WEBVTT - #1 Way to Find Confidence Within When You Have Low Self- Esteem with Victoria Jackson

0:00:00.160 --> 0:00:04.840
<v Speaker 1>My life changed when Ali was diagnosed at fourteen. She's

0:00:04.880 --> 0:00:07.400
<v Speaker 1>saying she has an eyeball headache, and I'm thinking, oh,

0:00:07.600 --> 0:00:10.360
<v Speaker 1>you know, okay, you know, and she says her vision's

0:00:10.400 --> 0:00:13.920
<v Speaker 1>getting a little fuzzy, and I'm just thinking, well, I'm

0:00:14.200 --> 0:00:15.600
<v Speaker 1>you know, I'm sure it's nothing. We'll go see the

0:00:15.640 --> 0:00:20.040
<v Speaker 1>eye doctor, will get you some drops. And ultimately the

0:00:20.079 --> 0:00:22.600
<v Speaker 1>neurologist is doing a series of tests, wanted to do

0:00:22.920 --> 0:00:25.680
<v Speaker 1>a spinal tap, a lumbar puncture, and I'm like, why, Like,

0:00:25.760 --> 0:00:27.639
<v Speaker 1>she's just got something going on with her eyes. What

0:00:27.680 --> 0:00:30.000
<v Speaker 1>are you all doing? You know? And so when they

0:00:30.040 --> 0:00:33.600
<v Speaker 1>called with the results, they basically told myself and my

0:00:33.680 --> 0:00:35.240
<v Speaker 1>husband that she had four years to live.

0:00:35.920 --> 0:00:38.600
<v Speaker 2>Before we jump into this episode, I'd like to invite

0:00:38.600 --> 0:00:41.760
<v Speaker 2>you to join this community to hear more interviews that

0:00:41.800 --> 0:00:45.599
<v Speaker 2>will help you become happier, healthier, and more healed. All

0:00:45.640 --> 0:00:47.960
<v Speaker 2>I want you to do is click on the subscribe button.

0:00:48.200 --> 0:00:50.839
<v Speaker 2>I love your support. It's incredible to see all your

0:00:50.880 --> 0:00:53.840
<v Speaker 2>comments and we're just getting started. I can't wait to

0:00:53.840 --> 0:00:55.959
<v Speaker 2>go on this journey with you. Thank you so much

0:00:56.000 --> 0:00:57.840
<v Speaker 2>for subscribing. It means the world to me.

0:00:58.160 --> 0:01:00.080
<v Speaker 3>The number one health and well in the Five.

0:01:00.800 --> 0:01:08.000
<v Speaker 2>Jay Sheeddi, Jay, Shenny j J. Hey everyone, welcome back

0:01:08.040 --> 0:01:10.960
<v Speaker 2>to On Purpose, the number one health and wellness podcast

0:01:11.160 --> 0:01:13.319
<v Speaker 2>in the world. Thanks to each and every one of

0:01:13.360 --> 0:01:17.319
<v Speaker 2>you that come back every week to become happier, healthier,

0:01:17.440 --> 0:01:20.560
<v Speaker 2>and more healed. And that's our mission here to introduce

0:01:20.640 --> 0:01:26.200
<v Speaker 2>you to thought leaders, teachers, academics, experts, celebrities, athletes who

0:01:26.240 --> 0:01:29.280
<v Speaker 2>are all trying to make the world happier, healthier, and

0:01:29.400 --> 0:01:32.640
<v Speaker 2>more healed. Today's guest has been dedicated to that in

0:01:32.680 --> 0:01:36.440
<v Speaker 2>a personal way and in their own mission. I'm excited

0:01:36.440 --> 0:01:38.560
<v Speaker 2>to introduce you to a dear friend of mine who

0:01:38.600 --> 0:01:40.200
<v Speaker 2>I've been wanting to have on the show for a

0:01:40.400 --> 0:01:44.280
<v Speaker 2>very long time. We've had some beautiful conversations offline. I've

0:01:44.280 --> 0:01:47.000
<v Speaker 2>really got to know her heart and her soul more

0:01:47.040 --> 0:01:49.640
<v Speaker 2>than anything, and I'm honored today to get to introduce

0:01:49.680 --> 0:01:52.560
<v Speaker 2>you to her. Her name is Victoria Jackson, who has

0:01:52.680 --> 0:01:56.640
<v Speaker 2>known previously as a cosmetics entrepreneur but transformed into a

0:01:56.680 --> 0:02:02.000
<v Speaker 2>medical research trailblazer and Women's Hall of Fame inductee. Victoria

0:02:02.080 --> 0:02:06.240
<v Speaker 2>founded the global powerhouse brand Victoria Jackson Cosmetics. She and

0:02:06.280 --> 0:02:10.359
<v Speaker 2>her husband Bill Guthy, founder of the marketing behemoth, Guthy

0:02:10.440 --> 0:02:15.560
<v Speaker 2>Renker established the Gutthy Jackson Charitable Foundation to fund research

0:02:15.680 --> 0:02:21.400
<v Speaker 2>on NMO treatments and a potential cure. Victoria's unrelenting determination

0:02:21.600 --> 0:02:25.640
<v Speaker 2>proved effective. In twenty sixteen, the foundation developed the first

0:02:25.720 --> 0:02:31.880
<v Speaker 2>ever NMO therapeutic and soon after three therapies received FDA approval.

0:02:32.280 --> 0:02:36.079
<v Speaker 2>The unprecedented pace of the accomplishments that her and her

0:02:36.120 --> 0:02:40.280
<v Speaker 2>affiliations have had are absolutely phenomenal. And I welcome you

0:02:40.320 --> 0:02:43.240
<v Speaker 2>to the show. Victoria Jackson and the author of two

0:02:43.280 --> 0:02:47.360
<v Speaker 2>incredible books that I highly recommend, Saving each Other, which

0:02:47.400 --> 0:02:50.119
<v Speaker 2>of course will be diving in today, and this book,

0:02:50.240 --> 0:02:53.960
<v Speaker 2>The Power of Rare a Blueprint for a medical revolution.

0:02:54.400 --> 0:02:56.360
<v Speaker 2>Please go and grab both of these books. You're going

0:02:56.440 --> 0:02:58.880
<v Speaker 2>to be hearing about the insights from both of them

0:02:58.919 --> 0:03:02.919
<v Speaker 2>in this conversation. And Victoria, welcome to on Purpose.

0:03:03.240 --> 0:03:06.119
<v Speaker 1>Thank you. It is so nice to be here. I've

0:03:06.160 --> 0:03:08.840
<v Speaker 1>been just waiting for the opportunity to talk to you.

0:03:09.000 --> 0:03:13.079
<v Speaker 1>I'm I'M a big manifesto, and so when I started

0:03:13.120 --> 0:03:16.639
<v Speaker 1>listening to you, Jay, I was so inspired honestly that

0:03:17.960 --> 0:03:20.239
<v Speaker 1>I just was like, I've got it. There's going to

0:03:20.280 --> 0:03:22.880
<v Speaker 1>be a time I'm sitting across from him. We're having

0:03:22.880 --> 0:03:24.960
<v Speaker 1>this conversation. So thank you so much.

0:03:25.080 --> 0:03:27.800
<v Speaker 2>I love that. And our parts have just crossed so organically.

0:03:27.840 --> 0:03:30.799
<v Speaker 2>We have a lot of mutual friends and we bumped

0:03:30.800 --> 0:03:35.200
<v Speaker 2>into each other ages ago at this great fundraiser that

0:03:35.280 --> 0:03:39.280
<v Speaker 2>Ellen did called Gorilla Paluzza, which was to raise money

0:03:39.680 --> 0:03:42.600
<v Speaker 2>for the Diane Fosse and Ellen Degenero's fund.

0:03:42.760 --> 0:03:45.600
<v Speaker 1>Yeah, that's great, incredible what she's doing.

0:03:44.680 --> 0:03:48.840
<v Speaker 2>Yeah, I've not it's amazing. I got to go out

0:03:48.840 --> 0:03:51.480
<v Speaker 2>with them last year and it was unbelievable. But we

0:03:51.520 --> 0:03:54.440
<v Speaker 2>met there, yes, and you were one of these people,

0:03:54.680 --> 0:03:56.360
<v Speaker 2>and I just want the audience to know like you

0:03:56.360 --> 0:03:59.560
<v Speaker 2>were one of these people that instantly was talking to

0:03:59.600 --> 0:04:02.000
<v Speaker 2>me from your heart and I felt it. Then you

0:04:02.040 --> 0:04:04.080
<v Speaker 2>were arranging for me to go and meet the Pope

0:04:05.000 --> 0:04:07.440
<v Speaker 2>the next thing I knew, and it didn't happen because

0:04:07.480 --> 0:04:09.800
<v Speaker 2>of the pandemic, but I was so grateful to you

0:04:09.880 --> 0:04:12.880
<v Speaker 2>for even helping that invite come along my way, and

0:04:12.880 --> 0:04:14.360
<v Speaker 2>I hope I get to do that in the future

0:04:14.800 --> 0:04:17.120
<v Speaker 2>one and honor thanks to you. And I had that

0:04:17.279 --> 0:04:20.360
<v Speaker 2>very special invite to go to the Vatican, which, of course,

0:04:20.400 --> 0:04:23.040
<v Speaker 2>through to the pandemic, didn't happen, and then we've had

0:04:23.040 --> 0:04:26.120
<v Speaker 2>these wonderful connections, even with your daughter and your home

0:04:26.160 --> 0:04:29.560
<v Speaker 2>and anyway, so many different things. But I feel like

0:04:29.680 --> 0:04:33.320
<v Speaker 2>your journey is truly unique and incredible in so many ways.

0:04:34.040 --> 0:04:36.600
<v Speaker 2>And I want to start off with a question of

0:04:36.880 --> 0:04:42.120
<v Speaker 2>what is your earliest memory from childhood of your own

0:04:42.200 --> 0:04:47.240
<v Speaker 2>childhood that stays with you or that is the immediate

0:04:47.279 --> 0:04:50.520
<v Speaker 2>flashback when you think to being a child.

0:04:51.040 --> 0:04:53.400
<v Speaker 1>You know, I always think about how I felt like

0:04:53.440 --> 0:04:58.400
<v Speaker 1>I was always different. I say that I was born early.

0:04:58.480 --> 0:05:00.640
<v Speaker 1>I was born in the six and a half and

0:05:00.720 --> 0:05:02.680
<v Speaker 1>so I lived in the hospital for three months before

0:05:02.720 --> 0:05:05.880
<v Speaker 1>I even came home. So I think, because I've always

0:05:05.880 --> 0:05:09.400
<v Speaker 1>struggled so much with anxiety and worry and you know,

0:05:09.520 --> 0:05:11.920
<v Speaker 1>all of that, I think I was sort of born

0:05:12.000 --> 0:05:13.840
<v Speaker 1>early to get a head start on all of it.

0:05:14.040 --> 0:05:16.440
<v Speaker 1>So when I think of my early years, I really

0:05:16.440 --> 0:05:19.400
<v Speaker 1>think of, you know, a young person that was really

0:05:19.440 --> 0:05:22.640
<v Speaker 1>struggling and just trying to really find her place in

0:05:22.680 --> 0:05:25.440
<v Speaker 1>the world. And seem like since I did come in

0:05:25.480 --> 0:05:28.240
<v Speaker 1>early and was struggling just to sort of make it

0:05:28.279 --> 0:05:32.440
<v Speaker 1>through in those very very early times. Because this is

0:05:32.480 --> 0:05:35.120
<v Speaker 1>going back a while, and you know, now, I know

0:05:35.360 --> 0:05:38.520
<v Speaker 1>for you know, premies. They have a lot more technology

0:05:38.520 --> 0:05:41.400
<v Speaker 1>than they did then. But I've always been in survival mode,

0:05:41.880 --> 0:05:44.839
<v Speaker 1>I think, my whole life. So I think that's what

0:05:45.000 --> 0:05:48.400
<v Speaker 1>I think about, is this little person that came into

0:05:48.440 --> 0:05:50.560
<v Speaker 1>the world and has been in that mode ever since

0:05:50.640 --> 0:05:51.279
<v Speaker 1>pretty much.

0:05:51.880 --> 0:05:55.359
<v Speaker 2>Do you think that the struggles that you had have

0:05:55.600 --> 0:05:59.200
<v Speaker 2>changed towards the struggles that young people have today or

0:05:59.200 --> 0:06:02.599
<v Speaker 2>do you think that they're the same thing that just

0:06:02.640 --> 0:06:03.960
<v Speaker 2>differently experienced.

0:06:04.160 --> 0:06:06.720
<v Speaker 1>I think they're definitely. I think they're the same thing.

0:06:06.760 --> 0:06:09.640
<v Speaker 1>But yeah, I mean, obviously I wasn't dealing with social

0:06:09.680 --> 0:06:13.080
<v Speaker 1>media and things, but you know, school was social media.

0:06:13.240 --> 0:06:15.440
<v Speaker 1>You know, your friends, I mean, so they were all

0:06:15.520 --> 0:06:18.640
<v Speaker 1>You're still trying to figure out your way in the world.

0:06:19.000 --> 0:06:22.040
<v Speaker 1>So I think it may look different now, But I

0:06:22.080 --> 0:06:25.560
<v Speaker 1>think that's probably why even in raising kids, I understand

0:06:26.080 --> 0:06:28.120
<v Speaker 1>my kids can talk to them on a level of

0:06:28.200 --> 0:06:32.080
<v Speaker 1>understanding whatever anxiety they're going through, but it's just it's

0:06:32.200 --> 0:06:34.520
<v Speaker 1>just put out on a different stage now and much

0:06:34.640 --> 0:06:37.880
<v Speaker 1>bigger stage, and so that makes it a little more difficult.

0:06:38.279 --> 0:06:40.880
<v Speaker 2>What was the thing you were most anxious about growing up?

0:06:40.960 --> 0:06:43.960
<v Speaker 2>What was the thing that kept you up at night

0:06:44.160 --> 0:06:47.400
<v Speaker 2>that made you uncomfortable that made you nervous? What was that?

0:06:47.560 --> 0:06:49.520
<v Speaker 1>You know? For me, it was I think because I

0:06:49.680 --> 0:06:52.240
<v Speaker 1>had parents that were young and trying to figure it

0:06:52.279 --> 0:06:55.480
<v Speaker 1>out and ultimately got divorced. There there wasn't I didn't

0:06:55.480 --> 0:06:58.200
<v Speaker 1>feel a lot of love. And I think, you know,

0:06:58.279 --> 0:07:00.159
<v Speaker 1>even my mom would be the first to say she,

0:07:00.480 --> 0:07:02.159
<v Speaker 1>you know, having a child that was in the hospital

0:07:02.240 --> 0:07:04.680
<v Speaker 1>right away and she's so young, she didn't really know

0:07:04.760 --> 0:07:06.760
<v Speaker 1>how to you know, bond with me. And I think

0:07:06.760 --> 0:07:09.640
<v Speaker 1>that was tough. So I was somebody that was always

0:07:09.680 --> 0:07:14.560
<v Speaker 1>seeking approval and looking for that love and just trying

0:07:14.600 --> 0:07:16.880
<v Speaker 1>to figure out who I was. And I always had

0:07:16.920 --> 0:07:20.800
<v Speaker 1>this really haunting feeling that something was going to happen

0:07:20.880 --> 0:07:24.000
<v Speaker 1>to me, that there was just somebody was going to

0:07:24.080 --> 0:07:26.920
<v Speaker 1>get me, something was going to happen. It was just

0:07:26.960 --> 0:07:31.160
<v Speaker 1>something that I remember early on just feeling in a

0:07:31.880 --> 0:07:32.760
<v Speaker 1>unique way.

0:07:33.600 --> 0:07:37.360
<v Speaker 2>And how did you process that? Like what was your antidote?

0:07:37.520 --> 0:07:40.200
<v Speaker 1>Or I mean, I think there's times you're thinking, you know,

0:07:41.200 --> 0:07:44.160
<v Speaker 1>am I special? Is there a reason I'm here? But

0:07:44.240 --> 0:07:47.040
<v Speaker 1>it just manifested in a lot of anxiety, and so

0:07:47.320 --> 0:07:50.720
<v Speaker 1>you know, you're always just feeling like there's some shoe

0:07:51.040 --> 0:07:53.800
<v Speaker 1>that's going to drop or something that's going to happen.

0:07:53.920 --> 0:07:58.320
<v Speaker 1>And I lived a lot of my early years like that,

0:07:58.480 --> 0:08:01.440
<v Speaker 1>as I kind of keep going back to finding my way.

0:08:01.840 --> 0:08:06.240
<v Speaker 2>It's interesting how every teenager goes through this phase of

0:08:06.280 --> 0:08:09.880
<v Speaker 2>finding our way, and then often we either get stuck

0:08:09.920 --> 0:08:14.000
<v Speaker 2>in a way that our parents expected or society expected,

0:08:14.080 --> 0:08:16.960
<v Speaker 2>or we fall into something, or we continue to find

0:08:17.040 --> 0:08:20.520
<v Speaker 2>our way. And sometimes you're in your thirties or your

0:08:20.560 --> 0:08:22.560
<v Speaker 2>forties and you're still trying to find your way and

0:08:22.600 --> 0:08:25.240
<v Speaker 2>you kind of feel out of place because everyone else

0:08:25.280 --> 0:08:30.080
<v Speaker 2>has stability. But I could definitely attest to that. I

0:08:30.160 --> 0:08:33.280
<v Speaker 2>felt in my teens, I was trying to fit in

0:08:33.360 --> 0:08:36.679
<v Speaker 2>and I was trying to find my way, and I

0:08:36.760 --> 0:08:40.640
<v Speaker 2>was anxious about did people think I was in with

0:08:40.679 --> 0:08:42.439
<v Speaker 2>the crowd? And you know, and I think we all

0:08:42.440 --> 0:08:45.040
<v Speaker 2>go through this. What was really interesting for me was

0:08:45.480 --> 0:08:49.000
<v Speaker 2>I think I've kept trying to find my way, which

0:08:49.080 --> 0:08:52.200
<v Speaker 2>is why I've lived so many different lives, because I've

0:08:52.240 --> 0:08:56.120
<v Speaker 2>never wanted to not take a step forward. What did

0:08:56.200 --> 0:08:59.200
<v Speaker 2>you imagine would be your first career path or what

0:08:59.240 --> 0:09:02.679
<v Speaker 2>did you imagine would be your first venture and what

0:09:02.720 --> 0:09:03.679
<v Speaker 2>did it end up being?

0:09:03.960 --> 0:09:05.959
<v Speaker 1>Well, you know, as I'm even just in here talking

0:09:06.000 --> 0:09:08.320
<v Speaker 1>to you, and I'm looking at a microphone that says

0:09:08.360 --> 0:09:11.839
<v Speaker 1>on purpose. Purpose was always a big thing. Even when

0:09:11.840 --> 0:09:14.240
<v Speaker 1>I was young, I was thinking like whether it was

0:09:14.280 --> 0:09:16.360
<v Speaker 1>why am I here? Or what is the way? It

0:09:16.440 --> 0:09:20.040
<v Speaker 1>was sort of like what is my purpose? And I

0:09:20.080 --> 0:09:23.840
<v Speaker 1>didn't really have a skill set that I could sort

0:09:23.880 --> 0:09:26.000
<v Speaker 1>of point to other than I'd probably say early on,

0:09:26.080 --> 0:09:29.000
<v Speaker 1>I recognized that I was more of a creative.

0:09:29.240 --> 0:09:29.480
<v Speaker 2>You know.

0:09:29.559 --> 0:09:32.680
<v Speaker 1>I definitely wasn't going to be the academic. I ended

0:09:32.760 --> 0:09:35.160
<v Speaker 1>up sort of, you know, ditching school a lot due

0:09:35.200 --> 0:09:37.520
<v Speaker 1>to a lot of kind of unsettling things at home.

0:09:37.640 --> 0:09:40.439
<v Speaker 1>And so I was, you know, trying to figure out

0:09:40.480 --> 0:09:41.920
<v Speaker 1>what was the way that I was going to really

0:09:41.960 --> 0:09:44.480
<v Speaker 1>express myself and knowing that I didn't come from a

0:09:44.520 --> 0:09:47.920
<v Speaker 1>family that had money, so I was going to have

0:09:47.960 --> 0:09:50.199
<v Speaker 1>to figure that out for myself. But I knew that

0:09:50.280 --> 0:09:55.280
<v Speaker 1>I was creative, and it probably I started doing makeup,

0:09:55.520 --> 0:09:58.559
<v Speaker 1>And I think when I started doing my own makeup,

0:09:58.640 --> 0:10:02.960
<v Speaker 1>doing friends makeup, I thought I genuinely because I struggle

0:10:03.040 --> 0:10:05.760
<v Speaker 1>with such low self esteem. I mean, it's gotten a

0:10:05.760 --> 0:10:08.600
<v Speaker 1>lot better over the years. And I've written, you know,

0:10:08.640 --> 0:10:12.360
<v Speaker 1>two prior books before these, Redefining Beauty and make up

0:10:12.400 --> 0:10:15.880
<v Speaker 1>your life all about self esteem and looking and feeling better.

0:10:16.960 --> 0:10:20.160
<v Speaker 1>And I really thought once I started to make up

0:10:20.320 --> 0:10:23.000
<v Speaker 1>people and give them this sense of like they looked

0:10:23.040 --> 0:10:26.520
<v Speaker 1>better and felt better, I had some passion around that.

0:10:26.600 --> 0:10:28.600
<v Speaker 1>It was something that I thought, Oh, this is a

0:10:28.600 --> 0:10:32.439
<v Speaker 1>skill set that I can really perfect. And you know,

0:10:33.080 --> 0:10:35.680
<v Speaker 1>I love the idea and I'm the kind of person

0:10:36.040 --> 0:10:37.680
<v Speaker 1>if I can do it, then I want to show

0:10:37.720 --> 0:10:39.720
<v Speaker 1>everybody how to do it. It's like, oh, if I

0:10:39.720 --> 0:10:41.520
<v Speaker 1>can do this, you can do this, and here's how.

0:10:42.160 --> 0:10:44.080
<v Speaker 2>So if social media existed, you would have been one

0:10:44.120 --> 0:10:47.080
<v Speaker 2>of the first beauty influences. That's what would have happened,

0:10:47.120 --> 0:10:50.040
<v Speaker 2>because makeup was one of the big things that took

0:10:50.040 --> 0:10:51.960
<v Speaker 2>off on social media in the early days.

0:10:52.320 --> 0:10:56.120
<v Speaker 1>Absolutely, that's how my infomercials were so successful because I

0:10:56.240 --> 0:11:00.640
<v Speaker 1>was actually teaching you on my DVDs how you could

0:11:00.720 --> 0:11:03.559
<v Speaker 1>actually do your makeup, you know, from start to finish.

0:11:03.640 --> 0:11:05.880
<v Speaker 1>So that's what I was doing. I was putting all

0:11:05.880 --> 0:11:10.520
<v Speaker 1>the cosmetics together, here's how to use them. Long before

0:11:10.559 --> 0:11:12.920
<v Speaker 1>I was I had my own radio show before there

0:11:12.920 --> 0:11:16.600
<v Speaker 1>were podcasts where I was doing makeovers on the radio,

0:11:16.640 --> 0:11:18.800
<v Speaker 1>and they said, if you can actually get people to

0:11:18.840 --> 0:11:21.160
<v Speaker 1>call in and do a makeover on the radio. You

0:11:21.200 --> 0:11:25.040
<v Speaker 1>can have the airtime. So yeah, this was the early days,

0:11:25.080 --> 0:11:29.240
<v Speaker 1>and I love that. I love the teaching aspect of it.

0:11:29.480 --> 0:11:32.679
<v Speaker 2>What gave you the confidence? I think what's really fascinating

0:11:32.720 --> 0:11:36.800
<v Speaker 2>about that is you're a young person with low self esteem.

0:11:37.040 --> 0:11:40.400
<v Speaker 2>You're confused about who you are, you have anxiety, but

0:11:40.440 --> 0:11:42.920
<v Speaker 2>then all of a sudden, you feel I'm passionate about

0:11:42.920 --> 0:11:45.760
<v Speaker 2>makeup and actually I feel confident to teach others or

0:11:45.840 --> 0:11:49.200
<v Speaker 2>share that. How does that switch happen? Because I think

0:11:49.240 --> 0:11:51.440
<v Speaker 2>so many of our listeners are in that position right

0:11:51.480 --> 0:11:54.360
<v Speaker 2>now where they feel anxious. Maybe some of them have

0:11:54.480 --> 0:11:59.080
<v Speaker 2>imposter syndrome. Maybe some of them are listening and they're going, Jay,

0:11:59.120 --> 0:12:01.080
<v Speaker 2>I just don't know where to see star. Or maybe

0:12:01.080 --> 0:12:03.880
<v Speaker 2>I know what my passion is, but I'm not good enough.

0:12:04.040 --> 0:12:08.239
<v Speaker 2>And you know, we have this lack of belief in ourselves. Yeah,

0:12:08.240 --> 0:12:12.200
<v Speaker 2>how did you switch from an anxious to I actually

0:12:12.360 --> 0:12:14.040
<v Speaker 2>like teaching and sharing. Yeah?

0:12:14.080 --> 0:12:16.000
<v Speaker 1>Well, by the way, while I was teaching and sharing,

0:12:16.080 --> 0:12:19.160
<v Speaker 1>I was also anxious, So I managed to pull double

0:12:19.280 --> 0:12:22.199
<v Speaker 1>duty at the same time. I just went for it,

0:12:22.280 --> 0:12:24.440
<v Speaker 1>you know. So for me, for example, I wanted to

0:12:24.640 --> 0:12:27.200
<v Speaker 1>get in the world of makeup. If you were to

0:12:27.200 --> 0:12:29.880
<v Speaker 1>look at my portfolio and go through my very early early,

0:12:30.000 --> 0:12:33.320
<v Speaker 1>you know, photographs of makeup. Not the best makeup in

0:12:33.360 --> 0:12:35.640
<v Speaker 1>the world, you know, so like I had to learn

0:12:35.679 --> 0:12:38.120
<v Speaker 1>it and perfect it, and you know, I had the

0:12:38.160 --> 0:12:40.679
<v Speaker 1>eye for it, but I had to now really hone

0:12:40.720 --> 0:12:43.360
<v Speaker 1>my skill set to match what my eyes were seeing,

0:12:44.200 --> 0:12:46.760
<v Speaker 1>and ultimately came up which was my concept of the

0:12:46.880 --> 0:12:50.200
<v Speaker 1>no makeup makeup as the original person sort of doing

0:12:50.240 --> 0:12:52.640
<v Speaker 1>that in the in the late eighties when everybody had

0:12:52.679 --> 0:12:54.000
<v Speaker 1>on tons of makeup.

0:12:55.240 --> 0:12:57.280
<v Speaker 2>Explain that to us, break that down for people who

0:12:57.520 --> 0:13:00.560
<v Speaker 2>who may not have either been around or not know

0:13:01.360 --> 0:13:04.000
<v Speaker 2>fully what that was in the beginning. Yeah, because I

0:13:04.040 --> 0:13:04.920
<v Speaker 2>think yet.

0:13:04.960 --> 0:13:07.360
<v Speaker 1>In the eighties, you think about like shoulder pads and

0:13:07.400 --> 0:13:09.080
<v Speaker 1>the music videos that were out there, and there was

0:13:09.120 --> 0:13:12.200
<v Speaker 1>a lot of makeup. And my whole thing was and

0:13:12.240 --> 0:13:14.800
<v Speaker 1>there really wasn't even a makeup that existed at the time.

0:13:15.360 --> 0:13:17.800
<v Speaker 1>Let's talk about just even a foundation, a base color

0:13:17.880 --> 0:13:20.480
<v Speaker 1>that you use on your skin now to even out

0:13:20.520 --> 0:13:23.520
<v Speaker 1>your skin tone that was more natural. Everything was these

0:13:23.600 --> 0:13:26.480
<v Speaker 1>kind of crazy tones or pinks or oranges, and I

0:13:26.520 --> 0:13:30.840
<v Speaker 1>wanted to just help women look beautiful, look great, but

0:13:30.960 --> 0:13:34.040
<v Speaker 1>without feeling like they had makeup on, so that they

0:13:34.080 --> 0:13:36.640
<v Speaker 1>could really look like themselves and not use it as

0:13:37.080 --> 0:13:41.079
<v Speaker 1>war paint or a way to necessarily be someone else,

0:13:41.160 --> 0:13:45.400
<v Speaker 1>but just feel confident in themselves. And so I had

0:13:45.440 --> 0:13:48.280
<v Speaker 1>no idea how to actually create makeup, So I just

0:13:48.320 --> 0:13:50.480
<v Speaker 1>started as a makeup artist. I started mixing in my

0:13:50.520 --> 0:13:55.120
<v Speaker 1>garage pots and pants and making up concoctions that I

0:13:55.120 --> 0:13:57.760
<v Speaker 1>would use on my makeup jobs. And that's really how

0:13:57.800 --> 0:13:58.360
<v Speaker 1>I started.

0:13:58.360 --> 0:14:00.480
<v Speaker 2>That. What I love about that, you know, one everyone

0:14:00.480 --> 0:14:04.040
<v Speaker 2>who's listening and watching to know this is that the

0:14:04.160 --> 0:14:07.199
<v Speaker 2>first time you do anything, it won't be that great

0:14:07.840 --> 0:14:09.760
<v Speaker 2>and it's okay, And it's good to know that. I

0:14:09.760 --> 0:14:12.360
<v Speaker 2>think a lot of us think, well, before I do something,

0:14:12.360 --> 0:14:15.280
<v Speaker 2>I've got to have the perfect name, have the perfect branding,

0:14:15.720 --> 0:14:18.680
<v Speaker 2>have the perfect product, have the perfect service. And the

0:14:18.720 --> 0:14:21.080
<v Speaker 2>truth is, ninety veen percent of the time, the first

0:14:21.120 --> 0:14:23.600
<v Speaker 2>thing you put out there is never going to be

0:14:23.600 --> 0:14:25.080
<v Speaker 2>that great. If you look at the first version of

0:14:25.120 --> 0:14:28.520
<v Speaker 2>Facebook or Instagram or Snapchat or anything we use today,

0:14:28.520 --> 0:14:31.320
<v Speaker 2>the first version of Amazon, the first version of makeup.

0:14:31.360 --> 0:14:33.360
<v Speaker 2>If you look at all of the first versions, they

0:14:33.400 --> 0:14:37.000
<v Speaker 2>weren't that great. And I think a lot of us.

0:14:37.640 --> 0:14:40.720
<v Speaker 2>We're kind of knocking up against that, going, I want

0:14:40.720 --> 0:14:44.680
<v Speaker 2>to put something perfect out before we've even made any progress.

0:14:45.080 --> 0:14:47.280
<v Speaker 1>Yeah, and you have to just you have to just

0:14:47.360 --> 0:14:50.480
<v Speaker 1>have patience with yourself and patience with the project, but

0:14:50.600 --> 0:14:52.920
<v Speaker 1>you have the process, but you have to just be

0:14:52.960 --> 0:14:56.360
<v Speaker 1>willing to even put yourself out there and try. For me,

0:14:56.440 --> 0:14:57.960
<v Speaker 1>I was like, I want to do make up. I

0:14:58.000 --> 0:15:01.680
<v Speaker 1>want to you know, do for magines and things like that. Okay,

0:15:01.720 --> 0:15:06.240
<v Speaker 1>how do I start contacting photographers and building a portfolio

0:15:06.360 --> 0:15:08.960
<v Speaker 1>and just be willing to you know, even women And

0:15:09.080 --> 0:15:11.080
<v Speaker 1>they'd be so afraid to do their makeup. And I'm like,

0:15:11.320 --> 0:15:13.200
<v Speaker 1>what's the worst that's going to happen. You're not going

0:15:13.280 --> 0:15:15.560
<v Speaker 1>to like it, you wash it off, you know. So

0:15:16.480 --> 0:15:20.400
<v Speaker 1>I did twenty years of going to the jails, twenty

0:15:20.520 --> 0:15:23.560
<v Speaker 1>years of going into the jails and doing makeup for

0:15:23.680 --> 0:15:26.280
<v Speaker 1>women there where. Think about it where I would say

0:15:26.760 --> 0:15:29.880
<v Speaker 1>women would be I'd go, what do you want your

0:15:29.880 --> 0:15:32.440
<v Speaker 1>makeup to say? And I'd have women go I want

0:15:32.440 --> 0:15:35.720
<v Speaker 1>my makeup to say pull over. You know, like a

0:15:35.760 --> 0:15:38.600
<v Speaker 1>lot of women that were you know, working the streets

0:15:38.680 --> 0:15:41.160
<v Speaker 1>or whatever. And I'd be like, Okay, let's change the

0:15:41.200 --> 0:15:44.119
<v Speaker 1>message on that let's talk about you know, self respect,

0:15:44.360 --> 0:15:49.480
<v Speaker 1>and I would see the energy of hundreds of gals

0:15:49.520 --> 0:15:52.960
<v Speaker 1>in there that were, you know, really ready to hear something,

0:15:53.080 --> 0:15:56.160
<v Speaker 1>and how it just evened out, leveled out the room

0:15:56.240 --> 0:15:59.120
<v Speaker 1>with people that when they saw themselves kind of a

0:15:59.200 --> 0:16:02.120
<v Speaker 1>before and after or it really changed the whole energy.

0:16:02.280 --> 0:16:05.040
<v Speaker 1>So I got really passionate about this whole thing I

0:16:05.160 --> 0:16:08.520
<v Speaker 1>ultimately called the power of mascara and looking better and

0:16:08.520 --> 0:16:11.200
<v Speaker 1>feeling better about yourself. But it was all, you know,

0:16:11.280 --> 0:16:15.640
<v Speaker 1>as I'm teaching it, I'm learning as well, and I've

0:16:15.680 --> 0:16:19.160
<v Speaker 1>been I think, you know, due to an incident that

0:16:19.240 --> 0:16:22.640
<v Speaker 1>happened when I was really young, sort of going back

0:16:22.680 --> 0:16:25.480
<v Speaker 1>to that thinking something really bad was going to happen

0:16:25.520 --> 0:16:28.640
<v Speaker 1>to me. I was one of the early victims in

0:16:28.720 --> 0:16:32.680
<v Speaker 1>nineteen seventy three of the Pillowcase rapist, and that left

0:16:32.720 --> 0:16:36.880
<v Speaker 1>me with, you know, obviously a lot of emotional scars

0:16:36.920 --> 0:16:40.720
<v Speaker 1>and things that I've spent a lifetime working on, but

0:16:40.960 --> 0:16:44.600
<v Speaker 1>very claustrophobic. So then going to the jails for twenty

0:16:44.680 --> 0:16:48.280
<v Speaker 1>years was very claustrophobic to put yourself in a very

0:16:48.360 --> 0:16:53.200
<v Speaker 1>uncomfortable situation to you know, have to. But I was

0:16:53.240 --> 0:16:55.440
<v Speaker 1>there because I really believed in what I was doing

0:16:55.440 --> 0:16:58.720
<v Speaker 1>in the message, and it really was very instrumental and

0:16:59.040 --> 0:17:02.200
<v Speaker 1>helpful and in the other parts of my life. As

0:17:02.200 --> 0:17:05.719
<v Speaker 1>I say, as you talked about mascara to medicine that

0:17:05.800 --> 0:17:07.199
<v Speaker 1>were really important.

0:17:09.200 --> 0:17:11.760
<v Speaker 2>Hey guys, it's Jay Sheddy here and I couldn't be

0:17:11.840 --> 0:17:15.760
<v Speaker 2>more excited to share this exciting news you asked. We

0:17:15.880 --> 0:17:20.280
<v Speaker 2>delivered Juny sparkling tea with adaptogens made by my wife

0:17:20.280 --> 0:17:24.320
<v Speaker 2>and I are now available in all Sprout locations across

0:17:24.320 --> 0:17:27.720
<v Speaker 2>the country. Juni is the perfect midday pick me up.

0:17:27.960 --> 0:17:30.720
<v Speaker 2>With only one third of the caffeine found in brood

0:17:30.720 --> 0:17:34.719
<v Speaker 2>Green tea, it provides a gentle energy boost without the crash.

0:17:35.000 --> 0:17:38.119
<v Speaker 2>It only has five calories and zero grams of sugar,

0:17:38.520 --> 0:17:41.399
<v Speaker 2>making it the perfect drink. Plus, it's made with the

0:17:41.400 --> 0:17:45.359
<v Speaker 2>delicious blend of adaptogens and neotropics that may help boost

0:17:45.400 --> 0:17:49.239
<v Speaker 2>your metabolism, combat stress, pack your body with antioxidants, and

0:17:49.320 --> 0:17:52.639
<v Speaker 2>stimulate brain function. Head over to your local Sprouts of

0:17:52.720 --> 0:17:56.119
<v Speaker 2>visit sprouts dot com to find the closest location near you.

0:17:58.040 --> 0:18:00.639
<v Speaker 2>I'm glad you brought that up because we've spoken about

0:18:00.640 --> 0:18:05.680
<v Speaker 2>that offline before. Could you walk us through and explain

0:18:06.240 --> 0:18:08.640
<v Speaker 2>a bit more about the Pillowcuse rapist, just to get

0:18:08.640 --> 0:18:12.080
<v Speaker 2>a sense of who that was, what that was, etc.

0:18:12.400 --> 0:18:15.960
<v Speaker 2>To get a sense of and exactly the experience you had,

0:18:16.000 --> 0:18:18.879
<v Speaker 2>Because I just I want people to have that context

0:18:18.960 --> 0:18:20.480
<v Speaker 2>when we're looking at the rest of your life and

0:18:20.520 --> 0:18:22.399
<v Speaker 2>the rest of your story as we dive in today,

0:18:23.000 --> 0:18:26.880
<v Speaker 2>because if someone's unaware, it can be easy to look

0:18:26.920 --> 0:18:30.080
<v Speaker 2>at your journey. And I think we do this a

0:18:30.080 --> 0:18:32.199
<v Speaker 2>lot today where we look at a snapshot of someone's

0:18:32.240 --> 0:18:34.440
<v Speaker 2>life and we think, well, they've done it all, they've

0:18:34.480 --> 0:18:38.320
<v Speaker 2>made it, they've achieved it, they shouldn't have anything to

0:18:38.359 --> 0:18:40.600
<v Speaker 2>worry about. And then when you kind of look at

0:18:40.600 --> 0:18:44.760
<v Speaker 2>someone's life in full perspective, you recognize there's so much

0:18:44.800 --> 0:18:47.639
<v Speaker 2>more to it. I often give the analogy to people

0:18:47.640 --> 0:18:50.359
<v Speaker 2>if if you walk into a movie halfway and you

0:18:50.440 --> 0:18:53.000
<v Speaker 2>see someone's life, you might think they have the best

0:18:53.000 --> 0:18:55.160
<v Speaker 2>life in the world. If you didn't see the start

0:18:55.200 --> 0:18:57.560
<v Speaker 2>of the movie and then the end of the movie,

0:18:57.600 --> 0:19:00.720
<v Speaker 2>you don't really know their full picture. So for that reason,

0:19:00.760 --> 0:19:03.120
<v Speaker 2>I'd love for you to shed some light in context

0:19:03.160 --> 0:19:03.320
<v Speaker 2>on that.

0:19:03.520 --> 0:19:05.479
<v Speaker 1>Yeah, I think you're exactly right. I mean, there's this

0:19:05.680 --> 0:19:08.159
<v Speaker 1>snapshot and then there's the film, and I think in

0:19:08.200 --> 0:19:10.959
<v Speaker 1>my early mind, in the reel of the film, that

0:19:11.040 --> 0:19:12.960
<v Speaker 1>was probably playing in my head, and as I said,

0:19:13.520 --> 0:19:16.920
<v Speaker 1>feeling like there was a reason that I was here

0:19:17.200 --> 0:19:21.600
<v Speaker 1>and that purpose. And if somebody would have told me

0:19:21.680 --> 0:19:24.720
<v Speaker 1>that ultimately I'd be getting drugs make and working to

0:19:24.760 --> 0:19:27.120
<v Speaker 1>cure a disease and finding a cure for a disease,

0:19:27.560 --> 0:19:30.439
<v Speaker 1>I would have never believed it. But I did always

0:19:30.480 --> 0:19:32.840
<v Speaker 1>have that feeling of somebody, as I said, that was

0:19:32.920 --> 0:19:35.800
<v Speaker 1>going to get me. And to put a little context

0:19:35.840 --> 0:19:40.000
<v Speaker 1>to California has had, there was the pillowcase rapists in

0:19:40.040 --> 0:19:42.440
<v Speaker 1>the seventies, and then as if we all needed another

0:19:42.480 --> 0:19:46.960
<v Speaker 1>pillowcase rapist, there's been another one since. But the pillowcase

0:19:47.440 --> 0:19:53.000
<v Speaker 1>rapist that unfortunately was involved in my early days in life,

0:19:53.480 --> 0:19:56.800
<v Speaker 1>came into the house when my whole family was home.

0:19:56.840 --> 0:20:00.760
<v Speaker 1>We lived in a duplex, was actually in West Hollywood.

0:20:01.320 --> 0:20:03.879
<v Speaker 1>As again I used to because I felt I was

0:20:04.160 --> 0:20:07.760
<v Speaker 1>always a target of potentially something. I would get teased

0:20:07.800 --> 0:20:10.320
<v Speaker 1>a little bit, and I had an older brother that

0:20:10.400 --> 0:20:14.800
<v Speaker 1>would sometimes tease me, and so he's a very nice guy,

0:20:14.880 --> 0:20:17.640
<v Speaker 1>but sometimes you know, people just I think nobody ever

0:20:17.680 --> 0:20:19.439
<v Speaker 1>thought that anything was going to happen to me. And

0:20:19.480 --> 0:20:21.960
<v Speaker 1>one night when I came home, it's that sort of

0:20:22.040 --> 0:20:25.400
<v Speaker 1>really scary scene you see in a movie where you're

0:20:25.400 --> 0:20:27.520
<v Speaker 1>in your room, and I had the room off the

0:20:27.560 --> 0:20:29.560
<v Speaker 1>back of the house and I look up in the

0:20:29.600 --> 0:20:33.719
<v Speaker 1>mirror and I see somebody right behind me, you know,

0:20:33.760 --> 0:20:36.760
<v Speaker 1>and it's that awful thing, and you're like in a

0:20:36.840 --> 0:20:40.760
<v Speaker 1>ski mask holding something with it looked like a dish

0:20:40.880 --> 0:20:43.840
<v Speaker 1>rag hanging over it. And I thought it was my brother,

0:20:44.000 --> 0:20:47.199
<v Speaker 1>maybe playing a joke. And I turn around and I'm like,

0:20:48.000 --> 0:20:51.959
<v Speaker 1>you know, what are you doing? And I heard in

0:20:52.000 --> 0:20:55.040
<v Speaker 1>a voice that I knew was completely unrecognizable to me

0:20:55.200 --> 0:20:58.080
<v Speaker 1>when somebody says, don't move that it was not a

0:20:58.080 --> 0:21:02.840
<v Speaker 1>good thing. At that point, I thought, since my whole

0:21:02.840 --> 0:21:04.760
<v Speaker 1>family was home and it was really late at night,

0:21:04.840 --> 0:21:07.880
<v Speaker 1>I thought I was really the last victim and that

0:21:07.920 --> 0:21:10.800
<v Speaker 1>he had, you know, killed my entire family and I

0:21:10.920 --> 0:21:14.879
<v Speaker 1>was the last one. And without going into all the

0:21:14.920 --> 0:21:18.600
<v Speaker 1>horrible details of it, it was definitely a situation where

0:21:18.680 --> 0:21:24.440
<v Speaker 1>for the first time I really experienced that disassociation going

0:21:24.480 --> 0:21:27.560
<v Speaker 1>out of body where I made a really conscious which

0:21:27.600 --> 0:21:32.399
<v Speaker 1>then kind of goes unconscious decision to be above what

0:21:32.560 --> 0:21:35.160
<v Speaker 1>was happening. To my body and to the situation at

0:21:35.160 --> 0:21:38.399
<v Speaker 1>the time, and obviously thinking about my family, and it

0:21:38.520 --> 0:21:41.440
<v Speaker 1>was like really looking down and I just thought, wow,

0:21:41.520 --> 0:21:45.160
<v Speaker 1>I'm seventeen. I was just about I thought to graduate

0:21:45.240 --> 0:21:47.840
<v Speaker 1>high school. And I thought, I can't believe it ends here,

0:21:48.280 --> 0:21:50.720
<v Speaker 1>you know, like this doesn't feel like the end of

0:21:50.720 --> 0:21:53.720
<v Speaker 1>the story. There's a reason I'm here, and I knew.

0:21:53.760 --> 0:21:56.760
<v Speaker 1>I had a moment where when I saw a part

0:21:56.800 --> 0:22:01.480
<v Speaker 1>of his calling card and trademark is when he had

0:22:01.520 --> 0:22:03.919
<v Speaker 1>me in a position where I could see he was

0:22:03.960 --> 0:22:07.640
<v Speaker 1>pulling the pillowcase off of my pillow. What he did

0:22:07.840 --> 0:22:09.960
<v Speaker 1>was he would then put them over your head and

0:22:10.000 --> 0:22:14.679
<v Speaker 1>he suffocated, and that would be you know, obviously lights

0:22:14.680 --> 0:22:17.720
<v Speaker 1>out for you. And when I saw that as he

0:22:17.800 --> 0:22:20.679
<v Speaker 1>was starting to put it over my head, I really

0:22:20.720 --> 0:22:23.960
<v Speaker 1>made this very decision like I am going to on

0:22:24.240 --> 0:22:27.160
<v Speaker 1>three and you know where you have that where you're

0:22:27.160 --> 0:22:30.040
<v Speaker 1>thinking is that you're so freaked out, like is a

0:22:30.080 --> 0:22:31.679
<v Speaker 1>sound going to come out? Am I going to just

0:22:31.720 --> 0:22:34.760
<v Speaker 1>be screaming in my head? But I was like, on three,

0:22:34.920 --> 0:22:38.320
<v Speaker 1>I'm going to scream, and I'm going to scream really loud,

0:22:38.359 --> 0:22:39.800
<v Speaker 1>and this is either going to be the end of

0:22:39.840 --> 0:22:42.680
<v Speaker 1>me because he did have a knife, and he did

0:22:43.080 --> 0:22:46.280
<v Speaker 1>had stabbed my leg and my stomach and part of

0:22:46.320 --> 0:22:50.040
<v Speaker 1>my face that I thought, well, this could be the end.

0:22:50.080 --> 0:22:53.080
<v Speaker 1>But I just in my head counted to three, and

0:22:53.119 --> 0:22:59.360
<v Speaker 1>on three, I screamed and he dropped the knife. Surprisingly,

0:22:59.440 --> 0:23:03.000
<v Speaker 1>he pulled off his ski mask. I couldn't really identify him,

0:23:03.000 --> 0:23:05.440
<v Speaker 1>but I guess again that another sort of calling card

0:23:05.440 --> 0:23:08.720
<v Speaker 1>that they knew it was him. And he ran out,

0:23:08.760 --> 0:23:11.320
<v Speaker 1>and my door in my bedroom I remember, you know,

0:23:11.400 --> 0:23:13.600
<v Speaker 1>sometimes would get stuck and he's like trying to pull

0:23:13.640 --> 0:23:15.639
<v Speaker 1>the get out, and I'm like, oh my gosh. So

0:23:15.960 --> 0:23:18.840
<v Speaker 1>it was just and then obviously I ran upstairs to

0:23:18.880 --> 0:23:21.760
<v Speaker 1>find out that my parents they were asleep. I was

0:23:21.800 --> 0:23:23.720
<v Speaker 1>the only victim in the house because he had come

0:23:23.760 --> 0:23:26.520
<v Speaker 1>in through the put his hand up through the dog

0:23:26.600 --> 0:23:29.480
<v Speaker 1>door that we had. It's you know, we didn't really

0:23:29.520 --> 0:23:32.359
<v Speaker 1>have security in the house per se. Then it was

0:23:32.520 --> 0:23:35.679
<v Speaker 1>really just locked the door, and he had unlocked I

0:23:35.720 --> 0:23:39.360
<v Speaker 1>never have a dog door again, the door, and that's

0:23:39.359 --> 0:23:40.320
<v Speaker 1>how he had gotten in.

0:23:41.880 --> 0:23:45.160
<v Speaker 2>I literally got chows listening to that story because it's

0:23:45.200 --> 0:23:52.359
<v Speaker 2>so you know, it's such a horrific, horrendous thing to

0:23:52.400 --> 0:23:55.720
<v Speaker 2>have to live through and I'm grateful you shared it

0:23:55.760 --> 0:23:57.919
<v Speaker 2>with us. Thank you so much for being vulnerable and

0:23:57.960 --> 0:24:04.840
<v Speaker 2>open and sharing that. How do you not let that

0:24:05.119 --> 0:24:07.640
<v Speaker 2>let you live in fear for the rest of your life.

0:24:08.760 --> 0:24:11.160
<v Speaker 2>What's the next thing you do from something like that?

0:24:11.240 --> 0:24:15.840
<v Speaker 2>Because that would be if you didn't do anything, ever,

0:24:16.000 --> 0:24:19.760
<v Speaker 2>it would be completely valid because it's such a painful

0:24:19.760 --> 0:24:22.719
<v Speaker 2>experience to go through. Yeah, how do you respond? How

0:24:22.720 --> 0:24:24.920
<v Speaker 2>do you react? What's the first thing you do after

0:24:24.960 --> 0:24:25.480
<v Speaker 2>something like.

0:24:25.560 --> 0:24:29.040
<v Speaker 1>I mean, obviously, you know I was hysterical, and I

0:24:29.200 --> 0:24:32.280
<v Speaker 1>was you know, there was the relief of my parents

0:24:32.320 --> 0:24:34.639
<v Speaker 1>and you know, being okay, but you know, there was

0:24:34.800 --> 0:24:37.119
<v Speaker 1>just I knew that I could never go back in

0:24:37.200 --> 0:24:41.040
<v Speaker 1>my house. I left, I didn't graduate high school, and

0:24:42.359 --> 0:24:44.879
<v Speaker 1>you know, I got married, like as soon as I

0:24:44.880 --> 0:24:47.480
<v Speaker 1>turned eighteen. I didn't want to be alone. So for me,

0:24:47.520 --> 0:24:50.760
<v Speaker 1>it really manifested it in fear of being by myself,

0:24:50.880 --> 0:24:54.000
<v Speaker 1>of somebody getting me again. But I also knew that

0:24:54.720 --> 0:24:58.320
<v Speaker 1>there just was a reason that I was here. And

0:24:58.600 --> 0:25:00.919
<v Speaker 1>it was shortly after that actually that that's when I

0:25:00.920 --> 0:25:03.800
<v Speaker 1>started going to the jails and started to do the

0:25:03.840 --> 0:25:06.639
<v Speaker 1>work there because I thought, how does this happen? Like,

0:25:06.680 --> 0:25:09.520
<v Speaker 1>how do people go down these roads. You know, what

0:25:10.640 --> 0:25:14.400
<v Speaker 1>is it that you know makes somebody make the choices

0:25:14.440 --> 0:25:17.000
<v Speaker 1>in their life? And I just knew that for me,

0:25:17.359 --> 0:25:21.520
<v Speaker 1>I wanted to find what it is ultimately that I

0:25:21.560 --> 0:25:23.480
<v Speaker 1>was supposed to be doing. And the closest thing at

0:25:23.480 --> 0:25:26.159
<v Speaker 1>that time, because I wasn't going to be going to

0:25:26.160 --> 0:25:28.680
<v Speaker 1>college because I didn't graduate high school was going to

0:25:28.720 --> 0:25:31.480
<v Speaker 1>beauty school. I thought, I can get a I can

0:25:31.560 --> 0:25:34.719
<v Speaker 1>get my own little scholarship there and go and you know,

0:25:34.800 --> 0:25:37.680
<v Speaker 1>start doing it through the one way that I knew.

0:25:37.720 --> 0:25:39.719
<v Speaker 1>The only skill that I thought I had was in

0:25:39.720 --> 0:25:43.480
<v Speaker 1>this kind of being this creative and wanting to help

0:25:43.520 --> 0:25:45.800
<v Speaker 1>women look and feel better about themselves. So I just

0:25:46.080 --> 0:25:49.600
<v Speaker 1>I started there really with no money and that vision

0:25:50.280 --> 0:25:52.800
<v Speaker 1>and decided that that's that's what I was going to do.

0:25:53.200 --> 0:25:55.159
<v Speaker 2>It's a tough question, but did you get an answer

0:25:55.200 --> 0:25:59.760
<v Speaker 2>when you started visiting the prisons of why people did

0:26:00.640 --> 0:26:03.159
<v Speaker 2>certain things? Did you did you find or discover anything

0:26:03.240 --> 0:26:05.439
<v Speaker 2>or hear anything? And on top of that, did the

0:26:05.480 --> 0:26:07.280
<v Speaker 2>pillar gase rapists go to prison as well?

0:26:07.560 --> 0:26:12.040
<v Speaker 1>Yes, the pillowcase rapist was finally caught in prison and

0:26:12.240 --> 0:26:17.080
<v Speaker 1>he's no longer with us, he's gone, thank goodness. No

0:26:17.200 --> 0:26:22.040
<v Speaker 1>sadness around that for me. So, uh yeah, going to

0:26:22.080 --> 0:26:24.600
<v Speaker 1>the jails, you really see. I mean there were times

0:26:24.600 --> 0:26:27.800
<v Speaker 1>that I would go because after going twenty years and going,

0:26:27.840 --> 0:26:30.800
<v Speaker 1>you know, every other month, that's a lot of visits

0:26:30.840 --> 0:26:33.520
<v Speaker 1>and you hear a lot of different people's stories. And

0:26:34.080 --> 0:26:36.200
<v Speaker 1>I remember going at times where there was a mom,

0:26:36.800 --> 0:26:39.560
<v Speaker 1>a daughter, and a grandmother. They were all there and

0:26:39.600 --> 0:26:42.960
<v Speaker 1>it was just like, Wow, how does this happen? And

0:26:44.080 --> 0:26:45.879
<v Speaker 1>so there was a lot of stories of you know,

0:26:45.920 --> 0:26:48.440
<v Speaker 1>in my mind too, because I didn't want to judge.

0:26:48.800 --> 0:26:51.040
<v Speaker 1>I had to make everybody but like everyone's here as

0:26:51.040 --> 0:26:53.000
<v Speaker 1>a drunk driver, you know, you're sort of like I

0:26:53.000 --> 0:26:57.000
<v Speaker 1>wanted to equalize the room so that even though you're

0:26:57.000 --> 0:27:00.480
<v Speaker 1>maybe seeing the teardrops at the end of somebody eyes

0:27:00.520 --> 0:27:02.800
<v Speaker 1>of you know, maybe what they've done in life. I

0:27:03.160 --> 0:27:06.760
<v Speaker 1>didn't want to judge. I wanted to just stay to

0:27:06.880 --> 0:27:11.800
<v Speaker 1>my to my message, which I could see that doing

0:27:11.880 --> 0:27:17.760
<v Speaker 1>these makeovers and people seeing themselves differently, especially women who

0:27:17.800 --> 0:27:22.439
<v Speaker 1>had maybe had to like crazy eyebrows or whatever it was,

0:27:22.480 --> 0:27:24.960
<v Speaker 1>that it had really sort of changed them into just

0:27:25.280 --> 0:27:28.879
<v Speaker 1>somebody that they looked different, but who they were inside

0:27:29.160 --> 0:27:32.359
<v Speaker 1>was very different. I wanted to get to that, and

0:27:32.440 --> 0:27:35.160
<v Speaker 1>I wanted them to feel that, you know, you may

0:27:35.200 --> 0:27:37.840
<v Speaker 1>be in jail today, but you know, when you get

0:27:37.880 --> 0:27:40.560
<v Speaker 1>out tomorrow or when you get out, you know there's

0:27:40.600 --> 0:27:42.320
<v Speaker 1>a whole new world out there, and there can be

0:27:42.359 --> 0:27:45.400
<v Speaker 1>a whole new you out there. And that was that

0:27:45.520 --> 0:27:48.520
<v Speaker 1>really took on the life of the power of mascara.

0:27:48.680 --> 0:27:53.280
<v Speaker 1>And obviously it was never about selling them my cosmetics

0:27:53.359 --> 0:27:55.679
<v Speaker 1>or anything like that, because I'm very much for women

0:27:55.760 --> 0:27:58.199
<v Speaker 1>and whatever makeup they like it.

0:27:58.280 --> 0:28:01.960
<v Speaker 2>Yeah, it works absolutely, and I think it's incredible how

0:28:02.040 --> 0:28:06.359
<v Speaker 2>much our appearance does affect our confidence. And I've seen it.

0:28:06.440 --> 0:28:09.000
<v Speaker 2>There are so many of these great videos on social

0:28:09.040 --> 0:28:12.440
<v Speaker 2>media of a lot of hairdressers and barbers going onto

0:28:12.440 --> 0:28:16.199
<v Speaker 2>the streets and doing free cuts for the homeless, and

0:28:16.240 --> 0:28:19.280
<v Speaker 2>you hear their reaction. I've seen some of these videos

0:28:19.320 --> 0:28:23.200
<v Speaker 2>where you hear their reaction before and after and how

0:28:23.240 --> 0:28:26.040
<v Speaker 2>they feel about looking at themselves in the mirror and

0:28:26.080 --> 0:28:29.600
<v Speaker 2>how it can be such a boost for confidence as well. Yes,

0:28:29.840 --> 0:28:33.040
<v Speaker 2>and so that definitely resonates. How did it go from

0:28:33.080 --> 0:28:38.080
<v Speaker 2>being your passion and something that you are so connected

0:28:38.120 --> 0:28:41.120
<v Speaker 2>to as a way of helping people build self esteem

0:28:41.160 --> 0:28:45.600
<v Speaker 2>to then becoming a very successful business. There's lots of

0:28:45.600 --> 0:28:48.920
<v Speaker 2>steps in between. What were some of the key things

0:28:48.960 --> 0:28:52.160
<v Speaker 2>you'd think transformed it from a great small business to

0:28:52.240 --> 0:28:54.320
<v Speaker 2>something quite successful.

0:28:54.400 --> 0:28:57.080
<v Speaker 1>Well, I think basically it's really in the world of

0:28:57.120 --> 0:29:01.120
<v Speaker 1>the no makeup makeup, nothing existed, you know, and especially

0:29:01.160 --> 0:29:04.240
<v Speaker 1>so you think about in you know, when you're in

0:29:04.280 --> 0:29:07.800
<v Speaker 1>the jails again, I was trying to strip down people

0:29:07.920 --> 0:29:11.240
<v Speaker 1>to the essence of who they were, and to me,

0:29:11.320 --> 0:29:13.520
<v Speaker 1>at the core of that is this no makeup makeup

0:29:13.720 --> 0:29:17.000
<v Speaker 1>that's really and so there was nothing in the world

0:29:17.000 --> 0:29:20.280
<v Speaker 1>of say foundations at the time that would be kind

0:29:20.320 --> 0:29:22.840
<v Speaker 1>of the starting point for that. That to me was

0:29:22.920 --> 0:29:26.040
<v Speaker 1>going to be what I built my business around and became.

0:29:26.280 --> 0:29:29.640
<v Speaker 1>You know, I created over six hundred products over the

0:29:29.680 --> 0:29:33.160
<v Speaker 1>course of thirteen years. But my Foundation, which I sold

0:29:33.200 --> 0:29:36.440
<v Speaker 1>millions millions of units of, was just based on more

0:29:36.680 --> 0:29:41.120
<v Speaker 1>natural looking skin tone shades that look like you didn't

0:29:41.200 --> 0:29:45.560
<v Speaker 1>have layers of makeup on. So that really came from

0:29:45.600 --> 0:29:48.160
<v Speaker 1>not only the jobs that I was doing, but from

0:29:48.200 --> 0:29:50.520
<v Speaker 1>all those years of going to the jails and really

0:29:50.560 --> 0:29:54.920
<v Speaker 1>wanting to help women look like themselves and not you know,

0:29:55.080 --> 0:29:58.360
<v Speaker 1>pile on all the makeup. So when I said, as

0:29:58.400 --> 0:30:01.920
<v Speaker 1>I was making these shades and pots and pants in

0:30:01.960 --> 0:30:05.400
<v Speaker 1>my garage. I had to find a cosmetic chemist. You know,

0:30:05.600 --> 0:30:07.680
<v Speaker 1>like at the time you're looking in the Yellow Pages,

0:30:08.000 --> 0:30:10.320
<v Speaker 1>nobody out there knows what the Yellow Pages are, that

0:30:11.040 --> 0:30:15.480
<v Speaker 1>that's a directory that, yeah, exactly, and you're going in.

0:30:15.920 --> 0:30:19.080
<v Speaker 1>I found a cosmetic chemist and said, hey, you know,

0:30:19.120 --> 0:30:20.640
<v Speaker 1>I want to this is what I want to do.

0:30:20.680 --> 0:30:23.440
<v Speaker 1>I want to create these shades, these textures, these fields.

0:30:23.440 --> 0:30:28.240
<v Speaker 1>And I started. And then while I again wanting to

0:30:28.320 --> 0:30:32.040
<v Speaker 1>teach what I do and never having graduated or gone

0:30:32.040 --> 0:30:34.120
<v Speaker 1>to college, I thought, you know what, I want to

0:30:34.120 --> 0:30:36.840
<v Speaker 1>teach this. I'm going to call UCLA. They have an

0:30:36.880 --> 0:30:40.720
<v Speaker 1>extension program. Maybe I could teach some of what I'm

0:30:40.760 --> 0:30:45.560
<v Speaker 1>doing as a Hollywood makeup artist and teach that. I

0:30:45.600 --> 0:30:48.200
<v Speaker 1>did that for ten years as an extension course that

0:30:48.440 --> 0:30:53.240
<v Speaker 1>was again sold out every quarter. People wanted to learn

0:30:53.280 --> 0:30:55.400
<v Speaker 1>how to do it. Whether it was I had so

0:30:55.480 --> 0:30:57.800
<v Speaker 1>many men taking it, you know, guys that maybe just

0:30:57.840 --> 0:31:01.320
<v Speaker 1>wanted to meet gals, you know, and do their makeup,

0:31:01.760 --> 0:31:04.160
<v Speaker 1>but it was another way that I could just see

0:31:04.400 --> 0:31:08.760
<v Speaker 1>people wanted to connect in this way. So I thought,

0:31:09.040 --> 0:31:13.040
<v Speaker 1>this is great. And then through doing that at UCLA,

0:31:14.120 --> 0:31:16.440
<v Speaker 1>one of my students actually said, you know, I know

0:31:16.480 --> 0:31:20.360
<v Speaker 1>this group of guys that are selling products through television,

0:31:21.000 --> 0:31:24.040
<v Speaker 1>and I said, wow, I think I have a great

0:31:24.080 --> 0:31:27.280
<v Speaker 1>idea of how to sell products through TV color cosmetics,

0:31:27.520 --> 0:31:29.600
<v Speaker 1>which no one was doing at the time because this

0:31:29.640 --> 0:31:33.600
<v Speaker 1>is the late eighties and I hadn't really perfected my kit,

0:31:33.720 --> 0:31:35.160
<v Speaker 1>but you know, we do that little bit of that

0:31:35.280 --> 0:31:37.400
<v Speaker 1>fake it till you make it, and act as if

0:31:37.480 --> 0:31:40.280
<v Speaker 1>so when she put me together with the guys, I

0:31:40.320 --> 0:31:42.680
<v Speaker 1>basically said, I have this idea for these color kits,

0:31:43.200 --> 0:31:45.560
<v Speaker 1>you know, peach, pink, and red, and I'll put all

0:31:45.600 --> 0:31:48.120
<v Speaker 1>of the colors and products and things you need together

0:31:48.520 --> 0:31:50.200
<v Speaker 1>and then I'm going to teach you how to do it.

0:31:50.920 --> 0:31:56.280
<v Speaker 1>And basically, that long story short, they decided to roll

0:31:56.280 --> 0:31:59.520
<v Speaker 1>the dice on that and shoot an infomercial, and the

0:31:59.640 --> 0:32:04.080
<v Speaker 1>very infomercial I did with two celebrities at the time,

0:32:04.600 --> 0:32:08.320
<v Speaker 1>Ali McGrath and Lisa Hartman, we started doing a million

0:32:08.360 --> 0:32:11.120
<v Speaker 1>dollars a week in sales. I mean, clearly there was

0:32:11.800 --> 0:32:15.520
<v Speaker 1>an appetite for women wanting to know how to do

0:32:15.560 --> 0:32:19.440
<v Speaker 1>their makeup and feeling that confidence and reassurance that I

0:32:19.600 --> 0:32:23.840
<v Speaker 1>tried to give in my three hour tutorials that you

0:32:23.960 --> 0:32:24.560
<v Speaker 1>never see.

0:32:24.680 --> 0:32:29.400
<v Speaker 2>Now, that's incredible, that's amazing. And did you find that

0:32:30.440 --> 0:32:33.560
<v Speaker 2>building this business and helping these people and helping your

0:32:33.680 --> 0:32:36.520
<v Speaker 2>customers but also women that you met in the prisons,

0:32:36.600 --> 0:32:39.680
<v Speaker 2>did that help how you felt about yourself and what

0:32:39.720 --> 0:32:42.440
<v Speaker 2>you'd been through or was there not a correlation? Was

0:32:42.480 --> 0:32:45.400
<v Speaker 2>healing a part of that, or was healing having to

0:32:45.400 --> 0:32:46.200
<v Speaker 2>happen separate that.

0:32:46.400 --> 0:32:48.760
<v Speaker 1>Yeah, healing is a part of everything. I think we

0:32:48.880 --> 0:32:52.440
<v Speaker 1>all just you know, healing happens, whether sometimes we even

0:32:52.520 --> 0:32:55.360
<v Speaker 1>know it or not. It's on like a cellular level,

0:32:55.520 --> 0:32:58.600
<v Speaker 1>so you know, it's whatever piece of what you're doing

0:32:58.680 --> 0:33:01.480
<v Speaker 1>at the time. I've gone through so many different stages

0:33:01.560 --> 0:33:05.360
<v Speaker 1>of healing because I've gone through so many different experiences,

0:33:05.520 --> 0:33:08.400
<v Speaker 1>as I said, you know, as my life has gone

0:33:08.440 --> 0:33:10.280
<v Speaker 1>from like what I look at in the two parts,

0:33:10.320 --> 0:33:14.840
<v Speaker 1>you know, the mess Scarra to medicine, so it's all

0:33:15.160 --> 0:33:17.880
<v Speaker 1>all of that journey has informed me and my healing

0:33:17.960 --> 0:33:20.000
<v Speaker 1>in so many different ways.

0:33:21.760 --> 0:33:26.320
<v Speaker 2>Did you find that you were saying that your experience

0:33:27.080 --> 0:33:29.120
<v Speaker 2>made you rush into not wanting to be alone and

0:33:29.160 --> 0:33:32.680
<v Speaker 2>obviously got married very young. Did you find that led

0:33:32.720 --> 0:33:36.440
<v Speaker 2>to some codependency which caused challenges in relationships or did

0:33:36.440 --> 0:33:39.640
<v Speaker 2>you actually was that something that you feel your partner

0:33:39.720 --> 0:33:42.560
<v Speaker 2>was good at navigating and dealing with, because I can

0:33:42.600 --> 0:33:45.160
<v Speaker 2>imagine that when you don't want to be alone, and

0:33:46.160 --> 0:33:48.960
<v Speaker 2>of course, based on the traumatic experience that you had,

0:33:49.000 --> 0:33:52.160
<v Speaker 2>it's very valid, but I wonder how that affects the

0:33:52.200 --> 0:33:55.320
<v Speaker 2>other person as well, and how you navigated that, especially

0:33:55.320 --> 0:33:56.160
<v Speaker 2>in the early years.

0:33:56.360 --> 0:33:58.880
<v Speaker 1>Well, I think it started even earlier because I had

0:33:59.400 --> 0:34:01.160
<v Speaker 1>you know, as I said, my parents had a lot

0:34:01.160 --> 0:34:04.120
<v Speaker 1>of problems together, and my biological dad put me up

0:34:04.120 --> 0:34:07.880
<v Speaker 1>for adoption when I was nine years old, so my

0:34:08.040 --> 0:34:11.200
<v Speaker 1>stepdad had adopted me, and so I really very early on,

0:34:11.280 --> 0:34:14.960
<v Speaker 1>i'd say, really never felt, you know, how to have

0:34:14.960 --> 0:34:18.160
<v Speaker 1>a relationship, especially with a father, with a man, and

0:34:18.200 --> 0:34:20.880
<v Speaker 1>the fact that I'm now married, this is my third time,

0:34:21.440 --> 0:34:25.359
<v Speaker 1>So yeah, i'd say, did I have codependent problems? And

0:34:25.800 --> 0:34:29.280
<v Speaker 1>being frightened and you know, being afraid to be alone

0:34:29.400 --> 0:34:35.319
<v Speaker 1>definitely created issues because I was afraid and I was

0:34:35.360 --> 0:34:40.000
<v Speaker 1>still trying to figure out me. And so i'd definitely

0:34:40.000 --> 0:34:43.760
<v Speaker 1>say that's been a theme. And even now I've worked

0:34:43.800 --> 0:34:47.480
<v Speaker 1>really hard, you know, and especially in raising three kids.

0:34:48.280 --> 0:34:50.600
<v Speaker 1>You know, when you have your first child, you really

0:34:50.640 --> 0:34:53.160
<v Speaker 1>have to think about all of your own stuff. And

0:34:53.600 --> 0:34:55.640
<v Speaker 1>there were times where I always say, you know, I

0:34:55.680 --> 0:34:59.319
<v Speaker 1>didn't just hang my hat on my son, I hung

0:34:59.360 --> 0:35:01.759
<v Speaker 1>my wardrobe, you know. I mean, you bring a lot

0:35:01.800 --> 0:35:05.000
<v Speaker 1>of your stuff. So it's been really a conscious thing,

0:35:05.040 --> 0:35:07.279
<v Speaker 1>and I think for all of us thinking about how

0:35:07.320 --> 0:35:11.240
<v Speaker 1>the past informs us of what we bring to the table,

0:35:11.239 --> 0:35:16.000
<v Speaker 1>and how we have to navigate our relationships, our love relationships,

0:35:16.080 --> 0:35:19.920
<v Speaker 1>and all of our family relationships. And it can be

0:35:20.000 --> 0:35:24.280
<v Speaker 1>really challenging, and you can become the quote unquote identified

0:35:24.400 --> 0:35:28.359
<v Speaker 1>patient and how you sort of navigate that in your

0:35:28.360 --> 0:35:29.520
<v Speaker 1>world in your life.

0:35:29.920 --> 0:35:34.239
<v Speaker 2>I've often spoken to doctors, to their experts, and they

0:35:34.280 --> 0:35:36.239
<v Speaker 2>talk about how much we need to look at our

0:35:36.760 --> 0:35:40.480
<v Speaker 2>genetic past and our history and our family of health.

0:35:41.440 --> 0:35:45.000
<v Speaker 2>And it's so interesting how on the physical level that's true,

0:35:45.440 --> 0:35:48.400
<v Speaker 2>and it's true on the emotional level as well. But

0:35:48.480 --> 0:35:50.279
<v Speaker 2>sometimes it can be so hard to look at the

0:35:50.320 --> 0:35:54.759
<v Speaker 2>emotional background of our family and how it's affected us,

0:35:54.840 --> 0:35:57.960
<v Speaker 2>because a lot of us go through life believing that

0:35:58.080 --> 0:36:03.239
<v Speaker 2>our parents are super human. In the beginning, some of

0:36:03.280 --> 0:36:05.160
<v Speaker 2>us feel that way for a long, long long time,

0:36:06.120 --> 0:36:11.080
<v Speaker 2>and it's almost like the earlier we've recognized that our

0:36:11.160 --> 0:36:13.560
<v Speaker 2>parents are humans just like we are, and we all

0:36:13.600 --> 0:36:18.000
<v Speaker 2>have challenges and flaws that sometimes the healthier conversations and

0:36:18.000 --> 0:36:22.160
<v Speaker 2>connection we can have with them as well. Your journey

0:36:22.160 --> 0:36:27.160
<v Speaker 2>with your children has been a labor of love in

0:36:27.200 --> 0:36:28.840
<v Speaker 2>so many ways. And I want to talk about Ali,

0:36:29.000 --> 0:36:31.600
<v Speaker 2>who I had the pleasure of meeting, who you know

0:36:31.680 --> 0:36:34.680
<v Speaker 2>is your co author on this book, yes, and has

0:36:34.719 --> 0:36:39.400
<v Speaker 2>been at the core of your journey and connection to

0:36:39.440 --> 0:36:43.239
<v Speaker 2>the medical world, from mascara to medicine and looking into

0:36:43.239 --> 0:36:48.160
<v Speaker 2>that world for you. As you said earlier, you were like,

0:36:48.200 --> 0:36:51.160
<v Speaker 2>I didn't really feel like I was loved in that way.

0:36:52.320 --> 0:36:55.239
<v Speaker 2>Walk me through what it feels like when your daughter,

0:36:55.280 --> 0:36:59.680
<v Speaker 2>who you love so deeply gets diagnosed with an illness

0:36:59.719 --> 0:37:02.560
<v Speaker 2>that is very rare, and on top of that, you

0:37:02.600 --> 0:37:05.680
<v Speaker 2>here she doesn't have very long to live. Oh, I

0:37:06.440 --> 0:37:10.840
<v Speaker 2>just can't imagine. I'm not a parent, but I can't imagine. Therefore,

0:37:10.880 --> 0:37:14.080
<v Speaker 2>I can't imagine what that feels like. Can you walk

0:37:14.120 --> 0:37:17.760
<v Speaker 2>us through what that moment feels like when you've raised

0:37:17.760 --> 0:37:20.040
<v Speaker 2>someone for what fourteen years?

0:37:20.040 --> 0:37:23.680
<v Speaker 1>And you know, yeah, I mean my life changed, you know,

0:37:23.760 --> 0:37:26.480
<v Speaker 1>my life changed when Ali was you know, I have

0:37:26.560 --> 0:37:31.279
<v Speaker 1>three children, and when Ali was diagnosed at fourteen, you

0:37:31.320 --> 0:37:35.400
<v Speaker 1>know where, you know, completely healthy, fine, and you know,

0:37:35.440 --> 0:37:39.640
<v Speaker 1>we're going to a premier, a premiere of a movie.

0:37:39.800 --> 0:37:42.239
<v Speaker 1>We're going to go see something. And she's saying she

0:37:42.280 --> 0:37:45.960
<v Speaker 1>has an eyeball headache, and I'm thinking, oh, you know, okay,

0:37:46.080 --> 0:37:49.200
<v Speaker 1>you know, and she says her vision's getting a little fuzzy,

0:37:49.239 --> 0:37:51.719
<v Speaker 1>and I'm just thinking, well, I'm you know, I'm sure

0:37:51.760 --> 0:37:53.480
<v Speaker 1>it's nothing. We'll go see the eye doctor, will get

0:37:53.480 --> 0:37:57.120
<v Speaker 1>you some drops, and you know, you don't think anything

0:37:57.160 --> 0:37:58.920
<v Speaker 1>of it. And then all of a sudden, I find

0:37:58.920 --> 0:38:03.279
<v Speaker 1>out you're going through to the eye doctor that he

0:38:03.320 --> 0:38:06.319
<v Speaker 1>doesn't she doesn't examine and says, like, she's got this

0:38:06.400 --> 0:38:09.440
<v Speaker 1>optic neritis and we need to find out optic neurritis

0:38:09.600 --> 0:38:12.600
<v Speaker 1>is the swelling of the optic nerve and we need

0:38:12.640 --> 0:38:14.960
<v Speaker 1>to find out what's going on and go to an

0:38:14.960 --> 0:38:19.920
<v Speaker 1>op the neural ologist and find out that, you know,

0:38:20.040 --> 0:38:21.759
<v Speaker 1>And now I'm going he's saying, you've got to go

0:38:21.800 --> 0:38:26.560
<v Speaker 1>to a neurologist, and ultimately the neurologist is taking a

0:38:26.640 --> 0:38:28.920
<v Speaker 1>series of doing a series of tests, wanted to do

0:38:29.239 --> 0:38:31.719
<v Speaker 1>a spinal tap, a lumbar puncture, and I'm like why,

0:38:31.920 --> 0:38:33.800
<v Speaker 1>Like she's just got something going on with her eyes.

0:38:33.880 --> 0:38:38.040
<v Speaker 1>What are y'all doing? You know? And it was it

0:38:38.080 --> 0:38:40.600
<v Speaker 1>was really scary. And he's decided he's going to do

0:38:40.640 --> 0:38:43.960
<v Speaker 1>some blood work the neurologists and he starts checking boxes

0:38:44.000 --> 0:38:46.080
<v Speaker 1>and one of the boxes they check is for something

0:38:46.120 --> 0:38:49.319
<v Speaker 1>called neuromiolitis optica. And I said, oh, what is that?

0:38:49.440 --> 0:38:51.719
<v Speaker 1>And he goes, oh, don't worry about it. That would

0:38:51.719 --> 0:38:53.120
<v Speaker 1>be a nightmare. She's not going to have that. I

0:38:53.160 --> 0:38:56.200
<v Speaker 1>don't even know why I've ever checked that box. And

0:38:56.360 --> 0:38:59.160
<v Speaker 1>of course, you know how that goes check that box.

0:38:59.239 --> 0:39:02.279
<v Speaker 1>And it turned out that that's what Ali had. And

0:39:02.320 --> 0:39:05.320
<v Speaker 1>so when they called with the results, they basically told

0:39:05.760 --> 0:39:08.000
<v Speaker 1>myself and my husband that she had four years to live.

0:39:09.200 --> 0:39:13.360
<v Speaker 1>And it was just life changed. Life changed I in

0:39:13.440 --> 0:39:16.920
<v Speaker 1>my mind. Right then, I said, okay, well I'm closing it.

0:39:17.040 --> 0:39:19.880
<v Speaker 1>At that point, I had a billion dollar empire of

0:39:20.080 --> 0:39:23.719
<v Speaker 1>you know, my cosmetic world. I'm closing that book and

0:39:23.760 --> 0:39:26.600
<v Speaker 1>I'm going to open the book on medicine and here

0:39:26.640 --> 0:39:30.240
<v Speaker 1>I am I make lipglass like in cure disease. Yeah. Right,

0:39:30.719 --> 0:39:32.160
<v Speaker 1>But I was going to do it. I was going

0:39:32.239 --> 0:39:36.080
<v Speaker 1>to find the way and save my daughter because it

0:39:36.120 --> 0:39:39.680
<v Speaker 1>was just I mean it takes you to your knees,

0:39:39.800 --> 0:39:43.720
<v Speaker 1>it takes you to the floor. It just the air

0:39:43.800 --> 0:39:46.319
<v Speaker 1>goes out of the room. You know, you're just like

0:39:47.120 --> 0:39:51.320
<v Speaker 1>you don't even know where to begin, and you literally

0:39:51.520 --> 0:39:55.800
<v Speaker 1>just have to start somewhere. And that's where I just thought,

0:39:56.320 --> 0:39:59.719
<v Speaker 1>in that moment, that was my purpose. Everything came back

0:39:59.760 --> 0:40:04.600
<v Speaker 1>to me, the disassociating wall, you know, the rape was happening.

0:40:04.960 --> 0:40:08.120
<v Speaker 1>I was like, oh, oh, this is it. This is

0:40:08.160 --> 0:40:11.839
<v Speaker 1>why I'm here. I'm supposed to cure this. And it

0:40:11.920 --> 0:40:16.440
<v Speaker 1>was just like that just became the mission from that moment.

0:40:17.680 --> 0:40:20.040
<v Speaker 2>For you. In that moment, it sounds like all of

0:40:20.080 --> 0:40:26.560
<v Speaker 2>your pains really became your purpose. And that can sometimes

0:40:26.560 --> 0:40:31.120
<v Speaker 2>be the hardest path to purpose because there are several

0:40:31.120 --> 0:40:36.520
<v Speaker 2>different paths. There's passion, there's a profession, there's people you love.

0:40:36.680 --> 0:40:39.879
<v Speaker 2>But then when it's your pain, your pain of seeing

0:40:39.920 --> 0:40:45.120
<v Speaker 2>your child suffer and getting news like that, what was

0:40:45.280 --> 0:40:50.920
<v Speaker 2>useful from your cosmetic background that did transfer over into

0:40:51.000 --> 0:40:54.440
<v Speaker 2>healthcare and medicine or was it just like none of

0:40:54.480 --> 0:40:57.760
<v Speaker 2>this is useful and I need to build a different

0:40:57.760 --> 0:41:01.480
<v Speaker 2>skill set because I can imagine and that that transition

0:41:01.760 --> 0:41:07.640
<v Speaker 2>is not easy mentally, emotionally and of course logistically.

0:41:07.320 --> 0:41:10.480
<v Speaker 1>Yeah, it's not easy on any level. Spiritually, I mean,

0:41:10.480 --> 0:41:14.400
<v Speaker 1>you name it. What I drew upon more than anything

0:41:14.920 --> 0:41:17.920
<v Speaker 1>was everyone my whole career, my whole life, has always said, oh,

0:41:18.000 --> 0:41:20.320
<v Speaker 1>you know, even when I was starting my cosmetic company,

0:41:20.320 --> 0:41:22.680
<v Speaker 1>oh you can't do that. You know, there's a million

0:41:22.719 --> 0:41:26.440
<v Speaker 1>cosmetic companies out there. So it was the everyone up

0:41:26.440 --> 0:41:28.799
<v Speaker 1>to that point always telling me I couldn't do it that.

0:41:28.880 --> 0:41:32.080
<v Speaker 1>I was like, no, I can do this, I can

0:41:32.120 --> 0:41:34.160
<v Speaker 1>do this. I didn't know how I was going to

0:41:34.239 --> 0:41:38.320
<v Speaker 1>do this, but I thought no because, as I said,

0:41:38.560 --> 0:41:41.080
<v Speaker 1>and I really it's all about for me, it's what

0:41:41.160 --> 0:41:45.080
<v Speaker 1>the power of love and intention, anything's possible. And I

0:41:45.120 --> 0:41:46.920
<v Speaker 1>loved my daughter and I was going to set this

0:41:47.040 --> 0:41:51.960
<v Speaker 1>intention and I'd been able to manifest you know, whether

0:41:52.000 --> 0:41:56.120
<v Speaker 1>it's been through my creative visualization. I see it in

0:41:56.200 --> 0:41:59.239
<v Speaker 1>my head. I make the picture, and then I'm like,

0:41:59.520 --> 0:42:03.560
<v Speaker 1>I'm going to work to create this and I need

0:42:03.600 --> 0:42:07.080
<v Speaker 1>to find this cure and I'm going to be able

0:42:07.120 --> 0:42:10.400
<v Speaker 1>to I'm going to sit and ask all the questions

0:42:10.680 --> 0:42:13.480
<v Speaker 1>I put together. The first thing I said to myself

0:42:13.560 --> 0:42:15.719
<v Speaker 1>is I have to learn about this condition. I've got

0:42:15.760 --> 0:42:19.360
<v Speaker 1>to educate myself and there I cut to you know,

0:42:19.440 --> 0:42:22.239
<v Speaker 1>put a group together, and I went to Stanford and

0:42:22.400 --> 0:42:27.000
<v Speaker 1>I started studying molecular medicine with a group of advisors

0:42:27.000 --> 0:42:31.280
<v Speaker 1>to understand the process of this particular condition and really

0:42:31.320 --> 0:42:34.239
<v Speaker 1>start learning. And just sat there with a group of

0:42:34.840 --> 0:42:38.279
<v Speaker 1>doctors and advisors that I would just pick from. They're

0:42:38.280 --> 0:42:41.440
<v Speaker 1>in the world of MS or in loopus or rheumatoid

0:42:41.600 --> 0:42:45.400
<v Speaker 1>arthritis and these other autoimmune diseases, and I just started

0:42:45.440 --> 0:42:49.920
<v Speaker 1>saying telling them my personal story and of you know,

0:42:50.040 --> 0:42:52.520
<v Speaker 1>how can you help me? And you know, basically, I

0:42:52.600 --> 0:42:56.440
<v Speaker 1>was fortunate that I could say, I'm I have a checkbook,

0:42:56.920 --> 0:42:59.359
<v Speaker 1>and if you're willing to work the way I need

0:42:59.400 --> 0:43:01.680
<v Speaker 1>you to all work, which was everyone was going to

0:43:01.719 --> 0:43:05.760
<v Speaker 1>have to collaborate and work together and share information because

0:43:05.800 --> 0:43:08.480
<v Speaker 1>everybody said they don't do that in the medical world.

0:43:08.920 --> 0:43:11.440
<v Speaker 1>I said, We're going to find a cure, and this

0:43:11.560 --> 0:43:13.960
<v Speaker 1>is going to be a model for how we look

0:43:14.000 --> 0:43:16.920
<v Speaker 1>at curing disease in the world. And I mean I

0:43:16.960 --> 0:43:20.359
<v Speaker 1>said it on a very big stage for myself. But

0:43:20.400 --> 0:43:23.279
<v Speaker 1>the biggest thing was always to find a cure and

0:43:23.480 --> 0:43:26.880
<v Speaker 1>at least find some therapeutics to help me. As Allie

0:43:27.080 --> 0:43:28.760
<v Speaker 1>was suffering at the time.

0:43:29.360 --> 0:43:32.319
<v Speaker 2>What were some of the biggest roadblocks you mentioned one

0:43:32.360 --> 0:43:35.480
<v Speaker 2>of them their collaboration. What were some of the biggest

0:43:35.520 --> 0:43:41.400
<v Speaker 2>roadblocks you saw in healthcare in curing these seemingly incurable

0:43:41.400 --> 0:43:45.560
<v Speaker 2>diseases because you went in there. Of course, as you said,

0:43:45.600 --> 0:43:49.319
<v Speaker 2>you'd worked hard, first of all to build this incredible company, right,

0:43:49.840 --> 0:43:51.880
<v Speaker 2>Therefore you had resources. It's not like you just had

0:43:51.960 --> 0:43:54.080
<v Speaker 2>resources because you inherited them or you had them from

0:43:54.080 --> 0:43:58.040
<v Speaker 2>somewhere else. But even with that, you had to learn

0:43:58.120 --> 0:44:00.319
<v Speaker 2>bring people together, figure it out, like what was some

0:44:00.320 --> 0:44:02.920
<v Speaker 2>of the blocks that you ran up against or that

0:44:03.000 --> 0:44:06.520
<v Speaker 2>you saw that existed before you were able to create

0:44:06.560 --> 0:44:07.800
<v Speaker 2>and curate your own teams.

0:44:08.080 --> 0:44:10.200
<v Speaker 1>I mean the biggest thing is for me, I needed

0:44:10.239 --> 0:44:14.640
<v Speaker 1>to get to people's brain trust, and I really need

0:44:14.640 --> 0:44:17.359
<v Speaker 1>to do the way I thought was in was through

0:44:17.400 --> 0:44:21.799
<v Speaker 1>their shared humanity and sense of their own purpose, like

0:44:22.280 --> 0:44:25.200
<v Speaker 1>always bringing it back to well, why did you get

0:44:25.200 --> 0:44:28.520
<v Speaker 1>into this, Why did you decide to be a doctor

0:44:28.520 --> 0:44:31.040
<v Speaker 1>in the world of MS research or things? So that

0:44:31.239 --> 0:44:34.080
<v Speaker 1>was the positive side. The reason I had to do

0:44:34.120 --> 0:44:36.160
<v Speaker 1>that is because it was very clear to me very

0:44:36.200 --> 0:44:39.000
<v Speaker 1>early on that people don't share or work together. They

0:44:39.000 --> 0:44:42.920
<v Speaker 1>all wanted sort of their own spotlight for their findings

0:44:43.000 --> 0:44:46.240
<v Speaker 1>or their published work. But in the world of rare disease,

0:44:46.440 --> 0:44:49.120
<v Speaker 1>which I found out at the time, they were saying

0:44:49.120 --> 0:44:52.400
<v Speaker 1>there was maybe ten thousand people worldwide that have this.

0:44:52.920 --> 0:44:56.520
<v Speaker 1>Since my work, there's over a million people in counting

0:44:56.560 --> 0:45:00.440
<v Speaker 1>that have this because it's so misdiagnosed, whether it's MS

0:45:00.600 --> 0:45:03.960
<v Speaker 1>or other things. So I had to get people to

0:45:04.360 --> 0:45:06.319
<v Speaker 1>work together and share. That was going to be the

0:45:06.320 --> 0:45:09.839
<v Speaker 1>biggest obstacle. But because I had the power of at

0:45:09.920 --> 0:45:12.799
<v Speaker 1>least having a checkbook and always feeling very blessed and

0:45:12.880 --> 0:45:16.160
<v Speaker 1>fortunate for that that I could say, I will pay you,

0:45:16.200 --> 0:45:18.120
<v Speaker 1>tell me who you need to get in the room

0:45:18.160 --> 0:45:20.560
<v Speaker 1>and at the table, but you're all going to work

0:45:20.600 --> 0:45:24.440
<v Speaker 1>together and share together. So I'd say that that was

0:45:24.440 --> 0:45:28.320
<v Speaker 1>the biggest obstacle. And then finding people, and then honestly

0:45:28.440 --> 0:45:31.319
<v Speaker 1>what became more and more as I went down this

0:45:31.800 --> 0:45:36.280
<v Speaker 1>through this journey to cure anything, even in a rare disease,

0:45:36.600 --> 0:45:39.040
<v Speaker 1>I had to I found out that I had to

0:45:39.120 --> 0:45:43.080
<v Speaker 1>build a blood bank. Now can you imagine, here's all

0:45:43.080 --> 0:45:46.480
<v Speaker 1>of a sudden you're working to, you know, find your

0:45:47.600 --> 0:45:51.040
<v Speaker 1>way with just getting researchers and scientists to the table.

0:45:51.360 --> 0:45:54.360
<v Speaker 1>But it became quickly apparent to me that they said, Victoria,

0:45:54.680 --> 0:45:57.919
<v Speaker 1>for us to do the research, we need to have

0:45:58.800 --> 0:46:01.360
<v Speaker 1>we need to have blood CECTS specimens. We need the

0:46:01.400 --> 0:46:05.080
<v Speaker 1>material to do this research. So I thought, wow, now

0:46:05.600 --> 0:46:09.600
<v Speaker 1>I have to create a repository, a blood bank, and

0:46:09.719 --> 0:46:15.000
<v Speaker 1>start collecting blood from patients. When I'm hearing it so

0:46:15.239 --> 0:46:17.919
<v Speaker 1>rare and when Ali was first diagnosed, I was trying

0:46:17.960 --> 0:46:20.880
<v Speaker 1>to just find one person that had this. Now I

0:46:20.960 --> 0:46:26.760
<v Speaker 1>have to amass an entire blood bank of specimens around

0:46:26.800 --> 0:46:31.360
<v Speaker 1>the world, and that was seemingly I thought, how do

0:46:31.400 --> 0:46:34.319
<v Speaker 1>you start? How do you do that? How I did that?

0:46:34.600 --> 0:46:35.279
<v Speaker 2>How do you do that?

0:46:35.400 --> 0:46:38.400
<v Speaker 1>How do you do that? I hired a nurse that

0:46:38.520 --> 0:46:41.680
<v Speaker 1>I said, I'm going to find where these patients are.

0:46:42.120 --> 0:46:44.880
<v Speaker 1>I'm going to send this nurse with a little cooler.

0:46:44.960 --> 0:46:47.799
<v Speaker 1>She would show up with a little cooler and she'd

0:46:47.880 --> 0:46:52.400
<v Speaker 1>go to Alaska or she'd go anywhere, literally taking samples

0:46:52.800 --> 0:46:56.040
<v Speaker 1>and bringing them back. That's how I started. I now

0:46:56.080 --> 0:46:59.800
<v Speaker 1>have over one hundred thousand specimens in my own blood

0:46:59.800 --> 0:47:05.239
<v Speaker 1>bank and viral repository that is used for drug companies.

0:47:05.400 --> 0:47:08.839
<v Speaker 1>I mean, it's it's changed the whole landscape. But if

0:47:08.880 --> 0:47:11.440
<v Speaker 1>somebody would have told me, honestly, Jay, that I would

0:47:11.440 --> 0:47:13.799
<v Speaker 1>be like having to build a blood bank, that I'd

0:47:13.800 --> 0:47:15.920
<v Speaker 1>be doing that. I mean even early on when I

0:47:15.960 --> 0:47:19.839
<v Speaker 1>was trying to get patients to just give their samples,

0:47:20.360 --> 0:47:23.000
<v Speaker 1>I'd be like, how about if we do like blush

0:47:23.040 --> 0:47:25.279
<v Speaker 1>for blood? You get a blush if you give me

0:47:25.320 --> 0:47:28.400
<v Speaker 1>your blood because a lot you know our women, but

0:47:28.520 --> 0:47:32.880
<v Speaker 1>you get creative and you think about that. And I

0:47:32.960 --> 0:47:35.160
<v Speaker 1>knew that the biggest way that I could make the

0:47:35.160 --> 0:47:38.759
<v Speaker 1>difference was getting all these people together in a room

0:47:39.280 --> 0:47:40.680
<v Speaker 1>working in the same direction.

0:47:42.040 --> 0:47:47.400
<v Speaker 2>Well, I mean that you know, it's so inspiring because

0:47:49.320 --> 0:47:51.600
<v Speaker 2>it's so You've just had so many moments in your

0:47:51.600 --> 0:47:54.759
<v Speaker 2>life that I think it would be natural and it

0:47:54.760 --> 0:47:58.479
<v Speaker 2>would be completely okay to give up and slow down

0:47:58.560 --> 0:48:05.720
<v Speaker 2>and just accept. But you and you also, I'm intrigued

0:48:05.800 --> 0:48:09.440
<v Speaker 2>because when I've spent time with you and even today,

0:48:09.719 --> 0:48:14.560
<v Speaker 2>it's not like you're fighting. It's almost like you're creating.

0:48:15.000 --> 0:48:16.680
<v Speaker 2>And I don't know, I'd love to hear your thoughts

0:48:16.760 --> 0:48:21.960
<v Speaker 2>on those two sentiments, because often we think we have

0:48:22.040 --> 0:48:24.799
<v Speaker 2>to fight to stay alive. You started by saying you've

0:48:24.800 --> 0:48:27.840
<v Speaker 2>always been a survivor. Yeah, what do you think is

0:48:27.880 --> 0:48:32.840
<v Speaker 2>core to surviving difficult situations? Is it fighting or is

0:48:32.840 --> 0:48:35.399
<v Speaker 2>it creating opportunity or what is it?

0:48:36.640 --> 0:48:39.000
<v Speaker 1>You know, I've never looked at it as for example,

0:48:39.960 --> 0:48:41.880
<v Speaker 1>put in the in the mix there the thought of

0:48:41.960 --> 0:48:45.120
<v Speaker 1>like being a victim, Like so if you think of

0:48:45.480 --> 0:48:48.160
<v Speaker 1>being a victim, you think more of fighting. So I

0:48:48.200 --> 0:48:50.759
<v Speaker 1>don't think of myself as a victim or you know,

0:48:51.000 --> 0:48:53.360
<v Speaker 1>it was never like, oh, why is this happening to me?

0:48:53.719 --> 0:48:55.399
<v Speaker 2>Was? How did you not have that?

0:48:55.520 --> 0:48:58.000
<v Speaker 1>I mean, I wish there's a lot of times, clearly

0:48:58.080 --> 0:49:00.400
<v Speaker 1>I wish that I had not gone through through a

0:49:00.520 --> 0:49:02.479
<v Speaker 1>rape and gone through what I went through. And there's

0:49:02.520 --> 0:49:04.319
<v Speaker 1>times that I was like, what would it have been

0:49:04.360 --> 0:49:06.200
<v Speaker 1>like if I graduated high school and I went to

0:49:06.280 --> 0:49:09.160
<v Speaker 1>college and all that? But you know, that wasn't in

0:49:09.200 --> 0:49:13.640
<v Speaker 1>the cards. That wasn't my journey or but I've always

0:49:13.680 --> 0:49:17.959
<v Speaker 1>tried to I always try to zoom out and look

0:49:18.120 --> 0:49:23.200
<v Speaker 1>at you know, why is this? You know, what's the

0:49:23.280 --> 0:49:25.719
<v Speaker 1>way in where can I I always want to do

0:49:25.800 --> 0:49:28.960
<v Speaker 1>something good and make the good come out of it.

0:49:30.239 --> 0:49:33.040
<v Speaker 1>That's just how I've always been and I want to

0:49:33.120 --> 0:49:37.600
<v Speaker 1>find that way, and I genuinely always want to help

0:49:37.600 --> 0:49:40.320
<v Speaker 1>and whatever it was whether it was teaching women makeup,

0:49:40.360 --> 0:49:43.399
<v Speaker 1>which is now, which is you know, when I'm sitting

0:49:43.480 --> 0:49:48.680
<v Speaker 1>there at the pharmaceutical company and showing them the path

0:49:48.840 --> 0:49:51.520
<v Speaker 1>why they need to help all these people and how

0:49:51.520 --> 0:49:55.600
<v Speaker 1>they can and again going through their brain trust to

0:49:55.640 --> 0:50:00.120
<v Speaker 1>get them. I mean, think about having to get pharmaceutical companies.

0:50:00.280 --> 0:50:03.279
<v Speaker 1>The fact that I got three drugs made people say

0:50:03.320 --> 0:50:07.480
<v Speaker 1>that never ever happens, let alone in a rare disease world.

0:50:08.040 --> 0:50:12.320
<v Speaker 1>How passionate you have to be about what you're talking

0:50:12.360 --> 0:50:16.399
<v Speaker 1>about and wanting to So it's not really fighting for it,

0:50:16.400 --> 0:50:21.359
<v Speaker 1>it's just helping people find it within themselves. That's what

0:50:21.440 --> 0:50:24.520
<v Speaker 1>I do. I find that one piece, like what you

0:50:24.560 --> 0:50:28.440
<v Speaker 1>do so beautifully, you find that thread, that thing that

0:50:28.520 --> 0:50:31.120
<v Speaker 1>binds all of us, that sense of shared sense of

0:50:31.239 --> 0:50:34.400
<v Speaker 1>humanity and that purpose. I had to find that purpose

0:50:34.560 --> 0:50:36.720
<v Speaker 1>in the room for all those people.

0:50:37.960 --> 0:50:41.880
<v Speaker 2>Yeah, well, what did you end up so far? What

0:50:41.920 --> 0:50:44.840
<v Speaker 2>have you accomplished and how Obviously I named some of

0:50:44.840 --> 0:50:47.160
<v Speaker 2>it there but in the intro, but could you explain

0:50:47.719 --> 0:50:51.600
<v Speaker 2>what has been accomplished and what you're still pursuing so

0:50:51.640 --> 0:50:54.680
<v Speaker 2>that we can just understand from a you know, success

0:50:54.680 --> 0:50:57.480
<v Speaker 2>point of view, Like when you've invented these three drugs,

0:50:58.600 --> 0:51:01.040
<v Speaker 2>but what is yeah, what have what has that achieved?

0:51:01.040 --> 0:51:02.959
<v Speaker 2>What has that stopped? And then what are you still

0:51:02.960 --> 0:51:03.799
<v Speaker 2>trying to figure out?

0:51:03.920 --> 0:51:08.200
<v Speaker 1>So and I never I was hipful to get people

0:51:08.280 --> 0:51:12.000
<v Speaker 1>that invented them because you know, going to obviously genetech

0:51:12.160 --> 0:51:15.160
<v Speaker 1>and where they really you know, that's what they do.

0:51:16.520 --> 0:51:19.279
<v Speaker 1>But now what I learned, so I started to people

0:51:19.280 --> 0:51:21.560
<v Speaker 1>are always going, how are you doing this? Like like

0:51:22.560 --> 0:51:25.400
<v Speaker 1>this this sounds crazy. You're like making lip gloss and

0:51:25.400 --> 0:51:27.160
<v Speaker 1>all of a sudden you're getting these drugs made. Like

0:51:27.239 --> 0:51:29.799
<v Speaker 1>there's a there's a lot in between those that little

0:51:29.880 --> 0:51:32.879
<v Speaker 1>journey there. And that's why I wrote The Power of Rare,

0:51:33.120 --> 0:51:35.879
<v Speaker 1>a Blueprint for Medical Revolution, which is really this is

0:51:36.080 --> 0:51:39.799
<v Speaker 1>because there's other moms, dads, families that are you know,

0:51:39.920 --> 0:51:42.680
<v Speaker 1>going through stories like mine, and I said, I'm going

0:51:42.719 --> 0:51:44.239
<v Speaker 1>to write down at least this is what I did,

0:51:44.239 --> 0:51:46.399
<v Speaker 1>because people always want to know how you did it.

0:51:47.840 --> 0:51:50.480
<v Speaker 1>I found the biggest magic was always bringing early on,

0:51:50.560 --> 0:51:54.800
<v Speaker 1>I brought people together. I had I brought together over gosh,

0:51:55.000 --> 0:51:59.640
<v Speaker 1>forty countries together, and hundreds of researchers and scientists and

0:51:59.680 --> 0:52:04.839
<v Speaker 1>page together. So that's always been so critical in what

0:52:04.880 --> 0:52:07.720
<v Speaker 1>I do. But what I'm doing now is so people

0:52:07.800 --> 0:52:11.319
<v Speaker 1>have said, wow, how have you done it? Look at

0:52:11.320 --> 0:52:16.879
<v Speaker 1>what you've done, Look at autoimmune disease in general, autoimmune

0:52:16.880 --> 0:52:20.239
<v Speaker 1>disease right now, which is what you know Ali has,

0:52:21.080 --> 0:52:24.719
<v Speaker 1>and yes she's on a drug now that is more

0:52:24.840 --> 0:52:28.719
<v Speaker 1>controlling things. But I decided as I listened to you know,

0:52:28.840 --> 0:52:32.279
<v Speaker 1>our president, which is great, he talks about cancer and moonshots,

0:52:32.760 --> 0:52:35.600
<v Speaker 1>I thought, I want to do a cure shot. A

0:52:35.640 --> 0:52:37.479
<v Speaker 1>cure shot. We don't need to go to the moon

0:52:37.640 --> 0:52:42.080
<v Speaker 1>to start curing disease here, and autoimmune disease and cancer

0:52:42.520 --> 0:52:45.760
<v Speaker 1>are opposite sides, are the same coin. And I thought,

0:52:45.800 --> 0:52:48.319
<v Speaker 1>people start going, have you looked at what you're doing

0:52:48.360 --> 0:52:52.920
<v Speaker 1>in the world of autoimmune disease, this particular one, using

0:52:53.120 --> 0:52:57.279
<v Speaker 1>this as a blueprint for curing a lot of other

0:52:57.320 --> 0:53:00.279
<v Speaker 1>autommune diseases. So that's really what I'm passionate about now.

0:53:00.280 --> 0:53:03.040
<v Speaker 1>And I have to say I have an amazing team

0:53:03.520 --> 0:53:06.520
<v Speaker 1>that supports me. I couldn't have gone through this journey

0:53:06.560 --> 0:53:10.160
<v Speaker 1>without a doctor Michael Yaman, who's head of molecular Medicine

0:53:10.160 --> 0:53:13.239
<v Speaker 1>at UCLA. I mean, he's the scientist that you know.

0:53:13.640 --> 0:53:16.560
<v Speaker 1>We've gone everywhere from you know, the Harvard's to the

0:53:16.600 --> 0:53:19.920
<v Speaker 1>Mayo to we were doing work with Verily at Google

0:53:20.320 --> 0:53:23.920
<v Speaker 1>looking at biomarkers. I mean, he's always by my side

0:53:23.920 --> 0:53:26.719
<v Speaker 1>and probably one of the smartest people. So I'm very

0:53:26.760 --> 0:53:29.720
<v Speaker 1>fortunate that I've put together a great team of people

0:53:30.239 --> 0:53:33.960
<v Speaker 1>and they see how far we've come. So I'm actually

0:53:34.000 --> 0:53:37.040
<v Speaker 1>looking at how this story ends. Is I'm gonna like

0:53:37.360 --> 0:53:40.400
<v Speaker 1>bringing be a big part in working and curing autoimmune

0:53:40.400 --> 0:53:44.200
<v Speaker 1>disease around the world, because you know, Ali said early

0:53:44.280 --> 0:53:46.880
<v Speaker 1>on in her journey, and her journey is really for

0:53:46.920 --> 0:53:51.080
<v Speaker 1>her to talk about. But she said, Mom, this isn't

0:53:51.120 --> 0:53:55.040
<v Speaker 1>just about you and you and me anymore. And that

0:53:55.200 --> 0:53:57.640
<v Speaker 1>was a turning point. I was like, you're right, it's not.

0:53:58.120 --> 0:53:59.880
<v Speaker 1>And when I see now all the patients and the

0:54:00.160 --> 0:54:04.319
<v Speaker 1>parents and you know, and I just feel if my

0:54:04.480 --> 0:54:09.920
<v Speaker 1>voice can help give voice to to other people, this

0:54:09.960 --> 0:54:11.080
<v Speaker 1>is this is what I'm doing.

0:54:11.520 --> 0:54:15.320
<v Speaker 2>And for our views and for our listeners, how is Ellie.

0:54:15.840 --> 0:54:18.759
<v Speaker 1>Alie's doing really well. She passed the bar, she went

0:54:18.800 --> 0:54:21.439
<v Speaker 1>to law school. She she was her own champion. I mean,

0:54:21.680 --> 0:54:23.680
<v Speaker 1>I think early on, you know, she was like, Mom,

0:54:24.160 --> 0:54:26.520
<v Speaker 1>I don't want to know what I have. Don't tell me,

0:54:26.880 --> 0:54:29.200
<v Speaker 1>which was really can you imagine in the early days

0:54:29.200 --> 0:54:32.600
<v Speaker 1>of walking around thinking, oh my gosh, my daughter has

0:54:32.640 --> 0:54:34.839
<v Speaker 1>four years doesn't even want to know, but she goes,

0:54:34.840 --> 0:54:37.080
<v Speaker 1>I know, whatever it is, mom, you'll you'll figure it out.

0:54:37.160 --> 0:54:40.319
<v Speaker 1>And but Alie's really the one who has uh has

0:54:40.360 --> 0:54:43.120
<v Speaker 1>figured it out, and and she's doing really well and

0:54:43.160 --> 0:54:45.880
<v Speaker 1>she's a champion, and you know, you see how the

0:54:45.920 --> 0:54:48.480
<v Speaker 1>toll it takes even on you know, I have two

0:54:48.480 --> 0:54:51.800
<v Speaker 1>other children, and one at the time was a musician,

0:54:52.040 --> 0:54:55.320
<v Speaker 1>you know, on the road opening for One Direction for years,

0:54:56.520 --> 0:54:59.080
<v Speaker 1>and he's out on the road, and I'm you know,

0:54:59.200 --> 0:55:02.880
<v Speaker 1>going and going to these different institutions. And I should

0:55:02.880 --> 0:55:06.080
<v Speaker 1>say because as people are going through this and whatever

0:55:06.120 --> 0:55:09.360
<v Speaker 1>your journey is. Even while I was going through this

0:55:09.480 --> 0:55:13.239
<v Speaker 1>and this was Alley's, there was at one point that

0:55:13.680 --> 0:55:19.440
<v Speaker 1>I myself became diagnosed with cancer and I had to

0:55:20.560 --> 0:55:25.520
<v Speaker 1>really sort of go, this can't be again that visualization.

0:55:25.680 --> 0:55:27.840
<v Speaker 1>I was like, this isn't going to be the movie

0:55:28.360 --> 0:55:31.400
<v Speaker 1>where like the mom's trying to save the daughter but

0:55:31.480 --> 0:55:35.399
<v Speaker 1>then she gets cancer and she dies or Lorenzo's Oil

0:55:35.440 --> 0:55:38.240
<v Speaker 1>which people told me about where you know he dies.

0:55:38.320 --> 0:55:41.839
<v Speaker 1>It was like, no, I'm going to whatever the odds are,

0:55:41.960 --> 0:55:45.960
<v Speaker 1>whatever things happen, there's another way to look at it

0:55:46.040 --> 0:55:49.239
<v Speaker 1>and another way to persevere and get through it.

0:55:50.040 --> 0:55:52.480
<v Speaker 2>What have you learned about? So, Like, let's say there

0:55:52.480 --> 0:55:54.959
<v Speaker 2>are people in the audience who are listening or watching

0:55:55.000 --> 0:55:57.800
<v Speaker 2>today they know someone who's struggling with an autoimmune disease

0:55:58.000 --> 0:56:00.839
<v Speaker 2>or someone in their life or maybe even and even

0:56:00.880 --> 0:56:04.200
<v Speaker 2>if they are, I have people to my family and life.

0:56:05.200 --> 0:56:06.920
<v Speaker 2>Where did they start? What do they do? Where do

0:56:07.000 --> 0:56:09.560
<v Speaker 2>they get help? Like? What what are the best places

0:56:09.600 --> 0:56:12.720
<v Speaker 2>that you've seen or places of support, especially if people

0:56:13.280 --> 0:56:17.160
<v Speaker 2>on in a you know, financial don't have financial capacity

0:56:17.200 --> 0:56:19.120
<v Speaker 2>to help solve some of those things.

0:56:19.160 --> 0:56:22.200
<v Speaker 1>Well, first and foremost they have to start within. They

0:56:22.200 --> 0:56:25.320
<v Speaker 1>have to find their voice and not be a victim

0:56:25.360 --> 0:56:29.560
<v Speaker 1>of it, but go what what can I do in

0:56:29.600 --> 0:56:33.880
<v Speaker 1>my situation? When I created I created an app Enimo

0:56:34.080 --> 0:56:38.320
<v Speaker 1>Resources and I started to put together building an actual

0:56:38.320 --> 0:56:41.839
<v Speaker 1>community for patients to have support groups. So look for

0:56:42.000 --> 0:56:45.600
<v Speaker 1>other people that are going through what you're going through

0:56:45.640 --> 0:56:49.239
<v Speaker 1>and start going through that. You know, having people that

0:56:49.320 --> 0:56:53.560
<v Speaker 1>you surround yourself in life. Try to put together a team,

0:56:53.840 --> 0:56:56.399
<v Speaker 1>even at whatever level. And I know people will look

0:56:56.400 --> 0:56:58.319
<v Speaker 1>at and I've heard people like betray it. We don't

0:56:58.360 --> 0:57:00.360
<v Speaker 1>have the money you have and all of that. No,

0:57:00.440 --> 0:57:02.720
<v Speaker 1>but you have a voice, and you know if something

0:57:02.760 --> 0:57:07.880
<v Speaker 1>you're hearing doesn't feel right, getting those second opinions. Advocate

0:57:08.000 --> 0:57:11.359
<v Speaker 1>for yourself. That's a really, really big part of it

0:57:11.400 --> 0:57:14.120
<v Speaker 1>and a big part of what I do when I'm

0:57:14.160 --> 0:57:17.680
<v Speaker 1>doing my patient days where i bring together hundreds of

0:57:17.720 --> 0:57:21.840
<v Speaker 1>patients together, I'm advocating for them, but I'm getting them

0:57:21.920 --> 0:57:25.400
<v Speaker 1>ultimately to advocate for themselves because that's what they need

0:57:25.440 --> 0:57:31.120
<v Speaker 1>to do and seek out. Just do the research, go online,

0:57:31.200 --> 0:57:34.360
<v Speaker 1>look at the different things that you know, and sort

0:57:34.360 --> 0:57:37.960
<v Speaker 1>of vet them for yourself and see what feels right.

0:57:38.000 --> 0:57:42.680
<v Speaker 1>It's all about taking action. I'm working on another book

0:57:42.760 --> 0:57:45.760
<v Speaker 1>right now that'll come out next year, but it's called

0:57:46.000 --> 0:57:51.040
<v Speaker 1>Worrier to Warrior and Worry. I always say, worry ways

0:57:51.120 --> 0:57:54.240
<v Speaker 1>more when you carry it alone. So you got to

0:57:54.280 --> 0:57:58.600
<v Speaker 1>take that worry and kind of redirect it and channel

0:57:58.640 --> 0:58:03.160
<v Speaker 1>it and do the things become that warrior for yourself

0:58:03.680 --> 0:58:07.400
<v Speaker 1>that will ultimately lead you to a better place.

0:58:08.040 --> 0:58:11.600
<v Speaker 2>Victoria, You've been so vulnerable and generous and kind today

0:58:11.640 --> 0:58:15.280
<v Speaker 2>with sharing your journey, sharing challenging moments, and today I

0:58:15.320 --> 0:58:17.080
<v Speaker 2>just want everyone who's listening watching to know we have

0:58:17.160 --> 0:58:21.080
<v Speaker 2>only skimmed the iceberg of the amount of work, the

0:58:21.480 --> 0:58:24.840
<v Speaker 2>depth the story, and so I highly recommend that both

0:58:24.840 --> 0:58:27.200
<v Speaker 2>of these books, saving each other and the power of

0:58:27.280 --> 0:58:30.840
<v Speaker 2>Rare if you're truly fascinated by the depths of this

0:58:31.000 --> 0:58:34.000
<v Speaker 2>story and journey, that you dive into those two books,

0:58:34.040 --> 0:58:36.800
<v Speaker 2>because like I said, we've only we've only touched the

0:58:36.800 --> 0:58:40.320
<v Speaker 2>tip of the iceberg. But Victoria, we end every on

0:58:40.400 --> 0:58:42.920
<v Speaker 2>purpose interview with a final five or a fast five,

0:58:42.960 --> 0:58:45.440
<v Speaker 2>which have to be answered in one word to one

0:58:45.560 --> 0:58:48.960
<v Speaker 2>sentence maximum, and I always ruin it by asking for

0:58:49.000 --> 0:58:52.760
<v Speaker 2>more details. So that's up to me. But Victoria, I'd

0:58:52.840 --> 0:58:55.520
<v Speaker 2>like to ask you your final five. The first question

0:58:55.640 --> 0:58:58.920
<v Speaker 2>is what is the best advice you've ever heard or received.

0:59:01.600 --> 0:59:05.320
<v Speaker 1>I'd say my mom early on said wash your face,

0:59:05.840 --> 0:59:09.240
<v Speaker 1>put on some makeup, and just go out there and

0:59:09.280 --> 0:59:09.600
<v Speaker 1>do it.

0:59:11.240 --> 0:59:15.040
<v Speaker 2>I like that, that makes sense, that's the makeup allnes.

0:59:14.760 --> 0:59:18.120
<v Speaker 1>And then I started a cosmetic company.

0:59:18.320 --> 0:59:21.160
<v Speaker 2>What you tell your kids every day? Just yeah, that's great.

0:59:21.800 --> 0:59:24.680
<v Speaker 2>Second question, what is the worst advice you've ever heard

0:59:24.800 --> 0:59:25.360
<v Speaker 2>or received?

0:59:25.640 --> 0:59:28.800
<v Speaker 1>You'll never be able to do that. You know you're

0:59:29.240 --> 0:59:31.640
<v Speaker 1>you're aiming too high.

0:59:32.320 --> 0:59:36.320
<v Speaker 2>So true. Question number three, how would you define your

0:59:36.440 --> 0:59:37.440
<v Speaker 2>current purpose?

0:59:38.840 --> 0:59:43.080
<v Speaker 1>Oh, gosh, I mean that's my purpose is to cure

0:59:43.160 --> 0:59:46.480
<v Speaker 1>autoimmune disease around the world. But really is my purpose

0:59:46.560 --> 0:59:49.320
<v Speaker 1>is to just be a good a good person, a

0:59:49.400 --> 0:59:54.000
<v Speaker 1>kind person, to help people and truly just share all

0:59:54.000 --> 0:59:58.439
<v Speaker 1>the blessings of the good fortune in my life. That's

0:59:58.480 --> 0:59:59.320
<v Speaker 1>really my purpose.

1:00:00.120 --> 1:00:06.560
<v Speaker 2>Question numb before you use this phrase a few times

1:00:06.560 --> 1:00:08.760
<v Speaker 2>in the interview, like finding your voice, you have to

1:00:08.800 --> 1:00:10.920
<v Speaker 2>have a voice finding What is the best way for

1:00:11.000 --> 1:00:14.439
<v Speaker 2>someone to find their voice when they feel they've had

1:00:14.440 --> 1:00:21.160
<v Speaker 2>to be quiet, silence, or they never had one in

1:00:21.200 --> 1:00:21.960
<v Speaker 2>the first place.

1:00:22.800 --> 1:00:26.440
<v Speaker 1>Well, I don't believe nobody's had not had a voice

1:00:26.960 --> 1:00:31.040
<v Speaker 1>in the first place. We all have that. It's for me.

1:00:31.400 --> 1:00:35.680
<v Speaker 1>I always encourage people to just to get quiet with yourself,

1:00:35.800 --> 1:00:40.320
<v Speaker 1>which is different than becoming quiet, but getting quiet with

1:00:40.400 --> 1:00:43.600
<v Speaker 1>yourself kind of a lot of times I use that

1:00:43.720 --> 1:00:49.840
<v Speaker 1>visualization of just zooming out and hearing myself say it

1:00:50.200 --> 1:00:52.760
<v Speaker 1>in my mind and then letting the words come out,

1:00:52.920 --> 1:00:54.920
<v Speaker 1>just like they did when I made my scream and

1:00:54.960 --> 1:00:58.800
<v Speaker 1>I was afraid so and those words came out. Is

1:00:59.800 --> 1:01:05.280
<v Speaker 1>be willing to do it? Just just do it, you know,

1:01:06.040 --> 1:01:11.560
<v Speaker 1>I'm just that's so important to me. Just get quiet,

1:01:11.880 --> 1:01:14.920
<v Speaker 1>center yourself, think about it, and then just say it,

1:01:15.240 --> 1:01:16.360
<v Speaker 1>move it, move through it.

1:01:16.520 --> 1:01:21.200
<v Speaker 2>Just do it, beautiful. And fifth and final question, if

1:01:21.240 --> 1:01:24.120
<v Speaker 2>you could create one law that everyone in the world

1:01:24.160 --> 1:01:26.200
<v Speaker 2>had to follow, what would it be.

1:01:27.760 --> 1:01:30.240
<v Speaker 1>If we could all just get back to our shared

1:01:30.320 --> 1:01:36.360
<v Speaker 1>sense of humanity? You know that, really more than not

1:01:36.760 --> 1:01:39.840
<v Speaker 1>people are good people. I have seen and that is

1:01:39.960 --> 1:01:43.480
<v Speaker 1>one thing, Jay, I'll tell you working with forty different

1:01:43.480 --> 1:01:47.760
<v Speaker 1>countries and all the different researchers and scientists from around

1:01:47.800 --> 1:01:51.800
<v Speaker 1>the world, when they walk in the doors of my conferences,

1:01:52.200 --> 1:01:57.439
<v Speaker 1>everybody there is there to really help people. All the politics,

1:01:57.560 --> 1:02:01.520
<v Speaker 1>all the other stuff were there to help people, and

1:02:01.680 --> 1:02:03.800
<v Speaker 1>just that if we could just get back to that

1:02:03.840 --> 1:02:08.360
<v Speaker 1>shared sense of humanity and loving one another, it would

1:02:08.440 --> 1:02:09.360
<v Speaker 1>be nothing better than that.

1:02:10.520 --> 1:02:12.640
<v Speaker 2>Thank you, Victoria. Is there anything that I haven't asked

1:02:12.640 --> 1:02:14.720
<v Speaker 2>you today that you deeply want to share, or something

1:02:14.760 --> 1:02:16.560
<v Speaker 2>on your heart or your mind or your soul that

1:02:17.280 --> 1:02:20.360
<v Speaker 2>you feel pull to share?

1:02:20.640 --> 1:02:22.480
<v Speaker 1>I don't know what do you think people hearing this

1:02:22.520 --> 1:02:28.080
<v Speaker 1>will they will they benefit from it? I mean you're

1:02:28.480 --> 1:02:29.960
<v Speaker 1>hearing it from the first time.

1:02:30.200 --> 1:02:33.000
<v Speaker 2>It's so I mean, I meant everything I said, it's

1:02:33.080 --> 1:02:38.440
<v Speaker 2>so honestly moving to hear a journey of someone just

1:02:38.080 --> 1:02:42.640
<v Speaker 2>a just a real human story of someone who achieved

1:02:43.320 --> 1:02:51.400
<v Speaker 2>material success after so much personal tribulation and trauma, to

1:02:51.600 --> 1:02:59.000
<v Speaker 2>then switch to a service based life and now dedicated

1:02:59.040 --> 1:03:02.040
<v Speaker 2>even further of course through helping ALI, but now to

1:03:02.120 --> 1:03:08.080
<v Speaker 2>helping autoimmune diseases as a whole. Yeah, I mean, I

1:03:08.080 --> 1:03:10.440
<v Speaker 2>don't know if there's a better story up for a movie.

1:03:11.320 --> 1:03:13.400
<v Speaker 2>You know, it's like that, you know, I don't know

1:03:13.480 --> 1:03:18.680
<v Speaker 2>if it's almost like you couldn't write it. Yeah, because

1:03:18.720 --> 1:03:22.080
<v Speaker 2>it's so powerful that someone would be able to rise

1:03:22.200 --> 1:03:28.520
<v Speaker 2>from those situations, even you know, third marriage you said lately.

1:03:28.720 --> 1:03:31.360
<v Speaker 1>Yeah, yeah, of course, yeahah yeah yeah.

1:03:31.400 --> 1:03:34.720
<v Speaker 2>But I mean, like to go through that, after what

1:03:34.760 --> 1:03:38.520
<v Speaker 2>you've been through, to have that ability to find love

1:03:38.560 --> 1:03:42.280
<v Speaker 2>again and create love and then to have a child

1:03:42.360 --> 1:03:45.760
<v Speaker 2>and kind of have everything picture perfect externally, it may

1:03:45.840 --> 1:03:48.720
<v Speaker 2>seem to then have the worst news you could potentially

1:03:48.800 --> 1:03:52.120
<v Speaker 2>ask for, And you know, I think it's going to

1:03:52.160 --> 1:03:54.480
<v Speaker 2>move and help a lot of people I wouldn't have.

1:03:55.400 --> 1:03:59.520
<v Speaker 2>I mean, I don't know many people who've lived that life.

1:03:59.280 --> 1:04:02.120
<v Speaker 1>So yeah, well, you know what I mean, honestly, just

1:04:02.160 --> 1:04:05.560
<v Speaker 1>the fact that You've given me the opportunity because you know,

1:04:05.560 --> 1:04:07.320
<v Speaker 1>there are probably a lot of people that are going

1:04:07.360 --> 1:04:09.760
<v Speaker 1>through what they go through, and it's hard to get

1:04:09.800 --> 1:04:13.200
<v Speaker 1>people to pay attention. Getting press early on was like

1:04:13.400 --> 1:04:16.479
<v Speaker 1>forget it. I mean it's like it's not sexy, it's

1:04:16.520 --> 1:04:19.480
<v Speaker 1>not you know, people are talking about whatever. It's always

1:04:19.520 --> 1:04:22.320
<v Speaker 1>something that and to me, it's like, this is a

1:04:22.360 --> 1:04:25.800
<v Speaker 1>great story for how things can actually happen when you

1:04:25.960 --> 1:04:29.600
<v Speaker 1>really do see how these doctors and patients and people

1:04:29.640 --> 1:04:33.960
<v Speaker 1>work together and what's been built. It really is extraordinary.

1:04:33.960 --> 1:04:38.280
<v Speaker 1>I mean it's been fifteen years now and just even

1:04:38.360 --> 1:04:41.640
<v Speaker 1>you know, just going through the Hall of Fame, you know,

1:04:41.720 --> 1:04:45.760
<v Speaker 1>which was amazing. Just to have that experience of having

1:04:46.120 --> 1:04:50.160
<v Speaker 1>Gloria Steinem induct me into the Hall of Fame or

1:04:50.200 --> 1:04:55.240
<v Speaker 1>the Pope which will get you there was all extraordinary.

1:04:55.280 --> 1:04:58.600
<v Speaker 1>You know, who would think that somebody who didn't graduate

1:04:58.680 --> 1:05:01.200
<v Speaker 1>high school and you know, as all of a sudden

1:05:01.520 --> 1:05:02.600
<v Speaker 1>those kinds of things.

1:05:02.880 --> 1:05:05.760
<v Speaker 2>How much have you invested now in this gen How

1:05:05.840 --> 1:05:08.240
<v Speaker 2>much have you personally invested into this I've put.

1:05:08.080 --> 1:05:10.760
<v Speaker 1>In eighty million dollars of my own money.

1:05:10.840 --> 1:05:14.680
<v Speaker 2>Yeah, yeah, that's incredible. Yeah, And that's that's that's important too.

1:05:14.640 --> 1:05:18.400
<v Speaker 1>And that eighty million dollars is really you know, you

1:05:18.440 --> 1:05:21.560
<v Speaker 1>look at that, it's hundreds of millions that a pharmaceutical

1:05:21.560 --> 1:05:23.959
<v Speaker 1>company had to put in. And I had to show

1:05:24.000 --> 1:05:27.120
<v Speaker 1>them and build a model to show them how they

1:05:27.200 --> 1:05:29.680
<v Speaker 1>can make money, you know. And I could have just

1:05:29.920 --> 1:05:31.960
<v Speaker 1>you know, become angry or like why do I have

1:05:32.040 --> 1:05:33.680
<v Speaker 1>to do that? They can just do that, but you

1:05:33.760 --> 1:05:36.480
<v Speaker 1>have to you have to kind of I sit in

1:05:36.600 --> 1:05:39.880
<v Speaker 1>everybody's seat always in my mind in the room and go,

1:05:40.000 --> 1:05:43.040
<v Speaker 1>how do I get everyone aligned so that we can

1:05:43.080 --> 1:05:47.040
<v Speaker 1>all keep moving forward? And that was really really important

1:05:47.200 --> 1:05:51.120
<v Speaker 1>is to look at what everybody's needs were in that room,

1:05:51.240 --> 1:05:55.560
<v Speaker 1>what different countries, different institutions. But then saying to the

1:05:55.600 --> 1:06:01.040
<v Speaker 1>Mayo Clinic, like, unless you know you work with or

1:06:01.200 --> 1:06:04.640
<v Speaker 1>whoever that is, you know, I'm not writing this check.

1:06:04.800 --> 1:06:08.400
<v Speaker 1>So everybody had to work with another institution in all

1:06:08.440 --> 1:06:09.080
<v Speaker 1>the research.

1:06:09.680 --> 1:06:13.640
<v Speaker 2>I think that's the most beautiful thing that it's you're

1:06:13.680 --> 1:06:16.920
<v Speaker 2>just using the success you had in service. I mean,

1:06:16.960 --> 1:06:20.120
<v Speaker 2>what better use of success is there than in service

1:06:20.200 --> 1:06:24.960
<v Speaker 2>to others. Yeah, and now that you're dedicated to helping

1:06:24.960 --> 1:06:30.680
<v Speaker 2>hopefully prevent and solve autoimmune diseases, I mean yeah, I

1:06:30.760 --> 1:06:32.760
<v Speaker 2>feel like, so you're so right that so many people

1:06:32.760 --> 1:06:36.360
<v Speaker 2>are misdiagnosed or undiagnosed, diagnosed too late, Like I'm hearing

1:06:36.400 --> 1:06:37.560
<v Speaker 2>about it all the time.

1:06:38.040 --> 1:06:41.120
<v Speaker 1>That's what this will really help JA too, is that

1:06:41.160 --> 1:06:45.000
<v Speaker 1>because so many people are misdiagnosed with different things. Most

1:06:45.040 --> 1:06:48.600
<v Speaker 1>of the patients that now have what Ali has, they've

1:06:48.600 --> 1:06:52.600
<v Speaker 1>been misdiagnosed before the doctors even knew what it was.

1:06:52.640 --> 1:06:55.720
<v Speaker 1>They were misdiagnosed with MS or so that's why there's

1:06:55.800 --> 1:06:59.280
<v Speaker 1>so many more patients than originally they thought. And I

1:06:59.400 --> 1:07:02.680
<v Speaker 1>created there's an essay that it's literally a blood test

1:07:02.840 --> 1:07:04.560
<v Speaker 1>that tells you if you have it.

1:07:04.680 --> 1:07:07.360
<v Speaker 2>So how accessible is that for everyone?

1:07:08.040 --> 1:07:10.720
<v Speaker 1>Anybody can get it? Anybody can get it. I mean

1:07:10.720 --> 1:07:13.920
<v Speaker 1>in this case, the doctor mark checked that box, you know,

1:07:14.040 --> 1:07:17.520
<v Speaker 1>for that test. But yeah, but that's why I created

1:07:17.520 --> 1:07:19.280
<v Speaker 1>the app and things, because when you go to an

1:07:19.320 --> 1:07:21.960
<v Speaker 1>emergency room, a lot of people they won't even know

1:07:22.000 --> 1:07:26.040
<v Speaker 1>about this condition. So and then when you're not getting treated,

1:07:26.640 --> 1:07:27.919
<v Speaker 1>you're just having more and more.

1:07:28.000 --> 1:07:29.919
<v Speaker 2>How does the appo? Anyone can use it from home?

1:07:30.320 --> 1:07:32.520
<v Speaker 1>The app? Yeah, it's on your phone. It's just on

1:07:32.560 --> 1:07:32.960
<v Speaker 1>your phone.

1:07:33.160 --> 1:07:35.080
<v Speaker 2>I can you tell us what exactly.

1:07:35.120 --> 1:07:40.680
<v Speaker 1>The app is called NM Resources and you literally download

1:07:40.720 --> 1:07:43.919
<v Speaker 1>it and it's got everything. I mean, it's it's extraordinary

1:07:43.920 --> 1:07:46.120
<v Speaker 1>to see there isn't something like this that exists. And

1:07:46.160 --> 1:07:49.720
<v Speaker 1>then it's totally free. It's got everything from the clinical

1:07:49.760 --> 1:07:53.160
<v Speaker 1>trials that are going on, to support groups. Anywhere in

1:07:53.200 --> 1:07:56.320
<v Speaker 1>the world where you are, you can find a physician.

1:07:56.880 --> 1:07:59.240
<v Speaker 1>It talks about what a relapse looks like. I mean,

1:07:59.480 --> 1:08:02.440
<v Speaker 1>if you have an attack, you go into an emergency room,

1:08:02.840 --> 1:08:05.960
<v Speaker 1>you show them the app, everything is right there. I mean,

1:08:06.000 --> 1:08:08.800
<v Speaker 1>it's really extraordinary. I want, it's something that people would

1:08:08.840 --> 1:08:12.760
<v Speaker 1>have in real time if you had this for all conditions.

1:08:13.280 --> 1:08:16.640
<v Speaker 1>I mean, people creating something like this, it's amazing.

1:08:17.160 --> 1:08:19.920
<v Speaker 2>Are you trying to do that for other or timmune

1:08:19.920 --> 1:08:20.679
<v Speaker 2>diseases as well?

1:08:20.720 --> 1:08:24.439
<v Speaker 1>Now what I'm doing now, especially in the one with

1:08:24.680 --> 1:08:27.879
<v Speaker 1>Alli's case, is a lot of times in different conditions,

1:08:27.880 --> 1:08:30.920
<v Speaker 1>you don't know if you're having a relapse. So I'm

1:08:30.920 --> 1:08:34.280
<v Speaker 1>working with Verile, which is part of Google, in helping

1:08:34.400 --> 1:08:38.160
<v Speaker 1>find all the biomarkers. And also I've created something called

1:08:38.160 --> 1:08:41.760
<v Speaker 1>a relapse Navigator which doctors will be using that you know,

1:08:42.439 --> 1:08:44.679
<v Speaker 1>is really kind of a shell for you can put

1:08:44.680 --> 1:08:48.040
<v Speaker 1>in the different symptoms and things that you'll be able

1:08:48.080 --> 1:08:51.760
<v Speaker 1>to patience and doctors can know if they're having attacks. So,

1:08:52.400 --> 1:08:55.120
<v Speaker 1>you know, thinking about technology now, with where we're going

1:08:55.200 --> 1:08:58.160
<v Speaker 1>to be with AI and all of these things. I mean,

1:08:58.479 --> 1:09:01.559
<v Speaker 1>when I started it, just I think there was maybe

1:09:02.000 --> 1:09:04.920
<v Speaker 1>three papers that were published on what it used to

1:09:04.920 --> 1:09:09.559
<v Speaker 1>be called before Anamodevik's disease, and now there's thousands that

1:09:09.640 --> 1:09:11.799
<v Speaker 1>have been published. Ands I've been doing this work literally

1:09:11.800 --> 1:09:12.240
<v Speaker 1>a thousands.

1:09:12.280 --> 1:09:14.640
<v Speaker 2>It's been fifteen years that you've been fifteen.

1:09:14.200 --> 1:09:18.040
<v Speaker 1>Years, Yeah, fifteen years. I've been doing this fifteen years.

1:09:18.080 --> 1:09:21.360
<v Speaker 1>I've waited to talk to you, or to talk in general,

1:09:21.479 --> 1:09:24.519
<v Speaker 1>just to get to get the message out there, you know,

1:09:24.640 --> 1:09:28.160
<v Speaker 1>because really it's really really tough, and I know there's

1:09:28.200 --> 1:09:30.839
<v Speaker 1>a lot of people in the world that are suffering

1:09:30.880 --> 1:09:33.679
<v Speaker 1>with these kind of conditions and diseases, and there's probably

1:09:33.680 --> 1:09:36.080
<v Speaker 1>a lot of parents that are trying to figure it

1:09:36.120 --> 1:09:39.439
<v Speaker 1>out and figure out how to make enough noise or

1:09:39.439 --> 1:09:44.519
<v Speaker 1>get the attention because autoimmune disease is not you know,

1:09:44.560 --> 1:09:47.640
<v Speaker 1>going away anytime soon until we all really put our

1:09:47.680 --> 1:09:50.759
<v Speaker 1>focus on it and know that if we can cure

1:09:50.800 --> 1:09:55.160
<v Speaker 1>autoimmune disease and cancer, I mean, think of and they

1:09:55.200 --> 1:09:59.000
<v Speaker 1>are different sides of the same coin. When you treat one,

1:09:59.080 --> 1:10:02.200
<v Speaker 1>you get the other. So it's you're much more vulnerable

1:10:02.240 --> 1:10:02.559
<v Speaker 1>to that.

1:10:03.160 --> 1:10:06.479
<v Speaker 2>And what's that gap? Like what is because you always

1:10:06.560 --> 1:10:08.840
<v Speaker 2>feel I guess we assume that so much money is

1:10:08.880 --> 1:10:12.759
<v Speaker 2>going towards solving cancer and solving this. If is money,

1:10:12.760 --> 1:10:15.320
<v Speaker 2>the issue is time, the issues, collaboration, the issue, like

1:10:15.360 --> 1:10:16.400
<v Speaker 2>what's the I.

1:10:16.320 --> 1:10:19.080
<v Speaker 1>Think what makes me the craziest is when people give

1:10:19.200 --> 1:10:21.519
<v Speaker 1>a lot of money, say they're very well intentioned, they're

1:10:21.560 --> 1:10:25.280
<v Speaker 1>giving money to something, but it's going to maybe to

1:10:25.360 --> 1:10:28.880
<v Speaker 1>pay for a chair for a professor, or you know,

1:10:28.920 --> 1:10:32.280
<v Speaker 1>it's not going where it needs to go one hundred percent.

1:10:32.600 --> 1:10:35.000
<v Speaker 1>You know, we're pretty much I've put in eighty million

1:10:35.040 --> 1:10:39.120
<v Speaker 1>dollars with my own money, of our family money. Every

1:10:39.439 --> 1:10:42.960
<v Speaker 1>penny goes to research and science a lot of places.

1:10:43.000 --> 1:10:47.559
<v Speaker 1>It just doesn't or it's not put to Like everything

1:10:47.600 --> 1:10:51.320
<v Speaker 1>I do is trunched. I have to see results. Everything

1:10:51.400 --> 1:10:56.880
<v Speaker 1>has to be translational, meaning bench to bedside. If you

1:10:56.920 --> 1:10:59.439
<v Speaker 1>don't see that, it's going to be really on the

1:10:59.479 --> 1:11:02.320
<v Speaker 1>critical PA have to make a difference. I don't fund it.

1:11:02.720 --> 1:11:05.080
<v Speaker 1>So a lot of money is spent on things that

1:11:05.600 --> 1:11:08.519
<v Speaker 1>you know, scientists and God bless them, but they'll research,

1:11:08.600 --> 1:11:10.680
<v Speaker 1>you know, the head of a pin forever, you know.

1:11:10.760 --> 1:11:13.240
<v Speaker 1>I mean you have to sort of be very strategic

1:11:13.840 --> 1:11:17.080
<v Speaker 1>and you have to go, Okay, where is the gold

1:11:17.160 --> 1:11:20.439
<v Speaker 1>in this that I'm going to fund it because it's

1:11:20.479 --> 1:11:21.960
<v Speaker 1>really going to make a difference.

1:11:22.520 --> 1:11:24.320
<v Speaker 2>And why is it important for the people to make

1:11:24.439 --> 1:11:26.559
<v Speaker 2>a noise because like you said, like they can't help

1:11:26.600 --> 1:11:30.519
<v Speaker 2>solve it. They can't. They necessarily the solutions don't exist

1:11:30.600 --> 1:11:36.160
<v Speaker 2>right now. If someone's struggling, what's your take for the prevention,

1:11:36.280 --> 1:11:40.160
<v Speaker 2>but also like the living with for someone who you know,

1:11:40.960 --> 1:11:43.720
<v Speaker 2>what is that? Obviously some of that for NMO is

1:11:43.760 --> 1:11:46.080
<v Speaker 2>in the app. Yeah, but if it's all two immune

1:11:46.120 --> 1:11:47.679
<v Speaker 2>diseases in general, Oh.

1:11:47.600 --> 1:11:50.639
<v Speaker 1>Yeah, I mean I think that basically, well, I would

1:11:50.680 --> 1:11:53.360
<v Speaker 1>tell anybody that has an autoimmune disease, look at this

1:11:53.520 --> 1:11:55.519
<v Speaker 1>and look at the things that we recommend. I mean,

1:11:55.520 --> 1:11:58.720
<v Speaker 1>obviously you've got to be speaking to your own doctors

1:11:58.760 --> 1:12:02.360
<v Speaker 1>and following your own medical advice because you know, I'm

1:12:02.400 --> 1:12:06.280
<v Speaker 1>not a doctor. I'm like doctor mom, you know, but

1:12:06.680 --> 1:12:09.760
<v Speaker 1>I would say that, you know, there's a lot more

1:12:09.840 --> 1:12:14.120
<v Speaker 1>research out there and people that are making huge advances

1:12:14.120 --> 1:12:15.840
<v Speaker 1>that a lot of people don't even know about so

1:12:15.920 --> 1:12:19.040
<v Speaker 1>you have to really advocate and do the research and

1:12:19.080 --> 1:12:21.720
<v Speaker 1>do the deep dive. Don't just go with what the

1:12:21.760 --> 1:12:24.760
<v Speaker 1>one doctor may say to you. There's a lot of

1:12:24.800 --> 1:12:27.960
<v Speaker 1>people working in these areas that you may know nothing about.

1:12:28.320 --> 1:12:30.559
<v Speaker 1>And look at it on the broad spectrum of like

1:12:30.960 --> 1:12:33.640
<v Speaker 1>set it on the world stage, look at it globally,

1:12:33.720 --> 1:12:37.400
<v Speaker 1>see what they're doing in different countries. You know, really

1:12:37.640 --> 1:12:40.000
<v Speaker 1>educate yourself. That's what I had to do. I mean

1:12:40.040 --> 1:12:43.880
<v Speaker 1>I had to really learn it and study it and

1:12:44.120 --> 1:12:47.519
<v Speaker 1>understand it so you just can't be a victim of it.

1:12:47.880 --> 1:12:50.160
<v Speaker 1>And I know that's a lot easier said than done,

1:12:50.280 --> 1:12:53.760
<v Speaker 1>especially when you're in pain and you're struggling and you

1:12:53.840 --> 1:12:57.040
<v Speaker 1>don't have money. But you got to find a way.

1:12:57.160 --> 1:12:59.599
<v Speaker 1>You just got to find a way. I always find

1:12:59.640 --> 1:12:59.960
<v Speaker 1>a way.

1:13:01.120 --> 1:13:05.639
<v Speaker 2>Yeah, thank you, Victoria, Thank you so much. Thank you

1:13:06.240 --> 1:13:08.760
<v Speaker 2>the whole time. Yeah, exactly. I think it's one of

1:13:08.800 --> 1:13:12.640
<v Speaker 2>the you know, it's personal story to me, is is

1:13:12.680 --> 1:13:16.360
<v Speaker 2>the best way to help inspire and life and others.

1:13:16.400 --> 1:13:18.519
<v Speaker 2>And I think everything you shared to do will touch

1:13:18.560 --> 1:13:20.439
<v Speaker 2>people's hearts and move them into action.

1:13:20.680 --> 1:13:24.960
<v Speaker 1>So thank you, well, thank you. Listen, you gave me

1:13:25.120 --> 1:13:26.240
<v Speaker 1>this opportunity.

1:13:27.080 --> 1:13:30.080
<v Speaker 2>I'm grateful to call you a friend and you've told me,

1:13:30.360 --> 1:13:33.679
<v Speaker 2>you know, we've talked about so many of those things before,

1:13:33.680 --> 1:13:35.720
<v Speaker 2>but even for me to sit and hear you in

1:13:35.760 --> 1:13:38.120
<v Speaker 2>this way and knowing how it's going to impact my

1:13:38.200 --> 1:13:39.960
<v Speaker 2>community is going to be really beautiful.

1:13:39.960 --> 1:13:42.200
<v Speaker 1>So yeah, thank you. Yeah. When we do a lot

1:13:42.240 --> 1:13:43.880
<v Speaker 1>of you know, I do a lot of research and

1:13:43.960 --> 1:13:47.920
<v Speaker 1>work in India as well, like worldwide, so you know

1:13:47.960 --> 1:13:51.040
<v Speaker 1>that it's just so many people that they just don't

1:13:51.120 --> 1:13:53.880
<v Speaker 1>have the access, that they don't know or they are

1:13:53.920 --> 1:13:58.160
<v Speaker 1>too afraid to you know, So anything that you can do,

1:13:58.520 --> 1:14:00.479
<v Speaker 1>I mean the best.

1:14:00.479 --> 1:14:03.920
<v Speaker 2>I'm here to help. I believe in it. I agree

1:14:03.920 --> 1:14:05.559
<v Speaker 2>with you. I don't. I don't know if there's any

1:14:05.640 --> 1:14:08.160
<v Speaker 2>bigger thing to solve than healthcare. Like I don't. I

1:14:08.160 --> 1:14:11.519
<v Speaker 2>don't think there's anything more important in the world, yeah

1:14:11.560 --> 1:14:15.519
<v Speaker 2>than solving incurable diseases. Yeah, because everyone should be able

1:14:15.560 --> 1:14:18.800
<v Speaker 2>to live a healthy and yeah, and I.

1:14:18.720 --> 1:14:20.680
<v Speaker 1>Think that's why if people go, well, gosh, if she

1:14:20.760 --> 1:14:23.280
<v Speaker 1>did it and like no experience other you know, like

1:14:23.479 --> 1:14:26.160
<v Speaker 1>the way I started and found my way into it.

1:14:26.600 --> 1:14:30.080
<v Speaker 1>But when you actually that's when I honestly, when people

1:14:30.120 --> 1:14:34.000
<v Speaker 1>started saying to me, you know this is actually going

1:14:34.040 --> 1:14:36.160
<v Speaker 1>to change MS or this is actually going to change

1:14:36.240 --> 1:14:39.519
<v Speaker 1>lupis and rheumatroit arthritis, and that I was like, really,

1:14:40.000 --> 1:14:43.640
<v Speaker 1>Like then, I just thought, this is this is this

1:14:43.760 --> 1:14:46.120
<v Speaker 1>is the this is the work. This is my life's work,

1:14:46.400 --> 1:14:46.640
<v Speaker 1>you know.

1:14:47.400 --> 1:14:49.880
<v Speaker 2>Thank you, Victoria. Thank you to everyone who's been listening

1:14:49.920 --> 1:14:53.320
<v Speaker 2>and watching back at home. Please make sure that you

1:14:53.880 --> 1:14:57.280
<v Speaker 2>share this with friends you know would be inspired by it,

1:14:57.360 --> 1:15:00.479
<v Speaker 2>moved by it, and please let me know what really

1:15:00.520 --> 1:15:02.400
<v Speaker 2>resonated with you and stood out for you. A big

1:15:02.400 --> 1:15:05.479
<v Speaker 2>thang out to Victoria again, thank you, and thank you

1:15:05.560 --> 1:15:07.960
<v Speaker 2>so much for your friendship and your service. Victoria means

1:15:08.000 --> 1:15:09.679
<v Speaker 2>the world. Thank you so much, thank.

1:15:09.479 --> 1:15:10.160
<v Speaker 1>You, thank you.

1:15:10.439 --> 1:15:13.679
<v Speaker 2>If this year you're trying to live longer, live happier,

1:15:13.720 --> 1:15:16.880
<v Speaker 2>live healthier, go and check out my conversation with the

1:15:16.920 --> 1:15:21.320
<v Speaker 2>world's biggest longevity doctor, Peter Attia on how to slow

1:15:21.360 --> 1:15:25.800
<v Speaker 2>down aging and why your emotional health is directly impacting

1:15:26.040 --> 1:15:27.160
<v Speaker 2>your physical health.

1:15:27.439 --> 1:15:32.280
<v Speaker 3>Acknowledge that there is surprisingly little known about the relationship

1:15:32.280 --> 1:15:34.240
<v Speaker 3>between nutrition and health, and people are going to be

1:15:34.240 --> 1:15:36.599
<v Speaker 3>shocked to hear that, because I think most people think

1:15:36.640 --> 1:15:37.840
<v Speaker 3>the exact opposite.

1:15:39.240 --> 1:15:44.040
<v Speaker 2>Let's be honest, life is stressful. It's work, it's relationships

1:15:44.240 --> 1:15:46.559
<v Speaker 2>and the state of the world. But there's a way

1:15:46.640 --> 1:15:50.120
<v Speaker 2>to bring that stress level down. Calm. It's the number

1:15:50.120 --> 1:15:52.640
<v Speaker 2>one app for mental wellness, with tons of content to

1:15:52.720 --> 1:15:58.080
<v Speaker 2>manage anxiety, promote concentration, and help you unwind. There's music, meditation,

1:15:58.320 --> 1:16:01.200
<v Speaker 2>and more. Calm makes it easy to de stress. You

1:16:01.240 --> 1:16:05.080
<v Speaker 2>can literally do a one minute breathing exercise. Personally, I

1:16:05.120 --> 1:16:08.920
<v Speaker 2>love the soundscapes. Nothing like a little rain on leaves

1:16:08.920 --> 1:16:12.200
<v Speaker 2>to help soothe my nervous system. I've actually been working

1:16:12.200 --> 1:16:14.280
<v Speaker 2>with Calm for a couple of years now, and I'd

1:16:14.280 --> 1:16:16.719
<v Speaker 2>love for you to check out my series on reducing

1:16:16.840 --> 1:16:21.960
<v Speaker 2>overwhelm eight short practices Quick Relief. Right now, listeners of

1:16:22.000 --> 1:16:25.320
<v Speaker 2>On Purpose get forty percent off a subscription to Calm

1:16:25.439 --> 1:16:29.519
<v Speaker 2>Premium at Calm dot com. Forward slash j dot c

1:16:30.360 --> 1:16:35.120
<v Speaker 2>l M dot com Forward slash Jay for forty percent off.

1:16:35.280 --> 1:16:38.200
<v Speaker 2>Calm your Mind, Change your Life,