WEBVTT - Episode 21: What is Dyspraxia?

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<v Speaker 1>So if you were to teach me, I'll show you so.

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<v Speaker 1>And I'm at aut Millennium Gym on Auckland's north shore

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<v Speaker 1>with personal trainer Bailey Garnum. Bailey competed in Olympic weightlifting

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<v Speaker 1>for years and he's teaching me to do something I've

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<v Speaker 1>only ever seen weightlifters do on the telly. The clean

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<v Speaker 1>and jerk.

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<v Speaker 2>People have different handricks.

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<v Speaker 3>Pretty yeah, what we would do is have a little

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<v Speaker 3>bit of a gap starting between your shim and the bar.

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<v Speaker 1>Bailey has dyspraxia and dysgraphia, neurodevelopmental conditions which make a

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<v Speaker 1>lot of basic life tasks really challenging.

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<v Speaker 3>So what that does is backed up, tight up.

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<v Speaker 1>But this is a young guy who thrives on a

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<v Speaker 1>challenge and he loves lifting really really heavy weights.

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<v Speaker 3>If you're doing a snatch and Olympic weightlifting, you're thinking, right,

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<v Speaker 3>I'm going to put one hundred killers, bove my head

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<v Speaker 3>and jump under this bar as strong and as hard

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<v Speaker 3>and as fast as possible. Why the heck would I

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<v Speaker 3>want to do this? Like a heavy squat, you can

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<v Speaker 3>feel the amount of weight on your back and you're like,

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<v Speaker 3>if I don't do this properly, I may get crushed

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<v Speaker 3>and you think, why am I doing this? And you go,

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<v Speaker 3>you know, the nerves kicking. Okay, this is why I'm

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<v Speaker 3>doing it, just because get that feeling.

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<v Speaker 4>The adrenaline rush, the adrenaline rush.

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<v Speaker 1>I'm diving into the complex and fascinating world of neurodiversity.

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<v Speaker 1>I'm not an expert, but my daughter is neurodivergent, and

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<v Speaker 1>a few years ago I was diagnosed with ADHD. In

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<v Speaker 1>this series, you'll hear from experts and from many wonderful

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<v Speaker 1>people who experience the world in a unique way. We're

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<v Speaker 1>looking at neurodiversity from the inside. Gelda. I'm Sonya Gray,

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<v Speaker 1>and this is no such thing as normal. Series two.

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<v Speaker 1>Dyspraxia also known as developmental coordination disorder, previously known as

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<v Speaker 1>clumsy child syndrome. My daughter in Nes was diagnosed with

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<v Speaker 1>dyspraxia as a seven year old. She has challenges with

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<v Speaker 1>coordination and things like tying shoelaces took her a really

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<v Speaker 1>long time. But the effect is much broader. Like so

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<v Speaker 1>many you're a divergent conditions, what we're seeing is just

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<v Speaker 1>the tip of the iceberg. Dyspraxic people often struggle with

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<v Speaker 1>sport and so they opt out of physical activity really

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<v Speaker 1>early on. But Bailey Garnon wants to change that. He

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<v Speaker 1>reckons it's not that they can't do sport. In fact,

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<v Speaker 1>it's the best thing for dyspraxia, he says, often they

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<v Speaker 1>just need to be taught in a different way. So

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<v Speaker 1>you've just taken me through a little bit of the

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<v Speaker 1>beginning of learning how to do the lean and jerk.

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<v Speaker 1>It's amazing how much balance plays into it. But for

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<v Speaker 1>you as a dysprexic, balance can be tricky. So you

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<v Speaker 1>kind of entered into a sport that you've already got

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<v Speaker 1>a disadvantage, I guess. So tell me about that and

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<v Speaker 1>how hard it was to learn and why you persisted.

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<v Speaker 3>The environment of the gym we had was just like

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<v Speaker 3>it was incredible. You just see these strong girls and

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<v Speaker 3>guys just lifting these weights and the banging of the plates,

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<v Speaker 3>and I just love the environment. And I think because

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<v Speaker 3>Mike was doing it, here's the reason why I stuck

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<v Speaker 3>it out.

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<v Speaker 1>Mike is mike' schofield who's now with High Performance New Zealand.

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<v Speaker 1>He's the coach of Meddi Witshy, our fabulous shot putterer

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<v Speaker 1>who won a silver medal at the Paris Olympics. Mike

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<v Speaker 1>was in his early twenties when he started coaching Bailey,

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<v Speaker 1>and when he found out about the dysprexia, might learn

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<v Speaker 1>everything he could about the neurodevelopmental condition.

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<v Speaker 3>He went away and researched everything. What is it, what

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<v Speaker 3>are the symptoms? How have people responded? So he went

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<v Speaker 3>away and did that, and I was weak, like eleven

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<v Speaker 3>years old. I was. I was absolutely weak, couldn't do

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<v Speaker 3>a push up or anything. So my parents said to him, look,

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<v Speaker 3>can you train Bailey in the gym? So he was

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<v Speaker 3>my pt and we did two sessions a week.

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<v Speaker 1>In the beginning. Mike had his work cut out for him.

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<v Speaker 1>The just braxia meant that really simple moves that most

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<v Speaker 1>of us pick up straight away did not come naturally

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<v Speaker 1>for Bailey, like a basic lunge.

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<v Speaker 3>So it took Mike, I think like three or four

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<v Speaker 3>months to teach me how to do a lunge.

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<v Speaker 1>Three or four months.

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<v Speaker 3>Yeah, to learn how to do just do a standard

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<v Speaker 3>body weight lunch. I don't know how he did it.

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<v Speaker 3>When you think of a lunge, you know, you step out,

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<v Speaker 3>do you ben your back leave, do you ben your

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<v Speaker 3>front leg? What do you do you know. I had

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<v Speaker 3>to break it down and to step. Okay, how far

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<v Speaker 3>out do I step? Do I step?

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<v Speaker 4>This?

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<v Speaker 3>Word? It's my foot too close? Is it too far away?

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<v Speaker 3>I think I used to step too far into my midline,

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<v Speaker 3>so it causes send a mass to go all wonky.

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<v Speaker 3>But took me a long time to learn how to

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<v Speaker 3>do just a simple step out and lunge.

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<v Speaker 1>Three or four months is a long time to be

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<v Speaker 1>able to successfully step forward and be in your front

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<v Speaker 1>leg without falling over. There are so many movements like

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<v Speaker 1>this in and out of a gym that are not

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<v Speaker 1>automatic for many people with dyspraxia, but the extra work

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<v Speaker 1>Bailey's had to put in over the years give them

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<v Speaker 1>something that other personal trainers may not have.

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<v Speaker 2>It's an awareness that will make him a really great

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<v Speaker 2>trainer for other people because he will be able to

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<v Speaker 2>analyze their lunge and if they're struggling with it in

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<v Speaker 2>some way, if they're losing their balance, then he might

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<v Speaker 2>have more insight as to why that's happening for them.

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<v Speaker 2>That's really taxing having to know that stuff.

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<v Speaker 1>Ellen Nathan is an occupational therapist who you might remember

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<v Speaker 1>from episode eleven of this podcast. She works with many

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<v Speaker 1>dyspraxic kids, and she says dyspraxia or DCD affects every

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<v Speaker 1>area of someone's life. It's much more than just not

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<v Speaker 1>being able to do a lunch. There are so many

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<v Speaker 1>daily activities at home, at work, and at school that

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<v Speaker 1>dyspraxic people have to consciously step through.

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<v Speaker 2>You know, it's really hard having to think everything through

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<v Speaker 2>so cognitively. For some people, they just move their body

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<v Speaker 2>to get to the place they want to get to,

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<v Speaker 2>whereas there are people out there there's one in every class.

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<v Speaker 2>You know, every classroom has at least one dyspraxic kid

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<v Speaker 2>who picking up a pencil and writing their name is

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<v Speaker 2>not automatic. So it's very hard to pick up your

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<v Speaker 2>pencil and write your name while you're still trying to

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<v Speaker 2>plan your story. So they already step behind their peers.

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<v Speaker 2>By the end of the day, they're exhausted because they've

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<v Speaker 2>had to think through every step still at a cognitive level.

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<v Speaker 1>The exhaustion is real. I see it in my daughter

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<v Speaker 1>every day, and it's backed up by research. Brain scans

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<v Speaker 1>of dyspraxit kids have shown the neural mechanisms are firing

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<v Speaker 1>twice as fast. These kids are putting in double the

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<v Speaker 1>energy and focus just to walk, talk, pick up, open, close, throw,

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<v Speaker 1>and so on. But what's behind these movement difficulties? My

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<v Speaker 1>daughter is dyspraxic, and when people ask me what does

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<v Speaker 1>that mean, I'm like, well, it still don't really understand it.

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<v Speaker 1>So I guess is it possible to sum up what

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<v Speaker 1>dyspraxia is.

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<v Speaker 2>Dyspraxia is challenges with motor execution, so challenges with movement

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<v Speaker 2>that you have conscious control over, and it requires conscious control,

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<v Speaker 2>so it's not something that you're doing automatically. Yet people

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<v Speaker 2>who have dyspraxia are often struggling with movement and therefore

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<v Speaker 2>using more cognition around movement. Movement takes three stages to

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<v Speaker 2>come up with an idea, to plan how you're going

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<v Speaker 2>to execute that idea, and then to execute it. And

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<v Speaker 2>so dyspraxia or DCD, you can have a challenge in

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<v Speaker 2>any of those three areas or all of those three areas.

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<v Speaker 1>And it's not just the planning and execution that's tricky.

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<v Speaker 1>There's also the problem of sensing and knowing where your

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<v Speaker 1>body is in relation to everyone and everything else. Allan

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<v Speaker 1>says that's the job of one of our biggest sensory

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<v Speaker 1>systems called proprioception. But if you're dyspraxic, the appropriate aceptive

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<v Speaker 1>receptors aren't always going to give you the right feedback.

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<v Speaker 2>People with dyspraxia don't have as much of that information

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<v Speaker 2>feeding back to them, so they don't necessarily know where

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<v Speaker 2>their body is is in space and time. So when

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<v Speaker 2>we don't know where our body is in space and

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<v Speaker 2>time because the proper aceptor of receptors aren't telling us.

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<v Speaker 2>That's why dyspraxic people bang into doors, why they drop cups,

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<v Speaker 2>why they may go to catch a ball and not

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<v Speaker 2>quite catch it properly, or go to throw it and

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<v Speaker 2>it drops before the person. They're not getting the same

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<v Speaker 2>amount of feedback from their muscles that tell them how

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<v Speaker 2>much effort or energy to put into the muscle to

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<v Speaker 2>affect whatever it is that they're trying to affect.

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<v Speaker 1>Right, and so then developmental coordination disorder DCD, where does

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<v Speaker 1>that for them?

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<v Speaker 2>DCD is the term that was given to a certain

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<v Speaker 2>group of symptoms that's a very specific diagnosis. Some people

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<v Speaker 2>use the two interchangeably, so dyspraxia and DCD mean the

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<v Speaker 2>same thing. Also, depends what country you're in, so America

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<v Speaker 2>and the un are very different, and in the larger

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<v Speaker 2>community of clinicians working in this space, there's not even

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<v Speaker 2>agreement with these things, which is why it's so confusing.

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<v Speaker 1>I see, Okay, Honestly, the more you learn, the more

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<v Speaker 1>confusing it gets. What's important I think to know is

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<v Speaker 1>that in al tiodor, the official diagnosis for this condition

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<v Speaker 1>is DCD developmental coordination disorder. But if you say DCD,

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<v Speaker 1>no one knows what you're talking about, which is why

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<v Speaker 1>dyspraxia is commonly used. But most people will hear dyspraxia

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<v Speaker 1>and think, oh, you mean dyslexia, and it's quite different. However,

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<v Speaker 1>dyslexia and dyspraxia can co occur. You can see how

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<v Speaker 1>this is confusing, can't you. Co Occurring conditions are extremely

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<v Speaker 1>high with dyspraxia, so chances are there will be something

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<v Speaker 1>else going on.

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<v Speaker 2>I think when p people have multiple diagnoses, the other

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<v Speaker 2>diagnosis might end up with more airtime because there's either

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<v Speaker 2>more available, there's more funding, or people understand it better,

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<v Speaker 2>and so sometimes you end up lumping your symptoms over

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<v Speaker 2>to the other one that more people understand because it's

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<v Speaker 2>tiring explaining it all the time.

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<v Speaker 1>Bailey Garnum, the twenty four year old Olympic weightlifter and

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<v Speaker 1>personal trainer, doesn't get tired of talking about dyspraxia. In fact,

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<v Speaker 1>he's passionate about it. He wants young dyspraxic and neurodivergent

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<v Speaker 1>kids to know that they can succeed in sport. It's

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<v Speaker 1>just finding the right sport, the right approach, and the

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<v Speaker 1>right people. As a kid, Bailey's ultimate dream was to

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<v Speaker 1>make it big as a cricketer. He loved cricket, but

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<v Speaker 1>cricket didn't always love him back.

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<v Speaker 3>It always was, h I'm going to be a black cab.

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<v Speaker 3>I'm going to be a black cab. And I would

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<v Speaker 3>try and try and try give him my best. You know,

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<v Speaker 3>Mom and Dad got me like a cricket coach. And

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<v Speaker 3>when I want cricket coach, which I did all these things,

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<v Speaker 3>and friends of mine who didn't take it as seriously

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<v Speaker 3>would get into the better teams and I was like,

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<v Speaker 3>I was, Mom and Dad, why am I? Why am

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<v Speaker 3>I not in the team? And you know, there'd be

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<v Speaker 3>a lot of anger, lash outs, And try my hardest

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<v Speaker 3>every practice and like, why can I do it? Why

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<v Speaker 3>can I do it? And at the time before he

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<v Speaker 3>knew dysphraxi and mom and dad were like, keep going,

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<v Speaker 3>We'll just keep going, We'll keep going. And then when

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<v Speaker 3>you got the diagnosis it made sense.

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<v Speaker 1>For many kids who have coordination difficulties, by the age

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<v Speaker 1>of eleven or twelve, they've already decided I'm not good

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<v Speaker 1>at sport, you know, because in those first few years

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<v Speaker 1>it's all team ball games. They can't catch the ball

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<v Speaker 1>and stuff. You know, they might get a better jibbing

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<v Speaker 1>from school friends and they just go, you know what,

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<v Speaker 1>I don't want to do this. I'm just not sport

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<v Speaker 1>is not for me. And I feel like that might

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<v Speaker 1>be a big reason that you are quite an advocate,

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<v Speaker 1>is it.

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<v Speaker 3>I'd be the classic example of not liking team sports

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<v Speaker 3>or feeling like horrible playing team sports. I did ever then,

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<v Speaker 3>touch rugby, cricket, water, polo, football, and none of it

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<v Speaker 3>stuck with me.

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<v Speaker 1>So were you always the kid that wasn't quite up?

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<v Speaker 3>I was always the kid that marked the team up,

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<v Speaker 3>you know, Like I got the ball in touch rugby

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<v Speaker 3>and I ran outside the touchline and thought I was

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<v Speaker 3>getting to try and I just I never felt comfortable.

0:13:37.720 --> 0:13:40.880
<v Speaker 1>So let's say cricket. You played cricket. A lot of

0:13:40.920 --> 0:13:44.439
<v Speaker 1>cricket is about coordination, like one of the things as

0:13:44.520 --> 0:13:48.400
<v Speaker 1>a fellow cricket lover, whenever there's a high ball and

0:13:48.440 --> 0:13:51.400
<v Speaker 1>a player under it, I freak out for them because

0:13:51.440 --> 0:13:54.480
<v Speaker 1>it's like, I know they've done it a hundred times,

0:13:54.520 --> 0:13:56.280
<v Speaker 1>but it still don't know what the wind's going to do.

0:13:56.400 --> 0:13:59.160
<v Speaker 1>There's so much judgment in there. How were you under

0:13:59.160 --> 0:14:00.720
<v Speaker 1>the high ball?

0:14:01.120 --> 0:14:03.680
<v Speaker 3>I think I caught one right, right?

0:14:03.960 --> 0:14:06.559
<v Speaker 1>But yeah, you persisted with all these team sports. Did

0:14:06.559 --> 0:14:07.520
<v Speaker 1>you love sport?

0:14:07.679 --> 0:14:10.240
<v Speaker 3>I just loved I think I just loved sports. So

0:14:10.320 --> 0:14:15.920
<v Speaker 3>when I found weightlifting and I only had to rely

0:14:16.040 --> 0:14:20.000
<v Speaker 3>on me, my performance outcome was not down to a

0:14:20.080 --> 0:14:23.880
<v Speaker 3>coach's or other people, and.

0:14:24.040 --> 0:14:26.160
<v Speaker 1>There wasn't the potential to let the team down.

0:14:26.520 --> 0:14:29.160
<v Speaker 3>No, it was just solely on me.

0:14:30.320 --> 0:14:33.560
<v Speaker 1>And it helped having a coach like Mike Schofield, who

0:14:33.640 --> 0:14:37.200
<v Speaker 1>patiently helped him master the basic lunge and then moved

0:14:37.240 --> 0:14:38.680
<v Speaker 1>him on to the serious stuff.

0:14:39.440 --> 0:14:44.600
<v Speaker 3>He started introducing me into deadlifting, and one day I

0:14:44.600 --> 0:14:47.320
<v Speaker 3>was about twelve, we'd been doing it for a while,

0:14:47.480 --> 0:14:50.840
<v Speaker 3>and I did lifted one hundred kilos and he's like, oh,

0:14:50.880 --> 0:14:52.440
<v Speaker 3>this kid's quite strong. And he goes, do you want

0:14:52.440 --> 0:14:54.960
<v Speaker 3>to come to at Millennium and I'm coaching people in

0:14:54.960 --> 0:14:55.920
<v Speaker 3>the Olympic weightlifting.

0:15:14.760 --> 0:15:18.280
<v Speaker 1>Dyspraxia or DCD is more common than you might think.

0:15:18.800 --> 0:15:21.920
<v Speaker 1>An estimated six to ten percent of the population have it.

0:15:22.640 --> 0:15:27.360
<v Speaker 1>Most have no idea, they never identified, but Bailey was lucky.

0:15:29.120 --> 0:15:31.440
<v Speaker 3>It was during a parent teacher interview in like year eight,

0:15:31.560 --> 0:15:34.360
<v Speaker 3>my art teacher said to my parents, she said, oh,

0:15:34.400 --> 0:15:37.560
<v Speaker 3>I think your son's got a learning disorder. And they

0:15:37.600 --> 0:15:39.440
<v Speaker 3>were like, what do you mean and she goes, well,

0:15:39.480 --> 0:15:43.040
<v Speaker 3>the way your son's hand pattern is when he draws,

0:15:43.480 --> 0:15:46.880
<v Speaker 3>there's something not correct and there's something not normal.

0:15:47.800 --> 0:15:48.520
<v Speaker 2>Yeah, to add to.

0:15:48.560 --> 0:15:50.520
<v Speaker 3>Other kids, I recommend you go again on the.

0:15:50.560 --> 0:15:55.360
<v Speaker 1>Test, okay. And had they noticed anything up to that point, No.

0:15:55.840 --> 0:16:00.000
<v Speaker 3>I think mum and dad had thought there may be something,

0:16:00.560 --> 0:16:02.800
<v Speaker 3>but even in primary school, teachers to said, oh, he's

0:16:02.840 --> 0:16:05.160
<v Speaker 3>just the late learner. I find he'll get there in

0:16:05.200 --> 0:16:05.520
<v Speaker 3>the end.

0:16:06.560 --> 0:16:08.800
<v Speaker 1>So Bailey's parents took him for an assessment and he

0:16:08.880 --> 0:16:12.440
<v Speaker 1>was diagnosed with dysplexia and dysgraphia.

0:16:13.960 --> 0:16:16.040
<v Speaker 3>And we're like, what the heck's of this? And then

0:16:16.080 --> 0:16:18.760
<v Speaker 3>when we started learning about it, it kind of made

0:16:18.800 --> 0:16:21.880
<v Speaker 3>a lot of it made sense as okay, so this

0:16:22.040 --> 0:16:23.320
<v Speaker 3>is why this is me happening.

0:16:24.240 --> 0:16:26.760
<v Speaker 1>I want to ask you about classic I don't want

0:16:26.800 --> 0:16:29.600
<v Speaker 1>to say symptoms, but maybe some of the things that

0:16:29.800 --> 0:16:34.120
<v Speaker 1>dysprexics can struggle with. Tying shoe lasses.

0:16:33.920 --> 0:16:37.560
<v Speaker 3>Yes, yeap, huge one for me. It's fine motor skills

0:16:38.200 --> 0:16:43.160
<v Speaker 3>anything like writing for example, and exams. I'd have to

0:16:43.200 --> 0:16:46.200
<v Speaker 3>have read to writers, so I wouldn't know what to say,

0:16:46.360 --> 0:16:50.480
<v Speaker 3>but getting it out on paper, it just wouldn't.

0:16:51.480 --> 0:16:52.600
<v Speaker 1>That connection wasn't there.

0:16:52.640 --> 0:16:53.640
<v Speaker 3>It would not work.

0:16:55.200 --> 0:16:59.120
<v Speaker 1>And this is where dysgraphia comes into the picture. Disgraphia

0:16:59.240 --> 0:17:03.240
<v Speaker 1>is a specific learning difficulty with writing. It's a cousin

0:17:03.360 --> 0:17:07.040
<v Speaker 1>of dyslexia, which is officially known now as a specific

0:17:07.119 --> 0:17:11.560
<v Speaker 1>learning difficulty with reading. But back to dyspraxia. Fine motor

0:17:11.600 --> 0:17:14.760
<v Speaker 1>skills are often weak in dyspraxics and that makes writing

0:17:14.840 --> 0:17:21.119
<v Speaker 1>really difficult. So how does dysgraphia fit with dyspraxia? I

0:17:21.240 --> 0:17:25.639
<v Speaker 1>ask Allan, the occupational therapist, to help me understand the dishes.

0:17:27.119 --> 0:17:34.200
<v Speaker 2>Dysgraphia is specifically around translating ideas as written word or

0:17:34.240 --> 0:17:36.480
<v Speaker 2>as imagery. Can I draw a picture? If I want

0:17:36.480 --> 0:17:38.560
<v Speaker 2>to draw a giraffe? Can I draw a giraffe? I

0:17:38.600 --> 0:17:40.960
<v Speaker 2>may have an image in my head, but I cannot

0:17:40.960 --> 0:17:45.440
<v Speaker 2>translate that onto paper. Dyspraxia is kind of all movement,

0:17:46.280 --> 0:17:50.840
<v Speaker 2>so gross motor, fine motor, all the life tasks, so

0:17:51.320 --> 0:17:54.920
<v Speaker 2>getting yourself dressed, doing up zips, brushing your teeth, brushing

0:17:54.920 --> 0:17:58.960
<v Speaker 2>your hair, throwing a ball, riding a bike, managing stairs,

0:17:59.400 --> 0:18:02.720
<v Speaker 2>eating with an life and fork. That's all dysprasak that full.

0:18:02.960 --> 0:18:04.880
<v Speaker 2>Can I affect the world the way that I want

0:18:04.920 --> 0:18:06.399
<v Speaker 2>to through motor movement?

0:18:07.680 --> 0:18:13.359
<v Speaker 1>Allen says dysgraphia and dyspraxia are distinct diagnoses, but like Bailey,

0:18:13.720 --> 0:18:17.240
<v Speaker 1>you can have both. And that presented many challenges for

0:18:17.359 --> 0:18:18.280
<v Speaker 1>Bailey as a child.

0:18:19.880 --> 0:18:22.040
<v Speaker 3>So riding the bike was a big one. My granddad

0:18:22.040 --> 0:18:23.840
<v Speaker 3>taught me how to ride a bike twice. I learned it,

0:18:24.000 --> 0:18:26.359
<v Speaker 3>forgot it, then he retaught me how to learn it.

0:18:27.000 --> 0:18:28.960
<v Speaker 3>My parents, when I was younger, they would travel for

0:18:29.040 --> 0:18:31.439
<v Speaker 3>work in the school holidays, so I would spend a

0:18:31.440 --> 0:18:33.880
<v Speaker 3>lot of time with my grandparents. They lived in Lake

0:18:33.960 --> 0:18:38.680
<v Speaker 3>Talpo and there was this set of like monkey bars.

0:18:38.760 --> 0:18:42.160
<v Speaker 3>I remember. It took a few holidays and me going

0:18:42.240 --> 0:18:43.800
<v Speaker 3>every day, and he would go every day with me

0:18:43.880 --> 0:18:47.479
<v Speaker 3>until we could get it, till I could complete this

0:18:47.560 --> 0:18:49.119
<v Speaker 3>kind of monkey bar circle.

0:18:49.840 --> 0:18:54.360
<v Speaker 1>Just having someone close to you that was patient, oh year.

0:18:54.800 --> 0:18:57.280
<v Speaker 1>So he wasn't like, come on, Bailey, you're gonna get

0:18:57.280 --> 0:18:58.640
<v Speaker 1>the baby. Other kid can do it.

0:18:58.840 --> 0:19:03.439
<v Speaker 3>No, no, and no at all. But if I didn't

0:19:03.480 --> 0:19:07.720
<v Speaker 3>have the grandparents that I had, I don't know how

0:19:08.119 --> 0:19:09.879
<v Speaker 3>or what things would be like.

0:19:09.960 --> 0:19:13.880
<v Speaker 1>Now, having the right people in your corner makes all

0:19:13.960 --> 0:19:18.359
<v Speaker 1>the difference. Allan Nathan understands that well. She works with

0:19:18.400 --> 0:19:22.119
<v Speaker 1>some very young children. Many of them are really struggling,

0:19:22.680 --> 0:19:25.600
<v Speaker 1>so she's developed techniques to tease out what might be

0:19:25.680 --> 0:19:26.480
<v Speaker 1>going on for them.

0:19:28.720 --> 0:19:30.520
<v Speaker 2>So one of the things that I do when I

0:19:30.560 --> 0:19:33.000
<v Speaker 2>go and meet kids and I'm doing various assessments that

0:19:33.080 --> 0:19:35.320
<v Speaker 2>might be for dispracts or it might not, I will

0:19:35.680 --> 0:19:38.679
<v Speaker 2>do a task that for their age should be automatic,

0:19:39.040 --> 0:19:41.640
<v Speaker 2>like catching a ball, and I'll chat to them about

0:19:41.640 --> 0:19:45.320
<v Speaker 2>their day. What I'm testing is do they have automaticity

0:19:45.359 --> 0:19:48.560
<v Speaker 2>in those two skills? Can they automatically talk while catching

0:19:48.560 --> 0:19:51.960
<v Speaker 2>a ball? Because if they stop talking when they catch

0:19:52.000 --> 0:19:54.000
<v Speaker 2>the ball, that tells me that they've had to think

0:19:54.040 --> 0:19:56.320
<v Speaker 2>about that there's no room to talk and think at

0:19:56.359 --> 0:19:58.719
<v Speaker 2>the same time. It's one or the other. I remember

0:19:58.720 --> 0:20:00.320
<v Speaker 2>turning up to a school where there was a child

0:20:00.520 --> 0:20:03.600
<v Speaker 2>that was running away from school and really upset. My

0:20:03.680 --> 0:20:05.800
<v Speaker 2>teachers were really lost, and it was his first six

0:20:05.840 --> 0:20:08.880
<v Speaker 2>months at school. He was biting kids and I think

0:20:08.920 --> 0:20:12.240
<v Speaker 2>he'd broken another student's arm. That was pretty big. I

0:20:12.320 --> 0:20:14.639
<v Speaker 2>got in there to do an assessment and I was

0:20:14.960 --> 0:20:17.520
<v Speaker 2>just walking through the playground with him. Five year old boy.

0:20:18.200 --> 0:20:20.800
<v Speaker 2>He just could not walk and talk. He'd take a

0:20:20.840 --> 0:20:22.880
<v Speaker 2>few steps and he'd tell me something about his day

0:20:22.880 --> 0:20:26.000
<v Speaker 2>and he'd stopped walking. Then when I would start to talk,

0:20:26.160 --> 0:20:29.160
<v Speaker 2>he'd start walking again. And I was like, gosh, you're

0:20:29.200 --> 0:20:32.520
<v Speaker 2>five and a half. You're at school. You can't yet

0:20:32.560 --> 0:20:35.960
<v Speaker 2>walk and talk. These two things aren't automatic for you yet.

0:20:36.720 --> 0:20:39.840
<v Speaker 2>So when he comes in after lunch, he's so exhausted.

0:20:40.520 --> 0:20:43.320
<v Speaker 2>His body is tired and his brain is tired. He

0:20:43.359 --> 0:20:46.480
<v Speaker 2>wants to do the art activity, but he just can't.

0:20:46.560 --> 0:20:49.080
<v Speaker 2>He's got no spoons left to do that, and he

0:20:49.119 --> 0:20:54.639
<v Speaker 2>can't organize his thoughts into clear ideas. He can't articulate

0:20:54.680 --> 0:20:58.200
<v Speaker 2>those ideas in language, and then he's getting left behind,

0:20:58.920 --> 0:21:02.840
<v Speaker 2>and you know, his peers are all doing full pages

0:21:02.880 --> 0:21:04.920
<v Speaker 2>of work and he's just scribbling through his book because

0:21:04.960 --> 0:21:07.120
<v Speaker 2>he can't hold a pen He can't hold a pencil,

0:21:07.520 --> 0:21:12.040
<v Speaker 2>he can't translate his ideas yet, oh my goodness, And

0:21:12.080 --> 0:21:15.880
<v Speaker 2>no one would see that. They're just saying behavior that's

0:21:15.880 --> 0:21:18.679
<v Speaker 2>putting other students at risk, which is putting other students

0:21:18.680 --> 0:21:22.520
<v Speaker 2>at risk. But he needed help.

0:21:23.200 --> 0:21:26.239
<v Speaker 1>I know, if you hadn't come in, how many other

0:21:26.280 --> 0:21:27.679
<v Speaker 1>people are going to pick up on that?

0:21:27.840 --> 0:21:28.159
<v Speaker 2>Really?

0:21:29.080 --> 0:21:29.840
<v Speaker 1>You know what I mean?

0:21:30.320 --> 0:21:31.800
<v Speaker 2>Yeah, it's really complex.

0:21:33.280 --> 0:21:36.679
<v Speaker 1>Dyspraxia is really complex because there is so much to

0:21:36.720 --> 0:21:39.679
<v Speaker 1>contend with every day, and because it can affect so

0:21:39.760 --> 0:21:43.760
<v Speaker 1>many things, fine motor skills, gross motor skills, perception, attention,

0:21:44.359 --> 0:21:48.320
<v Speaker 1>and speech. Many of the client's Bailey trains are dyspraxic,

0:21:48.440 --> 0:21:51.520
<v Speaker 1>and he sees the full spectrum.

0:21:52.240 --> 0:21:53.840
<v Speaker 3>I trained one boy at the moment who's had a

0:21:53.920 --> 0:21:57.480
<v Speaker 3>very bad speech impermit, so he knows what he wants

0:21:57.520 --> 0:22:00.400
<v Speaker 3>to say, but then everything just gets jumbled up, which.

0:22:00.240 --> 0:22:03.360
<v Speaker 1>Must be so frustrating for him because it's all in there.

0:22:03.680 --> 0:22:04.800
<v Speaker 1>It just can't get it out.

0:22:04.880 --> 0:22:08.600
<v Speaker 3>It's just getting it out. So it's a huge spectrum.

0:22:09.400 --> 0:22:11.760
<v Speaker 3>That's why I think it's so unknown. It is because

0:22:12.119 --> 0:22:14.720
<v Speaker 3>if you say, looked at me on face value, you'd go, well,

0:22:15.040 --> 0:22:16.840
<v Speaker 3>when he doesn't have just fraxi up.

0:22:17.720 --> 0:22:21.719
<v Speaker 1>It's well hidden, and the well hidden aspect makes it

0:22:21.760 --> 0:22:24.760
<v Speaker 1>even more difficult to explain to people that you are trying.

0:22:25.000 --> 0:22:27.880
<v Speaker 1>You have listened to instructions, you want to do it,

0:22:28.440 --> 0:22:31.879
<v Speaker 1>you just can't. Was there ever a point that you

0:22:31.960 --> 0:22:33.440
<v Speaker 1>got frustrated and was like, I just can't do it.

0:22:33.440 --> 0:22:34.160
<v Speaker 1>I don't want to do it.

0:22:34.640 --> 0:22:40.040
<v Speaker 3>Yeah, lots of times. Yeah, through everything. Through cricket. You know,

0:22:40.080 --> 0:22:42.399
<v Speaker 3>if I got out, I'd throw my bat a curse.

0:22:42.520 --> 0:22:45.800
<v Speaker 3>I'd just pack a huge tantrum and be the same

0:22:45.840 --> 0:22:49.280
<v Speaker 3>in the gym. You know, just that level of frustration

0:22:49.400 --> 0:22:50.560
<v Speaker 3>builds up and you're.

0:22:50.440 --> 0:22:53.040
<v Speaker 1>Just like, I guess not something we talk about enough

0:22:53.040 --> 0:22:56.560
<v Speaker 1>because for you, in your mind, you can see it. Like,

0:22:56.880 --> 0:23:01.639
<v Speaker 1>let's take cricket for example, you're batting. You can imagine

0:23:02.040 --> 0:23:04.960
<v Speaker 1>where you need to place your bat and you know,

0:23:05.080 --> 0:23:07.320
<v Speaker 1>placement of all that stuff, but your body is not

0:23:07.440 --> 0:23:11.760
<v Speaker 1>playing ball excuse the pun, and so the frustration with it.

0:23:11.760 --> 0:23:13.639
<v Speaker 1>It's like, guys, I am really good. It's just that

0:23:13.680 --> 0:23:15.880
<v Speaker 1>my body is not caught up with what my brain

0:23:15.920 --> 0:23:42.600
<v Speaker 1>wants to do. Occupational therapist Ellen Nathan says one aspect

0:23:42.600 --> 0:23:46.680
<v Speaker 1>of dyspraxia that isn't discussed enough is the cognitive component.

0:23:47.480 --> 0:23:51.800
<v Speaker 1>Things like time management and sequencing can be really, really hard.

0:23:53.400 --> 0:23:56.720
<v Speaker 2>Whether it's morning or night, whether it's the weekend, tomorrow

0:23:56.840 --> 0:23:57.560
<v Speaker 2>or yesterday.

0:23:58.280 --> 0:23:58.879
<v Speaker 3>You're lost.

0:23:59.280 --> 0:24:02.720
<v Speaker 2>You just lost in space and time with other people

0:24:02.800 --> 0:24:05.159
<v Speaker 2>saying hurry up, it's a school day, and you're like,

0:24:05.320 --> 0:24:07.880
<v Speaker 2>but what school day like? Am I at the start

0:24:07.880 --> 0:24:09.439
<v Speaker 2>of the week? Am I at the end of my week?

0:24:10.000 --> 0:24:10.840
<v Speaker 1>I get it.

0:24:10.840 --> 0:24:17.720
<v Speaker 2>It must be very discombobulating, very discombobulating, but people often

0:24:18.280 --> 0:24:19.399
<v Speaker 2>don't recognize that.

0:24:20.600 --> 0:24:24.080
<v Speaker 1>I've interviewed Ellen a few times now. She's a practitioner

0:24:24.160 --> 0:24:27.480
<v Speaker 1>who really knows her stuff. But what I didn't realize

0:24:27.560 --> 0:24:31.600
<v Speaker 1>until this interview is that her expertise comes partly from

0:24:31.680 --> 0:24:32.960
<v Speaker 1>personal experience.

0:24:33.840 --> 0:24:38.040
<v Speaker 2>I have dyspraxia, and my child has dyspraxia. It makes

0:24:38.080 --> 0:24:39.400
<v Speaker 2>everything that much harder.

0:24:39.960 --> 0:24:42.919
<v Speaker 1>That's crazy that you are dyspraxit That will allow me

0:24:43.000 --> 0:24:46.679
<v Speaker 1>to ask you what it feels like. What's the experience

0:24:46.720 --> 0:24:47.719
<v Speaker 1>of being dyspraxic.

0:24:48.119 --> 0:24:51.480
<v Speaker 2>A dyspraxia is all gross motor and a little bit

0:24:51.560 --> 0:24:56.520
<v Speaker 2>of fine motor with handwriting. I remember doing a whole

0:24:56.560 --> 0:25:00.399
<v Speaker 2>class writing backwards purposefully, and then I I came up

0:25:00.440 --> 0:25:03.920
<v Speaker 2>with my own font, which was curly. I knew i'd

0:25:04.000 --> 0:25:06.040
<v Speaker 2>fall off the line or my lenness would be big

0:25:06.119 --> 0:25:09.879
<v Speaker 2>and small, so I just created this really creative curly

0:25:10.000 --> 0:25:13.159
<v Speaker 2>font in all different ways, like draw a circle and

0:25:13.200 --> 0:25:16.000
<v Speaker 2>write my name inside the circle, because I can't write

0:25:16.000 --> 0:25:18.159
<v Speaker 2>my name in a straight line, so I would end

0:25:18.240 --> 0:25:23.400
<v Speaker 2>up writing it inside rainbows and on a unicorn's horn instead.

0:25:23.520 --> 0:25:26.120
<v Speaker 2>So it's kind of like I knew what I couldn't do,

0:25:26.640 --> 0:25:29.000
<v Speaker 2>so then I had to become creative to make what

0:25:29.040 --> 0:25:30.680
<v Speaker 2>I can do look good.

0:25:31.680 --> 0:25:35.560
<v Speaker 1>And that creativity piece is strong for dyspraxics, it has

0:25:35.600 --> 0:25:39.639
<v Speaker 1>to be. They are constantly developing workarounds just to get

0:25:39.680 --> 0:25:43.879
<v Speaker 1>through life. Daniel Radcliffe, famous of course for Harry Potter,

0:25:44.400 --> 0:25:48.919
<v Speaker 1>has dyspraxia and he wears the badge proudly. He acknowledges

0:25:48.960 --> 0:25:52.560
<v Speaker 1>the struggles and he still can't ride a bike. But

0:25:52.640 --> 0:25:55.159
<v Speaker 1>the positive side, he says, is that always having to

0:25:55.160 --> 0:26:00.360
<v Speaker 1>find solutions has honed his imaginative skills. Of course, real

0:26:00.400 --> 0:26:04.119
<v Speaker 1>world it's the practical skills or lack of that are

0:26:04.119 --> 0:26:05.360
<v Speaker 1>what people notice.

0:26:06.080 --> 0:26:08.240
<v Speaker 2>One of the things that I think makes dispraxia quite

0:26:08.240 --> 0:26:11.240
<v Speaker 2>hard for teachers and for parents is that you can

0:26:11.280 --> 0:26:13.560
<v Speaker 2>have a skill one day and it's gone the next.

0:26:14.160 --> 0:26:16.800
<v Speaker 2>You can have it in one setting and it's not

0:26:16.920 --> 0:26:20.000
<v Speaker 2>in the next setting. It often doesn't generalize or translate,

0:26:20.400 --> 0:26:23.040
<v Speaker 2>and that's one of the challenges. So it's like learning

0:26:23.040 --> 0:26:26.919
<v Speaker 2>the task all over again. Playing basketball outside with the

0:26:27.000 --> 0:26:29.159
<v Speaker 2>hoop your dad's put up on your garage is going

0:26:29.200 --> 0:26:32.240
<v Speaker 2>to be super different to the hoop in the gym,

0:26:32.560 --> 0:26:35.280
<v Speaker 2>So those skills will not translate as well as they

0:26:35.280 --> 0:26:38.520
<v Speaker 2>would for a non respectit person, And they're getting feedback

0:26:38.560 --> 0:26:41.119
<v Speaker 2>from the adults in the room saying things like, you

0:26:41.160 --> 0:26:43.320
<v Speaker 2>can do this, you can do better, this is not

0:26:43.400 --> 0:26:46.800
<v Speaker 2>good enough. You know this, No I don't.

0:26:48.000 --> 0:26:51.320
<v Speaker 1>It's easy to get frustrated when kids are inconsistent in

0:26:51.359 --> 0:26:55.119
<v Speaker 1>their abilities, but it's not a choice. It's part of

0:26:55.119 --> 0:26:59.360
<v Speaker 1>the dyspraxic profile, and Bailey Garnum wants people to understand

0:26:59.640 --> 0:27:02.880
<v Speaker 1>that with the right support, the unique talents of these

0:27:02.960 --> 0:27:04.040
<v Speaker 1>kids can shine.

0:27:05.520 --> 0:27:08.240
<v Speaker 3>When you get a distractic kitddle someone with a learning condition,

0:27:08.320 --> 0:27:11.879
<v Speaker 3>when you get them into something they're passionate about because

0:27:11.880 --> 0:27:15.120
<v Speaker 3>they've had to persevere through so many things. They will

0:27:15.280 --> 0:27:19.439
<v Speaker 3>push the boundaries more than maybe a child who doesn't

0:27:19.520 --> 0:27:24.800
<v Speaker 3>have a learning condition, because that child doesn't know what

0:27:24.840 --> 0:27:29.439
<v Speaker 3>it's like to have to push so hard to just

0:27:29.520 --> 0:27:31.680
<v Speaker 3>be good at something. And then when you find something

0:27:31.720 --> 0:27:34.320
<v Speaker 3>that you're good at for a distractic kid or anyone

0:27:34.320 --> 0:27:36.959
<v Speaker 3>with a learning disorder, you go, oh, I'm actual, you're

0:27:36.960 --> 0:27:39.280
<v Speaker 3>already good at this. Or I may have a bit

0:27:39.320 --> 0:27:43.879
<v Speaker 3>of natural ability with this. You pair that with a

0:27:43.960 --> 0:27:49.560
<v Speaker 3>learnt drive and learn persistence. Yeah, they're away, they're flying.

0:27:50.400 --> 0:27:53.680
<v Speaker 1>Bailees is. Much of his success and confidence is thanks

0:27:53.720 --> 0:27:58.080
<v Speaker 1>to his original Olympic weightlifting coach, mike'schofield. I asked him

0:27:58.119 --> 0:28:02.800
<v Speaker 1>what it was about Mike's approach that he valued most, being.

0:28:02.600 --> 0:28:07.920
<v Speaker 3>Able to be flexible and change things and say things

0:28:07.960 --> 0:28:10.000
<v Speaker 3>in a different way. But you know, we went to

0:28:10.080 --> 0:28:12.640
<v Speaker 3>Mike and when I got diagnosed, and we said, look

0:28:12.640 --> 0:28:15.000
<v Speaker 3>here's what it's happened, and he goes, oh, it makes

0:28:15.000 --> 0:28:17.879
<v Speaker 3>so much sense. The age I'm at now is the

0:28:17.920 --> 0:28:21.560
<v Speaker 3>age of Mike, Cause when he met me and I

0:28:21.760 --> 0:28:27.720
<v Speaker 3>just go like, whoa you know, respect, Yeah, huge respect.

0:28:28.240 --> 0:28:31.640
<v Speaker 1>You've had really key people and your life. Haven't you

0:28:31.640 --> 0:28:35.800
<v Speaker 1>your granddad Mike yeap and does that kind of make

0:28:35.840 --> 0:28:39.400
<v Speaker 1>you go? I want to be there for kids.

0:28:40.800 --> 0:28:45.040
<v Speaker 3>You need someone to believe in you or who can

0:28:45.320 --> 0:28:48.760
<v Speaker 3>articulate what you see in your head. I try to

0:28:48.800 --> 0:28:54.040
<v Speaker 3>be not one dimensional how I approach everything, and that's.

0:28:53.840 --> 0:28:57.040
<v Speaker 1>The key to life. You've got life right there, I think.

0:28:57.240 --> 0:28:59.560
<v Speaker 1>I just I want to say, it is so powerful

0:28:59.560 --> 0:29:04.880
<v Speaker 1>what you're doing because you are like, hey, I've got

0:29:04.920 --> 0:29:07.600
<v Speaker 1>dyspraxia and I'm doing it. Just when I was a

0:29:07.680 --> 0:29:10.440
<v Speaker 1>kid dyspraxia, no one need ever heard of it. They

0:29:10.480 --> 0:29:13.080
<v Speaker 1>were just the unco kids, the kids that wouldn't get

0:29:13.080 --> 0:29:16.120
<v Speaker 1>picked in Pe, would be picked last for the team,

0:29:16.280 --> 0:29:18.880
<v Speaker 1>the kids that would get a bit of shit for

0:29:19.160 --> 0:29:21.960
<v Speaker 1>dropping the ball or whatever. Or they're on co and

0:29:22.160 --> 0:29:24.160
<v Speaker 1>co was the word. I don't know, that's still the

0:29:24.200 --> 0:29:28.280
<v Speaker 1>word now. And now I'm like, oh my god, these

0:29:28.360 --> 0:29:32.040
<v Speaker 1>kids with the right person, Yeah, it might take them

0:29:32.040 --> 0:29:34.080
<v Speaker 1>a little bit longer to get it, but once they

0:29:34.440 --> 0:29:37.520
<v Speaker 1>get it, they can do it as well as, if

0:29:37.560 --> 0:29:39.920
<v Speaker 1>not better than, someone without dyspraxia.

0:29:40.120 --> 0:29:40.320
<v Speaker 3>Yeah.

0:29:45.680 --> 0:29:48.880
<v Speaker 1>If you liked this podcast, please rate and review it.

0:29:48.880 --> 0:29:52.120
<v Speaker 1>It helps people find it. No such thing as normal

0:29:52.160 --> 0:29:55.920
<v Speaker 1>as produced and presented by me Sonia Gray. The editor

0:29:56.000 --> 0:29:59.479
<v Speaker 1>is Jamie Lee Smith. Owen O'Connor and Mitchell Hawks are

0:29:59.520 --> 0:30:04.600
<v Speaker 1>executive producers. Production assistant is Beck's War and you can

0:30:04.640 --> 0:30:08.480
<v Speaker 1>find us on Instagram No Such Thing as Normal Podcast.

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<v Speaker 1>The series is brought to you by the New Zealand

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