WEBVTT - What Are The Chances

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<v Speaker 1>Hey, everybody, welcome to a special episode of Amy and

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<v Speaker 1>TJ Robots. Sitting here next to me. A lot of

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<v Speaker 1>people have been following along with us the past. I

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<v Speaker 1>guess a couple of weeks we did a show talking

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<v Speaker 1>about on one of the episodes talking about you not

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<v Speaker 1>making an appointment and being over a year, a year,

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<v Speaker 1>a year and a half a half since you win

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<v Speaker 1>for blood work that you were supposed to have. Do

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<v Speaker 1>I have that right as a Breastkansas riber.

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<v Speaker 2>I have been doing it every six months or so

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<v Speaker 2>up until well, you know.

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<v Speaker 1>Yes, everything hit the fan. But we do update people

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<v Speaker 1>recently that you have made the appointment, are going to

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<v Speaker 1>get your blood work done very soon. And that appointment

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<v Speaker 1>is with someone you speak so highly up all the time,

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<v Speaker 1>Doctor Ritz.

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<v Speaker 2>Yes, doctor Ruth Ratz, and she is actually in the

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<v Speaker 2>studio with us. She is my oncologist. She has been

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<v Speaker 2>with me from the very beginning since I was oh yes,

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<v Speaker 2>a young pop of forty when I got my breast

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<v Speaker 2>cancer diagnosis. But doctor Ortz has been on the journey

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<v Speaker 2>with me every step of the way. And so first

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<v Speaker 2>of all, I'm just gonna apologize for having left so

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<v Speaker 2>much time and space between us over the past year

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<v Speaker 2>and a half. But it's so good to see you

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<v Speaker 2>and we're so happy to have you in the studio

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<v Speaker 2>with us.

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<v Speaker 3>So welcome. I'm happy to be here. I'm delighted to

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<v Speaker 3>be here with both of you and Amy. You know,

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<v Speaker 3>I stalk you, so even though I haven't seen you

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<v Speaker 3>in person, I know you've been okay. Oh, and I

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<v Speaker 3>see you training, I see you out there running. I

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<v Speaker 3>know you're healthy, and I know that you take really

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<v Speaker 3>good care of yourself.

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<v Speaker 2>Thank you.

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<v Speaker 3>So we'll update everything see you okay.

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<v Speaker 2>Yeah, and a couple and a couple of weeks, we've

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<v Speaker 2>got the appointment, but we asked you to come into

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<v Speaker 2>the studio because there's been a big headline this week

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<v Speaker 2>with actress Olivia Munn. She's forty three years old. She

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<v Speaker 2>let everyone know that she has just been through ten

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<v Speaker 2>months of treatment for breast cancer. That, of course, is

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<v Speaker 2>always a big announcement when there's someone famous who can

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<v Speaker 2>bring awareness to the cause. But it's a unique story

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<v Speaker 2>because she's talking about how she found her cancer. She

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<v Speaker 2>said she had a clearant mammogram. She said that she

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<v Speaker 2>didn't have any of the markers for genetic testing that

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<v Speaker 2>would make her a candidate for potentially having breast cancer,

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<v Speaker 2>but then she said her doctor two months later had

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<v Speaker 2>her do a breast cancer risk assessment test, and that

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<v Speaker 2>led to more tests, which led to her finding an

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<v Speaker 2>aggressive form of breast cancer in both breasts. And I

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<v Speaker 2>kind of thought I knew a lot about breast cancer

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<v Speaker 2>throughout my journey, but even I was scratching my hat.

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<v Speaker 2>A breast cancer risk assessment test. Please explain what that

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<v Speaker 2>is and just put this into perspective for us.

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<v Speaker 3>Yes, I think we were all very shocked to hear

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<v Speaker 3>this story and it raises an important issue, particularly for

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<v Speaker 3>young women who were diagnosed with breast cancer. Let me

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<v Speaker 3>just back up and talk about the man. You know,

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<v Speaker 3>we do want everyone to have mammogram screening, but as

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<v Speaker 3>I always say, it's not one size fits all, and

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<v Speaker 3>for many young women, the mammogram won't show early stage

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<v Speaker 3>breast cancer because the breast tissue is very dense in

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<v Speaker 3>young women and the mamogram doesn't show enough. So that's

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<v Speaker 3>why it's really important for each individual to speak with

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<v Speaker 3>her doctor about what are the other potential factors that

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<v Speaker 3>could be contributing to a risk of breast cancer and

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<v Speaker 3>do we need to change up or add something to

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<v Speaker 3>the screening and surveillance. Now, the Breast Cancer Risk Assessment

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<v Speaker 3>Tool could be helpful. It's a statistical model that was

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<v Speaker 3>developed many years ago. We've had this, you know, for

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<v Speaker 3>probably fifteen twenty years already, and it's a simple computer model.

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<v Speaker 3>It's free. It's available online. You can click on a

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<v Speaker 3>website and bring it up, and it asks a few

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<v Speaker 3>basic questions about a woman's personal history. It's really developed

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<v Speaker 3>for women. We know men can get breast cancer, we'll

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<v Speaker 3>come to that later, but focusing on women, it is

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<v Speaker 3>they ask about age, family history of breast cancer, focusing

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<v Speaker 3>on close relations we call those first degree relatives, mother, sister, daughter,

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<v Speaker 3>whether or not the person has had a prior biopsy

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<v Speaker 3>of the breast that showed any atypical cells. And then

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<v Speaker 3>some questions about reproductive history. How old you were when

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<v Speaker 3>you had your first menstrual period, how if you've had pregnancies,

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<v Speaker 3>how old you were at the time of that first pregnancy.

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<v Speaker 3>And then there's a calculation that's made that gives an estimate.

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<v Speaker 3>I mean it's not perfect, but an estimate. You know,

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<v Speaker 3>what's your risk of getting breast cancer in the next

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<v Speaker 3>five years? Or over your lifetime up to age ninety

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<v Speaker 3>and compares that to the general population.

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<v Speaker 1>I think that the test is what's throwing everybody right now. Okay,

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<v Speaker 1>you tell people, tell women, go get a manogram, You

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<v Speaker 1>tell them what age to do it, how often to

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<v Speaker 1>do it, You go in, mamogram's clear and you should

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<v Speaker 1>be in the clear. Now, why would you take the

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<v Speaker 1>next step or why isn't everyone being told to take

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<v Speaker 1>do a mammogram and go online and everybody do this

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<v Speaker 1>risk assessment test.

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<v Speaker 3>Yeah, that's sort of actually a great question. We have

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<v Speaker 3>not made that recommendation. In this case, it did lead

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<v Speaker 3>to a diagnosis of breast cancer. I think maybe the

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<v Speaker 3>concern is that if everyone did it, there would be

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<v Speaker 3>kind of like mass panic because a lot of people

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<v Speaker 3>might have a slightly increased risk. I don't know how

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<v Speaker 3>hurt test actually, you know what the numbers were or

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<v Speaker 3>how it came out.

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<v Speaker 1>So thirty seven actually was it?

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<v Speaker 3>I have it right? Thirty seven lifetime risk. Yeah, so

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<v Speaker 3>that is higher than the average American woman who has

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<v Speaker 3>a twelve percent lifetime risk. So that was high enough

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<v Speaker 3>that it triggered the extra testing by her doctor. So

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<v Speaker 3>you know, as I was thinking about that. I mean,

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<v Speaker 3>maybe you're right, TJ. Maybe more people should go online

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<v Speaker 3>kind of get a rough idea where they fall out

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<v Speaker 3>on that. But remember it's just a rough idea. So

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<v Speaker 3>Olivia did the right thing. She took the next step

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<v Speaker 3>and went to her doctor and said, what does this mean.

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<v Speaker 2>This is also something that has been interesting to me

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<v Speaker 2>because yeah, I had never even heard of this test was.

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<v Speaker 2>We had to look it up and figure out what

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<v Speaker 2>it was. But I think most people know my history

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<v Speaker 2>that I had a mammogram at age forty because I

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<v Speaker 2>had a work assignment, not even because I was going

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<v Speaker 2>in there. Because at the time I was diagnosed, the

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<v Speaker 2>recommendation was fifty, then it went to forty five, and

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<v Speaker 2>now it's down to forty, which we're all applauding. I

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<v Speaker 2>know you are as well. Anyone who works with breast

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<v Speaker 2>cancer patients is saying, yes, forty years old. But I

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<v Speaker 2>ended up getting a sonogram after the mammogram showed abnormal.

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<v Speaker 2>If the sonogram is a better test than a mammogram,

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<v Speaker 2>or at least maybe a clearer test for younger women

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<v Speaker 2>who have potentially dense breast tissue, why wouldn't there always

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<v Speaker 2>be a sonogram or maybe even a sonogram versus a mammogram.

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<v Speaker 3>Well, I think you're right, Amy, And in my personal practice,

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<v Speaker 3>when I see young women at risk for breast cancer,

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<v Speaker 3>they haven't had breast cancer, but at risk, let's say,

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<v Speaker 3>because of family history, or they had a concern about

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<v Speaker 3>something and came in to be evaluated, we do always

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<v Speaker 3>add the sonogram. Some people who are very young, I

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<v Speaker 3>do the sonogram and I skip the mammogram because I

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<v Speaker 3>know that mammogram's not going to show me a whole

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<v Speaker 3>lot in someone who's very young, maybe in her thirties.

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<v Speaker 3>So again, you know, those screening recommendations are that everybody

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<v Speaker 3>should do the same thing, and I think we have

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<v Speaker 3>to tailor our recommendations to the individual person. And this

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<v Speaker 3>risk assessment test is some thing I run in the office.

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<v Speaker 3>I do it, and I might share that information with

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<v Speaker 3>my patient and say, look, your risk isn't as high

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<v Speaker 3>as we thought, or maybe it's higher than we expected,

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<v Speaker 3>or gee, we should do some genetic testing in you

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<v Speaker 3>because of your family history. So you know, there are

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<v Speaker 3>many factors we look at, and this should be one

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<v Speaker 3>of those things that gets incorporated into risk assessment. Lots

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<v Speaker 3>of gynecologists do it and I think that's what happened

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<v Speaker 3>in this instance. Or doctor said, let's just run this

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<v Speaker 3>on you and see how it comes out, like you

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<v Speaker 3>don't know what it triggered.

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<v Speaker 2>It's free, and why not Why wouldn't you do that?

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<v Speaker 2>There's no argument to not do it correct.

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<v Speaker 3>I mean, you know, I always say knowledge gives us power.

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<v Speaker 1>The sonogram versus mammogram does one? Is there a difference

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<v Speaker 1>in cost to the or or what insurance will cover,

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<v Speaker 1>so neither.

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<v Speaker 3>Of them are expensive tests. And but for whatever reason,

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<v Speaker 3>the insurance companies and Medicare and whatever has set up

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<v Speaker 3>this paradigm that you have to do the mammogram first.

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<v Speaker 3>Huh before you can order the sonogram.

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<v Speaker 2>Huh.

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<v Speaker 3>Yep, it's kind of a crazy thing. I cannot understand it.

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<v Speaker 1>Insurance generally cover both.

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<v Speaker 3>Yeah, it will eventually get covered, but sometimes you have

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<v Speaker 3>to go through the mammogram and then we can order

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<v Speaker 3>the ultrasound and for our older patients. Actually, just this

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<v Speaker 3>past year, Medicare changed their system so that we cannot

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<v Speaker 3>order the mammogram and ultrasound to be done on the

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<v Speaker 3>same day. The prus has to have the mammogram and

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<v Speaker 3>then if we think the sonogram is indicated we order

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<v Speaker 3>it and she has to go back a second time.

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<v Speaker 2>It's it's absurd and look, I have shared the story before,

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<v Speaker 2>but I haven't here on this podcast. I was outraged

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<v Speaker 2>when I had the first mammogram and the Mamma Van

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<v Speaker 2>in the middle of Times Square. They just saw something suspicious.

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<v Speaker 2>There was no nothing specific to cancer. They just said,

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<v Speaker 2>you know what, we'd like you to get another mammogram

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<v Speaker 2>because something looks a little off. And so when I

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<v Speaker 2>went to go make the follow up appointment at Nyu

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<v Speaker 2>Lang Gone, I got a call the night before from

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<v Speaker 2>my insurance company saying we are not going to cover this.

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<v Speaker 2>And so NYU called me and said, you're going to

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<v Speaker 2>have to give us your credit card if you want

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<v Speaker 2>to keep the appointment for tomorrow. And I almost did

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<v Speaker 2>not do it because I was annoyed A that I

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<v Speaker 2>was going back for a second one and B that

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<v Speaker 2>I was going to have to pay at least eight

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<v Speaker 2>hundred dollars out of pocket. Eight hundred dollars to a

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<v Speaker 2>lot of people is not even an option. That's their

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<v Speaker 2>rent payment, that's food on their table. I was lucky

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<v Speaker 2>enough to be able to afford it, but to think

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<v Speaker 2>that insurance companies get involved in a way where they

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<v Speaker 2>make life so much more difficult and potentially could could

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<v Speaker 2>be costing women lives, time, money, etc. I know you,

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<v Speaker 2>as a doctor have to be so frustrated by this.

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<v Speaker 3>We are very frustrated by it. And you know that

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<v Speaker 3>eight hundred dollars bill is probably including other costs than

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<v Speaker 3>just the cost of doing the X ray, because we

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<v Speaker 3>know that when we've done mass screening projects sending those

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<v Speaker 3>vans out, for example, we can bring the cost down

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<v Speaker 3>significantly and we don't want cost ever to be a

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<v Speaker 3>barrier for women to get the right screening that they need,

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<v Speaker 3>So that's really really important. It is very frustrating. And

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<v Speaker 3>again in our younger patients in particular, people say, oh, well,

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<v Speaker 3>breast cancer doesn't happen in people that age, but it

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<v Speaker 3>sure does, you know, and you know that too all

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<v Speaker 3>too well.

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<v Speaker 1>The doctor oris with a living mon here help me.

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<v Speaker 1>And again I'm familiar to a certain degree and to

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<v Speaker 1>feel maybe familiar little more because of who I'm in

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<v Speaker 1>love with here and the history of breast cancer. But

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<v Speaker 1>the order someone's told to go get a mammogram, you

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<v Speaker 1>get that mammogram. If it's clear, then there is no

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<v Speaker 1>next step necessarily right, You're done until your next scheduled appointment.

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<v Speaker 1>A living your month is saying the doctor. So the

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<v Speaker 1>clear mammogram, but still we went ahead and did the

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<v Speaker 1>risk the risk assessment, and if they hadn't done that,

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<v Speaker 1>then maybe they wouldn't have taken that. So I am

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<v Speaker 1>trying to find the order and trying to get women

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<v Speaker 1>to understand because I don't understand what the understand what

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<v Speaker 1>they should They run out and get online see their

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<v Speaker 1>risk assessment score and then immediately go talk to the

0:12:19.800 --> 0:12:22.240
<v Speaker 1>doctor about it. Is that what everybody should be doing.

0:12:22.880 --> 0:12:24.960
<v Speaker 3>I think everyone has to be aware of what's going

0:12:24.960 --> 0:12:29.080
<v Speaker 3>on in her own personal health and that family history story.

0:12:29.200 --> 0:12:32.839
<v Speaker 3>Every woman should see the doctor once a year or

0:12:33.040 --> 0:12:35.680
<v Speaker 3>you know, it could be a nurse practitioner or a PA,

0:12:35.760 --> 0:12:39.400
<v Speaker 3>whoever the person is who's providing your health care for

0:12:39.640 --> 0:12:44.480
<v Speaker 3>a GYN exam and a clinical breast exam, so sometimes

0:12:44.520 --> 0:12:47.240
<v Speaker 3>you can feel something that may not show up right

0:12:47.280 --> 0:12:50.080
<v Speaker 3>away on the X ray. Also, checking under the arms

0:12:50.080 --> 0:12:54.000
<v Speaker 3>for lumps is very important. So the clinical breast examination

0:12:54.920 --> 0:12:58.160
<v Speaker 3>and the mammogram is the way we start. I personally,

0:12:58.600 --> 0:13:02.280
<v Speaker 3>you know, as Amy knows, younger patients feel that ultrasound,

0:13:02.320 --> 0:13:05.800
<v Speaker 3>that sonogram should be part of that evaluation, and then

0:13:05.960 --> 0:13:10.320
<v Speaker 3>in discussing those results. It's not just when and done,

0:13:10.320 --> 0:13:13.360
<v Speaker 3>you're clear, it should be a discussion afterwards, well what

0:13:13.920 --> 0:13:17.880
<v Speaker 3>did my mammogram show? If there's very dense breast tissue there,

0:13:18.679 --> 0:13:22.079
<v Speaker 3>do I need a follow up test? If oh, yeah,

0:13:22.160 --> 0:13:25.640
<v Speaker 3>I didn't tell you my mom had breast cancer, or

0:13:25.679 --> 0:13:28.920
<v Speaker 3>my mom and her two sisters had breast cancer, or

0:13:29.800 --> 0:13:33.640
<v Speaker 3>in taking that reproductive history you find out that that

0:13:33.760 --> 0:13:37.439
<v Speaker 3>person had their first child over age thirty, and maybe

0:13:37.720 --> 0:13:41.120
<v Speaker 3>you know other issues in their personal health that might trigger.

0:13:41.840 --> 0:13:44.560
<v Speaker 3>In this case, it triggered you know, Olivia's doctor to

0:13:44.679 --> 0:13:48.720
<v Speaker 3>run that risk assessment score. It's not wrong for someone

0:13:48.800 --> 0:13:52.160
<v Speaker 3>to go online and do it herself. We just want

0:13:52.160 --> 0:13:57.360
<v Speaker 3>to be careful that people don't get misinterpreted. So once

0:13:57.400 --> 0:13:59.920
<v Speaker 3>you run it, go in and talk to an extra

0:14:00.360 --> 0:14:02.240
<v Speaker 3>about what that means and what you should do.

0:14:11.120 --> 0:14:11.160
<v Speaker 2>That.

0:14:11.280 --> 0:14:13.520
<v Speaker 1>I hear you right that a lot of women may

0:14:13.559 --> 0:14:17.200
<v Speaker 1>be getting the risk assessment and don't even know it

0:14:17.200 --> 0:14:19.160
<v Speaker 1>because they might be in there with their doctor. It

0:14:19.200 --> 0:14:21.000
<v Speaker 1>sounds like you were saying you were asking the questions

0:14:21.000 --> 0:14:23.000
<v Speaker 1>and doing the risk assessment even though the woman didn't

0:14:23.000 --> 0:14:24.080
<v Speaker 1>realize that.

0:14:24.160 --> 0:14:26.160
<v Speaker 3>Then I told her. They told her about Yeah, you

0:14:26.200 --> 0:14:28.360
<v Speaker 3>have to always tell them like right, what it is?

0:14:28.560 --> 0:14:32.520
<v Speaker 2>Right? And it's interesting because we've had this conversation. I

0:14:32.760 --> 0:14:35.880
<v Speaker 2>was among the more than eighty percent of breast cancer

0:14:36.040 --> 0:14:38.840
<v Speaker 2>patients who have no family history, so I would have

0:14:38.920 --> 0:14:41.720
<v Speaker 2>been considered average risk. I wouldn't have considered myself at

0:14:41.760 --> 0:14:45.560
<v Speaker 2>elevated risk. But you mentioned this to me way back

0:14:45.600 --> 0:14:48.000
<v Speaker 2>when my daughters were really young. Now, but now Avis

0:14:48.000 --> 0:14:51.360
<v Speaker 2>twenty one and Analyse is about to be eighteen, and

0:14:52.400 --> 0:14:55.280
<v Speaker 2>you had said, because of my history, their history is

0:14:55.320 --> 0:14:57.680
<v Speaker 2>now they are at an elevated risk.

0:14:57.720 --> 0:14:58.960
<v Speaker 3>Correct, So what.

0:14:59.720 --> 0:15:02.680
<v Speaker 2>Is the age because it's been so confusing for women

0:15:03.000 --> 0:15:05.520
<v Speaker 2>who are of average risk when they should have their

0:15:05.520 --> 0:15:09.160
<v Speaker 2>first mammogram. But what about people like my daughters whose

0:15:09.240 --> 0:15:12.440
<v Speaker 2>mom had breast cancer at a young age, When should

0:15:12.520 --> 0:15:13.640
<v Speaker 2>they have their first mammogram?

0:15:13.760 --> 0:15:16.760
<v Speaker 3>Is that clear? Yes? What we do is that we

0:15:16.920 --> 0:15:22.000
<v Speaker 3>recommend they start seeing an expert ten years before the

0:15:22.200 --> 0:15:28.040
<v Speaker 3>age at which their mom was diagnosed, so thirty round thirty.

0:15:28.080 --> 0:15:30.800
<v Speaker 3>That doesn't mean they have to go into a whole

0:15:30.920 --> 0:15:34.400
<v Speaker 3>intensive thing, but they have to talk to someone who

0:15:34.440 --> 0:15:38.920
<v Speaker 3>is an expert and go through their personal history, maybe

0:15:39.000 --> 0:15:42.160
<v Speaker 3>run a risk assessment score, and then figure out, okay,

0:15:42.160 --> 0:15:45.320
<v Speaker 3>what's going to be the best way of keeping track

0:15:45.360 --> 0:15:47.960
<v Speaker 3>of them and getting started a little bit early or

0:15:48.040 --> 0:15:51.280
<v Speaker 3>so we're ahead of the curve and watching closely.

0:15:51.560 --> 0:15:54.520
<v Speaker 2>I mean, obviously I had access to the best doctors

0:15:54.560 --> 0:15:58.120
<v Speaker 2>in the world, you doctor Ratz and the incredible surgeons

0:15:58.120 --> 0:15:59.880
<v Speaker 2>and everyone there at NYU Langona, and I had a

0:16:00.040 --> 0:16:04.600
<v Speaker 2>credible insurance. For women who don't have those means or

0:16:04.640 --> 0:16:07.400
<v Speaker 2>have access to healthcare like that, are they going to

0:16:07.560 --> 0:16:10.440
<v Speaker 2>find it hard? Say they go online and they take

0:16:10.440 --> 0:16:12.440
<v Speaker 2>this breast cancer risk assessment test and they see it's

0:16:12.440 --> 0:16:17.200
<v Speaker 2>elevated significantly above that twelve percent average. What are their options?

0:16:17.280 --> 0:16:21.080
<v Speaker 2>Will they What could you suggest to them? What is

0:16:21.120 --> 0:16:22.000
<v Speaker 2>your advice to them?

0:16:22.600 --> 0:16:25.960
<v Speaker 3>Well, first of all, we have an amazing network of

0:16:26.560 --> 0:16:33.360
<v Speaker 3>National Cancer Institute designated cancer centers in every state of

0:16:33.400 --> 0:16:36.800
<v Speaker 3>the Union, all fifty states. Now we have you know,

0:16:36.840 --> 0:16:38.920
<v Speaker 3>four or five of them right here in New York City,

0:16:39.280 --> 0:16:42.760
<v Speaker 3>So we have a lot of density of population and

0:16:42.840 --> 0:16:46.520
<v Speaker 3>a lot of healthcare providers. In other parts of the country,

0:16:46.600 --> 0:16:50.400
<v Speaker 3>it could be a big geographic distance for someone to

0:16:50.440 --> 0:16:54.840
<v Speaker 3>travel to, but at least if you end up at

0:16:55.000 --> 0:17:00.200
<v Speaker 3>a cancer center or a university medical center, or or

0:17:00.240 --> 0:17:04.360
<v Speaker 3>a medical center affiliated with a medical school. So we're

0:17:04.400 --> 0:17:08.320
<v Speaker 3>talking about places that are a little more academic. You'll

0:17:08.320 --> 0:17:12.560
<v Speaker 3>get access to someone who's an expert. There are some

0:17:12.760 --> 0:17:17.320
<v Speaker 3>other organizations that are out there that provide amazing information

0:17:17.400 --> 0:17:20.720
<v Speaker 3>and screening for women. Planned Parenthood is one of them.

0:17:21.480 --> 0:17:24.320
<v Speaker 3>People think Planned Parenthood was only out there to provide

0:17:24.359 --> 0:17:28.440
<v Speaker 3>contraception and help women if they needed to terminate a pregnancy,

0:17:29.000 --> 0:17:33.199
<v Speaker 3>but actually they also provide the entry point into the

0:17:33.200 --> 0:17:38.639
<v Speaker 3>healthcare system for breast health as well. And other organizations

0:17:38.680 --> 0:17:41.680
<v Speaker 3>that are out there with who can provide services at

0:17:41.720 --> 0:17:47.200
<v Speaker 3>low cost or accepting insurances that are like Medicaid or

0:17:47.320 --> 0:17:50.640
<v Speaker 3>public health insurance, but all the major medical centers will

0:17:50.960 --> 0:17:54.600
<v Speaker 3>accept other insurances. And here in New York City, for example,

0:17:54.640 --> 0:17:58.640
<v Speaker 3>in our public hospital system, Health and Hospitals Corporation HC

0:17:58.720 --> 0:18:02.120
<v Speaker 3>hospitals can go in even without insurance and be seen

0:18:02.160 --> 0:18:04.120
<v Speaker 3>in our breast clinic and be evaluated.

0:18:04.840 --> 0:18:07.280
<v Speaker 1>Can you give some perspective to this Olivia mun story

0:18:07.280 --> 0:18:09.320
<v Speaker 1>that it's getting a lot of attention. She's a famous person.

0:18:09.359 --> 0:18:11.520
<v Speaker 1>She put it out there, and that's great to bring

0:18:11.560 --> 0:18:16.000
<v Speaker 1>attention to. But just how rare is a case like hers,

0:18:16.000 --> 0:18:19.200
<v Speaker 1>and that a mammogram didn't catch something, you'd then take

0:18:19.240 --> 0:18:22.040
<v Speaker 1>a risk assessment, and the mammogram missed that she has

0:18:22.080 --> 0:18:25.280
<v Speaker 1>this aggressive form of breast cancer in both breasts. Is

0:18:25.320 --> 0:18:27.720
<v Speaker 1>this that kind of an anomaly of a case here.

0:18:27.600 --> 0:18:29.960
<v Speaker 3>Well, I think it's not so unusual in our young

0:18:30.040 --> 0:18:33.440
<v Speaker 3>patients where the mammogram is not necessarily the best test

0:18:33.920 --> 0:18:36.719
<v Speaker 3>because of that dense breast tissue. And maybe she had

0:18:36.720 --> 0:18:39.880
<v Speaker 3>an ultrasound or an MRI or something. She had both,

0:18:39.920 --> 0:18:44.520
<v Speaker 3>she had both after the risk assessment test. I know

0:18:44.560 --> 0:18:47.200
<v Speaker 3>they keep saying this is an aggressive form of breast cancer,

0:18:47.760 --> 0:18:51.560
<v Speaker 3>but I think that's a strong word. She chose that word.

0:18:53.080 --> 0:18:56.359
<v Speaker 3>And I'll give you a little biology lesson here. Breast

0:18:56.359 --> 0:19:00.600
<v Speaker 3>cancer is not just one disease. There are many types

0:19:00.720 --> 0:19:05.280
<v Speaker 3>of breast cancer. She really has an intermediate form. I

0:19:05.320 --> 0:19:08.320
<v Speaker 3>think that luminole B I've I've never even heard of it.

0:19:08.560 --> 0:19:14.320
<v Speaker 3>So we have four molecular subtypes of breast cancer. Luminal

0:19:14.560 --> 0:19:20.080
<v Speaker 3>A B and then the her too enriched or her

0:19:20.080 --> 0:19:24.560
<v Speaker 3>too new positive breast cancer, and then the basoloid breast cancer,

0:19:24.600 --> 0:19:29.240
<v Speaker 3>which is unfortunately called triple negative, which is kind of

0:19:29.280 --> 0:19:32.720
<v Speaker 3>not a great name, But what that's referring to are

0:19:32.760 --> 0:19:35.840
<v Speaker 3>the three receptors that we look at that give us

0:19:35.880 --> 0:19:39.200
<v Speaker 3>a lot of information about the biologic behavior of that cancer,

0:19:39.240 --> 0:19:43.440
<v Speaker 3>and that's the estrogen and progesterone receptors, the hormone receptors.

0:19:43.920 --> 0:19:47.760
<v Speaker 3>Those are the luminal A and B cancers. And then

0:19:47.800 --> 0:19:50.800
<v Speaker 3>there's the her too positive that's her too new positive

0:19:51.080 --> 0:19:55.560
<v Speaker 3>and triple negative means there's no receptors present for estrogen,

0:19:55.600 --> 0:19:58.240
<v Speaker 3>progester on her too new. All three of those are absent,

0:19:59.040 --> 0:20:01.840
<v Speaker 3>and that helps us to determine what treatments to use

0:20:02.080 --> 0:20:05.879
<v Speaker 3>in targeting the cancer and making sure we're treating that

0:20:05.960 --> 0:20:10.480
<v Speaker 3>individual with the right kind of treatment. So, the estrogen

0:20:10.560 --> 0:20:15.639
<v Speaker 3>positive breast cancers are all luminal and we subdivide them

0:20:15.680 --> 0:20:18.600
<v Speaker 3>into A and B, and there are tests that we

0:20:18.680 --> 0:20:22.720
<v Speaker 3>can use that help us figure out which subtype it

0:20:22.880 --> 0:20:25.720
<v Speaker 3>is and that helps us determine if we should add

0:20:25.800 --> 0:20:31.520
<v Speaker 3>chemotherapy to just the anti estrogen endocrine therapy. And Amy

0:20:31.560 --> 0:20:34.880
<v Speaker 3>knows about that. Yes, I do do genomic assays. One

0:20:34.880 --> 0:20:38.439
<v Speaker 3>of them is called the acotype test. There's also a

0:20:38.560 --> 0:20:41.879
<v Speaker 3>mamma print test. There are several tests we can run

0:20:42.080 --> 0:20:46.000
<v Speaker 3>on the tumor tissue that tells us Okay, we know

0:20:46.080 --> 0:20:50.760
<v Speaker 3>it's estrogen receptor positive, but are there other factors at

0:20:50.760 --> 0:20:53.520
<v Speaker 3>play here which tell us, well, maybe we need to

0:20:53.560 --> 0:20:55.000
<v Speaker 3>add a little something else to the treatment.

0:20:55.560 --> 0:20:56.520
<v Speaker 1>And I'm sorry, just a quick thing.

0:20:56.600 --> 0:20:59.000
<v Speaker 3>So it's not super super aggressive, but it's a little

0:20:59.000 --> 0:20:59.840
<v Speaker 3>more aggressive than.

0:20:59.800 --> 0:21:02.719
<v Speaker 1>The you said, not super aggressive and not necessarily an

0:21:02.720 --> 0:21:06.080
<v Speaker 1>anomaly because a mammogram isn't the best test for a

0:21:06.119 --> 0:21:08.959
<v Speaker 1>younger woman. When you say young in your world, when

0:21:08.960 --> 0:21:10.840
<v Speaker 1>you talk in breast cancer and women young, what is

0:21:10.880 --> 0:21:12.920
<v Speaker 1>the age we're talking about when you're thinking.

0:21:12.640 --> 0:21:15.840
<v Speaker 3>Young, less than forty five?

0:21:16.000 --> 0:21:17.920
<v Speaker 1>Okay, yeah, she's forty three.

0:21:18.040 --> 0:21:18.920
<v Speaker 3>Yeah she's forty three.

0:21:19.080 --> 0:21:21.320
<v Speaker 2>And you know, it is remarkable hearing you talk about

0:21:21.600 --> 0:21:23.720
<v Speaker 2>there have been so many advances. I mean even when

0:21:23.720 --> 0:21:27.480
<v Speaker 2>I was diagnosed ten years ago, I got the ANCA

0:21:27.640 --> 0:21:30.280
<v Speaker 2>score and you were able. That was I remember you

0:21:30.320 --> 0:21:34.080
<v Speaker 2>sat me down and you said, sorry, you got chemotherapy

0:21:34.119 --> 0:21:37.560
<v Speaker 2>ahead of you because my AUNCA score was I believe intermediate.

0:21:37.720 --> 0:21:40.880
<v Speaker 2>And you can actually predict or at least say whether

0:21:40.960 --> 0:21:42.760
<v Speaker 2>or not what your chances are of having it recur

0:21:42.800 --> 0:21:45.080
<v Speaker 2>and become metastatic. So I think mine's intermediate.

0:21:45.160 --> 0:21:48.720
<v Speaker 3>It was, And it's not just that score. We also

0:21:48.760 --> 0:21:52.359
<v Speaker 3>look at the clinical factors, age, size of the tumor,

0:21:52.760 --> 0:21:55.040
<v Speaker 3>did any cells get into the lymph node? And we

0:21:55.200 --> 0:21:58.199
<v Speaker 3>put all of that together. So you know, nothing in

0:21:58.200 --> 0:22:00.479
<v Speaker 3>medicine is just like an on off switch. It's not

0:22:00.640 --> 0:22:03.240
<v Speaker 3>just one thing that determines what we do. It's kind

0:22:03.280 --> 0:22:08.360
<v Speaker 3>of all of the information and then that soft thing

0:22:08.400 --> 0:22:11.480
<v Speaker 3>we call clinical judgment. That's why you can't replace me

0:22:11.560 --> 0:22:16.600
<v Speaker 3>with a robot just yet. Isn't she great?

0:22:16.840 --> 0:22:19.159
<v Speaker 2>Isn't she great? I love doctor writ You know. I

0:22:19.160 --> 0:22:20.639
<v Speaker 2>can't believe I let a year and a half go

0:22:20.760 --> 0:22:27.040
<v Speaker 2>without coming into see But when stories like this hit

0:22:27.119 --> 0:22:29.600
<v Speaker 2>the news, I know a lot of women go into

0:22:29.640 --> 0:22:32.439
<v Speaker 2>panic mode, and you don't want people to overreact. But

0:22:32.480 --> 0:22:35.359
<v Speaker 2>also it's not a bad thing because this type of

0:22:35.400 --> 0:22:38.680
<v Speaker 2>story brings awareness where women suddenly start to take their

0:22:38.680 --> 0:22:41.440
<v Speaker 2>health a little bit more seriously and think, oh wow,

0:22:41.800 --> 0:22:43.679
<v Speaker 2>it could happen to me. What is your reaction when

0:22:43.720 --> 0:22:47.000
<v Speaker 2>you see celebrities come out and explain what happened. I mean,

0:22:47.040 --> 0:22:48.879
<v Speaker 2>they might not get all the facts exactly right, but

0:22:48.960 --> 0:22:53.080
<v Speaker 2>the general idea is to warn and make women aware.

0:22:53.480 --> 0:22:58.119
<v Speaker 3>I'm always proud when someone steps forward to share something

0:22:58.160 --> 0:23:03.720
<v Speaker 3>that's deeply personal, deeply intimate, and be able to open

0:23:03.800 --> 0:23:08.680
<v Speaker 3>up to the public and say, learn from my story.

0:23:08.800 --> 0:23:13.640
<v Speaker 3>I'm sharing this with you to help you. And that's

0:23:13.640 --> 0:23:17.159
<v Speaker 3>a tremendous gift and I think that for people to

0:23:17.240 --> 0:23:19.600
<v Speaker 3>do that is very, very courageous.

0:23:20.080 --> 0:23:22.520
<v Speaker 1>This obviously raises awareness, but this is living a month

0:23:22.600 --> 0:23:24.440
<v Speaker 1>story and all of the back and forth about this

0:23:24.680 --> 0:23:27.600
<v Speaker 1>breast cancer or risk assessment test. Where would you caution

0:23:27.800 --> 0:23:30.119
<v Speaker 1>us in this story? You want the word out there,

0:23:30.240 --> 0:23:32.960
<v Speaker 1>but where do you caution everybody in listening to the story.

0:23:33.000 --> 0:23:36.040
<v Speaker 3>Well, I always caution people not to panic, but I

0:23:36.080 --> 0:23:39.720
<v Speaker 3>would say the test is available. And I think Amy's right.

0:23:39.840 --> 0:23:42.679
<v Speaker 3>I think the more that people are aware of their health,

0:23:42.880 --> 0:23:45.360
<v Speaker 3>the better they're going to be able to take care

0:23:45.359 --> 0:23:47.800
<v Speaker 3>of themselves. So if a woman says, gee, I'm a

0:23:47.840 --> 0:23:50.000
<v Speaker 3>little concerned about this, I'm going to go online and

0:23:50.080 --> 0:23:52.560
<v Speaker 3>run that essay on myself, you know, see where my

0:23:52.640 --> 0:23:56.960
<v Speaker 3>number comes out. Then make sure though that we have

0:23:57.040 --> 0:24:00.600
<v Speaker 3>the support system for her so she can follow up,

0:24:01.240 --> 0:24:03.840
<v Speaker 3>maybe even make that appointment with your doctor first, or

0:24:03.880 --> 0:24:06.560
<v Speaker 3>go into your healthcare provider and say i'd like to

0:24:06.600 --> 0:24:08.359
<v Speaker 3>do this, maybe we can do it. Together. I mean

0:24:08.400 --> 0:24:10.800
<v Speaker 3>it takes about three minutes to punch the numbers in

0:24:10.840 --> 0:24:14.560
<v Speaker 3>on the computer, so then you're not just sitting there

0:24:14.600 --> 0:24:16.720
<v Speaker 3>and then can't get an appointment to see your doctor

0:24:16.720 --> 0:24:18.600
<v Speaker 3>for two months and you're all in a panic about it.

0:24:18.840 --> 0:24:22.000
<v Speaker 3>So maybe schedule that appointment and say this is something

0:24:22.080 --> 0:24:24.360
<v Speaker 3>I'd like to discuss with you, and go over all

0:24:24.400 --> 0:24:28.400
<v Speaker 3>the other factors. Other risk factors for developing breast cancer are,

0:24:28.520 --> 0:24:33.520
<v Speaker 3>for example, alcohol, use too much drinking no good, don't

0:24:33.600 --> 0:24:36.840
<v Speaker 3>drink every day, don't drink more than two drinks if

0:24:36.840 --> 0:24:39.159
<v Speaker 3>you're going out to a party. You know, alcohol can

0:24:39.200 --> 0:24:42.440
<v Speaker 3>be a big risk factor. Keep a healthy body weight.

0:24:42.800 --> 0:24:45.280
<v Speaker 3>You don't have to be super skinny, but a healthy

0:24:45.280 --> 0:24:49.919
<v Speaker 3>body weight. Physical exercise is important. Amy knows that. I

0:24:49.960 --> 0:24:53.280
<v Speaker 3>think it's been a big factor in really keeping you

0:24:53.359 --> 0:24:56.720
<v Speaker 3>healthy and getting you through the side effects of treatment.

0:24:56.840 --> 0:25:00.280
<v Speaker 2>Oh yeah, to even be able to tolerate tomoxifen as

0:25:00.320 --> 0:25:02.879
<v Speaker 2>long as I did. You know, I think staying active

0:25:02.960 --> 0:25:06.399
<v Speaker 2>kept my joints working, because that's a big complaint. You know,

0:25:06.480 --> 0:25:09.120
<v Speaker 2>some of the meds that they put you on makes

0:25:09.160 --> 0:25:11.240
<v Speaker 2>you not want to exercise. But if you can push

0:25:11.280 --> 0:25:13.120
<v Speaker 2>through it, then you can get to the other side

0:25:13.119 --> 0:25:14.720
<v Speaker 2>of it, and you can make it work and stay

0:25:14.760 --> 0:25:17.640
<v Speaker 2>on it for as long as possible, which obviously reduces

0:25:17.640 --> 0:25:20.360
<v Speaker 2>your risk of recurrence, which is what we're all looking for.

0:25:21.000 --> 0:25:23.879
<v Speaker 2>I have a question if can you, as a woman,

0:25:24.000 --> 0:25:27.679
<v Speaker 2>go into your doctor and say I just want a

0:25:27.720 --> 0:25:31.720
<v Speaker 2>sonogram and could you insist on it? Can you pay

0:25:31.720 --> 0:25:33.639
<v Speaker 2>for it yourself if your insurance won't pay for it?

0:25:33.680 --> 0:25:36.040
<v Speaker 2>If you have the means, what are your rights or

0:25:36.080 --> 0:25:38.520
<v Speaker 2>options as a patient if you think you want something.

0:25:39.880 --> 0:25:42.159
<v Speaker 3>I think you should have that discussion with your doctor,

0:25:43.280 --> 0:25:46.320
<v Speaker 3>and I think most doctors would agree to, you know,

0:25:46.359 --> 0:25:48.760
<v Speaker 3>work with you in getting the right test done for you.

0:25:49.560 --> 0:25:52.560
<v Speaker 3>Sometimes we have to finesse the order in which we

0:25:52.640 --> 0:25:55.960
<v Speaker 3>do things. Sometimes, even at the cancer center, I have

0:25:56.040 --> 0:25:58.280
<v Speaker 3>to call the radiologist and say, you know, I'm not

0:25:58.560 --> 0:26:01.000
<v Speaker 3>doing that mammogram on this thirty two year old. It's

0:26:01.040 --> 0:26:05.399
<v Speaker 3>not happening. Just do the ultrasound, pick up the phone

0:26:05.400 --> 0:26:07.840
<v Speaker 3>and you know, make that phone call. But we can

0:26:07.960 --> 0:26:12.840
<v Speaker 3>usually get things done in the right sequence and appropriately

0:26:12.880 --> 0:26:13.600
<v Speaker 3>for each patient.

0:26:13.920 --> 0:26:17.280
<v Speaker 1>The test is available on the National Cancer Institute website

0:26:17.280 --> 0:26:21.240
<v Speaker 1>and they say they've had a huge spike. Please caution,

0:26:22.320 --> 0:26:25.840
<v Speaker 1>as women of color, black women, in particular, I think

0:26:25.840 --> 0:26:28.480
<v Speaker 1>here that I think they've tried to update the tool

0:26:28.480 --> 0:26:30.959
<v Speaker 1>over time, but it might not be as accurate. For

0:26:31.040 --> 0:26:31.800
<v Speaker 1>women of COLT.

0:26:31.760 --> 0:26:35.360
<v Speaker 3>May actually underestimate the risk and we're not sure why

0:26:35.400 --> 0:26:37.879
<v Speaker 3>that is. And it's not even because when we do

0:26:38.000 --> 0:26:41.040
<v Speaker 3>genetic testing we can find a particular gene. We haven't

0:26:41.040 --> 0:26:45.399
<v Speaker 3>identified that yet. They also caution that for Asian women

0:26:45.440 --> 0:26:50.080
<v Speaker 3>born outside of the United States, the test and Hispanic

0:26:50.119 --> 0:26:52.679
<v Speaker 3>women born outside of the United States it may not

0:26:52.800 --> 0:26:55.959
<v Speaker 3>be accurate. And that's because when the test was developed

0:26:56.320 --> 0:26:59.800
<v Speaker 3>decades ago, it was validated on a population of pre

0:27:00.119 --> 0:27:04.080
<v Speaker 3>dominantly Caucasian women, so there could be some caveats there.

0:27:04.640 --> 0:27:09.400
<v Speaker 3>If a woman has a history of what we call

0:27:09.560 --> 0:27:15.000
<v Speaker 3>non invasive breast cancer DCIS or LCIs, the tool is

0:27:15.040 --> 0:27:20.200
<v Speaker 3>not accurate. If the person knows she has a genetic

0:27:20.280 --> 0:27:23.280
<v Speaker 3>mutation like BRCA one or b r c A two

0:27:24.000 --> 0:27:28.400
<v Speaker 3>or another genetic mutation that could increase the risk of cancer,

0:27:28.800 --> 0:27:31.920
<v Speaker 3>the test is not accurate. So all of those kind

0:27:31.920 --> 0:27:35.639
<v Speaker 3>of disclaimers are the in the small print there. You

0:27:35.680 --> 0:27:39.160
<v Speaker 3>know when you open up the click on the internet

0:27:39.200 --> 0:27:40.080
<v Speaker 3>to open up the test.

0:27:49.280 --> 0:27:51.800
<v Speaker 2>I have a question for any woman who is listening

0:27:51.880 --> 0:27:55.560
<v Speaker 2>right now. What you mentioned the things you can be

0:27:55.600 --> 0:27:58.119
<v Speaker 2>doing to prevent cancer or to lower your risk of cancer,

0:27:58.359 --> 0:28:02.840
<v Speaker 2>But what in terms of monitoring and making those appointments,

0:28:02.880 --> 0:28:05.800
<v Speaker 2>what should women be doing at what age? Can you

0:28:05.800 --> 0:28:08.280
<v Speaker 2>give us kind of that rundown, So anyone who's listening knows, Okay,

0:28:08.280 --> 0:28:10.280
<v Speaker 2>if I'm this age, I should be doing this. If

0:28:10.280 --> 0:28:12.480
<v Speaker 2>I'm that age, I should be doing this. How often

0:28:12.520 --> 0:28:13.360
<v Speaker 2>should I be doing it?

0:28:15.600 --> 0:28:18.760
<v Speaker 3>I'm going to start really young. I think any young

0:28:18.800 --> 0:28:23.040
<v Speaker 3>woman who is sexually active should have an exam with

0:28:23.400 --> 0:28:27.880
<v Speaker 3>a gynecologist or a gyn healthcare provider once a year.

0:28:29.640 --> 0:28:33.639
<v Speaker 3>Make sure everything's okay, and that's also checking for infections

0:28:33.760 --> 0:28:39.600
<v Speaker 3>or other conditions, and be sure it includes a breast exam.

0:28:41.200 --> 0:28:45.320
<v Speaker 3>I think that all women from early age eighteen on

0:28:46.040 --> 0:28:50.880
<v Speaker 3>check yourself every month. The best time to do a

0:28:50.960 --> 0:28:55.240
<v Speaker 3>self breast examination is right after your period is finished.

0:28:55.560 --> 0:28:57.640
<v Speaker 3>That's when the breast is going to be the softest

0:28:58.080 --> 0:29:00.200
<v Speaker 3>and the least tender. As a lot of women know,

0:29:00.240 --> 0:29:04.000
<v Speaker 3>they feel fluctuations during the month with that monthly cycle,

0:29:04.400 --> 0:29:08.360
<v Speaker 3>So once things have quieted down, check yourself, poke around

0:29:08.400 --> 0:29:10.760
<v Speaker 3>under the arms, make sure there are no lumps or bumps.

0:29:12.040 --> 0:29:16.440
<v Speaker 3>If someone has a concern, any concern at all. Something

0:29:16.480 --> 0:29:20.960
<v Speaker 3>feels weird, this looks odd, my skin color changed, there's

0:29:21.000 --> 0:29:25.840
<v Speaker 3>a discharge from the nipple, something's painful. Go in and

0:29:25.920 --> 0:29:30.000
<v Speaker 3>get it checked out. May turn out to be nothing,

0:29:30.360 --> 0:29:33.480
<v Speaker 3>but check it out. So that's for all women. I

0:29:33.480 --> 0:29:36.760
<v Speaker 3>would say from late teenage years on, go in at

0:29:36.840 --> 0:29:40.960
<v Speaker 3>least once a year for checkup, and check yourself every month.

0:29:41.760 --> 0:29:44.960
<v Speaker 3>In terms of when to start breast imaging, that's that

0:29:45.120 --> 0:29:49.840
<v Speaker 3>ultrasound or the mammogram or if necessary, an MRI, that's

0:29:49.920 --> 0:29:53.480
<v Speaker 3>where tools like this risk assessment tool might really help

0:29:53.560 --> 0:29:57.520
<v Speaker 3>us figure out. Okay, we have a general guideline that

0:29:57.600 --> 0:30:00.720
<v Speaker 3>says start in your forties, but maybe someone needs to

0:30:00.760 --> 0:30:05.040
<v Speaker 3>start earlier because of a family history or some other

0:30:05.080 --> 0:30:08.560
<v Speaker 3>factor in her health. So that's where we should maybe

0:30:08.600 --> 0:30:12.040
<v Speaker 3>have our healthcare providers run that risk assessment tool when

0:30:12.040 --> 0:30:15.720
<v Speaker 3>someone's coming in. Really, it literally takes three minutes. Now,

0:30:15.720 --> 0:30:17.880
<v Speaker 3>I don't think every eighteen year old needs it, but

0:30:17.920 --> 0:30:20.400
<v Speaker 3>maybe when we're starting to get into those early thirties,

0:30:20.960 --> 0:30:24.560
<v Speaker 3>that will trigger the provider, whether that's a nurse or

0:30:24.640 --> 0:30:27.200
<v Speaker 3>a doctor or who's ever seen that woman, say yeah,

0:30:27.240 --> 0:30:29.920
<v Speaker 3>did anyone in your family ever have breast cancer? You

0:30:29.960 --> 0:30:33.200
<v Speaker 3>know or did you have? You had any pregnancies? How

0:30:33.200 --> 0:30:35.479
<v Speaker 3>old were you when that first baby was born? And

0:30:35.480 --> 0:30:38.360
<v Speaker 3>that then we can plug those numbers into the tool

0:30:38.400 --> 0:30:39.200
<v Speaker 3>and see where we're.

0:30:39.080 --> 0:30:41.880
<v Speaker 1>At to that question. I'm so bad. I keep going

0:30:41.920 --> 0:30:45.520
<v Speaker 1>back to this test this tool here, but there might

0:30:45.520 --> 0:30:48.560
<v Speaker 1>be a breakdown that lets people know if your number

0:30:48.640 --> 0:30:50.560
<v Speaker 1>is this, if your numbers this, But can you tell

0:30:50.600 --> 0:30:52.400
<v Speaker 1>people here because a lot are going to go on

0:30:52.720 --> 0:30:54.560
<v Speaker 1>and fill this out. So a living you moone's number

0:30:54.600 --> 0:30:57.280
<v Speaker 1>was a thirty seven percent, and that's way, way, way high.

0:30:57.440 --> 0:31:00.880
<v Speaker 1>But where do you start seeing numbers you and someone

0:31:00.920 --> 0:31:03.719
<v Speaker 1>else doing it online to where you should be a lot?

0:31:03.880 --> 0:31:05.960
<v Speaker 3>That's a great question, TJ. Because people are going to

0:31:05.960 --> 0:31:09.880
<v Speaker 3>be doing this right. So we say that the average

0:31:10.880 --> 0:31:14.680
<v Speaker 3>lifetime risk of breast cancer for an American woman is

0:31:14.720 --> 0:31:17.640
<v Speaker 3>about twelve percent. So if you punch it in and

0:31:17.680 --> 0:31:22.040
<v Speaker 3>your lifetime risk that's going to age ninety is fourteen percent,

0:31:23.360 --> 0:31:26.400
<v Speaker 3>I wouldn't get too too worried about it. But if

0:31:26.440 --> 0:31:28.640
<v Speaker 3>you if you're coming up, you know, let's say, and

0:31:28.680 --> 0:31:33.320
<v Speaker 3>I'm kind of just making this up honestly, but you know,

0:31:33.640 --> 0:31:36.440
<v Speaker 3>twelve percent, So if you're starting to hit closer to

0:31:36.520 --> 0:31:40.760
<v Speaker 3>twenty percent, twenty five percent. She was above thirty percent.

0:31:40.800 --> 0:31:43.280
<v Speaker 3>That's a higher risk. It also gives you a number

0:31:43.280 --> 0:31:48.080
<v Speaker 3>within the next five years on that risk assessment tool.

0:31:48.360 --> 0:31:51.320
<v Speaker 3>So the lifetime risk my hers was thirty seven percent,

0:31:51.760 --> 0:31:54.040
<v Speaker 3>but I don't know what the number came out, because

0:31:54.080 --> 0:31:56.960
<v Speaker 3>it gives you both within the next five years. If

0:31:56.960 --> 0:32:00.560
<v Speaker 3>that number is significantly higher, you may want to go

0:32:00.640 --> 0:32:04.320
<v Speaker 3>in sooner. So, for example, We're going to calculate a

0:32:04.400 --> 0:32:06.280
<v Speaker 3>patient risk, and I'm going to make up the answers

0:32:06.320 --> 0:32:09.479
<v Speaker 3>to the question. Let's see how it comes out. So

0:32:09.600 --> 0:32:12.760
<v Speaker 3>the first question is does the woman have a medical

0:32:12.880 --> 0:32:17.120
<v Speaker 3>history of DCIS or LCIs. The other thing it asks,

0:32:17.160 --> 0:32:20.080
<v Speaker 3>by the way, is has she had radiation treatment to

0:32:20.120 --> 0:32:23.560
<v Speaker 3>the chest area because that increases the risk of breast

0:32:23.600 --> 0:32:27.320
<v Speaker 3>cancer significantly, and sometimes we give that radiation treatment to

0:32:27.400 --> 0:32:30.200
<v Speaker 3>young women who have lymphoma. We don't do it so

0:32:30.280 --> 0:32:32.840
<v Speaker 3>much anymore, but we used to. So I'm gonna say no,

0:32:32.840 --> 0:32:36.000
<v Speaker 3>no history of those things. Is there a mutation in

0:32:36.040 --> 0:32:40.240
<v Speaker 3>BRCA one, BRCA two, any genetic mutations, I'm gonna say no.

0:32:43.000 --> 0:32:44.760
<v Speaker 3>What age patients you want is to look at.

0:32:46.240 --> 0:32:48.320
<v Speaker 1>Let's do let's do forty five.

0:32:48.400 --> 0:32:51.560
<v Speaker 3>Forty five? Okay, forty five, so I'm gonna put that in.

0:32:51.840 --> 0:32:55.280
<v Speaker 3>By the way, the essay starts at age thirty five,

0:32:56.000 --> 0:32:58.120
<v Speaker 3>so a twenty eight year old can't use this. It's

0:32:58.120 --> 0:33:00.720
<v Speaker 3>not valid. Oh okay, so it starts at age thirty five,

0:33:00.760 --> 0:33:03.880
<v Speaker 3>So I'm going to pick forty five. What is the

0:33:03.880 --> 0:33:07.800
<v Speaker 3>patient's race or ethnicity, and the choices here are white,

0:33:08.080 --> 0:33:14.280
<v Speaker 3>African American, Latina, Asian, American, Native American, or Alaskan Native

0:33:14.480 --> 0:33:22.000
<v Speaker 3>or unknown let's go black, okay, And has the patient

0:33:22.080 --> 0:33:25.800
<v Speaker 3>ever had a breast biopsy with a benign meaning a

0:33:25.880 --> 0:33:29.480
<v Speaker 3>non cancerous diagnosis. I'm going to say no, right, most

0:33:29.520 --> 0:33:30.160
<v Speaker 3>women haven't had that.

0:33:31.000 --> 0:33:34.320
<v Speaker 1>And as we feel this out, can you depending on

0:33:34.400 --> 0:33:36.680
<v Speaker 1>what you do in your life year to year, your

0:33:36.760 --> 0:33:39.160
<v Speaker 1>number can change. How do you take the test year

0:33:39.200 --> 0:33:39.520
<v Speaker 1>to year?

0:33:39.640 --> 0:33:43.479
<v Speaker 3>All right, that's right exactly, because things right, things are

0:33:43.480 --> 0:33:46.760
<v Speaker 3>going to happen. Then we get into those questions about

0:33:46.800 --> 0:33:49.960
<v Speaker 3>your reproductive history. What was the woman's age at the

0:33:50.000 --> 0:33:53.400
<v Speaker 3>time of her first menstrual period. They give us three choices.

0:33:53.800 --> 0:33:57.560
<v Speaker 3>A very young age which would be before age eleven,

0:33:58.160 --> 0:34:00.920
<v Speaker 3>then kind of twelve to thirteen, which sort of average,

0:34:01.440 --> 0:34:03.880
<v Speaker 3>and the third choice would be fourteen or older.

0:34:04.000 --> 0:34:04.640
<v Speaker 1>To the average.

0:34:04.720 --> 0:34:07.400
<v Speaker 3>Let's give her the average twelve to thirteen, and the

0:34:07.440 --> 0:34:11.560
<v Speaker 3>age of the of her first child, so either no

0:34:11.760 --> 0:34:15.440
<v Speaker 3>births or what age she was when she had a baby.

0:34:15.760 --> 0:34:19.759
<v Speaker 3>Let's say twenty nine. So then okay, you're right on

0:34:19.800 --> 0:34:21.879
<v Speaker 3>the edge because it goes twenty five to twenty nine.

0:34:22.080 --> 0:34:24.040
<v Speaker 3>A's thirty or older. Let's give her twenty nine.

0:34:24.080 --> 0:34:25.920
<v Speaker 2>Yeah, I just use my birth age. I mean my

0:34:26.360 --> 0:34:29.759
<v Speaker 2>age when I gave birth. That's like, yeah, that's great.

0:34:31.040 --> 0:34:31.839
<v Speaker 3>I wish.

0:34:33.640 --> 0:34:35.720
<v Speaker 2>I was born in nineteen twenty nine.

0:34:35.760 --> 0:34:39.680
<v Speaker 3>No, and what about that family history? Does she have

0:34:39.800 --> 0:34:44.920
<v Speaker 3>a mother, sister, or daughter who had breast cancer? I

0:34:44.920 --> 0:34:45.239
<v Speaker 3>don't know.

0:34:45.280 --> 0:34:46.480
<v Speaker 2>What do we say? Say one?

0:34:46.760 --> 0:34:49.799
<v Speaker 3>Okay, let's say her mom had braains. Okay, okay. So

0:34:49.920 --> 0:34:53.560
<v Speaker 3>this is now for this individual person, and I'm calculating

0:34:53.600 --> 0:34:57.399
<v Speaker 3>her risk. The risk of her developing cancer within the

0:34:57.440 --> 0:35:03.760
<v Speaker 3>next five years eight fifty is only one point four percent. Wow,

0:35:04.360 --> 0:35:06.960
<v Speaker 3>that's a little higher than the average risk, which is

0:35:07.040 --> 0:35:10.360
<v Speaker 3>zero point nine percent for the general population. So she's

0:35:10.400 --> 0:35:14.920
<v Speaker 3>not in major big trouble this year. Over the course

0:35:14.960 --> 0:35:18.160
<v Speaker 3>of her lifetime, her risk is a little bit higher

0:35:18.719 --> 0:35:23.640
<v Speaker 3>fourteen point four percent. Compared to nine point five percent.

0:35:23.800 --> 0:35:27.360
<v Speaker 2>I'm actually surprised because with a mother who had cancer,

0:35:27.440 --> 0:35:31.719
<v Speaker 2>being African American, that's actually a surprisingly low number to me,

0:35:32.400 --> 0:35:33.640
<v Speaker 2>is it to you?

0:35:33.760 --> 0:35:37.920
<v Speaker 3>Well a little bit? Yeah, wow, but.

0:35:38.000 --> 0:35:40.520
<v Speaker 1>You get that number. That woman just filled that out.

0:35:40.560 --> 0:35:42.880
<v Speaker 1>She sees fourteen point four. Now what do I do?

0:35:43.160 --> 0:35:46.440
<v Speaker 3>She says, Okay, what she really should see is in

0:35:46.480 --> 0:35:50.440
<v Speaker 3>the next five years it's one percent. So don't panic,

0:35:51.480 --> 0:35:54.480
<v Speaker 3>but pick up the phone. Make sure you have that

0:35:54.520 --> 0:35:57.880
<v Speaker 3>appointment to see your doctor. Check in your calendar. Did

0:35:57.920 --> 0:35:59.960
<v Speaker 3>I do a mammogram last year? Am I up to date?

0:36:00.080 --> 0:36:03.120
<v Speaker 3>If not, go in to see your doctor. Bring this

0:36:03.239 --> 0:36:06.719
<v Speaker 3>information and say I want to review this with you.

0:36:07.400 --> 0:36:10.600
<v Speaker 3>Am I doing enough screening? Is there something we should

0:36:10.600 --> 0:36:13.360
<v Speaker 3>add to this? Gee, my mom had breast cancer, but

0:36:13.640 --> 0:36:16.439
<v Speaker 3>we never did that genetic testing thing. Should I speak

0:36:16.480 --> 0:36:19.200
<v Speaker 3>to the genetic counselor so, you know, follow up on

0:36:19.320 --> 0:36:22.120
<v Speaker 3>all of those issues, Doctor Ratz.

0:36:22.160 --> 0:36:24.600
<v Speaker 2>I just thought of something because as you plug those

0:36:25.280 --> 0:36:28.160
<v Speaker 2>numbers and that information in, that would have been me

0:36:28.719 --> 0:36:32.400
<v Speaker 2>except for that I didn't have a family history, I

0:36:32.400 --> 0:36:34.879
<v Speaker 2>didn't have a close relative who had breast cancer, and

0:36:35.760 --> 0:36:39.040
<v Speaker 2>I was forty not forty five. So my number would

0:36:39.080 --> 0:36:41.920
<v Speaker 2>have been probably even lower than that because I.

0:36:41.920 --> 0:36:44.759
<v Speaker 3>Might as well yes and no, I mean I don't know.

0:36:44.800 --> 0:36:46.520
<v Speaker 3>We'd have to put it in and see.

0:36:46.239 --> 0:36:49.520
<v Speaker 2>But by those questions, I'm fairly certain I would not

0:36:49.600 --> 0:36:54.200
<v Speaker 2>have had a high percentage. And yet and yet I

0:36:54.280 --> 0:36:56.719
<v Speaker 2>had I had, I had stage two breast cancer. It

0:36:56.760 --> 0:36:59.319
<v Speaker 2>had spread to my lip notes. So you know, I

0:36:59.360 --> 0:37:01.560
<v Speaker 2>wouldn't want people, and I know you wouldn't want people

0:37:01.600 --> 0:37:04.200
<v Speaker 2>to go on take this test and think I'm good,

0:37:04.600 --> 0:37:07.000
<v Speaker 2>I don't have to get a mammogram. I'm good, I

0:37:07.040 --> 0:37:08.760
<v Speaker 2>don't have to go in every year and get tested,

0:37:09.160 --> 0:37:10.120
<v Speaker 2>and that could happen.

0:37:10.239 --> 0:37:12.600
<v Speaker 3>That could happen. And that's what I was getting back

0:37:12.640 --> 0:37:16.920
<v Speaker 3>to before, where it's not just one thing. This is helpful,

0:37:17.120 --> 0:37:20.680
<v Speaker 3>but remember check yourself. Go every year to see the

0:37:20.719 --> 0:37:23.920
<v Speaker 3>doctor and have a clinical breast exam, and make sure

0:37:24.280 --> 0:37:27.880
<v Speaker 3>that starting at age forty there's some kind of screening,

0:37:28.640 --> 0:37:31.480
<v Speaker 3>and if you're at higher risk, start at a younger age.

0:37:31.600 --> 0:37:33.719
<v Speaker 3>Doctor RATZ, do you have anything else? Babe?

0:37:33.719 --> 0:37:34.759
<v Speaker 2>I didn't want to just s well.

0:37:34.640 --> 0:37:36.200
<v Speaker 1>I was trying to put in your numbers and at

0:37:36.239 --> 0:37:38.640
<v Speaker 1>your risk it does come out very very low.

0:37:38.800 --> 0:37:41.440
<v Speaker 2>Yeah, And I wouldn't want someone to have a false

0:37:41.440 --> 0:37:44.440
<v Speaker 2>impression that somehow they're not going to get breast cancer

0:37:44.480 --> 0:37:46.480
<v Speaker 2>because this test told them their number was low.

0:37:46.560 --> 0:37:49.799
<v Speaker 3>It doesn't substitute for all those other things we need

0:37:49.840 --> 0:37:51.120
<v Speaker 3>to do to take care of ourselves.

0:37:51.200 --> 0:37:54.400
<v Speaker 2>I remember sitting, Oh, I could get emotional hair sitting

0:37:54.880 --> 0:37:57.520
<v Speaker 2>at NYU, I was about to probably see you in

0:37:57.520 --> 0:37:59.440
<v Speaker 2>a few hours, and didn't realize going in for my

0:37:59.480 --> 0:38:01.960
<v Speaker 2>follow up man and kind of getting nervous because they

0:38:02.000 --> 0:38:04.440
<v Speaker 2>kept asking me to come back and get new images

0:38:04.440 --> 0:38:08.040
<v Speaker 2>and new images, and I was trying not to get scared.

0:38:08.080 --> 0:38:10.600
<v Speaker 2>So I started looking up my chances as a forty

0:38:10.680 --> 0:38:14.279
<v Speaker 2>year old, otherwise healthy woman, and I said, oh, I

0:38:14.320 --> 0:38:16.120
<v Speaker 2>got a one percent. I got less than a one

0:38:16.160 --> 0:38:19.720
<v Speaker 2>percent chance of having breast cancer. And I put myself

0:38:19.760 --> 0:38:21.799
<v Speaker 2>at ease, and I told myself to stop freaking out

0:38:21.920 --> 0:38:24.600
<v Speaker 2>that I almost certainly didn't have it. And even when

0:38:24.640 --> 0:38:27.040
<v Speaker 2>they found something when I had to have a biopsy,

0:38:27.080 --> 0:38:29.640
<v Speaker 2>I was like, it's gonna be benign. So when I

0:38:29.760 --> 0:38:31.920
<v Speaker 2>was told I had breast cancer and I saw you,

0:38:32.000 --> 0:38:34.919
<v Speaker 2>I believe about an hour later, I couldn't have been

0:38:34.920 --> 0:38:37.759
<v Speaker 2>more shocked. I didn't think it could happen to me.

0:38:37.880 --> 0:38:39.560
<v Speaker 1>What did you get that said it was one percent?

0:38:39.560 --> 0:38:40.160
<v Speaker 1>Where'd you get that?

0:38:40.560 --> 0:38:41.480
<v Speaker 3>It's just the average.

0:38:41.480 --> 0:38:43.160
<v Speaker 2>I mean, if you are of, if you have no

0:38:43.239 --> 0:38:46.160
<v Speaker 2>family history, if you're relatively healthy. I knew I was thin.

0:38:46.239 --> 0:38:50.040
<v Speaker 2>I knew I exercised, I knew I ate well. I

0:38:50.080 --> 0:38:52.400
<v Speaker 2>found an average risk. A woman in my age had

0:38:52.400 --> 0:38:54.560
<v Speaker 2>a less than one percent chance of developing.

0:38:54.160 --> 0:38:56.359
<v Speaker 1>An I said, because I just feeled her answers out

0:38:56.400 --> 0:38:58.120
<v Speaker 1>on this assessment. It came point six percent.

0:38:58.200 --> 0:38:59.640
<v Speaker 3>See that chance less than one percent?

0:39:00.120 --> 0:39:02.520
<v Speaker 2>Yet and yet I had breast cancer. So I just

0:39:02.560 --> 0:39:05.239
<v Speaker 2>want to I wanted to point that out right. So

0:39:05.320 --> 0:39:09.239
<v Speaker 2>none of these tools are fool proof. They're helpful, but

0:39:09.320 --> 0:39:11.040
<v Speaker 2>I think you're writing Amy, we want to make sure

0:39:11.080 --> 0:39:13.399
<v Speaker 2>that people still follow up and do all the other

0:39:13.440 --> 0:39:15.200
<v Speaker 2>things they need to do to stay healthy.

0:39:15.080 --> 0:39:18.719
<v Speaker 1>And look our best to Olivia mon and congratulations and

0:39:18.760 --> 0:39:21.440
<v Speaker 1>thank you really for putting this out there and sparking

0:39:21.440 --> 0:39:25.360
<v Speaker 1>these discussions. And I bet you the fact that she

0:39:25.560 --> 0:39:27.920
<v Speaker 1>has done this is going to save lives that we

0:39:27.920 --> 0:39:31.359
<v Speaker 1>don't even realize. But doctor writes, before you go, can

0:39:31.400 --> 0:39:33.960
<v Speaker 1>you please talk to this one for me? And you

0:39:34.000 --> 0:39:37.000
<v Speaker 1>know I've stayed on her about it, but if you

0:39:37.040 --> 0:39:39.360
<v Speaker 1>can give her a little reminder of just how important

0:39:39.360 --> 0:39:42.440
<v Speaker 1>it is for her to keep up with those appointments.

0:39:42.760 --> 0:39:47.160
<v Speaker 3>It is important. And what I love the most about

0:39:47.160 --> 0:39:49.719
<v Speaker 3>my practice is all the people who come in for

0:39:49.760 --> 0:39:53.640
<v Speaker 3>their once a year check up twenty years later and

0:39:53.680 --> 0:39:56.320
<v Speaker 3>they're fine. And even for some of my young patients

0:39:56.360 --> 0:39:58.400
<v Speaker 3>who come in and tell me that they've had a

0:39:58.400 --> 0:40:02.719
<v Speaker 3>baby since they were diagnosed, see those babies or you know,

0:40:02.800 --> 0:40:06.920
<v Speaker 3>celebrating other life events and it is just fantastic. So

0:40:07.000 --> 0:40:09.920
<v Speaker 3>it makes me happy, and then I know you're healthy.

0:40:10.360 --> 0:40:13.560
<v Speaker 3>So I think the other thing that happens is once

0:40:13.640 --> 0:40:17.400
<v Speaker 3>someone does have a cancer diagnosis, anything else that comes

0:40:17.480 --> 0:40:22.359
<v Speaker 3>up we want to know about. Not because it means

0:40:22.360 --> 0:40:25.399
<v Speaker 3>the cancer is coming back, but you know, we sort

0:40:25.440 --> 0:40:29.000
<v Speaker 3>of have a lot of ownership around our cancer patients,

0:40:29.040 --> 0:40:31.960
<v Speaker 3>and I think as oncologists, we like to know that

0:40:32.000 --> 0:40:34.279
<v Speaker 3>you're well, and we also want to make sure that

0:40:34.320 --> 0:40:36.480
<v Speaker 3>you're doing all the other screening tests you need to do.

0:40:36.560 --> 0:40:39.279
<v Speaker 3>You know, that colonoscopy, No one wants to talk about it, right,

0:40:39.400 --> 0:40:44.279
<v Speaker 3>Who's going to remind you about that? You know? So

0:40:45.040 --> 0:40:47.520
<v Speaker 3>there are other things that we like to just check

0:40:47.560 --> 0:40:50.640
<v Speaker 3>our boxes and make sure everybody's healthy and come in

0:40:50.680 --> 0:40:53.120
<v Speaker 3>for your checkos well, doctor Ortz.

0:40:53.239 --> 0:40:57.120
<v Speaker 2>I am so so happy you came in and you

0:40:57.160 --> 0:40:58.520
<v Speaker 2>came to see me before I came.

0:40:58.360 --> 0:40:58.879
<v Speaker 1>To see you.

0:40:59.000 --> 0:41:02.040
<v Speaker 2>But I am going to be there on March twenty six,

0:41:02.120 --> 0:41:04.399
<v Speaker 2>so we can catch up then, and I will have

0:41:04.440 --> 0:41:07.440
<v Speaker 2>my girls get their baseline mammogram at the age of

0:41:07.480 --> 0:41:11.040
<v Speaker 2>thirty after everything I just heard you say, and with

0:41:11.120 --> 0:41:13.560
<v Speaker 2>a sonogram, with the sonogram, you're right with the sonogram,

0:41:13.560 --> 0:41:15.280
<v Speaker 2>and that was part of what we were talking about.

0:41:15.320 --> 0:41:18.319
<v Speaker 2>So I think so many women are going to be

0:41:18.360 --> 0:41:22.040
<v Speaker 2>so grateful for your perspective and your information and thank you,

0:41:22.080 --> 0:41:24.120
<v Speaker 2>thank you just for being you, and thank you for

0:41:24.160 --> 0:41:27.399
<v Speaker 2>helping me over this past decade and for the decades to.

0:41:27.360 --> 0:41:30.120
<v Speaker 3>Come, for the decades to come, and to everyone out there,

0:41:30.160 --> 0:41:44.600
<v Speaker 3>don't panic. You're going to be fine.