WEBVTT - Case #04: Shelby

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<v Speaker 1>He described it as I looked like I looked like

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<v Speaker 1>cookies and cream pudding, Like I was that shade of gray,

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<v Speaker 1>and he's like, I'm taking her straight to the emergency room.

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<v Speaker 1>A lot of doctors either they've never heard of it

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<v Speaker 1>or they don't believe it exists. These patients are just

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<v Speaker 1>ignored because it's very difficult to recognize that there's something

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<v Speaker 1>going on. I just remember praying in the room to

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<v Speaker 1>let me meet my daughter, my God's grace, to let

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<v Speaker 1>me get through this with my wife. I didn't want

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<v Speaker 1>it to all in before it even it all started.

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<v Speaker 1>How terrifying would it be to fight an unknown enemy,

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<v Speaker 1>one you didn't recognize and didn't see coming. What if

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<v Speaker 1>that enemy was coming from within a disease but even

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<v Speaker 1>doctor couldn't identify. Nearly half of all Americans suffer from

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<v Speaker 1>some chronic illness, and many struggle for an accurate diagnosis.

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<v Speaker 1>These are their stories. I'm Lauren Bright, the CHECKO, and

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<v Speaker 1>this is symptomatic. You're immediately hit with a feeling like

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<v Speaker 1>you're talking to a close friend when you meet Shelby Morrison.

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<v Speaker 1>She is very open and genuine, easily getting excited when

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<v Speaker 1>you start talking about cigars, stealer football or her dogs.

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<v Speaker 1>I'd like to tell my friends I have two cats,

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<v Speaker 1>two dogs, two kids in the t J that's my husband.

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<v Speaker 1>I have two little chewin eas. One is huge and

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<v Speaker 1>the other one is tiny, teeny tiny. Wait, you have

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<v Speaker 1>to tell me what is a chewini CHEWENI is a

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<v Speaker 1>Chihuahua and weener dog together. So it's safe to say

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<v Speaker 1>you're an animal lover. I will die petting something that

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<v Speaker 1>I shouldn't. I love all animals. If a brown bear

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<v Speaker 1>was in front of me and it looked like it

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<v Speaker 1>would let me pet it, I'd try. You might lose

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<v Speaker 1>a hand, might lose a hand, might lose an arm.

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<v Speaker 1>But you know what, I have made my peace with God.

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<v Speaker 1>If I am taken out by a giant ball of fluf,

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<v Speaker 1>that's how I go. There is an undeniable strength to

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<v Speaker 1>her positivity. You can sense her perseverance through a long

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<v Speaker 1>struggle just below the surface. I'm proud the most of

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<v Speaker 1>her heart. I think she gives more than anybody that

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<v Speaker 1>I know. She cares about people even when a lot

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<v Speaker 1>of people don't deserve it, and she's always willing to help.

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<v Speaker 1>That was Shelby's husband, T j who has been with

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<v Speaker 1>her for over a decade. Little did he know when

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<v Speaker 1>they first met that they would quickly be thrown into

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<v Speaker 1>a whirlwind journey, pushing Shelby to the brink of a

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<v Speaker 1>life or death situation. The symptoms that would start off

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<v Speaker 1>this roller coaster first started showing up in Shelby during puberty.

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<v Speaker 1>I got through high school pretty normal. I remember my

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<v Speaker 1>high school career just always being really tired all the time.

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<v Speaker 1>But I mean I was doing all the things, and

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<v Speaker 1>you know, I was seventeen years old. I mean I

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<v Speaker 1>never really had an inkling that I was sick. I

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<v Speaker 1>always kind of fell off. Go back, just for a second,

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<v Speaker 1>because you said you're tired, Explain that to me. It's

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<v Speaker 1>really hard to get up out of bed in the morning.

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<v Speaker 1>Like it's not I didn't sleep well kind of feeling.

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<v Speaker 1>It's that I can't move my body, kind of feeling

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<v Speaker 1>like it's almost a complete heaviness of your limbs. The

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<v Speaker 1>word fatigue, I feel like is not an accurate descriptor

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<v Speaker 1>of the tired. So I really didn't think anything about it, because,

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<v Speaker 1>like I said, I was I was an act teenager.

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<v Speaker 1>I was, you know, hanging out with my friends, you know,

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<v Speaker 1>staying up probably way too late. Um, and I didn't

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<v Speaker 1>think anything of it. Shelby always seemed to be tired

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<v Speaker 1>and lethargic. It was difficult for her to have the

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<v Speaker 1>energy she thought came naturally to most kids her age.

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<v Speaker 1>The doctors chalked it up to anemia, which runs in

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<v Speaker 1>her family. I had been told that I was anemic before,

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<v Speaker 1>but I mean it was just, oh, hey, your iron

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<v Speaker 1>slow like eats and broccoli, and that's that kind of

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<v Speaker 1>explained it away. Her symptoms became something easy for her

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<v Speaker 1>doctors and even her family to dismiss as just shall

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<v Speaker 1>be being dramatic, But there was a lot more going

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<v Speaker 1>on here than they initially assumed. Her mom even brushed

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<v Speaker 1>her complaints aside until one day in high school when

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<v Speaker 1>she got really sick in the car. I hit puberty

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<v Speaker 1>at a very young age, and I had very bad periods.

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<v Speaker 1>I would literally be to the point where I was

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<v Speaker 1>throwing up, couldn't be in class because I was in

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<v Speaker 1>the bathroom because I was like, my entire body would hurt.

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<v Speaker 1>And was there any attempt to figure out if that

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<v Speaker 1>was abnormal? No? Not really, I mean mom was like, yeah,

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<v Speaker 1>we all, we all have really bad periods, like it's

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<v Speaker 1>just it's a family thing. And I was angry at

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<v Speaker 1>the time with her because I felt like she was

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<v Speaker 1>dismissive until one day she picked me up from school

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<v Speaker 1>and she got me in the car and we were

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<v Speaker 1>driving home and I literally rolled down the window and

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<v Speaker 1>I puked all down the side of her car going

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<v Speaker 1>down the interstate. And I don't think she realized how

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<v Speaker 1>sick I was until that moment, and I think she

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<v Speaker 1>started to believe me a little bit. Shelby and her

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<v Speaker 1>mother started to realize that her symptoms couldn't just be

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<v Speaker 1>explained by her being anemic or a typically pubescent teenager.

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<v Speaker 1>But Shelby kept her internal battle quiet, fighting off the

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<v Speaker 1>tiredness by herself for years. That was until she landed

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<v Speaker 1>in the emergency room while she was away at college.

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<v Speaker 1>I feel like I am just death warmed over, like

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<v Speaker 1>I can't function. And so one morning I I called

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<v Speaker 1>my boyfriend, who I was dating at the time, not

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<v Speaker 1>my current husband. I was like, I can't breathe, like

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<v Speaker 1>i feel like I'm suffocating, like i've i feel like

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<v Speaker 1>I'm dying, Like I need can you please drive me home?

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<v Speaker 1>What was it about the way you were presenting physically

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<v Speaker 1>that he was like, we're going straight to the hospital.

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<v Speaker 1>His mom was a nurse um and so he looked

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<v Speaker 1>at me and he's like, you're gray, like he described

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<v Speaker 1>it as, I looked like cookies and cream pudding, like

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<v Speaker 1>I was that shade of gray. And he's like, I'm

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<v Speaker 1>taking her straight to the emergency room. And they're like,

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<v Speaker 1>something's all right. And so they admit me and they're like, hey,

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<v Speaker 1>did you know that you have mono? No, but that

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<v Speaker 1>tracks like I had no idea. I didn't know what

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<v Speaker 1>monto was. And they're like, yeah, you you've had mono.

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<v Speaker 1>And my mom's like, well, that explains why your throat

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<v Speaker 1>was really sore and why you felt like crap. But

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<v Speaker 1>this bout of mono wasn't one that she could easily

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<v Speaker 1>get over with some rest and fluids. Shelby was in

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<v Speaker 1>the hospital for nearly three weeks trying to kick this virus.

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<v Speaker 1>Even with her history of anemia, sickness during her periods,

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<v Speaker 1>and then this severe case of mono, there was no

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<v Speaker 1>digging further to see if they all tied together. Yeah,

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<v Speaker 1>it's so interesting how mono is downplayed as just like

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<v Speaker 1>a rite of passage. Yeah, but it sounds like you

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<v Speaker 1>were experiencing even at the time that you thought it

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<v Speaker 1>was just mono, very severe symptoms. Yeah. I mean that's

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<v Speaker 1>the turning point for me. That's when my life completely changed.

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<v Speaker 1>Other than the breathing issues, are there any other things

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<v Speaker 1>looking back that you were dealing with? Were you getting

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<v Speaker 1>lightheaded if you stood up too quickly? Yeah, so I

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<v Speaker 1>would get bouts of you know, lightheadedness infested up too quickly.

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<v Speaker 1>Nothing to alarming at that point. The fatigue was still there,

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<v Speaker 1>the heaviness and my joints and my limbs, and I

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<v Speaker 1>was always out of breath, but you know that brushed

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<v Speaker 1>it off, as you know, it's just complications of mono.

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<v Speaker 1>I mean, I always knew that something wasn't right because

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<v Speaker 1>I know my body. But you get to a point

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<v Speaker 1>where you have these feelings and then you second guess yourself.

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<v Speaker 1>You're like, am I making it up? Am I crazy?

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<v Speaker 1>And it's insane? So, like I said, life went back

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<v Speaker 1>to normal for a couple of years. Not wanting to complain,

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<v Speaker 1>she internalized her health issues until she finally stumbled upon

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<v Speaker 1>someone who truly did hear her and take her symptoms seriously.

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<v Speaker 1>Her husband t J. They met well. T G was

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<v Speaker 1>speaking out of Future Farmers of America, of and where

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<v Speaker 1>Shelby was competing in the Talent pageant. Other than being

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<v Speaker 1>drop dead gorgeous, she has a voice that sounds a

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<v Speaker 1>lot like Martin McBride. And I thought somebody was playing

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<v Speaker 1>a recording of it, and I looked down and it

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<v Speaker 1>wasn't It was her. And it was kind of hard

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<v Speaker 1>to ignore somebody that pretty and and that talented, and

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<v Speaker 1>I was just kind of attracted to her from day one. So,

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<v Speaker 1>having spoken to your wife, I know that her health

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<v Speaker 1>issue started before you two even crossed paths. When was

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<v Speaker 1>the first time that it became apparent to you that

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<v Speaker 1>there was something ongoing. Well, she's always been somebody that

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<v Speaker 1>was always, for lack of a better term, she was

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<v Speaker 1>just always sick. There was always something, and when she

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<v Speaker 1>would get sick, it would it would take her down

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<v Speaker 1>a lot more than me. My husband A joke with

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<v Speaker 1>him all the time that he got the really short

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<v Speaker 1>end of the stick of that whole through sickness and

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<v Speaker 1>health thing, because I mean the entire time he's known me,

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<v Speaker 1>I mean, on our first date, I was sick, twenty

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<v Speaker 1>year old Shelby was still suffering from chronic fatigue and pain,

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<v Speaker 1>as well as lightheadedness when she would stand. But now

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<v Speaker 1>I had a partner by her side and so much

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<v Speaker 1>needed uplifting news a daughter on the way. At the

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<v Speaker 1>time when life should have been about celebration, Shelby and

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<v Speaker 1>t J were struggling to make ends meet, not knowing

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<v Speaker 1>the looming fight with this mysterious illness was about to

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<v Speaker 1>take a turn for the worse. It was terrifying because

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<v Speaker 1>we were so young and we were so poor, and

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<v Speaker 1>we were stretching ourselves then with her working and me

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<v Speaker 1>working and trying to finish my bachelor's degree. She was

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<v Speaker 1>here in Ashland and I was spending most of my

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<v Speaker 1>time in Lexington. It was really really tough. And then

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<v Speaker 1>when we got halfway through the pregnancy, things obviously started

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<v Speaker 1>to going wrong, very wrong. So I'm navigating my first

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<v Speaker 1>pregnancy and I feel like this was completely unrelated to

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<v Speaker 1>the condition that I had at the time. As she

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<v Speaker 1>was growing, she ended up actually pushing my appendix up

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<v Speaker 1>underneath my rib cage in my back, and so I

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<v Speaker 1>went to the hospital for two weeks. That pain must

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<v Speaker 1>have been excruciating, and the thing that came with it

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<v Speaker 1>was the nausea, the throwing up, like and I'm twenty

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<v Speaker 1>years old, I've never had a baby before. I don't

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<v Speaker 1>know what I'm doing. I thought I was dying. I

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<v Speaker 1>thought my baby was in trouble. We'll be right back

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<v Speaker 1>with Symptomatic A Medical Mystery Podcast. Now back to Symptomatic

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<v Speaker 1>A Medical Mystery Podcast. Shelby Morrison was in and out

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<v Speaker 1>of the hospital for two weeks trying to find out

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<v Speaker 1>what was causing her this constant, overwhelming back pain. With

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<v Speaker 1>no headway into finding out the source of the problem,

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<v Speaker 1>it worsened to the point where Shelby started vomiting uncontrollably

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<v Speaker 1>and the pain became unbearable. She rushed to the doctor.

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<v Speaker 1>I screamed, and he was like, I don't know what's

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<v Speaker 1>wrong with you, but we're getting you upstairs right now.

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<v Speaker 1>And by ten o'clock that night, they're like, oh, hey,

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<v Speaker 1>you're having surgery in the morning. I just remember praying

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<v Speaker 1>in the room, you know, to let me meet my daughter,

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<v Speaker 1>to let me get through this with my wife. I

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<v Speaker 1>didn't want it to all in before it even it

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<v Speaker 1>all started. They ended up taking my pandis out and

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<v Speaker 1>apparently if it would have twenty four more hours, it

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<v Speaker 1>would have burst, and it probably would have killed us both.

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<v Speaker 1>I mean, that's how close we were, and it was

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<v Speaker 1>all because of dismissal by medical staff. Then again, I'm

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<v Speaker 1>I don't understand a lot of things in the medical field,

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<v Speaker 1>but to me, it's pretty easy to get an ultrasound ordered,

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<v Speaker 1>the thing that ended up saving her life. We live

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<v Speaker 1>in an area of the country that sees a lot

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<v Speaker 1>of young pregnancies, a lot of unmarried pregnancies. Unfortunately, a

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<v Speaker 1>lot of people who do try to gain the system

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<v Speaker 1>for pain pills, and there's a lot of addiction in

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<v Speaker 1>our area. And I get it. But you know, we

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<v Speaker 1>weren't that, and we tried to convey that, and it

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<v Speaker 1>didn't seem to matter. We were just approached as if

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<v Speaker 1>we were a statistic. A seemingly unconnected emergency appendected me

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<v Speaker 1>that saved Shelby's life and her baby's life with just

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<v Speaker 1>hours to spare. And just as this young couple thought

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<v Speaker 1>things were calming down trying to navigate the usual excited

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<v Speaker 1>nerves of new parents, more complications show up for Shelby

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<v Speaker 1>and their child. I'm only like four weeks post up.

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<v Speaker 1>I started having to go back to the hospital again

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<v Speaker 1>because I just felt I felt like I was having

0:14:05.440 --> 0:14:08.160
<v Speaker 1>a heart attack. Turns out my blood pressure was at

0:14:08.160 --> 0:14:12.000
<v Speaker 1>stroke level and they couldn't figure out why I was

0:14:12.080 --> 0:14:17.880
<v Speaker 1>having preoclampsia, but I didn't look pre acclaimptic. Preclampsia is

0:14:17.920 --> 0:14:22.440
<v Speaker 1>a potentially dangerous complication of pregnancy. With preclampsia, you might

0:14:22.480 --> 0:14:25.800
<v Speaker 1>have high blood pressure, kidney damage, or other signs of

0:14:25.800 --> 0:14:30.600
<v Speaker 1>oregon damage. Left untreated, preclampsia can lead to serious, even

0:14:30.680 --> 0:14:35.880
<v Speaker 1>fatal complications for both mother and baby. I wasn't swollen,

0:14:36.120 --> 0:14:38.680
<v Speaker 1>I wasn't retaining fluid, but you hooked me up to

0:14:38.720 --> 0:14:43.640
<v Speaker 1>a machine and I was one six eight over one. Now,

0:14:44.040 --> 0:14:47.600
<v Speaker 1>explain to me what that feels like. I know what

0:14:47.760 --> 0:14:50.360
<v Speaker 1>that sounds like in terms of the numbers, but what

0:14:50.440 --> 0:14:54.120
<v Speaker 1>does that feel like? It feels like you're running a

0:14:54.160 --> 0:14:58.320
<v Speaker 1>marathon and you're sitting still shelby What is going on

0:14:58.440 --> 0:15:03.400
<v Speaker 1>psychologically at the point than I mean, I'm worried about

0:15:03.440 --> 0:15:08.160
<v Speaker 1>my daughter, Like I'm twenty years old. There's layers of

0:15:08.240 --> 0:15:11.720
<v Speaker 1>things going on right now at this point in my life,

0:15:11.880 --> 0:15:15.560
<v Speaker 1>and I'm just trying to navigate being a new mom

0:15:15.640 --> 0:15:17.320
<v Speaker 1>and trying to do what's best for my baby, and

0:15:17.360 --> 0:15:21.960
<v Speaker 1>trying to trust my doctor. It's rough, man, it may

0:15:22.000 --> 0:15:24.960
<v Speaker 1>have been rough on some levels, but they're beautiful. Baby

0:15:25.000 --> 0:15:28.920
<v Speaker 1>daughter was fully healthy and thriving. That's what mattered most

0:15:29.040 --> 0:15:32.360
<v Speaker 1>to Shelby and t J. She was perfectly healthy. She

0:15:32.440 --> 0:15:39.320
<v Speaker 1>was a great baby. And after I had her, the

0:15:39.400 --> 0:15:44.120
<v Speaker 1>dizziness and the fatigue and everything just kind of skyrocketed.

0:15:44.960 --> 0:15:48.520
<v Speaker 1>My body kind of freaked out after that. But I

0:15:48.600 --> 0:15:50.680
<v Speaker 1>just had a baby. I'm a new mom. I'm not

0:15:50.720 --> 0:15:54.280
<v Speaker 1>sleeping well, you know, I'm I'm trying to breastfeed, and

0:15:54.320 --> 0:15:56.240
<v Speaker 1>I'm trying to do all these things. Of these hormones

0:15:56.240 --> 0:16:00.000
<v Speaker 1>are just rushing through my body. Close to a year later,

0:16:00.200 --> 0:16:04.800
<v Speaker 1>they would welcome another child, a healthy baby boy. And

0:16:04.800 --> 0:16:08.120
<v Speaker 1>then after my son was born, I experienced my first migraine.

0:16:08.800 --> 0:16:11.320
<v Speaker 1>I'm not very sensitive to sound, but I am very,

0:16:11.400 --> 0:16:16.440
<v Speaker 1>very sensitive to light. And my migraines affect my whole body.

0:16:16.960 --> 0:16:21.040
<v Speaker 1>So when I say I have a migraine, my eyes

0:16:21.400 --> 0:16:24.960
<v Speaker 1>they throb and they hurt. It feels like there is

0:16:25.000 --> 0:16:27.440
<v Speaker 1>a headband going from one ear to the other of

0:16:27.480 --> 0:16:31.600
<v Speaker 1>just like ice picks jabbing into my brain. My migraines

0:16:31.960 --> 0:16:35.520
<v Speaker 1>go all the way down through my spine. It literally

0:16:35.600 --> 0:16:37.840
<v Speaker 1>hurts in my entire body to the point where I

0:16:37.840 --> 0:16:42.080
<v Speaker 1>get nauseous, I throw up, like it affects my gas system,

0:16:42.160 --> 0:16:44.200
<v Speaker 1>Like I can't hardly eat, I can't hardly drink, like

0:16:44.280 --> 0:16:46.400
<v Speaker 1>water will make me sick when I have a migraine.

0:16:49.200 --> 0:16:52.800
<v Speaker 1>Add debilitating migraines to the quickly growing list of symptoms,

0:16:53.120 --> 0:16:55.280
<v Speaker 1>all at a time when this young family should have

0:16:55.320 --> 0:17:00.640
<v Speaker 1>been focused on creating foundational memories together. This is that

0:17:00.680 --> 0:17:03.800
<v Speaker 1>should have been the happiest time of your life. In

0:17:03.840 --> 0:17:05.440
<v Speaker 1>some ways it was, but in a lot of ways

0:17:05.480 --> 0:17:09.480
<v Speaker 1>it wasn't. And looking back on it now, I wasn't

0:17:09.480 --> 0:17:11.800
<v Speaker 1>the mom that my kids needed, and I wasn't the

0:17:11.840 --> 0:17:16.119
<v Speaker 1>moment they deserved, and I will, I'll always beat myself

0:17:16.200 --> 0:17:20.680
<v Speaker 1>up for that. But you were sick. You were so sick.

0:17:21.040 --> 0:17:28.440
<v Speaker 1>And now now they're old enough to understand, and in

0:17:28.480 --> 0:17:31.879
<v Speaker 1>some ways, I still feel like I'm robbing them of

0:17:31.960 --> 0:17:36.360
<v Speaker 1>some experiences in their childhood because I physically can't do

0:17:36.440 --> 0:17:40.600
<v Speaker 1>some things that they want to do. But they're old

0:17:40.720 --> 0:17:44.159
<v Speaker 1>enough now to where they're they're able to understand a

0:17:44.200 --> 0:17:48.639
<v Speaker 1>little bit better. And the way that my kids show

0:17:49.000 --> 0:17:56.439
<v Speaker 1>me grace now it's just it's heartbreaking and it's so

0:17:56.560 --> 0:17:58.160
<v Speaker 1>moving all at the same time. Like I don't even

0:17:58.200 --> 0:18:00.080
<v Speaker 1>know how to explain it. Gosh, I'm sit over and

0:18:00.160 --> 0:18:05.400
<v Speaker 1>blubbert sorry. The psychological stress of her body breaking down

0:18:05.800 --> 0:18:07.560
<v Speaker 1>and not allowing her to be the kind of mom

0:18:07.640 --> 0:18:10.720
<v Speaker 1>she wanted to be was taking a major toll on

0:18:10.760 --> 0:18:14.399
<v Speaker 1>her mental health. Shelby's body seemed to be deteriorating at

0:18:14.400 --> 0:18:17.120
<v Speaker 1>a time when she needed it most, at a time

0:18:17.200 --> 0:18:21.760
<v Speaker 1>when her kids needed her most. As irrational as it sounds,

0:18:22.800 --> 0:18:28.760
<v Speaker 1>I was scared to death that it's really even sounds

0:18:28.800 --> 0:18:31.920
<v Speaker 1>stupid trying to say it out loud. I was so

0:18:31.960 --> 0:18:35.199
<v Speaker 1>scared that I was going to die and leave my

0:18:35.240 --> 0:18:38.880
<v Speaker 1>babies because I didn't know what was wrong, or that

0:18:39.840 --> 0:18:44.520
<v Speaker 1>my family was going to get tired of me being

0:18:44.560 --> 0:18:47.879
<v Speaker 1>sick or me not feeling good. And you know, postpartum

0:18:47.920 --> 0:18:49.960
<v Speaker 1>depression is a real thing, So I mean, I would

0:18:50.160 --> 0:18:52.159
<v Speaker 1>I would be lying to you if I didn't think

0:18:53.040 --> 0:18:55.000
<v Speaker 1>a couple of times that you know, my kids were

0:18:55.000 --> 0:18:58.320
<v Speaker 1>better off without me because I wasn't a good enough

0:18:58.359 --> 0:19:00.919
<v Speaker 1>mom for them. My O b g Y and at

0:19:00.960 --> 0:19:04.520
<v Speaker 1>the time he prescribed me my first round of antidepressants

0:19:04.560 --> 0:19:08.840
<v Speaker 1>that had ever taken, and I took them very begrudgingly,

0:19:09.840 --> 0:19:15.520
<v Speaker 1>but I knew I had to do something. Shelby and

0:19:15.560 --> 0:19:18.200
<v Speaker 1>t J were both determined to find a doctor who

0:19:18.280 --> 0:19:21.880
<v Speaker 1>listened to Shelby's symptoms and looked at her full medical

0:19:21.920 --> 0:19:24.000
<v Speaker 1>history to get to the bottom of what had been

0:19:24.000 --> 0:19:27.200
<v Speaker 1>plaguing her for over a decade. After bouncing between a

0:19:27.240 --> 0:19:30.560
<v Speaker 1>few different primary care doctors, they finally found one that

0:19:30.640 --> 0:19:34.560
<v Speaker 1>truly heard her story, her new family physician, Dr Tim Hart.

0:19:35.800 --> 0:19:37.639
<v Speaker 1>Right now, at this point in the story, I'm playing

0:19:37.640 --> 0:19:42.119
<v Speaker 1>a psychological game. I looked at Dr Hart and I said, listen,

0:19:42.920 --> 0:19:48.160
<v Speaker 1>I am either crazy or there's something wrong. And at

0:19:48.160 --> 0:19:49.679
<v Speaker 1>this point I don't care which one it is. I

0:19:49.800 --> 0:19:52.439
<v Speaker 1>just have to know. I told him. I's like, listen,

0:19:53.440 --> 0:19:56.720
<v Speaker 1>I get dizzy when I stand up, and I don't

0:19:56.720 --> 0:19:58.760
<v Speaker 1>even really pass out, and it's not even a real

0:19:58.840 --> 0:20:02.520
<v Speaker 1>dizzy feeling like it's it's almost like the room kind

0:20:02.520 --> 0:20:04.080
<v Speaker 1>of spinds a little bit, but it feels like my

0:20:04.119 --> 0:20:08.000
<v Speaker 1>legs are going to give out on me. I said, Like,

0:20:08.080 --> 0:20:11.959
<v Speaker 1>I'm literally tired all the time, Like I could sleep

0:20:12.080 --> 0:20:16.960
<v Speaker 1>for days and still wake up tired. My joints constantly hurt,

0:20:17.400 --> 0:20:21.439
<v Speaker 1>my body is constantly aching, my hair is falling out,

0:20:22.040 --> 0:20:26.040
<v Speaker 1>and a plethora of other things. Oh and that's what

0:20:26.520 --> 0:20:28.600
<v Speaker 1>I was like. I can't remember anything, like I feel

0:20:28.600 --> 0:20:30.600
<v Speaker 1>like my brain just doesn't work, not even percent of

0:20:30.600 --> 0:20:34.320
<v Speaker 1>the time. Doctor Hart talks to Shelby about all the

0:20:34.359 --> 0:20:38.560
<v Speaker 1>pieces of her medical past, her childhood riddled with chronic fatigue,

0:20:38.960 --> 0:20:44.040
<v Speaker 1>getting extremely sick and nearly passing out during her periods, PRECLAMPSI,

0:20:44.080 --> 0:20:47.359
<v Speaker 1>of the migraines, the brain fog, all of it. Doctor

0:20:47.440 --> 0:20:50.879
<v Speaker 1>Hart realizes it's not all into her head, It's all

0:20:51.000 --> 0:20:54.760
<v Speaker 1>very real. He first targets the brain fog symptoms with

0:20:54.840 --> 0:20:58.000
<v Speaker 1>some a d h D medication. Shelby sees a big

0:20:58.080 --> 0:21:00.800
<v Speaker 1>difference being able to keep up with her life mentally,

0:21:01.240 --> 0:21:07.919
<v Speaker 1>but her body is still stuck. What for you was

0:21:07.960 --> 0:21:11.520
<v Speaker 1>the moment where you are like, I'm not dealing with

0:21:11.560 --> 0:21:16.399
<v Speaker 1>this anymore. I need answers. Well. Actually, so fast forward

0:21:16.440 --> 0:21:21.200
<v Speaker 1>to and my husband and I were outside hanging Christmas

0:21:21.280 --> 0:21:25.439
<v Speaker 1>lights in November and it's like ten o'clock at night

0:21:26.119 --> 0:21:30.720
<v Speaker 1>and we are painstakingly hot gluing light clips onto the

0:21:30.720 --> 0:21:33.200
<v Speaker 1>brick veneer of our house. Because I'm married to Clark

0:21:33.200 --> 0:21:35.520
<v Speaker 1>Griswold and we're crazy Christmas people and that's just what

0:21:35.560 --> 0:21:40.480
<v Speaker 1>we do. So I'm coughing up along. I can't hardly stand.

0:21:40.680 --> 0:21:44.960
<v Speaker 1>I'm getting dizzy. When I stand up, it's freezing cold,

0:21:45.040 --> 0:21:47.080
<v Speaker 1>Like I'm so cold to the point where like my

0:21:47.160 --> 0:21:51.160
<v Speaker 1>joints hurt. And my husband's like, oh great, you've probably

0:21:51.200 --> 0:21:54.240
<v Speaker 1>got COVID again. He's like, you need to go get tested.

0:21:54.280 --> 0:21:56.280
<v Speaker 1>So I drive myself to the urgent care that's just

0:21:56.800 --> 0:21:59.879
<v Speaker 1>right next to our house almost. So they take me

0:22:00.000 --> 0:22:02.200
<v Speaker 1>ac and they hook up the machines and they're checking

0:22:02.200 --> 0:22:05.600
<v Speaker 1>my vitals and I'm sitting there and I'm out of breath.

0:22:05.880 --> 0:22:08.560
<v Speaker 1>I'm heavy breathing because I've walked from the waiting room

0:22:08.600 --> 0:22:13.639
<v Speaker 1>to the room and they're like, girl, you're in tachycardia.

0:22:15.960 --> 0:22:19.720
<v Speaker 1>Tachycardia is the medical term for a resting heart rate

0:22:19.960 --> 0:22:23.760
<v Speaker 1>over a hundred beats per minute. Something's wrong, some something

0:22:23.920 --> 0:22:28.919
<v Speaker 1>is is bad wrong, And honestly, at first, you know,

0:22:28.960 --> 0:22:32.639
<v Speaker 1>I was terrified there was an actual heart issue, that

0:22:32.880 --> 0:22:35.520
<v Speaker 1>something was going to happen, you know, like a heart

0:22:35.560 --> 0:22:39.640
<v Speaker 1>attack or an aneurysm, or there was a blockage, whatever

0:22:39.680 --> 0:22:46.240
<v Speaker 1>it was, and it was just terrifying. Shelby's body was

0:22:46.320 --> 0:22:49.520
<v Speaker 1>struggling to regulate her blood pressure and heart rate. Her

0:22:49.560 --> 0:22:52.840
<v Speaker 1>tachycardia quickly got worse right when t J had to

0:22:52.880 --> 0:22:55.560
<v Speaker 1>go out of town for work, so shall be called

0:22:55.600 --> 0:22:57.960
<v Speaker 1>two of her best friends who happened to be a

0:22:58.040 --> 0:23:00.800
<v Speaker 1>nurse and a doctor. I'm sitting on the edge of

0:23:00.840 --> 0:23:03.080
<v Speaker 1>the ottoman and he's trying to listen to my chest

0:23:03.160 --> 0:23:05.840
<v Speaker 1>and ever, you know, do the whole basic workup. And

0:23:06.600 --> 0:23:08.760
<v Speaker 1>the lights go out and I go to fall forward,

0:23:11.920 --> 0:23:17.199
<v Speaker 1>look up and he's got ahold of me, and he's like,

0:23:17.760 --> 0:23:21.400
<v Speaker 1>your heart rates out of control, you're hyperventilating. You can't

0:23:21.400 --> 0:23:24.920
<v Speaker 1>get out of what oxygen like shell. You've got to

0:23:24.920 --> 0:23:29.359
<v Speaker 1>go to the emergency room. I didn't know it then

0:23:29.560 --> 0:23:32.920
<v Speaker 1>at that moment, but the next three hours we're going

0:23:32.960 --> 0:23:37.840
<v Speaker 1>to be some of the most traumatic experiences of my life.

0:23:39.400 --> 0:23:42.679
<v Speaker 1>Shelby rushes to the e er with her heart racing

0:23:42.720 --> 0:23:45.800
<v Speaker 1>and her body freaking out, hoping to get her condition

0:23:45.920 --> 0:23:50.320
<v Speaker 1>under control before anything tragic happens. But the attempting doctor

0:23:50.640 --> 0:23:55.360
<v Speaker 1>isn't exactly concerned. I feel like my heart is going

0:23:55.400 --> 0:23:59.320
<v Speaker 1>to explode at this point, and he's like, well, you

0:23:59.400 --> 0:24:01.680
<v Speaker 1>look fine. He's like, you don't look like you're sick.

0:24:02.560 --> 0:24:04.800
<v Speaker 1>He's like, your vitals like normal. He's like, I'll take

0:24:04.840 --> 0:24:06.720
<v Speaker 1>you back and I'll do an ultrasound just to make

0:24:06.720 --> 0:24:10.399
<v Speaker 1>you feel better, Like he's doing me a favor, just

0:24:10.480 --> 0:24:14.359
<v Speaker 1>to make me feel better. The doctor just completely blew

0:24:14.400 --> 0:24:17.800
<v Speaker 1>her off as if it was stress or anxiety, and

0:24:17.880 --> 0:24:21.680
<v Speaker 1>it was just completely dismissive. And you know, it was

0:24:21.720 --> 0:24:24.800
<v Speaker 1>everything that I had not to to march into the

0:24:25.000 --> 0:24:27.439
<v Speaker 1>e er and give the guy a piece of my mind.

0:24:28.040 --> 0:24:29.199
<v Speaker 1>But I knew at the end of the day that

0:24:29.240 --> 0:24:33.520
<v Speaker 1>was only gonna hurt shelby situation more than anything, you know.

0:24:33.600 --> 0:24:36.239
<v Speaker 1>But it also helped the fact that we had one

0:24:36.280 --> 0:24:38.720
<v Speaker 1>of my best friends, Chris, who is an mp D

0:24:39.119 --> 0:24:43.240
<v Speaker 1>and is explaining that this isn't normal, this isn't anxiety,

0:24:43.359 --> 0:24:46.080
<v Speaker 1>this isn't you know. They're not running the panels they

0:24:46.119 --> 0:24:48.679
<v Speaker 1>need to run that kind of thing, which led us

0:24:48.680 --> 0:24:51.800
<v Speaker 1>into going to the right family care providers that did

0:24:51.880 --> 0:24:54.560
<v Speaker 1>listen to us and got her some testing and got

0:24:54.600 --> 0:24:59.120
<v Speaker 1>her to the right people. Doctor Hart was the health

0:24:59.160 --> 0:25:02.879
<v Speaker 1>provider who listened and did more testing. Shelby went to

0:25:02.960 --> 0:25:06.120
<v Speaker 1>him the next day, knowing anxiety didn't explain away her

0:25:06.119 --> 0:25:10.320
<v Speaker 1>heart issues and battle with tachycardia. Doctor Hart really looked

0:25:10.359 --> 0:25:14.439
<v Speaker 1>at Shelby's medical history, reconsidering her tough battle with Mono

0:25:14.680 --> 0:25:17.439
<v Speaker 1>in a different light. He had an idea of what

0:25:17.600 --> 0:25:20.360
<v Speaker 1>maybe going on and referred her to a specialist, Dr

0:25:20.480 --> 0:25:24.840
<v Speaker 1>Van Darren, who finally had the answer. I'll never forget

0:25:25.040 --> 0:25:27.280
<v Speaker 1>the day that I walked into Dr Van Darren's office.

0:25:28.560 --> 0:25:32.359
<v Speaker 1>It was one of the happiest days of my life.

0:25:32.920 --> 0:25:35.639
<v Speaker 1>Like I will put it up there with like my

0:25:35.720 --> 0:25:38.160
<v Speaker 1>wedding day in the birth of my children. And he's like, hey,

0:25:38.240 --> 0:25:39.960
<v Speaker 1>you know what, what are we seeing you for today?

0:25:40.040 --> 0:25:41.800
<v Speaker 1>And I'll tell him a little bit of what's going on.

0:25:41.880 --> 0:25:44.840
<v Speaker 1>And as I'm talking to him, it's almost like he's

0:25:44.840 --> 0:25:47.800
<v Speaker 1>not even listening to me. He's he's looking at my chart.

0:25:48.720 --> 0:25:52.439
<v Speaker 1>Hey looked at me. He goes, you know you have pots, right, huh.

0:25:53.240 --> 0:26:00.880
<v Speaker 1>He's like, yeah, your textbook pots? Well, um, I saw

0:26:00.960 --> 0:26:02.960
<v Speaker 1>something about that on the internet. He was like yeah.

0:26:02.960 --> 0:26:05.359
<v Speaker 1>He's like, because it's pretty much only it lives on

0:26:05.359 --> 0:26:08.199
<v Speaker 1>the internet. There's very few doctors that even know what

0:26:08.280 --> 0:26:10.680
<v Speaker 1>to look for and know what's going on. He explained

0:26:10.720 --> 0:26:13.320
<v Speaker 1>to me that, he said, we're seeing her eyes and

0:26:13.359 --> 0:26:18.040
<v Speaker 1>pots patients right now. Because, he said, of autoimmune or

0:26:18.240 --> 0:26:21.880
<v Speaker 1>autonomic nervous system disorders are triggered by virus, he said,

0:26:21.920 --> 0:26:23.720
<v Speaker 1>and you've had the Big two, he said. So I

0:26:23.760 --> 0:26:26.400
<v Speaker 1>don't know really what triggered yours, he said, because you've

0:26:26.400 --> 0:26:30.560
<v Speaker 1>had epstein Bar and you've had COVID nineteen. Shelby's battle

0:26:30.640 --> 0:26:35.920
<v Speaker 1>with COVID just intensified her POTS symptoms. The fatigue, the dizziness,

0:26:35.960 --> 0:26:40.720
<v Speaker 1>the migraines, the mono a ka epstein Bar, the proclampsia,

0:26:40.880 --> 0:26:44.080
<v Speaker 1>the brain fog, the blood pressure and heart rate troubles,

0:26:44.280 --> 0:26:48.159
<v Speaker 1>the tachycardia. All of these symptoms pointed to a mysterious

0:26:48.240 --> 0:26:51.840
<v Speaker 1>illness that had been plague in Shelby for thirteen years,

0:26:52.320 --> 0:26:54.639
<v Speaker 1>and now there was a name she could put to

0:26:54.800 --> 0:26:59.880
<v Speaker 1>what she'd been suffering from POTS. Dr Jeff Boris, pet

0:27:00.000 --> 0:27:06.600
<v Speaker 1>electric cardiologists specializing in autonomic disorders, explains more so, POTS,

0:27:06.720 --> 0:27:11.760
<v Speaker 1>or the pastoral orthostatic tychocardia syndrome, is a disautonomia in POTS.

0:27:12.400 --> 0:27:17.840
<v Speaker 1>What happens is patients have this malfunction of their autonomic

0:27:17.960 --> 0:27:25.080
<v Speaker 1>system and they get extremely debilitated due to lightheadedness, techocardia,

0:27:25.400 --> 0:27:30.560
<v Speaker 1>severe nausea, fatigue, cognitive dysfunction or brain fog as people

0:27:30.600 --> 0:27:33.119
<v Speaker 1>are recognizing this term, I think in the setting of

0:27:33.160 --> 0:27:37.600
<v Speaker 1>long COVID and many other symptoms that can come along

0:27:37.600 --> 0:27:43.240
<v Speaker 1>with US as well, Why do you think that it

0:27:43.480 --> 0:27:48.080
<v Speaker 1>is so difficult to diagnose POTS? So what happens is

0:27:48.920 --> 0:27:53.879
<v Speaker 1>a lot of doctors historically have not recognized that POTS exists.

0:27:54.320 --> 0:27:57.199
<v Speaker 1>Either they've never heard of it, or if they have

0:27:57.359 --> 0:27:59.639
<v Speaker 1>heard of it, they don't believe it or are just

0:27:59.720 --> 0:28:02.760
<v Speaker 1>not aware of it. So that's part of the problem.

0:28:02.920 --> 0:28:06.320
<v Speaker 1>And and in the Big POTS survey, half of patients

0:28:06.840 --> 0:28:10.960
<v Speaker 1>took at least seven providers before getting a diagnosis, and

0:28:11.000 --> 0:28:15.600
<v Speaker 1>about a quarter of patients saw over ten providers before

0:28:15.600 --> 0:28:18.919
<v Speaker 1>getting a diagnosis. I think the other issue though, that

0:28:19.000 --> 0:28:22.639
<v Speaker 1>plays into this is that there is anywhere from a

0:28:22.720 --> 0:28:24.880
<v Speaker 1>three point five to one to a five to one

0:28:25.080 --> 0:28:30.760
<v Speaker 1>ratio female to MAIL patients. So with that female predominance,

0:28:31.440 --> 0:28:34.239
<v Speaker 1>this is something that's been a problem in medicine for

0:28:34.320 --> 0:28:39.680
<v Speaker 1>decades and decades, is that female patients who have symptoms

0:28:39.720 --> 0:28:46.880
<v Speaker 1>that are quote invisible are shunted, aside dismissed. So a

0:28:46.920 --> 0:28:50.280
<v Speaker 1>lot of these patients are just ignored because it's very

0:28:50.360 --> 0:28:55.640
<v Speaker 1>difficult for people to recognize that there's something going on.

0:28:58.240 --> 0:29:01.520
<v Speaker 1>A journey to a POTS diagnosis is not short or

0:29:01.640 --> 0:29:06.360
<v Speaker 1>easy for many people. For Shelby, it was long, long overdue,

0:29:06.600 --> 0:29:10.200
<v Speaker 1>and that made hearing her proper diagnosis all that much better.

0:29:12.960 --> 0:29:15.320
<v Speaker 1>But what did that mean to you? Oh my gosh,

0:29:15.360 --> 0:29:19.479
<v Speaker 1>like it meant. It meant the world. It meant the world,

0:29:19.800 --> 0:29:24.200
<v Speaker 1>like I was able to put a name to what

0:29:24.320 --> 0:29:30.400
<v Speaker 1>was happening to me. It was a start, and it

0:29:30.880 --> 0:29:33.680
<v Speaker 1>finally put the chip on my shoulder to where like

0:29:33.800 --> 0:29:36.800
<v Speaker 1>I knew I wasn't crazy and I had been gas

0:29:36.800 --> 0:29:42.960
<v Speaker 1>lit for so many years, So some relief. It finally

0:29:43.040 --> 0:29:45.720
<v Speaker 1>has a name, but just having the name doesn't get

0:29:45.800 --> 0:29:48.400
<v Speaker 1>rid of the symptoms. Shelby and her doctors are still

0:29:48.400 --> 0:29:51.479
<v Speaker 1>working to find a treatment regimen that helps her manage

0:29:51.480 --> 0:29:54.440
<v Speaker 1>her symptoms and gives her back the lifestyle she deserves.

0:29:54.960 --> 0:29:58.400
<v Speaker 1>She's currently being treated with bi weekly IVY fluids because

0:29:58.440 --> 0:30:01.840
<v Speaker 1>dehydration is a implication of POTS that can make the

0:30:01.880 --> 0:30:06.120
<v Speaker 1>other symptoms worse. It's helped me to understand my body

0:30:06.160 --> 0:30:09.520
<v Speaker 1>a little bit better. I'm still on my POTS journey.

0:30:09.680 --> 0:30:11.560
<v Speaker 1>There have been highs and lows. It's been a definite

0:30:11.640 --> 0:30:15.600
<v Speaker 1>roller coaster, but we're still trying to figure out a

0:30:15.680 --> 0:30:19.120
<v Speaker 1>treatment plan that works for me because I'm kind of

0:30:19.160 --> 0:30:21.320
<v Speaker 1>like a gremlin. I can't get too hot, i can't

0:30:21.320 --> 0:30:23.480
<v Speaker 1>get too cold, don't get me wet, don't feed me

0:30:23.520 --> 0:30:28.320
<v Speaker 1>after midnight. Like it's hard to keep it imbalanced. I mean,

0:30:28.360 --> 0:30:32.120
<v Speaker 1>we're still pretty clueless as far as what's actually happening

0:30:32.360 --> 0:30:36.560
<v Speaker 1>to these patients. We suspect that a fair number of

0:30:36.600 --> 0:30:43.280
<v Speaker 1>them or having POTS due to an autoimmune phenomenon. Until

0:30:43.280 --> 0:30:46.600
<v Speaker 1>the medical community discovers more and has it integrated into

0:30:46.640 --> 0:30:51.400
<v Speaker 1>the widespread medical curriculum, there will be some ongoing misunderstanding

0:30:51.440 --> 0:30:54.960
<v Speaker 1>about this syndrome. Something Dr Boris is very familiar with.

0:30:56.400 --> 0:30:59.800
<v Speaker 1>What would you say are the most prevalent and fro

0:31:00.080 --> 0:31:06.640
<v Speaker 1>straighting misconceptions that people have about POTS. Patients are told

0:31:07.480 --> 0:31:12.880
<v Speaker 1>pretty frequently that it's just anxiety or they have an

0:31:12.880 --> 0:31:15.040
<v Speaker 1>eating disorder. That's that's one of the really bad ones.

0:31:15.400 --> 0:31:17.520
<v Speaker 1>So one of the problems that we can see in

0:31:17.520 --> 0:31:20.520
<v Speaker 1>these patients is what we call g I or gas

0:31:20.560 --> 0:31:25.640
<v Speaker 1>or intestinal dismotility, meaning their intestines just don't work right,

0:31:26.240 --> 0:31:31.360
<v Speaker 1>so they are nauseated frequently. So I think the two

0:31:31.400 --> 0:31:34.200
<v Speaker 1>biggest ones that I would say would would be being

0:31:34.240 --> 0:31:39.280
<v Speaker 1>accused of having a psychiatric disorder or being accused of

0:31:39.320 --> 0:31:42.280
<v Speaker 1>having an eating disorder, which certainly falls under the psychiatric

0:31:42.440 --> 0:31:48.640
<v Speaker 1>realm as well. Shelby spent thirteen years fighting these misconceptions

0:31:48.640 --> 0:31:52.440
<v Speaker 1>and defiance to embrace pots of something to consider when

0:31:52.440 --> 0:31:57.160
<v Speaker 1>diagnosing patients. She was pushed a multiple life threatening situations

0:31:57.480 --> 0:32:00.360
<v Speaker 1>second guest her own sanity, felt the guilt of not

0:32:00.400 --> 0:32:02.320
<v Speaker 1>being able to be the mother she wanted to be

0:32:02.440 --> 0:32:05.440
<v Speaker 1>to her children, but luckily she had t J there

0:32:05.480 --> 0:32:08.240
<v Speaker 1>to be her support network, a husband who knows she

0:32:08.360 --> 0:32:12.280
<v Speaker 1>has nothing to feel guilty about. The hardest part for

0:32:12.400 --> 0:32:17.040
<v Speaker 1>it is just trying to convey that I'm in it

0:32:17.160 --> 0:32:22.200
<v Speaker 1>for life. Whatever happens, however it works, we'll get through it.

0:32:22.840 --> 0:32:25.920
<v Speaker 1>And a lot of times, unfortunately in that I think

0:32:26.000 --> 0:32:32.320
<v Speaker 1>that Shelby thinks that there's expectations, or there's feelings that

0:32:32.480 --> 0:32:35.560
<v Speaker 1>I'm missing out or the kids are missing out, you know,

0:32:35.680 --> 0:32:39.800
<v Speaker 1>trying to calm her down and let her know that

0:32:39.960 --> 0:32:43.800
<v Speaker 1>we don't have a list of expectations. Shelby is still

0:32:43.880 --> 0:32:46.320
<v Speaker 1>fighting hard to find the right treatments to give her

0:32:46.320 --> 0:32:49.160
<v Speaker 1>back her sense of normalcy. But one thing she will

0:32:49.200 --> 0:32:51.800
<v Speaker 1>be doing as a mom is making sure her children

0:32:51.840 --> 0:32:55.200
<v Speaker 1>did not suffer from the same runaround she had to endure.

0:32:56.440 --> 0:32:59.880
<v Speaker 1>My daughter is having a barrage of unexplained symptoms that

0:33:00.040 --> 0:33:03.560
<v Speaker 1>and I've never had. She's got random hives breaking out

0:33:03.600 --> 0:33:06.360
<v Speaker 1>all over her body, She's having joint pain, her hair

0:33:06.480 --> 0:33:09.240
<v Speaker 1>is kind of falling out. All of the gas lighting

0:33:09.240 --> 0:33:12.120
<v Speaker 1>that I went through is not going to happen to

0:33:12.160 --> 0:33:14.840
<v Speaker 1>my daughter. I'm not going to be that passive mother

0:33:14.960 --> 0:33:17.920
<v Speaker 1>that sits on the sidelines. I'm trying to teach my

0:33:18.000 --> 0:33:23.680
<v Speaker 1>daughter that you have to advocate for yourself. And I

0:33:23.760 --> 0:33:26.200
<v Speaker 1>told her, I'm your mom, I'm always going to be

0:33:26.240 --> 0:33:28.719
<v Speaker 1>there for you. I will advocate for you. But you

0:33:28.800 --> 0:33:30.720
<v Speaker 1>have to trust your own body, and you have to

0:33:30.800 --> 0:33:33.120
<v Speaker 1>know your own body. So if there is something wrong,

0:33:33.400 --> 0:33:40.160
<v Speaker 1>speak up. Speak Up. To find out more information on POTS,

0:33:40.520 --> 0:33:44.760
<v Speaker 1>visit standing Up to pots dot org. My name is

0:33:44.760 --> 0:33:49.800
<v Speaker 1>Shelby and I struggled for thirteen years before I was

0:33:49.840 --> 0:33:55.360
<v Speaker 1>diagnosed with POTS. On the next symptomatic, Kyle seems not

0:33:55.440 --> 0:33:57.360
<v Speaker 1>to be able to go a couple of months without

0:33:57.360 --> 0:34:01.719
<v Speaker 1>a new break, sprain or dislocation, and worse, a tumor

0:34:02.160 --> 0:34:05.800
<v Speaker 1>was found on a spine. We knew there was a mass,

0:34:06.480 --> 0:34:09.480
<v Speaker 1>but we didn't know if it was benign as a cancer.

0:34:09.880 --> 0:34:15.440
<v Speaker 1>There was just so much we didn't know. I was done.

0:34:15.719 --> 0:34:18.840
<v Speaker 1>I was mentally that was it. I kind of, honestly

0:34:18.840 --> 0:34:23.320
<v Speaker 1>just like gave up. Kyle and his mother Laura battle

0:34:23.360 --> 0:34:25.600
<v Speaker 1>against a tumor that is taking far too long to

0:34:25.680 --> 0:34:28.680
<v Speaker 1>heal and pushing him to the brink of being bedridden

0:34:28.800 --> 0:34:34.279
<v Speaker 1>for the rest of his life or worse, symptomatic. A

0:34:34.360 --> 0:34:38.320
<v Speaker 1>medical Mystery podcast is an original podcast from my Heart Radio.

0:34:38.840 --> 0:34:42.600
<v Speaker 1>Are shows hosted by me Lauren Bright Pacheco. Executive producers

0:34:42.680 --> 0:34:46.160
<v Speaker 1>are Matt Romano and myself. Our EP of post production

0:34:46.360 --> 0:34:50.600
<v Speaker 1>is Matt Stillo. Our producers are Crra Kaiser and John Irwin.