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Speaker 1: We know that there is a wonderful event that's organized

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Speaker 1: for this weekend now, A five kilometer walk is happening

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Speaker 1: on Sunday. It's aimed to support territory families who've been

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Speaker 1: impacted by motor neuron disease. It is now in its

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Speaker 1: fifth year and organizers are hoping to raise awareness of

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Speaker 1: the debilitating condition and smash last year's fundraising effort of

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Speaker 1: twenty thousand dollars. That is absolutely awesome from last year.

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Speaker 1: So joining me on the line is walk to defeat MND.

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Speaker 1: Organizer Tamara Henderson, I'm just having some issues with my

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Speaker 1: phone line. Actually, let me just see whether I'm able

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Speaker 1: to get her on there. Hopefully I've got tomorrow now.

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Speaker 1: Good morning tomorrow.

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Speaker 2: Good morning Katie. How you doing?

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Speaker 1: Yeah, really good, Great to have you on the show

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Speaker 1: now tomorrow. Firstly, tell us what is MND for anyone

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Speaker 1: listening this morning who's not familiar with the disease.

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Speaker 2: In your own, disease is when your muscles start breaking

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Speaker 2: down and they stop working. So any part of your

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Speaker 2: body that needs a muscle to do what it does,

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Speaker 2: like breathing, blinking, swallowing, walking, can be affected. And it

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Speaker 2: really it depends on each person as to what's affected,

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Speaker 2: in what way and how quickly it affects the body.

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Speaker 2: Some people can take years and years and years to

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Speaker 2: get to the point where it's end of life, and

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Speaker 2: other people can be within eighteen months.

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Speaker 1: How prevalent is it in the Northern territory.

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Speaker 2: For what I was what I understand, we've got at

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Speaker 2: least ten people at all times in the territory that

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Speaker 2: are affected by it. That number can go up and down,

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Speaker 2: but it sort of seems fairly constant at that and

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Speaker 2: that's people that are registered with Modern Your Own Disease

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Speaker 2: New South Wales. So they could possibly be people out

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Speaker 2: there that are affected that don't get the support from

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Speaker 2: MND that they should that they can.

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Speaker 1: Yeah, So tomorrow Watts planned for the walk on Sunday, Well, we've.

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Speaker 2: Got a we need people to come down. Walk starts

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Speaker 2: at nine o'clock. After the walk's finished, we're going to

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Speaker 2: be having sausage sizzle. We've actually got wicked and idea

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Speaker 2: coming down. They're going to give us the do US

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Speaker 2: a drink station this year because they're.

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Speaker 1: Awesome, awesome.

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Speaker 2: We have so many people that are that are willing

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Speaker 2: to help out this year. Our sponsors alone have reached

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Speaker 2: five thousand dollars already this year and that's just sponsorships.

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Speaker 2: So we've also got a raffle price raffle going. So

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Speaker 2: we've got some amazing prizes from various businesses around Palmerston

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Speaker 2: and Darwin. So you know, we've got vouchers from Valentine's,

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Speaker 2: We've got vouchers from Access Pilates. They're near for us

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Speaker 2: this year.

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Speaker 1: Plenty of sponsors ready to help out. Where and when

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Speaker 1: is it happening exactly?

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Speaker 2: So Jingly Water Gardens. Yep, if you get down just

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Speaker 2: before nine o'clock, walks outs at nine. Yeah, come on

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Speaker 2: down and come and join us. We've got face paint

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Speaker 2: is coming. It's going to be really really fun morning.

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Speaker 1: It sounds like going to be a lovely event for

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Speaker 1: the whole family. How many people are you hoping or

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Speaker 1: are you maybe expecting this year?

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Speaker 2: Well, this is Darwin. So last year I think on

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Speaker 2: Friday afternoon we had five people registered, we had thirty

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Speaker 2: people turn up. Isn't that the.

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Speaker 1: Worst when you're trying to organize something in Darwin? It

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Speaker 1: happens with everything tomorrow?

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Speaker 2: Oh yes, yes, it's Darwin. Last minute dot com We

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Speaker 2: already have thirty people registered, including a dog, So so

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Speaker 2: bring a dog down, bring your kids down. It's a

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Speaker 2: good fun morning. And it's right down near where the

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Speaker 2: so we're sort of separated from where the playground is,

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Speaker 2: but you can still see your kids there.

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Speaker 1: Yeah. Now, tell me in terms of the fundraising, what

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Speaker 1: is that money being raised for. What's it going to

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Speaker 1: go towards?

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Speaker 2: This year? They've got lots of little things coming up,

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Speaker 2: so it's really hard to list all all the stuff

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Speaker 2: that Last year, I had forteen thousand dollars worth of

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Speaker 2: this specialized equipment come up to dal On itself, and

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Speaker 2: then they had a similar amount go down to Alice Springs.

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Speaker 2: So they've also purchased over the years. It's a specialized wheelchair,

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Speaker 2: so it actually helps the person in the wheelchair be

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Speaker 2: able to stand up, so they'll come from sitting like

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Speaker 2: it raises them up so that they can stand up

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Speaker 2: without having to put too much pressure on the care

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Speaker 2: to be able to lift them up. And that's that's

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Speaker 2: really important for caras because Backsafe. They've also sending up

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Speaker 2: some specialized iPads because with your decrease mobility, it's harder

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Speaker 2: to press on everything on the iPad, so this is

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Speaker 2: actually bigger area for letters and things. So it's it's

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Speaker 2: the small things and even just being able to google

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Speaker 2: something is you know, it can get really hard, but.

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Speaker 1: They're massive to people's lives and being able to live,

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Speaker 1: you know, live as normally as possible, or be able

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Speaker 1: to do things as normally as as they used to do.

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Speaker 2: Yeah, so we a couple of years ago, we had

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Speaker 2: a couple that were traveling around Australia. That husband had

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Speaker 2: M and D and he couldn't swallow anymore. So but

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Speaker 2: he could, you know, still walk around, still enjoys everything,

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Speaker 2: just wasn't able to actually swallow, so he would have

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Speaker 2: to his wife would have to actually put water into

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Speaker 2: his mouth, like just so he didn't get dry mouth

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Speaker 2: all the time. So it's the small things that can happen.

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Speaker 2: And in the energy, you've become trapped in your body,

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Speaker 2: so your brain's still going. Jesus would be still in there.

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Speaker 1: Yeah, it must be so tough for those families and

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Speaker 1: and you know for those living with MND, which is

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Speaker 1: why this weekend and this walk is so important. So

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Speaker 1: where can people go if they're keen to register?

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Speaker 2: Okay, so we have a Facebook page. If all right,

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Speaker 2: mm D Community darling yeap is the facebook page? Or

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Speaker 2: if you google MMD, walk down and it'll come up.

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Speaker 1: Yeah, well tomorrow it sounds like it's going to be

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Speaker 1: a fantastic event. Thank you so much for having a

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Speaker 1: chat with us this morning. And I reckon you're going

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Speaker 1: to raise heaps of money and I hope you get

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Speaker 1: plenty of people there as well.

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Speaker 2: Yeah, it's always a really good, really good morning. And

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Speaker 2: the biggest part that I find the participants get out

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Speaker 2: of it is the support that you find from people

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Speaker 2: that have been there, done that. So last year we

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Speaker 2: had a family where a member had just been diagnosed

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Speaker 2: and they were at the they're at the start of

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Speaker 2: their journey, and there were people there going, well, you know,

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Speaker 2: this is what's available, this is what can help. Some

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Speaker 2: have a coffee with us, we can talk about it.

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Speaker 1: That's a really important thing for people going through that

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Speaker 1: journey to hear and to have others around them who

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Speaker 1: are able to, you know, to provide that bit of

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Speaker 1: support and that bit of help.

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Speaker 2: Yeah, and it's such a hard disease and you know,

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Speaker 2: NT is so separated from everything else. It's the community's

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Speaker 2: support is really important for people.

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Speaker 1: You're sport on well tomorrow. Henderson. It is lovely to

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Speaker 1: speak with you this morning. Thank you so much for

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Speaker 1: joining us and all the best for the weekend.

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Speaker 2: Thank you for your time.

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Speaker 1: Thank you