WEBVTT - Episode 22: The Spiral of Shame

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<v Speaker 1>Music is a big thing for me when I'm like overwhelmed.

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<v Speaker 1>So Taylor Swift, Yeah, Oil Swift's mine too, really, Oh my.

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<v Speaker 2>God, Taylor Swift.

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<v Speaker 3>It's a Wednesday morning and I'm walking to school with

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<v Speaker 3>sixteen year old Emily Martin. We talk Taylor Swift for

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<v Speaker 3>a while, because when you find a fellow swift Y,

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<v Speaker 3>the bond is instant.

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<v Speaker 1>It just feels like she's in my brain. Sometimes I'm like,

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<v Speaker 1>how do you know.

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<v Speaker 2>This about me?

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<v Speaker 1>Like this feels like a song about anxiety, or like

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<v Speaker 1>there are specific lyrics.

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<v Speaker 3>I'm just like, hold on to specific lyrics, like I'm

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<v Speaker 3>the problem. It's me. You might recognize that from Taylor

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<v Speaker 3>Swift's song anti Hero. There's a reason these words resonate

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<v Speaker 3>with teenagers like Emily. She has dyslexia and ADHD. Nothing

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<v Speaker 3>wrong with those, but we live in a society that

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<v Speaker 3>still doesn't make space for different cognition, still doesn't really

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<v Speaker 3>understand it. So for much of her life Emily has

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<v Speaker 3>felt wrong.

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<v Speaker 1>I do have moments where I'm like self conscious of

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<v Speaker 1>how I'm perceived, because then again I come back to

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<v Speaker 1>the thing of I'm the problem. I need to fix something.

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<v Speaker 1>It's my fault, and then I feel bad for putting

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<v Speaker 1>all my issues on to someone else. I still have

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<v Speaker 1>those underlying thoughts of that got to hate me.

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<v Speaker 3>I'm diving into the complex and fascinating world of neurodiversity.

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<v Speaker 3>I'm not an expert, but my daughter is neurodivergent, and

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<v Speaker 3>a few years ago I was diagnosed with ADHD. In

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<v Speaker 3>this series, you'll hear from experts and from many wonderful

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<v Speaker 3>people who experience the world in a unique way. We're

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<v Speaker 3>looking at neurodiversity from the inside. Gelda. I'm Sonya Gray,

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<v Speaker 3>and this is no such thing as normal. Series two.

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<v Speaker 3>Diagnoses like ADHD, autism, dyslexia, etc. Still carry a weighty stigma,

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<v Speaker 3>despite all the awareness and all the people like me

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<v Speaker 3>continually banging on about it. But if we view them

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<v Speaker 3>through a neurodiversity affirming lens, these are simply natural, normal

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<v Speaker 3>differences and very very valuable ones. So in this episode,

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<v Speaker 3>I'm asking why it is that neurodivergent people are so

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<v Speaker 3>prone to anxiety, depression, substance abuse, and general overall low

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<v Speaker 3>self esteem. Why are those with ADHD and dyslexia filling

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<v Speaker 3>our jail cells, our mental health facilities, and our suicide stats.

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<v Speaker 3>We're still saying the problem is with the individual. Just

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<v Speaker 3>try a bit harder. But it's actually really hard, almost impossible,

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<v Speaker 3>to operate in a world that tells you that who

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<v Speaker 3>you really are is wrong. Year old Emily Martin was

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<v Speaker 3>struggling to find her place in the world from a

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<v Speaker 3>very young age, and just her second year of primary school,

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<v Speaker 3>she was referred to the public child mental health service

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<v Speaker 3>in Auckland, the Cari Center. Emily's come a long way

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<v Speaker 3>in the last few years. She is bright and vivacious,

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<v Speaker 3>but that sense of I'm not enough it's still there.

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<v Speaker 1>I'm very good at masking, so people will say to me, Oh,

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<v Speaker 1>you don't have anxiety. You don't have I'm like, actually, yeah,

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<v Speaker 1>I do. I just mask it because of the judgment

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<v Speaker 1>I've had in the past from people, and so it's

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<v Speaker 1>very draining on me.

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<v Speaker 3>Can you remember the point where things were really really

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<v Speaker 3>difficult for you? Can you give me an idea of

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<v Speaker 3>what that looked like.

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<v Speaker 1>So I had gone to the Cowrie Center when I

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<v Speaker 1>was about six or seven, but I guess I don't

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<v Speaker 1>really know the purpose of me being there. It was like, Oh,

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<v Speaker 1>I just feel nervous all the time. Where I feel

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<v Speaker 1>anxious all the time, but I didn't know there was

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<v Speaker 1>like a label for it or an explanation. At that time,

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<v Speaker 1>I hadn't been diagnosed with ADHD. It was only the anxiety.

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<v Speaker 1>But I don't think I was as ware that I

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<v Speaker 1>was called anxiety. I guess I didn't really understand what

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<v Speaker 1>was going on in my brain.

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<v Speaker 3>Emily tried two different primary schools, but she was miserable

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<v Speaker 3>at both.

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<v Speaker 1>I was failing everything, Like if I was passing, it

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<v Speaker 1>was barely passing.

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<v Speaker 2>I think the real low was when she was in

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<v Speaker 2>year six, and.

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<v Speaker 3>That's Emily's mum, Joe, who guided her through that hugely

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<v Speaker 3>stressful time.

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<v Speaker 2>And things were so bad academically, so bad socially. Emily

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<v Speaker 2>was in a terrible state. Her self esteem wasn't absolute

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<v Speaker 2>low when she wasn't passing, she wasn't in friendship groups

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<v Speaker 2>where she could be herself, and I was just like,

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<v Speaker 2>what am I going to do here? She had a

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<v Speaker 2>teacher that caused significant grief and that's really when the

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<v Speaker 2>anxiety really came out, because she was scared to go

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<v Speaker 2>to school. She wouldn't eat in the morning at all,

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<v Speaker 2>and this teacher had one day ripped up someone's work

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<v Speaker 2>in front of the class. This was in year two

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<v Speaker 2>and Emily was petrified that would happen to her, and

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<v Speaker 2>so it was probably through her whole primary schooling at

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<v Speaker 2>both schools. She never ate breakfast. She simply could not,

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<v Speaker 2>So we didn't fully understand what was going on.

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<v Speaker 3>What was going on was a kid in crisis and

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<v Speaker 3>a schooling system which didn't understand and couldn't accommodate her.

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<v Speaker 3>There was a mix of dyslexia ADHD and eventually disc caalculia,

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<v Speaker 3>which is a specific learning difficulty with maths.

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<v Speaker 2>The effort that she put in was phenomenal to pass

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<v Speaker 2>and to scrape in and so it wasn't obvious because

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<v Speaker 2>of her intelligence and because of how hard she worked,

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<v Speaker 2>so I understand it was hard probably for the teachers

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<v Speaker 2>to understand that as well. But she got a dyslexia

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<v Speaker 2>diagnosis I think in year five, and they didn't even

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<v Speaker 2>embrace that. So Emily didn't get a lot of support

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<v Speaker 2>with her dyslexia. We found out about the ADHD diagnosis,

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<v Speaker 2>and then I think it was in year ten dyscalculia.

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<v Speaker 2>So she had always struggled with maths and she had

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<v Speaker 2>been just absolutely driven to learn her times tables in

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<v Speaker 2>year five and sex, and she simply could not. She

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<v Speaker 2>tried every single thing she could, but it was always

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<v Speaker 2>kind of like it was Emily's fault that she couldn't

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<v Speaker 2>do her times tables.

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<v Speaker 3>I'm imagining you were seeing it at home, the repercussions

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<v Speaker 3>at home.

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<v Speaker 2>Yes, absolutely, Oh my goodness, maths was not good for

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<v Speaker 2>the whole family's mental health.

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<v Speaker 3>And what about just in general, Joe, in terms of

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<v Speaker 3>how Emily was right through She got into the car

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<v Speaker 3>center at six, so obviously you thought there's major problems.

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<v Speaker 3>What were you seeing that really caused you concern?

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<v Speaker 2>I think it was lot about not fitting in, sort

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<v Speaker 2>of difficult relationships with peers.

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<v Speaker 3>Was she having meltdowns at home?

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<v Speaker 2>Oh yeah, I think just some quite oppositional behavior and

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<v Speaker 2>not wanting to cooperate, or if she was feeling anxious,

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<v Speaker 2>it would turn into something really big. She could go

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<v Speaker 2>from zero to ten just like that.

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<v Speaker 1>The way I like to describe it, because when I

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<v Speaker 1>call it emotional overwhelmed, it's the volcano exploding. And I

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<v Speaker 1>find it very hard to explain to people. It can

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<v Speaker 1>be like obviously oppositional behavior. It can be me having

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<v Speaker 1>like a full meltdown, crying panic attack, which I very

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<v Speaker 1>rarely now have, but when I do have them, they're

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<v Speaker 1>very hard to control, to the point where medication has

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<v Speaker 1>to get involved to.

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<v Speaker 2>Calm me down.

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<v Speaker 3>Tell me about panic attacks when they were at their

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<v Speaker 3>worst for you.

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<v Speaker 1>When they're at the worst. I'm crying. I can't really talk.

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<v Speaker 1>No one can really understand me. I feel like I'm

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<v Speaker 1>going to faint, I feel dizzy, I feel but just disorientated.

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<v Speaker 1>I don't know how to get the words out. A

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<v Speaker 1>massive explosion. It feels like glasses shattering. It feels like

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<v Speaker 1>the whole world is crashing down on me and the

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<v Speaker 1>whole world is going to end.

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<v Speaker 3>Sitting here listening to you, I'm thinking, you know, you

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<v Speaker 3>had this terrible situation with the teacher in year two,

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<v Speaker 3>and people might go, oh, kids should be resilient and

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<v Speaker 3>be able to handle that. But the kids I have

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<v Speaker 3>interviewed and spoken to, it can be one year or

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<v Speaker 3>one incident at school at that vulnerable age. It completely

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<v Speaker 3>derails you and it's so to me heartbreaking.

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<v Speaker 2>Yes, you know, the self esteem issue was huge for

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<v Speaker 2>Emily because she thought she was dumb, she thought she

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<v Speaker 2>was always the problem.

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<v Speaker 3>Yeah, the problem is me. It's the silent mantra for

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<v Speaker 3>so many neurodivigent kids struggling with internalized shame and often

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<v Speaker 3>crippling anxiety.

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<v Speaker 4>So anxiety starts from something, usually fear.

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<v Speaker 3>That's Jane Kirsten, whose voice you might recognize from episode

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<v Speaker 3>fourteen on Dyslexia. She spoke with her amazing son Michael.

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<v Speaker 3>Jane has a private counseling and psychotherapy practice. Many of

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<v Speaker 3>her clients are eurodivergent, and often they're still carrying feelings

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<v Speaker 3>of shame and unworthiness from childhood.

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<v Speaker 4>If you have grown up failing over years, you know,

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<v Speaker 4>then of course you're going to start feeling fearful of study,

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<v Speaker 4>you know, of what other people are thinking, what other

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<v Speaker 4>children are thinking. Children are actually feeling shame from a

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<v Speaker 4>very young age, you know, children with learning differences, difficulties. Yeah,

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<v Speaker 4>so from a very young age, children are growing up

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<v Speaker 4>feeling like they're less sin. And when you feel like

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<v Speaker 4>you're less sin and you're not achieving, then you're probably

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<v Speaker 4>likely to feel very anxious and.

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<v Speaker 3>Then you're not going to learn very well.

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<v Speaker 4>No, and the more cordex just shuts down, that's right,

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<v Speaker 4>And then then comes the trauma piece. But my experience,

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<v Speaker 4>because I work mainly now with adults, is that I

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<v Speaker 4>see high levels of anxiety across the board, and as

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<v Speaker 4>we work down into where this has come from, it

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<v Speaker 4>goes all the way back through childhood. But it's across

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<v Speaker 4>the board, feelings of not being good enough, failing, not

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<v Speaker 4>fitting in, being different, you know, a range of things,

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<v Speaker 4>and dependent on their temperaments and history, of course, that

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<v Speaker 4>makes them still very anxious adults. It can be ages

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<v Speaker 4>later where the problem is suddenly now seen and that

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<v Speaker 4>child is already experiencing huge shame in there for anxiety

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<v Speaker 4>and that's been going on for a while. I mean, Brusheet,

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<v Speaker 4>you're saying to me, you can't test children for dyslexia

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<v Speaker 4>before seven, And I was like, oh darn, I think

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<v Speaker 4>that we can. I knew my son was dyslexicat too,

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<v Speaker 4>and we had diagnosis before seven. There's that whole thing.

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<v Speaker 4>By seven, that child might be two years or three

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<v Speaker 4>years into a major anxiety or general nosed anxiety disorder or.

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<v Speaker 3>Absolutely, despite the fact Janeson Michael had an early diagnosis

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<v Speaker 3>and a super supportive mum, he still suffered emotionally. He

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<v Speaker 3>was a profoundly dyslexic student in the mainstream school system,

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<v Speaker 3>and there's one particular memory of school that still haunts him.

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<v Speaker 5>You hear books start closing, and then people go up

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<v Speaker 5>and give the book to the teacher at the front,

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<v Speaker 5>and then I'd be on the first page, stool. I

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<v Speaker 5>don't know what the heck I'm doing, And it was

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<v Speaker 5>the pressure from the other people finishing before me. And

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<v Speaker 5>not only did I finish last out of them all,

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<v Speaker 5>but I was sitting there feeling really stupid because everyone

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<v Speaker 5>was looking back at me, like, oh, we're still going

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<v Speaker 5>because this kid's on his first page, you know what

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<v Speaker 5>I mean. I definitely carry, you know, even many years

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<v Speaker 5>after being gone from school, I carry those anxiety and

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<v Speaker 5>all those feelings because of how I felt back in class.

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<v Speaker 5>For sure, it was like a living hell being at

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<v Speaker 5>school for me personally, it was bad.

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<v Speaker 3>Michael's gone on to great things. He is a success story,

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<v Speaker 3>but he still feels the shame from school.

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<v Speaker 4>He had had some trauma through being hit by a

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<v Speaker 4>teacher in primary school for not listening or not paying attention,

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<v Speaker 4>and yeah, needless to say, that was not good for

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<v Speaker 4>him at all.

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<v Speaker 3>It's the anxiety around the learners that is the problem,

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<v Speaker 3>and we can give all the supports and accommodations and

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<v Speaker 3>they can get all the best marks. If they're anxious,

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<v Speaker 3>they carry that with them. I feel like the missing

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<v Speaker 3>piece is how are you? Therapist Jane Kirsten has great

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<v Speaker 3>insight into the unique neurodivergent experience of anxiety and shame,

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<v Speaker 3>so I'm keen to get her take on what happens

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<v Speaker 3>after the diagnosis, particularly for adults. I am struck by

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<v Speaker 3>the enormity of what so many are still carrying. Supposedly postdiagnosis,

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<v Speaker 3>they understand themselves and their brains better, but for many

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<v Speaker 3>the struggle is ongoing and persistent. You get the diagnosis,

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<v Speaker 3>Oh okay, it all makes sense, but then it's like, actually,

0:13:42.960 --> 0:13:46.720
<v Speaker 3>who am I? Who am I? Because you've had the

0:13:46.880 --> 0:13:52.600
<v Speaker 3>masker for so long you're great at playing the game. Yes,

0:13:53.160 --> 0:13:55.960
<v Speaker 3>when you try and unmask it as such a process, yes,

0:13:56.600 --> 0:13:59.000
<v Speaker 3>it's like that little kid is still in there, going

0:13:59.040 --> 0:14:03.400
<v Speaker 3>I'm still here. I don't trust that it's okay to unmask.

0:14:04.200 --> 0:14:07.240
<v Speaker 4>That's right. It's one thing to know something right, it's

0:14:07.280 --> 0:14:10.680
<v Speaker 4>another thing to experience it through to a place of healing.

0:14:11.200 --> 0:14:13.800
<v Speaker 4>So we can have a diagnosis, which I think is

0:14:13.840 --> 0:14:17.200
<v Speaker 4>incredibly important. But then we've got to do the processing

0:14:17.280 --> 0:14:21.240
<v Speaker 4>and usually we've got to go back to the original pain. Yeah,

0:14:21.360 --> 0:14:24.080
<v Speaker 4>and that makes it very, very hard when you're someone

0:14:24.120 --> 0:14:27.800
<v Speaker 4>that finds processing emotions difficult. And I think that this

0:14:27.960 --> 0:14:32.400
<v Speaker 4>is a major problem that I'd like other therapists to

0:14:32.440 --> 0:14:36.760
<v Speaker 4>really understand, because our people with ADHD dyslexia, even some

0:14:36.840 --> 0:14:40.160
<v Speaker 4>gift of people, really really do struggle to process their feelings.

0:14:41.760 --> 0:14:45.440
<v Speaker 3>This makes a lot of sense. Those with unique cognitions

0:14:45.560 --> 0:14:48.760
<v Speaker 3>feel the world in bold and when you feel so much,

0:14:49.080 --> 0:14:53.520
<v Speaker 3>it's a lot to process. It hurts literally. There are

0:14:53.560 --> 0:14:57.640
<v Speaker 3>studies that show intense emotional pain or rejection activate the

0:14:57.680 --> 0:15:00.000
<v Speaker 3>same region of the brain is physical pain.

0:15:02.840 --> 0:15:05.000
<v Speaker 4>This guy in my research that said he'd rather take

0:15:05.080 --> 0:15:09.160
<v Speaker 4>a greater to his foot than feel that emotional pain again.

0:15:09.920 --> 0:15:13.960
<v Speaker 4>And so that was a very profound explanation by him

0:15:14.000 --> 0:15:15.600
<v Speaker 4>around facing the emotional pain.

0:15:17.160 --> 0:15:20.280
<v Speaker 3>The greater to the foot a great way of explaining

0:15:20.480 --> 0:15:23.760
<v Speaker 3>just how intense it can be. So I wonder if

0:15:23.800 --> 0:15:28.920
<v Speaker 3>these lifelong negative emotional experiences can be called trauma. Jane

0:15:29.000 --> 0:15:33.280
<v Speaker 3>Kirsten says, it's complicated. Everyone's different and there are different

0:15:33.360 --> 0:15:36.120
<v Speaker 3>types of trauma which have different effects.

0:15:41.200 --> 0:15:43.920
<v Speaker 4>Trauma is specific in itself as to what it is.

0:15:44.480 --> 0:15:46.760
<v Speaker 4>I think that most people I've worked with have a

0:15:46.840 --> 0:15:50.920
<v Speaker 4>level of trauma because of their learning difference or neurodifference,

0:15:51.440 --> 0:15:56.720
<v Speaker 4>and that tends to come from specific ways that they've

0:15:57.240 --> 0:16:01.200
<v Speaker 4>been affected. You know, it's not necessary everybody. I don't

0:16:01.200 --> 0:16:04.320
<v Speaker 4>think we're right if we say everybody has trauma. I

0:16:04.320 --> 0:16:07.440
<v Speaker 4>don't think we're right in saying everybody who's neurodifferent has trauma.

0:16:07.760 --> 0:16:11.720
<v Speaker 4>There's lots of neurotypical people with loads of trauma. Yeah,

0:16:11.720 --> 0:16:15.480
<v Speaker 4>but I think there is a specific type of situation

0:16:15.600 --> 0:16:18.600
<v Speaker 4>that happens that causes trauma in our children and then

0:16:18.680 --> 0:16:19.520
<v Speaker 4>later adults.

0:16:20.120 --> 0:16:24.960
<v Speaker 3>When does a negative experience or experiences cross the line

0:16:25.840 --> 0:16:29.560
<v Speaker 3>to be called trauma. We talk about small tea trauma

0:16:29.600 --> 0:16:34.600
<v Speaker 3>and big ta trauma. When do we capitalize the te right?

0:16:35.400 --> 0:16:39.400
<v Speaker 4>You know, our brain has capacities to process certain things right,

0:16:39.920 --> 0:16:43.480
<v Speaker 4>and so it's when our brain has not got the

0:16:43.520 --> 0:16:47.600
<v Speaker 4>capacity to process some horrific thing that trauma starts encode.

0:16:48.280 --> 0:16:54.000
<v Speaker 4>So trauma itself really is trappedness. It's when something has

0:16:54.040 --> 0:16:58.320
<v Speaker 4>happened that we are unable to fight or flight. The

0:16:58.360 --> 0:17:02.880
<v Speaker 4>brain's amygdala when danger is Basically, hormones are sent to

0:17:02.960 --> 0:17:06.080
<v Speaker 4>it lightning fast and it goes into the danger of

0:17:06.160 --> 0:17:10.000
<v Speaker 4>fight flight freeze response. And so if we've been in

0:17:10.000 --> 0:17:14.399
<v Speaker 4>a trap situation, example, a child in a classroom and

0:17:14.480 --> 0:17:17.000
<v Speaker 4>something bad has happened and they can't get out and

0:17:17.080 --> 0:17:20.200
<v Speaker 4>they are highly upset in that feels like they're going

0:17:20.240 --> 0:17:22.119
<v Speaker 4>to be trapped and almost like they might die as

0:17:22.160 --> 0:17:25.840
<v Speaker 4>something horrendous is happening. The teacher might be angry at them,

0:17:25.880 --> 0:17:28.680
<v Speaker 4>other kids are laughing that child is trapped. They can't

0:17:28.720 --> 0:17:31.359
<v Speaker 4>get out of that classroom, they're not allowed out. That's

0:17:31.520 --> 0:17:34.840
<v Speaker 4>enough to create a trauma response in them, you know,

0:17:34.880 --> 0:17:38.000
<v Speaker 4>and it can become a really difficult, hard spiral for

0:17:38.160 --> 0:17:41.720
<v Speaker 4>somebody who gets quite trapped in that. Like you're saying,

0:17:41.760 --> 0:17:46.359
<v Speaker 4>old patterns and old experiences. So it needs disseminating, it

0:17:46.400 --> 0:17:50.560
<v Speaker 4>needs opening up and understanding all the different facets to it.

0:17:52.840 --> 0:17:55.679
<v Speaker 3>Probably what it needs is an expert to guide you

0:17:55.720 --> 0:17:59.400
<v Speaker 3>through it, because working with trauma beg T trauma all

0:17:59.440 --> 0:18:04.400
<v Speaker 3>Little Teacher Warmer can be traumatizing in itself. And Jane says,

0:18:04.440 --> 0:18:07.399
<v Speaker 3>the healing process is not just in the head. It

0:18:07.440 --> 0:18:15.160
<v Speaker 3>has to include the body. You need to feel to heal, it's.

0:18:15.040 --> 0:18:17.800
<v Speaker 4>Vital and feeling. Yeah, you're not going to heal if

0:18:17.840 --> 0:18:20.760
<v Speaker 4>you don't feel you need to take the story away

0:18:20.760 --> 0:18:24.320
<v Speaker 4>from their fest you do and just feel it's like

0:18:24.440 --> 0:18:27.719
<v Speaker 4>having an observer, to be able to observe what's happening

0:18:27.760 --> 0:18:30.240
<v Speaker 4>to us without becoming one with it or one with

0:18:30.320 --> 0:18:33.320
<v Speaker 4>a story about it. That's the key to feeling, to healing,

0:18:33.520 --> 0:18:36.199
<v Speaker 4>because to face into things that are really hard is

0:18:36.280 --> 0:18:39.000
<v Speaker 4>very painful, right, And we're creatures that don't want change,

0:18:39.040 --> 0:18:42.199
<v Speaker 4>really and we don't want to face pain. Yeah, but

0:18:42.400 --> 0:18:45.160
<v Speaker 4>to heal, we've got to face pain. There's no other

0:18:45.200 --> 0:18:47.719
<v Speaker 4>way back to that body. And can't go round, it

0:18:48.359 --> 0:18:50.720
<v Speaker 4>can't go over. It's like we're going on a bear hunt.

0:18:50.960 --> 0:18:53.720
<v Speaker 4>Do you remember that book? Can't go round, it can't

0:18:53.720 --> 0:18:55.760
<v Speaker 4>go over, it can't go under. It got to go

0:18:55.840 --> 0:18:59.159
<v Speaker 4>through it. You have to face the beer.

0:19:00.200 --> 0:19:02.399
<v Speaker 3>But what happens when there's more than one beer in

0:19:02.440 --> 0:19:06.280
<v Speaker 3>someone's picture, when there's other layers of trauma? I'm guessing

0:19:06.400 --> 0:19:08.320
<v Speaker 3>that's not a straightforward.

0:19:09.240 --> 0:19:12.240
<v Speaker 4>Oh no, not at all. And so the more sort

0:19:12.280 --> 0:19:15.879
<v Speaker 4>of developmental situation that you have, like it could be

0:19:15.920 --> 0:19:19.679
<v Speaker 4>you could have a child with who's dyslexic their parent.

0:19:19.760 --> 0:19:22.800
<v Speaker 4>One of them is dyslexic but not identified. They don't

0:19:22.960 --> 0:19:25.679
<v Speaker 4>like what they're seeing in their child. The child is

0:19:25.680 --> 0:19:28.959
<v Speaker 4>already struggling at school, they've already been felt like they

0:19:29.000 --> 0:19:32.240
<v Speaker 4>had a trauma situation where they've been trapped in the classroom,

0:19:32.240 --> 0:19:34.840
<v Speaker 4>can't get out, they're shutting down. They go home, they

0:19:34.840 --> 0:19:37.600
<v Speaker 4>get told off by that parent. The parent yells at them,

0:19:37.640 --> 0:19:41.640
<v Speaker 4>they don't want to understand them. That's enough to add

0:19:41.880 --> 0:19:45.320
<v Speaker 4>more trauma to that child, let alone other major abuses

0:19:45.359 --> 0:19:48.160
<v Speaker 4>that we know about. Yeah, so the more you get

0:19:48.240 --> 0:19:52.160
<v Speaker 4>that consistent experience of trauma over and over, the more

0:19:52.200 --> 0:19:56.680
<v Speaker 4>complex and more likely for PTSD. And that's why I'm

0:19:56.680 --> 0:19:59.640
<v Speaker 4>a great believer in the therapy process, for going into

0:19:59.640 --> 0:20:02.840
<v Speaker 4>the pain and into helping integrate, you know, and come

0:20:02.920 --> 0:20:04.800
<v Speaker 4>through that trauma and that pain.

0:20:05.640 --> 0:20:10.120
<v Speaker 3>But is it possible? And I say that is all right,

0:20:11.400 --> 0:20:15.280
<v Speaker 3>But it sounds hard. If there's unsupported ADHD, autism or

0:20:15.359 --> 0:20:19.520
<v Speaker 3>dyslexia plus other layers of trauma, it's a lot to process.

0:20:20.560 --> 0:20:22.600
<v Speaker 3>So maybe this is where the rest of us come in,

0:20:23.320 --> 0:20:27.120
<v Speaker 3>shifting how we think about and treat those with different cognitions,

0:20:27.520 --> 0:20:32.400
<v Speaker 3>essentially removing the blame but changing long held views. Isn't

0:20:32.440 --> 0:20:33.440
<v Speaker 3>easy either.

0:20:34.920 --> 0:20:38.240
<v Speaker 4>It's very very challenging. How do we do this with

0:20:38.320 --> 0:20:40.600
<v Speaker 4>a lot of acceptance and a lot of caring for

0:20:40.640 --> 0:20:42.800
<v Speaker 4>each other in all of our differences.

0:21:00.520 --> 0:21:03.280
<v Speaker 3>How can we best help those who experience the world

0:21:03.320 --> 0:21:07.880
<v Speaker 3>differently and are carrying trauma and shame. Jane Kirsten says

0:21:07.960 --> 0:21:12.399
<v Speaker 3>empathy is key and an understanding that the diagnosis is real,

0:21:13.040 --> 0:21:14.359
<v Speaker 3>and so is the pain.

0:21:16.560 --> 0:21:20.040
<v Speaker 4>To actually understand someone, you have to be able to identify.

0:21:20.720 --> 0:21:23.760
<v Speaker 4>And I think that because we're human, we all know shame,

0:21:24.359 --> 0:21:26.720
<v Speaker 4>and anyone listening to this who says they don't, I

0:21:26.840 --> 0:21:30.840
<v Speaker 4>just think it's not true. We all experience shame. Therefore,

0:21:30.840 --> 0:21:33.520
<v Speaker 4>we can all identify with each other and then we

0:21:33.560 --> 0:21:36.640
<v Speaker 4>can have empathy, because that's how we get empathy is identification.

0:21:38.880 --> 0:21:41.880
<v Speaker 3>Joe Martin, mum of sixteen year old Emily, says there's

0:21:41.920 --> 0:21:44.600
<v Speaker 3>a lot of empathy in their family now and it's

0:21:44.600 --> 0:21:49.960
<v Speaker 3>come quite literally through identification. Despite all that Emily's been through,

0:21:50.160 --> 0:21:51.399
<v Speaker 3>there's a silver lining.

0:21:53.320 --> 0:21:56.639
<v Speaker 2>You know, through Emily's journey and also our son is

0:21:56.920 --> 0:22:00.520
<v Speaker 2>autistic in ADHD. But it's also led to the various

0:22:00.520 --> 0:22:03.200
<v Speaker 2>members of the family realizing that actually they are too,

0:22:03.440 --> 0:22:08.359
<v Speaker 2>so Emily's father, through seeing our son and Emily's journeys,

0:22:09.000 --> 0:22:12.000
<v Speaker 2>realized that he was autistic in ADHD, and so, you know,

0:22:12.119 --> 0:22:16.240
<v Speaker 2>at fifty was able to get those diagnosis and sense

0:22:16.640 --> 0:22:19.879
<v Speaker 2>was made about his world, things that had always been

0:22:19.960 --> 0:22:24.800
<v Speaker 2>difficult for him, and suddenly he understood himself.

0:22:24.800 --> 0:22:28.280
<v Speaker 3>The autism ADHD combo can come with a lot of

0:22:28.280 --> 0:22:31.560
<v Speaker 3>complications in the world. It was he like, Oh, I've

0:22:31.600 --> 0:22:33.479
<v Speaker 3>only i'd known, I would have, you know.

0:22:33.880 --> 0:22:36.720
<v Speaker 2>I think it was more just relief. He did also

0:22:36.760 --> 0:22:41.400
<v Speaker 2>get a dyslexi diagnosis about ten years before that, and

0:22:41.960 --> 0:22:44.080
<v Speaker 2>that was the first time I ever saw him in

0:22:44.160 --> 0:22:48.000
<v Speaker 2>tears because it was just such a relief. So for him,

0:22:48.040 --> 0:22:50.760
<v Speaker 2>it was the relief and thinking back to when he

0:22:50.920 --> 0:22:54.400
<v Speaker 2>was a child, there was even less known about neurodiversities.

0:22:54.520 --> 0:22:58.879
<v Speaker 2>So now he understands, and he understands why he finds

0:22:58.880 --> 0:23:01.960
<v Speaker 2>group situations and why he doesn't like all the small

0:23:02.000 --> 0:23:04.800
<v Speaker 2>talk that kind of networking side. He'd rather be one

0:23:04.800 --> 0:23:09.080
<v Speaker 2>on one with someone, and why he gets overwhelmed at times.

0:23:09.840 --> 0:23:12.000
<v Speaker 2>So we talk about that a lot as a family,

0:23:12.040 --> 0:23:15.000
<v Speaker 2>and understanding and seeing the triggers or knowing when to

0:23:15.040 --> 0:23:16.520
<v Speaker 2>pull back if someone's in a moment.

0:23:17.160 --> 0:23:19.320
<v Speaker 3>One thing I'm talking about with this is it self

0:23:19.440 --> 0:23:22.280
<v Speaker 3>esteem peace, And I just wonder, you know, it's so

0:23:22.359 --> 0:23:25.520
<v Speaker 3>interesting for adults that get diagnosed late. Do you think

0:23:26.040 --> 0:23:29.800
<v Speaker 3>like there's a relief for him, But is his self

0:23:29.880 --> 0:23:30.440
<v Speaker 3>esteem good?

0:23:30.520 --> 0:23:31.200
<v Speaker 1>Would you say?

0:23:31.600 --> 0:23:34.760
<v Speaker 2>Intelligence actually mastered it and so he was able to

0:23:34.800 --> 0:23:38.280
<v Speaker 2>find ways to cope and get through, But it didn't

0:23:38.320 --> 0:23:39.880
<v Speaker 2>you know, it was actually really hard. And I think

0:23:39.920 --> 0:23:42.720
<v Speaker 2>the thing also with your adversities and especially ADHD, it

0:23:42.880 --> 0:23:46.320
<v Speaker 2>takes its toll on your brain because you're constantly working

0:23:46.320 --> 0:23:48.080
<v Speaker 2>on all these things and trying to work it out

0:23:48.119 --> 0:23:50.280
<v Speaker 2>and trying to make sense what your brain's doing and

0:23:50.280 --> 0:23:53.720
<v Speaker 2>what the world around doing, and so it's exhausting. So

0:23:54.720 --> 0:23:57.720
<v Speaker 2>he now has a meaning for what his life's been,

0:23:57.800 --> 0:24:01.040
<v Speaker 2>and so I think he's accepted that. But the diagnosis

0:24:01.080 --> 0:24:04.359
<v Speaker 2>has definitely helped actually his self esteem, I would say,

0:24:04.440 --> 0:24:07.400
<v Speaker 2>because he knows why he does things. And yeah, some

0:24:07.440 --> 0:24:11.800
<v Speaker 2>people say labels aren't good, but our experience is that

0:24:12.880 --> 0:24:15.080
<v Speaker 2>labels can help you understand, and they can help the

0:24:15.080 --> 0:24:18.359
<v Speaker 2>people around you understand. And then from there, his sister

0:24:18.440 --> 0:24:21.720
<v Speaker 2>got diagnosed, and then his mother got diagnosed, and so

0:24:21.800 --> 0:24:25.679
<v Speaker 2>it's been a really good journey for the family. And

0:24:25.720 --> 0:24:29.119
<v Speaker 2>while I don't have ADHD, I do have anxiety. So

0:24:30.960 --> 0:24:36.240
<v Speaker 2>it's really helped everyone understand each other within the family. Yeah,

0:24:36.280 --> 0:24:39.920
<v Speaker 2>it's actually been a real benefit pursuing those diagnoses. Yeah,

0:24:39.960 --> 0:24:41.040
<v Speaker 2>because of that understanding.

0:24:42.040 --> 0:24:45.640
<v Speaker 3>Understanding is key, But it was lack of understanding that met.

0:24:45.720 --> 0:24:49.560
<v Speaker 3>Joe's daughter Emily was deeply unhappy and anxious right through

0:24:49.600 --> 0:24:52.840
<v Speaker 3>primary school. They tried the public system, they tried the

0:24:52.840 --> 0:24:56.720
<v Speaker 3>private system, and after reaching crisis point in year six,

0:24:57.000 --> 0:24:59.960
<v Speaker 3>the family took a risk. They found something completely diff

0:25:00.800 --> 0:25:04.320
<v Speaker 3>Mount Hobson Middle School, which had a holistic approach to

0:25:04.400 --> 0:25:07.520
<v Speaker 3>learning and just twelve students in each class.

0:25:08.040 --> 0:25:10.880
<v Speaker 1>And it worked going to that school, Like I said

0:25:10.920 --> 0:25:12.879
<v Speaker 1>to mom, in certainly, I just felt accepted, and I

0:25:12.960 --> 0:25:15.080
<v Speaker 1>just felt welcomed, and I just felt like I could

0:25:15.160 --> 0:25:18.240
<v Speaker 1>unapologetically be myself. Honestly, I don't know what I would

0:25:18.280 --> 0:25:19.240
<v Speaker 1>have done without that school.

0:25:19.800 --> 0:25:22.960
<v Speaker 3>What was it specifically that school gave you.

0:25:23.720 --> 0:25:27.119
<v Speaker 1>It gave me a sense of belonging. I felt everyone

0:25:27.840 --> 0:25:29.760
<v Speaker 1>was a bit quirky, everyone had something a bit different

0:25:29.760 --> 0:25:33.240
<v Speaker 1>about them. It was eye opening for me and the

0:25:33.280 --> 0:25:36.080
<v Speaker 1>way that I got to experience so many different people

0:25:36.200 --> 0:25:38.800
<v Speaker 1>and see so many different personalities. I think it helped

0:25:38.800 --> 0:25:42.280
<v Speaker 1>me in accepting myself and accepting others.

0:25:43.560 --> 0:25:47.399
<v Speaker 3>Sadly, Mount Hobson Middle School no longer exists. It couldn't

0:25:47.400 --> 0:25:50.400
<v Speaker 3>afford to stay open, which is a big loss. Emily

0:25:50.440 --> 0:25:52.840
<v Speaker 3>is now doing really well at her local high school,

0:25:53.200 --> 0:25:55.199
<v Speaker 3>but she says it would have been impossible if she

0:25:55.240 --> 0:25:57.320
<v Speaker 3>hadn't had the support at Mount Hobson.

0:25:58.720 --> 0:26:00.520
<v Speaker 1>I'm still in contact with a lot of the teachers

0:26:00.560 --> 0:26:03.760
<v Speaker 1>from there because they genuinely changed my life and it

0:26:03.800 --> 0:26:04.719
<v Speaker 1>just felt like a family.

0:26:06.000 --> 0:26:08.240
<v Speaker 3>It needs to be a place of refuge, doesn't it.

0:26:08.280 --> 0:26:10.760
<v Speaker 1>Still Yeah, I actually want to go into primary school

0:26:10.840 --> 0:26:13.960
<v Speaker 1>education when I go to university, and I guess in

0:26:14.000 --> 0:26:16.840
<v Speaker 1>a way, I want to be the teacher that I

0:26:16.840 --> 0:26:20.399
<v Speaker 1>wish I had had from a younger age, because like

0:26:20.480 --> 0:26:23.560
<v Speaker 1>I don't think any teacher fully got it when I

0:26:23.600 --> 0:26:26.280
<v Speaker 1>was younger. I want to be the teacher that can

0:26:26.760 --> 0:26:29.160
<v Speaker 1>be supportive and so in a way, I think as

0:26:29.160 --> 0:26:31.760
<v Speaker 1>a teacher, I want to do that and help kids

0:26:31.800 --> 0:26:33.879
<v Speaker 1>and give the education I wish I had received from

0:26:33.920 --> 0:26:34.560
<v Speaker 1>a younger age.

0:26:35.440 --> 0:26:38.800
<v Speaker 3>At primary school, Emily was the kid who barely passed anything.

0:26:39.359 --> 0:26:42.520
<v Speaker 3>She believed she was dumb. But now in year twelve.

0:26:42.680 --> 0:26:47.479
<v Speaker 3>Even with dyslexia, ADHD and dyscalculia, she's getting top Marx,

0:26:48.240 --> 0:26:51.040
<v Speaker 3>She's excelling. He is part of a monologue she did

0:26:51.080 --> 0:26:52.240
<v Speaker 3>for English this year.

0:26:53.240 --> 0:26:54.160
<v Speaker 2>My heart stopped.

0:26:55.320 --> 0:26:58.800
<v Speaker 1>In that moment, my heart stopped. All I remember was

0:26:58.840 --> 0:27:04.200
<v Speaker 1>repeating for myself, stay strong, stay strong, stay strong.

0:27:05.359 --> 0:27:08.600
<v Speaker 3>Life is still hard, The anxiety is still there, but

0:27:08.680 --> 0:27:11.840
<v Speaker 3>Emily no longer believes that she is the problem.

0:27:12.680 --> 0:27:15.320
<v Speaker 1>I think overall, I've gotten there. It's been hard, but

0:27:15.560 --> 0:27:16.960
<v Speaker 1>you know we've gotten there.

0:27:17.080 --> 0:27:27.840
<v Speaker 3>Yeah, next time on No such Thing as Normal? What's

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<v Speaker 3>it like to live with Tourette syndrome? What is the

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<v Speaker 3>worst tick? The one that if you could take it away,

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<v Speaker 3>you would.

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<v Speaker 2>The f would?

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<v Speaker 1>Why Because when I'm in class or in school, people

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<v Speaker 1>think I'm like just saying it on purpose.

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<v Speaker 2>But my class knows.

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<v Speaker 4>Let all the year fives know, but not really the

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<v Speaker 4>year sixes sixth there.

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<v Speaker 3>If you like this podcast, please rate and review it.

0:27:52.680 --> 0:27:55.720
<v Speaker 3>It helps people find it. No Such Thing as Normal

0:27:55.880 --> 0:27:59.520
<v Speaker 3>is produced and presented by me Sonia Gray. The editor

0:27:59.600 --> 0:28:03.119
<v Speaker 3>is Jamie Lee Smith. Owen O'Connor and Mitchell Hawks are

0:28:03.200 --> 0:28:08.120
<v Speaker 3>executive producers, and Bridget Mills helped with research. You can

0:28:08.119 --> 0:28:11.879
<v Speaker 3>find us on Instagram. No Such Thing as Normal Podcast.

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<v Speaker 3>The series is brought to you by the New Zealand

0:28:15.160 --> 0:28:18.560
<v Speaker 3>Herald and teen Uniform and it's made with the support

0:28:18.720 --> 0:28:21.640
<v Speaker 3>of New Zealand on Air. New episodes of No Such

0:28:21.680 --> 0:28:24.600
<v Speaker 3>Thing As Normal are available wherever you get your podcasts.