WEBVTT - Donald on the Move

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<v Speaker 1>This episode contains scenes from arrests and harassment of people

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<v Speaker 1>with autism.

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<v Speaker 2>While factual, some listeners may find the audio disturbing.

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<v Speaker 3>Please take care when listening.

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<v Speaker 4>Donald Triplet's golf swing begins with his thumbs standing a

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<v Speaker 4>little too far away from the ball, with his legs

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<v Speaker 4>spread wide like the letter A. Donald licks the pad

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<v Speaker 4>of each thumb, first the left and then the right,

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<v Speaker 4>before he wraps his fingers in a full grip. Then

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<v Speaker 4>he lifts the club over his head as though he's

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<v Speaker 4>hanging a banner. He holds that pose for a moment,

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<v Speaker 4>and then he heaves the club head in an arc

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<v Speaker 4>back to earth until it lands between his feet and stops.

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<v Speaker 4>Then he haanks it back above his head again and pauses,

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<v Speaker 4>and with one final stroke he commits to contact.

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<v Speaker 1>The ball is gone and Donald, bouncing at the knees,

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<v Speaker 1>peers down the fairway admiring his shot.

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<v Speaker 5>Don has a really unique waggle and swaying, and if

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<v Speaker 5>you've ever watched him go through the motions of that,

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<v Speaker 5>it's difficult to tuck your eyes away.

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<v Speaker 1>That's Sid Salter. He's the former publisher of the Scott

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<v Speaker 1>County Times. He's known Donald for years.

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<v Speaker 5>After all of that's over, he hits it right down

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<v Speaker 5>the middle of the fairway. Don is remarkably good golfer,

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<v Speaker 5>given the fact that he goes through all these gyrotions

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<v Speaker 5>before he makes contact with the ball.

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<v Speaker 4>For decades, it was a given that there was only

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<v Speaker 4>one place you were going to find Donald in the afternoon,

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<v Speaker 4>Forrest Country Club.

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<v Speaker 1>The first time we accompanied Don to the golf course

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<v Speaker 1>a few years back, he wore baggy khaki shorts and

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<v Speaker 1>a Queen Nit shirt with a bucket hat in pink

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<v Speaker 1>camouflage pulled down tight over his ears.

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<v Speaker 4>Forrest Country Club is not a pretentious place, for one thing.

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<v Speaker 4>Membership is actually pretty affordable, and the brick clubhouse fronts

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<v Speaker 4>on a well cared for but mostly flat course that's

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<v Speaker 4>been carved out of the Mississippi Woods. Given day, the

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<v Speaker 4>roster of players you meet out in the fairways includes

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<v Speaker 4>lawyers and mechanics, bankers and truckers, salesmen and farmers, and

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<v Speaker 4>of course Donald, here's it again.

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<v Speaker 5>And you know, golf courses, particularly rural South golf courses,

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<v Speaker 5>a lot of the colloquialism in the South is jinking.

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<v Speaker 5>You know, you're giving somebody a hard time criticizing their shot,

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<v Speaker 5>picking at him about not making a put. Don not

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<v Speaker 5>only participates in that in his way, but he sort

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<v Speaker 5>of good naturedly accepts it and kind of gives as

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<v Speaker 5>good as he takes.

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<v Speaker 4>So you have golfed with him?

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<v Speaker 5>Oh yeah, quite Frankly, I didn't play with Donald Lote

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<v Speaker 5>because I got tired of getting the beat. I couldn't

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<v Speaker 5>stand the heat.

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<v Speaker 1>From iHeart podcasts. This is Autism's first child. I'm John

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<v Speaker 1>Don and I'm Karen Zucker.

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<v Speaker 4>Episode five, Donald on the Move.

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<v Speaker 1>Golf plays a huge role in the story of Donald's life.

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<v Speaker 4>Donald started playing back in nineteen fifty six, when he

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<v Speaker 4>was twenty three years old, just out of college. He

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<v Speaker 4>had steady employment at the bank at that time, and

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<v Speaker 4>he had a roof over his head, living with his parents,

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<v Speaker 4>still in his childhood bedroom.

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<v Speaker 1>He quickly fell in love with the game. It's not

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<v Speaker 1>hard to see why the game plays to so much

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<v Speaker 1>of the things that make him comfortable, you know.

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<v Speaker 4>Think about it. Golf has a certain kind of sameness

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<v Speaker 4>built right into it. Basically, as a player, you're doing

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<v Speaker 4>the same thing over and over and over again.

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<v Speaker 1>Swinging a club at the ball, and the ball just

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<v Speaker 1>sits there, it doesn't move until you move it.

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<v Speaker 4>And there's no clock getting pressure to get it done.

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<v Speaker 4>You can play the game entirely at your own pace.

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<v Speaker 1>It's consistent and you are in control of every movement.

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<v Speaker 4>Plus there are numbers involved. Fifth green, eighteenth green, three handicap,

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<v Speaker 4>one under par, one over par, hole in one.

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<v Speaker 1>It's a game of routine and ritual. Every hole starts

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<v Speaker 1>with a t shot, Every round ends in the same place.

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<v Speaker 4>Sid told us that Donald could take or leave the

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<v Speaker 4>whole social part of the game. In fact, most of

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<v Speaker 4>the time Donald golfed alone. Sid thinks that for Donald

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<v Speaker 4>it's a sport he was most interested in playing within himself.

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<v Speaker 1>Now that sounds abstract, but I know what Sid means.

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<v Speaker 1>When Donald plays golf, he is seeking something. It's an

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<v Speaker 1>activity that brings him fulfillment and meaning.

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<v Speaker 4>You know, some of the people on the autism spectrum

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<v Speaker 4>whom we've met in our reporting talk about finding that

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<v Speaker 4>one thing that pursuit that winds up being all important

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<v Speaker 4>because it brings comfort and meaning to life and even

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<v Speaker 4>a relationship to the world around them.

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<v Speaker 1>And for some people it's about finding a way to

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<v Speaker 1>connect to the people around them.

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<v Speaker 4>Amy Gravino, whom you met in an early episode, is

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<v Speaker 4>one of those people who was able to realize she

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<v Speaker 4>had that thing that allowed her to just be her.

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<v Speaker 6>I was this misshapen ball of dough that hadn't had

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<v Speaker 6>yet to be baked, if you will, and so I

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<v Speaker 6>couldn't offer an opinion on myself that didn't come from

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<v Speaker 6>someone else the one outlet I had, I would say,

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<v Speaker 6>because I did have an outlet, I did have a

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<v Speaker 6>way that I was able to kind of tap into

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<v Speaker 6>whoever that Amy Garvino wasn't there. And that was the writing.

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<v Speaker 6>And I began writing when I was ten years old,

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<v Speaker 6>and it was poetry. Initially it was like a valve

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<v Speaker 6>opening up and giving me a way to kind of

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<v Speaker 6>just let go of all the things that I was feeling.

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<v Speaker 6>But it was one thing that I was good at, apparently,

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<v Speaker 6>you know. My parents would send my poems into the

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<v Speaker 6>local paper, and it was something that finally I could

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<v Speaker 6>actually be good at.

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<v Speaker 1>And our brilliant friend John Robison's account of using his

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<v Speaker 1>intense interest to navigate the world is especially resident.

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<v Speaker 4>You really cannot pigeonhole John Robison. So he's designed electronic

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<v Speaker 4>games for Milton Bradley, and he's also designed guitars for

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<v Speaker 4>rock stars. He runs a high end car restoration business.

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<v Speaker 4>He's also an author and a speaker and a neurodiversity scholar,

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<v Speaker 4>and for a long time he was an activist who

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<v Speaker 4>did research and produced reports for big government agencies.

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<v Speaker 2>Well, for all of my life, before I knew about autism,

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<v Speaker 2>I was keenly aware of my social deficiencies. I knew

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<v Speaker 2>that I didn't have friends, and people didn't want to

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<v Speaker 2>invite me places or do things with me.

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<v Speaker 1>John was diagnosed with autism at forty years old.

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<v Speaker 3>I just thought that I was like a second rate person, and.

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<v Speaker 2>I still I guess it still bothers me when I

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<v Speaker 2>can't get things right. But I have been really lucky

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<v Speaker 2>in my life because first, when I was in my

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<v Speaker 2>early twenties, I was able to engineer musical things that

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<v Speaker 2>would sing for the world, and people appreciated those things,

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<v Speaker 2>and at least the people in the music community would

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<v Speaker 2>talk to me about the things that I could speak

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<v Speaker 2>to and the things I could do. And I took

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<v Speaker 2>up from fixing cars and people would come to talk

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<v Speaker 2>to me about the cars. I took up photography and

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<v Speaker 2>people would talk about the images, and then I began

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<v Speaker 2>writing about autism, and people talk to me about that.

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<v Speaker 3>But in every case, the work.

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<v Speaker 2>That I created spoke for me, and for me, that's

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<v Speaker 2>how I have overcome the disability of not being able

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<v Speaker 2>to figure out what to say. I don't figure it

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<v Speaker 2>out other people things to me.

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<v Speaker 4>John grew up in Amherst, Massachusetts. Both of his parents

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<v Speaker 4>were college professors. The university setting was essential to John

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<v Speaker 4>being able to find his way. Eventually, John Skills got

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<v Speaker 4>him noticed by some big time musicians.

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<v Speaker 2>Well, one of the big things in Amherst every year

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<v Speaker 2>was a spring concert in the stadium at the University

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<v Speaker 2>of Massachusetts, and they would bring in bands, and.

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<v Speaker 3>So I went down.

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<v Speaker 2>There because I was by that time working with local

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<v Speaker 2>bands helping out. I saw these guys backstage that had

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<v Speaker 2>like amplifiers pulled out of the racks.

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<v Speaker 3>They were struggling with them, and of course.

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<v Speaker 2>By then I started to feel like I was confident

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<v Speaker 2>about knowing about musicians equipment. And I walked over and

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<v Speaker 2>I asked what they were doing, and the guy says,

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<v Speaker 2>you know, he's.

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<v Speaker 3>Try to get the amplifiers working.

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<v Speaker 2>And do I know anything about Fay's Linears said yeah,

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<v Speaker 2>you know, I didn't really know much.

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<v Speaker 3>About them, but I was confident and.

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<v Speaker 2>He invited me up and I was able to do

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<v Speaker 2>something that he thought was clever and useful. And he says,

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<v Speaker 2>he says, if you can fix these things, I got

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<v Speaker 2>a whole room full of them down at our place

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<v Speaker 2>in New York. You come down there and work on him.

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<v Speaker 2>And it turned out that he was from a sound

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<v Speaker 2>company called Britannia Rowe, who was what Pink Floyd had

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<v Speaker 2>set up to put their equipment out on the road

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<v Speaker 2>when Pink Floyd wasn't touring. I went down and started

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<v Speaker 2>fixing their gear, and then I started modifying it and

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<v Speaker 2>building more gear, and I became their American engineer. And

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<v Speaker 2>one day we had folks from Kiss come into the

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<v Speaker 2>studio wanting to rent a monitor system, and while they

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<v Speaker 2>were in there, I saw a he freely a guitar player,

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<v Speaker 2>digging at a less Paul guitar with a chisel, and

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<v Speaker 2>I went to see what was the matter with him,

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<v Speaker 2>and he told me that he wanted to make the

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<v Speaker 2>guitar blow, smoke and fire, and I wanted to just

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<v Speaker 2>get it out of his hands because I thought he's

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<v Speaker 2>destroying it. And I said, well, I could do that professionally.

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<v Speaker 2>And he asked what I would do, and I said, well,

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<v Speaker 2>we could, you know, put smoke bombs in it, We

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<v Speaker 2>could put lights in it. We could insulate it so

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<v Speaker 2>it wouldn't burn up. And he had Gibson send me

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<v Speaker 2>a guitar. And from that beginning I designed all of

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<v Speaker 2>the instruments that Ace played that shot fire, shot, rockets,

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<v Speaker 2>lit up and blew up, anything like that.

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<v Speaker 3>I made them. And I also did work on the

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<v Speaker 3>amplifiers themselves.

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<v Speaker 4>John Robinson's own intense interest does work with amplifiers and

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<v Speaker 4>guitars got him hired as part of the crew for

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<v Speaker 4>bands like Kiss. That work got him away from Amherst,

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<v Speaker 4>and it got him out into the world.

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<v Speaker 2>I went all over him, went all over the United States.

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<v Speaker 2>I went to England and went to Germany, but Canada.

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<v Speaker 1>You know, John's story is fantastic, and so is Amy's.

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<v Speaker 1>They are both success stories.

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<v Speaker 4>And it's great to hear them telling their stories in

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<v Speaker 4>their own words.

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<v Speaker 1>But the spectrum, it's so broad and so complex that

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<v Speaker 1>almost half the people diagnosed with autism can't tell their

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<v Speaker 1>own stories because literally they can't speak or communicate their

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<v Speaker 1>life experiences in ways that most of us are capable

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<v Speaker 1>of taking in and understanding.

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<v Speaker 4>It's important to remember that each person on the spectrum

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<v Speaker 4>also has a story and a way to connect and

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<v Speaker 4>something to say.

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<v Speaker 1>Even if it's not completely obvious yet. Sometimes it needs

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<v Speaker 1>the rest of us to go more than halfway to

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<v Speaker 1>really understand.

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<v Speaker 4>Of course, Donald's unique way of connecting to the world

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<v Speaker 4>around him, the golf and the numbers, it was always

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<v Speaker 4>pretty easy to see where he was coming from.

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<v Speaker 1>After the break, Donald learns his own lessons about freedom

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<v Speaker 1>and takes flight literally.

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<v Speaker 4>Donald was twenty seven years old in nineteen sixty when

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<v Speaker 4>he first learned how to drive a car. His mother,

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<v Speaker 4>who had been his teacher all his life, taught him

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<v Speaker 4>how to operate the family's Ford Fairlane, a massive barge

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<v Speaker 4>of a car, and we've imagined how this might have worked. First,

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<v Speaker 4>with the engine still off, Mary would have talked Donald

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<v Speaker 4>through the whole routine, checking the mirrors, where to put

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<v Speaker 4>his hands on the steering wheel, how to speed up,

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<v Speaker 4>how to slow down, and then.

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<v Speaker 1>Because Donald is not at all tall, he would have

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<v Speaker 1>pulled himself forward so that his chin almost touched the

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<v Speaker 1>steering wheel. It's easy to Imagine him tensing up as

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<v Speaker 1>he put the key into the ignition and brought the

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<v Speaker 1>car to life. And imagine how this moment must have

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<v Speaker 1>fell from Mary as Donald turned out of the driveway

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<v Speaker 1>for the first time.

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<v Speaker 4>This man sitting next to her once seemed like someone

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<v Speaker 4>incapable of recognizing danger. But Donald had come so far

0:13:13.640 --> 0:13:16.560
<v Speaker 4>from the boy she once worried about as being possibly

0:13:16.600 --> 0:13:20.600
<v Speaker 4>hopelessly insane, as she actually once thought. And now the

0:13:20.720 --> 0:13:34.880
<v Speaker 4>road was his whenever he wanted. Donald wasn't content to

0:13:34.920 --> 0:13:38.200
<v Speaker 4>stay close to Forrest. As an adult, Donald packed up

0:13:38.240 --> 0:13:41.000
<v Speaker 4>and left town on holiday at least a dozen times

0:13:41.040 --> 0:13:41.560
<v Speaker 4>every year.

0:13:41.920 --> 0:13:44.520
<v Speaker 1>In those days, it was pretty common for small town

0:13:44.559 --> 0:13:47.960
<v Speaker 1>newspapers to report when somebody went out of town. Donald

0:13:48.000 --> 0:13:50.080
<v Speaker 1>will go to, say, Dallas for a few days, or

0:13:50.200 --> 0:13:53.040
<v Speaker 1>New Mexico, and it would make the society page of

0:13:53.040 --> 0:13:57.079
<v Speaker 1>the Scott County Times. He became known for his travels.

0:13:58.040 --> 0:14:01.000
<v Speaker 1>Here's his lifelong friend and neighbor, John Russia.

0:14:02.640 --> 0:14:07.200
<v Speaker 3>He traveled a lot ourselves. Nothing like him off us

0:14:07.280 --> 0:14:07.760
<v Speaker 3>to go from.

0:14:08.320 --> 0:14:14.080
<v Speaker 7>I'll tell you for sure, now done, he's ready to

0:14:14.080 --> 0:14:15.760
<v Speaker 7>go an emotional nose.

0:14:16.960 --> 0:14:19.800
<v Speaker 4>As a rule, whenever he could, Donald kept his trips

0:14:19.840 --> 0:14:22.400
<v Speaker 4>to six days exactly because he tried to be back

0:14:22.440 --> 0:14:24.040
<v Speaker 4>in forest for Sunday Bible study.

0:14:24.440 --> 0:14:26.240
<v Speaker 1>He always traveled alone.

0:14:26.440 --> 0:14:28.160
<v Speaker 4>By the time we first met him, when he was

0:14:28.160 --> 0:14:30.920
<v Speaker 4>in his late seventies, Donald had been to at least

0:14:31.000 --> 0:14:34.280
<v Speaker 4>twenty eight American states, including Hawaii.

0:14:34.080 --> 0:14:36.120
<v Speaker 1>Many of them several times.

0:14:35.880 --> 0:14:38.560
<v Speaker 4>And he'd been to more than thirty six foreign countries.

0:14:38.720 --> 0:14:47.320
<v Speaker 1>The list is incredible. Germany, Tunisia, Morocco, Hungary, Dubai, Spain, Portugal, France, Bulgaria, Columbia.

0:14:48.080 --> 0:14:50.560
<v Speaker 4>He's taken snapshots of the Pyramids in Egypt, the New

0:14:50.640 --> 0:14:52.720
<v Speaker 4>York City skyline, the Grand Canyon.

0:14:57.120 --> 0:14:59.600
<v Speaker 1>With your travels, what was the best part about govern

0:14:59.600 --> 0:15:00.000
<v Speaker 1>to Church?

0:15:00.400 --> 0:15:00.760
<v Speaker 2>Oh?

0:15:01.000 --> 0:15:05.160
<v Speaker 7>I just enjoyed going there, saying, the Turkish Bela dancers

0:15:05.360 --> 0:15:06.920
<v Speaker 7>perform and all that good stuff.

0:15:07.440 --> 0:15:09.720
<v Speaker 8>Of all the trips that you've done, could you tell

0:15:09.880 --> 0:15:11.880
<v Speaker 8>me like a couple of your favorite ones.

0:15:14.240 --> 0:15:18.440
<v Speaker 7>Going to Grace, I'd fly to the to the airport

0:15:18.480 --> 0:15:22.200
<v Speaker 7>in Athens and take either a shuttle to the hotel

0:15:22.240 --> 0:15:25.680
<v Speaker 7>I was staying, or sometimes taking a text from the

0:15:25.720 --> 0:15:27.280
<v Speaker 7>airport to the hotel.

0:15:28.640 --> 0:15:30.840
<v Speaker 4>It's again typical of Donald that when he talks about

0:15:30.880 --> 0:15:34.200
<v Speaker 4>his travels, he brings the conversation kind of around to

0:15:34.240 --> 0:15:37.560
<v Speaker 4>the logistics of his travel rather than to the experiences

0:15:37.560 --> 0:15:39.720
<v Speaker 4>he had and the people he met and the flavor

0:15:39.720 --> 0:15:40.160
<v Speaker 4>of it all.

0:15:41.120 --> 0:15:45.240
<v Speaker 1>What Donald isn't mentioning there is that he meticulously documents

0:15:45.280 --> 0:15:50.200
<v Speaker 1>his trips, taking thousands of snapshots iconic buildings and statues

0:15:50.240 --> 0:15:53.400
<v Speaker 1>and mountaintops, the ones he had seen on TV or

0:15:53.800 --> 0:15:57.040
<v Speaker 1>read about in books when you returned home from his trips.

0:15:57.480 --> 0:16:01.520
<v Speaker 1>He organized all of his photos in albums until his

0:16:01.600 --> 0:16:03.720
<v Speaker 1>bookshelves were filled with memories.

0:16:04.600 --> 0:16:06.840
<v Speaker 4>Then in the nineteen nineties he learned to use a

0:16:06.840 --> 0:16:10.320
<v Speaker 4>computer and Donald went back through all of his albums,

0:16:10.400 --> 0:16:12.840
<v Speaker 4>and now he's assigning numbers to each of his trips

0:16:13.040 --> 0:16:15.560
<v Speaker 4>and he's creating a database and an index that makes

0:16:15.560 --> 0:16:17.840
<v Speaker 4>it a lot easier for him to find specific photos.

0:16:18.280 --> 0:16:22.120
<v Speaker 1>It's something about the categorizing, the organization of it all

0:16:22.560 --> 0:16:23.720
<v Speaker 1>that brings him pleasure.

0:16:24.400 --> 0:16:27.080
<v Speaker 4>Also, that's how he made sense of the world. That's

0:16:27.120 --> 0:16:29.320
<v Speaker 4>how he kind of makes the world his own.

0:16:29.520 --> 0:16:29.720
<v Speaker 5>You know.

0:16:29.840 --> 0:16:32.320
<v Speaker 1>The travel part of his life is something that doesn't

0:16:32.360 --> 0:16:35.840
<v Speaker 1>fit neatly into the idea that Donald doesn't like change,

0:16:36.280 --> 0:16:39.000
<v Speaker 1>because of course every place is going to be different.

0:16:39.920 --> 0:16:43.840
<v Speaker 1>And maybe that shows how people with autism do grow

0:16:44.320 --> 0:16:45.080
<v Speaker 1>and stretch.

0:16:45.320 --> 0:16:47.600
<v Speaker 4>But it's also true that Donald established a kind of

0:16:47.720 --> 0:16:51.320
<v Speaker 4>routine within the experience of traveling with going away for

0:16:51.440 --> 0:16:53.200
<v Speaker 4>just six days all of the time. And in fact,

0:16:53.240 --> 0:16:55.600
<v Speaker 4>many of the countries he went to he visited over

0:16:55.640 --> 0:16:58.000
<v Speaker 4>and over again, so there is kind of a routine there.

0:16:58.960 --> 0:17:03.240
<v Speaker 4>Or maybe he just really liked going to these places.

0:17:11.680 --> 0:17:14.720
<v Speaker 4>Donald was a world explorer, but he always came home

0:17:14.760 --> 0:17:17.280
<v Speaker 4>to Forrest, where he lived in his parents' house his

0:17:17.520 --> 0:17:18.760
<v Speaker 4>entire adult life.

0:17:19.080 --> 0:17:22.240
<v Speaker 1>Forrest provided Donald with a sort of perfect combination of

0:17:22.320 --> 0:17:25.600
<v Speaker 1>circumstances for a man like him. Life in a small

0:17:25.640 --> 0:17:31.720
<v Speaker 1>community afforded predictability, tranquility, and safety. The pace was slow,

0:17:32.400 --> 0:17:36.480
<v Speaker 1>it was quiet. One day was just like the next.

0:17:36.760 --> 0:17:39.359
<v Speaker 4>And Donald, by virtue of his wealth and his parents'

0:17:39.359 --> 0:17:43.240
<v Speaker 4>social standing, found himself in this embracing web of relationships

0:17:43.280 --> 0:17:45.640
<v Speaker 4>that come along with small town life where everyone knows

0:17:45.680 --> 0:17:47.560
<v Speaker 4>more than a little bit about everybody else.

0:17:48.480 --> 0:17:51.080
<v Speaker 1>Forres just accepted Donald.

0:17:52.160 --> 0:17:54.960
<v Speaker 4>As Donald's friend. Sid Salter says, and I'm paraphrasing a

0:17:54.960 --> 0:17:58.000
<v Speaker 4>little here. In a small southern town, if you're poor

0:17:58.240 --> 0:18:01.840
<v Speaker 4>and different, you're just different. But if you've got money

0:18:01.880 --> 0:18:04.879
<v Speaker 4>and you're different, well then you're eccentric.

0:18:10.040 --> 0:18:14.600
<v Speaker 5>The whole discussion begs the question of had Don's family

0:18:14.720 --> 0:18:18.600
<v Speaker 5>not had the bank, if there had not been the

0:18:18.680 --> 0:18:26.000
<v Speaker 5>respect for mister Beeman triplet that the community had, would

0:18:26.000 --> 0:18:28.320
<v Speaker 5>Don's life have turned out the same way? If there

0:18:28.359 --> 0:18:32.880
<v Speaker 5>had not been the network of support, the job at

0:18:32.880 --> 0:18:36.000
<v Speaker 5>the bank, all of those things. Would Don's life have

0:18:36.080 --> 0:18:39.000
<v Speaker 5>turned out? Would he be able to travel the world alone?

0:18:39.040 --> 0:18:44.040
<v Speaker 5>Would he be able to function without oversight or a guardian?

0:18:44.720 --> 0:18:51.119
<v Speaker 5>And I think the answer is maybe, because one of

0:18:51.160 --> 0:18:55.400
<v Speaker 5>the things is a journalist that I observed, And it's

0:18:55.480 --> 0:18:58.080
<v Speaker 5>true in Mississippi, it's true all across the South. I

0:18:58.119 --> 0:19:02.960
<v Speaker 5>think it's probably true all over the country. Woefully inadequate

0:19:03.680 --> 0:19:09.840
<v Speaker 5>funding for mental health. And that's for more pronounced things

0:19:09.920 --> 0:19:16.040
<v Speaker 5>like schizophrenia. But when you talk about something as delicate

0:19:16.160 --> 0:19:19.760
<v Speaker 5>and mysterious as autism, which we still don't understand a

0:19:19.800 --> 0:19:22.920
<v Speaker 5>great deal about as a society, and we certainly don't

0:19:22.960 --> 0:19:27.360
<v Speaker 5>know how to deal with people who have profound autism,

0:19:27.960 --> 0:19:30.320
<v Speaker 5>I think it would have been very difficult if Don

0:19:30.400 --> 0:19:31.680
<v Speaker 5>had not had that.

0:19:34.520 --> 0:19:38.600
<v Speaker 4>After the break, we talk about the cost of autism misunderstood.

0:19:48.640 --> 0:19:51.800
<v Speaker 1>As we piece together Donald Triplett's adult life, we want

0:19:51.840 --> 0:19:54.199
<v Speaker 1>to take a moment to point out that today so

0:19:54.359 --> 0:19:58.399
<v Speaker 1>much of the conversation around autism is focused around young kids,

0:19:59.000 --> 0:20:02.679
<v Speaker 1>and that's progress, but there are so many big and

0:20:02.800 --> 0:20:06.480
<v Speaker 1>difficult challenges facing young adults and grown ups on the spectrum.

0:20:07.080 --> 0:20:10.080
<v Speaker 1>They are so vulnerable in many ways.

0:20:10.760 --> 0:20:12.679
<v Speaker 4>A lot of people on the spectrum don't have the

0:20:12.720 --> 0:20:15.560
<v Speaker 4>sort of family or community support and awareness that Donald

0:20:15.600 --> 0:20:19.080
<v Speaker 4>Triplet has benefited from. Donald's parents had his back always,

0:20:19.560 --> 0:20:22.680
<v Speaker 4>and his community everybody from his neighbors to his teachers

0:20:22.680 --> 0:20:25.480
<v Speaker 4>to the police department, they all knew that Donald had

0:20:25.560 --> 0:20:29.840
<v Speaker 4>special needs. And John Robison and Amy Garvino, they're both

0:20:29.880 --> 0:20:33.439
<v Speaker 4>excellent communicators. But there are people on the spectrum who

0:20:33.520 --> 0:20:35.800
<v Speaker 4>don't have that kind of support and who cannot speak

0:20:35.800 --> 0:20:39.760
<v Speaker 4>for themselves, people who are more challenged and have difficulty

0:20:39.920 --> 0:20:45.400
<v Speaker 4>in complicated social situations, and that can have consequences, dangerous consequences.

0:20:46.280 --> 0:20:48.560
<v Speaker 4>You know where that comes up a lot, it's where

0:20:48.600 --> 0:20:51.520
<v Speaker 4>autistic people come face to face with the police. When

0:20:51.560 --> 0:20:55.080
<v Speaker 4>a cop doesn't know a lot about autism, that's not

0:20:55.160 --> 0:20:55.720
<v Speaker 4>a good mix.

0:20:56.920 --> 0:21:01.600
<v Speaker 1>There are so many terrifying stories about police officers misunderstanding

0:21:02.160 --> 0:21:05.119
<v Speaker 1>or not having the proper training to effectively interact with

0:21:05.160 --> 0:21:08.480
<v Speaker 1>people on the spectrum. Think about it. A lot of

0:21:08.520 --> 0:21:11.760
<v Speaker 1>autistic people do things that police are trained to see

0:21:11.800 --> 0:21:13.120
<v Speaker 1>as suspicious behavior.

0:21:13.400 --> 0:21:15.159
<v Speaker 4>You know, they might not look people in the eyes,

0:21:15.440 --> 0:21:17.280
<v Speaker 4>or they might need more time than most people to

0:21:17.320 --> 0:21:20.679
<v Speaker 4>answer even simple questions. They might run away when somebody

0:21:20.680 --> 0:21:22.920
<v Speaker 4>speaks loudly or sharply at them, or they might lose

0:21:22.960 --> 0:21:24.240
<v Speaker 4>it if somebody touches them.

0:21:24.560 --> 0:21:26.879
<v Speaker 1>Any one of those has the potential to trigger an

0:21:26.920 --> 0:21:31.160
<v Speaker 1>officer's instinct that they're dealing with a suspicious situation when

0:21:31.200 --> 0:21:35.720
<v Speaker 1>all it is is autism. An innocent autistic person whose

0:21:35.760 --> 0:21:40.639
<v Speaker 1>behaviors the officers translating the wrong way. This is a

0:21:40.760 --> 0:21:41.520
<v Speaker 1>huge deal.

0:21:42.160 --> 0:21:46.120
<v Speaker 4>Drexel University published a study in twenty seventeen that estimated

0:21:46.320 --> 0:21:49.320
<v Speaker 4>one in five teenagers with autism was stopped and questioned

0:21:49.320 --> 0:21:51.879
<v Speaker 4>by the police before the age of twenty one. Five

0:21:52.000 --> 0:21:54.120
<v Speaker 4>percent were actually arrested.

0:21:54.000 --> 0:21:57.480
<v Speaker 1>And researchers at the Children's Hospital of Philadelphia found that

0:21:57.520 --> 0:22:01.840
<v Speaker 1>people with disabilities, including those on the spectrum, are five

0:22:01.960 --> 0:22:05.639
<v Speaker 1>times more likely to be incarcerated then people in the

0:22:05.680 --> 0:22:06.600
<v Speaker 1>general population.

0:22:07.000 --> 0:22:10.280
<v Speaker 4>Even a rudimentary Google search tells a devastating story.

0:22:10.440 --> 0:22:14.440
<v Speaker 9>A Salt Lake City police officers shot and seriously wounded an.

0:22:14.480 --> 0:22:17.280
<v Speaker 1>Unarmed thirteen year old autistic boy last night.

0:22:17.440 --> 0:22:19.200
<v Speaker 10>The boy's mother called nine one one.

0:22:19.119 --> 0:22:22.080
<v Speaker 9>Night and her officer with the Vacaville Police Department is

0:22:22.119 --> 0:22:25.159
<v Speaker 9>in hot water after video footage of him punching a

0:22:25.240 --> 0:22:28.919
<v Speaker 9>seventeen year old teenager with autism was posted by the

0:22:28.920 --> 0:22:31.720
<v Speaker 9>boys Fox night. Lawyers from the pomp Beach County Sheriff's

0:22:31.720 --> 0:22:34.000
<v Speaker 9>Office and the parents of an autistic team shot eleven

0:22:34.040 --> 0:22:36.560
<v Speaker 9>times by a deputy have reached a settlement of one

0:22:36.560 --> 0:22:37.080
<v Speaker 9>million dollars.

0:22:37.280 --> 0:22:40.199
<v Speaker 10>Sheriffs deputies in a New Orleans suburbs set on a

0:22:40.320 --> 0:22:45.000
<v Speaker 10>shackled obie severely autistic sixteen year old boy for nine

0:22:45.119 --> 0:22:47.440
<v Speaker 10>minutes and put a choke hold on him for part

0:22:47.480 --> 0:22:50.199
<v Speaker 10>of that time until he died, escording to a federal

0:22:50.280 --> 0:22:54.240
<v Speaker 10>lawsuit filed Thursday against the sheriff and seven deputies in

0:22:54.359 --> 0:22:55.400
<v Speaker 10>the pad last.

0:22:55.240 --> 0:22:57.960
<v Speaker 4>Year and now that police are wearing cameras a lot

0:22:57.960 --> 0:23:00.560
<v Speaker 4>more than they used to, where a starning to see

0:23:00.600 --> 0:23:03.080
<v Speaker 4>and hear how some of these encounters can go off

0:23:03.080 --> 0:23:07.240
<v Speaker 4>the rail so quickly. We saw that happen In Kodiak, Alaska,

0:23:07.280 --> 0:23:09.200
<v Speaker 4>in twenty fifteen, there.

0:23:09.119 --> 0:23:12.159
<v Speaker 1>Were two tourists they were visiting Kodiak, staying at a

0:23:12.200 --> 0:23:16.040
<v Speaker 1>bed and breakfast in a quiet residential neighborhood. They thought

0:23:16.119 --> 0:23:18.520
<v Speaker 1>they saw a man trying to get into their rental car,

0:23:19.080 --> 0:23:20.520
<v Speaker 1>so they dialed nine one one.

0:23:20.760 --> 0:23:22.760
<v Speaker 4>Nope, that was wrong. He was not trying to get

0:23:22.760 --> 0:23:26.600
<v Speaker 4>into their rental car. The man they saw was Nick Plettnikoff,

0:23:26.680 --> 0:23:30.080
<v Speaker 4>who was actually pretty well known around Kodiak and extremely

0:23:30.280 --> 0:23:32.520
<v Speaker 4>well liked. And he's autistic.

0:23:33.240 --> 0:23:36.960
<v Speaker 8>He was born super healthy. Nine out of nine were

0:23:36.960 --> 0:23:39.800
<v Speaker 8>his upgars, and he was ahead of his milestones until

0:23:39.840 --> 0:23:43.679
<v Speaker 8>he wasn't and he developed autism in about eighteen months.

0:23:43.880 --> 0:23:45.920
<v Speaker 4>That's Nick's mom, Judy Plettnikoff.

0:23:46.600 --> 0:23:49.680
<v Speaker 8>And he's worked awfully hard, harder than harder you could

0:23:49.720 --> 0:23:52.960
<v Speaker 8>than you can imagine to achieve what he has. And

0:23:53.040 --> 0:23:58.840
<v Speaker 8>he's productive, and he contributes to the community, and he's taxes.

0:23:58.880 --> 0:24:01.399
<v Speaker 8>He's just an all around five end up standing citizen.

0:24:01.160 --> 0:24:04.359
<v Speaker 4>That's for sure. Nick has a business engraving ID tags

0:24:04.400 --> 0:24:07.640
<v Speaker 4>for dogs. He sorts and transports recycling for a number

0:24:07.640 --> 0:24:10.600
<v Speaker 4>of different clients. He volunteers at the hospital, also at

0:24:10.600 --> 0:24:13.159
<v Speaker 4>Saint Mary's, which is the school that completely embraced him

0:24:13.160 --> 0:24:15.439
<v Speaker 4>when he went there as a kid. Now he volunteers

0:24:15.480 --> 0:24:17.640
<v Speaker 4>there setting up and breaking down the lunch room.

0:24:18.480 --> 0:24:21.960
<v Speaker 1>These were all sorts of small triumphs for Nick. For him,

0:24:22.119 --> 0:24:24.879
<v Speaker 1>learning new things is hard. He takes a while to

0:24:24.920 --> 0:24:28.120
<v Speaker 1>process speech. He needs a lot of support day to day.

0:24:28.680 --> 0:24:31.080
<v Speaker 1>But he was getting more independent all the time.

0:24:31.560 --> 0:24:35.240
<v Speaker 8>Oh, he's fabulous. We really believed. So he moved into

0:24:35.280 --> 0:24:38.280
<v Speaker 8>an apartment that's attached to our home after high school,

0:24:39.040 --> 0:24:43.520
<v Speaker 8>and we really believed that he would live independently and

0:24:43.560 --> 0:24:45.760
<v Speaker 8>we would eventually leave the house and somebody else this

0:24:45.840 --> 0:24:50.120
<v Speaker 8>house where he lives in the apartment, that we would

0:24:50.200 --> 0:24:52.000
<v Speaker 8>leave this house and somebody else could move in and

0:24:52.040 --> 0:24:57.840
<v Speaker 8>everything'd be just lovely. So he was doing fabulously. He

0:24:57.880 --> 0:25:01.480
<v Speaker 8>could shop for just a small list of items independently

0:25:01.760 --> 0:25:06.320
<v Speaker 8>and checked the mail obviously, and cook himself a light

0:25:06.400 --> 0:25:10.520
<v Speaker 8>meal and more or less get himself ready in the morning.

0:25:10.680 --> 0:25:14.679
<v Speaker 8>Need a little help, but he was doing really quite well.

0:25:15.040 --> 0:25:18.520
<v Speaker 4>And just like a lot of autistic people, Nick likes routines,

0:25:18.640 --> 0:25:20.639
<v Speaker 4>and one of his routines was to head down the

0:25:20.640 --> 0:25:24.520
<v Speaker 4>street every day to collect the mail from the communal postal.

0:25:24.200 --> 0:25:26.679
<v Speaker 1>Point, and another of his things he would check on

0:25:26.760 --> 0:25:30.040
<v Speaker 1>the cars parked along his way. His mom says he

0:25:30.240 --> 0:25:32.040
<v Speaker 1>was making sure all the doors.

0:25:31.720 --> 0:25:34.200
<v Speaker 4>Were locked, and one of the cars he stopped at

0:25:34.600 --> 0:25:36.880
<v Speaker 4>belonged to those two guys from out of town, and

0:25:37.119 --> 0:25:39.200
<v Speaker 4>they thought maybe he was trying to break in, which

0:25:39.200 --> 0:25:41.360
<v Speaker 4>he was not, and they thought also that he had

0:25:41.400 --> 0:25:43.879
<v Speaker 4>been drinking, which he had not been doing.

0:25:44.119 --> 0:25:46.840
<v Speaker 1>And then everything goes off the rails.

0:25:46.880 --> 0:25:49.040
<v Speaker 4>They've called nine one one, and now the police show

0:25:49.119 --> 0:25:52.480
<v Speaker 4>up and they approached Nick, and Nick doesn't have the

0:25:52.480 --> 0:25:55.560
<v Speaker 4>skills to explain himself in that moment. He also doesn't

0:25:55.600 --> 0:25:58.679
<v Speaker 4>make eye contact with the officers, and apparently all of

0:25:58.720 --> 0:26:01.560
<v Speaker 4>this comes off to them as suspicious because they put

0:26:01.560 --> 0:26:04.000
<v Speaker 4>hands on him really quickly, and they spin him around

0:26:04.000 --> 0:26:07.080
<v Speaker 4>so that they can handcuff him.

0:26:07.320 --> 0:26:10.240
<v Speaker 1>And Nick confused by what's happening all of a sudden,

0:26:10.280 --> 0:26:14.560
<v Speaker 1>it's terrified. He starts pleading with the cops. You can

0:26:14.600 --> 0:26:16.440
<v Speaker 1>hear that on the police camera recording.

0:26:17.080 --> 0:26:21.000
<v Speaker 4>Hey can't go, and he's twisting his body as this

0:26:21.040 --> 0:26:23.320
<v Speaker 4>is all happening. And so what the cops see is

0:26:23.359 --> 0:26:26.280
<v Speaker 4>not an autistic guy who is just scared and confused.

0:26:26.920 --> 0:26:38.320
<v Speaker 4>They see someone not cooperating, and then they're down on

0:26:38.359 --> 0:26:40.480
<v Speaker 4>the ground with him and they're flipping Nick on his

0:26:40.480 --> 0:26:42.600
<v Speaker 4>stomach to get control over him, and one of the

0:26:42.600 --> 0:26:45.320
<v Speaker 4>cops is leading into his neck with his forearm, and

0:26:45.359 --> 0:26:48.160
<v Speaker 4>you keep hearing Nick saying something as they're all wrestling

0:26:48.160 --> 0:26:50.480
<v Speaker 4>on the pavement. He's apologizing.

0:26:52.240 --> 0:26:55.000
<v Speaker 1>And what's especially disturbing is that one of the police

0:26:55.000 --> 0:26:59.639
<v Speaker 1>officers knows me. He keeps saying Nick, stop, but we

0:26:59.720 --> 0:27:02.600
<v Speaker 1>lay learned he was really new to the force, and

0:27:02.720 --> 0:27:05.480
<v Speaker 1>he doesn't step in and tell the other officers to stop.

0:27:06.680 --> 0:27:11.399
<v Speaker 1>Nick keeps saying, I want to go home, please, I'm sorry, Oh.

0:27:13.280 --> 0:27:13.840
<v Speaker 3>Nick shop.

0:27:19.359 --> 0:27:21.280
<v Speaker 4>And what happens next is really hard to take.

0:27:21.480 --> 0:27:25.359
<v Speaker 1>They're holding Nick down, He's terrified, not calming down, but

0:27:25.400 --> 0:27:27.520
<v Speaker 1>getting more and more agitated.

0:27:27.640 --> 0:27:29.919
<v Speaker 4>And one of the officers pulls out his pepper spray

0:27:30.200 --> 0:27:35.879
<v Speaker 4>and then he says and then the cop lasts him

0:27:35.880 --> 0:27:38.639
<v Speaker 4>in the face with the pepper spray, right in the eyes.

0:27:45.400 --> 0:27:47.440
<v Speaker 4>One of Nick's neighbors is watching all of this happen

0:27:47.480 --> 0:27:49.280
<v Speaker 4>from his house and he yells out to the cops,

0:27:49.600 --> 0:27:51.440
<v Speaker 4>you know you've just guard this kid for the rest

0:27:51.480 --> 0:27:54.800
<v Speaker 4>of his life. Another passer by runs to let Nick's mother, Judy,

0:27:54.880 --> 0:27:55.680
<v Speaker 4>know what's going on.

0:27:55.880 --> 0:27:59.000
<v Speaker 1>Judy rushes to the scene. She sees police cars and

0:27:59.040 --> 0:28:03.159
<v Speaker 1>an ambulance and Nick surrounded by police. And this is

0:28:03.200 --> 0:28:06.919
<v Speaker 1>before she realizes he's been pepper sprayed. The officer in

0:28:07.000 --> 0:28:10.280
<v Speaker 1>charge speaks to her, and you can hear Judy trying

0:28:10.320 --> 0:28:13.159
<v Speaker 1>to stay cool. It's what some parents of people with

0:28:13.200 --> 0:28:15.120
<v Speaker 1>autism do when they're dealing with authority.

0:28:15.119 --> 0:28:20.240
<v Speaker 4>Figures is he And at that point the mistake realized.

0:28:20.520 --> 0:28:24.639
<v Speaker 4>The officer tells her about the pepper spray.

0:28:23.320 --> 0:28:26.480
<v Speaker 3>Okay, all right, we pepper sprayed him.

0:28:26.600 --> 0:28:33.480
<v Speaker 4>Her outrage is palpable, a mother's outrage, and she insists

0:28:33.520 --> 0:28:35.800
<v Speaker 4>they take the cups off, and they do it.

0:28:35.760 --> 0:28:41.800
<v Speaker 8>And then I Nick was stunned and not able to

0:28:41.840 --> 0:28:43.920
<v Speaker 8>get himself home at that point, so I kind of

0:28:43.960 --> 0:28:45.720
<v Speaker 8>put my arm around him and guide it a home.

0:28:46.280 --> 0:28:48.760
<v Speaker 8>My daughter came. She's a doctor. That was very helpful.

0:28:49.280 --> 0:28:52.920
<v Speaker 8>We cataloged his injuries. He had bruises a size of

0:28:52.920 --> 0:28:55.200
<v Speaker 8>footballs on him. He had a great big kidney punch

0:28:55.280 --> 0:28:59.320
<v Speaker 8>and scrapes and black and I mean he was beaten.

0:29:00.080 --> 0:29:04.360
<v Speaker 1>You know. Nick's most serious injuries were invisible and they're

0:29:04.400 --> 0:29:09.040
<v Speaker 1>still there. Remember he had been doing really well, but

0:29:09.120 --> 0:29:10.400
<v Speaker 1>now his mom says.

0:29:10.320 --> 0:29:13.200
<v Speaker 8>He lost his ability to take care of himself. He

0:29:13.240 --> 0:29:16.120
<v Speaker 8>didn't brush his own teeth again for seven months. So

0:29:17.120 --> 0:29:19.360
<v Speaker 8>he just lost a lot of skills. And the trauma,

0:29:19.560 --> 0:29:23.400
<v Speaker 8>the need for him to protect himself and be safe,

0:29:23.560 --> 0:29:27.080
<v Speaker 8>is what took over his That's the sympathetic response, that's

0:29:27.120 --> 0:29:29.600
<v Speaker 8>what took over his brain. I won't soon forget what

0:29:29.720 --> 0:29:33.080
<v Speaker 8>his psychologist told me, if you've got to protect him,

0:29:33.120 --> 0:29:37.920
<v Speaker 8>because these re traumatizations, while they won't kill him, will

0:29:37.920 --> 0:29:40.760
<v Speaker 8>make his life very difficult. And boy, she was right,

0:29:41.400 --> 0:29:46.120
<v Speaker 8>because one time he was so bad, it was so bad,

0:29:46.440 --> 0:29:50.080
<v Speaker 8>he'd completely lost control. He really thought they were coming

0:29:50.080 --> 0:29:55.200
<v Speaker 8>to get him again, and he pulled the doorknobs right

0:29:55.240 --> 0:29:57.040
<v Speaker 8>off the car trying to get out, trying to get

0:29:57.040 --> 0:29:59.160
<v Speaker 8>out of my car, and I could barely get him home,

0:30:00.040 --> 0:30:02.760
<v Speaker 8>and he just went so far backward again.

0:30:03.840 --> 0:30:07.120
<v Speaker 4>So these kinds of misunderstandings and these kinds of mistakes,

0:30:07.320 --> 0:30:12.120
<v Speaker 4>the consequences are real and they're lasting. Also, let's be

0:30:12.160 --> 0:30:15.000
<v Speaker 4>honest that when people of color who have autism get

0:30:15.040 --> 0:30:17.640
<v Speaker 4>into these situations, the danger for them is likely to

0:30:17.680 --> 0:30:20.160
<v Speaker 4>get a lot higher, a lot faster, especially when they're

0:30:20.160 --> 0:30:23.240
<v Speaker 4>outside of their own communities where people know them.

0:30:23.160 --> 0:30:25.960
<v Speaker 1>And there are some deeply ingrained problems to address here,

0:30:26.560 --> 0:30:29.200
<v Speaker 1>But at least we're seeing that many police forces around

0:30:29.200 --> 0:30:31.520
<v Speaker 1>the US are trying to do better with the autism

0:30:31.560 --> 0:30:34.719
<v Speaker 1>piece of it. There are programs now that train police

0:30:34.720 --> 0:30:38.520
<v Speaker 1>to recognize and understand autism better and to modify their

0:30:38.560 --> 0:30:43.680
<v Speaker 1>responses when they encounter autistic people, for starters, understanding that

0:30:43.720 --> 0:30:48.680
<v Speaker 1>their behaviors do not necessarily warrant suspicion, and to work

0:30:48.720 --> 0:30:51.520
<v Speaker 1>better to communicate and de escalate the situation.

0:30:51.800 --> 0:30:54.000
<v Speaker 4>In fact, the Kodiak police did get some training after

0:30:54.040 --> 0:30:56.080
<v Speaker 4>all of this happened, but it's a problem that it's

0:30:56.120 --> 0:30:59.680
<v Speaker 4>often only after something bad happens that the corrective steps

0:30:59.720 --> 0:31:02.800
<v Speaker 4>are being taken. But they are being taken, and we

0:31:02.840 --> 0:31:04.840
<v Speaker 4>saw the teaching that the police are getting about autism,

0:31:04.920 --> 0:31:09.080
<v Speaker 4>and it's actually pretty basic. That's why it's also pretty useful.

0:31:09.680 --> 0:31:12.640
<v Speaker 4>So there is some progress in this area, but there

0:31:12.720 --> 0:31:16.200
<v Speaker 4>is still a long way to go. There are just

0:31:16.320 --> 0:31:17.560
<v Speaker 4>so many stories like this.

0:31:17.920 --> 0:31:21.480
<v Speaker 1>I definitely have that worry about my son Micky. I

0:31:21.520 --> 0:31:25.000
<v Speaker 1>can see him innocently stumbling into some interaction with police

0:31:25.080 --> 0:31:29.040
<v Speaker 1>where they misread him, like say, his inability to explain

0:31:29.120 --> 0:31:31.840
<v Speaker 1>why he's in a particular place at a particular time,

0:31:32.040 --> 0:31:36.240
<v Speaker 1>or something like that and the whole thing going downhill

0:31:36.560 --> 0:31:39.280
<v Speaker 1>really fast. In fact, there was a time when he

0:31:39.320 --> 0:31:41.960
<v Speaker 1>was on an airplane and a baby had been crying

0:31:42.000 --> 0:31:45.120
<v Speaker 1>for hours, and that just hit one of his sensory

0:31:45.160 --> 0:31:50.200
<v Speaker 1>buttons and he became really agitated. And an agitated person

0:31:50.280 --> 0:31:53.720
<v Speaker 1>on a plane sets off all kinds of alarms. But

0:31:53.840 --> 0:31:56.960
<v Speaker 1>in this case, there was a flight attendant who got

0:31:57.000 --> 0:32:01.680
<v Speaker 1>that Mickey had autism, and he helped come down. As

0:32:01.720 --> 0:32:06.000
<v Speaker 1>for Donald, it's another way. He was lucky in a

0:32:06.040 --> 0:32:08.840
<v Speaker 1>place where everyone knew him. He was, as far as

0:32:08.880 --> 0:32:12.760
<v Speaker 1>we know, never subjected to that sort of trauma, another

0:32:12.840 --> 0:32:15.600
<v Speaker 1>gift of the community that surrounded him in Forest.

0:32:19.000 --> 0:32:21.880
<v Speaker 4>In nineteen sixty two, a group of parents in Britain

0:32:21.920 --> 0:32:25.719
<v Speaker 4>founded what would become the National Autistic Society, the first

0:32:25.960 --> 0:32:28.040
<v Speaker 4>autism organization in the world.

0:32:28.200 --> 0:32:30.840
<v Speaker 1>The early nineteen sixties were the beginning of a sea

0:32:30.920 --> 0:32:35.680
<v Speaker 1>change in autism. Parents became activists and began getting organized.

0:32:36.240 --> 0:32:38.560
<v Speaker 1>In nineteen sixty four, a small group of mothers of

0:32:38.560 --> 0:32:42.160
<v Speaker 1>disabled children begins to campaign for their children's access to

0:32:42.200 --> 0:32:43.040
<v Speaker 1>public education.

0:32:43.320 --> 0:32:45.600
<v Speaker 4>In nineteen sixty nine, at the annual meeting of the

0:32:45.680 --> 0:32:49.360
<v Speaker 4>National Society for Autistic Children, doctor le O'Connor gives a

0:32:49.360 --> 0:32:52.720
<v Speaker 4>speech in which he states declaratively that blaming parents for

0:32:52.800 --> 0:32:55.720
<v Speaker 4>causing their children's autism is a bogus.

0:32:55.320 --> 0:32:58.720
<v Speaker 1>Idea, which is a huge relief because really, almost from

0:32:58.720 --> 0:33:02.560
<v Speaker 1>the beginning of the diagnosis, clinicians and doctors had heat

0:33:02.760 --> 0:33:06.760
<v Speaker 1>lame on the parents, especially on mothers. It was the

0:33:06.760 --> 0:33:09.840
<v Speaker 1>beginning of the end of the refrigerator mother theory.

0:33:10.520 --> 0:33:13.440
<v Speaker 4>The next decade, the nineteen seventies, is pivotal to the

0:33:13.520 --> 0:33:16.760
<v Speaker 4>rights of people on the autism spectrum. In nineteen seventy one,

0:33:16.880 --> 0:33:20.200
<v Speaker 4>a lawsuit in Pennsylvania demanding access to public education for

0:33:20.320 --> 0:33:24.600
<v Speaker 4>children with developmental disabilities is successful. Other states follow in

0:33:24.680 --> 0:33:28.840
<v Speaker 4>rapid succession. In nineteen seventy five, the Federal Education for

0:33:28.920 --> 0:33:32.720
<v Speaker 4>All Handicapped Children Act as passed, and after TV personality

0:33:32.760 --> 0:33:36.960
<v Speaker 4>Heraldo Rivera exposes horrendous conditions at the Willibrook State School

0:33:37.280 --> 0:33:40.440
<v Speaker 4>and Institution for the Intellectually Disabled in Staten Island, New York.

0:33:40.840 --> 0:33:43.920
<v Speaker 4>The scandal leads to the closing of Willibrook and the

0:33:43.960 --> 0:33:45.760
<v Speaker 4>shuddering of institutions like it.

0:33:46.480 --> 0:33:50.080
<v Speaker 1>As the seventies turn into the eighties, the world learned

0:33:50.120 --> 0:33:53.280
<v Speaker 1>significantly more about autism as a condition. With a strong

0:33:53.400 --> 0:33:57.520
<v Speaker 1>genetic component data is published that supports the argument that

0:33:57.600 --> 0:34:01.160
<v Speaker 1>autism should be described as a spectrum, and in nineteen

0:34:01.200 --> 0:34:04.840
<v Speaker 1>eighty one, the English speaking world is introduced to the

0:34:04.880 --> 0:34:07.200
<v Speaker 1>research of Hans Asperger.

0:34:07.000 --> 0:34:09.520
<v Speaker 4>And at the same time, autism began to reach into

0:34:09.560 --> 0:34:12.520
<v Speaker 4>the popular consciousness in ways it hadn't before, as Temple

0:34:12.520 --> 0:34:16.919
<v Speaker 4>Granden publishes her best selling book Emergence Labeled Autistic, which

0:34:16.960 --> 0:34:19.080
<v Speaker 4>was about her experience having autism.

0:34:19.239 --> 0:34:22.160
<v Speaker 1>In nineteen eighty eight, Dustin Hoffman stars in the Hollywood

0:34:22.160 --> 0:34:25.160
<v Speaker 1>smash It Rainman, which put autism on the map in

0:34:25.200 --> 0:34:26.719
<v Speaker 1>ways it never was before.

0:34:27.000 --> 0:34:30.280
<v Speaker 4>In the nineteen nineties, the timeline moves on. This decade

0:34:30.280 --> 0:34:33.480
<v Speaker 4>saw the creation of the first organization to fund biomedical

0:34:33.520 --> 0:34:37.200
<v Speaker 4>research into autism, the National Alliance for Autism Research, and

0:34:37.200 --> 0:34:40.520
<v Speaker 4>then other organizations pursuing similar research are launched and begin

0:34:40.719 --> 0:34:44.400
<v Speaker 4>winning grants. The nineteen nineties also signals the birth of

0:34:44.440 --> 0:34:47.480
<v Speaker 4>a new kind of struggle for rights and representation. A

0:34:47.600 --> 0:34:51.160
<v Speaker 4>self advocacy movement is born. The foundation for a thriving

0:34:51.520 --> 0:34:53.440
<v Speaker 4>neurodiversity movement is laid.

0:34:54.080 --> 0:34:57.080
<v Speaker 1>In the two decades since our understanding of autism and

0:34:57.120 --> 0:34:59.960
<v Speaker 1>the space creative for people on the spectrum has ex

0:35:00.000 --> 0:35:01.320
<v Speaker 1>expanded exponentially.

0:35:01.960 --> 0:35:03.960
<v Speaker 4>But Karen, you know what I think is so interesting.

0:35:04.480 --> 0:35:07.080
<v Speaker 4>While this change was going on, while the fight for

0:35:07.080 --> 0:35:09.640
<v Speaker 4>the rights of people with autism was being waged, while

0:35:09.680 --> 0:35:12.480
<v Speaker 4>the scientists were studying the disorder, and while activists were

0:35:12.600 --> 0:35:15.880
<v Speaker 4>pushing for recognition and access and opportunity, while this idea

0:35:15.920 --> 0:35:20.040
<v Speaker 4>of neurodiversity blossomed, you know what, Donald Triplet, Donald t

0:35:20.360 --> 0:35:22.759
<v Speaker 4>case number one, the kid all of this started with,

0:35:23.160 --> 0:35:27.160
<v Speaker 4>was doing for all of that time, living his life

0:35:27.440 --> 0:35:31.480
<v Speaker 4>exactly right. The world that was focused on autism had

0:35:31.520 --> 0:35:33.480
<v Speaker 4>no idea about Donald Triplett.

0:35:33.040 --> 0:35:34.840
<v Speaker 1>And he had no idea about.

0:35:34.600 --> 0:35:38.240
<v Speaker 4>Them, absolutely none. It's as though Donald and his parents

0:35:38.400 --> 0:35:41.799
<v Speaker 4>also existed in their own silo in that little town

0:35:41.880 --> 0:35:45.120
<v Speaker 4>called Forest. You can see their insulation from all of

0:35:45.160 --> 0:35:47.880
<v Speaker 4>this change going back to as early as nineteen forty nine,

0:35:48.080 --> 0:35:51.360
<v Speaker 4>when doctor Connor wrote his third article on autism. Doctor

0:35:51.360 --> 0:35:53.880
<v Speaker 4>Connor never mentioned Beaman or Mary Triplett by name, but

0:35:53.920 --> 0:35:56.120
<v Speaker 4>he described them and the other parents of the children

0:35:56.120 --> 0:35:59.759
<v Speaker 4>included in the study in not really flattering terms. He

0:36:00.000 --> 0:36:01.839
<v Speaker 4>I have described some of them as harsh and cold

0:36:01.880 --> 0:36:02.560
<v Speaker 4>and mechanical.

0:36:03.000 --> 0:36:06.520
<v Speaker 1>We believe Mary and Beeman Triplet were completely oblivious to

0:36:06.560 --> 0:36:11.879
<v Speaker 1>this characterization, and so Donald living his life protected by

0:36:11.880 --> 0:36:16.160
<v Speaker 1>the comfy, little bubble of small town life in rural Mississippi.

0:36:16.719 --> 0:36:19.480
<v Speaker 4>Donald had no clue about the whole story of autism

0:36:19.480 --> 0:36:22.400
<v Speaker 4>that was swirling around the world outside of Forrest, like

0:36:22.440 --> 0:36:25.880
<v Speaker 4>the development of groundbreaking therapies or the confusion over the

0:36:25.880 --> 0:36:29.239
<v Speaker 4>theory that autism was somehow tied to vaccinations. He had

0:36:29.280 --> 0:36:32.000
<v Speaker 4>nothing to do with the continuous broadening of the definition

0:36:32.280 --> 0:36:33.760
<v Speaker 4>of what constitutes autism.

0:36:34.200 --> 0:36:37.719
<v Speaker 1>Ten years after Beaman Triplet's death, Mary Triplett died of

0:36:37.800 --> 0:36:41.520
<v Speaker 1>heart failure. Here's Oliver Triplett, Don's brother.

0:36:41.880 --> 0:36:44.440
<v Speaker 11>I think she was a little bit concerned about the

0:36:44.520 --> 0:36:49.920
<v Speaker 11>fact that Don might have some problem managing his affairs

0:36:50.480 --> 0:36:53.720
<v Speaker 11>in the event of her death, which occurred in nineteen

0:36:53.760 --> 0:36:58.200
<v Speaker 11>eighty five, and about a year or so prior to

0:36:58.239 --> 0:37:02.760
<v Speaker 11>her demise to be visiting my mother, and she expressed

0:37:02.760 --> 0:37:06.640
<v Speaker 11>these concerns to me, and I pointed out to her,

0:37:06.640 --> 0:37:09.920
<v Speaker 11>I said, mother, I really don't think you have anything

0:37:09.960 --> 0:37:13.719
<v Speaker 11>to worry about, because Don has demonstrated he's a good

0:37:13.800 --> 0:37:17.440
<v Speaker 11>manager of his money. He traveled all over the world,

0:37:17.520 --> 0:37:21.040
<v Speaker 11>goes places, and does a lot of things that I

0:37:21.040 --> 0:37:25.480
<v Speaker 11>wouldn't dare do and said he does just fine. And

0:37:25.600 --> 0:37:30.360
<v Speaker 11>after the discussion was over, she said, Olivery, you've convinced

0:37:30.400 --> 0:37:34.320
<v Speaker 11>me that Don will do just fine. Said okay, it's great.

0:37:35.080 --> 0:37:39.000
<v Speaker 11>So she was satisfied in her own mind that Don

0:37:39.040 --> 0:37:42.360
<v Speaker 11>would be able to fare well for himself. That's a

0:37:42.400 --> 0:37:44.080
<v Speaker 11>great story, isn't it, Tobe.

0:37:49.600 --> 0:37:54.080
<v Speaker 1>I'm John Don Van, I'm Karen Zucker. Autism's First Child

0:37:54.239 --> 0:37:57.520
<v Speaker 1>is a production of School of Humans and iHeart Podcasts

0:37:57.600 --> 0:37:59.719
<v Speaker 1>and based on our book and documentary film In a

0:38:00.040 --> 0:38:00.680
<v Speaker 1>Frank Key.

0:38:01.200 --> 0:38:04.880
<v Speaker 4>Written by Alex French, senior staff writer at iHeart Originals.

0:38:05.400 --> 0:38:06.840
<v Speaker 4>Story editor is Matt Riddle.

0:38:07.040 --> 0:38:09.480
<v Speaker 1>The podcast is produced by Alexander Ritchie.

0:38:09.760 --> 0:38:13.360
<v Speaker 4>Original score composed and mixed by Alice McCoy, editing an

0:38:13.360 --> 0:38:18.520
<v Speaker 4>Assembly by Caliche Moyer, Scoring, mixing and mastering by Dan Marshall.

0:38:19.280 --> 0:38:24.440
<v Speaker 4>Voiceovers by Julia Christgau and Michael Coscarelli. Executive producers are

0:38:24.560 --> 0:38:29.600
<v Speaker 4>Virginia Prescott, Brandon Barr, Elsie Crowley and Jason English. Special

0:38:29.600 --> 0:38:32.760
<v Speaker 4>thanks to Ray Conley, Ernie Inderdott, and Will Pearson.

0:38:38.920 --> 0:38:41.640
<v Speaker 1>School of Humans