1 00:00:01,600 --> 00:00:05,240 Speaker 1: Hey there, folks, this episode of our podcast is going 2 00:00:05,280 --> 00:00:09,920 Speaker 1: to be all about dignity, love and joy as we 3 00:00:10,000 --> 00:00:15,240 Speaker 1: talk about death, we'll explain. Stay with us here, Welcome 4 00:00:15,280 --> 00:00:18,240 Speaker 1: to this episode of Amy and TJ and Robes. I 5 00:00:18,280 --> 00:00:21,159 Speaker 1: say that because we are going to be focusing on 6 00:00:21,880 --> 00:00:26,800 Speaker 1: end of life, which is now. It scares the heck 7 00:00:26,840 --> 00:00:28,680 Speaker 1: out of anybody to think about the end of your life, 8 00:00:28,680 --> 00:00:30,960 Speaker 1: and it's hard to plan for that. But there's an 9 00:00:31,040 --> 00:00:33,760 Speaker 1: organization now that has been around for several years as 10 00:00:33,840 --> 00:00:36,599 Speaker 1: trying to make this a part of life and not 11 00:00:37,520 --> 00:00:40,960 Speaker 1: I guess as daunting of a task or a thought 12 00:00:41,120 --> 00:00:42,760 Speaker 1: as most of us think it is. 13 00:00:42,880 --> 00:00:44,879 Speaker 2: Yeah, well, what do we do when we're afraid of 14 00:00:44,880 --> 00:00:47,000 Speaker 2: something or we don't want to think about something. We 15 00:00:47,040 --> 00:00:49,200 Speaker 2: ignore it. We don't plan for it, we don't talk 16 00:00:49,200 --> 00:00:51,680 Speaker 2: about it, we don't discuss it. And yet when it happens, 17 00:00:51,720 --> 00:00:55,680 Speaker 2: and it is something that is inevitable, we cannot escape death, 18 00:00:55,920 --> 00:00:58,080 Speaker 2: not on one of us. And yet somehow we don't 19 00:00:58,120 --> 00:01:00,800 Speaker 2: talk about it and we don't plan for and you 20 00:01:00,920 --> 00:01:03,080 Speaker 2: leave the burden behind for the people who love you, 21 00:01:03,760 --> 00:01:08,920 Speaker 2: and you also don't take the opportunity to actually be 22 00:01:09,000 --> 00:01:11,120 Speaker 2: a part of that planning and be a part of 23 00:01:11,160 --> 00:01:14,560 Speaker 2: that understanding and it can be a loving, beautiful thing. 24 00:01:14,680 --> 00:01:17,880 Speaker 2: But because it's scary and because we want to avoid 25 00:01:17,920 --> 00:01:20,080 Speaker 2: it and we don't want to talk about it, we 26 00:01:20,160 --> 00:01:22,920 Speaker 2: miss those moments that are there. And so yes, there 27 00:01:22,959 --> 00:01:25,120 Speaker 2: is a group. There was an organization that's been around, 28 00:01:25,319 --> 00:01:28,560 Speaker 2: a nonprofit initiative that is focused. As you say, I 29 00:01:28,640 --> 00:01:31,880 Speaker 2: love this making end of life part of life. That 30 00:01:32,000 --> 00:01:35,479 Speaker 2: is such a concept that I don't think most people 31 00:01:35,520 --> 00:01:39,080 Speaker 2: even think about or have even considered, and yet it's 32 00:01:39,120 --> 00:01:39,880 Speaker 2: so important. 33 00:01:40,280 --> 00:01:44,720 Speaker 1: And the founder of the organization, doctor Joshana Ungerlighter, is 34 00:01:44,800 --> 00:01:46,800 Speaker 1: going to be joining us here now she is on 35 00:01:46,880 --> 00:01:50,880 Speaker 1: the podcast. But not just doctor Hungerlighter. We have with 36 00:01:51,000 --> 00:01:54,360 Speaker 1: us also a name, a face, and a voice. I 37 00:01:54,360 --> 00:01:56,760 Speaker 1: think Robes is familiar to a lot of people. 38 00:01:56,920 --> 00:02:00,440 Speaker 2: Yes, we have Yvette Nicole Brown. You know her love 39 00:02:01,280 --> 00:02:03,840 Speaker 2: she has been I don't know. There are so many 40 00:02:03,880 --> 00:02:06,880 Speaker 2: different television shows and movies. You've been a part of EVET, 41 00:02:06,880 --> 00:02:09,280 Speaker 2: but I think most people know you from community and 42 00:02:09,320 --> 00:02:11,839 Speaker 2: I love that you are now the voice of Coach 43 00:02:11,960 --> 00:02:15,680 Speaker 2: robertson Inside Out Too, one of TJ's daughter's favorite movies. 44 00:02:16,080 --> 00:02:18,480 Speaker 2: So but that's just I mean I could go on 45 00:02:18,520 --> 00:02:20,320 Speaker 2: and on and on naming all of your. 46 00:02:20,160 --> 00:02:21,640 Speaker 1: Accolades that this is wild. 47 00:02:21,800 --> 00:02:22,680 Speaker 3: I am not kidding you. 48 00:02:22,960 --> 00:02:25,240 Speaker 1: I actually asked her ahead of time, can you please 49 00:02:25,280 --> 00:02:27,720 Speaker 1: handle the intro to her? It's just too much, it's 50 00:02:27,800 --> 00:02:31,119 Speaker 1: too much to try to get in there. But welcome, 51 00:02:31,240 --> 00:02:33,400 Speaker 1: Welcome to you both. It's so good to have you 52 00:02:33,480 --> 00:02:36,760 Speaker 1: both with us here on the podcast. Doctor Ungerler. How 53 00:02:36,800 --> 00:02:37,440 Speaker 1: are you doing today? 54 00:02:38,360 --> 00:02:41,160 Speaker 4: I'm well, thank you, Thank you so much for having 55 00:02:41,240 --> 00:02:44,560 Speaker 4: both of us and for having this conversation today, and 56 00:02:45,080 --> 00:02:45,760 Speaker 4: thanks for having us. 57 00:02:45,800 --> 00:02:48,839 Speaker 2: Yes, yeah, And I wanted to ask you how did 58 00:02:48,880 --> 00:02:52,200 Speaker 2: you get involved in this group? Because, as I mentioned, 59 00:02:52,240 --> 00:02:55,280 Speaker 2: this isn't something that most people think about, and I 60 00:02:55,320 --> 00:02:57,840 Speaker 2: think it's something most people don't want to think about. 61 00:02:58,560 --> 00:03:01,760 Speaker 5: Yeah, you know, I'm a giver. I lost my mom 62 00:03:01,800 --> 00:03:04,040 Speaker 5: three years ago, as everyone knows. And then I'm also 63 00:03:04,080 --> 00:03:06,800 Speaker 5: a caregiver, so end of life has been, you know, 64 00:03:07,480 --> 00:03:10,440 Speaker 5: in the forefront of my mind for a while. And Shoshana, 65 00:03:10,480 --> 00:03:12,200 Speaker 5: how do we ended up working together? Did you just 66 00:03:12,320 --> 00:03:14,560 Speaker 5: see me in the caregiving space and go she might 67 00:03:14,600 --> 00:03:17,560 Speaker 5: be cool to host this or how did how did 68 00:03:17,560 --> 00:03:18,280 Speaker 5: we get together? 69 00:03:19,280 --> 00:03:23,640 Speaker 4: Exactly? We basically were like vet is incredible. She is 70 00:03:23,680 --> 00:03:28,000 Speaker 4: the most dynamic person and has has walked this journey, 71 00:03:28,040 --> 00:03:29,959 Speaker 4: and so we just felt like it was a perfect 72 00:03:30,040 --> 00:03:33,360 Speaker 4: fit to have you come, you know, host last year 73 00:03:33,400 --> 00:03:36,200 Speaker 4: and then you you smashed it, so we had to 74 00:03:36,200 --> 00:03:37,840 Speaker 4: have you back this year for it for our event. 75 00:03:38,120 --> 00:03:40,760 Speaker 6: And I learned so much you guys about end of life. 76 00:03:40,840 --> 00:03:42,640 Speaker 5: And I mean, the thing that blew my wig back 77 00:03:42,680 --> 00:03:45,240 Speaker 5: last year was death doulas because we've all heard of 78 00:03:45,240 --> 00:03:47,920 Speaker 5: birth doulas. I heard for the first time about death 79 00:03:47,960 --> 00:03:50,120 Speaker 5: doulas when I hosted last year, and there were just 80 00:03:50,160 --> 00:03:51,960 Speaker 5: everybody that came up on the panel. It was just 81 00:03:52,000 --> 00:03:55,000 Speaker 5: more information about conversations we don't want to have, but 82 00:03:55,040 --> 00:03:56,680 Speaker 5: we need to have. And the thing is, you have 83 00:03:56,760 --> 00:03:59,080 Speaker 5: it once you figure out what you want, what you 84 00:03:59,200 --> 00:04:00,720 Speaker 5: what you people want to do and all that, and 85 00:04:00,760 --> 00:04:02,920 Speaker 5: then you never have to talk about it again, you know. 86 00:04:03,040 --> 00:04:05,880 Speaker 5: So it's just important to know. We talk about birth, 87 00:04:05,920 --> 00:04:08,920 Speaker 5: we talk about love and relationships and life and careers, 88 00:04:08,960 --> 00:04:11,160 Speaker 5: we talk about everything except the one thing that's inevitable 89 00:04:11,160 --> 00:04:12,520 Speaker 5: for all of us, we all getting out of here. 90 00:04:12,960 --> 00:04:15,560 Speaker 5: So we need to have a conversation about end of life. 91 00:04:16,680 --> 00:04:19,080 Speaker 2: It's so interesting you just said that because right before 92 00:04:19,120 --> 00:04:22,040 Speaker 2: we came on the podcast, I was talking in the 93 00:04:22,080 --> 00:04:26,119 Speaker 2: studio and I said, death doula. I have never heard 94 00:04:26,160 --> 00:04:28,560 Speaker 2: that term before. And to your point, yes, we've all 95 00:04:28,600 --> 00:04:31,599 Speaker 2: heard about doula's there who helped women give birth. I 96 00:04:31,680 --> 00:04:36,279 Speaker 2: didn't know that was a thing. Tell can doctor a ungerletter, 97 00:04:36,320 --> 00:04:39,279 Speaker 2: can you tell us what a death doula actually even 98 00:04:39,480 --> 00:04:41,360 Speaker 2: is and how prominent are they? 99 00:04:43,000 --> 00:04:47,280 Speaker 4: Yeah? Well, so a death doula is exactly the same 100 00:04:47,320 --> 00:04:51,279 Speaker 4: thing that one does for the birthing process for new 101 00:04:51,279 --> 00:04:54,320 Speaker 4: moms and families. But at the end of life, it's 102 00:04:54,320 --> 00:04:58,640 Speaker 4: somebody who walks beside you in a non medical fashion 103 00:04:58,839 --> 00:05:03,200 Speaker 4: and supports the the dying person, supports the family, other 104 00:05:03,279 --> 00:05:07,760 Speaker 4: loved ones, and death dula's usually come you know, into 105 00:05:07,800 --> 00:05:11,159 Speaker 4: play in the final weeks of life, but they can 106 00:05:11,480 --> 00:05:14,279 Speaker 4: month's upstream if somebody's terminally ill get involved. 107 00:05:14,520 --> 00:05:16,960 Speaker 5: And even more than months upstream, I found they if 108 00:05:17,000 --> 00:05:18,919 Speaker 5: you are just someone that wants to get your affairs 109 00:05:18,920 --> 00:05:20,960 Speaker 5: in order, you could have a death dula even though 110 00:05:21,000 --> 00:05:23,400 Speaker 5: you're perfectly healthy. And you talk to that person and 111 00:05:23,400 --> 00:05:25,120 Speaker 5: you say, well, when I pass away, I want all 112 00:05:25,160 --> 00:05:27,400 Speaker 5: my jewelry laid out, and I want everybody to come 113 00:05:27,440 --> 00:05:29,159 Speaker 5: and pick up a string of pearls or a ring 114 00:05:29,240 --> 00:05:32,440 Speaker 5: as they celebrate me, or I want this playlist playing 115 00:05:32,560 --> 00:05:35,360 Speaker 5: at my homegoing like you literally just get to plan 116 00:05:35,400 --> 00:05:37,440 Speaker 5: it the way you would plan a wedding, you know, 117 00:05:37,520 --> 00:05:40,159 Speaker 5: and then when the time comes, everything's already laid out 118 00:05:40,360 --> 00:05:42,200 Speaker 5: and everybody knows what you want. 119 00:05:42,640 --> 00:05:47,920 Speaker 1: How exactly isn't this, doctor Aungerler, This is so much 120 00:05:48,040 --> 00:05:50,120 Speaker 1: yes for the person who is passed it, but how 121 00:05:50,279 --> 00:05:52,800 Speaker 1: critical is this for the people who are going to 122 00:05:52,839 --> 00:05:57,480 Speaker 1: be left behind that this these conversations and this whole 123 00:05:57,600 --> 00:05:59,400 Speaker 1: end well concept takes place. 124 00:06:00,560 --> 00:06:03,520 Speaker 4: Oh, it's it's huge. I mean it's it goes well 125 00:06:03,560 --> 00:06:07,400 Speaker 4: beyond the person in the bed, and certainly as it 126 00:06:07,440 --> 00:06:10,080 Speaker 4: relates to the legacy and the planning as far as 127 00:06:10,080 --> 00:06:12,200 Speaker 4: getting your affairs in order, which is I just lost 128 00:06:12,240 --> 00:06:14,760 Speaker 4: my dad, and so I can tell you having those 129 00:06:14,800 --> 00:06:17,599 Speaker 4: conversations ahead of time makes all the difference in the world. 130 00:06:17,920 --> 00:06:20,800 Speaker 4: And then as you navigate the grief journey too once 131 00:06:20,920 --> 00:06:23,839 Speaker 4: once your person is gone, I'm having a death duela, 132 00:06:24,279 --> 00:06:27,400 Speaker 4: and thinking about these things ahead of time I think 133 00:06:27,480 --> 00:06:31,279 Speaker 4: doesn't alleviate the grief, but makes it a little bit easier, 134 00:06:31,640 --> 00:06:33,080 Speaker 4: you know, for everybody who. 135 00:06:33,000 --> 00:06:35,040 Speaker 1: If you found, is more resistant, and maybe a vet 136 00:06:35,040 --> 00:06:37,680 Speaker 1: you can speak to your personal experience, who's more hesitant 137 00:06:37,720 --> 00:06:40,200 Speaker 1: to have the conversation. Like you said, doctor Ungelier, is 138 00:06:40,240 --> 00:06:42,240 Speaker 1: that person in the bed or is it the family 139 00:06:42,279 --> 00:06:44,760 Speaker 1: who's who's most resistant? 140 00:06:44,960 --> 00:06:45,120 Speaker 6: Ends? 141 00:06:45,760 --> 00:06:48,839 Speaker 5: It depends too, because you know, I'm finding with my dad, 142 00:06:48,839 --> 00:06:52,719 Speaker 5: who has dementia, he's it's I feel that he's declining, 143 00:06:52,720 --> 00:06:54,760 Speaker 5: and I feel like it's you know, I hope I 144 00:06:54,760 --> 00:06:57,000 Speaker 5: have him for another fifty seven years, but I don't 145 00:06:57,040 --> 00:06:59,320 Speaker 5: know how long it will be. But I'm noticing that 146 00:06:59,360 --> 00:07:02,800 Speaker 5: he's less concerned with anything here, you know what I mean, 147 00:07:02,839 --> 00:07:05,080 Speaker 5: He's more concerned. He's I feel like the veil has 148 00:07:05,080 --> 00:07:07,520 Speaker 5: been lifted, and he's seeing his mother and his father, 149 00:07:07,600 --> 00:07:11,120 Speaker 5: and he seeing my mom, and so he's already transitioning, 150 00:07:11,160 --> 00:07:14,480 Speaker 5: I feel in a certain way. So it's definitely harder 151 00:07:14,520 --> 00:07:16,480 Speaker 5: for those of us left here to imagine and to 152 00:07:16,480 --> 00:07:20,080 Speaker 5: think about what the next step is for us, you know. 153 00:07:20,360 --> 00:07:23,040 Speaker 5: And there's a lot of conversations that are difficult, but 154 00:07:23,080 --> 00:07:24,400 Speaker 5: it only hurts when. 155 00:07:24,320 --> 00:07:26,960 Speaker 6: You don't have them. You gotta have them. You gotta 156 00:07:27,040 --> 00:07:27,720 Speaker 6: have the tough ones. 157 00:07:27,760 --> 00:07:30,520 Speaker 2: And Doctor Underlighter, I'm curious because I know part of 158 00:07:30,520 --> 00:07:34,600 Speaker 2: your mission is to, you say, challenge societal norms and 159 00:07:34,720 --> 00:07:38,240 Speaker 2: to humanize the death experience, which is such an interesting 160 00:07:38,280 --> 00:07:41,720 Speaker 2: way to put it. Is this something specific to our country? 161 00:07:41,760 --> 00:07:47,200 Speaker 2: Do other countries? Do other people handle this better and 162 00:07:47,440 --> 00:07:50,920 Speaker 2: weave it into the fabric of their lives in anticipation 163 00:07:50,960 --> 00:07:54,640 Speaker 2: of what is inevitable? Or is this something that maybe 164 00:07:54,640 --> 00:07:58,480 Speaker 2: perhaps universally we all avoid What would you say? 165 00:07:59,400 --> 00:08:01,840 Speaker 4: I would say it is pretty universal. I mean, there 166 00:08:01,840 --> 00:08:06,600 Speaker 4: are some select communities and cultures that do talk about 167 00:08:06,640 --> 00:08:09,560 Speaker 4: death or have really amazing ritual around end of life. 168 00:08:09,600 --> 00:08:12,400 Speaker 4: But I would say as part of the modern and 169 00:08:12,480 --> 00:08:17,680 Speaker 4: certainly the Western human experience, we tend to run away 170 00:08:17,680 --> 00:08:20,840 Speaker 4: from these conversations. And how that plays out is that 171 00:08:21,120 --> 00:08:23,560 Speaker 4: and I see this over and over, far too many 172 00:08:23,600 --> 00:08:26,160 Speaker 4: people get care in and around the end of their 173 00:08:26,200 --> 00:08:29,200 Speaker 4: lives that they don't want or maybe they don't understand, 174 00:08:29,600 --> 00:08:33,040 Speaker 4: and ultimately may not help them. So the more that 175 00:08:33,080 --> 00:08:36,120 Speaker 4: we can be kind of talking about this, normalizing this, 176 00:08:36,280 --> 00:08:40,040 Speaker 4: these discussions, or having a relationship to our own mortality, 177 00:08:41,240 --> 00:08:43,440 Speaker 4: I think allows us to live better every day, but 178 00:08:43,520 --> 00:08:46,600 Speaker 4: I think certainly allows us to have a better end 179 00:08:46,600 --> 00:08:48,840 Speaker 4: of life experience when that time does come. 180 00:08:49,720 --> 00:08:49,800 Speaker 2: And. 181 00:08:57,600 --> 00:08:59,840 Speaker 1: You'll explain what it means. By the end of life experience, 182 00:09:00,400 --> 00:09:03,720 Speaker 1: we assume it's a medical experience that we're exprounded by doctors, 183 00:09:03,720 --> 00:09:07,400 Speaker 1: we're in hospice. You all are trying to shift that 184 00:09:07,520 --> 00:09:09,800 Speaker 1: focus in that mindset. Explain that to us. 185 00:09:10,040 --> 00:09:13,400 Speaker 4: Yeah, well, it's not that it's a specific time or place. 186 00:09:13,480 --> 00:09:16,320 Speaker 4: We sort of broaden out the end of life experience 187 00:09:16,400 --> 00:09:18,640 Speaker 4: because it can be different things for many different people, 188 00:09:18,640 --> 00:09:21,760 Speaker 4: depending on if you're facing a terminal diagnosis, if you're 189 00:09:21,840 --> 00:09:26,000 Speaker 4: just thinking about advanced age, or they're certainly young people 190 00:09:26,160 --> 00:09:29,520 Speaker 4: you know who who become ill and pass. But it's 191 00:09:29,720 --> 00:09:33,640 Speaker 4: really a continuum of time. And again, it's not about 192 00:09:33,679 --> 00:09:36,920 Speaker 4: saying like you gotta you should die at home in 193 00:09:36,960 --> 00:09:39,480 Speaker 4: your own home, or you should do this or do this. 194 00:09:39,520 --> 00:09:42,240 Speaker 4: It's really a bigger conversation about what it is that 195 00:09:42,880 --> 00:09:47,319 Speaker 4: the individual wants, and ending well is really about ensuring 196 00:09:47,360 --> 00:09:51,080 Speaker 4: that people have the opportunity to live their lives fully 197 00:09:51,200 --> 00:09:54,480 Speaker 4: up until the end, with dignity and purpose and connection 198 00:09:54,600 --> 00:09:57,960 Speaker 4: to the things that really matter most to them. Whatever 199 00:09:58,040 --> 00:09:59,480 Speaker 4: that looks like anything. 200 00:09:59,600 --> 00:10:02,079 Speaker 5: And I want to may I add also, the in 201 00:10:02,200 --> 00:10:04,800 Speaker 5: Well symposium is not a sad experience. 202 00:10:04,960 --> 00:10:05,800 Speaker 6: It is a. 203 00:10:06,120 --> 00:10:10,640 Speaker 5: Joyous life affirming experience because we hear about end of 204 00:10:10,640 --> 00:10:13,880 Speaker 5: life from every different direction, from so many different types 205 00:10:13,880 --> 00:10:16,880 Speaker 5: of people. Some people are doing Tignotaro did a comedy 206 00:10:17,520 --> 00:10:19,720 Speaker 5: bit about it. You know what I mean, like this, 207 00:10:19,760 --> 00:10:21,800 Speaker 5: you're gonna get a this was last year. Well, you're 208 00:10:21,800 --> 00:10:23,880 Speaker 5: gonna get it from every direction, and there will be 209 00:10:23,960 --> 00:10:27,320 Speaker 5: someone there that meets you where you are. If you're 210 00:10:27,520 --> 00:10:30,400 Speaker 5: a scaredy cat, you know, if you're somebody that's like, 211 00:10:30,559 --> 00:10:33,160 Speaker 5: let's go team in, well, like whatever, wherever you are 212 00:10:33,200 --> 00:10:35,000 Speaker 5: on the spectrum, you're going to find someone there that's 213 00:10:35,000 --> 00:10:36,640 Speaker 5: going to speak to exactly where you are, and you're 214 00:10:36,640 --> 00:10:37,760 Speaker 5: going to learn a lot. One of the things I 215 00:10:37,840 --> 00:10:41,200 Speaker 5: learned last year was I don't know the percentage and 216 00:10:41,240 --> 00:10:43,720 Speaker 5: helped me doctor if I get this wrong. But when 217 00:10:44,800 --> 00:10:48,240 Speaker 5: oncologists get a cancer diagnosis, this blew my wig back. 218 00:10:48,960 --> 00:10:50,560 Speaker 6: I didn't even have one on and it blew it back. 219 00:10:50,880 --> 00:10:54,720 Speaker 5: They choose if it's terminal, most of them, and I 220 00:10:54,720 --> 00:10:57,760 Speaker 5: don't know what the percentage was, most of them choose hospice. 221 00:10:57,800 --> 00:11:02,160 Speaker 5: Most of them do not choose the extraordinary measures, which 222 00:11:02,200 --> 00:11:04,320 Speaker 5: says to me one that they understand that when you 223 00:11:04,360 --> 00:11:07,000 Speaker 5: get the terminal. They know what the odds are. You know, 224 00:11:07,040 --> 00:11:09,600 Speaker 5: we all wish for great things and there's miracles that 225 00:11:09,600 --> 00:11:10,400 Speaker 5: happen all the time. 226 00:11:10,559 --> 00:11:11,120 Speaker 6: But they know the. 227 00:11:11,120 --> 00:11:13,120 Speaker 5: Statistics and they know what it looks like. And they 228 00:11:13,160 --> 00:11:17,080 Speaker 5: also have decided how they want those last years, months, 229 00:11:17,080 --> 00:11:19,640 Speaker 5: whatever to be, and they choose to go home and 230 00:11:19,679 --> 00:11:22,199 Speaker 5: be with their families. So at the end of their life, 231 00:11:22,200 --> 00:11:25,280 Speaker 5: knowing what they know, they want family time, you know 232 00:11:25,320 --> 00:11:27,600 Speaker 5: what I mean. So, I mean it helped me think 233 00:11:27,640 --> 00:11:29,560 Speaker 5: about what am I doing every day and how am 234 00:11:29,600 --> 00:11:32,200 Speaker 5: I spending my time every day and what will be 235 00:11:33,280 --> 00:11:35,800 Speaker 5: when it's time for me to face my going on 236 00:11:35,880 --> 00:11:36,400 Speaker 5: to glory. 237 00:11:36,840 --> 00:11:38,199 Speaker 6: I want to spend it with family too. 238 00:11:38,240 --> 00:11:41,080 Speaker 5: But that's a decision I made from hearing them say 239 00:11:41,160 --> 00:11:42,839 Speaker 5: how they do what they do, see what I mean. 240 00:11:42,920 --> 00:11:45,400 Speaker 5: So you learn a lot of things at the symposium, 241 00:11:45,440 --> 00:11:46,160 Speaker 5: A lot of things. 242 00:11:46,480 --> 00:11:47,960 Speaker 2: Yeah, And I was going to ask you, this is 243 00:11:47,960 --> 00:11:50,880 Speaker 2: your second time hosting event, correct this year? I was 244 00:11:50,920 --> 00:11:53,439 Speaker 2: just kind of reading what you all have planned. Can 245 00:11:53,480 --> 00:11:56,240 Speaker 2: you give listeners an idea? This is taking place November 246 00:11:56,280 --> 00:12:00,960 Speaker 2: twenty second in Los Angeles. What are people going to 247 00:12:01,000 --> 00:12:03,719 Speaker 2: see and hear at the symposium this year? Because you've 248 00:12:03,720 --> 00:12:06,120 Speaker 2: got some you've got some big names, and you've got 249 00:12:06,120 --> 00:12:07,160 Speaker 2: some big acts coming on. 250 00:12:07,920 --> 00:12:10,240 Speaker 5: Yeah, I'm gonna I will say, from my perspective, You're 251 00:12:10,240 --> 00:12:13,640 Speaker 5: gonna get great energy, a lot of empathy, a lot 252 00:12:13,640 --> 00:12:16,000 Speaker 5: of compassion, and hopefully a lot of jokes. 253 00:12:16,240 --> 00:12:17,600 Speaker 6: That's what I'm bringing to the table. 254 00:12:18,040 --> 00:12:20,040 Speaker 5: Joshana, what are these other people bring into the table 255 00:12:20,080 --> 00:12:21,600 Speaker 5: that you have lined up for everyone? 256 00:12:21,920 --> 00:12:24,959 Speaker 4: Yeah, well it's it's at the Skerball Cultural Center in 257 00:12:25,480 --> 00:12:28,120 Speaker 4: la And of course we're going to have Yvette back 258 00:12:28,200 --> 00:12:32,760 Speaker 4: as our as our host, and some other prominent advocates 259 00:12:33,080 --> 00:12:38,800 Speaker 4: will Becoming ten By Locke, who wrote From Scratch, that 260 00:12:38,920 --> 00:12:45,640 Speaker 4: amazing Netflix series. Award winning writer and war correspondent Sebastian 261 00:12:45,720 --> 00:12:49,120 Speaker 4: Younger will be there. We're thrilled to have a special 262 00:12:49,160 --> 00:12:53,319 Speaker 4: guest performance by Miguel Servantes from the Broadway show Hamilton, 263 00:12:54,080 --> 00:12:58,320 Speaker 4: and several other amazing surprise guests. But I would say 264 00:12:58,360 --> 00:13:02,679 Speaker 4: that you know, this is not not a medically focused conversation. 265 00:13:03,320 --> 00:13:07,599 Speaker 4: This is about, you know, the human experience, the spiritual, 266 00:13:07,800 --> 00:13:11,800 Speaker 4: the social, sometimes the financial, the sort of thinking about 267 00:13:12,600 --> 00:13:15,960 Speaker 4: end of life from a design perspective. I mean, it 268 00:13:16,000 --> 00:13:19,079 Speaker 4: really runs the gamut and the audience is full of caregivers, 269 00:13:19,080 --> 00:13:22,080 Speaker 4: of people who've been patients, of folks from the media, 270 00:13:22,640 --> 00:13:26,240 Speaker 4: on policymakers, I mean, sort of faith, community leaders, you 271 00:13:26,320 --> 00:13:30,480 Speaker 4: name it. So it's really about creating an experience that 272 00:13:30,559 --> 00:13:33,040 Speaker 4: anybody can really find accessible and meaningful. 273 00:13:33,320 --> 00:13:35,959 Speaker 1: Do you all think there's to be some policy changes, 274 00:13:36,679 --> 00:13:39,840 Speaker 1: some governmental changes that would change the way we all 275 00:13:40,120 --> 00:13:42,719 Speaker 1: that could help us at end of life, that could 276 00:13:42,760 --> 00:13:45,080 Speaker 1: help the way we view end of life? What are 277 00:13:45,120 --> 00:13:52,320 Speaker 1: we getting wrong at least from a government standpoint? Okay, 278 00:13:52,440 --> 00:13:53,120 Speaker 1: sorry about that. 279 00:13:53,800 --> 00:13:55,199 Speaker 6: A lot of questions. 280 00:13:55,440 --> 00:13:57,160 Speaker 5: I can make a list too, because also because I'm 281 00:13:57,160 --> 00:13:59,000 Speaker 5: in the caregiving space, there's a lot of things that 282 00:13:59,640 --> 00:14:01,280 Speaker 5: we just don't have that we need. 283 00:14:01,320 --> 00:14:02,240 Speaker 6: I love that there's that. 284 00:14:02,600 --> 00:14:06,440 Speaker 5: Hopefully our future president just listed a policy about bringing 285 00:14:06,520 --> 00:14:10,160 Speaker 5: Medicare home, which will help a lot of caregivers in 286 00:14:10,200 --> 00:14:12,760 Speaker 5: the future, because when you think about I want to 287 00:14:12,760 --> 00:14:15,840 Speaker 5: do hospice, your choices are not I'm going to do 288 00:14:15,840 --> 00:14:17,240 Speaker 5: it at my house most of the time because you 289 00:14:17,240 --> 00:14:18,720 Speaker 5: don't have the money to be able to do it there. 290 00:14:18,880 --> 00:14:22,160 Speaker 6: So this could change things. Yeah, there's a lot. 291 00:14:21,960 --> 00:14:26,520 Speaker 4: Of there's paid caregiving leave, you know, which is being 292 00:14:26,720 --> 00:14:29,960 Speaker 4: is being talked about because folks who are caregivers. Family 293 00:14:29,960 --> 00:14:32,640 Speaker 4: caregivers often like like you bet said, you know, can't 294 00:14:32,720 --> 00:14:34,720 Speaker 4: can't go to work, and they're certainly not trained and 295 00:14:34,760 --> 00:14:36,360 Speaker 4: how to be caregivers. 296 00:14:35,840 --> 00:14:38,200 Speaker 5: You know, community to take care of my dad, So 297 00:14:38,360 --> 00:14:40,920 Speaker 5: sometimes you got to choose your loved one over your. 298 00:14:40,840 --> 00:14:41,360 Speaker 6: Job, you know. 299 00:14:42,280 --> 00:14:44,520 Speaker 4: And we also have a shortage of providers, right so 300 00:14:44,560 --> 00:14:47,440 Speaker 4: the field of palliative care, of which hospice is part, 301 00:14:48,240 --> 00:14:52,080 Speaker 4: this is these are nurses, doctors, social workers, chaplains. There 302 00:14:52,080 --> 00:14:55,280 Speaker 4: aren't enough of them and so there's actually they're underpaid. 303 00:14:55,360 --> 00:14:57,400 Speaker 4: And so there's a bill right now and it's been 304 00:14:57,440 --> 00:15:00,600 Speaker 4: being looked at for the last ten years to increase spending, 305 00:15:01,400 --> 00:15:04,840 Speaker 4: government spending to allow more trainees to come up through 306 00:15:04,880 --> 00:15:07,120 Speaker 4: the system because we just don't have enough people to 307 00:15:07,160 --> 00:15:10,480 Speaker 4: take care of our aging population. So that's another huge one. 308 00:15:10,560 --> 00:15:11,760 Speaker 1: Did you really say ten years? 309 00:15:12,680 --> 00:15:16,800 Speaker 4: Oh yeah, just been sitting there swirling around in Congress 310 00:15:16,880 --> 00:15:19,320 Speaker 4: and it's like a bill. 311 00:15:19,440 --> 00:15:22,000 Speaker 2: Yeah, oh wow, yes, taking it back old school. I 312 00:15:22,000 --> 00:15:25,880 Speaker 2: love that school of rock, doctor Ungerler, you know, it's 313 00:15:26,000 --> 00:15:28,040 Speaker 2: I don't and I don't know the exact numbers on this, 314 00:15:28,120 --> 00:15:32,200 Speaker 2: but my brother is also an internist and he has 315 00:15:32,280 --> 00:15:36,920 Speaker 2: talked about this end of life decisions and making choices 316 00:15:37,960 --> 00:15:40,960 Speaker 2: to my parents and to my relatives who are getting older, 317 00:15:41,360 --> 00:15:45,560 Speaker 2: and he said something like the like, the largest percentage 318 00:15:45,600 --> 00:15:49,200 Speaker 2: of your healthcare cost over your entire lifetime, don't compare 319 00:15:49,240 --> 00:15:51,480 Speaker 2: it to the final two weeks of your life. It's 320 00:15:51,520 --> 00:15:54,400 Speaker 2: like eighty percent of your health care costs are all 321 00:15:54,760 --> 00:15:57,320 Speaker 2: in the last two weeks of your life. Is part 322 00:15:57,320 --> 00:15:59,200 Speaker 2: of what you're trying to do to prevent that, so 323 00:15:59,280 --> 00:16:02,280 Speaker 2: decisions can be made ahead of time, and oftentimes for 324 00:16:02,400 --> 00:16:06,480 Speaker 2: life saving measures that that patient doesn't even necessarily want 325 00:16:06,840 --> 00:16:10,800 Speaker 2: and is absolutely kind of throwing something at a situation 326 00:16:10,880 --> 00:16:14,440 Speaker 2: that isn't going to change. What do you say to that. 327 00:16:15,400 --> 00:16:18,480 Speaker 4: No, I mean that's accurate. I would say that in general, 328 00:16:18,840 --> 00:16:22,000 Speaker 4: that's sort of an average. Yes, we spend a massive 329 00:16:22,000 --> 00:16:25,320 Speaker 4: amount of money on the final weeks of people's lives, 330 00:16:25,720 --> 00:16:28,400 Speaker 4: and you know, to me, it's I'm not a healthcare economist. 331 00:16:28,440 --> 00:16:31,640 Speaker 4: You know, to me, the numbers are important, But the 332 00:16:31,760 --> 00:16:34,320 Speaker 4: bigger issue, because I became a doctor to help people 333 00:16:34,440 --> 00:16:38,040 Speaker 4: and help heal people, and that is that I really 334 00:16:38,080 --> 00:16:40,840 Speaker 4: want to see people get care in and around the 335 00:16:40,880 --> 00:16:43,640 Speaker 4: end of their lives that honors the life that they've 336 00:16:43,680 --> 00:16:46,680 Speaker 4: lived is in line with their goals and their values. 337 00:16:47,040 --> 00:16:51,360 Speaker 4: And I think that first starts with incentivizing conversations early 338 00:16:51,440 --> 00:16:57,479 Speaker 4: and often within the healthcare journey about your goals, especially 339 00:16:57,520 --> 00:17:01,520 Speaker 4: if you're diagnosed with a life limiting illness, a terminal illness, say, 340 00:17:01,920 --> 00:17:05,360 Speaker 4: And so I think to me, that's the biggest sort 341 00:17:05,400 --> 00:17:08,280 Speaker 4: of issue that comes up for people is that we're 342 00:17:08,320 --> 00:17:11,600 Speaker 4: just not having these conversations. Seventy percent of doctors that 343 00:17:11,720 --> 00:17:15,280 Speaker 4: seven zero aren't trained and had to break bad news 344 00:17:15,280 --> 00:17:18,320 Speaker 4: to patients or talk about prognosis. So where does that 345 00:17:18,400 --> 00:17:21,520 Speaker 4: leave us it, you know, in a system that values 346 00:17:21,600 --> 00:17:25,159 Speaker 4: doing everything to keep people alive at all costs. That 347 00:17:25,640 --> 00:17:27,719 Speaker 4: leaves us in a place where we're just on this 348 00:17:28,160 --> 00:17:32,320 Speaker 4: you know, conveyor belt of aggressive invasive treatment, no matter 349 00:17:32,359 --> 00:17:34,240 Speaker 4: how old you are, no matter how sick you are, 350 00:17:34,560 --> 00:17:37,240 Speaker 4: and even if it won't help you very often. And 351 00:17:37,280 --> 00:17:38,400 Speaker 4: so that's change. 352 00:17:38,800 --> 00:17:41,800 Speaker 6: And maybe if we had the conversations earlier and we 353 00:17:41,840 --> 00:17:44,760 Speaker 6: accepted that it's inevitable, we wouldn't be so afraid of 354 00:17:44,760 --> 00:17:48,320 Speaker 6: it and be chasing one more I need one more summer, 355 00:17:48,720 --> 00:17:49,400 Speaker 6: you know what I'm saying. 356 00:17:49,640 --> 00:17:53,440 Speaker 5: Maybe if we talked about it early, enough and talk 357 00:17:53,520 --> 00:17:55,680 Speaker 5: to our people and made our plans and we could 358 00:17:55,760 --> 00:17:57,959 Speaker 5: just get busy living and then when we get the 359 00:17:58,520 --> 00:18:01,639 Speaker 5: inevitable conversation we all get if it's a sickness that 360 00:18:01,720 --> 00:18:05,440 Speaker 5: takes us out, you're not scrambling to get all the 361 00:18:05,480 --> 00:18:07,800 Speaker 5: stuff in. And I'm trying to extend something that is 362 00:18:08,119 --> 00:18:10,639 Speaker 5: we're not gonna make it everybody. We're not gonna make 363 00:18:10,680 --> 00:18:14,080 Speaker 5: it out of your life. So everybody has an appointment, 364 00:18:14,600 --> 00:18:17,119 Speaker 5: So listen, enjoy it. 365 00:18:17,200 --> 00:18:19,640 Speaker 6: Why you got it prepared for when it comes? 366 00:18:20,320 --> 00:18:23,440 Speaker 1: And in well, in well, I just want that one 367 00:18:23,440 --> 00:18:24,879 Speaker 1: more summer in the Hamptons that. 368 00:18:24,920 --> 00:18:39,320 Speaker 3: Give me one more some of that. I'm sorry, talk 369 00:18:39,359 --> 00:18:41,600 Speaker 3: to people, both of you. There are folks listening to us. 370 00:18:41,600 --> 00:18:44,760 Speaker 1: They are in their twenties, thirties, forties, fifties, sixties, seventies. 371 00:18:45,280 --> 00:18:49,080 Speaker 1: Is there a different type of conversation based on the 372 00:18:49,240 --> 00:18:52,359 Speaker 1: age or is it the same conversation and you just 373 00:18:52,400 --> 00:18:54,679 Speaker 1: need to have it as early as possible. What are 374 00:18:54,680 --> 00:18:57,480 Speaker 1: the recommendations you all have for the different age groups 375 00:18:57,520 --> 00:19:00,520 Speaker 1: about what the conversation you should be having thing about 376 00:19:00,520 --> 00:19:01,359 Speaker 1: the end of life? 377 00:19:01,440 --> 00:19:03,639 Speaker 4: Well, I will tell you how I feel about this, 378 00:19:03,680 --> 00:19:05,760 Speaker 4: and then I want to hear your thoughts too, you know, 379 00:19:05,800 --> 00:19:08,760 Speaker 4: as somebody who works in this space. From my perspective, 380 00:19:08,760 --> 00:19:12,600 Speaker 4: it's never too early to start normalizing these kinds of 381 00:19:12,640 --> 00:19:16,119 Speaker 4: conversations again, because I think it can allow you to 382 00:19:16,200 --> 00:19:19,640 Speaker 4: live better every single day. Recognizing that time is short 383 00:19:19,720 --> 00:19:22,440 Speaker 4: gets you to ask these questions about like, well, am 384 00:19:22,440 --> 00:19:25,200 Speaker 4: I living my life with the kind of you know, 385 00:19:25,920 --> 00:19:28,720 Speaker 4: purpose and meaning that I want? Given that I don't 386 00:19:28,760 --> 00:19:31,760 Speaker 4: know if tomorrow is promised right or is a given? 387 00:19:32,200 --> 00:19:34,720 Speaker 4: So I think that that is a really you know, 388 00:19:34,840 --> 00:19:38,960 Speaker 4: beautiful framing. And then you know, as time goes on, 389 00:19:39,480 --> 00:19:43,520 Speaker 4: if medical diagnoses develop, you know, it's a different kind 390 00:19:43,520 --> 00:19:47,280 Speaker 4: of conversation that's a little more medically nuanced maybe, and 391 00:19:47,359 --> 00:19:50,439 Speaker 4: it's also psychologically speaking, and the data support this that 392 00:19:50,840 --> 00:19:53,720 Speaker 4: you know, we don't we can't predict our future selves, 393 00:19:53,920 --> 00:19:56,240 Speaker 4: right or what would be acceptable to us in terms 394 00:19:56,240 --> 00:19:59,639 Speaker 4: of quality of life, because at twenty that's probably different 395 00:19:59,680 --> 00:20:01,840 Speaker 4: than what maybe would be the case at fifty or 396 00:20:01,840 --> 00:20:05,159 Speaker 4: maybe the case at ninety if we are facing you know, 397 00:20:05,359 --> 00:20:08,040 Speaker 4: a terminal illness. So again, like I do, think it 398 00:20:08,080 --> 00:20:11,520 Speaker 4: is important to kind of revisit this stuff throughout life 399 00:20:12,080 --> 00:20:15,160 Speaker 4: and really talk to your loved ones and the people 400 00:20:15,200 --> 00:20:18,040 Speaker 4: you care about about what matters, so that you know, 401 00:20:18,080 --> 00:20:20,280 Speaker 4: God forbid, if you're in a situation where you can't 402 00:20:20,320 --> 00:20:23,080 Speaker 4: advocate for yourself in a healthcare setting, you know you 403 00:20:23,200 --> 00:20:25,560 Speaker 4: got somebody or few people on your team to be 404 00:20:25,640 --> 00:20:28,640 Speaker 4: able to say, Hey, I know Evette, this is what 405 00:20:28,720 --> 00:20:30,560 Speaker 4: she would want in this situation. You know. 406 00:20:30,760 --> 00:20:34,960 Speaker 5: Yeah, And I'll add one of the greatest blessings my 407 00:20:35,040 --> 00:20:36,800 Speaker 5: mother gave me and my brother is from the time 408 00:20:36,800 --> 00:20:39,320 Speaker 5: we were children, we knew what she wanted. She would 409 00:20:39,359 --> 00:20:41,560 Speaker 5: always say, I don't want anything heroic to keep me alive. 410 00:20:41,560 --> 00:20:43,199 Speaker 5: If it's like a breathe in tube or whatever, I 411 00:20:43,200 --> 00:20:45,160 Speaker 5: don't want it. She made it clear, I don't want 412 00:20:45,200 --> 00:20:46,760 Speaker 5: a funeral because I don't want nobody. I don't want 413 00:20:46,760 --> 00:20:48,439 Speaker 5: to provide any space with somebody to come put on 414 00:20:48,480 --> 00:20:51,120 Speaker 5: a show. She said, if they love me and they 415 00:20:51,200 --> 00:20:53,480 Speaker 5: care about me, they should show it while I'm alive. 416 00:20:53,600 --> 00:20:56,080 Speaker 6: So no funeral. So we knew all of this stuff 417 00:20:56,080 --> 00:20:56,879 Speaker 6: our entire lives. 418 00:20:56,920 --> 00:20:59,000 Speaker 5: So when she when it was her moment and she 419 00:20:59,200 --> 00:21:01,199 Speaker 5: they were bringing breathe tubes in and whatnot, me and 420 00:21:01,200 --> 00:21:04,199 Speaker 5: my brother were like, she doesn't want that, and we 421 00:21:04,280 --> 00:21:06,200 Speaker 5: confirmed it. Mommy, you don't want this. She said, I 422 00:21:06,240 --> 00:21:08,720 Speaker 5: don't want it, and she asked to go into hospice. 423 00:21:08,720 --> 00:21:10,240 Speaker 5: And when I tell you, she went into hospice and 424 00:21:10,320 --> 00:21:11,359 Speaker 5: was gone in twelve hours. 425 00:21:11,800 --> 00:21:14,080 Speaker 6: She was like, I'm ready to go. I've seen what 426 00:21:14,119 --> 00:21:14,720 Speaker 6: I need to see. 427 00:21:14,760 --> 00:21:16,280 Speaker 5: But we were able to give her the gift of 428 00:21:16,320 --> 00:21:20,879 Speaker 5: that that dignified passing of her choosing because she had 429 00:21:20,920 --> 00:21:23,639 Speaker 5: always told us from the time we were little, so 430 00:21:23,760 --> 00:21:26,199 Speaker 5: there it's never too early to say I'd like to 431 00:21:26,200 --> 00:21:27,800 Speaker 5: be cremated or I'd like to be and you can 432 00:21:27,800 --> 00:21:29,560 Speaker 5: always amend it. If you decide you don't want to 433 00:21:29,600 --> 00:21:31,479 Speaker 5: go into the furnace, you want to go in the ground, 434 00:21:31,600 --> 00:21:33,560 Speaker 5: you go and tell somebody later, i'd like the ground. 435 00:21:33,600 --> 00:21:38,200 Speaker 6: Please. It's not this is not hard. It only seems hard, 436 00:21:38,760 --> 00:21:42,439 Speaker 6: and it's silly because it's inevitable. Yeah, you know, it's funny. 437 00:21:42,440 --> 00:21:46,560 Speaker 2: You said she gave you that gift, but I mean 438 00:21:46,600 --> 00:21:49,840 Speaker 2: you you you also gave her that gift like it. 439 00:21:50,040 --> 00:21:52,919 Speaker 2: It's reciprocal because you now don't have to You and 440 00:21:52,920 --> 00:21:55,760 Speaker 2: your brother didn't have to feel guilty. You all didn't 441 00:21:55,760 --> 00:21:58,679 Speaker 2: have to feel conflicted. You all didn't have to be 442 00:21:58,800 --> 00:22:01,480 Speaker 2: pulled in different directions because you knew because. 443 00:22:01,240 --> 00:22:01,920 Speaker 6: She told you. 444 00:22:02,400 --> 00:22:06,159 Speaker 2: So that's a that's a beautiful conversation because everybody wins 445 00:22:06,200 --> 00:22:07,000 Speaker 2: in that situation. 446 00:22:07,119 --> 00:22:07,720 Speaker 3: Who can raise that? 447 00:22:08,000 --> 00:22:11,440 Speaker 1: You know, doctor Angelira and Ivette, I am almost embarrassed. 448 00:22:11,720 --> 00:22:14,159 Speaker 1: I don't know what my parents want. Like, we haven't 449 00:22:14,200 --> 00:22:15,480 Speaker 1: had this conversation. 450 00:22:16,880 --> 00:22:17,080 Speaker 2: Jay. 451 00:22:18,320 --> 00:22:22,040 Speaker 5: When we get off this zoom, you call your parents 452 00:22:22,119 --> 00:22:24,040 Speaker 5: and you ask them what they want. Do they want 453 00:22:24,040 --> 00:22:27,080 Speaker 5: to be buried or cremated? Do they want heroic efforts? 454 00:22:27,119 --> 00:22:29,000 Speaker 5: You need to know this because I'm telling you, when 455 00:22:29,000 --> 00:22:31,080 Speaker 5: you're fit, when a moment happens and you're looking at 456 00:22:31,119 --> 00:22:32,919 Speaker 5: them in the bed, everything within you is going to 457 00:22:32,920 --> 00:22:36,360 Speaker 5: be like extendment why yeah, And they may not want it. 458 00:22:36,440 --> 00:22:39,000 Speaker 2: And that's why they may not want it, because you 459 00:22:39,040 --> 00:22:39,800 Speaker 2: don't want to let go. 460 00:22:39,920 --> 00:22:40,520 Speaker 6: You don't you know. 461 00:22:40,560 --> 00:22:42,840 Speaker 2: I will tell you it was only until I had 462 00:22:43,280 --> 00:22:46,200 Speaker 2: my cancer diagnosis where I went in the night before 463 00:22:46,200 --> 00:22:48,920 Speaker 2: my double mistectomy and I went in to a lawyer's 464 00:22:49,000 --> 00:22:52,040 Speaker 2: office at seven pm at night and I begged him 465 00:22:52,040 --> 00:22:54,400 Speaker 2: to stay open for me and I made my will 466 00:22:55,480 --> 00:22:58,360 Speaker 2: that it took me getting a cancer diagnosis and going 467 00:22:58,400 --> 00:23:01,719 Speaker 2: into major surgery and thinking, oh my god, I have 468 00:23:01,800 --> 00:23:04,840 Speaker 2: to get my you know, my estate in order I 469 00:23:04,880 --> 00:23:06,960 Speaker 2: have to let people know what I want to happen. 470 00:23:07,280 --> 00:23:12,160 Speaker 2: If worst case scenario ends up being reality and it 471 00:23:12,200 --> 00:23:15,600 Speaker 2: took something dramatic like that, I've amended my will since then. 472 00:23:15,840 --> 00:23:19,000 Speaker 2: But I will say I feel I feel relief knowing 473 00:23:19,040 --> 00:23:21,760 Speaker 2: that my daughters aren't going to have to make tough decisions. 474 00:23:21,840 --> 00:23:23,760 Speaker 2: TJ is not going to have to make tough decisions, 475 00:23:23,920 --> 00:23:25,800 Speaker 2: My parents aren't going to have to make tough decisions 476 00:23:25,800 --> 00:23:31,480 Speaker 2: because I have laid it all out. No, I don't 477 00:23:31,480 --> 00:23:32,520 Speaker 2: want to be in the ocean. 478 00:23:32,720 --> 00:23:37,280 Speaker 6: The last place a cherry tree planted on top of 479 00:23:37,400 --> 00:23:40,040 Speaker 6: my ashes. And how lovely and how lovely is that 480 00:23:40,119 --> 00:23:41,240 Speaker 6: you didn't send the cherry tree. 481 00:23:41,240 --> 00:23:43,040 Speaker 5: And every time somebody walk by a cherry tree, whether 482 00:23:43,080 --> 00:23:44,919 Speaker 5: it's you or not, they're going to think of you. 483 00:23:45,200 --> 00:23:49,600 Speaker 6: It's a beautiful gift to give to you. It's wonderful, wonderful, 484 00:23:51,640 --> 00:23:51,840 Speaker 6: you know. 485 00:23:52,080 --> 00:23:54,080 Speaker 4: And in truth, we don't know what tomorrow is going 486 00:23:54,160 --> 00:23:56,800 Speaker 4: to bring, right, you know, a diagnosis can happen at 487 00:23:56,800 --> 00:23:58,520 Speaker 4: any time, you know, step. 488 00:23:58,280 --> 00:24:01,080 Speaker 5: Off the wrong curb and go on to glory. So listen, 489 00:24:01,960 --> 00:24:03,879 Speaker 5: y'all be out there running. Y'all run too much and 490 00:24:04,000 --> 00:24:08,520 Speaker 5: not know what you want, you be in them straights 491 00:24:08,560 --> 00:24:09,200 Speaker 5: with your cars. 492 00:24:09,240 --> 00:24:11,359 Speaker 6: You better tell people what you want now, and I 493 00:24:11,359 --> 00:24:12,720 Speaker 6: wish none of that on you, but you've got to 494 00:24:12,760 --> 00:24:13,600 Speaker 6: tell people what you want. 495 00:24:13,680 --> 00:24:17,480 Speaker 1: You all, remember when I started this podcast episode by saying, dignity, 496 00:24:17,880 --> 00:24:20,520 Speaker 1: love and joy, and I can't believe we are four 497 00:24:20,560 --> 00:24:23,280 Speaker 1: of us have been sitting here, laughing and cutting up, 498 00:24:23,320 --> 00:24:25,880 Speaker 1: and this whole conversation has been about death essentially. 499 00:24:26,000 --> 00:24:31,280 Speaker 2: Yeah, yep, but that brings in the opportunity to experience life, 500 00:24:31,680 --> 00:24:34,200 Speaker 2: and it frees you up from thinking about it because 501 00:24:34,200 --> 00:24:36,520 Speaker 2: you've already planned it, you've already said we you want it, 502 00:24:36,560 --> 00:24:39,480 Speaker 2: and you don't have to dwell on it. I had 503 00:24:39,520 --> 00:24:44,199 Speaker 2: so much fun googling you and falling in love with 504 00:24:44,240 --> 00:24:47,679 Speaker 2: your love story, so I know tomorrow could be our 505 00:24:47,760 --> 00:24:50,280 Speaker 2: last day. You gotta get busy living. So when's that 506 00:24:50,320 --> 00:24:51,080 Speaker 2: wedding happening. 507 00:24:51,480 --> 00:24:54,280 Speaker 5: It's going to be before the years up. Nice, I'm 508 00:24:54,280 --> 00:24:57,159 Speaker 5: mid planning. We're planning right now. So it's been a 509 00:24:57,200 --> 00:24:59,359 Speaker 5: mad scramble to get everything done before the years up. 510 00:24:59,359 --> 00:25:01,520 Speaker 5: But before twenty twenty five. Kids, if I live to 511 00:25:01,520 --> 00:25:03,040 Speaker 5: see it, I will be missus Davis. 512 00:25:03,119 --> 00:25:03,680 Speaker 1: Where we going? 513 00:25:05,440 --> 00:25:09,240 Speaker 6: Listen, I'm trying to figure that out too, destination. 514 00:25:09,280 --> 00:25:10,359 Speaker 2: We just letting you know. 515 00:25:11,040 --> 00:25:13,960 Speaker 5: Perhaps I might, we don't know. We still when I 516 00:25:13,960 --> 00:25:15,280 Speaker 5: say scrambling, I mean scrambling. 517 00:25:15,560 --> 00:25:18,879 Speaker 1: You know what congratulates your story is a if folks 518 00:25:18,880 --> 00:25:21,119 Speaker 1: don't know it, google it. But it has been a 519 00:25:21,160 --> 00:25:23,800 Speaker 1: beautiful story that certainly speaks to us in a lot 520 00:25:23,800 --> 00:25:25,160 Speaker 1: of ways. And we'll have to tell you as well 521 00:25:25,359 --> 00:25:27,359 Speaker 1: as we let you go. It was so cool this 522 00:25:27,520 --> 00:25:29,320 Speaker 1: morning that we were getting ready at the house for 523 00:25:29,440 --> 00:25:31,679 Speaker 1: my daughter, eleven year old daughter saving to go to school, 524 00:25:32,240 --> 00:25:35,040 Speaker 1: and we were talking about you, and we said inside 525 00:25:35,040 --> 00:25:36,919 Speaker 1: out too, and she said, well, who is it? And 526 00:25:36,960 --> 00:25:40,800 Speaker 1: we said your name. She was immediately able to identify 527 00:25:41,240 --> 00:25:46,000 Speaker 1: coach Roberts from inside out too, and she said a 528 00:25:46,000 --> 00:25:48,280 Speaker 1: hockey coach. I said, a black hockey coach. That was 529 00:25:48,320 --> 00:25:48,879 Speaker 1: my response. 530 00:25:48,920 --> 00:25:51,600 Speaker 3: I haven't seen the movie myself. 531 00:25:50,800 --> 00:25:53,600 Speaker 2: She said, a black female hockey coach, female hockey coach. 532 00:25:53,680 --> 00:25:56,240 Speaker 1: But think about that. She if you she passed her 533 00:25:56,240 --> 00:25:58,800 Speaker 1: on the street, she would have no idea about your face. 534 00:25:59,040 --> 00:26:01,720 Speaker 1: But you have such an impact with your name, with 535 00:26:01,760 --> 00:26:04,440 Speaker 1: your voice, with your character that even my eleven year 536 00:26:04,480 --> 00:26:07,879 Speaker 1: old daughter this morning was like boom, boom, boom, and 537 00:26:07,960 --> 00:26:10,280 Speaker 1: right on top of it. So I appreciate, very happy, 538 00:26:10,440 --> 00:26:12,119 Speaker 1: I appreciate you being here, but I just want to 539 00:26:12,160 --> 00:26:14,520 Speaker 1: share that story. It just happened this morning, and how 540 00:26:14,560 --> 00:26:17,320 Speaker 1: cool of an impact you are having and so much 541 00:26:17,320 --> 00:26:19,520 Speaker 1: of what you're doing, and doctor Unger Lauder as well. 542 00:26:19,560 --> 00:26:23,240 Speaker 1: To recruit event into that cause and to have you 543 00:26:23,240 --> 00:26:24,959 Speaker 1: both here is really really a treat for us. 544 00:26:25,240 --> 00:26:27,880 Speaker 6: Thanks for having us. Yeah, thank you so much. Thank you. 545 00:26:27,880 --> 00:26:29,880 Speaker 2: You've got us thinking, I don't know how TJ wants 546 00:26:29,920 --> 00:26:32,639 Speaker 2: to go, So we'll have that conversation afterwards. I'll be 547 00:26:32,640 --> 00:26:33,120 Speaker 2: writing it. 548 00:26:33,080 --> 00:26:34,760 Speaker 1: Down as late as possible. 549 00:26:35,880 --> 00:26:41,320 Speaker 2: Today today, Thank you, ladies, and have a wonderful symposium. 550 00:26:41,359 --> 00:26:43,800 Speaker 2: We love what you're doing and it's got us all thinking. 551 00:26:43,800 --> 00:26:48,000 Speaker 2: I hope everyone listening is also making those notes in 552 00:26:48,040 --> 00:26:50,560 Speaker 2: their head and wanting to have those conversations with their 553 00:26:50,600 --> 00:26:53,760 Speaker 2: loved ones. It's so important and we just appreciate you 554 00:26:53,800 --> 00:26:54,800 Speaker 2: being here on the podcast. 555 00:26:55,160 --> 00:26:56,040 Speaker 6: Thanks for having us. 556 00:26:56,280 --> 00:26:57,520 Speaker 4: Thank you so much for having us. 557 00:27:00,040 --> 00:27:03,080 Speaker 2: Theation, bad 558 00:27:04,640 --> 00:27:07,879 Speaker 3: Bcations, the patents,