1 00:00:00,040 --> 00:00:02,840 Speaker 1: A real change of pace because many of you will 2 00:00:02,840 --> 00:00:06,480 Speaker 1: be familiar with my next guest, whose family holds a 3 00:00:06,519 --> 00:00:10,160 Speaker 1: fishing competition each year called Max's Cast for a Cure. 4 00:00:10,680 --> 00:00:13,480 Speaker 1: It's to honor their little boy who lost his battle 5 00:00:13,800 --> 00:00:17,840 Speaker 1: with brain cancer. The Kirby family raises funds through their 6 00:00:17,880 --> 00:00:21,360 Speaker 1: event every year for the cause, and they've also gotten 7 00:00:21,400 --> 00:00:24,400 Speaker 1: on board to help a Catherine family whose one year 8 00:00:24,400 --> 00:00:28,080 Speaker 1: old daughter was recently diagnosed with brain cancer and had 9 00:00:28,080 --> 00:00:32,239 Speaker 1: to go to Brisbane for emergency surgery. Now joining me 10 00:00:32,320 --> 00:00:35,720 Speaker 1: on the line right now is the wonderful Naomi Kirby. 11 00:00:35,800 --> 00:00:37,519 Speaker 1: Good morning, Naomi. 12 00:00:37,920 --> 00:00:38,920 Speaker 2: Hi Katie, how are you. 13 00:00:39,080 --> 00:00:42,720 Speaker 1: You're really good, lovely to have you on the show now. Naomi, 14 00:00:42,800 --> 00:00:45,839 Speaker 1: I understand you've reached out to the young Catherine family 15 00:00:45,920 --> 00:00:49,680 Speaker 1: to see how you could help Baby Zali. What can 16 00:00:49,720 --> 00:00:51,360 Speaker 1: you tell us about their situation? 17 00:00:53,360 --> 00:00:56,360 Speaker 2: So far as I know, Baby Zali winnen for a 18 00:00:56,360 --> 00:00:59,520 Speaker 2: twelve month check up and they noticed that who hits 19 00:00:59,560 --> 00:01:04,160 Speaker 2: a company had increased quite significantly. She'd also been quite 20 00:01:04,160 --> 00:01:07,760 Speaker 2: grizzly and fussy with food and cleaning and sort of 21 00:01:07,760 --> 00:01:11,200 Speaker 2: normal toddler things. But they sort of went in to 22 00:01:11,280 --> 00:01:14,520 Speaker 2: get some more check up done about the head circumference 23 00:01:14,560 --> 00:01:17,040 Speaker 2: and they found that she had a brain tumor. 24 00:01:16,840 --> 00:01:22,520 Speaker 1: So goodness me, you know, I can't imagine how they 25 00:01:22,600 --> 00:01:25,600 Speaker 1: must be feeling at this point. And my understanding is 26 00:01:25,600 --> 00:01:27,399 Speaker 1: that they are going to need to spend quite a 27 00:01:27,400 --> 00:01:30,720 Speaker 1: bit of time in Brisbane, is that right? 28 00:01:32,000 --> 00:01:35,800 Speaker 2: Well, yes, that was originally the plan. They were sort 29 00:01:35,800 --> 00:01:37,840 Speaker 2: of foreseeing that it was going to be, you know, 30 00:01:37,920 --> 00:01:40,720 Speaker 2: but quite a lot of treatment and staying down in Brisbane. 31 00:01:41,240 --> 00:01:45,080 Speaker 2: But it turns out that Dari's tumor they couldn't remove 32 00:01:45,080 --> 00:01:47,560 Speaker 2: it all. It was attached to her brains then, but 33 00:01:47,640 --> 00:01:50,120 Speaker 2: it was also engulfing a lot of her spine. So 34 00:01:50,160 --> 00:01:55,840 Speaker 2: it seems that with they've given her you know, a 35 00:01:55,880 --> 00:01:58,720 Speaker 2: short amount of time, so the family decided to bring 36 00:01:58,840 --> 00:02:02,640 Speaker 2: Zai home. So it's yeah, it's going to be quite 37 00:02:02,640 --> 00:02:04,160 Speaker 2: a tough time for them. 38 00:02:05,360 --> 00:02:09,880 Speaker 1: So yeah, yeah, I can't, Like I say, I can't 39 00:02:09,919 --> 00:02:12,399 Speaker 1: even begin to imagine. 40 00:02:12,400 --> 00:02:15,000 Speaker 3: And I know that, you know, you and Lincoln have 41 00:02:15,040 --> 00:02:16,160 Speaker 3: done a lot. 42 00:02:17,639 --> 00:02:20,359 Speaker 1: Through maxis Cast for a Cure to try to support 43 00:02:20,400 --> 00:02:25,600 Speaker 1: others as well going through this really really tough journey. 44 00:02:25,639 --> 00:02:29,680 Speaker 1: And you guys, you've made a donation to Zali's family, 45 00:02:29,800 --> 00:02:30,280 Speaker 1: haven't you. 46 00:02:31,200 --> 00:02:33,960 Speaker 2: Yeah, like maxis cast for a cure. You know, we 47 00:02:33,960 --> 00:02:36,600 Speaker 2: we aim to you know, obviously fund research, but we 48 00:02:36,600 --> 00:02:39,400 Speaker 2: want to help anti families at the same time. And 49 00:02:40,000 --> 00:02:42,440 Speaker 2: we you know, gave five thousand dollars to their go fundme. 50 00:02:42,520 --> 00:02:45,080 Speaker 2: We're just hoping that it can take relieve a bit 51 00:02:45,120 --> 00:02:47,960 Speaker 2: of the pressure. You know, finances as there are no 52 00:02:48,200 --> 00:02:51,480 Speaker 2: comple living is so high at the moment, and you know, 53 00:02:51,520 --> 00:02:53,799 Speaker 2: while they're going through this that hopefully they don't have 54 00:02:53,840 --> 00:02:57,040 Speaker 2: to worry as much about rent and bills and power 55 00:02:57,120 --> 00:02:58,880 Speaker 2: and all of those things don't stop when your child 56 00:02:58,960 --> 00:03:05,560 Speaker 2: go through cancer. And that's how we try and help people. Yeah, 57 00:03:05,600 --> 00:03:09,640 Speaker 2: so it's going to be devastating for them. They're waiting 58 00:03:09,720 --> 00:03:13,040 Speaker 2: for to stabilize Ali and I think bring her home. 59 00:03:14,520 --> 00:03:18,920 Speaker 2: But hopefully the anti community can still get behind them 60 00:03:18,960 --> 00:03:21,520 Speaker 2: and you know, donate to the gohot from me because 61 00:03:21,840 --> 00:03:23,200 Speaker 2: they don't know how much time they're going to have 62 00:03:23,280 --> 00:03:26,639 Speaker 2: left with her, and that's just a devastating prognosis. 63 00:03:26,960 --> 00:03:30,840 Speaker 1: And I mean, Naomi, you like you understand this better 64 00:03:30,919 --> 00:03:34,680 Speaker 1: than better than anybody, and having gone through a similar journey, 65 00:03:34,720 --> 00:03:38,840 Speaker 1: how big a difference does it make when when you're 66 00:03:38,880 --> 00:03:42,080 Speaker 1: not sort of having to worry about money along with 67 00:03:42,240 --> 00:03:44,200 Speaker 1: everything else that you're worrying about. 68 00:03:45,040 --> 00:03:48,560 Speaker 2: Yeah, we were, you know, looking back back in twenty seventeen, 69 00:03:48,760 --> 00:03:53,000 Speaker 2: like the Darwin community got behind us, you know, so much, 70 00:03:53,080 --> 00:03:55,200 Speaker 2: and we did a go from me and they helped us, 71 00:03:55,280 --> 00:03:57,760 Speaker 2: and it was just amazing. I just didn't expect that 72 00:03:57,840 --> 00:04:02,040 Speaker 2: kind of support, you know, over the whole process through 73 00:04:02,080 --> 00:04:06,280 Speaker 2: Maxis treatment, but then obviously when eventually passed away, not 74 00:04:06,440 --> 00:04:10,800 Speaker 2: having to worry about every little bit of money made 75 00:04:10,840 --> 00:04:14,440 Speaker 2: such a huge difference. And I just hope that the 76 00:04:14,520 --> 00:04:18,120 Speaker 2: family can be supported by the anti community that we were. 77 00:04:18,320 --> 00:04:20,320 Speaker 3: Yeah, I hope so as well. 78 00:04:20,360 --> 00:04:22,919 Speaker 1: And I know that as you touched on there, a 79 00:04:22,960 --> 00:04:25,839 Speaker 1: GoFundMe page has been set up, so we'll try and 80 00:04:25,880 --> 00:04:28,400 Speaker 1: share that as well on the mixed page so that 81 00:04:28,440 --> 00:04:32,520 Speaker 1: people are able to make a donation and help their 82 00:04:32,560 --> 00:04:37,000 Speaker 1: little family. Naomi, when you guys started, you know, when 83 00:04:37,040 --> 00:04:41,839 Speaker 1: you started Max's Cars for a Cure, could you ever 84 00:04:41,880 --> 00:04:46,640 Speaker 1: have imagined just how much the community would get behind 85 00:04:47,680 --> 00:04:53,000 Speaker 1: the fishing competition and really get behind those families grappling 86 00:04:53,800 --> 00:04:55,520 Speaker 1: with this issue. 87 00:04:56,240 --> 00:05:00,120 Speaker 2: Yeah, I honestly, you know, I didn't expect it to 88 00:05:00,800 --> 00:05:02,920 Speaker 2: get a zigsa dead. I just was sitting here one 89 00:05:03,000 --> 00:05:05,760 Speaker 2: night with Lincoln and after Max passed away, we were 90 00:05:05,800 --> 00:05:07,440 Speaker 2: sort of talking what can we do. We need to 91 00:05:07,440 --> 00:05:11,760 Speaker 2: do something to one on a Max's legacy to help 92 00:05:11,839 --> 00:05:15,040 Speaker 2: families like brain cancer kills more children than any other 93 00:05:15,080 --> 00:05:18,360 Speaker 2: disease in Australia. People probably don't realize that one hundred 94 00:05:18,400 --> 00:05:22,039 Speaker 2: twenty kids are diagnosed every year and some of them 95 00:05:22,080 --> 00:05:25,240 Speaker 2: are palliative on diagnosis. There's no treatment for them. So 96 00:05:25,920 --> 00:05:28,240 Speaker 2: we want to fund research. We want to just do 97 00:05:28,279 --> 00:05:32,120 Speaker 2: what we can. We really didn't expect so many businesses 98 00:05:32,200 --> 00:05:34,960 Speaker 2: to just get behind us. It was just amazing. I 99 00:05:35,000 --> 00:05:37,520 Speaker 2: just couldn't believe it and I still can't believe it. Yes, 100 00:05:38,360 --> 00:05:41,039 Speaker 2: but we're you know, we just want to make a 101 00:05:41,080 --> 00:05:43,280 Speaker 2: small difference, even though you know as we can. 102 00:05:43,400 --> 00:05:47,520 Speaker 1: Yeah, yeah, and you know, even for the families that 103 00:05:47,600 --> 00:05:50,080 Speaker 1: you help and for the families that you support, it's 104 00:05:50,080 --> 00:05:52,880 Speaker 1: not only the financial thing, but you know, having someone 105 00:05:52,880 --> 00:05:55,600 Speaker 1: that they can talk to who has lived through these 106 00:05:55,680 --> 00:05:59,000 Speaker 1: as well must be really it must be really comforting 107 00:05:59,040 --> 00:06:01,000 Speaker 1: for those families to be able to speak to you 108 00:06:01,040 --> 00:06:01,840 Speaker 1: on Lincoln. 109 00:06:02,600 --> 00:06:05,400 Speaker 2: Well, I mean, I hope, so we try, Yeah, but 110 00:06:06,040 --> 00:06:08,000 Speaker 2: you know, they're going through the worst time of their 111 00:06:08,000 --> 00:06:11,240 Speaker 2: life right now. Yeah, I remember how much how hard 112 00:06:11,279 --> 00:06:13,440 Speaker 2: that was. You're just in a brain fog. You really 113 00:06:13,480 --> 00:06:18,440 Speaker 2: can't think straight, you know, there's so much information coming 114 00:06:18,480 --> 00:06:21,480 Speaker 2: at you. You don't know what to do. It's a really, 115 00:06:21,720 --> 00:06:24,400 Speaker 2: really hard time, and the family is very you know, 116 00:06:24,440 --> 00:06:26,920 Speaker 2: there are young families that are in the twenties, one child. 117 00:06:27,760 --> 00:06:30,960 Speaker 2: You know, this is a huge shock for them and 118 00:06:31,040 --> 00:06:33,120 Speaker 2: they've got, you know, a tough throw to head, and 119 00:06:33,120 --> 00:06:35,320 Speaker 2: I just really feel terribly for them. 120 00:06:35,560 --> 00:06:39,360 Speaker 1: Yeah, my heart and prayers go out to them at 121 00:06:39,400 --> 00:06:44,320 Speaker 1: what must be the most difficult, difficult times of their lives. Naomi, 122 00:06:44,400 --> 00:06:46,800 Speaker 1: I really appreciate your having a chat with us this morning, 123 00:06:46,839 --> 00:06:51,839 Speaker 1: and I hope that Territorians do really get behind little 124 00:06:51,960 --> 00:06:54,760 Speaker 1: Zali's family and give them the support that they need 125 00:06:54,800 --> 00:06:57,040 Speaker 1: at this point. Thank you for having a chat with 126 00:06:57,080 --> 00:06:58,760 Speaker 1: us today. 127 00:06:58,880 --> 00:07:00,000 Speaker 3: I really appreciate it. 128 00:07:00,040 --> 00:07:02,480 Speaker 1: And thank you and Lincoln for the work that you 129 00:07:02,520 --> 00:07:05,200 Speaker 1: guys continue to do for Max's Cars for a Cure. 130 00:07:05,320 --> 00:07:07,599 Speaker 3: It's phenomenal what you've created for Max. 131 00:07:08,120 --> 00:07:10,640 Speaker 2: We're planning on again this year eight to tenth of August, 132 00:07:11,560 --> 00:07:13,280 Speaker 2: having a bit of a change of location this year, 133 00:07:13,280 --> 00:07:17,440 Speaker 2: we're going to try the Free Spirit resorts so good. Yeah, 134 00:07:17,680 --> 00:07:19,680 Speaker 2: someone put their hand up and say they're happy to 135 00:07:19,680 --> 00:07:22,480 Speaker 2: host us there. So we thought we'd give it a change, 136 00:07:22,560 --> 00:07:25,320 Speaker 2: and you know, we just do what we do and 137 00:07:25,400 --> 00:07:28,600 Speaker 2: hope that we can make a little difference, you know 138 00:07:28,720 --> 00:07:30,920 Speaker 2: to brain cancer and all these kids that are affected 139 00:07:30,960 --> 00:07:34,520 Speaker 2: by it. It's devastating. It's been six children in Darwin 140 00:07:34,600 --> 00:07:38,160 Speaker 2: now and you know it doesn't seem as rare as 141 00:07:38,640 --> 00:07:42,000 Speaker 2: they sort of you know, yeah. 142 00:07:41,320 --> 00:07:42,240 Speaker 3: That's exactly right. 143 00:07:42,320 --> 00:07:45,680 Speaker 1: So six kids and Naomi, you got like you try 144 00:07:45,720 --> 00:07:47,240 Speaker 1: and help those families, don't you. 145 00:07:47,320 --> 00:07:50,360 Speaker 3: I mean, that's that's what this is all about, that's right. 146 00:07:50,480 --> 00:07:52,960 Speaker 2: Yeah, yeah, yeah, And you know we've given a lot 147 00:07:53,000 --> 00:07:54,840 Speaker 2: to research, about two hundred and thirty five k to 148 00:07:54,840 --> 00:07:59,560 Speaker 2: brain cancer research, but you know, helping families is sort 149 00:07:59,560 --> 00:08:02,360 Speaker 2: of what I'm about. I found I was really lost, 150 00:08:02,440 --> 00:08:05,160 Speaker 2: you know, all three years ago, and it was I 151 00:08:05,160 --> 00:08:06,920 Speaker 2: didn't feel like there was a huge amount of support, 152 00:08:08,360 --> 00:08:11,520 Speaker 2: and I guess I just want to make that difference 153 00:08:11,560 --> 00:08:12,320 Speaker 2: for these families. 154 00:08:13,160 --> 00:08:16,280 Speaker 1: Good on you. You're a bloody legend, Naomi. I'll say it 155 00:08:16,320 --> 00:08:19,560 Speaker 1: to Lincoln as well, but you're an absolute legend. Hey 156 00:08:19,640 --> 00:08:22,440 Speaker 1: tell me when he caught the ten thousand dollar fish. 157 00:08:22,560 --> 00:08:24,280 Speaker 1: Wasn't he meant to buy something for you? 158 00:08:24,320 --> 00:08:27,480 Speaker 2: What did he do that I was waiting in the kitchen. 159 00:08:27,560 --> 00:08:28,800 Speaker 2: Still hasn't happened. I don't know. 160 00:08:30,160 --> 00:08:33,520 Speaker 1: You've all right. 161 00:08:33,600 --> 00:08:34,520 Speaker 3: We'll get on to him. 162 00:08:34,520 --> 00:08:40,560 Speaker 1: We'll shave you on the radio to waiting. Oh Naomi, 163 00:08:40,640 --> 00:08:43,160 Speaker 1: it's lovely to talk to you. Thank you so much 164 00:08:43,240 --> 00:08:45,360 Speaker 1: for your time this morning. Thank you for the work 165 00:08:45,400 --> 00:08:46,520 Speaker 1: that you continue to do.