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Speaker 1: We know that there's always wonderful events that happened throughout

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Speaker 1: the dry season, and this weekend Walk to Defeat MND

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Speaker 1: is taking place. And joining me on the line to

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Speaker 1: tell us a little bit more about exactly what's planned

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Speaker 1: is Kirsty Mattiatzo. Good morning to you.

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Speaker 2: Kirsty, good morning, how are you?

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Speaker 1: Yeah, really good? Thank you so very much for your

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Speaker 1: time this morning. Now, Kirsty, tell us a little bit

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Speaker 1: more about what is planned for the weekend.

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Speaker 2: Yeah, so this weekend we're holding the third annual Walk

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Speaker 2: to Defeat mmvs Darwin nine am at the Jingly Water Garden.

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Speaker 2: So we have a barbecue, cold drinks for sale, free

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Speaker 2: face painting and a range of raffles as well. So

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Speaker 2: it's a five kilometer walk a loop around the Jingle

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Speaker 2: Water Gardens, totally animal, children, family friendly.

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Speaker 1: Now I know that there. You know, some people listening

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Speaker 1: may not know what MEND is. It is motor neuron disease,

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Speaker 1: and I think once you start talking about it, you

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Speaker 1: actually realize just how many people are impacted by this

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Speaker 1: terrible illness.

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Speaker 2: Yeah. Correct, it's not as known as it should be,

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Speaker 2: So tell me.

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Speaker 1: I think it's about two Aussies every day diagnosed with MND,

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Speaker 1: isn't it.

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Speaker 2: Yeah, that's right, And any given time in the territory,

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Speaker 2: we will have approximately seventeen people.

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Speaker 1: And look, I know that, I know you're not an expert,

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Speaker 1: but you are organizing this wonderful event along with a

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Speaker 1: very small team to make it happen. What it like

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Speaker 1: to those who don't really understand what MND is, you know,

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Speaker 1: but just talk us through the impacts.

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Speaker 2: Yeah, so it's basically a fatal disease where the people

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Speaker 2: afflicted will basically lose control of their body. It affects

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Speaker 2: people differently in different ways, so first of them for

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Speaker 2: someone won't be the same for somebody else. But in

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Speaker 2: the end, you'll likely lose the ability to set breed

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Speaker 2: move unassisted, which does really are not leave you very

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Speaker 2: very good.

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Speaker 1: No, it's such a and you know, it would be

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Speaker 1: an incredibly tough situation for any anybody to go through

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Speaker 1: and any family you know, to live through. And the

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Speaker 1: fact that there are up to seventeen people with MND

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Speaker 1: in the Northern Territory at any given time shows you

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Speaker 1: that it is something that impacts us and our wonderful

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Speaker 1: territorians correct now tell me with the event that is

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Speaker 1: happening on the weekend you mentioned then I think you

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Speaker 1: said five kilometers. Where do people need to go to

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Speaker 1: get involved and what can they expect exactly?

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Speaker 2: Yeah, so you need to register to attend. You can

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Speaker 2: do it online before hand, or you can also register

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Speaker 2: there on the day. It's quite a long website, so

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Speaker 2: basically just google Walk to Defeat M and D Darwin

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Speaker 2: and it's the first link. So yeah, you just register,

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Speaker 2: you come along. It's thirty dollars for adults if you

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Speaker 2: have Motorious Diseases free and then children attend dollars, pets

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Speaker 2: to six dollars.

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Speaker 1: And Kirsty, how did you get involved or what made

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Speaker 1: you really want to, you know, to be part of

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Speaker 1: this walk that is now or in its third year

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Speaker 1: in the territory.

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Speaker 2: Yeah, so I personally had my Auntie path away from

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Speaker 2: the disease in twenty seventeen and I had just noticed

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Speaker 2: through my own inquiries that there was nothing in the

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Speaker 2: territory to raise funds. So I just put in an

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Speaker 2: offer to volunteer my time and they accept it. So

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Speaker 2: here we are.

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Speaker 1: I think it's a really good thing to do because

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Speaker 1: you know, when a family is suffering from a situation

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Speaker 1: and an illness. When you've got a loved one who's

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Speaker 1: got an illness life mode and you're on disease, sometimes

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Speaker 1: you can feel very alone. So I think that when

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Speaker 1: there is a great event like the one that you

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Speaker 1: guys are having on the weekend, it really does just

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Speaker 1: show that you've got the community behind you and that

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Speaker 1: you're not alone, that people care and they want to

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Speaker 1: try to help in terms of that research and raising

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Speaker 1: money and really raising awareness.

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Speaker 2: Yeah, it's been really lovely to meet over the last

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Speaker 2: few years, to meet people in similar situations and it's

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Speaker 2: building a network, so we're really really happy with it.

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Speaker 1: Good on you guys. Thank you so very much for

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Speaker 1: having a chat with us this morning. And I hope

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Speaker 1: that you get a wonderful crowd down there and I

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Speaker 1: know that Yeah, I'm sure, I'm sure you will, and

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Speaker 1: I'm sure that there'll be plenty of money raised as well.

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Speaker 1: I know that you've raised a lot over the years.

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Speaker 2: Yeah, we were hoping to get into tenders. Yes we've

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Speaker 2: got a little bit to go, but yes, yes, we're

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Speaker 2: sort of about around fifteen thousand for the last three years.

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Speaker 1: Wonderful stuff. Well, Kirsty, thank you so very much for

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Speaker 1: your time this morning. I really appreciate it, and all

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Speaker 1: the best for the weekend.

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Speaker 2: Thank you so much, thanks for having us, thank you,

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Speaker 2: thank you.