WEBVTT - Code Blue Cafeteria

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<v Speaker 1>Family Secrets is a production of iHeartRadio. This semi conscious

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<v Speaker 1>woman moaning loudly on the bench wasn't just anyone. This

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<v Speaker 1>was Jane, my partner of thirty years. What was happening?

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<v Speaker 1>Was she dying? She sure looked like she was dying.

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<v Speaker 1>I desperately wanted to help her, but I couldn't suppress

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<v Speaker 1>my fear and confusion long enough to think straight. All

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<v Speaker 1>the usual tricks we doctors used to create a self

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<v Speaker 1>protected distance between an acubely suffering patient and our own psyches,

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<v Speaker 1>the space that allows us to make an objective, rational

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<v Speaker 1>plan to help. They weren't working. They couldn't work. This

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<v Speaker 1>was Jane.

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<v Speaker 2>That's doctor Barrett Rowlins, oncologist, cancer researcher, professor at Harvard

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<v Speaker 2>Medical School, an author of the recent memoir In Sickness,

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<v Speaker 2>Barrett is a stunning story of love and subterfuge, secrecy

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<v Speaker 2>and honor, loyalty and heartbreak, and the way that two

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<v Speaker 2>brilliant people worked over time to keep themselves in the dark.

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<v Speaker 2>I'm Danny Shapiro, and this is family Secrets. The secrets

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<v Speaker 2>that are kept from us, secrets we keep from others,

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<v Speaker 2>and the secrets we keep from ourselves. Usually I start

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<v Speaker 2>by asking my guests to tell me about the landscape

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<v Speaker 2>of their childhoods. But in your case, I'm going to

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<v Speaker 2>start in a different place, which is tell me how

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<v Speaker 2>you and Jane met oh.

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<v Speaker 1>I would love to. I was a medical resident at

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<v Speaker 1>the Boston Hospital, one of the Harvard Teaching hospitals, and

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<v Speaker 1>Jane was a third year medical student at Harvard Medical School.

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<v Speaker 1>So Jane was doing her internal medicine rotation, one of

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<v Speaker 1>the core rotations that medical students are required to take,

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<v Speaker 1>and she was doing it at the hospital where I

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<v Speaker 1>was working. The way that the hierarchy goes in the

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<v Speaker 1>hospital is that a resident like myself at that time,

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<v Speaker 1>as a senior resident, I was in charge of two teams,

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<v Speaker 1>one of which I ran, another one was run by

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<v Speaker 1>a junior resident, and then we had some interns working

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<v Speaker 1>with us, and then the medical students would be right

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<v Speaker 1>at the bottom of the totem pole. So there were

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<v Speaker 1>two female medical students who are going to be on

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<v Speaker 1>our joint team, one of my team, one or the

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<v Speaker 1>other team. So I hadn't met my students yet. But

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<v Speaker 1>one of my jobs at the hospital as the senior resident,

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<v Speaker 1>the nights that I was on call. I needed to

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<v Speaker 1>figure out how many beds were available in the intensive

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<v Speaker 1>care unit. In case anybody on the regular wards got

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<v Speaker 1>really sick, I would know what the capacity was for

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<v Speaker 1>transferring them. So I was walking through the intensive care

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<v Speaker 1>unit counting beds that I looked up and walking into

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<v Speaker 1>the intensive care unit was this tall, willowy, gorgeous woman,

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<v Speaker 1>you know, decked out in a short white coat, which

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<v Speaker 1>is the humiliating sort of costume that the third year

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<v Speaker 1>medical students have to wear. But she superseded the limitations

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<v Speaker 1>of her uniform and she walked up to me and

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<v Speaker 1>started asking me about some patient who was in the

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<v Speaker 1>intensive care unit. And you know, I didn't really know

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<v Speaker 1>who was in the intensive care unit because I wasn't

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<v Speaker 1>running the unit. I was only in their counting bits.

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<v Speaker 1>And her intern or resident had sent her into the

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<v Speaker 1>unit to find out how their patient was doing that

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<v Speaker 1>they had transferred the night before. A perfect thing for

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<v Speaker 1>a medical student to go do. But you know, again,

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<v Speaker 1>she was talking to the wrong person. So I said

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<v Speaker 1>to her, do you understand my role here? Thinking that

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<v Speaker 1>I would then sort of instruct her about what the

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<v Speaker 1>various roles are with the people that she would meet whatever.

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<v Speaker 1>Jane would tell this story, and she dined out in

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<v Speaker 1>this story a lot. She would say that I asked

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<v Speaker 1>her that question in the following way, do you understand

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<v Speaker 1>my role here? In other words, supercilious, obnoxious, And it

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<v Speaker 1>didn't matter how many times I tried to sort of

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<v Speaker 1>fight against that story. When she would tell it, she

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<v Speaker 1>told it so well that nobody ever believed that. It

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<v Speaker 1>wasn't a jerk when I talked to her about this.

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<v Speaker 1>But eventually, you know, I explained to her what the

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<v Speaker 1>roles were, and that was that. But our eyes had locked.

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<v Speaker 1>I don't want to say love at first sight, but

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<v Speaker 1>there was certainly a lot of interest at first sight.

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<v Speaker 1>And from that moment on we tried to find ways

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<v Speaker 1>to flirt with each other. If she was writing a

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<v Speaker 1>note in the chart, I would find some reason to

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<v Speaker 1>write a note in another chart, and we'd stand next

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<v Speaker 1>to each other and our hands would brush against each other,

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<v Speaker 1>you know, stuff like that. The most striking sort of

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<v Speaker 1>flirtation story, and this one we both agreed on, was

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<v Speaker 1>that another one of my jobs as a senior resident

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<v Speaker 1>was to work in the emergency room and see acutely

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<v Speaker 1>ill patients in the site who gets admitted. And one

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<v Speaker 1>of the jobs of a third year medical student to

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<v Speaker 1>sort of learn the ropes of medicine, was for every

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<v Speaker 1>patient that they admitted it were taken care of, they

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<v Speaker 1>were supposed to look at the urine from that patient

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<v Speaker 1>under a microscope. And in those sort of benighted times,

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<v Speaker 1>there was exactly one microscope in the whole hospital that

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<v Speaker 1>students could use, and it happened to be in the

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<v Speaker 1>emergency room, and Jay knew that, and she knew that

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<v Speaker 1>I was working there, so she kept trying to get

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<v Speaker 1>urine from her patients. And what she didn't remember was

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<v Speaker 1>that she was actually assigned to a ward of patients

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<v Speaker 1>who had chronic renal failure. In fact, they weren't making

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<v Speaker 1>any urine, and the word they were on didn't have

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<v Speaker 1>any bathrooms because nobody was making any urine. So after

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<v Speaker 1>three or four days of frustration and coming to this realization,

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<v Speaker 1>she went into a bathroom in another part of the

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<v Speaker 1>hospital and peed into a cup herself and brought her

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<v Speaker 1>own urine down to the emergency room so that she

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<v Speaker 1>could look at pretending it was one of her patients.

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<v Speaker 1>And she ran into me and we sort of bonded

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<v Speaker 1>over this really romantic little cup of urine that she

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<v Speaker 1>was looking at under the microscope. Things just sort of

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<v Speaker 1>snowballed from there. I didn't actually ask her out until

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<v Speaker 1>she had rotated off the service, but that's where it began.

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<v Speaker 2>When Barrett meets Jane, they both come to the relationship

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<v Speaker 2>carrying their histories. Barrett has an ex wife and a

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<v Speaker 2>three year old daughter named Anna, who he adores, and Jane.

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<v Speaker 2>Jane has her quirks. During their courtship, they're quick to

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<v Speaker 2>fall into young love. They find one another extraordinary, but

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<v Speaker 2>there are other forces at work. Barrett writes festooned with

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<v Speaker 2>bright red warning flags plus sirens flashing lights, but I

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<v Speaker 2>didn't see them. I was too far gone to let

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<v Speaker 2>it keep us apart.

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<v Speaker 1>Jane lived in Cambridge, and when I went to her apartment,

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<v Speaker 1>I was kind of flabbergasted to see that it was

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<v Speaker 1>utterly infested with cockroaches. I mean it was like something

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<v Speaker 1>out of a David Cronberg movie. It was really frightening,

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<v Speaker 1>and I was, let's say, put off by the environment.

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<v Speaker 1>Jane acted as if there was nothing wrong, and she

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<v Speaker 1>had this odd habit of, yeah, we'd be in the

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<v Speaker 1>middle of the conversation or watching TV or something, and

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<v Speaker 1>cockroach would go across the wall and she'd just reach

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<v Speaker 1>out with her bare hand and crush it. And I thought,

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<v Speaker 1>you know, okay, So I had a balance that ad

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<v Speaker 1>against all the good stuff, and the good stuff went

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<v Speaker 1>out there. Another example was in those days, Jane was

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<v Speaker 1>still smoking cigarettes and the sheets on her bed were

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<v Speaker 1>just riddled with these holes that cigarette ash had made.

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<v Speaker 1>And then when I asked her what it was, she said, yeah,

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<v Speaker 1>you know, they smoke it in bed, and you know,

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<v Speaker 1>the ash falls and it burns a little hole. She

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<v Speaker 1>never changed, she never did anything about this. This was

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<v Speaker 1>just sort of part of her thing and she just

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<v Speaker 1>didn't think about it. And then there was the night

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<v Speaker 1>before I began my fellow ship at Dana Farber in

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<v Speaker 1>medical oncology. You know, I completed my residency and now

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<v Speaker 1>I was going to do some specialty training, and it

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<v Speaker 1>was pretty high stakes for me, this sort of shift

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<v Speaker 1>to doing the fellowship, especially at a place like Dana

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<v Speaker 1>Farber with its reputation, and so I was a little

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<v Speaker 1>on edge. But still the night before I started, there

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<v Speaker 1>was a party that we were going to go to,

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<v Speaker 1>and Jada's didn't show up. She just never came and

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<v Speaker 1>I was getting more and more sort of worried about her.

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<v Speaker 1>And finally, you know, it got to be like eleven

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<v Speaker 1>or twelve o'clock at night and I needed to get

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<v Speaker 1>to sleep before starting my fellowship and got home called

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<v Speaker 1>her a bunch of times, you know, no answer. Then

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<v Speaker 1>finally she did answer the phone around one in the morning,

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<v Speaker 1>and it turned out that that night she had gone

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<v Speaker 1>to her ex boyfriend's house. One of these flashing red

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<v Speaker 1>lights was that when she started going out with me,

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<v Speaker 1>she was still involved in this relationship with an older guy.

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<v Speaker 1>Guy was older than both Jane and myself, and she

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<v Speaker 1>hadn't stopped that relationship when she started with me, and

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<v Speaker 1>she was going to use that night to stop the relationship.

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<v Speaker 1>But you know, one thing led to an other, she

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<v Speaker 1>said to me, and she ended up going to bed

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<v Speaker 1>with a guy, and I was floored. We had sort

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<v Speaker 1>of planned all this stuff, we were going to move

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<v Speaker 1>in together. I thought things are moving forward, and then

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<v Speaker 1>she does this. And her explanation to me was, you know,

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<v Speaker 1>she was having breakup sex. And I may be not

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<v Speaker 1>the most sophisticated guy in the world. And one of

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<v Speaker 1>the pieces of evidence for that is that I hadn't

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<v Speaker 1>heard of breakup sex. I mean, I now understand that

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<v Speaker 1>it's a thing, but at the time, it didn't feel

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<v Speaker 1>like a thing, and I was really fear as I

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<v Speaker 1>felt betrayed. I thought that she was sort of playing

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<v Speaker 1>with me and playing with this guy. I was pretty

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<v Speaker 1>angry and ended up trying not to have any contact

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<v Speaker 1>with her, and that lasted all of about forty eight hours,

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<v Speaker 1>and then we got back together and I just decided,

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<v Speaker 1>as I decided about so many things in the future,

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<v Speaker 1>I decided, I'm just not going to think about this.

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<v Speaker 1>Everything's flying now.

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<v Speaker 2>And it's funny. It's something that I've heard over the years,

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<v Speaker 2>which is that everything that you need to know about

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<v Speaker 2>somebody's marriage can actually be discerned on the first date

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<v Speaker 2>they're somewhere. Yeah, of course, with the twenty twenty hindsight,

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<v Speaker 2>but still it seems like there was, you know, this

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<v Speaker 2>intoxicating combination of great love and admiration. And also one

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<v Speaker 2>of the taglines for this show is the secrets we

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<v Speaker 2>keep from ourselves. In a way, you were already, it

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<v Speaker 2>seems to me, beginning with kind of a secret that

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<v Speaker 2>you were keeping from yourself, which was there are these

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<v Speaker 2>bright red warning lights, and I am going to ignore them.

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<v Speaker 1>Yeah, I think that's exactly accurate.

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<v Speaker 2>Barrett and Jane move in together. Both of their careers

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<v Speaker 2>are in a state of ascendancy. Jane lets Barrett know

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<v Speaker 2>right from the start that she does not want to

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<v Speaker 2>have children. She's entirely focused on her work and wants

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<v Speaker 2>to keep it that way. The idea of making a

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<v Speaker 2>family together is a non starter.

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<v Speaker 1>When I think about that time, I think of sort

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<v Speaker 1>of three threads that we were following. The most straightforward

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<v Speaker 1>one is career. I was climbing the academic ladder as

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<v Speaker 1>first a fellow and then a junior faculty member at

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<v Speaker 1>Dana Farberton Harvard. And you know, that requires a fair

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<v Speaker 1>amount of focus to stay on the track and a

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<v Speaker 1>fair amount of accomplishment to be able to stay on

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<v Speaker 1>the track. And I was lucky enough to be able

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<v Speaker 1>to do that. And I do that's not false modesty.

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<v Speaker 1>I really do think that I was lucky. I'm not

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<v Speaker 1>as smart or as naturally gifted around sciences so my

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<v Speaker 1>colleagues were, but I was able to make career for myself. Jane,

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<v Speaker 1>you know, was several years behind me, still trying to

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<v Speaker 1>decide where she was going to do her internship and residency,

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<v Speaker 1>what sub specialty she was going to be on. But still,

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<v Speaker 1>because she started late, she really had her eye on

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<v Speaker 1>where she wanted to go, and so she was working

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<v Speaker 1>very hard to make sure that she was sufficiently accomplished

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<v Speaker 1>so that all options would be open to her at

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<v Speaker 1>Harvard or wherever she decided she wanted to go. And

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<v Speaker 1>Jane was incredibly smart, incredibly quick, and would be able

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<v Speaker 1>to do that as long as she performed well. So

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<v Speaker 1>we were both really focused on career and advancement, and

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<v Speaker 1>that was one threat. A second threat was I learned

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<v Speaker 1>very very early on that the rules of our relationship

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<v Speaker 1>were going to be that Jane would be dependent upon

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<v Speaker 1>me for every practical matter. She didn't drive, I'd have

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<v Speaker 1>to drive her wherever she'd wanted to go. I was

0:12:13.400 --> 0:12:16.719
<v Speaker 1>responsible for doing the grocery shopping. I was responsible for

0:12:16.800 --> 0:12:20.120
<v Speaker 1>the laundry. I was responsible for finances. You know, you

0:12:20.120 --> 0:12:22.280
<v Speaker 1>could just go down the list of everything that's required

0:12:22.320 --> 0:12:25.319
<v Speaker 1>to maintain a household, and that all ended up being

0:12:25.440 --> 0:12:30.280
<v Speaker 1>my responsibility. She really liked to just lie in bed

0:12:30.400 --> 0:12:33.280
<v Speaker 1>when she wasn't busy working. You know, she was an

0:12:33.320 --> 0:12:37.760
<v Speaker 1>Olympic level sleeper and napper, and that left all the

0:12:37.920 --> 0:12:41.240
<v Speaker 1>practical stuff to me. Jane and I worked at the

0:12:41.280 --> 0:12:44.480
<v Speaker 1>same place she was at. Dana Farber also is incredibly

0:12:44.480 --> 0:12:46.400
<v Speaker 1>wonderful to be able to be working at the same

0:12:46.400 --> 0:12:48.480
<v Speaker 1>place and we knew all the same people. We went

0:12:48.520 --> 0:12:51.120
<v Speaker 1>into work together and went home together. We worked very

0:12:51.200 --> 0:12:54.360
<v Speaker 1>hard during the week, and again another domestic chore is

0:12:54.400 --> 0:12:57.000
<v Speaker 1>making meals, and so I made all of our meals.

0:12:57.640 --> 0:13:01.280
<v Speaker 1>But on Friday night we had eight night. On Friday nights,

0:13:01.480 --> 0:13:04.160
<v Speaker 1>it was my job to make a reservation at a

0:13:04.200 --> 0:13:06.800
<v Speaker 1>restaurant somewhere in Boston or Cambridge, and we would go

0:13:06.840 --> 0:13:09.640
<v Speaker 1>out to yat and we would sort of review the

0:13:09.679 --> 0:13:12.760
<v Speaker 1>week's events and gossip a little bit, and we wouldn't

0:13:12.800 --> 0:13:15.680
<v Speaker 1>linger over dinner because Jane wanted to get home. And

0:13:15.720 --> 0:13:18.120
<v Speaker 1>the reason she wanted to get home was because as

0:13:18.160 --> 0:13:20.680
<v Speaker 1>soon as she walked into the apartment, she would say,

0:13:20.720 --> 0:13:23.600
<v Speaker 1>almost every week, she would say, guess what time it is?

0:13:23.840 --> 0:13:27.000
<v Speaker 1>And I'd say, what time is it, deer, and she'd say,

0:13:27.280 --> 0:13:30.800
<v Speaker 1>it's bedtime, and she would start shedding her clothes as

0:13:30.800 --> 0:13:34.439
<v Speaker 1>she was walking to the bedroom, crawl into bed. And

0:13:34.760 --> 0:13:38.079
<v Speaker 1>listeners may think that I'm exaggerating, but she would not

0:13:38.760 --> 0:13:41.240
<v Speaker 1>pretty much get out of bed until Monday morning when

0:13:41.240 --> 0:13:43.640
<v Speaker 1>she had to go back to work. She watched TV.

0:13:44.240 --> 0:13:48.439
<v Speaker 1>She played Solitaire later you know, computer of games. I

0:13:48.480 --> 0:13:52.439
<v Speaker 1>would bring her her meals in bed and she would

0:13:52.520 --> 0:13:55.560
<v Speaker 1>just sleep, wake up, watch little TV or have a meal,

0:13:55.800 --> 0:13:58.839
<v Speaker 1>sleep again, you watch movies, sleep again. That was really

0:13:59.240 --> 0:14:01.880
<v Speaker 1>essential for her. I think had nothing to do with

0:14:01.880 --> 0:14:04.880
<v Speaker 1>the physiology of sleep. I'm still not quite sure what

0:14:04.880 --> 0:14:06.400
<v Speaker 1>it had to do with, but it was an essential

0:14:06.480 --> 0:14:10.240
<v Speaker 1>part of her personality that she be disconnected as much

0:14:10.240 --> 0:14:13.360
<v Speaker 1>as she could from the real world when the opportunity

0:14:13.400 --> 0:14:14.240
<v Speaker 1>presented itself.

0:14:17.880 --> 0:14:21.320
<v Speaker 2>And the third thread in this complex braid was Jane's

0:14:21.360 --> 0:14:26.920
<v Speaker 2>attitude toward Barrett's very young daughter Anna. Early in their relationship,

0:14:27.360 --> 0:14:30.080
<v Speaker 2>when Jane had learned about Barrett's previous marriage and daughter,

0:14:30.480 --> 0:14:33.880
<v Speaker 2>she had said, I waited for you. Why couldn't you

0:14:33.920 --> 0:14:38.520
<v Speaker 2>have waited for me? A nonsensical question, But as their

0:14:38.520 --> 0:14:42.240
<v Speaker 2>relationship continues, this is a feeling Jane maintains, and it

0:14:42.320 --> 0:14:44.880
<v Speaker 2>manifests in her not wanting to have anything to do

0:14:44.960 --> 0:14:48.440
<v Speaker 2>with Anna. Not only does she not want children, she

0:14:48.480 --> 0:14:51.760
<v Speaker 2>doesn't want a stepchild either. She has no interest in

0:14:51.800 --> 0:14:55.960
<v Speaker 2>Anna and is actively dismissive, always finding a way to

0:14:55.960 --> 0:14:58.040
<v Speaker 2>get out of seeing her when Barrett tries to get

0:14:58.040 --> 0:14:58.880
<v Speaker 2>the family together.

0:15:01.880 --> 0:15:05.280
<v Speaker 1>There was a real effort on Jane's part to deny

0:15:06.320 --> 0:15:09.160
<v Speaker 1>that I had had any other life, and this is

0:15:09.200 --> 0:15:11.200
<v Speaker 1>one of the parts of the story that I am

0:15:11.560 --> 0:15:15.280
<v Speaker 1>most deeply ashamed of. You know, there is a lot

0:15:15.280 --> 0:15:18.720
<v Speaker 1>of complicity in the kinds of secrets that couples keep,

0:15:18.880 --> 0:15:21.480
<v Speaker 1>but in this particular case, a lot of Jane's secrets

0:15:21.480 --> 0:15:24.880
<v Speaker 1>could not have been kept had I not been complicit.

0:15:25.600 --> 0:15:31.960
<v Speaker 1>And to my undying shame, I suppressed my underlying desire

0:15:32.000 --> 0:15:34.000
<v Speaker 1>to spend time with my daughter so that I wouldn't

0:15:34.040 --> 0:15:36.200
<v Speaker 1>make Jane angry or any more jealous than she had

0:15:36.200 --> 0:15:38.280
<v Speaker 1>to be. And I can't begin to tell you how

0:15:38.400 --> 0:15:40.040
<v Speaker 1>terrible I feel about that, but it's what I did.

0:15:40.560 --> 0:15:44.040
<v Speaker 2>What I'm thinking about right now, Barrett, is it's almost

0:15:44.080 --> 0:15:47.040
<v Speaker 2>like the emotional arc of how you held all this

0:15:47.160 --> 0:15:50.200
<v Speaker 2>and how it made you feel. Because what you're describing,

0:15:50.840 --> 0:15:53.520
<v Speaker 2>and this is earlish in your relationship was the initial

0:15:53.560 --> 0:15:57.640
<v Speaker 2>red flags, and then the degree of being taken care

0:15:57.680 --> 0:16:03.040
<v Speaker 2>of that Jane required, and then her inability and complete

0:16:03.120 --> 0:16:05.000
<v Speaker 2>lack of desire to have anything to do with with

0:16:05.080 --> 0:16:08.400
<v Speaker 2>your child during those years. How did you hold that?

0:16:08.720 --> 0:16:10.560
<v Speaker 2>Where did you put that? And how did it make

0:16:10.600 --> 0:16:12.720
<v Speaker 2>you feel about Jane during that time?

0:16:13.320 --> 0:16:16.400
<v Speaker 1>Early in the relationship, I would be angry. I would

0:16:16.440 --> 0:16:18.800
<v Speaker 1>try to suppress it, but it would bubble up, and

0:16:18.840 --> 0:16:21.520
<v Speaker 1>when it did bubble up, I would be frustrated. One

0:16:21.520 --> 0:16:23.960
<v Speaker 1>of these things happened. I just made Jane her lunch

0:16:24.040 --> 0:16:25.720
<v Speaker 1>and give it to her in bed, and then she

0:16:26.720 --> 0:16:28.760
<v Speaker 1>asked me to do something, or maybe she had refused

0:16:28.840 --> 0:16:32.160
<v Speaker 1>to see Anna the next day. And then as I

0:16:32.360 --> 0:16:35.520
<v Speaker 1>walked back to my little home office, I kicked a

0:16:35.600 --> 0:16:38.680
<v Speaker 1>huge hole in the drywall. And I surprised myself because

0:16:38.680 --> 0:16:41.840
<v Speaker 1>I'm not a demonstrative kind of guy, and when I

0:16:41.840 --> 0:16:45.080
<v Speaker 1>get angry, I really don't yell on screen and pound

0:16:45.080 --> 0:16:48.320
<v Speaker 1>the table. But clearly there was a lot of feeling

0:16:48.320 --> 0:16:50.400
<v Speaker 1>in there that came out in my right foot. I

0:16:50.400 --> 0:16:53.000
<v Speaker 1>think I remember sort of thinking to myself, Oh, holy shit,

0:16:53.120 --> 0:16:55.320
<v Speaker 1>this stuff is really bothering me. But I didn't do

0:16:55.320 --> 0:16:58.000
<v Speaker 1>anything about it. What I worked at, instead of dealing

0:16:58.040 --> 0:16:59.960
<v Speaker 1>with the anger like a healthy person, what I want

0:17:00.040 --> 0:17:02.800
<v Speaker 1>work that was suppressing it even more so that I

0:17:02.800 --> 0:17:03.280
<v Speaker 1>wouldn't have.

0:17:03.320 --> 0:17:23.120
<v Speaker 2>Said, Jane, We'll be right back. Years pass as Barrett

0:17:23.200 --> 0:17:26.719
<v Speaker 2>tamps down his feelings of anger, and the couple stays

0:17:26.800 --> 0:17:30.639
<v Speaker 2>deeply immersed in their very intense work. What could be

0:17:30.680 --> 0:17:35.320
<v Speaker 2>more intense than the work of saving lives. Eventually they

0:17:35.359 --> 0:17:39.160
<v Speaker 2>moved to a beautiful apartment in Boston's Back Bay, overlooking

0:17:39.200 --> 0:17:41.680
<v Speaker 2>the spot where fireworks are set off each fourth of

0:17:41.760 --> 0:17:46.480
<v Speaker 2>July at Dana Farber. Barrett and Jane have lunch together

0:17:46.640 --> 0:17:50.119
<v Speaker 2>every day. They're attached to the hip, and though they

0:17:50.160 --> 0:17:53.399
<v Speaker 2>have a world of colleagues and friends, and though a

0:17:53.520 --> 0:17:57.119
<v Speaker 2>kind of hero worship surrounds Jane, it's really just the

0:17:57.160 --> 0:17:59.600
<v Speaker 2>two of them. Even when they seem sociable.

0:18:01.880 --> 0:18:04.000
<v Speaker 1>We were very much in a bubble, which is kind

0:18:04.000 --> 0:18:08.000
<v Speaker 1>of ironic because this business, the lunch table, sort of

0:18:08.000 --> 0:18:11.440
<v Speaker 1>looms large in James legend. In fact, some of the

0:18:11.480 --> 0:18:15.080
<v Speaker 1>senior faculty members used to derisively call it Jane's high table.

0:18:15.560 --> 0:18:19.399
<v Speaker 1>There were lots of our contemporaries, and especially a younger

0:18:19.560 --> 0:18:22.600
<v Speaker 1>junior faculty, who would love to sit with us and

0:18:22.680 --> 0:18:26.240
<v Speaker 1>have lunch. And Jane, she was clever, and she was witty,

0:18:26.280 --> 0:18:30.320
<v Speaker 1>and she actually cared quite a lot about junior faculty.

0:18:30.800 --> 0:18:32.639
<v Speaker 1>You know, one of the reasons she was revered is

0:18:32.640 --> 0:18:36.080
<v Speaker 1>that she was just an outstanding mentor. She took incredible

0:18:36.119 --> 0:18:39.919
<v Speaker 1>care of the junior faculty that some of whom she

0:18:40.000 --> 0:18:43.159
<v Speaker 1>was responsible for, some of whom she wasn't. It's just

0:18:43.200 --> 0:18:46.280
<v Speaker 1>so obvious that these were surrogates for the children she

0:18:46.320 --> 0:18:49.520
<v Speaker 1>didn't have. So the lunch table, which involved a lot

0:18:49.520 --> 0:18:51.680
<v Speaker 1>of laughing and a lot of stories, and there was

0:18:51.720 --> 0:18:54.000
<v Speaker 1>a rule that you couldn't talk about your works, which

0:18:54.040 --> 0:18:56.880
<v Speaker 1>meant that anybody could then be there. Nobody was trying

0:18:56.880 --> 0:18:58.880
<v Speaker 1>to jockey for position based on the kind of stuff

0:18:58.880 --> 0:19:02.159
<v Speaker 1>they were working on. That was very, very social, and

0:19:02.240 --> 0:19:05.840
<v Speaker 1>people felt like they were our friends because we were

0:19:05.880 --> 0:19:09.000
<v Speaker 1>sitting around the lunch table having these raucous times. But

0:19:10.040 --> 0:19:15.040
<v Speaker 1>Jane would adamantly refuse, for the most part, to have

0:19:15.119 --> 0:19:20.840
<v Speaker 1>contact with people like that, colleagues, friends outside of that environment.

0:19:20.920 --> 0:19:22.600
<v Speaker 1>When she was home, she was home.

0:19:23.119 --> 0:19:27.560
<v Speaker 2>And also her family of origin, her mother, her brother,

0:19:27.640 --> 0:19:32.520
<v Speaker 2>her sister, you describe as Jane really not feeling close

0:19:32.560 --> 0:19:32.880
<v Speaker 2>to them.

0:19:34.000 --> 0:19:37.280
<v Speaker 1>She really pushed them away. There was sort of no

0:19:37.640 --> 0:19:43.920
<v Speaker 1>objective rationale. Her family was lovely. She would tolerate calls

0:19:43.960 --> 0:19:47.600
<v Speaker 1>from her mother she would tolerate calls from her brother.

0:19:48.160 --> 0:19:51.600
<v Speaker 1>She actually would not tolerate calls from her sister. From

0:19:51.600 --> 0:19:53.320
<v Speaker 1>my point of view, these were all lovely people, but

0:19:53.480 --> 0:19:56.000
<v Speaker 1>I was team James, so I really couldn't do much

0:19:56.040 --> 0:19:56.399
<v Speaker 1>about them.

0:20:00.119 --> 0:20:03.560
<v Speaker 2>Barrett and Jane have their occasional friction, as every couple does,

0:20:04.160 --> 0:20:06.920
<v Speaker 2>but for the most part, they've built a fulfilling life

0:20:06.960 --> 0:20:12.480
<v Speaker 2>together professionally and personally. In many ways, their relationship from

0:20:12.480 --> 0:20:18.160
<v Speaker 2>the outside is enviable. It's twenty twelve. They are about

0:20:18.200 --> 0:20:21.359
<v Speaker 2>three decades into their marriage, both at the pinnacle of

0:20:21.400 --> 0:20:26.080
<v Speaker 2>their careers. Jane is sixty. One week they head to

0:20:26.119 --> 0:20:30.000
<v Speaker 2>their usual lunch in the hospital cafeteria. That evening, they'll

0:20:30.040 --> 0:20:34.800
<v Speaker 2>go on their usual Friday date, business as usual, but

0:20:34.960 --> 0:20:38.720
<v Speaker 2>in an instant, the ordinary instant, as Joan Didion has

0:20:38.760 --> 0:20:41.760
<v Speaker 2>called it, catastrophe strikes.

0:20:42.640 --> 0:20:44.439
<v Speaker 1>It was just a typical day. In fact, it was

0:20:44.440 --> 0:20:47.680
<v Speaker 1>a Friday, and I had made reservations at our favorite

0:20:47.840 --> 0:20:50.679
<v Speaker 1>Mexican restaurant for date night. And what we would do

0:20:50.720 --> 0:20:53.080
<v Speaker 1>on you every day is I would come by Jane's

0:20:53.080 --> 0:20:54.520
<v Speaker 1>office and pick her up, and then we'd walk to

0:20:54.600 --> 0:20:56.800
<v Speaker 1>lunch together. So we're walking down the hallway to lunch,

0:20:57.920 --> 0:21:01.040
<v Speaker 1>and Jane Jay was very tall. She's feet even sometimes

0:21:01.080 --> 0:21:03.639
<v Speaker 1>sixty one when she was really standing up straight, but

0:21:03.720 --> 0:21:07.280
<v Speaker 1>she had this sort of loping gait like tall people have,

0:21:07.480 --> 0:21:09.399
<v Speaker 1>and it was always a little slower than I was.

0:21:09.440 --> 0:21:11.679
<v Speaker 1>But that day she was even slower than usual. You know,

0:21:11.720 --> 0:21:13.160
<v Speaker 1>I had the sort of what I called a Jane

0:21:13.160 --> 0:21:16.320
<v Speaker 1>adjusted gate that I would adopt, but she was even slower.

0:21:16.320 --> 0:21:17.960
<v Speaker 1>And I remember turning to her and saying, you know, Hun,

0:21:17.960 --> 0:21:20.320
<v Speaker 1>are you okay? And she said, yeah, yeah, it's fine.

0:21:20.359 --> 0:21:23.719
<v Speaker 1>And we turned the corner to the cafeteria and she

0:21:24.080 --> 0:21:27.159
<v Speaker 1>just plopped herself down on a little bench and her

0:21:27.320 --> 0:21:31.240
<v Speaker 1>lips were blue. She was breathing very hard, her eyes

0:21:31.240 --> 0:21:34.040
<v Speaker 1>were closed, and you know, I said, what's going on?

0:21:34.080 --> 0:21:35.960
<v Speaker 1>Are you all right? She said she just looked at

0:21:35.960 --> 0:21:39.000
<v Speaker 1>me and said, you know, really couldn't tell me what

0:21:39.040 --> 0:21:41.600
<v Speaker 1>was going on. So I was scared to death, and

0:21:41.680 --> 0:21:43.439
<v Speaker 1>I thought, you know, I've got to get her to

0:21:43.480 --> 0:21:46.359
<v Speaker 1>an emergency room. She obviously can't walk anywhere anymore. And

0:21:46.400 --> 0:21:49.920
<v Speaker 1>I look around for a wheelchair, and you would think,

0:21:49.960 --> 0:21:51.760
<v Speaker 1>of course, in a hospital he'd find a wheelchair at

0:21:51.760 --> 0:21:54.879
<v Speaker 1>every corner, but none. So I told her, you just

0:21:54.920 --> 0:21:56.560
<v Speaker 1>stay right here and do not try to get up.

0:21:57.080 --> 0:21:59.399
<v Speaker 1>We were in the building that has the cafeteria also

0:21:59.480 --> 0:22:01.760
<v Speaker 1>has in the upper floor. So I jump into an

0:22:01.760 --> 0:22:03.480
<v Speaker 1>elevator and go up to an upper floor to try

0:22:03.480 --> 0:22:06.600
<v Speaker 1>to find a wheelchair. Still can't find one. So by

0:22:06.640 --> 0:22:08.960
<v Speaker 1>that I'm still worried about Jane. So I run back

0:22:09.000 --> 0:22:12.320
<v Speaker 1>downstairs and sort of retrace the path we had been

0:22:12.359 --> 0:22:14.679
<v Speaker 1>walking on to get to the cafeteria, and I turned

0:22:14.680 --> 0:22:17.679
<v Speaker 1>that corner and now Jane is lying down on this

0:22:17.760 --> 0:22:20.080
<v Speaker 1>little bench which is way too short for her, heads

0:22:20.119 --> 0:22:22.879
<v Speaker 1>hanging off one end, theater hanging off the other, and

0:22:22.960 --> 0:22:27.400
<v Speaker 1>now she's unconscious. With every exhale she moans, and she's

0:22:27.440 --> 0:22:31.720
<v Speaker 1>having an hard time inhaling. One of my colleagues, one

0:22:31.720 --> 0:22:35.040
<v Speaker 1>of our colleagues, happened to walk by and saw this

0:22:35.200 --> 0:22:39.440
<v Speaker 1>and realized that Jane was, you know, having some sort

0:22:39.480 --> 0:22:42.840
<v Speaker 1>of cardiac or pulmonary arrest, and called you know, a

0:22:42.880 --> 0:22:46.520
<v Speaker 1>code a code red or a good It's actually called blue.

0:22:46.720 --> 0:22:49.639
<v Speaker 1>You know. I can't sort of overstate how surreal this

0:22:50.000 --> 0:22:53.800
<v Speaker 1>was that, you know. I then hear over the loudspeaker

0:22:54.119 --> 0:22:57.520
<v Speaker 1>code blue cafeteria, and I'm thinking, you know, part of

0:22:57.560 --> 0:22:59.159
<v Speaker 1>my brain is thinking Oh, that's an odd place to

0:22:59.160 --> 0:23:01.000
<v Speaker 1>have a code, And the other part of my brain

0:23:01.080 --> 0:23:03.760
<v Speaker 1>is thinking, you dumb assd this is what's happening right

0:23:03.760 --> 0:23:07.320
<v Speaker 1>in front of you. So, you know, the code team

0:23:07.560 --> 0:23:10.800
<v Speaker 1>arrives on the site, crash cart there with all the

0:23:10.840 --> 0:23:14.520
<v Speaker 1>equipment they need to resuscitate somebody. A colleague of ours

0:23:14.800 --> 0:23:17.800
<v Speaker 1>who was, you know, running the code team that week,

0:23:18.560 --> 0:23:23.760
<v Speaker 1>starts barking orders. They start intravenous lines, putting EKG on her.

0:23:24.400 --> 0:23:27.000
<v Speaker 1>Her heart hadn't stopped, so nobody had to do CPR,

0:23:27.119 --> 0:23:31.119
<v Speaker 1>but she was unconscious and the friend or colleague who

0:23:31.200 --> 0:23:35.120
<v Speaker 1>was running the code sort of turned to me and said,

0:23:35.160 --> 0:23:37.760
<v Speaker 1>what's going on? And I said, I have no idea.

0:23:37.800 --> 0:23:39.560
<v Speaker 1>At that point, we've looked down at there's this little

0:23:39.600 --> 0:23:42.240
<v Speaker 1>trickle of blood that's started, you know, coming from under

0:23:42.320 --> 0:23:45.399
<v Speaker 1>Jan's shirt and it's tracking up towards her neck. And

0:23:45.440 --> 0:23:47.760
<v Speaker 1>this woman looks at me again and said, basically, what

0:23:47.800 --> 0:23:50.480
<v Speaker 1>the fuck is going on here? And I just said,

0:23:50.480 --> 0:23:55.399
<v Speaker 1>I don't know. I have no idea. So Jim gets

0:23:55.440 --> 0:23:58.880
<v Speaker 1>transferred to the emergency room, and it's complicated because Dana

0:23:58.960 --> 0:24:01.159
<v Speaker 1>Farber didn't have its own emergency room. She had to

0:24:01.160 --> 0:24:03.159
<v Speaker 1>be taken to a hospital next door, and believe it

0:24:03.240 --> 0:24:05.960
<v Speaker 1>or not, they actually had to call an ambulance to

0:24:06.000 --> 0:24:09.000
<v Speaker 1>take her across the two hundred yards to the other hospital,

0:24:09.000 --> 0:24:12.120
<v Speaker 1>which meant that I couldn't ride with her. Craziest situation.

0:24:12.240 --> 0:24:15.359
<v Speaker 1>I just sort of felt buffeted. But I found my

0:24:15.440 --> 0:24:18.680
<v Speaker 1>way to the emergency room in the other hospital through

0:24:18.720 --> 0:24:21.200
<v Speaker 1>a series of bridges and got there. And by then

0:24:21.680 --> 0:24:25.000
<v Speaker 1>she had already been intubated, so she's on a ventilator.

0:24:25.520 --> 0:24:29.520
<v Speaker 1>They've removed her clothes, and she's in a hospital gown

0:24:29.520 --> 0:24:33.040
<v Speaker 1>and Johnny and I'm standing at the entrance to the room,

0:24:34.160 --> 0:24:36.080
<v Speaker 1>you know, maybe ten or twelve feet away from her,

0:24:36.119 --> 0:24:41.439
<v Speaker 1>and I notice that there's this huge lump underneath the

0:24:41.560 --> 0:24:44.560
<v Speaker 1>right side of her Johnny, on her chest, and part

0:24:44.560 --> 0:24:45.880
<v Speaker 1>of it is down a little bit, and I see

0:24:45.920 --> 0:24:49.240
<v Speaker 1>that there's this enormous mass, it's like the size of

0:24:49.240 --> 0:24:52.679
<v Speaker 1>a football, sitting on her chest. And all I can

0:24:52.720 --> 0:24:55.800
<v Speaker 1>think of it to myself is what the fuck is this?

0:24:56.760 --> 0:25:01.199
<v Speaker 1>And I gradually realized that what is growing on her

0:25:01.280 --> 0:25:10.400
<v Speaker 1>chest is an enormous, neglected, untreated breast cancer. It was black,

0:25:10.920 --> 0:25:13.520
<v Speaker 1>you know, the technical term is necrotic. That the tissue

0:25:13.560 --> 0:25:16.679
<v Speaker 1>was dying. It was oozing blood, it was oozing pus.

0:25:17.040 --> 0:25:20.200
<v Speaker 1>I just don't have the words to describe how shocking

0:25:20.280 --> 0:25:24.879
<v Speaker 1>and awful this was. And just at that moment, the

0:25:24.960 --> 0:25:27.680
<v Speaker 1>doc who was running the er who I know and

0:25:27.880 --> 0:25:29.760
<v Speaker 1>Jane Duke, came up to me and said, so, what's

0:25:29.760 --> 0:25:31.280
<v Speaker 1>the story. And I said, well, you know, we were

0:25:31.320 --> 0:25:33.520
<v Speaker 1>walking down the hallway and Jane suddenly collapsed head. Oh,

0:25:33.520 --> 0:25:36.199
<v Speaker 1>I know that she's had a huge pulmonary embulance. She

0:25:36.240 --> 0:25:39.280
<v Speaker 1>had a clot that traveled from her veins and her

0:25:39.359 --> 0:25:41.040
<v Speaker 1>legs and got lodged in her lungs and that's what

0:25:41.080 --> 0:25:43.359
<v Speaker 1>was She actually said, I know she had a palmarenesis

0:25:43.520 --> 0:25:46.880
<v Speaker 1>what's her cancer story? And I had to stand there

0:25:47.359 --> 0:25:50.560
<v Speaker 1>like the idiot I was and say to him, I

0:25:50.560 --> 0:25:54.040
<v Speaker 1>have no idea. You know, I'm her husband. She has

0:25:54.080 --> 0:25:56.240
<v Speaker 1>this thing growing on her chest that had to have

0:25:56.280 --> 0:25:58.040
<v Speaker 1>been there for years and years, and I had to

0:25:58.040 --> 0:26:00.600
<v Speaker 1>stand there and tell this guy, I don't know what's

0:26:00.640 --> 0:26:05.159
<v Speaker 1>going on. It was just awful. And then you know,

0:26:05.280 --> 0:26:07.720
<v Speaker 1>she gets taken to see t scan to take a

0:26:07.720 --> 0:26:12.240
<v Speaker 1>look at the plot. And then when she comes back,

0:26:12.359 --> 0:26:14.160
<v Speaker 1>the guy for the emergency and takes me back into

0:26:14.160 --> 0:26:17.080
<v Speaker 1>the office with a radiologist me. Now he's dealing with

0:26:17.080 --> 0:26:19.480
<v Speaker 1>me like I'm radioactive because he knows the story is

0:26:19.560 --> 0:26:22.560
<v Speaker 1>just too weird for him to handle. And he says, well,

0:26:22.680 --> 0:26:25.480
<v Speaker 1>the radiologist will tell you about the findings and the

0:26:25.520 --> 0:26:27.760
<v Speaker 1>clots there he got. But what he really points out is,

0:26:27.800 --> 0:26:32.359
<v Speaker 1>you know, whether there's this fifteen centimeter mass replacing her

0:26:32.560 --> 0:26:36.760
<v Speaker 1>right breast and it looks like there are a tasta see,

0:26:36.840 --> 0:26:40.280
<v Speaker 1>so the spread of the cancer to her ribs, her

0:26:40.320 --> 0:26:45.119
<v Speaker 1>spinal bones, there are metastatic deposits in her lungs and

0:26:45.200 --> 0:26:48.560
<v Speaker 1>in her liver. I'm just standing there. So in the

0:26:48.600 --> 0:26:50.760
<v Speaker 1>space of an hour, I discover she's got this thing

0:26:50.760 --> 0:26:54.080
<v Speaker 1>growing in her chest. But now I also discover that

0:26:54.160 --> 0:26:57.200
<v Speaker 1>the cancer has spread throughout her body, which means that

0:26:57.280 --> 0:27:01.399
<v Speaker 1>she's good to die at this and went from making

0:27:01.440 --> 0:27:04.320
<v Speaker 1>reservations at our Mexican restaurant I'm going to lunch together

0:27:05.200 --> 0:27:07.840
<v Speaker 1>a few hours later, I'm dealing with the fact that

0:27:07.960 --> 0:27:11.159
<v Speaker 1>my wife has had this secret breast cancer that is

0:27:11.200 --> 0:27:13.440
<v Speaker 1>now going to kill her and probably less than a year.

0:27:16.880 --> 0:27:20.440
<v Speaker 2>Many times on this podcast we've talked about the secrets

0:27:20.560 --> 0:27:23.800
<v Speaker 2>we keep from ourselves, or another way of putting it

0:27:23.840 --> 0:27:27.920
<v Speaker 2>is the unthought known, what we know but don't allow

0:27:27.960 --> 0:27:32.280
<v Speaker 2>ourselves to consciously hold in our minds. When asked by

0:27:32.280 --> 0:27:36.719
<v Speaker 2>the doctor about Jane's cancer story, Barrett believed himself to

0:27:36.720 --> 0:27:40.560
<v Speaker 2>be in the dark. But later Barrett realizes he did

0:27:40.560 --> 0:27:44.439
<v Speaker 2>have a story. He did have information, information about something

0:27:44.480 --> 0:27:48.040
<v Speaker 2>that had happened four years earlier, something he'd agreed to

0:27:48.080 --> 0:27:50.679
<v Speaker 2>bury deep and never speak of again.

0:27:53.480 --> 0:27:56.560
<v Speaker 1>I think this is a perfect example of the unthought known,

0:27:56.960 --> 0:27:59.960
<v Speaker 1>because it didn't occur to me to talk about this

0:28:00.160 --> 0:28:03.440
<v Speaker 1>with the doctor who ask me the question. Even later,

0:28:03.520 --> 0:28:07.560
<v Speaker 1>when the unthought numb became a little sought, I didn't

0:28:07.600 --> 0:28:09.399
<v Speaker 1>want to talk about it because it would have been

0:28:09.400 --> 0:28:15.280
<v Speaker 1>involved betraying Jane's secret, and so I had two reasons

0:28:15.400 --> 0:28:17.560
<v Speaker 1>not to sort of face that. One was that I

0:28:17.600 --> 0:28:19.159
<v Speaker 1>just didn't want to face it. The other was I

0:28:19.200 --> 0:28:21.520
<v Speaker 1>didn't want to betray Jane. And it really wasn't until

0:28:22.359 --> 0:28:24.680
<v Speaker 1>hours later, when Jane was in the intensive carry unit

0:28:24.760 --> 0:28:26.520
<v Speaker 1>and I'd finally gone home that I had to try

0:28:26.520 --> 0:28:29.320
<v Speaker 1>to get sleep that I began to face the fact

0:28:29.359 --> 0:28:31.439
<v Speaker 1>that I really didn't know what was going on, but

0:28:31.520 --> 0:28:34.719
<v Speaker 1>didn't want to think about it. In our twentieth year

0:28:34.760 --> 0:28:41.480
<v Speaker 1>of marriage, Jane suddenly became very withdrawn. All sexual intimacy stopped. Suddenly,

0:28:41.520 --> 0:28:45.880
<v Speaker 1>with no explanation. She began wearing to bed a kaftain

0:28:46.520 --> 0:28:49.360
<v Speaker 1>that went from her chin to her toes and you know,

0:28:49.480 --> 0:28:51.240
<v Speaker 1>just zipped up right below her chin, and you know,

0:28:51.240 --> 0:28:53.960
<v Speaker 1>it was a pretty potent symbol of, you know, don't

0:28:54.000 --> 0:28:57.120
<v Speaker 1>touch me, don't get anywhere near. And when I would

0:28:57.120 --> 0:28:59.200
<v Speaker 1>try to talk to her about any of this, she

0:28:59.240 --> 0:29:02.440
<v Speaker 1>would clamb up and not talk about it. And you know,

0:29:02.520 --> 0:29:06.240
<v Speaker 1>among her many quirks was the fact that she couldn't

0:29:06.240 --> 0:29:09.160
<v Speaker 1>fall asleep unless the TV was on. And up to

0:29:09.200 --> 0:29:11.160
<v Speaker 1>that point, you know, I would kind of lie there

0:29:11.160 --> 0:29:13.920
<v Speaker 1>and tolerated, and if I could hear her breathing that

0:29:14.000 --> 0:29:15.720
<v Speaker 1>suggested that she was asleep, I could turn the TV

0:29:15.800 --> 0:29:18.080
<v Speaker 1>off and roll over and I could sleep. Now, she

0:29:18.160 --> 0:29:20.720
<v Speaker 1>was also having trouble falling asleep, and I just every

0:29:20.720 --> 0:29:22.640
<v Speaker 1>time I try to turn off the TV, shees sort

0:29:22.640 --> 0:29:26.080
<v Speaker 1>of growl to me, not yet, And so you know,

0:29:26.120 --> 0:29:28.480
<v Speaker 1>it was this loss of intimacy, that's sort of refusal

0:29:28.520 --> 0:29:31.840
<v Speaker 1>to talk about things that not yet with keeping the

0:29:31.840 --> 0:29:33.320
<v Speaker 1>TV off. I have to tell you, I think I

0:29:33.360 --> 0:29:36.640
<v Speaker 1>have watched every episode of Law and Order at least

0:29:36.680 --> 0:29:39.400
<v Speaker 1>five times. That was her favorite show. But I finally

0:29:39.440 --> 0:29:41.600
<v Speaker 1>got to the point where, you know, I wasn't getting

0:29:41.600 --> 0:29:44.280
<v Speaker 1>any sleep, and so I started maybe once or twice

0:29:44.320 --> 0:29:46.320
<v Speaker 1>a week sleeping in our guest room, and then it

0:29:46.360 --> 0:29:47.880
<v Speaker 1>got to be three and four times a week, and

0:29:47.880 --> 0:29:49.680
<v Speaker 1>then finally I just threw in the towel and we

0:29:49.840 --> 0:29:52.920
<v Speaker 1>began to sleep in different rooms. And again, this was

0:29:52.920 --> 0:29:56.480
<v Speaker 1>something we just didn't talk about, just not discussed. So

0:29:56.680 --> 0:29:59.400
<v Speaker 1>there was this bizarre behavior that just came out of

0:29:59.440 --> 0:30:02.320
<v Speaker 1>nowhere in year twenty, you know, and I just adapted

0:30:02.360 --> 0:30:04.560
<v Speaker 1>to it, like I adapted to everything else with Jane.

0:30:04.560 --> 0:30:09.360
<v Speaker 1>And I think listeners have to understand how important her

0:30:09.400 --> 0:30:11.840
<v Speaker 1>approval and love was to me, and it continued to be,

0:30:11.880 --> 0:30:14.280
<v Speaker 1>and I continued to make these compromises. I thought that

0:30:14.320 --> 0:30:16.680
<v Speaker 1>these were rational decisions I was making for myself.

0:30:16.800 --> 0:30:19.120
<v Speaker 2>And you also didn't talk to anybody about it, because

0:30:19.280 --> 0:30:22.240
<v Speaker 2>to talk to anybody about it would be a betrayal

0:30:22.280 --> 0:30:24.720
<v Speaker 2>of Jane. And one of the things that was really

0:30:24.760 --> 0:30:27.320
<v Speaker 2>striking to me was there was so much that was

0:30:27.920 --> 0:30:30.320
<v Speaker 2>so much about control, so much about her need for

0:30:30.560 --> 0:30:33.720
<v Speaker 2>order in all the different ways, whether it's the weekend

0:30:33.760 --> 0:30:38.000
<v Speaker 2>long naps, or the way that she would travel with

0:30:38.280 --> 0:30:40.480
<v Speaker 2>headphones on from a minute that the cab pulled up

0:30:40.680 --> 0:30:42.560
<v Speaker 2>to the minute that she got to the hotel wherever

0:30:42.600 --> 0:30:44.680
<v Speaker 2>she was going to do whatever, Like she would have

0:30:45.200 --> 0:30:47.760
<v Speaker 2>music in her ears the entire time going through security

0:30:47.840 --> 0:30:50.600
<v Speaker 2>getting on the plane. There was this way in which,

0:30:51.480 --> 0:30:55.640
<v Speaker 2>for whatever reasons, she desperately needed to control her environment

0:30:56.200 --> 0:31:01.920
<v Speaker 2>and to upset That Apple card just came with such

0:31:02.040 --> 0:31:04.880
<v Speaker 2>risks like your anger was no match for her anger.

0:31:06.120 --> 0:31:09.200
<v Speaker 1>That's exactly right, and I really needed help. And I

0:31:09.320 --> 0:31:12.200
<v Speaker 1>wasn't averse to therapy. I had gone through six years

0:31:12.240 --> 0:31:15.360
<v Speaker 1>of analysis when I was in medical school and graduate school.

0:31:15.360 --> 0:31:18.080
<v Speaker 1>I knew how helpful it could be. But the fear

0:31:18.240 --> 0:31:21.440
<v Speaker 1>of betraying Jane and having her be angry at me

0:31:21.800 --> 0:31:24.560
<v Speaker 1>was really sufficient to keep me from seeking any outside help.

0:31:28.240 --> 0:31:32.320
<v Speaker 2>In his fear of inciting Jane's anger, Barrett had buried

0:31:32.360 --> 0:31:35.880
<v Speaker 2>a certain incident which had become part of the landscape

0:31:35.920 --> 0:31:40.120
<v Speaker 2>of his unthought known. This incident occurred on a Saturday morning,

0:31:40.520 --> 0:31:44.320
<v Speaker 2>about six years into Jane's withdrawing from intimacy and about

0:31:44.360 --> 0:31:46.080
<v Speaker 2>four years before her collapse.

0:31:48.720 --> 0:31:52.400
<v Speaker 1>So Jane was ensconced in bed and I was sort

0:31:52.400 --> 0:31:55.360
<v Speaker 1>of puttering around the apartment and I heard her call

0:31:55.400 --> 0:31:59.239
<v Speaker 1>my name, which she never did, and she was in

0:31:59.240 --> 0:32:02.160
<v Speaker 1>the bathroom and the door of the bathrooms closed, and

0:32:02.240 --> 0:32:05.000
<v Speaker 1>she called my name again, and I said through the bathroom,

0:32:05.520 --> 0:32:07.920
<v Speaker 1>what's going on? And she said you need to come in,

0:32:08.560 --> 0:32:10.000
<v Speaker 1>which you know I never did when she was in

0:32:10.040 --> 0:32:12.200
<v Speaker 1>the bathroom, so I knew something was serious. So I

0:32:12.240 --> 0:32:15.920
<v Speaker 1>walked in and the site I was met with was

0:32:15.920 --> 0:32:18.480
<v Speaker 1>was Jane lying on the floor and she had her

0:32:18.560 --> 0:32:21.600
<v Speaker 1>klftin on but it was partially unzipped and over her

0:32:21.680 --> 0:32:24.720
<v Speaker 1>right shoulder. She had a towel under the klftan and

0:32:24.760 --> 0:32:26.920
<v Speaker 1>I could see there was a little bit of blood

0:32:26.960 --> 0:32:28.760
<v Speaker 1>on the towel and I said, my god, well, you

0:32:28.800 --> 0:32:31.520
<v Speaker 1>know what's going on and she said, I'm bleeding to death.

0:32:32.440 --> 0:32:35.080
<v Speaker 1>Said you know, tell me what's going on. She said, listen,

0:32:35.240 --> 0:32:39.600
<v Speaker 1>I have breast cancer. It's invaded my skin and it's

0:32:39.640 --> 0:32:42.640
<v Speaker 1>invaded a blood vessel and I'm bleeding to death. I said, okay, well,

0:32:42.640 --> 0:32:44.360
<v Speaker 1>I'm going to call by to one one and she said,

0:32:44.360 --> 0:32:46.720
<v Speaker 1>don't you dare? And I said I was going to

0:32:46.720 --> 0:32:49.400
<v Speaker 1>do it again. And one of the only times she's

0:32:49.480 --> 0:32:52.560
<v Speaker 1>raised her voice at me. She screamed, don't you dare

0:32:52.600 --> 0:32:55.400
<v Speaker 1>do that. I will never forgive you do that. And

0:32:55.400 --> 0:32:57.040
<v Speaker 1>I said, what do you want? I just don't want

0:32:57.040 --> 0:33:02.800
<v Speaker 1>to die alone. And I again I capitulated to my shame,

0:33:03.000 --> 0:33:05.480
<v Speaker 1>but I did, and I said, well, what do you want?

0:33:05.760 --> 0:33:08.680
<v Speaker 1>And she said, well, read to me. And she had

0:33:08.720 --> 0:33:10.800
<v Speaker 1>been doing the New York Times crossword puzzle. So the

0:33:10.800 --> 0:33:13.120
<v Speaker 1>Times was in the bathrooms. I picked up the Times

0:33:13.680 --> 0:33:16.480
<v Speaker 1>and I started reading the first section to her. You know,

0:33:16.520 --> 0:33:18.760
<v Speaker 1>a bunch of stuff that neither of us was interested in,

0:33:18.880 --> 0:33:21.080
<v Speaker 1>but it was enough to distract. It was kind of like,

0:33:21.280 --> 0:33:24.360
<v Speaker 1>I guess I was fulfilling the role of law and

0:33:24.440 --> 0:33:26.480
<v Speaker 1>order on TV. It was something that kept her from

0:33:26.520 --> 0:33:29.560
<v Speaker 1>thinking about herself. And after about an hour she still

0:33:29.600 --> 0:33:33.920
<v Speaker 1>wasn't dead. And she said, okay, well looks like a

0:33:33.960 --> 0:33:35.960
<v Speaker 1>stop leading. You can go now. And I said, no,

0:33:36.040 --> 0:33:38.320
<v Speaker 1>I can't go now. You know what is going on.

0:33:38.440 --> 0:33:40.680
<v Speaker 1>She said, I'm not going to talk about it, just

0:33:40.680 --> 0:33:44.040
<v Speaker 1>go And I tried a couple more times and just impossible.

0:33:44.960 --> 0:33:47.160
<v Speaker 1>So I ended up walking out of the bathroom and

0:33:47.400 --> 0:33:50.160
<v Speaker 1>about a half an hour later, she had cleaned herself up,

0:33:50.240 --> 0:33:52.160
<v Speaker 1>or she had put on some kind of a dressing

0:33:52.160 --> 0:33:54.960
<v Speaker 1>onto the wound, and she came back out of the

0:33:54.960 --> 0:33:57.840
<v Speaker 1>bathroom and went back into bed and turned on TV

0:33:58.760 --> 0:34:00.360
<v Speaker 1>and told me what she wanted for lunch.

0:34:00.520 --> 0:34:04.240
<v Speaker 2>And we never spoke of it again in those years,

0:34:05.120 --> 0:34:08.480
<v Speaker 2>those four years between that night and then the day

0:34:08.480 --> 0:34:12.120
<v Speaker 2>that she collapsed, you never spoke of it again. Where

0:34:12.120 --> 0:34:14.719
<v Speaker 2>did it reside in you? Was it something that broke

0:34:14.880 --> 0:34:18.000
<v Speaker 2>through your thoughts, Was it something that you thought about

0:34:18.000 --> 0:34:20.240
<v Speaker 2>in the middle of the night, or did you successfully

0:34:20.719 --> 0:34:22.000
<v Speaker 2>put it away for yourself?

0:34:22.800 --> 0:34:27.040
<v Speaker 1>It would come up at really odd times. For example,

0:34:27.360 --> 0:34:30.160
<v Speaker 1>in those days, I used to run the Boston Marathon

0:34:30.320 --> 0:34:32.680
<v Speaker 1>every year, and I would raise money for Dana Farber,

0:34:32.800 --> 0:34:37.120
<v Speaker 1>and I think in retrospect, this was my attempt to

0:34:37.160 --> 0:34:41.040
<v Speaker 1>control my life. The training schedule for training for a

0:34:41.120 --> 0:34:44.000
<v Speaker 1>marathon is wrote. You know, your schedule is set for

0:34:44.040 --> 0:34:46.719
<v Speaker 1>eighteen weeks, And it was really a way for me

0:34:46.840 --> 0:34:48.960
<v Speaker 1>to put some order into what felt like a very

0:34:48.960 --> 0:34:52.400
<v Speaker 1>disordered life. I didn't start doing that until James withdrawal,

0:34:52.440 --> 0:34:55.319
<v Speaker 1>So I think the connection is pretty clear. And in

0:34:55.360 --> 0:34:57.400
<v Speaker 1>the early years when I would run the marathon, she

0:34:58.040 --> 0:35:00.440
<v Speaker 1>and a couple of people from her office would walk

0:35:00.480 --> 0:35:03.920
<v Speaker 1>down to a place along the marathon route that was

0:35:04.000 --> 0:35:06.120
<v Speaker 1>near where Data farmers, and she would sort of cheer

0:35:06.120 --> 0:35:08.480
<v Speaker 1>me on and I would stop and I would you

0:35:08.640 --> 0:35:10.840
<v Speaker 1>give her a big, sweaty kiss on the cheek and

0:35:10.840 --> 0:35:13.640
<v Speaker 1>then keep running. And I would always tease her about

0:35:13.640 --> 0:35:15.840
<v Speaker 1>the fact that she ruined my marathon times because I

0:35:15.840 --> 0:35:18.360
<v Speaker 1>always stopped to give her a kiss. And after a

0:35:18.400 --> 0:35:20.719
<v Speaker 1>while she stopped doing that. In retrospect, it was because

0:35:20.760 --> 0:35:22.680
<v Speaker 1>she was getting weaker and weaker, but I didn't really

0:35:22.719 --> 0:35:24.759
<v Speaker 1>know at the time why she had stopped doing that.

0:35:24.880 --> 0:35:29.120
<v Speaker 1>But after that episode on the bathroom floor, whenever I

0:35:29.160 --> 0:35:32.680
<v Speaker 1>would think about Jane coming down to see me running

0:35:32.680 --> 0:35:34.920
<v Speaker 1>in the marathon, I would have this thought, you know,

0:35:35.000 --> 0:35:36.799
<v Speaker 1>she's got breast cancer. She's going to die of this,

0:35:36.880 --> 0:35:38.480
<v Speaker 1>and there's going to be a time when I'm running

0:35:38.480 --> 0:35:40.880
<v Speaker 1>by there and she's not going to be there. The

0:35:41.080 --> 0:35:46.120
<v Speaker 1>rare times that she was tender were so meaningful that

0:35:46.560 --> 0:35:50.000
<v Speaker 1>her absence and the loss of those few really tender

0:35:50.000 --> 0:35:53.120
<v Speaker 1>moments was something that would allow me to think about,

0:35:53.400 --> 0:35:56.600
<v Speaker 1>you know, sort of the dire consequences of what she

0:35:56.640 --> 0:35:57.640
<v Speaker 1>had confessed.

0:35:57.200 --> 0:36:12.920
<v Speaker 2>To We'll be back in a moment with more family secrets.

0:36:14.160 --> 0:36:18.160
<v Speaker 2>About two weeks after Jane's clapse. In twenty twelve, Barrett

0:36:18.160 --> 0:36:22.400
<v Speaker 2>makes yet another discovery. While Jane is still in the ICU,

0:36:23.000 --> 0:36:26.480
<v Speaker 2>Barrett goes home to prepare for her discharge. He's cleaning

0:36:26.520 --> 0:36:29.239
<v Speaker 2>the bedroom and getting everything ready for her homecoming and

0:36:29.280 --> 0:36:32.720
<v Speaker 2>recovery when a new secret presents itself.

0:36:35.000 --> 0:36:37.319
<v Speaker 1>I go to the top tower and addresser, which is

0:36:37.320 --> 0:36:40.319
<v Speaker 1>her underwear drawer, and I start to clean it out,

0:36:40.320 --> 0:36:43.200
<v Speaker 1>and then in the back behind her underwear, my hand

0:36:43.320 --> 0:36:47.080
<v Speaker 1>hits these something that I didn't recognize. So it turned

0:36:47.080 --> 0:36:52.239
<v Speaker 1>out to be a pile of maybe twenty five or

0:36:52.280 --> 0:36:56.400
<v Speaker 1>so pill bottles. Some are empty, some are full, some

0:36:56.520 --> 0:37:00.080
<v Speaker 1>are half full. And I looked at the labels and

0:37:00.320 --> 0:37:06.959
<v Speaker 1>they were all versions of either hormonal therapy for breast

0:37:06.960 --> 0:37:09.640
<v Speaker 1>cancer or she was giving herself. But far worse were

0:37:10.440 --> 0:37:15.040
<v Speaker 1>oral versions of toxic chemotherapy. You know, chemotherapy that would

0:37:15.080 --> 0:37:18.040
<v Speaker 1>lower your blood counts, that you ill, would make you

0:37:18.040 --> 0:37:21.040
<v Speaker 1>susceptible to infections and bleeding and so on. There are

0:37:21.080 --> 0:37:24.439
<v Speaker 1>several times in this story where I stood and looked

0:37:24.480 --> 0:37:28.040
<v Speaker 1>at something for twenty seconds, thirty seconds, a long time

0:37:28.200 --> 0:37:31.759
<v Speaker 1>before I could really figure out what I was looking at.

0:37:31.760 --> 0:37:34.000
<v Speaker 1>And this is one of those examples. Jane had been

0:37:34.040 --> 0:37:37.919
<v Speaker 1>treating herself, and she'd been doing that without monitoring things

0:37:37.920 --> 0:37:39.600
<v Speaker 1>like blood counts, things that we all do as in

0:37:39.680 --> 0:37:42.760
<v Speaker 1>colleges that she did as not colleges. She was flying blind.

0:37:43.800 --> 0:37:46.760
<v Speaker 1>It in retrospect explained some things that there were times

0:37:46.760 --> 0:37:49.400
<v Speaker 1>when Jane would just be a lot sicker than usual,

0:37:49.440 --> 0:37:52.800
<v Speaker 1>a lot paler than usual, and she'd probably given herself

0:37:52.800 --> 0:37:55.759
<v Speaker 1>a little bit too much of this chemotherapy. But you

0:37:55.800 --> 0:38:01.359
<v Speaker 1>know another profound secret that was life threat. That one

0:38:01.400 --> 0:38:03.440
<v Speaker 1>I was not complicit in. That one she had completely

0:38:03.480 --> 0:38:05.120
<v Speaker 1>kept from me successfully.

0:38:05.600 --> 0:38:11.000
<v Speaker 2>One of the things among Jane's quirky behaviors is that

0:38:11.480 --> 0:38:14.920
<v Speaker 2>when it came to her own physical health, she never

0:38:15.040 --> 0:38:18.000
<v Speaker 2>ever went to the doctor. She didn't have an internist,

0:38:18.320 --> 0:38:20.440
<v Speaker 2>she didn't have a primary care physician, she didn't go

0:38:20.440 --> 0:38:24.000
<v Speaker 2>to the dentist, she didn't get pap smears. She had

0:38:24.600 --> 0:38:30.319
<v Speaker 2>what seems like was a phobia of being a patient herself,

0:38:30.680 --> 0:38:36.160
<v Speaker 2>which is so profound and ironic given that she was

0:38:36.239 --> 0:38:37.120
<v Speaker 2>an oncologist.

0:38:38.000 --> 0:38:42.760
<v Speaker 1>Yes, I think the best explanation is a phobic response,

0:38:43.160 --> 0:38:46.680
<v Speaker 1>maybe partly a phobic response to the pain or discomfort

0:38:46.719 --> 0:38:51.440
<v Speaker 1>of interventions like going to the dentist. Is uncomfortable, you know,

0:38:51.520 --> 0:38:54.360
<v Speaker 1>or it's uncomfortable to get a mammogram. But it's also

0:38:54.680 --> 0:38:58.080
<v Speaker 1>I think a phobia about loss of control. If you're

0:38:58.080 --> 0:39:01.440
<v Speaker 1>a patient, there's almost definition a loss of control or

0:39:01.440 --> 0:39:04.719
<v Speaker 1>at least some control that you're seeding to a physician,

0:39:05.400 --> 0:39:07.759
<v Speaker 1>and I think she was phobic about that too. And

0:39:08.239 --> 0:39:11.319
<v Speaker 1>you're right the irony of her going into oncology, which

0:39:11.360 --> 0:39:14.480
<v Speaker 1>is sort of nothing but serious medical problems. I mean,

0:39:14.480 --> 0:39:17.560
<v Speaker 1>one of the reasons that I went into oncology, I'll confess,

0:39:17.680 --> 0:39:19.920
<v Speaker 1>is that I'd love taking care of patients, but I

0:39:19.960 --> 0:39:22.160
<v Speaker 1>did not like taking care of the worried well. I

0:39:22.160 --> 0:39:25.319
<v Speaker 1>think there's an important role for doing that. But what

0:39:25.360 --> 0:39:28.080
<v Speaker 1>I liked about oncology was the first question in the

0:39:28.120 --> 0:39:32.359
<v Speaker 1>decision tree, is the patient sick or not? It's always yes,

0:39:32.440 --> 0:39:34.520
<v Speaker 1>the patient's sick until proven otherwise. A headache is not

0:39:34.520 --> 0:39:36.840
<v Speaker 1>always a headache, you know, A cough is not always

0:39:36.840 --> 0:39:39.440
<v Speaker 1>a cough. And I just liked being able to know

0:39:39.520 --> 0:39:42.560
<v Speaker 1>that whatever was going on was serious. And for Jane

0:39:42.800 --> 0:39:44.560
<v Speaker 1>it would have been exactly the opposite that It's one

0:39:44.600 --> 0:39:49.200
<v Speaker 1>of the reasons that she decided right away when she

0:39:49.280 --> 0:39:50.880
<v Speaker 1>was a faculty member that she just wasn't going to

0:39:50.880 --> 0:39:53.520
<v Speaker 1>see patients anymore. And when she was honest about that,

0:39:53.719 --> 0:39:55.600
<v Speaker 1>she would say one of the things that scared her

0:39:55.640 --> 0:39:58.720
<v Speaker 1>the most was how in our field at that time,

0:39:59.040 --> 0:40:03.000
<v Speaker 1>where every treatment was toxic and potentially life threatening, as

0:40:03.040 --> 0:40:06.120
<v Speaker 1>life threatening as the disease was, she was deathly afraid

0:40:06.680 --> 0:40:10.600
<v Speaker 1>of harming her patients. So, yeah, the whole thing is

0:40:10.640 --> 0:40:12.080
<v Speaker 1>just gripping with ironies.

0:40:12.600 --> 0:40:16.920
<v Speaker 2>Well and with paradoxes too, because you're not describing a

0:40:16.960 --> 0:40:20.320
<v Speaker 2>person who, on the surface of things, is tremendously empathic.

0:40:20.400 --> 0:40:22.560
<v Speaker 2>I mean, certainly she wasn't to you, you know, with

0:40:22.600 --> 0:40:27.040
<v Speaker 2>some exceptions, and yet what you're describing is as a physician,

0:40:27.600 --> 0:40:32.400
<v Speaker 2>the degree of empathy that she felt for her patience

0:40:32.480 --> 0:40:36.120
<v Speaker 2>made it unbearable for her to treat them.

0:40:36.560 --> 0:40:38.880
<v Speaker 1>It's also what made her a great doctor. Her patience

0:40:39.840 --> 0:40:42.200
<v Speaker 1>loved her. I mean, her office when she was still

0:40:42.239 --> 0:40:45.319
<v Speaker 1>seeing patients for that brief period was just filled with

0:40:45.480 --> 0:40:47.840
<v Speaker 1>Chachke's and little gifts that her patients with her, and

0:40:47.840 --> 0:40:50.440
<v Speaker 1>they would, you know, desperately try to contact her all

0:40:50.480 --> 0:40:53.920
<v Speaker 1>the time. And I think it's because there were settings

0:40:53.920 --> 0:40:56.960
<v Speaker 1>in which she allowed herself to be empathic. Couldn't do

0:40:57.040 --> 0:40:58.960
<v Speaker 1>with my daughter, but she could do it with these patients,

0:40:58.960 --> 0:41:00.279
<v Speaker 1>and they really responded to her.

0:41:03.200 --> 0:41:06.680
<v Speaker 2>Barrett spends a great deal of time trying to understand

0:41:07.080 --> 0:41:11.919
<v Speaker 2>why why did Jane treat herself? Why did she make

0:41:12.239 --> 0:41:16.040
<v Speaker 2>such a herculean effort to keep her illness a secret.

0:41:17.120 --> 0:41:19.960
<v Speaker 2>Near the end of her life, she tells Barrett a

0:41:20.000 --> 0:41:23.640
<v Speaker 2>heartbreaking story about the lengths she went to to hide

0:41:23.680 --> 0:41:26.880
<v Speaker 2>her cancer. She had made a day trip to New

0:41:26.960 --> 0:41:29.799
<v Speaker 2>York for a conference, and at the time Barrett had

0:41:29.840 --> 0:41:32.920
<v Speaker 2>wondered why she'd taken the train rather than a quick flight.

0:41:34.000 --> 0:41:38.880
<v Speaker 2>Now she tells him the truth. She had stopped flying

0:41:39.080 --> 0:41:41.920
<v Speaker 2>because on a previous work trip, she had been flagged

0:41:41.960 --> 0:41:45.440
<v Speaker 2>by a TSA agent because the dressing she'd rigged up

0:41:45.480 --> 0:41:50.960
<v Speaker 2>around her tumor had looked suspicious. She just so desperately

0:41:51.000 --> 0:41:54.120
<v Speaker 2>did not want to be seen as sick. She couldn't

0:41:54.120 --> 0:41:56.360
<v Speaker 2>bear the idea that people would respond to her with,

0:41:56.600 --> 0:42:01.320
<v Speaker 2>as Barrett puts it, a condescending mixture of indulgence and pity.

0:42:02.360 --> 0:42:05.520
<v Speaker 2>She wanted nothing to do with being a brave fighter

0:42:05.920 --> 0:42:09.120
<v Speaker 2>or engaged in a battle, or being a warrior or

0:42:09.160 --> 0:42:13.080
<v Speaker 2>fighting the good fight. All the awkward and sometimes damaging

0:42:13.160 --> 0:42:14.360
<v Speaker 2>language around cancer.

0:42:16.280 --> 0:42:20.560
<v Speaker 1>Even now, when I think about episodes like, you know,

0:42:20.600 --> 0:42:24.840
<v Speaker 1>being flagged by TSA and her being forced to reveal

0:42:25.040 --> 0:42:28.640
<v Speaker 1>her deepest, darkest secret to a bunch of strangers in

0:42:29.080 --> 0:42:32.640
<v Speaker 1>taddy uniforms, it just makes me want to cry. And

0:42:32.760 --> 0:42:35.160
<v Speaker 1>when she did go to New York and it was

0:42:35.200 --> 0:42:36.560
<v Speaker 1>to give a talk, it was part of the thing

0:42:36.640 --> 0:42:39.359
<v Speaker 1>that made her think that her life was worthwhile. And

0:42:39.400 --> 0:42:41.120
<v Speaker 1>when she forced herself and go to New York in

0:42:41.160 --> 0:42:43.400
<v Speaker 1>the train, you know, she'd also fallen on the street

0:42:43.480 --> 0:42:47.520
<v Speaker 1>and scraped her palms and she just about collapsed in penestation.

0:42:48.040 --> 0:42:53.319
<v Speaker 1>It just tears my heart out that she ended up

0:42:53.360 --> 0:42:57.680
<v Speaker 1>being subjected or subjected herself to those kinds of horrible

0:42:57.840 --> 0:43:01.280
<v Speaker 1>episodes because she couldn't control how she felt about her disease.

0:43:01.400 --> 0:43:03.759
<v Speaker 1>Is just the saddest thing in the world. You know,

0:43:03.800 --> 0:43:06.480
<v Speaker 1>her thing about the fighter, I think is really important,

0:43:06.680 --> 0:43:09.160
<v Speaker 1>and she convinced me of this really early on, long

0:43:09.200 --> 0:43:11.359
<v Speaker 1>before she ever got sick. But you know, the trump

0:43:11.400 --> 0:43:14.480
<v Speaker 1>of the fighter the reason that bothered her, especially for

0:43:14.560 --> 0:43:18.040
<v Speaker 1>something like breast cancer. Survival in breast cancer have gotten

0:43:18.080 --> 0:43:21.279
<v Speaker 1>much much better for most of our training. You know,

0:43:21.320 --> 0:43:24.319
<v Speaker 1>you could treat early stage breast cancer, but metastatic breast

0:43:24.360 --> 0:43:27.760
<v Speaker 1>cancer was simply not curable. You could make people feel better,

0:43:28.000 --> 0:43:29.879
<v Speaker 1>if you're very lucky, you could make them a little

0:43:29.920 --> 0:43:32.839
<v Speaker 1>bit longer, but you can't cure it. And the problem that,

0:43:32.960 --> 0:43:35.960
<v Speaker 1>as Jane saw it, with somebody with metastatic breast cancer

0:43:35.960 --> 0:43:37.600
<v Speaker 1>putting on a pink ribbon and saying that to fight

0:43:37.640 --> 0:43:41.840
<v Speaker 1>this thing is it gives the illusion that a patient

0:43:41.880 --> 0:43:45.800
<v Speaker 1>with metastatic breast cancer has agency when she actually doesn't.

0:43:46.160 --> 0:43:48.280
<v Speaker 1>It gives her the illusion that if she just fights

0:43:48.360 --> 0:43:52.000
<v Speaker 1>hard enough, she'll be able to overcome the breast cancer.

0:43:52.040 --> 0:43:56.440
<v Speaker 1>And when the inevitable occurs, because she doesn't have agency,

0:43:56.640 --> 0:43:59.960
<v Speaker 1>she and her family are at risk of feeling like failure.

0:44:00.600 --> 0:44:05.319
<v Speaker 1>What's worse than simply suffering from breast cancer dying of it,

0:44:05.320 --> 0:44:08.240
<v Speaker 1>it's thinking that you're doing this because you have somehow failed.

0:44:08.640 --> 0:44:10.720
<v Speaker 1>And this is I think an example of Jane's empathy

0:44:11.120 --> 0:44:14.919
<v Speaker 1>that she had empathy for patients with intractable diseases. In fact,

0:44:15.080 --> 0:44:17.600
<v Speaker 1>all of her research was about, I think, based on

0:44:17.640 --> 0:44:20.879
<v Speaker 1>empathy for patients with intractable diseases and how there are

0:44:20.920 --> 0:44:25.560
<v Speaker 1>social constructs that are in one form another kind of

0:44:25.600 --> 0:44:29.040
<v Speaker 1>like victim blaming. So I think these were actually important

0:44:29.080 --> 0:44:31.400
<v Speaker 1>concepts that she brought to the practice of oncology.

0:44:32.120 --> 0:44:35.000
<v Speaker 2>Yes, it's heartbreaking, and that was like so lucid what

0:44:35.080 --> 0:44:38.120
<v Speaker 2>you just said. And at the same time, she couldn't

0:44:38.160 --> 0:44:41.480
<v Speaker 2>extend that empathy for herself.

0:44:42.360 --> 0:44:45.799
<v Speaker 1>Now she was if you think about her career, she

0:44:46.280 --> 0:44:48.840
<v Speaker 1>made it to the pinnacle of academic medicine at the

0:44:48.880 --> 0:44:52.359
<v Speaker 1>time when there weren't very many women who were able

0:44:52.400 --> 0:44:55.120
<v Speaker 1>to do that, and her career was probably the most

0:44:55.120 --> 0:44:57.440
<v Speaker 1>important thing in her life. But I think she was

0:44:57.480 --> 0:45:00.600
<v Speaker 1>worried that if she were ever perceived as being sick,

0:45:00.920 --> 0:45:04.160
<v Speaker 1>especially if she had cancer, that she would be perceived

0:45:04.160 --> 0:45:07.759
<v Speaker 1>this week and not taken seriously by the powerful men

0:45:08.520 --> 0:45:11.640
<v Speaker 1>in academic medicine, and she just couldn't let that happen.

0:45:13.160 --> 0:45:17.200
<v Speaker 2>These stories about collapsing in New York are about the

0:45:17.239 --> 0:45:21.319
<v Speaker 2>horror of having to be taken aside at TSA and

0:45:21.480 --> 0:45:24.120
<v Speaker 2>reveal to total strangers what was going on with her.

0:45:24.640 --> 0:45:26.759
<v Speaker 2>These are stories that she didn't tell you until she

0:45:26.880 --> 0:45:31.040
<v Speaker 2>was quite near the end of her life. It sounds

0:45:31.080 --> 0:45:37.040
<v Speaker 2>like once she was out of options and you know,

0:45:37.120 --> 0:45:39.040
<v Speaker 2>came to understand that she wasn't going to be going

0:45:39.040 --> 0:45:41.680
<v Speaker 2>back to work and life was not going to be

0:45:41.920 --> 0:45:44.880
<v Speaker 2>getting back to quote unquote normal. It sounds like she

0:45:45.960 --> 0:45:51.319
<v Speaker 2>was more able to share with you some of what

0:45:51.719 --> 0:45:53.120
<v Speaker 2>her process had been.

0:45:53.800 --> 0:45:57.320
<v Speaker 1>More able, but not totally able. One of the most

0:45:58.120 --> 0:46:03.799
<v Speaker 1>tragic comic episodes in her last year was about eight

0:46:03.880 --> 0:46:07.160
<v Speaker 1>or nine months after her collapse, and so only about

0:46:07.400 --> 0:46:11.799
<v Speaker 1>four months before she died. Jane was sick enough and

0:46:11.920 --> 0:46:17.319
<v Speaker 1>you know, requiring intravenous antibiotics and sometimes requiring intravenous narcotics

0:46:17.360 --> 0:46:21.120
<v Speaker 1>for her difficulty breathing because her lung metastases had grown.

0:46:21.920 --> 0:46:24.080
<v Speaker 1>The oncologist who has taken care of her said, you know,

0:46:24.120 --> 0:46:28.839
<v Speaker 1>what you really need is an indwelling venus access line.

0:46:28.880 --> 0:46:31.920
<v Speaker 1>That's something called a portocaf that gets put in one

0:46:31.920 --> 0:46:35.520
<v Speaker 1>of the large veins in the chest, and then a

0:46:35.600 --> 0:46:38.840
<v Speaker 1>little port a little area that has a rubber stopper

0:46:38.880 --> 0:46:40.799
<v Speaker 1>in it that you can put a needle through to

0:46:40.920 --> 0:46:44.560
<v Speaker 1>inject things. Is put underneath the skin, almost like a pacemaker,

0:46:44.800 --> 0:46:47.360
<v Speaker 1>so it sort of you know, goes underneath somebody's just

0:46:47.440 --> 0:46:50.160
<v Speaker 1>lateral to somebody's shoulder. And she didn't want to do

0:46:50.239 --> 0:46:52.960
<v Speaker 1>this because you know, in our experience, especially in the

0:46:53.040 --> 0:46:57.040
<v Speaker 1>years that she was training, when somebody needed a portocaf

0:46:57.080 --> 0:46:59.360
<v Speaker 1>an indwelling line. That was sort of a sign that

0:46:59.400 --> 0:47:01.640
<v Speaker 1>things had gotten bad enoughs that you know they were

0:47:01.680 --> 0:47:03.920
<v Speaker 1>on their way out. And she never wanted to surrender,

0:47:04.480 --> 0:47:06.400
<v Speaker 1>and it took a lot of convincing to say, no,

0:47:06.600 --> 0:47:10.000
<v Speaker 1>this is really about improving your quality of life. And

0:47:10.080 --> 0:47:12.759
<v Speaker 1>she finally agreed to do it. And it required going

0:47:12.800 --> 0:47:15.839
<v Speaker 1>back into the hospital, which was a big deal because

0:47:15.840 --> 0:47:17.759
<v Speaker 1>she didn't want anyone to know that she'd come into

0:47:17.800 --> 0:47:21.799
<v Speaker 1>the hospital. So we were actually on a maternity board

0:47:21.800 --> 0:47:23.680
<v Speaker 1>way down at the end so that nobody could visit

0:47:23.880 --> 0:47:27.480
<v Speaker 1>see her. And she goes down for her surgery to

0:47:27.520 --> 0:47:30.480
<v Speaker 1>have the thing put in, and I wait for her

0:47:30.520 --> 0:47:33.120
<v Speaker 1>and she comes back and she's a little broggy. We

0:47:33.280 --> 0:47:35.319
<v Speaker 1>get back out to her room and she sits up

0:47:35.800 --> 0:47:39.480
<v Speaker 1>as the anesthesia wears off, and she feels for where

0:47:39.600 --> 0:47:45.920
<v Speaker 1>the portocath is and she screamed at me, no, how

0:47:45.920 --> 0:47:47.920
<v Speaker 1>could you let this happen? I said, well, you knew

0:47:47.960 --> 0:47:49.759
<v Speaker 1>you were going to get a portocath. No, no, no,

0:47:49.960 --> 0:47:52.319
<v Speaker 1>how could you let them put this where it was?

0:47:52.360 --> 0:47:54.919
<v Speaker 1>What she was complaining about was that it was too

0:47:55.040 --> 0:47:57.319
<v Speaker 1>close to the center of her chest, so that she

0:47:57.360 --> 0:47:59.640
<v Speaker 1>were to what she finally explained to me was that

0:48:00.080 --> 0:48:03.480
<v Speaker 1>to go back to work and wear a shirt that

0:48:03.640 --> 0:48:06.000
<v Speaker 1>was open or addressed, that even the slightest bit low

0:48:06.040 --> 0:48:09.640
<v Speaker 1>cut people could actually see this. And I thought to myself,

0:48:10.680 --> 0:48:14.120
<v Speaker 1>this is maybe the single most delusional thing that she's done.

0:48:14.280 --> 0:48:17.040
<v Speaker 1>You know, she was so clearly never ever going back

0:48:17.080 --> 0:48:21.640
<v Speaker 1>to work, but it gave me a window into her

0:48:21.680 --> 0:48:25.040
<v Speaker 1>soul and what was propelling her day to day even

0:48:25.080 --> 0:48:27.400
<v Speaker 1>at that late date was the idea that she'd be

0:48:27.400 --> 0:48:29.160
<v Speaker 1>able to go back to work and do the things

0:48:29.239 --> 0:48:33.239
<v Speaker 1>that made her life meaningful. And again, that was one

0:48:33.280 --> 0:48:36.640
<v Speaker 1>of the saddest things that I've ever experienced, the revelation

0:48:37.480 --> 0:48:39.279
<v Speaker 1>that she thought she could go back to work.

0:48:43.800 --> 0:48:48.120
<v Speaker 2>After this sad and seminal moment, Jane finally seems to

0:48:48.160 --> 0:48:52.480
<v Speaker 2>accept the reality of her fate. This acceptance extends to

0:48:52.520 --> 0:48:56.120
<v Speaker 2>a willingness to see her elderly mother and siblings. She

0:48:56.160 --> 0:48:58.960
<v Speaker 2>hadn't had a relationship with them in years, but she

0:48:59.000 --> 0:49:02.560
<v Speaker 2>agrees to see them now to say goodbye. But still

0:49:02.600 --> 0:49:07.160
<v Speaker 2>she refuses contact with Barrett's daughter Anna.

0:49:07.520 --> 0:49:12.280
<v Speaker 1>So, my daughter is an incredible person. She is saint

0:49:12.440 --> 0:49:15.319
<v Speaker 1>like she really is. I couldn't really hide from her

0:49:15.760 --> 0:49:19.239
<v Speaker 1>that Jane was not interested in her. That began when

0:49:19.239 --> 0:49:21.520
<v Speaker 1>she was three or four years old and continued until

0:49:21.560 --> 0:49:25.280
<v Speaker 1>she was in her thirties. And I just kept waiting

0:49:26.080 --> 0:49:28.279
<v Speaker 1>for her to be angry at me for letting this

0:49:28.400 --> 0:49:31.759
<v Speaker 1>happen and feeling alienated and not wanting anything to do

0:49:31.800 --> 0:49:35.920
<v Speaker 1>with me, and God damn it, she never behave that way.

0:49:36.239 --> 0:49:39.839
<v Speaker 1>We are closer now than we ever have been. Just

0:49:40.120 --> 0:49:42.760
<v Speaker 1>as every year goes by, we just get closer and closer.

0:49:42.760 --> 0:49:47.160
<v Speaker 1>And part of her saintliness was that when the whole

0:49:47.200 --> 0:49:50.440
<v Speaker 1>thing came out, she knew Jane was my wife, and

0:49:50.640 --> 0:49:54.080
<v Speaker 1>because of Anna's love for me, she said, I would

0:49:54.080 --> 0:49:57.080
<v Speaker 1>really love to come by the house and say goodbye

0:49:57.080 --> 0:49:59.600
<v Speaker 1>to Jane, which is just the most touching thing if

0:49:59.600 --> 0:50:02.680
<v Speaker 1>you think think about what she was doing. And I

0:50:02.680 --> 0:50:05.279
<v Speaker 1>wanted to say about is somebody who wanted nothing to

0:50:05.320 --> 0:50:07.719
<v Speaker 1>do with her, And so I thought, this is, you know,

0:50:07.760 --> 0:50:10.480
<v Speaker 1>the most amazing thing. This will even melt Jane's heart.

0:50:11.680 --> 0:50:13.960
<v Speaker 1>And so I went to Jane and said, listen, most

0:50:14.000 --> 0:50:15.759
<v Speaker 1>amazing thing, Anna would like to come and see you,

0:50:16.920 --> 0:50:21.799
<v Speaker 1>and Jane said absolutely not, no way, again breaking my

0:50:21.920 --> 0:50:23.160
<v Speaker 1>heart and breaking Anna's heart.

0:50:25.840 --> 0:50:27.799
<v Speaker 2>I wonder, I mean this is just occurring to me.

0:50:27.880 --> 0:50:33.600
<v Speaker 2>But I wonder whether somewhere in Jane's own psyche the

0:50:33.719 --> 0:50:37.719
<v Speaker 2>idea that there was this other person that you love

0:50:38.400 --> 0:50:41.320
<v Speaker 2>in the picture, your daughter, that was so sort of

0:50:41.360 --> 0:50:44.120
<v Speaker 2>impossible for her to tolerate that, the idea that she's

0:50:44.200 --> 0:50:46.279
<v Speaker 2>dying and that you're going to continue to have You're

0:50:46.320 --> 0:50:50.080
<v Speaker 2>going to live and have an ongoing relationship with this

0:50:50.120 --> 0:50:52.640
<v Speaker 2>other person, this other woman in the picture, that's just

0:50:52.680 --> 0:50:53.440
<v Speaker 2>my armchair.

0:50:54.080 --> 0:50:56.440
<v Speaker 1>Oh, I think that's absolutely right. I think you know,

0:50:56.640 --> 0:50:59.839
<v Speaker 1>prior to Jane's mortal illness, you just sort of disc

0:51:00.280 --> 0:51:04.200
<v Speaker 1>but pretty accurately, as jealousy. Here's this female that I'm

0:51:04.239 --> 0:51:06.279
<v Speaker 1>clearly in love with and James jealous of her. But

0:51:06.320 --> 0:51:10.680
<v Speaker 1>then once clear that Jane is dying, then you add

0:51:10.680 --> 0:51:13.080
<v Speaker 1>on to that this notion that, in a way, if

0:51:13.120 --> 0:51:16.480
<v Speaker 1>you're really a jealous and angry person, you might think,

0:51:17.160 --> 0:51:19.880
<v Speaker 1>of shit, she won. She's going to be alive and

0:51:19.920 --> 0:51:21.759
<v Speaker 1>have him, and I'm going to be gone. So I

0:51:21.760 --> 0:51:25.000
<v Speaker 1>think there was some anger there. Seven or eight years

0:51:25.000 --> 0:51:28.799
<v Speaker 1>into the marriage, I had tricked myself into thinking that

0:51:28.840 --> 0:51:33.640
<v Speaker 1>I had come to terms with james demands and any

0:51:33.680 --> 0:51:37.440
<v Speaker 1>affect that might have been associated with my frustration really

0:51:37.480 --> 0:51:41.080
<v Speaker 1>never rose again. No anger, I had no interest in

0:51:41.600 --> 0:51:43.960
<v Speaker 1>other women. I was all in in the marriage and

0:51:43.960 --> 0:51:46.400
<v Speaker 1>just figured this is it, and I've made this deal,

0:51:46.800 --> 0:51:49.200
<v Speaker 1>and it's great because she's really wonderful and I feel

0:51:49.200 --> 0:51:52.000
<v Speaker 1>really good when she directs her attention to me. And

0:51:52.080 --> 0:51:53.960
<v Speaker 1>you know, I do not doubt for a minute that

0:51:54.040 --> 0:51:56.600
<v Speaker 1>Jane loved me in her way. That was just never

0:51:56.640 --> 0:51:59.880
<v Speaker 1>a question. When things started to get tough twenty years in,

0:52:00.680 --> 0:52:05.239
<v Speaker 1>my challenge was not feeling anger. My challenge was how

0:52:05.280 --> 0:52:09.040
<v Speaker 1>to deal with the resignation. And I've had suicidal thoughts.

0:52:09.440 --> 0:52:12.560
<v Speaker 1>They were very concrete for a while. Work was difficult

0:52:12.640 --> 0:52:15.719
<v Speaker 1>at the time for a variety of reasons, and Jane's

0:52:15.800 --> 0:52:20.200
<v Speaker 1>alienation was also very difficult, and I just remember very

0:52:20.280 --> 0:52:23.799
<v Speaker 1>concrete notions of which window I was going to in

0:52:23.840 --> 0:52:25.640
<v Speaker 1>our tel floor apartment I was going to jump out

0:52:25.640 --> 0:52:28.000
<v Speaker 1>of and where I'd end up. When sometimes I would

0:52:28.440 --> 0:52:30.600
<v Speaker 1>as I was falling asleep, I would close my eyes

0:52:30.640 --> 0:52:33.840
<v Speaker 1>and imagine lifting up the sash and then lifting up

0:52:33.880 --> 0:52:36.720
<v Speaker 1>the storm window and lifting up the screen and perching

0:52:36.760 --> 0:52:39.840
<v Speaker 1>on the ledge and launching myself. Well, I know that

0:52:39.880 --> 0:52:43.160
<v Speaker 1>those are pretty scary signs, and I just didn't realize that.

0:52:43.239 --> 0:52:46.200
<v Speaker 1>In retrospect, I think about how dangerous that all was.

0:52:47.280 --> 0:52:52.000
<v Speaker 1>Once Jane collapsed, the energy flowed in a very different way.

0:52:52.719 --> 0:52:56.480
<v Speaker 1>I became, to a really striking degree just sort of

0:52:56.520 --> 0:52:59.560
<v Speaker 1>all in in taking care of her. And a huge

0:52:59.560 --> 0:53:05.120
<v Speaker 1>part of what necessity the complicated multi step procedures that

0:53:05.160 --> 0:53:09.000
<v Speaker 1>were required to take care of her tumor. And initially

0:53:09.000 --> 0:53:11.040
<v Speaker 1>they were once a day. After a while, it was

0:53:11.080 --> 0:53:14.319
<v Speaker 1>twice a day, and it was very complex, and that

0:53:14.440 --> 0:53:17.720
<v Speaker 1>had to be taken care of every day without fail,

0:53:18.080 --> 0:53:20.279
<v Speaker 1>whether the visiting nurses showed up or not. So it

0:53:20.360 --> 0:53:22.480
<v Speaker 1>invented all sorts of ways that I could do with myself.

0:53:23.440 --> 0:53:27.040
<v Speaker 1>She needed to be on blood thinners, and the most

0:53:27.040 --> 0:53:29.480
<v Speaker 1>effective ones were ones that you know, were injected under

0:53:29.480 --> 0:53:31.879
<v Speaker 1>the skin, and so every morning I had to give

0:53:31.920 --> 0:53:35.960
<v Speaker 1>her her injections in the skin of her abdomen. All

0:53:36.000 --> 0:53:40.120
<v Speaker 1>of my waking moments were spent thinking about taking care

0:53:40.160 --> 0:53:42.920
<v Speaker 1>of Jane. I think I see in retrospect that it

0:53:43.000 --> 0:53:46.600
<v Speaker 1>was a very convenient way not to think about anything

0:53:46.600 --> 0:53:48.920
<v Speaker 1>bigger than that, like, you know, what is this relationship?

0:53:48.960 --> 0:53:50.560
<v Speaker 1>What does this all mean? How am I going to

0:53:50.560 --> 0:53:52.960
<v Speaker 1>feel when she dies? I just had to spend all

0:53:52.960 --> 0:53:55.120
<v Speaker 1>of my mental energies were focused on taking care of

0:53:55.960 --> 0:53:58.320
<v Speaker 1>that was, as horrible as it was, was a luxury.

0:53:58.800 --> 0:54:01.080
<v Speaker 1>Oh and then when she was really having trouble breathing,

0:54:01.120 --> 0:54:04.960
<v Speaker 1>I was giving her intravenous narcotics through her port through

0:54:04.960 --> 0:54:08.399
<v Speaker 1>that porticath that we talked about. All these things were

0:54:08.440 --> 0:54:10.600
<v Speaker 1>just really convenient ways to keep from having to think

0:54:10.640 --> 0:54:11.880
<v Speaker 1>about her dying.

0:54:16.600 --> 0:54:20.280
<v Speaker 2>Three hundred and sixty days after Jane's collapse, she dies.

0:54:22.000 --> 0:54:25.279
<v Speaker 1>When she did die, it wasn't a matter of all

0:54:25.320 --> 0:54:29.520
<v Speaker 1>of the feelings suddenly rushing back. It was a slow,

0:54:29.719 --> 0:54:35.040
<v Speaker 1>slow progression of stuff that sort of put me back

0:54:35.080 --> 0:54:38.719
<v Speaker 1>in touch with my feelings. And they were triggered by

0:54:38.760 --> 0:54:41.239
<v Speaker 1>things like going through her closets and getting all of

0:54:41.280 --> 0:54:45.680
<v Speaker 1>her old clothes ready for goodwill. You know, among her

0:54:45.760 --> 0:54:49.160
<v Speaker 1>many other attributes, she was an incredible pack rat. I

0:54:49.160 --> 0:54:52.000
<v Speaker 1>hadn't been in her closets for decades, and I found

0:54:52.920 --> 0:54:55.799
<v Speaker 1>shoes and outfits I remembered from thirty years earlier that

0:54:55.800 --> 0:54:57.759
<v Speaker 1>he just hadn't thrown out. I mean, I ended up

0:54:58.080 --> 0:55:01.520
<v Speaker 1>piling big piles of boxes full clothes for good will

0:55:01.560 --> 0:55:04.040
<v Speaker 1>that were taller than I was in our front hall.

0:55:04.040 --> 0:55:06.720
<v Speaker 1>I would come across things that she had left behind,

0:55:07.360 --> 0:55:09.359
<v Speaker 1>And you know, a big part of getting in touch

0:55:09.400 --> 0:55:12.400
<v Speaker 1>with how I was really feeling about things was that finally,

0:55:13.840 --> 0:55:16.839
<v Speaker 1>you know, maybe two weeks after Jane died, I asked

0:55:16.840 --> 0:55:20.200
<v Speaker 1>somebody for a referral to a therapist who I've now

0:55:20.239 --> 0:55:23.440
<v Speaker 1>been seeing for almost eleven years. So what a relief

0:55:23.440 --> 0:55:24.600
<v Speaker 1>to finally do that as well.

0:55:28.239 --> 0:55:31.960
<v Speaker 2>So it's so interesting you had such fidelity to her

0:55:32.360 --> 0:55:37.000
<v Speaker 2>secrets and not betraying them at any point, even to

0:55:37.040 --> 0:55:40.120
<v Speaker 2>the point where keeping that information as much as you

0:55:40.719 --> 0:55:44.600
<v Speaker 2>possibly could private and within the hospital system where you

0:55:44.600 --> 0:55:47.359
<v Speaker 2>both worked. And now you've written a book about it

0:55:47.800 --> 0:55:51.760
<v Speaker 2>and we're talking about it, and many people will listen

0:55:51.880 --> 0:55:56.160
<v Speaker 2>to the story. And once she was no longer living,

0:55:56.200 --> 0:55:59.680
<v Speaker 2>you were able to seek the conversation and the help

0:55:59.760 --> 0:56:02.040
<v Speaker 2>and the the dialogue that you needed to be able

0:56:02.120 --> 0:56:04.359
<v Speaker 2>to have where you no longer had to keep her

0:56:04.360 --> 0:56:09.520
<v Speaker 2>secrets because she was gone. Was there any hesitation about

0:56:09.520 --> 0:56:11.640
<v Speaker 2>that once she was gone or did it really feel

0:56:11.640 --> 0:56:14.080
<v Speaker 2>like no. Now I've been living with this for so long,

0:56:14.160 --> 0:56:17.080
<v Speaker 2>it's my right to tell this story and to lighten

0:56:17.080 --> 0:56:18.160
<v Speaker 2>my burden in some way.

0:56:18.800 --> 0:56:21.640
<v Speaker 1>Oh my god, Dan, there was so much reluctance so

0:56:21.800 --> 0:56:26.320
<v Speaker 1>much took me almost ten years after James's death before

0:56:26.360 --> 0:56:30.960
<v Speaker 1>this book was published. Initially, I would tell myself, I

0:56:31.000 --> 0:56:33.439
<v Speaker 1>should really write this down. But then I thought, why

0:56:33.440 --> 0:56:35.080
<v Speaker 1>would you do this? Because no one's ever going to

0:56:35.120 --> 0:56:38.480
<v Speaker 1>read this, because you can't possibly publish this or can't

0:56:38.520 --> 0:56:42.600
<v Speaker 1>even show it to anybody. What I thought about was

0:56:42.640 --> 0:56:44.799
<v Speaker 1>that if I were to write this, all of these

0:56:44.840 --> 0:56:48.560
<v Speaker 1>people who worshiped Jane, the people that she mentored, the

0:56:48.600 --> 0:56:51.600
<v Speaker 1>people whose lives she touched, they would be furious at me.

0:56:52.360 --> 0:56:55.240
<v Speaker 1>She wanted her secrets cap she was a private person.

0:56:55.320 --> 0:57:00.399
<v Speaker 1>This would be a betrayal of betrayals, and so that

0:57:00.719 --> 0:57:04.240
<v Speaker 1>was part of what sort of stayed my hand. Eventually, though,

0:57:04.440 --> 0:57:07.640
<v Speaker 1>there were two things I realized. One was that by

0:57:07.680 --> 0:57:10.080
<v Speaker 1>writing this down it would allow me to gain a

0:57:10.080 --> 0:57:14.279
<v Speaker 1>little bit of control over a thirty year period of

0:57:14.280 --> 0:57:16.640
<v Speaker 1>my life which I had very little control. That this

0:57:16.800 --> 0:57:19.200
<v Speaker 1>was a way of sort of helping me understand what

0:57:19.240 --> 0:57:23.000
<v Speaker 1>I had done, helping me understand the secrets and why

0:57:23.040 --> 0:57:25.800
<v Speaker 1>I had kept secrets. You know, what the motivation was

0:57:25.880 --> 0:57:28.400
<v Speaker 1>for being complicit in those secrets I didn't tell anybody

0:57:28.400 --> 0:57:31.040
<v Speaker 1>else was my secret too, and that was part of it.

0:57:31.360 --> 0:57:34.920
<v Speaker 1>But I think also I came to this realization maybe

0:57:34.920 --> 0:57:37.680
<v Speaker 1>seven or eight years after she died, that well, you know,

0:57:37.720 --> 0:57:41.320
<v Speaker 1>it's my story too. It's not just Jane's story, and

0:57:41.440 --> 0:57:43.240
<v Speaker 1>I get to tell my story if I want to

0:57:43.240 --> 0:57:45.400
<v Speaker 1>tell my story, and I can tell it in a

0:57:45.400 --> 0:57:49.080
<v Speaker 1>way that I hope will make it clear that I

0:57:49.160 --> 0:57:51.600
<v Speaker 1>loved Jane and that she loved me, and that this

0:57:51.680 --> 0:57:57.680
<v Speaker 1>isn't at core a betrayal of secrets. It's a description

0:57:58.560 --> 0:58:01.560
<v Speaker 1>I tell people. The under line story here is somebody

0:58:01.640 --> 0:58:06.600
<v Speaker 1>keeping a big, huge, neglected breast mass a secret for

0:58:06.840 --> 0:58:09.080
<v Speaker 1>years and years until you know it was too late

0:58:09.120 --> 0:58:11.520
<v Speaker 1>to do anything about it. And she's oncologist by the way,

0:58:11.840 --> 0:58:13.720
<v Speaker 1>you know, and brilliant by the way. You know. It's

0:58:13.800 --> 0:58:17.640
<v Speaker 1>very lurid. But the core story is a story of

0:58:17.640 --> 0:58:21.680
<v Speaker 1>a marriage, and it's a story about the deals that

0:58:21.680 --> 0:58:24.120
<v Speaker 1>we make with each other in couples, the deals that

0:58:24.160 --> 0:58:26.520
<v Speaker 1>couples make with each other, and the sort of arrangements

0:58:26.520 --> 0:58:30.800
<v Speaker 1>that they make, most of which are not explicit, in

0:58:30.880 --> 0:58:33.200
<v Speaker 1>order to stay together for thirty years. And if you

0:58:33.240 --> 0:58:36.680
<v Speaker 1>strip out the lurid aspects, that's what it's about. And

0:58:36.680 --> 0:58:39.000
<v Speaker 1>it really has to do with you know, what secrets

0:58:39.040 --> 0:58:41.360
<v Speaker 1>are acceptable, which ones aren't, which ones can you talk

0:58:41.360 --> 0:58:43.440
<v Speaker 1>about with you know, the person that you're in a

0:58:43.480 --> 0:58:46.040
<v Speaker 1>folly ado with, and which ones can't you talk about?

0:58:46.640 --> 0:58:50.840
<v Speaker 1>And pretty personally, that's where I think I justify saying

0:58:50.840 --> 0:58:53.400
<v Speaker 1>these things. And you know, before I published it, I

0:58:53.520 --> 0:58:57.240
<v Speaker 1>showed typeescripts to some of the people that Jane had trained,

0:58:57.440 --> 0:59:00.960
<v Speaker 1>and I was, really, you can't imagine how nervous I

0:59:01.080 --> 0:59:03.960
<v Speaker 1>was about this and writing about things that have been secrets. Everybody,

0:59:03.960 --> 0:59:06.760
<v Speaker 1>I think feels the same way. But the shocker was

0:59:06.800 --> 0:59:09.120
<v Speaker 1>that almost all of them said, oh, you needed to

0:59:09.160 --> 0:59:11.480
<v Speaker 1>do this, and they would start telling me things about

0:59:11.560 --> 0:59:14.280
<v Speaker 1>Jane that they know, things that they didn't understand and

0:59:14.320 --> 0:59:16.440
<v Speaker 1>couldn't explain, and said, you need to talk about this.

0:59:16.960 --> 0:59:19.280
<v Speaker 1>I do have one person who kind of trolls my

0:59:19.720 --> 0:59:22.440
<v Speaker 1>social media accounts and says that I'm being a terrible person,

0:59:22.440 --> 0:59:24.240
<v Speaker 1>but everybody else is sort of on board.

0:59:24.960 --> 0:59:27.280
<v Speaker 2>Well there's always one. And I'm so glad you just

0:59:27.280 --> 0:59:29.560
<v Speaker 2>said that about marriage, because that's how I see this

0:59:29.640 --> 0:59:39.040
<v Speaker 2>story as well. Barrett's story is not only about his

0:59:39.120 --> 0:59:43.680
<v Speaker 2>marriage to Jane, however, it's a story of another marriage too,

0:59:44.600 --> 0:59:47.040
<v Speaker 2>Believe it or not. It's a happy story.

0:59:49.880 --> 0:59:52.200
<v Speaker 1>I described Jane as being a medical student who came

0:59:52.200 --> 0:59:54.600
<v Speaker 1>on to the hospital where I was. There were actually

0:59:54.600 --> 0:59:58.080
<v Speaker 1>two medical students that arrived the same day. There were classmates,

0:59:58.400 --> 1:00:00.880
<v Speaker 1>and as I said, I oversaw two teams, one that

1:00:00.920 --> 1:00:02.920
<v Speaker 1>I ran myself and then one that was run by

1:00:02.920 --> 1:00:05.600
<v Speaker 1>a junior residence who kind of technically reported to me,

1:00:05.680 --> 1:00:08.280
<v Speaker 1>but not really. Jane was on the other team, the

1:00:08.360 --> 1:00:11.760
<v Speaker 1>junior residence team. The student came onto my team. His

1:00:11.880 --> 1:00:15.600
<v Speaker 1>name was Lynn. Was like the best medical student I'd

1:00:15.600 --> 1:00:21.560
<v Speaker 1>ever had. She was really smart, incredibly hard worker, really

1:00:21.560 --> 1:00:23.160
<v Speaker 1>fun to work with. It turned out that, you know,

1:00:23.160 --> 1:00:25.520
<v Speaker 1>the students need to be on call every third night

1:00:25.520 --> 1:00:28.280
<v Speaker 1>as well, and her schedule was such that she was

1:00:28.320 --> 1:00:30.240
<v Speaker 1>on call the same nights I was. So we would

1:00:30.280 --> 1:00:33.160
<v Speaker 1>work together and I would teach her stuff, and I'd

1:00:33.160 --> 1:00:35.320
<v Speaker 1>help her with the patients that she was being assigned,

1:00:35.520 --> 1:00:37.560
<v Speaker 1>and you know, stay at all hours and taking care

1:00:37.560 --> 1:00:40.000
<v Speaker 1>of things. And she was great. She was funny, and

1:00:40.080 --> 1:00:43.960
<v Speaker 1>she was very confident. And those rotations last a couple

1:00:44.000 --> 1:00:45.840
<v Speaker 1>of months, and on the last night we were on

1:00:45.920 --> 1:00:48.560
<v Speaker 1>call together, we'd had a particularly busy night, a lot

1:00:48.600 --> 1:00:51.080
<v Speaker 1>of patients, a lot of sick patients being admitted. It

1:00:51.120 --> 1:00:54.040
<v Speaker 1>was about four o'clock in the morning and we were

1:00:54.080 --> 1:00:56.720
<v Speaker 1>sitting in the nursing station on one of our awards,

1:00:57.120 --> 1:01:00.600
<v Speaker 1>writing up our admission notes and she stuck turned to

1:01:00.640 --> 1:01:02.160
<v Speaker 1>me and Lynn said, listen, I need to talk to

1:01:02.160 --> 1:01:04.960
<v Speaker 1>you about something. And I said, fine, what do you

1:01:04.960 --> 1:01:06.240
<v Speaker 1>want to talk about She said, no, I can't talk

1:01:06.240 --> 1:01:07.960
<v Speaker 1>to you about it here. Well, what do you want

1:01:07.960 --> 1:01:10.960
<v Speaker 1>to do? It said, follow me. So that ward was

1:01:11.000 --> 1:01:13.360
<v Speaker 1>a long, long halway with a window at the end.

1:01:13.680 --> 1:01:16.640
<v Speaker 1>So we walked down to the window and it's completely black.

1:01:16.680 --> 1:01:18.360
<v Speaker 1>You know, it's four o'clock in the morning, so patients

1:01:18.400 --> 1:01:20.760
<v Speaker 1>were sleeping the lights off. So we sat in the

1:01:20.800 --> 1:01:25.280
<v Speaker 1>window sill and Lynn turns to me and says, listen,

1:01:25.320 --> 1:01:27.600
<v Speaker 1>I have to tell you something. Said fine. And she

1:01:27.680 --> 1:01:30.880
<v Speaker 1>told me something that no woman had ever told me before,

1:01:31.080 --> 1:01:33.360
<v Speaker 1>and no one has ever told me since. She said,

1:01:33.680 --> 1:01:35.560
<v Speaker 1>I'm really attracted to you, and I wonder if we

1:01:35.560 --> 1:01:39.560
<v Speaker 1>should do something about that. I was unbelievably flattered, and

1:01:39.600 --> 1:01:41.800
<v Speaker 1>I said to her, oh, Limb, you know, I think

1:01:41.840 --> 1:01:45.160
<v Speaker 1>you're amazing, But didn't you tell me that you're engaged

1:01:45.240 --> 1:01:47.280
<v Speaker 1>to be married and your wedding has taken place in

1:01:47.320 --> 1:01:51.400
<v Speaker 1>like two months, and she said yeah. I said, well,

1:01:51.440 --> 1:01:53.120
<v Speaker 1>you know, I'm not going to get into the middle

1:01:53.120 --> 1:01:55.479
<v Speaker 1>of that. You really to think about this, Plus, I've

1:01:55.520 --> 1:01:59.480
<v Speaker 1>already asked out your classmate Jane. And to Lind's credit,

1:02:00.240 --> 1:02:02.080
<v Speaker 1>she just kind of rolled with it and said, yeah, yeah,

1:02:02.080 --> 1:02:05.120
<v Speaker 1>I suppose you're right, and things didn't get awkward. We

1:02:05.120 --> 1:02:06.800
<v Speaker 1>spent the next three or four days as she finished

1:02:06.880 --> 1:02:09.200
<v Speaker 1>up her rotation, it was absolutely fine. And then she

1:02:09.320 --> 1:02:11.240
<v Speaker 1>went off and she got married, and I, you know,

1:02:11.960 --> 1:02:15.280
<v Speaker 1>took out Jane. But that was an unusual event, and

1:02:15.320 --> 1:02:18.480
<v Speaker 1>I would think about it over the next several decades.

1:02:18.520 --> 1:02:21.200
<v Speaker 1>I have a friend who has sort of the quantitative

1:02:21.200 --> 1:02:23.280
<v Speaker 1>turn of mind that I told this story too. Why

1:02:23.440 --> 1:02:26.240
<v Speaker 1>He said, oh, so how often did you take about it?

1:02:26.320 --> 1:02:28.840
<v Speaker 1>Was it once a year? Was it four times a year?

1:02:29.000 --> 1:02:31.240
<v Speaker 1>Was it ten times a year? And I told him,

1:02:31.280 --> 1:02:33.080
<v Speaker 1>you know what he could do with his questions. But

1:02:33.120 --> 1:02:35.360
<v Speaker 1>I did think about this every so often. So after

1:02:35.440 --> 1:02:38.200
<v Speaker 1>Jane died, I was not interested in seeing anybody. I figured,

1:02:38.240 --> 1:02:41.040
<v Speaker 1>you know, before I examined things really closely, I thought,

1:02:41.040 --> 1:02:43.320
<v Speaker 1>you know, I'd had a long, wonderful marriage. Many people

1:02:43.320 --> 1:02:45.160
<v Speaker 1>don't even get that. I don't want to try this again.

1:02:45.520 --> 1:02:47.560
<v Speaker 1>The castro Ole ladies would come by, and I just

1:02:47.640 --> 1:02:51.120
<v Speaker 1>was not interested. But then, almost a year after Jane died,

1:02:51.160 --> 1:02:55.120
<v Speaker 1>I get this email and it's from Lynn, and my

1:02:55.280 --> 1:02:58.000
<v Speaker 1>pulse races a little bit, and she says something like

1:02:58.280 --> 1:03:00.520
<v Speaker 1>I must be living under a rock us heard that

1:03:00.600 --> 1:03:02.840
<v Speaker 1>Jane died. I wanted to let you know sorry I am,

1:03:03.160 --> 1:03:05.919
<v Speaker 1>and that I have lovely memories of thirty years ago

1:03:06.000 --> 1:03:09.080
<v Speaker 1>when I was a medical student. And so I wrote

1:03:09.080 --> 1:03:11.200
<v Speaker 1>back and said, this is a lovely thing that you've said.

1:03:11.280 --> 1:03:13.760
<v Speaker 1>I also have lovely memories of that time, and thank

1:03:13.760 --> 1:03:17.720
<v Speaker 1>you so much for writing. And Lynn wrote back once

1:03:17.760 --> 1:03:20.840
<v Speaker 1>more and said, listen, I'm working in New Jersey, right

1:03:20.880 --> 1:03:23.280
<v Speaker 1>across the George Washington Bridge forever in New York. You know,

1:03:23.360 --> 1:03:25.960
<v Speaker 1>just let me know we can have coffee or a

1:03:26.000 --> 1:03:27.840
<v Speaker 1>meal sometime. And I wrote back and said, yeah, I

1:03:27.840 --> 1:03:29.320
<v Speaker 1>would love to do that. I can tell you about

1:03:29.360 --> 1:03:31.480
<v Speaker 1>the most amazing woman who ever lived.

1:03:35.480 --> 1:03:37.960
<v Speaker 2>Barrett doesn't really have any intention of meeting Lynn for

1:03:38.000 --> 1:03:41.200
<v Speaker 2>coffee or a meal. First of all, he's not interested

1:03:41.240 --> 1:03:45.400
<v Speaker 2>in rekindling some long ago spark. Second, he's pretty sure

1:03:45.440 --> 1:03:48.360
<v Speaker 2>she's still married. But then a close friend from their

1:03:48.400 --> 1:03:51.440
<v Speaker 2>early days in medicine. Visits Dana Farber to give a talk,

1:03:51.920 --> 1:03:55.480
<v Speaker 2>and it turns out that she's Lynn's best friend. She

1:03:55.560 --> 1:03:58.720
<v Speaker 2>proceeds to tell Barrett that Lynn's marriage is on the rocks.

1:03:59.240 --> 1:04:01.720
<v Speaker 2>Barrett responds that he doesn't care. He's not going to

1:04:01.720 --> 1:04:04.680
<v Speaker 2>get into the middle of this. But then when he

1:04:04.720 --> 1:04:07.760
<v Speaker 2>gets home that night, he writes to Lynn. He tells

1:04:07.800 --> 1:04:10.160
<v Speaker 2>her he's going to be visiting New York the following week.

1:04:10.800 --> 1:04:13.720
<v Speaker 2>Maybe they could have lunch. He picks a restaurant on

1:04:13.720 --> 1:04:16.840
<v Speaker 2>the Upper West Side and in walks Lynn, looking just

1:04:16.920 --> 1:04:20.080
<v Speaker 2>as he remembered her, in his words, gorgeous.

1:04:23.240 --> 1:04:25.040
<v Speaker 1>So we go inside and we talk. She tells me

1:04:25.080 --> 1:04:27.320
<v Speaker 1>about her husband soon to be ex husband, as it

1:04:27.360 --> 1:04:30.320
<v Speaker 1>turns out, and I tell her stuff about Jane that

1:04:30.360 --> 1:04:32.840
<v Speaker 1>I hadn't told anybody else. I really hadn't talked to

1:04:32.880 --> 1:04:35.920
<v Speaker 1>anybody about Jane's secrets and what it was like to

1:04:35.920 --> 1:04:39.360
<v Speaker 1>take care of her. But I told Lynn, and things

1:04:39.440 --> 1:04:41.480
<v Speaker 1>just moved very quickly, and within a year she had

1:04:41.520 --> 1:04:43.760
<v Speaker 1>moved up to Boston to live with me. A couple

1:04:43.760 --> 1:04:45.440
<v Speaker 1>months after that or about a year after that, we

1:04:45.440 --> 1:04:48.720
<v Speaker 1>got married. And so now I am happily married to Lynn.

1:04:49.600 --> 1:04:53.600
<v Speaker 1>She has three sons who I love dearly. She has

1:04:53.920 --> 1:04:57.040
<v Speaker 1>two dogs who are part of the menagerie, and my

1:04:57.920 --> 1:05:02.480
<v Speaker 1>daughter adores her and my grandkids adore her. So I

1:05:02.480 --> 1:05:04.440
<v Speaker 1>think you know. The way I've described this sometimes is

1:05:04.480 --> 1:05:07.640
<v Speaker 1>I've learned a lot about secrets. I've learned a lot

1:05:07.680 --> 1:05:10.640
<v Speaker 1>about misery. I've learned a lot about marriage and secrets

1:05:10.640 --> 1:05:13.280
<v Speaker 1>and marriage. But as it turns out, I've also learned

1:05:13.280 --> 1:05:16.200
<v Speaker 1>about redemption. My life has sort of been redeemed by

1:05:16.880 --> 1:05:19.200
<v Speaker 1>this relationship with Lynn. We've now been married for almost

1:05:19.200 --> 1:05:20.800
<v Speaker 1>ten years. It's really something.

1:05:26.840 --> 1:05:31.280
<v Speaker 2>Here's Barrett reading a final passage from his wrenching, searingly

1:05:31.400 --> 1:05:32.960
<v Speaker 2>self searching memoir.

1:05:34.760 --> 1:05:36.520
<v Speaker 1>It was no better feeling in the world than being

1:05:36.520 --> 1:05:40.160
<v Speaker 1>in James's good graces. Her formidable intelligence and finally, hone

1:05:40.200 --> 1:05:43.919
<v Speaker 1>taste combined to make her approval something special. A nod

1:05:43.960 --> 1:05:46.600
<v Speaker 1>made you feel like a million bucks, and for exactly

1:05:46.600 --> 1:05:50.560
<v Speaker 1>the same reasons where disfavor was crushing. This was true

1:05:50.560 --> 1:05:53.320
<v Speaker 1>for anyone who interacted with Jing, but of course I

1:05:53.360 --> 1:05:56.240
<v Speaker 1>felt it much more intensely because love was added to

1:05:56.240 --> 1:06:00.000
<v Speaker 1>the mix. I crossed Jing west Or twice in our marriage,

1:06:00.080 --> 1:06:03.640
<v Speaker 1>and her response had been to withdraw not just her affection,

1:06:03.800 --> 1:06:08.280
<v Speaker 1>but everything. Being frozen out felt like the worst punishment imaginable.

1:06:08.480 --> 1:06:11.520
<v Speaker 1>I would respond with a desperate scramble to find anything

1:06:11.520 --> 1:06:14.160
<v Speaker 1>that might restore me to her favor, including in this case,

1:06:14.560 --> 1:06:18.680
<v Speaker 1>I promise not to do anything about her breast cancer. Now,

1:06:18.720 --> 1:06:22.040
<v Speaker 1>I felt deeply ashamed of my inaction. Fear of Jane's

1:06:22.040 --> 1:06:26.520
<v Speaker 1>displeasure was an absurd excuse. I asked myself, what kind

1:06:26.520 --> 1:06:30.160
<v Speaker 1>of husband could stand by idly for four years while

1:06:30.160 --> 1:06:33.840
<v Speaker 1>his wife's breast cancer grew. I'm still asking that question.

1:06:44.360 --> 1:06:48.440
<v Speaker 2>Family Secret is a production of iHeartRadio. Molly's Acur is

1:06:48.440 --> 1:06:51.640
<v Speaker 2>the story editor and Dylan Fagan is the executive producer.

1:06:52.880 --> 1:06:54.880
<v Speaker 2>If you have a family secret you'd like to share,

1:06:55.280 --> 1:06:57.720
<v Speaker 2>please leave us a voicemail and your story could appear

1:06:57.720 --> 1:07:01.160
<v Speaker 2>on an upcoming episode. Our number is one eight eight

1:07:01.160 --> 1:07:05.360
<v Speaker 2>eight Secret zero. That's the number zero. You can also

1:07:05.440 --> 1:07:10.280
<v Speaker 2>find me on Instagram at Danny Ryder and if you'd

1:07:10.320 --> 1:07:12.800
<v Speaker 2>like to know more about the story that inspired this podcast,

1:07:13.200 --> 1:07:15.080
<v Speaker 2>check out my memoir Inheritance.

1:07:37.240 --> 1:07:41.480
<v Speaker 1>For more podcasts from iHeartRadio, visit the iHeartRadio app, Apple Podcasts,

1:07:41.560 --> 1:07:43.640
<v Speaker 1>or wherever you listen to your favorite shows.