WEBVTT - The Perfect Happy Family

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<v Speaker 1>Family Secrets is a production of iHeartRadio.

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<v Speaker 2>Most people in our community have no idea what's been

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<v Speaker 2>going on with Danny. For years, we've brushed off the

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<v Speaker 2>questions about what he is doing, where he is, He's

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<v Speaker 2>in school, he's finding his way. My parents were resolute

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<v Speaker 2>about preserving Danny's privacy. This is no one's business. We

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<v Speaker 2>don't want people to look at Danny that way. It'll

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<v Speaker 2>get better, and we don't want it to be held

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<v Speaker 2>against him. Over time, people stopped asking. Years from now,

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<v Speaker 2>it will be impossible not to question the real purpose

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<v Speaker 2>our secrecy served. Who was protecting whom and why? Of course,

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<v Speaker 2>we were worried about how people saw Danny. But were

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<v Speaker 2>we keeping the

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<v Speaker 1>Secret for ourselves too?

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<v Speaker 2>In choosing silence? Were we also protecting our family from

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<v Speaker 2>the stigma of mental illness? Were we hiding from our

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<v Speaker 2>own shame and grief that a member of our quote

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<v Speaker 2>unquote good family was so broken and lost? And what

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<v Speaker 2>was the cost of our silence to Danny? What was

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<v Speaker 2>it like for him to know that his life was

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<v Speaker 2>a secret.

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<v Speaker 3>That's Julie Fingersh, journalist and author of the recent memoir Stay,

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<v Speaker 3>A Story of family, love and other traumas. Julie's is

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<v Speaker 3>a story of not one, but two happy families. But

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<v Speaker 3>coming from a happy family does not protect us from loss,

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<v Speaker 3>from grief, from trauma so intense that it becomes buried

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<v Speaker 3>within us. All we can do is attempt to make

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<v Speaker 3>meaning out of what life hands us. And by the way,

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<v Speaker 3>that's a lot. I'm Dani Shapiro, and this is family secrets,

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<v Speaker 3>the secrets that are kept from us, the secrets we

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<v Speaker 3>keep from others, and the secrets we keep from ourselves.

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<v Speaker 2>I grew up in Prarie Village, Kansas, in a Jewish

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<v Speaker 2>community within a very non Jewish community, and.

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<v Speaker 1>The landscape, the real landscape for me, was

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<v Speaker 2>Just one of love and community and safety. My parents

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<v Speaker 2>had and have a wonderful marriage. My dad was a lawyer,

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<v Speaker 2>he worked very hard. My mom was a homemaker if

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<v Speaker 2>they called it back then. And I was the middle

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<v Speaker 2>child with an older brother, Paul, and a younger brother, Danny.

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<v Speaker 2>It was a much simpler life than our kids have today.

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<v Speaker 2>It was just homework and play and family time and

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<v Speaker 2>friends time, and a very idyllic life in most ways.

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<v Speaker 2>Paul's three years older than me, and Danny's was three

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<v Speaker 2>years younger. Than me, and so I think part of

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<v Speaker 2>what became so much part of the story was that

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<v Speaker 2>Paul was the cool kid who was off doing his

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<v Speaker 2>cool things with his cool friends. And Danny and I

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<v Speaker 2>were very much a team and partners in play and

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<v Speaker 2>always spent a lot of time together. Danny was the

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<v Speaker 2>beautiful boy. He was shy. He had what I always

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<v Speaker 2>think of as planet white eyes. He had these big

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<v Speaker 2>brown eyes and bushy brown hair, and his physicality is

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<v Speaker 2>so vivid.

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<v Speaker 1>In my mind.

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<v Speaker 2>He was always tan, he always was very lean, and he.

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<v Speaker 1>Was just very sweet. He was very sweet, and we

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<v Speaker 1>used to call him the noticer. He just noticed everything.

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<v Speaker 2>We spent a lot of unstructured time together. We would

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<v Speaker 2>often on weekends come together and be like what.

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<v Speaker 1>Should we do?

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<v Speaker 2>And we'd rip up little pieces of paper and write

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<v Speaker 2>things like all the different ideas like lemonade stand and

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<v Speaker 2>picnic in the park, and riding our bikes around the

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<v Speaker 2>neighborhood and judging the houses of deciding which ones we'd want.

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<v Speaker 1>To live in.

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<v Speaker 2>We were really close and I think an anchor for

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<v Speaker 2>each other. You know, have school and you go out

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<v Speaker 2>into the world into school, and even though it was

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<v Speaker 2>a small school and it was a Jewish day school actually,

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<v Speaker 2>and reported to be very community oriented. There's still just

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<v Speaker 2>the usual dynamics of classes and hierarchies and all that,

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<v Speaker 2>and it was like always for me. I think about

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<v Speaker 2>how coming home opening my front door. I can still

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<v Speaker 2>hear the sound of my front door closing, and it

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<v Speaker 2>was like you were home. It was a sanctuary and

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<v Speaker 2>Danny was a part of that sanctuary for me.

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<v Speaker 1>We just could be totally ourselves.

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<v Speaker 2>I think as a kid, you're not really aware so

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<v Speaker 2>much of all the dynamics the social stratus.

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<v Speaker 1>But I was always very clear that.

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<v Speaker 2>My family was part of a very strong and loving

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<v Speaker 2>and safe community. My dad came from very modest beginnings

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<v Speaker 2>and he became a very accomplished lawyer, and what I

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<v Speaker 2>can remember, I would go to his office, his law

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<v Speaker 2>office on weekends often, and one summer I worked there.

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<v Speaker 2>And he was just very revered in our community and

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<v Speaker 2>still is is just known to have a lot of integrity.

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<v Speaker 2>He's just very honest and very straight up. And my

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<v Speaker 2>mom is beautiful. She's beautiful, and she's dynamic, and she's

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<v Speaker 2>a magnet for people. So in my mind, my parents

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<v Speaker 2>were like giants in our community and whenever we were out,

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<v Speaker 2>they would just be approached and it was just clear

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<v Speaker 2>they were beloved. My family was really, I think, one

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<v Speaker 2>of the families that was in the center of that

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<v Speaker 2>Jewish community in lots of different ways.

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<v Speaker 3>When Julie is a senior in high school, Danny is

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<v Speaker 3>a freshman, their older brother, Paul is a junior in college.

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<v Speaker 3>What's happening to Danny around this time? Begins? As Julie

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<v Speaker 3>calls it, like a whisper.

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<v Speaker 2>It was very subtle. As I remember it, everything changed

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<v Speaker 2>when he changed schools and we all had gone to

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<v Speaker 2>a Jewish day school and then we all transferred to

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<v Speaker 2>a private high school. We were very much minorities in

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<v Speaker 2>terms of our Judaism, and we really were from a

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<v Speaker 2>different world. So we really were kind of worked out

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<v Speaker 2>of a cocoon and thrown into this very status oriented,

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<v Speaker 2>wealthy elitist place where socially it was really rough. And

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<v Speaker 2>I would say it wasn't that rough for Paul. It

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<v Speaker 2>was rough for me, and I think it was really

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<v Speaker 2>rough for Danny. So what I recall the way it

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<v Speaker 2>started was he started at the school and it was

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<v Speaker 2>hard to distinguish. I think we all would assume that's

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<v Speaker 2>a hard transition to make, but it was almost like

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<v Speaker 2>he wasn't able to make it.

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<v Speaker 1>He became with.

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<v Speaker 2>John and all the things that he and I used

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<v Speaker 2>to do together. We would often after school, we'd come

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<v Speaker 2>together and just go take the dogs for a walk

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<v Speaker 2>or hang out in the library. He didn't want to

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<v Speaker 2>do those things anymore. And so I think at the

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<v Speaker 2>time we thought, well, it's the new school, and then

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<v Speaker 2>he's been not a lescent. This is just a hard time,

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<v Speaker 2>and I certainly had a hard time, and I think

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<v Speaker 2>then he just gradually retreated.

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<v Speaker 3>Yeah, it's the old sort of frog and boiling water

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<v Speaker 3>in a way exactly.

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<v Speaker 2>It was absolutely that, And I think that's an apt

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<v Speaker 2>description because for so long we did not understand the

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<v Speaker 2>line between adolescens and something much bigger.

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<v Speaker 3>After she graduates from high school, Julie goes off to

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<v Speaker 3>Swarsmore College, following in the footsteps of her older brother Paul.

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<v Speaker 3>Now Danny is the only child at home. Julie doesn't

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<v Speaker 3>share her worries about Danny with her new college friends,

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<v Speaker 3>not because it's a secret, but because it's private. The

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<v Speaker 3>men and women in Julie's family have different ways of

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<v Speaker 3>dealing with the crisis. Julie and her mom do talk

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<v Speaker 3>about it all the time, keeping it in the family.

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<v Speaker 3>Julie's dad and Paul tend to keep their feelings to themselves.

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<v Speaker 3>This split screen existence in Julie's early college life exacts

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<v Speaker 3>a cost, and Julie begins binge eating.

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<v Speaker 2>What's interesting is that at the time, we would never

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<v Speaker 2>have considered it a secret. I think I was really

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<v Speaker 2>raised in a culture of privacy, so that on one hand,

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<v Speaker 2>we were very as a family, were outgoing and warm

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<v Speaker 2>and embracing. But then there's a line. There's a line,

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<v Speaker 2>and I think that when Danny started to retreat and

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<v Speaker 2>really started to struggle, it was really intuitive to us

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<v Speaker 2>that it just wasn't anyone's business and why would we

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<v Speaker 2>share that, Like he wouldn't want that to be shared.

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<v Speaker 2>And I think it's again, it's the frog in the

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<v Speaker 2>boiling water. It's like along the way, it went from

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<v Speaker 2>privacy to secrecy.

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<v Speaker 1>And I almost don't.

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<v Speaker 2>Know, I can't pinpoint when that happened, but I think

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<v Speaker 2>it was probably when things went from just retreating to

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<v Speaker 2>he was having a really hard time and things started

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<v Speaker 2>happening and the binge eating. At the time, I had no,

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<v Speaker 2>I made no connection between that and what was going

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<v Speaker 2>on in home at all. And then in terms of

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<v Speaker 2>the gender and the family dynamics, I think it was

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<v Speaker 2>an extension of who we are as people. My mom

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<v Speaker 2>and I are loquacious and we are big processors, and

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<v Speaker 2>we spoke to each other about it primarily because we

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<v Speaker 2>were preserving the family's privacy, and my dad and my

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<v Speaker 2>brother they aren't big talkers about struggle at all, and

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<v Speaker 2>so it was this natural rift between how we coped differently.

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<v Speaker 1>And then in time, I think.

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<v Speaker 2>The secrets and the privacy starts to do its insidious work.

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<v Speaker 3>Danny's condition worsens. There are some good periods, bringing the

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<v Speaker 3>family a modicum of hope, but the stretches of stability

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<v Speaker 3>are rare, and in the wake of this hope comes

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<v Speaker 3>fear and defeat. Danny decides to visit Israel, a huge

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<v Speaker 3>relief to the family that he's up for such a trip,

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<v Speaker 3>but it's also laced with dread. They all hold their breath,

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<v Speaker 3>wondering is this going to help? Is he going to

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<v Speaker 3>be okay?

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<v Speaker 1>And he isn't.

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<v Speaker 3>He comes home and starts exhibiting new levels of out

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<v Speaker 3>of control destructiveness, smashing windows violent episodes. These episodes signal

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<v Speaker 3>to the family that maybe his condition will require some

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<v Speaker 3>sort of medical intervention. He does get medically assessed, but

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<v Speaker 3>receives no diagnosis, aren't sure how to diagnose him. And

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<v Speaker 3>then graduation comes along. High school graduation typically a joyous affair,

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<v Speaker 3>but for Danny and his family, not so much.

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<v Speaker 2>He walked across the stage with his gown unzipped, unlike

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<v Speaker 2>anybody else, and with kind of the frozen look on

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<v Speaker 2>his face. It was like this sense of foreboding of

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<v Speaker 2>the future. Graduation is supposed to be this moment where

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<v Speaker 2>you're there, you did it, You're ready to jump into

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<v Speaker 2>the rest of your wonderful life that you've been working for.

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<v Speaker 2>And the way that ended, where when we went back,

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<v Speaker 2>when they filed off stage and all the parents and

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<v Speaker 2>families got together to await the arrival of the graduates,

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<v Speaker 2>and I'll just never forget that sense of dread and

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<v Speaker 2>almost denial.

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<v Speaker 1>Is he really not coming?

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<v Speaker 2>Is he really And just that failing of he didn't

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<v Speaker 2>come and what did that mean?

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<v Speaker 1>What did that mean? Where did he go? And what's

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<v Speaker 1>going to happen next?

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<v Speaker 2>It was this feeling of the hope that he was

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<v Speaker 2>able to do these things, and then there would be

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<v Speaker 2>like a dive that was deeper than where it had started.

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<v Speaker 2>And it just was like this cycle of hope in

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<v Speaker 2>psyching ourselves up, like he's going to be okay, and

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<v Speaker 2>he went to Israel, but he'd made it through his graduation,

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<v Speaker 2>and then when he didn't show up, there was just

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<v Speaker 2>such a sense of I.

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<v Speaker 1>Think fear, honestly fear.

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<v Speaker 2>I think we all were just afraid of what that

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<v Speaker 2>meant for all of us and for him, mostly in

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<v Speaker 2>his future.

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<v Speaker 3>And then that fear is just exacerbated dramatically when he

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<v Speaker 3>gets into an altercation with your father. Your father characteristically

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<v Speaker 3>loses his temper and out of just parental fear and

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<v Speaker 3>huge worry for Danny, and Danny grabs a knife.

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<v Speaker 2>It was surreal that could happen in our kitchen, which

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<v Speaker 2>was the center of our home. My mom is an

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<v Speaker 2>amazing cook. We all spent so much of our time

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<v Speaker 2>in our childhoods around the family table, have bought holidays,

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<v Speaker 2>doing arts and crafts together as kids, doing our homework,

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<v Speaker 2>and the fact that we could be in that same

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<v Speaker 2>space and that could happen.

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<v Speaker 3>We'll be back in a moment with more family secrets.

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<v Speaker 3>Danny continues to spiral and is admitted to Meninger Psychiatric Hospital. Julie,

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<v Speaker 3>in the meantime, is trying to reconcile her two realities,

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<v Speaker 3>her brother's deteriorating health and her own bright future. She

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<v Speaker 3>graduates from college and gets a job as an editorial

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<v Speaker 3>assistant at BusinessWeek. She moves to New York City, meets

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<v Speaker 3>the man who will become her husband, and locks into

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<v Speaker 3>the beginnings of a rich and dynamic life, a burgeoning

0:15:43.240 --> 0:15:47.360
<v Speaker 3>career as a journalist, a wonderful partner, and yet the

0:15:47.440 --> 0:15:50.760
<v Speaker 3>other reality of her brother's condition is something that continues

0:15:50.800 --> 0:15:51.440
<v Speaker 3>to plague her.

0:15:53.720 --> 0:15:58.080
<v Speaker 2>On one hand, it was this double life of and

0:15:58.240 --> 0:16:02.160
<v Speaker 2>in New York City, I'm living a dream. I'm going

0:16:02.200 --> 0:16:05.760
<v Speaker 2>to be a journalist. I really just I just had

0:16:05.760 --> 0:16:08.880
<v Speaker 2>that sort of naive idea of I'm just going to

0:16:08.960 --> 0:16:12.120
<v Speaker 2>do it and I'm going to be successful, and it's

0:16:12.600 --> 0:16:16.120
<v Speaker 2>that was the dream before going into it. And at

0:16:16.120 --> 0:16:20.600
<v Speaker 2>the same time this was happening with Danny, and so

0:16:20.720 --> 0:16:24.120
<v Speaker 2>there was just that double life. And then there was

0:16:24.160 --> 0:16:27.120
<v Speaker 2>the double life of my life in front of the

0:16:27.200 --> 0:16:32.200
<v Speaker 2>people I was living among and with, and then my

0:16:32.360 --> 0:16:35.120
<v Speaker 2>life behind the scenes on the phone all the time

0:16:35.240 --> 0:16:38.760
<v Speaker 2>with my mom and Danny and my dad and Paul too.

0:16:39.600 --> 0:16:41.960
<v Speaker 1>That it was like there were these two double lives.

0:16:42.000 --> 0:16:47.640
<v Speaker 2>And in some ways it was a refuge to be

0:16:47.720 --> 0:16:49.800
<v Speaker 2>able to be out in the world and not have

0:16:49.960 --> 0:16:52.440
<v Speaker 2>to have the people in my life know what was

0:16:52.480 --> 0:16:56.200
<v Speaker 2>going on behind. There was a relief in that, but

0:16:56.600 --> 0:16:59.640
<v Speaker 2>there was a cost to it too, and in many ways,

0:16:59.680 --> 0:17:04.000
<v Speaker 2>like the artist part, I think for siblings, when there's

0:17:04.000 --> 0:17:07.439
<v Speaker 2>a sibling that struggles, is that it's just impossible to

0:17:07.560 --> 0:17:12.240
<v Speaker 2>believe that your life going well is not making their

0:17:12.280 --> 0:17:16.840
<v Speaker 2>life worse. It was just impossible to not draw that line.

0:17:16.920 --> 0:17:19.200
<v Speaker 2>And so in the back of my mind that pulled

0:17:19.400 --> 0:17:20.760
<v Speaker 2>and pulled at me, and.

0:17:20.760 --> 0:17:22.240
<v Speaker 1>It was like every success.

0:17:22.320 --> 0:17:26.320
<v Speaker 2>I can remember my first National byline, I don't even

0:17:26.400 --> 0:17:26.760
<v Speaker 2>know that.

0:17:26.840 --> 0:17:29.600
<v Speaker 1>I want to tell Danny it was like he was

0:17:29.640 --> 0:17:30.520
<v Speaker 1>in a mental.

0:17:30.200 --> 0:17:33.439
<v Speaker 3>Hospital, and I want to say too, you include in

0:17:33.480 --> 0:17:37.160
<v Speaker 3>your book some of Danny's notes and letters to you,

0:17:37.800 --> 0:17:43.119
<v Speaker 3>and he was like, so your cheerleader and so seemingly

0:17:43.160 --> 0:17:46.080
<v Speaker 3>without a malicious or envious bone in his body.

0:17:46.600 --> 0:17:47.080
<v Speaker 1>You're right.

0:17:47.400 --> 0:17:51.520
<v Speaker 3>So this wasn't coming from the kind of sibling thing

0:17:51.600 --> 0:17:53.800
<v Speaker 3>where it might be like, oh, you're getting all the

0:17:53.800 --> 0:17:57.040
<v Speaker 3>good stuff and look at me. It was the opposite

0:17:57.080 --> 0:18:01.840
<v Speaker 3>of that, when there's that terrible cat of if this

0:18:01.960 --> 0:18:03.719
<v Speaker 3>is going to be good for me, then somehow that

0:18:03.760 --> 0:18:04.680
<v Speaker 3>means it's going to be.

0:18:04.640 --> 0:18:05.199
<v Speaker 1>Bad for you.

0:18:06.400 --> 0:18:10.199
<v Speaker 2>I think that the phrase the terrible calculus is so

0:18:10.440 --> 0:18:14.720
<v Speaker 2>apt because in some ways to me, it was even

0:18:14.800 --> 0:18:20.240
<v Speaker 2>more painful that he never led on that he was jealous,

0:18:20.440 --> 0:18:23.960
<v Speaker 2>or that he looked at my life with envy, and

0:18:24.040 --> 0:18:26.960
<v Speaker 2>that was such a reflection of him and how good

0:18:27.000 --> 0:18:30.119
<v Speaker 2>he was and how sweet he was, And that just

0:18:30.160 --> 0:18:33.080
<v Speaker 2>made it worse to me because I knew, or I

0:18:33.160 --> 0:18:36.879
<v Speaker 2>thought I knew that. How could it not The contrast

0:18:36.920 --> 0:18:40.240
<v Speaker 2>between our lives was just getting greater and greater.

0:18:43.760 --> 0:18:47.720
<v Speaker 3>After a year's stay with no improvement at Menninger, Danny's

0:18:47.720 --> 0:18:53.760
<v Speaker 3>doctors decided to try ECT electroconvulsive therapy, and scary as

0:18:53.800 --> 0:18:58.080
<v Speaker 3>this is, there is again that hope that maybe this

0:18:58.359 --> 0:19:03.440
<v Speaker 3>will be the thing that helps. Unfortunately it doesn't. Danny's

0:19:03.440 --> 0:19:10.800
<v Speaker 3>deterioration accelerates. Now it's May fifteenth, nineteen ninety six. Julie

0:19:10.800 --> 0:19:13.560
<v Speaker 3>and Dave are married and living in New York. They

0:19:13.600 --> 0:19:16.840
<v Speaker 3>don't have kids yet. The phone rings at one in

0:19:16.880 --> 0:19:19.240
<v Speaker 3>the morning and it's Julie's brother Paul.

0:19:22.280 --> 0:19:25.560
<v Speaker 2>At this point, Danny had been struggling since he was

0:19:25.640 --> 0:19:34.879
<v Speaker 2>fourteen and now he was twenty seven. And so at

0:19:34.920 --> 0:19:37.200
<v Speaker 2>the time, I was on the phone with a friend

0:19:37.240 --> 0:19:42.200
<v Speaker 2>of mine late and it was call waiting back then,

0:19:42.960 --> 0:19:45.200
<v Speaker 2>and I saw it was my brother's number, and I thought,

0:19:45.400 --> 0:19:47.520
<v Speaker 2>oh my god. I mean, it was like I just

0:19:47.840 --> 0:19:50.159
<v Speaker 2>there was nothing else that could have been. And I

0:19:50.240 --> 0:19:53.080
<v Speaker 2>think that's one of those moments in your life where

0:19:53.640 --> 0:19:56.280
<v Speaker 2>it's like a before and after and you just go

0:19:56.400 --> 0:20:00.840
<v Speaker 2>into this state of unreality. And I clicked over and

0:20:00.880 --> 0:20:05.720
<v Speaker 2>my brother told me, just like that, Danny's going to die.

0:20:05.920 --> 0:20:09.800
<v Speaker 2>And I can just remember people talk about out a

0:20:09.880 --> 0:20:13.199
<v Speaker 2>body experience, and that is how it was, and this

0:20:13.280 --> 0:20:16.720
<v Speaker 2>feeling of my mind refused to hold it, even though

0:20:16.800 --> 0:20:20.320
<v Speaker 2>in some ways it was like your nightmare coming true

0:20:20.359 --> 0:20:24.679
<v Speaker 2>and all those years of imagining it and like suddenly

0:20:24.720 --> 0:20:25.560
<v Speaker 2>you're standing in it.

0:20:26.240 --> 0:20:27.160
<v Speaker 1>And yeah.

0:20:27.240 --> 0:20:30.640
<v Speaker 2>We talked for a few minutes, and I asked where

0:20:30.680 --> 0:20:35.360
<v Speaker 2>my parents, like if they knew what had happened, And

0:20:35.960 --> 0:20:38.240
<v Speaker 2>what I remember is just that he said.

0:20:38.080 --> 0:20:40.600
<v Speaker 1>You got to convince them not to go there.

0:20:41.520 --> 0:20:43.840
<v Speaker 2>At that time, he was at a halfway house and

0:20:43.920 --> 0:20:46.480
<v Speaker 2>he actually was doing really well. He had a job

0:20:46.800 --> 0:20:50.600
<v Speaker 2>and he was really optimistic and things were looking up.

0:20:51.840 --> 0:20:56.240
<v Speaker 2>And he came home one day and greeted the guys

0:20:56.760 --> 0:20:59.359
<v Speaker 2>that he lived with and said, I in it hanging

0:20:59.400 --> 0:21:02.959
<v Speaker 2>to go upstairs and take a shower before dinner. And

0:21:03.000 --> 0:21:09.399
<v Speaker 2>he went up and what the fireman said was, you know,

0:21:09.440 --> 0:21:12.840
<v Speaker 2>he shared a bathroom and there was an aerosol can

0:21:13.320 --> 0:21:16.360
<v Speaker 2>Deodora and Danny had always I mean, it was sort

0:21:16.400 --> 0:21:19.400
<v Speaker 2>of poetic because he had always played with fire. He'd

0:21:19.440 --> 0:21:22.760
<v Speaker 2>always been fascinated with that. It was something like we

0:21:22.880 --> 0:21:23.760
<v Speaker 2>did as kids.

0:21:23.880 --> 0:21:25.320
<v Speaker 1>We would use.

0:21:25.160 --> 0:21:28.720
<v Speaker 2>Magnifying glasses in the sun and burn sticks with it.

0:21:28.880 --> 0:21:33.200
<v Speaker 2>And then later on there was that Saint Elmo's Fire,

0:21:33.320 --> 0:21:38.400
<v Speaker 2>that movie that you may remember where Rob Low sprays

0:21:38.600 --> 0:21:40.240
<v Speaker 2>aerosol and then lights it.

0:21:40.560 --> 0:21:43.000
<v Speaker 1>And so what happened was Danny was playing with.

0:21:42.920 --> 0:21:47.000
<v Speaker 2>It and he lit it with a lighter and the

0:21:47.119 --> 0:21:50.359
<v Speaker 2>cant exploded and because it was.

0:21:50.280 --> 0:21:52.760
<v Speaker 1>A spray, it just exploded on him.

0:21:52.960 --> 0:21:57.040
<v Speaker 2>And what the fireman said is that they didn't think

0:21:57.080 --> 0:21:59.399
<v Speaker 2>it was a suicide. They didn't think he could have

0:21:59.480 --> 0:22:02.399
<v Speaker 2>known that was going to happen. But I think that

0:22:02.600 --> 0:22:07.399
<v Speaker 2>for us there was some comfort in that but I

0:22:07.400 --> 0:22:09.800
<v Speaker 2>think there was also or I'll speak for myself, not

0:22:09.800 --> 0:22:12.080
<v Speaker 2>my rest of my family. It was a feeling of like,

0:22:12.720 --> 0:22:15.080
<v Speaker 2>I know that in some recess of his mind, and

0:22:15.119 --> 0:22:20.040
<v Speaker 2>particularly since he had attempted taking his life before that,

0:22:20.160 --> 0:22:23.720
<v Speaker 2>in some recess of his mind, that he was capable

0:22:23.760 --> 0:22:27.240
<v Speaker 2>of that and certainly capable of tempting it, and I

0:22:27.240 --> 0:22:31.080
<v Speaker 2>think had attempted it, and that day it was a calculation.

0:22:31.280 --> 0:22:35.320
<v Speaker 2>I think he couldn't have known. But he was taken

0:22:36.080 --> 0:22:39.520
<v Speaker 2>to the hospital and he said to the guys that

0:22:39.640 --> 0:22:42.880
<v Speaker 2>were his housemates were out there with them, and he

0:22:42.920 --> 0:22:45.440
<v Speaker 2>was still conscious, and he said, oh, hey, we'll see

0:22:45.440 --> 0:22:46.040
<v Speaker 2>you guys later.

0:22:46.720 --> 0:22:49.120
<v Speaker 1>He didn't think he was going to die.

0:22:49.600 --> 0:22:52.000
<v Speaker 2>And I think that once he got to the hospital

0:22:52.000 --> 0:22:54.320
<v Speaker 2>it was clear that the Barns were too severe to

0:22:54.400 --> 0:22:57.240
<v Speaker 2>save him.

0:22:57.280 --> 0:23:02.200
<v Speaker 3>Described to me the landscape of the family that you

0:23:02.240 --> 0:23:10.879
<v Speaker 3>and Dave made together in those years following this staggering loss.

0:23:11.240 --> 0:23:17.480
<v Speaker 2>So we had moved, we'd moved from Boston to San Francisco.

0:23:18.600 --> 0:23:22.760
<v Speaker 2>Dave was doing a fellowship to be a doctor, a specialist,

0:23:23.119 --> 0:23:25.760
<v Speaker 2>and it was supposed to be for a year, and

0:23:26.320 --> 0:23:31.560
<v Speaker 2>Danny had died three years before, and it was before

0:23:31.600 --> 0:23:35.640
<v Speaker 2>our daughter was born that he died, so our daughter Jesse.

0:23:36.640 --> 0:23:38.640
<v Speaker 2>When we moved it was a year and a half,

0:23:39.800 --> 0:23:45.040
<v Speaker 2>and I would say, for me the landscape, the feeling

0:23:45.160 --> 0:23:51.639
<v Speaker 2>I had was I came to California giddy, Yes, so

0:23:51.880 --> 0:23:56.240
<v Speaker 2>happy to be somewhere new, and happy to be somewhere

0:23:56.600 --> 0:24:02.560
<v Speaker 2>exotic and foreign and beautiful. Most of all, happy to

0:24:02.640 --> 0:24:06.480
<v Speaker 2>move to a place where no one knew about Danny

0:24:07.240 --> 0:24:12.960
<v Speaker 2>or what had happened. And it was an amazing relief

0:24:13.240 --> 0:24:16.560
<v Speaker 2>and joy to start our family, to grow our family there.

0:24:17.280 --> 0:24:21.280
<v Speaker 2>And it's crazy because when I line my childhood up

0:24:21.320 --> 0:24:24.800
<v Speaker 2>with our kids, it's so much the same. It was,

0:24:24.880 --> 0:24:29.480
<v Speaker 2>though idyllic. We just had so much fun. Our son

0:24:29.600 --> 0:24:33.320
<v Speaker 2>Sam was born three years later. We ended up staying.

0:24:33.760 --> 0:24:35.720
<v Speaker 2>In part it was supposed to be for a year,

0:24:35.920 --> 0:24:39.800
<v Speaker 2>but I think we ended up staying because life was

0:24:39.880 --> 0:24:44.240
<v Speaker 2>so joyous there, and I'm sure no small measure, because

0:24:44.280 --> 0:24:50.000
<v Speaker 2>it was light without history, without other family there as

0:24:50.000 --> 0:24:53.360
<v Speaker 2>a reminder or as just a network. It was just

0:24:53.440 --> 0:24:56.640
<v Speaker 2>like we were reinventing ourselves. But it was so much

0:24:56.680 --> 0:24:59.879
<v Speaker 2>the same in the sense of what a loving and happy,

0:25:00.640 --> 0:25:05.240
<v Speaker 2>an idyllic childhood our kids had and we had as

0:25:05.320 --> 0:25:07.320
<v Speaker 2>new parents and young parents.

0:25:08.080 --> 0:25:09.119
<v Speaker 1>That was a landscape.

0:25:09.119 --> 0:25:17.000
<v Speaker 4>It was just a happy, safe, revelatory, light, beautiful life

0:25:17.080 --> 0:25:19.280
<v Speaker 4>we created as a young family.

0:25:25.920 --> 0:25:29.920
<v Speaker 3>Though Julie relishes in this revelatory and beautiful family life,

0:25:29.960 --> 0:25:33.920
<v Speaker 3>she also runs up against feelings of despair, wondering if

0:25:33.960 --> 0:25:36.240
<v Speaker 3>she did the right thing by choosing to stay home

0:25:36.280 --> 0:25:39.760
<v Speaker 3>when her kids were born. She writes, I've been spearheading

0:25:39.800 --> 0:25:43.919
<v Speaker 3>community projects, meeting with CEOs, sharing an events stage with

0:25:43.960 --> 0:25:47.719
<v Speaker 3>Secretary of State Colon Powell, fielding questions from the press.

0:25:48.320 --> 0:25:51.080
<v Speaker 3>And now now I sat cross legged in a circle

0:25:51.119 --> 0:25:54.040
<v Speaker 3>of new mothers, singing, ring around the rosie, with a

0:25:54.119 --> 0:25:57.560
<v Speaker 3>drooling baby on my lap. Now I was Jesse's mom,

0:25:58.040 --> 0:26:01.520
<v Speaker 3>walking around with little cascades of dry vomit down my shirt.

0:26:01.960 --> 0:26:06.560
<v Speaker 3>It was clear before I was many things. Executive director, writer,

0:26:06.760 --> 0:26:12.119
<v Speaker 3>strategic partner, program developer, fundraiser, community leader. Now I was

0:26:12.200 --> 0:26:14.960
<v Speaker 3>one thing. I lived in, a seven day a week

0:26:15.040 --> 0:26:19.680
<v Speaker 3>world of sing songy, high pitched tones. Conversations were limited

0:26:19.720 --> 0:26:23.399
<v Speaker 3>to baby talk, days of all the same thing caregiving.

0:26:24.119 --> 0:26:26.399
<v Speaker 3>No matter how I sliced it or how much I

0:26:26.480 --> 0:26:29.560
<v Speaker 3>loved being with Jesse, a stay at home mom was

0:26:29.560 --> 0:26:30.600
<v Speaker 3>a fraught designation.

0:26:32.280 --> 0:26:35.200
<v Speaker 2>It was a big decision for me to stay at

0:26:35.200 --> 0:26:38.439
<v Speaker 2>home because I had always envisioned myself I.

0:26:38.520 --> 0:26:41.000
<v Speaker 1>Say, worshiped at the altered productivity.

0:26:41.400 --> 0:26:45.399
<v Speaker 2>That was what I longed to value and achievement, and

0:26:45.760 --> 0:26:49.320
<v Speaker 2>that is also a very Jewish thing, and so the

0:26:49.440 --> 0:26:53.080
<v Speaker 2>idea of giving that up, it was like, then, who

0:26:53.080 --> 0:26:54.080
<v Speaker 2>am I going to be.

0:26:54.640 --> 0:26:56.560
<v Speaker 1>Like besides a mom?

0:26:57.320 --> 0:27:00.720
<v Speaker 2>And I had this one seminal conversation with my brother

0:27:01.320 --> 0:27:04.840
<v Speaker 2>who basically said, you have your whole life to work,

0:27:05.400 --> 0:27:07.840
<v Speaker 2>and you have the privilege of being able to raise

0:27:07.840 --> 0:27:08.280
<v Speaker 2>your kids.

0:27:08.320 --> 0:27:10.320
<v Speaker 1>Why would you say no to that? You could always

0:27:10.320 --> 0:27:11.080
<v Speaker 1>go back to work.

0:27:12.000 --> 0:27:15.679
<v Speaker 2>And I think at the time I remember this sense

0:27:15.800 --> 0:27:19.399
<v Speaker 2>of he's right. On a logistical level, he's right. It

0:27:19.480 --> 0:27:24.200
<v Speaker 2>was also really hard for me to justify staying working

0:27:24.960 --> 0:27:27.239
<v Speaker 2>as a writer. At that time when I left, I

0:27:27.320 --> 0:27:30.640
<v Speaker 2>was running a nonprofit agency, but I assumed I would

0:27:30.640 --> 0:27:32.640
<v Speaker 2>go back to being a writer at some point and

0:27:32.920 --> 0:27:35.800
<v Speaker 2>the money I made it would cover a fraction of

0:27:35.800 --> 0:27:38.080
<v Speaker 2>what childcare was going to be. So it was to

0:27:38.119 --> 0:27:42.679
<v Speaker 2>me it felt like, if I stay at work, that

0:27:42.840 --> 0:27:48.720
<v Speaker 2>is a pure indulgence that is for my own development

0:27:48.920 --> 0:27:53.320
<v Speaker 2>and self actualization, and how can I put that in

0:27:53.359 --> 0:27:58.320
<v Speaker 2>front of our children's welfare, and so that is what

0:27:58.400 --> 0:27:59.240
<v Speaker 2>drove the decision.

0:28:00.160 --> 0:28:03.480
<v Speaker 1>And I think at the beginning it was such a joy.

0:28:04.200 --> 0:28:07.920
<v Speaker 2>It was like this guilty relief of, Oh my gosh,

0:28:07.920 --> 0:28:11.119
<v Speaker 2>I'm Jesse's a baby, Jesse's a toddler. Life is so

0:28:11.320 --> 0:28:16.680
<v Speaker 2>crystal clear that days were structured, the priorities were clear.

0:28:17.400 --> 0:28:20.159
<v Speaker 2>You feed them, you burp them, you poop them, you

0:28:20.760 --> 0:28:24.359
<v Speaker 2>go to the playground. It was a relief, and I

0:28:24.400 --> 0:28:28.359
<v Speaker 2>think what happened was it became fraught the older the

0:28:28.440 --> 0:28:32.919
<v Speaker 2>kids got, the more I immersed myself in that California world,

0:28:33.040 --> 0:28:35.919
<v Speaker 2>which was a lot of moms who had given up

0:28:35.960 --> 0:28:38.720
<v Speaker 2>their careers to be home with their kids. It was

0:28:38.800 --> 0:28:42.200
<v Speaker 2>just hard to imagine going back. But I think inside

0:28:42.240 --> 0:28:45.239
<v Speaker 2>there was always this voice that was saying, what are

0:28:45.280 --> 0:28:48.480
<v Speaker 2>you doing? Why are you giving everything up?

0:28:49.080 --> 0:28:50.280
<v Speaker 1>Who was I?

0:28:50.400 --> 0:28:55.680
<v Speaker 2>What happened to that crazy, like ambitiously obsessed person that

0:28:55.760 --> 0:28:59.560
<v Speaker 2>I had been for the first thirty years in my life.

0:29:00.120 --> 0:29:04.600
<v Speaker 2>So then fast forward, Jesse was a senior in high

0:29:04.640 --> 0:29:10.760
<v Speaker 2>school and Sam was a freshman in high school, and

0:29:11.640 --> 0:29:18.120
<v Speaker 2>Jess started feeling this incredibly intense feeling of dread and

0:29:18.200 --> 0:29:21.800
<v Speaker 2>anxiety and grief. For the longest time, I thought well,

0:29:21.840 --> 0:29:25.240
<v Speaker 2>this is just this is what it is. It's like

0:29:25.840 --> 0:29:28.920
<v Speaker 2>any parent of a child leaving the nest is going

0:29:29.000 --> 0:29:31.760
<v Speaker 2>to be sad, but it felt like so much.

0:29:31.640 --> 0:29:32.200
<v Speaker 1>More than that.

0:29:33.440 --> 0:29:37.360
<v Speaker 2>And the day that it came to a head for

0:29:37.480 --> 0:29:41.120
<v Speaker 2>me was Jesse was a senior in high school. Like

0:29:41.200 --> 0:29:43.440
<v Speaker 2>I was saying, is like she was headed for the stars.

0:29:43.840 --> 0:29:46.800
<v Speaker 2>At that age. She had not gone through the Ringers. Socially,

0:29:47.160 --> 0:29:50.240
<v Speaker 2>she had really made her way with a lot of ease.

0:29:50.360 --> 0:29:52.920
<v Speaker 2>There had been terrible things that had happened at her

0:29:52.960 --> 0:29:55.600
<v Speaker 2>school outside of her, but in terms of who she

0:29:55.880 --> 0:30:00.680
<v Speaker 2>was and how she did. Sue was storing and one

0:30:00.760 --> 0:30:03.560
<v Speaker 2>day she came in to our house and I was

0:30:03.600 --> 0:30:07.480
<v Speaker 2>cooking chicken soup, and she tossed her wallet on top of.

0:30:07.440 --> 0:30:12.720
<v Speaker 1>My onions and said, guess who called? And I said who?

0:30:12.880 --> 0:30:14.760
<v Speaker 1>She said, the Secret Service.

0:30:15.280 --> 0:30:18.520
<v Speaker 2>And at that time it was actually that summer, the

0:30:18.600 --> 0:30:21.760
<v Speaker 2>summer after her senior year, the summer right before she

0:30:21.800 --> 0:30:24.600
<v Speaker 2>was supposed to go to college, she was interning for

0:30:24.800 --> 0:30:26.080
<v Speaker 2>the Hillary Clinton campaign.

0:30:26.600 --> 0:30:28.880
<v Speaker 1>So she'd come home from her internship and said that.

0:30:28.840 --> 0:30:32.200
<v Speaker 2>And I said, what Secret Service? Yeah, So it turns

0:30:32.200 --> 0:30:34.560
<v Speaker 2>out she said she was one of two interns chosen

0:30:34.720 --> 0:30:38.560
<v Speaker 2>to be part of Hillary's motorcade to take her around

0:30:38.600 --> 0:30:41.800
<v Speaker 2>to Tim Cook's house and all big wigs to fundraise,

0:30:42.680 --> 0:30:46.480
<v Speaker 2>and I was so proud and I just was looked

0:30:46.480 --> 0:30:49.040
<v Speaker 2>at her and she was shining and so happy, and.

0:30:49.240 --> 0:30:50.240
<v Speaker 1>I was so proud.

0:30:50.560 --> 0:30:53.719
<v Speaker 2>And then it was like I can so vividly feel

0:30:53.760 --> 0:30:56.880
<v Speaker 2>that underneath there was like this crest, like this wave

0:30:57.440 --> 0:30:58.400
<v Speaker 2>of envy.

0:30:58.360 --> 0:31:00.320
<v Speaker 1>That I had for her.

0:31:01.080 --> 0:31:04.400
<v Speaker 2>And as a parent, you're allowed to feel a lot

0:31:04.400 --> 0:31:07.760
<v Speaker 2>of things, but you're definitely not allowed to feel jealous

0:31:07.800 --> 0:31:10.520
<v Speaker 2>of your own kid. This is not something we talk about.

0:31:10.800 --> 0:31:12.800
<v Speaker 2>We can stay jokingly I want to come back as

0:31:12.840 --> 0:31:15.160
<v Speaker 2>my kid in my next life. Okay, that's one thing,

0:31:15.320 --> 0:31:18.160
<v Speaker 2>but you're not really allowed to say I am jealous

0:31:18.200 --> 0:31:21.000
<v Speaker 2>of my child. And that is what I was feeling.

0:31:21.840 --> 0:31:26.840
<v Speaker 2>And that's when I knew something was very wrong, as

0:31:26.880 --> 0:31:30.360
<v Speaker 2>that feeling kept coming up more and more as it

0:31:30.560 --> 0:31:33.560
<v Speaker 2>like the march of time towards one shoes leaving for college.

0:31:34.120 --> 0:31:37.680
<v Speaker 1>So that was the stage for our leaving and me feeling.

0:31:37.480 --> 0:31:40.880
<v Speaker 2>Very like tortured and guilty and not able to talk

0:31:40.920 --> 0:31:42.520
<v Speaker 2>about I mean talk about secrets.

0:31:42.720 --> 0:31:42.840
<v Speaker 3>Now.

0:31:42.920 --> 0:31:43.920
<v Speaker 1>That was a secret.

0:31:44.160 --> 0:31:47.000
<v Speaker 2>I told my one of my best friends, my running partner,

0:31:47.120 --> 0:31:49.880
<v Speaker 2>and I think that's it for a long time, not Dave.

0:31:50.200 --> 0:31:51.200
<v Speaker 1>No, I don't think I did.

0:31:51.240 --> 0:31:53.040
<v Speaker 2>I think it was a long time before I told

0:31:53.120 --> 0:31:54.920
<v Speaker 2>Dave because I was ashamed.

0:31:55.600 --> 0:31:56.600
<v Speaker 1>I was horrified.

0:31:57.200 --> 0:32:02.120
<v Speaker 2>This is like the antithesis, and not to mention like,

0:32:02.720 --> 0:32:06.280
<v Speaker 2>I am so close to my daughter. We were one

0:32:06.280 --> 0:32:09.600
<v Speaker 2>of the mother daughters who people looked at as people

0:32:09.600 --> 0:32:11.360
<v Speaker 2>would always say, oh my god, you and Jesse.

0:32:11.600 --> 0:32:13.520
<v Speaker 1>You're so lucky, so lucky.

0:32:13.560 --> 0:32:15.080
<v Speaker 2>How she talks to you, and how you guys have

0:32:15.160 --> 0:32:19.040
<v Speaker 2>such a close relationship, which I always felt so then

0:32:19.120 --> 0:32:21.120
<v Speaker 2>to feel this feeling of envy.

0:32:20.880 --> 0:32:24.360
<v Speaker 1>For her was just so awful.

0:32:32.400 --> 0:32:44.960
<v Speaker 3>We'll be right back. Jesse goes off to Northwestern, but

0:32:45.040 --> 0:32:49.080
<v Speaker 3>before she does, she turns to Julie one day and asks, mom,

0:32:49.120 --> 0:32:52.160
<v Speaker 3>how are we going to do this? They're so close,

0:32:52.360 --> 0:32:55.040
<v Speaker 3>so used to knowing the daily minutia of each other's lives,

0:32:55.560 --> 0:32:59.320
<v Speaker 3>how literally, Jesse wonders, how are they going to navigate

0:32:59.360 --> 0:33:04.360
<v Speaker 3>being so far apart phone calls, texts, FaceTime. This is

0:33:04.400 --> 0:33:06.960
<v Speaker 3>always a huge moment between parents and their kids going

0:33:06.960 --> 0:33:10.080
<v Speaker 3>off to college, but in the case of Jesse and Julie,

0:33:10.360 --> 0:33:13.600
<v Speaker 3>it looms particularly large.

0:33:13.880 --> 0:33:19.720
<v Speaker 2>The weekend we got to Northwestern for her orientation. She

0:33:19.840 --> 0:33:23.000
<v Speaker 2>started having stomach pain and having to go to the

0:33:23.040 --> 0:33:27.440
<v Speaker 2>bathroom a lot, and it got dramatically worse within a

0:33:27.480 --> 0:33:30.640
<v Speaker 2>couple of days, to the point where on moving day,

0:33:30.680 --> 0:33:35.360
<v Speaker 2>which is supposed to be this very classic iconic day

0:33:35.400 --> 0:33:37.760
<v Speaker 2>of the first day of the rest of your life,

0:33:37.840 --> 0:33:40.280
<v Speaker 2>this new phase, she had to stay in the hotel

0:33:40.440 --> 0:33:43.320
<v Speaker 2>because she just couldn't get out of bed, and Dave

0:33:43.360 --> 0:33:45.680
<v Speaker 2>and I and Sam helped to set up her room

0:33:45.720 --> 0:33:46.600
<v Speaker 2>and did it on her own.

0:33:47.000 --> 0:33:48.520
<v Speaker 1>And then what happened is.

0:33:48.440 --> 0:33:53.560
<v Speaker 2>That the day before we left her there, they have

0:33:53.720 --> 0:33:57.880
<v Speaker 2>this ceremony called the March through the Arch and all

0:33:57.960 --> 0:34:02.480
<v Speaker 2>the kids walk through this and we saw her and

0:34:02.960 --> 0:34:05.600
<v Speaker 2>it was so clear that she was in pain, but

0:34:05.640 --> 0:34:08.360
<v Speaker 2>the health services had said it was gastronritis and that

0:34:08.440 --> 0:34:11.400
<v Speaker 2>was going on. And then we met at the field

0:34:12.320 --> 0:34:15.960
<v Speaker 2>and her fists were bald up, and I just remember

0:34:16.000 --> 0:34:18.480
<v Speaker 2>thinking like, oh my god, are we really going to

0:34:18.560 --> 0:34:19.359
<v Speaker 2>leave her like this?

0:34:19.480 --> 0:34:21.160
<v Speaker 1>We're really leaving her like this?

0:34:21.800 --> 0:34:24.719
<v Speaker 2>And we just gently said, Jess, are you sure you

0:34:24.719 --> 0:34:25.240
<v Speaker 2>don't want.

0:34:25.160 --> 0:34:27.200
<v Speaker 4>Us to stay for a couple extra days just to

0:34:27.600 --> 0:34:29.160
<v Speaker 4>help you.

0:34:29.160 --> 0:34:31.600
<v Speaker 2>No, I don't want you to just go and fine,

0:34:32.160 --> 0:34:35.440
<v Speaker 2>and so we did. And it's funny because, honestly, like

0:34:35.640 --> 0:34:39.319
<v Speaker 2>until this moment, it's such a bizarre parallel that never

0:34:39.400 --> 0:34:42.960
<v Speaker 2>occurred to me that just in the way that it

0:34:43.000 --> 0:34:47.359
<v Speaker 2>was Danny's graduation and this thing happened that was so

0:34:48.200 --> 0:34:51.839
<v Speaker 2>it was like foreboding. It was like a foreshadowing of

0:34:51.880 --> 0:34:54.720
<v Speaker 2>what was going to happen in the rest of his life.

0:34:55.040 --> 0:34:58.400
<v Speaker 2>It was the same thing on that orientation day. It

0:34:58.440 --> 0:35:01.360
<v Speaker 2>was such an emblematic moment standing in a hot field

0:35:01.520 --> 0:35:04.719
<v Speaker 2>and seeing that she was sick and feeling should we

0:35:04.760 --> 0:35:08.000
<v Speaker 2>stay or should we go? And the tension with adult

0:35:08.120 --> 0:35:11.000
<v Speaker 2>children that all they want is to be independent in

0:35:11.000 --> 0:35:13.640
<v Speaker 2>that moment, and you, as a parent, your job is

0:35:13.680 --> 0:35:14.560
<v Speaker 2>to support that.

0:35:15.239 --> 0:35:18.520
<v Speaker 1>And yet when your child is clearly.

0:35:19.080 --> 0:35:23.719
<v Speaker 2>Something has gone wrong, your instinct is you can't leave them.

0:35:24.000 --> 0:35:26.640
<v Speaker 2>And it's like there's no playbook for that. When they're sick,

0:35:27.400 --> 0:35:30.000
<v Speaker 2>you know, when they're fine, you just know you leave.

0:35:30.480 --> 0:35:33.200
<v Speaker 2>Doesn't matter that they're sad, doesn't matter that you're sad.

0:35:33.920 --> 0:35:35.760
<v Speaker 2>But when they're sick, do you leave?

0:35:36.840 --> 0:35:37.399
<v Speaker 1>But we did.

0:35:38.200 --> 0:35:42.960
<v Speaker 3>It's so interesting to me that to me those parallels,

0:35:43.320 --> 0:35:46.480
<v Speaker 3>whether or not that was something that you were conscious of,

0:35:46.719 --> 0:35:49.440
<v Speaker 3>is that there was this kind of weird foreshadowing parallel.

0:35:49.800 --> 0:35:53.360
<v Speaker 3>You weren't conscious of it, but it was there, and

0:35:53.480 --> 0:35:56.080
<v Speaker 3>in a way like its own secret, it was present.

0:35:56.960 --> 0:35:59.960
<v Speaker 2>I am so freaked out by that discovery right now.

0:36:00.320 --> 0:36:01.839
<v Speaker 2>I can't believe I never saw that.

0:36:02.160 --> 0:36:04.239
<v Speaker 3>It's a secret you were keeping from yourself, because the

0:36:04.280 --> 0:36:06.560
<v Speaker 3>only reason why I know it is because you wrote it,

0:36:07.200 --> 0:36:08.960
<v Speaker 3>and you wrote it in a way that allowed me

0:36:09.000 --> 0:36:09.400
<v Speaker 3>to see it.

0:36:09.760 --> 0:36:12.120
<v Speaker 1>It's so weird.

0:36:14.960 --> 0:36:18.359
<v Speaker 3>Just a week after arriving at Northwestern, Jesse calls her

0:36:18.360 --> 0:36:20.880
<v Speaker 3>mom with an update. Things have worsened.

0:36:22.800 --> 0:36:25.680
<v Speaker 2>She called me and she said there was blood in

0:36:25.680 --> 0:36:29.000
<v Speaker 2>the toilet, and so I went back, I got on

0:36:29.040 --> 0:36:31.719
<v Speaker 2>the planet, went to the hospital, and she was diagnosed

0:36:31.760 --> 0:36:35.400
<v Speaker 2>with ulterative colitis and they put her on a medication.

0:36:36.320 --> 0:36:39.239
<v Speaker 2>You seem to respond to it, and then that was

0:36:39.320 --> 0:36:42.040
<v Speaker 2>it for a while. We went back to our roles of.

0:36:41.960 --> 0:36:44.480
<v Speaker 1>Okay, you're independent, and wow, look at you.

0:36:44.480 --> 0:36:46.520
<v Speaker 2>You made it through your first hurdle, and we made

0:36:46.560 --> 0:36:49.080
<v Speaker 2>it through your first hurdle, and now we're going to

0:36:49.160 --> 0:36:51.720
<v Speaker 2>let you live your life. And Jesse was very clear

0:36:52.480 --> 0:36:55.120
<v Speaker 2>she didn't really want us to be asking her about

0:36:55.160 --> 0:36:59.080
<v Speaker 2>it all the time. She wanted to focus on her

0:36:59.200 --> 0:37:02.799
<v Speaker 2>new life. But it was really interesting though that when

0:37:02.800 --> 0:37:05.520
<v Speaker 2>she was in the hospital. When I think about secrets

0:37:05.960 --> 0:37:08.800
<v Speaker 2>and I think about how different this.

0:37:09.480 --> 0:37:13.440
<v Speaker 1>Current family of mine handled.

0:37:13.600 --> 0:37:17.719
<v Speaker 2>The situation differently than we did with Danny, is that

0:37:17.760 --> 0:37:20.040
<v Speaker 2>I can remember her being in the hospital and she

0:37:20.160 --> 0:37:23.920
<v Speaker 2>was missing her first week of college, and these people

0:37:23.960 --> 0:37:24.719
<v Speaker 2>didn't know her.

0:37:24.760 --> 0:37:26.000
<v Speaker 1>This was a whole new world.

0:37:26.239 --> 0:37:30.239
<v Speaker 2>And so listen to her talking on the phone to

0:37:30.360 --> 0:37:34.879
<v Speaker 2>herra and to her new roommate and to the new

0:37:34.920 --> 0:37:37.480
<v Speaker 2>people she met before orientations started.

0:37:37.719 --> 0:37:40.560
<v Speaker 1>And the way she was already.

0:37:40.120 --> 0:37:45.680
<v Speaker 2>Integrating this new part of her life and being droll

0:37:45.800 --> 0:37:48.399
<v Speaker 2>about it with a sense of humor, like, oh, yeah,

0:37:48.440 --> 0:37:50.920
<v Speaker 2>I just figured my first week of college, I just

0:37:51.040 --> 0:37:53.360
<v Speaker 2>might as well start off in the hospital. And this

0:37:53.520 --> 0:37:57.080
<v Speaker 2>feeling of not really wanting to show or feel or

0:37:57.160 --> 0:38:01.600
<v Speaker 2>own or tell what was like the severity of what

0:38:01.680 --> 0:38:03.960
<v Speaker 2>had just happened and what was ahead.

0:38:04.920 --> 0:38:08.120
<v Speaker 3>Yeah, there's another beautiful passage from your book that I

0:38:08.200 --> 0:38:12.080
<v Speaker 3>just want to read here, because from this point on,

0:38:12.600 --> 0:38:15.160
<v Speaker 3>as the months go by and you're not talking about

0:38:15.200 --> 0:38:19.040
<v Speaker 3>it out of respecting her independence and young adulthood, and

0:38:19.320 --> 0:38:23.760
<v Speaker 3>she's got under control, her condition worsens takes a real turn,

0:38:24.360 --> 0:38:27.799
<v Speaker 3>and there's this passage that you wrote, which is for

0:38:27.960 --> 0:38:33.360
<v Speaker 3>months now, she'd carried out our family legacy of pursuing, prevailing, achieving,

0:38:33.880 --> 0:38:37.040
<v Speaker 3>but the family legacy had failed to win this one,

0:38:37.080 --> 0:38:40.240
<v Speaker 3>and a new teacher, the teacher of illness, was about

0:38:40.239 --> 0:38:40.800
<v Speaker 3>to prevail.

0:38:41.600 --> 0:38:48.000
<v Speaker 1>Yeah, that's exactly true.

0:38:48.160 --> 0:38:51.520
<v Speaker 3>Perhaps partly in preparation for this next chapter in her life,

0:38:52.080 --> 0:38:55.640
<v Speaker 3>Julia signed up for a writing retreat in Montana. She's

0:38:55.680 --> 0:38:58.840
<v Speaker 3>thinking that it might be just what she needs, a push,

0:38:59.040 --> 0:39:02.080
<v Speaker 3>a deadline, a community of other writers to help her

0:39:02.080 --> 0:39:02.879
<v Speaker 3>get started again.

0:39:04.800 --> 0:39:06.080
<v Speaker 1>And so I signed up.

0:39:06.840 --> 0:39:09.839
<v Speaker 2>My plan was, We're going to drop Jess off at

0:39:09.840 --> 0:39:12.560
<v Speaker 2>school and a week later, I'm going to start over.

0:39:12.640 --> 0:39:14.520
<v Speaker 2>I'm going to start a new part of my life

0:39:14.840 --> 0:39:17.080
<v Speaker 2>and try to reconnect with the writer I used to be.

0:39:18.080 --> 0:39:22.240
<v Speaker 1>And the irony of Jesse got thick.

0:39:22.719 --> 0:39:24.480
<v Speaker 2>It was the week before I was supposed to go

0:39:24.520 --> 0:39:28.600
<v Speaker 2>on that retreat, and I can remember feeling I was

0:39:28.600 --> 0:39:30.560
<v Speaker 2>there in the hospital with her. The retreat was supposed

0:39:30.560 --> 0:39:33.279
<v Speaker 2>to start four days later, and I thought, wow, I

0:39:33.760 --> 0:39:36.200
<v Speaker 2>obviously I'm not going to go if she needs me here,

0:39:36.920 --> 0:39:39.799
<v Speaker 2>And I remember that thinking for the first time, it

0:39:39.880 --> 0:39:42.600
<v Speaker 2>was the first time I connected the story of Danny

0:39:42.640 --> 0:39:47.960
<v Speaker 2>with Jesse and how the irony and that the inner

0:39:48.000 --> 0:39:52.520
<v Speaker 2>conflict of my primary feeling was fear about Jesse and

0:39:52.920 --> 0:39:55.800
<v Speaker 2>what would happen, and wanting to save her and wanting

0:39:55.840 --> 0:40:00.160
<v Speaker 2>to make everything okay, and then this tiny voice in

0:40:00.200 --> 0:40:03.359
<v Speaker 2>the back of my mind going, but what about the

0:40:03.400 --> 0:40:05.400
<v Speaker 2>rest of your life? Are you putting that side?

0:40:05.440 --> 0:40:05.760
<v Speaker 1>Again?

0:40:06.440 --> 0:40:09.000
<v Speaker 2>I wasn't even conscious of it. It really didn't become

0:40:09.040 --> 0:40:11.879
<v Speaker 2>conscious till much later, But I can see looking back

0:40:11.920 --> 0:40:15.000
<v Speaker 2>that that got put in motion, and she responded to

0:40:15.040 --> 0:40:18.880
<v Speaker 2>that medication and she was ready to go back to school.

0:40:18.960 --> 0:40:21.600
<v Speaker 2>And I went to that retreat a couple days late,

0:40:22.400 --> 0:40:25.759
<v Speaker 2>and then that was where that next part of my

0:40:26.000 --> 0:40:29.439
<v Speaker 2>journey began, of just like the part of my life

0:40:29.520 --> 0:40:32.399
<v Speaker 2>that was just for me, which I hadn't really touched

0:40:32.440 --> 0:40:35.279
<v Speaker 2>since I was in my twenties, you know.

0:40:35.320 --> 0:40:37.680
<v Speaker 3>And it's interesting, Julie, like, it's so easily could have

0:40:37.719 --> 0:40:41.640
<v Speaker 3>been otherwise, the terrible calculus of basically, I don't get

0:40:41.680 --> 0:40:44.040
<v Speaker 3>to have this, I don't get to have this. I'm

0:40:44.040 --> 0:40:46.799
<v Speaker 3>not going to get to have my own identity that's

0:40:47.440 --> 0:40:52.320
<v Speaker 3>just mine in a way, the parallels are really extraordinary.

0:40:52.280 --> 0:40:56.080
<v Speaker 2>And I think the worst part is that I wasn't

0:40:56.120 --> 0:41:00.400
<v Speaker 2>really conscious when Danny was sick or when Jesse got of.

0:41:00.760 --> 0:41:03.719
<v Speaker 2>I didn't have the fully developed thought, Oh, I guess

0:41:03.760 --> 0:41:06.960
<v Speaker 2>I'm never gonna have something on my own. All I

0:41:07.040 --> 0:41:11.160
<v Speaker 2>felt was fear and dread for these two people I loved,

0:41:11.480 --> 0:41:14.440
<v Speaker 2>and then this nagging feeling of guilt that I was

0:41:14.480 --> 0:41:17.800
<v Speaker 2>even thinking about myself. It was that same thing with Danny,

0:41:17.880 --> 0:41:21.000
<v Speaker 2>like how dare I think about my little writing career

0:41:21.360 --> 0:41:24.480
<v Speaker 2>when he's failing it? And with Jesse it was like

0:41:25.040 --> 0:41:28.239
<v Speaker 2>who cares about like my little writing retreat? But there

0:41:28.280 --> 0:41:31.239
<v Speaker 2>is that tiny little part of you that wants that

0:41:31.400 --> 0:41:33.120
<v Speaker 2>voice of don't forget me.

0:41:37.280 --> 0:41:40.160
<v Speaker 3>A few months after the first incident of Jesse's bleeding,

0:41:40.719 --> 0:41:44.160
<v Speaker 3>it seems the medication is working and that everything's under control.

0:41:44.800 --> 0:41:49.120
<v Speaker 3>But then Julian Dave get another call. Jesse's ulcerative colitis

0:41:49.160 --> 0:41:53.799
<v Speaker 3>has worsened again. She may be facing major surgery. That

0:41:53.920 --> 0:41:58.480
<v Speaker 3>possibility quickly turns into an inevitability as Jesse undergoes an

0:41:58.480 --> 0:42:03.840
<v Speaker 3>emergency procedure to remove her colon. This is a shocking development,

0:42:04.239 --> 0:42:07.759
<v Speaker 3>destabilizing for anyone, but all the more so for a young,

0:42:07.920 --> 0:42:13.520
<v Speaker 3>incredibly vital person. Jesse will then undergo two more reconstructive

0:42:13.520 --> 0:42:16.799
<v Speaker 3>surgeries over time in order to allow her to have

0:42:16.920 --> 0:42:21.960
<v Speaker 3>a quote unquote normal life. Jesse comes through these surgeries

0:42:22.040 --> 0:42:26.200
<v Speaker 3>with flying colors. She is incredibly resilient and determined. She

0:42:26.320 --> 0:42:29.360
<v Speaker 3>takes some time off from Northwestern to navigate her recovery,

0:42:29.800 --> 0:42:32.839
<v Speaker 3>and the family is together once again. They even get

0:42:32.840 --> 0:42:37.480
<v Speaker 3>a puppy that evergreen harbinger of joy and playfulness. But

0:42:37.600 --> 0:42:40.879
<v Speaker 3>Julie has a lot of self examination to do. There

0:42:40.880 --> 0:42:44.120
<v Speaker 3>has been so much trauma, trauma on top of trauma

0:42:44.800 --> 0:42:48.400
<v Speaker 3>past seeping into the present. She begins a course of

0:42:48.480 --> 0:42:51.640
<v Speaker 3>therapy called e MDR that has come up before on

0:42:51.680 --> 0:42:56.920
<v Speaker 3>this podcast. It stands for eye movement, Desensitization and reprocessing.

0:42:58.000 --> 0:43:00.440
<v Speaker 3>One of the hallmarks of this therapy is that it

0:43:00.440 --> 0:43:04.600
<v Speaker 3>allows the patient access to memory with no narrative. It's

0:43:04.640 --> 0:43:08.680
<v Speaker 3>not about connecting the dots. It creates the possibility of

0:43:08.719 --> 0:43:12.880
<v Speaker 3>a real breakthrough, and this happens for Julie. The dots

0:43:13.000 --> 0:43:18.759
<v Speaker 3>connect tell me what Jesse had known about her uncle,

0:43:18.800 --> 0:43:19.640
<v Speaker 3>who she never knew.

0:43:20.440 --> 0:43:24.440
<v Speaker 2>Jesse and Sam both knew I had a brother. They

0:43:24.520 --> 0:43:27.719
<v Speaker 2>knew Danny's name, and seeing lots of pictures and heard

0:43:27.760 --> 0:43:31.360
<v Speaker 2>lots of stories about him. But what they knew was

0:43:31.400 --> 0:43:34.640
<v Speaker 2>that he died in an accident, and that's really what

0:43:34.680 --> 0:43:38.080
<v Speaker 2>they knew. We never talked about depression, We never talked

0:43:38.080 --> 0:43:42.560
<v Speaker 2>about mental illness. And when I think about the architecture

0:43:42.640 --> 0:43:45.880
<v Speaker 2>of family secrets and what drives it, what drives you

0:43:45.920 --> 0:43:48.480
<v Speaker 2>to build them, and what drives you to have this

0:43:48.640 --> 0:43:52.320
<v Speaker 2>engine behind them, the whole concept of a family secret,

0:43:53.080 --> 0:43:56.759
<v Speaker 2>in some ways I recoil it that because it almost

0:43:56.800 --> 0:44:01.279
<v Speaker 2>feels as if you really understood the implies patience. But

0:44:01.440 --> 0:44:04.400
<v Speaker 2>for us, it was like, I didn't want my kids

0:44:04.440 --> 0:44:08.799
<v Speaker 2>to know what happened because it was horrible, it was traumatic,

0:44:09.400 --> 0:44:11.719
<v Speaker 2>and why they were kids? Why do they have to

0:44:11.800 --> 0:44:14.680
<v Speaker 2>know that? Why do they have to be burdened? Why

0:44:14.760 --> 0:44:18.200
<v Speaker 2>do they have to be scared to know that my brother,

0:44:18.680 --> 0:44:21.960
<v Speaker 2>that this happened to someone so close to them. But

0:44:22.040 --> 0:44:26.080
<v Speaker 2>I think what happened was this secrecy came to roost.

0:44:26.680 --> 0:44:31.360
<v Speaker 2>And I think it's so interesting because Jesse in this

0:44:31.480 --> 0:44:37.600
<v Speaker 2>story really became a teacher to me because she with

0:44:37.719 --> 0:44:40.880
<v Speaker 2>her illness, she made a choice early on that she

0:44:41.040 --> 0:44:43.920
<v Speaker 2>was not going to keep it a total secret, partially

0:44:44.000 --> 0:44:47.359
<v Speaker 2>just because she physically couldn't. So you can't tell she's sick,

0:44:47.440 --> 0:44:50.399
<v Speaker 2>but if you're close enough to her, you'll know by

0:44:50.400 --> 0:44:54.640
<v Speaker 2>her behaviors that she needs certain accommodations. But I think

0:44:55.200 --> 0:45:00.120
<v Speaker 2>that she taught me that it was just damaging. I

0:45:00.160 --> 0:45:04.160
<v Speaker 2>was damaging to hide it from my kids. It was

0:45:04.200 --> 0:45:06.440
<v Speaker 2>hard to know when they'd be ready to hear it.

0:45:07.200 --> 0:45:13.640
<v Speaker 2>But I think when the moment came where we talked

0:45:13.680 --> 0:45:18.960
<v Speaker 2>about her illness and she was saying, mom, please, it

0:45:19.080 --> 0:45:23.200
<v Speaker 2>makes everything worse when you and dad are constantly looking

0:45:23.640 --> 0:45:28.040
<v Speaker 2>for the solution and for the next big thing and

0:45:28.320 --> 0:45:33.400
<v Speaker 2>it's all behind this wall. It adds this burden, and

0:45:33.560 --> 0:45:38.080
<v Speaker 2>just let me have my illness, let me figure it

0:45:38.160 --> 0:45:43.920
<v Speaker 2>out myself. I think for me understanding the cost of

0:45:43.960 --> 0:45:48.719
<v Speaker 2>family secrets and understanding the cost of what happens to

0:45:48.800 --> 0:45:51.400
<v Speaker 2>us when we keep them, and how we end up

0:45:51.520 --> 0:45:55.399
<v Speaker 2>editing ourselves out of our own life in a certain way,

0:45:55.520 --> 0:45:59.080
<v Speaker 2>it really came to roost for me during this time

0:45:59.120 --> 0:46:03.160
<v Speaker 2>with Jesse when she very courageously.

0:46:02.880 --> 0:46:03.800
<v Speaker 1>Did tell people.

0:46:04.360 --> 0:46:08.120
<v Speaker 2>And one of the big moments in my life was

0:46:09.400 --> 0:46:14.800
<v Speaker 2>being asked to speak at our high holiday services about something,

0:46:15.160 --> 0:46:18.040
<v Speaker 2>and I made the decision right then. I made the

0:46:18.040 --> 0:46:20.520
<v Speaker 2>decision that I was going to talk about Danny to

0:46:21.000 --> 0:46:22.600
<v Speaker 2>a community that I had been in.

0:46:22.480 --> 0:46:24.560
<v Speaker 1>For twenty five years, and.

0:46:24.320 --> 0:46:26.560
<v Speaker 2>Maybe three or four or five people knew I even

0:46:26.560 --> 0:46:28.640
<v Speaker 2>had a brother, And going back.

0:46:28.520 --> 0:46:31.319
<v Speaker 1>To earlier in the story, like the giddy.

0:46:31.160 --> 0:46:33.760
<v Speaker 2>Thing, it was like no one knew, no one knew,

0:46:34.680 --> 0:46:38.920
<v Speaker 2>And on that day I did tell it, and what

0:46:39.200 --> 0:46:45.000
<v Speaker 2>happened afterwards was so instructive, because what you hear anytime

0:46:45.320 --> 0:46:48.600
<v Speaker 2>there's a story like this, anytime someone really tells the truth,

0:46:49.120 --> 0:46:52.840
<v Speaker 2>they find out from everyone around them, me too, that

0:46:52.920 --> 0:46:53.399
<v Speaker 2>they too.

0:46:54.000 --> 0:46:55.440
<v Speaker 1>There were all the people.

0:46:55.160 --> 0:46:57.480
<v Speaker 2>Who were coming and saying, oh my god, thank you

0:46:58.320 --> 0:46:59.360
<v Speaker 2>for sharing your story.

0:46:59.440 --> 0:47:01.960
<v Speaker 1>We had no idea. We can't believe that would be you.

0:47:02.880 --> 0:47:05.680
<v Speaker 2>In the same way that like, oh, the perfect Hay family,

0:47:05.719 --> 0:47:08.160
<v Speaker 2>how could that had been in your past? But it

0:47:08.239 --> 0:47:14.680
<v Speaker 2>was also in the release in telling, like making it,

0:47:14.760 --> 0:47:18.799
<v Speaker 2>like breaking through that secret and just making it information

0:47:19.239 --> 0:47:22.520
<v Speaker 2>about the whole of me and the whole of Jesse.

0:47:23.400 --> 0:47:27.480
<v Speaker 2>It was like the power of the secret evaporated. It's

0:47:27.520 --> 0:47:29.920
<v Speaker 2>been really one of the biggest lessons of my life.

0:47:30.200 --> 0:47:35.240
<v Speaker 2>How privacy turns into secrecy, and that secrecy and privacy

0:47:35.360 --> 0:47:39.520
<v Speaker 2>turns into isolation and loneliness, and what has happened to

0:47:39.600 --> 0:47:43.480
<v Speaker 2>all of us since we have come forward with call

0:47:43.560 --> 0:47:47.239
<v Speaker 2>them secrets or breaking through the privacy or whatever, is

0:47:47.360 --> 0:47:51.879
<v Speaker 2>that we are much more whole people. We don't have

0:47:51.960 --> 0:47:55.719
<v Speaker 2>to hide anymore. And we also found out that it

0:47:55.760 --> 0:47:58.279
<v Speaker 2>turns out not only does no one hold it against you,

0:47:59.200 --> 0:48:03.160
<v Speaker 2>but it's like that vulnerability and honesty is the fastest

0:48:03.200 --> 0:48:09.040
<v Speaker 2>path to connection. Like spose how we are all the same,

0:48:09.480 --> 0:48:13.160
<v Speaker 2>that we all do have so much of the same pain.

0:48:22.239 --> 0:48:33.040
<v Speaker 3>Here's Julie reading one last passage from her memoir Stay.

0:48:33.200 --> 0:48:36.360
<v Speaker 2>I was finally coming to understand that our birthright is this.

0:48:37.440 --> 0:48:40.799
<v Speaker 2>We are entitled to our own lives. No matter what

0:48:40.880 --> 0:48:44.360
<v Speaker 2>happens to those we love. We are entitled and we

0:48:44.440 --> 0:48:46.200
<v Speaker 2>don't have to be anything.

0:48:45.800 --> 0:48:46.879
<v Speaker 1>Other than who we are.

0:48:48.080 --> 0:48:51.160
<v Speaker 2>When the people we love struggle, we can love them

0:48:51.600 --> 0:48:54.080
<v Speaker 2>and we can try our best to help them, but

0:48:54.120 --> 0:48:57.200
<v Speaker 2>we cannot save them. It is enough to learn how

0:48:57.200 --> 0:49:05.520
<v Speaker 2>to save ourselves.

0:49:08.000 --> 0:49:12.160
<v Speaker 3>Family Secret is a production of iHeartRadio. Molly's Zakoor is the

0:49:12.200 --> 0:49:16.680
<v Speaker 3>story editor and Dylan Fagan is the executive producer. If

0:49:16.680 --> 0:49:19.120
<v Speaker 3>you have a family Secret you'd like to share, please

0:49:19.200 --> 0:49:21.440
<v Speaker 3>leave us a voicemail and your story could appear on

0:49:21.480 --> 0:49:24.960
<v Speaker 3>an upcoming episode. Our number is one eight eight eight

0:49:25.280 --> 0:49:29.400
<v Speaker 3>Secret Zero. That's the number zero. You can also find

0:49:29.480 --> 0:49:34.120
<v Speaker 3>me on Instagram at daniwriter and if you'd like to

0:49:34.120 --> 0:49:37.000
<v Speaker 3>know more about the story that inspired this podcast, check

0:49:37.000 --> 0:49:38.680
<v Speaker 3>out my memoir Inheritance.

0:49:55.480 --> 0:49:59.680
<v Speaker 2>For more podcasts from iHeartRadio, visit the iHeartRadio app, Apple Podcasts,

0:49:59.760 --> 0:50:01.840
<v Speaker 2>or Everett you listen to your favorite shows