1 00:00:01,440 --> 00:00:04,240 Speaker 1: Welcome to Stuff you Should Know, a production of I 2 00:00:04,360 --> 00:00:13,160 Speaker 1: Heart Radio. Hey, and welcome to the podcast. I'm Josh, 3 00:00:13,200 --> 00:00:15,400 Speaker 1: and there's Chuck and Jerry's here too, and this is 4 00:00:15,440 --> 00:00:19,960 Speaker 1: a good old fashioned stuff you should know and it's serendipitous. Chuck, 5 00:00:20,079 --> 00:00:23,479 Speaker 1: do you wanna know why? I know why? Oh you 6 00:00:23,520 --> 00:00:25,880 Speaker 1: do here? Well, I think you're probably gonna say that 7 00:00:25,920 --> 00:00:30,880 Speaker 1: we're recording this during Down Syndrome Month. That is correct, sir, 8 00:00:31,080 --> 00:00:37,120 Speaker 1: although it will be released uh in November probably, Yeah, 9 00:00:37,200 --> 00:00:40,360 Speaker 1: but still we're recording in down Syndrome Awareness Month. And 10 00:00:40,479 --> 00:00:42,920 Speaker 1: I had no idea that October was down Syndrome Awared, 11 00:00:44,560 --> 00:00:46,800 Speaker 1: So I think it's pretty cool that it worked out. 12 00:00:46,840 --> 00:00:49,920 Speaker 1: Anytime it works out like that. That's right. We're we're 13 00:00:49,960 --> 00:00:51,680 Speaker 1: recording way ahead of time. We're trying to bulk up 14 00:00:51,680 --> 00:00:54,000 Speaker 1: for our Christmas holiday break that we like to take. 15 00:00:54,520 --> 00:00:57,680 Speaker 1: That's right. I voted today early voting. If that shows 16 00:00:57,720 --> 00:01:00,760 Speaker 1: you when this is congrats Chuck. And it felt good 17 00:01:00,760 --> 00:01:02,760 Speaker 1: to just get or done, get it out of the way. 18 00:01:03,720 --> 00:01:08,199 Speaker 1: And it feels good to do this episode because down 19 00:01:08,280 --> 00:01:14,360 Speaker 1: syndrome is a condition that is really really really changed. Yeah, 20 00:01:14,880 --> 00:01:18,399 Speaker 1: a lot like in our lifetime, like since since the 21 00:01:18,480 --> 00:01:22,560 Speaker 1: nineteen seventies. Uh, and how it's how it's viewed, how 22 00:01:22,560 --> 00:01:26,560 Speaker 1: it's accepted, and actual health outcomes, and a lot of 23 00:01:26,560 --> 00:01:30,600 Speaker 1: those health outcomes actually have something to do with how 24 00:01:30,640 --> 00:01:33,800 Speaker 1: it's been viewed and accepted, which is remarkable and sad, 25 00:01:34,319 --> 00:01:37,480 Speaker 1: you know, if you're speaking historically. Yeah, yeah, for sure. 26 00:01:37,640 --> 00:01:39,679 Speaker 1: But I mean that's just the headway that's been made 27 00:01:39,720 --> 00:01:43,080 Speaker 1: things to in large part the disability rights movement. Yeah, 28 00:01:43,240 --> 00:01:45,640 Speaker 1: people with Down syndrome have really benefited from that, and 29 00:01:45,800 --> 00:01:48,520 Speaker 1: I'm happy it can be about that too, that's right. Um, 30 00:01:48,880 --> 00:01:51,320 Speaker 1: we should say from the outset, we're talking about a 31 00:01:51,320 --> 00:01:54,880 Speaker 1: group of human beings who, like any group of human beings, 32 00:01:54,880 --> 00:02:00,440 Speaker 1: are um, incredibly varied in talent, skills, hopes, dreams, um, 33 00:02:00,440 --> 00:02:04,400 Speaker 1: medical problems, facial features, all that stuff. So to say, 34 00:02:04,480 --> 00:02:07,240 Speaker 1: like you know, down syndrome people all look a certain 35 00:02:07,240 --> 00:02:11,040 Speaker 1: way or they're all happy all the time, is it's 36 00:02:11,080 --> 00:02:14,600 Speaker 1: stereotypical and incorrect at the very least, you know. Um, 37 00:02:14,680 --> 00:02:16,640 Speaker 1: So we just want to preface all of this that 38 00:02:16,680 --> 00:02:21,079 Speaker 1: we're talking in in total generalities here about Down syndrome 39 00:02:21,080 --> 00:02:23,200 Speaker 1: people in general. Just keep in mind this is not 40 00:02:23,320 --> 00:02:26,240 Speaker 1: some pet group, like any group of humans is not 41 00:02:26,320 --> 00:02:29,239 Speaker 1: some pat group, that's right. Although I will say every 42 00:02:29,400 --> 00:02:31,839 Speaker 1: kid that I've ever met who had Down syndrome, which 43 00:02:31,880 --> 00:02:35,919 Speaker 1: has been a handful, have been some of the most wonderful, loving, 44 00:02:36,040 --> 00:02:39,600 Speaker 1: sweetest kids I've ever met in my life, every single one. 45 00:02:39,720 --> 00:02:43,280 Speaker 1: And I met some other kids who are just jerks. Yeah, 46 00:02:43,600 --> 00:02:46,840 Speaker 1: for sure, for sure, And again it's a it's a stereotype. 47 00:02:47,080 --> 00:02:50,079 Speaker 1: It seems to be rooted in a lot of anecdotal evidence. 48 00:02:50,120 --> 00:02:53,000 Speaker 1: But just just keep in mind, like the people with 49 00:02:53,080 --> 00:02:56,200 Speaker 1: Down syndrome have rich inner lives, and they're happy, sometimes 50 00:02:56,200 --> 00:02:59,160 Speaker 1: they're sad, sometimes they're angry, sometimes they're frustrated, sometimes they're 51 00:02:59,200 --> 00:03:02,960 Speaker 1: glad sometimes Like again, they're human beings, so just don't 52 00:03:03,000 --> 00:03:06,040 Speaker 1: forget that. UM. So again we caveated that by saying 53 00:03:06,080 --> 00:03:08,720 Speaker 1: we're talking in general, and this doesn't apply to all 54 00:03:08,760 --> 00:03:11,840 Speaker 1: people with Down syndrome, but there are some facial characteristics 55 00:03:11,880 --> 00:03:15,200 Speaker 1: that the majority of people with Down syndrome typically have 56 00:03:15,720 --> 00:03:20,240 Speaker 1: that um make them readily recognizable. I think, yeah, for sure. 57 00:03:20,680 --> 00:03:23,079 Speaker 1: And we should preface this also by saying that at 58 00:03:23,080 --> 00:03:25,679 Speaker 1: this point it's about I've seen between one and every 59 00:03:25,720 --> 00:03:29,320 Speaker 1: seven and eight hundred babies born in the United States 60 00:03:30,720 --> 00:03:33,360 Speaker 1: have down syndrome. So it's kind of somewhere in that range. 61 00:03:34,160 --> 00:03:39,520 Speaker 1: And if we're talking typical physical characteristics, almond shaped eyes 62 00:03:39,800 --> 00:03:44,520 Speaker 1: that typically slant upward. Um. Sometimes the net can be shorter, uh, 63 00:03:44,560 --> 00:03:48,320 Speaker 1: the ears can be smaller um sometimes and some of 64 00:03:48,320 --> 00:03:50,920 Speaker 1: these didn't even know. There can be tiny white spots 65 00:03:51,640 --> 00:03:55,040 Speaker 1: in the irises of the eyes. Um. Hands and feet 66 00:03:55,080 --> 00:03:59,840 Speaker 1: maybe a little smaller. And another interesting one increase a 67 00:04:00,000 --> 00:04:01,920 Speaker 1: cross the palm of the hand. Did you ever heard 68 00:04:01,920 --> 00:04:05,240 Speaker 1: of that? I had not? Uh. And then small pinky 69 00:04:05,360 --> 00:04:09,400 Speaker 1: fingers that sometimes can curb towards the thumb uh and 70 00:04:09,400 --> 00:04:13,600 Speaker 1: are generally a little shorter than average. Yeah. They also 71 00:04:13,720 --> 00:04:18,200 Speaker 1: typically have UM less than average muscle tone, and loose 72 00:04:18,320 --> 00:04:21,719 Speaker 1: joints frequently UM. And one of the things that I 73 00:04:21,760 --> 00:04:24,200 Speaker 1: did not realize before but I do now after doing 74 00:04:24,240 --> 00:04:25,880 Speaker 1: this research is that a lot of the stuff that 75 00:04:25,920 --> 00:04:29,760 Speaker 1: I think people chalk up to cognitive impairment among down 76 00:04:29,760 --> 00:04:34,520 Speaker 1: syndrome people are actually the result of UM motor impairment. 77 00:04:34,720 --> 00:04:37,960 Speaker 1: They're actually like, like a really good example is speech. 78 00:04:38,120 --> 00:04:42,920 Speaker 1: They tend to UM become verbal later than non down 79 00:04:42,960 --> 00:04:46,880 Speaker 1: syndrome kids. UM, but it's not because they don't know 80 00:04:46,920 --> 00:04:50,520 Speaker 1: how to talk. It's because their mouth muscles haven't developed 81 00:04:50,640 --> 00:04:53,120 Speaker 1: enough to actually talk, and that can actually lead to 82 00:04:53,120 --> 00:04:56,320 Speaker 1: a tremendous amount of frustration because you're a kid who 83 00:04:56,440 --> 00:05:00,359 Speaker 1: is unable to express himself for herself, and you would think, like, 84 00:05:00,720 --> 00:05:03,560 Speaker 1: you know this, this kid with Down syndrome can't talk 85 00:05:03,800 --> 00:05:07,599 Speaker 1: yet because of cognitive inabilities, and that's just not the case. 86 00:05:07,720 --> 00:05:10,719 Speaker 1: It's not the case. Um. There are also medical issues 87 00:05:10,760 --> 00:05:14,599 Speaker 1: that are typically arise when you have Down syndrome, and 88 00:05:14,640 --> 00:05:17,840 Speaker 1: this is just something that you know that parents need 89 00:05:17,920 --> 00:05:20,760 Speaker 1: to know if if you have a baby with Down syndrome, 90 00:05:20,880 --> 00:05:23,360 Speaker 1: you're gonna get a lot of information thrust upon you. 91 00:05:23,920 --> 00:05:27,240 Speaker 1: And there's a lot of information medically out there. Um. 92 00:05:27,520 --> 00:05:30,359 Speaker 1: One of the big ones is a congenital heart defect, 93 00:05:30,400 --> 00:05:33,280 Speaker 1: which is about half the people with Down syndrome end 94 00:05:33,360 --> 00:05:37,479 Speaker 1: up having this. About half might have some hearing and 95 00:05:37,560 --> 00:05:41,119 Speaker 1: vision problems, um, which can range. You know, the vision 96 00:05:41,200 --> 00:05:44,800 Speaker 1: can be anything from cataracts to just regular role near 97 00:05:44,800 --> 00:05:50,920 Speaker 1: sighted and far sidedness to um uh strabismus which uh, 98 00:05:50,960 --> 00:05:52,560 Speaker 1: that is something I've heard of before. That's when the 99 00:05:52,560 --> 00:05:55,840 Speaker 1: eyes don't track together. Yeah. A lot of people used 100 00:05:55,880 --> 00:05:58,960 Speaker 1: to call it being cross eyed. Yeah, exactly, um. And 101 00:05:59,000 --> 00:06:04,080 Speaker 1: then I think later in like the puberty years, they 102 00:06:04,120 --> 00:06:06,520 Speaker 1: found that sometimes they can lose their sense of smell. 103 00:06:06,640 --> 00:06:10,280 Speaker 1: Is that right, Yes, which is fascinating, And we'll talk 104 00:06:10,360 --> 00:06:12,960 Speaker 1: a lot of a little more about that later on 105 00:06:13,080 --> 00:06:17,400 Speaker 1: because they may have found a way to treat that incidentally. Um, 106 00:06:17,440 --> 00:06:19,680 Speaker 1: but yeah, there seems to be like a decline in 107 00:06:20,200 --> 00:06:27,520 Speaker 1: ability to smell and in cognitive abilities around puberty. Okay. Uh. 108 00:06:27,800 --> 00:06:34,120 Speaker 1: Thyroid problems can happen, um, usually hyperthyroidism, UH, tummy issues, UH, 109 00:06:34,240 --> 00:06:37,679 Speaker 1: sleep apnea or asthma, like some kind of general breathing issues, 110 00:06:39,120 --> 00:06:41,800 Speaker 1: childhood leukemia, and then another thing that we'll talk about 111 00:06:41,800 --> 00:06:44,440 Speaker 1: a little bit more. Um. And it's very sad, but 112 00:06:44,680 --> 00:06:50,000 Speaker 1: Alzheimer's disease can come pretty early sometimes, right. So what 113 00:06:50,160 --> 00:06:52,520 Speaker 1: we just did, Chuck, Um, from what I understand is 114 00:06:52,560 --> 00:06:55,360 Speaker 1: what a doctor will basically tell a parent when they 115 00:06:55,360 --> 00:06:58,520 Speaker 1: find out that their child, or their fetus or their 116 00:06:58,600 --> 00:07:00,880 Speaker 1: child in the womb, however you want to put it, 117 00:07:01,120 --> 00:07:04,520 Speaker 1: Um almost certainly has Down syndrome. And I saw a 118 00:07:04,600 --> 00:07:08,719 Speaker 1: Down syndrome rights activist who was like, yeah, I think 119 00:07:08,720 --> 00:07:12,240 Speaker 1: if you gave an expecting parent a list of all 120 00:07:12,360 --> 00:07:17,400 Speaker 1: the possible medical problems any person could have like no 121 00:07:17,440 --> 00:07:20,800 Speaker 1: one would have a kid. So just bear in mind that, 122 00:07:20,880 --> 00:07:23,440 Speaker 1: like there's actually more it can be. It can be 123 00:07:23,920 --> 00:07:26,240 Speaker 1: more pronounced than this, it can be less pronounced than this. 124 00:07:26,240 --> 00:07:31,000 Speaker 1: This is just kind of the Down syndrome population just 125 00:07:31,080 --> 00:07:34,400 Speaker 1: tends to have these problems more than the general population. 126 00:07:34,640 --> 00:07:36,600 Speaker 1: That's a good way to put it. Uh, And we'll 127 00:07:36,600 --> 00:07:38,600 Speaker 1: talk about this a little bit more too. But your 128 00:07:38,680 --> 00:07:44,160 Speaker 1: chances of having a baby with Down syndrome increases as 129 00:07:44,160 --> 00:07:47,640 Speaker 1: you get older. So if you're twenty five years old, 130 00:07:47,640 --> 00:07:51,200 Speaker 1: the chances about one in one thousand, two hundred and fifty, 131 00:07:51,960 --> 00:07:55,160 Speaker 1: and then if you're forty plus that goes to about 132 00:07:55,200 --> 00:07:57,880 Speaker 1: one and a hundred UM. But we said, now it 133 00:07:57,920 --> 00:08:00,280 Speaker 1: shakes out to, you know, an average of about one 134 00:08:00,280 --> 00:08:02,760 Speaker 1: and seven to eight hundred when you take the full 135 00:08:02,880 --> 00:08:06,600 Speaker 1: you know, birthen age range, right exactly. I also saw 136 00:08:06,640 --> 00:08:09,360 Speaker 1: that somebody who has already had a baby with Down 137 00:08:09,360 --> 00:08:12,960 Speaker 1: syndrome is more likely to have another baby with Down syndrome. 138 00:08:13,720 --> 00:08:17,840 Speaker 1: UM and you said something about the syndrome being tied 139 00:08:17,880 --> 00:08:21,520 Speaker 1: to the mom's age. I saw something like nineties something 140 00:08:21,560 --> 00:08:25,680 Speaker 1: percent of Down syndrome cases are the result of UM. 141 00:08:25,800 --> 00:08:29,400 Speaker 1: The donation of an extra chromosome by the mom. And 142 00:08:29,440 --> 00:08:32,560 Speaker 1: I didn't understand that UM until I saw it explained 143 00:08:32,559 --> 00:08:37,000 Speaker 1: by UM an author from an Atlantic article It's really good. 144 00:08:37,280 --> 00:08:41,079 Speaker 1: Her name is Sophia Zang, and she explained that UM. 145 00:08:41,120 --> 00:08:45,600 Speaker 1: I didn't realize this either. UM. When a woman's eggs developed, 146 00:08:45,640 --> 00:08:49,560 Speaker 1: they actually developed while she's a fetus, before she's even born. 147 00:08:49,920 --> 00:08:53,240 Speaker 1: Her eggs are are set and they contain one set 148 00:08:53,320 --> 00:08:55,720 Speaker 1: of twenty three chromosomes. You put that together with the 149 00:08:55,760 --> 00:08:59,200 Speaker 1: twenty three chromosomes carried by a male sperm when they fertilize, 150 00:08:59,240 --> 00:09:03,560 Speaker 1: you get a full forty six chromosomes. But over time, 151 00:09:03,880 --> 00:09:07,439 Speaker 1: as the woman ages, the proteins that hold those chromosomes 152 00:09:07,480 --> 00:09:11,280 Speaker 1: in place and lock them in where they should be UM, 153 00:09:11,360 --> 00:09:13,360 Speaker 1: that can degrade, and so they can kind of move 154 00:09:13,400 --> 00:09:17,199 Speaker 1: around or do different things, or get copied additionally accidentally. 155 00:09:17,679 --> 00:09:20,560 Speaker 1: And that is the basis of Down syndrome. It's also 156 00:09:20,640 --> 00:09:24,319 Speaker 1: called trizoni one, which means that there is a third 157 00:09:24,480 --> 00:09:29,440 Speaker 1: copy of UM chromosome one. That is that's Down syndrome. 158 00:09:29,440 --> 00:09:32,120 Speaker 1: That's what causes Down syndrome. It's the one thing all 159 00:09:32,200 --> 00:09:35,600 Speaker 1: people with Down syndrome have in common. Almost all people 160 00:09:35,640 --> 00:09:38,160 Speaker 1: I should say not. It doesn't even capture the full 161 00:09:38,200 --> 00:09:41,079 Speaker 1: population of down syndrome if you think about it. Yeah, 162 00:09:41,160 --> 00:09:44,160 Speaker 1: and like you said, the UM, I think in nine 163 00:09:44,880 --> 00:09:48,000 Speaker 1: of the cases when you were born with that extra 164 00:09:49,040 --> 00:09:54,280 Speaker 1: number twenty one chromosome, it is inherited from the mother. Uh. 165 00:09:54,320 --> 00:09:56,840 Speaker 1: And that is it looks like usually as a result 166 00:09:56,920 --> 00:10:01,000 Speaker 1: of the degradation of that protein that's holding everything together. 167 00:10:01,080 --> 00:10:03,600 Speaker 1: So it's really I never knew that. It's uh, it's 168 00:10:03,640 --> 00:10:08,120 Speaker 1: pretty amazing that we know so specifically how this stuff 169 00:10:08,160 --> 00:10:11,720 Speaker 1: works now. I think it was Chromosome twenty one was 170 00:10:11,800 --> 00:10:16,480 Speaker 1: the second human chromosome that was fully sequenced as part 171 00:10:16,480 --> 00:10:20,760 Speaker 1: of the Human Genome Project, and it's that extra chromosome. 172 00:10:20,840 --> 00:10:24,360 Speaker 1: Is that number twenty one that's uh, that causes all 173 00:10:24,440 --> 00:10:26,840 Speaker 1: of it. Yeah, I saw that. It's one of the 174 00:10:26,920 --> 00:10:31,400 Speaker 1: smallest chromosomes, if not the smallest chromosome, but it's responsible 175 00:10:31,520 --> 00:10:35,280 Speaker 1: for UM encoding anywhere from I saw two hundred to 176 00:10:35,360 --> 00:10:39,600 Speaker 1: four hundred different genes, and some of those genes expressed 177 00:10:39,760 --> 00:10:43,400 Speaker 1: different proteins UM that can be used in more than 178 00:10:43,440 --> 00:10:49,240 Speaker 1: one reaction. There's one called nuclear hormone receptor interacting protein. 179 00:10:49,760 --> 00:10:52,560 Speaker 1: Awesome name probably not a band name though I don't 180 00:10:52,559 --> 00:10:56,199 Speaker 1: think so too much. It's involved in twenty different functions 181 00:10:56,200 --> 00:10:59,120 Speaker 1: in the human body, just that one protein that's expressed 182 00:10:59,120 --> 00:11:01,520 Speaker 1: by that by one of those two D four hundred 183 00:11:01,559 --> 00:11:04,120 Speaker 1: genes on chromosome. So when you put all that together 184 00:11:04,160 --> 00:11:06,080 Speaker 1: and you realize how many proteins are involved in how 185 00:11:06,080 --> 00:11:08,560 Speaker 1: many different functions, that's how you get kind of this 186 00:11:08,679 --> 00:11:13,600 Speaker 1: galaxy of symptoms that make up Down syndrome essentially. Yeah, 187 00:11:13,640 --> 00:11:16,720 Speaker 1: and you mentioned that the trisomy twenty one doesn't even 188 00:11:16,760 --> 00:11:20,319 Speaker 1: cover the full range of Down syndrome. That is because 189 00:11:20,480 --> 00:11:24,680 Speaker 1: that's about the other five percent come from two other 190 00:11:24,720 --> 00:11:28,880 Speaker 1: ways that you can have Down syndrome. One is translocation down, 191 00:11:29,400 --> 00:11:32,839 Speaker 1: and that is when there is either a piece or 192 00:11:32,880 --> 00:11:36,360 Speaker 1: a part or either a whole extra copy of number 193 00:11:36,360 --> 00:11:39,319 Speaker 1: twenty one that's out there, but instead of being distinct 194 00:11:39,320 --> 00:11:43,920 Speaker 1: and separate, it's attached or translocated to a different chromosome. 195 00:11:44,160 --> 00:11:47,840 Speaker 1: And that's the accounts for three percent. And then uh, 196 00:11:47,840 --> 00:11:50,520 Speaker 1: and this is I know a kid, a friend of 197 00:11:50,559 --> 00:11:53,120 Speaker 1: our family who has mosaic down. That's the third type 198 00:11:53,760 --> 00:11:56,760 Speaker 1: and that is accounts for the other two percent. And 199 00:11:56,800 --> 00:11:59,719 Speaker 1: that is when um, some of the cells in your 200 00:11:59,760 --> 00:12:03,160 Speaker 1: body do have the three copies of the chromosome twenty one, 201 00:12:03,480 --> 00:12:07,000 Speaker 1: but others have the two, which is what you usually have. 202 00:12:07,440 --> 00:12:10,040 Speaker 1: So it's sort of a mix and they're all kind 203 00:12:10,040 --> 00:12:12,719 Speaker 1: of similar. But if you do have mosaic down, then 204 00:12:12,760 --> 00:12:16,480 Speaker 1: you tend to generally have fewer of the typical features 205 00:12:16,520 --> 00:12:19,080 Speaker 1: that you think of when you think of Down syndrome. Yeah, 206 00:12:19,120 --> 00:12:22,080 Speaker 1: they represented by a percentage of cells in your body 207 00:12:22,160 --> 00:12:26,640 Speaker 1: that have the third chromosome, and that that percentage reflects 208 00:12:26,679 --> 00:12:32,200 Speaker 1: that UM. Also that mosaic um down syndrome occurs after 209 00:12:32,679 --> 00:12:36,280 Speaker 1: the egg is fertilized, so it occurs during fetal development, 210 00:12:36,360 --> 00:12:40,840 Speaker 1: like a cell divides um differently, and that that third 211 00:12:40,920 --> 00:12:43,720 Speaker 1: chromosome is generated in some of the cells. That's why 212 00:12:43,760 --> 00:12:45,520 Speaker 1: some of the cells go on to divide. They didn't 213 00:12:45,559 --> 00:12:49,840 Speaker 1: have that that um that different division. They had regular 214 00:12:49,920 --> 00:12:53,680 Speaker 1: too chromosome or two pair chromosome division. Right. So UM, 215 00:12:53,760 --> 00:12:59,160 Speaker 1: that explains one of the mysteries I think behind Down syndrome, 216 00:12:59,200 --> 00:13:02,000 Speaker 1: which is how, um, you could have identical twins and 217 00:13:02,400 --> 00:13:04,360 Speaker 1: just one of them has Down syndrome and the other 218 00:13:04,400 --> 00:13:08,600 Speaker 1: one doesn't. Oh yeah, did you just figure that out? 219 00:13:10,000 --> 00:13:14,560 Speaker 1: Like is this breaking news from you? Oh? I see, Uh, 220 00:13:14,880 --> 00:13:18,760 Speaker 1: maybe maybe it's my it's my little contribution to the field. 221 00:13:19,000 --> 00:13:21,480 Speaker 1: All right. I think that's a good sort of general overview. 222 00:13:21,480 --> 00:13:23,920 Speaker 1: Maybe we should take a break and we'll talk a 223 00:13:23,960 --> 00:13:26,439 Speaker 1: little bit about I'm just gonna go and say it, 224 00:13:26,520 --> 00:13:30,120 Speaker 1: the shameful history of how humans dealt with people with 225 00:13:30,160 --> 00:14:00,559 Speaker 1: Down syndrome. Sorry, geh. So, if you're talking human history, 226 00:14:00,600 --> 00:14:04,360 Speaker 1: there has always been it seems like Down syndrome. Um, 227 00:14:04,640 --> 00:14:08,080 Speaker 1: you you dug up this was that like a clay 228 00:14:08,120 --> 00:14:12,199 Speaker 1: sculpture or something. I didn't dig it up, I think 229 00:14:12,200 --> 00:14:15,120 Speaker 1: in archaeol just did. But yes, I found it on 230 00:14:15,160 --> 00:14:17,800 Speaker 1: the internet. That counts. Friend, dug it up on the internet. 231 00:14:18,280 --> 00:14:21,680 Speaker 1: That was from five d CE. That it very much 232 00:14:21,680 --> 00:14:24,360 Speaker 1: seems to be someone with Down syndrome. Uh. There are 233 00:14:24,400 --> 00:14:27,120 Speaker 1: also been other various works of art. There's a very 234 00:14:27,160 --> 00:14:30,480 Speaker 1: famous Flemish painting called the Adoration of the Christ Child 235 00:14:31,200 --> 00:14:34,520 Speaker 1: from fifteen fifteen, where there's an angel, quite a few angels, 236 00:14:34,520 --> 00:14:37,600 Speaker 1: but one of them seems to have the physical characteristics 237 00:14:37,640 --> 00:14:40,880 Speaker 1: that we associate with down. So it has been there 238 00:14:41,000 --> 00:14:45,320 Speaker 1: for a long time, but very sadly if you were, 239 00:14:46,600 --> 00:14:48,840 Speaker 1: I mean, it wasn't even that long ago. Certainly if 240 00:14:48,880 --> 00:14:52,000 Speaker 1: you were, you know, really far back history, your chances 241 00:14:52,040 --> 00:14:56,240 Speaker 1: of living with Down was uh, pretty low. Um for 242 00:14:56,560 --> 00:14:59,440 Speaker 1: you know, living any any kind of life. If you 243 00:14:59,520 --> 00:15:01,920 Speaker 1: lived at all, it's a very short lifespan back in 244 00:15:01,960 --> 00:15:05,480 Speaker 1: those days, and then if you did manage to live, 245 00:15:05,560 --> 00:15:09,560 Speaker 1: you were probably sort of cast out of society and institutionalized. 246 00:15:10,080 --> 00:15:12,960 Speaker 1: And this kind of stuff was going on up until 247 00:15:13,000 --> 00:15:16,120 Speaker 1: like the late sixties and early seventies. Yeah, I think 248 00:15:16,160 --> 00:15:19,760 Speaker 1: in nineteen sixty in the United States, if you had 249 00:15:19,760 --> 00:15:23,720 Speaker 1: Down syndrome, your life expectancy was ten years old. And 250 00:15:23,760 --> 00:15:26,320 Speaker 1: again any time you hear like, oh well, the people 251 00:15:26,360 --> 00:15:28,680 Speaker 1: in olden days just lived to be thirty five. Now, 252 00:15:29,160 --> 00:15:33,480 Speaker 1: so many children died at birth that its skewed the 253 00:15:33,600 --> 00:15:38,560 Speaker 1: average life expectancy that far downward. And that's understandable, especially 254 00:15:38,720 --> 00:15:42,920 Speaker 1: you know in pre medical days, um, because so many 255 00:15:42,960 --> 00:15:46,040 Speaker 1: I think like half are born with congenital heart defects 256 00:15:46,360 --> 00:15:48,520 Speaker 1: and that you have to go undergo surgery starting about 257 00:15:48,520 --> 00:15:50,760 Speaker 1: three days after you're born when you have something like 258 00:15:50,800 --> 00:15:53,840 Speaker 1: that to correct it, and it takes multiple surgeries. And 259 00:15:53,880 --> 00:15:56,680 Speaker 1: before the advent of that, yeah, that was you were 260 00:15:56,680 --> 00:15:58,920 Speaker 1: not going to live very long as a baby because 261 00:15:58,960 --> 00:16:01,040 Speaker 1: you had a congenital defect and no one had any 262 00:16:01,080 --> 00:16:04,280 Speaker 1: idea what that even was, let alone how to treat it. Yeah, 263 00:16:04,520 --> 00:16:06,800 Speaker 1: it's UM. If you wonder where it gets his name. 264 00:16:07,120 --> 00:16:10,520 Speaker 1: In eighteen sixty two, there was a English physician named 265 00:16:10,600 --> 00:16:13,960 Speaker 1: John langdon Down that's where the name comes from, who 266 00:16:14,080 --> 00:16:17,160 Speaker 1: first identified it. UH. And it was sort of an 267 00:16:17,160 --> 00:16:19,840 Speaker 1: important distinction at the time because it did make a 268 00:16:19,880 --> 00:16:23,840 Speaker 1: distinction between UM, what at the time they categorized as 269 00:16:24,120 --> 00:16:28,920 Speaker 1: a mental disability and an actual sort of well, you know, 270 00:16:28,960 --> 00:16:33,000 Speaker 1: it took a long time before they identified the chromosome issue, 271 00:16:33,040 --> 00:16:35,600 Speaker 1: but UM, it was a big distinction at the time, 272 00:16:35,800 --> 00:16:39,920 Speaker 1: and for many many years they UH in this. You know, 273 00:16:39,920 --> 00:16:42,560 Speaker 1: Olivia helped us put this together, points out that this 274 00:16:42,640 --> 00:16:45,840 Speaker 1: is very offensive in many different ways. But the term 275 00:16:45,880 --> 00:16:49,200 Speaker 1: mongoloid was used UH, and this could be an interesting 276 00:16:49,320 --> 00:16:52,760 Speaker 1: short stuff. It was based on the idea that if 277 00:16:52,800 --> 00:16:56,680 Speaker 1: you were white and you had Down syndrome, then you 278 00:16:56,760 --> 00:17:00,480 Speaker 1: might resemble someone who is East Asian or what they 279 00:17:00,560 --> 00:17:04,760 Speaker 1: referred to as Mongolian back then, which was and this 280 00:17:04,800 --> 00:17:06,320 Speaker 1: is the part that I think would be interesting is 281 00:17:06,400 --> 00:17:13,960 Speaker 1: Johan Blueman Box racial classification UH system, which was Caucasian, Mongolian, 282 00:17:14,000 --> 00:17:19,240 Speaker 1: which was East Asian Malayan, which is Southeast Asian, Ethiopian, 283 00:17:19,280 --> 00:17:23,080 Speaker 1: which was basically any part of Africa, and then American, 284 00:17:23,240 --> 00:17:28,760 Speaker 1: which meant indigenous Americans. Um. Obviously that's super outdated, but 285 00:17:28,920 --> 00:17:31,000 Speaker 1: I think it could make for an interesting, like historical 286 00:17:31,040 --> 00:17:33,440 Speaker 1: short stuff. I think it might actually be its own 287 00:17:33,840 --> 00:17:36,800 Speaker 1: um episode because I was thinking into it. Yeah, and 288 00:17:36,840 --> 00:17:41,040 Speaker 1: apparently it's still generally respected even though it is the 289 00:17:41,440 --> 00:17:44,399 Speaker 1: terminology is outdated, and of course there's way more um 290 00:17:44,520 --> 00:17:47,600 Speaker 1: subcategories of people, and the idea of race is even 291 00:17:47,920 --> 00:17:51,280 Speaker 1: considered a social construct now. But Bluemenbach is considered the 292 00:17:51,359 --> 00:17:56,840 Speaker 1: first scientist to purposefully divorce racism from science. Yeah, so 293 00:17:56,960 --> 00:18:00,800 Speaker 1: as racist as you know, calling someone Mongolian out seems 294 00:18:01,600 --> 00:18:05,840 Speaker 1: um like his purpose was to prevent that, to to 295 00:18:06,080 --> 00:18:11,119 Speaker 1: just create a specifically scientific approach that's not racist to 296 00:18:11,480 --> 00:18:14,320 Speaker 1: um two different types of people. Yeah, maybe we should 297 00:18:14,359 --> 00:18:17,199 Speaker 1: tackle that. The long and short of this, though, is 298 00:18:17,280 --> 00:18:21,000 Speaker 1: that the term mongoloyd was around, Like I remember hearing 299 00:18:21,040 --> 00:18:22,919 Speaker 1: that word when I was a kid. Yeah. That was 300 00:18:23,000 --> 00:18:27,399 Speaker 1: Divo's first single in Yeah, that was the first single 301 00:18:27,400 --> 00:18:31,560 Speaker 1: they ever released, was Mongoloyd. I love Devo? Yeah, I mean, 302 00:18:31,560 --> 00:18:36,720 Speaker 1: otherwise they're they're pretty great, good feeling what a song. Yeah. 303 00:18:36,920 --> 00:18:38,760 Speaker 1: The more I listen to them more, I'm like, these 304 00:18:38,840 --> 00:18:41,239 Speaker 1: guys were just amazing. And then to think of like 305 00:18:41,320 --> 00:18:44,159 Speaker 1: them performing in the late seventies and early eighties and 306 00:18:44,240 --> 00:18:47,200 Speaker 1: coming up with this, it's like they weren't working off 307 00:18:47,240 --> 00:18:49,400 Speaker 1: of anybody else's stuff. It seemed like they were their 308 00:18:49,400 --> 00:18:51,960 Speaker 1: own group. This good kids music too. By the way, 309 00:18:51,960 --> 00:18:53,480 Speaker 1: if you're a parent and you have a young kid 310 00:18:54,280 --> 00:18:56,760 Speaker 1: and you want to introduce him to cool music, like 311 00:18:56,920 --> 00:18:59,920 Speaker 1: something about Diva like really made my daughter dance or 312 00:19:00,000 --> 00:19:03,200 Speaker 1: early on, oh do whip it maybe the best song 313 00:19:03,920 --> 00:19:06,560 Speaker 1: to dance to and definitely to run to as well. 314 00:19:07,359 --> 00:19:12,040 Speaker 1: I have one more little music tidbit um uh music 315 00:19:12,119 --> 00:19:16,080 Speaker 1: titles that were unkind to UM people with down syndrome, Uh, 316 00:19:16,320 --> 00:19:19,440 Speaker 1: black Eyed Peas. Do you know the UM song Let's 317 00:19:19,480 --> 00:19:23,640 Speaker 1: Get It Started? Yeah, that was a re record. The 318 00:19:23,720 --> 00:19:26,360 Speaker 1: NBA came and said, hey, can you re record your 319 00:19:26,400 --> 00:19:29,920 Speaker 1: song Let's get are worded? Which is the original title 320 00:19:29,960 --> 00:19:33,840 Speaker 1: of it? Oh? Really yes, And they re recorded it 321 00:19:34,200 --> 00:19:36,680 Speaker 1: for the NBA and ended up releasing it as a single. 322 00:19:36,680 --> 00:19:38,840 Speaker 1: It became a huge hit. But that is not Let's 323 00:19:38,840 --> 00:19:41,320 Speaker 1: Get It Started as not the original title of that 324 00:19:41,359 --> 00:19:46,639 Speaker 1: song or original lyrics. That's true, and that was the 325 00:19:46,720 --> 00:19:49,600 Speaker 1: two thousand three that is a black eye on the 326 00:19:49,640 --> 00:19:58,239 Speaker 1: black eyed peas sor uh. So that term, the term 327 00:19:58,280 --> 00:20:01,919 Speaker 1: mongoloid um, was actually sent to the World Health Organization 328 00:20:02,520 --> 00:20:07,840 Speaker 1: in nineteen sixty uh from the nation of Mongolia and said, hey, 329 00:20:07,880 --> 00:20:10,359 Speaker 1: maybe you shouldn't be using this word anymore. But it 330 00:20:10,359 --> 00:20:11,879 Speaker 1: took a little while for it to catch on that 331 00:20:11,920 --> 00:20:14,240 Speaker 1: we shouldn't be using that word. Uh. And now we 332 00:20:14,320 --> 00:20:16,960 Speaker 1: just say down syndrome like we should. Yeah, it's not 333 00:20:17,080 --> 00:20:19,600 Speaker 1: a downy or a down person or anything like that's 334 00:20:19,600 --> 00:20:23,280 Speaker 1: a person with down syndrome like any any other condition. UM. 335 00:20:23,320 --> 00:20:25,800 Speaker 1: And that's also why because it's named after John Langdon 336 00:20:25,840 --> 00:20:29,160 Speaker 1: down why it's a capital D lower case S when 337 00:20:29,200 --> 00:20:31,280 Speaker 1: you spell it out. Yeah, And you know a lot 338 00:20:31,320 --> 00:20:34,600 Speaker 1: of people say downs, which is incorrect. But I have 339 00:20:34,720 --> 00:20:37,720 Speaker 1: seen that that has kind of become kind of accepted, 340 00:20:38,400 --> 00:20:40,680 Speaker 1: and I think it felt a little more like resigned 341 00:20:40,720 --> 00:20:45,360 Speaker 1: to than except you can see that so, Chuck. One 342 00:20:45,400 --> 00:20:48,440 Speaker 1: of the things that UM is just a real blemish 343 00:20:48,480 --> 00:20:51,679 Speaker 1: on the history of humanity, and I think UM, I 344 00:20:51,720 --> 00:20:55,720 Speaker 1: hope becomes even more so as we progress as a species. UM. 345 00:20:55,840 --> 00:21:00,560 Speaker 1: People with down syndrome. Uh, we're targeted for you an assists. 346 00:21:00,640 --> 00:21:03,720 Speaker 1: Like right out of the gate, they were an obvious 347 00:21:03,760 --> 00:21:09,240 Speaker 1: population to target. They were considered um completely dependent on society, 348 00:21:09,520 --> 00:21:12,840 Speaker 1: a burden to their families, UM. And the premise was 349 00:21:12,920 --> 00:21:17,399 Speaker 1: that you either needed to institutionalize them essentially from birth, 350 00:21:17,640 --> 00:21:20,520 Speaker 1: like back in the day not too long ago, when 351 00:21:20,680 --> 00:21:24,879 Speaker 1: you figured out that your baby had Down syndrome, you said, 352 00:21:25,280 --> 00:21:27,359 Speaker 1: here you go, state, thank you for taking care of 353 00:21:27,359 --> 00:21:29,320 Speaker 1: this child for the rest of his or her life. 354 00:21:29,560 --> 00:21:32,760 Speaker 1: We're washing our hands of him or her or they 355 00:21:32,760 --> 00:21:38,960 Speaker 1: were um sterilized against their will or both. Yeah, it's 356 00:21:39,160 --> 00:21:42,359 Speaker 1: very sad and shameful. And uh, I mean that that 357 00:21:42,440 --> 00:21:44,120 Speaker 1: that's sort of what we've seen in time and time 358 00:21:44,160 --> 00:21:49,160 Speaker 1: again of any kind of UM mental issues that people had. 359 00:21:49,600 --> 00:21:51,439 Speaker 1: It was just like, you know, put them behind closed 360 00:21:51,440 --> 00:21:55,480 Speaker 1: doors where everyone else can just not think about it anymore. Right, 361 00:21:56,119 --> 00:21:59,359 Speaker 1: So that's I mean, they were neglected, They were probably beaten. 362 00:21:59,400 --> 00:22:02,680 Speaker 1: In many K races, they had no access to medical 363 00:22:02,760 --> 00:22:06,400 Speaker 1: care or any kind of stimulation. They were just basically 364 00:22:06,480 --> 00:22:09,720 Speaker 1: left to rot for the for the sole reason that 365 00:22:09,840 --> 00:22:12,320 Speaker 1: they had Down syndrome. And again this was based on 366 00:22:12,480 --> 00:22:16,080 Speaker 1: really faulty information the idea that they would never speak, 367 00:22:16,119 --> 00:22:18,520 Speaker 1: that they couldn't walk correctly, they would never be able to, 368 00:22:19,080 --> 00:22:23,919 Speaker 1: um uh perform any kind of like socially productive work 369 00:22:24,000 --> 00:22:26,840 Speaker 1: or anything like that. There they were just to be 370 00:22:27,000 --> 00:22:30,439 Speaker 1: left in these institutions. And finally, in the sixties, the 371 00:22:30,480 --> 00:22:34,440 Speaker 1: whole de institutionalization movement that really started to take hold 372 00:22:34,760 --> 00:22:37,960 Speaker 1: that we kind of referenced in the rosen hand Han 373 00:22:37,960 --> 00:22:43,440 Speaker 1: experiment episode, UM that that benefited people with Down syndrome too, 374 00:22:43,560 --> 00:22:46,320 Speaker 1: And so they were released from the institutions and were 375 00:22:46,400 --> 00:22:50,280 Speaker 1: now raised in at home in the community, and almost 376 00:22:50,359 --> 00:22:55,160 Speaker 1: immediately the life expectancy for Down syndrome people skyrocketed because 377 00:22:55,160 --> 00:22:57,919 Speaker 1: it turned out the greatest risk factor for death for 378 00:22:58,119 --> 00:23:03,040 Speaker 1: Down syndrome person was being institutionalized. That's how mistreated they were. Man, 379 00:23:03,359 --> 00:23:08,720 Speaker 1: I mean that that's hard to even uh swallow, you know, like, hey, 380 00:23:08,800 --> 00:23:11,840 Speaker 1: it turns out if we care for people and treat 381 00:23:11,880 --> 00:23:15,280 Speaker 1: them as human beings and give them love and healthcare, 382 00:23:15,760 --> 00:23:20,760 Speaker 1: then they'll thrive and survive. It's really sad, but it's 383 00:23:20,800 --> 00:23:25,320 Speaker 1: it's actually, you know, since the nineteen seventies, um, it's 384 00:23:25,640 --> 00:23:29,720 Speaker 1: not sad, it's been wonderful. By two thousand seven, Americans 385 00:23:29,720 --> 00:23:33,720 Speaker 1: with Down syndrome live an average of forty seven. Um. 386 00:23:33,760 --> 00:23:36,959 Speaker 1: I've seen that number average go as high as sixty. 387 00:23:37,400 --> 00:23:39,760 Speaker 1: I think there was an Australian study that edited about 388 00:23:39,760 --> 00:23:44,080 Speaker 1: sixty Between nineteen seventy nine and two thousand three, the 389 00:23:44,160 --> 00:23:46,840 Speaker 1: rate of death within the first year dropped from eight 390 00:23:46,840 --> 00:23:50,760 Speaker 1: point five percent to five percent. And the quality of 391 00:23:50,760 --> 00:23:54,800 Speaker 1: life has just been there's been a huge sea change. Uh. 392 00:23:54,880 --> 00:23:57,000 Speaker 1: And we're like I said, we're talking within our lifetime. 393 00:23:57,040 --> 00:24:00,760 Speaker 1: This was like pre nineteen eighties. Keep we're still being 394 00:24:00,800 --> 00:24:06,639 Speaker 1: institutionalized u from infancy infancy sometimes so they were you know, 395 00:24:07,440 --> 00:24:10,680 Speaker 1: not necessarily banned, but just sort of weren't brought out 396 00:24:10,680 --> 00:24:12,800 Speaker 1: in public, weren't taken to the movies, weren't taken to 397 00:24:12,880 --> 00:24:19,080 Speaker 1: parks and things like that. Even in Benjamin Spock, you know, 398 00:24:19,160 --> 00:24:22,200 Speaker 1: the very famous doctor Spock who wrote the famous baby book. 399 00:24:23,080 --> 00:24:26,280 Speaker 1: This was a you know, supposedly progressive person at the time, 400 00:24:27,200 --> 00:24:32,240 Speaker 1: said that, uh, mongoloid babies should immediately be institutionalized, since 401 00:24:32,440 --> 00:24:35,280 Speaker 1: if the infant merely exists at a level that is 402 00:24:35,320 --> 00:24:38,119 Speaker 1: hardly human, it is much better for the other children 403 00:24:38,160 --> 00:24:42,040 Speaker 1: and the parents to have him cared for elsewhere. Yeah, 404 00:24:42,200 --> 00:24:45,800 Speaker 1: and This is Dr Spock, who was considered extremely progressive 405 00:24:46,080 --> 00:24:49,400 Speaker 1: and arguably the person who ruined the baby boomer generation 406 00:24:49,440 --> 00:24:53,240 Speaker 1: by giving poor advice to their parents. But regardless, he 407 00:24:53,320 --> 00:24:55,280 Speaker 1: was a very progressive voice. And this is what he 408 00:24:55,359 --> 00:25:00,800 Speaker 1: was saying. That's how widely UM assumed this. This, this 409 00:25:01,040 --> 00:25:05,680 Speaker 1: whole idea about down syndrome people was that late in 410 00:25:05,680 --> 00:25:09,400 Speaker 1: in the century. So UM Again, in the sixties and seventies, 411 00:25:09,400 --> 00:25:11,960 Speaker 1: the disability rights movement comes along and says, hey, these 412 00:25:11,960 --> 00:25:15,440 Speaker 1: people are being mistreated for no good reason. If you, UM, 413 00:25:15,600 --> 00:25:18,280 Speaker 1: you know, if you visit with somebody who has been 414 00:25:18,359 --> 00:25:22,240 Speaker 1: raised at home with parents who send them to school 415 00:25:22,680 --> 00:25:26,720 Speaker 1: and care about their simulation, they're actually like their i 416 00:25:26,880 --> 00:25:30,840 Speaker 1: Q starts to increase tremendously, I think. UM. There was 417 00:25:30,880 --> 00:25:34,760 Speaker 1: a study from nine that found that UM down syndrome 418 00:25:35,160 --> 00:25:38,560 Speaker 1: people raised in institutions had an average i Q of 419 00:25:38,560 --> 00:25:42,400 Speaker 1: twenty to thirty UM and then those raised at home 420 00:25:42,680 --> 00:25:47,800 Speaker 1: with stimulation had i Q of about fifty five. And 421 00:25:47,800 --> 00:25:50,639 Speaker 1: as people kind of change their perception, or I should says, 422 00:25:50,680 --> 00:25:54,280 Speaker 1: down syndrome people changed other people's perception more and more. 423 00:25:54,720 --> 00:25:58,760 Speaker 1: They started to graduate from high school, graduate from college, 424 00:25:58,800 --> 00:26:03,080 Speaker 1: get driver's licensees, get married UM and just start living 425 00:26:03,119 --> 00:26:07,200 Speaker 1: more and more normal lives. Again, depending on the amount 426 00:26:07,400 --> 00:26:11,600 Speaker 1: of UM self sufficiency they're able to maintain. Some people 427 00:26:11,640 --> 00:26:13,440 Speaker 1: with down syndromes live with their parents for the rest 428 00:26:13,440 --> 00:26:16,080 Speaker 1: of their lives. Some people have an apartment with their buddies, 429 00:26:16,080 --> 00:26:19,040 Speaker 1: some live alone. And it's just again, it's a spectrum 430 00:26:19,200 --> 00:26:21,560 Speaker 1: of what they're capable of or even what they are 431 00:26:21,760 --> 00:26:24,280 Speaker 1: interested in. Yeah, and I was about to say, I'd 432 00:26:24,320 --> 00:26:26,320 Speaker 1: love to see that study today because that was all 433 00:26:26,359 --> 00:26:29,639 Speaker 1: the way in ninety nine. But thankfully you're not going 434 00:26:29,720 --> 00:26:33,080 Speaker 1: to get that study today because they're no longer institutionalized 435 00:26:33,119 --> 00:26:35,879 Speaker 1: like that. Yeah, there's one part of that study that 436 00:26:36,440 --> 00:26:39,080 Speaker 1: I bet that they could just do i Q studies 437 00:26:39,080 --> 00:26:40,639 Speaker 1: and a bet that would be even higher. Is what 438 00:26:40,680 --> 00:26:42,600 Speaker 1: I was trying to get to. If it was a 439 00:26:42,640 --> 00:26:46,000 Speaker 1: good study, you could reproduce it using the same methodology 440 00:26:46,040 --> 00:26:49,320 Speaker 1: today and you'd be able to compare the institutionalized to 441 00:26:49,480 --> 00:26:52,120 Speaker 1: that you know, stimulated at home. Yeah, that's a good point. 442 00:26:52,920 --> 00:26:56,600 Speaker 1: So let's talk a little bit about UH. Development and 443 00:26:56,640 --> 00:26:59,800 Speaker 1: this is sort of all over the map intellectual if 444 00:26:59,800 --> 00:27:04,280 Speaker 1: it's development social development, and again these are generalizations, UH 445 00:27:04,320 --> 00:27:06,040 Speaker 1: and you know you'll see in a lot of cases 446 00:27:06,080 --> 00:27:10,679 Speaker 1: that UH, kids with Down syndrome can be behind in 447 00:27:10,720 --> 00:27:13,800 Speaker 1: some ways by just a little bit, sometimes behind by 448 00:27:13,800 --> 00:27:17,600 Speaker 1: a little bit more, sometimes ahead in other areas. UH. 449 00:27:17,640 --> 00:27:22,160 Speaker 1: And it starts at birth basically UM in infancy, things 450 00:27:22,160 --> 00:27:25,119 Speaker 1: like feeding UH. And this is because of the muscle 451 00:27:25,119 --> 00:27:30,160 Speaker 1: tone issues UM and hypermobility. Things like UM feeding during 452 00:27:30,200 --> 00:27:33,960 Speaker 1: infancy can cause problems or you know, problems with feeding 453 00:27:34,080 --> 00:27:37,600 Speaker 1: which can lead to constipation problems. UH. They may be 454 00:27:37,720 --> 00:27:40,840 Speaker 1: a little smaller physically at first and be a little 455 00:27:41,040 --> 00:27:44,600 Speaker 1: slower on the growth curve uh than their peers typically 456 00:27:44,600 --> 00:27:47,240 Speaker 1: develop UM. But as they you know, they kind of 457 00:27:47,240 --> 00:27:50,560 Speaker 1: catch up as they get older, and that generally improves 458 00:27:50,680 --> 00:27:55,520 Speaker 1: and UM those developmental milestones you know, feeding themselves, dressing 459 00:27:55,520 --> 00:27:58,920 Speaker 1: and stuff like that. Using the toilet you mentioned speaking, 460 00:27:59,240 --> 00:28:02,240 Speaker 1: they might happen a little bit later, right, I saw 461 00:28:02,280 --> 00:28:06,160 Speaker 1: it explained as they they can and do develop skills 462 00:28:06,200 --> 00:28:08,919 Speaker 1: throughout their lives, but they just reach goals at a 463 00:28:08,960 --> 00:28:13,160 Speaker 1: different pace, and all kids reach goals at different paces. 464 00:28:13,200 --> 00:28:17,359 Speaker 1: So it's just about setting expectations, is apparent. One of 465 00:28:17,400 --> 00:28:20,359 Speaker 1: the things that is available now that is really helping 466 00:28:20,400 --> 00:28:23,479 Speaker 1: to increase not just life expectancy but also quality of 467 00:28:23,520 --> 00:28:26,680 Speaker 1: life among people with Down synd room is occupational therapy. 468 00:28:27,119 --> 00:28:29,680 Speaker 1: They've figured out that basically the moment that you realize 469 00:28:29,680 --> 00:28:32,760 Speaker 1: that your child has Down syndrome after they're born, UM, 470 00:28:32,880 --> 00:28:35,800 Speaker 1: you want to start different kinds of therapy. I think 471 00:28:35,840 --> 00:28:38,840 Speaker 1: occupational to start because it's so hands on and physical. 472 00:28:39,280 --> 00:28:41,040 Speaker 1: But UM, some of the things I saw that you 473 00:28:41,080 --> 00:28:44,040 Speaker 1: can do at home because they have smaller fingers and 474 00:28:44,080 --> 00:28:48,440 Speaker 1: smaller hands and pinkies that curve on average. UM, one 475 00:28:48,520 --> 00:28:50,680 Speaker 1: of the things you want to do is help them 476 00:28:50,800 --> 00:28:54,240 Speaker 1: learn to hold a pencil properly or you know, manipulate 477 00:28:54,320 --> 00:28:56,800 Speaker 1: things with their hands better. So you have them play 478 00:28:56,880 --> 00:29:02,840 Speaker 1: with plato or UM paste areos to UM like UM 479 00:29:03,080 --> 00:29:06,000 Speaker 1: construction paper or something like that. Stuff that like you 480 00:29:06,000 --> 00:29:09,160 Speaker 1: you use like the very fine motor skills for and 481 00:29:09,160 --> 00:29:13,120 Speaker 1: then also ones that require like big motor skills like 482 00:29:13,240 --> 00:29:16,400 Speaker 1: UM I saw. Focusing on your core is really important 483 00:29:16,680 --> 00:29:19,320 Speaker 1: because there's a lot of people with downs RUM are 484 00:29:19,320 --> 00:29:21,800 Speaker 1: considered to not be able to engage in self care 485 00:29:22,120 --> 00:29:26,600 Speaker 1: because again it's a cognitive disorder disability. It's actually not 486 00:29:26,640 --> 00:29:30,480 Speaker 1: necessarily the case in all cases. UM, It's that their 487 00:29:30,560 --> 00:29:33,640 Speaker 1: core is not strong enough or toned enough to hold 488 00:29:33,680 --> 00:29:36,040 Speaker 1: themselves up while they put on a sock or tie 489 00:29:36,080 --> 00:29:39,160 Speaker 1: their shoe or something like that. Yeah. Absolutely, So that's 490 00:29:39,160 --> 00:29:42,120 Speaker 1: what occupational therapy does, is helped get that stuff in 491 00:29:42,240 --> 00:29:44,040 Speaker 1: order so that they can start to excel and hit 492 00:29:44,080 --> 00:29:47,160 Speaker 1: those goals sooner. And the occupation in this case is 493 00:29:47,360 --> 00:29:54,560 Speaker 1: being a baby. That's your job. Uh. Social functioning, Um, 494 00:29:54,600 --> 00:29:57,000 Speaker 1: it's usually a little less delayed. If you have a 495 00:29:57,040 --> 00:30:00,640 Speaker 1: baby with Down syndrome. You might be looking at a 496 00:30:00,680 --> 00:30:04,640 Speaker 1: week or two sometimes for things like recognizing faces, looking 497 00:30:04,680 --> 00:30:09,200 Speaker 1: at faces, smiling back at somebody, recognizing a smile, uh, 498 00:30:09,320 --> 00:30:12,840 Speaker 1: communicating through just like gestures and you know that Google 499 00:30:12,880 --> 00:30:16,040 Speaker 1: Gaga type of stuff. Uh. You know, could just be 500 00:30:16,080 --> 00:30:19,400 Speaker 1: a week or two. Some kids, UH might have a 501 00:30:19,400 --> 00:30:23,080 Speaker 1: greater reading ability than might be typical for someone uh 502 00:30:23,200 --> 00:30:26,680 Speaker 1: their age or at their cognitive level. Um, the delays 503 00:30:26,720 --> 00:30:29,120 Speaker 1: and spoken language we've talked about a little bit. Uh, 504 00:30:29,200 --> 00:30:31,240 Speaker 1: Their math and their number skills might be a little 505 00:30:31,240 --> 00:30:34,400 Speaker 1: bit behind, usually about two years behind the reading skills. 506 00:30:34,840 --> 00:30:37,400 Speaker 1: But if the reading skills are a little advanced, you know, 507 00:30:37,440 --> 00:30:39,520 Speaker 1: it might not average out to be that much farther 508 00:30:39,600 --> 00:30:43,080 Speaker 1: behind than their peers. UH. And then you know, there's 509 00:30:43,080 --> 00:30:46,080 Speaker 1: so many different ways kids learn these days, and that 510 00:30:46,240 --> 00:30:50,040 Speaker 1: kids are being taught according to their needs, which is 511 00:30:50,800 --> 00:30:53,600 Speaker 1: the biggest like breakthrough in education of the past, like 512 00:30:53,880 --> 00:30:57,400 Speaker 1: a couple of decades, is recognizing that, like not every 513 00:30:57,480 --> 00:30:59,880 Speaker 1: kid is in a box and learns the exact same way. 514 00:31:00,440 --> 00:31:04,240 Speaker 1: And if you have down syndrome, then you have much 515 00:31:04,280 --> 00:31:09,480 Speaker 1: better visual processing and visual learning skills than maybe with words. 516 00:31:09,520 --> 00:31:12,800 Speaker 1: So you're gonna be working with your teacher either, you know, 517 00:31:12,880 --> 00:31:16,680 Speaker 1: sometimes a special classrooms, sometimes in just the regular classroom 518 00:31:16,720 --> 00:31:19,000 Speaker 1: to work with that uh, work with that kid to 519 00:31:19,480 --> 00:31:22,160 Speaker 1: you know, teach them a little differently. Yeah, I think 520 00:31:22,280 --> 00:31:25,960 Speaker 1: um integrating classrooms together with people of different cognitive levels, 521 00:31:26,040 --> 00:31:30,280 Speaker 1: especially you know, if you're now teaching people differently rather 522 00:31:30,320 --> 00:31:32,960 Speaker 1: than making them all conformed to one thing, that seems 523 00:31:32,960 --> 00:31:35,760 Speaker 1: like that would allow for integrated classrooms a lot more, 524 00:31:36,000 --> 00:31:38,800 Speaker 1: which I think is absolutely wonderful. Yeah, and you know, 525 00:31:38,840 --> 00:31:40,800 Speaker 1: it happens in all kinds of ways. You talk to 526 00:31:40,880 --> 00:31:44,720 Speaker 1: your school, see what kind of support that you can get. Uh. 527 00:31:44,800 --> 00:31:47,760 Speaker 1: Sometimes it's just regular class for most of the day, 528 00:31:47,840 --> 00:31:50,320 Speaker 1: and then they're specialists who come in for a couple 529 00:31:50,360 --> 00:31:54,560 Speaker 1: of hours, maybe every day, sometimes a few days a week. Uh, 530 00:31:54,600 --> 00:31:57,880 Speaker 1: if you're um, if you're able to, sometimes you can 531 00:31:57,960 --> 00:32:00,880 Speaker 1: hire someone privately to to ass with stuff like that. 532 00:32:01,000 --> 00:32:04,200 Speaker 1: But it's it's just you know, be in good contact 533 00:32:04,240 --> 00:32:06,560 Speaker 1: with your school and with your teachers, and it's just 534 00:32:06,600 --> 00:32:09,240 Speaker 1: a different scene than it was when we were kids. Yeah, 535 00:32:09,280 --> 00:32:11,760 Speaker 1: and um, you can thank your federal government for passing 536 00:32:11,840 --> 00:32:16,280 Speaker 1: laws that banned discrimination in public schooling against cognitive disabilities. 537 00:32:16,320 --> 00:32:19,000 Speaker 1: The Idea Act and then the A D A M 538 00:32:19,120 --> 00:32:24,360 Speaker 1: both guarantee um quality public schooling for kids of different 539 00:32:24,360 --> 00:32:29,680 Speaker 1: cognitive abilities and uh, in fact like tailored schooling depending 540 00:32:29,680 --> 00:32:32,560 Speaker 1: on their needs. Which hats off to that one, because 541 00:32:32,640 --> 00:32:34,960 Speaker 1: I can tell you not every state would offer that 542 00:32:35,040 --> 00:32:38,200 Speaker 1: if that weren't a law. No, they wouldn't took. I 543 00:32:38,280 --> 00:32:40,240 Speaker 1: had one foot up on a soapbox. I'm gonna step 544 00:32:40,240 --> 00:32:43,560 Speaker 1: back down. That was very close, very close. So let's 545 00:32:43,560 --> 00:32:45,200 Speaker 1: take a break and I can shake it off. How 546 00:32:45,200 --> 00:33:14,440 Speaker 1: about that? All right, We'll be right back. Okay, we're back, Chuck. 547 00:33:14,520 --> 00:33:16,520 Speaker 1: And before we get started, we just want to give 548 00:33:16,520 --> 00:33:19,520 Speaker 1: a little shout out to our ongoing pledge drive for 549 00:33:19,560 --> 00:33:23,400 Speaker 1: our friends, A Cooperative for Education, right, that's right, the 550 00:33:23,840 --> 00:33:26,360 Speaker 1: great nonprofit in Guatemala that we've been working with for 551 00:33:26,440 --> 00:33:30,360 Speaker 1: many years. Let us know that the stuff you should know. 552 00:33:30,480 --> 00:33:33,400 Speaker 1: Army since we started working with him, has donated just 553 00:33:33,440 --> 00:33:35,920 Speaker 1: about a hundred thousand dollars shy of a million bucks. 554 00:33:36,360 --> 00:33:38,720 Speaker 1: So we want to help them get to that million 555 00:33:38,720 --> 00:33:44,000 Speaker 1: dollar mark. And there's a really quick easy way to donate, right. Yeah. 556 00:33:44,120 --> 00:33:47,040 Speaker 1: They set up a page just for you to go donate. Um. 557 00:33:47,080 --> 00:33:51,120 Speaker 1: It's Cooperative for Education dot org slash s y s 558 00:33:51,200 --> 00:33:53,440 Speaker 1: K and it's a very painless process. Just chip in 559 00:33:53,480 --> 00:33:56,560 Speaker 1: whatever you can and if everybody chips in whatever they can, 560 00:33:56,680 --> 00:33:58,240 Speaker 1: then we'll come up with a bunch of money for 561 00:33:58,320 --> 00:34:00,360 Speaker 1: COED to use to help kids in the mall to 562 00:34:00,440 --> 00:34:03,640 Speaker 1: break the cycle of poverty. That's right. Should we talk 563 00:34:03,680 --> 00:34:08,359 Speaker 1: about down syndrome testing, let's because it's a fairly new thing. 564 00:34:08,840 --> 00:34:12,160 Speaker 1: Um until I think that really kind of the eighties 565 00:34:12,200 --> 00:34:15,040 Speaker 1: is when it really started to becoming much more common. 566 00:34:15,320 --> 00:34:18,960 Speaker 1: You were you had no real idea whether your baby 567 00:34:19,120 --> 00:34:20,720 Speaker 1: was going to have down syd um or not until 568 00:34:20,719 --> 00:34:23,520 Speaker 1: they were born, even sometimes after they were born. That's right, 569 00:34:23,800 --> 00:34:25,719 Speaker 1: But now that's different, right, they have different kinds of 570 00:34:25,760 --> 00:34:28,000 Speaker 1: tests that they can do. Is early is nine to 571 00:34:28,120 --> 00:34:31,120 Speaker 1: thirteen weeks I think, yeah, there are a few different 572 00:34:31,160 --> 00:34:34,040 Speaker 1: kinds of tests that can be used together to make 573 00:34:34,080 --> 00:34:38,000 Speaker 1: this determination or separately or uh, well, I guess those 574 00:34:38,040 --> 00:34:41,120 Speaker 1: are the two ways. Um. The first thing that you 575 00:34:41,239 --> 00:34:43,000 Speaker 1: might start with is a blood test, and this is 576 00:34:43,040 --> 00:34:47,239 Speaker 1: between nine and thirteen weeks gestation, and that is measuring 577 00:34:47,960 --> 00:34:53,000 Speaker 1: um plasma protein pregnancy plasma protein A, which is called 578 00:34:53,080 --> 00:34:56,319 Speaker 1: p A p p A. And then something we've talked 579 00:34:56,360 --> 00:35:02,040 Speaker 1: about before HC G human uh corean ganata tropin right, 580 00:35:02,280 --> 00:35:05,680 Speaker 1: very nice. Um, After that, between eleven and thirteen weeks, 581 00:35:05,719 --> 00:35:08,719 Speaker 1: you're gonna have an ultrasound that's gonna measure the back 582 00:35:08,880 --> 00:35:11,919 Speaker 1: of the fetus's neck to see if there is any 583 00:35:12,280 --> 00:35:15,680 Speaker 1: unusual fluid collecting there. And then a doctor will take 584 00:35:16,280 --> 00:35:20,080 Speaker 1: the ultrasound that first test, and they will see the 585 00:35:20,120 --> 00:35:22,759 Speaker 1: maternal age and then say, all right, this may be 586 00:35:23,040 --> 00:35:26,480 Speaker 1: the likelihood of you having a baby with Down syndrome, right, 587 00:35:26,480 --> 00:35:30,560 Speaker 1: And if it's really high, they'll say, we we recommend 588 00:35:30,640 --> 00:35:33,640 Speaker 1: you do more invasive testing, because that's the thing. A 589 00:35:33,680 --> 00:35:35,759 Speaker 1: blood tests, they're just taking blood from the mom and 590 00:35:36,160 --> 00:35:39,680 Speaker 1: checking it out and um, it's not very invasive, but 591 00:35:39,719 --> 00:35:43,640 Speaker 1: it's also not quite as accurate as a more invasive 592 00:35:43,640 --> 00:35:47,360 Speaker 1: test like amniocentesis. Yeah, and also carries zero risk. The 593 00:35:47,360 --> 00:35:51,560 Speaker 1: blood test yeah, UM, although it's risky if you don't 594 00:35:51,600 --> 00:35:55,200 Speaker 1: like needles. Well, yeah, that's true. There's also another one 595 00:35:55,239 --> 00:36:00,680 Speaker 1: called choreonic villas sampling or CVS and UM. One uses 596 00:36:00,680 --> 00:36:04,000 Speaker 1: cells from the placenta. One takes a sample of amniotic fluid. 597 00:36:04,040 --> 00:36:07,960 Speaker 1: The annual synesis does and UM. They're a little more 598 00:36:08,000 --> 00:36:10,759 Speaker 1: invasive UM and because of that, there is a a 599 00:36:10,960 --> 00:36:16,040 Speaker 1: slight chance that the mother will miscarry UM from the test. 600 00:36:16,120 --> 00:36:19,480 Speaker 1: And they always blame the tests forever, but now I 601 00:36:19,520 --> 00:36:22,279 Speaker 1: think they're starting to think that there's a chance that 602 00:36:22,360 --> 00:36:25,120 Speaker 1: in at least some of the cases the miscarriage would 603 00:36:25,120 --> 00:36:27,480 Speaker 1: have happened, regardless that it actually wasn't the test that 604 00:36:27,520 --> 00:36:30,120 Speaker 1: triggered it. UM and I saw everything from one in 605 00:36:30,120 --> 00:36:33,719 Speaker 1: a hundred pregnancies miscarry after the test all the way 606 00:36:33,760 --> 00:36:36,800 Speaker 1: to one in nine hundred in Alberta, which is apparently 607 00:36:36,800 --> 00:36:39,120 Speaker 1: where you want to get these tests carried out. The 608 00:36:39,280 --> 00:36:43,719 Speaker 1: chances much much lower there, but they're they're accurate. That's 609 00:36:43,760 --> 00:36:47,040 Speaker 1: why they perform these tests in the first place. That's right. 610 00:36:47,080 --> 00:36:48,800 Speaker 1: And then there's a new test sort of the newest 611 00:36:48,800 --> 00:36:53,279 Speaker 1: thing going. UH. It's UH non invasive. It's called in fact, 612 00:36:53,440 --> 00:36:57,799 Speaker 1: noninvasive prenatal testing and IPT or screening n i p S, 613 00:36:58,200 --> 00:37:00,960 Speaker 1: and that analyzes and this is really stuff. It analyzes 614 00:37:01,000 --> 00:37:05,239 Speaker 1: fragments of DNA UH from the blood and some of 615 00:37:05,239 --> 00:37:08,160 Speaker 1: that is going to come from the placenta, with the 616 00:37:08,280 --> 00:37:12,279 Speaker 1: idea that placental cells or placenta cells d n A 617 00:37:12,640 --> 00:37:16,239 Speaker 1: is usually identical to that of the fetus. So it's 618 00:37:16,239 --> 00:37:18,960 Speaker 1: a really simple way to screen for these abnormalities really 619 00:37:19,000 --> 00:37:22,120 Speaker 1: early on, like ten weeks in. It's been around since 620 00:37:22,120 --> 00:37:27,080 Speaker 1: about twenty of has become much more popular, but UM 621 00:37:27,160 --> 00:37:29,440 Speaker 1: it has still not been cleared by the f d A, 622 00:37:30,200 --> 00:37:33,399 Speaker 1: and the f d A even this year said don't 623 00:37:33,520 --> 00:37:35,399 Speaker 1: just get that test, Like, if you want to get 624 00:37:35,400 --> 00:37:38,640 Speaker 1: that test, you can get that test, but UM, just 625 00:37:38,680 --> 00:37:41,640 Speaker 1: don't look at those results alone, right. And the reason 626 00:37:41,680 --> 00:37:45,400 Speaker 1: the FDA would say anything like that is because the 627 00:37:45,560 --> 00:37:48,919 Speaker 1: point to these tests for the vast majority of people 628 00:37:48,960 --> 00:37:52,920 Speaker 1: who get them are UM to determine whether they're going 629 00:37:52,960 --> 00:37:57,520 Speaker 1: to keep this pregnancy or not. UM. There's a lot 630 00:37:57,600 --> 00:38:01,680 Speaker 1: of concern among people who are UM part of the 631 00:38:01,760 --> 00:38:06,279 Speaker 1: Down syndrome community that there's not a concerted effort to 632 00:38:07,200 --> 00:38:13,520 Speaker 1: UM wipe out people with Down syndrome from the diversity 633 00:38:13,560 --> 00:38:20,120 Speaker 1: of you know, human types. Um. But that a million 634 00:38:20,719 --> 00:38:25,359 Speaker 1: different individual UM decisions, all going the same way, can 635 00:38:25,480 --> 00:38:29,320 Speaker 1: ultimately have the same effect. It really depends on where 636 00:38:29,360 --> 00:38:32,839 Speaker 1: you are in the world. Again, that so I think. 637 00:38:32,840 --> 00:38:34,680 Speaker 1: I call her Sophia Zang. I'm sorry, her name is 638 00:38:34,680 --> 00:38:39,080 Speaker 1: Sarah Zang. She wrote that article in The Atlantic. Um, yeah, 639 00:38:39,080 --> 00:38:41,799 Speaker 1: it was really wonderful. She um. I guess if an 640 00:38:41,880 --> 00:38:46,080 Speaker 1: article about UM accidentally eradicating Down syndrome people from Earth 641 00:38:46,520 --> 00:38:50,359 Speaker 1: could be wonderful, it definitely is. But um she uh. 642 00:38:50,560 --> 00:38:53,399 Speaker 1: She focused on Denmark, where there's something like I think 643 00:38:55,080 --> 00:38:58,560 Speaker 1: of UM people who come back with a screening that says, yes, 644 00:38:58,600 --> 00:39:02,160 Speaker 1: your baby is going to have Down Synemer has Down syndrome. Um, 645 00:39:02,200 --> 00:39:05,160 Speaker 1: they abort, They choose to abort the pregnancy. And I 646 00:39:05,200 --> 00:39:08,360 Speaker 1: think it's even higher in Iceland. I think it's approaching 647 00:39:08,360 --> 00:39:12,440 Speaker 1: a dent in Iceland, and as a result, the number 648 00:39:12,520 --> 00:39:15,960 Speaker 1: of people with Down syndrome being born there's plummeting in 649 00:39:16,239 --> 00:39:20,040 Speaker 1: I think two thousand and eighteen, Sarah Zang said in Denmark, 650 00:39:20,560 --> 00:39:24,080 Speaker 1: eighteen people were born in the whole country with Down syndrome. 651 00:39:24,760 --> 00:39:28,760 Speaker 1: Only seven of them were purposefully born. The other eleven 652 00:39:28,800 --> 00:39:32,600 Speaker 1: had gotten false negatives and had carried on with the 653 00:39:33,120 --> 00:39:35,200 Speaker 1: with the pregnancy, and you presume that some of them 654 00:39:35,239 --> 00:39:40,120 Speaker 1: probably would not have otherwise. I wonder, I don't know. 655 00:39:40,280 --> 00:39:42,440 Speaker 1: I wonder what it is about that part of the world. 656 00:39:43,120 --> 00:39:45,000 Speaker 1: I don't know, because if you read the article, she 657 00:39:45,080 --> 00:39:49,520 Speaker 1: really goes on about how that that country in Scandinavia, 658 00:39:49,560 --> 00:39:52,040 Speaker 1: I think in general, really kind of considers itself like 659 00:39:52,560 --> 00:39:57,520 Speaker 1: very diverse, um, culturally and very inclusive and they're not 660 00:39:57,680 --> 00:40:02,239 Speaker 1: like anti disabled, uh people or anything like that. But 661 00:40:02,360 --> 00:40:05,680 Speaker 1: when it comes down to it, it's like, yeah, those 662 00:40:05,719 --> 00:40:10,839 Speaker 1: individual decisions, very private decision. Um, can they add up 663 00:40:10,840 --> 00:40:13,400 Speaker 1: to that in in private and public? It's different? In 664 00:40:13,440 --> 00:40:16,960 Speaker 1: private it's a completely different different game apparently. Yeah. And 665 00:40:17,040 --> 00:40:20,000 Speaker 1: you know, we should also mention that when you get 666 00:40:20,040 --> 00:40:23,520 Speaker 1: these tests done and they come back, you have that 667 00:40:23,600 --> 00:40:26,000 Speaker 1: choice to make. But a lot of times it's also 668 00:40:26,840 --> 00:40:30,440 Speaker 1: like uh, preparing yourself, like, yeah, I'm gonna go through 669 00:40:30,440 --> 00:40:33,320 Speaker 1: with this pregnancy, and I want to know what to expect. 670 00:40:33,400 --> 00:40:35,480 Speaker 1: I want to prepare myself. I want to educate myself. 671 00:40:36,040 --> 00:40:39,400 Speaker 1: I want to um, you know, there's there's money involved, 672 00:40:39,440 --> 00:40:41,120 Speaker 1: which we're gonna talk about in a minute. So I 673 00:40:41,160 --> 00:40:44,400 Speaker 1: want to get my finances UM squared away, or make 674 00:40:44,440 --> 00:40:48,400 Speaker 1: sure I can have it squared away. I think the 675 00:40:48,600 --> 00:40:50,200 Speaker 1: I guess we should talk a little bit about some 676 00:40:50,239 --> 00:40:54,040 Speaker 1: of the statistics. UM. The abortion rate for Down syndrome 677 00:40:54,080 --> 00:40:59,719 Speaker 1: positive pregnancies UH is declining, you know, for sure. UM. 678 00:40:59,760 --> 00:41:01,279 Speaker 1: It's it's kind of tough in the US because they 679 00:41:01,320 --> 00:41:05,240 Speaker 1: don't have great stats apparently, but the CDC said between 680 00:41:05,239 --> 00:41:08,239 Speaker 1: seventy nine and two thousand three UH the number of 681 00:41:08,239 --> 00:41:12,200 Speaker 1: babies borns with babies born with Down syndrome increased by 682 00:41:12,960 --> 00:41:18,120 Speaker 1: over that time frame, and al analysis found that termination 683 00:41:18,200 --> 00:41:22,640 Speaker 1: rates for fetuses with Down syndrome was between UH sixty 684 00:41:22,680 --> 00:41:26,560 Speaker 1: seven and eight and was declining. Yes, and that's the 685 00:41:26,680 --> 00:41:29,000 Speaker 1: US only. It doesn't appear to be declining in some 686 00:41:29,120 --> 00:41:31,960 Speaker 1: of the Scandinavian countries for example. In other places in 687 00:41:32,040 --> 00:41:34,520 Speaker 1: the world, I think Japan and China also have really 688 00:41:34,600 --> 00:41:38,279 Speaker 1: high abortion rates for Down syndrome positive pregnancies. But the 689 00:41:38,400 --> 00:41:41,200 Speaker 1: U s um there's a few factors at play for 690 00:41:41,320 --> 00:41:44,680 Speaker 1: UM why they would be declining and the down syndrome 691 00:41:44,680 --> 00:41:47,480 Speaker 1: population would be increasing. UM. I think the national Down 692 00:41:47,520 --> 00:41:52,120 Speaker 1: syndrome society says about today about people with Down syndrome 693 00:41:52,120 --> 00:41:54,600 Speaker 1: are born each year, and there are, like I said, 694 00:41:54,640 --> 00:41:58,120 Speaker 1: a few reasons why it's increasing. One is just because 695 00:41:58,160 --> 00:42:02,520 Speaker 1: they've been brought of institutions and people have been able 696 00:42:02,560 --> 00:42:04,960 Speaker 1: to see like, oh, yeah, these are human beings. They're 697 00:42:05,000 --> 00:42:08,200 Speaker 1: different from me, but there's still human beings and they're 698 00:42:08,239 --> 00:42:10,080 Speaker 1: the same as me in a lot more ways than 699 00:42:10,120 --> 00:42:15,960 Speaker 1: I realized. And also again anecdotally, they're amazing people to write. Absolutely, 700 00:42:16,360 --> 00:42:18,760 Speaker 1: it's like, oh goodness, When I we just accept people 701 00:42:18,760 --> 00:42:22,400 Speaker 1: as people, then everything gets better. Right. So that was 702 00:42:22,440 --> 00:42:25,759 Speaker 1: that was just one factor. There's some others too. Uh yeah, 703 00:42:25,920 --> 00:42:29,480 Speaker 1: one of them. Well, one factor is Hispanic women are 704 00:42:29,560 --> 00:42:32,440 Speaker 1: much more likely to give birth regardless of whether or 705 00:42:32,440 --> 00:42:38,600 Speaker 1: not they have down uh syndrome, positive pregnancy happening right. Uh. 706 00:42:38,640 --> 00:42:41,399 Speaker 1: And then another factor that can be complicated is that 707 00:42:42,200 --> 00:42:46,080 Speaker 1: these screenings used to be something that you specifically request. 708 00:42:46,640 --> 00:42:50,960 Speaker 1: Now they're a little more standard, So that could just overall, 709 00:42:51,000 --> 00:42:52,920 Speaker 1: you know, if you're just gonna have more screenings, that 710 00:42:52,960 --> 00:42:57,160 Speaker 1: could increase the overall percentage of those positive results of 711 00:42:57,200 --> 00:43:01,040 Speaker 1: people who still continue with that pregnancy and increase the 712 00:43:01,120 --> 00:43:04,120 Speaker 1: total number of terminations, so I guess all the numbers 713 00:43:04,239 --> 00:43:07,399 Speaker 1: would be rising. Right. Also, the fact that people are 714 00:43:07,400 --> 00:43:10,360 Speaker 1: giving birth later on average is increasing the rate of 715 00:43:10,440 --> 00:43:14,320 Speaker 1: Down syndrome pregnancies to begin with, and that that means 716 00:43:14,360 --> 00:43:18,520 Speaker 1: that just by by definition, more Down syndrome people are 717 00:43:18,560 --> 00:43:21,440 Speaker 1: being born. So I think the number one factor is 718 00:43:21,840 --> 00:43:24,080 Speaker 1: um being able to take people with Down syndrome to 719 00:43:24,120 --> 00:43:28,920 Speaker 1: the park now has just changed everything. Yeah, Um, I 720 00:43:29,000 --> 00:43:31,799 Speaker 1: mentioned money, and there is you know, if there are 721 00:43:31,800 --> 00:43:35,560 Speaker 1: more medical complications on average, Uh, then there are going 722 00:43:35,600 --> 00:43:38,640 Speaker 1: to be more medical costs on average, and that is 723 00:43:39,000 --> 00:43:42,439 Speaker 1: definitely something that people need to think about. I think 724 00:43:42,520 --> 00:43:46,240 Speaker 1: among there's one study among children between birth and age 725 00:43:46,320 --> 00:43:50,440 Speaker 1: four that at private insurance, the average medical care costs 726 00:43:50,480 --> 00:43:54,239 Speaker 1: were about twelve times higher if you had Down syndrome. 727 00:43:55,040 --> 00:43:59,880 Speaker 1: And I think about families with a child with Down syndrome. 728 00:44:00,640 --> 00:44:03,200 Speaker 1: Um had a family member that stopped their job, that 729 00:44:03,280 --> 00:44:07,239 Speaker 1: stopped working to care for them full time, and about 730 00:44:07,640 --> 00:44:11,640 Speaker 1: also said it caused the financial strain on their family, right, Um, 731 00:44:11,680 --> 00:44:14,640 Speaker 1: And I mean there's plenty of other challenges as well. Um. 732 00:44:14,719 --> 00:44:17,080 Speaker 1: One of the things about people with Down syndrome is 733 00:44:17,120 --> 00:44:20,400 Speaker 1: that they age faster. Their bodies just age more quickly 734 00:44:20,680 --> 00:44:24,440 Speaker 1: than people without Down syndrome. UM statistic I saw is 735 00:44:24,480 --> 00:44:27,960 Speaker 1: that a person aged forty with Down syndrome, UH, their 736 00:44:28,000 --> 00:44:32,320 Speaker 1: bodies probably about five years older than their peers um 737 00:44:32,360 --> 00:44:35,520 Speaker 1: and in the general population. And then at sixty, their 738 00:44:35,560 --> 00:44:39,600 Speaker 1: bodies about twenty years older than the average sixty year 739 00:44:39,600 --> 00:44:42,520 Speaker 1: old in the general population. UM. And then one of 740 00:44:42,560 --> 00:44:45,360 Speaker 1: the things that I think really kind of looms like 741 00:44:45,400 --> 00:44:48,600 Speaker 1: a dark cloud over the Down syndrome community is that 742 00:44:48,640 --> 00:44:52,920 Speaker 1: there's a really good chance that they will develop Alzheimer's, 743 00:44:52,960 --> 00:44:56,040 Speaker 1: probably better than a fifty percent chance. I saw an 744 00:44:56,120 --> 00:44:59,120 Speaker 1: editorial in the Washington Post that said a ninety percent 745 00:44:59,280 --> 00:45:02,000 Speaker 1: chance either way. It's a really good likelihood that they're 746 00:45:02,000 --> 00:45:04,480 Speaker 1: going to develop Alzheimer's. It's a big problem in the 747 00:45:04,520 --> 00:45:07,560 Speaker 1: Down syndrome community. Yeah, you sent me that stuff, but 748 00:45:07,600 --> 00:45:10,600 Speaker 1: I didn't get a chance to look over the reasons why. 749 00:45:10,640 --> 00:45:14,239 Speaker 1: But they they've kind of think they've isolated why right, Yeah, 750 00:45:14,320 --> 00:45:17,440 Speaker 1: So that that twenty one chromosome, right, um, that you 751 00:45:17,520 --> 00:45:20,880 Speaker 1: they often have three copies of that third copy actually 752 00:45:20,920 --> 00:45:25,200 Speaker 1: boost production of what's called amloid beta, and amloid beta 753 00:45:25,360 --> 00:45:27,440 Speaker 1: is one of the things that's responsible for the creation 754 00:45:27,520 --> 00:45:31,160 Speaker 1: of plaques on the brain that leads to Alzheimer's. So 755 00:45:31,360 --> 00:45:35,600 Speaker 1: is another um substance called TAO, and people with Down 756 00:45:35,600 --> 00:45:38,760 Speaker 1: syndrome produce more of this stuff, so their brains age faster, 757 00:45:38,840 --> 00:45:42,080 Speaker 1: so they develop Alzheimer's at a much younger age, and 758 00:45:42,160 --> 00:45:45,839 Speaker 1: they're they're much more likely too, because they're overproducing these 759 00:45:45,840 --> 00:45:49,759 Speaker 1: proteins that create the plaque um and then also in UM. 760 00:45:50,200 --> 00:45:54,960 Speaker 1: The Down syndrome population, Alzheimer's starts to present differently. It's 761 00:45:55,000 --> 00:45:58,080 Speaker 1: not really memory loss or for forgetfulness that's like an 762 00:45:58,080 --> 00:46:01,000 Speaker 1: early signed. It's more and this is very said, reduced 763 00:46:01,040 --> 00:46:05,480 Speaker 1: interest in being sociable, conversing or expressing thoughts, and decreased 764 00:46:05,560 --> 00:46:10,479 Speaker 1: enthusiasm for usual activities. So there's a lot of people 765 00:46:10,480 --> 00:46:12,560 Speaker 1: who are like, Okay, well, we're starting to work on 766 00:46:12,600 --> 00:46:16,719 Speaker 1: Alzheimer's and testing new drugs, obviously we're going to include 767 00:46:16,840 --> 00:46:20,080 Speaker 1: people with Down syndrome in those tests. And that is 768 00:46:20,120 --> 00:46:22,279 Speaker 1: absolutely not true. As a matter of fact, there was 769 00:46:22,280 --> 00:46:27,640 Speaker 1: a test that the FDA explicitly excluded people with Down 770 00:46:27,680 --> 00:46:31,239 Speaker 1: syndrome from for testing in Alzheimer's drug yes, and so 771 00:46:31,320 --> 00:46:34,080 Speaker 1: there's there's a real movement to like start to include 772 00:46:34,160 --> 00:46:36,520 Speaker 1: people with Down syndrome in these clinical trials, and it 773 00:46:36,560 --> 00:46:39,480 Speaker 1: seems to be starting to to gain some traction. But 774 00:46:39,560 --> 00:46:44,840 Speaker 1: it's just completely insensible to to just exclude the group 775 00:46:45,200 --> 00:46:49,359 Speaker 1: that I guess, on average has the highest likelihood of 776 00:46:49,400 --> 00:46:55,520 Speaker 1: developing Alzheimer's of any other human group around. Yeah. So 777 00:46:56,440 --> 00:46:59,440 Speaker 1: it's funny. When I was reading this stuff that Livia 778 00:46:59,480 --> 00:47:03,200 Speaker 1: sent us, was getting um a little frustrated with like 779 00:47:03,680 --> 00:47:06,000 Speaker 1: this study says this, and you know, we talked to 780 00:47:06,040 --> 00:47:09,319 Speaker 1: parents that said this, and I was like, well, you know, 781 00:47:09,920 --> 00:47:13,400 Speaker 1: has someone talked to people with Down syndrome and about 782 00:47:13,760 --> 00:47:16,960 Speaker 1: how they feel? And good news is Livia held it 783 00:47:17,000 --> 00:47:20,040 Speaker 1: till the end, and they've done just that uh many times. 784 00:47:20,080 --> 00:47:22,520 Speaker 1: In fact, that was she found one study in two 785 00:47:22,560 --> 00:47:25,560 Speaker 1: thousand eleven, and this is of kids twelve and older 786 00:47:25,600 --> 00:47:29,680 Speaker 1: with Down syndrome, and of them said they were happy 787 00:47:29,840 --> 00:47:33,439 Speaker 1: with their lives. Uh. Seven percent said they liked who 788 00:47:33,440 --> 00:47:38,200 Speaker 1: they were, uh, said they like how they look, said 789 00:47:38,239 --> 00:47:41,160 Speaker 1: they love their family, and eight six percent said they 790 00:47:41,160 --> 00:47:44,759 Speaker 1: could make friends easily. And then they asked it some 791 00:47:44,840 --> 00:47:47,080 Speaker 1: sort of open didded questions just to get like, you know, 792 00:47:47,239 --> 00:47:51,520 Speaker 1: real world answers, and uh, you know, most of these 793 00:47:51,600 --> 00:47:56,120 Speaker 1: kids did express some frustrations with their condition. Um, but 794 00:47:56,200 --> 00:47:59,800 Speaker 1: it was parts of their condition and not their lives 795 00:48:00,000 --> 00:48:03,319 Speaker 1: and not like this is my life is just so 796 00:48:03,400 --> 00:48:05,799 Speaker 1: frustrating as is like this one part of my life 797 00:48:05,840 --> 00:48:09,319 Speaker 1: is frustrating. And obviously a lot of this stuff in 798 00:48:10,360 --> 00:48:13,120 Speaker 1: high school and like in puberty, they found that, you know, 799 00:48:13,160 --> 00:48:16,000 Speaker 1: there were more reports of kids being sad who had 800 00:48:16,000 --> 00:48:19,560 Speaker 1: Down syndrome and not adjusting as well. And you know 801 00:48:19,640 --> 00:48:22,719 Speaker 1: that's that's called puberty and being in high school and 802 00:48:22,719 --> 00:48:25,560 Speaker 1: it's uh, probably especially rough if you have Down syndrome, 803 00:48:25,600 --> 00:48:28,000 Speaker 1: but those are the changes that are going on with 804 00:48:28,040 --> 00:48:30,759 Speaker 1: every kid, and so it may be a little more 805 00:48:30,800 --> 00:48:34,000 Speaker 1: pronounced at that age. Yeah. And this, um, this is 806 00:48:34,000 --> 00:48:37,080 Speaker 1: a really good study to skim. It's called Self Perceptions 807 00:48:37,120 --> 00:48:40,120 Speaker 1: from People with Down Syndrome. It was led by Brian Skoto, 808 00:48:40,320 --> 00:48:43,120 Speaker 1: was from two thousand eleven. It's available for free online 809 00:48:43,520 --> 00:48:46,000 Speaker 1: and it has just it's just chock full of quotes 810 00:48:46,280 --> 00:48:49,200 Speaker 1: from the study. And he even says that they conducted 811 00:48:49,200 --> 00:48:51,920 Speaker 1: the study because so many people are being presented with 812 00:48:52,040 --> 00:48:55,640 Speaker 1: all of the downsides of Down syndrome when they're told 813 00:48:55,680 --> 00:48:58,279 Speaker 1: that their child has Down syndrome, and do they want 814 00:48:58,320 --> 00:49:00,759 Speaker 1: to keep the pregnancy, and he's like, we need to 815 00:49:00,800 --> 00:49:03,399 Speaker 1: get other data that shows the full picture out there 816 00:49:03,440 --> 00:49:06,200 Speaker 1: to people too. That's why he conducted this. But it's 817 00:49:06,200 --> 00:49:08,400 Speaker 1: a really great study to read. And one of the 818 00:49:08,400 --> 00:49:11,680 Speaker 1: things that it kind of points out without overtly pointing out, 819 00:49:12,000 --> 00:49:15,560 Speaker 1: is that people at Down syndrome generally are aware that 820 00:49:15,640 --> 00:49:19,160 Speaker 1: they have Down syndrome, that they're different in some way, 821 00:49:19,680 --> 00:49:23,560 Speaker 1: and yet despite that, this study shows that they're way 822 00:49:23,640 --> 00:49:27,920 Speaker 1: happier on on this self first self reported study granted 823 00:49:28,239 --> 00:49:32,120 Speaker 1: than the average person UM twelve and older in the 824 00:49:32,160 --> 00:49:36,000 Speaker 1: general population. Yeah, it's it's a really and you know, 825 00:49:36,120 --> 00:49:37,520 Speaker 1: I hate that we saved this stuff to the end, 826 00:49:37,560 --> 00:49:39,480 Speaker 1: but it's kind of a nice way to leave things. 827 00:49:39,560 --> 00:49:41,800 Speaker 1: I think for sure. I want to shout out to 828 00:49:41,920 --> 00:49:47,600 Speaker 1: other amazing well three other amazing people, um well four, five, five, 829 00:49:47,800 --> 00:49:52,080 Speaker 1: But in three groups you're always in there. Um. One 830 00:49:52,160 --> 00:49:57,120 Speaker 1: is Paul and Chris Sharoon Deforge. I believe when Paul 831 00:49:57,320 --> 00:50:00,800 Speaker 1: died they both had Down syndrome. They both they have 832 00:50:00,920 --> 00:50:06,640 Speaker 1: been married for twenty five years. Pretty amazing. Um. There 833 00:50:06,760 --> 00:50:09,560 Speaker 1: was a woman named Lisa White who was fifty back 834 00:50:09,600 --> 00:50:12,640 Speaker 1: in two thousand sixteen. She had Down syndrome. It still 835 00:50:12,680 --> 00:50:14,880 Speaker 1: doesn't believe she's around. But one of the things that 836 00:50:14,960 --> 00:50:17,240 Speaker 1: was so amazing about two thousand six teams that Lisa 837 00:50:17,360 --> 00:50:21,080 Speaker 1: turned fifty and her son Nick, her son Nick, who 838 00:50:21,120 --> 00:50:25,319 Speaker 1: also has Down syndrome, turned twenty. That is really rare 839 00:50:25,320 --> 00:50:27,800 Speaker 1: in the community. But it also shows like this woman 840 00:50:27,840 --> 00:50:30,400 Speaker 1: has Down syndrome and she raised a child and she 841 00:50:30,480 --> 00:50:34,279 Speaker 1: was living independently. Also, yeah, uh, we can also shout 842 00:50:34,280 --> 00:50:38,279 Speaker 1: out people like Sujiete de Sai, who was the first 843 00:50:38,360 --> 00:50:42,600 Speaker 1: musician with Down syndrome to play at Carnegie Hall, has 844 00:50:42,640 --> 00:50:45,799 Speaker 1: played in all fifty states thirteen countries. Uh, if you 845 00:50:45,800 --> 00:50:48,319 Speaker 1: saw the great movie the Peanut Butter Falcon, really good 846 00:50:48,360 --> 00:50:50,879 Speaker 1: movie is that I haven't seen. Yeah, it's really good. 847 00:50:50,920 --> 00:50:55,000 Speaker 1: Has Shyla buff in it. But zach Um gotts again. 848 00:50:55,080 --> 00:50:57,360 Speaker 1: I think his house pronounces the actor. He's been in 849 00:50:57,800 --> 00:51:00,200 Speaker 1: a bunch of stuff. But Peanut Butter fact and was 850 00:51:00,239 --> 00:51:03,319 Speaker 1: certainly the highest profile movie and it's a really, really good, 851 00:51:03,600 --> 00:51:06,239 Speaker 1: good flick. Okay, I'm gonna check it out. I mean, 852 00:51:06,280 --> 00:51:10,000 Speaker 1: there's special Olympians who are on the national team, UM 853 00:51:10,160 --> 00:51:14,800 Speaker 1: runaway models. Um arguably the famous person, the most famous 854 00:51:14,840 --> 00:51:17,120 Speaker 1: person with Down syndrome, Chris Burke who played Quirky on 855 00:51:17,160 --> 00:51:20,040 Speaker 1: Life goes On. Gotta shout out Chris Burke for sure. 856 00:51:20,880 --> 00:51:23,759 Speaker 1: Chris Burke, who played Quirky. Life Goes On was a 857 00:51:23,920 --> 00:51:26,719 Speaker 1: very big show and a big deal as far as 858 00:51:26,960 --> 00:51:29,560 Speaker 1: raising awareness, Like it seems like it just a sort 859 00:51:29,600 --> 00:51:32,080 Speaker 1: of a trite thing to shout out the guy who 860 00:51:32,120 --> 00:51:35,840 Speaker 1: played Quirky, but that show was. It was a game changer, 861 00:51:35,920 --> 00:51:38,960 Speaker 1: and not only with just Down syndrome, but just awareness 862 00:51:38,960 --> 00:51:42,359 Speaker 1: in how people viewed a lot of different kinds of disabilities. 863 00:51:42,360 --> 00:51:46,880 Speaker 1: So he's worked with the National Down Syndrome Society h 864 00:51:47,000 --> 00:51:49,160 Speaker 1: for a long time and it's just a great ambassador 865 00:51:49,200 --> 00:51:51,520 Speaker 1: for that group and speaking you gotta shout out. I 866 00:51:51,560 --> 00:51:55,640 Speaker 1: also want to shout out Kayala McKeon, who manages grassroots 867 00:51:55,640 --> 00:51:59,160 Speaker 1: advocacy for the National Down Syndrome Society. She also has 868 00:51:59,200 --> 00:52:02,480 Speaker 1: Down syndrome herself. She was also the first registered lobbyists 869 00:52:02,520 --> 00:52:05,680 Speaker 1: in America with Down syndrome. And we met her Chuck, 870 00:52:05,719 --> 00:52:09,359 Speaker 1: because she came to our Atlanta show, Um where um, 871 00:52:09,600 --> 00:52:12,680 Speaker 1: we had the National Down Syndrome Society come and then um, 872 00:52:12,760 --> 00:52:16,680 Speaker 1: what was the name of the animal charity that you supported? Oh? 873 00:52:16,760 --> 00:52:21,000 Speaker 1: The local one? Yeah, Uh lifeline, Lifeline. That's right, That's 874 00:52:21,000 --> 00:52:23,920 Speaker 1: what I was gonna say. So, UM, Kayla as a 875 00:52:24,000 --> 00:52:25,640 Speaker 1: very cool person who is still at it from what 876 00:52:25,719 --> 00:52:28,080 Speaker 1: I can tell, So shout out Kayla and everybody at 877 00:52:28,080 --> 00:52:31,960 Speaker 1: the n d SS. Awesome. And then we have one 878 00:52:31,960 --> 00:52:33,920 Speaker 1: more thing we just have to cover too. We can't 879 00:52:33,920 --> 00:52:37,520 Speaker 1: not mention it. That article from UM I think New 880 00:52:37,600 --> 00:52:41,239 Speaker 1: Scientists that there's a study that was carried out and 881 00:52:41,280 --> 00:52:44,240 Speaker 1: it was just among seven adult men with Down syndrome 882 00:52:44,480 --> 00:52:48,759 Speaker 1: over six months, but they gave them uh pulses of 883 00:52:49,560 --> 00:52:53,399 Speaker 1: geneta trope and releasing hormone g n r H and 884 00:52:53,760 --> 00:53:00,440 Speaker 1: it improved their cognitive function over six months. That's like 885 00:53:00,480 --> 00:53:03,800 Speaker 1: going from a thousand to add on the old school 886 00:53:03,880 --> 00:53:08,480 Speaker 1: s a t that actually tested cognitive ability. Yeah. Yeah, 887 00:53:08,560 --> 00:53:11,000 Speaker 1: when you put in that perspective, it's nuts giving them 888 00:53:11,160 --> 00:53:14,720 Speaker 1: one hormone. And again that's what actually increases and gets 889 00:53:14,719 --> 00:53:19,120 Speaker 1: triggered when puberty hits, which also coincides with the decline 890 00:53:19,120 --> 00:53:22,040 Speaker 1: and cognitive ability among Down syndrome people. So they may 891 00:53:22,080 --> 00:53:24,560 Speaker 1: have figured out something really big, not just for Down 892 00:53:24,560 --> 00:53:27,959 Speaker 1: syndrome people, but for Alzheimer's as well. We gotta shout 893 00:53:27,960 --> 00:53:30,520 Speaker 1: out one more thing Okay, now where were running long? 894 00:53:31,160 --> 00:53:34,560 Speaker 1: But our very own Jerry sent this to us. Uh. 895 00:53:34,840 --> 00:53:37,719 Speaker 1: Although it's called Jerry's Habima Theater h A B I 896 00:53:37,880 --> 00:53:41,840 Speaker 1: m A uh, it is not our Jerry's Theater, just 897 00:53:41,960 --> 00:53:44,880 Speaker 1: strictly coincidence. And I didn't know about this. This is 898 00:53:44,920 --> 00:53:48,120 Speaker 1: in Atlanta. It's on tilly Mill Road, and it is 899 00:53:48,160 --> 00:53:54,160 Speaker 1: a professional, uh theater company of actors and they all 900 00:53:54,200 --> 00:53:59,319 Speaker 1: have special needs. And apparently there is a show that 901 00:53:59,400 --> 00:54:02,520 Speaker 1: goes on I think it's this in March every year. 902 00:54:02,520 --> 00:54:06,359 Speaker 1: It's coming up March nine through to save the date 903 00:54:06,400 --> 00:54:10,160 Speaker 1: for Cinderella, and tickets go on sale in January. And 904 00:54:10,200 --> 00:54:14,879 Speaker 1: this is an all inclusive theater company that puts on 905 00:54:15,520 --> 00:54:18,840 Speaker 1: these plays and it's looks like a wonderful thing. I 906 00:54:18,840 --> 00:54:21,279 Speaker 1: think Jerry said that she had been and it's like 907 00:54:21,360 --> 00:54:25,080 Speaker 1: one of the most fun best things uh and as 908 00:54:25,080 --> 00:54:27,080 Speaker 1: well as being supportive, but just a really fun thing 909 00:54:27,120 --> 00:54:32,720 Speaker 1: to do. So go check out Jerry's Habima Theater. Okay, 910 00:54:34,080 --> 00:54:36,160 Speaker 1: I'm out of stuff for now. I got I mean, 911 00:54:36,200 --> 00:54:37,840 Speaker 1: we could plug people all day, but I'm out of 912 00:54:37,840 --> 00:54:40,840 Speaker 1: stuff too. Okay, if you want to know more about 913 00:54:40,840 --> 00:54:43,560 Speaker 1: down syndrome, that's really something that you should go out 914 00:54:43,600 --> 00:54:45,920 Speaker 1: and learn more about and while you're doing that, in 915 00:54:45,960 --> 00:54:50,919 Speaker 1: the meantime, I say it's time for listener mail. I'm 916 00:54:51,040 --> 00:54:55,200 Speaker 1: going to call this UH pretty quick follow up from Fundamentalism. 917 00:54:55,200 --> 00:54:58,160 Speaker 1: It was released today and as it happens, we start 918 00:54:58,160 --> 00:55:01,879 Speaker 1: getting emails minutes after release, usually about forty five minutes after, 919 00:55:02,640 --> 00:55:05,400 Speaker 1: although sometimes people jump the gun and email us during 920 00:55:05,400 --> 00:55:09,600 Speaker 1: an episode. Hey guys, thanks for the recent episode on fundamentalism. 921 00:55:09,640 --> 00:55:11,919 Speaker 1: You put into words exactly what I've been going through 922 00:55:12,400 --> 00:55:14,600 Speaker 1: for the past couple of years. I come from a 923 00:55:14,680 --> 00:55:17,680 Speaker 1: very fundamentalist Catholic family and have been dealing with all 924 00:55:17,680 --> 00:55:21,359 Speaker 1: the joy that comes from expressing a different viewpoint. My 925 00:55:21,360 --> 00:55:23,000 Speaker 1: wife and I are both atheists, and this has been 926 00:55:23,000 --> 00:55:25,600 Speaker 1: a point of contention with my family never since we 927 00:55:25,640 --> 00:55:28,239 Speaker 1: have decided to have a non religious wedding. UH. The 928 00:55:28,280 --> 00:55:30,399 Speaker 1: tension is only increased since we have welcomed our daughter 929 00:55:30,400 --> 00:55:32,880 Speaker 1: into the world and had to deal with my family's 930 00:55:32,880 --> 00:55:36,759 Speaker 1: push to baptizer. The episode on fundamentalism is some very 931 00:55:36,800 --> 00:55:39,120 Speaker 1: good points and definitely allowed me to look at the 932 00:55:39,160 --> 00:55:43,759 Speaker 1: situation in a different light. The issue is closed mindedness 933 00:55:44,320 --> 00:55:48,200 Speaker 1: and not necessarily religion. Appreciate all you guys do all 934 00:55:48,200 --> 00:55:52,040 Speaker 1: the best that is from Jake. Awesome, thank you for that. 935 00:55:52,560 --> 00:55:55,520 Speaker 1: I can imagine that their wedding someone said God bless 936 00:55:55,520 --> 00:55:59,440 Speaker 1: you two, and they were like, get out. You know, 937 00:55:59,440 --> 00:56:00,880 Speaker 1: I'll take a guy bless you. I don't mind it. 938 00:56:01,600 --> 00:56:05,160 Speaker 1: Uh when you sneeze her anytime. Anytime, if someone uh, 939 00:56:05,760 --> 00:56:08,120 Speaker 1: I don't know, if my grocery store check her outer 940 00:56:08,320 --> 00:56:11,279 Speaker 1: just says God bless you have a blessed day, I 941 00:56:11,440 --> 00:56:13,759 Speaker 1: just say, you know what, thanks very much, because that's 942 00:56:13,960 --> 00:56:16,600 Speaker 1: that's a kindness that they're bestowing upon me in their 943 00:56:16,640 --> 00:56:19,799 Speaker 1: own way. Oh yeah, I'm like, you've never heard of 944 00:56:19,840 --> 00:56:26,080 Speaker 1: separation of church in public. You're fired as you're smashing 945 00:56:26,120 --> 00:56:30,280 Speaker 1: a sheet cake into your mouth. That's exactly right, because 946 00:56:30,320 --> 00:56:33,240 Speaker 1: those things don't make it out the door. Well, thanks 947 00:56:33,239 --> 00:56:36,640 Speaker 1: a lot for sending us that email, Jake, And if 948 00:56:36,680 --> 00:56:40,279 Speaker 1: you want to be like Jake, then you can send 949 00:56:40,320 --> 00:56:43,440 Speaker 1: us an email to uh stuff podcast at iHeart radio 950 00:56:43,680 --> 00:56:49,000 Speaker 1: dot com. Stuff you Should Know is a production of 951 00:56:49,040 --> 00:56:52,360 Speaker 1: I Heart Radio. For more podcasts my heart Radio, visit 952 00:56:52,400 --> 00:56:55,200 Speaker 1: the i heart Radio app, Apple Podcasts, or wherever you 953 00:56:55,239 --> 00:56:56,560 Speaker 1: listen to your favorite shows.