1 00:00:01,560 --> 00:00:04,080 Speaker 1: With no fees or minimums. Banking with Capital One is 2 00:00:04,120 --> 00:00:07,840 Speaker 1: the easiest decision in the history of decisions. That's banking. 3 00:00:07,920 --> 00:00:12,160 Speaker 1: Reimagine what's in your wallet. Terms apply see capitolwe dot 4 00:00:12,200 --> 00:00:21,919 Speaker 1: com slash bank Capital one NA member FDIC. Hi everyone, 5 00:00:21,960 --> 00:00:33,160 Speaker 1: I'm Katie Kuric, and this is Next Question. Welcome everyone 6 00:00:33,280 --> 00:00:37,080 Speaker 1: to this live taping of Next Question with me Katie Kuric. 7 00:00:37,520 --> 00:00:40,559 Speaker 1: I am delighted to bring you this conversation on the 8 00:00:40,600 --> 00:00:44,839 Speaker 1: cost of caregiving in partnership with my friends at Capital 9 00:00:44,880 --> 00:00:48,080 Speaker 1: One here at the Capitol One Cafe at Harold Square 10 00:00:48,400 --> 00:00:51,240 Speaker 1: in New York City. I'll be introducing you to the 11 00:00:51,320 --> 00:00:53,920 Speaker 1: panel in just a moment, but first a bit of 12 00:00:53,960 --> 00:00:58,360 Speaker 1: why we're actually here tonight. Roughly ten thousand baby boomers 13 00:00:58,600 --> 00:01:02,240 Speaker 1: will turn sixty five every day for the next decade 14 00:01:02,360 --> 00:01:06,360 Speaker 1: or so and are likely to enjoy longer lives, living 15 00:01:06,520 --> 00:01:12,200 Speaker 1: to eighty ninety even beyond fingers crossed. That's a lot 16 00:01:12,200 --> 00:01:16,040 Speaker 1: of retirement years, and unfortunately, not all of those years 17 00:01:16,120 --> 00:01:21,400 Speaker 1: are lived independently within home and assisted living. Care costs skyrocketing, 18 00:01:21,840 --> 00:01:25,440 Speaker 1: taking care of aging relatives is falling more and more 19 00:01:25,800 --> 00:01:29,920 Speaker 1: to their own loved ones. It's not easy. In fact, 20 00:01:30,160 --> 00:01:33,880 Speaker 1: it can be overwhelming. So we're going to talk about 21 00:01:34,000 --> 00:01:38,039 Speaker 1: how you can actually be prepared, whether you're a caregiver 22 00:01:38,560 --> 00:01:42,319 Speaker 1: or you're the person being cared for. We're also going 23 00:01:42,360 --> 00:01:47,240 Speaker 1: to talk about the unexpected joy and meaning these situations 24 00:01:47,319 --> 00:01:51,680 Speaker 1: can actually bring about. So tonight, our guests are Celia 25 00:01:51,840 --> 00:01:55,400 Speaker 1: Edwards Karum. She is the president of Retail Banking at 26 00:01:55,440 --> 00:01:59,560 Speaker 1: Capital One. She has championed a people first approach to 27 00:01:59,640 --> 00:02:04,040 Speaker 1: banking to act as a partner to customers whatever stage 28 00:02:04,120 --> 00:02:07,880 Speaker 1: of life they happen to be in. Adrianne Glessman is 29 00:02:08,000 --> 00:02:11,880 Speaker 1: host of the Young Life Interrupted podcast. It's a weekly 30 00:02:11,960 --> 00:02:16,960 Speaker 1: dose of community where guests and hosts share personal stories, insights, 31 00:02:17,120 --> 00:02:23,079 Speaker 1: and conversations with other caregivers. And finally, Chris Fusalid has 32 00:02:23,200 --> 00:02:27,840 Speaker 1: built quite the community via social media. He's very active 33 00:02:27,880 --> 00:02:31,840 Speaker 1: on TikTok, where his videos about caring for his grandmother 34 00:02:32,560 --> 00:02:36,160 Speaker 1: go out to not only two point four million subscribers, 35 00:02:36,240 --> 00:02:40,200 Speaker 1: but get millions of views. And I'm very jealous of that, Chris. 36 00:02:40,680 --> 00:02:47,359 Speaker 1: But let's begin the conversation with the financial challenges Celia 37 00:02:47,880 --> 00:02:51,440 Speaker 1: of being a caregiver. So I know this situation is 38 00:02:51,480 --> 00:02:54,720 Speaker 1: affecting more people than ever, can you kick things off 39 00:02:55,160 --> 00:02:59,359 Speaker 1: by outlining the role you see caregiving playing in people's 40 00:02:59,400 --> 00:03:00,480 Speaker 1: financial lives. 41 00:03:01,240 --> 00:03:05,120 Speaker 2: I love this question, and caregiving is such a broad topic. 42 00:03:05,320 --> 00:03:09,720 Speaker 2: We're going to mostly talk today about caregiving for the elderly, 43 00:03:09,800 --> 00:03:12,280 Speaker 2: people who we helped raise us maybe who we are 44 00:03:12,280 --> 00:03:15,240 Speaker 2: now going back to help take care of them. We also, though, 45 00:03:15,280 --> 00:03:17,840 Speaker 2: sometimes think about caregiving in the context of kids, and 46 00:03:17,880 --> 00:03:20,360 Speaker 2: one of the things we're seeing in our customers and 47 00:03:20,400 --> 00:03:22,800 Speaker 2: really learning about from people is this notion of the 48 00:03:22,800 --> 00:03:26,600 Speaker 2: Sandwich generation, people who find themselves giving care to elder 49 00:03:26,680 --> 00:03:29,040 Speaker 2: parents and giving care to kids and all of the 50 00:03:29,880 --> 00:03:32,680 Speaker 2: just the overwhelm that can come with a situation like that. 51 00:03:33,400 --> 00:03:37,920 Speaker 2: I think from a financial perspective, caring for the elderly 52 00:03:38,040 --> 00:03:40,480 Speaker 2: is probably something that many of us will have to 53 00:03:40,520 --> 00:03:43,000 Speaker 2: contend with. And so in that same way that we 54 00:03:43,080 --> 00:03:45,880 Speaker 2: might plan for retirement, or we might plan for a 55 00:03:45,960 --> 00:03:47,520 Speaker 2: child to be able to go to college, we might 56 00:03:47,600 --> 00:03:51,280 Speaker 2: save for those things. Saving for what it might mean 57 00:03:51,360 --> 00:03:53,760 Speaker 2: to have to care for someone is something that I 58 00:03:53,760 --> 00:03:56,080 Speaker 2: think is a you know, part of prudent financial well 59 00:03:56,120 --> 00:03:57,280 Speaker 2: being and financial health. 60 00:03:58,280 --> 00:04:00,560 Speaker 1: How do you do that though? How do you you know? 61 00:04:00,640 --> 00:04:06,040 Speaker 1: What are the actual practical steps Celia people can take 62 00:04:06,440 --> 00:04:10,120 Speaker 1: when talking about the future and being and either a 63 00:04:10,120 --> 00:04:12,560 Speaker 1: caregiving role or being cared for. 64 00:04:13,680 --> 00:04:16,240 Speaker 2: Well, I'll talk a little bit about how Capital One 65 00:04:16,279 --> 00:04:18,680 Speaker 2: helps with this, but I actually think lots of people 66 00:04:18,760 --> 00:04:21,880 Speaker 2: across the banking industry are really thinking about how do 67 00:04:21,920 --> 00:04:24,600 Speaker 2: we help meet customers where they are and help with 68 00:04:24,600 --> 00:04:27,479 Speaker 2: this caregiving need. Here at Capital One, one of the 69 00:04:27,480 --> 00:04:30,040 Speaker 2: things we focus on is a program called Money in Life. 70 00:04:30,600 --> 00:04:32,599 Speaker 2: And really the purpose of Money in Life is to 71 00:04:32,600 --> 00:04:35,719 Speaker 2: have a conversation with you to understand what your goals are, 72 00:04:35,800 --> 00:04:37,960 Speaker 2: what's going on in your family, what do you think 73 00:04:38,080 --> 00:04:40,640 Speaker 2: might be going on ten, twenty thirty years down the road, 74 00:04:40,960 --> 00:04:43,240 Speaker 2: and how do you start to build a plan for yourself. 75 00:04:43,440 --> 00:04:45,920 Speaker 2: It's not about your advisor telling you what to do. 76 00:04:46,279 --> 00:04:48,599 Speaker 2: It's about that person meeting you where you are and 77 00:04:48,640 --> 00:04:51,479 Speaker 2: helping you develop a set of goals and a plan 78 00:04:51,600 --> 00:04:54,080 Speaker 2: to then work towards those goals in the same way 79 00:04:54,080 --> 00:04:56,400 Speaker 2: that you might work against any other goal. But really 80 00:04:56,440 --> 00:04:58,880 Speaker 2: having that sort of shepherd in advice to help you 81 00:04:58,920 --> 00:05:00,039 Speaker 2: get structured. 82 00:05:00,320 --> 00:05:02,800 Speaker 1: Kind of motivate you, because I imagine a lot of 83 00:05:02,839 --> 00:05:08,800 Speaker 1: people really feel uncomfortable having this conversation, like honey, girls 84 00:05:08,920 --> 00:05:12,760 Speaker 1: my daughters when I'm old and incapacitated, I'd really like 85 00:05:12,880 --> 00:05:16,080 Speaker 1: this and that I mean, it's really kind of an awkward, 86 00:05:16,360 --> 00:05:20,520 Speaker 1: it's kind of depressing, and people just don't really want 87 00:05:20,560 --> 00:05:23,560 Speaker 1: to bring those things up and they really need to. 88 00:05:23,960 --> 00:05:27,640 Speaker 1: Are there ways that you can cut conversation starters or 89 00:05:27,680 --> 00:05:30,760 Speaker 1: things people can do to make it to break the ice? 90 00:05:31,240 --> 00:05:35,720 Speaker 2: Yeah, it's It's funny. Everything about money can be a 91 00:05:35,760 --> 00:05:38,400 Speaker 2: little bit anxiety producing, and you add to it this 92 00:05:38,560 --> 00:05:41,840 Speaker 2: notion of forecasting to some time in the future where 93 00:05:41,880 --> 00:05:43,719 Speaker 2: you might not be as healthy as you want to be. 94 00:05:44,600 --> 00:05:46,720 Speaker 2: I think two of the things that we've seen work 95 00:05:46,960 --> 00:05:48,800 Speaker 2: and that I've really learned from this kind of money 96 00:05:48,800 --> 00:05:52,279 Speaker 2: and life coaching program are around, you know, opening those 97 00:05:52,279 --> 00:05:55,320 Speaker 2: conversations with your kids or your niece or nephew, whoever 98 00:05:55,360 --> 00:05:57,640 Speaker 2: it is in your family that is the right person 99 00:05:57,680 --> 00:06:01,400 Speaker 2: to have that conversation with an honest let's talk about 100 00:06:01,400 --> 00:06:03,440 Speaker 2: the future and what do you want for the future, 101 00:06:03,440 --> 00:06:05,120 Speaker 2: and what do I want and making that sort of 102 00:06:05,120 --> 00:06:07,560 Speaker 2: more of a conversation. It might be a little bit 103 00:06:07,560 --> 00:06:10,080 Speaker 2: of a hard topic, but there's no substitute for waiting 104 00:06:10,120 --> 00:06:10,520 Speaker 2: into it. 105 00:06:11,080 --> 00:06:14,520 Speaker 1: We want to talk to our caregivers in a moment, 106 00:06:14,760 --> 00:06:17,640 Speaker 1: But do you find that a lot of companies. It 107 00:06:17,720 --> 00:06:20,960 Speaker 1: seems to me this issue has really been brought to 108 00:06:21,000 --> 00:06:24,080 Speaker 1: the forefront. We've been talking hearing about the Sandwich generation 109 00:06:24,279 --> 00:06:26,960 Speaker 1: for a while, but I think as we talked about 110 00:06:27,000 --> 00:06:29,839 Speaker 1: more and more people are finding themselves in this situation. 111 00:06:30,400 --> 00:06:34,840 Speaker 1: Do you think other companies, including Capital One, are embracing 112 00:06:34,920 --> 00:06:39,640 Speaker 1: this issue, are thinking about it in terms of helping 113 00:06:39,680 --> 00:06:42,840 Speaker 1: their employees in general, And just as somebody who's in 114 00:06:42,880 --> 00:06:45,880 Speaker 1: the industry, what are you seeing not only in banking 115 00:06:45,920 --> 00:06:50,320 Speaker 1: but in different companies, especially because the population is aging, right, 116 00:06:50,640 --> 00:06:51,680 Speaker 1: It's total right now. 117 00:06:51,800 --> 00:06:53,640 Speaker 2: This is something that I think you said at the 118 00:06:53,680 --> 00:06:55,960 Speaker 2: beginning that everyone's going to have to contend with at 119 00:06:55,960 --> 00:06:59,600 Speaker 2: some point or another. In our associate group, we have 120 00:06:59,720 --> 00:07:01,880 Speaker 2: what we call affinity groups that we set up for 121 00:07:02,240 --> 00:07:04,680 Speaker 2: different groups of associates to come together on a topic. 122 00:07:05,400 --> 00:07:08,000 Speaker 2: In twenty twenty or maybe twenty twenty one, we launched 123 00:07:08,000 --> 00:07:10,920 Speaker 2: something called and Family at Capitol One, which is really 124 00:07:10,960 --> 00:07:13,920 Speaker 2: about supporting associates who are going through the caregiving moment, 125 00:07:14,200 --> 00:07:17,760 Speaker 2: and whether that caregiving is for someone who is aging 126 00:07:17,840 --> 00:07:19,920 Speaker 2: or someone who is sick, or if it's for children, 127 00:07:20,280 --> 00:07:23,280 Speaker 2: whatever the nature of caregiving happens to be actually just 128 00:07:23,320 --> 00:07:27,200 Speaker 2: finding a group where you can have like minded conversation 129 00:07:27,480 --> 00:07:33,280 Speaker 2: about how hard this is, about you feeling exhausted, sometimes 130 00:07:33,320 --> 00:07:36,280 Speaker 2: about feeling guilty for feeling exhausted. There's a lot of 131 00:07:36,320 --> 00:07:39,000 Speaker 2: complex emotion and just knowing that you're not in it 132 00:07:39,080 --> 00:07:42,800 Speaker 2: alone has been a really important part for our associates 133 00:07:42,880 --> 00:07:44,440 Speaker 2: to come together in that way and then to feel 134 00:07:44,440 --> 00:07:47,960 Speaker 2: supported by a company who gives them space to give 135 00:07:48,000 --> 00:07:51,120 Speaker 2: that connection and really start to find a place for 136 00:07:51,160 --> 00:07:52,560 Speaker 2: themselves in the company. 137 00:07:52,520 --> 00:07:57,040 Speaker 1: And a lot of loneliness and social isolation. Adrian, I 138 00:07:57,080 --> 00:07:59,720 Speaker 1: know you started caring for your mom Hetty when you 139 00:07:59,720 --> 00:08:03,160 Speaker 1: were twenty nine years old. Can you describe what was 140 00:08:03,200 --> 00:08:06,480 Speaker 1: happening in your world and why you found yourself in 141 00:08:06,520 --> 00:08:07,240 Speaker 1: this position? 142 00:08:08,360 --> 00:08:11,760 Speaker 3: So my world was here in New York City, my mom. 143 00:08:11,840 --> 00:08:14,320 Speaker 3: I'm originally from Florida, so my mom was all the 144 00:08:14,360 --> 00:08:16,920 Speaker 3: way in Florida and I was twenty nine. I always 145 00:08:17,000 --> 00:08:18,840 Speaker 3: like to say I was living like the sex in 146 00:08:18,880 --> 00:08:21,920 Speaker 3: the city, you know, dreams, a single girl in the city. 147 00:08:22,040 --> 00:08:24,640 Speaker 1: True, here are you Carrie, Miranda or Samantha. 148 00:08:24,760 --> 00:08:30,920 Speaker 4: I won't say, I won't say Samantha, but you know 149 00:08:31,000 --> 00:08:33,600 Speaker 4: I was single, and I was trying to figure out 150 00:08:33,640 --> 00:08:36,160 Speaker 4: my career path and just having a great time with 151 00:08:36,200 --> 00:08:36,800 Speaker 4: my friends. 152 00:08:37,520 --> 00:08:40,520 Speaker 3: So those years are kind of selfish, so I was 153 00:08:40,600 --> 00:08:44,160 Speaker 3: being very selfish in everything I was doing. Now, I'm 154 00:08:44,679 --> 00:08:47,560 Speaker 3: an only child of divorce parents, and my mom and 155 00:08:47,559 --> 00:08:51,440 Speaker 3: I are very close, so I always knew that I 156 00:08:51,559 --> 00:08:53,559 Speaker 3: was going to have to care for her one day, 157 00:08:54,160 --> 00:08:56,280 Speaker 3: but in my mind, it wasn't going to happen for 158 00:08:56,320 --> 00:09:01,760 Speaker 3: another thirty years, when I was probably and had children 159 00:09:01,960 --> 00:09:04,400 Speaker 3: and was very established and had already hit all of 160 00:09:04,440 --> 00:09:09,800 Speaker 3: those milestones. So my mom was diagnosed with multiple system atrophy, 161 00:09:09,880 --> 00:09:14,480 Speaker 3: which is a neurodegenerative rare disease, and at first, seemingly 162 00:09:14,520 --> 00:09:17,240 Speaker 3: it seemed like everything was okay. I was able to 163 00:09:17,280 --> 00:09:20,200 Speaker 3: manage her care from a distance, but then when I 164 00:09:20,240 --> 00:09:22,760 Speaker 3: was flying home to visit, I was starting to notice 165 00:09:22,760 --> 00:09:26,360 Speaker 3: that things were off, and I said, Okay, I'm going 166 00:09:26,440 --> 00:09:28,319 Speaker 3: to have to start stepping in a little bit more. 167 00:09:28,520 --> 00:09:31,600 Speaker 3: There were times I was up here and I had 168 00:09:31,600 --> 00:09:33,400 Speaker 3: to fly home at the drop of a hat book 169 00:09:33,400 --> 00:09:35,120 Speaker 3: a one way ticket because my mom was in the 170 00:09:35,160 --> 00:09:37,720 Speaker 3: hospital and there was nobody to be with her, and 171 00:09:37,760 --> 00:09:39,720 Speaker 3: I wasn't going to leave her alone in the hospital 172 00:09:39,760 --> 00:09:43,880 Speaker 3: I needed to advocate for her, so as her disease 173 00:09:43,920 --> 00:09:48,239 Speaker 3: started to progress, I finally decided this long distance caregiving 174 00:09:48,600 --> 00:09:51,280 Speaker 3: it's just way too tough, the anxiety that I was 175 00:09:51,320 --> 00:09:53,559 Speaker 3: going through every single day if she wouldn't pick up. 176 00:09:53,520 --> 00:09:56,160 Speaker 5: The phone, not knowing what was going on, trying to. 177 00:09:56,120 --> 00:09:59,320 Speaker 3: Have a life up here, balance this whole other hidden 178 00:09:59,400 --> 00:10:02,560 Speaker 3: life because it wasn't something I say hidden because I 179 00:10:02,600 --> 00:10:05,040 Speaker 3: didn't talk about it. I didn't talk about to my 180 00:10:05,120 --> 00:10:08,160 Speaker 3: friends everything I was doing with my mom because they 181 00:10:08,160 --> 00:10:09,200 Speaker 3: wouldn't understand. 182 00:10:09,480 --> 00:10:13,040 Speaker 5: Nobody had gone through this before. So I finally made. 183 00:10:12,880 --> 00:10:16,400 Speaker 3: The decision in twenty fifteen that I needed to move 184 00:10:16,440 --> 00:10:17,640 Speaker 3: back home because. 185 00:10:17,400 --> 00:10:20,640 Speaker 5: It was too much to care for her at a distance. 186 00:10:20,400 --> 00:10:23,760 Speaker 3: And moved back home, which provided a whole nother facet 187 00:10:23,800 --> 00:10:27,280 Speaker 3: of caregiving. Even though it wasn't long distance, being right 188 00:10:27,280 --> 00:10:31,280 Speaker 3: there has its own set of challenges, and really it 189 00:10:31,320 --> 00:10:33,839 Speaker 3: turned my world upside down. I never in a million 190 00:10:33,880 --> 00:10:35,959 Speaker 3: years thought I was going to move back to Florida, 191 00:10:36,480 --> 00:10:38,440 Speaker 3: where I was born and raised. I thought I would 192 00:10:38,440 --> 00:10:40,920 Speaker 3: live in New York forever or go live abroad. I'm 193 00:10:40,920 --> 00:10:43,160 Speaker 3: such a free spirit. I kind of went where the 194 00:10:43,160 --> 00:10:46,360 Speaker 3: wind would take me. But here, I was back in 195 00:10:46,440 --> 00:10:49,520 Speaker 3: this role to care for my mom. And as hard 196 00:10:49,520 --> 00:10:51,880 Speaker 3: as it was for me to leave New York City 197 00:10:51,960 --> 00:10:55,200 Speaker 3: and give up this amazing city, this life that I 198 00:10:55,240 --> 00:10:57,800 Speaker 3: had built for myself, all of my friends, I had 199 00:10:57,840 --> 00:11:01,439 Speaker 3: just got offered my dream job working in travel dr 200 00:11:01,720 --> 00:11:03,920 Speaker 3: and I had to just give it all up and 201 00:11:03,960 --> 00:11:07,640 Speaker 3: make the decision to move back because I knew that, 202 00:11:08,080 --> 00:11:10,200 Speaker 3: just like my mom had cared for me my entire 203 00:11:10,280 --> 00:11:12,840 Speaker 3: life and was an incredible mom, that it was my 204 00:11:13,000 --> 00:11:14,160 Speaker 3: turn to care for her. 205 00:11:14,480 --> 00:11:16,360 Speaker 5: It just came way too soon. 206 00:11:17,080 --> 00:11:20,160 Speaker 1: Chris. Before we talk about how you all have shared 207 00:11:20,200 --> 00:11:24,120 Speaker 1: your experiences, tell me how you wound up in your situation. 208 00:11:24,640 --> 00:11:28,880 Speaker 6: Yeah, so, about eight years ago, my grandmother, my grandmother 209 00:11:28,960 --> 00:11:30,880 Speaker 6: was no longer able to get out of bed. It 210 00:11:30,920 --> 00:11:33,720 Speaker 6: was just like all of a sudden woke up, couldn't 211 00:11:33,720 --> 00:11:37,240 Speaker 6: move anymore kind of thing. And you know, my family 212 00:11:37,280 --> 00:11:40,400 Speaker 6: and I had to have a conversation about whether we 213 00:11:40,400 --> 00:11:42,920 Speaker 6: were going to take my grandmother to a facility or 214 00:11:42,960 --> 00:11:45,520 Speaker 6: would we hire a full time caregiver to stay at 215 00:11:45,520 --> 00:11:48,080 Speaker 6: the house and be with her. Twenty four to seven 216 00:11:48,400 --> 00:11:50,280 Speaker 6: and I was just about to graduate college. I had 217 00:11:50,280 --> 00:11:53,840 Speaker 6: one semester left. I didn't have any job opportunities lined up, 218 00:11:53,920 --> 00:11:55,720 Speaker 6: So I said, you know, my grandmother took care of 219 00:11:55,720 --> 00:11:58,040 Speaker 6: me when I was young, so it only makes sense 220 00:11:58,080 --> 00:12:01,000 Speaker 6: for me to step up and be responsible. So I 221 00:12:01,080 --> 00:12:06,400 Speaker 6: decided to be our caregiver, full time caregiver, and you know, 222 00:12:06,440 --> 00:12:09,480 Speaker 6: we did that for eight years, and in the last 223 00:12:09,840 --> 00:12:12,400 Speaker 6: three to four years of her life, I decided to 224 00:12:12,480 --> 00:12:15,640 Speaker 6: document my life on the Internet and show people what 225 00:12:15,679 --> 00:12:18,200 Speaker 6: it's like to be a young caregiver, and a lot 226 00:12:18,240 --> 00:12:21,400 Speaker 6: of people gravitated towards it. I got messages from millions 227 00:12:21,440 --> 00:12:24,120 Speaker 6: of other young caregivers out there saying that they see 228 00:12:24,360 --> 00:12:29,800 Speaker 6: their grandmother or their grandfather through my grandmother, and it's 229 00:12:29,840 --> 00:12:32,720 Speaker 6: been a life changing experiences. It's really nice to know 230 00:12:32,760 --> 00:12:39,240 Speaker 6: that you're not alone in this really tough and isolating experience. 231 00:12:40,520 --> 00:12:42,240 Speaker 6: You know, if you didn't have the Internet, then you 232 00:12:42,280 --> 00:12:45,319 Speaker 6: think you're the only one on the planet taking care of, 233 00:12:45,520 --> 00:12:48,960 Speaker 6: you know, an elder. So it's been a life changing experience. 234 00:12:49,000 --> 00:12:51,360 Speaker 6: And unfortunately, my grandmother passed away a couple of weeks ago, 235 00:12:52,200 --> 00:12:56,160 Speaker 6: and it's been tough, but it's been also relieving knowing 236 00:12:56,200 --> 00:12:59,080 Speaker 6: that my grandmother lived till ninety seven. You know, she 237 00:12:59,160 --> 00:13:01,600 Speaker 6: lived a great life, and I can confidently say that 238 00:13:01,679 --> 00:13:05,240 Speaker 6: the last eight years of her life, I don't. I mean, 239 00:13:05,240 --> 00:13:07,160 Speaker 6: I wouldn't say that the best because obviously people want 240 00:13:07,160 --> 00:13:08,680 Speaker 6: to be up and about but like, I think we 241 00:13:08,760 --> 00:13:10,400 Speaker 6: gave her the best life that we could have, and 242 00:13:10,440 --> 00:13:11,600 Speaker 6: I have no regrets about it. 243 00:13:12,080 --> 00:13:14,800 Speaker 1: Both of you are so inspiring and made a lot 244 00:13:14,840 --> 00:13:17,920 Speaker 1: of sacrifices, and I don't think a lot of young 245 00:13:18,000 --> 00:13:21,280 Speaker 1: people would do that. Did you ever, Waiver, did you 246 00:13:21,360 --> 00:13:25,640 Speaker 1: ever resent your mom or your grandmother because you both 247 00:13:25,720 --> 00:13:28,160 Speaker 1: had to make a lot of sacrifices. I mean, you're 248 00:13:28,280 --> 00:13:30,920 Speaker 1: a young man, what twenty two years old, and suddenly 249 00:13:30,960 --> 00:13:34,240 Speaker 1: you find yourself as your grandmother's primary caregiver. 250 00:13:34,679 --> 00:13:38,000 Speaker 6: Yeah. I mean we actually just talked about this backstage. 251 00:13:38,040 --> 00:13:40,480 Speaker 6: It's it's really it's tough to put your life on 252 00:13:40,520 --> 00:13:42,960 Speaker 6: hold as a young person and to give your life 253 00:13:42,960 --> 00:13:45,560 Speaker 6: to somebody else. But I wouldn't I wouldn't change it 254 00:13:45,600 --> 00:13:47,760 Speaker 6: for the world. And obviously there's a lot of ups 255 00:13:47,760 --> 00:13:49,960 Speaker 6: and downs, and there's a lot of dark moments, but 256 00:13:50,040 --> 00:13:52,880 Speaker 6: I think looking back at the bigger picture and seeing 257 00:13:52,920 --> 00:13:54,760 Speaker 6: all that we've been able to do with my grandmother 258 00:13:54,840 --> 00:13:56,360 Speaker 6: and all the things that I've been able to learn 259 00:13:56,400 --> 00:13:58,760 Speaker 6: from my grandmother. You know, I wouldn't. I wouldn't change 260 00:13:58,800 --> 00:14:00,120 Speaker 6: it for a thing. And I think it is it's 261 00:14:00,160 --> 00:14:02,280 Speaker 6: difficult for young people to just say, hey, I'm going 262 00:14:02,320 --> 00:14:04,680 Speaker 6: to put my life on pause. It's time to help 263 00:14:04,720 --> 00:14:09,000 Speaker 6: out whoever. But yeah, I would. I wouldn't change it 264 00:14:09,040 --> 00:14:11,160 Speaker 6: for the world. And I think it's an experience that 265 00:14:11,200 --> 00:14:13,680 Speaker 6: I'll never forget, and it's a chapter that I'll hold 266 00:14:13,679 --> 00:14:15,719 Speaker 6: close to me and I think, you know, I'll be 267 00:14:15,840 --> 00:14:17,800 Speaker 6: learning from that time forever. 268 00:14:18,200 --> 00:14:21,160 Speaker 5: So what about you, Adrian, Well, I'm not going to 269 00:14:21,240 --> 00:14:24,480 Speaker 5: sugarcoat it. There was a lot of resentment. 270 00:14:24,880 --> 00:14:27,280 Speaker 3: I mean, like I mentioned, I had to pick up 271 00:14:27,280 --> 00:14:30,760 Speaker 3: my life here and just drop everything. I packed up 272 00:14:30,800 --> 00:14:33,920 Speaker 3: three boxes and ship them to Florida, something I never 273 00:14:33,960 --> 00:14:38,640 Speaker 3: thought that I would do. I was a huge traveler, backpacker, 274 00:14:39,160 --> 00:14:41,360 Speaker 3: my friend and I would take trips every year. 275 00:14:41,880 --> 00:14:43,040 Speaker 5: Had to put that on pause. 276 00:14:43,680 --> 00:14:46,520 Speaker 3: So, yeah, there was resentment, and I think there were 277 00:14:46,560 --> 00:14:49,160 Speaker 3: many days when I was at some of my darkest 278 00:14:49,200 --> 00:14:53,480 Speaker 3: days of caregiving. I was at my worst and I 279 00:14:53,600 --> 00:14:56,600 Speaker 3: resented having to take care of my mom. I was 280 00:14:56,680 --> 00:15:00,240 Speaker 3: watching all of my friends get married and have kids 281 00:15:00,320 --> 00:15:02,800 Speaker 3: and do all of these amazing things. And here I 282 00:15:02,880 --> 00:15:06,600 Speaker 3: was caring for my mom and like changing her diaper 283 00:15:06,800 --> 00:15:10,760 Speaker 3: and bathing her and managing her medications and her care 284 00:15:10,840 --> 00:15:15,120 Speaker 3: and having to make all of these extremely responsible executive 285 00:15:15,160 --> 00:15:18,680 Speaker 3: decisions on behalf of my mom. I had a lot 286 00:15:18,720 --> 00:15:22,400 Speaker 3: of resentment that was at the beginning, and then I 287 00:15:22,480 --> 00:15:25,960 Speaker 3: had to do a lot of growth, and I had 288 00:15:26,040 --> 00:15:30,160 Speaker 3: to do a complete mindset change around where I was 289 00:15:30,480 --> 00:15:33,120 Speaker 3: and why this was happening, Because I would always be like, God, 290 00:15:33,160 --> 00:15:35,320 Speaker 3: why is this happening to me? What did I do 291 00:15:35,400 --> 00:15:38,480 Speaker 3: in this lifetime to have this happen to me now 292 00:15:38,560 --> 00:15:40,520 Speaker 3: and not years from now? Like what did I do? 293 00:15:40,600 --> 00:15:43,000 Speaker 3: I was a straight A student, like I was a 294 00:15:43,000 --> 00:15:44,760 Speaker 3: good girl? Like what happened? 295 00:15:45,400 --> 00:15:48,360 Speaker 5: So I had to do a complete mindset shift. 296 00:15:48,520 --> 00:15:52,600 Speaker 3: And once I started shifting my mindset and started focusing 297 00:15:52,680 --> 00:15:55,720 Speaker 3: on the fact that I'm able to help care for 298 00:15:55,800 --> 00:15:59,280 Speaker 3: my mom, and I'm able to have these years with her. 299 00:15:59,360 --> 00:16:03,640 Speaker 5: And I'm able to give her the joy of having 300 00:16:03,720 --> 00:16:06,920 Speaker 5: her daughter, her best friend by her side through some 301 00:16:06,960 --> 00:16:10,680 Speaker 5: of the hardest years of her life, that really. 302 00:16:10,840 --> 00:16:14,600 Speaker 3: Flipped the script for me. And it wasn't so much resentment. 303 00:16:14,760 --> 00:16:17,560 Speaker 3: It was more kind of like Chris was saying, for me, 304 00:16:17,600 --> 00:16:20,840 Speaker 3: it was an honor. When my mom was transitioning, I 305 00:16:20,880 --> 00:16:24,000 Speaker 3: told her, I said, Mom, caring for you is and 306 00:16:24,120 --> 00:16:27,480 Speaker 3: always will be the highest honor of my entire life. 307 00:16:27,640 --> 00:16:32,600 Speaker 1: Can I adopt both of you? I mean, seriously, you're 308 00:16:32,640 --> 00:16:36,200 Speaker 1: amazing and remarkable. Did you ever have a respite though? 309 00:16:36,320 --> 00:16:38,280 Speaker 1: Like would you be able to get a break? And 310 00:16:38,320 --> 00:16:41,640 Speaker 1: I wanted to ask Celia too about you know, is 311 00:16:41,720 --> 00:16:48,160 Speaker 1: the cost of hiring professional caregivers so prohibitively expensive for 312 00:16:48,280 --> 00:16:52,000 Speaker 1: a lot of families that many children or grandsons find 313 00:16:52,040 --> 00:16:53,360 Speaker 1: themselves in this situation. 314 00:16:54,200 --> 00:16:56,360 Speaker 5: Yeah, I want to answer first I can speak to 315 00:16:56,360 --> 00:16:56,960 Speaker 5: that a little bit. 316 00:16:57,120 --> 00:16:59,920 Speaker 3: So unlike Chris, who was a full time caregiver, my 317 00:17:00,120 --> 00:17:03,160 Speaker 3: mom actually lived in an assisted living facility, And we 318 00:17:03,160 --> 00:17:05,200 Speaker 3: were actually talking about this a bit earlier. 319 00:17:05,240 --> 00:17:07,640 Speaker 5: And it plays into the financial aspect that. 320 00:17:07,840 --> 00:17:10,720 Speaker 3: The only reason that we could afford for my mom 321 00:17:10,800 --> 00:17:15,080 Speaker 3: to live in an alf because costs are astronomical, is 322 00:17:15,119 --> 00:17:19,520 Speaker 3: that when she was working with our financial advisor, she 323 00:17:19,720 --> 00:17:24,199 Speaker 3: started a long term care policy. And if it weren't 324 00:17:24,200 --> 00:17:27,080 Speaker 3: for that, I would have been in a very different situation. 325 00:17:27,440 --> 00:17:30,040 Speaker 3: I wouldn't have been able to afford along with my 326 00:17:30,119 --> 00:17:33,159 Speaker 3: mom's pension and social Security, not only the cost of 327 00:17:33,160 --> 00:17:36,200 Speaker 3: her living in an assisted living facility, but as her 328 00:17:36,240 --> 00:17:40,679 Speaker 3: disease progressed, she needed extra full time aids, so I 329 00:17:40,720 --> 00:17:43,520 Speaker 3: had to hire other full time aids. Mind you, I 330 00:17:43,600 --> 00:17:46,760 Speaker 3: was there every single day from three pm until I 331 00:17:46,800 --> 00:17:50,439 Speaker 3: put her in bed, seven days a week. But my 332 00:17:50,720 --> 00:17:54,560 Speaker 3: story would have been very different if my mom hadn't 333 00:17:54,600 --> 00:17:58,719 Speaker 3: been fortunate enough to make some smart financial choices early on. 334 00:18:00,080 --> 00:18:02,760 Speaker 2: This story really resonates with me, and I think one 335 00:18:02,800 --> 00:18:04,520 Speaker 2: of the things that Katie said early on is that 336 00:18:04,880 --> 00:18:07,120 Speaker 2: people are coming from all different walks of life, all 337 00:18:07,119 --> 00:18:11,040 Speaker 2: different financial situations, and maybe most importantly, different levels of 338 00:18:11,080 --> 00:18:14,560 Speaker 2: knowledge about how these things might manifest and what kinds 339 00:18:14,560 --> 00:18:17,760 Speaker 2: of things you can do. From a planning perspective. Insurance 340 00:18:17,800 --> 00:18:20,520 Speaker 2: is one, savings is another. But how many of us 341 00:18:20,720 --> 00:18:22,720 Speaker 2: don't actually know to think about that or don't know 342 00:18:22,720 --> 00:18:24,840 Speaker 2: who to ask. And I think this is one of 343 00:18:24,880 --> 00:18:28,000 Speaker 2: the places where banking as an industry. But then also 344 00:18:28,000 --> 00:18:29,679 Speaker 2: I think there are a lot of resources in the 345 00:18:29,720 --> 00:18:32,560 Speaker 2: caregiving space that can start to guide people on how 346 00:18:32,840 --> 00:18:34,920 Speaker 2: how do you get prepared? How do you think about 347 00:18:34,960 --> 00:18:37,320 Speaker 2: some of these tools that you might use? And I 348 00:18:37,320 --> 00:18:40,159 Speaker 2: think you said this earlier both like you as the 349 00:18:40,200 --> 00:18:42,880 Speaker 2: person who may need care later on, like what kinds 350 00:18:42,880 --> 00:18:45,080 Speaker 2: of choices can we make? But then also for those 351 00:18:45,119 --> 00:18:47,560 Speaker 2: of us who you know have parents who are healthy now, 352 00:18:47,800 --> 00:18:49,959 Speaker 2: I know one of the things I'm often thinking about is, well, 353 00:18:49,960 --> 00:18:52,919 Speaker 2: they're healthy today, but how set up are we for 354 00:18:53,000 --> 00:18:55,240 Speaker 2: what the next five or ten or fifteen years might 355 00:18:55,320 --> 00:18:57,680 Speaker 2: look like? And are their choices you know I should 356 00:18:57,680 --> 00:19:00,080 Speaker 2: be making differently to plan for the just in case. 357 00:19:00,480 --> 00:19:04,120 Speaker 1: Can you talk about Asia and your podcast and how 358 00:19:04,160 --> 00:19:06,879 Speaker 1: it started and how it gave you a lot of 359 00:19:07,080 --> 00:19:11,960 Speaker 1: comfort and support during this period, just as Chris's followers have. 360 00:19:12,520 --> 00:19:15,600 Speaker 3: Yeah, so I always had the idea that I wanted 361 00:19:15,640 --> 00:19:18,879 Speaker 3: to start a podcast. I falling into caregiving at a 362 00:19:18,920 --> 00:19:22,720 Speaker 3: young age, I realized that the younger generation of caregivers 363 00:19:23,080 --> 00:19:27,320 Speaker 3: is such an underserved segment of the whole caregiver community. 364 00:19:27,600 --> 00:19:29,399 Speaker 3: When I fell into caregiving, I didn't even know what 365 00:19:29,440 --> 00:19:33,679 Speaker 3: the word caregiver was. I didn't self identify as a caregiver. 366 00:19:34,240 --> 00:19:38,119 Speaker 3: I self identified as, Oh, I'm an only child, and 367 00:19:38,160 --> 00:19:40,280 Speaker 3: this is my mom, and this is what I always 368 00:19:40,320 --> 00:19:41,960 Speaker 3: thought I was going to have to do for her. 369 00:19:42,560 --> 00:19:45,280 Speaker 3: So I always knew I wanted to start a podcast. 370 00:19:45,359 --> 00:19:48,960 Speaker 3: During caregiving, it was just too much. So after my 371 00:19:49,040 --> 00:19:51,400 Speaker 3: mom passed away, I said, Okay, I need to kind 372 00:19:51,400 --> 00:19:54,679 Speaker 3: of fuel a lot of this energy and time that 373 00:19:54,760 --> 00:19:58,480 Speaker 3: I have now into something to give back to other 374 00:19:58,720 --> 00:20:03,280 Speaker 3: young caregivers. So the Young Life Interrupted podcast came to be. 375 00:20:03,760 --> 00:20:06,159 Speaker 3: I released the first episode on the anniversary of my 376 00:20:06,240 --> 00:20:08,840 Speaker 3: mom's passing as a bit of a tribute to her, 377 00:20:09,600 --> 00:20:12,080 Speaker 3: and the whole point of the podcast is really to 378 00:20:12,160 --> 00:20:14,280 Speaker 3: reach young caregivers to. 379 00:20:14,280 --> 00:20:16,040 Speaker 5: Let them know that they're not alone. 380 00:20:16,080 --> 00:20:18,440 Speaker 3: Like Chris and I were talking earlier, it's a very 381 00:20:18,600 --> 00:20:22,120 Speaker 3: isolating experience when you fall into caregiving at a young 382 00:20:22,160 --> 00:20:24,800 Speaker 3: age and you literally think that there's no one in 383 00:20:24,840 --> 00:20:27,720 Speaker 3: the entire world going through the same thing that you are, 384 00:20:28,119 --> 00:20:31,240 Speaker 3: because your friends aren't going through it, you haven't heard 385 00:20:31,240 --> 00:20:33,360 Speaker 3: of other people going through it. It's not like when 386 00:20:33,400 --> 00:20:36,040 Speaker 3: you're a parent and you can turn to your mom 387 00:20:36,080 --> 00:20:38,400 Speaker 3: friends or your dad friends and you can ask advice. 388 00:20:39,560 --> 00:20:43,440 Speaker 3: So the podcast really looks to bring different caregivers from 389 00:20:43,480 --> 00:20:46,640 Speaker 3: all walks of life, so young caregivers caring for a spouse, 390 00:20:46,720 --> 00:20:48,560 Speaker 3: a parent, a grandparent. 391 00:20:48,040 --> 00:20:48,560 Speaker 5: A sibling. 392 00:20:49,520 --> 00:20:53,080 Speaker 3: On the podcast, we have open conversations and a lot 393 00:20:53,119 --> 00:20:56,320 Speaker 3: of them are geared towards the topics that we as 394 00:20:56,480 --> 00:20:59,680 Speaker 3: young caregivers are going through, because while there are a 395 00:20:59,720 --> 00:21:04,240 Speaker 3: lot of similar themes and commonalities among caregivers of all ages, 396 00:21:04,720 --> 00:21:07,320 Speaker 3: when you're caregiving in your twenties and your thirties, you're 397 00:21:07,359 --> 00:21:11,359 Speaker 3: dealing with a lot of other life milestones and different 398 00:21:11,440 --> 00:21:15,399 Speaker 3: things that other caregivers can't relate to. You are starting 399 00:21:15,440 --> 00:21:19,240 Speaker 3: to self isolate because caregiving takes over. You're losing your friends, 400 00:21:19,560 --> 00:21:22,879 Speaker 3: You maybe had to put college or your career on pause. 401 00:21:23,320 --> 00:21:28,200 Speaker 3: Dating is obsolete. So the podcast has really just also 402 00:21:28,320 --> 00:21:33,119 Speaker 3: allowed me to speak to my experiences. It's been very cathartic. 403 00:21:33,640 --> 00:21:35,800 Speaker 3: I call it my grief journey now that my mom's 404 00:21:35,840 --> 00:21:39,040 Speaker 3: been passed away. I had my caregiving journey and now 405 00:21:39,040 --> 00:21:41,560 Speaker 3: I'm on my grief journey. So it's been a really 406 00:21:41,680 --> 00:21:45,800 Speaker 3: healing and cathartic means to be able to heal and 407 00:21:45,920 --> 00:21:47,840 Speaker 3: really just to be able to give back to other 408 00:21:47,920 --> 00:21:51,920 Speaker 3: young caregivers and help them feel seen and heard and 409 00:21:51,960 --> 00:21:54,600 Speaker 3: like they have a place to come to where they 410 00:21:54,680 --> 00:21:59,680 Speaker 3: can get information, they can get validation, and just feel 411 00:21:59,680 --> 00:22:01,119 Speaker 3: a little bit less alone. 412 00:22:01,320 --> 00:22:04,960 Speaker 1: What kind of feedback and conversations do you have with 413 00:22:05,040 --> 00:22:07,719 Speaker 1: your followers. Are you hearing from a lot of people 414 00:22:08,280 --> 00:22:09,680 Speaker 1: in similar situations? 415 00:22:09,760 --> 00:22:12,640 Speaker 6: Chris, Yeah, I hear from hundreds of people every day. 416 00:22:12,680 --> 00:22:15,920 Speaker 6: People send me messages saying that they either cared for 417 00:22:16,119 --> 00:22:19,840 Speaker 6: their grandmother or grandfather or they're currently taking care of somebody. 418 00:22:20,359 --> 00:22:23,679 Speaker 6: And it's really nice to see somebody online highlighting the 419 00:22:23,720 --> 00:22:26,719 Speaker 6: things that they do every day, because before my videos, 420 00:22:26,760 --> 00:22:28,840 Speaker 6: they felt like they were the only ones, like I 421 00:22:28,840 --> 00:22:31,359 Speaker 6: said earlier, on the planet taking care of a loved 422 00:22:31,359 --> 00:22:36,119 Speaker 6: one and it's really difficult, and it's just nice to 423 00:22:36,200 --> 00:22:39,480 Speaker 6: see somebody else doing what you do and going through 424 00:22:39,480 --> 00:22:42,440 Speaker 6: the same struggles that you do, because it's it's tough, 425 00:22:42,600 --> 00:22:46,200 Speaker 6: and I think, I mean, that wasn't my plan in 426 00:22:46,280 --> 00:22:48,399 Speaker 6: the beginning. My plan was in the beginning wasn't to 427 00:22:48,560 --> 00:22:52,440 Speaker 6: reach out to millions of caregivers and you know, be 428 00:22:53,000 --> 00:22:55,359 Speaker 6: a source of inspiration for people. I was just showing 429 00:22:55,359 --> 00:22:57,879 Speaker 6: what it is that I was doing on a daily basis, 430 00:22:57,880 --> 00:23:01,439 Speaker 6: and people just seem to enjoy it. So, you know, 431 00:23:01,480 --> 00:23:03,960 Speaker 6: I get I get feedback from caregivers. I get feedback 432 00:23:03,960 --> 00:23:07,000 Speaker 6: from younger people too, saying that they get inspired to 433 00:23:07,040 --> 00:23:09,439 Speaker 6: help out their grandfather or grandma or parents when they 434 00:23:09,480 --> 00:23:12,800 Speaker 6: get older. So it's really nice to get positive feedback. 435 00:23:13,480 --> 00:23:15,280 Speaker 6: You know, there's a lot of negative feedback too. With 436 00:23:15,359 --> 00:23:17,639 Speaker 6: posting my story online. There's a lot of people saying 437 00:23:17,680 --> 00:23:20,480 Speaker 6: that I'm only doing take I'm only taking care of 438 00:23:20,520 --> 00:23:22,560 Speaker 6: my grandmother for social media, which I think is the 439 00:23:22,560 --> 00:23:26,760 Speaker 6: funniest one to hear because people don't know like what 440 00:23:26,800 --> 00:23:28,920 Speaker 6: it is that goes on behind closed doors. They only 441 00:23:28,920 --> 00:23:32,360 Speaker 6: see a minute or two minutes of my life, and uh, 442 00:23:32,520 --> 00:23:34,480 Speaker 6: you know, in the beginning, it was really difficult to 443 00:23:34,520 --> 00:23:38,199 Speaker 6: hear that because it's like, how could you even think that? 444 00:23:38,280 --> 00:23:40,960 Speaker 6: But now that it's been some time, I can understand 445 00:23:40,960 --> 00:23:43,879 Speaker 6: if if you're randomly scrolling on TikTok or Instagram and 446 00:23:43,920 --> 00:23:47,440 Speaker 6: you see this guy taking care of his grandmother wearing 447 00:23:47,440 --> 00:23:49,480 Speaker 6: a mic, and you think, oh, he only does that 448 00:23:49,760 --> 00:23:52,160 Speaker 6: when the camera's on. When the camera's off, he's off 449 00:23:52,240 --> 00:23:55,520 Speaker 6: living his own life, when really, like I post and 450 00:23:55,600 --> 00:23:58,159 Speaker 6: I'm still at my grandmother's bedside, like you know, and 451 00:23:58,200 --> 00:24:02,440 Speaker 6: we're yeah, so, but I've come to realize that that's 452 00:24:02,480 --> 00:24:04,679 Speaker 6: just how the world is, and that's okay. And I 453 00:24:04,720 --> 00:24:07,520 Speaker 6: wish those people the best because if they were in 454 00:24:07,560 --> 00:24:10,240 Speaker 6: the same situation, they would understand what it is that 455 00:24:10,280 --> 00:24:11,639 Speaker 6: goes on behind closed doors. 456 00:24:12,040 --> 00:24:14,880 Speaker 2: I'm just so impressed that you continue to post anyway. 457 00:24:15,359 --> 00:24:17,879 Speaker 2: I'm not sure I would have the courage to do 458 00:24:18,000 --> 00:24:21,600 Speaker 2: what you're doing and just keep sharing your story. Yeah, 459 00:24:22,160 --> 00:24:24,560 Speaker 2: what you were doing to give care is incredible, but 460 00:24:24,640 --> 00:24:26,280 Speaker 2: what you do to tell your story in the base 461 00:24:26,359 --> 00:24:29,200 Speaker 2: of that negativity is And. 462 00:24:28,600 --> 00:24:31,840 Speaker 1: I think they're so right how lonely and isolating it 463 00:24:31,880 --> 00:24:34,639 Speaker 1: can be. And the internet is the source of a 464 00:24:34,680 --> 00:24:37,040 Speaker 1: lot of bad things in our society. But to be 465 00:24:37,080 --> 00:24:40,160 Speaker 1: able to build a community, be it through a podcast 466 00:24:40,720 --> 00:24:44,080 Speaker 1: or just online content, is a real service I think 467 00:24:44,080 --> 00:24:47,760 Speaker 1: to others, I'm curious about your professional development while you 468 00:24:47,840 --> 00:24:50,959 Speaker 1: were both Adrian, you taking care of your mom, Christy, 469 00:24:51,480 --> 00:24:55,639 Speaker 1: your grandmother. Did you have to put all your career 470 00:24:55,680 --> 00:25:00,359 Speaker 1: aspirations on hold? Were you able to do some I'm 471 00:25:00,440 --> 00:25:04,760 Speaker 1: kind of professional work so that you would stay at 472 00:25:04,840 --> 00:25:07,760 Speaker 1: least connected to your hopes and dreams in a way 473 00:25:07,800 --> 00:25:08,800 Speaker 1: for your own lives. 474 00:25:09,080 --> 00:25:12,119 Speaker 6: I think I lucked out because my goal was to 475 00:25:12,200 --> 00:25:14,800 Speaker 6: make videos for a living, so I went to school 476 00:25:14,800 --> 00:25:17,840 Speaker 6: for visual media, and I guess it only makes sense to, 477 00:25:18,080 --> 00:25:20,800 Speaker 6: you know, document my life and make videos for the internet, 478 00:25:20,920 --> 00:25:25,680 Speaker 6: so you know, in twenty fourteen. It sounds it feels 479 00:25:25,720 --> 00:25:27,359 Speaker 6: weird for me to say, but I've always wanted to 480 00:25:27,400 --> 00:25:30,320 Speaker 6: be like a YouTuber and like making videos for the Internet. 481 00:25:30,840 --> 00:25:33,600 Speaker 6: And I was always fascinated with documenting my life and 482 00:25:33,840 --> 00:25:36,919 Speaker 6: creating little stories here and there. So I think, you know, 483 00:25:36,960 --> 00:25:39,119 Speaker 6: when I became a caregiver, it was only natural for 484 00:25:39,200 --> 00:25:41,880 Speaker 6: me to record what it is that I'm going through. 485 00:25:41,920 --> 00:25:43,800 Speaker 6: And I had no idea that you know, a lot 486 00:25:43,800 --> 00:25:46,399 Speaker 6: of people would gravitate to it. And I think it 487 00:25:46,440 --> 00:25:48,399 Speaker 6: worked out so I didn't have to necessarily put my 488 00:25:48,480 --> 00:25:51,360 Speaker 6: professional life on hold. I was able to build that 489 00:25:51,680 --> 00:25:54,359 Speaker 6: while also you know, having the responsibility of taking care 490 00:25:54,359 --> 00:25:54,960 Speaker 6: of my grandmother. 491 00:25:55,280 --> 00:25:59,040 Speaker 1: That was incredibly serendipitous. What about what about you, Adrian, 492 00:25:59,200 --> 00:26:02,040 Speaker 1: in terms of, you know, what you were planning for 493 00:26:02,080 --> 00:26:02,959 Speaker 1: your own life. 494 00:26:04,040 --> 00:26:06,359 Speaker 5: Yeah. So, like I said, I'm a bit of a 495 00:26:06,359 --> 00:26:07,040 Speaker 5: free spirit. 496 00:26:07,160 --> 00:26:09,720 Speaker 3: So I was kind of hopping around into all of 497 00:26:09,760 --> 00:26:13,439 Speaker 3: these different career fields. I hadn't found a field that 498 00:26:13,520 --> 00:26:16,080 Speaker 3: I loved, and I was like wanting to climb the ranks. 499 00:26:16,080 --> 00:26:19,680 Speaker 3: And so when I moved back to Florida, I had 500 00:26:19,760 --> 00:26:20,840 Speaker 3: a nine to five job. 501 00:26:21,359 --> 00:26:22,159 Speaker 5: I didn't love it. 502 00:26:23,160 --> 00:26:26,000 Speaker 3: Another huge challenge that I was starting to face of 503 00:26:26,080 --> 00:26:27,960 Speaker 3: having a nine to five job and caregiving. 504 00:26:28,000 --> 00:26:29,399 Speaker 5: It's virtually impossible. 505 00:26:29,800 --> 00:26:32,800 Speaker 3: Doctor's appointments don't happen at seven pm, so it was 506 00:26:32,840 --> 00:26:35,920 Speaker 3: like taking multiple hours out of the day to take 507 00:26:35,960 --> 00:26:38,199 Speaker 3: my mom to doctor's appointments when she would end up 508 00:26:38,240 --> 00:26:41,439 Speaker 3: in the hospital, having to take time off work. So 509 00:26:41,720 --> 00:26:44,159 Speaker 3: for me, I was like, why don't I try to 510 00:26:44,200 --> 00:26:48,240 Speaker 3: start something virtually where I can work from anywhere? And 511 00:26:48,520 --> 00:26:52,480 Speaker 3: I started my own project management business, which I was 512 00:26:52,560 --> 00:26:54,000 Speaker 3: very apprehensive about because I was. 513 00:26:54,000 --> 00:26:54,679 Speaker 5: Like, are you crazy? 514 00:26:54,680 --> 00:26:56,800 Speaker 3: You're going to try to start a small business while 515 00:26:56,800 --> 00:26:57,919 Speaker 3: you're caring for your. 516 00:26:57,800 --> 00:26:59,560 Speaker 5: Mom, Like you're out of your mind. 517 00:26:59,560 --> 00:27:02,239 Speaker 3: But I'm an overachiever and I went for it and 518 00:27:02,280 --> 00:27:03,760 Speaker 3: it was one of the best things I could have 519 00:27:03,800 --> 00:27:04,560 Speaker 3: ever done. 520 00:27:04,680 --> 00:27:06,199 Speaker 5: I was able to work virtually, so I. 521 00:27:06,200 --> 00:27:08,000 Speaker 3: Would take as long as I had my laptop and 522 00:27:08,040 --> 00:27:11,000 Speaker 3: a Wi Fi connection. I said, my laptop saw the 523 00:27:11,000 --> 00:27:15,280 Speaker 3: inside of ers and hospitals more than most laptops probably did. 524 00:27:15,320 --> 00:27:18,879 Speaker 3: But it allowed me to continue to build a professional 525 00:27:18,960 --> 00:27:20,159 Speaker 3: career because what I. 526 00:27:20,119 --> 00:27:21,600 Speaker 5: Would always tell myself was. 527 00:27:21,520 --> 00:27:23,080 Speaker 3: That there was going to be a day that my 528 00:27:23,160 --> 00:27:27,240 Speaker 3: mom was no longer here and I needed something. I 529 00:27:27,320 --> 00:27:30,560 Speaker 3: needed something that I could continue to grow once she 530 00:27:30,720 --> 00:27:33,520 Speaker 3: was gone, which so many caregivers don't have that luxury. 531 00:27:33,680 --> 00:27:35,080 Speaker 5: So many caregivers have to put. 532 00:27:34,920 --> 00:27:37,960 Speaker 3: Their life on hold, and then when their loved ones gone, 533 00:27:38,080 --> 00:27:39,760 Speaker 3: they don't even know where to start. They don't know 534 00:27:39,760 --> 00:27:42,680 Speaker 3: where to turn to because for so many years they've 535 00:27:42,680 --> 00:27:44,480 Speaker 3: been out of their social circles, they've been out of 536 00:27:44,520 --> 00:27:48,320 Speaker 3: their professional circles. So I feel very blessed that it 537 00:27:48,359 --> 00:27:49,480 Speaker 3: all happened for a reason. 538 00:27:49,680 --> 00:27:54,520 Speaker 1: And Cilly, I imagine that remote working and more flexibility 539 00:27:55,240 --> 00:28:00,439 Speaker 1: and the workplace is a really helpful development men for 540 00:28:00,560 --> 00:28:03,160 Speaker 1: people who find themselves in these situations. 541 00:28:03,640 --> 00:28:05,960 Speaker 2: I think both remote work and part time like you 542 00:28:06,000 --> 00:28:09,480 Speaker 2: talked about, and finding just different ways to contribute and 543 00:28:09,520 --> 00:28:10,879 Speaker 2: find a way to do that in a way that 544 00:28:10,920 --> 00:28:13,159 Speaker 2: helps you grow and develop, and obviously that helps you 545 00:28:13,200 --> 00:28:15,919 Speaker 2: sustain yourself. We have a world of options now that 546 00:28:15,960 --> 00:28:18,800 Speaker 2: we didn't have twenty or thirty years ago, which maybe 547 00:28:18,800 --> 00:28:19,880 Speaker 2: creates some flexibility. 548 00:28:20,480 --> 00:28:23,280 Speaker 1: I wanted to ask you all about adjusting to life 549 00:28:23,440 --> 00:28:27,000 Speaker 1: after you lost your mom and your grandmother, because I 550 00:28:27,000 --> 00:28:30,639 Speaker 1: imagine it's as big an adjustment as it is to 551 00:28:30,760 --> 00:28:34,520 Speaker 1: becoming a caregiver. Suddenly you find that you no longer 552 00:28:34,600 --> 00:28:38,280 Speaker 1: have the responsibilities that you were so focused on for 553 00:28:38,360 --> 00:28:41,440 Speaker 1: so long. Was that a difficult transition? Adrian? It sounds 554 00:28:41,480 --> 00:28:44,719 Speaker 1: like your small business was really helpful, But just in 555 00:28:44,800 --> 00:28:48,440 Speaker 1: terms of the emotional toll that took, not only are 556 00:28:48,480 --> 00:28:51,520 Speaker 1: you grieving someone your best friend, as you said, but 557 00:28:51,680 --> 00:28:55,640 Speaker 1: suddenly you're like, wait, my life has changed dramatically. The 558 00:28:55,680 --> 00:28:58,240 Speaker 1: structure I knew is suddenly gone. 559 00:28:59,200 --> 00:29:03,800 Speaker 3: Yeah, it was only an interesting transition. After she passed away, 560 00:29:04,040 --> 00:29:07,720 Speaker 3: I think having to deal with grief, although I say 561 00:29:07,840 --> 00:29:09,840 Speaker 3: that I thought I was going to grieve my mom's 562 00:29:09,880 --> 00:29:12,960 Speaker 3: passing a lot more. But once she passed, I learned 563 00:29:12,960 --> 00:29:17,120 Speaker 3: about this term called anticipatory grief, and I recognized that 564 00:29:17,200 --> 00:29:21,240 Speaker 3: I was really grieving her for my entire caregiving journey. 565 00:29:21,880 --> 00:29:25,160 Speaker 3: So having the grief journey that I was on, with 566 00:29:25,200 --> 00:29:27,760 Speaker 3: the recognition that this person was no longer there, I 567 00:29:27,800 --> 00:29:30,040 Speaker 3: wasn't going to see her. I wasn't going to be 568 00:29:30,080 --> 00:29:32,960 Speaker 3: able to touch her, to talk to her, even though 569 00:29:32,960 --> 00:29:35,400 Speaker 3: she never talked back. I mean I talked her ear off, 570 00:29:35,680 --> 00:29:38,000 Speaker 3: performed Broadway reviews for her and her you know, in 571 00:29:38,040 --> 00:29:38,960 Speaker 3: her little apartment. 572 00:29:40,120 --> 00:29:40,920 Speaker 5: That was huge. 573 00:29:41,040 --> 00:29:43,520 Speaker 3: I also, at the time she passed, I had a 574 00:29:43,520 --> 00:29:47,000 Speaker 3: lot of things that were starting to happen. I met 575 00:29:47,000 --> 00:29:51,320 Speaker 3: my now husband, we got engaged, I have a step 576 00:29:51,440 --> 00:29:54,160 Speaker 3: daughter that came into my life, and I truly believe 577 00:29:55,040 --> 00:29:58,400 Speaker 3: my mom wanted to know that I was going to 578 00:29:58,440 --> 00:30:01,520 Speaker 3: be taken care of, and that's when she decided that 579 00:30:01,560 --> 00:30:04,360 Speaker 3: she could let go. And so it was very interesting 580 00:30:04,560 --> 00:30:07,360 Speaker 3: the transition because it's like, on the one hand, I 581 00:30:07,400 --> 00:30:10,360 Speaker 3: was letting go of my best friend and this person 582 00:30:10,440 --> 00:30:12,160 Speaker 3: who had meant the world to me and did so 583 00:30:12,280 --> 00:30:14,560 Speaker 3: much for me, and now I was all of a 584 00:30:14,560 --> 00:30:17,480 Speaker 3: sudden shifting and starting this entirely new life that I 585 00:30:17,520 --> 00:30:20,280 Speaker 3: had to put on hold for so many years. So 586 00:30:20,360 --> 00:30:23,200 Speaker 3: it was a really interesting transition, and I know it 587 00:30:23,280 --> 00:30:24,400 Speaker 3: was all to my mom. 588 00:30:25,160 --> 00:30:28,440 Speaker 1: Chris. For you, you know, suddenly now you're how old 589 00:30:28,600 --> 00:30:33,040 Speaker 1: thirty thirty and you're like, WHOA, I can go out 590 00:30:33,040 --> 00:30:36,360 Speaker 1: and party or whatever it is. I mean, how have 591 00:30:36,400 --> 00:30:38,320 Speaker 1: you adjusted to your new normal? 592 00:30:39,240 --> 00:30:41,120 Speaker 6: Well, I'm still adjusting, and I think i'll. 593 00:30:41,000 --> 00:30:42,640 Speaker 1: Be again because it was so recent. 594 00:30:42,800 --> 00:30:44,360 Speaker 6: Yeah, it happened a couple of weeks ago, So I'm 595 00:30:44,360 --> 00:30:47,000 Speaker 6: still adjusting. And it's interesting that you brought up anticipatory 596 00:30:47,080 --> 00:30:50,840 Speaker 6: grief or grieving. I think that makes so much sense 597 00:30:50,880 --> 00:30:55,040 Speaker 6: to me because at the funeral, I didn't feel of 598 00:30:55,040 --> 00:30:57,080 Speaker 6: course I was sad, but I didn't feel sadness in 599 00:30:57,120 --> 00:30:59,400 Speaker 6: the way that other people felt sadness. At the funeral, 600 00:30:59,760 --> 00:31:04,320 Speaker 6: I felt more so relief, and I because I've anticipated 601 00:31:04,360 --> 00:31:07,520 Speaker 6: this day for so long, and now that it's here, 602 00:31:07,880 --> 00:31:11,000 Speaker 6: I feel I feel relieved, not only for my grandmother 603 00:31:11,040 --> 00:31:12,560 Speaker 6: because she was in so much pain in the last 604 00:31:12,600 --> 00:31:15,240 Speaker 6: four days of her life, but I feel so much 605 00:31:15,280 --> 00:31:17,920 Speaker 6: relief for me and my mother, who was there for 606 00:31:18,000 --> 00:31:20,120 Speaker 6: every step of the way. And I think it's just 607 00:31:20,920 --> 00:31:23,160 Speaker 6: a it's such a relieving feeling to know my grandmother 608 00:31:23,360 --> 00:31:26,480 Speaker 6: is no longer feeling pain and that she doesn't have 609 00:31:26,560 --> 00:31:28,200 Speaker 6: to because she was guilty. You know, in the last 610 00:31:28,240 --> 00:31:30,880 Speaker 6: eight year she she hated people helping her out. She 611 00:31:30,960 --> 00:31:33,000 Speaker 6: was so independent her entire life. She was a teacher 612 00:31:33,040 --> 00:31:36,480 Speaker 6: for twenty years. She immigrated here to the Philippines by herself, 613 00:31:36,720 --> 00:31:39,320 Speaker 6: took all her children with her, and she was such 614 00:31:39,320 --> 00:31:41,640 Speaker 6: a strong and independent woman for most of her life. 615 00:31:41,680 --> 00:31:44,560 Speaker 6: And for her to have somebody by her side twenty 616 00:31:44,600 --> 00:31:47,040 Speaker 6: four to seven, it was something that she never really 617 00:31:47,040 --> 00:31:50,280 Speaker 6: got used to. So knowing that she doesn't have to 618 00:31:50,320 --> 00:31:53,240 Speaker 6: see me every day because she needs help. It's such 619 00:31:53,280 --> 00:31:55,520 Speaker 6: a relieving feeling. So I'm still in the you know, 620 00:31:55,800 --> 00:31:58,360 Speaker 6: in this transition. It's funny that you say, like I 621 00:31:58,400 --> 00:32:00,400 Speaker 6: get to go out and party, because that's every that's 622 00:32:00,440 --> 00:32:02,200 Speaker 6: what everybody assumes, like, Yeah, you get to go out 623 00:32:02,200 --> 00:32:03,800 Speaker 6: to New York and you don't have to go back 624 00:32:03,880 --> 00:32:05,360 Speaker 6: whenever you were since. 625 00:32:05,080 --> 00:32:07,160 Speaker 1: Here from Las Vegas, so he doesn't have to come 626 00:32:07,200 --> 00:32:07,360 Speaker 1: to me. 627 00:32:09,360 --> 00:32:12,120 Speaker 6: So but I don't I feel I don't know. I'm 628 00:32:12,160 --> 00:32:14,959 Speaker 6: still figuring things out. But I do think similar to 629 00:32:15,360 --> 00:32:17,080 Speaker 6: what you were saying about how your mom kind of 630 00:32:17,120 --> 00:32:19,040 Speaker 6: set you up, I feel like my grandmother set me up. 631 00:32:19,320 --> 00:32:21,720 Speaker 6: Because now I have this really large platform of people 632 00:32:21,760 --> 00:32:25,600 Speaker 6: who watch my videos. I can connect with so many 633 00:32:25,640 --> 00:32:29,600 Speaker 6: people across the world, and you know, I think I 634 00:32:29,680 --> 00:32:31,640 Speaker 6: just have so many opportunities in front of me now, 635 00:32:31,640 --> 00:32:33,760 Speaker 6: and I feel like it's my responsibility to be a 636 00:32:33,800 --> 00:32:36,960 Speaker 6: good steward of what happens now and all the whatever 637 00:32:36,960 --> 00:32:39,840 Speaker 6: happens to me financially. I feel responsible to be a 638 00:32:39,840 --> 00:32:42,680 Speaker 6: good steward of that. And because you know, I feel 639 00:32:42,680 --> 00:32:45,040 Speaker 6: like a fish in a fishbowl sometimes because you know, 640 00:32:45,080 --> 00:32:46,880 Speaker 6: so many people are watching what I do every day. 641 00:32:47,240 --> 00:32:50,520 Speaker 6: I do feel a responsibility to not let people down 642 00:32:50,720 --> 00:32:54,240 Speaker 6: and be irresponsible in this transition of my life. 643 00:32:54,320 --> 00:32:57,600 Speaker 1: So that's great. And it's such a neglected space, you know, 644 00:32:57,720 --> 00:33:01,200 Speaker 1: and people need help and guidance, and I think you're 645 00:33:01,240 --> 00:33:05,200 Speaker 1: really filling a knee obviously, and Adrian with your podcast, 646 00:33:05,240 --> 00:33:09,120 Speaker 1: and of course Cilia with the important financial advice you're 647 00:33:09,160 --> 00:33:11,720 Speaker 1: giving people. What is the one thing you wish you 648 00:33:11,760 --> 00:33:14,840 Speaker 1: had known before becoming a caregiver? 649 00:33:16,640 --> 00:33:23,200 Speaker 6: Oh, I wish I would have known that it's amazing 650 00:33:23,240 --> 00:33:25,880 Speaker 6: the things that you'll get used to, because at twenty 651 00:33:25,920 --> 00:33:27,920 Speaker 6: one twenty two, like a twenty one year old is 652 00:33:27,960 --> 00:33:34,480 Speaker 6: not thinking about changing their grandmother's soiled pads or soiled pampers, 653 00:33:34,720 --> 00:33:38,120 Speaker 6: or thinking about giving his grandmother a shower. But I 654 00:33:38,120 --> 00:33:40,479 Speaker 6: think it's incredible the things that you can get used to. 655 00:33:41,160 --> 00:33:43,520 Speaker 6: And I wish I also would have known how fruitful 656 00:33:43,560 --> 00:33:46,560 Speaker 6: this journey was going to be. I was able to 657 00:33:46,880 --> 00:33:49,400 Speaker 6: spend so much time with my grandmother and hear stories 658 00:33:49,400 --> 00:33:51,600 Speaker 6: that I don't think I've ever would have been able 659 00:33:51,640 --> 00:33:53,280 Speaker 6: to hear if I wasn't buy er side. I was 660 00:33:53,320 --> 00:33:55,760 Speaker 6: able to like have breakfast, lunch, and dinner for the 661 00:33:55,800 --> 00:33:59,680 Speaker 6: last eight years with my grandmother, and I think it's 662 00:34:00,440 --> 00:34:02,120 Speaker 6: I feel like I won't meet a lot of people 663 00:34:02,200 --> 00:34:04,880 Speaker 6: that are able to say that, So I think I 664 00:34:04,920 --> 00:34:06,760 Speaker 6: wish I would have known how fruitful. But also at 665 00:34:06,760 --> 00:34:08,640 Speaker 6: the same time, if you would have told me that 666 00:34:08,680 --> 00:34:11,360 Speaker 6: at twenty two, I don't think I would have believed anybody. 667 00:34:11,560 --> 00:34:14,360 Speaker 1: This young man is an angel? Can I just say, like, what? 668 00:34:15,080 --> 00:34:19,080 Speaker 1: Who are you? What about you? Adrian? 669 00:34:19,680 --> 00:34:22,960 Speaker 3: I wish I would have known everything, because there's so 670 00:34:23,120 --> 00:34:27,319 Speaker 3: much like the financial aspect, the social, the emotional navigating 671 00:34:27,520 --> 00:34:30,240 Speaker 3: just this crazy healthcare system of ours. 672 00:34:30,680 --> 00:34:32,600 Speaker 1: Must that must be very frustrating. 673 00:34:33,080 --> 00:34:36,520 Speaker 3: Yeah, I mean it's literally like you feel like you're 674 00:34:36,520 --> 00:34:39,200 Speaker 3: on this deserted island just trying to figure everything out 675 00:34:39,200 --> 00:34:42,799 Speaker 3: for yourself. And I wish I would have known to 676 00:34:43,320 --> 00:34:47,479 Speaker 3: self identify as a caregiver sooner. I wish I would 677 00:34:47,480 --> 00:34:51,080 Speaker 3: have understood what a caregiver was and self identified because 678 00:34:51,120 --> 00:34:54,000 Speaker 3: I feel like I would have tried to seek out 679 00:34:54,080 --> 00:34:58,880 Speaker 3: resources much earlier in my journey because resources exist, but 680 00:34:59,520 --> 00:35:01,279 Speaker 3: unless you you know they're out there, you're never going 681 00:35:01,320 --> 00:35:04,200 Speaker 3: to go looking for them. So I wish I would 682 00:35:04,200 --> 00:35:07,480 Speaker 3: have known that. I wish I would have known just 683 00:35:07,520 --> 00:35:10,520 Speaker 3: how hard it was going to be. I think initially 684 00:35:10,600 --> 00:35:11,759 Speaker 3: I was like, Okay, I'm going to take care of 685 00:35:11,840 --> 00:35:14,200 Speaker 3: my mom. But I think until you're in the depths 686 00:35:14,200 --> 00:35:16,400 Speaker 3: and the throes of it, and there's good days and 687 00:35:16,480 --> 00:35:19,120 Speaker 3: bad days, and you're on these crazy like highs and 688 00:35:19,120 --> 00:35:23,280 Speaker 3: then these insane lows and this constant emotional roller coaster, 689 00:35:23,440 --> 00:35:26,359 Speaker 3: and I say that I developed anxiety, you know, as 690 00:35:26,400 --> 00:35:30,160 Speaker 3: a byproduct of my care journey. I just wish I 691 00:35:30,160 --> 00:35:33,120 Speaker 3: would have known how to just work through the highs 692 00:35:33,160 --> 00:35:35,359 Speaker 3: and lows better. And I wish I would have worked 693 00:35:35,360 --> 00:35:39,919 Speaker 3: on myself more during that period to help just kind 694 00:35:39,920 --> 00:35:40,640 Speaker 3: of not. 695 00:35:40,640 --> 00:35:42,680 Speaker 1: Take care of yourself so you could take care of 696 00:35:42,719 --> 00:35:45,799 Speaker 1: your mom exactly. Yeah, I'm sure that a lot of 697 00:35:45,840 --> 00:35:50,440 Speaker 1: caregivers neglect their own health and well being. And that's 698 00:35:50,880 --> 00:35:54,439 Speaker 1: a really terrible situation because you have to put your own, 699 00:35:54,920 --> 00:35:57,800 Speaker 1: you know, mask on first before you help somebody else. 700 00:35:58,440 --> 00:36:01,920 Speaker 1: Is there a specific conversation, and because I think this 701 00:36:01,960 --> 00:36:05,120 Speaker 1: will be helpful to everyone listening, that you wish you 702 00:36:05,120 --> 00:36:09,440 Speaker 1: would had with your grandmother and your mom before you 703 00:36:09,480 --> 00:36:12,880 Speaker 1: found so you really truly understood their wishes or do 704 00:36:12,920 --> 00:36:17,759 Speaker 1: you feel that you understood without that conversation if you 705 00:36:17,800 --> 00:36:18,480 Speaker 1: had to go back. 706 00:36:19,880 --> 00:36:23,000 Speaker 3: I did not know any of my mom's wishes, and 707 00:36:23,480 --> 00:36:26,719 Speaker 3: that puts such a weight on my shoulders because by 708 00:36:26,760 --> 00:36:30,080 Speaker 3: the time I was having to make these massive executive 709 00:36:30,080 --> 00:36:34,239 Speaker 3: decisions for her, she was not lucid enough to be 710 00:36:34,280 --> 00:36:36,919 Speaker 3: able to truly communicate. I didn't know if my mom 711 00:36:36,960 --> 00:36:39,600 Speaker 3: wanted to be buried or cremated. I didn't know if 712 00:36:39,600 --> 00:36:41,919 Speaker 3: my mom wanted to go in hospice. Like I made 713 00:36:41,920 --> 00:36:45,319 Speaker 3: the decision to put her in hospice, I made the 714 00:36:45,360 --> 00:36:49,480 Speaker 3: decision to send her into hospice inpatient in a hospital 715 00:36:49,560 --> 00:36:52,560 Speaker 3: during COVID in the hopes she would get better. My 716 00:36:52,640 --> 00:36:54,480 Speaker 3: mom maybe would have never wanted to go into a 717 00:36:54,520 --> 00:36:56,440 Speaker 3: hospital and just would have wanted to stay at home, 718 00:36:56,480 --> 00:37:00,680 Speaker 3: and she died in the hospital. So having those cons 719 00:37:00,760 --> 00:37:03,479 Speaker 3: is crucial. I think specifically for us at. 720 00:37:03,400 --> 00:37:06,080 Speaker 5: A younger age. You alluded to it earlier. I think 721 00:37:06,120 --> 00:37:06,520 Speaker 5: you did. 722 00:37:07,200 --> 00:37:11,040 Speaker 3: It's not pretty conversations. No one wants to sit around 723 00:37:11,080 --> 00:37:14,640 Speaker 3: the dinner table and have a conversation about mom. 724 00:37:14,480 --> 00:37:17,240 Speaker 5: Dad, what are your wishes? What do you want? 725 00:37:18,400 --> 00:37:22,080 Speaker 3: And I think it's so essential, and that's probably the 726 00:37:22,160 --> 00:37:25,240 Speaker 3: biggest piece of advice I would give anyone at any age. 727 00:37:25,280 --> 00:37:27,120 Speaker 3: I mean, I was twenty nine. I didn't even think 728 00:37:27,160 --> 00:37:29,800 Speaker 3: about having these conversations. I was like, oh, that's fine. 729 00:37:29,880 --> 00:37:31,840 Speaker 3: My mom's going to live to be in her eighties. 730 00:37:32,200 --> 00:37:34,720 Speaker 3: We don't have to have these conversations for another twenty years. 731 00:37:35,000 --> 00:37:37,400 Speaker 1: I think it's really an act of love actually to 732 00:37:37,440 --> 00:37:41,120 Speaker 1: have these conversations. I remember when my dad died and 733 00:37:41,160 --> 00:37:43,520 Speaker 1: I was walking out of the hospital with my brother 734 00:37:44,080 --> 00:37:46,799 Speaker 1: and I said, Johnny in my dad worked in newspapers, 735 00:37:46,840 --> 00:37:50,279 Speaker 1: and I said, Johnny, we have to write Dad's obituary. 736 00:37:50,880 --> 00:37:53,160 Speaker 1: And he said, oh, Katie, he's already written it. 737 00:37:53,280 --> 00:37:53,840 Speaker 3: Oh wow. 738 00:37:53,920 --> 00:37:57,319 Speaker 1: And I thought that was like such a There was 739 00:37:57,320 --> 00:38:00,160 Speaker 1: so much kindness for him to take care of it. 740 00:38:00,200 --> 00:38:03,040 Speaker 1: So I think you should really look at it as 741 00:38:03,160 --> 00:38:06,160 Speaker 1: taking care of each other and a part of the process. 742 00:38:06,400 --> 00:38:08,920 Speaker 1: Do you wish you had had any conversation with your grandmother? 743 00:38:09,360 --> 00:38:11,239 Speaker 6: I mean I want to say yes, but I don't 744 00:38:11,239 --> 00:38:13,600 Speaker 6: even know what we would what kind of conversation. 745 00:38:13,640 --> 00:38:15,200 Speaker 1: Sounds like you had a lot of conversations. 746 00:38:15,239 --> 00:38:17,120 Speaker 6: I mean, yeah, we did. None of them had anything 747 00:38:17,160 --> 00:38:20,560 Speaker 6: to do with me helping her out, but I. 748 00:38:20,840 --> 00:38:22,800 Speaker 1: Hope it wrote down those stories back. 749 00:38:23,080 --> 00:38:25,279 Speaker 6: Well, yeah, a lot of them are recorded, so good. 750 00:38:25,360 --> 00:38:27,560 Speaker 6: I'm so glad you know. And that's another thing I'll 751 00:38:27,560 --> 00:38:29,439 Speaker 6: get to your question. But I think an amazing thing 752 00:38:29,480 --> 00:38:32,239 Speaker 6: about the videos that I made at the funeral. A 753 00:38:32,239 --> 00:38:34,720 Speaker 6: lot of my cousins were telling me whenever I miss 754 00:38:34,880 --> 00:38:37,600 Speaker 6: our grandmother, I can go through your page and I 755 00:38:37,600 --> 00:38:39,960 Speaker 6: could get a glimpse of how she was in all 756 00:38:40,000 --> 00:38:42,279 Speaker 6: of her teachings. So I think that's an amazing thing 757 00:38:42,280 --> 00:38:44,360 Speaker 6: of you know, documenting life, whether it's on the Internet 758 00:38:44,440 --> 00:38:46,680 Speaker 6: or not. I think it's important to document your life 759 00:38:47,080 --> 00:38:49,400 Speaker 6: just just to have something to look back on. But 760 00:38:49,480 --> 00:38:52,080 Speaker 6: as far as the conversation goes, I mean, I feel 761 00:38:52,200 --> 00:38:54,839 Speaker 6: I still feel really young now and at twenty two 762 00:38:54,880 --> 00:38:56,680 Speaker 6: I had no I don't I don't even know what 763 00:38:56,760 --> 00:39:00,560 Speaker 6: we could have discussed back then to make the the 764 00:39:00,600 --> 00:39:02,520 Speaker 6: next eight years a lot easier. 765 00:39:02,719 --> 00:39:02,839 Speaker 3: Uh. 766 00:39:03,160 --> 00:39:05,279 Speaker 6: You know, It's funny my parents and I joke now 767 00:39:06,080 --> 00:39:08,080 Speaker 6: they say just throw me in a home, and I 768 00:39:08,120 --> 00:39:11,440 Speaker 6: don't think. I don't think I could grant their wish 769 00:39:11,480 --> 00:39:13,880 Speaker 6: of just throwing them in a home and just leaving 770 00:39:13,880 --> 00:39:15,480 Speaker 6: it at that. I know that's, you know, what they 771 00:39:15,680 --> 00:39:16,480 Speaker 6: wish for, but. 772 00:39:16,840 --> 00:39:20,640 Speaker 1: Well maybe they're just kidding. Well, I think when push 773 00:39:20,719 --> 00:39:23,840 Speaker 1: comes to that, they may change their minds. 774 00:39:23,960 --> 00:39:25,600 Speaker 6: Yeah, but I don't Yeah, I don't know what we 775 00:39:25,719 --> 00:39:28,399 Speaker 6: could have discussed to make it different. I think I think, 776 00:39:28,480 --> 00:39:30,040 Speaker 6: you know, we we we took it on a day 777 00:39:30,040 --> 00:39:32,080 Speaker 6: at a time, and I think, uh, it was such 778 00:39:32,080 --> 00:39:34,840 Speaker 6: a huge responsibility that I think just going through the 779 00:39:34,920 --> 00:39:37,040 Speaker 6: motions and figuring it out as I went was the 780 00:39:37,080 --> 00:39:38,600 Speaker 6: best way for us to go about it. 781 00:39:38,680 --> 00:39:43,120 Speaker 1: So, so, Celia and closing, what kind of advice would 782 00:39:43,160 --> 00:39:45,799 Speaker 1: you give? And I guess maybe I'll open it up 783 00:39:45,800 --> 00:39:51,080 Speaker 1: to everybody, to people listening to this about the future 784 00:39:51,560 --> 00:39:56,680 Speaker 1: and if they find themselves in a situation of caring 785 00:39:56,800 --> 00:39:59,520 Speaker 1: for an elderly family member. 786 00:40:00,200 --> 00:40:01,960 Speaker 2: This is a hard space to give advice. But I 787 00:40:01,960 --> 00:40:03,960 Speaker 2: think the couple things I feel like I've gotten from 788 00:40:03,960 --> 00:40:07,880 Speaker 2: this conversation. One is having the conversation right, sort of 789 00:40:07,920 --> 00:40:10,960 Speaker 2: thinking yourself about what you might want for yourself and 790 00:40:11,080 --> 00:40:13,480 Speaker 2: what you want with your family and being willing to 791 00:40:13,480 --> 00:40:16,000 Speaker 2: step into that dialogue is maybe thing one. 792 00:40:16,160 --> 00:40:19,480 Speaker 1: Should you write it down? By the way, it's because well, 793 00:40:19,840 --> 00:40:22,480 Speaker 1: there are all sorts of legal documents, right, what is 794 00:40:22,520 --> 00:40:25,040 Speaker 1: it called when you have a proxy power of attorney, 795 00:40:25,080 --> 00:40:28,319 Speaker 1: et cetera. I mean you probably should have some, but 796 00:40:28,400 --> 00:40:29,880 Speaker 1: that's not your area of expertise. 797 00:40:30,680 --> 00:40:33,080 Speaker 2: I'm not a lawyer, but there is a lot of 798 00:40:33,120 --> 00:40:35,560 Speaker 2: advice about going to either a financial advisor or an 799 00:40:35,600 --> 00:40:37,560 Speaker 2: attorney as you start to kind of think about and 800 00:40:37,600 --> 00:40:40,440 Speaker 2: plan for these sorts of things. But maybe if I 801 00:40:40,440 --> 00:40:43,160 Speaker 2: would actually end with just one thing, the idea that 802 00:40:43,960 --> 00:40:47,600 Speaker 2: the life we live today isn't promised to us, and 803 00:40:47,640 --> 00:40:49,680 Speaker 2: a lot of our parents are living, or our grandparents 804 00:40:49,719 --> 00:40:51,719 Speaker 2: or whoever it is that we love, none of it's 805 00:40:51,719 --> 00:40:53,640 Speaker 2: promised to us. And to be spending a little bit 806 00:40:53,640 --> 00:40:56,840 Speaker 2: of time thinking about putting something aside and planning for 807 00:40:56,920 --> 00:40:59,840 Speaker 2: insurance on the one hand, and then spending time with 808 00:40:59,880 --> 00:41:02,680 Speaker 2: you on the other hand. I mean, that's the thing 809 00:41:02,680 --> 00:41:05,160 Speaker 2: you guys have me thinking about, is like, who am 810 00:41:05,200 --> 00:41:07,200 Speaker 2: I spending time with them? And I'm putting enough time 811 00:41:07,239 --> 00:41:09,560 Speaker 2: in the right places because that's what I'm taking from 812 00:41:09,600 --> 00:41:10,160 Speaker 2: your stories. 813 00:41:10,520 --> 00:41:10,759 Speaker 5: Yeah. 814 00:41:10,960 --> 00:41:13,880 Speaker 3: I always say that one of the biggest silver linings 815 00:41:14,000 --> 00:41:17,160 Speaker 3: in falling into caregiving is I would have never had 816 00:41:17,200 --> 00:41:20,080 Speaker 3: the time that I had with my mom should it 817 00:41:20,120 --> 00:41:23,919 Speaker 3: have not been for caregiving. And maybe that quality time 818 00:41:23,960 --> 00:41:26,000 Speaker 3: looked very different than what it did. 819 00:41:26,320 --> 00:41:30,200 Speaker 5: Before she got sick, but it was still quality time. 820 00:41:30,440 --> 00:41:34,120 Speaker 3: And I will never regret any of that, and having 821 00:41:34,160 --> 00:41:37,200 Speaker 3: that and just recognizing that no one lives forever, saying 822 00:41:37,239 --> 00:41:41,560 Speaker 3: I love you, living without regrets. Having the conversations before 823 00:41:41,600 --> 00:41:45,319 Speaker 3: they're too late, I think is incredibly essential as well. 824 00:41:45,719 --> 00:41:49,359 Speaker 3: And I think preparing for caregiving ahead of time is 825 00:41:49,440 --> 00:41:51,880 Speaker 3: so important. Like I think of so many things like 826 00:41:52,360 --> 00:41:55,000 Speaker 3: the hospice, having to make the executive decision to put 827 00:41:55,000 --> 00:41:57,640 Speaker 3: my mom in hospice, so now here my mom is, 828 00:41:57,719 --> 00:42:00,440 Speaker 3: I don't know how much longer she has left. If 829 00:42:00,440 --> 00:42:03,120 Speaker 3: I would have pre planned and known, okay, when we 830 00:42:03,160 --> 00:42:05,319 Speaker 3: get to this point, hospice is going to be done, 831 00:42:05,360 --> 00:42:08,000 Speaker 3: I know who to contact, this is everything involved, it 832 00:42:08,040 --> 00:42:10,840 Speaker 3: would have alleviated a lot of that emotional stress and 833 00:42:10,880 --> 00:42:15,000 Speaker 3: burden that I was already experiencing. So preparing to care, 834 00:42:15,400 --> 00:42:17,560 Speaker 3: I say this on my podcast. It's my biggest piece 835 00:42:17,560 --> 00:42:18,880 Speaker 3: of advice to young caregivers. 836 00:42:19,200 --> 00:42:20,080 Speaker 5: Prepare to care. 837 00:42:20,760 --> 00:42:23,680 Speaker 3: That's probably one of the biggest things that I would 838 00:42:23,719 --> 00:42:26,960 Speaker 3: recommend to anyone, anyone at any age, no matter who 839 00:42:27,000 --> 00:42:30,360 Speaker 3: you're caring for, even your spouse. People ask me, now, okay, 840 00:42:30,360 --> 00:42:32,400 Speaker 3: so you went through all this with your mom, do 841 00:42:32,480 --> 00:42:33,760 Speaker 3: you have a living will in place? 842 00:42:33,920 --> 00:42:37,000 Speaker 5: Like does your husband know your wishes, and it's crazy 843 00:42:37,200 --> 00:42:39,319 Speaker 5: because I don't have a living will in place. My 844 00:42:39,440 --> 00:42:40,880 Speaker 5: husband doesn't know my wishes. 845 00:42:41,440 --> 00:42:43,880 Speaker 3: So it gets you thinking, and I'm going to go 846 00:42:43,920 --> 00:42:45,440 Speaker 3: back home and have this conversation. 847 00:42:46,239 --> 00:42:48,120 Speaker 1: What about you? Chris? Any advice? 848 00:42:49,080 --> 00:42:51,759 Speaker 6: It's tough because I think, like I said earlier, there's 849 00:42:51,800 --> 00:42:54,440 Speaker 6: nothing that anybody could have told me at twenty two 850 00:42:54,719 --> 00:42:58,400 Speaker 6: to prepare me for the next eight years of my life. 851 00:42:58,440 --> 00:43:01,520 Speaker 6: I do think it's important to have those important conversations. 852 00:43:01,560 --> 00:43:03,880 Speaker 6: I'm having them with my parents now of Okay, do 853 00:43:03,920 --> 00:43:06,200 Speaker 6: you really want to go to a home? Okay, what 854 00:43:06,239 --> 00:43:09,000 Speaker 6: does that look like? And even then, even when you 855 00:43:09,040 --> 00:43:13,319 Speaker 6: do have those important conversations, it's difficult to prepare for 856 00:43:13,400 --> 00:43:16,280 Speaker 6: that emotionally, like you just you don't know. Like people 857 00:43:16,280 --> 00:43:18,640 Speaker 6: would always ask me, so, what's going to happen, you know, 858 00:43:18,680 --> 00:43:21,040 Speaker 6: when you're no longer a caregiver. I would always answer, 859 00:43:21,080 --> 00:43:23,600 Speaker 6: I have no idea, and it's difficult. I would sit 860 00:43:23,640 --> 00:43:27,319 Speaker 6: at night and pray and ask how how do I 861 00:43:27,400 --> 00:43:29,440 Speaker 6: prepare for something like that? And I never got an 862 00:43:29,440 --> 00:43:31,799 Speaker 6: answer because I don't think it's something that you can 863 00:43:31,880 --> 00:43:35,759 Speaker 6: prepare for. You could have logistics setup, but emotionally you 864 00:43:35,840 --> 00:43:38,200 Speaker 6: won't be prepared to see a loved one decline in 865 00:43:38,480 --> 00:43:39,319 Speaker 6: a way that they might. 866 00:43:39,600 --> 00:43:42,440 Speaker 1: It sounds to me that for both of you having 867 00:43:42,480 --> 00:43:47,399 Speaker 1: a community is really important, and Adrian, maybe it would 868 00:43:47,400 --> 00:43:51,040 Speaker 1: have been helpful for you to find a community earlier, 869 00:43:51,480 --> 00:43:54,680 Speaker 1: because I do think talking to people who are going 870 00:43:54,719 --> 00:44:00,680 Speaker 1: through similar experiences can be so comforting and make you 871 00:44:00,760 --> 00:44:04,799 Speaker 1: feel less alone. So whether it's watching videos and being 872 00:44:04,800 --> 00:44:08,520 Speaker 1: a part of a social media or social platform community, 873 00:44:08,600 --> 00:44:11,680 Speaker 1: being part of a podcast community. I'm sure there are 874 00:44:11,760 --> 00:44:15,520 Speaker 1: lots of support groups for caregivers, and we were talking 875 00:44:15,560 --> 00:44:18,719 Speaker 1: before we came on stage that there are a lot 876 00:44:18,719 --> 00:44:22,120 Speaker 1: of resources. You just have to go out and find 877 00:44:22,160 --> 00:44:25,399 Speaker 1: them and utilize them. But I would imagine just being 878 00:44:25,440 --> 00:44:28,399 Speaker 1: able to talk to other people about your experience and 879 00:44:29,160 --> 00:44:32,319 Speaker 1: bitching to them about this, that and the other thing, 880 00:44:32,440 --> 00:44:34,839 Speaker 1: or it could be really therapeutic. 881 00:44:35,200 --> 00:44:39,360 Speaker 3: We were having a conversation earlier, and it's interesting because 882 00:44:40,120 --> 00:44:43,880 Speaker 3: Chris was talking about taking on the responsibility of caring 883 00:44:43,920 --> 00:44:47,120 Speaker 3: for his grandmother and at first he almost said burden. 884 00:44:47,280 --> 00:44:49,239 Speaker 3: I saw like the be and I was like, you 885 00:44:49,280 --> 00:44:52,600 Speaker 3: were going to say burden, weren't you. So it's interesting 886 00:44:52,640 --> 00:44:55,239 Speaker 3: because it's only if you don't if you've been through it, 887 00:44:55,320 --> 00:44:57,839 Speaker 3: Like nobody else knows what this is like unless you've 888 00:44:57,840 --> 00:45:01,200 Speaker 3: been through it, and talking to other caregivers, even talking 889 00:45:01,200 --> 00:45:05,160 Speaker 3: to Chris, it's so validating, like you feel seen, you 890 00:45:05,239 --> 00:45:09,160 Speaker 3: feel heard, you feel less alone. So having that community 891 00:45:09,360 --> 00:45:11,719 Speaker 3: is so essential. That's why I have the podcast. I 892 00:45:11,760 --> 00:45:14,879 Speaker 3: started a private Facebook group for young caregivers where it's 893 00:45:14,880 --> 00:45:18,200 Speaker 3: a safe space to come in to bitch, to vent 894 00:45:18,320 --> 00:45:20,520 Speaker 3: about things that are going on, and know that everyone 895 00:45:20,600 --> 00:45:23,520 Speaker 3: in there can one hundred percent relate and understand. 896 00:45:23,840 --> 00:45:25,880 Speaker 5: It's almost like a huge weight is lifted off of 897 00:45:25,920 --> 00:45:26,600 Speaker 5: your shoulders. 898 00:45:26,920 --> 00:45:30,080 Speaker 3: I call people that I know young caregivers the set 899 00:45:30,080 --> 00:45:31,840 Speaker 3: of friends that I never thought I would have, Like 900 00:45:31,880 --> 00:45:34,920 Speaker 3: you have your childhood friends, your mom friends, but I 901 00:45:34,920 --> 00:45:37,520 Speaker 3: feel like I have these caregiver friends now that will 902 00:45:37,640 --> 00:45:41,080 Speaker 3: understand me like none of my friends ever will. 903 00:45:41,200 --> 00:45:43,279 Speaker 1: Well, Chris and Adrian, I have to say, it's been 904 00:45:43,320 --> 00:45:49,320 Speaker 1: a real honor to talk to to such compassionate, selfless people. 905 00:45:49,760 --> 00:45:52,719 Speaker 1: Thank you both so much, and Celia, thank you so 906 00:45:52,840 --> 00:45:57,440 Speaker 1: much for your sage, wisdom and advice and help in 907 00:45:57,719 --> 00:46:05,120 Speaker 1: helping people navigate what can be a very trying situation emotionally, financially, 908 00:46:05,719 --> 00:46:08,839 Speaker 1: and in sort of all ways, so I really appreciate it. 909 00:46:08,880 --> 00:46:11,279 Speaker 1: Thank you so much for being on Next Question. 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