WEBVTT - Misconception: Money Money Money

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<v Speaker 1>All of our customer service representatives.

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<v Speaker 2>They're currently having others.

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<v Speaker 3>This is what it's always like, well.

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<v Speaker 4>For the next available representatives.

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<v Speaker 5>Before fully committing to this whole egg freezing thing, I

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<v Speaker 5>figured I should probably figure out what it was going

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<v Speaker 5>to cost me. Yeah, it's Kristin Brown, and so I

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<v Speaker 5>called up a fertility benefit provider. Yeah, I am interested

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<v Speaker 5>in egg freezing, and it's my understanding that I can use.

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<v Speaker 5>I never actually did figure out how much it would

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<v Speaker 5>cost me, but I did learn something very interesting. While

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<v Speaker 5>health insurance in the US generally doesn't cover IVF or

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<v Speaker 5>egg freezing, even when it does, there are some big exceptions,

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<v Speaker 5>exceptions that can make it way more expensive. Oh really

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<v Speaker 5>if I did embryos. Oh wow, So it would actually

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<v Speaker 5>potentially be cheaper. If I froze embryos with my partner step,

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<v Speaker 5>the cost of freezing and storing them would be covered.

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<v Speaker 5>If I froze eggs on my own, it wouldn't be.

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<v Speaker 5>I found this shocking. Even with great benefits, my relationship

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<v Speaker 5>status was a potential obstacle to affordable fertility care. It

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<v Speaker 5>was a stark contrast to the image I was seeing online.

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<v Speaker 1>We believe that going to the doctor should feel like

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<v Speaker 1>a visit with a trusted friend. If knowledge is powered,

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<v Speaker 1>then a fertility information shouldn't still be a mystery.

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<v Speaker 5>Our mission is to enable fertility care for all people,

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<v Speaker 5>regardless of age, sexual orientation, gender identity, race, marital status,

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<v Speaker 5>or geography. The fertility themed YouTube videos and Instagram content

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<v Speaker 5>making its way into my feed as a thirty something

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<v Speaker 5>woman made it seem like this whole process would be

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<v Speaker 5>empowering or something. In reality, this was no picnic. Just

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<v Speaker 5>to break it down, freezing eggs would require me to

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<v Speaker 5>self inject high doses of hormones multiple times a day

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<v Speaker 5>to ramp up my egg production. Then a doctor would

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<v Speaker 5>have to surgically remove those eggs in what's known as

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<v Speaker 5>a retrieval to make embryos, those eggs would have to

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<v Speaker 5>be furtile and a lab And if I went down

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<v Speaker 5>the road of doing IVF, that would involve weeks of

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<v Speaker 5>more drugs thawing those embryos, and a doctor implanting them

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<v Speaker 5>in my uterus, which still might not work. And I

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<v Speaker 5>noticed that none of what I was seeing really touched

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<v Speaker 5>on how expensive all of this is. No one seemed

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<v Speaker 5>to want to tell me how much it was going

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<v Speaker 5>to cost. I started to wonder who could afford this?

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<v Speaker 5>On what lengths do people go to when they can't.

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<v Speaker 5>I'm Kristen B. Brown, and this is misconception. Money isn't

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<v Speaker 5>the only problem. Sometimes even getting an infertility diagnosis as

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<v Speaker 5>a major obstacle. That was the case for Regina Townsend.

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<v Speaker 3>My periods were raging, my hormones were out of whack.

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<v Speaker 3>I had mistres cycles that lasted upwards from sixty to

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<v Speaker 3>one hundred days.

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<v Speaker 5>She's telling me about a really frustrating time in her

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<v Speaker 5>early twenties when she was trying and failing to get pregnant.

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<v Speaker 3>It was ridiculous, and I was going back and forth

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<v Speaker 3>to the emergency room and trying to figure out what

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<v Speaker 3>was going on, and I just kept getting told that

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<v Speaker 3>you're thyroid and lose weight.

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<v Speaker 5>It all started because she was on an online message board.

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<v Speaker 5>This is pre Facebook. It was called Chocolate Brides, but

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<v Speaker 5>a lot of people Regina included hung around on the

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<v Speaker 5>site even after they got married.

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<v Speaker 3>They would have like home buying journals and then pregnancy journals,

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<v Speaker 3>and then it would become a point where some people

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<v Speaker 3>were like mentioning that they were having trouble getting pregnant

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<v Speaker 3>and I was like, Oh, that's interesting. I didn't know

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<v Speaker 3>black people dealt with that, or they'd mentioned going to

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<v Speaker 3>a fertility center, and I was like, oh, they must

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<v Speaker 3>have money. That's a thing that we don't do.

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<v Speaker 5>Slowly, she started to connect the dots.

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<v Speaker 3>Maybe those stories that I was hearing from, those are

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<v Speaker 3>the ladies on chocolate brides, aren't just anomalies. Maybe those

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<v Speaker 3>are like real things that are happening to everybody. And

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<v Speaker 3>then I got mad because then I was like, well,

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<v Speaker 3>nobody told me this, and nobody said this was a thing,

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<v Speaker 3>and stereotypically, from what I see, it is presented to

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<v Speaker 3>me as though Black women are hyper fertile and hyper

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<v Speaker 3>sexualized and you need to just monitor your body and

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<v Speaker 3>make sure you don't get pregnant. And I was like,

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<v Speaker 3>but nobody told the whole story.

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<v Speaker 5>In fact, a lot of studies have shown that black

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<v Speaker 5>women have higher infertility rates than white women, much higher,

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<v Speaker 5>but they're less likely to get help. Regina started a

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<v Speaker 5>blog about her experience, the Broken Brown Egg.

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<v Speaker 3>I just started writing things like, you know that aunt

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<v Speaker 3>that never had kids, maybe she couldn't. And I got

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<v Speaker 3>so many private messages from people that were like, oh

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<v Speaker 3>my god, thank you for saying that, because I have

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<v Speaker 3>been dealing with this for years.

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<v Speaker 5>Figuring out the cause of her fertility troubles, though, was

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<v Speaker 5>not straightforward. A doctor who read her blog suggested that

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<v Speaker 5>based on her symptoms, she might have polycystic ovary syndrome

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<v Speaker 5>or PCOS, which can affect fertility. The doctor who was

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<v Speaker 5>treating her dismissed the idea outright. Then there was the

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<v Speaker 5>issue of paying for all the treatment.

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<v Speaker 3>It took ten years to get to our son because

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<v Speaker 3>there was a lot of back and forth. There were

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<v Speaker 3>times where I had insurance and my husband did it.

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<v Speaker 3>There were times where I didn't have insurance. There were

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<v Speaker 3>times where we were trying to figure out how to

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<v Speaker 3>get the thyroid under control. And then also it's a

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<v Speaker 3>lot of waiting game. It's a lot of Okay, we're

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<v Speaker 3>gonna take this medication and then we'll see what happens

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<v Speaker 3>in the next three months. We'll see what happens in

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<v Speaker 3>the next six months, We'll see what. So your time

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<v Speaker 3>is just moving along.

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<v Speaker 5>After six or seven years of trying treatments that never worked,

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<v Speaker 5>Regina found out that her fallopium tubes were blocked. The

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<v Speaker 5>only way she was ever going to get pregnant would

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<v Speaker 5>be IVF. She also found a good doctor who accepted

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<v Speaker 5>her insurance.

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<v Speaker 3>So many years of hurry up and wait, and then

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<v Speaker 3>all of a sudden things just kind of took off,

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<v Speaker 3>and so we did IVF in twenty fifteen, and our

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<v Speaker 3>son was born in twenty sixteen.

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<v Speaker 5>Regina got pregnant just one round of IVF. It's crazy

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<v Speaker 5>to think about everything that she went through. For years.

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<v Speaker 5>She was spending money and time and all these treatments

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<v Speaker 5>that were never going to work, rearranging her life to

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<v Speaker 5>shuttle back and forth to the doctor all the time,

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<v Speaker 5>putting off other major life decisions. It was far too

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<v Speaker 5>long of a journey, and one that's not at all

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<v Speaker 5>uncommon for women of color, whose medical problems are often overlooked. Really, though,

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<v Speaker 5>Regina's story highlights a lot of the different sorts of

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<v Speaker 5>problems we have with fertility care here in the US.

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<v Speaker 5>Given how often she was dismissed, it's kind of amazing

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<v Speaker 5>she's stuck with it at all. Our fertility industry is

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<v Speaker 5>mostly set up to serve people who are white, married, wealthy,

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<v Speaker 5>and heterosexual. Everyone else gets left out in one way

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<v Speaker 5>or another. In some cases, fertility policies exclude LGBTQ people

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<v Speaker 5>by saying the benefits only apply to people who are infertile.

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<v Speaker 5>There have been several discrimination lawsuits filed over this, one

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<v Speaker 5>against ETNA settled in with the insurer agreeing to make

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<v Speaker 5>artificial insemination a standard benefit and make it easier for

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<v Speaker 5>LGBTQ people to do IVF. When asked about the suit,

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<v Speaker 5>ATNA said it's committed to providing quality care to all individuals.

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<v Speaker 5>Only four states in DC have mandates requiring some fertility

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<v Speaker 5>insurance policies to include LGBTQ and single people. That's according

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<v Speaker 5>to the civil rights organization GLAD. And yet in most places,

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<v Speaker 5>whether you need to do IVF because your tubes are

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<v Speaker 5>blocked or you're in a same sex couple, there is

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<v Speaker 5>no coverage for IVF. Private health plans often deem fertility

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<v Speaker 5>treatments not quote medically necessary.

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<v Speaker 3>So many people tell me like that being in this

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<v Speaker 3>journey change is how they navigate, you know, when they're

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<v Speaker 3>applying for jobs and things like that. That I know

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<v Speaker 3>so many people that like leave one job, that go

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<v Speaker 3>work at Starbucks because Starbucks offers the coverage.

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<v Speaker 5>It's hard to know exactly how many people don't have

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<v Speaker 5>coverage because it varies so much depending on where you

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<v Speaker 5>live in work, but it's a lot of people. Only

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<v Speaker 5>about half of large employers offered fertility coverage in twenty

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<v Speaker 5>twenty two, and without coverage, many people find themselves facing

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<v Speaker 5>an impossible choice. Come up with tens of thousands of

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<v Speaker 5>dollars or give up on the family of their dreams.

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<v Speaker 1>We'll be right back.

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<v Speaker 5>The economics of IVA for a little like Russian roulette,

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<v Speaker 5>a high stakes game of chance. How much you're going

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<v Speaker 5>to have to spend is pretty much impossible to pin down.

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<v Speaker 5>There's the cost of office visits and hormone injections and

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<v Speaker 5>drugs and egg retrievals. They're add on tests and procedures

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<v Speaker 5>doctors often suggest. And then once you do it all once,

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<v Speaker 5>you very well might have to do it again and again.

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<v Speaker 4>And so we had to keep spending more and more money.

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<v Speaker 1>Things got more and more expensive.

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<v Speaker 5>I called it like the cults of Never Give Up.

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<v Speaker 4>It was this very urgent laden kind of sales pitch.

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<v Speaker 4>That's what it felt like to me. They kind of

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<v Speaker 4>want to keep you coming back.

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<v Speaker 5>Tens of thousands of dollars.

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<v Speaker 3>There's the coll pays, then there's the medications that you're

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<v Speaker 3>taking up to that. Then there's the gas.

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<v Speaker 4>We're a couple of years in fifteen thousand in five

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<v Speaker 4>value wise, in.

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<v Speaker 1>We're talking about ten to fifteen thousand dollars here.

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<v Speaker 3>People are making major economical decisions based on what's covered

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<v Speaker 3>so that they can build a family.

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<v Speaker 5>Even with good fertility coverage. I was wondering if I

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<v Speaker 5>could afford to freeze. There were some things that weren't covered,

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<v Speaker 5>and no one could give me a real estimate for

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<v Speaker 5>what they might cost. Drugs alone could wind up costing

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<v Speaker 5>a few thousand dollars. Regina told me she raised money

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<v Speaker 5>for uncovered costs by hosting a paintent sip and selling

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<v Speaker 5>T shirts and applying for grants. One industry expert had

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<v Speaker 5>told me I should expect to pay for about a

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<v Speaker 5>third of the total cost out of pocket, whatever that

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<v Speaker 5>mystery number might be. Would that be two thousand dollars

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<v Speaker 5>five thousand more? All I could do was guests. It

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<v Speaker 5>was like applying to college without knowing the price of tuition.

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<v Speaker 5>My own financial woes left me wondering how people without

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<v Speaker 5>fertility benefits paid for all this, which, as I mentioned earlier,

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<v Speaker 5>is the majority of people Katie, while wording, told me

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<v Speaker 5>that she and her husband did all sorts of things

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<v Speaker 5>to come up with the money for IVF.

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<v Speaker 1>So our first thought was we'd go to the bank,

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<v Speaker 1>but the loan percentage was a little more than what

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<v Speaker 1>we were hoping for.

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<v Speaker 5>When embryos got stuck in her fallopian tubes, she wound

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<v Speaker 5>up losing both of them. Doing IVF wound up replacing

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<v Speaker 5>other goals. They put off buying a house, they cut

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<v Speaker 5>back on extras. Even then, they didn't have enough, so

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<v Speaker 5>when the loan didn't work out, they borrowed money from

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<v Speaker 5>their parents. Finally they had enough for one round. They

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<v Speaker 5>live in Iowa and had to drive seven hours to

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<v Speaker 5>their clinic.

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<v Speaker 1>The first round, it was a little over twenty thousand dollars.

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<v Speaker 1>Since we went so far, we had to pay for

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<v Speaker 1>like hotel, stay what not for about two weeks for

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<v Speaker 1>the egg retrieval, so that was about twenty thousand dollars.

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<v Speaker 1>And with the first transfer, we still had to pay

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<v Speaker 1>for our medications and that was about another five grand,

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<v Speaker 1>which was so excessive. I don't think I've ever had

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<v Speaker 1>to call my bank so many times to approve certain purchases.

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<v Speaker 5>For Katie, though one embryo transfer didn't turn out to

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<v Speaker 5>be enough. An embryo implanted in the tiny stump of

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<v Speaker 5>a fallopian tube that she still had left it wasn't

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<v Speaker 5>a viable pregnancy.

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<v Speaker 1>So now we're just kind of on the road of

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<v Speaker 1>doing another transfer after our last failed transfer. But now

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<v Speaker 1>that we've come this far and it's already cost us

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<v Speaker 1>this much, we've kind of reached out to other platforms.

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<v Speaker 5>I guess Katie and her husband decided to try and

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<v Speaker 5>raise money via the crowdfunding platform go fundme because fertility

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<v Speaker 5>treatment is so expensive. Go fundme has a special IVF

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<v Speaker 5>fundraising page that people like Katie and her husband can

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<v Speaker 5>use to seek help from loved ones and even strangers,

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<v Speaker 5>but after several months, they had only raised just over

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<v Speaker 5>two thousand dollars of the more than twenty thousand they

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<v Speaker 5>would need.

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<v Speaker 1>I'm not very good with technology, but my nieces are

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<v Speaker 1>trying to help me go on TikTok and put something

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<v Speaker 1>on there, so that'll be our next thing to try

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<v Speaker 1>to get people to hopefully, you know, reach out and

0:12:13.240 --> 0:12:16.000
<v Speaker 1>help us. My niece has thought where if twenty thousand

0:12:16.000 --> 0:12:18.440
<v Speaker 1>people could give you a dollar, you'd be golden. So

0:12:18.920 --> 0:12:19.800
<v Speaker 1>that's our hope.

0:12:20.280 --> 0:12:22.600
<v Speaker 5>I found a lot of people like Katie on GoFundMe.

0:12:23.360 --> 0:12:26.080
<v Speaker 5>It does hundreds of couples trying to raise money right

0:12:26.280 --> 0:12:29.200
<v Speaker 5>now to have a baby. The company told me that

0:12:29.280 --> 0:12:32.480
<v Speaker 5>nearly ten thousand fertility fundraisers have launched on the site

0:12:32.520 --> 0:12:36.880
<v Speaker 5>since twenty ten, raising more than six point eight million dollars.

0:12:37.360 --> 0:12:39.960
<v Speaker 5>People have to get strategic to figure out how to

0:12:39.960 --> 0:12:43.840
<v Speaker 5>pay for IVF, but I only met one couple who

0:12:43.920 --> 0:12:46.480
<v Speaker 5>actually managed to raise most of the money they needed

0:12:46.480 --> 0:12:51.560
<v Speaker 5>by fundraising. Shae and Tanner write to start a family.

0:12:51.600 --> 0:12:54.800
<v Speaker 5>They were forced to do IVF because Tanner has terminal cancer.

0:12:55.400 --> 0:12:57.199
<v Speaker 5>I talked to Shane Tanner over zoom.

0:12:57.520 --> 0:13:02.200
<v Speaker 6>So Tanner is my husband here. He was diagnosed with

0:13:02.360 --> 0:13:07.440
<v Speaker 6>stage four colon cancer at age twenty five. Tanner really

0:13:07.480 --> 0:13:09.679
<v Speaker 6>wants to be a dad, and I wanted to experience

0:13:09.720 --> 0:13:10.320
<v Speaker 6>that with him.

0:13:10.760 --> 0:13:12.880
<v Speaker 5>I'm talking to both of them, but Shae does most

0:13:12.920 --> 0:13:16.440
<v Speaker 5>of the talking. You can tell Tanner is tired. He's

0:13:16.480 --> 0:13:19.720
<v Speaker 5>reclining against a wall. Tanner for a sperm after he

0:13:19.800 --> 0:13:22.559
<v Speaker 5>was diagnosed. Since treatments like chemo can affect your fertility,

0:13:23.160 --> 0:13:25.680
<v Speaker 5>they only had one sample of tanner sperm, so doctors

0:13:25.720 --> 0:13:29.760
<v Speaker 5>recommended IVF, but their insurance didn't cover anything. Shay was

0:13:29.800 --> 0:13:32.559
<v Speaker 5>already working multiple jobs while also getting a degree in

0:13:32.600 --> 0:13:35.440
<v Speaker 5>marriage and family therapy in her spare time. She came

0:13:35.520 --> 0:13:37.800
<v Speaker 5>up with a creative idea for how to raise the money.

0:13:38.160 --> 0:13:44.440
<v Speaker 6>So we did an IVF auction. We contacted businesses that

0:13:44.559 --> 0:13:47.920
<v Speaker 6>were based in Utah and we just asked if they

0:13:47.920 --> 0:13:51.040
<v Speaker 6>are basically like donating either items or services to her auction.

0:13:51.720 --> 0:13:55.120
<v Speaker 6>So we had a puppy we had like a trip

0:13:55.160 --> 0:13:58.199
<v Speaker 6>to Alaska. Someone donated like a cabin for a week

0:13:58.280 --> 0:14:02.480
<v Speaker 6>in Alaska, and then we held the auction on my

0:14:02.640 --> 0:14:05.839
<v Speaker 6>personal Instagram. That took like seven hours to list them

0:14:05.840 --> 0:14:08.319
<v Speaker 6>all and then for a week the auction was open

0:14:08.400 --> 0:14:11.920
<v Speaker 6>and people were just bidding on the items throughout the week.

0:14:13.280 --> 0:14:15.360
<v Speaker 5>They raised most of the money they needed that way,

0:14:15.840 --> 0:14:19.480
<v Speaker 5>twenty two thousand dollars. They also set up a gofundmeme

0:14:19.560 --> 0:14:21.840
<v Speaker 5>after some people reached out wanting to donate instead of

0:14:21.840 --> 0:14:25.280
<v Speaker 5>making a purchase. Through that, they raised another twelve thousand.

0:14:26.000 --> 0:14:28.800
<v Speaker 6>So it wasn't relieve and I was just shocked at

0:14:29.200 --> 0:14:31.120
<v Speaker 6>all of the generosity of people.

0:14:32.680 --> 0:14:34.840
<v Speaker 5>Shay was able to use social media to raise a

0:14:34.880 --> 0:14:37.680
<v Speaker 5>ton of money and put IVF within reach for her

0:14:37.720 --> 0:14:40.440
<v Speaker 5>and Tanner, but even that might not wind up being

0:14:40.520 --> 0:14:44.200
<v Speaker 5>enough money if, like Katie, they end up needing multiple

0:14:44.280 --> 0:14:48.040
<v Speaker 5>rounds of IVF. Should building a family really be dictated

0:14:48.120 --> 0:14:51.800
<v Speaker 5>by how much money you have? We'll be right back.

0:14:58.520 --> 0:15:01.200
<v Speaker 5>As I got deeper into the process freezing, I was

0:15:01.200 --> 0:15:05.200
<v Speaker 5>starting to realize how insane this whole system seemed. It

0:15:05.240 --> 0:15:07.480
<v Speaker 5>wasn't just the cost and the odds of it not working.

0:15:08.360 --> 0:15:10.920
<v Speaker 5>For example, one of the reasons it's not only expensive

0:15:10.960 --> 0:15:13.720
<v Speaker 5>to get fertility treatment but also hard to get an appointment.

0:15:13.880 --> 0:15:17.080
<v Speaker 5>So there just aren't enough fertility doctors. And that's because

0:15:17.120 --> 0:15:20.840
<v Speaker 5>the number of federally funded fellowships and reproductive endochronology is

0:15:20.960 --> 0:15:23.920
<v Speaker 5>capped each year. Several people told me that there are

0:15:23.960 --> 0:15:27.120
<v Speaker 5>not enough doctors and there aren't enough being trained to

0:15:27.160 --> 0:15:30.720
<v Speaker 5>catch up with the growing demand. I started wondering if

0:15:30.720 --> 0:15:34.160
<v Speaker 5>anyone was approaching things differently, if there was another way

0:15:34.200 --> 0:15:36.920
<v Speaker 5>to do fertility care that might make it more accessible

0:15:36.920 --> 0:15:37.360
<v Speaker 5>to people.

0:15:37.960 --> 0:15:40.640
<v Speaker 6>Please remain seated with your seatbelt securely.

0:15:40.240 --> 0:15:43.840
<v Speaker 5>Fascinating, which brought me to Oklahoma City and to a

0:15:43.880 --> 0:15:46.000
<v Speaker 5>fertility startup called Mate.

0:15:46.160 --> 0:15:47.160
<v Speaker 6>Are you far away from Home?

0:15:47.560 --> 0:15:47.840
<v Speaker 1>Yeah?

0:15:47.840 --> 0:15:49.760
<v Speaker 5>But you know so One of the things I've been

0:15:49.800 --> 0:15:53.640
<v Speaker 5>doing is exploring different options. I'm doing egg freezing, and

0:15:54.440 --> 0:15:57.280
<v Speaker 5>it's so much less expensive here than when I got

0:15:57.360 --> 0:15:59.320
<v Speaker 5>quoted in New York. It's literally half the price.

0:15:59.480 --> 0:16:00.400
<v Speaker 7>A lot of people do that.

0:16:00.440 --> 0:16:03.440
<v Speaker 5>We have people from Washington, Kansas who come here.

0:16:03.680 --> 0:16:05.760
<v Speaker 4>It comes here really because we're cheaper.

0:16:05.960 --> 0:16:09.920
<v Speaker 5>Wow. Maye is focused on three related problems, the cost

0:16:09.920 --> 0:16:13.320
<v Speaker 5>of IVF, the shortage of IVF doctors, and access to

0:16:13.360 --> 0:16:17.160
<v Speaker 5>IVF outside of wealthy, big cities, and its solution to

0:16:17.160 --> 0:16:21.680
<v Speaker 5>those problems. It's sort of radical. It's ruffled a few feathers.

0:16:22.240 --> 0:16:26.600
<v Speaker 5>Instead of hiring fertility doctors, partners with obgyns and trains

0:16:26.640 --> 0:16:30.560
<v Speaker 5>them how to do fertility care. I was intrigued. At

0:16:30.560 --> 0:16:33.920
<v Speaker 5>Maine's Oklahoma location, a freezing cycle was fifty four hundred

0:16:33.920 --> 0:16:38.000
<v Speaker 5>dollars inclusive of everything. That's a lot cheaper than the

0:16:38.080 --> 0:16:41.840
<v Speaker 5>ten thousand I was quoted in New York. My appointment

0:16:42.000 --> 0:16:44.160
<v Speaker 5>started with a nurse taking my vitals.

0:16:45.040 --> 0:16:46.600
<v Speaker 3>I'm going to have you uncrusha way.

0:16:50.480 --> 0:16:51.560
<v Speaker 1>Yeah five.

0:16:52.600 --> 0:16:56.240
<v Speaker 5>Then I saw doctor, I'm just gonna go over your

0:16:56.480 --> 0:16:58.720
<v Speaker 5>history first and then we'll start from there. Okay, okay,

0:16:58.760 --> 0:17:01.000
<v Speaker 5>that sounds good, all right? He told me a little

0:17:01.000 --> 0:17:04.400
<v Speaker 5>bit about what I might expect at my age age.

0:17:04.520 --> 0:17:07.120
<v Speaker 2>I'm going to show you a little graph here.

0:17:09.200 --> 0:17:11.800
<v Speaker 4>Thirty seven years of age, your chances of having a

0:17:11.800 --> 0:17:13.800
<v Speaker 4>abnormal embryo is about forty percent.

0:17:14.440 --> 0:17:17.359
<v Speaker 5>That number drived with other datea I had seen. I

0:17:17.400 --> 0:17:19.719
<v Speaker 5>definitely didn't feel like I was getting the candy coated

0:17:19.800 --> 0:17:22.879
<v Speaker 5>version of things. When I was there, the Oklahoma office

0:17:22.920 --> 0:17:26.320
<v Speaker 5>was in the midst of a major expansion. Oklahoma City

0:17:26.320 --> 0:17:28.879
<v Speaker 5>has just one other fertility clinic, so there's a lot

0:17:28.920 --> 0:17:32.000
<v Speaker 5>of potential demand on top of the patient's mates getting

0:17:32.000 --> 0:17:34.800
<v Speaker 5>from all over the country. For the big picture, I

0:17:34.800 --> 0:17:37.960
<v Speaker 5>caught up with Mate CEO Tracy Keene. She told me

0:17:38.000 --> 0:17:39.760
<v Speaker 5>that the company is trying to figure out how to

0:17:39.760 --> 0:17:42.840
<v Speaker 5>meet demand that the industry just can't currently serve.

0:17:43.200 --> 0:17:46.280
<v Speaker 4>The industry was built as a niche for high net

0:17:46.280 --> 0:17:49.600
<v Speaker 4>worth individuals. This industry wasn't built to accommodate the fact

0:17:49.600 --> 0:17:52.840
<v Speaker 4>that roughly thirty percent of the population probably needs some

0:17:52.920 --> 0:17:55.080
<v Speaker 4>form of intervention at this juncture.

0:17:55.440 --> 0:18:00.080
<v Speaker 5>This system is backed up. I experienced this firsthand. One

0:18:00.160 --> 0:18:02.520
<v Speaker 5>budget fertility chain I looked into had a two month

0:18:02.560 --> 0:18:06.600
<v Speaker 5>wait for just an initial phone consultation. Actually signed up

0:18:06.600 --> 0:18:10.000
<v Speaker 5>for a consultation and paid a deposit and they never

0:18:10.160 --> 0:18:11.359
<v Speaker 5>called me Mate.

0:18:11.400 --> 0:18:13.960
<v Speaker 4>It's focusing on the supply side of the issues. When

0:18:14.000 --> 0:18:16.840
<v Speaker 4>I say supply side, I mean fundamentally, there aren't enough

0:18:16.840 --> 0:18:20.040
<v Speaker 4>providers and there aren't enough clinics to meet the demand.

0:18:20.359 --> 0:18:23.919
<v Speaker 4>There were two point seven million cycles that didn't occur

0:18:24.800 --> 0:18:28.040
<v Speaker 4>that needed to in twenty twenty one. There are more

0:18:28.080 --> 0:18:32.159
<v Speaker 4>reproductive andnochronologists retiring than are graduating from the Fellowship on

0:18:32.160 --> 0:18:36.040
<v Speaker 4>an annual basis. And so the model was really built

0:18:36.080 --> 0:18:38.240
<v Speaker 4>in this way to say, Okay, how do we enable

0:18:38.320 --> 0:18:40.560
<v Speaker 4>everyone to practice at the top of their license.

0:18:41.000 --> 0:18:44.680
<v Speaker 5>Tracy told me that by hiring obgins to do fertility care,

0:18:45.119 --> 0:18:47.720
<v Speaker 5>they were able to not only drop prices, but open

0:18:47.760 --> 0:18:50.879
<v Speaker 5>in cities where there are fewer options, like Oklahoma City

0:18:51.000 --> 0:18:52.119
<v Speaker 5>and Waco, Texas.

0:18:52.480 --> 0:18:53.639
<v Speaker 3>Mate's model.

0:18:53.840 --> 0:18:57.639
<v Speaker 4>We're not doing high volume centers. We're partnering with individual

0:18:57.680 --> 0:19:00.520
<v Speaker 4>practices to build a practice that will do, you know,

0:19:00.560 --> 0:19:03.399
<v Speaker 4>five hundred cycles a year. So when people want to

0:19:03.440 --> 0:19:06.600
<v Speaker 4>talk about, you know, what's your competition, I'm like, the

0:19:06.640 --> 0:19:09.399
<v Speaker 4>sky is the limit here. We could build thousands of

0:19:09.440 --> 0:19:11.600
<v Speaker 4>these and there would still be more people who need

0:19:11.640 --> 0:19:12.440
<v Speaker 4>access to care.

0:19:12.880 --> 0:19:15.120
<v Speaker 5>I talked to several patients who said they were only

0:19:15.160 --> 0:19:18.679
<v Speaker 5>able to afford treatment they needed at ME. One patient

0:19:18.720 --> 0:19:21.400
<v Speaker 5>even drove to Oklahoma City from Texas to do IVF

0:19:22.040 --> 0:19:24.720
<v Speaker 5>meet has attracted a fair amount of criticism, though. When

0:19:24.760 --> 0:19:28.159
<v Speaker 5>I asked the professional group that oversees fertility doctors about METE,

0:19:28.280 --> 0:19:30.520
<v Speaker 5>they told me they were concerned that patients wouldn't be

0:19:30.520 --> 0:19:33.320
<v Speaker 5>getting the level of care and expertise they needed from

0:19:33.359 --> 0:19:36.240
<v Speaker 5>an obgun that had limited fertility training.

0:19:36.720 --> 0:19:38.520
<v Speaker 3>It's like a lot of kinds of medicine.

0:19:38.560 --> 0:19:40.399
<v Speaker 4>There's a lot of stuff your internists can do for you,

0:19:41.359 --> 0:19:43.359
<v Speaker 4>there's a lot of stuff they can't, or that a

0:19:43.400 --> 0:19:44.560
<v Speaker 4>specialist would do better.

0:19:45.320 --> 0:19:46.680
<v Speaker 5>So I don't think we have.

0:19:48.280 --> 0:19:51.400
<v Speaker 3>Dat yet that says, okay, which steps are really appropriate

0:19:51.480 --> 0:19:53.640
<v Speaker 3>for somebody who's in OBJN.

0:19:54.000 --> 0:19:56.919
<v Speaker 5>That's Sean Tipton, the head of advocacy and policy for

0:19:56.960 --> 0:20:00.600
<v Speaker 5>that fertility doctor's group. One day he said roles like

0:20:00.680 --> 0:20:03.680
<v Speaker 5>nurse practitioners might be able to help satisfy that demand.

0:20:04.320 --> 0:20:07.119
<v Speaker 5>Typically those jobs still work under the supervision of an

0:20:07.119 --> 0:20:07.879
<v Speaker 5>expert doctor.

0:20:08.359 --> 0:20:10.240
<v Speaker 4>I don't think we know yet what the right answers

0:20:10.240 --> 0:20:10.840
<v Speaker 4>are going to be.

0:20:11.400 --> 0:20:14.280
<v Speaker 5>Tracy finds this argument a bit old fashioned, though.

0:20:14.280 --> 0:20:17.679
<v Speaker 4>We have babies being born, we have good clinical pregnancy rates.

0:20:17.800 --> 0:20:22.679
<v Speaker 4>As we expand to new markets geographically throughout the United States,

0:20:22.720 --> 0:20:24.960
<v Speaker 4>I think we're going to get a much different picture

0:20:25.200 --> 0:20:27.960
<v Speaker 4>of what infertility really looks like in this country.

0:20:28.520 --> 0:20:31.440
<v Speaker 5>For example, Tracy said, the average age of an IVF

0:20:31.480 --> 0:20:34.320
<v Speaker 5>patient at MAATE is a lot lower than the national average,

0:20:34.520 --> 0:20:35.840
<v Speaker 5>which is thirty six point three.

0:20:36.240 --> 0:20:38.840
<v Speaker 4>Our average patient age in Oklahoma City is thirty and

0:20:38.880 --> 0:20:42.439
<v Speaker 4>a half. That's very different. There's a lot that we

0:20:42.520 --> 0:20:43.000
<v Speaker 4>don't know.

0:20:44.800 --> 0:20:47.399
<v Speaker 5>It's actually hard to say whether infertility is really on

0:20:47.440 --> 0:20:50.160
<v Speaker 5>the rise or if there's just some combination of more

0:20:50.200 --> 0:20:53.760
<v Speaker 5>awareness of infertility and people starting families later in life.

0:20:54.200 --> 0:20:56.680
<v Speaker 5>What's for certain is that the number of people seeking

0:20:56.720 --> 0:21:01.400
<v Speaker 5>out treatments for infertility has risen twenty twenty one. According

0:21:01.400 --> 0:21:04.520
<v Speaker 5>to the CDC, nearly two hundred and forty thousand patients

0:21:04.560 --> 0:21:08.840
<v Speaker 5>underwent freezing or IVF cycles. More than ninety thousand idea

0:21:08.880 --> 0:21:12.119
<v Speaker 5>of babies were born. The government's latest data shows the

0:21:12.160 --> 0:21:15.240
<v Speaker 5>number of fertility procedures has risen pretty much every year,

0:21:15.920 --> 0:21:19.159
<v Speaker 5>save for a dip during the pandemic. May isn't the

0:21:19.200 --> 0:21:22.440
<v Speaker 5>only company I found coming up with truly novel approaches

0:21:22.480 --> 0:21:25.879
<v Speaker 5>to solving the problem of access to fertility treatment. Another

0:21:25.920 --> 0:21:28.720
<v Speaker 5>one was cofertility, which allows women to freeze their eggs

0:21:28.720 --> 0:21:31.240
<v Speaker 5>for free if they donate half of them to another family.

0:21:32.000 --> 0:21:35.160
<v Speaker 5>It's not clear whether co or mate or anyone has

0:21:35.200 --> 0:21:38.359
<v Speaker 5>come up with the right solution yet. What is clear, though,

0:21:38.480 --> 0:21:41.400
<v Speaker 5>is that many people are struggling to figure out how

0:21:41.400 --> 0:21:48.640
<v Speaker 5>to pay for a family. One of the wildest things

0:21:48.680 --> 0:21:51.639
<v Speaker 5>I learned reporting this podcast is how often we just

0:21:51.720 --> 0:21:55.840
<v Speaker 5>have no idea why someone can't get pregnant. There are

0:21:55.880 --> 0:21:58.560
<v Speaker 5>just so many ways in which the female reproductive system

0:21:58.680 --> 0:22:02.160
<v Speaker 5>is still a black box. In my reporting, I came

0:22:02.200 --> 0:22:04.639
<v Speaker 5>across so many people who spent tens of thousands of

0:22:04.720 --> 0:22:08.400
<v Speaker 5>dollars and never found out what was wrong. I kept

0:22:08.400 --> 0:22:11.520
<v Speaker 5>thinking about this one woman, yes in upstate New York.

0:22:12.240 --> 0:22:14.800
<v Speaker 5>She did thirteen rounds of IBF and never had a

0:22:14.840 --> 0:22:20.359
<v Speaker 5>sustainable pregnancy. Doctors just kept tweaking her IVF protocol every time.

0:22:20.560 --> 0:22:23.879
<v Speaker 5>Jess convinced herself that this would be the time it worked,

0:22:24.440 --> 0:22:28.679
<v Speaker 5>that the new formula was the winning formula. Something like

0:22:28.760 --> 0:22:32.520
<v Speaker 5>thirty percent at the time. The cause of infertility remains unidentified,

0:22:33.080 --> 0:22:36.440
<v Speaker 5>so often we're paying for treatment with really no idea

0:22:36.560 --> 0:22:39.800
<v Speaker 5>of whether it will work. She spent over one hundred

0:22:39.840 --> 0:22:43.480
<v Speaker 5>thousand dollars. Eventually, she told me her body was just

0:22:43.520 --> 0:22:46.280
<v Speaker 5>so broken that she and her husband decided to reimagine

0:22:46.280 --> 0:22:50.000
<v Speaker 5>life as a childless couple and they were happy. A

0:22:50.000 --> 0:22:52.960
<v Speaker 5>few years later, she had her uterus removed, and doctors

0:22:52.960 --> 0:22:55.040
<v Speaker 5>told her that it was unlikely she would have ever

0:22:55.080 --> 0:22:59.400
<v Speaker 5>been able to have children anyway. So many people described

0:22:59.400 --> 0:23:03.439
<v Speaker 5>to me feel isolated and in the dark. That's definitely

0:23:03.480 --> 0:23:05.720
<v Speaker 5>how I was feeling after I found out it would

0:23:05.720 --> 0:23:09.960
<v Speaker 5>be more expensive to freeze eggs than embryos. Stuw happened

0:23:10.000 --> 0:23:12.080
<v Speaker 5>to be visiting at the time, so I told him

0:23:12.119 --> 0:23:15.280
<v Speaker 5>about it. At that point, I hadn't shared many details

0:23:15.320 --> 0:23:17.880
<v Speaker 5>with him because when I started thinking about all this,

0:23:18.160 --> 0:23:21.240
<v Speaker 5>I thought I'd be freezing eggs on my own, and

0:23:21.280 --> 0:23:24.399
<v Speaker 5>I honestly didn't know when in a relationship it's appropriate

0:23:24.440 --> 0:23:29.719
<v Speaker 5>to discuss freezing embryos together. Now upside down industry economics

0:23:29.720 --> 0:23:34.200
<v Speaker 5>were forcing Stu and I to make major relationship decisions. Okay,

0:23:34.320 --> 0:23:39.679
<v Speaker 5>that was very interesting. Basically, we do need to have

0:23:39.720 --> 0:23:43.040
<v Speaker 5>a conversation on eggs versus embryos because it might be

0:23:43.200 --> 0:23:47.879
<v Speaker 5>cheaper to freeze embryos because this is so the first

0:23:47.920 --> 0:23:53.439
<v Speaker 5>most frustrating thing was that they couldn't tell me how

0:23:53.520 --> 0:23:56.480
<v Speaker 5>much it costs. Still, like that's what that call was

0:23:56.480 --> 0:23:58.480
<v Speaker 5>supposed to be about. And she was like, really, only

0:23:58.520 --> 0:24:00.800
<v Speaker 5>the doctor can tell you. And then the doctor can't

0:24:00.800 --> 0:24:02.600
<v Speaker 5>tell you how much of the medications cost, which the

0:24:02.640 --> 0:24:05.800
<v Speaker 5>medications are a huge cost, like out of pocket, there's

0:24:05.840 --> 0:24:10.600
<v Speaker 5>six thousand dollars. So I don't know, what do you.

0:24:10.600 --> 0:24:11.280
<v Speaker 4>Think about that?

0:24:12.000 --> 0:24:14.600
<v Speaker 7>I mean, it's kind of a lot to kind of

0:24:14.800 --> 0:24:16.600
<v Speaker 7>have to make a decision on, isn't it.

0:24:16.600 --> 0:24:17.359
<v Speaker 3>It's all.

0:24:18.640 --> 0:24:23.800
<v Speaker 7>All slightly terrifying. Yeah, especially given that you know we're

0:24:24.600 --> 0:24:26.040
<v Speaker 7>we're not even in the same place.

0:24:26.359 --> 0:24:30.000
<v Speaker 5>Maybe maybe you would be by that, I would hope.

0:24:30.040 --> 0:24:34.439
<v Speaker 5>So I don't know, what do you think, Like, do

0:24:34.480 --> 0:24:36.120
<v Speaker 5>you want to have children together?

0:24:38.440 --> 0:24:42.760
<v Speaker 7>Can? Yeah? It's I mean, I like, at some point

0:24:42.840 --> 0:24:46.320
<v Speaker 7>down the line, but I realized that, like time isn't

0:24:46.359 --> 0:24:47.520
<v Speaker 7>on our side with that.

0:24:47.640 --> 0:24:49.320
<v Speaker 5>But it is on our side if we do this.

0:24:49.560 --> 0:24:53.439
<v Speaker 7>Yeah, eat, it buys, it buys like more, maybe it

0:24:53.480 --> 0:24:55.000
<v Speaker 7>maybe buys a windows.

0:24:55.080 --> 0:24:59.880
<v Speaker 5>It buys better odds, you know, but again, no guarantees. Yeah,

0:25:00.880 --> 0:25:03.720
<v Speaker 5>this was definitely one of the most awkward moments in

0:25:03.760 --> 0:25:07.159
<v Speaker 5>our relationship. I still can't believe he let me tape it.

0:25:08.520 --> 0:25:10.399
<v Speaker 7>So this is just like a lot of it's a

0:25:10.400 --> 0:25:11.200
<v Speaker 7>lot to take in.

0:25:11.600 --> 0:25:15.960
<v Speaker 5>I mean, I'm like, how do we even decide? I

0:25:16.040 --> 0:25:18.040
<v Speaker 5>turned off the recorder for Stu to tell me how

0:25:18.080 --> 0:25:21.720
<v Speaker 5>he was really feeling. To my relief, he was in.

0:25:22.840 --> 0:25:26.080
<v Speaker 5>So there, I was diving headfirst into something I wasn't

0:25:26.080 --> 0:25:29.320
<v Speaker 5>even sure I was sold on. Now I needed to

0:25:29.320 --> 0:25:32.080
<v Speaker 5>figure out where we were going to freeze these embryos,

0:25:32.600 --> 0:25:35.360
<v Speaker 5>and that decision, well, it turned out to be almost

0:25:35.359 --> 0:25:37.639
<v Speaker 5>as scary as figuring out whether to freeze in the

0:25:37.640 --> 0:25:38.240
<v Speaker 5>first place.

0:25:38.800 --> 0:25:44.240
<v Speaker 2>The issue of fertility misconduct, injuries, mishaps at fertility clinics

0:25:44.280 --> 0:25:47.560
<v Speaker 2>and you know, almost always in the labs of fertility clinics,

0:25:47.680 --> 0:25:51.520
<v Speaker 2>is a much larger issue than any of us knows,

0:25:51.760 --> 0:25:52.720
<v Speaker 2>including myself.

0:25:53.240 --> 0:25:55.480
<v Speaker 7>You have all these sacuity feelings, and so it's a

0:25:55.560 --> 0:25:57.240
<v Speaker 7>kind of psychological manoeuvery.

0:25:57.800 --> 0:26:04.560
<v Speaker 5>That's next time on Misconception. This series was written and

0:26:04.640 --> 0:26:07.840
<v Speaker 5>reported by me Christen V. Brown. It was produced by

0:26:07.920 --> 0:26:11.400
<v Speaker 5>Jilda Decarly and Stacy Wong, and edited by Cynthia Koons.

0:26:11.800 --> 0:26:15.359
<v Speaker 5>Additional research was done by Tana's mcjohnny. It was engineered

0:26:15.359 --> 0:26:19.160
<v Speaker 5>by Blake Maples. Our theme music was composed and performed

0:26:19.160 --> 0:26:23.080
<v Speaker 5>by Hannes Brown. Special thanks to Shelly Banjo, Randy Shapiro,

0:26:23.240 --> 0:26:27.879
<v Speaker 5>Anna Maazarakis, Jeff Grocott, Lauras Alenko, and Creighton Harrison. Sage

0:26:27.880 --> 0:26:32.000
<v Speaker 5>Bauman is Bloomberg's head of podcasts. Thanks for listening. If

0:26:32.040 --> 0:26:34.119
<v Speaker 5>you want to binge the whole series early, go to

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<v Speaker 5>release a new episode each week. See you next time.