WEBVTT - The Tuskegee Syphilis Experiment

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<v Speaker 1>Welcome to Stuff You Should Know, a production of iHeartRadio.

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<v Speaker 2>Hey, and welcome to the podcast. I'm Josh and there's

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<v Speaker 2>Chuck and this is Stuff you should Know about one

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<v Speaker 2>of the more shameful chapters in US history and indeed

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<v Speaker 2>medical history. I think you could say too.

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<v Speaker 3>Yeah, for sure. And by the way, if you hear

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<v Speaker 3>weird noises, my immediate neighborhood is sort of crazy right now.

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<v Speaker 2>What's going on?

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<v Speaker 3>Well, I've got construction next door, I've got a lawn

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<v Speaker 3>crew across the street, and they're also shooting a movie

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<v Speaker 3>across the street. So it's just pandemonium is happening outside

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<v Speaker 3>these sort of quiet doors.

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<v Speaker 2>You know what. I would call that shameful.

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<v Speaker 3>Not like this no episode, for sure.

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<v Speaker 2>That was my attempt at segaway.

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<v Speaker 3>Yeah, nice work.

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<v Speaker 2>I don't know about that, but thanks.

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<v Speaker 3>By the way, this one is a listener recommended and

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<v Speaker 3>a teenage listener. This came from Miles Kendrick, a fourteen

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<v Speaker 3>year old.

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<v Speaker 2>Nice Miles, great idea.

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<v Speaker 3>Yeah, thanks for that.

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<v Speaker 2>Yeah, we're talking about what's called the Tuskegee Syphilis Experiment

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<v Speaker 2>or Tuskegee Syphilis Study, and the actual official name for

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<v Speaker 2>it was the Tuskegee Study of Untreated Syphilis in the

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<v Speaker 2>Negro Male.

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<v Speaker 3>Yeah, that spells it all out, doesn't it.

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<v Speaker 2>It does. The fact that there's an official title for

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<v Speaker 2>this just really kind of goes to show you just

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<v Speaker 2>how nefarius the whole thing was. And it was indeed

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<v Speaker 2>a nefarious experiment, no matter. It doesn't really matter how

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<v Speaker 2>you slice it. You can look at it any number

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<v Speaker 2>of ways and it always still washes out stinky.

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<v Speaker 3>Yeah, it does. And this was an experiment. I mean,

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<v Speaker 3>I guess we'll go ahead and say what happened generally

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<v Speaker 3>is that they recruited black men in Macon County, Alabama

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<v Speaker 3>that had syphilis. Kind of one of the misconceptions is

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<v Speaker 3>that they were given syphilis as part of this. Not true,

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<v Speaker 3>but don't worry. We did that in Guatemala, as we'll

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<v Speaker 3>see later on. Yeah, and sign them up for this

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<v Speaker 3>study where they would not treat these men of syphilis

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<v Speaker 3>just to see how it progressed, basically because they had

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<v Speaker 3>this notion and you know, of course just doesn't excuse anything.

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<v Speaker 3>But one of the supposed reasons that they had this

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<v Speaker 3>notion that syphilis would was different in white men than

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<v Speaker 3>black men, and that in black men, it was more

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<v Speaker 3>cardiovascular based as far as the symptoms and the results,

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<v Speaker 3>and then in white men it was more neurological. And

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<v Speaker 3>it was initially supposed to be a six month thing,

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<v Speaker 3>but it went on not for four years, not for

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<v Speaker 3>fourteen years, but for forty years.

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<v Speaker 2>Yeah. I mean it started out in nineteen thirty two

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<v Speaker 2>in the Jim Crow South and it carried right through

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<v Speaker 2>the entire Civil Rights era. A number of other historical

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<v Speaker 2>things happened during this time that should have given the

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<v Speaker 2>researchers pause. From what I saw, the best explanation is

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<v Speaker 2>not that these people were inherently evil, although you can

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<v Speaker 2>make a case that at least one of the people

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<v Speaker 2>who led the study at one point was we'll talk

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<v Speaker 2>about him later in Guatemala, But more that they just

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<v Speaker 2>came to see these these men, these individuals, these human beings,

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<v Speaker 2>there's nothing more than a data set, and that they

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<v Speaker 2>stripped them of their humanity so thoroughly that they didn't

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<v Speaker 2>even really think that this was there was anything wrong

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<v Speaker 2>with what they were doing, even over the course of

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<v Speaker 2>forty whole years.

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<v Speaker 3>Yeah. And the reason why they chose Macon County is

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<v Speaker 3>a few reasons. One, it's proximity to Tuskegee, which was

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<v Speaker 3>you know, key is the place where they carried this

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<v Speaker 3>stuff out and others because they they zoned in on

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<v Speaker 3>that area because they initially were trying to find out

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<v Speaker 3>how many people had syphilis and where so they could

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<v Speaker 3>treat these men, right, and they found that Macon County,

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<v Speaker 3>Alabama had the highest prevalence of syphilis. And also in

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<v Speaker 3>this last art comes from the files that were released

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<v Speaker 3>and collected I think in the last decade. Even they

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<v Speaker 3>were sharecroppers, there were rural men, and they were poor men.

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<v Speaker 3>And the quote that was in these papers that I

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<v Speaker 3>found was that they found them immobile and malleable.

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<v Speaker 2>Yeah, they were an extremely vulnerable population. I mean even

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<v Speaker 2>among the black population at large in the Jim Crow era,

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<v Speaker 2>these were like the most vulnerable people and they had

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<v Speaker 2>less rights than even other black people at the time

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<v Speaker 2>in America. So yeah, they picked on them very specifically.

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<v Speaker 2>And that you kind of hinted at something that I

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<v Speaker 2>find as one of the most cynical aspects of this

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<v Speaker 2>whole thing, that initially the program that was working down

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<v Speaker 2>there was a well funded program that was treating syphilis,

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<v Speaker 2>and then the funding ran out of that and they said, well,

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<v Speaker 2>we still have all these people that we know have syphilis.

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<v Speaker 2>Let's try something different and not treat them. And that

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<v Speaker 2>was the beginning of the whole thing.

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<v Speaker 3>Yeah, And it's also key to point out before we

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<v Speaker 3>get into the grizzly details, is that these men did

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<v Speaker 3>not know they had syphilis, and then they also thought

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<v Speaker 3>that they were being treated. They were told they had

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<v Speaker 3>quote bad blood, and the whole time they thought they

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<v Speaker 3>were getting treatment when they were getting placebos.

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<v Speaker 2>Right. Yeah. And then there were I read a couple

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<v Speaker 2>of men who suspected or knew they had syphilis and

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<v Speaker 2>wanted to go get it treated, and the people running

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<v Speaker 2>the study prevented them from getting it treated, either by

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<v Speaker 2>telling them not to go do that or by telling

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<v Speaker 2>doctors in the area, do not treat any of these

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<v Speaker 2>men because they're part of the study we're carrying out.

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<v Speaker 2>Because that's another thing too. I think a lot of

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<v Speaker 2>people think that this was some secret government study conducted

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<v Speaker 2>in absolute silence. It was not at all. It wasn't

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<v Speaker 2>even an open secret. It wasn't a secret at all,

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<v Speaker 2>so much so that the people running the study published

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<v Speaker 2>thirteen different journal articles over the course of that forty

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<v Speaker 2>years and put out annual reports, published annual reports on

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<v Speaker 2>the progress of this thing. So it was just right

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<v Speaker 2>out there, and people just overlooked it or ignored it

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<v Speaker 2>for four decades. Yeah.

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<v Speaker 3>It was a time when you know, the medical community

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<v Speaker 3>certainly was aware, but the public at large and the

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<v Speaker 3>media didn't really look into you know, medical papers and

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<v Speaker 3>stuff like they.

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<v Speaker 1>Do these days.

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<v Speaker 3>Yeah, And we should point out that all of this

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<v Speaker 3>was done despite a nineteen twenty seven statute in the

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<v Speaker 3>state of Alabama that requires treatment of syphilis, Like it

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<v Speaker 3>was a state law that they just rushed aside, basically,

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<v Speaker 3>And all of this done for the promise of hot meals,

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<v Speaker 3>treatment and burial insurance basically.

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<v Speaker 2>Yeah, for sure. So yeah, I mean, I think that's

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<v Speaker 2>a pretty good setup. I think we should kind of

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<v Speaker 2>describe what these men were suffering from, yeah, in the

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<v Speaker 2>first place, and talk a little bit about syphilis.

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<v Speaker 1>Let's do.

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<v Speaker 3>It was caused by a bacterium called its spiral shaped

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<v Speaker 3>and it's called the Treponema palladum bacterium. And they don't

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<v Speaker 3>know where it came from, but they know that it

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<v Speaker 3>dates at least all the way back to Naples in

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<v Speaker 3>fourteen ninety five when mercenaries serving in the French Army

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<v Speaker 3>got syphilis and then very quickly spread it far and wide,

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<v Speaker 3>because for eight years later it was in India and China.

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<v Speaker 2>That's pretty fast, man.

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<v Speaker 1>Yeah.

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<v Speaker 2>One of the reasons it was so fast is because

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<v Speaker 2>these were armies pillaging and raping, and syphilis is primarily

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<v Speaker 2>transmitted through sexual contact. It can also be transmitted or

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<v Speaker 2>transferred from an infected woman to her fetus, but for

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<v Speaker 2>the most part it comes from unprotected sex to this

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<v Speaker 2>std Yeah, and there's a there's a hypothesis that it

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<v Speaker 2>came back with Columbus and his men, who were again

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<v Speaker 2>pillaging and raping, and they had contracted what is considered

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<v Speaker 2>a new world disease, syphilis, and brought it back to Europe,

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<v Speaker 2>and that's where it spread. Apparently, there's no actual hard

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<v Speaker 2>evidence of this or hard proof, but the timing, I

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<v Speaker 2>think is what people zero in on. I mean, it

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<v Speaker 2>first popped up in fourteen ninety five, and everyone knows

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<v Speaker 2>thanks to that child prodigy whose name escapes me right now, Stoner.

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<v Speaker 2>I think her last name is Stoner Sackler. The Columbus

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<v Speaker 2>sailed the Ocean Blue in fourteen ninety.

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<v Speaker 3>Two, that's right, and if you got syphilis, you were

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<v Speaker 3>in for a pretty rough run, including possibly eventually death

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<v Speaker 3>in a lot of cases. If you were an infant,

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<v Speaker 3>it could be certainly fatal. It could cause blindness and deafness.

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<v Speaker 3>It could cause facial differences with teeth and the nose

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<v Speaker 3>brain complications. Of course, if you were an adult, you

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<v Speaker 3>would get lesions, and then within a few months it

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<v Speaker 3>goes into the second stage, where you have lesions basically

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<v Speaker 3>all over your body, rashes and pains and headaches, and

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<v Speaker 3>finally the disease in the third phase, it dials back

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<v Speaker 3>at abates a little bit where it's not transmissible. But

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<v Speaker 3>in that latency period, all of a sudden, it can

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<v Speaker 3>attack your organs, specifically your liver and cause liver failure

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<v Speaker 3>and kill.

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<v Speaker 2>You, and blindness and neurological impacts like dementia and paralysis.

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<v Speaker 2>And that's one of the things that makes it so

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<v Speaker 2>insidious is after the initial infection symptoms, it just seems

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<v Speaker 2>like it went away, and then out of nowhere it

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<v Speaker 2>can just come back and kill you. Like you're saying, right,

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<v Speaker 2>So this is what these men specifically in this study

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<v Speaker 2>were dealing with. I think all of them were in

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<v Speaker 2>late latency syphilis where they didn't necessarily have symptoms any longer.

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<v Speaker 2>And the idea that this was an indefinite open study

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<v Speaker 2>that was essentially like this study will end when all

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<v Speaker 2>these guys are dead, meant that they were specifically by

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<v Speaker 2>not treating them waiting to see how they died, including

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<v Speaker 2>from complications of syphilis like you said, that included organ

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<v Speaker 2>failure throughout the body.

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<v Speaker 3>Yeah, And they ended up getting three hundred and ninety

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<v Speaker 3>nine men that were infected and then two hundred and

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<v Speaker 3>one that served as a control. And part of the

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<v Speaker 3>recruitment involved a Tuskegee Institute nurse named Eunice Rivers, who

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<v Speaker 3>ended up being a very vilified person because she was

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<v Speaker 3>a black woman who helped recruit these guys. There was

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<v Speaker 3>advertisements by word of mouth and churches and stuff like that,

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<v Speaker 3>and she was co authored on two of the thirteen papers.

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<v Speaker 3>And you know, of course was vilified for this for

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<v Speaker 3>you know, doing this to men from her own race.

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<v Speaker 3>But it seems like she knew what was going on,

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<v Speaker 3>but she really believed what she was being told by

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<v Speaker 3>the Public Health Service that black men it progressed differently

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<v Speaker 3>in them than in white men. And that's sort of

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<v Speaker 3>the basis of what they were trying to root out.

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<v Speaker 2>I saw that she also reasoned it that at least

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<v Speaker 2>these sharecroppers were getting treatment that they otherwise couldn't have afforded,

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<v Speaker 2>which was no treatment exactly. And hot meals too, like

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<v Speaker 2>that was I mean, this is it started during the depression.

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<v Speaker 2>Hot meals were such an incentive that people would submit

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<v Speaker 2>to medical experiments for them. So that was a like

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<v Speaker 2>it's easy now to look to overlook how important that was,

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<v Speaker 2>but that was a big, a big deal sweetener for them.

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<v Speaker 3>Yeah, and penicillin was something that they had been you know,

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<v Speaker 3>they'd been searching for something like penicillin for a long time,

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<v Speaker 3>especially in Germany. They were looking for they called it

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<v Speaker 3>a magic bullet that would, you know, kill the micro organism,

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<v Speaker 3>kill the bacteria without harming the cells that it was infecting.

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<v Speaker 3>And from nineteen ten on they had some stuff that

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<v Speaker 3>kind of worked, something called oh boy, here we go

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<v Speaker 3>ares phenamine? Yeah, do you or spinamine?

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<v Speaker 2>That's what I was going to go with nice coorts.

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<v Speaker 3>But in nineteen forty a Scottish position named Alexander Fleming

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<v Speaker 3>came along and had proven basically in nineteen twenty eight

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<v Speaker 3>that penicillin worked, and in nineteen forty was when it

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<v Speaker 3>was finally published in the Lancet. Is like, hey, this

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<v Speaker 3>is sort of this miracle magical that we were looking for,

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<v Speaker 3>and you know, nineteen forty is kind of squarely in

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<v Speaker 3>the middle of this study. Yet they didn't use penicillin

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<v Speaker 3>still to heal these guys.

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<v Speaker 2>No, I mean like the fact that a treatment, because

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<v Speaker 2>before that treatment was really bad for you. They would

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<v Speaker 2>like people have been using mercury to treat it since

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<v Speaker 2>about fifteen hundred and then that arsphenamine was a type

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<v Speaker 2>of arsenic I think you said so, like it might

0:12:41.200 --> 0:12:44.600
<v Speaker 2>not have worked, It took a year, it was very expensive,

0:12:44.640 --> 0:12:47.160
<v Speaker 2>and it was not a pleasant thing. When the penicillin

0:12:47.200 --> 0:12:49.760
<v Speaker 2>came along, you could get one injection of high dose

0:12:49.840 --> 0:12:53.480
<v Speaker 2>penicillin and it could cure syphilis in eight days. It

0:12:53.480 --> 0:12:57.560
<v Speaker 2>could even cure late stage latency syphilis that was already

0:12:57.559 --> 0:13:00.520
<v Speaker 2>attacking your organs. It could at least cure the it

0:13:00.520 --> 0:13:03.360
<v Speaker 2>wouldn't reverse the organ damage. So the fact that they

0:13:03.559 --> 0:13:06.760
<v Speaker 2>knew that this existed, I read the Public Health Service

0:13:07.000 --> 0:13:11.480
<v Speaker 2>was instrumental in developing penicillin as a treatment for syphilis.

0:13:11.679 --> 0:13:14.040
<v Speaker 2>So it's not like the Public Health Service hadn't heard

0:13:14.440 --> 0:13:18.800
<v Speaker 2>that that penicillin worked. That is one of the more

0:13:19.440 --> 0:13:23.760
<v Speaker 2>damning points, Like there's no defense that they could offer

0:13:23.880 --> 0:13:28.240
<v Speaker 2>that would justify withholding penicillin since they knew it worked,

0:13:28.240 --> 0:13:31.000
<v Speaker 2>and the study went on for what thirty one more

0:13:31.080 --> 0:13:31.800
<v Speaker 2>years after that?

0:13:32.440 --> 0:13:35.000
<v Speaker 3>Yeah, I mean, I don't think anyone ever contended that

0:13:35.880 --> 0:13:37.800
<v Speaker 3>it was on the table like, hey, we have a cure,

0:13:37.840 --> 0:13:39.600
<v Speaker 3>now it's going to stop, because they that's not what

0:13:39.600 --> 0:13:40.719
<v Speaker 3>they were after to begin with.

0:13:40.920 --> 0:13:43.720
<v Speaker 2>No, And in fact, there were quotes from people later

0:13:43.760 --> 0:13:46.440
<v Speaker 2>on who were involved and tried to defend it that

0:13:46.600 --> 0:13:49.160
<v Speaker 2>was basically like, yeah, we had to we had to

0:13:49.559 --> 0:13:52.920
<v Speaker 2>actively make sure that these guys didn't get penicillin from

0:13:52.960 --> 0:13:56.160
<v Speaker 2>other doctors who didn't know about the study for things

0:13:56.200 --> 0:14:01.080
<v Speaker 2>like colds or whatever, because they would accidentally cure the syphilis.

0:14:01.120 --> 0:14:03.679
<v Speaker 2>That's the links that they went to, like the penicillin

0:14:03.800 --> 0:14:06.840
<v Speaker 2>was an enemy to this study essentially, is how they

0:14:06.840 --> 0:14:07.400
<v Speaker 2>thought of it.

0:14:07.720 --> 0:14:10.280
<v Speaker 3>Well, one more link that they went to before we

0:14:10.280 --> 0:14:13.600
<v Speaker 3>take a break was when World War II rolls around,

0:14:14.600 --> 0:14:18.679
<v Speaker 3>they purposefully made sure that these study subjects, these men

0:14:18.760 --> 0:14:22.480
<v Speaker 3>were exempted from the draft. Because when you go through

0:14:22.520 --> 0:14:25.920
<v Speaker 3>the draft process, you get tested for STDs and treated

0:14:25.920 --> 0:14:29.160
<v Speaker 3>for STDs, and so they're like, no, no, no, that'll ruin

0:14:29.200 --> 0:14:31.600
<v Speaker 3>our study. We got to make sure these guys don't

0:14:31.600 --> 0:14:35.160
<v Speaker 3>get drafted. So the takeaway from that is is these

0:14:35.240 --> 0:14:38.080
<v Speaker 3>men probably would have been better off like being drafted

0:14:38.120 --> 0:14:42.320
<v Speaker 3>and potentially even like storming the beach at Normandy than

0:14:42.440 --> 0:14:45.840
<v Speaker 3>being at home in Alabama being quote unquote treated by doctors.

0:14:45.960 --> 0:14:48.480
<v Speaker 2>That's a good point. And the way that they did

0:14:48.520 --> 0:14:50.640
<v Speaker 2>it too kind of shows just how complicit a lot

0:14:50.640 --> 0:14:52.320
<v Speaker 2>of people in the area where it's not that the

0:14:52.360 --> 0:14:55.760
<v Speaker 2>public Health service didn't pull some strings to make this happen.

0:14:56.040 --> 0:14:59.400
<v Speaker 2>They went to the director of public health for Macon

0:14:59.520 --> 0:15:03.040
<v Speaker 2>County and said, hey, you're friends with the guy running

0:15:03.080 --> 0:15:06.120
<v Speaker 2>the Selective Service board. Why don't you, you know, make

0:15:06.160 --> 0:15:08.440
<v Speaker 2>sure that this works. And he did. He pulled the

0:15:08.520 --> 0:15:11.680
<v Speaker 2>right strings and and he made it happen. But so

0:15:12.280 --> 0:15:14.480
<v Speaker 2>this was a there were a lot of people who

0:15:14.960 --> 0:15:18.920
<v Speaker 2>came together to make this happen and to prevent these

0:15:18.960 --> 0:15:21.880
<v Speaker 2>men from getting their syphilis treated one way or another.

0:15:22.640 --> 0:15:24.760
<v Speaker 3>All right, let's take that break and we'll be right

0:15:24.800 --> 0:15:25.480
<v Speaker 3>back right after this.

0:15:55.160 --> 0:15:58.280
<v Speaker 2>Okay, we're back, Chuck and we should probably talk about

0:15:58.280 --> 0:15:59.360
<v Speaker 2>how this study began.

0:16:00.960 --> 0:16:06.840
<v Speaker 3>Yeah, it was launched by the director of phs's Venereal

0:16:06.880 --> 0:16:10.880
<v Speaker 3>Disease Division, someone named Talia Faroh Clark, and it was

0:16:10.880 --> 0:16:15.640
<v Speaker 3>a two arms study again, a control group and an

0:16:15.640 --> 0:16:20.920
<v Speaker 3>infected group. And I believe Clark did not suggest giving placebos,

0:16:20.960 --> 0:16:24.840
<v Speaker 3>even though that happened. But he also didn't say, Hey,

0:16:25.120 --> 0:16:27.280
<v Speaker 3>you know, we're trying to study the difference between how

0:16:27.320 --> 0:16:29.480
<v Speaker 3>it progresses in black men and white men. Let's bring

0:16:29.480 --> 0:16:31.920
<v Speaker 3>in some white men. They strictly focused on black men.

0:16:32.160 --> 0:16:34.760
<v Speaker 2>Yeah, there was actually a reason for that. There was

0:16:34.800 --> 0:16:39.200
<v Speaker 2>a study that was very similar that was conducted in Oslo, Norway,

0:16:39.520 --> 0:16:42.200
<v Speaker 2>from eighteen ninety one to nineteen ten, and the results

0:16:42.240 --> 0:16:44.800
<v Speaker 2>were published in nineteen twenty nine that did the same

0:16:44.880 --> 0:16:48.320
<v Speaker 2>thing but to all white men. So essentially they used

0:16:48.360 --> 0:16:52.160
<v Speaker 2>that data from the Oslo study as a comparison, or

0:16:52.200 --> 0:16:58.240
<v Speaker 2>they planned to. I guess, yeah, sure right, so you know,

0:16:58.400 --> 0:16:59.400
<v Speaker 2>it's all good.

0:17:01.160 --> 0:17:04.720
<v Speaker 3>Tuskegee itself was chosen again I mentioned because of its

0:17:04.760 --> 0:17:07.920
<v Speaker 3>proximity to where they were, you know, drawing from for

0:17:08.040 --> 0:17:11.520
<v Speaker 3>Macon County, but also because of the government links with

0:17:11.560 --> 0:17:12.800
<v Speaker 3>the Tuskegee Institute.

0:17:13.560 --> 0:17:14.000
<v Speaker 2>Booker t.

0:17:14.160 --> 0:17:20.040
<v Speaker 3>Washington had come along and really shaped a critical educational

0:17:20.080 --> 0:17:23.480
<v Speaker 3>institution in the United States. They were serving needy black

0:17:23.480 --> 0:17:26.800
<v Speaker 3>people of Alabama and it's you know, that's another one

0:17:26.840 --> 0:17:29.360
<v Speaker 3>of the just big shames is that it puts such

0:17:29.359 --> 0:17:31.480
<v Speaker 3>a black eye on what this you know, kind of

0:17:31.480 --> 0:17:32.320
<v Speaker 3>great institution.

0:17:32.680 --> 0:17:35.119
<v Speaker 2>Yeah, I mean, this is the hospital where people would go.

0:17:35.200 --> 0:17:39.400
<v Speaker 2>This is I think where nurse Eunice Rivers worked too.

0:17:39.640 --> 0:17:43.080
<v Speaker 2>So it was a huge betrayal of that community. And

0:17:43.760 --> 0:17:46.280
<v Speaker 2>I mean, even though it's developed by leaps and leaps

0:17:46.320 --> 0:17:49.000
<v Speaker 2>and bounds and it's now Tuskegee University, like you said,

0:17:49.000 --> 0:17:51.399
<v Speaker 2>it was a black eye. But even worse than that.

0:17:51.680 --> 0:17:55.880
<v Speaker 2>Everybody calls this, including us, the Tuskegee Experiment. They don't

0:17:55.880 --> 0:17:58.840
<v Speaker 2>call it the Public Health Service Syphilis experiment or the

0:17:58.920 --> 0:18:02.440
<v Speaker 2>US government syphlists experiment. So it's an ongoing black guy

0:18:02.880 --> 0:18:04.960
<v Speaker 2>on Tuskegee University too.

0:18:05.720 --> 0:18:06.040
<v Speaker 1>Yeah.

0:18:06.080 --> 0:18:09.080
<v Speaker 3>For sure, they were deceived from the beginning, you know,

0:18:09.160 --> 0:18:11.320
<v Speaker 3>like we said at Bears repeating that they thought they

0:18:11.320 --> 0:18:14.479
<v Speaker 3>were signing up for treatment. In fact, they called it

0:18:14.680 --> 0:18:19.159
<v Speaker 3>a quote special free treatment end quote. And you know,

0:18:19.240 --> 0:18:21.639
<v Speaker 3>so these guys lined up for it. You know, they

0:18:22.000 --> 0:18:26.080
<v Speaker 3>thought they had bad blood and they got placebos in

0:18:26.160 --> 0:18:29.720
<v Speaker 3>the name of aspirin, mainly like five thousand pink aspirin

0:18:29.760 --> 0:18:33.280
<v Speaker 3>tablets were shipped in nineteen thirty four. Also, these these

0:18:33.320 --> 0:18:37.000
<v Speaker 3>tonics that then tinctures they would mix up that you know,

0:18:37.119 --> 0:18:39.720
<v Speaker 3>they said, was gonna get their bad blood treated.

0:18:40.080 --> 0:18:45.800
<v Speaker 2>Yes, so you said that tel Afario Clark or Talafaro Clark,

0:18:46.400 --> 0:18:49.080
<v Speaker 2>and it conceived of this whole study. I think he

0:18:49.160 --> 0:18:52.639
<v Speaker 2>stepped aside pretty early on, and starting in nineteen thirty three.

0:18:52.760 --> 0:18:57.120
<v Speaker 2>The next year a guy named Raymond Vanderler picked up

0:18:57.200 --> 0:19:00.600
<v Speaker 2>and took over and actually expanded it and now said, Okay,

0:19:00.600 --> 0:19:03.600
<v Speaker 2>we're looking for neurological effects. Let's start giving these guys

0:19:03.760 --> 0:19:07.880
<v Speaker 2>spinal taps that are really really dangerous, can be really painful,

0:19:07.960 --> 0:19:13.000
<v Speaker 2>and can give you horrible headaches afterward too, So let's

0:19:13.040 --> 0:19:16.520
<v Speaker 2>just throw that in for you know, just for kicks.

0:19:17.080 --> 0:19:20.040
<v Speaker 3>Yeah. And also in those papers that were released and

0:19:20.080 --> 0:19:24.720
<v Speaker 3>collected recently, that same person there was a letter where

0:19:24.720 --> 0:19:27.920
<v Speaker 3>he was talking about all the complaints from oh, yes,

0:19:28.000 --> 0:19:30.760
<v Speaker 3>so the patients getting spinal taps and how awful it was,

0:19:30.800 --> 0:19:34.080
<v Speaker 3>and he was like I'm paraphrasing, but basically like now

0:19:34.080 --> 0:19:35.119
<v Speaker 3>I'm the one with the headache.

0:19:35.200 --> 0:19:40.080
<v Speaker 2>Yeah, yeah, he said that. So, yes, this is kind

0:19:40.160 --> 0:19:45.120
<v Speaker 2>of like the patronizing, at the very least patronizing tone

0:19:45.160 --> 0:19:48.760
<v Speaker 2>that the people running this experiment had toward everybody.

0:19:49.160 --> 0:19:49.520
<v Speaker 1>Yeah.

0:19:49.600 --> 0:19:53.919
<v Speaker 2>So we said also that penicillin came around in the

0:19:54.040 --> 0:19:57.040
<v Speaker 2>late nineteen forties or nineteen forties at some point, and

0:19:57.080 --> 0:19:58.960
<v Speaker 2>that was one thing that it was like, Okay, you

0:19:58.960 --> 0:20:01.760
<v Speaker 2>guys should have stopped everything and giving these guys penicillin.

0:20:02.560 --> 0:20:05.720
<v Speaker 2>Another thing happened in the nineteen forties that essentially should

0:20:05.720 --> 0:20:07.919
<v Speaker 2>have put an end to this, and that was the

0:20:08.000 --> 0:20:11.600
<v Speaker 2>Nuremberg Trials after World War Two, where, among other people,

0:20:11.640 --> 0:20:14.240
<v Speaker 2>a bunch of Nazi doctors, I think twenty three Nazi

0:20:14.280 --> 0:20:19.880
<v Speaker 2>doctors were put on trial for war crimes for running horrible,

0:20:20.080 --> 0:20:24.800
<v Speaker 2>horrific medical experiments on people during World War Two, and

0:20:25.000 --> 0:20:27.879
<v Speaker 2>I think seven of them were sentenced to death. And

0:20:27.960 --> 0:20:32.080
<v Speaker 2>yet despite that, the people running this syphilist study were

0:20:32.200 --> 0:20:35.600
<v Speaker 2>just like, gosh, that, I mean, Nazis suck good thing.

0:20:35.680 --> 0:20:38.439
<v Speaker 2>We're not Nazis. We're just going to continue on with

0:20:38.480 --> 0:20:39.280
<v Speaker 2>this experiment.

0:20:39.840 --> 0:20:43.439
<v Speaker 3>Yeah. In nineteen fifty seven, this is in the twenty

0:20:43.440 --> 0:20:48.800
<v Speaker 3>fifth year, the Surgeon General awarded certificates to these patients like,

0:20:48.960 --> 0:20:53.000
<v Speaker 3>you know, congratulations on all your work here in this

0:20:53.080 --> 0:20:55.600
<v Speaker 3>and participating in this study. And then later on in

0:20:55.640 --> 0:20:58.800
<v Speaker 3>nineteen ninety three, one of the researchers, John Charles Cutler,

0:20:58.800 --> 0:21:00.480
<v Speaker 3>and we're going to talk about him a bit later

0:21:00.520 --> 0:21:02.560
<v Speaker 3>as well, there was a quote where he said it

0:21:02.560 --> 0:21:04.760
<v Speaker 3>would be undesirable to go ahead and use large amounts

0:21:04.760 --> 0:21:07.600
<v Speaker 3>of penicillin to treat the disease, because you'd interfere with

0:21:07.600 --> 0:21:11.080
<v Speaker 3>the study. So you know, they were on record like

0:21:12.440 --> 0:21:16.360
<v Speaker 3>time and time again, through countless different changes over these

0:21:16.359 --> 0:21:21.399
<v Speaker 3>forty years at Tuskegee, these doctors and nurses, the people

0:21:21.400 --> 0:21:23.800
<v Speaker 3>in the public health system, Like it wasn't just like

0:21:23.840 --> 0:21:26.720
<v Speaker 3>one like mad scientist running the show all these years.

0:21:26.720 --> 0:21:29.439
<v Speaker 3>It was just new people kind of changing hands and

0:21:29.520 --> 0:21:32.359
<v Speaker 3>leading this charge like year after a year for forty years.

0:21:32.760 --> 0:21:34.639
<v Speaker 2>Yeah. And one of the things that they clung to,

0:21:34.800 --> 0:21:39.000
<v Speaker 2>both internally and externally is this idea that became outdated

0:21:39.040 --> 0:21:41.720
<v Speaker 2>when penicillin came along, but they still kept going with

0:21:42.080 --> 0:21:49.680
<v Speaker 2>this excuse was that treating late latency, late stage syphilis

0:21:50.000 --> 0:21:53.520
<v Speaker 2>could actually cause more harm than good. You could get

0:21:53.560 --> 0:21:56.639
<v Speaker 2>this syphilis stirred up again and that could cause that

0:21:56.840 --> 0:22:00.960
<v Speaker 2>organ failure, so you're better off not treat And by

0:22:01.000 --> 0:22:04.879
<v Speaker 2>the time penicillin came along, by the time Nuremberg came along,

0:22:05.240 --> 0:22:08.280
<v Speaker 2>all of these patients would have been in late latency

0:22:08.680 --> 0:22:12.240
<v Speaker 2>syphilis were they not already. So that was the thing, Like,

0:22:12.320 --> 0:22:14.600
<v Speaker 2>that was what they would push back on, even though

0:22:14.600 --> 0:22:17.600
<v Speaker 2>it was not true anymore. I like, once penicillin came along,

0:22:17.640 --> 0:22:20.840
<v Speaker 2>it was not dangerous at all, and it really really worked,

0:22:21.000 --> 0:22:23.439
<v Speaker 2>and yet they still use that as an excuse whenever

0:22:23.520 --> 0:22:27.360
<v Speaker 2>it was challenged. It was very rarely challenged, but it

0:22:27.480 --> 0:22:29.520
<v Speaker 2>was challenged by some people, as we'll see.

0:22:30.080 --> 0:22:33.560
<v Speaker 3>Yeah, there was the first person brave enough to even

0:22:33.600 --> 0:22:38.240
<v Speaker 3>say anything was named Count Gibson. He was a Richmond

0:22:38.280 --> 0:22:41.960
<v Speaker 3>physician heard about the study through a lecture in the

0:22:42.040 --> 0:22:48.000
<v Speaker 3>nineteen fifties from Sydney Olanski and wrote a letter saying,

0:22:48.040 --> 0:22:50.639
<v Speaker 3>I'm gravely concerned about the ethics of the entire program.

0:22:51.800 --> 0:22:57.159
<v Speaker 3>He continued to sort of observe the study after penicillin

0:22:57.359 --> 0:23:02.760
<v Speaker 3>came along, and he, you know, Alonski basically came back

0:23:02.760 --> 0:23:04.960
<v Speaker 3>and said, I think our work is helping out these

0:23:05.000 --> 0:23:08.080
<v Speaker 3>participants overall, and just keep quiet about it.

0:23:08.280 --> 0:23:11.239
<v Speaker 2>Yeah, just all of the thinnest excuses that that was

0:23:11.320 --> 0:23:14.720
<v Speaker 2>what they would defend themselves with. I guess Count Gibson

0:23:14.800 --> 0:23:17.760
<v Speaker 2>did end up keeping quiet because the medical college that

0:23:17.840 --> 0:23:20.280
<v Speaker 2>he worked at in Virginia essentially said you need to

0:23:20.320 --> 0:23:22.840
<v Speaker 2>be quiet or else, I would guess, lose your job.

0:23:23.800 --> 0:23:27.320
<v Speaker 2>So that was in the fifties, right, Yeah. Next up

0:23:27.400 --> 0:23:29.240
<v Speaker 2>was a guy named Bill Jenkins, who was one of

0:23:29.240 --> 0:23:33.360
<v Speaker 2>the CDC's first African American professional workers. He was a statistician.

0:23:34.240 --> 0:23:39.360
<v Speaker 2>His widow also called him a essentially a radical that

0:23:39.600 --> 0:23:42.480
<v Speaker 2>was very involved in the civil rights movement from a

0:23:42.560 --> 0:23:45.639
<v Speaker 2>very early time. And he learned about this and the

0:23:45.680 --> 0:23:49.720
<v Speaker 2>bald face racism that was just inherent, and it really

0:23:49.840 --> 0:23:54.119
<v Speaker 2>obviously stuck in his craw and he tried very hard

0:23:54.160 --> 0:23:56.400
<v Speaker 2>to get the New York Times in the Washington Post

0:23:56.440 --> 0:23:59.040
<v Speaker 2>to cover it, and they didn't. He later said, we

0:23:59.080 --> 0:24:01.720
<v Speaker 2>probably should have a press release and done it differently.

0:24:01.760 --> 0:24:03.920
<v Speaker 2>They just sent all this stuff in the New York

0:24:03.920 --> 0:24:06.399
<v Speaker 2>Times and WAPO. It's not clear whether they would have

0:24:06.400 --> 0:24:09.160
<v Speaker 2>published anything on it anyway, but he gave it a try,

0:24:09.200 --> 0:24:12.280
<v Speaker 2>and he eventually was like, I can't do anything else.

0:24:13.080 --> 0:24:15.959
<v Speaker 2>I think he also tried internally too to get it

0:24:16.000 --> 0:24:17.639
<v Speaker 2>to stop, and it just didn't happen.

0:24:18.320 --> 0:24:20.960
<v Speaker 3>Yeah, so that was sixty and sixty four. There was

0:24:21.000 --> 0:24:26.560
<v Speaker 3>a Detroit cardiologist named Irwin J. Shatz, and he was like,

0:24:26.640 --> 0:24:29.760
<v Speaker 3>I can't believe what's going on, Like I read this study,

0:24:29.960 --> 0:24:31.719
<v Speaker 3>because again, you know, they were putting out these studies

0:24:31.720 --> 0:24:34.919
<v Speaker 3>in the medical community was reading them and some people

0:24:34.920 --> 0:24:37.120
<v Speaker 3>were like, wait a minute, what is going on down there?

0:24:37.640 --> 0:24:40.120
<v Speaker 3>And he said, I suggest that you reevaluate your moral

0:24:40.200 --> 0:24:42.560
<v Speaker 3>judgments on this. And there was a co author named

0:24:42.560 --> 0:24:46.280
<v Speaker 3>Anne R. Yobs who said it was a co author

0:24:46.280 --> 0:24:48.760
<v Speaker 3>of the Syphilist study that said it was the first

0:24:48.840 --> 0:24:51.199
<v Speaker 3>letter they got like that and that she planned to

0:24:51.200 --> 0:24:51.720
<v Speaker 3>ignore it.

0:24:51.960 --> 0:24:55.000
<v Speaker 2>Yeah. So yeah, they were also pretty arrogant in this

0:24:55.040 --> 0:24:58.399
<v Speaker 2>stuff too. Well. They eventually ran head to head with

0:24:58.440 --> 0:25:01.879
<v Speaker 2>a guy named Peter Buxton who was working for the

0:25:01.920 --> 0:25:05.159
<v Speaker 2>Public Health Service. He was a venereal disease investigator in

0:25:05.200 --> 0:25:08.240
<v Speaker 2>the Tenderloin in San Francisco. I think he was twenty

0:25:08.280 --> 0:25:11.800
<v Speaker 2>eight in the late sixties or mid sixties, sorry, nineteen

0:25:11.880 --> 0:25:16.439
<v Speaker 2>sixty five, and he, I guess heard a colleague talking

0:25:16.480 --> 0:25:20.240
<v Speaker 2>about this study and said, which a what? And he

0:25:20.320 --> 0:25:23.560
<v Speaker 2>started looking into the reports. He got the Public Health

0:25:23.560 --> 0:25:26.880
<v Speaker 2>Service people running this the Venereal Disease Division to send

0:25:26.920 --> 0:25:29.119
<v Speaker 2>him all of their reports, and he read through them

0:25:29.160 --> 0:25:31.679
<v Speaker 2>and he could not believe what he was reading. And

0:25:31.720 --> 0:25:34.439
<v Speaker 2>he went directly to William J. Brown, who was the

0:25:34.480 --> 0:25:38.440
<v Speaker 2>head of the Venereal Disease Division at the time, and

0:25:38.480 --> 0:25:41.000
<v Speaker 2>he said, like, what are you doing. You stop this.

0:25:41.000 --> 0:25:44.119
<v Speaker 2>This is a horribly unethical study. I can't believe you

0:25:44.160 --> 0:25:47.359
<v Speaker 2>guys are doing this. And William J. Brown said, well,

0:25:47.480 --> 0:25:50.520
<v Speaker 2>it's all good. These guys are getting medical care that

0:25:50.520 --> 0:25:52.560
<v Speaker 2>they otherwise wouldn't. And by the way, did we say

0:25:52.800 --> 0:25:56.919
<v Speaker 2>it's dangerous to treat people with late stage syphilis? And

0:25:56.960 --> 0:25:59.360
<v Speaker 2>I'm sure Peter Buckson said no, it's not. William Brown

0:25:59.400 --> 0:26:00.959
<v Speaker 2>said yes it is. And it just went like that

0:26:01.000 --> 0:26:01.480
<v Speaker 2>for a while.

0:26:01.880 --> 0:26:04.720
<v Speaker 3>Well, they also responded that, hey, this is political dynamite,

0:26:05.200 --> 0:26:07.560
<v Speaker 3>and a nineteen sixty nine review said it was a

0:26:07.600 --> 0:26:11.600
<v Speaker 3>hot potato. So like they knew, you know, like full

0:26:11.640 --> 0:26:15.920
<v Speaker 3>well at this point that it was morally and ethically

0:26:15.920 --> 0:26:18.360
<v Speaker 3>wrong and racist, and that like if this got out,

0:26:18.680 --> 0:26:21.080
<v Speaker 3>like this has started when they kind of internally started

0:26:21.200 --> 0:26:23.360
<v Speaker 3>talking about, hey, if this got out, this would look

0:26:23.359 --> 0:26:25.080
<v Speaker 3>really bad. Before this, I don't even think they even

0:26:25.080 --> 0:26:28.320
<v Speaker 3>thought about it but Buckston would end up being a whistleblower.

0:26:28.400 --> 0:26:32.360
<v Speaker 3>He would send his files to the AP, and an

0:26:32.400 --> 0:26:35.680
<v Speaker 3>AP reporter named Gene Heller wrote a article that ended

0:26:35.720 --> 0:26:38.520
<v Speaker 3>up being published in the New York Times, And that

0:26:38.640 --> 0:26:41.640
<v Speaker 3>was in nineteen seventy two, seven years after Buxton first

0:26:41.680 --> 0:26:44.520
<v Speaker 3>started looking into it. And that's what finally blew it

0:26:44.560 --> 0:26:45.119
<v Speaker 3>wide open.

0:26:45.280 --> 0:26:48.520
<v Speaker 2>Yeah, and I saw that despite being aware that this

0:26:48.600 --> 0:26:51.120
<v Speaker 2>could look bad for the public Health Service, I think

0:26:51.160 --> 0:26:55.640
<v Speaker 2>now the CDC, the people involved in the study were

0:26:55.760 --> 0:26:59.199
<v Speaker 2>really surprised and taken aback by the public outrage that

0:26:59.359 --> 0:27:03.119
<v Speaker 2>erupted in immediately from this article. I mean, because it

0:27:03.200 --> 0:27:05.919
<v Speaker 2>was AP. That meant all of the newspapers across the

0:27:05.920 --> 0:27:09.000
<v Speaker 2>country carried it, and a lot of them put it

0:27:09.040 --> 0:27:11.400
<v Speaker 2>on their front page. So everyone all of a sudden

0:27:11.480 --> 0:27:14.840
<v Speaker 2>knew about this horribly unethical, racist study. And it came

0:27:14.880 --> 0:27:16.920
<v Speaker 2>to art screeching, halt.

0:27:17.600 --> 0:27:20.480
<v Speaker 3>Boy, that sounds like a great time for a break. Yes,

0:27:21.080 --> 0:27:23.719
<v Speaker 3>you can't throw on the brakes without taking a break,

0:27:24.560 --> 0:27:25.280
<v Speaker 3>that's our motto.

0:27:25.840 --> 0:27:52.360
<v Speaker 1>Yep, we'll be right back, all right.

0:27:52.480 --> 0:27:57.160
<v Speaker 3>So Josh threw on the brakes just like the doctors

0:27:57.480 --> 0:28:01.439
<v Speaker 3>performing the Tuskegee syphilis experiments, and teen seventy two, it

0:28:01.480 --> 0:28:06.080
<v Speaker 3>was a big political scandal Senator Edward M. Kennedy of

0:28:06.119 --> 0:28:11.760
<v Speaker 3>Massachusetts called congressional hearings. Buxton testified there, of course, And

0:28:11.800 --> 0:28:14.560
<v Speaker 3>in nineteen seventy two, kind of late nineteen seventy two,

0:28:14.560 --> 0:28:18.560
<v Speaker 3>an ad hoc advisory panel said, you got to stop

0:28:18.560 --> 0:28:22.120
<v Speaker 3>this study. It's pretty clear it's ethically unjustified.

0:28:22.200 --> 0:28:22.680
<v Speaker 1>Was the quote.

0:28:22.720 --> 0:28:26.600
<v Speaker 3>And it results in quote, disproportionately meager compared with known

0:28:26.720 --> 0:28:29.240
<v Speaker 3>risks to the human subjects involved.

0:28:29.760 --> 0:28:32.199
<v Speaker 2>Yeah, and I mean when they started to look into it,

0:28:32.240 --> 0:28:35.040
<v Speaker 2>they were like, this study is not even particularly scientific.

0:28:35.200 --> 0:28:37.359
<v Speaker 2>And one of the big things I saw was in

0:28:37.400 --> 0:28:41.480
<v Speaker 2>an episode of a podcast called Distillation by the Science

0:28:41.560 --> 0:28:44.880
<v Speaker 2>History Museum, and they were basically saying, some of these

0:28:44.920 --> 0:28:49.959
<v Speaker 2>guys did accidentally get treated with penicillin. Other guys in

0:28:50.080 --> 0:28:54.880
<v Speaker 2>the control group accidentally contracted syphilis. And so they would

0:28:54.880 --> 0:28:56.360
<v Speaker 2>just take one and be like, Okay, you're in the

0:28:56.360 --> 0:28:59.120
<v Speaker 2>control group now because you got you got treated accidentally,

0:28:59.320 --> 0:29:02.800
<v Speaker 2>you caught accidentally, you're in this untreated group. They would

0:29:02.800 --> 0:29:05.680
<v Speaker 2>just shuffle people around. It was not a very well

0:29:05.760 --> 0:29:09.640
<v Speaker 2>run study, considering how much time and effort was put

0:29:09.680 --> 0:29:10.200
<v Speaker 2>into it.

0:29:10.840 --> 0:29:13.480
<v Speaker 3>Yeah, I mean they never got any like great data

0:29:13.720 --> 0:29:16.960
<v Speaker 3>in return for this forty years of you know, I

0:29:17.000 --> 0:29:18.440
<v Speaker 3>mean torture basically.

0:29:18.480 --> 0:29:21.000
<v Speaker 2>You know, the data I saw that they did get

0:29:21.200 --> 0:29:23.680
<v Speaker 2>was possibly as many as one hundred and twenty eight

0:29:24.680 --> 0:29:31.000
<v Speaker 2>of these men died from untreated syphilis. Yeah, like that's

0:29:31.080 --> 0:29:34.320
<v Speaker 2>the bottom line here. They would not have otherwise died

0:29:34.440 --> 0:29:38.840
<v Speaker 2>because penicillin is so effective. They died specifically because they

0:29:38.880 --> 0:29:43.520
<v Speaker 2>were participants in this study. And that is that. There's

0:29:43.560 --> 0:29:44.560
<v Speaker 2>no other way to put it.

0:29:45.160 --> 0:29:48.440
<v Speaker 3>Yeah, I mean, if you remember in nineteen ninety seven,

0:29:49.040 --> 0:29:52.200
<v Speaker 3>I remember when this happened, President Clinton invited at the time,

0:29:52.240 --> 0:29:55.480
<v Speaker 3>there were eight living survivors of the experiments to the

0:29:55.520 --> 0:29:58.880
<v Speaker 3>White House to offer, you know, the formal apology and

0:29:58.920 --> 0:30:01.520
<v Speaker 3>said it was like a clearly racist, shameful thing that

0:30:01.560 --> 0:30:06.680
<v Speaker 3>you endured. And this was after a legal settlement settlement.

0:30:06.680 --> 0:30:09.040
<v Speaker 3>There was a ten million dollar legal settlement and benefit

0:30:09.120 --> 0:30:14.720
<v Speaker 3>program at the time. I think when it ended, seventy

0:30:14.800 --> 0:30:18.520
<v Speaker 3>men who had not received treatment were still alive, and

0:30:18.600 --> 0:30:21.960
<v Speaker 3>the survivors got thirty five thousand dollars, their heirs got

0:30:21.960 --> 0:30:26.520
<v Speaker 3>fifteen thousand dollars from a class action lawsuit. And then

0:30:26.560 --> 0:30:29.760
<v Speaker 3>they started in nineteen seventy three to Tuskegee Health Benefit

0:30:29.840 --> 0:30:34.160
<v Speaker 3>Program basically like, hey, we're going to provide medical care

0:30:34.200 --> 0:30:38.560
<v Speaker 3>for your survivors, for your families, for widows, for your children,

0:30:38.720 --> 0:30:40.960
<v Speaker 3>basically starting in nineteen seventy five.

0:30:41.200 --> 0:30:45.880
<v Speaker 2>Yeah, because that's something that is forgotten. A lot of times,

0:30:45.920 --> 0:30:49.040
<v Speaker 2>these men had families, they had wives, They sometimes had

0:30:49.080 --> 0:30:51.920
<v Speaker 2>wives that they were still having babies with. So like

0:30:52.000 --> 0:30:57.080
<v Speaker 2>their spouses and their newborn children were at tremendous risk

0:30:57.240 --> 0:31:00.480
<v Speaker 2>of contracting syphilis because they were in this untreated programs.

0:31:00.560 --> 0:31:03.840
<v Speaker 2>So free health care for the life of them, their

0:31:03.880 --> 0:31:08.480
<v Speaker 2>spouses and their children seems like the like step one,

0:31:08.760 --> 0:31:11.000
<v Speaker 2>the most basic thing that you could do, you know.

0:31:11.880 --> 0:31:15.360
<v Speaker 3>Yeah, and you know, the effects of this were devastating,

0:31:15.400 --> 0:31:17.920
<v Speaker 3>certainly to those families and to the men who participated

0:31:17.960 --> 0:31:21.080
<v Speaker 3>and died, and even the ones who didn't. But an

0:31:21.120 --> 0:31:24.440
<v Speaker 3>ongoing effect has been felt, you know, even today and

0:31:24.480 --> 0:31:27.840
<v Speaker 3>since then they've done studies and found data basically that

0:31:29.720 --> 0:31:34.320
<v Speaker 3>all but proves that the Tuskegee experiments had a negative

0:31:34.360 --> 0:31:39.440
<v Speaker 3>effect on African Americans in the United States, not trusting doctors,

0:31:39.600 --> 0:31:42.640
<v Speaker 3>not trusting nurses, not trusting the medical establishment at all,

0:31:43.200 --> 0:31:47.160
<v Speaker 3>and not seeking treatment and having negative health effects because

0:31:47.160 --> 0:31:51.960
<v Speaker 3>of this, and they've basically proven it because it's even

0:31:51.960 --> 0:31:54.400
<v Speaker 3>more localized, Like the closer you get to making county,

0:31:54.920 --> 0:31:58.680
<v Speaker 3>the more the data has proven that people did not

0:31:58.800 --> 0:31:59.640
<v Speaker 3>trust doctors.

0:31:59.760 --> 0:32:04.160
<v Speaker 2>Yeah, and that's another moniker that I'm sure Tuskegee University

0:32:04.240 --> 0:32:06.320
<v Speaker 2>is not happy about. It's called the Tuskegee effect.

0:32:06.960 --> 0:32:07.320
<v Speaker 3>Yeah.

0:32:07.360 --> 0:32:10.120
<v Speaker 2>One of the pieces of datum that I saw that

0:32:10.200 --> 0:32:14.480
<v Speaker 2>really kind of caught my eye was that black men

0:32:14.640 --> 0:32:19.640
<v Speaker 2>in America seeking out professional medical help dropped by twenty

0:32:19.720 --> 0:32:24.800
<v Speaker 2>two percent in the four years following when the news

0:32:24.840 --> 0:32:28.400
<v Speaker 2>of this story broke, So it had a pronounced effect.

0:32:29.000 --> 0:32:31.880
<v Speaker 3>And in nineteen ninety seven, nineteen ninety seven, so this

0:32:31.960 --> 0:32:35.920
<v Speaker 3>is twenty five years after the study was finished, there

0:32:35.960 --> 0:32:38.680
<v Speaker 3>was a study that found that thirty two point one

0:32:38.720 --> 0:32:42.080
<v Speaker 3>percent of black women surveyed in a study agreed that

0:32:42.120 --> 0:32:45.000
<v Speaker 3>scientists were not trustworthy, compared to four point one percent

0:32:45.000 --> 0:32:46.240
<v Speaker 3>of white women at the time.

0:32:46.400 --> 0:32:48.640
<v Speaker 2>Yeah, and there was another thing too, It was the

0:32:48.680 --> 0:32:54.960
<v Speaker 2>Tuskegee effect is widely blamed for making containing the AIDS

0:32:54.960 --> 0:32:57.520
<v Speaker 2>epidemic in the nineteen eighties and nineties in the black

0:32:57.560 --> 0:33:03.120
<v Speaker 2>community so difficult, And a twenty twenty one study found

0:33:03.160 --> 0:33:06.760
<v Speaker 2>that twenty seven point seven percent of the people the

0:33:06.800 --> 0:33:12.240
<v Speaker 2>Black Americans surveyed found that they believed the governments created

0:33:12.400 --> 0:33:17.280
<v Speaker 2>aids to essentially carry out a genocide against Black Americans. Yeah,

0:33:17.360 --> 0:33:20.880
<v Speaker 2>that's the level of distrust that came from Tuskegee. But

0:33:21.960 --> 0:33:25.040
<v Speaker 2>there's a historian who knows all about this, name Susan Reverbie,

0:33:25.120 --> 0:33:28.480
<v Speaker 2>and she was on that Distillation podcast episode and she

0:33:28.640 --> 0:33:32.320
<v Speaker 2>essentially said, that's true. But pinning all of this on

0:33:32.360 --> 0:33:37.520
<v Speaker 2>the Tuskegee experiment ignores all of the structural racism that

0:33:37.600 --> 0:33:38.800
<v Speaker 2>it's still going on.

0:33:39.520 --> 0:33:39.680
<v Speaker 3>Yeah.

0:33:39.720 --> 0:33:42.880
<v Speaker 2>Yeah, that has that it's like current and is keeping

0:33:42.920 --> 0:33:45.480
<v Speaker 2>the whole thing fresh in the minds of Black Americans

0:33:45.480 --> 0:33:48.200
<v Speaker 2>because it didn't just happen once and they lost trust.

0:33:48.520 --> 0:33:52.360
<v Speaker 2>It happens again and again and again every day essentially

0:33:52.400 --> 0:33:55.600
<v Speaker 2>to Black Americans when they seek healthcare in the United States.

0:33:55.960 --> 0:33:58.080
<v Speaker 3>Yeah, Tuskegee just kind of put a bow on it,

0:33:58.120 --> 0:33:58.320
<v Speaker 3>you know.

0:33:58.640 --> 0:34:00.280
<v Speaker 1>Yeah.

0:34:00.400 --> 0:34:04.200
<v Speaker 3>So, of course things changed in the medical community, and

0:34:04.400 --> 0:34:08.120
<v Speaker 3>you know, sort of ethics control after this, after nineteen

0:34:08.400 --> 0:34:12.439
<v Speaker 3>seventy two, Congress and the National Institutes of Health change

0:34:12.520 --> 0:34:17.359
<v Speaker 3>rules of just you know, humans participating in studies and experiments,

0:34:18.480 --> 0:34:23.160
<v Speaker 3>obviously requiring informed consent for stuff like that, peer review

0:34:23.320 --> 0:34:26.600
<v Speaker 3>of not the results, but the studies design, Like, before

0:34:26.640 --> 0:34:29.440
<v Speaker 3>you can even go out and get into this and

0:34:29.520 --> 0:34:32.920
<v Speaker 3>launch a study or an experiment like this, it has

0:34:32.960 --> 0:34:35.640
<v Speaker 3>to be peer reviewed and okayed. And then in nineteen

0:34:35.640 --> 0:34:38.279
<v Speaker 3>seventy four, the National Research Act was signed into law,

0:34:39.000 --> 0:34:42.440
<v Speaker 3>resulting in kind of a laundry list of regulations and

0:34:42.480 --> 0:34:44.200
<v Speaker 3>standards in the wake of Tuskegee.

0:34:44.280 --> 0:34:46.719
<v Speaker 2>What's crazy is this is the seventies and it took

0:34:46.800 --> 0:34:49.480
<v Speaker 2>the news of this experiment for the United States to

0:34:49.520 --> 0:34:56.200
<v Speaker 2>officially adopt informed consent for medical experiments, despite the Nuremberg

0:34:56.280 --> 0:34:59.600
<v Speaker 2>Code that basically said if you're running a medical experiment

0:34:59.640 --> 0:35:01.800
<v Speaker 2>anywhere in the world, your patients need to be fully

0:35:02.080 --> 0:35:06.759
<v Speaker 2>informed and give informed consent in nineteen forty seven. So

0:35:06.840 --> 0:35:08.719
<v Speaker 2>I just found that awful that it took so long

0:35:08.760 --> 0:35:11.120
<v Speaker 2>for the US to formally adopt that.

0:35:11.880 --> 0:35:14.640
<v Speaker 3>Yeah, I mean, I think this wasn't like the norm

0:35:15.239 --> 0:35:19.920
<v Speaker 3>because doctors, you know, most times had ethics when shooing

0:35:19.920 --> 0:35:22.319
<v Speaker 3>the experiments and inform consent was a thing. But yeah,

0:35:22.800 --> 0:35:25.000
<v Speaker 3>to codify it like that and taking that long is

0:35:25.080 --> 0:35:26.480
<v Speaker 3>just you know, outrageous.

0:35:26.880 --> 0:35:30.480
<v Speaker 2>It also, I guess created a subsequent report in nineteen

0:35:30.520 --> 0:35:33.960
<v Speaker 2>seventy nine called the Belmont Report that said, there are

0:35:34.000 --> 0:35:36.000
<v Speaker 2>three things you need to do if you're carrying out

0:35:36.000 --> 0:35:39.600
<v Speaker 2>a medical experiment involving humans. You have to have respect

0:35:39.640 --> 0:35:43.000
<v Speaker 2>for the people involved. You have to show beneficence, which

0:35:43.040 --> 0:35:46.160
<v Speaker 2>is essentially like you need to go beyond the basic

0:35:46.280 --> 0:35:50.080
<v Speaker 2>minimum requirements of making sure these people are protected and

0:35:50.160 --> 0:35:54.879
<v Speaker 2>actually exert some sort of kindness even like go way

0:35:54.920 --> 0:35:58.480
<v Speaker 2>beyond that. And then justice equality and treatment equality and

0:35:58.560 --> 0:36:04.440
<v Speaker 2>including participants equality and distributing the results of the stuff

0:36:04.480 --> 0:36:08.319
<v Speaker 2>and the fruits of these studies. So those things got

0:36:08.400 --> 0:36:11.600
<v Speaker 2>adopted as well, but not until nineteen ninety five, sixteen

0:36:11.680 --> 0:36:12.840
<v Speaker 2>years after the report.

0:36:13.600 --> 0:36:17.759
<v Speaker 3>Yeah. Ninety five was also when President Clinton ordered, you know,

0:36:18.160 --> 0:36:20.879
<v Speaker 3>sort of a slew of presidential committees on bioethics and

0:36:21.200 --> 0:36:25.279
<v Speaker 3>how things were done. So yeah, a long long time

0:36:25.320 --> 0:36:29.759
<v Speaker 3>after it ended, we promised talk of Guatemala because a

0:36:29.880 --> 0:36:33.880
<v Speaker 3>very similar and worse thing happened in Guatemala in nineteen

0:36:34.000 --> 0:36:37.040
<v Speaker 3>forty six, forty seven, and forty eight when the United

0:36:37.040 --> 0:36:42.160
<v Speaker 3>States government funded medical research which did not study untreated

0:36:42.200 --> 0:36:48.560
<v Speaker 3>syphilis in Guatemalans, they deliberately exposed and infected Guatemalan soldiers, prisoners,

0:36:49.320 --> 0:36:53.200
<v Speaker 3>sex workers, mental patients with syphilis. I feel like we've

0:36:53.200 --> 0:36:56.040
<v Speaker 3>talked about this before, it seems at some point, but

0:36:56.320 --> 0:36:59.239
<v Speaker 3>it's horrific how they went about this.

0:36:59.360 --> 0:37:03.640
<v Speaker 2>Yeah, three of these patients died. Only seven hundred of

0:37:03.680 --> 0:37:07.680
<v Speaker 2>them received even some sort of minimal treatment. And the

0:37:07.719 --> 0:37:10.359
<v Speaker 2>guy that I said you could argue is evil who

0:37:10.440 --> 0:37:13.600
<v Speaker 2>was involved in the Tuskegee experiment was the guy who

0:37:13.760 --> 0:37:17.520
<v Speaker 2>ran this, doctor John Charles Cutler. He ran it from

0:37:17.560 --> 0:37:20.279
<v Speaker 2>nineteen forty six to nineteen forty eight. This was not

0:37:20.440 --> 0:37:23.240
<v Speaker 2>the first experiment like this. He also would run stuff

0:37:23.280 --> 0:37:26.920
<v Speaker 2>like this in prisons as a fresh face student just

0:37:26.960 --> 0:37:30.960
<v Speaker 2>out of graduate school. So he and he's also the

0:37:30.960 --> 0:37:35.520
<v Speaker 2>one who in nineteen ninety three defended the whole Tuskegee

0:37:35.520 --> 0:37:38.319
<v Speaker 2>experiment by saying like, yeah, you couldn't give penasilis people

0:37:38.360 --> 0:37:39.320
<v Speaker 2>had ruined the study.

0:37:40.080 --> 0:37:44.480
<v Speaker 3>Yeah, and he gave people syphilis by injecting it, sometimes

0:37:44.520 --> 0:37:49.160
<v Speaker 3>into their eyes. He would infect sex workers by infecting

0:37:49.360 --> 0:37:53.680
<v Speaker 3>cotton swabs and then inserting them into their you know,

0:37:53.840 --> 0:37:57.880
<v Speaker 3>sex organs, and then sometimes ordering them to have sex

0:37:57.960 --> 0:38:01.040
<v Speaker 3>with men to see how it you know, how it transferred,

0:38:01.080 --> 0:38:02.239
<v Speaker 3>how easily it transferred.

0:38:02.520 --> 0:38:07.360
<v Speaker 2>Yep. So we said that structural racism still exists in healthcare.

0:38:07.400 --> 0:38:09.800
<v Speaker 2>And I've got one last stat that kind of drives

0:38:09.880 --> 0:38:13.080
<v Speaker 2>us home. There was a twenty twenty study of emergency

0:38:13.160 --> 0:38:15.920
<v Speaker 2>rooms in Oregon and they found that even though black

0:38:16.000 --> 0:38:20.080
<v Speaker 2>patients who went seeking help to an emergency room had

0:38:20.160 --> 0:38:24.719
<v Speaker 2>completed pain scores about at the same rate as the

0:38:24.760 --> 0:38:27.440
<v Speaker 2>black patients who went to these same emergency rooms, the

0:38:27.560 --> 0:38:32.520
<v Speaker 2>doctors decided that only fourteen percent of these black patients

0:38:32.560 --> 0:38:36.719
<v Speaker 2>deserve pain meds compared to twenty percent of white patients.

0:38:37.360 --> 0:38:39.600
<v Speaker 2>So it's still going on today, and we still have

0:38:39.640 --> 0:38:41.480
<v Speaker 2>a very long way to go. And I feel like

0:38:41.520 --> 0:38:44.759
<v Speaker 2>as long as we keep talking about the Tuskegee experiment,

0:38:45.560 --> 0:38:47.719
<v Speaker 2>hopefully it'll bring us a little bit closer, a little

0:38:47.719 --> 0:38:50.120
<v Speaker 2>bit closer, because here in the United States, we don't

0:38:50.160 --> 0:38:53.000
<v Speaker 2>like to do things the right way quickly. It takes

0:38:53.080 --> 0:38:54.840
<v Speaker 2>us a very long time sometimes.

0:38:55.200 --> 0:38:58.200
<v Speaker 3>Yeah, And I you know, I'm not getting on a soapbox,

0:38:58.239 --> 0:39:02.360
<v Speaker 3>but it's important to tell theselories now because stories like

0:39:02.400 --> 0:39:06.520
<v Speaker 3>this are actively being scrubbed from places like the Smithsonian,

0:39:07.200 --> 0:39:11.040
<v Speaker 3>and it's not you know, you can't ignore your negative

0:39:11.080 --> 0:39:15.240
<v Speaker 3>history as a country and learn anything about your future

0:39:15.280 --> 0:39:15.960
<v Speaker 3>as a country.

0:39:16.040 --> 0:39:18.160
<v Speaker 2>For sure, we should put that on a T shirt.

0:39:18.239 --> 0:39:20.520
<v Speaker 3>Chuck, that's a little little wordy.

0:39:21.000 --> 0:39:23.120
<v Speaker 2>Well, Chuck just gave us a great new T shirt

0:39:23.160 --> 0:39:25.480
<v Speaker 2>idea everybody, whether he likes it or not. So that

0:39:25.560 --> 0:39:27.000
<v Speaker 2>means it's time for a listener mail.

0:39:29.480 --> 0:39:31.800
<v Speaker 3>You know what, let's not do listener mail. We haven't

0:39:31.800 --> 0:39:35.400
<v Speaker 3>done this since I feel like the early years. I

0:39:35.440 --> 0:39:38.000
<v Speaker 3>feel like we should put out a call to help

0:39:38.040 --> 0:39:40.719
<v Speaker 3>grow our show a little bit. We've just kind of

0:39:40.760 --> 0:39:43.799
<v Speaker 3>been on coast forever as far as like saying, hey, like,

0:39:43.840 --> 0:39:47.040
<v Speaker 3>tell your friends about this, but let's do this, and

0:39:47.120 --> 0:39:49.200
<v Speaker 3>you tell me if you approve, and if not, we'll

0:39:49.239 --> 0:39:53.160
<v Speaker 3>just erase all this. Okay, But I charge every listener

0:39:53.160 --> 0:39:56.600
<v Speaker 3>who loves stuff you should know, tell find your favorite

0:39:56.640 --> 0:40:00.960
<v Speaker 3>episode ever, whether it's Ballpoint Pins or The Uppets or

0:40:01.520 --> 0:40:05.600
<v Speaker 3>the time the Nazis invaded Florida. dB Cooper, dB Cooper, Like,

0:40:05.640 --> 0:40:08.400
<v Speaker 3>whatever your favorite stuff you should know episode is, and

0:40:08.760 --> 0:40:11.279
<v Speaker 3>send it to three friends and say, hey, check the

0:40:11.320 --> 0:40:13.160
<v Speaker 3>show out. I think you'll I think you'll like it,

0:40:14.000 --> 0:40:16.200
<v Speaker 3>and that would help us out. We're always looking to,

0:40:16.600 --> 0:40:19.880
<v Speaker 3>you know, grow the show and expand to new audiences

0:40:19.920 --> 0:40:22.160
<v Speaker 3>who have never heard of us even after seventeen years,

0:40:22.160 --> 0:40:24.440
<v Speaker 3>so it really helps us out and we would really

0:40:24.480 --> 0:40:25.040
<v Speaker 3>appreciate it.

0:40:25.160 --> 0:40:27.160
<v Speaker 2>Very nice, Chuck. I think that was great. I don't

0:40:27.160 --> 0:40:28.120
<v Speaker 2>object to that at all.

0:40:28.600 --> 0:40:29.200
<v Speaker 3>Fantastic.

0:40:29.920 --> 0:40:32.840
<v Speaker 2>Well, like Chuck said, go forth and spread the gospel

0:40:32.880 --> 0:40:34.719
<v Speaker 2>of Stuff you Should Know. And in the meantime, if

0:40:34.719 --> 0:40:36.600
<v Speaker 2>you want to send us an email, you can send

0:40:36.600 --> 0:40:43.520
<v Speaker 2>it off to Stuff podcast at iHeartRadio dot com.

0:40:43.680 --> 0:40:45.959
<v Speaker 1>Stuff you Should Know is a production of iHeartRadio.

0:40:46.440 --> 0:40:48.520
<v Speaker 3>For more podcasts my heart Radio, visit

0:40:48.560 --> 0:40:51.840
<v Speaker 1>The iHeartRadio app, Apple Podcasts, or wherever you listen to

0:40:51.880 --> 0:40:52.760
<v Speaker 1>your favorite shows.