WEBVTT - Case #11: Jerad

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<v Speaker 1>They did a CT scan, and my doctor he was like,

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<v Speaker 1>this is maybe a fifty to fifty percent chance of survival.

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<v Speaker 2>They finally like allowed me to let the kids in

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<v Speaker 2>for one afternoon, and I just remember being like, I've

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<v Speaker 2>got to take a bunch of pictures because I'm not

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<v Speaker 2>sure if they're ever.

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<v Speaker 3>Going to be able to see them again.

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<v Speaker 4>If we don't get people the necessary treatment early on,

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<v Speaker 4>it can impair your physical and mental health.

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<v Speaker 5>I was in shock. Can I fight this? Can I

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<v Speaker 5>beat this? Is this something that's going to just change

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<v Speaker 5>my life completely? Like? Are these my last days?

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<v Speaker 6>How terrifying would it be to fight an unknown enemy,

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<v Speaker 6>one you didn't recognize and didn't see coming. What if

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<v Speaker 6>that enemy was coming from within a disease but even

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<v Speaker 6>doctors couldn't identify. Nearly half of all Americans suffer from

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<v Speaker 6>some chronic illness, and many struggle for an accurate diagnosis.

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<v Speaker 6>These are their stories. I'm Lauren Bribe Pacheco, and this

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<v Speaker 6>is symptomatic. So tell me a little bit about you

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<v Speaker 6>as a person beyond a husband and a dad. What

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<v Speaker 6>are your favorite hobbies? What are your passions? What do

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<v Speaker 6>you love to do?

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<v Speaker 7>So?

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<v Speaker 5>I love to sing, I love to dance.

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<v Speaker 1>I used to play the cello and have on occasion

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<v Speaker 1>brought out my cello.

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<v Speaker 5>To practice a little bit.

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<v Speaker 1>I love sports, particularly basketball, so I love to play

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<v Speaker 1>basketball when I regular chance, as well as watch the

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<v Speaker 1>NBAWA College basketball.

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<v Speaker 6>Jerrod Green also loves sharing his passions for basketball and

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<v Speaker 6>music with his four year old daughter and six year

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<v Speaker 6>old son. What's your go to karaoke song?

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<v Speaker 1>Oh my gosh, I've been trying to figure this out.

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<v Speaker 1>I'm pretty down with anything R and B. You know,

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<v Speaker 1>my favorite group of all time is voiced him In,

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<v Speaker 1>so I often lean into them for music inspiration.

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<v Speaker 5>I also love us here.

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<v Speaker 6>A quintessential dad striving to be in the moment with

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<v Speaker 6>his kids as much as possible. And even though he's

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<v Speaker 6>now only thirty one years old, he has the calm

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<v Speaker 6>and coolness of someone much older. Just ask his wife Courtney.

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<v Speaker 2>Yeah, Jerrod is like the king of chill, Like he

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<v Speaker 2>is so relaxed, Like he's pretty much like an unshakable person.

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<v Speaker 2>In college, everybody's like, oh yeah, he's definitely a pot

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<v Speaker 2>and Girod is actually like stone cold, sober, straight edge

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<v Speaker 2>by choice. He just brings that like ultra calm presence

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<v Speaker 2>to anything that he does, but also like the most compassionate,

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<v Speaker 2>caring person, so he got a social work degree, has

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<v Speaker 2>worked in higher ed, cares so much about his students

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<v Speaker 2>and the people that he's served in the past, and

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<v Speaker 2>now does like diversity work for children and family services.

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<v Speaker 3>So like everything that he.

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<v Speaker 2>Does is just like with that servant heart.

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<v Speaker 6>Courtney and Girod have been together since high school, both

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<v Speaker 6>growing up in Minnesota. They first noticed each other at

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<v Speaker 6>a Crosstown football game and instantly became friends. That friendship

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<v Speaker 6>quickly turned into dating and prom and eventually into a

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<v Speaker 6>lifelong partnership.

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<v Speaker 1>She's my best friend. I feel like I can talk

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<v Speaker 1>to her about anything, go through with anything which is

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<v Speaker 1>really meaningful, and I'm glad that our relationship is built

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<v Speaker 1>on that.

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<v Speaker 6>And Grod would undoubtedly need that support as a mysterious

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<v Speaker 6>disease turns his life upside down in the span of

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<v Speaker 6>just a couple of months. By the middle of twenty twenty,

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<v Speaker 6>at the height of the COVID pandemic, Drod started feeling

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<v Speaker 6>new sensations that he'd never recognized in his body before.

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<v Speaker 6>All of his instincts warned him that something was wrong.

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<v Speaker 6>Will you tell me the first time that you realized

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<v Speaker 6>you had something that you would have categorized as a symptom.

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<v Speaker 5>Yeah, so it was gradual.

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<v Speaker 1>I would say that my experience with symptoms is very hindsight.

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<v Speaker 1>In the moment, it wasn't like, oh, there's something really

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<v Speaker 1>wrong with me. At least at the beginning stages. I

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<v Speaker 1>had allergies, or what presented as allergies, you know, stuffy,

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<v Speaker 1>I was coughing a lot, my throat was itchy, and

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<v Speaker 1>so I just took allergy medications hoping that it would

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<v Speaker 1>go away.

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<v Speaker 6>At the time, Drod did live in South Carolina, where

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<v Speaker 6>allergies were a pretty regular thing for him. I tried

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<v Speaker 6>brushing it off that the symptoms would linger.

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<v Speaker 1>After a few weeks, things hadn't really improved, and so

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<v Speaker 1>that's when I started thinking, you know, there's something going

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<v Speaker 1>on here. I don't know what it is, but usually

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<v Speaker 1>when I have allergies, they're gone after about a week.

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<v Speaker 1>So now that it's been several weeks, I tried switching

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<v Speaker 1>allergy medication to see if that would help. It didn't,

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<v Speaker 1>and actually things started to get worse. My appetite was

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<v Speaker 1>starting to wane a little bit. That's when I was like,

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<v Speaker 1>you know what, I need to probably talk to someone

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<v Speaker 1>about what's going on.

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<v Speaker 6>Amidst the consistent coughing and congestion. Girod was also juggling

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<v Speaker 6>being a father of two young kids, studying for his doctorate,

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<v Speaker 6>and working a strenuous full time job. You're in school,

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<v Speaker 6>you are working incredibly long hours to provide for the

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<v Speaker 6>growing family that you have. There was a lot on

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<v Speaker 6>your plate. And how does that impact the time you

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<v Speaker 6>take for yourself and your health?

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<v Speaker 5>What time?

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<v Speaker 1>I guess that's how I answer that question is there

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<v Speaker 1>wasn't time. I wasn't taking care of myself. I wasn't

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<v Speaker 1>taking care of my health. I was really just in

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<v Speaker 1>autopilot's survival mode. I did the basic minimum to stay

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<v Speaker 1>afloat and stay alive, and that was my main focus

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<v Speaker 1>was I'm going to eat lunch because it's something I

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<v Speaker 1>need to do.

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<v Speaker 2>Just shortly before he got sick, he was like up

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<v Speaker 2>in the morning, leaving for work at work, would finish work,

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<v Speaker 2>was doing a student activity or something until seven, and

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<v Speaker 2>then needs to go to class and doesn't get home

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<v Speaker 2>until ten thirty and all throughout that time, like I'm

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<v Speaker 2>trying to text him, like, hey, don't forget to eat something. Hey,

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<v Speaker 2>are you like drinking any water? You know, just like

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<v Speaker 2>the self.

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<v Speaker 3>Care was just not present because he was so so busy.

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<v Speaker 6>What's going on in terms of your personal, professional, and world?

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<v Speaker 6>Yeah at the time that your symptoms are getting worse.

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<v Speaker 5>Yeah, so personal.

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<v Speaker 1>I think it's the culmination of work, stress, being in

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<v Speaker 1>a PhD program, family, and really trying to balance all

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<v Speaker 1>of those things. Another piece is the diagnosis of type

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<v Speaker 1>two diabetes and having that weird sensation of slurring of

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<v Speaker 1>words and feeling unwell. And then in February of twenty

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<v Speaker 1>twenty one, my dad was also diagnosed with type two diabetes.

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<v Speaker 1>And he found this out because he got COVID and

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<v Speaker 1>was admitted into the ICU for about two and a

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<v Speaker 1>half weeks, and he got really sick in the ICU,

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<v Speaker 1>and they were thinking that they would have to put

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<v Speaker 1>him in a medically induced coma. And I know that

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<v Speaker 1>so many people don't wake up from.

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<v Speaker 5>Those things, and so.

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<v Speaker 1>I think the stress of my dad having in near

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<v Speaker 1>death experience was also taking its toll.

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<v Speaker 2>It was really difficult for everyone. And then I'm at

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<v Speaker 2>home with two small kids, trying to support my in

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<v Speaker 2>laws who are going through this giant health issue as well,

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<v Speaker 2>and it's just like layers, layers, layers, layers, layers, and

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<v Speaker 2>on top of that, were like trying to ever eat

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<v Speaker 2>a meal as a family in a calm way, or

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<v Speaker 2>like trying to ever just get time together he and

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<v Speaker 2>I and remember where we come from, right, Like, this

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<v Speaker 2>is such a cool, beautiful love story. But when you're

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<v Speaker 2>like in the thick of all this weird stuff, it's

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<v Speaker 2>hard to remember that.

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<v Speaker 6>His dad would recover from this life threatening battle with COVID,

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<v Speaker 6>but it was a harsh reminder of how little time

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<v Speaker 6>there can be left with the ones you love. The

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<v Speaker 6>stress triggers continued to pile on Girad. At this point,

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<v Speaker 6>he was working vigorously in the Department of Diversity, Equity

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<v Speaker 6>and Inclusion for the Minnesota Court Systems.

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<v Speaker 5>At the time.

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<v Speaker 1>With my job, they were overseeing a very high profile

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<v Speaker 1>trial related to the murder of George Floyd, and up

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<v Speaker 1>until that point, I hadn't seen any videos, I hadn't

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<v Speaker 1>seen any surrounding information. I tried to keep some distance

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<v Speaker 1>because that imagery of black people being brutally murdered or

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<v Speaker 1>experiencing violence is one that I tried to avoid and

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<v Speaker 1>working for that organization. It was hard, and instead of

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<v Speaker 1>processing my own feelings, emotions and pain around it, I

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<v Speaker 1>was helping other people do that for themselves.

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<v Speaker 6>He couldn't get away from work because his work was

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<v Speaker 6>front page, headline news.

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<v Speaker 3>Every single day. Every single day.

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<v Speaker 2>We had like a small bedroom that he had a

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<v Speaker 2>desk shoved in the corner, so like court TV was

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<v Speaker 2>just on in our bedroom all day long. And then

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<v Speaker 2>trying to just like be a person on the planet

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<v Speaker 2>still where this is all that anybody's talking about, between

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<v Speaker 2>this trial and COVID and everything else.

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<v Speaker 6>Under the suffocating stressors, drawed symptoms would quickly begin to escalate.

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<v Speaker 6>In addition to the shortness of breath and sore throat,

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<v Speaker 6>he was now having trouble keeping food down, and he

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<v Speaker 6>would wake up in the middle of the night struggling

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<v Speaker 6>to catch his breath. When did you decide this isn't normal,

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<v Speaker 6>I'm going to the doctor exactly.

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<v Speaker 1>I actually did doctor and Demand a couple of times

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<v Speaker 1>and consulted with them, and at that time, they would

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<v Speaker 1>often prescribe steroids or antibiotics to see if that would help,

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<v Speaker 1>because they're thinking, you know, something's wrong, maybe I have

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<v Speaker 1>post nasal drip. I also got an inhaler with them

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<v Speaker 1>because this is about the time where I was having

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<v Speaker 1>some issues with breathing and having a lot of shortness

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<v Speaker 1>of breath, especially at night. So then I called them again.

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<v Speaker 1>They prescribed another round of steroids and antibiotics, and then

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<v Speaker 1>we're like, you should follow up with your primary care doctor.

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<v Speaker 1>And when I did, they gave me more steroids and

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<v Speaker 1>we're like, we don't really know what's going on.

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<v Speaker 6>I should imagine that it was just masking.

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<v Speaker 1>Yeah, the real issue, absolutely and probably worsting the issue

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<v Speaker 1>as well. You know, it was a few weeks after

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<v Speaker 1>that where I had to just leave work.

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<v Speaker 5>You know, I couldn't really eat anything.

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<v Speaker 1>My head was hurting, and I was just down in

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<v Speaker 1>that moment, and so that's when my wife was like,

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<v Speaker 1>something's wrong, Like you need to go to the emergency room.

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<v Speaker 1>I think in that moment, I was just thinking, what's happening?

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<v Speaker 1>Am I going to feel this way forever? What does

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<v Speaker 1>this even mean? Like what is this coming from? And

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<v Speaker 1>so there's just a lot of questions about my physical health.

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<v Speaker 6>So what happened once you got to the er.

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<v Speaker 1>They did a basic metabolic panel, saw that my members

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<v Speaker 1>weren't astronomically in the the yellow or the red, and

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<v Speaker 1>we're pretty much just like, we don't really know what's

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<v Speaker 1>happening with you. So I guess follow up with your

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<v Speaker 1>primary care, but you know, there's not really much we

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<v Speaker 1>can do for you.

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<v Speaker 5>So I went back home.

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<v Speaker 1>And so I think that it was just a combination

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<v Speaker 1>of acute situations that were happening in that moment and

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<v Speaker 1>then just a lifetime of you know, trauma, stress, racism, poverty,

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<v Speaker 1>and other factors that I think really created this perfect storm.

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<v Speaker 1>And that's just how my body reacted.

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<v Speaker 6>Jerrad couldn't keep up with the symptoms, which kept piling up.

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<v Speaker 6>He had very little appetite. Normal everyday activities like playing

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<v Speaker 6>basketball with his son were now becoming nearly impossible. Time

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<v Speaker 6>his breathing problems worsened to the point where he could

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<v Speaker 6>barely sleep, if at all. So what wound you back

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<v Speaker 6>up in the er again? A few weeks later? What's

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<v Speaker 6>going on?

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<v Speaker 1>We're living in an apartment at that time, and my

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<v Speaker 1>parents were coming by to have a cookout with us,

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<v Speaker 1>and so I was still not feeling great, but I

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<v Speaker 1>felt a little bit better that day, so I was

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<v Speaker 1>able to go down to the area by the pool

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<v Speaker 1>where our shared grill space was and sat in one

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<v Speaker 1>of the chairs with my family.

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<v Speaker 2>And then by the time he got there, he was

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<v Speaker 2>just like slumped over and just like could not catch

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<v Speaker 2>his breath.

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<v Speaker 1>That walk felt very tenuous, like I struggled a lot,

0:13:52.360 --> 0:13:54.600
<v Speaker 1>and it wasn't that far of a walk, like strew me.

0:13:54.600 --> 0:13:56.320
<v Speaker 5>Out of breath. I didn't feel well.

0:13:57.160 --> 0:14:00.320
<v Speaker 1>We had some Beyond burgers and I think I ate

0:14:00.400 --> 0:14:02.440
<v Speaker 1>half of one of those burgers and maybe a couple

0:14:02.480 --> 0:14:06.040
<v Speaker 1>of chips, and I was able to get it all down.

0:14:06.120 --> 0:14:08.720
<v Speaker 1>So I thought that things were improving and going better.

0:14:10.320 --> 0:14:14.800
<v Speaker 1>And then I remember, maybe thirty minutes later, feeling horribly,

0:14:14.960 --> 0:14:16.200
<v Speaker 1>so I went and laid down.

0:14:16.800 --> 0:14:19.520
<v Speaker 2>I had to drive him like the half of block

0:14:19.680 --> 0:14:22.080
<v Speaker 2>it was from the barbecue pit area back home.

0:14:22.600 --> 0:14:25.160
<v Speaker 5>It didn't get better, and then I ended up throwing

0:14:25.240 --> 0:14:25.800
<v Speaker 5>up the food.

0:14:26.400 --> 0:14:29.160
<v Speaker 3>Gerad was like the persistent optimist.

0:14:29.840 --> 0:14:32.520
<v Speaker 2>So for him to be saying like I don't know,

0:14:32.600 --> 0:14:35.280
<v Speaker 2>I just don't think it's going to get better, worried

0:14:35.320 --> 0:14:36.480
<v Speaker 2>it's going to be like this forever.

0:14:37.800 --> 0:14:40.240
<v Speaker 3>This is just not typical.

0:14:40.640 --> 0:14:44.000
<v Speaker 2>He has like a nickname that he's the quixotic one,

0:14:44.120 --> 0:14:48.360
<v Speaker 2>like the one that's just painfully optimistic, almost to the

0:14:48.400 --> 0:14:49.760
<v Speaker 2>point that it's nonsensical.

0:14:51.080 --> 0:14:54.240
<v Speaker 1>That's when my wife and my parents were like, all right,

0:14:54.560 --> 0:14:55.600
<v Speaker 1>I think you need to go back.

0:14:55.440 --> 0:14:55.920
<v Speaker 8>To the er.

0:14:56.680 --> 0:14:59.560
<v Speaker 6>Rush to an er. The fearful couple was at the

0:14:59.680 --> 0:15:04.320
<v Speaker 6>end of their rope managing Jirod's symptoms without a proper diagnosis.

0:15:05.160 --> 0:15:11.680
<v Speaker 2>His blood oxygen started to decrease, his heart rate was increasing.

0:15:12.240 --> 0:15:13.920
<v Speaker 2>We were not seeing any improvements.

0:15:14.160 --> 0:15:14.280
<v Speaker 9>Now.

0:15:14.320 --> 0:15:17.320
<v Speaker 2>Thing was getting better. It was only getting worse. I

0:15:17.400 --> 0:15:20.320
<v Speaker 2>just came with like an agenda of things that I

0:15:20.360 --> 0:15:23.800
<v Speaker 2>wanted tested for. I was like, is this an autoimmune issue?

0:15:23.840 --> 0:15:27.520
<v Speaker 2>Are we talking about lupus? What's going on with why

0:15:27.720 --> 0:15:31.320
<v Speaker 2>he feels like he can't get a good breath? Is

0:15:31.360 --> 0:15:34.120
<v Speaker 2>there something going on with his lungs? Can we do

0:15:34.160 --> 0:15:35.760
<v Speaker 2>a scan of his lungs?

0:15:36.160 --> 0:15:39.680
<v Speaker 6>Courtney was prepared to advocate for Jirod, something he was

0:15:39.720 --> 0:15:43.920
<v Speaker 6>in no condition to do himself. But even as they

0:15:43.960 --> 0:15:47.680
<v Speaker 6>scrambled to make an action plan, which was complicated by

0:15:47.720 --> 0:15:49.600
<v Speaker 6>the fact that they were in the middle of the pandemic,

0:15:50.160 --> 0:15:53.120
<v Speaker 6>the doctors felt like there may not be much time

0:15:53.240 --> 0:15:54.560
<v Speaker 6>left for him.

0:15:55.040 --> 0:15:58.160
<v Speaker 2>They finally like, allowed me to let the kids in

0:15:58.400 --> 0:16:02.160
<v Speaker 2>for one afternoon, and I just like remember being like,

0:16:02.200 --> 0:16:04.840
<v Speaker 2>I've got to take a bunch of pictures of this

0:16:05.240 --> 0:16:08.320
<v Speaker 2>because I'm not sure if we're ever like if they're

0:16:08.320 --> 0:16:09.920
<v Speaker 2>ever going to be able to see him again because

0:16:09.920 --> 0:16:12.960
<v Speaker 2>it's COVID, so like they're making a one time exception

0:16:13.840 --> 0:16:16.200
<v Speaker 2>for them to come in and see him.

0:16:16.640 --> 0:16:20.040
<v Speaker 6>But how are you keeping a brave face with him?

0:16:20.200 --> 0:16:20.800
<v Speaker 6>How are you?

0:16:22.560 --> 0:16:26.360
<v Speaker 2>I just left the room a lot, like I would

0:16:26.400 --> 0:16:30.080
<v Speaker 2>just be like, Okay, I'm gonna grab some snacks, weir bit,

0:16:30.880 --> 0:16:32.960
<v Speaker 2>you know, And what would you do in the hallway

0:16:33.240 --> 0:16:36.920
<v Speaker 2>just sobbing. I would go to the little chapel that

0:16:36.960 --> 0:16:40.480
<v Speaker 2>they had there. We have a Christian faith, and I

0:16:40.480 --> 0:16:43.560
<v Speaker 2>would just sit there and be like, what's going on?

0:16:44.520 --> 0:16:47.280
<v Speaker 3>Like, we've answered your call.

0:16:47.760 --> 0:16:50.320
<v Speaker 2>We are taking care of this family just as we

0:16:50.360 --> 0:16:51.760
<v Speaker 2>feel we've been called to do.

0:16:51.920 --> 0:16:53.120
<v Speaker 3>And now now what.

0:16:54.040 --> 0:16:58.840
<v Speaker 6>With Courtney's fierce advocacy, the doctors finally do a CT scan,

0:16:59.400 --> 0:17:02.240
<v Speaker 6>which would hold the necessary clues as to what was

0:17:02.280 --> 0:17:04.920
<v Speaker 6>causing Drod's rapid health decline.

0:17:05.680 --> 0:17:10.040
<v Speaker 1>So when I finally got the CT scan, I mean

0:17:10.080 --> 0:17:13.760
<v Speaker 1>nothing could have prepared me for what information would come

0:17:13.800 --> 0:17:14.320
<v Speaker 1>back from that.

0:17:16.560 --> 0:17:22.120
<v Speaker 6>We'll be right back with Symptomatic a medical mystery podcast.

0:17:25.359 --> 0:17:29.000
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0:17:29.040 --> 0:17:33.520
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0:17:47.720 --> 0:17:50.040
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0:17:50.160 --> 0:17:53.400
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0:17:53.440 --> 0:17:55.280
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0:17:55.320 --> 0:17:58.560
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0:17:58.600 --> 0:18:01.600
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0:18:01.920 --> 0:18:04.000
<v Speaker 8>Learn more at cothentics dot com or one eight four

0:18:04.040 --> 0:18:04.879
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0:18:05.240 --> 0:18:06.679
<v Speaker 10>Couthentics works for me.

0:18:07.240 --> 0:18:08.959
<v Speaker 8>Ask your doctor about concentics.

0:18:11.400 --> 0:18:19.280
<v Speaker 6>Now back to Symptomatic, a medical mystery podcast. Jerrod Green

0:18:19.440 --> 0:18:21.840
<v Speaker 6>approached most of what life through at him with a

0:18:21.880 --> 0:18:25.040
<v Speaker 6>smile juggling a full life at work and his PhD

0:18:25.119 --> 0:18:28.119
<v Speaker 6>studies and at home as a proud husband and father,

0:18:28.840 --> 0:18:33.080
<v Speaker 6>but rapidly the symptoms of a perplexing condition landed him

0:18:33.080 --> 0:18:36.679
<v Speaker 6>in the emergency room, hoping to find answers before it

0:18:36.760 --> 0:18:47.600
<v Speaker 6>was too late. What were your biggest fears in those moments?

0:18:49.040 --> 0:18:52.120
<v Speaker 2>There are so many fears that are so layered. It's

0:18:52.160 --> 0:18:54.600
<v Speaker 2>like what are we doing here right? Like is he

0:18:54.640 --> 0:18:57.760
<v Speaker 2>going to have to stop working? And my persistent fear

0:18:57.920 --> 0:18:59.600
<v Speaker 2>is like what are we going to do to get

0:18:59.680 --> 0:19:01.360
<v Speaker 2>him the care that he needs?

0:19:02.080 --> 0:19:05.040
<v Speaker 6>Through fear and confusion of her own, Courtney continued to

0:19:05.080 --> 0:19:08.479
<v Speaker 6>show up for Girod when he needed it most, pushing

0:19:08.520 --> 0:19:11.280
<v Speaker 6>for answers until the doctors found the clue they were

0:19:11.320 --> 0:19:14.800
<v Speaker 6>looking for. On a CT scan, they found that part

0:19:14.840 --> 0:19:18.280
<v Speaker 6>of Grod's spleen had died off because of a blood clot.

0:19:18.600 --> 0:19:20.959
<v Speaker 6>Seeing the blood clot led the doctors to order an

0:19:21.000 --> 0:19:23.880
<v Speaker 6>echo cardiogram to get a better picture of the.

0:19:23.880 --> 0:19:27.639
<v Speaker 1>Heart, and that's when they found that I had not

0:19:27.720 --> 0:19:31.560
<v Speaker 1>only a reduced objection fraction, but also enlargement within my

0:19:31.640 --> 0:19:37.080
<v Speaker 1>heart as well. And that's when the doctor later came

0:19:37.119 --> 0:19:39.520
<v Speaker 1>in and diagnosed me.

0:19:39.480 --> 0:19:40.760
<v Speaker 5>With congestive heart failure.

0:19:42.920 --> 0:19:47.120
<v Speaker 1>I didn't know anyone with heart failure or even heart disease.

0:19:47.720 --> 0:19:49.760
<v Speaker 1>I didn't really know what heart failure meant to me.

0:19:50.320 --> 0:19:54.480
<v Speaker 1>It's such a dooming term to call it heart failure,

0:19:54.480 --> 0:19:57.479
<v Speaker 1>like my heart has failed, and that means maybe I'm

0:19:57.520 --> 0:19:58.359
<v Speaker 1>not going to make it out of this.

0:19:59.119 --> 0:20:03.679
<v Speaker 2>As doctor said, you have heart failure. It's very significant,

0:20:03.840 --> 0:20:07.640
<v Speaker 2>it's very severe. Your heart is almost non functional, and

0:20:08.760 --> 0:20:12.399
<v Speaker 2>it's really bad. So we think we should transfer you

0:20:12.600 --> 0:20:16.160
<v Speaker 2>to Greenville, which is like the next biggest town. I'm

0:20:16.200 --> 0:20:20.920
<v Speaker 2>just sitting there, silent, crying, trying to ask questions about

0:20:20.960 --> 0:20:24.520
<v Speaker 2>like the practical reality about what that means. Because you're

0:20:24.560 --> 0:20:26.879
<v Speaker 2>saying heart failure, I don't know what that means. That

0:20:26.920 --> 0:20:28.080
<v Speaker 2>doesn't mean anything to me.

0:20:29.440 --> 0:20:31.520
<v Speaker 1>You know, my doctor at the time, who's not a

0:20:31.520 --> 0:20:34.879
<v Speaker 1>heart failure specialist, he's like, this is maybe a fifty

0:20:34.880 --> 0:20:39.080
<v Speaker 1>to fifty percent chance of survival and that you probably

0:20:39.080 --> 0:20:42.480
<v Speaker 1>should start looking into long term disability and maybe look

0:20:42.520 --> 0:20:45.000
<v Speaker 1>to stop working because this is going to be a

0:20:45.040 --> 0:20:45.840
<v Speaker 1>long road for you.

0:20:50.040 --> 0:20:53.880
<v Speaker 6>I can't imagine how frightening and difficult that must have been.

0:20:54.280 --> 0:20:58.840
<v Speaker 6>It must have been like waking up into a nightmare.

0:20:59.280 --> 0:21:02.959
<v Speaker 1>Yeah, and so at the time I was in the

0:21:02.960 --> 0:21:05.439
<v Speaker 1>hospital thinking, you know, is this going to get better?

0:21:05.920 --> 0:21:07.480
<v Speaker 5>Can I fight this? Can I beat this?

0:21:08.359 --> 0:21:11.080
<v Speaker 1>Is this something that's going to just change my life completely?

0:21:11.480 --> 0:21:13.280
<v Speaker 1>Am I not going to make it out of the hospital?

0:21:13.960 --> 0:21:16.800
<v Speaker 1>Like are these my last days? And so it was

0:21:16.920 --> 0:21:21.120
<v Speaker 1>really tough and stressful time, and part of me was

0:21:21.280 --> 0:21:25.200
<v Speaker 1>in shock, and part of me, I feel, couldn't even

0:21:25.240 --> 0:21:28.040
<v Speaker 1>bring myself to process that information.

0:21:28.880 --> 0:21:31.399
<v Speaker 2>And I was like, how how are you feeling? And

0:21:31.440 --> 0:21:33.639
<v Speaker 2>he was like, I just don't even really know. And

0:21:33.680 --> 0:21:35.440
<v Speaker 2>that was like the first time I saw him cry

0:21:35.520 --> 0:21:38.680
<v Speaker 2>in the whole process. And I just don't think there's

0:21:38.760 --> 0:21:42.239
<v Speaker 2>anything worse that could have been said to Jerrod, like

0:21:42.400 --> 0:21:46.600
<v Speaker 2>this devoted husband and father than like fifty fifty chicks.

0:21:48.000 --> 0:21:52.600
<v Speaker 6>After terrifying months of uncertainty, Jerrod and Courtney finally had

0:21:52.600 --> 0:21:55.280
<v Speaker 6>a name for the disease that had flipped their lives

0:21:55.400 --> 0:22:00.000
<v Speaker 6>upside down, congestive heart failure, But they were still left

0:22:00.160 --> 0:22:06.440
<v Speaker 6>with many unanswered questions For people who don't know, Can

0:22:06.480 --> 0:22:11.000
<v Speaker 6>you just break down, by definition exactly what congestive heart

0:22:11.000 --> 0:22:14.960
<v Speaker 6>failure is? Yeah, so our heart has many different things

0:22:15.000 --> 0:22:18.000
<v Speaker 6>it does. I often talk about it as plumbing which

0:22:18.040 --> 0:22:20.360
<v Speaker 6>is the artery is that's where we have heart attacks.

0:22:20.840 --> 0:22:23.320
<v Speaker 6>And then we have electricity, which is the way our

0:22:23.320 --> 0:22:26.960
<v Speaker 6>heart beats, and then we have the structure of our heart,

0:22:27.119 --> 0:22:31.000
<v Speaker 6>and that's where congestive heart failure comes in. That's doctor

0:22:31.080 --> 0:22:34.520
<v Speaker 6>Courtney Jordan Beckler, the medical director of Health Equity and

0:22:34.600 --> 0:22:38.000
<v Speaker 6>health Promotion at the Minneapolis Heart Institute Foundation.

0:22:38.880 --> 0:22:42.200
<v Speaker 4>So, when the blood goes into the heart and then

0:22:42.320 --> 0:22:46.520
<v Speaker 4>comes out, the percentage of blood that goes in versus

0:22:46.560 --> 0:22:50.280
<v Speaker 4>going out, that's called our ejection fraction, and that's really

0:22:50.320 --> 0:22:53.719
<v Speaker 4>the pump of the heart. Fifty five percent of that

0:22:53.800 --> 0:22:56.119
<v Speaker 4>blood volume is what we consider normal.

0:22:56.200 --> 0:22:58.480
<v Speaker 6>That's a normal functioning heart.

0:22:58.680 --> 0:23:01.400
<v Speaker 4>So it's something you don't want less and you don't

0:23:01.440 --> 0:23:05.600
<v Speaker 4>want more, and so there's all sorts of definitions, but

0:23:05.720 --> 0:23:09.000
<v Speaker 4>for sure, less than forty five percent is when we

0:23:09.080 --> 0:23:13.000
<v Speaker 4>start to classify mild heart failure. It's more severe at

0:23:13.080 --> 0:23:17.679
<v Speaker 4>thirty five percent, and then very severe at twenty five percent,

0:23:17.800 --> 0:23:20.120
<v Speaker 4>and under is more advanced heart failure.

0:23:20.880 --> 0:23:25.280
<v Speaker 6>How can can just a heart failure impact people's lives?

0:23:25.960 --> 0:23:29.160
<v Speaker 6>Heart failure if we don't do anything.

0:23:28.840 --> 0:23:32.640
<v Speaker 4>About it, on average, fifty percent of people will die

0:23:32.920 --> 0:23:33.800
<v Speaker 4>in five years.

0:23:34.400 --> 0:23:35.640
<v Speaker 6>And so it's a big deal.

0:23:36.240 --> 0:23:40.439
<v Speaker 4>It can be an end stage process in terms of

0:23:40.480 --> 0:23:45.320
<v Speaker 4>death if we don't get people the necessary treatment early on,

0:23:45.920 --> 0:23:48.840
<v Speaker 4>and I think importantly to many of these conversations, it

0:23:48.880 --> 0:23:52.200
<v Speaker 4>can impair your physical and mental health.

0:23:53.520 --> 0:23:58.199
<v Speaker 6>Are there things about his specific case also, just in

0:23:58.280 --> 0:24:02.240
<v Speaker 6>terms of his age that might have made a quicker

0:24:02.720 --> 0:24:07.280
<v Speaker 6>diagnosis more difficult? What stuck out as unusual? Yeah, really

0:24:07.359 --> 0:24:08.040
<v Speaker 6>great question.

0:24:08.200 --> 0:24:12.040
<v Speaker 4>I think that because Girod is a little bit younger,

0:24:12.560 --> 0:24:16.400
<v Speaker 4>we often think about heart disease impacting people only when

0:24:16.480 --> 0:24:20.000
<v Speaker 4>they get old, incorrectly. In fact, you know, one of

0:24:20.040 --> 0:24:24.680
<v Speaker 4>the fastest growing demographics of heart attacks is women aged

0:24:24.720 --> 0:24:27.120
<v Speaker 4>thirty five to forty five, which a lot of people

0:24:27.200 --> 0:24:30.399
<v Speaker 4>don't know. But the point being, some of these types

0:24:30.440 --> 0:24:33.960
<v Speaker 4>of statistics take a long time for physicians to start

0:24:34.000 --> 0:24:37.080
<v Speaker 4>to pick up on and see that, gosh, we're seeing

0:24:37.280 --> 0:24:41.000
<v Speaker 4>Unfortunately some of these diagnoses at younger and younger ages.

0:24:41.480 --> 0:24:44.800
<v Speaker 4>So I do think unfortunately that was one of the

0:24:44.960 --> 0:24:49.320
<v Speaker 4>challenges with Drod's diagnosis, is that had he been older,

0:24:49.920 --> 0:24:52.800
<v Speaker 4>we would have been more likely to think of that faster.

0:24:53.119 --> 0:24:55.520
<v Speaker 4>It's definitely not an excuse, but I think that is

0:24:55.520 --> 0:24:56.080
<v Speaker 4>a reality.

0:24:56.640 --> 0:24:59.000
<v Speaker 6>Gerard was only twenty nine years old when he was

0:24:59.040 --> 0:25:02.639
<v Speaker 6>diagnosed with co est of heart failure, unusually young for

0:25:02.680 --> 0:25:06.360
<v Speaker 6>someone to experience such significant cardiac issues. He was put

0:25:06.400 --> 0:25:08.960
<v Speaker 6>on a regiment of medicines and also given a life fest,

0:25:09.280 --> 0:25:12.520
<v Speaker 6>a defibrillator he needs to wear constantly in case his

0:25:12.560 --> 0:25:15.360
<v Speaker 6>heart has to be shocked back into a normal rhythm.

0:25:15.640 --> 0:25:17.720
<v Speaker 6>Though he had an answer for what had been plaguing

0:25:17.800 --> 0:25:21.240
<v Speaker 6>him in many ways, his diagnosis only opened the door

0:25:21.280 --> 0:25:23.320
<v Speaker 6>to a host of new questions.

0:25:24.880 --> 0:25:27.719
<v Speaker 1>What does this mean for my life and my family?

0:25:28.119 --> 0:25:30.000
<v Speaker 1>If I do have a fifty to fifty percent chance,

0:25:30.920 --> 0:25:32.359
<v Speaker 1>does that mean I'm not going to make it? And

0:25:32.400 --> 0:25:34.400
<v Speaker 1>if not, what's going to happen to my family at

0:25:34.400 --> 0:25:34.879
<v Speaker 1>that point?

0:25:35.840 --> 0:25:40.240
<v Speaker 6>Wow? And I mean talk about an undiagnosed illness and

0:25:40.400 --> 0:25:45.080
<v Speaker 6>enemy from within? How did you feel about your own heart,

0:25:45.720 --> 0:25:47.919
<v Speaker 6>about your own body in that moment?

0:25:48.880 --> 0:25:52.480
<v Speaker 1>I guess I just was thinking what did I do

0:25:52.760 --> 0:25:54.639
<v Speaker 1>to fail my body?

0:25:54.720 --> 0:25:56.320
<v Speaker 5>Or what did my body do to fail me?

0:25:57.000 --> 0:26:00.920
<v Speaker 1>And it's hard to not think, you know, what's wrong

0:26:00.960 --> 0:26:01.480
<v Speaker 1>with my heart?

0:26:01.520 --> 0:26:03.399
<v Speaker 5>Like why did.

0:26:03.280 --> 0:26:05.640
<v Speaker 1>This happen to me? Is it because of something I did?

0:26:05.760 --> 0:26:08.199
<v Speaker 1>Or the ways I'm not taking care of myself? And

0:26:08.240 --> 0:26:12.639
<v Speaker 1>in some ways I think that I wasn't set up

0:26:12.720 --> 0:26:14.960
<v Speaker 1>or positioned well in a lot of different arenas to

0:26:15.200 --> 0:26:17.120
<v Speaker 1>do that. But I think that I had a lot

0:26:17.160 --> 0:26:19.479
<v Speaker 1>of self blame. I was like, how did I let

0:26:19.560 --> 0:26:20.240
<v Speaker 1>it get to this?

0:26:20.960 --> 0:26:23.560
<v Speaker 6>At this point, you at least had the life fest

0:26:23.600 --> 0:26:24.480
<v Speaker 6>to have you though.

0:26:24.760 --> 0:26:28.480
<v Speaker 1>The life fest it was helpful, but it's not perfect either.

0:26:28.920 --> 0:26:30.480
<v Speaker 1>It would beep in the middle of the night and

0:26:30.480 --> 0:26:32.960
<v Speaker 1>I'd have to readjust it. The first time that it

0:26:33.040 --> 0:26:36.200
<v Speaker 1>beat was terrifying because it's like, oh no, it's something happening.

0:26:36.800 --> 0:26:39.479
<v Speaker 5>You know. Ended up just being that the pads just

0:26:39.520 --> 0:26:40.360
<v Speaker 5>need to be shifted.

0:26:40.440 --> 0:26:44.880
<v Speaker 1>But it was also just hard to live life with this,

0:26:45.040 --> 0:26:48.280
<v Speaker 1>you know, five pound battery pack attached to my body

0:26:48.320 --> 0:26:49.320
<v Speaker 1>at all times.

0:26:49.880 --> 0:26:52.760
<v Speaker 6>His kids were only two and four when he was diagnosed,

0:26:53.080 --> 0:26:55.520
<v Speaker 6>so much of their lives are ahead of them. The

0:26:55.560 --> 0:26:58.600
<v Speaker 6>gravity of what this meant for his life was constantly

0:26:58.640 --> 0:27:02.080
<v Speaker 6>on his mind for a new normal is what led

0:27:02.160 --> 0:27:05.560
<v Speaker 6>him to the Minnesota Hard Institute and his relationship with

0:27:05.640 --> 0:27:10.399
<v Speaker 6>doctor Jordan Beckler. Where was he in his diagnostic journey

0:27:10.400 --> 0:27:12.040
<v Speaker 6>when he first cross paths with you?

0:27:12.600 --> 0:27:16.679
<v Speaker 4>So he had already been formally diagnosed and was actively

0:27:16.760 --> 0:27:20.760
<v Speaker 4>on his treatment plan, but I think he was in

0:27:20.840 --> 0:27:23.600
<v Speaker 4>a place where he was able to kind of look

0:27:23.680 --> 0:27:27.240
<v Speaker 4>back and think about how things might have been different

0:27:27.359 --> 0:27:32.159
<v Speaker 4>in his journey with different additional help and opportunities along

0:27:32.160 --> 0:27:34.640
<v Speaker 4>the way from the health system. So I think from

0:27:34.680 --> 0:27:38.840
<v Speaker 4>a traditional treatment perspective, he was getting what he needed,

0:27:39.280 --> 0:27:42.520
<v Speaker 4>But what he was specifically reaching.

0:27:42.200 --> 0:27:45.160
<v Speaker 6>Out to us about is some of the social support.

0:27:45.840 --> 0:27:49.880
<v Speaker 4>We can't disconnect our head from our body. We are

0:27:50.080 --> 0:27:54.159
<v Speaker 4>whole human beings, and unfortunately, as I'm sure many of

0:27:54.200 --> 0:27:58.480
<v Speaker 4>your listeners know, sometimes in the way healthcare is practice now,

0:27:58.520 --> 0:28:02.480
<v Speaker 4>we do that. So I think that what Gerard was

0:28:02.480 --> 0:28:04.840
<v Speaker 4>looking for in part was that it took I believe

0:28:04.880 --> 0:28:07.760
<v Speaker 4>seven months for him to hear back from a social

0:28:07.800 --> 0:28:13.720
<v Speaker 4>worker and just navigating different changes in his life that

0:28:13.840 --> 0:28:17.040
<v Speaker 4>he was planning to make with work and family and

0:28:17.080 --> 0:28:20.720
<v Speaker 4>figuring out what that looked like living with a chronic disease.

0:28:20.800 --> 0:28:23.240
<v Speaker 6>I think that was what he was hoping to get

0:28:23.280 --> 0:28:23.640
<v Speaker 6>more of.

0:28:25.960 --> 0:28:30.520
<v Speaker 1>So she's very steeped into heart failure and health as

0:28:30.560 --> 0:28:34.720
<v Speaker 1>relates to women, people of color, and also thinking about

0:28:35.160 --> 0:28:40.320
<v Speaker 1>the environmental factors that impact people's health. She's really just

0:28:40.320 --> 0:28:42.840
<v Speaker 1>been a great thought partner and is a leader in

0:28:42.840 --> 0:28:46.000
<v Speaker 1>this space and someone who I have been able to

0:28:46.040 --> 0:28:51.520
<v Speaker 1>go to get feedback, ideas, recommendations, and just general insight

0:28:51.640 --> 0:28:53.840
<v Speaker 1>into better understanding heart failure.

0:28:53.880 --> 0:28:58.080
<v Speaker 6>More deeply, how important as a doctor is taking into

0:28:58.160 --> 0:29:02.560
<v Speaker 6>account the environment, mental factors, and stressors that a patient

0:29:02.880 --> 0:29:05.320
<v Speaker 6>is dealing with on a daily basis.

0:29:06.040 --> 0:29:09.520
<v Speaker 9>So it's critical we know that up to a third

0:29:09.800 --> 0:29:13.800
<v Speaker 9>of all cardiovascular disease is caused from poor mental health,

0:29:14.240 --> 0:29:21.800
<v Speaker 9>and that includes things like social isolation, anger, stress, anxiety, depression,

0:29:21.960 --> 0:29:26.920
<v Speaker 9>bipolar disorder, you know, schizophrenia, really severe types of mental health.

0:29:27.040 --> 0:29:31.280
<v Speaker 4>So it's actually as much of an impact as having

0:29:31.400 --> 0:29:35.040
<v Speaker 4>abdominal obesity or smoking, But we don't talk about it

0:29:35.120 --> 0:29:39.400
<v Speaker 4>in the same way as physicians, as healthcare folks in general,

0:29:39.560 --> 0:29:43.680
<v Speaker 4>and unfortunately, because we don't have a pill for that,

0:29:44.320 --> 0:29:46.880
<v Speaker 4>we get nervous to ask. But to what you're saying,

0:29:46.960 --> 0:29:51.320
<v Speaker 4>it's critical that we understand that has an impact not

0:29:51.440 --> 0:29:56.560
<v Speaker 4>only on the ability of the body to adequately fight disease,

0:29:56.680 --> 0:30:01.040
<v Speaker 4>whether it's COVID or ongoing heart issues, but it also

0:30:01.640 --> 0:30:06.280
<v Speaker 4>impacts our ability to take medications on a routine basis,

0:30:06.320 --> 0:30:09.320
<v Speaker 4>our ability to get outside and go for a walk,

0:30:09.480 --> 0:30:12.760
<v Speaker 4>or nourish ourselves with good foods.

0:30:12.320 --> 0:30:15.200
<v Speaker 6>Navigating proper health management can be a journey all on

0:30:15.240 --> 0:30:18.520
<v Speaker 6>its own, one that rivaled even the treacherous road to

0:30:18.560 --> 0:30:23.479
<v Speaker 6>the proper diagnosis. However, finding empowering care and support is

0:30:23.560 --> 0:30:27.280
<v Speaker 6>what truly changed the course of Girod's life. He now

0:30:27.360 --> 0:30:29.880
<v Speaker 6>has found a place and people who are there to

0:30:29.920 --> 0:30:32.520
<v Speaker 6>help him take care of his mind, body, and spirit.

0:30:34.000 --> 0:30:36.240
<v Speaker 2>We've talked about, like maybe we want to move out

0:30:36.240 --> 0:30:39.800
<v Speaker 2>of the freezing, bitter cold someday, and it's like, no,

0:30:40.040 --> 0:30:42.800
<v Speaker 2>we're not going to leave the Minneapolis Heart Institute. Like

0:30:42.920 --> 0:30:46.480
<v Speaker 2>this is where we are. We have such an amazing team,

0:30:46.920 --> 0:30:51.360
<v Speaker 2>and like we just feel so so lucky. Not everybody

0:30:51.400 --> 0:30:54.120
<v Speaker 2>has health insurance, not everybody has the resources that they

0:30:54.160 --> 0:30:57.040
<v Speaker 2>need to access that, but like it's such an amazing

0:30:57.080 --> 0:30:59.760
<v Speaker 2>place and I hope that everybody that needs it can

0:30:59.800 --> 0:31:00.200
<v Speaker 2>have it.

0:31:01.160 --> 0:31:05.320
<v Speaker 6>Girrod has now started to find a relatively stable pattern

0:31:05.360 --> 0:31:08.120
<v Speaker 6>in his life. He switched from the life best to

0:31:08.200 --> 0:31:13.000
<v Speaker 6>an internal defibrillator called an ICD, making it much easier

0:31:13.040 --> 0:31:17.120
<v Speaker 6>and more comfortable to move around. He's also realized how

0:31:17.240 --> 0:31:20.840
<v Speaker 6>lonely this diagnostic journey felt at times. Even though he

0:31:20.880 --> 0:31:24.040
<v Speaker 6>did have so much family support, he was missing the

0:31:24.080 --> 0:31:26.840
<v Speaker 6>connection to people who were going through a similar journey

0:31:26.960 --> 0:31:30.040
<v Speaker 6>to talk with and to share with. So Girod is

0:31:30.160 --> 0:31:32.720
<v Speaker 6>now using his story to make sure no one else

0:31:32.760 --> 0:31:35.960
<v Speaker 6>with heart failure has to be missing that important piece.

0:31:37.440 --> 0:31:41.720
<v Speaker 6>When did you realize that you needed to connect with

0:31:41.800 --> 0:31:45.200
<v Speaker 6>a larger community? When did you realize that you needed

0:31:45.760 --> 0:31:50.760
<v Speaker 6>support from other people who were going through what you

0:31:51.000 --> 0:31:52.840
<v Speaker 6>now had on your plate.

0:31:53.360 --> 0:31:58.360
<v Speaker 1>As a black person who very much believes and community

0:31:59.040 --> 0:32:02.400
<v Speaker 1>as part of our healing process. It was part of

0:32:02.440 --> 0:32:05.200
<v Speaker 1>our journey, as part of how we raise kids. It's

0:32:05.240 --> 0:32:10.400
<v Speaker 1>not just about medications and limiting sodium and water intake

0:32:10.480 --> 0:32:13.320
<v Speaker 1>and working out. It's about community, it's about joy, It's

0:32:13.320 --> 0:32:16.640
<v Speaker 1>about healing with other people. And this is something that's

0:32:16.640 --> 0:32:19.720
<v Speaker 1>true about my community in general, is that if there's

0:32:19.720 --> 0:32:20.800
<v Speaker 1>a space that doesn't.

0:32:20.520 --> 0:32:22.120
<v Speaker 5>Exist for us, we're going to create a space.

0:32:22.720 --> 0:32:25.640
<v Speaker 4>That's what I did, and I don't know if Gerrod

0:32:25.680 --> 0:32:28.080
<v Speaker 4>explained that to you. That's part of when we met

0:32:28.320 --> 0:32:31.320
<v Speaker 4>was in this quest to start a support group. Now,

0:32:31.400 --> 0:32:34.280
<v Speaker 4>I've been a part of support group since my time

0:32:34.520 --> 0:32:37.760
<v Speaker 4>in Fellowship, particularly because we have so many disparities with

0:32:37.800 --> 0:32:41.640
<v Speaker 4>women heart disease, and so I helped lead a support

0:32:41.680 --> 0:32:43.120
<v Speaker 4>group at that time.

0:32:43.160 --> 0:32:46.560
<v Speaker 1>It's been great. And as much as I think that

0:32:46.600 --> 0:32:49.400
<v Speaker 1>maybe I've helped people, they've helped me as well. So

0:32:49.640 --> 0:32:52.479
<v Speaker 1>I think that I've stepped into this whole new world

0:32:52.520 --> 0:32:56.680
<v Speaker 1>of not only DEI work, but advocacy, health equity. There's

0:32:56.720 --> 0:33:00.920
<v Speaker 1>a world out there of research and things that people

0:33:00.920 --> 0:33:05.960
<v Speaker 1>are understanding about the physiological impacts of racism, stress, poverty

0:33:06.560 --> 0:33:11.640
<v Speaker 1>on communities, and particularly black communities. And I think that

0:33:12.000 --> 0:33:17.080
<v Speaker 1>society tells us that our outcomes are our fault and

0:33:17.120 --> 0:33:21.200
<v Speaker 1>our fault alone. Now I'm thinking about not only how

0:33:21.240 --> 0:33:23.760
<v Speaker 1>do I maintain my own health, but how do I

0:33:23.840 --> 0:33:27.240
<v Speaker 1>help other folks have access to better care so that

0:33:27.680 --> 0:33:30.920
<v Speaker 1>if they are at risk or experience heart failure, that

0:33:30.960 --> 0:33:33.400
<v Speaker 1>they can get the level of care that I got

0:33:33.440 --> 0:33:35.120
<v Speaker 1>and the level of support that I got.

0:33:35.440 --> 0:33:39.200
<v Speaker 6>The same King of Chill, eternal optimist and constant rock

0:33:39.200 --> 0:33:42.680
<v Speaker 6>of support for Courtney, is now giving his energy to

0:33:42.840 --> 0:33:44.920
<v Speaker 6>make sure other people don't have to wait as long

0:33:44.960 --> 0:33:49.480
<v Speaker 6>to find a diagnosis or community with shared experiences. This

0:33:49.600 --> 0:33:54.760
<v Speaker 6>drive pushed Drawd to start posting about his journey on Instagram.

0:33:55.320 --> 0:33:57.560
<v Speaker 1>And I remember my wife and sister were just talking

0:33:57.560 --> 0:34:01.120
<v Speaker 1>about how ever, since I was with heart failure, I

0:34:01.160 --> 0:34:04.480
<v Speaker 1>have like these really critical and direct hot takes. I

0:34:04.520 --> 0:34:06.240
<v Speaker 1>think that we kind of joked around like heart Failure

0:34:06.280 --> 0:34:08.000
<v Speaker 1>hot takes, and I was like, you know what, this

0:34:08.080 --> 0:34:11.160
<v Speaker 1>is actually kind of cool. We should do something with this.

0:34:11.880 --> 0:34:15.640
<v Speaker 1>And from there I created the Instagram page heart Failure

0:34:15.640 --> 0:34:19.000
<v Speaker 1>hot Takes as a way really to share my story

0:34:19.440 --> 0:34:21.719
<v Speaker 1>and in some ways it was about community, but in

0:34:21.760 --> 0:34:24.200
<v Speaker 1>a lot of ways it was just therapeutic for me

0:34:24.320 --> 0:34:24.800
<v Speaker 1>to share.

0:34:25.840 --> 0:34:29.960
<v Speaker 4>Gerard is definitely somebody that is living his life. He

0:34:30.080 --> 0:34:35.000
<v Speaker 4>is thriving, He's living alongside his diagnosis. He has definitely

0:34:35.640 --> 0:34:41.759
<v Speaker 4>not become his diagnosis. Also, he is out trying to

0:34:41.800 --> 0:34:46.160
<v Speaker 4>make this easier for other people. I just, both personally

0:34:46.200 --> 0:34:48.600
<v Speaker 4>and professionally, have so much respect for that.

0:34:50.480 --> 0:34:54.719
<v Speaker 1>And the last thing that I will say is take

0:34:54.800 --> 0:34:59.560
<v Speaker 1>the time to appreciate and show gratitude for yourself and

0:34:59.600 --> 0:35:04.279
<v Speaker 1>for others in your life, because it's hard to do

0:35:04.320 --> 0:35:05.279
<v Speaker 1>this without.

0:35:05.040 --> 0:35:05.520
<v Speaker 5>Any of that.

0:35:06.320 --> 0:35:10.680
<v Speaker 1>And the more gratitude and compassionate you show yourself and

0:35:10.760 --> 0:35:13.799
<v Speaker 1>to others, the easier this becomes as well.

0:35:14.719 --> 0:35:17.560
<v Speaker 2>The hope that I have for everyone is that they

0:35:17.680 --> 0:35:20.640
<v Speaker 2>know that they're allowed to advocate for themselves. I think

0:35:20.760 --> 0:35:23.480
<v Speaker 2>so often we kind of get that white coat syndrome,

0:35:23.520 --> 0:35:26.480
<v Speaker 2>not just with our own stress around medical providers, but

0:35:26.600 --> 0:35:30.680
<v Speaker 2>just about you know where our agency lies. Don't be

0:35:30.800 --> 0:35:34.120
<v Speaker 2>afraid to keep asking questions. Don't be afraid to ask

0:35:34.200 --> 0:35:37.000
<v Speaker 2>them to note it in your chart that they are

0:35:37.040 --> 0:35:42.719
<v Speaker 2>declining your request for a test to be run like

0:35:42.760 --> 0:35:45.200
<v Speaker 2>that is within your right to want the best for.

0:35:45.160 --> 0:35:46.520
<v Speaker 3>Yourself and the people that you love.

0:35:50.520 --> 0:35:54.000
<v Speaker 6>You can follow Girod's journey with heart failure on Instagram

0:35:54.200 --> 0:35:56.240
<v Speaker 6>at heart Failure Hot Takes.

0:35:58.239 --> 0:36:00.640
<v Speaker 1>My name is Gerrod Green and I was twenty nine

0:36:00.719 --> 0:36:03.200
<v Speaker 1>years old when I was diagnosed with congestive heart failure.

0:36:05.120 --> 0:36:08.080
<v Speaker 6>On the next episode of Symptomatic Chris Thaudi had a

0:36:08.120 --> 0:36:12.640
<v Speaker 6>simple case of indigestion, but things quickly became unmanageable, losing

0:36:12.680 --> 0:36:16.640
<v Speaker 6>control of his GI flares. No intervention could seem to

0:36:16.719 --> 0:36:17.760
<v Speaker 6>ease his suffering.

0:36:18.560 --> 0:36:21.959
<v Speaker 11>I drove myself to the hospital, to the emergency room

0:36:22.640 --> 0:36:25.759
<v Speaker 11>in a sheer panic because I was worried if I

0:36:25.800 --> 0:36:28.520
<v Speaker 11>called the ambulance, you know, they wouldn't get there in

0:36:28.560 --> 0:36:32.560
<v Speaker 11>time or whatever. And I had never felt anything like

0:36:32.640 --> 0:36:37.880
<v Speaker 11>that before, pain radiating from everywhere. That's essentially what it

0:36:37.880 --> 0:36:38.319
<v Speaker 11>felt like.

0:36:39.280 --> 0:36:45.319
<v Speaker 6>Uncover what sent his body into a full allergic spiral symptomatic.

0:36:45.360 --> 0:36:48.760
<v Speaker 6>A Medical Mystery podcast is a production of Ruby's Studio

0:36:48.880 --> 0:36:53.040
<v Speaker 6>from iHeartMedia. Our show was hosted by me Lauren brad Pacheco.

0:36:53.560 --> 0:36:57.680
<v Speaker 6>Executive producers are Matt Romano and myself. Our EP of

0:36:57.719 --> 0:37:02.080
<v Speaker 6>post production is James Foster. Our producers are Sierra Kaiser

0:37:02.200 --> 0:37:06.000
<v Speaker 6>and John Irwin, and this episode was researched by Diana Davis.

0:37:16.160 --> 0:37:19.640
<v Speaker 7>In Trusto Sukubatu Valsartan Tablets is the number one heart

0:37:19.640 --> 0:37:23.160
<v Speaker 7>failure brand prescribed by cardiologists and has helped over one

0:37:23.320 --> 0:37:26.560
<v Speaker 7>million people. It's a prescription medicine that treats adults with

0:37:26.640 --> 0:37:29.279
<v Speaker 7>long lasting heart failure and works better when the heart

0:37:29.320 --> 0:37:31.640
<v Speaker 7>cannot pump a normal amount of blood to the body.

0:37:32.080 --> 0:37:34.239
<v Speaker 12>Don't take in Trusto if pregnant. It can cause harm

0:37:34.320 --> 0:37:36.680
<v Speaker 12>or death to an unborn baby. Don't take in Trusto

0:37:36.760 --> 0:37:39.000
<v Speaker 12>with an ACE inhibitor or Alice Karen, or if you've

0:37:39.040 --> 0:37:41.920
<v Speaker 12>had angioedema with an ACE or ARB, don't take with

0:37:42.000 --> 0:37:44.400
<v Speaker 12>Alice Karen or within thirty six hours of taking an

0:37:44.440 --> 0:37:47.879
<v Speaker 12>ACE inhibitor. The most serious side effects are angioedema, low

0:37:47.920 --> 0:37:51.920
<v Speaker 12>blood pressure, kidney problems, or high blood potassium Angioedema is

0:37:51.960 --> 0:37:54.440
<v Speaker 12>swelling of your face, lips, tongue, and throat that may

0:37:54.480 --> 0:37:57.759
<v Speaker 12>cause death. If it causes difficulty breathing, get emergency help.

0:37:58.160 --> 0:38:01.600
<v Speaker 7>Ask your doctor about Intrusto. To learn more, visit support

0:38:01.640 --> 0:38:04.600
<v Speaker 7>dot intrusto dot com or call eight three three four

0:38:04.640 --> 0:38:08.640
<v Speaker 7>four six six six nine nine. Propricing visit in TRUSTe

0:38:08.719 --> 0:38:11.880
<v Speaker 7>dot com. Backslash cost. If you can't afford your medication,

0:38:12.160 --> 0:38:13.600
<v Speaker 7>Novartis may be able to help