ideas of like we probably just wouldn't get along.

0:32:12.600 --> 0:32:14.520
<v Speaker 3>I kind of felt that about you as well, britt

0:32:14.520 --> 0:32:18.200
<v Speaker 3>You were like the big wig of the challenge coming in.

0:32:18.720 --> 0:32:21.320
<v Speaker 3>We were like, we're always decing, Brittany, you're the draw

0:32:21.440 --> 0:32:25.000
<v Speaker 3>card here up, but you do you have these preconceived

0:32:25.000 --> 0:32:27.040
<v Speaker 3>ideas of people, and I certainly had it about you

0:32:27.080 --> 0:32:29.800
<v Speaker 3>as well. Crazy times. Do you remember when that electrical

0:32:29.880 --> 0:32:31.560
<v Speaker 3>pole went through the busy?

0:32:31.720 --> 0:32:32.800
<v Speaker 4>We don't talk about that.

0:32:33.040 --> 0:32:35.120
<v Speaker 1>We don't talk about the fact that a whole bus

0:32:35.120 --> 0:32:36.400
<v Speaker 1>of us nearly died in reality TV.

0:32:36.480 --> 0:32:39.200
<v Speaker 3>Why don't we talk about it? We all almost died.

0:32:39.520 --> 0:32:42.000
<v Speaker 1>It was insane and we're not joking. An electrical pole

0:32:42.160 --> 0:32:44.280
<v Speaker 1>fell through. Okay, let's just say it. It fell through

0:32:44.760 --> 0:32:48.040
<v Speaker 1>as the bus was driving. It swung down, smashed through

0:32:48.080 --> 0:32:51.080
<v Speaker 1>the window in front of missed Kira and Conrad by

0:32:51.080 --> 0:32:53.080
<v Speaker 1>about two inches. Started to fight inside the bus. We

0:32:53.080 --> 0:32:55.120
<v Speaker 1>couldn't get off, the busses wouldn't open, and they were like,

0:32:55.160 --> 0:32:56.320
<v Speaker 1>let's never speak about this again.

0:32:56.360 --> 0:32:58.240
<v Speaker 4>We thought we're gonna die. We've never spoken about it.

0:32:58.320 --> 0:33:00.680
<v Speaker 3>Here we are talking about it. I know Kira and

0:33:00.680 --> 0:33:03.840
<v Speaker 3>and Conrad. The only reason they didn't get killed is

0:33:03.880 --> 0:33:06.360
<v Speaker 3>because they had leant forward at the exact time, you know,

0:33:06.440 --> 0:33:08.760
<v Speaker 3>a few seconds earlier to be like what sorry, what

0:33:08.800 --> 0:33:11.400
<v Speaker 3>did you say? And then they'd leant forward and this

0:33:11.480 --> 0:33:14.280
<v Speaker 3>electrical pole this comes through. It was like and they

0:33:14.320 --> 0:33:17.160
<v Speaker 3>wouldn't let us off the bus because of security and protocol.

0:33:17.200 --> 0:33:18.280
<v Speaker 3>I think that's what it was.

0:33:18.520 --> 0:33:20.880
<v Speaker 1>And I had glass all in my hair over my face.

0:33:20.960 --> 0:33:23.680
<v Speaker 1>Like literally, people think we're exaggerating in this story.

0:33:24.880 --> 0:33:28.240
<v Speaker 4>Were all almost died. It's insane anyway, Yeah, they're probably

0:33:28.280 --> 0:33:31.560
<v Speaker 4>gonna see us. Now, let's keep me real.

0:33:31.680 --> 0:33:32.960
<v Speaker 3>They can't. Our contracts are over.

0:33:33.520 --> 0:33:38.520
<v Speaker 1>True, Megan's something that has happened in your life that

0:33:38.640 --> 0:33:41.840
<v Speaker 1>is absolutely huge. In the last year, you were diagnosed

0:33:41.880 --> 0:33:45.080
<v Speaker 1>with something called spino cerebella a taxia or.

0:33:45.120 --> 0:33:46.280
<v Speaker 4>Sc A six.

0:33:47.520 --> 0:33:49.920
<v Speaker 1>Can you tell us about what that is and how

0:33:50.000 --> 0:33:52.040
<v Speaker 1>you came to find this diagnosis.

0:33:52.520 --> 0:33:56.120
<v Speaker 3>Yeah, So spino cerebellar or a taxia. How would I

0:33:56.160 --> 0:33:59.840
<v Speaker 3>describe it? It's basically it affects you, sarahbellum and your spine,

0:34:00.400 --> 0:34:04.560
<v Speaker 3>so Pickinge's cells, which are the sole output neurons to

0:34:04.680 --> 0:34:07.680
<v Speaker 3>tell your body what to do, start to misfire and die.

0:34:08.360 --> 0:34:11.279
<v Speaker 3>If I could draw a parallel, I would say Parkinson's

0:34:11.400 --> 0:34:14.279
<v Speaker 3>is the most similar. To what it looks like. And

0:34:15.239 --> 0:34:18.040
<v Speaker 3>one of the reasons I wanted to get tested for it.

0:34:18.120 --> 0:34:21.279
<v Speaker 3>I mean, it's in my family, so my grandfather had it.

0:34:21.560 --> 0:34:23.640
<v Speaker 3>But it was actually when we were on the challenge

0:34:23.719 --> 0:34:26.600
<v Speaker 3>that I realized that I should get tested. I was

0:34:26.640 --> 0:34:30.160
<v Speaker 3>having a few issues on there. One of those, I mean,

0:34:30.200 --> 0:34:33.839
<v Speaker 3>we made a joke about how uncoordinated I was and

0:34:33.880 --> 0:34:37.520
<v Speaker 3>that my balance was off. I've always been pretty uncoordinated

0:34:37.560 --> 0:34:40.640
<v Speaker 3>and lanky and kind of clumsy, but being on the show,

0:34:40.640 --> 0:34:43.600
<v Speaker 3>I was like, there's something not right here, Like my

0:34:44.040 --> 0:34:47.960
<v Speaker 3>motor function skills were off. Even you know, if I

0:34:48.040 --> 0:34:50.680
<v Speaker 3>was cold, I felt like my speech would be off,

0:34:50.760 --> 0:34:52.640
<v Speaker 3>or if I was nervous, my speech would be off,

0:34:53.280 --> 0:34:57.359
<v Speaker 3>and even like running when we would stay it would

0:34:57.360 --> 0:34:58.880
<v Speaker 3>be fine once I got warmed up. But it was

0:34:58.920 --> 0:35:02.400
<v Speaker 3>like I had to conscious sleep, be like okay, legs move,

0:35:02.680 --> 0:35:07.640
<v Speaker 3>and things just weren't happening like they used to. The

0:35:07.680 --> 0:35:11.880
<v Speaker 3>biggest issue was also neuropathy in my hands, my arms,

0:35:11.960 --> 0:35:14.719
<v Speaker 3>my legs, or I couldn't feel my hands. So there

0:35:14.719 --> 0:35:16.760
<v Speaker 3>were a few challenges that we did, and I didn't

0:35:16.800 --> 0:35:19.040
<v Speaker 3>tell anyone that this was happening at the time, but

0:35:19.400 --> 0:35:22.360
<v Speaker 3>like I remembered you know one of the elimination challenges

0:35:22.400 --> 0:35:25.200
<v Speaker 3>where Connor and I had to go into a room

0:35:25.239 --> 0:35:27.880
<v Speaker 3>and blindly feel around, like I couldn't see anything, so

0:35:27.920 --> 0:35:33.480
<v Speaker 3>I couldn't feel what was going on, and so I

0:35:33.520 --> 0:35:36.719
<v Speaker 3>sort of left. But I was also like, I, you know,

0:35:36.719 --> 0:35:38.719
<v Speaker 3>I was going through a very stressful period of time

0:35:38.760 --> 0:35:41.880
<v Speaker 3>in my life, if you remember Britt like kind of

0:35:42.120 --> 0:35:44.520
<v Speaker 3>I'd lost a lot of weight and was just struggling.

0:35:44.520 --> 0:35:46.320
<v Speaker 3>So I was like, maybe this is just stress related.

0:35:46.360 --> 0:35:49.439
<v Speaker 3>Maybe I'm just really stressed. And you know, I wasn't

0:35:49.440 --> 0:35:51.239
<v Speaker 3>sleeping if you remember, I didn't sleep the first four

0:35:51.320 --> 0:35:53.440
<v Speaker 3>nights I was there. But I would take a sleeping

0:35:53.440 --> 0:35:55.120
<v Speaker 3>pill that was meant to knock me out and I

0:35:55.160 --> 0:35:57.879
<v Speaker 3>would still be wired. And it was like, okay, this

0:35:57.960 --> 0:36:01.800
<v Speaker 3>is pretty full on. So a couple of months after

0:36:02.200 --> 0:36:05.680
<v Speaker 3>I got back from the challenge, I thought, okay, I

0:36:05.680 --> 0:36:07.480
<v Speaker 3>need to get tested. But it was also it was

0:36:07.520 --> 0:36:11.680
<v Speaker 3>confusing because my pop he didn't start getting symptoms until

0:36:12.160 --> 0:36:14.920
<v Speaker 3>he was in his sixties. So for me, it was like,

0:36:15.000 --> 0:36:17.560
<v Speaker 3>this is an old person's disease, you know, is what

0:36:17.640 --> 0:36:20.719
<v Speaker 3>I had always thought, And if I have it, then

0:36:20.800 --> 0:36:22.840
<v Speaker 3>I don't have to worry about it until I'm sixty,

0:36:22.880 --> 0:36:26.319
<v Speaker 3>and if I stay healthy and active and that, which

0:36:26.360 --> 0:36:29.640
<v Speaker 3>my pop wasn't, then you know, maybe I'm going to

0:36:29.640 --> 0:36:33.399
<v Speaker 3>be seventy when I start having symptoms. So it didn't

0:36:33.480 --> 0:36:39.120
<v Speaker 3>feel like a possibility, that it didn't seem like an

0:36:39.120 --> 0:36:42.120
<v Speaker 3>issue even if I had the disease. But what we

0:36:42.160 --> 0:36:47.360
<v Speaker 3>didn't realize is that, ah, yeah, So basically when I

0:36:47.360 --> 0:36:49.560
<v Speaker 3>got tested, I found out that I had four more

0:36:49.600 --> 0:36:52.880
<v Speaker 3>gene repeats than my pop, which is a lot, which

0:36:52.920 --> 0:36:55.600
<v Speaker 3>means and they don't fully understand what it means because

0:36:55.640 --> 0:36:58.919
<v Speaker 3>it's such a rare disease, But from what I can tell,

0:36:58.920 --> 0:37:01.920
<v Speaker 3>and my sister's been diagnos with the same disease, is

0:37:01.960 --> 0:37:05.200
<v Speaker 3>that we're having symptoms now in our thirties that my

0:37:05.320 --> 0:37:09.120
<v Speaker 3>grandfather didn't have. It's been hard to come to terms with,

0:37:09.560 --> 0:37:12.480
<v Speaker 3>you know, Like I didn't plan on being disabled. I

0:37:12.520 --> 0:37:14.719
<v Speaker 3>didn't plan on this. Like I got out of the

0:37:14.800 --> 0:37:16.480
<v Speaker 3>church ten years ago, and I feel like I've had

0:37:16.480 --> 0:37:18.000
<v Speaker 3>ten years to live my life and a lot of

0:37:18.040 --> 0:37:20.560
<v Speaker 3>that ten years has been taken up with shitty relationships,

0:37:20.719 --> 0:37:24.560
<v Speaker 3>you know, and I don't think I handled the news. Well,

0:37:25.080 --> 0:37:27.880
<v Speaker 3>let's just say that, like I follow all these inspiring

0:37:27.960 --> 0:37:30.600
<v Speaker 3>people online and I'm like, how are they dealing with

0:37:30.640 --> 0:37:33.719
<v Speaker 3>this so well? Because that wasn't my experience, Like I

0:37:33.800 --> 0:37:37.080
<v Speaker 3>was devastated when I found out, And as time goes on,

0:37:37.160 --> 0:37:41.080
<v Speaker 3>I feel like I've become more devastated because I'm having

0:37:41.120 --> 0:37:43.839
<v Speaker 3>symptoms and it's scary, Like I've seen what it can

0:37:43.880 --> 0:37:47.200
<v Speaker 3>look like. Like my grandfather, he couldn't talk, he couldn't eat,

0:37:48.000 --> 0:37:53.200
<v Speaker 3>he was wheelchair bound. Basically every function that you had

0:37:53.480 --> 0:37:56.280
<v Speaker 3>apart from your wits, Like you're still able to understand

0:37:56.320 --> 0:38:00.520
<v Speaker 3>everything and process information, you just can't communicate. So I've

0:38:00.560 --> 0:38:04.360
<v Speaker 3>seen that head on in a person much older than me,

0:38:04.719 --> 0:38:08.239
<v Speaker 3>but the fact that that's going to happen earlier is terrifying.

0:38:08.280 --> 0:38:11.319
<v Speaker 3>And you know, I'm single and you know, wanting to date,

0:38:11.360 --> 0:38:15.799
<v Speaker 3>and I'm like, I don't even know how how to

0:38:15.880 --> 0:38:18.879
<v Speaker 3>deal with that in the dating world, Like do I

0:38:18.920 --> 0:38:21.960
<v Speaker 3>have to tell someone like do I even want to date?

0:38:22.040 --> 0:38:23.880
<v Speaker 3>Is someone going to have to look after me in

0:38:23.960 --> 0:38:24.640
<v Speaker 3>ten years?

0:38:25.360 --> 0:38:25.560
<v Speaker 1>You know?

0:38:25.840 --> 0:38:29.440
<v Speaker 3>It doesn't There's so many things that I have to

0:38:29.840 --> 0:38:32.520
<v Speaker 3>deal with that I didn't think i'd ever have to,

0:38:32.640 --> 0:38:34.759
<v Speaker 3>And it's like I don't have enough super you know,

0:38:35.080 --> 0:38:37.480
<v Speaker 3>there's these things that you don't think about have.

0:38:37.480 --> 0:38:40.120
<v Speaker 2>They been able to give you any indication in terms

0:38:40.160 --> 0:38:45.520
<v Speaker 2>of the progression, the speed of which, like, is there

0:38:45.520 --> 0:38:47.360
<v Speaker 2>any indication that they can give you or is it

0:38:47.400 --> 0:38:48.400
<v Speaker 2>completely unknown?

0:38:48.800 --> 0:38:52.680
<v Speaker 3>It's so rare. It's like one in a hundred thousand

0:38:52.719 --> 0:38:56.959
<v Speaker 3>people have spinocerebella or taxia and they've got no there's

0:38:56.960 --> 0:39:00.560
<v Speaker 3>no research on it. It's not like MS, which you know,

0:39:00.680 --> 0:39:03.480
<v Speaker 3>more people have, so a lot of obviously there's more

0:39:03.600 --> 0:39:05.879
<v Speaker 3>studies on it and a lot of research, but they're

0:39:05.880 --> 0:39:08.399
<v Speaker 3>only just doing the research into what I have kind

0:39:08.400 --> 0:39:12.480
<v Speaker 3>of now, and there's barely any Basically, when I got diagnosed,

0:39:12.480 --> 0:39:15.320
<v Speaker 3>the neurologists was kind of like, all right, there's no treatment.

0:39:15.880 --> 0:39:19.480
<v Speaker 3>There's no cure. It can't give me anything. And even

0:39:19.560 --> 0:39:22.200
<v Speaker 3>with treatments that might be able to help my symptoms,

0:39:22.680 --> 0:39:26.120
<v Speaker 3>treatments not approved for my disease, which I don't know

0:39:26.160 --> 0:39:28.680
<v Speaker 3>when it, if it ever will be. So it's kind

0:39:28.719 --> 0:39:30.880
<v Speaker 3>of like, all right, you know, wipe your hands clean,

0:39:31.440 --> 0:39:34.120
<v Speaker 3>the neurologist, wipe your hands and just go live your

0:39:34.160 --> 0:39:38.000
<v Speaker 3>life and do your best, stay active, be healthy, take

0:39:38.040 --> 0:39:38.919
<v Speaker 3>your vitamins.

0:39:39.760 --> 0:39:43.280
<v Speaker 1>I mean, I can only imagine it's ten times worse

0:39:43.400 --> 0:39:45.960
<v Speaker 1>knowing that there is nothing like. It's one thing to

0:39:46.000 --> 0:39:48.160
<v Speaker 1>be diagnosed with something and know that there might be

0:39:48.239 --> 0:39:50.640
<v Speaker 1>an option or there might it might not work, but

0:39:50.719 --> 0:39:52.360
<v Speaker 1>I can put my energy into this. I can go

0:39:52.400 --> 0:39:54.400
<v Speaker 1>down this channel. It might be a holistic approach, it

0:39:54.440 --> 0:39:56.560
<v Speaker 1>might be science based. Whatever it is, it gives you,

0:39:56.640 --> 0:39:58.640
<v Speaker 1>I guess, a form of hope, yeah, and something to

0:39:58.680 --> 0:40:02.160
<v Speaker 1>work towards where I guess for you, it's just like cool,

0:40:02.239 --> 0:40:04.040
<v Speaker 1>I just go and wait for this to happen.

0:40:04.280 --> 0:40:07.400
<v Speaker 3>Exactly, And that's exactly it. It's like in some other countries

0:40:07.440 --> 0:40:10.200
<v Speaker 3>they've got, you know, a few different treatments more to

0:40:10.400 --> 0:40:13.840
<v Speaker 3>manage symptoms. One of those is what they give people

0:40:13.880 --> 0:40:17.840
<v Speaker 3>for altitude sickness when they're climbing everest or whatever, because

0:40:18.239 --> 0:40:21.600
<v Speaker 3>vertigo can get pretty bad and you can be quite imbalance.

0:40:21.640 --> 0:40:24.680
<v Speaker 3>I mean, that's what a tAxiom is. It's in balance.

0:40:25.080 --> 0:40:27.880
<v Speaker 3>So there are treatments overseas and that that maybe I

0:40:27.920 --> 0:40:30.279
<v Speaker 3>could go over and get. I mean, I'm not having

0:40:30.360 --> 0:40:32.960
<v Speaker 3>I feel like I'm not having enough symptoms now to

0:40:33.040 --> 0:40:35.600
<v Speaker 3>warrant that. But the best thing that you can do

0:40:35.800 --> 0:40:39.040
<v Speaker 3>is slow the progression of the disease, which is why

0:40:39.080 --> 0:40:42.080
<v Speaker 3>I would be more interested in getting treatments earlier on

0:40:42.320 --> 0:40:45.080
<v Speaker 3>rather than later. I would try anything, really, as long

0:40:45.120 --> 0:40:47.840
<v Speaker 3>as it's not damaging me further. It's like, my sister's

0:40:47.880 --> 0:40:50.960
<v Speaker 3>been diagnosed. She's got three kids. I've got an egg

0:40:51.000 --> 0:40:54.759
<v Speaker 3>downer baby, which was kind of rough funning out to

0:40:54.800 --> 0:40:57.680
<v Speaker 3>have this disease and giving a you know, you think

0:40:57.719 --> 0:41:00.759
<v Speaker 3>you're giving a gift to someone by here's and now

0:41:00.800 --> 0:41:03.239
<v Speaker 3>you're like, well, shit, maybe this was a bit of

0:41:03.239 --> 0:41:05.320
<v Speaker 3>a curse. I mean, a child is never a curse,

0:41:05.400 --> 0:41:08.160
<v Speaker 3>but it was a tough phone call to make. But

0:41:08.440 --> 0:41:11.600
<v Speaker 3>there's add on effects to it. It's not just about you,

0:41:11.600 --> 0:41:13.920
<v Speaker 3>you know, it's about all the people around you. So

0:41:14.680 --> 0:41:18.520
<v Speaker 3>I would love to find treatment, but it's all experimental

0:41:18.719 --> 0:41:22.200
<v Speaker 3>for the most part, especially with the type that I have.

0:41:22.480 --> 0:41:28.160
<v Speaker 3>It's so so rare. A taxia is pretty broad compared

0:41:28.200 --> 0:41:31.200
<v Speaker 3>to spino cerebella or taxia type six, you know. So

0:41:31.239 --> 0:41:34.560
<v Speaker 3>it's like I worry that with these experimental treatments that

0:41:34.600 --> 0:41:38.080
<v Speaker 3>it could make things worse. But I guess again, it's

0:41:38.080 --> 0:41:41.839
<v Speaker 3>almost like the bisexuality on reality TV things. Someone has

0:41:41.880 --> 0:41:45.319
<v Speaker 3>to go first. So yeah, I.

0:41:45.280 --> 0:41:48.120
<v Speaker 2>Would love to ask you about your decision. I mean,

0:41:48.160 --> 0:41:50.160
<v Speaker 2>you just mentioned that you have an egg downer baby.

0:41:50.239 --> 0:41:52.800
<v Speaker 2>When did this happen and what was your decision process

0:41:52.800 --> 0:41:54.799
<v Speaker 2>around this? Was it someone who was a friend that

0:41:54.920 --> 0:41:58.200
<v Speaker 2>was in need. You often hear about sperm doners, but

0:41:58.280 --> 0:42:00.720
<v Speaker 2>I don't think you guys often hear about egg donors.

0:42:00.800 --> 0:42:02.400
<v Speaker 4>And what was it that led to your decision to

0:42:02.440 --> 0:42:02.680
<v Speaker 4>do that.

0:42:03.040 --> 0:42:05.080
<v Speaker 3>I had wanted to donate eggs for a long time,

0:42:05.200 --> 0:42:07.640
<v Speaker 3>since my early twenties. I thought it would be a

0:42:07.640 --> 0:42:09.399
<v Speaker 3>cool thing to do. I wasn't sure if I ever

0:42:09.440 --> 0:42:11.960
<v Speaker 3>wanted to have children, and I was fertile. And around

0:42:12.000 --> 0:42:15.240
<v Speaker 3>the time I donated eggs, I had started dating someone

0:42:15.280 --> 0:42:18.239
<v Speaker 3>that had had a vasectomy and they had already had kids.

0:42:18.239 --> 0:42:20.799
<v Speaker 3>They didn't want any more kids. So I was like, oh, well,

0:42:20.880 --> 0:42:23.640
<v Speaker 3>this is like a way to reproduce, you know, without

0:42:23.680 --> 0:42:26.120
<v Speaker 3>actually having to parents. Yeah. I mean you had to

0:42:26.160 --> 0:42:28.960
<v Speaker 3>go through counseling and it's like a long process in

0:42:29.040 --> 0:42:31.480
<v Speaker 3>order to do it. But it wasn't friends. It was

0:42:31.920 --> 0:42:33.919
<v Speaker 3>I had spoken to someone that ran like an egg

0:42:33.960 --> 0:42:39.279
<v Speaker 3>donation page, basically connecting potential egg donors with recipients, and

0:42:39.560 --> 0:42:42.640
<v Speaker 3>it's kind of like Tinder, you know, it's Tinder for

0:42:42.680 --> 0:42:45.719
<v Speaker 3>your eggs, And I, yeah, I met this couple who

0:42:45.800 --> 0:42:48.520
<v Speaker 3>I really liked, and we facetimed and chatted. And then

0:42:48.680 --> 0:42:50.719
<v Speaker 3>there was a couple that I had talked to before them,

0:42:50.719 --> 0:42:53.040
<v Speaker 3>and I just didn't feel it didn't feel right, and

0:42:53.080 --> 0:42:56.319
<v Speaker 3>then this couple it felt right. So and they knew

0:42:56.320 --> 0:42:59.319
<v Speaker 3>that my grandfather had spina cerebella or taxia, but it

0:42:59.360 --> 0:43:01.399
<v Speaker 3>was again it was like, well he didn't start getting

0:43:01.400 --> 0:43:03.759
<v Speaker 3>symptoms totally sixty. This is what it's like. I've only

0:43:03.760 --> 0:43:06.360
<v Speaker 3>got a small chance of you know, having this disease.

0:43:06.400 --> 0:43:09.600
<v Speaker 3>And they were like, yep, that's fine. And so we

0:43:09.680 --> 0:43:10.920
<v Speaker 3>went through the process.

0:43:11.320 --> 0:43:13.880
<v Speaker 1>So do they not do genetic testing? Did they not

0:43:13.920 --> 0:43:16.480
<v Speaker 1>do that? And if they did, would they not have

0:43:16.520 --> 0:43:19.720
<v Speaker 1>picked this up? Or is this more of a specific test.

0:43:20.120 --> 0:43:23.359
<v Speaker 3>Yes, that's exactly it. Like they do genetic testing for sure.

0:43:23.400 --> 0:43:26.080
<v Speaker 3>For embryos I had to in order to donate. I

0:43:26.120 --> 0:43:29.360
<v Speaker 3>also had to do genetic testing, But they don't test

0:43:29.560 --> 0:43:33.920
<v Speaker 3>for spina cerebellerotaxia. It's too rare. It's like, who the

0:43:33.920 --> 0:43:36.040
<v Speaker 3>fuck would have this, which looking back now, I'm like,

0:43:36.120 --> 0:43:38.799
<v Speaker 3>maybe they should have because I disclosed that as a

0:43:38.960 --> 0:43:41.160
<v Speaker 3>potential for me and it was the only thing in

0:43:41.200 --> 0:43:44.000
<v Speaker 3>my medical history that could have been an issue like

0:43:44.040 --> 0:43:46.719
<v Speaker 3>I've got no history of cancer in my family or

0:43:47.000 --> 0:43:52.000
<v Speaker 3>diabetes or anything like my you know, biological family is

0:43:52.040 --> 0:43:55.040
<v Speaker 3>really healthy. So it was the one thing. But they

0:43:55.040 --> 0:43:57.600
<v Speaker 3>decided not to test for it. The recipients weren't that

0:43:57.680 --> 0:44:01.440
<v Speaker 3>worried about it, so we just ahead and they had

0:44:01.440 --> 0:44:02.040
<v Speaker 3>a baby.

0:44:02.440 --> 0:44:04.120
<v Speaker 1>So what does that mean when you said it was

0:44:04.120 --> 0:44:06.279
<v Speaker 1>a really hard phone call to make, because obviously you

0:44:06.600 --> 0:44:09.560
<v Speaker 1>went ahead and let the family know what was their

0:44:09.560 --> 0:44:11.959
<v Speaker 1>response and are they going to go and further test

0:44:12.000 --> 0:44:12.480
<v Speaker 1>their child?

0:44:12.480 --> 0:44:14.200
<v Speaker 4>Are they just going to wait and see what happens.

0:44:14.560 --> 0:44:17.239
<v Speaker 3>Yeah, So they were one of the first people that

0:44:17.280 --> 0:44:20.880
<v Speaker 3>I contacted before my own family, I think because it

0:44:20.960 --> 0:44:25.080
<v Speaker 3>was the first thing on my mind, like, you know,

0:44:25.800 --> 0:44:28.120
<v Speaker 3>the idea that it could affect, and at that time,

0:44:28.160 --> 0:44:30.319
<v Speaker 3>I didn't realize that I had more gene rebeats as well.

0:44:30.360 --> 0:44:33.960
<v Speaker 3>When I made the call, it was still something that

0:44:34.440 --> 0:44:36.880
<v Speaker 3>I thought would be quite far down in the future

0:44:36.880 --> 0:44:39.880
<v Speaker 3>for me. But I mean, they were amazing. They're amazing people,

0:44:39.960 --> 0:44:42.359
<v Speaker 3>and I think at first I'll be like, oh, this

0:44:42.440 --> 0:44:44.319
<v Speaker 3>is this is not good. And I gave them the

0:44:44.440 --> 0:44:47.439
<v Speaker 3>details of my neurologist and how to get tested because

0:44:47.440 --> 0:44:49.440
<v Speaker 3>it took four months. I was waiting for four months

0:44:49.440 --> 0:44:51.520
<v Speaker 3>to get the results as well. I've kind of left

0:44:51.520 --> 0:44:54.040
<v Speaker 3>that in their hands and we haven't really talked about

0:44:54.040 --> 0:44:56.120
<v Speaker 3>it since. They were just kind of like, I'm sorry

0:44:56.120 --> 0:44:59.160
<v Speaker 3>to hear that, and yeah, we'll get per tested and

0:44:59.440 --> 0:45:01.440
<v Speaker 3>that's pretty much outwent. I mean, what can you do.

0:45:02.280 --> 0:45:03.719
<v Speaker 3>There's no treatment, there's no.

0:45:04.560 --> 0:45:08.080
<v Speaker 1>How do you feel like your life has changed or

0:45:08.080 --> 0:45:12.960
<v Speaker 1>you're living life differently knowing that one day your speech

0:45:13.000 --> 0:45:15.720
<v Speaker 1>will go and your mobility will go and it's almost

0:45:15.719 --> 0:45:17.160
<v Speaker 1>going to be like that slow decline.

0:45:17.239 --> 0:45:18.319
<v Speaker 4>How has it changed for you?

0:45:19.040 --> 0:45:21.960
<v Speaker 3>Well, when I first got diagnosed, I thought that I

0:45:22.320 --> 0:45:23.960
<v Speaker 3>was kind of like, all right, I just need to

0:45:24.000 --> 0:45:26.560
<v Speaker 3>live life to the fullest, you know. I need to

0:45:26.640 --> 0:45:29.799
<v Speaker 3>travel and ride motorbikes and scuba dive and do all

0:45:29.840 --> 0:45:32.120
<v Speaker 3>the things that I'm eventually not going to be able

0:45:32.160 --> 0:45:36.640
<v Speaker 3>to do. But and I would love to say that

0:45:36.760 --> 0:45:39.200
<v Speaker 3>I have lived like that, And I mean I have.

0:45:39.560 --> 0:45:42.359
<v Speaker 3>I have in a way this year, you know, I've

0:45:42.520 --> 0:45:46.160
<v Speaker 3>definitely tried to eliminate stress factors in my life because

0:45:46.160 --> 0:45:47.839
<v Speaker 3>they say that stress is one of the worst things

0:45:47.880 --> 0:45:50.080
<v Speaker 3>that you can do. The progression of the disease will

0:45:50.080 --> 0:45:53.440
<v Speaker 3>happen quicker if you're stressed. So it's been getting rid

0:45:53.440 --> 0:45:56.239
<v Speaker 3>of people in my life that aggravate my peace, you know,

0:45:56.440 --> 0:45:58.640
<v Speaker 3>that have caused a lot of stress in my life

0:45:58.680 --> 0:46:01.239
<v Speaker 3>over the last couple of years. Yeah, I've had to

0:46:01.360 --> 0:46:05.240
<v Speaker 3>change a few things, and so, you know, I've stopped

0:46:05.560 --> 0:46:07.840
<v Speaker 3>I used to drink, you know, quite a lot of wine,

0:46:08.280 --> 0:46:11.040
<v Speaker 3>and now I've had to pull back and I'm not

0:46:11.520 --> 0:46:15.759
<v Speaker 3>drinking during the week. I'm really careful. I don't have

0:46:15.800 --> 0:46:19.200
<v Speaker 3>any interest in doing drugs. I try and you know,

0:46:19.320 --> 0:46:22.799
<v Speaker 3>exercise a lot, I eat really healthy, you know. So

0:46:22.840 --> 0:46:25.360
<v Speaker 3>it's changed my life in that way, But I wouldn't

0:46:25.360 --> 0:46:28.880
<v Speaker 3>say that I've just come out of it just kicking

0:46:28.960 --> 0:46:33.480
<v Speaker 3>and again, I feel like I hear so many inspiring

0:46:33.800 --> 0:46:38.200
<v Speaker 3>people that are advocates, you know, they're disability advocates, and

0:46:38.520 --> 0:46:41.799
<v Speaker 3>I don't feel like I'm there yet. I feel like

0:46:42.000 --> 0:46:46.719
<v Speaker 3>i'm I'm still struggling to accept my diagnosis and I've

0:46:46.719 --> 0:46:50.960
<v Speaker 3>struggled a lot with you know, depression over the last year.

0:46:51.920 --> 0:46:54.600
<v Speaker 3>And I don't want to waste my time being depressed

0:46:54.640 --> 0:46:58.680
<v Speaker 3>and not sleeping and being stressed about being stressed. But

0:46:59.239 --> 0:47:02.080
<v Speaker 3>if there's anyone else that has felt the same way

0:47:02.120 --> 0:47:05.200
<v Speaker 3>reach out to me, because it's not always easy, you know,

0:47:05.280 --> 0:47:07.480
<v Speaker 3>and you want to be the person that defies all

0:47:07.520 --> 0:47:10.399
<v Speaker 3>odds and just gets out there. And another thing that's

0:47:10.400 --> 0:47:13.680
<v Speaker 3>been really hard is being single and dating again and

0:47:13.960 --> 0:47:16.239
<v Speaker 3>not really fully understanding what it might look like. Like

0:47:16.280 --> 0:47:18.800
<v Speaker 3>I could have the same symptoms that I have now

0:47:18.960 --> 0:47:21.920
<v Speaker 3>for the next twenty years and be completely fine and

0:47:21.960 --> 0:47:24.759
<v Speaker 3>not have any more issues that I'm having now. But

0:47:25.000 --> 0:47:27.600
<v Speaker 3>we don't know, and I think there's the unknowns in

0:47:27.640 --> 0:47:29.880
<v Speaker 3>it that is scary as well, Like I don't know

0:47:29.920 --> 0:47:32.640
<v Speaker 3>how much time I have, Like I love to read.

0:47:32.840 --> 0:47:34.839
<v Speaker 3>I love to read, I love to paint. I love

0:47:35.239 --> 0:47:38.799
<v Speaker 3>to write. And you know, my vision will will go

0:47:39.080 --> 0:47:43.279
<v Speaker 3>my you know, everything that's important to me. Okay, I

0:47:43.360 --> 0:47:44.800
<v Speaker 3>like to do a lot of adventurous things. I'm not

0:47:44.840 --> 0:47:46.440
<v Speaker 3>gonna be able to do those things. You know. My

0:47:46.520 --> 0:47:48.479
<v Speaker 3>life is going to be cut short in a way,

0:47:48.600 --> 0:47:53.120
<v Speaker 3>not by death, but by illness. And so I guess

0:47:53.360 --> 0:47:55.799
<v Speaker 3>it does change your perspective, but I'm still sort of

0:47:56.040 --> 0:47:59.040
<v Speaker 3>processing and yeah, we'll have to we'll have to see

0:47:59.040 --> 0:47:59.640
<v Speaker 3>how things go.

0:48:00.480 --> 0:48:03.560
<v Speaker 2>I think it is so humanizing though, and I truly

0:48:03.600 --> 0:48:07.200
<v Speaker 2>mean this because we've interviewed some incredibly aspirational people who

0:48:07.280 --> 0:48:09.800
<v Speaker 2>have been through great traumas and have come out the

0:48:09.840 --> 0:48:15.279
<v Speaker 2>other side with this intense positivity, sometimes almost unbelievable positivity

0:48:15.480 --> 0:48:17.640
<v Speaker 2>where you think, wow, like you know, how do they

0:48:17.680 --> 0:48:21.239
<v Speaker 2>manage to savor every day? But I also think it's

0:48:21.239 --> 0:48:24.600
<v Speaker 2>so important to honor the journey towards getting to those places.

0:48:24.800 --> 0:48:26.560
<v Speaker 2>So often we talk to people who have already reached

0:48:26.600 --> 0:48:30.120
<v Speaker 2>that destination, and then for those who are in the

0:48:30.120 --> 0:48:32.400
<v Speaker 2>midst of trauma, in the midst of dealing with the

0:48:32.440 --> 0:48:35.400
<v Speaker 2>big shit that life throws at you, you can feel

0:48:35.400 --> 0:48:38.040
<v Speaker 2>like you're failing because you haven't reached that destination yet,

0:48:38.120 --> 0:48:40.279
<v Speaker 2>or maybe for some people, you never reached that destination

0:48:40.320 --> 0:48:43.600
<v Speaker 2>of full acceptance, and for every single person it looks

0:48:43.680 --> 0:48:45.760
<v Speaker 2>very different. So I think that there is something incredibly

0:48:45.840 --> 0:48:49.440
<v Speaker 2>humanizing about having someone be honest about the fact that

0:48:49.480 --> 0:48:53.680
<v Speaker 2>they have not yet completely accepted or even been able

0:48:53.719 --> 0:48:57.280
<v Speaker 2>to reach this destination of positivity around something that's adversely

0:48:57.320 --> 0:48:57.960
<v Speaker 2>affecting them.

0:48:58.320 --> 0:49:00.640
<v Speaker 3>That's exactly it. And I think there's part of it

0:49:00.680 --> 0:49:02.400
<v Speaker 3>where you don't want to be a victim, Like you

0:49:02.400 --> 0:49:04.200
<v Speaker 3>don't want people to see you as a victim. You

0:49:04.200 --> 0:49:07.200
<v Speaker 3>don't want people to feel sorry, and so in that

0:49:07.280 --> 0:49:10.399
<v Speaker 3>way on my Instagram. In talking about it, I try,

0:49:10.440 --> 0:49:12.799
<v Speaker 3>and I mean I barely talk about it, but when

0:49:12.840 --> 0:49:15.000
<v Speaker 3>I do, I try and be really positive and I

0:49:15.040 --> 0:49:17.760
<v Speaker 3>am grateful. You know, I've had more opportunities than most,

0:49:17.760 --> 0:49:23.560
<v Speaker 3>and I'm very, very lucky. But I predominantly only say

0:49:24.040 --> 0:49:26.120
<v Speaker 3>things like that because I don't want people to look

0:49:26.120 --> 0:49:28.440
<v Speaker 3>at me. And isn't it funny these things that you

0:49:28.480 --> 0:49:30.440
<v Speaker 3>don't think about that I've never had to think about before.

0:49:30.440 --> 0:49:31.759
<v Speaker 3>But it's like, I don't want to be seen as

0:49:31.800 --> 0:49:34.760
<v Speaker 3>a victim. I don't want to be seen as, oh,

0:49:34.800 --> 0:49:37.960
<v Speaker 3>poor Megan. Someone I was with said to me, and

0:49:38.000 --> 0:49:40.600
<v Speaker 3>I've told Britt this before, but a comment they made

0:49:40.640 --> 0:49:43.480
<v Speaker 3>to me was, Megan, I could date a twenty year

0:49:43.520 --> 0:49:47.160
<v Speaker 3>old without a brain disease, and I choose you. And

0:49:47.680 --> 0:49:50.520
<v Speaker 3>this person had disrespected me in many ways, but this

0:49:50.760 --> 0:49:55.480
<v Speaker 3>is the thing that like, I'm pretty sturdy, like I'm

0:49:55.480 --> 0:49:58.920
<v Speaker 3>not easily offended, but this hurt. It hurt my feelings

0:49:58.920 --> 0:50:01.720
<v Speaker 3>so much to hear that, and it was a little

0:50:01.719 --> 0:50:06.279
<v Speaker 3>glimpse into what people might see me as or see

0:50:06.320 --> 0:50:06.719
<v Speaker 3>me like.

0:50:07.560 --> 0:50:10.040
<v Speaker 2>It's because it's been dressed up as a compliment it's like,

0:50:10.120 --> 0:50:12.640
<v Speaker 2>I have the choice of anyone, but I'm choosing you.

0:50:13.280 --> 0:50:15.600
<v Speaker 2>It's like they're trying to imply that it's because the

0:50:15.600 --> 0:50:17.480
<v Speaker 2>person you are on the inside is so special, but

0:50:17.520 --> 0:50:19.799
<v Speaker 2>then by implying that they're saying, well, the person on

0:50:19.840 --> 0:50:22.080
<v Speaker 2>the outside that you are as defective exactly.

0:50:22.120 --> 0:50:23.799
<v Speaker 3>It was very offensive, and they had said this to

0:50:23.840 --> 0:50:25.799
<v Speaker 3>me a few times over the night, and I'd kind

0:50:25.800 --> 0:50:28.120
<v Speaker 3>of pushed it away, and it wasn't until a few

0:50:28.200 --> 0:50:30.000
<v Speaker 3>days later that I brought it up with this person

0:50:30.080 --> 0:50:32.839
<v Speaker 3>and told them. But it also it very much made

0:50:32.880 --> 0:50:35.600
<v Speaker 3>me lose respect for this person as well, because it

0:50:35.640 --> 0:50:37.560
<v Speaker 3>was like, who the fuck do you think you are?

0:50:38.120 --> 0:50:41.960
<v Speaker 3>You know that I'm The idea that I should be

0:50:42.040 --> 0:50:48.040
<v Speaker 3>grateful that someone has chosen me was horrible.

0:50:48.600 --> 0:50:50.920
<v Speaker 2>Yeah, And also in those moments, it makes you realize

0:50:50.920 --> 0:50:54.640
<v Speaker 2>that sometimes, not even just sometimes often being on your

0:50:54.680 --> 0:50:58.000
<v Speaker 2>own is better than being with people who don't and

0:50:58.080 --> 0:50:59.719
<v Speaker 2>can't respect you, will love you in a way that

0:50:59.760 --> 0:51:01.799
<v Speaker 2>you just to be like, it's so hard to get

0:51:01.800 --> 0:51:03.439
<v Speaker 2>to a place in life where you're like, I would

0:51:03.520 --> 0:51:06.520
<v Speaker 2>rather be on my own and have agency of my happiness,

0:51:06.520 --> 0:51:09.080
<v Speaker 2>have agency over my choices than to be with someone

0:51:09.080 --> 0:51:11.279
<v Speaker 2>who has control over that and has control over my

0:51:11.320 --> 0:51:14.280
<v Speaker 2>happiness because of their infidelity or their lying or however

0:51:14.320 --> 0:51:15.879
<v Speaker 2>else they're showing up in the relationship.

0:51:16.320 --> 0:51:19.399
<v Speaker 3>Yeah, that's exactly it. And it's kind of a hard

0:51:19.440 --> 0:51:21.840
<v Speaker 3>place to get to. Like I'm sure Britt understands what

0:51:21.880 --> 0:51:24.840
<v Speaker 3>it's like when you're you know, you reached like Britt

0:51:24.840 --> 0:51:26.640
<v Speaker 3>and I are about the same age, and it's kind

0:51:26.640 --> 0:51:29.040
<v Speaker 3>of like, how many times do I have to do this?

0:51:30.440 --> 0:51:31.600
<v Speaker 4>Oh my god, I have to start again?

0:51:31.680 --> 0:51:35.080
<v Speaker 3>Yeah, I know, and it's kind of it's intimidating starting again.

0:51:35.160 --> 0:51:36.879
<v Speaker 3>And I think that's one of the reasons I've put

0:51:36.960 --> 0:51:38.920
<v Speaker 3>up with so much stuff, is because I mean, I

0:51:38.920 --> 0:51:42.800
<v Speaker 3>love good company and sex and you know, all the things.

0:51:42.880 --> 0:51:47.080
<v Speaker 3>But in the end, it's like, am I betraying myself

0:51:47.200 --> 0:51:49.640
<v Speaker 3>to be in this position? And if the answer is yes,

0:51:49.640 --> 0:51:50.600
<v Speaker 3>then you shouldn't be there.

0:51:50.920 --> 0:51:53.800
<v Speaker 1>I appreciate and can imagine the struggle that you feel

0:51:53.840 --> 0:51:57.080
<v Speaker 1>about should I be dating somebody if in ten years

0:51:57.120 --> 0:51:58.680
<v Speaker 1>or fifteen years that this is going to happen and

0:51:58.680 --> 0:52:00.920
<v Speaker 1>they're going to have to look after me. I understand that,

0:52:01.239 --> 0:52:03.319
<v Speaker 1>but I hope that doesn't stop you from dating and

0:52:03.360 --> 0:52:06.360
<v Speaker 1>finding that person, because the right person is out there

0:52:06.400 --> 0:52:07.600
<v Speaker 1>and the right person won't care.

0:52:07.719 --> 0:52:10.000
<v Speaker 3>Yeah, for sure. And again it's hard to know how

0:52:10.120 --> 0:52:12.359
<v Speaker 3>the disease is going to progress. Like my mum's been

0:52:12.480 --> 0:52:17.000
<v Speaker 3>diagnosed and she's fifty six and she's completely fine. You know,

0:52:17.120 --> 0:52:20.960
<v Speaker 3>she's having very few symptoms. So it's like, who knows.

0:52:21.000 --> 0:52:23.640
<v Speaker 3>Like I could be absolutely fine, they could die, you know,

0:52:23.719 --> 0:52:27.680
<v Speaker 3>I could get married again and have kids, get the

0:52:27.680 --> 0:52:30.560
<v Speaker 3>embryos genetically tested and have kids and live a really

0:52:30.600 --> 0:52:34.760
<v Speaker 3>normal life, or it could be completely different. But yeah,

0:52:34.840 --> 0:52:36.400
<v Speaker 3>we don't know, and I don't want to let it

0:52:36.440 --> 0:52:40.480
<v Speaker 3>stop me. I think my confidence has really been affected

0:52:41.080 --> 0:52:43.040
<v Speaker 3>by some of the comments and things that have been

0:52:43.080 --> 0:52:46.120
<v Speaker 3>said to me in the past. And it's also hard

0:52:46.160 --> 0:52:48.239
<v Speaker 3>because you can google my name and one of the

0:52:48.239 --> 0:52:51.080
<v Speaker 3>first thing that comes up is Megan Mark's diagnosed with

0:52:51.680 --> 0:52:54.239
<v Speaker 3>you know, neurological disease. So I don't even really have

0:52:54.320 --> 0:52:57.839
<v Speaker 3>the choice to start dating and decide when I want

0:52:57.880 --> 0:53:00.000
<v Speaker 3>to reveal that, because I mean, let's be honest. You

0:53:00.080 --> 0:53:03.799
<v Speaker 3>google people you know you're going on a date with them, Yeah,

0:53:03.840 --> 0:53:05.720
<v Speaker 3>you google them, you look them up on social media,

0:53:05.760 --> 0:53:07.880
<v Speaker 3>and you see what's going on, and there's it's like,

0:53:07.920 --> 0:53:10.239
<v Speaker 3>I don't have that choice. So it's difficult, and I

0:53:10.239 --> 0:53:12.640
<v Speaker 3>think maybe I'd have more confidence if I was able

0:53:12.719 --> 0:53:16.759
<v Speaker 3>to reveal that slowly to someone. And you also, you

0:53:16.760 --> 0:53:19.040
<v Speaker 3>don't know how Yeah again, I was going to say,

0:53:19.320 --> 0:53:22.560
<v Speaker 3>you don't want them to assume that you're a certain

0:53:22.560 --> 0:53:24.759
<v Speaker 3>way when you're not. And but you can't give someone

0:53:24.840 --> 0:53:27.040
<v Speaker 3>answers either, Like, even if I was going to have

0:53:27.040 --> 0:53:29.400
<v Speaker 3>that conversation with someone, it's like, well, I don't know

0:53:29.480 --> 0:53:31.399
<v Speaker 3>what's going to happen to me, you know, I don't

0:53:31.400 --> 0:53:32.280
<v Speaker 3>know what's going to happen.

0:53:32.480 --> 0:53:34.040
<v Speaker 2>I think that this has been a progression over the

0:53:34.120 --> 0:53:36.719
<v Speaker 2>last few years. But you were very public facing for

0:53:36.760 --> 0:53:40.480
<v Speaker 2>a while across social media, across public engagements, But it

0:53:40.520 --> 0:53:43.680
<v Speaker 2>seems like over the years you have moved further away

0:53:43.719 --> 0:53:46.320
<v Speaker 2>from that life. Was that a conscious decision. Was that

0:53:46.360 --> 0:53:49.920
<v Speaker 2>a conscious decision around privacy or was it just simply

0:53:50.040 --> 0:53:52.799
<v Speaker 2>the you know, how life is transpired and where you've

0:53:52.840 --> 0:53:55.320
<v Speaker 2>moved to, Like, what does that look like for you

0:53:55.440 --> 0:53:58.040
<v Speaker 2>now in terms of how public facing you are with life.

0:53:58.280 --> 0:54:01.240
<v Speaker 3>I think I went through a stage a few years

0:54:01.239 --> 0:54:05.040
<v Speaker 3>ago where I've wanted to I mean, it sounds so

0:54:05.400 --> 0:54:07.600
<v Speaker 3>sort of wanky and cliche, but I wanted to live

0:54:07.640 --> 0:54:10.319
<v Speaker 3>a little bit more authentically. And I'm not saying that

0:54:10.360 --> 0:54:12.719
<v Speaker 3>you can't do that and be on social media. Of

0:54:12.719 --> 0:54:15.479
<v Speaker 3>course you can. And I'm still on socials, but now

0:54:15.520 --> 0:54:18.880
<v Speaker 3>I only post what I want to post, and you know,

0:54:18.960 --> 0:54:22.960
<v Speaker 3>I can be pretty real about suffering from a bit

0:54:22.960 --> 0:54:25.400
<v Speaker 3>of depression lately, and that I've been going through a

0:54:25.440 --> 0:54:27.759
<v Speaker 3>hard time and I've lost a lot of weight because

0:54:27.800 --> 0:54:31.480
<v Speaker 3>of stress. And I've been able to talk about those things.

0:54:31.520 --> 0:54:34.880
<v Speaker 3>But it's more, I guess it didn't feel good anymore.

0:54:35.360 --> 0:54:38.360
<v Speaker 3>It just didn't feel good anymore, and I just wanted

0:54:38.360 --> 0:54:40.680
<v Speaker 3>to live a quieter life and not feel like I

0:54:40.680 --> 0:54:43.719
<v Speaker 3>have to explain myself. I always felt like whenever I

0:54:43.760 --> 0:54:47.040
<v Speaker 3>did get on social media and voice and opinion that

0:54:47.120 --> 0:54:52.720
<v Speaker 3>I got so destroyed by the media or by various personalities,

0:54:53.560 --> 0:54:57.120
<v Speaker 3>and I wasn't very good at handling it. You've got

0:54:57.120 --> 0:55:00.480
<v Speaker 3>to have really thick skin, almost callous skin. I'm sure

0:55:00.520 --> 0:55:01.560
<v Speaker 3>that you two do.

0:55:01.880 --> 0:55:04.080
<v Speaker 4>You know it's not think enough either.

0:55:04.239 --> 0:55:07.000
<v Speaker 2>You have to and I definitely I mean something in

0:55:07.040 --> 0:55:09.680
<v Speaker 2>which it was very public last year. It might have

0:55:09.680 --> 0:55:11.560
<v Speaker 2>been the year before, but it was the conversation around

0:55:11.600 --> 0:55:15.080
<v Speaker 2>ADHD that transpired in the media how do you deal

0:55:15.239 --> 0:55:21.640
<v Speaker 2>with situations where you feel as though you've been misrepresented, misunderstood, miscommunicated,

0:55:21.800 --> 0:55:25.040
<v Speaker 2>and then you don't have the ability because like when

0:55:25.080 --> 0:55:27.359
<v Speaker 2>you're up against almost like a fight online where you've

0:55:27.360 --> 0:55:29.880
<v Speaker 2>been misrepresented, how do you explain who you are and

0:55:29.920 --> 0:55:33.000
<v Speaker 2>defend the person that you are when you've been misrepresented.

0:55:33.320 --> 0:55:35.080
<v Speaker 3>You have to get to the point where you understand

0:55:35.120 --> 0:55:38.520
<v Speaker 3>that no amount of explaining yourself is going to make

0:55:38.600 --> 0:55:41.799
<v Speaker 3>you win. Is the most important thing, And for me,

0:55:42.160 --> 0:55:44.600
<v Speaker 3>you know, the first thing I try and do is

0:55:45.320 --> 0:55:48.239
<v Speaker 3>take some accountability and have a look at myself, like

0:55:48.280 --> 0:55:51.359
<v Speaker 3>if you're getting a whole lot of negative energy put

0:55:51.440 --> 0:55:54.600
<v Speaker 3>towards you. Not all the time, but sometimes you're wrong.

0:55:55.640 --> 0:55:58.040
<v Speaker 3>You're wrong, and you've got to accept that. You know,

0:55:58.080 --> 0:56:00.640
<v Speaker 3>obviously people are going to take one line of what

0:56:00.680 --> 0:56:03.880
<v Speaker 3>you said and pull you through the colls. But for me,

0:56:04.080 --> 0:56:07.280
<v Speaker 3>I mean, at the time when that ADHD conversation happened,

0:56:07.480 --> 0:56:09.799
<v Speaker 3>I was waiting for the results of you know, the

0:56:09.840 --> 0:56:11.880
<v Speaker 3>disease that I have right now, and so it was

0:56:11.920 --> 0:56:16.279
<v Speaker 3>a very interesting time to be called ablest And when

0:56:16.280 --> 0:56:18.360
<v Speaker 3>I was on the show, I was taking ADHD medication.

0:56:18.440 --> 0:56:21.160
<v Speaker 3>I've been diagnosed for quite a while. I mean, I

0:56:21.160 --> 0:56:22.680
<v Speaker 3>don't want to get into it and try and explain

0:56:22.719 --> 0:56:24.920
<v Speaker 3>myself again because I feel like I'm about to do that.

0:56:25.360 --> 0:56:28.040
<v Speaker 3>But I think the thing is that sometimes you don't

0:56:28.040 --> 0:56:30.520
<v Speaker 3>deal with it when you get that much vitriol and

0:56:30.600 --> 0:56:34.359
<v Speaker 3>hate spat at you. Sometimes you just don't, you know,

0:56:34.800 --> 0:56:36.279
<v Speaker 3>and it's like, oh, you know, the best thing to

0:56:36.320 --> 0:56:38.279
<v Speaker 3>do is to not read the comments and to not

0:56:38.680 --> 0:56:43.839
<v Speaker 3>engage and to not and for sure, but it still hurts. Again.

0:56:43.920 --> 0:56:46.240
<v Speaker 3>It was another reason where it's like, Okay, I'm taking

0:56:46.239 --> 0:56:50.200
<v Speaker 3>a step back from social media because it just wasn't easy.

0:56:50.239 --> 0:56:52.000
<v Speaker 3>And at the same time, it's like, well is this

0:56:52.080 --> 0:56:54.439
<v Speaker 3>good for my mental health? And you want to sort

0:56:54.440 --> 0:56:56.719
<v Speaker 3>of take a step back and work out what you

0:56:56.800 --> 0:57:00.120
<v Speaker 3>value and why you're talking about the things you arehether

0:57:00.120 --> 0:57:02.760
<v Speaker 3>you should or not, And yeah, I'm sure it's different

0:57:02.760 --> 0:57:04.759
<v Speaker 3>for everyone how they deal with it.

0:57:05.000 --> 0:57:07.040
<v Speaker 1>I specifically saw a story set that you did a

0:57:07.080 --> 0:57:10.520
<v Speaker 1>little while ago where you were genuinely really vulnerable and

0:57:10.560 --> 0:57:12.000
<v Speaker 1>I know you said you don't like to go on

0:57:12.040 --> 0:57:14.520
<v Speaker 1>to your socials and show a weakness, will be a victim,

0:57:14.680 --> 0:57:16.720
<v Speaker 1>but there was a moment where you were trying to

0:57:16.760 --> 0:57:21.479
<v Speaker 1>raise awareness for your disease because it is unknown, and

0:57:22.120 --> 0:57:25.080
<v Speaker 1>watching your vulnerability in the fact that I get up,

0:57:25.120 --> 0:57:26.640
<v Speaker 1>I think I'm going to cry talking about it, but

0:57:27.280 --> 0:57:29.440
<v Speaker 1>watching how scared you were in that story set where

0:57:29.440 --> 0:57:30.920
<v Speaker 1>you were like, I don't know what my future is

0:57:30.960 --> 0:57:31.800
<v Speaker 1>and no one's helping me.

0:57:32.000 --> 0:57:33.080
<v Speaker 4>No one is there to help me.

0:57:33.600 --> 0:57:35.200
<v Speaker 1>I messaged it to the girls and I said, like,

0:57:35.200 --> 0:57:37.160
<v Speaker 1>I want to put her on a platform where she

0:57:37.240 --> 0:57:39.439
<v Speaker 1>can talk about it and more people can understand, because

0:57:39.440 --> 0:57:42.720
<v Speaker 1>I can't imagine how isolating and lonely that feeling must be.

0:57:43.200 --> 0:57:45.280
<v Speaker 3>Yeah, and you know, I'm part of a small cohort

0:57:45.280 --> 0:57:48.479
<v Speaker 3>of people that has an incredibly rare disease. There isn't help,

0:57:48.520 --> 0:57:50.880
<v Speaker 3>and part of me feels like I can't ask for

0:57:51.000 --> 0:57:54.000
<v Speaker 3>help either, because it's like what I'm dealing with affects

0:57:54.040 --> 0:57:57.560
<v Speaker 3>such a small cohort of people, So why why ask

0:57:57.640 --> 0:57:59.920
<v Speaker 3>for it? There's more important things, there's more important disease,

0:58:00.920 --> 0:58:05.000
<v Speaker 3>and so it's been incredibly isolating, really isolating, and it is.

0:58:05.840 --> 0:58:09.120
<v Speaker 3>It is hard. I'm not gonna lie. Yeah, but thank

0:58:09.160 --> 0:58:11.320
<v Speaker 3>you for giving me the platform and thank you for

0:58:11.560 --> 0:58:13.920
<v Speaker 3>allowing me to talk about it. I really appreciate it.

0:58:15.080 --> 0:58:17.920
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0:58:17.960 --> 0:58:21.320
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0:58:21.360 --> 0:58:22.360
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