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Dr Jessica Zetter with us m 21 00:01:08,920 --> 00:01:11,880 Speaker 1: D is an expert on the medical experience of death 22 00:01:11,920 --> 00:01:15,560 Speaker 1: and dying. She specializes in critical care and medicine at 23 00:01:15,640 --> 00:01:19,959 Speaker 1: Highland Hospital in Oakland, California. Graduate of Stanford University in 24 00:01:20,000 --> 00:01:24,600 Speaker 1: Case Western Reserve Medical School, completed her residency and internal 25 00:01:24,640 --> 00:01:27,840 Speaker 1: medicine at the Brigham and Women's Hospital, part of the 26 00:01:27,920 --> 00:01:31,679 Speaker 1: Harvard Medical School, as well her book Extreme Measures, Finding 27 00:01:31,720 --> 00:01:35,720 Speaker 1: a Better Path to the End of Life. What a subject, Jessica, 28 00:01:36,240 --> 00:01:39,920 Speaker 1: something that a lot of people are scared about, aren't they? Yes, 29 00:01:40,040 --> 00:01:41,840 Speaker 1: I would. I would say that we sort of have 30 00:01:41,880 --> 00:01:45,960 Speaker 1: a collective fear and denial of death in this culture 31 00:01:46,200 --> 00:01:49,320 Speaker 1: and in many cultures. Why do people Why do people 32 00:01:49,360 --> 00:01:53,200 Speaker 1: fear death so much? You know, I almost wonder if 33 00:01:53,240 --> 00:01:57,280 Speaker 1: it's if it's evolutionary and genetic that that we really 34 00:01:57,360 --> 00:02:01,640 Speaker 1: just want to live forever? Are their Greek myths going back, 35 00:02:01,800 --> 00:02:05,720 Speaker 1: you know, tends many many many years. However many years 36 00:02:05,720 --> 00:02:09,320 Speaker 1: it is talking about this perpetual life and what it 37 00:02:09,520 --> 00:02:11,639 Speaker 1: and and this desire for it. So I think it's 38 00:02:11,680 --> 00:02:14,040 Speaker 1: something that's been with us for a long time now, 39 00:02:14,080 --> 00:02:16,960 Speaker 1: our fear of death, of course, and there is that 40 00:02:17,080 --> 00:02:21,000 Speaker 1: tendency as you believe to ignore it. Is that very 41 00:02:21,040 --> 00:02:25,440 Speaker 1: smart to do well, I would definitely say not. I 42 00:02:25,480 --> 00:02:28,000 Speaker 1: think that, you know, my front row seat in the 43 00:02:28,000 --> 00:02:31,680 Speaker 1: intensive carrying it, I see the results of people ignoring 44 00:02:31,680 --> 00:02:34,920 Speaker 1: it all the time, and it's it's pretty devastating. Um. 45 00:02:35,240 --> 00:02:38,440 Speaker 1: You know, people really end up not knowing what what 46 00:02:39,200 --> 00:02:41,600 Speaker 1: is the power of what we can do with these 47 00:02:41,680 --> 00:02:45,800 Speaker 1: machines that can keep bodies alive, And many people really 48 00:02:45,800 --> 00:02:47,959 Speaker 1: wouldn't want it if they knew. And I think we 49 00:02:48,120 --> 00:02:50,320 Speaker 1: just assume that more technology is going to help us 50 00:02:50,360 --> 00:02:52,400 Speaker 1: and it's going to be better, but in fact that's 51 00:02:52,440 --> 00:02:55,560 Speaker 1: not the case in many especially for dying patients or 52 00:02:55,560 --> 00:02:59,040 Speaker 1: patients with serious illness. What was the catalyst that pushed 53 00:02:59,040 --> 00:03:02,200 Speaker 1: you into writing extra measures? You know, I've been writing 54 00:03:02,240 --> 00:03:05,600 Speaker 1: for years, um, i'd say, I mean since I was 55 00:03:05,600 --> 00:03:07,520 Speaker 1: a kid. But I did a lot of writing in 56 00:03:07,520 --> 00:03:09,760 Speaker 1: my early years of my career when I was going 57 00:03:09,880 --> 00:03:11,920 Speaker 1: you know, when I had gone into intensive care medicine, 58 00:03:11,960 --> 00:03:14,440 Speaker 1: and I was very excited at first got the idea 59 00:03:14,480 --> 00:03:17,400 Speaker 1: of of really just prolonging life and saving life. And 60 00:03:17,440 --> 00:03:20,839 Speaker 1: I started to see that in many cases, um, I 61 00:03:20,880 --> 00:03:24,320 Speaker 1: was actually causing more suffering and it was very distressing 62 00:03:24,360 --> 00:03:27,200 Speaker 1: to me. So I started to write really to deal 63 00:03:27,240 --> 00:03:30,800 Speaker 1: with my own moral distress. But as I went forward, 64 00:03:30,840 --> 00:03:32,600 Speaker 1: and if you you know, see in the book, I 65 00:03:33,280 --> 00:03:38,040 Speaker 1: found a new type of medical training that I incorporated 66 00:03:38,040 --> 00:03:41,680 Speaker 1: into my I c YOU practice, which is palliative care UM. 67 00:03:41,760 --> 00:03:45,640 Speaker 1: And this is really a reasonably new subspecialty which focuses 68 00:03:45,760 --> 00:03:49,640 Speaker 1: very much on communication and and UM also managing symptoms 69 00:03:49,680 --> 00:03:53,000 Speaker 1: and and and it's a terrific adjunct to what I 70 00:03:53,040 --> 00:03:54,560 Speaker 1: do in the I c U. And I started to 71 00:03:54,600 --> 00:03:57,040 Speaker 1: feel much more hopeful and UM see a new way 72 00:03:57,080 --> 00:03:59,480 Speaker 1: of doing this that I felt was working much better 73 00:03:59,480 --> 00:04:02,000 Speaker 1: for my patient sense. And so then this book really 74 00:04:02,040 --> 00:04:04,640 Speaker 1: just came out of that experience of going from in 75 00:04:04,680 --> 00:04:06,480 Speaker 1: a way, from this sort of dark place to a 76 00:04:06,560 --> 00:04:09,080 Speaker 1: much more hopeful place. What do you think is a 77 00:04:09,120 --> 00:04:11,840 Speaker 1: better way to die, Jessica, Just to drop over, keel 78 00:04:11,920 --> 00:04:14,840 Speaker 1: over and die, or to you know, be in a 79 00:04:14,920 --> 00:04:18,800 Speaker 1: hospital room and just kind of wither away? You know, 80 00:04:19,080 --> 00:04:22,560 Speaker 1: I think it's so depends on the person. And what 81 00:04:22,600 --> 00:04:25,039 Speaker 1: I've learned in my many years of doing this now is, 82 00:04:25,560 --> 00:04:30,320 Speaker 1: you know, people are pretty different, and what's most important. 83 00:04:30,320 --> 00:04:32,400 Speaker 1: What I would say is a good death really is 84 00:04:32,520 --> 00:04:35,240 Speaker 1: one that is most in line with what a particular 85 00:04:35,279 --> 00:04:38,560 Speaker 1: person's preferences and values are UM. So I think that's 86 00:04:38,560 --> 00:04:40,760 Speaker 1: why we need to be communicating a lot more about 87 00:04:40,760 --> 00:04:45,919 Speaker 1: that particular um aspect of life. As you were studying this, 88 00:04:46,680 --> 00:04:50,280 Speaker 1: did you come across things where you would make recommendations 89 00:04:50,320 --> 00:04:56,080 Speaker 1: to people who are about to die? Well, I mean 90 00:04:56,200 --> 00:04:59,920 Speaker 1: I what I really try to do is not make recommendation. 91 00:05:00,120 --> 00:05:04,760 Speaker 1: What I really my ideal situation is to educate people 92 00:05:04,800 --> 00:05:09,320 Speaker 1: about their particular medical condition and about the particular treatments 93 00:05:09,360 --> 00:05:11,240 Speaker 1: that were you know, that are that are in front 94 00:05:11,279 --> 00:05:14,200 Speaker 1: of them, that that might be things that we could do, 95 00:05:14,440 --> 00:05:16,440 Speaker 1: the benefits and the burdens of those treatments, and then 96 00:05:16,520 --> 00:05:20,000 Speaker 1: have them decide based on what is really important to 97 00:05:20,040 --> 00:05:22,520 Speaker 1: them about how they live the rest of their lives. 98 00:05:22,560 --> 00:05:25,839 Speaker 1: So I don't necessarily like to make recommendations. Sometimes I do, 99 00:05:25,920 --> 00:05:27,760 Speaker 1: but but most of the time people come to it 100 00:05:27,920 --> 00:05:30,200 Speaker 1: on their own, once they've really thought about their own 101 00:05:30,200 --> 00:05:33,799 Speaker 1: personal values and preferences and and and understood the realities 102 00:05:33,839 --> 00:05:35,960 Speaker 1: of what live before them. What do you think about 103 00:05:36,720 --> 00:05:43,159 Speaker 1: prolonged living through like life support? You know, well, let's 104 00:05:43,240 --> 00:05:46,520 Speaker 1: let's put it this way. There, I would say, we 105 00:05:46,600 --> 00:05:49,080 Speaker 1: know from data that we do it all the time. 106 00:05:49,520 --> 00:05:53,200 Speaker 1: There are many, many people, and a rising number, especially 107 00:05:53,200 --> 00:05:55,599 Speaker 1: now as the baby boomers are starting to you know, 108 00:05:55,720 --> 00:05:58,440 Speaker 1: age that more and more people are dying this way. 109 00:05:58,480 --> 00:06:00,920 Speaker 1: We've got this this term called chronic critical illness, which 110 00:06:00,960 --> 00:06:04,600 Speaker 1: is quite a large population of people, um the chronically 111 00:06:04,640 --> 00:06:06,880 Speaker 1: critically ill. And these are people who really do have 112 00:06:07,360 --> 00:06:12,320 Speaker 1: profound debilitation and you know, require at the very least 113 00:06:12,320 --> 00:06:17,680 Speaker 1: institutional support until they die or many remain tethered to machines. 114 00:06:18,240 --> 00:06:21,160 Speaker 1: And you know, this is a this is in my opinion, 115 00:06:21,440 --> 00:06:23,400 Speaker 1: a public health crisis. And this is a big part 116 00:06:23,440 --> 00:06:25,760 Speaker 1: of why I do my advocacy. I really feel like 117 00:06:25,760 --> 00:06:29,359 Speaker 1: people need to know about this. But the other piece 118 00:06:29,360 --> 00:06:31,080 Speaker 1: of data that we have is that, you know, most 119 00:06:31,160 --> 00:06:33,880 Speaker 1: people don't want that. If you if you look at surveys, 120 00:06:33,920 --> 00:06:35,880 Speaker 1: and there's lots and lots of surveys and more and 121 00:06:35,920 --> 00:06:38,440 Speaker 1: more coming out all the time. People want to die 122 00:06:38,480 --> 00:06:40,640 Speaker 1: at home. People want to die at home. But what 123 00:06:40,720 --> 00:06:43,599 Speaker 1: percentage do you think die at home? Not that many 124 00:06:44,920 --> 00:06:48,160 Speaker 1: twenty It's a very very low percentage. The other thing 125 00:06:48,200 --> 00:06:49,960 Speaker 1: that's interesting is that, you know, we know that when 126 00:06:49,960 --> 00:06:52,680 Speaker 1: patients have access to more information about end of life 127 00:06:52,720 --> 00:06:56,000 Speaker 1: issues and about the options ahead of them, they always choose. 128 00:06:56,320 --> 00:06:59,799 Speaker 1: Most patients choose a much lower level of technological intervention, 129 00:07:00,520 --> 00:07:04,719 Speaker 1: and in fact, they don't die sooner um. And so 130 00:07:05,400 --> 00:07:07,599 Speaker 1: there's there's quite you know, this is I think that 131 00:07:07,680 --> 00:07:09,440 Speaker 1: we know that people don't want to die that way, 132 00:07:09,480 --> 00:07:11,400 Speaker 1: and more and more people are dying that way, and 133 00:07:11,440 --> 00:07:14,320 Speaker 1: I just think we need to raise awareness about that, well, 134 00:07:14,440 --> 00:07:17,640 Speaker 1: especially when they prolong it, because if that's the way 135 00:07:17,680 --> 00:07:20,680 Speaker 1: you're going to stay alive, you know, with an apparatus 136 00:07:20,720 --> 00:07:24,320 Speaker 1: on you and you cannot live without it. Who wants 137 00:07:24,360 --> 00:07:27,480 Speaker 1: to live that way? Jessica, Well, and that's I mean, 138 00:07:27,560 --> 00:07:29,200 Speaker 1: it's a very important point where you just what you 139 00:07:29,320 --> 00:07:32,080 Speaker 1: just said, with an apparatus on you that let me 140 00:07:32,120 --> 00:07:34,800 Speaker 1: describe it a little bit more, a little bit more 141 00:07:34,920 --> 00:07:37,720 Speaker 1: um in detail, because I think it's important for people 142 00:07:37,720 --> 00:07:39,960 Speaker 1: to understand what it means to have, for example, chronic 143 00:07:40,000 --> 00:07:44,080 Speaker 1: critical illness. UM. It means that many of these patients 144 00:07:44,120 --> 00:07:48,360 Speaker 1: are attached to breathing machines and by that point it's 145 00:07:48,400 --> 00:07:50,920 Speaker 1: more of a permanent connection through a you know, tracheostomy 146 00:07:50,960 --> 00:07:53,840 Speaker 1: through the neck. They usually have feeding tubes that go 147 00:07:53,920 --> 00:07:57,000 Speaker 1: into their stomachs. They're usually you know, in a bed, 148 00:07:57,240 --> 00:08:01,480 Speaker 1: lying flat, they're often have their arms tied down because 149 00:08:01,800 --> 00:08:04,760 Speaker 1: dislodging tubes, which is you know, is a very risky 150 00:08:04,760 --> 00:08:06,880 Speaker 1: and dangerous thing. So a lot of these people have 151 00:08:07,000 --> 00:08:10,760 Speaker 1: their arms tied down, and you know, you can imagine 152 00:08:10,800 --> 00:08:13,360 Speaker 1: the patients of their families, as much as they love them, 153 00:08:13,760 --> 00:08:16,240 Speaker 1: can't really stand vigil for that, you know. I mean, 154 00:08:16,760 --> 00:08:19,480 Speaker 1: you're to stand at the bedside of somebody like this 155 00:08:19,560 --> 00:08:24,560 Speaker 1: is I think, not only extremely difficult from a physical 156 00:08:24,640 --> 00:08:27,320 Speaker 1: financial perspective, but in terms of an emotional and so 157 00:08:27,360 --> 00:08:29,280 Speaker 1: a lot of these people just end up really dying 158 00:08:29,280 --> 00:08:32,800 Speaker 1: in this very isolated environment um of an institution attached 159 00:08:32,840 --> 00:08:36,559 Speaker 1: to machines. The name of the book, of course, is 160 00:08:36,600 --> 00:08:39,679 Speaker 1: called Extreme Measures. Finding a Better Path to the End 161 00:08:39,679 --> 00:08:43,440 Speaker 1: of Life. Now, is there indeed a better path to 162 00:08:43,559 --> 00:08:47,480 Speaker 1: the end of life? I absolutely think so, and I 163 00:08:47,520 --> 00:08:49,880 Speaker 1: have seen it, and you know, my book is filled 164 00:08:49,880 --> 00:08:52,880 Speaker 1: with stories of people who have really taken their own 165 00:08:53,080 --> 00:08:55,600 Speaker 1: lives into into their own hands and instead of going 166 00:08:55,600 --> 00:08:58,640 Speaker 1: along what I call this end of life to conveyor belt. 167 00:08:59,280 --> 00:09:04,520 Speaker 1: And to me, it's extremely uplifting to see people who 168 00:09:04,600 --> 00:09:06,400 Speaker 1: have said, no, you know, I want to take control 169 00:09:06,400 --> 00:09:08,760 Speaker 1: of this and do this my way, instead of just 170 00:09:08,840 --> 00:09:12,840 Speaker 1: going down this default path of you know, high tech treatment, 171 00:09:12,840 --> 00:09:15,600 Speaker 1: which is what we do, and I've seen it shift 172 00:09:15,679 --> 00:09:17,760 Speaker 1: many times and really go from something that could have 173 00:09:17,800 --> 00:09:22,000 Speaker 1: been a really you know, highly medicalized death to something 174 00:09:22,040 --> 00:09:27,079 Speaker 1: that's much more home based and comfort based and family oriented. 175 00:09:27,440 --> 00:09:29,680 Speaker 1: So to me, that's a success. But for some people, 176 00:09:29,800 --> 00:09:33,160 Speaker 1: you know, some people really feel that, you know, even 177 00:09:33,160 --> 00:09:35,200 Speaker 1: if they understand all the details of what this chronic 178 00:09:35,200 --> 00:09:38,920 Speaker 1: critical illness could look like, they still feel that they 179 00:09:38,920 --> 00:09:40,920 Speaker 1: would want their bodies to be kept alive. And I 180 00:09:41,520 --> 00:09:44,120 Speaker 1: respect that. Um, we we do that a lot um 181 00:09:44,280 --> 00:09:46,240 Speaker 1: Most of the time. We do it without people really 182 00:09:46,559 --> 00:09:48,640 Speaker 1: telling us to do it. We do it by default. 183 00:09:49,120 --> 00:09:51,080 Speaker 1: But it certainly if someone said to me, you know, 184 00:09:51,160 --> 00:09:53,280 Speaker 1: this is really important to me that I be kept 185 00:09:53,320 --> 00:09:56,360 Speaker 1: alive as long as possibly, I'd say, okay, you know, 186 00:09:56,800 --> 00:09:59,880 Speaker 1: will we in this state, in this modern medical era, 187 00:10:00,040 --> 00:10:01,920 Speaker 1: we we will do that if you ask for it. 188 00:10:02,000 --> 00:10:06,040 Speaker 1: And it's not my choice, but that would that is 189 00:10:06,080 --> 00:10:08,600 Speaker 1: some people's choice. Have you ever seen a case, Jessica, 190 00:10:08,720 --> 00:10:12,920 Speaker 1: where they kept somebody on life support and then miraculously 191 00:10:13,360 --> 00:10:17,679 Speaker 1: they recovered from whatever ailment they had and they didn't 192 00:10:17,679 --> 00:10:24,320 Speaker 1: need it anymore. It's extremely rare. I've seen it a 193 00:10:24,360 --> 00:10:28,160 Speaker 1: few times in my career. UM. It's usually in the 194 00:10:28,320 --> 00:10:32,480 Speaker 1: context of a reasonably young person who's in a coma, 195 00:10:32,520 --> 00:10:36,240 Speaker 1: either from an accident or a very serious infection. UM. 196 00:10:36,960 --> 00:10:42,280 Speaker 1: I've never seen it happen in somebody who, for example, 197 00:10:42,320 --> 00:10:45,800 Speaker 1: has terminal cancer and who has been dying and come in, 198 00:10:45,880 --> 00:10:48,120 Speaker 1: you know, with very serious illness and then gotten sicker 199 00:10:48,120 --> 00:10:50,680 Speaker 1: and sicker and gotten into the intensive carrying it. I've 200 00:10:50,679 --> 00:10:53,520 Speaker 1: never seen those kinds of patients, Uh turn around and 201 00:10:53,559 --> 00:10:56,240 Speaker 1: all of a sudden, you know, recovered to the point 202 00:10:56,320 --> 00:11:00,120 Speaker 1: that they're going back to their lives with the with 203 00:11:00,280 --> 00:11:04,720 Speaker 1: this kind of end of life treatment. What do most 204 00:11:05,000 --> 00:11:07,880 Speaker 1: doctors say about this? Would they be in support of 205 00:11:07,960 --> 00:11:11,000 Speaker 1: what you've just said. It's an interesting question. And I 206 00:11:11,840 --> 00:11:15,280 Speaker 1: looked at the data on this. Doctors, Uh don't want 207 00:11:15,280 --> 00:11:17,960 Speaker 1: to die this way. UM, We've got there's a study 208 00:11:17,960 --> 00:11:19,679 Speaker 1: that I that was done in I think two thousand 209 00:11:19,760 --> 00:11:23,320 Speaker 1: thirteen UM out of Stanford surveying a bunch of young 210 00:11:23,520 --> 00:11:28,480 Speaker 1: doctors about what their preferences would be if they became, 211 00:11:28,559 --> 00:11:31,400 Speaker 1: you know, had a terminal illness, and of them said 212 00:11:31,400 --> 00:11:33,400 Speaker 1: that they would want to be made d n R, 213 00:11:33,480 --> 00:11:36,280 Speaker 1: which is do not resuscitate, which means that if you 214 00:11:36,320 --> 00:11:38,520 Speaker 1: know they when it when it comes time to their 215 00:11:38,600 --> 00:11:41,079 Speaker 1: organs start to fail, you know, let me go peacefully, 216 00:11:41,200 --> 00:11:44,400 Speaker 1: don't put me back on aggressive machines and bring my 217 00:11:44,440 --> 00:11:47,800 Speaker 1: body back on machines. Um And yet if you look 218 00:11:47,840 --> 00:11:51,480 Speaker 1: at another study that looks at a bunch of geriatrics 219 00:11:51,520 --> 00:11:56,400 Speaker 1: practice in Canada where there were about five survey geriatric's 220 00:11:56,400 --> 00:11:59,120 Speaker 1: patients in this practice, only eight percent of them had 221 00:11:59,120 --> 00:12:01,440 Speaker 1: ever had conversation stations with their doctors about this do 222 00:12:01,520 --> 00:12:04,960 Speaker 1: not resuscitate. So doctors don't want to die that way, 223 00:12:05,000 --> 00:12:08,160 Speaker 1: but their patients don't even have the chance to opt out. 224 00:12:08,559 --> 00:12:11,439 Speaker 1: Listen to more Coast to Coast a m every weeknight 225 00:12:11,640 --> 00:12:14,120 Speaker 1: at one a m. Eastern and go to Coast to 226 00:12:14,120 --> 00:12:15,880 Speaker 1: Coast am dot com for more