WEBVTT - Best Of: Wired for Change

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<v Speaker 1>Pushkin hay Slight changed listeners. It's Maya this summer. We're

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<v Speaker 1>revisiting four of your all time favorite episodes. For our

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<v Speaker 1>final episode in the series, we're hearing from John Elder Robison.

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<v Speaker 1>This conversation changed my life. I developed a new perspective

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<v Speaker 1>on how our mind's work, the emotions we feel, and

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<v Speaker 1>all that comes along with that.

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<v Speaker 2>I was never a socially skilled kid. I never knew

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<v Speaker 2>what to say. Someone would come up to me, then

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<v Speaker 2>they would say, look at my new doll and I

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<v Speaker 2>would say, I like elephants, and they would just like,

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<v Speaker 2>look at me. And I never understood what I did wrong.

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<v Speaker 2>I was always saying and doing the wrong thing.

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<v Speaker 1>That's John Elder Robison. He's always had a gift for

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<v Speaker 1>understanding machines versus a sound engineer, then as a car mechanic,

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<v Speaker 1>But the one thing he always felt was lacking was

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<v Speaker 1>his ability to connect with people emotionally. He says he

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<v Speaker 1>often felt depressed and anxious about his interactions, and over

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<v Speaker 1>the years he'd done a number of things to try

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<v Speaker 1>and foster a deeper connection with others. Then in two

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<v Speaker 1>thousand and eight, John came across a unique opportunity he

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<v Speaker 1>was given the chance to participate in an experimental brain

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<v Speaker 1>study that he hoped would quote increase his emotional sensitivity.

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<v Speaker 2>I so much wanted to do that, because when I

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<v Speaker 2>had learned that there were these facial expressions, and there

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<v Speaker 2>were these whole, like unspoken conversations that happened between so

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<v Speaker 2>called normal people, and I couldn't get them. It was

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<v Speaker 2>like there were two whole conversations going on, and I

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<v Speaker 2>could only hear one of them. And I thought, if

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<v Speaker 2>only I could hear the other one, only I could

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<v Speaker 2>understand it, I would be happy. And that was this

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<v Speaker 2>like fantasy I built up in my mind that if

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<v Speaker 2>I could see these things in other people, my life

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<v Speaker 2>would be beautiful.

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<v Speaker 1>On today's episode, when you discover that the thing you

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<v Speaker 1>most wanted to change about yourself didn't actually need changing.

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<v Speaker 1>I'm maya Shunker and this is a slight change of plans,

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<v Speaker 1>a show about who we are and who we become

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<v Speaker 1>in the face of a big change. The core of

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<v Speaker 1>John's story takes place in the nineteen eighties and nineties,

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<v Speaker 1>when he was working as a car mechanic in Springfield, Massachusetts,

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<v Speaker 1>but as you'll hear, John's had many careers over the years,

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<v Speaker 1>and we started at our conversation by talking about his

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<v Speaker 1>time in the music business. He is a rare ear

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<v Speaker 1>for technical detail, and in the nineteen seventies he worked

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<v Speaker 1>as a sound engineer for the likes of Kiss and

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<v Speaker 1>Diana Ross.

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<v Speaker 2>I think that people felt that I could see into

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<v Speaker 2>the amplifiers, and I could see into the electronics systems,

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<v Speaker 2>and I felt like I could see it. You know,

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<v Speaker 2>I could stand out at the mixing desk at a concert,

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<v Speaker 2>which was, you know, running my equipment, and you know,

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<v Speaker 2>I could push It's like pushing the throttles on a

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<v Speaker 2>powerful boat. You know, I could push it up, and

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<v Speaker 2>I could feel that this is just how far you

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<v Speaker 2>can push it before you blow it up. And I

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<v Speaker 2>think that that was a gift that was relatively uncommon,

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<v Speaker 2>and that was the thing I loved about it. I

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<v Speaker 2>loved making the equipment sing for all those people.

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<v Speaker 1>Oh, I love that. It's a very beautiful portrayal of

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<v Speaker 1>what it means to work and sound. You ended up

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<v Speaker 1>becoming interested in cars, right, which is what you do

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<v Speaker 1>right now? Why is it that you decided to eventually

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<v Speaker 1>leave your musical career behind.

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<v Speaker 2>When it got to dealing with people because music was

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<v Speaker 2>my first job. The musicians appreciated what I could create,

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<v Speaker 2>but other people thought that I was strange or bizarre,

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<v Speaker 2>or you know whatever. And I thought, well, what could

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<v Speaker 2>I do? And I always had had this love of

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<v Speaker 2>machinery and cars, and I thought, you know, I'm just

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<v Speaker 2>gonna be a mechanic. And I turned out to have

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<v Speaker 2>a gift for understand and automotive machines just the way

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<v Speaker 2>I had understood musical machines and other kinds of electronics.

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<v Speaker 2>I left, and I kind of never looked back.

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<v Speaker 1>I'm wondering, John, can you bring me back to the

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<v Speaker 1>day in your car shop when your client surprised you

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<v Speaker 1>with a book.

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<v Speaker 2>I had always been kind of a social failure, but

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<v Speaker 2>at my car business I had to learn enough social skills.

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<v Speaker 2>I guess that people would come back a second time.

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<v Speaker 2>And I spent a fair amount of time talking to

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<v Speaker 2>the customers that would sit in the waiting room and

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<v Speaker 2>wait for their cars, and I got to know them.

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<v Speaker 2>Some of them came in over a period of years.

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<v Speaker 2>One fellow was a therapist and comes in one day

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<v Speaker 2>and he says, you know, John, I've heard you tell

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<v Speaker 2>me how alone you feel many times, and I've heard

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<v Speaker 2>you tell me like you feel like you're standing in

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<v Speaker 2>the rain outside looking in the windows at all the

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<v Speaker 2>people standing by a fire, and you don't know how

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<v Speaker 2>to get in and be with them. And he said,

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<v Speaker 2>you know, there's a thing that we're talking about in

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<v Speaker 2>the mental health community that kind of explains that. It's

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<v Speaker 2>called Asperger syndrome. It's a kind of autism. And I

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<v Speaker 2>just looked at him and I thought autism. Then he

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<v Speaker 2>pulls out this book. It was called Asperger Syndrome. It

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<v Speaker 2>was by a doctor Tony Atwood, and he says, look,

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<v Speaker 2>he says, it's people like you and can't read facial expressions,

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<v Speaker 2>can't tell when somebody's angry or somebody said, say inappropriate

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<v Speaker 2>things and get people upset, to have difficulty looking other

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<v Speaker 2>people in the eye, and other folks think that they're

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<v Speaker 2>being tricky or evasive, and like everything he's saying to

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<v Speaker 2>me is me. And I'm listening to that. And first

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<v Speaker 2>I was like stunned at him telling me that I

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<v Speaker 2>had this kind of autism. And then as he kept

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<v Speaker 2>saying this is it, this and this and this and

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<v Speaker 2>every one of those things with me, and it was

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<v Speaker 2>just it was just shocking. It's just like totally came

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<v Speaker 2>out of the blue. It's not like I was sitting

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<v Speaker 2>in a therapist's office saying, doctor, tell me what's wrong

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<v Speaker 2>with me. It's like I was sitting behind the desk

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<v Speaker 2>at my car repair place and this is just thrust

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<v Speaker 2>in front of me, and it was shocking.

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<v Speaker 1>You're having this life changing moment, and I'm wondering, what

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<v Speaker 1>did it feel like to have this kind of clarity

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<v Speaker 1>for the first time.

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<v Speaker 2>Well, my first thought was, Okay, if I have this

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<v Speaker 2>Asperger thing, how do I get cured? And he said, well,

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<v Speaker 2>it's not a disease. It's just how you are. People

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<v Speaker 2>with autism that's how they are, and people with Aspergers

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<v Speaker 2>that's how you are. He says, It's like being short

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<v Speaker 2>or tall or you know whatever. It's just it's how

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<v Speaker 2>you are. But then after it sinks in there's no cure. Well,

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<v Speaker 2>now I know I have all this trouble and it's

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<v Speaker 2>never going to end. And I was really sad, but

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<v Speaker 2>I couldn't help reading the book he had left me.

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<v Speaker 2>And at first I had thought, Wow, people told me

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<v Speaker 2>I was mental and stupid and sociopathic and stuff. All

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<v Speaker 2>my life I heard these kinds of things, and now

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<v Speaker 2>here he is telling me, I'm not any of those things.

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<v Speaker 2>I'm a person with this Asperger's and that explains why

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<v Speaker 2>I've had all this trouble in my life. But gradually

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<v Speaker 2>I realized I can take the knowledge from that book

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<v Speaker 2>and I can teach myself to act differently. I can

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<v Speaker 2>teach myself that even if it makes me uncomfortable to

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<v Speaker 2>look in your eyes when you're talking to me, look

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<v Speaker 2>at your cheeks, I can look at your mouth. And

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<v Speaker 2>when I did that, it was kind of amazing, because

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<v Speaker 2>people responded better to me, even though I couldn't tell

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<v Speaker 2>about people's body language and expressions. After reading Atwood's book,

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<v Speaker 2>I understood that I would get too close to people

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<v Speaker 2>and I would make them feel threatened. So I could

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<v Speaker 2>just make a rule. If I held my arm out

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<v Speaker 2>in front of me, I could say, I won't get

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<v Speaker 2>any closer to you than two arms lengths when we're

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<v Speaker 2>talking in the waiting room. And I began to see

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<v Speaker 2>that I could change how I behaved, and it really

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<v Speaker 2>changed my life for the better. And that's when I

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<v Speaker 2>started to go from feeling, oh boy, you know, I

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<v Speaker 2>understand why I had all this trouble, but it's hopeless

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<v Speaker 2>to thinking, you know, I can change my life completely

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<v Speaker 2>with this knowledge. And that was a real, a really

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<v Speaker 2>big deal for me.

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<v Speaker 1>Did it lead you to reinterpret your past you'd had

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<v Speaker 1>experiences with depression? Did it help you understand aspects of

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<v Speaker 1>that differently?

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<v Speaker 2>Now? The thing I had always wanted was to feel

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<v Speaker 2>like I was a normal person. And so when I

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<v Speaker 2>learned about autism, I had an explanation for why things

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<v Speaker 2>had gone wrong with me and for why I was

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<v Speaker 2>a second rate person. And I have to say that

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<v Speaker 2>today we have this, you know, really different autism awareness,

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<v Speaker 2>and to say that I was a second rate person,

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<v Speaker 2>that's like a bad thing to say now, but you know,

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<v Speaker 2>that's how I felt. I felt like I was second right,

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<v Speaker 2>and I wanted so much to be normal, and so

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<v Speaker 2>I thought, you know, I should write my own story

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<v Speaker 2>about growing up and learning about this Asperger autism thing.

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<v Speaker 2>And that was what gave me the courage to write

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<v Speaker 2>what became Look Me in the Eye. And the book

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<v Speaker 2>came out and all these people started reading it. And

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<v Speaker 2>you know, one of the people who read it was

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<v Speaker 2>this postdoctoral researcher at Harvard Medical School, and she showed

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<v Speaker 2>up at a talk I was doing in a bookstore,

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<v Speaker 2>and she said, we're doing a study that's aimed at

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<v Speaker 2>possibly helping autistic people see emotional cues and read expressions

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<v Speaker 2>in other people, and we're hoping that your talks are

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<v Speaker 2>attracting autistic people in the audience, and maybe you could

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<v Speaker 2>hand out flyers for our study and you could attract

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<v Speaker 2>some volunteers for us. And I was like, thinking, now

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<v Speaker 2>I'll tell people, but I want to do it. I

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<v Speaker 2>just I so much wanted to do that because when

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<v Speaker 2>I had learned in that Atwood book that there were

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<v Speaker 2>these facial expressions and there were these whole, like unspoken

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<v Speaker 2>conversations that he described that happened between so called normal people,

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<v Speaker 2>and I couldn't get them. It was like there were

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<v Speaker 2>two whole conversations going on, and I could only hear

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<v Speaker 2>one of them. And I thought, if only I could

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<v Speaker 2>hear the other one, only I could understand it. I thought,

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<v Speaker 2>the reason I've always been anxious and depressed is because

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<v Speaker 2>all I can ever understand is bad things. People don't

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<v Speaker 2>like me, people think I'm whatever. They're going to fire me,

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<v Speaker 2>they're going to throw me out. But maybe there's this

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<v Speaker 2>whole other set of messages where people really love me

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<v Speaker 2>and they like me and they want it. There's good messages.

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<v Speaker 2>Maybe all I can get are the bad ones. And

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<v Speaker 2>if I could fix that and I would be happy.

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<v Speaker 2>And that was this like fantasy I built up in

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<v Speaker 2>my mind. And so when she came along and she

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<v Speaker 2>said we're doing the study hoping to do that, I thought, well,

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<v Speaker 2>maybe it would work, Maybe that would happen for me.

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<v Speaker 1>Yeah, you know you've written that autism gave you, quote

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<v Speaker 1>a mixture of disabilities and gifts. Can you share more

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<v Speaker 1>about this and how it affected your decision to enroll

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<v Speaker 1>in this study.

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<v Speaker 2>So the way the way autism had kind of played

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<v Speaker 2>out for me by that time in my life. The

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<v Speaker 2>average person couldn't see into machinery the way I could,

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<v Speaker 2>and the average person couldn't they couldn't focus on details

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<v Speaker 2>of things the way I could. I still, even without

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<v Speaker 2>understanding that I had gifts, I thought that my gifts

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<v Speaker 2>were in the category of something in a freak show.

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<v Speaker 2>You know, Sure they were gifts, but they weren't gifts

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<v Speaker 2>that most people cared about, and the things most people

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<v Speaker 2>do care about I couldn't do. So I I felt

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<v Speaker 2>that the more I could understand emotional cues, the more

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<v Speaker 2>I might be able to be like other people. And

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<v Speaker 2>I wanted to be able to do that.

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<v Speaker 1>Yeah, you know, it reveals so much to me about

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<v Speaker 1>where you were at psychologically with respect your self image

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<v Speaker 1>and self perception, that you would want to jump at

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<v Speaker 1>this opportunity, right, And you know, just to let listeners

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<v Speaker 1>in on the specifics of this study that you were

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<v Speaker 1>signing up for. It was not without risk, right. It

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<v Speaker 1>used TMS transcranial magnetic stimulation to activate specific areas of

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<v Speaker 1>your brain using high power magnetic fields. I mean it's

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<v Speaker 1>hard to imagine not having a little bit of trepidation, right,

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<v Speaker 1>some fear associated with getting enrolled in this kind of study,

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<v Speaker 1>is that, right?

0:15:28.076 --> 0:15:31.476
<v Speaker 2>You know you might have thought of it that way

0:15:33.156 --> 0:15:38.836
<v Speaker 2>as a person who was educated in neuroscience. I didn't

0:15:38.876 --> 0:15:45.756
<v Speaker 2>see it that way. The idea of TMS was, or

0:15:45.956 --> 0:15:49.556
<v Speaker 2>is that they take a coil of wire, which is

0:15:49.596 --> 0:15:55.556
<v Speaker 2>the basis for an electromagnet, and they fire a bunch

0:15:55.596 --> 0:15:59.076
<v Speaker 2>of electricity into it and it induces a powerful magnetic

0:15:59.116 --> 0:16:01.516
<v Speaker 2>field in that wire. They would put that on your head,

0:16:02.196 --> 0:16:06.076
<v Speaker 2>and so they would fire a pulse of magnetic energy

0:16:06.156 --> 0:16:09.596
<v Speaker 2>into your head when they put electricity into the wire. Well,

0:16:11.076 --> 0:16:15.916
<v Speaker 2>I had worked with really really powerful coils of wire

0:16:16.156 --> 0:16:20.756
<v Speaker 2>and magnets in making sound systems. And it's funny because

0:16:20.796 --> 0:16:23.636
<v Speaker 2>so many people in retrospect they said, weren't you scared

0:16:23.676 --> 0:16:26.476
<v Speaker 2>of that? And no, because of my background and making

0:16:26.796 --> 0:16:29.756
<v Speaker 2>high power electronic systems, I was scared at all. I thought,

0:16:29.796 --> 0:16:30.236
<v Speaker 2>bring it on.

0:16:31.436 --> 0:16:34.676
<v Speaker 1>Wow, that's so interesting. I want to push you a

0:16:34.676 --> 0:16:36.956
<v Speaker 1>little more here though, right, because it's one thing to

0:16:36.956 --> 0:16:42.636
<v Speaker 1>be building electronic equipment, it's another thing to have specific

0:16:42.676 --> 0:16:46.396
<v Speaker 1>parts of your brain activated by technology.

0:16:47.716 --> 0:16:51.676
<v Speaker 2>I just I really thought there was I thought there

0:16:51.756 --> 0:16:54.276
<v Speaker 2>was just like so much more that I was missing,

0:16:54.876 --> 0:16:57.276
<v Speaker 2>and if I could possibly see it, it would be

0:16:59.076 --> 0:17:03.076
<v Speaker 2>it would be huge revelation for me. It would be

0:17:03.236 --> 0:17:04.836
<v Speaker 2>such a huge positive thing.

0:17:05.956 --> 0:17:10.716
<v Speaker 1>Was your family as enthusiastic about this as you were?

0:17:10.836 --> 0:17:13.876
<v Speaker 2>Oh? My family wanted enthusiastic at all. And my wife,

0:17:14.036 --> 0:17:16.996
<v Speaker 2>she said, you know, when it comes to getting involved

0:17:17.036 --> 0:17:19.796
<v Speaker 2>in experiments to change myself, she said, you're good just

0:17:19.836 --> 0:17:21.836
<v Speaker 2>the way you are. Why do you want to change yourself?

0:17:23.196 --> 0:17:26.356
<v Speaker 2>And I said, I want to feel like other people.

0:17:26.436 --> 0:17:29.116
<v Speaker 2>I want to have people want to be my friend

0:17:29.156 --> 0:17:31.316
<v Speaker 2>and stuff and she said, people do want to be

0:17:31.396 --> 0:17:36.196
<v Speaker 2>your friend, people like you you have friends, And I said, well,

0:17:36.396 --> 0:17:40.676
<v Speaker 2>I just feel like there's something more, you know, So.

0:17:40.636 --> 0:17:45.876
<v Speaker 1>You decide to enroll in the TMS studies, and I'm

0:17:45.876 --> 0:17:48.996
<v Speaker 1>wondering if you can set the scene for me, you know,

0:17:49.156 --> 0:17:50.156
<v Speaker 1>to do the study.

0:17:51.116 --> 0:17:53.516
<v Speaker 2>They said to me, well, we're going to stimulate these

0:17:53.516 --> 0:17:56.876
<v Speaker 2>different areas of your brain, and the way we're going

0:17:56.916 --> 0:18:00.356
<v Speaker 2>to tell if anything happens is we're going to show

0:18:00.396 --> 0:18:05.396
<v Speaker 2>you on a computer monitor, people making faces, people doing things,

0:18:06.676 --> 0:18:10.556
<v Speaker 2>and we're going to ask is it ellis is it anxious?

0:18:10.676 --> 0:18:13.676
<v Speaker 2>Is it eager? You know, they'll have these different emotions

0:18:14.196 --> 0:18:18.316
<v Speaker 2>and you'll push buttons for what you're seeing. And they said,

0:18:18.316 --> 0:18:22.316
<v Speaker 2>we don't care if you don't get it right. Then

0:18:22.356 --> 0:18:24.636
<v Speaker 2>we're going to do this stimulation on you and we're

0:18:24.636 --> 0:18:26.436
<v Speaker 2>going to put you right back in front of the machine,

0:18:26.436 --> 0:18:29.036
<v Speaker 2>will show you another set of faces, and we'll see

0:18:29.036 --> 0:18:32.716
<v Speaker 2>if your responses are more or less accurate or the same.

0:18:32.836 --> 0:18:35.836
<v Speaker 2>That's how we'll tell. So they put the images in

0:18:35.836 --> 0:18:39.236
<v Speaker 2>front of me before the stimulation, and I didn't I

0:18:39.276 --> 0:18:42.476
<v Speaker 2>didn't have a single idea what I was seeing. So

0:18:42.596 --> 0:18:47.516
<v Speaker 2>then they sit me down and they start firing these pulses.

0:18:47.556 --> 0:18:51.996
<v Speaker 2>It's one pulse a second, and the thing goes click, click, click,

0:18:52.676 --> 0:18:55.396
<v Speaker 2>and every time it would fire, it would make a pop,

0:18:55.676 --> 0:18:58.036
<v Speaker 2>and I would feel this like twitch on the top

0:18:58.076 --> 0:19:01.916
<v Speaker 2>of my scalp, which they told me was the energy

0:19:02.036 --> 0:19:07.036
<v Speaker 2>from the magnetic field triggering muscles in my scalp. And

0:19:07.076 --> 0:19:09.076
<v Speaker 2>so I was sitting there and all of a sudden,

0:19:09.236 --> 0:19:11.116
<v Speaker 2>she lifts the thing off away from my head and

0:19:11.116 --> 0:19:12.756
<v Speaker 2>she said, come on quick, we got to test you.

0:19:12.796 --> 0:19:15.916
<v Speaker 2>And I realized half an hour had passed. Wow, And

0:19:16.756 --> 0:19:18.516
<v Speaker 2>so I go over. You know, it's just like ten

0:19:18.556 --> 0:19:20.156
<v Speaker 2>feet and I move across the room and I sit

0:19:20.236 --> 0:19:25.036
<v Speaker 2>down and the faces fly in front of me, and

0:19:25.076 --> 0:19:28.516
<v Speaker 2>I push the buttons and I still don't have any idea,

0:19:28.596 --> 0:19:32.676
<v Speaker 2>And I thought, well, kind of fool was I? You know,

0:19:32.796 --> 0:19:36.636
<v Speaker 2>I imagined that I'm going to look at those faces again

0:19:36.636 --> 0:19:38.396
<v Speaker 2>and I'm going to know every single one of them.

0:19:38.396 --> 0:19:42.876
<v Speaker 2>Well I didn't. I didn't know anything. So she says, okay,

0:19:43.036 --> 0:19:45.916
<v Speaker 2>that's good, And I said, well, how did I do?

0:19:46.276 --> 0:19:48.196
<v Speaker 2>And she says, well, I don't know how you did,

0:19:48.196 --> 0:19:49.876
<v Speaker 2>but even if I did, I couldn't tell you because

0:19:49.876 --> 0:19:54.436
<v Speaker 2>it's a study. So that I go out down the

0:19:54.476 --> 0:19:56.116
<v Speaker 2>garage and I get in my car, so I'm like

0:19:56.156 --> 0:20:00.236
<v Speaker 2>two hours from home. And so when I drive out,

0:20:02.036 --> 0:20:06.396
<v Speaker 2>I always would play old music, and I had a

0:20:06.436 --> 0:20:11.836
<v Speaker 2>lot of concerts or bootleg recordings I could listen to.

0:20:12.076 --> 0:20:16.636
<v Speaker 2>And I put on recording this show of a band

0:20:16.716 --> 0:20:21.956
<v Speaker 2>called Tavares, And so I put on this show and

0:20:21.996 --> 0:20:26.836
<v Speaker 2>I start playing, and it was like I stepped into

0:20:26.876 --> 0:20:30.316
<v Speaker 2>a musical hallucination. It's like I was back there at

0:20:30.356 --> 0:20:34.036
<v Speaker 2>the show and I could I could like almost smell it,

0:20:34.076 --> 0:20:36.916
<v Speaker 2>and I could feel it, and it was it was

0:20:37.116 --> 0:20:41.196
<v Speaker 2>just an overpowering thing listening to it, and it drove

0:20:41.276 --> 0:20:45.236
<v Speaker 2>along and it was it was so overwhelming that it

0:20:46.116 --> 0:20:48.476
<v Speaker 2>made me cry. I had pulled over and I was

0:20:48.516 --> 0:20:52.516
<v Speaker 2>just crying. And all the years I had worked in music,

0:20:53.276 --> 0:20:56.796
<v Speaker 2>I didn't feel the emotion of the music. I felt.

0:20:57.156 --> 0:21:01.116
<v Speaker 2>Was it technically correct, but I didn't feel was it happy?

0:21:01.236 --> 0:21:03.796
<v Speaker 2>Was it sad? Was it longing? Was it wistful? I

0:21:03.796 --> 0:21:06.836
<v Speaker 2>didn't feel those things, And of course that's what made

0:21:06.876 --> 0:21:12.036
<v Speaker 2>me a good engineer. But now I was feeling the

0:21:12.116 --> 0:21:17.436
<v Speaker 2>emotion of it, and it was just overwhelming. And I

0:21:17.476 --> 0:21:24.676
<v Speaker 2>thought to myself, this must be what all those people

0:21:24.836 --> 0:21:29.676
<v Speaker 2>in the audience were feeling when they listened to those shows.

0:21:30.836 --> 0:21:34.516
<v Speaker 2>I thought back at all those concerts I had been at,

0:21:34.556 --> 0:21:38.476
<v Speaker 2>and people were crying and they were singing, and they

0:21:38.516 --> 0:21:41.316
<v Speaker 2>were smiling, and I would see like tears, you know,

0:21:41.396 --> 0:21:45.596
<v Speaker 2>from people, and I'd just be I'd just be standing

0:21:45.636 --> 0:21:52.356
<v Speaker 2>there looking out, thinking, it's working. The system, it's doing

0:21:52.396 --> 0:21:55.596
<v Speaker 2>what we wanted it to do. The musicians are up

0:21:55.636 --> 0:21:59.956
<v Speaker 2>there playing and our sound equipment is working. But I

0:22:00.036 --> 0:22:04.916
<v Speaker 2>never felt the feelings of the audience. And I went

0:22:04.956 --> 0:22:08.436
<v Speaker 2>home and it was really late by then, and I

0:22:08.476 --> 0:22:10.596
<v Speaker 2>sent an email to the doctor and I said, this

0:22:10.676 --> 0:22:14.996
<v Speaker 2>is like some really powerful stuff. This has happened. And

0:22:15.076 --> 0:22:19.756
<v Speaker 2>I sat awake all night and I just listened to

0:22:19.796 --> 0:22:23.116
<v Speaker 2>old music, just sitting listening to it, and it was

0:22:23.196 --> 0:22:29.716
<v Speaker 2>like dawn, and it finally the brilliance kind of faded away,

0:22:30.276 --> 0:22:35.476
<v Speaker 2>and I went to sleep and it was just it

0:22:35.516 --> 0:22:36.796
<v Speaker 2>was just an amazing night.

0:22:47.916 --> 0:22:50.116
<v Speaker 1>We'll be back in a moment. With a slight change

0:22:50.116 --> 0:22:58.156
<v Speaker 1>of plans. So John Elder Robison volunteered to participate in

0:22:58.196 --> 0:23:01.116
<v Speaker 1>a pioneering study run by a teaching hospital out of

0:23:01.116 --> 0:23:06.716
<v Speaker 1>Harvard Medical School. The study used transcranial magnetic stimulation or TMS,

0:23:07.356 --> 0:23:12.356
<v Speaker 1>which uses electromagnetic pul to stimulate nerve cells. The impact

0:23:12.356 --> 0:23:16.236
<v Speaker 1>of TMS on things like migrains, obsessive compulsive disorder, and

0:23:16.356 --> 0:23:20.796
<v Speaker 1>major depressive disorder are relatively well understood, but less so

0:23:20.956 --> 0:23:23.996
<v Speaker 1>the impact of TMS on people on the autism spectrum.

0:23:24.516 --> 0:23:26.996
<v Speaker 1>And the two thousand and eight study that John participated

0:23:27.036 --> 0:23:31.116
<v Speaker 1>in was entirely exploratory. It was a research study that

0:23:31.156 --> 0:23:34.836
<v Speaker 1>recruited those with Asperger's, a diagnostic category still used at

0:23:34.836 --> 0:23:38.316
<v Speaker 1>that time, and it's worth noting that among the participants

0:23:38.316 --> 0:23:42.356
<v Speaker 1>in the study, John's response was singular and highly unusual

0:23:42.436 --> 0:23:45.516
<v Speaker 1>in its expression, and it had a complex impact on

0:23:45.596 --> 0:23:48.916
<v Speaker 1>John's life. It changed his understanding of himself in a

0:23:48.956 --> 0:23:53.156
<v Speaker 1>profound way and affected the relationships in his life, including

0:23:53.196 --> 0:23:55.236
<v Speaker 1>with his wife and the folks in the car shop.

0:23:55.876 --> 0:23:57.996
<v Speaker 2>I went to work and one of the guys was

0:23:58.436 --> 0:24:03.236
<v Speaker 2>in the hall and I looked at him and I thought,

0:24:04.116 --> 0:24:12.036
<v Speaker 2>he has most beautiful brown eyes. And then it like

0:24:12.116 --> 0:24:15.876
<v Speaker 2>hit me. I thought, what's going on with me? I

0:24:15.916 --> 0:24:21.156
<v Speaker 2>had never ever in my life had a thought he

0:24:21.236 --> 0:24:25.556
<v Speaker 2>has beautiful brown eyes. But of course I had heard

0:24:25.636 --> 0:24:28.916
<v Speaker 2>that people had said, oh, old blue eyes, and such

0:24:28.996 --> 0:24:31.556
<v Speaker 2>pretty blue eyes. And pretty. You know, i'd heard it,

0:24:32.236 --> 0:24:36.596
<v Speaker 2>but I had never ever had that thought. And then

0:24:37.356 --> 0:24:39.396
<v Speaker 2>I went into the waiting room and there were people

0:24:39.476 --> 0:24:42.556
<v Speaker 2>out there, and I looked at people and I thought,

0:24:43.676 --> 0:24:48.276
<v Speaker 2>she's really anxious, really scared. And I never had a

0:24:48.276 --> 0:24:50.716
<v Speaker 2>feeling like that before. I mean, I would go in

0:24:50.716 --> 0:24:54.116
<v Speaker 2>the waiting room and my logical brain would tell me

0:24:54.516 --> 0:24:57.076
<v Speaker 2>they're waiting to know what's wrong with their car, But

0:24:57.356 --> 0:25:00.716
<v Speaker 2>never ever did I look at someone and think she's

0:25:00.796 --> 0:25:06.156
<v Speaker 2>really scared. And I actually I said to the person

0:25:06.196 --> 0:25:08.956
<v Speaker 2>in the waiting room, I said, don't worry, it'll be okay.

0:25:09.676 --> 0:25:13.476
<v Speaker 2>She kind of smiled at me. Wow, And I thought,

0:25:14.076 --> 0:25:16.516
<v Speaker 2>this is like magic. This has never happened to me.

0:25:18.196 --> 0:25:23.516
<v Speaker 2>And lest you think that my life was all like

0:25:23.636 --> 0:25:26.396
<v Speaker 2>beauty and sweetness and light from that moment on, it

0:25:26.436 --> 0:25:32.836
<v Speaker 2>wasn't that way. Because I went out and I went

0:25:32.876 --> 0:25:35.316
<v Speaker 2>you know, I was a big shopping center where I live,

0:25:36.796 --> 0:25:38.716
<v Speaker 2>and I'm walking through the mall and I'm just like

0:25:38.796 --> 0:25:42.596
<v Speaker 2>looking around at the people, and it was not beauty

0:25:42.636 --> 0:25:46.276
<v Speaker 2>and sweetness and light. It was like fear and anxiety

0:25:46.396 --> 0:25:49.436
<v Speaker 2>and worry and jealousy and all these things that they're

0:25:49.436 --> 0:25:52.836
<v Speaker 2>all coming at me from a million different directions. It's

0:25:52.876 --> 0:25:58.916
<v Speaker 2>just like this wave of emotion and I thought, holy shit,

0:25:59.076 --> 0:26:03.316
<v Speaker 2>I thought, what kind of fool was I now? And

0:26:03.356 --> 0:26:06.636
<v Speaker 2>you know, as I went through life, that faded away.

0:26:06.916 --> 0:26:10.756
<v Speaker 1>Luckily, sorry that meaning.

0:26:10.716 --> 0:26:15.276
<v Speaker 2>My ability to see those emotions in people dissipated over

0:26:15.316 --> 0:26:22.236
<v Speaker 2>the next few weeks. But while it lasted, it was overwhelming.

0:26:22.396 --> 0:26:24.276
<v Speaker 2>It was like devastating to me.

0:26:26.276 --> 0:26:30.996
<v Speaker 1>I mean, I so appreciate the complexity you describe, and

0:26:31.076 --> 0:26:36.636
<v Speaker 1>from what I understand, while the very acute results of

0:26:36.676 --> 0:26:40.956
<v Speaker 1>the TMS have dissipated over time, there is this element

0:26:41.036 --> 0:26:44.636
<v Speaker 1>of you can't unsee what you've seen, right, and you

0:26:44.676 --> 0:26:49.356
<v Speaker 1>are you are altered permanently from this experience in terms

0:26:49.396 --> 0:26:51.356
<v Speaker 1>of your perspective of the world.

0:26:51.996 --> 0:26:57.396
<v Speaker 2>And I also felt like my dream was kind of shattered,

0:26:57.756 --> 0:27:00.036
<v Speaker 2>this idea that if I could see these things in

0:27:00.076 --> 0:27:04.276
<v Speaker 2>other people, my life would be beautiful. And so now

0:27:04.436 --> 0:27:13.636
<v Speaker 2>we are thirteen years since that TMS experience, and I guess,

0:27:16.396 --> 0:27:19.596
<v Speaker 2>I guess I never imagined that just a brief experience

0:27:19.716 --> 0:27:24.196
<v Speaker 2>like that could change your life forever. The way I

0:27:24.236 --> 0:27:28.156
<v Speaker 2>guess I could explain it, and maybe it's an explanation,

0:27:29.036 --> 0:27:32.316
<v Speaker 2>is if you're a color blind person and you grow

0:27:32.396 --> 0:27:36.836
<v Speaker 2>up and you imagine people are talking about the beautiful

0:27:36.876 --> 0:27:41.236
<v Speaker 2>blue sky, pretty red shirt, nice green grass, and of

0:27:41.276 --> 0:27:43.116
<v Speaker 2>course to you, it's all shades of gray, and you

0:27:43.156 --> 0:27:45.516
<v Speaker 2>start thinking it's just bullshit, and it just makes you angry.

0:27:45.636 --> 0:27:48.276
<v Speaker 2>This blue, yellow, green talk. It's all the same. You

0:27:48.356 --> 0:27:50.876
<v Speaker 2>know it. You know the evidence of your eyes. And

0:27:50.916 --> 0:27:53.396
<v Speaker 2>you go into some doctor's office and they do something

0:27:53.436 --> 0:27:55.396
<v Speaker 2>to you, and you walk out and you see color

0:27:55.436 --> 0:27:58.796
<v Speaker 2>and you realize, holy shit, these people were telling the truth.

0:27:58.876 --> 0:28:02.636
<v Speaker 2>It's really what it is. And then the ability fades away. Well,

0:28:02.716 --> 0:28:04.396
<v Speaker 2>even if you go back to see in a black

0:28:04.436 --> 0:28:07.516
<v Speaker 2>and white world, you are never going to forget that

0:28:07.636 --> 0:28:10.716
<v Speaker 2>all those other people are seeing yellows and blues and greens,

0:28:10.756 --> 0:28:14.636
<v Speaker 2>and you're going to try your hardest to discern what

0:28:14.876 --> 0:28:17.836
<v Speaker 2>shade of gray is yellow and what's green? And can

0:28:17.876 --> 0:28:21.996
<v Speaker 2>I determine green by context? You know that's a lawn,

0:28:22.116 --> 0:28:25.596
<v Speaker 2>so that must be green. And you're going to always

0:28:25.636 --> 0:28:28.876
<v Speaker 2>be changed. I don't know what to say except that

0:28:28.956 --> 0:28:33.156
<v Speaker 2>I'm I'm changed all these years later. Yeah, and the

0:28:33.196 --> 0:28:39.316
<v Speaker 2>insight I think has been empowering. But it was a really,

0:28:39.636 --> 0:28:42.876
<v Speaker 2>really rough rive. Yeah, so it was a very mixed bag.

0:28:43.716 --> 0:28:45.196
<v Speaker 2>It was a very mixed thing.

0:28:46.836 --> 0:28:48.876
<v Speaker 1>That leads me to another question I have for you, John,

0:28:48.916 --> 0:28:52.276
<v Speaker 1>which is, you know, you talk about this experience in

0:28:52.316 --> 0:28:56.796
<v Speaker 1>the mall where you're inundated with emotion, and what you're

0:28:56.836 --> 0:29:01.196
<v Speaker 1>realizing is your experience being on the autism spectrum wasn't

0:29:01.196 --> 0:29:03.236
<v Speaker 1>shielding you all the good parts.

0:29:03.476 --> 0:29:05.236
<v Speaker 2>It was shielding me from those bad parts.

0:29:05.556 --> 0:29:07.276
<v Speaker 1>It was shielding you from bad parts too.

0:29:07.396 --> 0:29:12.396
<v Speaker 2>Yes, being autistic definitely shielded me from that. It made

0:29:12.476 --> 0:29:15.916
<v Speaker 2>me different, but it didn't make me worse. Because those

0:29:15.956 --> 0:29:19.916
<v Speaker 2>people who have to live with that, you know, being

0:29:19.996 --> 0:29:23.556
<v Speaker 2>a logical person, they can't be logical people because there's

0:29:23.636 --> 0:29:26.716
<v Speaker 2>so much emotion around them. I don't have that around me,

0:29:26.796 --> 0:29:30.556
<v Speaker 2>So I am logical, and you know, logic works in

0:29:30.596 --> 0:29:33.156
<v Speaker 2>a lot of life. You ought to be a programmer, boy,

0:29:33.236 --> 0:29:34.636
<v Speaker 2>there's nothing better than logic.

0:29:35.116 --> 0:29:40.076
<v Speaker 1>Yeah. I'm wondering what impact the TMS had on your

0:29:40.116 --> 0:29:42.156
<v Speaker 1>relationship with your wife.

0:29:43.236 --> 0:29:50.316
<v Speaker 2>Well, ultimately, my wife was living with significant depression, and

0:29:50.396 --> 0:29:55.516
<v Speaker 2>because I was largely blind to the emotional cues from others,

0:29:55.556 --> 0:29:59.156
<v Speaker 2>her included, she was just what she was, you know,

0:29:59.316 --> 0:30:02.756
<v Speaker 2>and she could say like, I can't get out of

0:30:02.756 --> 0:30:04.676
<v Speaker 2>bed today, I'm too depressed. And I would say, Okay,

0:30:04.676 --> 0:30:06.596
<v Speaker 2>I'm going to work and I'm just going to and

0:30:06.636 --> 0:30:09.956
<v Speaker 2>that worked, you know, worked for us. But when I

0:30:10.036 --> 0:30:14.076
<v Speaker 2>saw those feelings after the TMS, I saw her sadness

0:30:14.116 --> 0:30:17.916
<v Speaker 2>and misery, and I thought, I must have done this

0:30:17.956 --> 0:30:20.436
<v Speaker 2>to her. We're married. I must be the cause of

0:30:20.476 --> 0:30:25.436
<v Speaker 2>her misery. That's just just horrible, and it really shattered

0:30:25.636 --> 0:30:29.676
<v Speaker 2>my marriage. I thought, you know, I'm like killing her

0:30:29.836 --> 0:30:32.676
<v Speaker 2>and her depression is killing me, and we're horrible for

0:30:32.716 --> 0:30:36.196
<v Speaker 2>each other. And I got to leave, and you know,

0:30:36.276 --> 0:30:38.956
<v Speaker 2>and I guess I'm very sad for that.

0:30:40.436 --> 0:30:43.996
<v Speaker 1>Yeah, I mean, it's a poignant illustration of the complexities

0:30:43.996 --> 0:30:49.076
<v Speaker 1>that come along with picking up on human emotions. Knowing

0:30:49.116 --> 0:30:51.996
<v Speaker 1>what you know. Now, if you could go back in time,

0:30:52.756 --> 0:30:58.076
<v Speaker 1>would you still go through with the TMS experiments, if you.

0:30:58.116 --> 0:31:02.596
<v Speaker 2>Put me in the shoes of the post TMS John Robison,

0:31:04.276 --> 0:31:09.196
<v Speaker 2>where I had experienced what it would be like to

0:31:09.236 --> 0:31:14.916
<v Speaker 2>see and feel emotion, and I saw and felt what

0:31:15.036 --> 0:31:18.996
<v Speaker 2>it's like to read emotions. And yes, that's a powerful thing,

0:31:19.516 --> 0:31:23.596
<v Speaker 2>and yes that could help me engage with people who

0:31:23.636 --> 0:31:29.236
<v Speaker 2>don't know me. But it devastated my logical brain. In

0:31:29.276 --> 0:31:33.716
<v Speaker 2>it upended the world as I had known it. I

0:31:33.756 --> 0:31:39.876
<v Speaker 2>am not a broken version of some someone else's normal.

0:31:40.516 --> 0:31:44.676
<v Speaker 2>I am my normal. Autistic people maybe different from non

0:31:44.716 --> 0:31:49.316
<v Speaker 2>autistic people, but we are not broken. And that's what's

0:31:49.356 --> 0:31:52.516
<v Speaker 2>been brought home to me. I think through this TMS

0:31:53.716 --> 0:31:57.316
<v Speaker 2>and now that I know that, do I need to

0:31:57.396 --> 0:32:01.716
<v Speaker 2>learn it again? No, that's a lifelong lesson, and that's

0:32:01.716 --> 0:32:05.636
<v Speaker 2>a gift the TMS gave me that I truly understand

0:32:06.196 --> 0:32:09.476
<v Speaker 2>that as an autistic person, I am my normal, and

0:32:09.556 --> 0:32:12.916
<v Speaker 2>I'm a good normal, as much a complete, correct person

0:32:12.956 --> 0:32:13.836
<v Speaker 2>as anyone else.

0:32:34.076 --> 0:32:36.716
<v Speaker 1>Hey, thanks so much for listening. If you enjoyed my

0:32:36.756 --> 0:32:40.276
<v Speaker 1>conversation with John Elder Robison, I recommend you check out

0:32:40.276 --> 0:32:44.636
<v Speaker 1>another episode that features rock climber Tommy Caldwell. A near

0:32:44.716 --> 0:32:48.076
<v Speaker 1>death experience unlocked a completely new state of mind for

0:32:48.156 --> 0:32:51.436
<v Speaker 1>Tommy and propelled him to become the greatest big wall

0:32:51.476 --> 0:33:04.156
<v Speaker 1>climber in the world. A Slight Change of Plans is created,

0:33:04.156 --> 0:33:07.876
<v Speaker 1>written and executive produced by me Maya Schunker. The Slight

0:33:07.956 --> 0:33:12.116
<v Speaker 1>Changed family includes Tyler Green our senior producer, Jen Guerra

0:33:12.236 --> 0:33:16.876
<v Speaker 1>our senior editor, Then Tolliday our sound engineer, Emily Rosstek

0:33:16.916 --> 0:33:21.796
<v Speaker 1>our associate producer, and Neil Lavelle, our executive producer, Louis

0:33:21.796 --> 0:33:24.796
<v Speaker 1>Scara wrote our theme song and Ginger Smith helped arrange

0:33:24.796 --> 0:33:27.876
<v Speaker 1>the vocals. A Slight Change of Plans is the production

0:33:27.916 --> 0:33:31.996
<v Speaker 1>of Pushkin Industries, so big thanks to everyone there, including

0:33:32.036 --> 0:33:36.036
<v Speaker 1>Malcolm Gladwell, Jacob Weisberg, Lee tal Mallatt and Heather Fame

0:33:36.596 --> 0:33:40.756
<v Speaker 1>and of course a very special thanks to Jimmy Lee.

0:33:41.036 --> 0:33:43.596
<v Speaker 1>You can follow A Slight Change of Plans on Instagram

0:33:43.636 --> 0:33:46.396
<v Speaker 1>at doctor Maya Schunker see you next week.

0:33:50.996 --> 0:33:54.276
<v Speaker 2>And then the neurologist comes in to see me and

0:33:54.316 --> 0:33:56.436
<v Speaker 2>he says, he says, what day is it? And what's

0:33:56.476 --> 0:34:00.316
<v Speaker 2>your name? And who's the president? He asked me some

0:34:00.436 --> 0:34:03.396
<v Speaker 2>questions I don't know the answer to. He says something like, well,

0:34:03.796 --> 0:34:07.196
<v Speaker 2>who's our senator? I don't know who our senator.

0:34:08.036 --> 0:34:11.676
<v Speaker 1>I didn't know before you. Yeah, I would totally a

0:34:11.756 --> 0:34:12.396
<v Speaker 1>bid you John.

0:34:12.516 --> 0:34:14.676
<v Speaker 2>And he says, Okay, I get it. You haven't forgotten it.

0:34:14.716 --> 0:34:15.396
<v Speaker 2>You never knew it.