1 00:00:05,200 --> 00:00:07,800 Speaker 1: Hey, this is Annie and Samantha. I'm welcome to stuff 2 00:00:07,800 --> 00:00:18,680 Speaker 1: I've never told your production of I Heart Radio, and 3 00:00:18,800 --> 00:00:21,720 Speaker 1: today we are so so so excited to be joined 4 00:00:21,760 --> 00:00:26,759 Speaker 1: by Kristin Nobles of the new podcast Close to the Chest. Hi, Kristen, 5 00:00:27,000 --> 00:00:30,360 Speaker 1: Hi both of you. This is incredible. Thank you, thank 6 00:00:30,400 --> 00:00:32,080 Speaker 1: you so much for being here. I'm talking, Lie. I'm 7 00:00:32,080 --> 00:00:34,239 Speaker 1: sitting here staring at your background. I'm like, is that 8 00:00:34,280 --> 00:00:37,000 Speaker 1: tu Buck? It is? And I'm I'm an artist, so 9 00:00:37,320 --> 00:00:40,400 Speaker 1: oh this is this your world? It's amazing. I love that. 10 00:00:40,880 --> 00:00:43,240 Speaker 1: So sorry. I had a moment I'm sitting here talking 11 00:00:43,240 --> 00:00:46,400 Speaker 1: and I'm like, wait, yeah, see I looked at the 12 00:00:46,520 --> 00:00:52,400 Speaker 1: art beforehand, and there's some Carrie Fisher art. A huge 13 00:00:53,440 --> 00:00:58,560 Speaker 1: Carrie Fisher fan. This is very exciting for me. Yeah, 14 00:00:59,520 --> 00:01:01,360 Speaker 1: well we were. We're sending it to you because we're 15 00:01:01,400 --> 00:01:04,120 Speaker 1: doing actually the she wrote collection. And I have a 16 00:01:04,200 --> 00:01:07,959 Speaker 1: dog named Leia after Princess Leiah, so oh my god, 17 00:01:08,840 --> 00:01:11,400 Speaker 1: you're speaking her language. You are never going to forget 18 00:01:11,440 --> 00:01:13,640 Speaker 1: this moment if you were to get to Oh my goodness, 19 00:01:14,120 --> 00:01:18,920 Speaker 1: I like literally waping my hands at my cheek right now. 20 00:01:18,959 --> 00:01:22,399 Speaker 1: I'm so excited at this prospect um. So yes, We're 21 00:01:22,480 --> 00:01:24,280 Speaker 1: very excited to have you. Thank you for joining us 22 00:01:24,760 --> 00:01:32,240 Speaker 1: from California, uh to Urany, Atlanta in our home podcast studios. So, Kristen, 23 00:01:32,280 --> 00:01:36,480 Speaker 1: could you tell the listeners a little about yourself and 24 00:01:36,640 --> 00:01:40,759 Speaker 1: the show. Well, the short version is I was sick 25 00:01:40,800 --> 00:01:45,160 Speaker 1: for over twenty plus years. I had debilitating illnesses from 26 00:01:45,200 --> 00:01:49,400 Speaker 1: you know, inability to digest food, to epilepsy and all 27 00:01:49,440 --> 00:01:53,520 Speaker 1: sorts of strange symptoms that I found out came from 28 00:01:53,560 --> 00:01:57,080 Speaker 1: a reaction my body was having to breast implants, so 29 00:01:57,200 --> 00:02:00,400 Speaker 1: my heart stopped twice. I was losing organs limb. It 30 00:02:00,440 --> 00:02:03,520 Speaker 1: was pretty unbelievable, and that's kind of how the art 31 00:02:03,560 --> 00:02:05,080 Speaker 1: came into play, because it was a way to deal 32 00:02:05,120 --> 00:02:07,680 Speaker 1: with my pain and just something you can do at 33 00:02:07,680 --> 00:02:11,880 Speaker 1: home without freaking other people out. And about three years ago, 34 00:02:11,880 --> 00:02:13,640 Speaker 1: a doctor came in and said to me, and I 35 00:02:13,680 --> 00:02:16,119 Speaker 1: see you. I was suffering from a terrible brain infection 36 00:02:16,440 --> 00:02:18,800 Speaker 1: and she said she believed I was having an immune 37 00:02:18,800 --> 00:02:22,440 Speaker 1: response to implants. This was something they were just really 38 00:02:22,480 --> 00:02:25,520 Speaker 1: starting to understand more about, but was not even like 39 00:02:25,560 --> 00:02:29,679 Speaker 1: a formal medical disease yet. So we ended up doing 40 00:02:29,720 --> 00:02:33,000 Speaker 1: a surgery. I unfortunately chose to do something called to 41 00:02:33,040 --> 00:02:35,760 Speaker 1: swap out and I found out later that was the 42 00:02:35,760 --> 00:02:38,840 Speaker 1: wrong twice, and I went from horribly sick to almost dead. 43 00:02:40,000 --> 00:02:42,720 Speaker 1: And I went to a good friend of mine, Christine Torres, 44 00:02:42,760 --> 00:02:45,960 Speaker 1: who we have a lot like you guys, and just 45 00:02:46,000 --> 00:02:48,560 Speaker 1: really went to her as a former prosecutor, and said, 46 00:02:48,560 --> 00:02:51,240 Speaker 1: how did this happen? What can we do? And she 47 00:02:51,360 --> 00:02:54,440 Speaker 1: had turned filmmaker, and long story short, we decided to 48 00:02:54,480 --> 00:02:57,640 Speaker 1: create Close to the Chest because they were starting to 49 00:02:57,680 --> 00:03:00,120 Speaker 1: recognize b I I, but I didn't want women to 50 00:03:00,200 --> 00:03:03,239 Speaker 1: take that left turn into the wrong treatment in protocol 51 00:03:03,360 --> 00:03:06,480 Speaker 1: like I had, and I really wanted to create kind 52 00:03:06,480 --> 00:03:09,480 Speaker 1: of a resource guide when it started for women to 53 00:03:09,520 --> 00:03:11,320 Speaker 1: be able to no matter where you were at, if 54 00:03:11,320 --> 00:03:13,519 Speaker 1: you just found out or if you were a post explant, 55 00:03:14,120 --> 00:03:16,120 Speaker 1: to get real facts because there was a lot of 56 00:03:16,160 --> 00:03:18,280 Speaker 1: you know, quote fake news out there on the issue. 57 00:03:18,960 --> 00:03:21,639 Speaker 1: And as we learned more, I started to meet hundreds, 58 00:03:21,680 --> 00:03:23,880 Speaker 1: if not thousands of women that were not only going 59 00:03:23,919 --> 00:03:26,919 Speaker 1: through this, but there was not real coverage financially for it. 60 00:03:27,960 --> 00:03:30,280 Speaker 1: So then I got piste off and passionate about using 61 00:03:30,280 --> 00:03:32,440 Speaker 1: it as a platform to build some sort of a 62 00:03:32,480 --> 00:03:36,240 Speaker 1: program to help women. So we started the podcast We're 63 00:03:36,320 --> 00:03:39,840 Speaker 1: halfway through the season, and she has been incredible to 64 00:03:39,960 --> 00:03:42,080 Speaker 1: be part of this and help me really research and 65 00:03:42,160 --> 00:03:45,600 Speaker 1: understand it and attack the problem, not the people. And 66 00:03:45,720 --> 00:03:50,240 Speaker 1: I'm proud to report we're meeting incredible advocates, doctors, you know, survivors, 67 00:03:50,840 --> 00:03:55,520 Speaker 1: drivers in recently. Last week, the FDA created a warning 68 00:03:55,640 --> 00:03:58,720 Speaker 1: that will be issued to women, so hopefully it's working. 69 00:03:59,080 --> 00:04:01,839 Speaker 1: Oh wow, so it was you've been just last weight 70 00:04:01,960 --> 00:04:06,440 Speaker 1: there now just approved to put that warning. That's oh 71 00:04:06,520 --> 00:04:09,280 Speaker 1: my god, that's infuriating. And you said b I I. 72 00:04:09,480 --> 00:04:13,960 Speaker 1: So that stands for breast implant illness. Correct. Yes, Like 73 00:04:14,000 --> 00:04:16,200 Speaker 1: we talked about at the beginning with names. When I 74 00:04:16,240 --> 00:04:18,760 Speaker 1: first put I am b I I on LinkedIn and everywhere, 75 00:04:18,960 --> 00:04:21,360 Speaker 1: I got all sorts of pride stuff because they thought 76 00:04:21,360 --> 00:04:29,360 Speaker 1: I came out of No, I'm not that exciting, I wish. 77 00:04:29,480 --> 00:04:32,080 Speaker 1: So how long did it take you to get actual diagnosis? 78 00:04:32,080 --> 00:04:33,440 Speaker 1: And then you said that when they were talking to 79 00:04:33,440 --> 00:04:35,520 Speaker 1: you about it was fairly new. So how long did 80 00:04:35,640 --> 00:04:38,240 Speaker 1: this process did it actually take for you to get 81 00:04:38,279 --> 00:04:44,400 Speaker 1: this diagnosis? Twenty one years? Wow? Until then you were 82 00:04:44,400 --> 00:04:46,920 Speaker 1: just going through testing after testing trying to figure out 83 00:04:46,920 --> 00:04:49,760 Speaker 1: so they were pretty much just figuring out symptoms rather 84 00:04:49,800 --> 00:04:54,440 Speaker 1: than the actual problem. Yeah, and it was creating permanent disease, 85 00:04:54,920 --> 00:04:57,320 Speaker 1: you know, affects in the body. So it became very 86 00:04:57,400 --> 00:04:59,960 Speaker 1: much my I would walk into the offices and it's 87 00:05:00,160 --> 00:05:02,280 Speaker 1: my diagnostic and then they look at me and they'd 88 00:05:02,279 --> 00:05:05,240 Speaker 1: be like, you're walking or you're this because you end 89 00:05:05,279 --> 00:05:09,200 Speaker 1: up with so many issues or misdiagnosis. Is So when 90 00:05:09,240 --> 00:05:12,040 Speaker 1: they finally came to me and said this is the problem. 91 00:05:12,080 --> 00:05:14,160 Speaker 1: At that time, they also really were just starting to 92 00:05:14,240 --> 00:05:17,080 Speaker 1: understand what to do because there was this dogma that 93 00:05:17,240 --> 00:05:20,920 Speaker 1: breast implants are completely safe. These plastic surgeons were being 94 00:05:20,960 --> 00:05:23,480 Speaker 1: taught that there's no way this was really happening to me. 95 00:05:23,720 --> 00:05:26,320 Speaker 1: So when ender chronology and oncology was saying this in 96 00:05:26,400 --> 00:05:30,320 Speaker 1: rheumatology and all my other allergy dudes and ladies, plastic 97 00:05:30,320 --> 00:05:33,520 Speaker 1: surgery was saying uh. And so that was the real 98 00:05:33,520 --> 00:05:35,800 Speaker 1: battle was to find It took me a long time 99 00:05:35,839 --> 00:05:38,360 Speaker 1: to find the right doctor to offer me the right treatment, 100 00:05:38,560 --> 00:05:44,839 Speaker 1: and it ended up being a hand surgeon. Wow, that's incredible. Also, 101 00:05:44,920 --> 00:05:47,000 Speaker 1: you said swap out. Can you explain what that is too? 102 00:05:47,120 --> 00:05:49,160 Speaker 1: I am very much a novice in this whole world 103 00:05:49,240 --> 00:05:51,240 Speaker 1: and so I'm like, I need to know what this is. 104 00:05:51,279 --> 00:05:54,880 Speaker 1: So what exactly is a swapout? So about ten years ago, 105 00:05:54,960 --> 00:05:59,440 Speaker 1: Allergant identified that certain breast implants could cause cancer. So 106 00:05:59,680 --> 00:06:02,719 Speaker 1: the f d A did a voluntary recall with them, 107 00:06:02,760 --> 00:06:05,280 Speaker 1: I believe it's what they called it. So they issued 108 00:06:05,320 --> 00:06:07,760 Speaker 1: an offer where they would give you new implants in 109 00:06:09,000 --> 00:06:12,120 Speaker 1: towards your surgery that costs much more than that, and 110 00:06:12,240 --> 00:06:14,120 Speaker 1: they called it a swap out, but with that you 111 00:06:14,120 --> 00:06:16,840 Speaker 1: would waive any future rights. So I did not take 112 00:06:16,960 --> 00:06:20,440 Speaker 1: Allergan's money to do the swap out, but I did 113 00:06:20,520 --> 00:06:22,479 Speaker 1: talk to a doctor who was like, no, no, it 114 00:06:22,600 --> 00:06:26,240 Speaker 1: was just those these are new and improved. And that 115 00:06:26,440 --> 00:06:29,680 Speaker 1: was a really terrible mistake because if I had not 116 00:06:29,760 --> 00:06:32,280 Speaker 1: done that, I'd probably still have both my hips, you know, 117 00:06:32,320 --> 00:06:34,760 Speaker 1: I wouldn't have some of the permanent damage that happened 118 00:06:34,760 --> 00:06:38,320 Speaker 1: from that point forward. Oh my gosh, that sounds like 119 00:06:38,360 --> 00:06:42,159 Speaker 1: the beginning of lawsuit movies, one of those. I'm sorry. Well, 120 00:06:42,200 --> 00:06:45,360 Speaker 1: you have been called the Air and Rocket bits of boobs, right, 121 00:06:45,400 --> 00:06:48,359 Speaker 1: you have a document going on about this, so it 122 00:06:48,440 --> 00:06:51,599 Speaker 1: really is. What's fascinating is I was in the film 123 00:06:51,640 --> 00:06:54,400 Speaker 1: business last you know, I was lucky to have really 124 00:06:54,480 --> 00:06:57,280 Speaker 1: amazing people around me who actually I didn't want to 125 00:06:57,279 --> 00:07:01,480 Speaker 1: make We're an impact production company, and I joked that, 126 00:07:01,560 --> 00:07:04,000 Speaker 1: you know, I didn't want to be out there talking 127 00:07:04,000 --> 00:07:07,560 Speaker 1: about my breasts. And I started to share this and 128 00:07:07,600 --> 00:07:10,000 Speaker 1: people were shocked. And then with Christine Torres, the co 129 00:07:10,080 --> 00:07:13,280 Speaker 1: host of the show, we were really looking at this 130 00:07:13,480 --> 00:07:18,440 Speaker 1: from a you know, documentary industry issue, you know, freakonomics 131 00:07:18,480 --> 00:07:21,880 Speaker 1: standpoint of how did this perfect storm happen? And then 132 00:07:21,920 --> 00:07:24,880 Speaker 1: I met through the podcast this woman, Sibyl gold Rich, 133 00:07:25,560 --> 00:07:28,080 Speaker 1: and I watched Two Small Voices, which was done twenty 134 00:07:28,160 --> 00:07:31,360 Speaker 1: years ago because she won the Dow implant case. And 135 00:07:31,400 --> 00:07:35,000 Speaker 1: when I met Sybil, I felt a responsibility to carry 136 00:07:35,040 --> 00:07:39,480 Speaker 1: the torch into honor her sacrifice and what they accomplished 137 00:07:39,720 --> 00:07:42,600 Speaker 1: in in meeting the attorney on the class action suit 138 00:07:42,680 --> 00:07:45,120 Speaker 1: that we filed, like the most important thing for us 139 00:07:45,800 --> 00:07:47,840 Speaker 1: not to go on and on was to give people 140 00:07:47,880 --> 00:07:50,360 Speaker 1: this full disclosure as to the risks and to get 141 00:07:50,400 --> 00:07:54,280 Speaker 1: plastic surgeons to really understand and if a documentary, a 142 00:07:54,360 --> 00:07:57,560 Speaker 1: podcast meeting other women, you know, however, they get the 143 00:07:57,880 --> 00:08:01,480 Speaker 1: quote proof they need. That's where we started to be compassionate. 144 00:08:01,520 --> 00:08:07,679 Speaker 1: So I joke. I'll talk about my boobs in any format. Yes, 145 00:08:07,840 --> 00:08:12,440 Speaker 1: And um, you're so open on your site and in 146 00:08:12,520 --> 00:08:17,560 Speaker 1: the material you create, which is it's really really moving 147 00:08:17,760 --> 00:08:19,560 Speaker 1: and we're going to get into two some of those 148 00:08:19,560 --> 00:08:22,840 Speaker 1: things that you've tackled in a minute. But um, just 149 00:08:22,880 --> 00:08:25,880 Speaker 1: to step back, I feel like it's maybe not obvious 150 00:08:25,960 --> 00:08:27,480 Speaker 1: is the right word, but we've been pretty clear what 151 00:08:27,520 --> 00:08:30,080 Speaker 1: it is. But could you talk about what breast implant 152 00:08:30,120 --> 00:08:34,600 Speaker 1: illness is exactly? Absolutely? So you know, the way I 153 00:08:34,640 --> 00:08:38,400 Speaker 1: explain it in non medical legal terms is that you 154 00:08:38,440 --> 00:08:42,440 Speaker 1: know your body is having an autoimmune response to these implants, 155 00:08:42,520 --> 00:08:46,000 Speaker 1: which can convert eventually into cancer. So a lot of 156 00:08:46,000 --> 00:08:48,720 Speaker 1: people hear about B I, A, L C L, which 157 00:08:48,760 --> 00:08:51,720 Speaker 1: they think is the worst part, but what's really important 158 00:08:51,720 --> 00:08:55,280 Speaker 1: as breast implant illness is identified as a group of symptoms, 159 00:08:55,880 --> 00:08:57,480 Speaker 1: which I posted the other day, and I was like, 160 00:08:57,480 --> 00:08:59,760 Speaker 1: what if you had these hundred symptoms, what would you do? 161 00:09:00,280 --> 00:09:03,400 Speaker 1: That's and unfortunately, for a long time they were able 162 00:09:03,440 --> 00:09:05,760 Speaker 1: to say, you know, it's because you're older. Oh, it's 163 00:09:05,760 --> 00:09:08,640 Speaker 1: because you're you know, you have this underlying condition. But 164 00:09:08,800 --> 00:09:12,680 Speaker 1: what started to become predominant in the communication of other 165 00:09:12,720 --> 00:09:16,640 Speaker 1: women on Facebook and Instagram and other platforms. Was yes, 166 00:09:16,679 --> 00:09:18,720 Speaker 1: there was this group of symptoms, but there was also 167 00:09:18,800 --> 00:09:22,680 Speaker 1: this commonality of implants. And then what they're starting to 168 00:09:22,679 --> 00:09:25,840 Speaker 1: realize now it's not you know, silicone isn't every implant. 169 00:09:26,440 --> 00:09:29,360 Speaker 1: So the other big misunderstanding was, oh, my implants are sailing. 170 00:09:29,480 --> 00:09:32,640 Speaker 1: This can't be what's causing it, and doctors saline, we're safe. 171 00:09:33,160 --> 00:09:35,440 Speaker 1: And it's really important to understand that all implants are 172 00:09:35,559 --> 00:09:39,599 Speaker 1: encased in silicone and a lot of other toxic chemicals, 173 00:09:39,800 --> 00:09:43,280 Speaker 1: and then what's inside it varies, but they're seeing evidence 174 00:09:43,320 --> 00:09:46,560 Speaker 1: of b I I in both silicone gel filled and 175 00:09:46,640 --> 00:09:51,000 Speaker 1: sailing filled implants, texturized or non texturized, which that's a 176 00:09:51,000 --> 00:09:54,800 Speaker 1: whole other gross conversation. And what's happening is women are 177 00:09:54,800 --> 00:09:57,560 Speaker 1: getting everything from fatigue, weight gain, their hair falling out, 178 00:09:57,600 --> 00:10:02,320 Speaker 1: losing their vision, headaches, migraine, seizure, diarrhea, quoating, like the 179 00:10:02,360 --> 00:10:04,880 Speaker 1: list goes on and on, and then many times they're 180 00:10:04,880 --> 00:10:09,600 Speaker 1: diagnosed by either their endercnologists, a rheumatologist, or an integrated 181 00:10:09,640 --> 00:10:12,400 Speaker 1: medicine doctor who's been able to do what we call 182 00:10:12,480 --> 00:10:16,480 Speaker 1: a process of elimination and do every known medical test 183 00:10:16,760 --> 00:10:19,839 Speaker 1: they can to rule out every possible cause that they 184 00:10:19,880 --> 00:10:22,800 Speaker 1: know of other than your implants. So by the time 185 00:10:22,800 --> 00:10:25,920 Speaker 1: they get diagnosed, god knows what they've spent in son. 186 00:10:26,080 --> 00:10:29,440 Speaker 1: Right now, what's exciting is the Plastic Surgery Association and 187 00:10:29,520 --> 00:10:33,000 Speaker 1: the FDA and other you know, stakeholders are trying to 188 00:10:33,040 --> 00:10:35,920 Speaker 1: work together to create a protocol in a process to 189 00:10:35,960 --> 00:10:38,800 Speaker 1: treat us. But there's still really not even a way 190 00:10:38,800 --> 00:10:41,280 Speaker 1: to define the disease or put it in to get 191 00:10:41,280 --> 00:10:43,800 Speaker 1: it covered by insurance, because it still doesn't have its 192 00:10:43,840 --> 00:10:48,360 Speaker 1: insurance I dcode right, there's a lot of impactors in that. 193 00:10:49,400 --> 00:10:52,320 Speaker 1: One of the things that I was interested in when 194 00:10:52,400 --> 00:10:56,320 Speaker 1: I was um researching this beforehand was you you were 195 00:10:56,360 --> 00:11:01,440 Speaker 1: talking about kind of your the difference between like a 196 00:11:01,440 --> 00:11:05,839 Speaker 1: cosmetic surgeon or a plastic surgeon versus an actual doctor, 197 00:11:06,360 --> 00:11:10,280 Speaker 1: and sort of the attitude behind it. That's almost like 198 00:11:10,320 --> 00:11:13,160 Speaker 1: trying to sell you something. I don't know if you 199 00:11:13,240 --> 00:11:18,720 Speaker 1: could expound on your thoughts around that absolutely. I recently 200 00:11:18,720 --> 00:11:21,439 Speaker 1: wrote a letter to a major hospital with a recording 201 00:11:21,720 --> 00:11:24,360 Speaker 1: of a plastic surgeon telling me that I do not 202 00:11:24,559 --> 00:11:27,440 Speaker 1: have b I. I that it could not exist, and 203 00:11:27,480 --> 00:11:30,120 Speaker 1: when I explained I was diagnosed in his practice by 204 00:11:30,160 --> 00:11:33,800 Speaker 1: his colleague and treated by him. Then he pivoted and said, oh, 205 00:11:33,800 --> 00:11:35,480 Speaker 1: I mean it does exist, but now you're fine because 206 00:11:35,520 --> 00:11:37,559 Speaker 1: you got new implants. And then I said, no, no, 207 00:11:37,679 --> 00:11:42,400 Speaker 1: these are recalled him. We're not fine. And it ended 208 00:11:42,559 --> 00:11:44,719 Speaker 1: up being this moment where it was like my rise up. 209 00:11:44,880 --> 00:11:46,719 Speaker 1: That's where I got really mad. And this was over 210 00:11:46,760 --> 00:11:50,120 Speaker 1: a year ago, and it delayed my healing. And what 211 00:11:50,160 --> 00:11:54,120 Speaker 1: I found most interesting is instead of him being apologetic 212 00:11:54,280 --> 00:11:57,160 Speaker 1: or wanting the information or wanting to understand this, it 213 00:11:57,240 --> 00:11:59,520 Speaker 1: was almost as if he felt he had to protect 214 00:12:00,320 --> 00:12:04,400 Speaker 1: his practice, his business, his colleague, and it became very personal. 215 00:12:04,720 --> 00:12:08,640 Speaker 1: And when I talked to many women, it's in their families. 216 00:12:09,080 --> 00:12:13,520 Speaker 1: It's that attitude that can be the cliff for many 217 00:12:13,559 --> 00:12:16,920 Speaker 1: women because we're raised not to question that, you know, 218 00:12:16,960 --> 00:12:19,360 Speaker 1: do what the doctor tells you. And then also when 219 00:12:19,360 --> 00:12:22,960 Speaker 1: I really committed to going out and finding another doctor, 220 00:12:23,640 --> 00:12:26,200 Speaker 1: I met with several people and got the range of 221 00:12:26,440 --> 00:12:29,360 Speaker 1: you know, people like him, two people offering me other 222 00:12:29,400 --> 00:12:33,280 Speaker 1: procedures that were fifty to a hundred thousand dollars, and 223 00:12:33,280 --> 00:12:37,400 Speaker 1: then their assistance trying to give me financing options from 224 00:12:37,400 --> 00:12:44,319 Speaker 1: getting a boyfriend to borrowing against my assets. So I 225 00:12:44,400 --> 00:12:47,240 Speaker 1: talk you with you' getting a boyfriend as a financial assistance? 226 00:12:48,480 --> 00:12:51,839 Speaker 1: That's interesting. Don't you ask someone who can happy? Like 227 00:12:51,880 --> 00:12:55,640 Speaker 1: you don't get no man? You want to invest in this? 228 00:12:55,840 --> 00:12:58,200 Speaker 1: It's like a car a lot or just like what 229 00:12:58,240 --> 00:12:59,520 Speaker 1: do I have to do to set you up with 230 00:12:59,559 --> 00:13:05,480 Speaker 1: a man? Exactly? Well, that sounds a lot like as 231 00:13:05,520 --> 00:13:08,080 Speaker 1: we've talked about before on the show, when just women 232 00:13:08,080 --> 00:13:11,560 Speaker 1: in general are not believed and then therefore they're just 233 00:13:11,559 --> 00:13:14,400 Speaker 1: dismissed altogether. And I can't imagine what that would look 234 00:13:14,440 --> 00:13:16,840 Speaker 1: like when it comes to especially as the stigma with 235 00:13:16,880 --> 00:13:20,240 Speaker 1: plastic surgery and and brest them plants, like how many 236 00:13:20,280 --> 00:13:23,000 Speaker 1: battles and uphill like moments where you're like, this is enough. 237 00:13:23,040 --> 00:13:26,200 Speaker 1: I've had enough because I couldn't imagine this. Okay. So 238 00:13:26,240 --> 00:13:28,800 Speaker 1: I live in Los Angeles and I've spent a lot 239 00:13:28,800 --> 00:13:31,800 Speaker 1: of time in this one hospital, and this doctor came 240 00:13:31,800 --> 00:13:34,079 Speaker 1: in and not from New York, right, so I gotta 241 00:13:34,480 --> 00:13:36,839 Speaker 1: and he's telling me you just want drugs, it's you're fine, 242 00:13:37,000 --> 00:13:40,400 Speaker 1: and I'm literally like having seizures and projectile vomiting and 243 00:13:40,440 --> 00:13:43,280 Speaker 1: I'm probably not okay. So I looked him up on 244 00:13:43,320 --> 00:13:45,920 Speaker 1: social media and I was like you'll never surf again. 245 00:13:46,360 --> 00:13:48,160 Speaker 1: And I met because I was going to go block 246 00:13:48,200 --> 00:13:54,240 Speaker 1: him out at trestles right the security and security came 247 00:13:54,280 --> 00:13:57,360 Speaker 1: in and I was just crying. And it was interesting 248 00:13:57,400 --> 00:14:00,840 Speaker 1: because that security guard or the nurse, you know, they 249 00:14:00,880 --> 00:14:03,000 Speaker 1: really just they got to know me. They spent a 250 00:14:03,040 --> 00:14:05,559 Speaker 1: lot of time with you. And another time, my daughter 251 00:14:06,000 --> 00:14:09,040 Speaker 1: I was again seizing and I would have a weird 252 00:14:09,080 --> 00:14:11,600 Speaker 1: reaction to other medicine, and I remember waking up and 253 00:14:11,640 --> 00:14:15,200 Speaker 1: seeing my daughter just in tears, probably aren't twelve years old, 254 00:14:15,240 --> 00:14:18,800 Speaker 1: talking to a doctor and she was winning, which I 255 00:14:18,880 --> 00:14:23,000 Speaker 1: was impressed, but tragically sad. And I remember thinking at 256 00:14:23,040 --> 00:14:25,400 Speaker 1: that moment in my head, like, you know what, if 257 00:14:25,440 --> 00:14:27,400 Speaker 1: I'm just gone, she can go back to me and 258 00:14:27,400 --> 00:14:30,000 Speaker 1: a kid. You know this, this and this, and so 259 00:14:30,040 --> 00:14:31,840 Speaker 1: I think for a lot of us, we have moments 260 00:14:31,840 --> 00:14:35,040 Speaker 1: where we start to question our worth, our value and 261 00:14:35,240 --> 00:14:38,800 Speaker 1: the burden because you know it lasts forever. And then 262 00:14:40,280 --> 00:14:43,720 Speaker 1: you just somehow, through like the right support system around 263 00:14:43,720 --> 00:14:46,200 Speaker 1: me and a great doctor I had for ten years 264 00:14:46,240 --> 00:14:49,640 Speaker 1: as a primary, she just didn't quit and they checked in, 265 00:14:50,160 --> 00:14:52,560 Speaker 1: and so my friends created a safe space, and then 266 00:14:53,040 --> 00:14:54,720 Speaker 1: we started to make jokes about it. So I have 267 00:14:54,840 --> 00:14:58,040 Speaker 1: like my brand sick Ditties, because you know, it's hard 268 00:14:58,080 --> 00:15:00,000 Speaker 1: to talk about and like you said in a podcast 269 00:15:00,040 --> 00:15:03,000 Speaker 1: I listened to recently, laughing about it because it's so hard, 270 00:15:03,640 --> 00:15:06,880 Speaker 1: became easier and I made a lot of friends. You know, 271 00:15:06,960 --> 00:15:09,240 Speaker 1: some of the nurses and doctors that did defend me 272 00:15:09,360 --> 00:15:13,000 Speaker 1: are you know, really close friends and resources. And I 273 00:15:13,040 --> 00:15:15,320 Speaker 1: just kept hearing my mom say, you know, not everybody's 274 00:15:15,600 --> 00:15:17,560 Speaker 1: it's the golden rule, you know, treat people how you 275 00:15:17,600 --> 00:15:19,880 Speaker 1: want to be treated, attacked the problem, not the people, 276 00:15:20,520 --> 00:15:23,280 Speaker 1: and fight. And so I think through meeting other women, 277 00:15:23,600 --> 00:15:27,320 Speaker 1: I have found my fight. That's yeah. I love seeing 278 00:15:27,360 --> 00:15:31,280 Speaker 1: other women supporting other women. UM. I do think that's 279 00:15:31,320 --> 00:15:49,080 Speaker 1: incredibly powerful. One of the things, as you mentioned, like 280 00:15:49,160 --> 00:15:51,360 Speaker 1: the f d A is only just kind of released 281 00:15:51,360 --> 00:15:54,600 Speaker 1: something about this um and then on your site you 282 00:15:54,640 --> 00:15:58,480 Speaker 1: have a link to to some numbers and statistics around 283 00:15:58,480 --> 00:16:01,920 Speaker 1: all of this. I mean, do you have kind of 284 00:16:01,920 --> 00:16:05,400 Speaker 1: a understanding of how many people are impacted by this, 285 00:16:05,440 --> 00:16:08,000 Speaker 1: because you're also there's a lot of misinformation as well. 286 00:16:08,040 --> 00:16:10,920 Speaker 1: Are people who are not getting the diagnosis? Absolutely, And 287 00:16:12,040 --> 00:16:14,400 Speaker 1: you know we talk in the community and activists about 288 00:16:14,440 --> 00:16:17,480 Speaker 1: there's really three ways to stop this one is education, 289 00:16:17,760 --> 00:16:20,760 Speaker 1: and I think through this site in social media, I'm 290 00:16:20,800 --> 00:16:23,680 Speaker 1: grateful to get messages from girls who in women who 291 00:16:23,720 --> 00:16:27,200 Speaker 1: really read this in an eighteen to sixty five can 292 00:16:27,320 --> 00:16:30,240 Speaker 1: understand the financial, emotional, and physical impact this can have 293 00:16:31,120 --> 00:16:34,160 Speaker 1: in frankly investor capital in other ways, right like they 294 00:16:34,160 --> 00:16:38,200 Speaker 1: can invest in themselves in such different ways. Or you know, Second, 295 00:16:38,320 --> 00:16:42,880 Speaker 1: is this full disclosure plastic surgence being required to identify 296 00:16:42,920 --> 00:16:46,400 Speaker 1: this disease as a potential outcome for women in education? 297 00:16:46,840 --> 00:16:49,560 Speaker 1: I can tell you that in the community to destigmatize this, 298 00:16:50,320 --> 00:16:52,120 Speaker 1: I don't care if you've got the implans for breast 299 00:16:52,120 --> 00:16:55,520 Speaker 1: cancer or you wanted to be Pamela Anderson. The reality 300 00:16:55,600 --> 00:16:59,120 Speaker 1: is we were not told this information and I think shame, guilt, 301 00:17:00,080 --> 00:17:03,200 Speaker 1: and fear has been used a lot to really keep 302 00:17:03,240 --> 00:17:05,920 Speaker 1: the third thing, which is women get implants every year. 303 00:17:06,080 --> 00:17:08,320 Speaker 1: You know it's going to continue to happen. Breast cancer 304 00:17:08,359 --> 00:17:12,080 Speaker 1: centers offer these implants as a solution. And so what's 305 00:17:12,080 --> 00:17:14,879 Speaker 1: most important for me and the community is there's millions 306 00:17:14,880 --> 00:17:18,320 Speaker 1: of people suffering and never once has someone contacted me 307 00:17:18,359 --> 00:17:20,680 Speaker 1: and said it's not me and you know I don't 308 00:17:20,720 --> 00:17:23,280 Speaker 1: have this, you're crazy. And if they come back to 309 00:17:23,320 --> 00:17:26,679 Speaker 1: the community. The community doesn't punish them, they welcome them. 310 00:17:26,720 --> 00:17:31,880 Speaker 1: Because this isn't you know, anything other than this perfect 311 00:17:31,920 --> 00:17:36,360 Speaker 1: storm of manufacturers not being required to tell information, plastic 312 00:17:36,359 --> 00:17:39,440 Speaker 1: surgeons being courted and sold details in a business that's 313 00:17:39,480 --> 00:17:44,119 Speaker 1: really profitable, and women wanting to buy into this perception 314 00:17:44,160 --> 00:17:48,760 Speaker 1: of beauty unfortunately, and that's changing. And I think through 315 00:17:48,840 --> 00:17:51,760 Speaker 1: the advocates and the women that share their stories. I joke, 316 00:17:51,920 --> 00:17:56,240 Speaker 1: that's your full disclosure. Like you google hashtag b I 317 00:17:56,240 --> 00:17:58,880 Speaker 1: I and start to see thousands, if not now millions 318 00:17:58,920 --> 00:18:02,520 Speaker 1: of women stepping been saying this happened to me. It's facts, 319 00:18:03,200 --> 00:18:07,680 Speaker 1: mm hmm. And one of the things you touched on earlier, 320 00:18:07,720 --> 00:18:10,080 Speaker 1: and you've been very open about that, I found very 321 00:18:10,160 --> 00:18:13,119 Speaker 1: very upseting, Like there's no insurance code for it, right, 322 00:18:13,320 --> 00:18:21,680 Speaker 1: and it is extremely costly, like the whole all of it. Yes, 323 00:18:21,920 --> 00:18:24,720 Speaker 1: could you go into that a little bit. Yeah, And ironically, 324 00:18:24,800 --> 00:18:28,080 Speaker 1: I have a certificate and impact finance from MEW. I've 325 00:18:28,119 --> 00:18:32,119 Speaker 1: managed investment funds and financing this treatment has been the 326 00:18:32,160 --> 00:18:35,520 Speaker 1: hardest thing in my life. It's nearly bankrupted me um 327 00:18:35,560 --> 00:18:38,560 Speaker 1: At times I wasn't sure what to do, and so 328 00:18:38,720 --> 00:18:42,240 Speaker 1: for the average woman, the diagnostic process can range from 329 00:18:42,240 --> 00:18:45,240 Speaker 1: ten thousand to hundreds of thousands, depending on the course 330 00:18:45,280 --> 00:18:49,119 Speaker 1: they take, because there's summer eyes, colonoscopies, et cetera. And 331 00:18:49,200 --> 00:18:52,480 Speaker 1: with insurance. Recently, I've been invited by a company to 332 00:18:52,560 --> 00:18:55,640 Speaker 1: join a patient advocacy board and talk about the fact 333 00:18:55,720 --> 00:18:59,040 Speaker 1: that providing the fourteen to thirty four thousand dollars to 334 00:18:59,160 --> 00:19:03,359 Speaker 1: remove breasts and potentially reconstruct them in a safe way 335 00:19:03,720 --> 00:19:06,760 Speaker 1: is so much better than keeping someone sick for ten years. 336 00:19:07,640 --> 00:19:10,160 Speaker 1: And so when we started to look at the economic impact, 337 00:19:10,400 --> 00:19:14,000 Speaker 1: also there are insurance companies that will now refund the money. 338 00:19:14,160 --> 00:19:17,520 Speaker 1: Insurance companies are now taking them out under other codes, 339 00:19:17,560 --> 00:19:21,920 Speaker 1: so like back pain, you know, masses because like people 340 00:19:21,960 --> 00:19:25,520 Speaker 1: have CIST. So thank god mine was recently covered by insurance. 341 00:19:26,520 --> 00:19:29,880 Speaker 1: My last procedure cost my thousand, six twenty eight dollars. 342 00:19:30,960 --> 00:19:34,160 Speaker 1: That is a lot of money. And for women out there, 343 00:19:34,200 --> 00:19:36,200 Speaker 1: they carry so much shame because they don't want to 344 00:19:36,240 --> 00:19:38,440 Speaker 1: put their families through that. They don't want to take 345 00:19:38,440 --> 00:19:42,040 Speaker 1: money out of their kids tuition and other people finance 346 00:19:42,119 --> 00:19:45,000 Speaker 1: putting them in. So there are programs where you can 347 00:19:45,000 --> 00:19:46,879 Speaker 1: go into debt to get boobs, but you can't go 348 00:19:46,920 --> 00:19:48,760 Speaker 1: into debt to get them out, and I don't think 349 00:19:48,760 --> 00:19:51,119 Speaker 1: that's right, and we've been searching for a partner to 350 00:19:51,160 --> 00:19:55,639 Speaker 1: help us fix that because economically and as women, you know, 351 00:19:55,720 --> 00:19:58,000 Speaker 1: we tend to feel like we want to self sacrifice. 352 00:19:58,040 --> 00:20:01,520 Speaker 1: That's what makes us a good mother. And the longer 353 00:20:01,600 --> 00:20:03,919 Speaker 1: we wait to have this procedure, the more damage that 354 00:20:04,000 --> 00:20:06,800 Speaker 1: happens to your body and you lose valuable healing time. 355 00:20:07,080 --> 00:20:10,280 Speaker 1: And so from a finance standpoint, insurance companies are motivated 356 00:20:10,280 --> 00:20:13,080 Speaker 1: now to treat this as more data comes in and 357 00:20:13,119 --> 00:20:16,840 Speaker 1: we eventually get peer reviewed studies. But until then, you know, 358 00:20:16,880 --> 00:20:20,000 Speaker 1: I've seen women do such creative, cool stuff to raise money. 359 00:20:20,560 --> 00:20:22,320 Speaker 1: I had a Kickstarter once and I went to a 360 00:20:22,359 --> 00:20:24,560 Speaker 1: meeting and a guy's like, you're here to finance a company, 361 00:20:24,600 --> 00:20:27,880 Speaker 1: but you're raising money for boobs. And I have looked 362 00:20:27,880 --> 00:20:30,080 Speaker 1: at him and I was like, I'm raising money for 363 00:20:30,119 --> 00:20:34,879 Speaker 1: lots of boobs, but and so he really kind of 364 00:20:34,960 --> 00:20:37,280 Speaker 1: judged me. But then I talked to him and later 365 00:20:37,320 --> 00:20:41,840 Speaker 1: he's like, oh, Tony, because it's about education, Nobody really, 366 00:20:42,320 --> 00:20:45,000 Speaker 1: you know, understands this. And like you've talked about a 367 00:20:45,000 --> 00:20:46,800 Speaker 1: lot on your show, is there certain things that are 368 00:20:46,840 --> 00:20:50,119 Speaker 1: so hard to talk about. And you know, I was 369 00:20:50,160 --> 00:20:52,920 Speaker 1: at parties before the pandemic, obviously, but grabbing. You know, 370 00:20:53,000 --> 00:20:55,359 Speaker 1: we were touching each other's boobs at parties during the 371 00:20:55,400 --> 00:20:57,199 Speaker 1: me too movement, trying to figure out like do you 372 00:20:57,200 --> 00:21:01,400 Speaker 1: have them? Do you have them? And speacame very quickly 373 00:21:01,440 --> 00:21:06,320 Speaker 1: a conversation that through you know, social media and such 374 00:21:06,400 --> 00:21:10,600 Speaker 1: honesty where now three years later, people are talking about 375 00:21:10,640 --> 00:21:14,920 Speaker 1: this a lot, and people are curious versus judgmental, which 376 00:21:14,960 --> 00:21:16,840 Speaker 1: is nice. I mean, I still get those posts where 377 00:21:16,880 --> 00:21:19,560 Speaker 1: I did this to myself go away, but I just 378 00:21:20,080 --> 00:21:23,880 Speaker 1: you know, we want to educate, we want to empower people, right, Yeah, 379 00:21:24,000 --> 00:21:27,720 Speaker 1: that's so infuriating, just to know that it's a blame 380 00:21:27,800 --> 00:21:31,120 Speaker 1: game when you're absolutely correct. I did not know of 381 00:21:31,200 --> 00:21:34,520 Speaker 1: these implications. I've heard one or two cases of things 382 00:21:34,520 --> 00:21:37,240 Speaker 1: going wrong, but essentially being told it's safe, it's safe, 383 00:21:37,359 --> 00:21:39,800 Speaker 1: They've gone through years of procedures and they know what 384 00:21:39,800 --> 00:21:43,320 Speaker 1: they're doing. Now these products are FDA approved, literally being 385 00:21:43,320 --> 00:21:45,439 Speaker 1: told that throughout my life, not that I could afford 386 00:21:45,440 --> 00:21:48,440 Speaker 1: any of those things, but just as an outsider, that's 387 00:21:48,480 --> 00:21:51,800 Speaker 1: what I knew of it. And then being stigmatized because 388 00:21:51,880 --> 00:21:54,240 Speaker 1: your body is like, no, this is not good. They 389 00:21:54,320 --> 00:21:56,920 Speaker 1: lied to us, and they made so much money off 390 00:21:56,960 --> 00:22:00,399 Speaker 1: of this, and now I want to save face and 391 00:22:00,520 --> 00:22:02,439 Speaker 1: not wanting to come back and be like, oh, this 392 00:22:02,480 --> 00:22:04,640 Speaker 1: is problematic. We need to care for them and take 393 00:22:04,680 --> 00:22:06,280 Speaker 1: care of that. And I'm wondering in the back of 394 00:22:06,320 --> 00:22:09,600 Speaker 1: my head of like how many women were misdiagnosed, died 395 00:22:09,600 --> 00:22:12,480 Speaker 1: and never knew this was the complication because so many 396 00:22:12,520 --> 00:22:15,239 Speaker 1: other things were being said or told to them, and 397 00:22:15,440 --> 00:22:18,359 Speaker 1: or that shame factor of like it took so long 398 00:22:18,440 --> 00:22:20,280 Speaker 1: for people to accept the fact that this is about 399 00:22:20,280 --> 00:22:23,160 Speaker 1: a woman's self esteem and if they want to do it, great, 400 00:22:23,240 --> 00:22:25,280 Speaker 1: This is not about you, this is her body. But 401 00:22:25,320 --> 00:22:27,359 Speaker 1: then coming back to be like, yeah, but you lied, 402 00:22:28,000 --> 00:22:31,160 Speaker 1: the the creators lie, or they didn't know they were wrong. 403 00:22:31,440 --> 00:22:33,800 Speaker 1: Now it's times for them to face the facts and 404 00:22:33,880 --> 00:22:36,080 Speaker 1: needs to be corrected instead of having a moment of 405 00:22:36,080 --> 00:22:40,240 Speaker 1: being supported being told well, sorry, you're a woman who 406 00:22:40,359 --> 00:22:43,040 Speaker 1: was vain about this and this is your fault. Even 407 00:22:43,119 --> 00:22:46,800 Speaker 1: though there's so many out there who absolutely advocate for 408 00:22:46,840 --> 00:22:49,240 Speaker 1: these things and or get to see the effects. And 409 00:22:49,280 --> 00:22:51,760 Speaker 1: a lot of times I've seen where women are manipulated 410 00:22:51,920 --> 00:22:55,359 Speaker 1: into going into these types of surgeries as well. There's 411 00:22:55,400 --> 00:22:58,399 Speaker 1: so many avenues of why, but yet the women are 412 00:22:58,560 --> 00:23:01,840 Speaker 1: mainly shamed point blank, and I could not. I just 413 00:23:01,920 --> 00:23:04,480 Speaker 1: want to throw something right now. Well, and here's the 414 00:23:04,560 --> 00:23:07,600 Speaker 1: thing on that note, the education, the impulse is like 415 00:23:07,640 --> 00:23:09,720 Speaker 1: I got these at twenty five years old. What the 416 00:23:09,760 --> 00:23:12,280 Speaker 1: hell did I know? I was at lunch with a 417 00:23:12,320 --> 00:23:15,280 Speaker 1: hot model fresh off a bad divorce with a baby, 418 00:23:15,400 --> 00:23:18,000 Speaker 1: and I was raised nobody wants that, so I thought, Okay, 419 00:23:18,040 --> 00:23:21,560 Speaker 1: I'll get boobs that'll fix everything. I didn't even think about, 420 00:23:21,640 --> 00:23:23,640 Speaker 1: Like they're going to rip my chest off and shove 421 00:23:23,800 --> 00:23:26,240 Speaker 1: some toxic ax under my muscle and we're gonna hope 422 00:23:26,240 --> 00:23:29,359 Speaker 1: for the best. She was in Cosmo, this doctor. I 423 00:23:29,400 --> 00:23:32,560 Speaker 1: trusted her and she didn't know. And so when through 424 00:23:32,600 --> 00:23:35,399 Speaker 1: the process, you're right, And then the anger. What I 425 00:23:35,520 --> 00:23:39,159 Speaker 1: found is the women that are advocating and lobbying for 426 00:23:39,240 --> 00:23:42,400 Speaker 1: things like the Medical Device Safety Act, the full disclosure 427 00:23:42,440 --> 00:23:44,960 Speaker 1: laws that are being passed, the f d A actually 428 00:23:45,000 --> 00:23:48,719 Speaker 1: taking meetings with women to say, okay, you're not hysterical. 429 00:23:49,000 --> 00:23:50,880 Speaker 1: But there's also a book by a friend of mine 430 00:23:50,920 --> 00:23:53,240 Speaker 1: who I don't want to cry, but she died, and 431 00:23:53,280 --> 00:23:55,600 Speaker 1: the book is called you know, a mother's nightmare dealing 432 00:23:55,600 --> 00:23:59,240 Speaker 1: with breast and plant illness and the opiate crisis, because 433 00:23:59,240 --> 00:24:01,919 Speaker 1: a lot of these them and fell down the pathological 434 00:24:02,520 --> 00:24:06,080 Speaker 1: whole of we're going to treat her pain, her symptoms, 435 00:24:06,520 --> 00:24:09,400 Speaker 1: and then we're going to label her with fibro mayalgia, 436 00:24:09,720 --> 00:24:12,800 Speaker 1: drug seeking, We're going to make sure that she's a 437 00:24:12,960 --> 00:24:16,760 Speaker 1: frequent flyer, you know, all these terms, and then eventually 438 00:24:16,880 --> 00:24:19,840 Speaker 1: social work and all these other areas get involved because 439 00:24:19,880 --> 00:24:22,600 Speaker 1: as a mom, a woman, a sister, a grandmother, you know, 440 00:24:22,640 --> 00:24:25,159 Speaker 1: all that hat you wear. And I do think it 441 00:24:25,240 --> 00:24:28,040 Speaker 1: was really important when Sybil Goldrich did what she did. 442 00:24:28,720 --> 00:24:32,880 Speaker 1: She and another woman did amazing things to really take 443 00:24:32,960 --> 00:24:36,359 Speaker 1: on dout to ask these questions. But what happened was 444 00:24:36,400 --> 00:24:39,120 Speaker 1: there was never follow up on these peer reviewed studies. 445 00:24:39,840 --> 00:24:41,679 Speaker 1: And so the only way to be the change we 446 00:24:41,720 --> 00:24:43,840 Speaker 1: need to see is to show them the studies. Go 447 00:24:43,880 --> 00:24:46,760 Speaker 1: look at Instagram and now I think what's happening is 448 00:24:46,880 --> 00:24:50,280 Speaker 1: this conversation and women speaking up. I joke, they're all 449 00:24:50,280 --> 00:24:52,600 Speaker 1: a little you know, we're like Helen ready, it's hear 450 00:24:52,680 --> 00:24:55,840 Speaker 1: me roar. And it's so empowering because their teachers, real 451 00:24:55,960 --> 00:25:01,359 Speaker 1: estate agents, nurses, doctors, you know, everyday women and celebrities 452 00:25:01,520 --> 00:25:04,720 Speaker 1: and thought leaders that are all coming together and there's 453 00:25:04,720 --> 00:25:08,639 Speaker 1: no racial you know, spectrum, it's every type of woman 454 00:25:08,680 --> 00:25:12,280 Speaker 1: out there, and that's the change. And then also there's 455 00:25:12,359 --> 00:25:14,399 Speaker 1: plastic surgeons that are now saying, you know what, I'm 456 00:25:14,440 --> 00:25:17,000 Speaker 1: going to lead this change, and those people need to 457 00:25:17,000 --> 00:25:21,719 Speaker 1: be recognized because imagine what their conferences are like, Yes, well, 458 00:25:21,760 --> 00:25:24,040 Speaker 1: I did want to ask the plastic surgeant that you 459 00:25:24,119 --> 00:25:26,600 Speaker 1: actually got them to change their tune to be like okay, okay, 460 00:25:26,640 --> 00:25:30,480 Speaker 1: we we do uh have they changed their practices at all? 461 00:25:31,520 --> 00:25:35,600 Speaker 1: As in like informing So what's interesting is I the 462 00:25:35,640 --> 00:25:39,240 Speaker 1: one who wouldn't treat me. I was able to get 463 00:25:39,240 --> 00:25:41,960 Speaker 1: the CEO of that hospital's email and I sent him 464 00:25:42,000 --> 00:25:46,240 Speaker 1: the recording. I filed a complaint and I reported my 465 00:25:46,280 --> 00:25:49,520 Speaker 1: adverse event directly to the f d A working with 466 00:25:49,600 --> 00:25:52,280 Speaker 1: patient affairs within the hospital. I wrote a letter recently 467 00:25:52,400 --> 00:25:54,280 Speaker 1: that I would, you know, pay to take all these 468 00:25:54,280 --> 00:25:56,360 Speaker 1: surgeons to dinner just to tell them this is real. 469 00:25:56,440 --> 00:25:58,840 Speaker 1: Meet me, Hi, I have this, and here's a thousand 470 00:25:58,880 --> 00:26:00,640 Speaker 1: other ladies that like to talk to you and men. 471 00:26:01,400 --> 00:26:04,400 Speaker 1: But until then, I think what's going to mandate real 472 00:26:04,520 --> 00:26:08,800 Speaker 1: change is losing business women, you know, speaking up for 473 00:26:08,840 --> 00:26:12,159 Speaker 1: each other. And what I requested in my most recent 474 00:26:12,240 --> 00:26:15,720 Speaker 1: letter was tell the truth because you are a teaching 475 00:26:15,800 --> 00:26:19,520 Speaker 1: hospital and I think as other surgeons are stepping up, 476 00:26:19,560 --> 00:26:23,119 Speaker 1: they have whole practices dedicated to this. I've interviewed some 477 00:26:23,200 --> 00:26:27,359 Speaker 1: incredible doctors on the podcast and they're putting their foot down, 478 00:26:27,520 --> 00:26:30,920 Speaker 1: as is the Plastic Surgery Association. They really included B 479 00:26:31,040 --> 00:26:33,880 Speaker 1: I I this year in their conference, and so we're 480 00:26:33,880 --> 00:26:36,119 Speaker 1: starting to see change. And I think the most common 481 00:26:36,160 --> 00:26:40,400 Speaker 1: thing with all of us is see we're not crazy, right, 482 00:26:40,440 --> 00:26:45,200 Speaker 1: Like that's my next T shirt one me just believe us, 483 00:26:45,880 --> 00:26:50,000 Speaker 1: thank you and know that you know, hysterical women is no, 484 00:26:50,280 --> 00:26:54,359 Speaker 1: it's not a thing. We don't wake up in the 485 00:26:54,400 --> 00:26:58,040 Speaker 1: morning and want to be crazy, right, you make me 486 00:26:58,119 --> 00:27:02,439 Speaker 1: that way. That's I mean, there's so many things on 487 00:27:02,480 --> 00:27:06,280 Speaker 1: there that they just are so infuriating and upsetting and 488 00:27:06,280 --> 00:27:08,800 Speaker 1: that we have talked about. But yeah, like not believing women, 489 00:27:09,280 --> 00:27:12,639 Speaker 1: not believing women's pain, are dismissing it. It's clear like 490 00:27:12,720 --> 00:27:15,040 Speaker 1: women are seen as like not a priority and if 491 00:27:15,040 --> 00:27:17,000 Speaker 1: it's there it's a women's issues, then we don't have 492 00:27:17,040 --> 00:27:20,480 Speaker 1: to deal with it. But we love stories of women 493 00:27:20,560 --> 00:27:24,440 Speaker 1: supporting women in like finding that community and then being 494 00:27:24,480 --> 00:27:28,240 Speaker 1: able to make change in that way. Can you talk 495 00:27:28,280 --> 00:27:31,400 Speaker 1: about the community you found and maybe any like common 496 00:27:31,520 --> 00:27:36,520 Speaker 1: threads that you've heard or anything that's really brought you together. Absolutely. 497 00:27:36,560 --> 00:27:38,919 Speaker 1: I got a message from Maria Dmitro, who is on 498 00:27:38,960 --> 00:27:42,399 Speaker 1: the podcast and done such incredible work. Um, she's with 499 00:27:42,440 --> 00:27:45,240 Speaker 1: a company that has a technology solution that will allow 500 00:27:45,320 --> 00:27:48,320 Speaker 1: us to track our implants or any device I've learned, 501 00:27:48,400 --> 00:27:51,040 Speaker 1: like my new hips and my other things. But she 502 00:27:51,119 --> 00:27:53,840 Speaker 1: sent me a message the day we got the announcement 503 00:27:53,840 --> 00:27:56,719 Speaker 1: from the f d A, and I know in my 504 00:27:56,800 --> 00:28:00,639 Speaker 1: head there were women in dorm rooms to board rooms 505 00:28:00,760 --> 00:28:05,720 Speaker 1: to you know, their rocking chairs, just taking that deep breath. 506 00:28:06,280 --> 00:28:08,320 Speaker 1: And she messaged me and you know, she asked, did 507 00:28:08,320 --> 00:28:09,840 Speaker 1: you ever think we would be part of something that 508 00:28:09,880 --> 00:28:13,240 Speaker 1: would change the world? And and and knowing her the years 509 00:28:13,280 --> 00:28:15,520 Speaker 1: I have, I wrote her back and said, excuse my 510 00:28:15,560 --> 00:28:19,760 Speaker 1: French because they're strong, you know, from Eden Sassoon, who 511 00:28:19,840 --> 00:28:22,199 Speaker 1: has been such a supporter, and she comes out of 512 00:28:22,200 --> 00:28:24,439 Speaker 1: the beauty industry to stand up and say, if you 513 00:28:24,480 --> 00:28:26,440 Speaker 1: know these don't feel good, I don't look good, get 514 00:28:26,480 --> 00:28:29,800 Speaker 1: them out of you too. You know. The Reverend t 515 00:28:29,800 --> 00:28:32,320 Speaker 1: Towanna Davis, who we interviewed who's incredible and what she 516 00:28:32,400 --> 00:28:35,840 Speaker 1: talked about. To Christine Handy who's a cancer advocate and 517 00:28:35,960 --> 00:28:38,600 Speaker 1: a b II survivor and is changing the breast cancer 518 00:28:38,640 --> 00:28:41,360 Speaker 1: space to educate women. The common thread with each of 519 00:28:41,400 --> 00:28:45,720 Speaker 1: them is they believe in right. They believe in you know, 520 00:28:45,840 --> 00:28:49,040 Speaker 1: fixing this injustice, and they are attacking the problem, not 521 00:28:49,160 --> 00:28:51,800 Speaker 1: the people. And they're coming at this in a way 522 00:28:51,800 --> 00:28:54,920 Speaker 1: where you know, Maria calls it a gymnastics team and 523 00:28:55,040 --> 00:28:57,560 Speaker 1: you know, to lobby, to educate, to post, to empower. 524 00:28:57,720 --> 00:28:59,800 Speaker 1: What I love about this community is it's never one 525 00:28:59,840 --> 00:29:03,000 Speaker 1: but a competition. It's been you know, you're good at this, 526 00:29:03,080 --> 00:29:04,800 Speaker 1: you're good at that. How do we advocate here? How 527 00:29:04,800 --> 00:29:06,320 Speaker 1: do we find this person? How do we get to 528 00:29:06,360 --> 00:29:11,000 Speaker 1: that person? And they're determined and they don't quit in there, 529 00:29:12,160 --> 00:29:15,080 Speaker 1: you know, doing this on their dying, which is impressive 530 00:29:15,120 --> 00:29:18,080 Speaker 1: to me. You know, they're investing in saving other people 531 00:29:18,440 --> 00:29:22,480 Speaker 1: and making sure that people know that. Maybe it's your implants, 532 00:29:22,520 --> 00:29:25,600 Speaker 1: but here's the process you take and here's someone you 533 00:29:25,640 --> 00:29:28,160 Speaker 1: can rely on that can give you directions because she's 534 00:29:28,200 --> 00:29:31,960 Speaker 1: done it. I love it. I love that so in 535 00:29:32,080 --> 00:29:34,479 Speaker 1: being a part of this, you know, changing the world 536 00:29:34,520 --> 00:29:38,120 Speaker 1: and seeing some things slowly change. Is there anything else 537 00:29:38,160 --> 00:29:40,840 Speaker 1: that you all are targeting that we should keep an 538 00:29:40,840 --> 00:29:46,240 Speaker 1: eye on. Um my colegislation wise, are just information wise. 539 00:29:46,720 --> 00:29:49,120 Speaker 1: So I've been working. One of the big misnomers in 540 00:29:49,120 --> 00:29:52,000 Speaker 1: this disease and in the world is, you know, people 541 00:29:52,040 --> 00:29:56,480 Speaker 1: mistaking sickness with an appearance versus a feeling. And a 542 00:29:56,520 --> 00:29:58,480 Speaker 1: lot of times we hear in the community, I don't 543 00:29:58,520 --> 00:30:00,640 Speaker 1: care you know which of my nineteen diseases I have. 544 00:30:00,720 --> 00:30:02,800 Speaker 1: Now you know, the common thing is you don't look sick. 545 00:30:03,760 --> 00:30:07,000 Speaker 1: And so the idea of this is sick in humanizing 546 00:30:07,240 --> 00:30:10,280 Speaker 1: what women go through and you know, creating something that 547 00:30:10,360 --> 00:30:12,240 Speaker 1: I you know, have a working title on called the 548 00:30:12,280 --> 00:30:15,640 Speaker 1: Ability Fund, And we need to dis disability and we 549 00:30:15,680 --> 00:30:19,560 Speaker 1: need to really bring awareness through events, campaign social media 550 00:30:19,640 --> 00:30:22,280 Speaker 1: posts that this is sick. These are the human beings 551 00:30:22,320 --> 00:30:24,560 Speaker 1: that are suffering, and as you both know, here are 552 00:30:24,600 --> 00:30:28,120 Speaker 1: the real world problems they face. There's a big misnomer 553 00:30:28,200 --> 00:30:30,280 Speaker 1: that when we get sick, we just rest. Well, who'll 554 00:30:30,280 --> 00:30:33,800 Speaker 1: pay your rent, who walks your docs, who brings you groceries? 555 00:30:34,040 --> 00:30:37,320 Speaker 1: How do you make money? Right? And so the entrepreneurship 556 00:30:37,360 --> 00:30:39,680 Speaker 1: within the industry of women who have become in the 557 00:30:39,760 --> 00:30:43,480 Speaker 1: solution space is key, but creating a platform and a 558 00:30:43,520 --> 00:30:46,680 Speaker 1: place for them to safely share their stories, to protect 559 00:30:46,720 --> 00:30:49,400 Speaker 1: their identities. And then what I hope happens is that 560 00:30:49,440 --> 00:30:52,800 Speaker 1: the class of legal action opens up beyond the cancer 561 00:30:52,840 --> 00:30:56,160 Speaker 1: class but into women with breast implant illness and they 562 00:30:56,200 --> 00:30:58,320 Speaker 1: have the right to sue for the damage that was 563 00:30:58,400 --> 00:31:01,720 Speaker 1: done to their body by that odd immune disease. And 564 00:31:01,760 --> 00:31:04,120 Speaker 1: that's when I will feel that the manufacturers will be 565 00:31:04,200 --> 00:31:07,800 Speaker 1: held accountable, the doctors will have to acknowledge and treat this. 566 00:31:08,560 --> 00:31:11,920 Speaker 1: And the last thing is that will stop this gridlock 567 00:31:11,960 --> 00:31:15,560 Speaker 1: and innovation because the women we deserve to be reconstructed. 568 00:31:15,600 --> 00:31:18,120 Speaker 1: We deserve to have options. But if you're settling on 569 00:31:18,200 --> 00:31:21,360 Speaker 1: this is the standard, then we're not going to get there. 570 00:31:21,600 --> 00:31:24,920 Speaker 1: So my hope is that by getting peer reviewed studies, 571 00:31:25,240 --> 00:31:28,320 Speaker 1: providing the FDA with data, and opening up the class, 572 00:31:28,760 --> 00:31:30,840 Speaker 1: the manufacturers are going to have to say, you know what, 573 00:31:31,760 --> 00:31:34,240 Speaker 1: we're going to doll with this out, bankrupt ourselves and 574 00:31:34,680 --> 00:31:38,600 Speaker 1: we're gone, because that's when things will change. But until then, 575 00:31:38,880 --> 00:31:42,040 Speaker 1: it's all about education and finding fun ways. Like you guys, 576 00:31:42,040 --> 00:31:44,120 Speaker 1: do to speak up and speak out and maybe get 577 00:31:44,160 --> 00:31:46,520 Speaker 1: people's attention in the format they weren't looking for it. 578 00:31:46,640 --> 00:31:48,800 Speaker 1: So if you come to one of our fashion shows 579 00:31:48,800 --> 00:31:50,440 Speaker 1: and see all the women are actually just say, you know, 580 00:31:50,480 --> 00:31:53,479 Speaker 1: in your mind disabled, but they're beautiful, We've may change. 581 00:31:53,960 --> 00:31:57,160 Speaker 1: And I think you know, not dismissing women as looking 582 00:31:57,240 --> 00:32:01,400 Speaker 1: fine when they feel like crap. I mean, that's such 583 00:32:01,400 --> 00:32:06,200 Speaker 1: a pressure to rights as women to not like calls 584 00:32:06,320 --> 00:32:09,800 Speaker 1: problems or rock the boat. Is you want to present 585 00:32:09,920 --> 00:32:13,760 Speaker 1: this image of no, I'm fine, it's fine, even though 586 00:32:13,800 --> 00:32:17,120 Speaker 1: it's not fine right, as well as the fact that 587 00:32:17,160 --> 00:32:19,960 Speaker 1: we talked about the pandemic, like they're not allowed to 588 00:32:20,120 --> 00:32:22,640 Speaker 1: be sick, as you said, like we have to keep going. 589 00:32:22,720 --> 00:32:25,080 Speaker 1: We whether you're being a mother and so you still 590 00:32:25,120 --> 00:32:26,960 Speaker 1: have to raise a child, you still have to feed 591 00:32:27,000 --> 00:32:29,280 Speaker 1: them as well as yourself as well as take care 592 00:32:29,280 --> 00:32:31,200 Speaker 1: of the house well, make sure that bills are paid. 593 00:32:31,360 --> 00:32:34,240 Speaker 1: And you don't have time to pause and even if 594 00:32:34,280 --> 00:32:36,920 Speaker 1: you do look okay, why are people judging you saying 595 00:32:36,920 --> 00:32:40,040 Speaker 1: you're not sick enough? Excuse me, excuse me? Why are 596 00:32:40,040 --> 00:32:41,680 Speaker 1: you the judge of how sick I am? It's a 597 00:32:41,680 --> 00:32:45,760 Speaker 1: well and I this is not statistically necessary, but like 598 00:32:46,000 --> 00:32:48,200 Speaker 1: a lot of women that I know have a pretty 599 00:32:48,280 --> 00:32:50,640 Speaker 1: high threshold for pain in general, and because they have 600 00:32:50,760 --> 00:32:53,800 Speaker 1: to maintain like, it's not because they want to, it's 601 00:32:53,840 --> 00:32:58,000 Speaker 1: because they have to. Point blank, I'll tell you a secret. 602 00:32:58,360 --> 00:33:00,640 Speaker 1: Right now, I'm sitting on a heating pad this week. 603 00:33:00,680 --> 00:33:03,760 Speaker 1: I yesterday I was told I have a fractured back, 604 00:33:04,600 --> 00:33:08,440 Speaker 1: and I go to the spine surgeon at one And 605 00:33:08,600 --> 00:33:12,800 Speaker 1: in the work I do and on Instagram sometimes people 606 00:33:12,800 --> 00:33:14,760 Speaker 1: will post like she was just at a podcast, now 607 00:33:14,840 --> 00:33:18,280 Speaker 1: she's hospital, and I'm like, welcome to sick And the 608 00:33:18,320 --> 00:33:20,880 Speaker 1: reality is this sense of purpose and what you said 609 00:33:20,880 --> 00:33:23,880 Speaker 1: about pain, you know, I joked that we embraced the 610 00:33:23,920 --> 00:33:27,760 Speaker 1: suck to almost the point of instinction. And I've been 611 00:33:27,760 --> 00:33:30,560 Speaker 1: reading so much by incredible women that are really looking 612 00:33:30,600 --> 00:33:35,080 Speaker 1: to eradicate self sacrifice is this trait of strength, so 613 00:33:35,280 --> 00:33:37,360 Speaker 1: you know, the Radical Awakening and all these great books 614 00:33:37,400 --> 00:33:39,760 Speaker 1: of No, if you take care of yourself, you're a 615 00:33:39,800 --> 00:33:43,120 Speaker 1: strong person. If you treat yourself bad, no, that doesn't 616 00:33:43,120 --> 00:33:47,000 Speaker 1: mean you're you know better or stronger or you know, no, 617 00:33:47,600 --> 00:33:50,960 Speaker 1: and more lovable, I think is the end result and 618 00:33:51,000 --> 00:33:52,760 Speaker 1: the last and then the last thing is this idea 619 00:33:52,800 --> 00:33:55,520 Speaker 1: of beauty. I've seen it change to such a positive 620 00:33:55,560 --> 00:34:02,080 Speaker 1: space where you being authentically you is it's beautiful, you know, 621 00:34:02,240 --> 00:34:06,000 Speaker 1: And especially the men in my life lately have all 622 00:34:06,000 --> 00:34:08,360 Speaker 1: come to me and I don't like them anyways, Like 623 00:34:08,480 --> 00:34:13,680 Speaker 1: really quickly, how do you post that? Like? Because I 624 00:34:13,719 --> 00:34:16,000 Speaker 1: think we you know, we perceive what men and women 625 00:34:16,040 --> 00:34:20,360 Speaker 1: think are beautiful versus actually asking people and instead of 626 00:34:20,360 --> 00:34:23,120 Speaker 1: going into this you know, marketing concept of beauty, you know, 627 00:34:23,239 --> 00:34:26,360 Speaker 1: really looking at sick is a feeling health as a 628 00:34:26,400 --> 00:34:30,200 Speaker 1: form of wealth and self preservation as something we do 629 00:34:30,320 --> 00:34:48,560 Speaker 1: because we're loving people to ourselves and not selfish. And 630 00:34:48,719 --> 00:34:52,000 Speaker 1: you have been practicing art for a while, now, how 631 00:34:52,040 --> 00:34:53,799 Speaker 1: did you get into it? You were saying that you 632 00:34:53,840 --> 00:34:55,440 Speaker 1: did this as a way of like coping, but how 633 00:34:55,480 --> 00:34:58,000 Speaker 1: did you get into it? Because I think one of 634 00:34:58,040 --> 00:35:00,480 Speaker 1: the big things that we talked about is, yes, self care, 635 00:35:00,560 --> 00:35:02,600 Speaker 1: what do you do for yourself, especially when you feel 636 00:35:02,640 --> 00:35:06,600 Speaker 1: like everything he's falling apart? How did you get into art? 637 00:35:06,680 --> 00:35:09,600 Speaker 1: Is that part of that process? I joke with my 638 00:35:09,760 --> 00:35:12,759 Speaker 1: um now disease mom that I was never an artist 639 00:35:12,760 --> 00:35:14,600 Speaker 1: because I didn't want to starve, and then I became 640 00:35:14,600 --> 00:35:16,759 Speaker 1: an entrepreneur so now I'm an artist, so I don't 641 00:35:16,760 --> 00:35:22,640 Speaker 1: starve UM. And you know, for art with me, I 642 00:35:22,719 --> 00:35:25,759 Speaker 1: was a single mom and early on, you know, being 643 00:35:25,800 --> 00:35:27,799 Speaker 1: home alone taking care of my daughter after a long 644 00:35:27,880 --> 00:35:30,239 Speaker 1: days at work. Art was a form of therapy. I 645 00:35:30,320 --> 00:35:32,760 Speaker 1: did it in high school. And then when I started 646 00:35:32,800 --> 00:35:35,520 Speaker 1: to have epilepsy UM, I started to have these really 647 00:35:35,600 --> 00:35:39,080 Speaker 1: vivid images and experiences. And it was a nurse and 648 00:35:39,160 --> 00:35:41,680 Speaker 1: one of the hospitals who encouraged me to paint as 649 00:35:41,719 --> 00:35:45,520 Speaker 1: a form of therapy. And I started to realize also, 650 00:35:45,640 --> 00:35:48,080 Speaker 1: like you said, it was something I could control. So 651 00:35:48,200 --> 00:35:50,000 Speaker 1: I didn't have to get twenty people to produce a 652 00:35:50,040 --> 00:35:52,200 Speaker 1: movie or to finance it. I could buy a canvas, 653 00:35:52,320 --> 00:35:53,880 Speaker 1: make place of art, put it on the wall, and 654 00:35:53,880 --> 00:35:57,799 Speaker 1: it was cool, and it just became, you know, a 655 00:35:57,840 --> 00:35:59,839 Speaker 1: real passion of mine. And then I started to meet 656 00:35:59,880 --> 00:36:02,319 Speaker 1: and credible artists like you know, Shepherd Fairy and all 657 00:36:02,360 --> 00:36:05,200 Speaker 1: these iconic people that were creating pop art that were 658 00:36:06,000 --> 00:36:09,799 Speaker 1: changing the world. And so I originally used to joke 659 00:36:09,880 --> 00:36:11,600 Speaker 1: that when I was at a party raising money for 660 00:36:11,640 --> 00:36:14,960 Speaker 1: a project, I would never introduce myself as an artist 661 00:36:15,400 --> 00:36:17,560 Speaker 1: if I introduced myself as an investment banker and I 662 00:36:17,600 --> 00:36:19,600 Speaker 1: happened to do art, I was cool. But if I 663 00:36:19,640 --> 00:36:21,640 Speaker 1: was the artist, they couldn't think I could do math. 664 00:36:23,160 --> 00:36:25,400 Speaker 1: And so that was you know, the dynamic thing, like 665 00:36:25,440 --> 00:36:28,640 Speaker 1: they say, left brain, right brain. And it was recently that, 666 00:36:28,760 --> 00:36:31,640 Speaker 1: through needing to finance treatment, a friend of mine said, 667 00:36:31,640 --> 00:36:34,359 Speaker 1: why don't we drop some of this art and sell 668 00:36:34,400 --> 00:36:37,600 Speaker 1: it as a way to raise money, and I, you know, 669 00:36:37,640 --> 00:36:41,400 Speaker 1: thought about it. I was really afraid I sucked. Um, 670 00:36:41,400 --> 00:36:44,280 Speaker 1: I don't. It's so intimidating to me the art world. 671 00:36:44,360 --> 00:36:47,040 Speaker 1: And then I got with the right group of people, 672 00:36:47,080 --> 00:36:49,280 Speaker 1: and now I continue to use it as an outlet 673 00:36:49,400 --> 00:36:52,319 Speaker 1: to create images of people that inspire me. Um that 674 00:36:52,400 --> 00:36:55,680 Speaker 1: I think, you know, are quote noble. And through researching 675 00:36:55,719 --> 00:36:57,920 Speaker 1: a lot of the people I paint, I have learned 676 00:36:58,000 --> 00:37:01,560 Speaker 1: such inspiring things about you know, the men and women. 677 00:37:02,120 --> 00:37:03,920 Speaker 1: And I noticed there was a common theme. You know, 678 00:37:03,960 --> 00:37:07,400 Speaker 1: they were all people who overcame injustice, adversity and stood 679 00:37:07,400 --> 00:37:10,560 Speaker 1: for something that was really meaningful to them. From you know, 680 00:37:10,600 --> 00:37:12,799 Speaker 1: the animal that's a wolf I paint to the owl too, 681 00:37:13,280 --> 00:37:17,000 Speaker 1: you know RBG. Those are the really important iconic people. 682 00:37:17,640 --> 00:37:21,520 Speaker 1: And I was lucky. So it's been true therapy. But 683 00:37:21,560 --> 00:37:23,920 Speaker 1: it was thank God for a nurse who brought me 684 00:37:24,000 --> 00:37:25,920 Speaker 1: paint into a hospital room. I think I was there 685 00:37:25,920 --> 00:37:28,600 Speaker 1: for twenty two days and I was climbing the walls 686 00:37:28,600 --> 00:37:35,400 Speaker 1: and she said that's color. Yeah, for good nurses exactly. 687 00:37:35,960 --> 00:37:37,680 Speaker 1: I mean, that's I'm a big proponent of that. You 688 00:37:37,719 --> 00:37:40,680 Speaker 1: never know what things, that kind or thing you do 689 00:37:40,840 --> 00:37:44,279 Speaker 1: that can really impact someone's life. You really don't, absolutely, 690 00:37:44,560 --> 00:37:46,600 Speaker 1: and the nurses are the heroes here. You know, that's 691 00:37:46,600 --> 00:37:48,640 Speaker 1: an important thing to bring up. I know obviously both 692 00:37:48,680 --> 00:37:53,000 Speaker 1: of your backgrounds, and you know, health care is evolving. 693 00:37:53,320 --> 00:37:56,399 Speaker 1: It's a industry that we don't know what we don't know. 694 00:37:56,640 --> 00:37:58,440 Speaker 1: And I think what I took away from all of 695 00:37:58,480 --> 00:38:00,520 Speaker 1: this is that you can't approach any thing in life 696 00:38:00,560 --> 00:38:04,839 Speaker 1: with absolution. There's always going to be unnes And as 697 00:38:04,840 --> 00:38:08,680 Speaker 1: we go forward as women sharing and being open and 698 00:38:08,719 --> 00:38:13,399 Speaker 1: being vulnerable versus posing and posturing and hiding things, that's 699 00:38:13,400 --> 00:38:15,759 Speaker 1: being tough, you know, telling people what's really going on. 700 00:38:16,280 --> 00:38:19,400 Speaker 1: That's hard. It's easy to get on Instagram and pretend like, 701 00:38:19,440 --> 00:38:21,360 Speaker 1: you know, my three dogs and I are living life. 702 00:38:21,840 --> 00:38:23,560 Speaker 1: It's hard to get on there and be like, um, 703 00:38:23,600 --> 00:38:29,600 Speaker 1: I just put my pants in the elevator. But people 704 00:38:29,640 --> 00:38:32,359 Speaker 1: actually like those stories better. So it's a testimony where 705 00:38:32,360 --> 00:38:40,160 Speaker 1: we're headed honesty. I like people appreciate well speaking of 706 00:38:40,320 --> 00:38:42,480 Speaker 1: kind of you do. Like we mentioned you've got a 707 00:38:42,480 --> 00:38:46,560 Speaker 1: documentary coming out TV, Like, what what is on the 708 00:38:46,600 --> 00:38:49,959 Speaker 1: horizon for you? Well, I'm you know, it's interesting because 709 00:38:50,000 --> 00:38:53,160 Speaker 1: I made a big change in my company in the 710 00:38:53,239 --> 00:38:56,799 Speaker 1: last month and I run Benoble Media Group. We've done 711 00:38:56,840 --> 00:38:59,160 Speaker 1: some great projects and we will continue to make some 712 00:38:59,200 --> 00:39:02,560 Speaker 1: really cool movie etcetera. But I had started the website 713 00:39:02,600 --> 00:39:05,040 Speaker 1: sick Titties dot Com, and I started to see that 714 00:39:05,080 --> 00:39:07,359 Speaker 1: what we really needed were three things. You know. One 715 00:39:07,480 --> 00:39:10,319 Speaker 1: a way to connect directly with accredited doctors who were 716 00:39:10,360 --> 00:39:14,000 Speaker 1: within the protocol that we understand right now to be 717 00:39:14,440 --> 00:39:17,640 Speaker 1: working right which is an expan et cetera. Two is 718 00:39:17,680 --> 00:39:20,600 Speaker 1: a financial services program to allow women to finance and 719 00:39:20,600 --> 00:39:23,680 Speaker 1: grow their business. And then lastly was a way to 720 00:39:23,719 --> 00:39:29,160 Speaker 1: host a community that was confidential. Unfortunately, when I opted 721 00:39:29,200 --> 00:39:33,560 Speaker 1: in too, you know, pursue my rights legally, I started 722 00:39:33,560 --> 00:39:36,280 Speaker 1: to see there were some bad actors that were paid 723 00:39:36,320 --> 00:39:39,400 Speaker 1: to come after women to disqualify them from the case. 724 00:39:40,200 --> 00:39:42,480 Speaker 1: So what's really important to know is if you quote 725 00:39:42,480 --> 00:39:48,000 Speaker 1: identify is having BII not diagnosed identify. So say you 726 00:39:48,040 --> 00:39:50,560 Speaker 1: post on your Instagram, I think I have b I 727 00:39:50,560 --> 00:39:52,680 Speaker 1: I two years ago, but then you don't think about 728 00:39:52,719 --> 00:39:54,640 Speaker 1: it again for a year and it comes out now 729 00:39:55,320 --> 00:39:58,920 Speaker 1: that data can be presented to disqualify you with certain 730 00:39:58,960 --> 00:40:02,200 Speaker 1: statutes from doing a claim. So I also wanted to 731 00:40:02,200 --> 00:40:05,239 Speaker 1: save space to connect women and to allow them to 732 00:40:06,280 --> 00:40:09,760 Speaker 1: do things that would help them help each other. So 733 00:40:09,920 --> 00:40:12,080 Speaker 1: a store full of great products that these amazing women 734 00:40:12,120 --> 00:40:15,600 Speaker 1: are creating, health coaches, and this whole industry of b 735 00:40:15,760 --> 00:40:19,319 Speaker 1: I I concierge has emerged, and so I wanted to 736 00:40:19,360 --> 00:40:22,800 Speaker 1: create some sort of technology and community to connect patients 737 00:40:22,800 --> 00:40:27,000 Speaker 1: with advocates and then lastly lobby and registration. Because from 738 00:40:27,000 --> 00:40:29,800 Speaker 1: a technology standpoint, if we have all these women's stories, 739 00:40:29,840 --> 00:40:32,000 Speaker 1: it's data they opt in. We can provide that to 740 00:40:32,040 --> 00:40:34,360 Speaker 1: the f d A, we can provide that to different 741 00:40:34,440 --> 00:40:37,440 Speaker 1: organizations and allow them to see while this is a 742 00:40:37,520 --> 00:40:40,560 Speaker 1: quote cluster or a class of women with common themes. 743 00:40:41,280 --> 00:40:43,880 Speaker 1: And so what we're now doing is expanding the company 744 00:40:44,160 --> 00:40:46,359 Speaker 1: and then through the movie, through the book, and through 745 00:40:46,640 --> 00:40:49,080 Speaker 1: you know, any other platform we can get on. We 746 00:40:49,120 --> 00:40:51,560 Speaker 1: really want to drive people to this community. And then 747 00:40:51,600 --> 00:40:54,920 Speaker 1: also create women driven products that you can buy, to 748 00:40:55,000 --> 00:40:59,200 Speaker 1: support people in the industry, to create that connectivity and 749 00:40:59,400 --> 00:41:01,560 Speaker 1: you know there's a new you. The last thing I'll 750 00:41:01,600 --> 00:41:03,680 Speaker 1: say is that, you know, I always say this is 751 00:41:03,680 --> 00:41:06,520 Speaker 1: for my daughter, you know, as a twenty three year 752 00:41:06,560 --> 00:41:08,920 Speaker 1: old woman. I want her and her friends to know 753 00:41:09,080 --> 00:41:11,840 Speaker 1: that the best thing they can buy is not boobs. 754 00:41:13,640 --> 00:41:20,160 Speaker 1: So integrate that safe space, I think is really important. Yeah, yeah, 755 00:41:20,239 --> 00:41:22,799 Speaker 1: I mean it's it's it's one of those things. So 756 00:41:22,840 --> 00:41:25,360 Speaker 1: many times on this show we'll talk about something or 757 00:41:25,440 --> 00:41:29,160 Speaker 1: someone and everything they've done and advocating for themselves and 758 00:41:29,160 --> 00:41:31,359 Speaker 1: for their community, and it's like so inspiring, but it's 759 00:41:31,400 --> 00:41:34,200 Speaker 1: also so infuriating because like so much work and you're 760 00:41:34,200 --> 00:41:36,080 Speaker 1: not really getting paid for it, and it's just like 761 00:41:36,960 --> 00:41:40,560 Speaker 1: to be healthy because you were allied to, were not 762 00:41:40,600 --> 00:41:45,440 Speaker 1: given the information and it's like on you two to 763 00:41:45,600 --> 00:41:49,400 Speaker 1: go to the government and be like, wait, right, there's 764 00:41:49,400 --> 00:41:54,200 Speaker 1: a problem here, so that younger people don't do the 765 00:41:54,280 --> 00:41:57,399 Speaker 1: same thing right well, And it's it's shocking how hard 766 00:41:57,440 --> 00:41:59,919 Speaker 1: it is to tell people that you've had an ingest 767 00:42:00,040 --> 00:42:04,080 Speaker 1: this in any capacity, right, It's difficult, And I think 768 00:42:04,840 --> 00:42:08,440 Speaker 1: you know, there is a segment of female empowerment and 769 00:42:08,640 --> 00:42:12,440 Speaker 1: human empowerment where it should be your body, your choice, 770 00:42:12,560 --> 00:42:15,760 Speaker 1: and it should be an educated decision, not the best guess. 771 00:42:16,400 --> 00:42:18,520 Speaker 1: And you know that's the future. And I think just 772 00:42:18,600 --> 00:42:20,919 Speaker 1: disclosing the cost, like if someone told me I would 773 00:42:20,960 --> 00:42:22,640 Speaker 1: have to spend all my money for the rest of 774 00:42:22,640 --> 00:42:24,719 Speaker 1: my life to maintain these suckers, I would never have 775 00:42:24,800 --> 00:42:28,799 Speaker 1: done it right, right, I mean just in fact, we 776 00:42:28,880 --> 00:42:31,359 Speaker 1: also talked about on our show often that there are 777 00:42:31,400 --> 00:42:33,840 Speaker 1: things out there it finally comes to the point that 778 00:42:33,840 --> 00:42:35,880 Speaker 1: a woman has to say, well, I'll do it myself. 779 00:42:35,920 --> 00:42:38,799 Speaker 1: I'll create this myself. I'll do this space myself. And 780 00:42:38,800 --> 00:42:42,520 Speaker 1: the fact that you're having to do this is both infuriating, 781 00:42:43,000 --> 00:42:46,600 Speaker 1: really encouraging to and inspiring at the same time. Um, 782 00:42:46,640 --> 00:42:48,960 Speaker 1: and to see that as you're talking obviously things have 783 00:42:49,040 --> 00:42:52,360 Speaker 1: continued to change as you've began this process to today 784 00:42:52,600 --> 00:42:55,120 Speaker 1: and talking about how you're having to rearrange like, oh, 785 00:42:55,239 --> 00:42:56,960 Speaker 1: I see a need for this, so I'm having to 786 00:42:57,040 --> 00:43:00,880 Speaker 1: create this. And it's both encard again and infuriating, but 787 00:43:01,000 --> 00:43:04,720 Speaker 1: also knowing that someone is actually fighting and actually working 788 00:43:04,760 --> 00:43:07,600 Speaker 1: to make sure people know what's happening out there. And 789 00:43:07,640 --> 00:43:09,960 Speaker 1: the mere fact that you have to raise money and 790 00:43:10,000 --> 00:43:15,919 Speaker 1: do crafting to be healthy. It makes they have a deep, 791 00:43:16,040 --> 00:43:18,600 Speaker 1: deep moment of like Clutiel is going to have their 792 00:43:18,640 --> 00:43:23,400 Speaker 1: own at sea someday. And here's the thing, like you know, 793 00:43:23,960 --> 00:43:26,440 Speaker 1: my mom, poverty breeds invention. Like you know, action is 794 00:43:26,480 --> 00:43:29,640 Speaker 1: intention and you know the Golden rule, and I think 795 00:43:29,880 --> 00:43:34,799 Speaker 1: you know out of this will be burst this, you know, 796 00:43:34,840 --> 00:43:37,120 Speaker 1: like as you hear, I'm sure right now the impact world, 797 00:43:37,160 --> 00:43:40,319 Speaker 1: you know, it's all about impact and sponsoring change. And 798 00:43:40,360 --> 00:43:42,960 Speaker 1: what I'm excited to report is that as we're approaching 799 00:43:43,000 --> 00:43:45,719 Speaker 1: corporate partners, for instance, I heart I literally wrote an 800 00:43:45,760 --> 00:43:47,160 Speaker 1: email that said, let me do a podcast. It will 801 00:43:47,160 --> 00:43:49,440 Speaker 1: say women's Life's talk about the kids are killing them 802 00:43:49,520 --> 00:43:53,400 Speaker 1: And within seven minutes like out of response, right, And 803 00:43:53,440 --> 00:43:56,080 Speaker 1: to have that merge into the producers hopping on, the 804 00:43:56,080 --> 00:43:59,640 Speaker 1: marketing team helping us, all the support we've gotten, it's 805 00:43:59,640 --> 00:44:02,560 Speaker 1: soalidating that, like you were saying, if people want to 806 00:44:02,600 --> 00:44:04,719 Speaker 1: make a difference and if you can help them, help 807 00:44:04,760 --> 00:44:08,319 Speaker 1: you help us, then it works. But it's definitely this 808 00:44:08,400 --> 00:44:12,480 Speaker 1: attitude of action and change. And that's one thing about 809 00:44:12,480 --> 00:44:14,520 Speaker 1: this community. I have yet to meet a woman who 810 00:44:14,640 --> 00:44:17,640 Speaker 1: yes they're mad, Yes they recognize ingestice, but they will 811 00:44:17,640 --> 00:44:21,680 Speaker 1: not be a victim, and you know that is important. 812 00:44:21,719 --> 00:44:23,800 Speaker 1: And I think, you know, and listening to your podcast, 813 00:44:23,880 --> 00:44:25,960 Speaker 1: like I listened to the episode about the beer, and 814 00:44:26,000 --> 00:44:27,680 Speaker 1: now I know you need to think about where it 815 00:44:27,680 --> 00:44:33,160 Speaker 1: comes from, right and educating yourself. So then I wanted 816 00:44:33,160 --> 00:44:34,799 Speaker 1: to be here for the sick titties because I was like, 817 00:44:34,840 --> 00:44:44,400 Speaker 1: that's me right, exactly, like CBD for it, and you know, 818 00:44:44,520 --> 00:44:47,080 Speaker 1: and now I'm exploring all these partners and you know, 819 00:44:47,120 --> 00:44:49,560 Speaker 1: I joked with someone last night and I was serious 820 00:44:49,600 --> 00:44:51,960 Speaker 1: because I came from the cannabis space and I'm like, 821 00:44:51,960 --> 00:44:53,960 Speaker 1: We're gonna have smoking sick titties if it kills me. 822 00:44:54,560 --> 00:44:57,279 Speaker 1: Because also, like the alternative medicine side of this and 823 00:44:57,360 --> 00:45:00,000 Speaker 1: what I've learned and the education and the companies who 824 00:45:00,040 --> 00:45:03,120 Speaker 1: stepped up and really wanted to help, So that part 825 00:45:03,120 --> 00:45:06,000 Speaker 1: of this has definitely been inspiring. And then also I'm 826 00:45:06,120 --> 00:45:08,560 Speaker 1: forty eight and I get to interact with women of 827 00:45:08,640 --> 00:45:13,000 Speaker 1: all generations and I see this really great change in 828 00:45:13,520 --> 00:45:16,799 Speaker 1: you know, support and advocacy versus competition and you know 829 00:45:16,840 --> 00:45:20,520 Speaker 1: a little bit of cruelty. Yeah, well, that's that's wonderful 830 00:45:20,560 --> 00:45:23,080 Speaker 1: to hear I'm glad. I feel like we've kind of 831 00:45:23,120 --> 00:45:27,440 Speaker 1: experienced that as well in terms of the people who 832 00:45:27,480 --> 00:45:30,799 Speaker 1: are interacting and sort of the general vibe as they say, 833 00:45:30,960 --> 00:45:35,040 Speaker 1: towards issues that we bring. Like I feel like several 834 00:45:35,120 --> 00:45:38,080 Speaker 1: years ago I would have gotten much angrier response to 835 00:45:38,120 --> 00:45:40,279 Speaker 1: certain things we've talked about as compared to now where 836 00:45:40,280 --> 00:45:43,160 Speaker 1: people are more like, Okay, yeah, we should talk about this. 837 00:45:44,800 --> 00:45:46,480 Speaker 1: I did want to ask do you have any um 838 00:45:46,680 --> 00:45:49,600 Speaker 1: resources that you want to shout out for listeners to 839 00:45:49,600 --> 00:45:52,600 Speaker 1: to check out? Absolutely, I think it's really important to 840 00:45:52,680 --> 00:45:55,239 Speaker 1: go to the f d a site and read what 841 00:45:55,280 --> 00:45:59,000 Speaker 1: they're publishing in real time because that's the truth. One 842 00:45:59,000 --> 00:46:01,319 Speaker 1: of the important things to know is there are you know, 843 00:46:01,440 --> 00:46:05,759 Speaker 1: definitely hashtags you can follow. There's amazing people on social media, 844 00:46:06,000 --> 00:46:09,200 Speaker 1: but the FDA is publishing in real time information that's 845 00:46:09,400 --> 00:46:12,359 Speaker 1: you know, pretty compelling, and they also give out data 846 00:46:12,400 --> 00:46:15,720 Speaker 1: for the recall um. There's a great organization that's working 847 00:46:15,760 --> 00:46:18,200 Speaker 1: hard to create a registry called track my Solutions, so 848 00:46:18,239 --> 00:46:20,400 Speaker 1: you can look up and see if your implants are recalled. 849 00:46:21,080 --> 00:46:23,680 Speaker 1: But the FDA right now is our go to and 850 00:46:23,680 --> 00:46:26,440 Speaker 1: when you research their announcement last week and these hearings 851 00:46:26,480 --> 00:46:29,440 Speaker 1: that they're holding. The other thing is, you know, share 852 00:46:29,440 --> 00:46:33,279 Speaker 1: your story hashtag at brest Implant Illness hashtag at b 853 00:46:33,400 --> 00:46:36,480 Speaker 1: II journey, because you're going to start to follow and 854 00:46:36,520 --> 00:46:40,840 Speaker 1: connect with other people. And then in most cities right now, 855 00:46:41,000 --> 00:46:45,120 Speaker 1: there's a plastic surgeon that's registered on the Plastic Surgery Association. 856 00:46:45,719 --> 00:46:48,480 Speaker 1: Go there and look at accredited doctors and doctors that 857 00:46:48,560 --> 00:46:52,240 Speaker 1: are part of these panels about rest implant illness, because 858 00:46:52,239 --> 00:46:54,640 Speaker 1: those are some of the thought leaders that are publishing things. 859 00:46:55,040 --> 00:46:57,520 Speaker 1: And then also ask other patients if you're looking for 860 00:46:57,560 --> 00:47:02,440 Speaker 1: a doctor, get referrals, get reviews, and message people online 861 00:47:02,560 --> 00:47:06,000 Speaker 1: because women who like what they've experienced post it, but 862 00:47:06,080 --> 00:47:08,160 Speaker 1: women who don't like it also post it, and it's 863 00:47:08,160 --> 00:47:12,359 Speaker 1: important to reach out to them. Yes, absolutely, thank you 864 00:47:12,400 --> 00:47:17,399 Speaker 1: so much Kristen for being with us today having this conversation. 865 00:47:18,239 --> 00:47:20,080 Speaker 1: Come back any time. We would love to have you 866 00:47:20,360 --> 00:47:23,799 Speaker 1: happy hour. I want to come to Atlanta. We're gonna 867 00:47:23,880 --> 00:47:27,960 Speaker 1: do some beer and Carrie Fisher well, I'm not to 868 00:47:28,000 --> 00:47:30,120 Speaker 1: have to come to buy one of these Michelle Obama 869 00:47:30,160 --> 00:47:33,680 Speaker 1: mugs for sure. I'm like, oh, my collection, I will 870 00:47:33,719 --> 00:47:35,640 Speaker 1: send you. I will send you guys some stuff. I mean, 871 00:47:35,680 --> 00:47:38,719 Speaker 1: thank you so much, and you know, please continue what 872 00:47:38,760 --> 00:47:40,640 Speaker 1: you're doing. Like I listened to the show all the 873 00:47:40,719 --> 00:47:44,359 Speaker 1: time and it's so incredible. I'm learning so much in 874 00:47:44,400 --> 00:47:48,160 Speaker 1: a fun way. Thank you and you as well. You 875 00:47:48,280 --> 00:47:51,640 Speaker 1: as well, Um. And speaking of where can the good 876 00:47:51,640 --> 00:47:55,560 Speaker 1: listeners find you? So, I am on Instagram at Kristen 877 00:47:55,920 --> 00:47:59,719 Speaker 1: underscore e Nobles and I'm also at sick Titties dot 878 00:47:59,719 --> 00:48:03,200 Speaker 1: com which is an ever growing site. And I'm also 879 00:48:03,400 --> 00:48:06,960 Speaker 1: on um Facebook under Kristin Nobles and we have a 880 00:48:07,000 --> 00:48:10,800 Speaker 1: Facebook support group that's b Noble on b I I yes, 881 00:48:11,360 --> 00:48:13,640 Speaker 1: and I always love I have to do this with 882 00:48:13,719 --> 00:48:19,880 Speaker 1: podcasts or sometimes you also have a podcast podcast Sister Podcast. 883 00:48:20,680 --> 00:48:22,840 Speaker 1: You can also find us on Close to the Chest 884 00:48:22,920 --> 00:48:25,760 Speaker 1: with Kristen and Christine and that's on I Heart Apple 885 00:48:25,880 --> 00:48:30,480 Speaker 1: or wherever you get your podcasts. Yes, and definitely go 886 00:48:30,640 --> 00:48:34,479 Speaker 1: check it out, listeners. Thank you again Kristen for being here. 887 00:48:35,520 --> 00:48:37,680 Speaker 1: If you would like contact us, you can or email 888 00:48:37,719 --> 00:48:39,680 Speaker 1: us Stephieu Mom and stuff at I hurt media dot com. 889 00:48:39,719 --> 00:48:41,440 Speaker 1: You can find us on Instagram and Stuff I've Never 890 00:48:41,480 --> 00:48:45,279 Speaker 1: Told You or on Twitter at moms Podcast. Thanks. It's 891 00:48:45,280 --> 00:48:48,319 Speaker 1: always to a sup producer, Christina, Thank you and thanks 892 00:48:48,320 --> 00:48:50,839 Speaker 1: to you for listening. Someone over toldly distrected I Heart Radio. 893 00:48:50,880 --> 00:48:53,120 Speaker 1: For more podcast on my Heart Radio, see on radio app, 894 00:48:53,120 --> 00:48:55,360 Speaker 1: Apple podcast, or wherever you listen to your favorite shows.