WEBVTT - Operation Achoo!: Treating Kids with Allergies

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<v Speaker 1>Welcome to Katie's Crib, a production of Shonda Land Audio

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<v Speaker 1>in partnership with I Heart Radio. Hi everybody, and welcome

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<v Speaker 1>back to Katie's Crib. Today we are discussing bump bump

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<v Speaker 1>bomb allergies. When you have a new baby, you're super

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<v Speaker 1>scared of an allergy attack, just always, and not even

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<v Speaker 1>like a baby, even when they're like older. You're just

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<v Speaker 1>constantly scared of allergy attacks always from the get go.

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<v Speaker 1>People are giving you advice of what diapers, detergent, to use,

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<v Speaker 1>body lotions, and then forget about it when they start

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<v Speaker 1>eating food. Um, once we get into nuts and eggs

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<v Speaker 1>and shellfish, and you hear stories about kids throats closing,

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<v Speaker 1>and it's basically just complete alarmist, insane fear all the time,

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<v Speaker 1>or at least that's how I felt. Also, my husband

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<v Speaker 1>is literally allergic to everything, like when you do those

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<v Speaker 1>little prick things, the fifty things on your back, forty

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<v Speaker 1>eight of his rise up, but none of his are

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<v Speaker 1>the death ones, but they're all all like, he's basically

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<v Speaker 1>allergic to every single fruit and vegetable and whatever. So

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<v Speaker 1>I was convinced when I had my son, like he

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<v Speaker 1>was going to be the most allergic kid on the planet. Um,

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<v Speaker 1>so here to bless us with their expertise and ease

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<v Speaker 1>my anxiety and hopefully some of you all out there

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<v Speaker 1>listening is Dr Tricia Lee and my dear friend and

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<v Speaker 1>fellow mom and lawyer, Julie Feldman, Um Doctor Triciallie is

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<v Speaker 1>an adult and pediatric allergist and immunologist. She's board certified

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<v Speaker 1>with the American Board of Pediatrics and the American Board

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<v Speaker 1>of Allergy and Immunology. Her research has included clinical trials

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<v Speaker 1>and asthma and food allergy, and she has published articles

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<v Speaker 1>and presented at national meetings about immune deficiency, food allergy,

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<v Speaker 1>and infectious disease. Julie is a super fancy entertainment lawyer

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<v Speaker 1>who has two little girls who do both face serious

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<v Speaker 1>allergies and um she's been in this world as a

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<v Speaker 1>mom for a few years now. Um So, Julie, let's

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<v Speaker 1>start with you talk to me about your two daughters,

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<v Speaker 1>their ages differences, and what they're allergic to and what

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<v Speaker 1>were their initial symptoms which I can repeat those questions

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<v Speaker 1>back if there were too many of months. Okay, So

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<v Speaker 1>I have two girls. Alexandra, who we call Ali, is

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<v Speaker 1>my older one, and she's three now. And my baby

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<v Speaker 1>Isabella we called Izzy, is sixteen months and they're cute.

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<v Speaker 1>Not that that matters, but let me tell you, getting

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<v Speaker 1>the picture of the two of them anytime is a gift.

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<v Speaker 1>So what are they both allergic to? Doctor Tresuali is

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<v Speaker 1>Julie's doctor allergist who has saved her life, who has

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<v Speaker 1>saved my life on so many occasions, and my emotional

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<v Speaker 1>stability on so many occasions. So they are both allergic

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<v Speaker 1>to eggs and peanuts, and Isabella is also allergic to oats.

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<v Speaker 1>Oh my god, I can't. But they're also which makes

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<v Speaker 1>it more complicated allergic differently so my older one Ali.

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<v Speaker 1>Her allergies are kind of what you think of your

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<v Speaker 1>throat closing anaphylaxis, typical allergies UM that most people are

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<v Speaker 1>afraid of. Isabella has a what I understand to be

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<v Speaker 1>like pretty uncommon or you know, more rare digestive but

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<v Speaker 1>very serious allergy where when she eats her trigger foods,

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<v Speaker 1>she'll start throwing up to the point where her body

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<v Speaker 1>kind of may not be able to balance itself, so

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<v Speaker 1>she needs UM. She would need so many boose thumps

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<v Speaker 1>right now. Even with this I mean, this is crazy.

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<v Speaker 1>So if she throws up that much, it's like rush

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<v Speaker 1>to the hospital. Situation exactly called doctor Lee, go to

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<v Speaker 1>the emergency room. I was in an ambulance, right, I

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<v Speaker 1>was want to say two weeks ago, I was in

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<v Speaker 1>an ambulance. I don't think I even told you this

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<v Speaker 1>wasn't what My eyeballs just became saucers. I was an

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<v Speaker 1>ambulance on the way to the er because Izzy had

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<v Speaker 1>a bad reaction. And this is when we confirm that

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<v Speaker 1>she is also has this allergy. The acronym for it

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<v Speaker 1>is f pies um, but she has an allergy to

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<v Speaker 1>peanuts as well, and so her her allergy is also

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<v Speaker 1>it happens it's a delayed reaction. So Ali's happen immediately

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<v Speaker 1>after you eat the food Izzy as are about two

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<v Speaker 1>hours after starting to name than what it is, because

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<v Speaker 1>you in movies it's like the kid eats the peanut

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<v Speaker 1>and it's like we're in the emergency room. We're dying.

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<v Speaker 1>But like for her to have a delayed reaction, that

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<v Speaker 1>must be hard to do an elimination sort of diet

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<v Speaker 1>and figure out what the triggers, especially since there's no

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<v Speaker 1>testing for this type of allergy, so you can do

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<v Speaker 1>skin tests and blood tests for the anaphylactic type allergy.

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<v Speaker 1>So when you think you might have something, you go

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<v Speaker 1>to doctor Lee. She tests them all, she figures it

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<v Speaker 1>all out, and then she tells you what to avoid.

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<v Speaker 1>For f pies, there's no test. You basically have to

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<v Speaker 1>eat foods trial it for depending on the food like

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<v Speaker 1>a you know, several days to a few weeks to

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<v Speaker 1>see if you start having an issue from it. And

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<v Speaker 1>the other thing for that is that some of the

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<v Speaker 1>more common foods for f pies allergies are not ones

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<v Speaker 1>that you would think about. So chicken and rice and

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<v Speaker 1>banana and not a hat out are all an oats

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<v Speaker 1>are all really high risk foods, so they don't fall

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<v Speaker 1>into the dairy, eggs, peanuts category. You normally think of, um,

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<v Speaker 1>what was um the first symptom you saw with UM,

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<v Speaker 1>I'm trying like which way do we want to go first?

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<v Speaker 1>I'm like, you're older or you're younger, which, by the way,

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<v Speaker 1>when you had Izzy, I was like, this kid isn't

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<v Speaker 1>gonna have any allergies because she was put through such

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<v Speaker 1>a ringer with your first and I was like you, like,

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<v Speaker 1>you're done you're like, you're done. You did it, like

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<v Speaker 1>you survived. And now we have number two who has

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<v Speaker 1>a lot of allergies and they're different, right, So so Alie,

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<v Speaker 1>it's funny because we went to we sat at a

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<v Speaker 1>coffee shop across the street from an emergency room to

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<v Speaker 1>give Alie peanut butter for the first time. Because I'm

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<v Speaker 1>just type a anxious person. That makes you a great lawyer, well,

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<v Speaker 1>thank you, and it also makes me, you know, a

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<v Speaker 1>difficult wife and you know a mom like so sitting

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<v Speaker 1>across this room leaving peanuts for the first time exactly, sorry,

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<v Speaker 1>dragged my husband with me. Didn't give her a whole lot,

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<v Speaker 1>but she was fine, like it was everyone just that

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<v Speaker 1>I was up. That's Julie. And she overreacted and then

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<v Speaker 1>a few you know, she had that a few more

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<v Speaker 1>times and things seemed to be okay. We introduced eggs.

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<v Speaker 1>She seemed to be okay with eggs. She then had

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<v Speaker 1>a few hives or like like of a rash that

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<v Speaker 1>we're like, h what is this And again it wasn't

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<v Speaker 1>the first time she had had eggs, so we didn't know.

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<v Speaker 1>We gave her egg whites, thinking that egg whites were

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<v Speaker 1>less you know, allergic allergy complete opposite. Most people who

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<v Speaker 1>have egg allergies are more allergic to the egg white

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<v Speaker 1>than to the egg yolk, So hell knows that. We

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<v Speaker 1>just learned that here on Katie's grip folks exactly. So

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<v Speaker 1>there you go. I messed that up, and that's when

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<v Speaker 1>Ali's face started blowing up, her eyes were getting swollen,

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<v Speaker 1>her lips were getting swollen. So we rushed over the doctor,

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<v Speaker 1>got that agil. She kind of settled down from there,

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<v Speaker 1>But after that was when I went over to doctor Lee.

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<v Speaker 1>We also had been avoiding dairy just because she had

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<v Speaker 1>had some digestive issues and really bad reflux, and so

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<v Speaker 1>we didn't know if she had a digestive allergy to

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<v Speaker 1>dairy or if there could also be something more of

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<v Speaker 1>an anaplaxis dairy allergy. Ali did outgrow her dairy allergy

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<v Speaker 1>right before she turned three. Now, Dr Tricia Lee, do

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<v Speaker 1>you normally meet moms and their kids when we're at

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<v Speaker 1>this sort of crisis mode? Um? Does it vary when

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<v Speaker 1>do they come to you? So normally it's after the

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<v Speaker 1>first reaction, and for some of those families that takes

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<v Speaker 1>them in to the emergency room, and the emergency room

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<v Speaker 1>physician will say okay, now you need to see an allergist,

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<v Speaker 1>or if it not even taken them to the emergency room,

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<v Speaker 1>just to the general pediatrician's office, then they will be

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<v Speaker 1>referred to the allergist. UM. Very rarely am I seeing

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<v Speaker 1>um sort of a new diagnosis before the first reaction. UM. Nowadays,

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<v Speaker 1>with sort of new recommendations and pushed to get children

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<v Speaker 1>in tested early introduction, a lot of these high risk

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<v Speaker 1>kids meaning moderate to severe egma will be sent before

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<v Speaker 1>they've even eaten anything I see, right, So there's also

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<v Speaker 1>the kids that are having crazy skin stuff happening before

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<v Speaker 1>they've even eaten solid foods. And sometimes I'll see four

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<v Speaker 1>eight week olds and then we're not really doing food

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<v Speaker 1>testing at that time. UM, it's really probably not acuratetil

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<v Speaker 1>close to four months old, UM, but sort of following

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<v Speaker 1>along there. So sometimes we're capturing it before they actually

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<v Speaker 1>eat it. UM. But most of the time my suggestion

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<v Speaker 1>is to to eat the food and then sort of

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<v Speaker 1>go from there. The problem with skin testings it's not perfect.

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<v Speaker 1>You can get a lot of faults positives. For example,

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<v Speaker 1>if you go to local mall tore that people have

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<v Speaker 1>a positive test of peanut, they eat it and they're

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<v Speaker 1>fine with it. So testing is just not accurate, and

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<v Speaker 1>so you can end up with a lot of false positives.

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<v Speaker 1>UM sort of unknowingly unfortunately. I feel like when we

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<v Speaker 1>were kids, they would wait awhile to test it. Now

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<v Speaker 1>there's all these new stuff saying like give them small

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<v Speaker 1>doses before even the age of one, exactly, and that

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<v Speaker 1>was actually UM. Probably part of the problem in the

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<v Speaker 1>United States when food allergy increased in the United States

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<v Speaker 1>was when the ap had recommended delay an introduction of

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<v Speaker 1>these foods for that reason. Part of the reason is

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<v Speaker 1>UM more from a choking hazard perspective in the sense

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<v Speaker 1>of like nut, you're not going to feed a four

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<v Speaker 1>month old nut. But nowadays, with nut butters and nut powders,

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<v Speaker 1>it's much easier to accomplish. UM. A lot of times

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<v Speaker 1>I'm hoping to even capture that family before the first introduction. UM.

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<v Speaker 1>So now there's some data to support sort of moisturization.

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<v Speaker 1>So from day one of life to moisturize head to toe. UM.

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<v Speaker 1>Every day I'm imagining a one week old being slathered

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<v Speaker 1>in peanut butter. That's not what you mean. I'm glad

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<v Speaker 1>you clarify, So what do they do somewhere like a

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<v Speaker 1>cream or vasselin just what you would moisturize your skin with.

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<v Speaker 1>And the concept is the or the hope even is

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<v Speaker 1>that if we can prevent sort of eggs ma starting

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<v Speaker 1>and progressing, then maybe we could prevent this progression into

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<v Speaker 1>UM food allergy. UM even to the extent of UM

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<v Speaker 1>a little bit of data to support that if you

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<v Speaker 1>touch an allergy with your hands, like if you were

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<v Speaker 1>eating a peanut butter and jelly sandwich, to then not

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<v Speaker 1>directly touch your kids skin. UM. There is a hypothesis

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<v Speaker 1>out there that UM, these kids are seeing allergens through

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<v Speaker 1>their skin first as opposed to through their gut, and

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<v Speaker 1>then they're forming an abnormal reaction so in the reverse

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<v Speaker 1>sance as well not putting foods on the skin. So

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<v Speaker 1>UM in England, UM, some of their food allergy increase

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<v Speaker 1>after they started using things like coconut oil and the egsma.

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<v Speaker 1>So until the kids eating the food. I don't really

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<v Speaker 1>prefer food products on the skin, got it, But from

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<v Speaker 1>there with food introduction, I think early what first like

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<v Speaker 1>I vasoline. Vassoline is like one product and no one's

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<v Speaker 1>allergic to it. Y, Seravey, Vanning cream or good brands um.

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<v Speaker 1>Even Aquifer though has vanolin in it. I'm so glad

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<v Speaker 1>on this podcast because I'm switching it up. I feel

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<v Speaker 1>like vascaline is like what we used kids like a

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<v Speaker 1>head to toe grease the kid up every single diaper change. Um.

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<v Speaker 1>But then you know, close to four or five months,

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<v Speaker 1>and this is going to pin a lot on the

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<v Speaker 1>child developmentally speaking in the sense of can they hold

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<v Speaker 1>their head up and are they thrusting their tongue out?

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<v Speaker 1>But just starting eating, we just don't know until you

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<v Speaker 1>eat it, like you just got to eat um. And

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<v Speaker 1>so starting sort of early with fruits, vegetables, and then

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<v Speaker 1>pretty quickly going through sort of those top eight allergens

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<v Speaker 1>um all so, milk, egg, wet fish, shellfish, peanut, tree, nuts, sesame,

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<v Speaker 1>soy um and generally speaking in in order of like

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<v Speaker 1>weed and then milk and then egg um and then

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<v Speaker 1>obviously peanut very soon. And they also now have it

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<v Speaker 1>in pouches. So there are brands where you give your

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<v Speaker 1>baby like these, like many pouches that have these different

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<v Speaker 1>allergens in the pouches. So even though they can't eat

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<v Speaker 1>a nut or an egg or like soy like things

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<v Speaker 1>like that they can be exactly. So that's what we

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<v Speaker 1>started doing for Isabella because we were trying to introduce

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<v Speaker 1>everything early. I mean, when you say, what point do

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<v Speaker 1>you to Dr Lee start seeing patients for Isabella, I

0:11:59.320 --> 0:12:01.440
<v Speaker 1>was like, I'm pregnant, now tell me what to do.

0:12:01.480 --> 0:12:04.880
<v Speaker 1>It's like she's born, now tell me what to um.

0:12:04.920 --> 0:12:08.079
<v Speaker 1>But so we gave her all of these pouches as

0:12:08.120 --> 0:12:10.439
<v Speaker 1>early as we could. You know, when she was having

0:12:10.720 --> 0:12:16.720
<v Speaker 1>a symptoms of Isabella with being allergy is different, right,

0:12:16.760 --> 0:12:19.240
<v Speaker 1>So when we gave when we gave her one of

0:12:19.280 --> 0:12:22.440
<v Speaker 1>the pouches that had egg in it, she was fine.

0:12:22.600 --> 0:12:24.600
<v Speaker 1>We put her down for a nap. We well, first

0:12:24.640 --> 0:12:27.559
<v Speaker 1>we had tested everything on the skin testing with Dr Lee,

0:12:27.559 --> 0:12:30.720
<v Speaker 1>so we felt okay trying it at home. Then two

0:12:30.720 --> 0:12:33.960
<v Speaker 1>hours after she threw up and it was she's a

0:12:34.040 --> 0:12:36.520
<v Speaker 1>baby baby, so you're kind of like this a spit up?

0:12:36.679 --> 0:12:38.480
<v Speaker 1>Is it? Like? So you're kind of like, as a

0:12:38.520 --> 0:12:43.440
<v Speaker 1>second kid, is it a coal qualifying? So I called

0:12:43.480 --> 0:12:46.400
<v Speaker 1>Actor Lee and she's like, okay, well, I don't want

0:12:46.400 --> 0:12:48.319
<v Speaker 1>to say that. We're not going to try egg again.

0:12:48.440 --> 0:12:51.319
<v Speaker 1>We'll see, like let's just like let's be aware of it.

0:12:51.760 --> 0:12:53.880
<v Speaker 1>So and she didn't even tell me what f pies

0:12:54.040 --> 0:12:56.240
<v Speaker 1>was or anything like that. She hit it from me

0:12:57.080 --> 0:13:00.200
<v Speaker 1>and so then there's like nobody this is. Yeah. So

0:13:00.240 --> 0:13:02.679
<v Speaker 1>the next time we gave her egg, we gave her

0:13:02.760 --> 0:13:04.240
<v Speaker 1>the same page and we tried to do it at

0:13:04.240 --> 0:13:06.920
<v Speaker 1>a time when she wasn't sick. She's like, they're like

0:13:06.920 --> 0:13:09.200
<v Speaker 1>that we kind of knew her baseline of where she was.

0:13:09.360 --> 0:13:12.080
<v Speaker 1>And she threw up again about two hours later. So

0:13:12.120 --> 0:13:14.600
<v Speaker 1>I called Dr Lee again. I'm like, what do I do?

0:13:15.200 --> 0:13:18.120
<v Speaker 1>And that's when she said, Okay, Isabella has f pies

0:13:18.200 --> 0:13:22.360
<v Speaker 1>and here's what we do. And PIES stand for food

0:13:22.360 --> 0:13:26.640
<v Speaker 1>protein induced innercalitis, which is why I say F pies.

0:13:27.240 --> 0:13:31.599
<v Speaker 1>Is that like what it's called F pies? No, that's no.

0:13:31.720 --> 0:13:34.760
<v Speaker 1>I feel like that's there's an I C D tinko

0:13:35.000 --> 0:13:38.160
<v Speaker 1>for the diagnosis of f pies. It's like a I

0:13:38.200 --> 0:13:39.880
<v Speaker 1>feel like it's a rare group of people who know

0:13:39.920 --> 0:13:42.480
<v Speaker 1>what it means. But among the people that have this allergy,

0:13:42.520 --> 0:13:46.280
<v Speaker 1>that's what it's called or how we refer to it. UM.

0:13:46.360 --> 0:13:49.319
<v Speaker 1>So a lot of times you think, oh, my kid

0:13:49.400 --> 0:13:51.400
<v Speaker 1>is sick and I have a virus. You also don't

0:13:51.400 --> 0:13:55.240
<v Speaker 1>think when you're giving your baby bananas or wheat cereal

0:13:55.360 --> 0:13:58.120
<v Speaker 1>or these foods, and they're throwing up two hours later,

0:13:58.160 --> 0:14:00.040
<v Speaker 1>and you're giving it to them at multiple times. That

0:14:00.080 --> 0:14:02.920
<v Speaker 1>they're throwing up multiple times, you don't realize that it's

0:14:02.960 --> 0:14:06.079
<v Speaker 1>related or an allergy. Almost think it's acid reflux or something.

0:14:06.160 --> 0:14:11.000
<v Speaker 1>Right like at first, like the vomiting is so bad,

0:14:11.200 --> 0:14:13.440
<v Speaker 1>you do go into the emergency room, especially as like

0:14:13.440 --> 0:14:16.040
<v Speaker 1>a first time parent, um, and sort of time and

0:14:16.080 --> 0:14:21.480
<v Speaker 1>time again, Um, the emergency room is not connecting it

0:14:21.520 --> 0:14:23.800
<v Speaker 1>as well because it's so delayed in the sense of

0:14:23.800 --> 0:14:26.000
<v Speaker 1>its two hours later, and a lot of times it's

0:14:26.040 --> 0:14:28.560
<v Speaker 1>not within the first even a few ingestions. I've seen

0:14:28.600 --> 0:14:31.560
<v Speaker 1>it within the first ten ingestions, for example, So like

0:14:31.640 --> 0:14:33.920
<v Speaker 1>the first five times, like okay, you sort of marked

0:14:33.960 --> 0:14:36.000
<v Speaker 1>that food off your list, You've done it. You don't

0:14:36.040 --> 0:14:37.880
<v Speaker 1>even think about it. You're now then combining it with

0:14:37.920 --> 0:14:40.480
<v Speaker 1>other things. You know, the kids thrown up a few times.

0:14:40.520 --> 0:14:42.040
<v Speaker 1>You go into the emergence room. Just seems like a

0:14:42.120 --> 0:14:45.520
<v Speaker 1>virus every single time. So I felt really lucky that

0:14:46.360 --> 0:14:48.480
<v Speaker 1>we had is about throw up twice and Dr le

0:14:48.560 --> 0:14:50.120
<v Speaker 1>knew exactly what it because you already had it all

0:14:50.120 --> 0:14:52.720
<v Speaker 1>in place. I had my system in places, so I

0:14:52.760 --> 0:14:55.280
<v Speaker 1>was like, Okay, now I'm calling our nutritionist because we

0:14:55.680 --> 0:14:58.760
<v Speaker 1>started working with a nutritionist for Ali because she being

0:14:58.800 --> 0:15:02.200
<v Speaker 1>allergic to eggs at the time. Dairy. You want to

0:15:02.240 --> 0:15:05.480
<v Speaker 1>make sure it's getting the food exactly and the nutrients

0:15:05.480 --> 0:15:07.520
<v Speaker 1>she's supposed to be and she's tiny and so she

0:15:07.640 --> 0:15:10.240
<v Speaker 1>wasn't gaining weight, so we needed to really be on

0:15:10.320 --> 0:15:11.880
<v Speaker 1>top of it and make sure that she was going

0:15:11.920 --> 0:15:15.680
<v Speaker 1>to thrive despite her food restrictions. So and it was

0:15:15.680 --> 0:15:17.760
<v Speaker 1>funny because the day before I had a conversation with

0:15:17.800 --> 0:15:20.880
<v Speaker 1>the nutritionist and she was like, Isabella is not Ali.

0:15:21.040 --> 0:15:23.320
<v Speaker 1>You have to like take steps and start feeding her

0:15:23.640 --> 0:15:26.880
<v Speaker 1>more proactively and not be so afraid of things. And

0:15:26.920 --> 0:15:29.840
<v Speaker 1>then I called her back. You were like you were wrong,

0:15:30.280 --> 0:15:33.520
<v Speaker 1>and and then I called her back the next day.

0:15:33.560 --> 0:15:36.760
<v Speaker 1>I'm like, so Isabella has f pies and she's like,

0:15:37.360 --> 0:15:39.800
<v Speaker 1>oh boy, She's like, now we need a whole new

0:15:39.840 --> 0:15:42.600
<v Speaker 1>game plan. So at least felt fortunate that I had

0:15:42.680 --> 0:15:45.240
<v Speaker 1>that support system in place, because it's when you find

0:15:45.280 --> 0:15:47.360
<v Speaker 1>out about it at first, and you don't know anything

0:15:47.360 --> 0:15:49.280
<v Speaker 1>more than just kind of the stuff that you're afraid of.

0:15:49.720 --> 0:16:02.000
<v Speaker 1>It's very overwhelming. Oh, I want to ask you, um,

0:16:02.240 --> 0:16:05.720
<v Speaker 1>so do you recommend Dr Lee, do you recommend when

0:16:05.760 --> 0:16:08.040
<v Speaker 1>people start introducing foods like the sort of thing where

0:16:08.040 --> 0:16:10.440
<v Speaker 1>it's like you do the same thing every day. I

0:16:10.480 --> 0:16:13.800
<v Speaker 1>also know women who like wrote like they did the

0:16:13.880 --> 0:16:15.600
<v Speaker 1>same food every single day for lunch and then they

0:16:15.600 --> 0:16:17.640
<v Speaker 1>moved that food tonight and then they introduced a new

0:16:17.680 --> 0:16:20.840
<v Speaker 1>food in the lunch time. Is that ye know that

0:16:20.920 --> 0:16:24.520
<v Speaker 1>it has to be so I was like, this is

0:16:24.560 --> 0:16:27.760
<v Speaker 1>making me nuts, especially for like fruits, vegetables, and meats,

0:16:27.760 --> 0:16:30.560
<v Speaker 1>because generally they're not going to be an issue. Um

0:16:30.680 --> 0:16:33.200
<v Speaker 1>for some of those highly allergenic foods, you know, I say,

0:16:33.200 --> 0:16:35.480
<v Speaker 1>start with a small amount gradually increase. Doesn't necessarily have

0:16:35.520 --> 0:16:37.440
<v Speaker 1>to be in consecutive days. Not really doesn't have to

0:16:37.440 --> 0:16:39.440
<v Speaker 1>be at the same time. No, so maybe day one,

0:16:39.560 --> 0:16:42.200
<v Speaker 1>day three, day five, day seven. The goal is just

0:16:42.280 --> 0:16:45.280
<v Speaker 1>to get to a full serving, which generally I would

0:16:45.320 --> 0:16:47.640
<v Speaker 1>say with peanut, it's like to teaspoons of peanut butter

0:16:47.720 --> 0:16:50.920
<v Speaker 1>peanut powder, and you've done it multiple times. So normally,

0:16:50.920 --> 0:16:53.120
<v Speaker 1>and I'm taking a history from a patient, that threshold

0:16:53.160 --> 0:16:55.720
<v Speaker 1>for me is five times. The problem, particularly in a

0:16:55.760 --> 0:16:57.840
<v Speaker 1>four six month old, is they're not getting that much.

0:16:58.000 --> 0:17:00.720
<v Speaker 1>They're not getting anywhere close to two teast, So you've

0:17:00.760 --> 0:17:02.440
<v Speaker 1>really got to push the amount because a lot of

0:17:02.440 --> 0:17:05.080
<v Speaker 1>times that allergy is not going to be obvious until

0:17:05.080 --> 0:17:07.320
<v Speaker 1>we've had enough to make it obvious, which is probably

0:17:07.320 --> 0:17:09.800
<v Speaker 1>why for Ali, we didn't realize that at first because

0:17:09.800 --> 0:17:12.480
<v Speaker 1>she had had so little, like a little tiny of

0:17:12.520 --> 0:17:15.720
<v Speaker 1>eggs and peanuts, so it wasn't until later on that

0:17:15.760 --> 0:17:19.399
<v Speaker 1>we saw her reactions. My next question for Julie is

0:17:21.240 --> 0:17:26.120
<v Speaker 1>do you ever get like judge moms about because I know,

0:17:26.320 --> 0:17:29.080
<v Speaker 1>as a mom of someone who's dealing with some pretty

0:17:29.119 --> 0:17:32.280
<v Speaker 1>scary allergies, I've seen you as a mom in action

0:17:32.400 --> 0:17:35.119
<v Speaker 1>and you have to be the advocate for your child,

0:17:35.520 --> 0:17:39.040
<v Speaker 1>meaning you're asking all the other mom's questions, who are around,

0:17:39.119 --> 0:17:41.560
<v Speaker 1>what's in it? Did Ali grab it? Like all that

0:17:41.600 --> 0:17:44.600
<v Speaker 1>kind of stuff? Because it's on you? Um and so

0:17:44.720 --> 0:17:48.000
<v Speaker 1>have you had issues with that kind of thing we have?

0:17:48.200 --> 0:17:50.600
<v Speaker 1>I have to say I've been really lucky with close

0:17:50.640 --> 0:17:54.200
<v Speaker 1>friends and our community who understand that you know, this

0:17:54.280 --> 0:17:56.920
<v Speaker 1>is serious and important, and especially our close friends who

0:17:56.960 --> 0:17:59.680
<v Speaker 1>know everything that kind of we go through regularly, they're

0:17:59.680 --> 0:18:03.040
<v Speaker 1>more apportive about it. It gets harder as there's school

0:18:03.080 --> 0:18:06.000
<v Speaker 1>and birthday parties and things like that where and I

0:18:06.119 --> 0:18:09.320
<v Speaker 1>try very hard to not feel like I have to

0:18:09.359 --> 0:18:11.879
<v Speaker 1>control what everyone else is doing, but do what I

0:18:11.920 --> 0:18:15.879
<v Speaker 1>have to to protect the girls. So you know, now

0:18:15.920 --> 0:18:17.800
<v Speaker 1>they can eat pizza as long as I make sure

0:18:17.800 --> 0:18:19.800
<v Speaker 1>it's from a place that doesn't have egg in the dough,

0:18:19.800 --> 0:18:22.680
<v Speaker 1>because sometimes they do. When we get a birthday party invitation,

0:18:22.760 --> 0:18:25.920
<v Speaker 1>I'll respond yes, so excited, and then I also say,

0:18:25.960 --> 0:18:28.440
<v Speaker 1>are you planning to do pizza or other food? Ali

0:18:28.520 --> 0:18:30.480
<v Speaker 1>has allergy, so just let me know so I can

0:18:30.520 --> 0:18:33.680
<v Speaker 1>plan accordingly. Like I don't, I don't expect everyone else

0:18:33.720 --> 0:18:36.080
<v Speaker 1>to make an accommodation for us. I mean, if you

0:18:36.080 --> 0:18:38.080
<v Speaker 1>tell me that you're gonna have a peanut butter birthday cake,

0:18:38.119 --> 0:18:40.359
<v Speaker 1>then we're not going to go because then I can't

0:18:40.400 --> 0:18:43.520
<v Speaker 1>do it. And if it's brunch and you're having eggs

0:18:43.600 --> 0:18:46.120
<v Speaker 1>and like that's your scrambled eggs is your meal, then

0:18:46.160 --> 0:18:48.720
<v Speaker 1>I'm not going to go. But if you're having something

0:18:48.760 --> 0:18:52.800
<v Speaker 1>that has you know, eggs in it or things where

0:18:52.840 --> 0:18:55.600
<v Speaker 1>you know, I kind of have to balance the balance

0:18:55.640 --> 0:18:58.440
<v Speaker 1>it and also educate Ali as she gets older, because

0:18:58.480 --> 0:19:00.960
<v Speaker 1>she's gonna be responsible for herself and so not that

0:19:01.000 --> 0:19:02.879
<v Speaker 1>I would ever leave her to her own devices at

0:19:02.880 --> 0:19:05.919
<v Speaker 1>this point. But she's she's pretty good. I mean, she

0:19:06.080 --> 0:19:08.760
<v Speaker 1>just turned three, and she knows what she's allergic to.

0:19:08.880 --> 0:19:12.240
<v Speaker 1>She knows what Isabella is allergic to. She knows there's

0:19:12.280 --> 0:19:14.640
<v Speaker 1>a song that she sings that has her rules of

0:19:15.160 --> 0:19:17.399
<v Speaker 1>what to do and liked her this song Did you

0:19:17.440 --> 0:19:24.120
<v Speaker 1>write this? Daniel Tiger? Daniel Tiger and three? Or what's

0:19:24.119 --> 0:19:25.880
<v Speaker 1>the song? Can you sing it for us? Is a good?

0:19:25.960 --> 0:19:31.119
<v Speaker 1>Oh my god? No? Is it like I can't eat um?

0:19:31.200 --> 0:19:34.760
<v Speaker 1>What are her ones again? Eggs and dairy and she

0:19:34.800 --> 0:19:37.600
<v Speaker 1>can do darry now. I grew out a dairy and

0:19:37.760 --> 0:19:41.040
<v Speaker 1>I can have that now. But she has these, she

0:19:41.400 --> 0:19:43.400
<v Speaker 1>has the tools and Daniel Tigers. It's basically the song

0:19:43.400 --> 0:19:46.640
<v Speaker 1>in Daniel Tiger has three rules in it, Um, don't

0:19:46.640 --> 0:19:49.480
<v Speaker 1>eat the food that you're allergic to, ask before you

0:19:49.520 --> 0:19:51.760
<v Speaker 1>eat something new, and if you don't feel well till

0:19:51.760 --> 0:19:54.679
<v Speaker 1>a grown up. And so Ali knows those rules and

0:19:54.760 --> 0:19:57.159
<v Speaker 1>so she will be somewhere, you know. She was talking

0:19:57.200 --> 0:19:59.760
<v Speaker 1>to her other best friend who turned three the other

0:20:00.160 --> 0:20:02.639
<v Speaker 1>and her friend was like, Ali, I'm going to have

0:20:02.680 --> 0:20:05.840
<v Speaker 1>a frozen cake at my birthday, like so excited, and

0:20:05.920 --> 0:20:09.879
<v Speaker 1>Ali goes, that sounds great. Does it have eggs and peanuts?

0:20:09.880 --> 0:20:12.200
<v Speaker 1>Because I can't have eggs and peanuts And her friend

0:20:12.320 --> 0:20:15.639
<v Speaker 1>was like, I don't know. Like her friend was like,

0:20:16.040 --> 0:20:19.440
<v Speaker 1>but so I have in my freezer a bunch of

0:20:19.600 --> 0:20:22.399
<v Speaker 1>cupcakes and cookies that are safe for Ali that I

0:20:22.440 --> 0:20:25.080
<v Speaker 1>will defrast And I always tell Alle, I say, oh,

0:20:25.160 --> 0:20:27.960
<v Speaker 1>today So and So's birthday, there's gonna be cupcakes. She'll

0:20:27.960 --> 0:20:29.880
<v Speaker 1>say did they have eggs and peanuts? And I say

0:20:29.920 --> 0:20:32.320
<v Speaker 1>they do, so we can't eat them, And then say

0:20:32.400 --> 0:20:34.960
<v Speaker 1>I'm going to bring one for right And she's excited

0:20:35.000 --> 0:20:37.840
<v Speaker 1>by that. So she's she's really good about it so far.

0:20:40.320 --> 0:20:42.520
<v Speaker 1>And I love Daniel Tiger. Oh my god. Yeah, we

0:20:42.560 --> 0:20:45.440
<v Speaker 1>are big fans of Daniel Tiger. Now, UM, I was

0:20:45.480 --> 0:20:48.320
<v Speaker 1>going to ask you are there chances of these kids

0:20:48.480 --> 0:20:51.320
<v Speaker 1>growing out of these allergies? Like what do you see

0:20:51.520 --> 0:20:55.119
<v Speaker 1>as far as especially for Izzy from an f PIS perspective, A,

0:20:55.480 --> 0:20:59.040
<v Speaker 1>there's never been any documented DUTs UM and then be

0:20:59.280 --> 0:21:01.720
<v Speaker 1>most kids. I'll l so right now, the nation recommendation

0:21:01.920 --> 0:21:05.520
<v Speaker 1>is UM eighteen to twenty four months after the last reaction,

0:21:05.720 --> 0:21:08.080
<v Speaker 1>you should try it. UM. The recommendation right now is

0:21:08.119 --> 0:21:11.119
<v Speaker 1>to do that within a hospital setting, though hopefully that

0:21:11.160 --> 0:21:13.040
<v Speaker 1>tide will will try. You have to go do this

0:21:13.520 --> 0:21:16.959
<v Speaker 1>so for three foods. When we get to that timetable,

0:21:17.040 --> 0:21:19.680
<v Speaker 1>we'll see if those are still the recommendations. The other

0:21:19.760 --> 0:21:21.919
<v Speaker 1>thing for her you said, we probably will just because

0:21:21.960 --> 0:21:24.280
<v Speaker 1>she has small veins and they've had trouble getting i vs,

0:21:25.000 --> 0:21:27.080
<v Speaker 1>so they want to have the i V in already

0:21:27.119 --> 0:21:31.880
<v Speaker 1>if she needs medicine. Wow wow wow wow wow wow.

0:21:32.000 --> 0:21:36.440
<v Speaker 1>Now is there any link to like my husband parents,

0:21:36.560 --> 0:21:39.440
<v Speaker 1>like why is why does a kid have allergies? And

0:21:39.440 --> 0:21:41.439
<v Speaker 1>why does a kid not have allergies? Why does this

0:21:41.480 --> 0:21:44.399
<v Speaker 1>as the question of the decade are people asking me about?

0:21:44.400 --> 0:21:49.159
<v Speaker 1>Like why? Um? So you know, we have realized some

0:21:49.280 --> 0:21:52.959
<v Speaker 1>of these answers through research in the sense of early introduction.

0:21:53.280 --> 0:21:55.920
<v Speaker 1>And that's probably the greatest study. It's called the Leap study,

0:21:56.000 --> 0:21:58.000
<v Speaker 1>done a few years ago in England. And the reason

0:21:58.040 --> 0:22:00.560
<v Speaker 1>why it was done is because we realize as Israeli

0:22:00.640 --> 0:22:07.439
<v Speaker 1>kids eating bomba, the peanut puff um, and so they

0:22:07.480 --> 0:22:09.399
<v Speaker 1>seem to have less peanut allergy than the rest of

0:22:09.400 --> 0:22:12.080
<v Speaker 1>the world. Um. And so that study looked at sort

0:22:12.119 --> 0:22:14.919
<v Speaker 1>of early introduction between four and eleven month olds for

0:22:15.320 --> 0:22:17.639
<v Speaker 1>high risk kids, meaning monitor to see eggs and or

0:22:17.680 --> 0:22:20.920
<v Speaker 1>egg allergy. UM. So certainly early introduction I think sort

0:22:21.000 --> 0:22:23.680
<v Speaker 1>speaks to that. UM. There's a lot of study of

0:22:23.760 --> 0:22:26.280
<v Speaker 1>medicine nowadays sort of looking at the microbiome in the

0:22:26.280 --> 0:22:28.679
<v Speaker 1>sense of the good or back bacteria or whatever the

0:22:28.680 --> 0:22:31.640
<v Speaker 1>bacteria is, whether it's on your skin or in your

0:22:31.640 --> 0:22:34.199
<v Speaker 1>gud and how are we affecting that. That concept of

0:22:34.240 --> 0:22:37.600
<v Speaker 1>like if you have UM exposure to farm animals are

0:22:37.720 --> 0:22:40.439
<v Speaker 1>living on a farm and having less allergy has certainly

0:22:40.480 --> 0:22:45.359
<v Speaker 1>been validated. So I think one thing moms she says

0:22:45.480 --> 0:22:47.960
<v Speaker 1>always like I don't know where she pulls this out,

0:22:47.960 --> 0:22:50.280
<v Speaker 1>but she'll just be like, it's always good for a

0:22:50.680 --> 0:22:54.040
<v Speaker 1>house to have a dog because then your kid won't

0:22:54.080 --> 0:22:56.399
<v Speaker 1>be allergic to dogs. Like she says stuff like this,

0:22:56.440 --> 0:22:58.920
<v Speaker 1>And I'm like, where are you getting these facts? UM,

0:22:59.520 --> 0:23:01.920
<v Speaker 1>But I guess that that is true. Well, it's also

0:23:01.960 --> 0:23:04.800
<v Speaker 1>speaking to UM sort of going back to that microbiome

0:23:04.840 --> 0:23:09.520
<v Speaker 1>in the sense of the more sort of viruses, bacteria,

0:23:09.800 --> 0:23:13.000
<v Speaker 1>germs you're exposed to, the greater variability that you're going

0:23:13.040 --> 0:23:15.280
<v Speaker 1>to have, And that's what we're realizing, is the variability

0:23:15.359 --> 0:23:18.399
<v Speaker 1>is sort of what is protective? Um, But it's one

0:23:18.440 --> 0:23:21.400
<v Speaker 1>of a million questions. It's one of a million probably reasons.

0:23:21.560 --> 0:23:24.240
<v Speaker 1>They're probably a some genetic component going from the first

0:23:24.320 --> 0:23:26.600
<v Speaker 1>child to the second child. Is the seven percent chance

0:23:26.640 --> 0:23:32.600
<v Speaker 1>of having food allergy? It's not, But that's not because

0:23:32.640 --> 0:23:35.520
<v Speaker 1>we were saying they're allergic to the same food, but

0:23:35.560 --> 0:23:37.879
<v Speaker 1>their reaction and the treatment and what I have to

0:23:37.920 --> 0:23:42.000
<v Speaker 1>look for completely different. Like it's actually think she's my

0:23:42.160 --> 0:23:47.240
<v Speaker 1>only family who there are two kids with food allergies.

0:23:47.359 --> 0:23:51.000
<v Speaker 1>That's not necessarily rare, but like two kids with different

0:23:51.040 --> 0:23:54.520
<v Speaker 1>types of reactions. Um. So I was stilling around the

0:23:54.520 --> 0:23:58.680
<v Speaker 1>look and that is how special her genes are. So

0:23:58.800 --> 0:24:00.639
<v Speaker 1>are you guys, like on speech? How often do you

0:24:00.720 --> 0:24:05.120
<v Speaker 1>see Dr Julie? Um? I feel like pretty regular because

0:24:05.119 --> 0:24:07.680
<v Speaker 1>we do a bunch of food tests. We do because

0:24:07.920 --> 0:24:10.280
<v Speaker 1>in trying to see if she can, if you know,

0:24:10.320 --> 0:24:13.720
<v Speaker 1>Alie at this point can outgrow them. We've had tests

0:24:13.800 --> 0:24:17.639
<v Speaker 1>every year for her and then to outgrow her dairy allergy.

0:24:17.840 --> 0:24:20.720
<v Speaker 1>We had to start with dairy baked into food, so

0:24:20.720 --> 0:24:22.960
<v Speaker 1>it's like baked milk in muffins, and then it was

0:24:23.359 --> 0:24:26.480
<v Speaker 1>milk in like um crackers or and like then it

0:24:26.520 --> 0:24:28.480
<v Speaker 1>was cooked cheese, and it was pizza, then it was

0:24:28.520 --> 0:24:31.159
<v Speaker 1>a glass. And so depending on kind of where we

0:24:31.240 --> 0:24:34.560
<v Speaker 1>feel she is, we have to do multiple food challenges

0:24:34.640 --> 0:24:36.639
<v Speaker 1>in Dr Lee's office, which is like a four to

0:24:36.720 --> 0:24:39.959
<v Speaker 1>five hour challenge every time. And so we've done that

0:24:40.000 --> 0:24:41.840
<v Speaker 1>for eggs, We've done that for peanuts, We've done that

0:24:41.880 --> 0:24:43.520
<v Speaker 1>for skin test saying I feel like we've done that

0:24:43.560 --> 0:24:47.080
<v Speaker 1>for a lot. So were you allergic to anything? Nope? Nothing,

0:24:47.320 --> 0:24:50.560
<v Speaker 1>So this is like new to you. It's my Nope,

0:24:50.600 --> 0:24:53.520
<v Speaker 1>neither of us hill eat anything. I'm weird and picky

0:24:53.560 --> 0:24:56.760
<v Speaker 1>about food, but not allergic. Um, but it's really just

0:24:56.800 --> 0:24:59.040
<v Speaker 1>this generation so I wouldn't need nearly say. It's hard

0:24:59.040 --> 0:25:01.760
<v Speaker 1>to think gets worse than ever. Oh yeah, it definitely

0:25:01.880 --> 0:25:04.480
<v Speaker 1>is roast peanut butter, for example, and it was introduced

0:25:04.480 --> 0:25:06.960
<v Speaker 1>into Australia. You know, there was an increase in their

0:25:06.960 --> 0:25:09.440
<v Speaker 1>food allergy. We've always had roasted peanut butter, and we're

0:25:09.440 --> 0:25:11.760
<v Speaker 1>probably doing you know, other things to our foods as

0:25:11.760 --> 0:25:14.639
<v Speaker 1>well to sort of change it's allergenicity of it in

0:25:14.760 --> 0:25:17.800
<v Speaker 1>the how we make the food. Oh my god, this

0:25:17.880 --> 0:25:20.080
<v Speaker 1>is so and I talked to it. Actually I'm like, okay,

0:25:20.119 --> 0:25:21.919
<v Speaker 1>So is there anything that I did while I was

0:25:21.960 --> 0:25:23.760
<v Speaker 1>pregnant with Ali that I shouldn't do, but then I

0:25:23.760 --> 0:25:26.600
<v Speaker 1>should do differently with Easy? I'm like, we're doing it again,

0:25:27.240 --> 0:25:29.800
<v Speaker 1>and I ate less. I ate a lot of peanuts

0:25:29.800 --> 0:25:31.879
<v Speaker 1>and eggs when I was pregnant with Alley. I ate

0:25:31.960 --> 0:25:33.480
<v Speaker 1>much less if it when I was pregnant with Easy

0:25:33.480 --> 0:25:35.800
<v Speaker 1>because I obviously couldn't have it in the house. So,

0:25:36.359 --> 0:25:50.040
<v Speaker 1>you know, neither neither works. Can you take me through

0:25:50.119 --> 0:25:53.280
<v Speaker 1>when you meet a baby or something and you're testing

0:25:53.280 --> 0:25:55.639
<v Speaker 1>them for allergies, is it the same as with an adult, Like,

0:25:55.720 --> 0:25:58.119
<v Speaker 1>is it those pricks? Yeah? So the way I described

0:25:58.119 --> 0:25:59.840
<v Speaker 1>it to older chilling some mouse how to fork, this

0:26:00.040 --> 0:26:01.720
<v Speaker 1>is what he would used to eat with. It's dipped

0:26:01.720 --> 0:26:04.160
<v Speaker 1>into liquid and then pricked on top of the back.

0:26:04.359 --> 0:26:07.080
<v Speaker 1>It's not a needle, there's no blood. We wait fifteen minutes.

0:26:07.119 --> 0:26:10.399
<v Speaker 1>I expect a readit chey bump. So very similar adults. Obviously,

0:26:10.440 --> 0:26:14.320
<v Speaker 1>we're doing you know, many more with kids. Specifically with food,

0:26:14.400 --> 0:26:16.520
<v Speaker 1>you try to be very targeted because you're not wanting

0:26:16.560 --> 0:26:18.960
<v Speaker 1>to get those false positives and avoid foods for no

0:26:19.000 --> 0:26:21.960
<v Speaker 1>good reason. Um, so it should be you know, specific

0:26:22.040 --> 0:26:23.840
<v Speaker 1>in the sense of what have you had a reaction to,

0:26:24.040 --> 0:26:26.600
<v Speaker 1>what is associated with that food. So, for example, if

0:26:26.640 --> 0:26:28.440
<v Speaker 1>you come into me and you've had a peanut reaction

0:26:28.560 --> 0:26:30.720
<v Speaker 1>up to pen allergic, kids are going to be allergic

0:26:30.760 --> 0:26:32.520
<v Speaker 1>to tree nuts. So I'm going to skin test those

0:26:32.560 --> 0:26:35.919
<v Speaker 1>tree nuts before you know, we try them. It's so

0:26:36.000 --> 0:26:37.960
<v Speaker 1>crazy that it's worse now than ever. I mean, I

0:26:38.000 --> 0:26:40.760
<v Speaker 1>feel like that's even a thing. There's preschools that are

0:26:40.800 --> 0:26:45.760
<v Speaker 1>no nut schools, so our school is not a nut

0:26:45.760 --> 0:26:48.320
<v Speaker 1>free school, but Ali's room is a nut freedom room,

0:26:48.960 --> 0:26:51.080
<v Speaker 1>and so this is like a real thing, you guys.

0:26:51.119 --> 0:26:52.760
<v Speaker 1>And I feel bad because, like my husband is really

0:26:52.760 --> 0:26:55.120
<v Speaker 1>allergic to a lot of things. But I'm always like, Okay,

0:26:55.480 --> 0:26:58.320
<v Speaker 1>it's fine, like get over it because his aren't. His

0:26:58.400 --> 0:27:00.960
<v Speaker 1>aren't like ones and their life rereatening. And they're like,

0:27:01.160 --> 0:27:03.320
<v Speaker 1>he gets a scratchy throat for a walnut and he

0:27:03.359 --> 0:27:05.639
<v Speaker 1>gets a scratchy throat and like sneezy if the apple

0:27:05.720 --> 0:27:09.040
<v Speaker 1>is really ripe, like all of those things, um and

0:27:09.080 --> 0:27:11.359
<v Speaker 1>sneezing a lot. And he's like, but you don't understand

0:27:11.359 --> 0:27:14.080
<v Speaker 1>how uncomfortable this is. Like this is terrible, like it is,

0:27:14.119 --> 0:27:17.080
<v Speaker 1>but it's so much lower risk to progress. Get over it.

0:27:17.080 --> 0:27:20.280
<v Speaker 1>It's like, so I'm so, I'm so mean about it,

0:27:20.359 --> 0:27:24.719
<v Speaker 1>Like can't, So don't be so mean about it. You're welcome,

0:27:24.880 --> 0:27:27.320
<v Speaker 1>Like I felt much, I feel like I'm being more

0:27:27.359 --> 0:27:31.680
<v Speaker 1>compassionate towards it and also being a new mom um

0:27:31.720 --> 0:27:34.960
<v Speaker 1>getting through the fear of it and that it can

0:27:35.000 --> 0:27:36.680
<v Speaker 1>still be a thing. I mean, as of right now,

0:27:36.880 --> 0:27:38.919
<v Speaker 1>Alvic hasn't shown any signs of anything, but I have

0:27:39.000 --> 0:27:41.679
<v Speaker 1>to say I won't let him have shrimp or sushi

0:27:41.760 --> 0:27:43.640
<v Speaker 1>or any that kind of thing. But also going through

0:27:43.640 --> 0:27:46.320
<v Speaker 1>it with Julie, I've been my eyes have been very

0:27:46.480 --> 0:27:49.480
<v Speaker 1>very open to like, holy shit, this is and that

0:27:49.640 --> 0:27:53.600
<v Speaker 1>and that should just be like a mantra of um parenting, right,

0:27:53.720 --> 0:27:56.840
<v Speaker 1>Like I mean, I think that's with almost every aspect

0:27:56.920 --> 0:27:59.000
<v Speaker 1>in life. Until you've wall through those shoes, you don't

0:27:59.040 --> 0:28:02.439
<v Speaker 1>really understand and um. But you know, so much of

0:28:02.560 --> 0:28:05.920
<v Speaker 1>parenting nowadays is so debatable. You can find a blog

0:28:05.960 --> 0:28:09.800
<v Speaker 1>to support anything and another blog to support the exact opposite.

0:28:10.040 --> 0:28:13.359
<v Speaker 1>And is there truly one right answer? Probably not, And

0:28:13.400 --> 0:28:17.439
<v Speaker 1>so just have empathy and also even in treatments that

0:28:17.480 --> 0:28:19.919
<v Speaker 1>they're trying to do to help people outgrow, you know,

0:28:19.960 --> 0:28:23.480
<v Speaker 1>the oral immunotherapy, which it's that as gonna say, she

0:28:23.480 --> 0:28:25.560
<v Speaker 1>can you can speak to it more technically than I can,

0:28:25.680 --> 0:28:28.720
<v Speaker 1>but it's I mean, maybe explain it first. But it's

0:28:28.720 --> 0:28:31.200
<v Speaker 1>something that we looked into and we talked to Dr

0:28:31.320 --> 0:28:34.320
<v Speaker 1>Lee about it and decided it wasn't right for us yet.

0:28:34.359 --> 0:28:38.520
<v Speaker 1>But other people feel differently and feel strongly about it.

0:28:38.200 --> 0:28:40.719
<v Speaker 1>Say so right now, the same care for food allergy

0:28:40.840 --> 0:28:43.040
<v Speaker 1>is to avoid the food care around your upper pen

0:28:43.240 --> 0:28:46.400
<v Speaker 1>in case you have an excellentestion or reaction. UM. The

0:28:46.480 --> 0:28:49.800
<v Speaker 1>new concept for food allergy, it's not actually not so new,

0:28:49.880 --> 0:28:52.680
<v Speaker 1>there's just more data sort of coming down. The pipeline

0:28:53.040 --> 0:28:57.280
<v Speaker 1>is treating food allergy with small amounts of the food.

0:28:57.320 --> 0:28:59.400
<v Speaker 1>So starting with a small amount and gradually increase and

0:28:59.440 --> 0:29:03.000
<v Speaker 1>so it's called oral immunotherapy o I T. And so

0:29:03.040 --> 0:29:04.720
<v Speaker 1>there will be to have to get proved products for

0:29:04.760 --> 0:29:07.760
<v Speaker 1>peanut in particular peanut patch and a peanut oral product.

0:29:07.840 --> 0:29:10.120
<v Speaker 1>But since it's foods, you can sort of start that

0:29:10.200 --> 0:29:12.960
<v Speaker 1>process before we have enough to approved product. And so

0:29:12.960 --> 0:29:15.600
<v Speaker 1>it's pretty common actually all throughout the United States, and

0:29:15.640 --> 0:29:18.160
<v Speaker 1>that concept, um, you know when you look at the

0:29:18.240 --> 0:29:20.560
<v Speaker 1>data though, UM, we're not necessarily carrying a lot of

0:29:20.640 --> 0:29:24.280
<v Speaker 1>children by doing this, and it is a very tedious

0:29:24.360 --> 0:29:27.719
<v Speaker 1>process and the sense of sounds exhaust and doing it

0:29:27.960 --> 0:29:30.280
<v Speaker 1>every day, you know, so it's like, for example, you

0:29:30.280 --> 0:29:33.040
<v Speaker 1>would be doing tin peanuts every day with a two

0:29:33.080 --> 0:29:36.160
<v Speaker 1>hour rest period um and the risk of antiflaxus is

0:29:36.160 --> 0:29:38.520
<v Speaker 1>still there. And some of those kids on the d

0:29:38.560 --> 0:29:41.600
<v Speaker 1>and fiftieth time that they've done their tin peanuts, they

0:29:41.640 --> 0:29:44.120
<v Speaker 1>having a flaxus that day. And sometimes it's because they

0:29:44.200 --> 0:29:45.959
<v Speaker 1>ran around or they didn't have anything else on their

0:29:45.960 --> 0:29:49.120
<v Speaker 1>stumf virus. The other thing is that that rest period

0:29:49.200 --> 0:29:51.200
<v Speaker 1>is that when you're more active when you're sick, like

0:29:51.240 --> 0:29:56.880
<v Speaker 1>different things in your body. How am I supposed to

0:29:56.920 --> 0:30:00.600
<v Speaker 1>explain to Ali that for two hours there's no running

0:30:00.600 --> 0:30:04.000
<v Speaker 1>around or jumping, And you know, she's an active child

0:30:04.040 --> 0:30:06.080
<v Speaker 1>and I want her to be that way. And so

0:30:06.240 --> 0:30:09.040
<v Speaker 1>when we just looked at kind of the risks rewards

0:30:09.080 --> 0:30:11.000
<v Speaker 1>for us at the moment, it's not for us, and

0:30:11.000 --> 0:30:13.080
<v Speaker 1>we're going to continue to reevaluate it, and you know,

0:30:13.120 --> 0:30:15.400
<v Speaker 1>we may feel differently about the patch when it's available

0:30:15.760 --> 0:30:18.400
<v Speaker 1>because that's a little lower risk for us. Yeah, so

0:30:18.440 --> 0:30:21.320
<v Speaker 1>the risk of aniflax is going to be much less um,

0:30:21.360 --> 0:30:23.880
<v Speaker 1>just with the past, though the yield is probably much

0:30:23.960 --> 0:30:26.960
<v Speaker 1>less as well. But it's that we're not necessarily curing

0:30:27.040 --> 0:30:30.320
<v Speaker 1>children by doing this, Um, we are increasing their threshold.

0:30:30.400 --> 0:30:32.560
<v Speaker 1>So for example, at the beginning of the study, you

0:30:32.600 --> 0:30:34.200
<v Speaker 1>eat one peanut and you have a reaction. At the

0:30:34.280 --> 0:30:35.800
<v Speaker 1>end of the study you eat tin peanuts and then

0:30:35.840 --> 0:30:37.880
<v Speaker 1>have a reaction. So I do think we can increase

0:30:37.880 --> 0:30:40.080
<v Speaker 1>the threshold. I just I don't know for a lot

0:30:40.120 --> 0:30:42.360
<v Speaker 1>of kids, I don't know how meaningful that is. Most

0:30:42.360 --> 0:30:44.080
<v Speaker 1>of my kids that I see, they come back to me,

0:30:44.360 --> 0:30:46.760
<v Speaker 1>you know, a year later and I say, you know,

0:30:46.880 --> 0:30:48.720
<v Speaker 1>or you're avoiding your food. Yes, have you had any

0:30:48.720 --> 0:30:51.320
<v Speaker 1>excellent ingestions or reactions? No, have used your eppypin No.

0:30:51.680 --> 0:30:54.320
<v Speaker 1>And they're not doing anything on a daily basis with

0:30:54.360 --> 0:30:56.680
<v Speaker 1>a two hour rest period to accomplish that. They're just

0:30:56.720 --> 0:30:59.400
<v Speaker 1>not having any issues. So I think it's possible. I

0:30:59.440 --> 0:31:03.400
<v Speaker 1>think just of the cross contamination pieces of like definitely.

0:31:03.400 --> 0:31:05.840
<v Speaker 1>Where So the argument is now with this sort of

0:31:05.840 --> 0:31:09.320
<v Speaker 1>treatment or eveno therapy, is to protect from cross contact

0:31:09.440 --> 0:31:11.120
<v Speaker 1>if you accidentally eat the food. No one's going to

0:31:11.200 --> 0:31:13.920
<v Speaker 1>purposely eat the food, then, UM, you have some sort

0:31:13.960 --> 0:31:17.479
<v Speaker 1>of insurance policy protection that that small amount is not

0:31:17.520 --> 0:31:21.120
<v Speaker 1>going to cause a severe reaction, maybe something milder or nothing.

0:31:22.520 --> 0:31:25.600
<v Speaker 1>This is like I'm quiet because I'm like wow, Like

0:31:25.680 --> 0:31:28.640
<v Speaker 1>this is it's like motherhood. You just like jump in

0:31:29.160 --> 0:31:31.320
<v Speaker 1>and you just last think I hangure it out as

0:31:31.320 --> 0:31:34.400
<v Speaker 1>you go. I had no choice. It was like you're

0:31:34.440 --> 0:31:37.520
<v Speaker 1>just like okay, so and here I go, and here's

0:31:37.520 --> 0:31:39.040
<v Speaker 1>what we're going to do. Or are there any other

0:31:39.120 --> 0:31:40.920
<v Speaker 1>things of how we can teach kids how to be

0:31:40.920 --> 0:31:44.040
<v Speaker 1>advocates for themselves? I mean, what if you're a kid

0:31:44.040 --> 0:31:50.440
<v Speaker 1>that's not like Ali, Like I just feel like, and

0:31:50.560 --> 0:31:53.880
<v Speaker 1>she's so well spoken at such a young age, and

0:31:53.880 --> 0:31:57.240
<v Speaker 1>and that's not every kid with allergies, so like she's

0:31:57.280 --> 0:32:02.520
<v Speaker 1>helping easy to know that already she tell groundwork. Yeah.

0:32:02.640 --> 0:32:05.560
<v Speaker 1>So UM, A lot of times with schools, I'll go

0:32:05.720 --> 0:32:08.200
<v Speaker 1>and give a presentation to sort of speak to what

0:32:08.240 --> 0:32:10.680
<v Speaker 1>type of culture can you set up to just protect

0:32:10.720 --> 0:32:13.200
<v Speaker 1>all children? Um? And a lot of times it's you know,

0:32:13.280 --> 0:32:17.160
<v Speaker 1>keeping food separate from the play areas. Um, no one's

0:32:17.200 --> 0:32:19.800
<v Speaker 1>sharing food, no one's bringing any food in, You're not

0:32:19.920 --> 0:32:23.080
<v Speaker 1>accepting food from anyone. So UM, I think a lot

0:32:23.120 --> 0:32:26.120
<v Speaker 1>of those aspects. UM. Sometimes the hardest people to train

0:32:26.160 --> 0:32:28.480
<v Speaker 1>our family members and when you go to a family event,

0:32:28.520 --> 0:32:31.640
<v Speaker 1>they just want to feed children. Um. And maybe it's

0:32:31.680 --> 0:32:34.360
<v Speaker 1>that in the sense of, um, we're not sharing our

0:32:34.440 --> 0:32:37.440
<v Speaker 1>food so openly, um, until we know that we're just

0:32:37.520 --> 0:32:39.720
<v Speaker 1>okay with all those ingredients. And the problem is like

0:32:39.760 --> 0:32:43.360
<v Speaker 1>hidden ingredients to people don't realize what's in things. Andevitably,

0:32:43.440 --> 0:32:44.840
<v Speaker 1>you know, a patient comes to me and they've had

0:32:44.880 --> 0:32:48.520
<v Speaker 1>a reaction to hummus. It's always sesame and hummus and nevilly.

0:32:48.600 --> 0:32:51.920
<v Speaker 1>The parents are like, oh, there's sesame in heaven. No

0:32:52.000 --> 0:32:55.640
<v Speaker 1>idea I was, and of course, you know, I mean

0:32:55.680 --> 0:32:59.000
<v Speaker 1>I never thought about these things until um, I did

0:32:59.040 --> 0:33:01.480
<v Speaker 1>food allergy. And also it's like, oh, people understand that

0:33:01.520 --> 0:33:03.960
<v Speaker 1>peanut allergies are severe, but they don't have the same

0:33:04.040 --> 0:33:06.760
<v Speaker 1>understanding that other foods can be just as severe. So

0:33:07.120 --> 0:33:09.400
<v Speaker 1>when I say Ali can't have eggs, and that means

0:33:09.400 --> 0:33:11.320
<v Speaker 1>you can't have eggs, but she can't have eggs cooked

0:33:11.320 --> 0:33:14.120
<v Speaker 1>into anything baked, it like there can't be eggs anywhere.

0:33:14.440 --> 0:33:16.320
<v Speaker 1>So it's like, oh, but this cracker has eggs, but

0:33:16.360 --> 0:33:20.320
<v Speaker 1>that's okay because like it's can't be involved in the

0:33:20.360 --> 0:33:22.880
<v Speaker 1>making of this food. Exactly and also in terms of

0:33:22.920 --> 0:33:24.960
<v Speaker 1>what you can do. I think for kids, there are

0:33:25.120 --> 0:33:28.480
<v Speaker 1>kids books about sharing your food or being aware of

0:33:28.520 --> 0:33:31.480
<v Speaker 1>your friends with food allergies that will read with Ali

0:33:31.640 --> 0:33:35.080
<v Speaker 1>and starting to read with Izzy that it's I think

0:33:35.080 --> 0:33:37.800
<v Speaker 1>they're good for kids also that don't have food allergies,

0:33:37.800 --> 0:33:40.080
<v Speaker 1>because it's not just about advocating for yourself, but it's

0:33:40.080 --> 0:33:44.360
<v Speaker 1>about being empathetic and understanding with your friends. I need

0:33:44.400 --> 0:33:46.400
<v Speaker 1>to get a list when you have time. I know

0:33:46.440 --> 0:33:49.360
<v Speaker 1>you're both. DN Tiger has one. I think Elmo has

0:33:49.440 --> 0:33:51.680
<v Speaker 1>one as well. There's a book like I think it's

0:33:51.680 --> 0:33:55.960
<v Speaker 1>called EPI the Elephant. Probably the most useful link from

0:33:56.000 --> 0:33:59.720
<v Speaker 1>just a general educational perspective as Fair's website F A R. E.

0:34:00.080 --> 0:34:02.680
<v Speaker 1>And I think there it's like food allergy dot org

0:34:02.800 --> 0:34:06.360
<v Speaker 1>or something UM but it's a nonprofit started initially, you know,

0:34:06.400 --> 0:34:09.680
<v Speaker 1>by families of kids who have food allergy, and they

0:34:09.719 --> 0:34:11.640
<v Speaker 1>just do a really good job at sort of putting

0:34:11.640 --> 0:34:14.799
<v Speaker 1>all the material out there and providing material, whether it's

0:34:14.920 --> 0:34:18.360
<v Speaker 1>for you know, schools or restaurants. But have you, Julie,

0:34:18.440 --> 0:34:22.120
<v Speaker 1>what are tips that you would give UM new moms

0:34:22.800 --> 0:34:25.640
<v Speaker 1>who don't know if their kid is allergy or what

0:34:25.760 --> 0:34:28.480
<v Speaker 1>is a tip you would give to moms who are

0:34:28.480 --> 0:34:30.840
<v Speaker 1>dealing with kids who are having a lot of allergies.

0:34:31.200 --> 0:34:33.200
<v Speaker 1>I think if you don't know, I think the early

0:34:33.239 --> 0:34:36.520
<v Speaker 1>introduction and trying to do that, and for me, keeping

0:34:37.000 --> 0:34:39.640
<v Speaker 1>logs and notes was careful. It was important so that

0:34:39.680 --> 0:34:44.560
<v Speaker 1>you could kind of see what what you're reacting to. UM.

0:34:44.600 --> 0:34:48.319
<v Speaker 1>Trusting your gut I think is really important because lots

0:34:48.360 --> 0:34:51.319
<v Speaker 1>of kids have rashes or bumps or redness, and for me,

0:34:51.440 --> 0:34:54.239
<v Speaker 1>any of those things can be incredibly serious. So I

0:34:54.280 --> 0:34:57.440
<v Speaker 1>don't get to ignore those. So if you see something

0:34:57.560 --> 0:35:00.319
<v Speaker 1>or something doesn't seem right, speak up, and you know,

0:35:00.480 --> 0:35:03.400
<v Speaker 1>the worst thing that happens is you have reacted. And

0:35:03.520 --> 0:35:05.520
<v Speaker 1>that's kind of for the you know, people that don't

0:35:05.600 --> 0:35:11.560
<v Speaker 1>have allergies, UM, for people that do, be the advocate.

0:35:11.640 --> 0:35:14.359
<v Speaker 1>Do everything you have to, and also don't be so

0:35:14.440 --> 0:35:17.480
<v Speaker 1>hard on yourself because it's it's so hard. And I

0:35:17.560 --> 0:35:20.880
<v Speaker 1>just remember feeling so overwhelmed when both of the girls

0:35:20.880 --> 0:35:25.680
<v Speaker 1>were first diagnosed idea. I was just like, what how

0:35:25.719 --> 0:35:27.640
<v Speaker 1>am I going to do this? It's just it seems

0:35:27.680 --> 0:35:30.440
<v Speaker 1>so you know, monumental. You don't feel like you can

0:35:30.480 --> 0:35:32.879
<v Speaker 1>never really let your guard down. But you, you kind

0:35:32.920 --> 0:35:35.319
<v Speaker 1>of get more comfortable with what your game plan is.

0:35:35.760 --> 0:35:38.480
<v Speaker 1>And then when it happened with Isabella, given that it

0:35:38.560 --> 0:35:42.600
<v Speaker 1>was a completely different type of allergy, I was like, Okay,

0:35:42.640 --> 0:35:44.880
<v Speaker 1>like I thought I had this under control. Now I

0:35:44.960 --> 0:35:47.279
<v Speaker 1>have to step back. So it just don't be too

0:35:47.360 --> 0:35:49.680
<v Speaker 1>hard on yourself. And there are other people out there

0:35:49.680 --> 0:35:51.840
<v Speaker 1>that are dealing with the same things, and it's really

0:35:51.960 --> 0:35:55.000
<v Speaker 1>nice to kind of have them as support. Um I mean,

0:35:55.040 --> 0:35:57.719
<v Speaker 1>I was talking to someone who was first diagnosed and

0:35:57.800 --> 0:36:00.960
<v Speaker 1>was so overwhelmed and what if my kid, you know,

0:36:01.120 --> 0:36:03.560
<v Speaker 1>can't have pizza at a party. And I said, look,

0:36:03.600 --> 0:36:05.920
<v Speaker 1>I said, Ali now can have pizza at a party.

0:36:05.960 --> 0:36:08.000
<v Speaker 1>I was like, but the first time she did, even

0:36:08.000 --> 0:36:10.000
<v Speaker 1>though it was pizza that I brought from a pizza

0:36:10.000 --> 0:36:12.359
<v Speaker 1>place that I knew she could have, I cried at

0:36:12.400 --> 0:36:14.560
<v Speaker 1>the party because I was like, she looks like every

0:36:14.600 --> 0:36:18.279
<v Speaker 1>other kid eating pizza, Like I was so excited, you know.

0:36:18.400 --> 0:36:21.799
<v Speaker 1>So it's emotional. It's hard. Gosh, I'm scary. It's your baby.

0:36:22.080 --> 0:36:26.239
<v Speaker 1>It's so scary. Absolutely, I love that. Thank you and

0:36:26.440 --> 0:36:31.360
<v Speaker 1>um Dr Lee, what are your advice tips for moms

0:36:31.400 --> 0:36:35.040
<v Speaker 1>who are facing kids with a lot of allergies? Yes,

0:36:35.120 --> 0:36:41.720
<v Speaker 1>I think generally speaking, just facing them UM new moms

0:36:41.960 --> 0:36:45.319
<v Speaker 1>or to to reiterate boisterized your kids from day one

0:36:45.560 --> 0:36:48.560
<v Speaker 1>and UM, you know, I I like to advocate UM

0:36:48.800 --> 0:36:53.759
<v Speaker 1>to my patients and that to to find that working relationship.

0:36:53.880 --> 0:36:55.960
<v Speaker 1>And so, you know, if they see the first physician

0:36:56.120 --> 0:36:58.680
<v Speaker 1>and they don't feel like someone listened to them, or

0:36:58.680 --> 0:37:02.200
<v Speaker 1>they didn't feel like they were getting the answers UM

0:37:02.320 --> 0:37:04.600
<v Speaker 1>that they were expecting, maybe it is worthwhile to sour

0:37:04.640 --> 0:37:08.160
<v Speaker 1>see another physician. UM. Interestingly enough, and surround touched on

0:37:08.239 --> 0:37:10.840
<v Speaker 1>this when we first walked in the room, was everyone

0:37:10.880 --> 0:37:13.120
<v Speaker 1>wants it to be foods, and actually the majority of

0:37:13.120 --> 0:37:16.799
<v Speaker 1>the times is it's not foods, and so UM. You know,

0:37:16.960 --> 0:37:19.680
<v Speaker 1>if you get to an allergist and they seem very

0:37:19.719 --> 0:37:22.040
<v Speaker 1>well educated and confident in what they're saying and it's

0:37:22.040 --> 0:37:26.600
<v Speaker 1>not food, then maybe it's not. UM, it's mostly what

0:37:26.600 --> 0:37:29.319
<v Speaker 1>what's the other options? Sometimes it's just it's just it's

0:37:29.360 --> 0:37:34.200
<v Speaker 1>just not anything specific. UM. Generally speaking, skin testing and

0:37:34.200 --> 0:37:37.120
<v Speaker 1>blood testing for foods is only good at predicting immediately

0:37:37.160 --> 0:37:40.600
<v Speaker 1>threatening reactions. And so if you're coming in with very

0:37:40.600 --> 0:37:43.760
<v Speaker 1>good questions in the sense of is this food causing

0:37:43.800 --> 0:37:47.279
<v Speaker 1>my baby to be gassy or fussy or spitty or

0:37:47.360 --> 0:37:49.200
<v Speaker 1>eggs and me, I don't necessarily have a great test

0:37:49.239 --> 0:37:51.480
<v Speaker 1>to predict that, but if you don't eat the food,

0:37:51.480 --> 0:37:53.440
<v Speaker 1>then we're putting that kid at risk of developing an

0:37:53.440 --> 0:37:56.360
<v Speaker 1>immediately threatened reaction. So I generally try to keep the

0:37:56.360 --> 0:37:58.600
<v Speaker 1>food in the diet if we can, just in an

0:37:58.600 --> 0:38:01.520
<v Speaker 1>aspect to sort of create alerance. While we can do that,

0:38:01.560 --> 0:38:03.839
<v Speaker 1>because maybe later down the road when the skin is better,

0:38:03.880 --> 0:38:05.680
<v Speaker 1>because it's just most kids are going to get better

0:38:05.800 --> 0:38:09.040
<v Speaker 1>from eggsama, then now they've developed innimate like rent reaction

0:38:09.120 --> 0:38:12.160
<v Speaker 1>to that food. UM. So it is a balance, um

0:38:12.239 --> 0:38:13.759
<v Speaker 1>and and a lot of times it can take a

0:38:13.800 --> 0:38:17.000
<v Speaker 1>little bit of time to sort of get to that point. Um.

0:38:17.040 --> 0:38:19.200
<v Speaker 1>You know. But there's good medicine out there and good

0:38:19.200 --> 0:38:23.520
<v Speaker 1>people out there, but there's also not trust your gut.

0:38:24.520 --> 0:38:26.920
<v Speaker 1>Um you guys, thank you so much for coming on

0:38:27.000 --> 0:38:30.560
<v Speaker 1>Katie's Crib, for sharing your personal stories, your professional stories.

0:38:30.719 --> 0:38:34.400
<v Speaker 1>I'm loving your relationship. I wish you the best in

0:38:34.440 --> 0:38:39.319
<v Speaker 1>this beautiful marriage. And thank you guys so much for

0:38:39.320 --> 0:38:42.680
<v Speaker 1>coming on Katie's Crib. Thanks guys so much for listening,

0:38:42.880 --> 0:38:46.279
<v Speaker 1>and if you liked the episode, please subscribe. Rate share

0:38:46.320 --> 0:38:48.360
<v Speaker 1>it with all of your mom crew and do you

0:38:48.400 --> 0:38:50.480
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0:38:50.800 --> 0:38:53.239
<v Speaker 1>Let me know by reaching out on social media at

0:38:53.320 --> 0:38:56.520
<v Speaker 1>Katie's Crib or by email Katie's Crib at Shonda land

0:38:56.520 --> 0:39:05.920
<v Speaker 1>dot com. See you next week. Katie's Crib is a

0:39:05.920 --> 0:39:09.000
<v Speaker 1>production of Shonda land Audio in partnership with I Heart Radio.

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