WEBVTT - Can we support Autistic people better?

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<v Speaker 1>Already and this is this is the Daily OS. This

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<v Speaker 1>is the Dahlias. Oh now it makes sense.

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<v Speaker 2>Good morning and welcome to the Daily OS. It's Wednesday,

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<v Speaker 2>the third of April.

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<v Speaker 1>I'm sam, I'm emma.

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<v Speaker 3>And this week the Federal government released a draft strategy

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<v Speaker 3>aimed at improving the lives of Australians with autism. It

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<v Speaker 3>comes after a twenty twenty two inquiry found that outcomes

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<v Speaker 3>four autistic people in Australia were unacceptably poor.

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<v Speaker 2>So what does the strategy recommend and how could it

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<v Speaker 2>improve the lives of hundreds of thousands of Australians. In

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<v Speaker 2>today's deep dive, we're going to speak to the CEO

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<v Speaker 2>of Autism Awareness to find out more. But first, Emma,

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<v Speaker 2>what is making headlines?

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<v Speaker 3>Four international aid workers, including an Australian, have been killed

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<v Speaker 3>by an Israeli air strike, according to a fish in Gaza.

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<v Speaker 3>The workers were part of the World's Central Kitchen charity

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<v Speaker 3>located in northern Gaza. The charity said in a post

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<v Speaker 3>to X humanitarian aid workers and civilians should never be

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<v Speaker 3>a target. Prime Minister Anthony Alberanzi called the reports very

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<v Speaker 3>concerning in comments to the ABC and said the Department

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<v Speaker 3>of Foreign Affairs and Trade was urgently investigating.

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<v Speaker 2>National house prices increased by an average of around twelve

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<v Speaker 2>thousand dollars or one point six percent in the first

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<v Speaker 2>three months of twenty twenty four. That's according to the

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<v Speaker 2>latest findings from property data firm core Logic. It's also

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<v Speaker 2>the fourteenth consecutive month property values have risen. Rents were

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<v Speaker 2>up two point eight percent in the last three months,

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<v Speaker 2>with unit rent prices rising faster than housing rents across

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<v Speaker 2>the capital cities.

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<v Speaker 3>The Democratic Republic of Congo has appointed its first female

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<v Speaker 3>Prime Minister, Judith Sumnwar Teluca, will take on the role

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<v Speaker 3>of PMS amid increased violence across the country. Teluka, an economist,

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<v Speaker 3>was previously Minister for Planning. Speaking on national television, she

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<v Speaker 3>said she is aware of the great responsibility of the

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<v Speaker 3>role of PM and that she will work for peace

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<v Speaker 3>and the development of the country. There are over seven

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<v Speaker 3>million displaced people in Congo. According to the United Nations.

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<v Speaker 2>And Today's Good News, free flu shots are now available

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<v Speaker 2>in Queensland ahead of the flu season. Queenslanders above six

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<v Speaker 2>months old will be able to access the vaccine at

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<v Speaker 2>local GPS and pharmacies. State Health Minister Shannon Fentamen said

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<v Speaker 2>that nearly all people presenting to hospital with the flu

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<v Speaker 2>last year had not been vaccinated, and that offering free

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<v Speaker 2>vaccines will aim to reduce the number of people in hospital.

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<v Speaker 3>So am I.

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<v Speaker 2>Yesterday we learnt that the government is looking to improve

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<v Speaker 2>the lives of Australians with autism through this draft National

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<v Speaker 2>Auto Strategy. But I want to back up a little

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<v Speaker 2>bit on this story. First, while autism is very common

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<v Speaker 2>and there's a good chance our listeners right now know

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<v Speaker 2>somebody with autism or have been diagnosed themselves, what is

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<v Speaker 2>it exactly?

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<v Speaker 3>Yeah, I'm sure most people have, as you say, heard

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<v Speaker 3>of autism or know someone with autism. But to be specific,

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<v Speaker 3>autism spectrum disorder, and that word spectrum is something that

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<v Speaker 3>comes up a lot in this conversation. Is a condition

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<v Speaker 3>diagnosed through developmental assessments and behavioral observations. So there are

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<v Speaker 3>about two hundred and five thousand Aussies who've been diagnosed

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<v Speaker 3>with autism, and it is important to note that autistic

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<v Speaker 3>Australians are almost eight times more likely to be unemployed

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<v Speaker 3>than the rest of the population. This is the kind

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<v Speaker 3>of key difference in outcomes that has inspired conversation and inquiry,

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<v Speaker 3>recommendations and now this strategy, this draft strategy we're talking

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<v Speaker 3>about today.

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<v Speaker 2>So we have the draft in our hands, we can

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<v Speaker 2>flick through it, we can read it. What does it

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<v Speaker 2>propose exactly?

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<v Speaker 3>Basically it is a huge document which identifies the key

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<v Speaker 3>challenges facing people with autism and from those challenges proposed

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<v Speaker 3>measures to improve their lives. So this is across key

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<v Speaker 3>areas ranging from social health, economic, educational, workplace outcomes. But

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<v Speaker 3>there is a lot there. So we really wanted to

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<v Speaker 3>talk to someone who understands this world, who knows their

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<v Speaker 3>staff when it comes to autism in Australia and the

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<v Speaker 3>importance of this strategy. So today we're talking to Nicole Rogerson.

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<v Speaker 3>She is the CEO of Autism Awareness Australia and she

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<v Speaker 3>joins us Now. Nicole, thank you for joining us on

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<v Speaker 3>the podcast today.

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<v Speaker 1>Welcome, Thanks so much for having me.

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<v Speaker 3>So we're talking about the draft National Autism Strategy released

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<v Speaker 3>this week. What can you tell me very top line

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<v Speaker 3>about this plan? Why is it important?

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<v Speaker 4>Look, I think it's a really positive step. Australia needs

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<v Speaker 4>a national Autism strategy the same way it has a

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<v Speaker 4>national Disability strategy. A lot of other countries have them,

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<v Speaker 4>and it's important to have an overarching idea of what

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<v Speaker 4>we know we need to do to improve the lives

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<v Speaker 4>of Australians with autism. In saying that, it is a

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<v Speaker 4>very big laundry list of things that, to be honest,

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<v Speaker 4>we've known for a really long time were the issues.

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<v Speaker 4>And I guess where I'm a little bit more focused

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<v Speaker 4>on is great to have a strategy, but how we're

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<v Speaker 4>going to execute on that, How are we actually going

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<v Speaker 4>to do it? Because it's a very complex document that

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<v Speaker 4>covers off an enormous amount of issues across a lot

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<v Speaker 4>of different areas.

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<v Speaker 3>To understand the scope I suppose of the strategy you've

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<v Speaker 3>kind of touched on, I think maybe it would be

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<v Speaker 3>helpful for us to understand perhaps some of the challenges

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<v Speaker 3>that people with autism live with every day. Of course

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<v Speaker 3>it's a spectrum, but what are the kinds of challenges

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<v Speaker 3>that people in the community are facing and how does

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<v Speaker 3>that inform this strategy.

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<v Speaker 4>Yeah, I think the challenges that they've really focused on

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<v Speaker 4>in this particular strategy are those of social inclusion, so

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<v Speaker 4>being included as a valued member of your community or

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<v Speaker 4>your school community, I think they're focused on mental health issues,

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<v Speaker 4>which can be very difficult for people across the spectrum.

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<v Speaker 4>And obviously access to employment is another huge effect that

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<v Speaker 4>it will have on individuals with autism. We know they

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<v Speaker 4>are eight times more likely to be unemployed. So there

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<v Speaker 4>are a whole range of really important and significant things

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<v Speaker 4>listed in this strategy. But it's more than that. It's

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<v Speaker 4>not just those things. It's housing, it's schooling, it's mental

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<v Speaker 4>health provisions. But how do we support people with autism

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<v Speaker 4>in a way that's appropriate for them as opposed to

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<v Speaker 4>potentially mental health strategies that might work with people without autism.

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<v Speaker 4>You know, there's just so much complexity here. I think

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<v Speaker 4>the top takeaway is everybody in Australia who had any

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<v Speaker 4>views on this thought it would be a good idea

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<v Speaker 4>to come together have a strategy.

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<v Speaker 1>They did that, Tick, let's.

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<v Speaker 4>Consult with lots of people, lots of different groups so

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<v Speaker 4>everyone feels heard and the strategy was co designed. I

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<v Speaker 4>think Tick, they did that, what do we do about it?

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<v Speaker 4>And I think that's where I land. And this is

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<v Speaker 4>really just because I've spent twenty five years in this

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<v Speaker 4>sector and some of the issues that are listed in

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<v Speaker 4>this strategy were true when my son was diagnosed back

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<v Speaker 4>in nineteen ninety nine. So I can't help it to

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<v Speaker 4>be a tad cynical about all of a sudden our

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<v Speaker 4>ability to be able to tackle these things. But my

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<v Speaker 4>old lady citicism should not get in the way of

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<v Speaker 4>the fact it's a great strategy, Jock. It lists out

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<v Speaker 4>a lot of the things that we need to do.

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<v Speaker 4>I'm just going to focus my organization's attention on making

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<v Speaker 4>sure we execute this strategy.

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<v Speaker 3>One of the biggest issues in autism is always diagnosis,

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<v Speaker 3>that first step or that first barrier to kind of support.

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<v Speaker 3>Can you give us a bit of context on what

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<v Speaker 3>diagnosis looks like in Australia at the moment and why

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<v Speaker 3>that might not be working.

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<v Speaker 4>It looks really differently depending on what age you're talking about.

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<v Speaker 4>So we know we pretty reliably can diagnose children as

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<v Speaker 4>young as eighteen months to two years if the signs

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<v Speaker 4>are there. So if we're doing the right kind of

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<v Speaker 4>assessments at those ages, we can pick this up really early,

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<v Speaker 4>and that is ideal to start early intervention as early

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<v Speaker 4>as we possibly can. But just meaning that if a

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<v Speaker 4>child has a developmental delay, the sooner we can catch

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<v Speaker 4>that delay up, that's what we want to do and

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<v Speaker 4>support that child the way they need support. The problem

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<v Speaker 4>then becomes some children with milder forms of autism, particularly

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<v Speaker 4>those in girls, may get missed at that age because

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<v Speaker 4>they might not be displaying some of the behavioral characteristics

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<v Speaker 4>that will go on to meet criteria for autism. Because remember,

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<v Speaker 4>there's no blood test here, there's no way to find

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<v Speaker 4>out if you've got autism. It's really an observational diagnosis.

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<v Speaker 4>So those kids can sometimes get missed until they go

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<v Speaker 4>to school. But then there's this another complete different cohort

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<v Speaker 4>who may be missed all together. And I think this

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<v Speaker 4>has been the biggest growth we've seen in autism diagnoses

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<v Speaker 4>in the last year, those of adults who have gone

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<v Speaker 4>through life and struggled with a number of things and

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<v Speaker 4>not really known what to call it, and then later

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<v Speaker 4>in life they find out that they actually meet criteria

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<v Speaker 4>for an autism diagnosis.

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<v Speaker 3>So what does the strategy table about improving diagnosis, whether

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<v Speaker 3>that's improving rates, improving costs, access practitioners, what's it suggested.

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<v Speaker 4>I think it's all on the table, and it's pretty

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<v Speaker 4>light on the detail. At this point in time. You know,

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<v Speaker 4>there's a recognition that we need to do better. It

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<v Speaker 4>might be a discussion whether this becomes a medicare rebatable.

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<v Speaker 4>There's sort of some early suggestions in there, but this

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<v Speaker 4>is by this strategy has not done a deep dive

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<v Speaker 4>in how to solve these problems. It is a list

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<v Speaker 4>of the problems and areas that we need to concentrate in.

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<v Speaker 4>But again, it's never going to happen unless we have

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<v Speaker 4>an execution plan for this strategy.

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<v Speaker 3>The strategy also touches on visibility and representation of autism

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<v Speaker 3>in the national media sport arts. What is the importance

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<v Speaker 3>of visibility, Why is that included in this strategy?

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<v Speaker 1>What does that mean to the community.

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<v Speaker 4>If you live with a condition, whatever it is, whether

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<v Speaker 4>it be autism or whatever your hasens to be, the

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<v Speaker 4>more society understands it, understands you and understand how it affects.

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<v Speaker 1>You, the easier it is for you.

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<v Speaker 4>You know, it's just as simple as that people will

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<v Speaker 4>understand where you are and having that visibility and to

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<v Speaker 4>be seen and to be understood is really important to

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<v Speaker 4>the community. But we've got big issues here. Representation is

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<v Speaker 4>not the thing that's getting in the way of actively

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<v Speaker 4>supporting individuals with autism.

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<v Speaker 1>What happens next?

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<v Speaker 3>You know, there's this sort of feedback process, a public consultation.

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<v Speaker 1>How does that actually work?

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<v Speaker 3>And if people are listening, who you know, either are

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<v Speaker 3>living with autism, love someone with autism, or in this

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<v Speaker 3>space and they feel your kind of frustrations, what can

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<v Speaker 3>they do about that?

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<v Speaker 4>Do you know? It's a really good question.

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<v Speaker 1>And I know that what you said was right.

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<v Speaker 4>People tend to think this is bureaucratic, that's a submission

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<v Speaker 4>into a inquiry, and that all seems hard and.

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<v Speaker 1>I can't do it.

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<v Speaker 4>What I would really encourage people to do is jump

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<v Speaker 4>on and read the strategy. And even if you can't

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<v Speaker 4>be bothered to do that on the government website, they've

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<v Speaker 4>actually got a great thing called an easy Read which

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<v Speaker 4>is designed for people with intellectual disabilities to be able

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<v Speaker 4>to read these reports. But I find them very helpful

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<v Speaker 4>for me too, So by all means, you know, have

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<v Speaker 4>a little look at it. What I would really encourage

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<v Speaker 4>people to do is if it all seems too much

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<v Speaker 4>and it's too big and the scope is too much,

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<v Speaker 4>just go back to the inquiry and give them your

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<v Speaker 4>thoughts on the bit that really matters. To you. So

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<v Speaker 4>if employment is your focus at the moment, just go

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<v Speaker 4>and write your story about what that's meant for you,

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<v Speaker 4>what you find about the strategy that you think would work,

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<v Speaker 4>what would really help you, or what you think might

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<v Speaker 4>be a bit silly. I think no submission is not

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<v Speaker 4>considered realistically.

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<v Speaker 3>What is the kind of timeline and process. Then you know,

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<v Speaker 3>after we get the feedback submitted, public consultation is over.

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<v Speaker 3>That closes at the end of May. What happens to

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<v Speaker 3>the strategy from there?

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<v Speaker 4>I think it gets panel beat it into a better

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<v Speaker 4>kind of looking document, and I think it will be

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<v Speaker 4>released by the end of the year. What I don't

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<v Speaker 4>want to happen is in six months, we get together,

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<v Speaker 4>we talk about it to release, everyone pats itself on

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<v Speaker 4>the back, and it goes and sits on a shelf somewhere.

0:12:15.720 --> 0:12:18.720
<v Speaker 4>I would like this to be a working living strategy document,

0:12:19.240 --> 0:12:21.400
<v Speaker 4>and we split the list and you go and do that,

0:12:21.440 --> 0:12:22.920
<v Speaker 4>and you do that, and you do that, and it's

0:12:22.920 --> 0:12:25.360
<v Speaker 4>an activity and we get it done and we start

0:12:25.880 --> 0:12:27.840
<v Speaker 4>chiseling away at some of these issues that we have

0:12:27.960 --> 0:12:30.720
<v Speaker 4>known for a long time were difficult for people with autism.

0:12:30.800 --> 0:12:33.319
<v Speaker 4>There is honestly not a lot new in this strategy.

0:12:33.640 --> 0:12:35.920
<v Speaker 4>We've known it now, it's what are we going to do.

0:12:35.880 --> 0:12:38.640
<v Speaker 1>About it in five years time?

0:12:39.320 --> 0:12:43.560
<v Speaker 3>And considering the impact on your life and your son's

0:12:43.600 --> 0:12:45.760
<v Speaker 3>life being in this community.

0:12:45.360 --> 0:12:48.680
<v Speaker 1>How would you like your life to change?

0:12:48.720 --> 0:12:51.120
<v Speaker 3>What are the sort of achievable short term goals that

0:12:51.200 --> 0:12:53.520
<v Speaker 3>maybe in five years time we get this awesome round

0:12:53.559 --> 0:12:58.400
<v Speaker 3>of lived experience feedback, we re polish the plan things.

0:12:58.440 --> 0:13:01.000
<v Speaker 3>A legislator, the world is looking better. What does that

0:13:01.040 --> 0:13:02.000
<v Speaker 3>world look like to you?

0:13:02.679 --> 0:13:06.240
<v Speaker 4>Oh, that's so complex, And because to be honest, you know,

0:13:06.400 --> 0:13:08.920
<v Speaker 4>my family are some of the lucky ones. My son

0:13:09.160 --> 0:13:12.680
<v Speaker 4>is an absolute delight and through a lot of luck

0:13:12.760 --> 0:13:14.720
<v Speaker 4>and a lot of intervention and a lot of support,

0:13:15.120 --> 0:13:19.079
<v Speaker 4>he has a really happy existence. And autism doesn't play

0:13:19.200 --> 0:13:21.800
<v Speaker 4>a negative role in our family. If anything, it's quite

0:13:21.800 --> 0:13:24.920
<v Speaker 4>a positive role. And so you've got to understand, autism

0:13:24.960 --> 0:13:27.120
<v Speaker 4>is my whole community, it's what I work with that

0:13:27.120 --> 0:13:29.840
<v Speaker 4>they're all of my friends, they're my my son's friends.

0:13:29.880 --> 0:13:32.520
<v Speaker 4>You know, I live in this community twenty four to seven.

0:13:32.720 --> 0:13:34.880
<v Speaker 4>So what I want at the end of all of

0:13:34.920 --> 0:13:36.839
<v Speaker 4>this is for everything to just be a little less

0:13:36.840 --> 0:13:39.840
<v Speaker 4>difficult for everybody. There are certain parts about autism that

0:13:39.880 --> 0:13:43.240
<v Speaker 4>we can't change. For some people, the sensory issues are

0:13:43.280 --> 0:13:46.680
<v Speaker 4>just too hard and living in a very loud, obnoxious,

0:13:47.000 --> 0:13:49.280
<v Speaker 4>bright world is not something we can change for them.

0:13:49.320 --> 0:13:51.720
<v Speaker 4>We can make some accommodations here and there, but I

0:13:51.800 --> 0:13:55.959
<v Speaker 4>can't change the world to easily make sure it accommodates

0:13:56.080 --> 0:13:59.400
<v Speaker 4>my autistic child in every way, shape or form possible.

0:13:59.400 --> 0:14:01.400
<v Speaker 4>We have to be realistic about that. You can say

0:14:01.679 --> 0:14:03.720
<v Speaker 4>we need the world to accept autism. I want the

0:14:03.720 --> 0:14:06.920
<v Speaker 4>world to change to be more accepting. Okay, that would

0:14:06.960 --> 0:14:09.120
<v Speaker 4>be nice, but the world isn't accepting of lots of

0:14:09.120 --> 0:14:11.680
<v Speaker 4>different people actually, So we have to find ways to

0:14:11.760 --> 0:14:15.719
<v Speaker 4>support our loved ones in our community and inform our

0:14:15.800 --> 0:14:20.120
<v Speaker 4>institutions and our society so that that just makes those

0:14:20.200 --> 0:14:24.400
<v Speaker 4>interactions less and less fractious. And if we keep moving

0:14:24.480 --> 0:14:27.360
<v Speaker 4>towards that, and we keep understanding that it's not just autism,

0:14:27.520 --> 0:14:30.160
<v Speaker 4>how do we feel about difference, How do we get along?

0:14:30.240 --> 0:14:32.440
<v Speaker 4>How do we stop yelling at one another? There are

0:14:32.480 --> 0:14:35.400
<v Speaker 4>so many areas that this kind of traverses a lot

0:14:35.400 --> 0:14:37.200
<v Speaker 4>of the problems that we're talking about. What we need

0:14:37.240 --> 0:14:40.359
<v Speaker 4>to fix here we need to fix more broadly in Australia,

0:14:40.480 --> 0:14:43.040
<v Speaker 4>for those with mental health conditions and for those who

0:14:43.120 --> 0:14:46.320
<v Speaker 4>are finding modern society just quite frankly difficult. And I

0:14:46.360 --> 0:14:47.640
<v Speaker 4>think that's a lot of Australians.

0:14:47.680 --> 0:14:51.280
<v Speaker 2>Now, thanks for that chat em, and thank you for

0:14:51.360 --> 0:14:54.080
<v Speaker 2>joining us on the Daily OS if you're interested in

0:14:54.200 --> 0:14:57.920
<v Speaker 2>learning more about the strategy and submitting public feedback. As

0:14:58.000 --> 0:15:00.920
<v Speaker 2>Emma and Cole discussed, there's a leak think in today's

0:15:01.040 --> 0:15:04.560
<v Speaker 2>show notes ullyak again in is tomorrow morning. Until then,

0:15:04.720 --> 0:15:09.680
<v Speaker 2>have a great Wednesday. My name is Lily Maddon and

0:15:09.720 --> 0:15:13.480
<v Speaker 2>I'm a proud Arunda Bunjelung Calcotin woman from Gadighl Country.

0:15:14.320 --> 0:15:17.480
<v Speaker 2>The Daily oz acknowledges that this podcast is recorded on

0:15:17.480 --> 0:15:20.000
<v Speaker 2>the lands of the Gadighl people and pays respect to

0:15:20.040 --> 0:15:23.360
<v Speaker 2>all Aboriginal and torrest Rate island and nations. We pay

0:15:23.400 --> 0:15:26.280
<v Speaker 2>our respects to the first peoples of these countries, both

0:15:26.400 --> 0:15:27.280
<v Speaker 2>past and present.