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Speaker 1: What if there were a way to reduce cancer deaths

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Speaker 1: by half in the next twenty five years. This is

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Speaker 1: the future Exact Sciences works toward every single day because

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Speaker 1: they believe it's possible. Exact Sciences is a dedicated team

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Speaker 1: of cancer fighters united by a purpose to help eradicate

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Speaker 1: cancer by preventing it, detecting it earlier, and guiding personalized treatment.

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Speaker 1: Visit exact sciences dot com to learn more. Hi everyone,

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Speaker 1: I'm Kitty Kuric and this is next question. It all

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Speaker 1: began one Sunday afternoon in January of twenty twenty two.

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Speaker 1: I was scrolling on my phone per usual and saw

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Speaker 1: a Politico article about a couple named Brian Wallach and

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Speaker 1: Sondra Opera Vah. They had met when they both worked

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Speaker 1: on the Obama campaign. The piece was long but fascinating.

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Speaker 1: I read the whole thing and in the body of

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Speaker 1: it it said a documentary was being developed about Brian

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Speaker 1: and his life with als. So I called the reporter,

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Speaker 1: Sam Stein, and I said, Hey, Sam, can you introduce

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Speaker 1: me to these amazing people? He did so we subsequently

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Speaker 1: got on a zoom and what can I say? They

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Speaker 1: had me at Can you hear me? Now. A couple

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Speaker 1: of years later, a documentary called for Love and Life

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Speaker 1: No Ordinary Campaign is on Amazon Prime People, and I'm

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Speaker 1: one of the executive producers. How cool is that? Now?

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Speaker 1: I'm not being hyperbolic when I tell you that Brian

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Speaker 1: and Sondra are two of the most remarkable people I've

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Speaker 1: ever met, and I've met a lot of people. In fact,

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Speaker 1: we are so in love we often joke that we've

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Speaker 1: become a throuple. Don't worry, Mulner, I'm just kidding. I

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Speaker 1: recently hosted a screening of the film in LA and

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Speaker 1: afterwards moderated a panel that's the conversation we're bringing you today.

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Speaker 1: Joining me were Brian and Sondra, of course, along with

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Speaker 1: other members of the documentary team, including director Chris Burke.

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Speaker 1: He and Brian have been friends since college. This screening

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Speaker 1: must have been the hundredth time I saw the movie,

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Speaker 1: but it still gives me goosebumps every time. What these

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Speaker 1: people have done to galvanize the ALS community and change

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Speaker 1: the face of this disease, whether it's increasing federal funding

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Speaker 1: to a billion dollars or making experimental drugs available to patients,

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Speaker 1: to making sure social security benefits are distributed immediately, not

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Speaker 1: six months after a diagnosis, is nothing short of miraculous.

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Speaker 1: When I think of Brian and Sondra, I always think

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Speaker 1: of this Margaret Mead quote, never doubt that a small

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Speaker 1: group of thoughtful, committed citizens can change the world. Indeed,

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Speaker 1: is the only thing that ever has. By the way,

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Speaker 1: Brian has lost his ability to project when he speaks,

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Speaker 1: but he and Sondra communicate so well she's able to

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Speaker 1: understand what he's saying and translate for him. It's actually

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Speaker 1: a really beautiful thing to witness. Here's my conversation with

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Speaker 1: the team behind for Love and Life no ordinary campaign.

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Speaker 1: Good evening, Hi, thank you all so much for coming tonight.

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Speaker 1: This really means the world to all of us. And

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Speaker 1: thank you to Amazon. It's been remarkable for hosting this screening.

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Speaker 1: You might wonder what the hell is Katie Kuric doing here,

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Speaker 1: And I'll tell you how I got involved in this project.

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Speaker 2: A couple of years ago.

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Speaker 1: I was and remember distinctly, it was a Sunday afternoon.

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Speaker 1: I was scrolling through my iPhone what else is new?

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Speaker 1: And I saw an article on Politico with a photograph

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Speaker 1: of I'm not going to lie this really hot looking guy.

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Speaker 1: So I thought, I'm going to read this piece. This

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Speaker 1: looks really interesting, and I soon got to know Sondra

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Speaker 1: and Brian, who you obviously just watched during this remarkable film.

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Speaker 1: And I noticed it was written by a fellow named

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Speaker 1: Sam Stein, and Sam I had met him when he

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Speaker 1: worked at Huffington Post. I was like, Oh, I know

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Speaker 1: Sam Stein. I'm going to DM him on Twitter and

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Speaker 1: tell him what a great article he had written. And

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Speaker 1: deep in the body of the article it was mentioned

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Speaker 1: that they were developing a documentary working on a documentary,

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Speaker 1: and I said, I really want to be involved and

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Speaker 1: help in any way I could. So that's how I

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Speaker 1: got to know Brian and Sondra and it's been We've

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Speaker 1: been a throuple ever since. Sondra sometimes has a hard

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Speaker 1: time dealing with it, but other than that it's worked

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Speaker 1: out pretty well. But anyway, I have to say, becoming

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Speaker 1: an executive producer of this film has been one of

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Speaker 1: the highlights of my career. I'm so proud and honored

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Speaker 1: to be part of it. And we wanted to introduce

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Speaker 1: you and have a conversation with the other people who

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Speaker 1: were involved. As you know, it takes a village so

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Speaker 1: I'm excited to introduce the following people. Phil Rosenthal and

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Speaker 1: Jeff McGregor are also executive producers on this film. Producer

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Speaker 1: Tim Rummel, director and producer Chris Burke, and of course

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Speaker 1: Sondra Opraaviyah and Brian Wallack.

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Speaker 2: Gosh, I get chills.

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Speaker 3: You know.

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Speaker 1: We were in the back listening to the final moments

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Speaker 1: of the film, which we've all seen countless times, as

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Speaker 1: you can imagine, and I still got so moved. I

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Speaker 1: got goosebumps just listening to the final part. And Chris,

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Speaker 1: as the director, let's start with you. I'd love you

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Speaker 1: to tell everyone how you got to know Brian and

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Speaker 1: how this film the genesis of this film.

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Speaker 4: Yeah, Brian and I were friends in college. We just

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Speaker 4: had our twentieth reunion and we showed the film and

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Speaker 4: it was definitely not what I think either one of

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Speaker 4: us would have expected twenty years ago that we'd be

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Speaker 4: doing this together. Back then, I thought I was going

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Speaker 4: to be voting for this guy for president someday. He's amazing,

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Speaker 4: and he's always been this guy just like super likable,

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Speaker 4: at engaging and hardworking and all of these things bringing

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Speaker 4: people together.

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Speaker 3: That was the joke.

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Speaker 4: At school like, oh yeah, wal it's going to be

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Speaker 4: president someday. So it turned out a little differently. But

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Speaker 4: this has been just the absolute honor of a lifetime

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Speaker 4: to work on this project with all these people and

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Speaker 4: to get to put my skills to use to tell

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Speaker 4: this story.

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Speaker 3: And it started with.

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Speaker 4: Just a simple ask from Brian when he was letting

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Speaker 4: people know about his diagnosis, that I had raised my

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Speaker 4: hand and said, hey, I you know, I'm not a neurologist,

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Speaker 4: but I can make films, so let me know. And

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Speaker 4: it started as a short launch spot for IMLS that

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Speaker 4: came out on the website when they launched in early

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Speaker 4: twenty nineteen. But when I went to Chicago to film

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Speaker 4: with him and met Sonder for the first time, I

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Speaker 4: was like, there's more here than a sixty second launch spot.

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Speaker 3: So we filmed for a.

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Speaker 4: Long time with the interviews, and then when I tagged

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Speaker 4: along with him to DC and the first testimony that

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Speaker 4: you saw where he ultimately breaks down in the hallway

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Speaker 4: after Rosa Deloro's beautiful words, that was when I knew

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Speaker 4: I was in it for much longer haul.

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Speaker 1: And you suggested to Brian and Sondra, hey, what about

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Speaker 1: doing a documentary on your story.

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Speaker 4: Yeah, I mean that was that was the plan, and

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Speaker 4: I think it took Brian was, if I recall, was

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Speaker 4: pretty into it right away.

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Speaker 3: Sondra took a little bit more convincing.

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Speaker 4: Not well, there weren't obscenities involved like with starting the

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Speaker 4: ALS nonprofit.

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Speaker 3: But you know it, it took a little bit.

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Speaker 4: But honestly, I mean kudos to them for having the

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Speaker 4: willingness not only does spend the time and effort with

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Speaker 4: me doing this, but the vulnerability, right, I mean, what

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Speaker 4: you see them going through, this is not fake.

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Speaker 3: This is not a movie. This is their lives.

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Speaker 4: And these are the lives of all the other families

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Speaker 4: that you saw in there too. Everybody is fighting so

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Speaker 4: hard for you know, to reference the title, for the

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Speaker 4: people that they love and to have more life with them, right.

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Speaker 1: Sondra and Brian, when Chris suggested this initially, I guess

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Speaker 1: what three years ago or so, what was your initial reaction?

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Speaker 1: Of course, Brian you were like, yeeha, let's go, but

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Speaker 1: talk about kind of what you really did have to

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Speaker 1: discuss before you gave this the green light.

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Speaker 5: We had a long conversation, what's that about?

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Speaker 6: How open we would have to be with the film, and.

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Speaker 5: We decided if that, if we were going to do a.

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Speaker 6: Film mm hmmmm, we would open up all of our lives.

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Speaker 6: And Sondra, what about you?

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Speaker 1: I mean, as as Chris said, you were a little

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Speaker 1: less excited about the prospect. Well, remember what were you

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Speaker 1: worried about them in front of me at the time

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Speaker 1: you worried about Sondra.

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Speaker 7: I think it's just very hard to show people how

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Speaker 7: painfulness is. But I knew how important ultimately it would

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Speaker 7: be for everyone to see both the joy and the

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Speaker 7: laughter that you can find in the darkest times, and

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Speaker 7: also what it feels like to cry on the kitchen

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Speaker 7: floor in total agony, because it is so hard to

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Speaker 7: be a caregiver, and I think there's so many caregivers

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Speaker 7: that need to see someone else living truthfully with that

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Speaker 7: pain and feel seen.

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Speaker 1: Well, it did that, you know beautifully obviously. And Phil,

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Speaker 1: you like me, are an executive producer, And I'm curious

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Speaker 1: how what drew you to the story. I know you

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Speaker 1: had a personal experience that made you that really made

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Speaker 1: you gravitate to the subject matter.

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Speaker 8: My mom passed from als and it was horrible, and

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Speaker 8: right around that same time, I think did you reach

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Speaker 8: out to me, Sondra, Yeah, I stalk to you. I think, yes,

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Speaker 8: I instantly fell in love with both of you and

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Speaker 8: your story. And I saw a rough cut and I

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Speaker 8: was in And I'm just so proud to be associated

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Speaker 8: with you guys in any way. I'm just proud to

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Speaker 8: be friends, let alone this wonderful piece of work that

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Speaker 8: you all did. Yeah, I just think it's a beautiful story.

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Speaker 8: It's an uplifting story. It's not a downer you know,

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Speaker 8: you might think it would be, but this is a

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Speaker 8: love story. It's a very human story. It's a somewhat

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Speaker 8: of a political story, but it's a David and Goliath

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Speaker 8: story ultimately, with Goliath being the United States government.

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Speaker 3: But it's so uplifting, don't you think.

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Speaker 2: It's It's got such a hopeful, happy ending.

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Speaker 8: And in today's world, that's don't you need We need this.

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Speaker 8: We need to see that the government can actually work

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Speaker 8: and do something good.

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Speaker 1: I think we need to see heroes. Honest, Sesson, they

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Speaker 1: are here, I think. I think, yeah, you are heroes

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Speaker 1: to so many people. When we come back, we hear

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Speaker 1: about the first time Brian spoke to a group of

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Speaker 1: als scientists who had never met a patient with the disease.

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Speaker 1: What if there were a way to reduce cancer deaths

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Speaker 1: by half in the next twenty five years. What if

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Speaker 1: it were the future our children, our loved ones, our world.

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Speaker 2: Could actually wake up to.

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Speaker 1: This is the future Exact Sciences works toward every day

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Speaker 1: because they believe it's possible. Exact Sciences is a dedicated

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Speaker 1: team of cancer fighters united by a purpose to help

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Speaker 1: eradicate cancer by preventing it, detecting it earlier, and guiding

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Speaker 1: personalized treatment. They bring together the best in visionary thinking

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Speaker 1: and scientific rigor to create tests including COLI guard and

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Speaker 1: Onchotype DX that inspired life changing action. Visit exact sciences

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Speaker 1: dot com to learn more. We're back with the team

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Speaker 1: behind for Love and Life no Ordinary campaign. Jeff, I

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Speaker 1: know at the time you were working at the Chansuckerberg Initiative.

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Speaker 1: You came on as executive producer. By the way, CZI

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Speaker 1: was so important to this film. It would not have

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Speaker 1: been made without czi's support. So tell me about the

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Speaker 1: partnership between this film and the Chansuckerberg Initiative.

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Speaker 9: First time I met Brian was at a meeting that

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Speaker 9: the Chanzuckerberg Initiative was putting on where we were bringing

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Speaker 9: together a whole bunch of grantees in the field of

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Speaker 9: nerd degeneration. And so these are researchers who are studying

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Speaker 9: a whole bunch of different disease across nerded generation and

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Speaker 9: believe it or not, when Brian spoke to them, it

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Speaker 9: was the first time many of these people had spent

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Speaker 9: years studying their disease areas had ever actually seen or

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Speaker 9: heard from somebody with the disease of which they were studying,

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Speaker 9: somebody with the lived experience. And I, you know, I

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Speaker 9: wish that I can say that that was an isolated incident,

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Speaker 9: but it's not. It happens again and again and again.

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Speaker 9: And the insights that patients bring into their disease area,

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Speaker 9: as we saw in this film, is absolutely critical to

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Speaker 9: accelerate progress across diseases. Whether that disease is als, you know,

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Speaker 9: the progress that you can make in understanding the underlying

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Speaker 9: mechanisms of that disease is going to reverberate across a

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Speaker 9: whole bunch of different degenerative diseases.

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Speaker 3: And so I met.

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Speaker 9: Brian and Sondra early on I think it was twenty eighteen,

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Speaker 9: shortly after that meeting, and I saw what they were doing.

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Speaker 9: I saw what Chris was doing, and I said, you know,

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Speaker 9: if we can capture this story, if we can, if

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Speaker 9: anybody is going to do it, if anybody is going

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Speaker 9: to change the broken systems that underlie our healthcare system,

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Speaker 9: it's these two and we need to capture it because

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Speaker 9: not only are we following a beautiful love story, but

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Speaker 9: we're also archiving history and we're showing everybody else moving forward.

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Speaker 9: We're giving them the playbook to be able to do

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Speaker 9: this again, to be able to mobilize communities and build

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Speaker 9: movements and put pressure in the right way on our

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Speaker 9: government and on our legislators to accelerate progress against rare

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Speaker 9: and neurodegenerative diseases.

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Speaker 3: Yeah.

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Speaker 1: Can you just talk briefly of Jeff about rare as one,

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Speaker 1: because you had an interest both in neurode degenerative diseases

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Speaker 1: but also in rare diseases, which CCI was really focused on.

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Speaker 3: That's right.

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Speaker 9: Chanzuckerberg Initiative has a program called rare as one, and

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Speaker 9: it's built on the premise that rare diseases in aggregate

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Speaker 9: are not rare at all. No, collectively, I've heard some

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Speaker 9: numbers that now were up to almost ten thousand rare diseases,

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Speaker 9: different diseases they affect in aggregate, I think over three

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Speaker 9: hundred million people. That's almost the entire population of the

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Speaker 9: United States. Yet for many of these patients, when you

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Speaker 9: are diagnosed with your disease and you expect to find

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Speaker 9: a system in place that's not there, and so often

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Speaker 9: the burden is put on the patients, their families, their caregivers,

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Speaker 9: and so rare as one was designed to make sure

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Speaker 9: that patients have an equal part at the table in

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Speaker 9: the research community, with the funds, with the government, with

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Speaker 9: the researchers, with academia, so that we can move forward progress.

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Speaker 9: And Brian and Sondra were one of the earliest architects,

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Speaker 9: working with leadership across the chance like a Berg initiative

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Speaker 9: to make sure that we were building this program in

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Speaker 9: a way that would serve the communities.

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Speaker 2: And their advocacy.

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Speaker 1: Has really become a blueprint for so many rare diseases

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Speaker 1: and different organizations that are trying to you know, get

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Speaker 1: these diseases off the back burner, get awareness, funding and attention.

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Speaker 2: Right.

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Speaker 9: That's that's absolutely right, and I think you know you'll

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Speaker 9: see them you'll see that throughout the movie. These the

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Speaker 9: visualization of the playbook. Brian and Sondra wrote and open

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Speaker 9: source the playbook so that others, if they have the

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Speaker 9: unfortunate situation of being in a situation like this, there's

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Speaker 9: a there's a roadmap, there's a path, and that wasn't

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Speaker 9: there before. And Brian and Sondra were so so integral

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Speaker 9: in in forging that origine one and and the cz

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Speaker 9: I wanted to make sure that we could scale that

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Speaker 9: for others.

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Speaker 1: Jim, why don't you talk about your involvement in the

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Speaker 1: in this project, why you believed in it so much,

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Speaker 1: and some of the challenges every step of the way

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Speaker 1: in terms of getting it done.

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Speaker 10: I think, you know, on a night like tonight, we're

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Speaker 10: sitting up here on the stage with you know, really

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Speaker 10: esteemed supporters and producers, and it's it's it feels like,

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Speaker 10: oh wow, this was a really like this movie was

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Speaker 10: a big deal, but it was really Uh, it was

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Speaker 10: really Chris shooting, you know, shooting his friend and and

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Speaker 10: Chris and I had worked together for a long time,

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Speaker 10: and he started to show me some of the footage

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Speaker 10: that he'd shot and talked to me about what he

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Speaker 10: was capturing, and so I was the second person on

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Speaker 10: board and and very much in the spirit of Brian.

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Speaker 3: And Sandra, like this was the little film that could.

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Speaker 10: And we met Jeff and Chan Zuckerberg came on board

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Speaker 10: to support us so we could keep shooting and keep going,

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Speaker 10: and then we met Katie and Phil they came on board.

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Speaker 10: It's really been this incredible like movement of its own.

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Speaker 10: And then Amazon came on board to bring the film

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Speaker 10: to millions of people.

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Speaker 3: So it's amazing.

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Speaker 2: Chris.

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Speaker 1: You know, obviously this is such an intimate film, and

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Speaker 1: someone mentioned that earlier to us today and I forgot.

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Speaker 1: You know, Brian is in the shower, as Sondra mentioned

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Speaker 1: that really heartbreaking scene where she's on the floor, kitchen floor.

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Speaker 1: I think every person could relate to what Sondra was

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Speaker 1: feeling seeing someone she's loved so much going through this,

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Speaker 1: and diseases so often affect the entire family. But during

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Speaker 1: the course of the filming, were you worried at any

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Speaker 1: point that, oh, oh, nobody's going to want to watch this,

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Speaker 1: it's just too depressing. I mean, I never felt that way,

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Speaker 1: But were you worried about that?

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Speaker 3: I never felt that way either.

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Speaker 4: Because I had come into this by way of Brian Wallack,

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Speaker 4: who I knew from twenty years ago as this like

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Speaker 4: almost mind bogglingly optimistic person just with a you know,

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Speaker 4: just this was the guy.

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Speaker 2: You know, I said, he looks really good in the shower.

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Speaker 4: Yeah, And by the way, Sundra filmed that, I didn't, although,

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Speaker 4: you know, in a pinch, I'm sure it would have been.

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Speaker 1: Fine glad to hear that, because I was thinking it

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Speaker 1: was sort of creepy, Chris, if you were in.

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Speaker 4: There with they, you know, anything for the art and

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Speaker 4: the storytelling, you've got to do what we got to do.

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Speaker 4: But I wasn't worried because I knew that we were

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Speaker 4: going to find this thread of universal humanity here, starting

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Speaker 4: with them and then with all the other families. And

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Speaker 4: I feel like, you know, so many of the people

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Speaker 4: that I got to know through the making of this

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Speaker 4: are now friends, like Dan Tate, you know, I text

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Speaker 4: with that guy. He's great, you know, like, and all

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Speaker 4: all of these people that I've gotten to know, and

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Speaker 4: I see so much of that love and so much humor.

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Speaker 4: I mean, the part where Dan is busting Brian's balls

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Speaker 4: because Brian promised.

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Speaker 3: Steve they'd get the bill passed by the end of

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Speaker 3: the year.

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Speaker 4: I mean, there's so many moments of humor and levity

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Speaker 4: in the face of these insane odds, and you know,

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Speaker 4: we all worked really hard to focus on those aspects

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Speaker 4: because we all know the statistics, We all know lu

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Speaker 4: gerrig and what happened. That's not what we're talking about here.

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Speaker 4: We're talking about flipping the narrative. We're talking about making

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Speaker 4: it something that goes from impossible to possible. As Brian

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Speaker 4: has said to me many times through this process, everything's

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Speaker 4: impossible until it's not. And it takes all of us

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Speaker 4: in our way, you know, the team up here and beyond.

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Speaker 4: What it took to get this film out is a

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Speaker 4: microcosm of what Brian talks about in the film, where

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Speaker 4: if we're going to defeat Als, it's going to take everyone.

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Speaker 4: Everyone's got to do their part. You got to look

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Speaker 4: in the mirror and see, hey, what can I do.

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Speaker 4: You know, I couldn't have done this alone, but with

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Speaker 4: Tim and you and Phil and Jeff and everyone, we

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Speaker 4: made it happen because it was important and we knew

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Speaker 4: that we could change lives with this thing.

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Speaker 1: After this quick break, how Brian and Sondra's careers in

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Speaker 1: politics helped them navigate Congress and usher in true change.

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Speaker 1: If you want to get smarter every morning with a

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Speaker 1: breakdown of the news and fascinating takes on health and

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Speaker 1: wellness and pop culture, sign up for our daily newsletter,

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Speaker 1: Wake Up Call by going to Katiecuric dot com. We're

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Speaker 1: back with the team behind for Love and Life No

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Speaker 1: Ordinary campaign.

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Speaker 10: I'd just say that, you know, Brian's spirit, his positivity,

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Speaker 10: his optimism was a touchstone for us in the editing

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Speaker 10: of the movie, and so it was something that we

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Speaker 10: kept coming back to and saying, Okay, it needs to

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Speaker 10: be funny.

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Speaker 3: Brian's really funny.

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Speaker 7: Like, wait a second, do you like bad dad jokes?

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Speaker 5: Now?

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Speaker 2: Phil is really well.

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Speaker 3: The dynamic between you two is funny. You know.

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Speaker 1: Well, you know, I think one thing that's that's so

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Speaker 1: clear among many things, I mean obviously your sense of

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Speaker 1: humor Brian Andensandra and and the love story, but also

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Speaker 1: your political acumen, because I think not everyone would have

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Speaker 1: been able to understand Capitol Hill, how to navigate it, where,

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Speaker 1: how to even appear and testify before Congress. And I'm curious, Brian,

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Speaker 1: how your work within politics and specifically or not not specifically,

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Speaker 1: but your work with the Obama campaign, how that informed

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Speaker 1: your approach to tackling this problem and to get real,

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Speaker 1: real results.

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Speaker 7: The campaign made me aware of my power, and it

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Speaker 7: also made me never take no for an answer. And

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Speaker 7: so I was lucky enough to be married to Sandra,

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Speaker 7: who had worked on Capital Hill.

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Speaker 5: And who helped me.

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Speaker 7: Open those first doors, which is so important because because

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Speaker 7: once people see you do.

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Speaker 5: It, they believe that they can do it as well.

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Speaker 1: And Sondra, I just would love to pick up what

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Speaker 1: from what Brian said about your understanding of Capitol Hill,

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Speaker 1: because honestly, I think the average person would just throw

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Speaker 1: up their hands and say, I have no idea how

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Speaker 1: to even approach this problem. Talk about how you were

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Speaker 1: able to translate your skills and knowledge from working on

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Speaker 1: the Hill to actually figuring out how to how to

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Speaker 1: do this.

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Speaker 3: Yeah.

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Speaker 7: Well, it's a dirty secret that when I worked in politics,

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Speaker 7: we called people like Brian and I RPS, which stands

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Speaker 7: for real people, and then Brian and I became the RPS.

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Speaker 7: So my whole job, my whole career, had been to

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Speaker 7: find people who were going through hard things, where policies

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Speaker 7: made their lives better, and I would write speeches for them,

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Speaker 7: I would help put podiums in front of them, I

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Speaker 7: would put them in the newspaper. And then one day

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Speaker 7: it happened to Brian and I and I knew exactly

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Speaker 7: what to do.

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Speaker 2: Wow, I mean, that's amazing.

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Speaker 1: But at the same time, Sondra, you must have been

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Speaker 1: you know, the fact that you became RPS. It must

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Speaker 1: have been such a challenge to wrap your head around that.

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Speaker 1: And I'm curious what it's like for you now that

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Speaker 1: the film is complete and hopefully millions of people will

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Speaker 1: be watching it and learning from it. What is this

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Speaker 1: experience like for you now?

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Speaker 7: I think one of the things we wanted to do

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Speaker 7: from the outset was to tell a story of hope

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Speaker 7: and of action and of agency. And I'm so proud

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Speaker 7: that we made that movie. I'm so proud because I

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Speaker 7: think everybody needs that. Everybody needs to see what is

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Speaker 7: it like to be in the absolute worse circumstance. What

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Speaker 7: could be worse than someone telling you in your thirties,

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Speaker 7: out of the blue that you have six months to live?

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Speaker 7: And what does it look like to stand up and

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Speaker 7: to fight not just for yourself but for all of

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Speaker 7: the generations to come. And I just I'm so proud

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Speaker 7: that this team and that Amazon has uplifted this story

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00:28:04,840 --> 00:28:07,359
Speaker 7: of hope and agency and action, because man, do we

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00:28:07,400 --> 00:28:09,800
Speaker 7: all need it.

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00:28:09,960 --> 00:28:12,720
Speaker 3: So you're so great, that you're super piece.

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00:28:15,240 --> 00:28:18,600
Speaker 8: And I was hoping if you weren't too busy and

443
00:28:18,720 --> 00:28:22,080
Speaker 8: you would apply everything you know to save the country.

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00:28:22,119 --> 00:28:26,920
Speaker 7: Next well, i'd like to say that Brian could still

445
00:28:27,040 --> 00:28:30,000
Speaker 7: run for president because we're gonna cure ALUs good.

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00:28:35,119 --> 00:28:37,359
Speaker 2: He's got my vote, Chris.

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00:28:37,440 --> 00:28:39,880
Speaker 1: I know that the film has been shown at a

448
00:28:39,920 --> 00:28:43,600
Speaker 1: lot of festivals and has won a ton of awards

449
00:28:43,920 --> 00:28:48,400
Speaker 1: and gotten great audience reaction, and Sondra in a minute,

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00:28:48,400 --> 00:28:50,840
Speaker 1: I want to ask the reaction you've been getting and

451
00:28:51,200 --> 00:28:54,640
Speaker 1: ran as well, but what do you What are people

452
00:28:54,680 --> 00:28:57,000
Speaker 1: taking away from this film after they see it?

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00:28:57,040 --> 00:28:59,920
Speaker 2: And what do you hope they'll take away?

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00:29:00,680 --> 00:29:03,280
Speaker 4: Well, the great thing is people seem to be taking

455
00:29:03,280 --> 00:29:05,640
Speaker 4: away exactly what we all hoped, which is they want

456
00:29:05,680 --> 00:29:07,120
Speaker 4: to get up out of their seat and say, I

457
00:29:07,120 --> 00:29:08,720
Speaker 4: want to go do something. I want to go do

458
00:29:08,800 --> 00:29:10,880
Speaker 4: something to help I want to use You know, I

459
00:29:10,960 --> 00:29:12,640
Speaker 4: knew how to make films, so I did this.

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00:29:12,800 --> 00:29:14,120
Speaker 3: But what can you do? You know what.

461
00:29:14,360 --> 00:29:16,720
Speaker 4: We all have something we can contribute, whether it's to

462
00:29:16,760 --> 00:29:20,240
Speaker 4: ALS and neurodegenerative diseases or to any of the other

463
00:29:20,360 --> 00:29:23,600
Speaker 4: causes that could be furthered by downloading that open source

464
00:29:23,600 --> 00:29:26,360
Speaker 4: playbook that they made. There's so many problems out there

465
00:29:26,400 --> 00:29:29,240
Speaker 4: and it does take everyone to fix it, and so

466
00:29:29,360 --> 00:29:31,280
Speaker 4: that is really what I hope people take away and

467
00:29:31,320 --> 00:29:33,400
Speaker 4: what has been the reaction. And I've heard from not

468
00:29:33,480 --> 00:29:37,479
Speaker 4: just ALS patients, but Parkinson's and other neurodegenerative patients who

469
00:29:37,520 --> 00:29:39,960
Speaker 4: have come up to me after seeing this and said

470
00:29:40,160 --> 00:29:43,040
Speaker 4: that they feel like we really captured the experience. Even

471
00:29:43,080 --> 00:29:47,160
Speaker 4: though it's a different disease, the idea of losing everything

472
00:29:47,280 --> 00:29:49,040
Speaker 4: that you thought was in front of you and having

473
00:29:49,080 --> 00:29:51,800
Speaker 4: to forge your own path is pretty universal, even if

474
00:29:51,840 --> 00:29:54,840
Speaker 4: it's different symptoms. And so that's been really beautiful and

475
00:29:54,880 --> 00:29:56,840
Speaker 4: I hope that we can make people feel that, yeah,

476
00:29:56,880 --> 00:29:57,960
Speaker 4: you can make a difference.

477
00:29:58,000 --> 00:30:02,080
Speaker 1: Like Brian has said, or what have people said to you?

478
00:30:02,800 --> 00:30:05,520
Speaker 1: A lot of people by now, at least in these

479
00:30:05,680 --> 00:30:09,800
Speaker 1: screenings and at festivals, have seen the film. I'm curious

480
00:30:09,800 --> 00:30:13,600
Speaker 1: what people have been saying to you. Well, I want

481
00:30:13,640 --> 00:30:15,680
Speaker 1: to hear what you think on this one too.

482
00:30:15,720 --> 00:30:19,920
Speaker 7: Brian. But I I mean, I think that that's the

483
00:30:20,000 --> 00:30:23,920
Speaker 7: most inspiring thing is that people see the film and

484
00:30:24,240 --> 00:30:30,240
Speaker 7: they understand what one person can do, the power each

485
00:30:30,280 --> 00:30:32,440
Speaker 7: of us has. I think that's one of the most

486
00:30:32,480 --> 00:30:37,800
Speaker 7: amazing things that Brian is capable of, is convincing people

487
00:30:37,960 --> 00:30:41,600
Speaker 7: of their own power. And so when people see the film,

488
00:30:41,760 --> 00:30:45,400
Speaker 7: I think they are just they are there's washed over

489
00:30:45,800 --> 00:30:48,240
Speaker 7: with this understanding of their own power.

490
00:30:49,480 --> 00:30:52,960
Speaker 1: And Brian, to follow up what from what Sandra said,

491
00:30:54,200 --> 00:30:58,400
Speaker 1: you know clearly I think the ALS community has embraced

492
00:30:58,440 --> 00:31:03,160
Speaker 1: this this film because they feel seen and heard and

493
00:31:03,320 --> 00:31:07,520
Speaker 1: recognized and I would say understood and empowered all of

494
00:31:07,560 --> 00:31:11,960
Speaker 1: those things. But for people who don't have a neuro

495
00:31:12,080 --> 00:31:17,600
Speaker 1: degenerative disease, who may not know anyone with ALS, Brian,

496
00:31:18,160 --> 00:31:22,080
Speaker 1: why do you think this movie will speak to all

497
00:31:22,120 --> 00:31:30,320
Speaker 1: of us? So two things, Katie, thank you Brian Attorney Brian.

498
00:31:33,520 --> 00:31:51,120
Speaker 1: Number one, the love story between me and Sandra is

499
00:31:51,160 --> 00:32:00,400
Speaker 1: something everyone can relate to. And number two, I have

500
00:32:00,440 --> 00:32:01,680
Speaker 1: been amazed.

501
00:32:04,840 --> 00:32:12,600
Speaker 5: At how many people who do not have a connection.

502
00:32:14,320 --> 00:32:15,400
Speaker 7: To a LS.

503
00:32:20,240 --> 00:32:25,200
Speaker 5: Who have come up to me after the movie and said.

504
00:32:30,480 --> 00:32:39,160
Speaker 7: Thank you for inspiring me, and I am ready to

505
00:32:39,280 --> 00:32:40,200
Speaker 7: make good trouble.

506
00:32:46,520 --> 00:32:51,800
Speaker 1: Well, it's an amazing it's been an amazing experience for

507
00:32:51,880 --> 00:32:54,920
Speaker 1: me to get to know everyone on the stage. But

508
00:32:55,920 --> 00:33:01,000
Speaker 1: no offense you guys, but especially Sondra and of course Brian,

509
00:33:01,480 --> 00:33:04,840
Speaker 1: and thank you for everything you've done. Thank you for

510
00:33:05,360 --> 00:33:07,520
Speaker 1: being a part of this film. Thank you for your

511
00:33:07,560 --> 00:33:10,840
Speaker 1: willingness to be so open and vulnerable.

512
00:33:11,600 --> 00:33:12,760
Speaker 2: I think it has just.

513
00:33:12,760 --> 00:33:16,400
Speaker 1: Been It strikes such a chord for so many people.

514
00:33:16,720 --> 00:33:19,640
Speaker 1: And I'm grateful to not only be a part of

515
00:33:19,640 --> 00:33:23,160
Speaker 1: this movie, but I'm grateful to know you both. And

516
00:33:23,840 --> 00:33:28,600
Speaker 1: thank you so much for being here tonight. And Chris, Tim, Jeff, Phil,

517
00:33:29,080 --> 00:33:31,400
Speaker 1: thanks to you as well, and thank you all so

518
00:33:31,480 --> 00:33:48,120
Speaker 1: much for coming. Thank you, thanks for listening. Everyone. If

519
00:33:48,120 --> 00:33:50,760
Speaker 1: you have a question for me, a subject you want

520
00:33:50,800 --> 00:33:53,200
Speaker 1: us to cover, or you want to share your thoughts

521
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Speaker 1: about how you navigate this crazy world, reach out. You

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Speaker 1: can leave a short message at six oh nine five

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Speaker 1: one two five to five five, or you can send

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Speaker 1: me a DM on Instagram. I would love to hear

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00:34:05,880 --> 00:34:09,719
Speaker 1: from you. Next Question is a production of iHeartMedia and

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00:34:09,800 --> 00:34:13,920
Speaker 1: Katie Kuric Media. The executive producers are Me, Katie Kuric,

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00:34:14,040 --> 00:34:18,640
Speaker 1: and Courtney ltz Our supervising producer is Ryan Martz, and

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Speaker 1: our producers are Adriana Fazzio and Meredith Barnes. Julian Weller

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Speaker 1: composed our theme music. For more information about today's episode,

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