WEBVTT - Sophie Smith Lost Her Premature Triplets And Then Her Husband. This Is How She Kept Going

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<v Speaker 1>I used to pretend. Sometimes I'd sit down on the

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<v Speaker 1>sofa with a cup of tea and I'd listen to

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<v Speaker 1>the silence, and I actually would pretend that Henry, Jasper

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<v Speaker 1>and Evan had just fallen asleep in the cot next door,

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<v Speaker 1>and I was finally going to get just a few

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<v Speaker 1>moments of peace before they woke up.

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<v Speaker 2>And that's why it was so quiet, And.

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<v Speaker 1>That's why it was so quiet. An oh, a bit

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<v Speaker 1>of silence.

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<v Speaker 2>Hi. I'm kateline Brook, host of No Filter. My guest

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<v Speaker 2>today is Sophie Smith. When Sophie and her husband Ash

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<v Speaker 2>discovered they were expecting triplets, they thought they were stepping

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<v Speaker 2>into the life they'd always dreamed of, becoming parents for

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<v Speaker 2>the very first time. Instead, after going into premature labor

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<v Speaker 2>halfway through her pregnancy, Sophie found herself facing unimaginable heartbreak.

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<v Speaker 2>Over the months that followed, she and Ash lost all

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<v Speaker 2>three of their baby boys. In the years since, Sophie

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<v Speaker 2>has transformed that grief into something extraordinary, founding Running for

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<v Speaker 2>Premature Babies, a charity that has helped save the lives

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<v Speaker 2>of thousands of premature babies across Australia. Sophie and Ash

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<v Speaker 2>later welcomed two more sons, Owen and Harvey, before tragedies

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<v Speaker 2>struck their family once again when Ash was diagnosed with

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<v Speaker 2>brain cancer and died. But somehow, despite all she has endured,

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<v Speaker 2>Sophie's story is not just one of loss. It's a

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<v Speaker 2>story about perseverance, about purpose, motherhood, hope, and about what

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<v Speaker 2>it means to keep going when life turns out nothing

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<v Speaker 2>like you expected. Mostly really, it's about love. This is

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<v Speaker 2>Sophie Smith. Sophie Smith, Welcome to No Filter.

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<v Speaker 1>Thank you, Keith.

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<v Speaker 2>I'd like to preface our conversation by extending my regret

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<v Speaker 2>at what has led us to be having this conversation.

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<v Speaker 2>Thank you, the loss of four of your boys, your triplets,

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<v Speaker 2>and of course your beloved husband, Ash. But what it

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<v Speaker 2>has led to for you is the publication of this

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<v Speaker 2>book called Sophie's Boys. And it is such a discovery

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<v Speaker 2>and a revelation of grief and so searingly honest that

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<v Speaker 2>when I was finishing this book yesterday morning it was

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<v Speaker 2>probably about said thirty in the morning, I was absolutely howling.

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<v Speaker 2>It's quite a master work and a work of the soul.

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<v Speaker 1>Thank you. I hope that you found that it was

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<v Speaker 1>also a story of hope over a story of despair.

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<v Speaker 1>And because that's what I see my story, as you

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<v Speaker 1>know it's I would hope that it's uplifting rather than depressing.

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<v Speaker 1>Even though you know it's sad, there's still so much hope.

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<v Speaker 2>I think, well, you're living testament to that, really, because

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<v Speaker 2>people who have encountered loss, and if you live, you

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<v Speaker 2>will lose, right, we know that about life. But for

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<v Speaker 2>you to have encountered such devastating loss and repeatedly, and

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<v Speaker 2>then to have not only picked yourself up, but to

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<v Speaker 2>have picked up others around you is such a test

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<v Speaker 2>stument to the human spirit and such a balm to

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<v Speaker 2>the human spirit.

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<v Speaker 1>Thank you, I mean, you know, I feel like it's

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<v Speaker 1>actually helped me. I can't imagine how my life would

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<v Speaker 1>be if it hadn't been for you know, the charity

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<v Speaker 1>that's come from my boys and the fact that I've

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<v Speaker 1>been able to bring them with me on the journey

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<v Speaker 1>of the last twenty years through running for Premature Babies.

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<v Speaker 2>Yeah, so the charity is running for premature babies. And

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<v Speaker 2>you know about premature babies because in two thousand and six,

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<v Speaker 2>so twenty years ago, you were pregnant with triplets. Tell

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<v Speaker 2>me about how you came to that point to be

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<v Speaker 2>expected three babies as your first baby.

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<v Speaker 1>Yeah, it was just, oh, it was just so incredible

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<v Speaker 1>when Ash and I. I was recently married to Ash,

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<v Speaker 1>and when we found out that we were pregnant with

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<v Speaker 1>not one, not two, but three babies, it was really

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<v Speaker 1>such a spin out. I mean, we couldn't believe it,

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<v Speaker 1>but we couldn't think of anything more wonderful. I remember

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<v Speaker 1>at the very first scan when we found out we

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<v Speaker 1>were having three, and I mean, it was a huge shock,

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<v Speaker 1>but I remember when the sonographer was just measuring the

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<v Speaker 1>three little ones in there, and one of them was

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<v Speaker 1>too small, and the sonographer said, oh, you know, there's three,

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<v Speaker 1>but come back in two weeks because this other little one,

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<v Speaker 1>you know, probably won't make it. And I remember walking

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<v Speaker 1>out of that room and Ash holding my hand and saying,

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<v Speaker 1>Bobz's I really hope that little one makes it. And

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<v Speaker 1>I just thought that was so beautiful that right from

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<v Speaker 1>the beginning we sort of loved them all. And when

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<v Speaker 1>we went back two weeks later, the little one had

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<v Speaker 1>caught up, and yeah, we continued on with the pregnancy.

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<v Speaker 1>We were so excited. I used to love it when

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<v Speaker 1>people would, you know, random strangers would see that I

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<v Speaker 1>was pregnant and say, oh, you know, congratulations, is it

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<v Speaker 1>your first? And I used to absolutely love saying yeah,

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<v Speaker 1>it's my first. Three. We spent the next six months

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<v Speaker 1>preparing for this instant family. We found a triplet buggy

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<v Speaker 1>which was so cute, and we got it home and

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<v Speaker 1>we assembled it and it sat in our hallway and

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<v Speaker 1>it was like these three little seats in a line

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<v Speaker 1>awaiting this precious cargo, and I couldn't wait to be

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<v Speaker 1>pushing them around Centennial Park. And yeah, I just, you know,

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<v Speaker 1>I didn't really I remember at the beginning, I didn't

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<v Speaker 1>really consider all the sort of logistics of the difficulties,

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<v Speaker 1>how difficult it would be to be a mother of

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<v Speaker 1>three babies. I just thought we were blessed.

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<v Speaker 2>Well, that seem interesting because normally paper arre overwhelmed at

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<v Speaker 2>the prospect of having their first chart being a single

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<v Speaker 2>and yet because you didn't know any other way to be.

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<v Speaker 1>I think that's right. I think when I look back now,

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<v Speaker 1>sometimes I wonder how was I so blase about being

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<v Speaker 1>pregnant with three? But because I'd never been pregnant before,

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<v Speaker 1>you know, and once we got over the sort of

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<v Speaker 1>initial shock of the fact that we were having three babies.

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<v Speaker 1>We were just you know, we were all up for

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<v Speaker 1>it and just super excited.

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<v Speaker 2>Because you've also got the spirit of an adventurer. I mean,

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<v Speaker 2>you came to our shores from the UK, you were

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<v Speaker 2>born in Japan, you lived extensively as a child in Asia.

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<v Speaker 2>Then you came here as a teacher and you met

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<v Speaker 2>you fell in love with one of our finest Ash.

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<v Speaker 1>I sure did.

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<v Speaker 2>And what were you looking for at the time? Were

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<v Speaker 2>you looking for adventure for us?

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<v Speaker 1>At the time I met Ash, I was just living

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<v Speaker 1>in the present, living in the moment, having a great time.

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<v Speaker 1>I was new to Sydney. I met Ash a week

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<v Speaker 1>before the Olympics, and we had our first date on

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<v Speaker 1>the night of the opening ceremony of the Olympics, and

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<v Speaker 1>the city was a buzz And the next two weeks

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<v Speaker 1>was just like a whirlwind of you know, fun. As

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<v Speaker 1>you know, we met and we fell in love, and

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<v Speaker 1>we were you know, Sydney was just on fire then

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<v Speaker 1>and we were having a great time and and really

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<v Speaker 1>we just we we just had a really great time together.

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<v Speaker 1>And then we moved in together. And it was actually

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<v Speaker 1>five years later we finally got married and then we

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<v Speaker 1>were like, right, let's let's do this, Let's have kids.

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<v Speaker 2>And so you were thirty five then, and you were like,

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<v Speaker 2>now's the time.

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<v Speaker 1>Yeah, I'm like, come on, let's get on with it.

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<v Speaker 1>I always wanted to have a big family. And you know,

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<v Speaker 1>I love I love kids. And I was working as

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<v Speaker 1>a primary school teacher at the time, and I yeah,

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<v Speaker 1>Ash and I were, and Ash was so excited as well.

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<v Speaker 1>He was, Yeah, he was. He was a great dad.

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<v Speaker 1>His his for our boys were his pride and joy,

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<v Speaker 1>every all five of them. Well, it turned out.

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<v Speaker 2>In the in the book, and when you talk about

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<v Speaker 2>the progression of the pregnancies and when things started to

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<v Speaker 2>go awry, Ash really proved himself to be a perfect

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<v Speaker 2>partner for you and a perfect dad at that time

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<v Speaker 2>as well. So your pregnancy was traveling in a pretty

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<v Speaker 2>uncomplicated manner until you were in a supermarket. You were

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<v Speaker 2>twenty one weeks.

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<v Speaker 1>Pregnenty one weeks. Yeah, So yes, I was in the

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<v Speaker 1>supermarket one morning and I felt this sort of I thought, oh,

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<v Speaker 1>if I just wet myself, that's weird. I didn't really

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<v Speaker 1>panic because I just thought, oh, it must be some

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<v Speaker 1>weird pregnancy thing. I've just had some bladder leak. So

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<v Speaker 1>I carried on with my supermarket shop. And then as

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<v Speaker 1>I was getting home and I was sort of carrying

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<v Speaker 1>my bags in, as I was walking up the stairs

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<v Speaker 1>to the house, I suddenly felt this second sort of gush,

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<v Speaker 1>much bigger than the first. And then I just thought, oh,

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<v Speaker 1>that's really weird. But still, I because it was so

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<v Speaker 1>early on in the pregnancy, it wasn't. I didn't think

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<v Speaker 1>it was my water's breaking because I didn't really think

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<v Speaker 1>that that happened twenty one weeks into your pregnancy.

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<v Speaker 2>So I just read last week we've been pregnancies anymore.

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<v Speaker 1>Yeah, I just thought it was something weird, you know it.

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<v Speaker 1>So I wasn't too worried. And I rang in the

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<v Speaker 1>hospital and they said, they'll just come up and we'll

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<v Speaker 1>we'll check you out. So Ash was at work. I

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<v Speaker 1>don't think at that stage. Maybe I gave him a

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<v Speaker 1>call and said, oh, don't worry, I'm just off to

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<v Speaker 1>the hospital that's checking me out. And I got to

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<v Speaker 1>the hospital and they said, okay, we'll just test. By

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<v Speaker 1>this stage, there was more. There was actually more when

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<v Speaker 1>I was starting to think, what the hell is going on.

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<v Speaker 1>And then they said, we're just going to test see

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<v Speaker 1>what this is. And then they came back and I

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<v Speaker 1>remember the doctor coming in and taking my hands. I

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<v Speaker 1>was on my own still because I hadn't called Ash up.

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<v Speaker 1>He took my hand and he looked me in the

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<v Speaker 1>eyes and he said, we've just confirmed that that is

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<v Speaker 1>amniotic fluid. And this means that you will go into

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<v Speaker 1>labor within the next twenty four hours and at twenty

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<v Speaker 1>one week's gestation, nothing can be done to save your babies.

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<v Speaker 1>They will all die.

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<v Speaker 2>And you were on your own.

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<v Speaker 1>I was on my own, and honestly, I can't even

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<v Speaker 1>I mean, there aren't even the words to describe the horror,

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<v Speaker 1>the absolute horror. I remember when I was pregnant a

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<v Speaker 1>few weeks earlier, Ash had, as a surprise, had signed

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<v Speaker 1>me up to this magazine from America called The Triplet Connection,

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<v Speaker 1>and it was some triplet family magazine of triplet families,

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<v Speaker 1>and anyway, this thing had arrived in the post and

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<v Speaker 1>I'd ripped it open. I was so excited. I'm reading

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<v Speaker 1>about all these lovely triplet families. And then I got

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<v Speaker 1>to this page in the magazine and it said in

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<v Speaker 1>memory and There was a page where I was reading

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<v Speaker 1>about people who's who were pregnant with triplets and their

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<v Speaker 1>babies had died. And I sat there as I was

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<v Speaker 1>reading this page, and I wept for these women somewhere

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<v Speaker 1>in America who had lost whose babies had been born

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<v Speaker 1>prematurely and they had died. And not for one second

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<v Speaker 1>had I thought, did I think at that stage, Oh,

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<v Speaker 1>I hope that doesn't happen to me. It was just

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<v Speaker 1>somebody else's tragedy. And there was one story where I

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<v Speaker 1>read that somebody had had their three babies and one

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<v Speaker 1>had died at birth, one had died a few days later,

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<v Speaker 1>and one had died a few days after that. And

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<v Speaker 1>I cried so many tears for this woman, and I

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<v Speaker 1>remember thinking, how did she survive?

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<v Speaker 2>I can't.

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<v Speaker 1>I wouldn't survive if any you know, I couldn't. I

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<v Speaker 1>wouldn't survive that. But I wasn't then scared for myself,

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<v Speaker 1>because that was just somebody else's story. In my story.

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<v Speaker 1>I was pregnant, I was fit, I was healthy, I

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<v Speaker 1>was you know, I was so proud about being pregnant

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<v Speaker 1>with triplets. And I was off doing you know, I

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<v Speaker 1>was working, and I was going to the supermarket, and

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<v Speaker 1>I was doing my thing, and in my mind, naive,

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<v Speaker 1>call me naive. I just thought, you know, I knew

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<v Speaker 1>that the babies would be born prematurely. I've been worn.

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<v Speaker 1>You know, you're having triplets born early. I thought that

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<v Speaker 1>just meant, you know, maybe five or six weeks early.

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<v Speaker 1>Maybe they'd have to spend a couple of weeks in

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<v Speaker 1>hospitals to fatten up. But this, you know, I never

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<v Speaker 1>considered that this was going to happen to me. And

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<v Speaker 1>so when I was told suddenly, it was like being

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<v Speaker 1>hit by a truck. I was suddenly told, your babies

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<v Speaker 1>are going to die. And I could I just remember.

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<v Speaker 1>I remember the doctor leaving the room, and I was

0:13:40.800 --> 0:13:44.800
<v Speaker 1>on my own in just I mean, it was I

0:13:44.840 --> 0:13:46.840
<v Speaker 1>can't even there aren't even anyways to describe. And I

0:13:46.880 --> 0:13:50.320
<v Speaker 1>rang ash and said you have to come quickly. Anyway,

0:13:51.240 --> 0:13:53.280
<v Speaker 1>they told us, you know, twenty four hours the babies

0:13:53.280 --> 0:13:57.320
<v Speaker 1>are coming. And then that didn't actually happen, and so

0:13:57.520 --> 0:14:01.920
<v Speaker 1>we were kept in that thinking the livery suitet and

0:14:03.160 --> 0:14:05.400
<v Speaker 1>or maybe we were taken to the antenata ward. But anyway,

0:14:05.440 --> 0:14:07.720
<v Speaker 1>they took us to some water, some bed somewhere and

0:14:07.800 --> 0:14:11.920
<v Speaker 1>said okay, you know, you'll start to have contractions at

0:14:11.920 --> 0:14:15.440
<v Speaker 1>some stage. Anyway, that day came and went, and the

0:14:15.440 --> 0:14:18.080
<v Speaker 1>next day came and went, and by this stage that

0:14:18.760 --> 0:14:20.920
<v Speaker 1>had stopped leaking as well. There was no more water

0:14:21.000 --> 0:14:23.720
<v Speaker 1>coming out, and so they took me for a scan

0:14:25.040 --> 0:14:28.000
<v Speaker 1>and that was also I remember. We went for this scan,

0:14:28.480 --> 0:14:31.640
<v Speaker 1>you know, in the department of the hospital, and there

0:14:31.680 --> 0:14:34.200
<v Speaker 1>they were the three little babies on the screen of

0:14:34.240 --> 0:14:36.240
<v Speaker 1>the scan and you could see them. They each had

0:14:36.240 --> 0:14:39.400
<v Speaker 1>their own sack. They weren't identified, so they each had

0:14:39.440 --> 0:14:42.000
<v Speaker 1>which meant they were less complicated. It was less less

0:14:42.000 --> 0:14:44.440
<v Speaker 1>of a complicated pregnancy because the each had their own placenta,

0:14:44.760 --> 0:14:47.120
<v Speaker 1>they each had their own sack. And there they were,

0:14:47.160 --> 0:14:49.760
<v Speaker 1>these three little sweet little things kicking about in their sacks.

0:14:49.760 --> 0:14:55.080
<v Speaker 1>And even Henry. We didn't Henry whose waters had broken.

0:14:56.320 --> 0:14:59.240
<v Speaker 1>He had somehow, I don't know, his bottom or his

0:14:59.280 --> 0:15:02.600
<v Speaker 1>foot or something. It seemed to have plugged the hole.

0:15:03.240 --> 0:15:05.880
<v Speaker 1>And so there was still a little bit of water

0:15:05.960 --> 0:15:09.080
<v Speaker 1>in his sack. And they told me that water is

0:15:09.120 --> 0:15:13.720
<v Speaker 1>actually it will replenish because it's actually the baby's wi

0:15:14.160 --> 0:15:16.120
<v Speaker 1>I mean, it's not a very logical way to put it,

0:15:16.120 --> 0:15:18.480
<v Speaker 1>but the baby weeze and that's what the water is

0:15:18.480 --> 0:15:24.680
<v Speaker 1>inside the sack. And I remember asking the doctor are saying, look,

0:15:24.720 --> 0:15:27.800
<v Speaker 1>look at them, they're fine. They're all fine, Like, so

0:15:27.960 --> 0:15:30.080
<v Speaker 1>does this mean does this mean they're all going to

0:15:30.120 --> 0:15:35.640
<v Speaker 1>be okay? And the doctor looked in and looked really

0:15:35.680 --> 0:15:42.760
<v Speaker 1>grim and he said, well, there's probably like a one

0:15:42.840 --> 0:15:46.240
<v Speaker 1>percent chance that they'll all be that, you know, you're

0:15:46.240 --> 0:15:52.160
<v Speaker 1>going to remain pregnant. And I think he thought I

0:15:52.200 --> 0:15:54.960
<v Speaker 1>was mad because for the last two days we were

0:15:54.960 --> 0:15:56.880
<v Speaker 1>told you are going to deliver these babies, they are

0:15:56.920 --> 0:15:59.680
<v Speaker 1>going to die. And suddenly somebody was telling me there

0:15:59.720 --> 0:16:01.560
<v Speaker 1>was one chance they were all going to be fine.

0:16:01.920 --> 0:16:05.560
<v Speaker 2>Right, so you had one percent more than you had before.

0:16:05.840 --> 0:16:08.920
<v Speaker 1>We've got one percent. I'll take one percent. One percent.

0:16:09.120 --> 0:16:13.000
<v Speaker 1>That's great, you know, yeah, let's let's do it. We'll

0:16:13.000 --> 0:16:17.800
<v Speaker 1>be the one percent, thank you very much. And so

0:16:17.800 --> 0:16:21.200
<v Speaker 1>so I just clung to that, you know that that

0:16:21.680 --> 0:16:27.640
<v Speaker 1>But but that didn't happen, and five days later, my

0:16:27.720 --> 0:16:31.600
<v Speaker 1>contraction started and we were wheeled back down to the

0:16:31.600 --> 0:16:34.560
<v Speaker 1>delivery suite and Henry was born.

0:16:35.360 --> 0:16:39.760
<v Speaker 2>Little Henry, yeah, tiny, little Henry.

0:16:40.320 --> 0:16:41.520
<v Speaker 1>Yeah.

0:16:41.920 --> 0:16:44.600
<v Speaker 2>He was how heavy when he was born?

0:16:45.000 --> 0:16:46.880
<v Speaker 1>He was four hundred and fifty grams.

0:16:47.240 --> 0:16:47.680
<v Speaker 2>He was a.

0:16:49.560 --> 0:16:57.280
<v Speaker 1>Yeah, and he was born alive. And I was in

0:16:57.600 --> 0:17:02.240
<v Speaker 1>great distress just before his birth. But Ash, he was

0:17:02.360 --> 0:17:06.480
<v Speaker 1>just so wonderful because when Henry was born, Ash said

0:17:06.480 --> 0:17:09.320
<v Speaker 1>to me, he's he's a like we didn't. We were

0:17:09.359 --> 0:17:11.600
<v Speaker 1>told that they probably he probably wouldn't be born alive,

0:17:12.320 --> 0:17:15.760
<v Speaker 1>he probably wouldn't survive the birth, and Ash said, he's alive.

0:17:15.880 --> 0:17:19.160
<v Speaker 1>He actually even gave a tiny, tiny cry, like the

0:17:19.200 --> 0:17:24.480
<v Speaker 1>tiniest little little squeak, and they put him up on

0:17:24.520 --> 0:17:28.240
<v Speaker 1>my chest and Ash said, we have to give him

0:17:28.240 --> 0:17:29.520
<v Speaker 1>a good life.

0:17:30.320 --> 0:17:37.000
<v Speaker 2>And even though he knew that that life was going

0:17:37.040 --> 0:17:38.560
<v Speaker 2>to be very short.

0:17:40.320 --> 0:17:44.000
<v Speaker 1>So I'm so grateful for Ash for saying that, because

0:17:44.040 --> 0:17:46.159
<v Speaker 1>when he said we have to give him a good life,

0:17:46.920 --> 0:17:51.520
<v Speaker 1>I suddenly realized, you know, he's here with us now,

0:17:51.640 --> 0:17:55.840
<v Speaker 1>this is his life. And we had one hour with him,

0:17:56.600 --> 0:17:59.760
<v Speaker 1>one hour before he died, and in that hour I

0:17:59.800 --> 0:18:03.199
<v Speaker 1>even and looking back actually over the lives of my

0:18:03.320 --> 0:18:10.639
<v Speaker 1>three boys, I do feel like Henry's life was the

0:18:11.160 --> 0:18:14.800
<v Speaker 1>best life. He had the most all he spent his

0:18:14.920 --> 0:18:18.560
<v Speaker 1>whole life in my arms, and all he knew was love.

0:18:19.280 --> 0:18:23.440
<v Speaker 1>And we spent the hour talking to him and telling

0:18:23.480 --> 0:18:27.639
<v Speaker 1>him how loved he was. I remember Ash holding me

0:18:27.920 --> 0:18:30.600
<v Speaker 1>as I was holding Henry, and Ash said, I can't

0:18:30.640 --> 0:18:36.960
<v Speaker 1>believe how much I love him.

0:18:34.560 --> 0:18:41.040
<v Speaker 2>And yeah, when when you gave birth to Henry, was

0:18:41.040 --> 0:18:45.280
<v Speaker 2>that they did a cesarean? No, it was natural. I

0:18:45.520 --> 0:18:51.520
<v Speaker 2>understand that the physiology of health. Yeah, works for you

0:18:51.760 --> 0:18:52.359
<v Speaker 2>or for him.

0:18:53.400 --> 0:18:58.600
<v Speaker 1>Yeah. So I gave birth to Henry. I actually didn't

0:18:58.600 --> 0:19:02.399
<v Speaker 1>even know. I don't know if it's too much information

0:19:02.560 --> 0:19:05.960
<v Speaker 1>for your listeners, but I didn't even really know that

0:19:06.160 --> 0:19:08.240
<v Speaker 1>he was so close to being born. I'd been in

0:19:08.320 --> 0:19:11.840
<v Speaker 1>labor for hours, but I didn't know. And I actually

0:19:11.920 --> 0:19:13.440
<v Speaker 1>thought that I needed to do a pooh when I

0:19:13.480 --> 0:19:15.720
<v Speaker 1>went to the loo, and he was actually born when

0:19:15.760 --> 0:19:18.159
<v Speaker 1>I was on the loo, and it was it was

0:19:18.200 --> 0:19:24.359
<v Speaker 1>a horrible shock. But what happened was I gave birth

0:19:24.400 --> 0:19:28.399
<v Speaker 1>to Henry, but my body did not birth his placenta right,

0:19:28.840 --> 0:19:34.480
<v Speaker 1>and because his placenta hadn't, my labor stopped. Because after

0:19:34.520 --> 0:19:37.600
<v Speaker 1>Henry was born, I was told, oh, you know, we'll

0:19:37.640 --> 0:19:40.639
<v Speaker 1>just keep you here because obviously there's more babies coming.

0:19:41.240 --> 0:19:44.440
<v Speaker 1>And then the labor just stopped, and so they moved

0:19:44.480 --> 0:19:47.000
<v Speaker 1>him back to Anti NATO at that stage and just said, look,

0:19:48.200 --> 0:19:53.159
<v Speaker 1>we just got to wait. But at that stage it

0:19:53.280 --> 0:19:56.480
<v Speaker 1>was twenty one and a half weeks, and back in

0:19:56.480 --> 0:20:01.000
<v Speaker 1>two thousand and six, babies born before twenty four weeks

0:20:01.640 --> 0:20:07.520
<v Speaker 1>were not viable. Not viable, yes, exactly, and so we

0:20:07.520 --> 0:20:12.440
<v Speaker 1>were told, it's very unlikely that your body is going

0:20:12.480 --> 0:20:15.960
<v Speaker 1>to hold on to your other two babies for another

0:20:16.000 --> 0:20:20.199
<v Speaker 1>three and a half two and a half weeks, but

0:20:20.640 --> 0:20:22.920
<v Speaker 1>we'll just it's just await. Then we just wait and see.

0:20:23.160 --> 0:20:25.639
<v Speaker 1>And then I don't think anyone thought we would make

0:20:25.640 --> 0:20:28.120
<v Speaker 1>it twenty four weeks. And then every day that passed,

0:20:29.280 --> 0:20:32.960
<v Speaker 1>Ash and I sort of, you know, had our hopes grew.

0:20:33.560 --> 0:20:36.320
<v Speaker 1>I was very high risk of getting an infection, and

0:20:36.359 --> 0:20:38.360
<v Speaker 1>they told me if I had any sign of infection,

0:20:38.400 --> 0:20:40.600
<v Speaker 1>they would just induced me because that would be dangerous

0:20:40.600 --> 0:20:44.960
<v Speaker 1>of my life. And so the next two and a

0:20:45.000 --> 0:20:48.960
<v Speaker 1>half weeks I just lay in bed rest on bed

0:20:49.080 --> 0:20:53.160
<v Speaker 1>rest in hospital and I did not want to move.

0:20:54.200 --> 0:20:57.760
<v Speaker 1>I remember, you know, even that I had to get

0:20:57.880 --> 0:20:59.800
<v Speaker 1>up to go to the loo, and I was asking

0:20:59.840 --> 0:21:01.920
<v Speaker 1>the please, can't you just give me a catheter or something.

0:21:01.920 --> 0:21:03.200
<v Speaker 1>I don't want to get up to go to the loo,

0:21:03.240 --> 0:21:05.400
<v Speaker 1>and they said, no, that's a infection risk. We can't

0:21:05.440 --> 0:21:08.680
<v Speaker 1>do that. You're fine to go to the loo. But then,

0:21:08.840 --> 0:21:12.000
<v Speaker 1>you know, as I remember, as the days passed, the

0:21:12.080 --> 0:21:14.520
<v Speaker 1>nurses were encouraging me to go in the wheelchair and

0:21:14.560 --> 0:21:16.959
<v Speaker 1>just going go outside and get some fresh air, and

0:21:17.040 --> 0:21:19.120
<v Speaker 1>I said, no, thanks, I don't want to go anywhere.

0:21:19.160 --> 0:21:21.840
<v Speaker 1>I don't want to I'm going to wait. I can't.

0:21:22.240 --> 0:21:24.640
<v Speaker 1>I just have to make it to twenty four weeks.

0:21:25.000 --> 0:21:30.480
<v Speaker 2>You were straddling too world scene because you'd had that

0:21:30.800 --> 0:21:37.320
<v Speaker 2>heartbreaking loss, the one hour with Henry, with darling little Henry,

0:21:37.359 --> 0:21:40.440
<v Speaker 2>who is on the cover of your book, exactly.

0:21:41.280 --> 0:21:46.320
<v Speaker 1>That it is. I'm so I'm so happy that Henry,

0:21:46.359 --> 0:21:48.600
<v Speaker 1>that that photo was able to be on the cover

0:21:48.640 --> 0:21:49.160
<v Speaker 1>of my book.

0:21:49.359 --> 0:21:56.160
<v Speaker 2>Yeah, and yet as a mother, the rest of every

0:21:56.160 --> 0:22:01.720
<v Speaker 2>ounce of your energy was going towards growing the two

0:22:01.800 --> 0:22:05.439
<v Speaker 2>boys that were still inside you and getting them to

0:22:05.520 --> 0:22:09.520
<v Speaker 2>that twenty four week period, which you did. Yeah, I.

0:22:11.280 --> 0:22:16.640
<v Speaker 1>Had to be after Henry. We kept Henry with us

0:22:16.640 --> 0:22:19.200
<v Speaker 1>for about two days I think, and then we had

0:22:19.200 --> 0:22:23.960
<v Speaker 1>to say goodbye, which was really hard. But I remember

0:22:25.480 --> 0:22:28.360
<v Speaker 1>thinking that the most important thing now was I've had

0:22:28.400 --> 0:22:31.560
<v Speaker 1>to I had to keep had to look after Evan

0:22:31.600 --> 0:22:36.680
<v Speaker 1>and Jasper, and I had to remain as calm as

0:22:36.720 --> 0:22:41.520
<v Speaker 1>possible because I thought that if I was very distressed,

0:22:41.640 --> 0:22:43.719
<v Speaker 1>I might, you know, even spike a fever and then

0:22:43.760 --> 0:22:45.760
<v Speaker 1>they think I had an infection, then they'd be inducing.

0:22:45.880 --> 0:22:49.240
<v Speaker 1>So I didn't want to even I didn't want to

0:22:49.280 --> 0:22:51.399
<v Speaker 1>even be sad, because I just and I wanted to

0:22:51.480 --> 0:22:54.000
<v Speaker 1>just be calm. And Ash was amazing. He did not

0:22:54.359 --> 0:22:57.400
<v Speaker 1>leave the hospital. There was no bed for him, and

0:22:57.560 --> 0:23:02.800
<v Speaker 1>he slept on the floor next to my bed for

0:23:03.280 --> 0:23:07.760
<v Speaker 1>three weeks. He never even didn't ever leave the hospital

0:23:07.880 --> 0:23:10.440
<v Speaker 1>because he also knew that if anything was to happen,

0:23:10.520 --> 0:23:13.080
<v Speaker 1>he didn't want to miss, you know, the birth of

0:23:13.119 --> 0:23:15.840
<v Speaker 1>his children. And he knew that I needed him, so

0:23:16.520 --> 0:23:18.520
<v Speaker 1>he stayed with me, and actually we got into a

0:23:18.560 --> 0:23:21.800
<v Speaker 1>little rhythm and we used to he used to read

0:23:21.840 --> 0:23:25.320
<v Speaker 1>to me, and we'd play scrabble and we'd we'd just

0:23:25.680 --> 0:23:30.320
<v Speaker 1>you know, hope and we and I think as we

0:23:30.400 --> 0:23:33.040
<v Speaker 1>got closer to twenty four weeks, that was a scary

0:23:33.080 --> 0:23:36.879
<v Speaker 1>time because I'd had a conversation with the neonatologists from

0:23:36.920 --> 0:23:39.560
<v Speaker 1>the Naracy Attensive Care unit and they told me, you

0:23:39.720 --> 0:23:44.200
<v Speaker 1>have to be twenty four weeks before we can consider

0:23:44.920 --> 0:23:47.920
<v Speaker 1>you know, saving your babies. And as when I got

0:23:47.920 --> 0:23:50.720
<v Speaker 1>to twenty three weeks, I was really scared because I

0:23:50.800 --> 0:23:53.879
<v Speaker 1>kept thinking was so close, were so close if anything

0:23:53.920 --> 0:23:56.480
<v Speaker 1>goes wrong before I'm twenty four weeks, you know, were

0:23:56.520 --> 0:24:01.000
<v Speaker 1>going from zero, you know, no chance of survival to

0:24:01.240 --> 0:24:03.520
<v Speaker 1>twenty four weeks. They had told me that if I was,

0:24:03.600 --> 0:24:05.280
<v Speaker 1>if my babies were born at twenty four weeks, they'd

0:24:05.280 --> 0:24:07.360
<v Speaker 1>be a fifty percent chance of survival. Well, we made

0:24:07.359 --> 0:24:12.320
<v Speaker 1>it to twenty four weeks, and on that day, we

0:24:12.320 --> 0:24:15.040
<v Speaker 1>we just were so relieved. We were just like, yes,

0:24:15.119 --> 0:24:17.200
<v Speaker 1>we're here. We've been twenty four weeks, so they're like, okay,

0:24:17.200 --> 0:24:19.520
<v Speaker 1>then we're in here for the long haul. Will stay

0:24:19.800 --> 0:24:23.000
<v Speaker 1>on beddress for another sixteen weeks, my babies can come

0:24:23.000 --> 0:24:25.000
<v Speaker 1>on time. You know they're going to be fine, and

0:24:25.600 --> 0:24:28.560
<v Speaker 1>that Henry will always be I remember saying to Ash,

0:24:29.280 --> 0:24:32.200
<v Speaker 1>We're always going to call them triplets ever than Jasper

0:24:32.359 --> 0:24:34.640
<v Speaker 1>are always going to be triplets, and they will know

0:24:34.760 --> 0:24:38.000
<v Speaker 1>that about their brother Henry, and Henry will always be

0:24:38.080 --> 0:24:39.920
<v Speaker 1>a part of our our our family.

0:24:40.560 --> 0:24:43.440
<v Speaker 2>And almost in a way, did you think that Henry

0:24:43.480 --> 0:24:47.000
<v Speaker 2>had maybe sacrificed himself exactly?

0:24:47.119 --> 0:24:49.680
<v Speaker 1>I thought that you know, that's exactly right, that Henry

0:24:49.760 --> 0:24:54.200
<v Speaker 1>had had had come so that Jasper and Evan could live,

0:24:54.840 --> 0:24:58.399
<v Speaker 1>and you know, and I could tell them in years

0:24:58.400 --> 0:25:02.000
<v Speaker 1>to come about their incredible brother Henry and what a

0:25:02.840 --> 0:25:05.840
<v Speaker 1>you know, what a beautiful little boy he was, and

0:25:05.880 --> 0:25:10.159
<v Speaker 1>how much he was loved and wanted. Actually, what happened

0:25:10.160 --> 0:25:13.800
<v Speaker 1>next is interesting. You say that that in talk about

0:25:13.840 --> 0:25:17.240
<v Speaker 1>sacrificing himself, I actually think that Evan. I feel that

0:25:17.320 --> 0:25:22.159
<v Speaker 1>about Evan as well, right number two years, because my

0:25:22.280 --> 0:25:26.919
<v Speaker 1>waters actually ended up breaking on the very day we

0:25:27.040 --> 0:25:31.920
<v Speaker 1>turned twenty four weeks, which at the time I thought

0:25:33.080 --> 0:25:35.480
<v Speaker 1>I couldn't believe how lucky we were. There had been

0:25:35.680 --> 0:25:38.280
<v Speaker 1>twenty four you know, here we were officially at twenty

0:25:38.320 --> 0:25:41.600
<v Speaker 1>four weeks. It was a huge disappointment, of course, and

0:25:41.680 --> 0:25:44.600
<v Speaker 1>who's shock moment waters broke again, because we knew that

0:25:44.920 --> 0:25:47.720
<v Speaker 1>every day beyond twenty four weeks was going to increase

0:25:47.760 --> 0:25:50.959
<v Speaker 1>their chances of survival. But I also knew that this

0:25:51.000 --> 0:25:54.520
<v Speaker 1>could have been yesterday, in which case my babies would

0:25:54.520 --> 0:25:59.960
<v Speaker 1>have no chance. And so my waters broke. We were

0:26:00.000 --> 0:26:02.600
<v Speaker 1>but we've been in hospital by this stage for what

0:26:02.760 --> 0:26:08.280
<v Speaker 1>three weeks, And when after my waters had broken, there

0:26:08.320 --> 0:26:11.240
<v Speaker 1>was Suddenly a whole flurry of sort of toing and

0:26:11.280 --> 0:26:14.160
<v Speaker 1>throwing from the doctors and stuff.

0:26:13.880 --> 0:26:13.960
<v Speaker 2>And.

0:26:15.640 --> 0:26:20.040
<v Speaker 1>Then a doctor came over and said, okay, we're just

0:26:20.200 --> 0:26:25.359
<v Speaker 1>organizing an ambulance for you because there aren't any beds

0:26:25.400 --> 0:26:28.240
<v Speaker 1>available in the neonatal intensive care unit here at the

0:26:28.320 --> 0:26:30.679
<v Speaker 1>Royal Hospital for Women, and we've called around all the

0:26:30.680 --> 0:26:33.240
<v Speaker 1>hospitals in Sydney and there's a critical shortage of neonatal

0:26:33.280 --> 0:26:36.760
<v Speaker 1>intensive care beds tonight. So we're going to have to

0:26:36.760 --> 0:26:38.680
<v Speaker 1>take you up to Newcastle and your babies will be

0:26:38.720 --> 0:26:40.560
<v Speaker 1>cared for up there, and they've got a wonderful hospital

0:26:40.600 --> 0:26:43.359
<v Speaker 1>up there. So we were like, oh, all right, this

0:26:43.440 --> 0:26:47.639
<v Speaker 1>doesn't sound ideal, but okay, let's get going then. And

0:26:48.760 --> 0:26:50.879
<v Speaker 1>then an hour or so passed and I started to

0:26:50.880 --> 0:26:53.000
<v Speaker 1>get quite anxious and say, what are we waiting for?

0:26:53.040 --> 0:26:55.320
<v Speaker 1>You know, my babies might be delivered en route. That's

0:26:55.359 --> 0:26:57.639
<v Speaker 1>going to be no good. Can we go now please?

0:26:58.280 --> 0:27:01.000
<v Speaker 1>And then they said, oh, we're really so sorry. There's

0:27:01.200 --> 0:27:06.560
<v Speaker 1>another plan. See, Newcastle doesn't have any beds available, so

0:27:06.840 --> 0:27:09.520
<v Speaker 1>we're going to deliver your babies here in Sydney, will

0:27:09.600 --> 0:27:13.560
<v Speaker 1>airlift them to Brisbane or Melbourne. And then they said

0:27:14.560 --> 0:27:16.720
<v Speaker 1>we just have to warn you that there is a

0:27:16.760 --> 0:27:19.840
<v Speaker 1>possibility that we might have to take one to Brisbane

0:27:19.880 --> 0:27:25.840
<v Speaker 1>and one to Helven. And that was just, you know,

0:27:25.960 --> 0:27:30.800
<v Speaker 1>like a terrible moment because I suddenly thought, but we've

0:27:30.920 --> 0:27:34.280
<v Speaker 1>just achieved the impossible here, We've just made it to

0:27:34.320 --> 0:27:38.840
<v Speaker 1>twenty four weeks. We've just done the hard bit. What's

0:27:38.920 --> 0:27:44.040
<v Speaker 1>happening now? How can I Anyway? Luckily, thankfully my labor,

0:27:44.520 --> 0:27:47.240
<v Speaker 1>my waters had broken, but my labor didn't progress against no,

0:27:47.359 --> 0:27:49.440
<v Speaker 1>because the boys, the.

0:27:49.359 --> 0:27:55.679
<v Speaker 2>Boys were on your side. We've got on.

0:27:56.600 --> 0:28:00.000
<v Speaker 1>Yeah. So it was actually I think three days later.

0:28:01.800 --> 0:28:05.080
<v Speaker 1>By that stage, I mean, they were amazing at the hospital.

0:28:05.160 --> 0:28:08.080
<v Speaker 1>And by that stage one of the inetologists had come

0:28:08.200 --> 0:28:11.120
<v Speaker 1>up to see me and he had said, I want

0:28:11.160 --> 0:28:13.959
<v Speaker 1>to let you know, we have two beds available at

0:28:13.960 --> 0:28:18.479
<v Speaker 1>the role here in the nicqu We're saving them for

0:28:18.560 --> 0:28:21.679
<v Speaker 1>your babies. Nobody is going to use those beds and

0:28:21.720 --> 0:28:23.600
<v Speaker 1>we're going to keep them for you. So whenever your

0:28:23.600 --> 0:28:25.480
<v Speaker 1>babies are born, that's where they'll be. So that was

0:28:25.520 --> 0:28:30.359
<v Speaker 1>a big relief. And then but the next day, yeah,

0:28:30.400 --> 0:28:32.159
<v Speaker 1>there was I had to have an emergency sitch as

0:28:32.240 --> 0:28:35.320
<v Speaker 1>zesarean because it was Jasper whose waters had broken the

0:28:35.359 --> 0:28:37.920
<v Speaker 1>second time, and it was something called I've never heard

0:28:37.960 --> 0:28:40.640
<v Speaker 1>of this before. It's called the footling breach. Have you

0:28:40.680 --> 0:28:44.960
<v Speaker 1>ever heard of that. That's when the leg So Jasper's

0:28:45.000 --> 0:28:49.640
<v Speaker 1>waters had broken and his leg had come out of

0:28:49.680 --> 0:28:52.920
<v Speaker 1>his sack and his leg was stuck, so his leg

0:28:53.000 --> 0:28:54.680
<v Speaker 1>was coming out, but the rest of him was inside,

0:28:54.680 --> 0:28:56.520
<v Speaker 1>and that's very dangerous. So they said, okay, we've got

0:28:56.880 --> 0:29:00.000
<v Speaker 1>a problem here. We need to give you an emergency

0:29:00.120 --> 0:29:03.640
<v Speaker 1>Caesar and get these babies out. And the reason why

0:29:03.680 --> 0:29:06.880
<v Speaker 1>I said Evan was I felt like Evan had sort of,

0:29:08.480 --> 0:29:12.160
<v Speaker 1>you know, sacrifice given to sacrifice himself. Is that Evan

0:29:12.760 --> 0:29:18.080
<v Speaker 1>was born intact in his sack. So Evan could have stayed,

0:29:18.720 --> 0:29:21.880
<v Speaker 1>but for Jasper to give Jasper a chance, Evan had

0:29:21.920 --> 0:29:26.160
<v Speaker 1>to be born too. And so Evan and Jasper were born,

0:29:27.840 --> 0:29:33.480
<v Speaker 1>and their birth went really well, and they handled the

0:29:33.520 --> 0:29:37.360
<v Speaker 1>birth really well, and they were whisked off to the NICKU.

0:29:38.240 --> 0:29:40.800
<v Speaker 1>I it was as complicated cesarean, and there was a

0:29:40.800 --> 0:29:42.680
<v Speaker 1>few complications, so I had to be taken to the

0:29:42.880 --> 0:29:45.120
<v Speaker 1>critical care and I was a bit out of it

0:29:45.160 --> 0:29:48.200
<v Speaker 1>for a couple of days. Ash was able to go

0:29:48.240 --> 0:29:50.160
<v Speaker 1>down and see the babies in the nicque, and then

0:29:50.200 --> 0:29:52.520
<v Speaker 1>he came back to me and he just said, oh,

0:29:52.560 --> 0:29:54.560
<v Speaker 1>he came back saw me. I hadn't met them. I didn't.

0:29:54.680 --> 0:29:56.400
<v Speaker 1>I think it was two days before I get Scott's

0:29:56.400 --> 0:29:59.360
<v Speaker 1>sort to see them, and Ash came back just saying, oh,

0:29:59.440 --> 0:30:03.280
<v Speaker 1>my god, they are so perfect. They're the perfect little babies.

0:30:03.280 --> 0:30:06.360
<v Speaker 1>I've never seen such beautiful babies. And of course, you

0:30:06.400 --> 0:30:11.200
<v Speaker 1>know they actually they were extremely premature. You know, they

0:30:11.240 --> 0:30:15.960
<v Speaker 1>had even their skin hadn't finished developing. Their eyes were

0:30:16.000 --> 0:30:19.760
<v Speaker 1>sealed shut, they were you know, their lungs, their brains,

0:30:20.400 --> 0:30:24.720
<v Speaker 1>at their hearts, everything was underdeveloped. And they they were

0:30:24.880 --> 0:30:28.000
<v Speaker 1>looked after in the nic queue, and I remember somebody

0:30:28.080 --> 0:30:30.880
<v Speaker 1>saying that if they got could get through the first

0:30:30.920 --> 0:30:33.920
<v Speaker 1>four days without any complications, and their chances of survival

0:30:34.040 --> 0:30:38.240
<v Speaker 1>significantly rise. And four days later, everything was going so

0:30:38.400 --> 0:30:43.040
<v Speaker 1>well and they were taking my breast milk through a

0:30:43.160 --> 0:30:45.600
<v Speaker 1>tube straight into their drop. They were literally given one

0:30:45.680 --> 0:30:46.480
<v Speaker 1>drop at a time.

0:30:47.640 --> 0:30:52.920
<v Speaker 2>Or something that's yeah, your colostrum.

0:30:53.400 --> 0:30:55.640
<v Speaker 1>Yeah, And so that was really you know, I wasn't

0:30:55.640 --> 0:30:57.760
<v Speaker 1>able to touch them at all, but at this stage

0:30:57.800 --> 0:31:04.360
<v Speaker 1>and for me, it was really it was an amazing

0:31:04.440 --> 0:31:07.720
<v Speaker 1>thing that I was able to produce this colostrum and

0:31:07.760 --> 0:31:11.880
<v Speaker 1>then some milk that was all being frozen for them

0:31:11.920 --> 0:31:14.160
<v Speaker 1>and given to them drop by drop, And I could

0:31:14.160 --> 0:31:17.560
<v Speaker 1>feel like I was doing something as their mum because

0:31:17.560 --> 0:31:21.000
<v Speaker 1>I couldn't do anything. I wasn't even allowed to touch them.

0:31:21.200 --> 0:31:24.000
<v Speaker 2>How is that when you're looking at your little your

0:31:24.040 --> 0:31:28.800
<v Speaker 2>tiny little skun rabbits in humid crebs and you can't

0:31:28.920 --> 0:31:32.960
<v Speaker 2>you can't touch them, how is that? Oh?

0:31:33.120 --> 0:31:36.720
<v Speaker 1>I just wanted to rip them out and hold them

0:31:36.720 --> 0:31:39.200
<v Speaker 1>to my chest, and you know, but I also knew

0:31:39.240 --> 0:31:42.360
<v Speaker 1>that they were in the very best care, and I

0:31:42.480 --> 0:31:47.440
<v Speaker 1>knew that that holding I al. I wanted to just

0:31:47.480 --> 0:31:49.280
<v Speaker 1>wanted to hold them, but I also knew that that

0:31:49.440 --> 0:31:51.160
<v Speaker 1>was going to be for me and not for them

0:31:51.280 --> 0:31:57.000
<v Speaker 1>at this stage. And even when I was finally allowed

0:31:57.040 --> 0:31:59.960
<v Speaker 1>to hold Jasper, which was a couple of weeks later,

0:32:00.680 --> 0:32:04.600
<v Speaker 1>actually after after Evan had passed away, But I remember

0:32:04.600 --> 0:32:07.360
<v Speaker 1>when they offered for me to hold Jasper, and I

0:32:07.400 --> 0:32:10.320
<v Speaker 1>actually was. I was scared that it wasn't going to

0:32:10.320 --> 0:32:13.400
<v Speaker 1>be It would hurt him, you know, he and I

0:32:13.400 --> 0:32:17.480
<v Speaker 1>would rather wait, you know, I would rather wait until

0:32:17.520 --> 0:32:20.320
<v Speaker 1>it was nice for him to be held too. But

0:32:22.680 --> 0:32:25.000
<v Speaker 1>we got very used to just sitting by their beds

0:32:25.040 --> 0:32:29.440
<v Speaker 1>and we would, you know, talk to them and at

0:32:29.440 --> 0:32:32.520
<v Speaker 1>this stage their eyes hadn't opened, so they were just

0:32:32.640 --> 0:32:36.040
<v Speaker 1>in their humidity crib. But yeah, it was We had

0:32:36.040 --> 0:32:37.120
<v Speaker 1>a really good week.

0:32:37.760 --> 0:32:43.040
<v Speaker 2>And then things went awry for Evan. Was it his lungs, No.

0:32:43.040 --> 0:32:45.480
<v Speaker 1>It wasn't his lungs, it was his brain. So well,

0:32:45.600 --> 0:32:48.000
<v Speaker 1>he first of all, seven days old, he just became

0:32:48.080 --> 0:32:52.160
<v Speaker 1>really ill and the doctors were very worried. And actually

0:32:52.200 --> 0:32:54.680
<v Speaker 1>it was the day that I was let home from

0:32:54.760 --> 0:32:58.480
<v Speaker 1>hospital after seven days. They said to me, okay, time

0:32:58.520 --> 0:33:00.200
<v Speaker 1>for you to go home, and I didn't want to go,

0:33:01.000 --> 0:33:03.200
<v Speaker 1>and they luckily we lived. We were lucky we lived

0:33:03.200 --> 0:33:06.040
<v Speaker 1>near the hospital. But we went home and that night,

0:33:06.160 --> 0:33:07.560
<v Speaker 1>in the middle of the night, the phone rang and

0:33:07.600 --> 0:33:10.760
<v Speaker 1>they said come back quick, and so we went in

0:33:10.800 --> 0:33:12.840
<v Speaker 1>and Evan was really ill and it turned out that

0:33:12.920 --> 0:33:17.640
<v Speaker 1>he had a he had a very severe brain hemorrhage,

0:33:18.080 --> 0:33:22.320
<v Speaker 1>which is which is very common in premature babies. And

0:33:24.280 --> 0:33:28.840
<v Speaker 1>so at ten days old, they told us that his

0:33:28.880 --> 0:33:34.000
<v Speaker 1>brain hemorrhage was so severe that their advice was that

0:33:34.040 --> 0:33:36.800
<v Speaker 1>we should turn off his life support and let him

0:33:36.920 --> 0:33:40.240
<v Speaker 1>let him go. And so that was the first time

0:33:40.800 --> 0:33:43.160
<v Speaker 1>that I held Evan was when we took him out

0:33:43.200 --> 0:33:46.160
<v Speaker 1>of his of his humidity crib, and I held him

0:33:46.200 --> 0:33:47.920
<v Speaker 1>as they as he passed away.

0:33:48.240 --> 0:33:50.520
<v Speaker 2>So that was the decision that you had to make.

0:33:52.640 --> 0:33:54.880
<v Speaker 2>That decision was left to you.

0:33:58.920 --> 0:34:02.240
<v Speaker 1>Yeah, it do you know. It's something that I have

0:34:02.320 --> 0:34:05.280
<v Speaker 1>struggled with. I struggled with for a long time because

0:34:06.960 --> 0:34:13.120
<v Speaker 1>I wanted my boys to be here and I didn't

0:34:13.320 --> 0:34:15.879
<v Speaker 1>even even actually at their birth. At twenty four weeks,

0:34:15.920 --> 0:34:17.960
<v Speaker 1>we were asked, would you like us to resuscitate your

0:34:17.960 --> 0:34:21.239
<v Speaker 1>babies because at this early gestation we don't have to.

0:34:21.480 --> 0:34:24.799
<v Speaker 1>We can, you know, you might choose it might be

0:34:24.880 --> 0:34:28.920
<v Speaker 1>fairer to let them go. And I remember asking the

0:34:29.000 --> 0:34:36.560
<v Speaker 1>doctors about disabilities and saying, I, I you know, please

0:34:36.680 --> 0:34:42.320
<v Speaker 1>do everything you can to save my babies. Whatever disabilities

0:34:42.360 --> 0:34:46.120
<v Speaker 1>they end up having, we will deal with. We will

0:34:46.239 --> 0:34:51.120
<v Speaker 1>give these boys a great life, we'll care for them.

0:34:51.440 --> 0:34:55.000
<v Speaker 1>We don't you know, if there are disabilities as a

0:34:55.000 --> 0:34:58.439
<v Speaker 1>result of their prematurity. Whilst that's just you know, that's

0:34:58.560 --> 0:35:02.280
<v Speaker 1>just what we'll deal with. That, that's fine, that's okay.

0:35:02.440 --> 0:35:04.440
<v Speaker 1>But at this stage the doctors were saying, this is

0:35:04.480 --> 0:35:06.000
<v Speaker 1>beyond that, this is severe.

0:35:08.280 --> 0:35:13.520
<v Speaker 2>I'll be back with Sophie after this short break. It

0:35:13.640 --> 0:35:17.480
<v Speaker 2>was a template of both you and Ash that even

0:35:17.520 --> 0:35:21.319
<v Speaker 2>when you were found to be having a multiple pregnancy,

0:35:21.560 --> 0:35:26.439
<v Speaker 2>that you were offered the option of selectively. I don't

0:35:26.440 --> 0:35:28.319
<v Speaker 2>know what the term is, but toy.

0:35:28.360 --> 0:35:33.120
<v Speaker 1>They call it a reduction, which they advise with a

0:35:33.239 --> 0:35:36.600
<v Speaker 1>multiple the higher order multiple birth, which is anything three

0:35:36.680 --> 0:35:40.560
<v Speaker 1>or over that you reduce. But to us, and I've

0:35:40.760 --> 0:35:45.319
<v Speaker 1>never regretted my decision not to we there was no

0:35:45.440 --> 0:35:49.200
<v Speaker 1>that was just not a possibility for us. Well, these

0:35:49.239 --> 0:35:54.160
<v Speaker 1>three babies were, you know, everything to us, and I've

0:35:54.200 --> 0:35:55.839
<v Speaker 1>never actually never regretted that.

0:35:56.000 --> 0:35:59.759
<v Speaker 2>So you've got little Evan now you're holding him for

0:35:59.800 --> 0:36:00.680
<v Speaker 2>the first.

0:36:00.400 --> 0:36:03.680
<v Speaker 1>Time, and I wish I could say that I gave

0:36:03.800 --> 0:36:06.440
<v Speaker 1>him a good stend off like we did with Henry.

0:36:06.480 --> 0:36:12.319
<v Speaker 1>But poor little Evan, it was very I've always felt

0:36:12.320 --> 0:36:15.640
<v Speaker 1>guilty about that as well, that I was in such.

0:36:15.480 --> 0:36:23.880
<v Speaker 2>Distress and Evan was said, which it's always the fate

0:36:23.960 --> 0:36:24.920
<v Speaker 2>of the middle child.

0:36:27.280 --> 0:36:30.320
<v Speaker 1>I always to actually think of Evan. I always think, oh,

0:36:30.480 --> 0:36:33.400
<v Speaker 1>little Evan was a real middle child because he didn't

0:36:33.400 --> 0:36:36.960
<v Speaker 1>get his special time. You know, he came and went

0:36:37.000 --> 0:36:39.560
<v Speaker 1>in the middle of it all in this blur of

0:36:39.600 --> 0:36:45.319
<v Speaker 1>ten days. When after Evan died, I actually never saw

0:36:45.480 --> 0:36:49.160
<v Speaker 1>I didn't have any special time with him. We never

0:36:49.440 --> 0:36:52.560
<v Speaker 1>saw him again, whereas with Henry, we spent two days

0:36:52.560 --> 0:36:58.160
<v Speaker 1>with him after he passed, and I I was obviously,

0:36:58.840 --> 0:37:05.840
<v Speaker 1>you know, throwing everything into Jasper as well. So Evan's

0:37:06.080 --> 0:37:10.480
<v Speaker 1>passing was very well. Obviously they're all really sad, but

0:37:10.560 --> 0:37:15.160
<v Speaker 1>I feel great sadness over Evan. But after ever, after

0:37:15.200 --> 0:37:19.799
<v Speaker 1>Evan died the next day, we came back into the

0:37:19.800 --> 0:37:21.799
<v Speaker 1>hospital and there was just and I have to say

0:37:21.880 --> 0:37:25.560
<v Speaker 1>that when Evan was sick for three days before he passed,

0:37:26.520 --> 0:37:29.640
<v Speaker 1>little Jasper was doing brilliantly. And again I was so

0:37:29.800 --> 0:37:32.400
<v Speaker 1>happy that, you know, Jasper gave us that time. With that,

0:37:32.840 --> 0:37:34.759
<v Speaker 1>we didn't take any attention away at that stage. We

0:37:34.920 --> 0:37:38.120
<v Speaker 1>sort of ignored him for three days and spent you know,

0:37:38.239 --> 0:37:42.080
<v Speaker 1>looked after we're worrying about Evan, and then Jasper did brilliantly.

0:37:42.120 --> 0:37:47.000
<v Speaker 1>And I have to say, even after Evan died, I

0:37:47.160 --> 0:37:52.120
<v Speaker 1>one hundred percent believed that Jasper would be fine. M

0:37:53.120 --> 0:37:57.600
<v Speaker 1>Jasper was strong. Jasper was the biggest as well, and

0:37:57.760 --> 0:38:02.960
<v Speaker 1>he was not thing was wrong with Jasper. His his

0:38:03.120 --> 0:38:07.399
<v Speaker 1>heart was perfect, his brain was perfect, his his his

0:38:07.440 --> 0:38:09.759
<v Speaker 1>guts were doing, you know, taking he was taking my

0:38:10.280 --> 0:38:12.960
<v Speaker 1>milk and all the digestion was all fine. He was

0:38:13.000 --> 0:38:16.359
<v Speaker 1>poing and we we were changing his nappy and there

0:38:16.400 --> 0:38:19.480
<v Speaker 1>was nothing sweeter than like changing going, oh, just.

0:38:19.480 --> 0:38:20.160
<v Speaker 2>Ha's done a poo.

0:38:20.239 --> 0:38:22.719
<v Speaker 1>We can change his nappy because after Evan died, I

0:38:22.760 --> 0:38:26.000
<v Speaker 1>was able to then because Jasper was stronger. We were

0:38:26.040 --> 0:38:28.000
<v Speaker 1>we weren't able to hold him, but we were able

0:38:28.080 --> 0:38:31.200
<v Speaker 1>to to do the care. So the changes. He wash

0:38:31.280 --> 0:38:36.360
<v Speaker 1>his face, and.

0:38:32.120 --> 0:38:37.080
<v Speaker 2>He and cradle his heat and his little his tiny

0:38:37.120 --> 0:38:37.840
<v Speaker 2>little toes.

0:38:38.840 --> 0:38:43.120
<v Speaker 1>Yeah, and you know, there were times when it was

0:38:43.160 --> 0:38:47.480
<v Speaker 1>amazing because we felt like he really knew us. And

0:38:47.960 --> 0:38:50.759
<v Speaker 1>there were times when things were going badly or you know,

0:38:50.840 --> 0:38:52.880
<v Speaker 1>the doctors be worried because all his numbers would have

0:38:52.920 --> 0:38:55.360
<v Speaker 1>crashed and they were fiddling around trying to, you know,

0:38:55.560 --> 0:38:59.040
<v Speaker 1>I don't know, change things in his in his treatment,

0:38:59.719 --> 0:39:02.200
<v Speaker 1>and everyone be worried because the numbers were wrong. And

0:39:02.239 --> 0:39:05.600
<v Speaker 1>then one day Ash just putting his hand in to

0:39:05.680 --> 0:39:07.960
<v Speaker 1>the humid crib as they were dealing with him, and

0:39:08.160 --> 0:39:12.200
<v Speaker 1>just just stroked his head. And as he stroked his head,

0:39:12.200 --> 0:39:14.560
<v Speaker 1>we all looked at the numbers and saw them all

0:39:14.600 --> 0:39:17.480
<v Speaker 1>even out and his heart rate came back to normal

0:39:17.640 --> 0:39:20.080
<v Speaker 1>and it was like he really you know, that was

0:39:20.120 --> 0:39:27.400
<v Speaker 1>actually helping him. So we used to Yeah, we were

0:39:27.440 --> 0:39:31.000
<v Speaker 1>there and did what we could, even like the first

0:39:31.080 --> 0:39:35.799
<v Speaker 1>hold was within his humidity crib through the windows. The

0:39:35.880 --> 0:39:38.120
<v Speaker 1>nurse said, look, I've just got to change his sheets.

0:39:39.239 --> 0:39:42.640
<v Speaker 1>Just put your hands in and just hold him. So

0:39:42.680 --> 0:39:45.240
<v Speaker 1>I literally was hard on him like this, a little

0:39:45.239 --> 0:39:48.080
<v Speaker 1>bit up just as they were changing his sheets, and

0:39:48.239 --> 0:39:53.720
<v Speaker 1>it was just so wonderful to feel his weight and around.

0:39:54.640 --> 0:39:58.200
<v Speaker 1>Oh he was so he was such a sweet little boy.

0:39:58.239 --> 0:40:00.840
<v Speaker 1>He was so sweet and he had such spirit. You know.

0:40:01.320 --> 0:40:05.200
<v Speaker 1>He opened his eyes two days after Evan died. We

0:40:05.200 --> 0:40:08.680
<v Speaker 1>were in and we were sitting by his crib and

0:40:08.760 --> 0:40:10.600
<v Speaker 1>he had his little face down and then he moved

0:40:10.640 --> 0:40:12.239
<v Speaker 1>his or I think the nurse moved his head, and

0:40:12.280 --> 0:40:18.360
<v Speaker 1>suddenly we saw this big, black, beady eye wide open,

0:40:19.120 --> 0:40:22.640
<v Speaker 1>and both Ash and I went on. I remember as

0:40:22.760 --> 0:40:26.799
<v Speaker 1>saying hello, darling, just and we felt like we could

0:40:26.840 --> 0:40:29.120
<v Speaker 1>connect with him on a whole new level once his

0:40:29.160 --> 0:40:32.000
<v Speaker 1>eyes opened, and then he got to you know, we

0:40:32.040 --> 0:40:35.480
<v Speaker 1>felt like he could even hear our, he could recognize

0:40:35.520 --> 0:40:37.319
<v Speaker 1>our voice, and he'd try and move his head to

0:40:37.360 --> 0:40:39.440
<v Speaker 1>see us, and he'd look at us with any had

0:40:39.440 --> 0:40:43.200
<v Speaker 1>these amazing expressions on his face like he was this

0:40:43.280 --> 0:40:47.400
<v Speaker 1>real little boy that was, you know, trying so hard,

0:40:47.640 --> 0:40:52.399
<v Speaker 1>and and he did really well. He doubled his birth weight,

0:40:53.520 --> 0:40:57.480
<v Speaker 1>doubled his birthway. He was quite you know, comparatively a

0:40:57.520 --> 0:41:00.319
<v Speaker 1>big boy after fifty eight days.

0:41:00.480 --> 0:41:04.160
<v Speaker 2>And then after fifty eight days, he was the one

0:41:04.200 --> 0:41:07.240
<v Speaker 2>who had lung Yeah.

0:41:06.840 --> 0:41:11.000
<v Speaker 1>His lungs. He had a really good few weeks where

0:41:11.000 --> 0:41:14.840
<v Speaker 1>they were able to take him off the ventilator probably

0:41:14.880 --> 0:41:17.719
<v Speaker 1>for a week. And in that time we were allowed

0:41:17.719 --> 0:41:20.000
<v Speaker 1>to take him out of his crib hamidia crib and

0:41:20.000 --> 0:41:23.080
<v Speaker 1>actually hold him, which was just incredible.

0:41:23.360 --> 0:41:24.400
<v Speaker 2>How was that.

0:41:27.280 --> 0:41:32.120
<v Speaker 1>It was? Yeah, it was just it was amazing. And

0:41:33.800 --> 0:41:36.680
<v Speaker 1>when I there was one time, the only time I

0:41:36.719 --> 0:41:39.719
<v Speaker 1>was allowed skin to skin. The other times he was

0:41:39.760 --> 0:41:41.799
<v Speaker 1>all wrapped up with blankets and tubes and all the

0:41:41.800 --> 0:41:43.640
<v Speaker 1>rest of it. But one time they said, okay, we'll

0:41:43.680 --> 0:41:46.200
<v Speaker 1>do skin to skin where they just place him on

0:41:46.280 --> 0:41:49.480
<v Speaker 1>my chest like this. Now he was fed through a

0:41:49.520 --> 0:41:52.680
<v Speaker 1>tube into his stomach. He didn't have you know, he

0:41:53.600 --> 0:41:57.120
<v Speaker 1>wasn't actually taking milk and he had it was I

0:41:57.160 --> 0:41:59.560
<v Speaker 1>don't think he was intubated at that stage. But anyway,

0:41:59.560 --> 0:42:03.040
<v Speaker 1>they put him on my chest and I couldn't believe

0:42:03.160 --> 0:42:06.440
<v Speaker 1>it because I put him sort of on my boot,

0:42:06.520 --> 0:42:10.000
<v Speaker 1>but I wasn't meaning to like feed him, and he

0:42:10.040 --> 0:42:15.040
<v Speaker 1>actually latched on to my nipple and he took one

0:42:15.160 --> 0:42:19.239
<v Speaker 1>little suck and then he fell fast asleep, and it

0:42:19.360 --> 0:42:22.759
<v Speaker 1>was just such an amazing moment to think, oh, that

0:42:22.840 --> 0:42:27.640
<v Speaker 1>he even knows to do that and and that. Yeah,

0:42:27.719 --> 0:42:32.560
<v Speaker 1>so that we had some really special special times with

0:42:32.680 --> 0:42:36.560
<v Speaker 1>Jasper and even you know, when he hit one kilo

0:42:36.640 --> 0:42:39.680
<v Speaker 1>in weight and Ash bought a kilo of chocolate and

0:42:39.719 --> 0:42:41.279
<v Speaker 1>brought it in and shared it around with all the

0:42:41.360 --> 0:42:44.439
<v Speaker 1>nurses to celebrate, and we had you know, the West

0:42:44.680 --> 0:42:47.759
<v Speaker 1>Ash was a big West Coast Eagles AFL supporter, and

0:42:47.800 --> 0:42:50.400
<v Speaker 1>it was the it was the Grand Final and it

0:42:50.440 --> 0:42:52.880
<v Speaker 1>was the Eagles versus the Swans that year and the

0:42:53.000 --> 0:42:55.359
<v Speaker 1>Eagles won and Ash came into the hospital with all

0:42:55.400 --> 0:43:00.040
<v Speaker 1>his Eagles dcorated, decorated the Humidi crew and all the

0:43:00.160 --> 0:43:04.319
<v Speaker 1>nurses were joking about this being absolutely terrible. So we

0:43:04.360 --> 0:43:08.200
<v Speaker 1>had this, you know, we had some really you know,

0:43:08.239 --> 0:43:13.120
<v Speaker 1>some good times within the but then just started to

0:43:13.120 --> 0:43:17.680
<v Speaker 1>struggle with his lungs, and there were many difficult There

0:43:17.680 --> 0:43:19.719
<v Speaker 1>were many times when we were called back to the

0:43:19.719 --> 0:43:22.840
<v Speaker 1>hospital in the middle of the night in a you know,

0:43:22.840 --> 0:43:26.200
<v Speaker 1>we would get that awful phone call where the phone

0:43:26.200 --> 0:43:27.640
<v Speaker 1>would ring in the middle of the night and they

0:43:27.640 --> 0:43:34.600
<v Speaker 1>would just say come quickly, and we would literally we

0:43:34.640 --> 0:43:36.840
<v Speaker 1>wouldn't even say a word to each other. We would

0:43:36.880 --> 0:43:39.759
<v Speaker 1>be from a being fast asleep to being in the

0:43:39.840 --> 0:43:44.279
<v Speaker 1>carnt within a minute. We just and then getting to

0:43:44.320 --> 0:43:46.680
<v Speaker 1>the hospital and rushing in and trying to you know,

0:43:46.760 --> 0:43:49.680
<v Speaker 1>waiting for the lift and rushing in and not knowing

0:43:49.800 --> 0:43:51.799
<v Speaker 1>what we were going to be met with when we

0:43:51.840 --> 0:43:53.960
<v Speaker 1>got there. And there were so many times when he

0:43:54.520 --> 0:43:58.320
<v Speaker 1>would get in and they'd say, oh, we we're not sure.

0:43:58.680 --> 0:44:03.160
<v Speaker 1>We think this this be it, and then Jasper would

0:44:03.880 --> 0:44:06.720
<v Speaker 1>rarely saying that I'm not going you know, I'm still here.

0:44:07.680 --> 0:44:10.560
<v Speaker 2>And along the way, the narrative that you and Ash

0:44:10.680 --> 0:44:14.000
<v Speaker 2>had very much with each other was one day, this

0:44:14.040 --> 0:44:16.799
<v Speaker 2>will be a great story to tell our boy, the

0:44:16.800 --> 0:44:19.040
<v Speaker 2>boy who lived what he did.

0:44:19.800 --> 0:44:22.200
<v Speaker 1>Yeah, we thought, we'll always tell him about the time that,

0:44:22.360 --> 0:44:24.040
<v Speaker 1>you know, the times we had to rush in and

0:44:24.600 --> 0:44:26.919
<v Speaker 1>and we thought that that he was going to die.

0:44:26.960 --> 0:44:30.920
<v Speaker 1>And then he he didn't. He proved everybody wrong and

0:44:30.960 --> 0:44:33.960
<v Speaker 1>there he was. And so this happened probably three or

0:44:34.000 --> 0:44:37.719
<v Speaker 1>four times. And then when he was fifty eight days

0:44:37.719 --> 0:44:40.080
<v Speaker 1>old and was always his lungs. It was always his lungs,

0:44:40.080 --> 0:44:44.919
<v Speaker 1>and he suffered from chronic lung disease, again a very

0:44:44.960 --> 0:44:52.400
<v Speaker 1>common common thing for premature babies, and the ventilators weren't able,

0:44:53.480 --> 0:44:56.880
<v Speaker 1>were actually damaging his lungs. They weren't able to support

0:44:56.960 --> 0:44:57.399
<v Speaker 1>him and.

0:44:57.560 --> 0:45:02.960
<v Speaker 2>Because they were too strong, is the strivees.

0:45:03.680 --> 0:45:07.000
<v Speaker 1>Yeah, So when he was fifty eight days old, we've

0:45:07.000 --> 0:45:08.960
<v Speaker 1>received in our court another call. It was early in

0:45:09.000 --> 0:45:17.279
<v Speaker 1>the morning, and we went rushing in and and I

0:45:17.360 --> 0:45:21.160
<v Speaker 1>remember going in and the team was so amazing at

0:45:21.160 --> 0:45:25.440
<v Speaker 1>the hospital. But I do remember seeing one of the

0:45:25.480 --> 0:45:30.719
<v Speaker 1>doctors working on Jasper and I saw a tear roll

0:45:30.800 --> 0:45:38.600
<v Speaker 1>down her face and and I thought, this is anyway again.

0:45:38.640 --> 0:45:42.920
<v Speaker 1>I just thought, you know, he's going to right up

0:45:42.960 --> 0:45:45.399
<v Speaker 1>until the last moment, I held out hope until there

0:45:45.440 --> 0:45:48.719
<v Speaker 1>wasnte And in the end they said there's nothing more

0:45:48.719 --> 0:45:51.319
<v Speaker 1>we can do. You know, would you like us to

0:45:51.520 --> 0:45:56.239
<v Speaker 1>you know, would you like to hold him? And the

0:45:56.280 --> 0:45:58.560
<v Speaker 1>most amazing thing was that when we got into the

0:45:58.600 --> 0:46:02.520
<v Speaker 1>hospital that day he was knocked out. He was fast

0:46:02.520 --> 0:46:05.480
<v Speaker 1>asleep because they'd knocked him out with something, because they

0:46:05.480 --> 0:46:07.120
<v Speaker 1>were having to do things to him that were going

0:46:07.160 --> 0:46:09.879
<v Speaker 1>to hurt, and so they you know, they knocked him out.

0:46:09.920 --> 0:46:13.400
<v Speaker 1>And I was so as I was holding him, and

0:46:13.440 --> 0:46:16.160
<v Speaker 1>this is like such a busy like afterwards, I had

0:46:16.160 --> 0:46:18.360
<v Speaker 1>to ask Ash, is this really? Did this really happen?

0:46:18.360 --> 0:46:20.840
<v Speaker 1>Why am I making this up? But this really happened.

0:46:21.360 --> 0:46:25.719
<v Speaker 1>I was holding him and I was thinking, oh, I

0:46:25.719 --> 0:46:28.319
<v Speaker 1>think I was even saying, I'm sorry. I wasn't here

0:46:28.360 --> 0:46:30.560
<v Speaker 1>for you. I wasn't here for you. And I was

0:46:30.600 --> 0:46:35.000
<v Speaker 1>thinking to myself, the poor little boy. The last people

0:46:35.120 --> 0:46:38.640
<v Speaker 1>he saw with the staff, you know, the doctors and

0:46:38.800 --> 0:46:41.799
<v Speaker 1>nurses obviously and wonderful people, but it should have been

0:46:41.800 --> 0:46:44.000
<v Speaker 1>his mum, and he would have been scared. And I

0:46:44.040 --> 0:46:47.400
<v Speaker 1>wasn't here for him. And I was holding him and thinking,

0:46:48.120 --> 0:46:51.439
<v Speaker 1>I wish that you know, I'm so sorry. And as

0:46:51.440 --> 0:46:55.080
<v Speaker 1>I was holding him, I looked down. His eyes were closed.

0:46:55.080 --> 0:46:59.080
<v Speaker 1>I looked down and he opened his eyes and he

0:46:59.160 --> 0:47:03.200
<v Speaker 1>looked in my eyes and he closed his eyes. And

0:47:03.280 --> 0:47:05.920
<v Speaker 1>at that moment, Ash was looking away, looking at his

0:47:06.080 --> 0:47:07.920
<v Speaker 1>at the machines that he was still hooked up to

0:47:08.080 --> 0:47:11.960
<v Speaker 1>look at his numbers, and I said, Ash, he's opened

0:47:12.000 --> 0:47:14.480
<v Speaker 1>his eyes. He looked at me. He looked at me,

0:47:14.560 --> 0:47:17.200
<v Speaker 1>and then I actually even questioned myself because Ash looked

0:47:17.200 --> 0:47:18.799
<v Speaker 1>back and there he was with his eyes closed again,

0:47:18.840 --> 0:47:22.000
<v Speaker 1>and I thought, maybe I'm making this up. And he

0:47:22.120 --> 0:47:25.919
<v Speaker 1>did it again. He opened his eyes and a saw

0:47:26.800 --> 0:47:28.840
<v Speaker 1>and then he closed his eyes and he died.

0:47:31.200 --> 0:47:40.120
<v Speaker 2>A side. So you've had you're three little ones taken

0:47:40.200 --> 0:47:46.440
<v Speaker 2>from you. How do you? How do you go home

0:47:46.920 --> 0:47:50.880
<v Speaker 2>from there? How is going home? What is home?

0:47:51.520 --> 0:47:53.840
<v Speaker 1>We spent the day and the night at the hospital,

0:47:56.560 --> 0:47:58.560
<v Speaker 1>and we spent the night in a room which is

0:47:58.960 --> 0:48:03.360
<v Speaker 1>a room which I was really looking forward. It's a

0:48:03.440 --> 0:48:06.080
<v Speaker 1>room where you stay with your baby or your babies

0:48:06.960 --> 0:48:10.040
<v Speaker 1>the night before you go home, so you can have

0:48:10.080 --> 0:48:12.480
<v Speaker 1>a night to practice being on your own with your baby,

0:48:12.480 --> 0:48:14.400
<v Speaker 1>because after your baby's been in the hospital for a

0:48:14.400 --> 0:48:16.600
<v Speaker 1>long time, it's scary to take your baby home, you know,

0:48:16.680 --> 0:48:19.560
<v Speaker 1>from suddenly going from other people caring for your sick

0:48:19.600 --> 0:48:22.920
<v Speaker 1>baby to you caring for your very fragile baby. Anyway,

0:48:23.040 --> 0:48:26.040
<v Speaker 1>I remember this room and I thought to myself, I

0:48:26.080 --> 0:48:28.560
<v Speaker 1>wanted to spend Christmas in that room because by this stage.

0:48:28.560 --> 0:48:31.440
<v Speaker 1>It was October sixteenth of October that Jasper died, and

0:48:31.480 --> 0:48:33.120
<v Speaker 1>I worked out his due date was on the tenth

0:48:33.160 --> 0:48:35.440
<v Speaker 1>of December, and I was thinking, oh, I wonder if

0:48:35.440 --> 0:48:37.480
<v Speaker 1>we can spend Christmas in the room before we come out,

0:48:37.640 --> 0:48:39.279
<v Speaker 1>or you know, it's Christmas Eve, and kept bring him

0:48:39.280 --> 0:48:42.759
<v Speaker 1>home for Christmas. Anyway, they let us stay in that

0:48:42.880 --> 0:48:45.880
<v Speaker 1>room with Jasper that night, and that was actually a

0:48:45.960 --> 0:48:49.200
<v Speaker 1>very very beautiful time that we had with him. But

0:48:49.360 --> 0:48:54.279
<v Speaker 1>going home after that was very hard because Ash had

0:48:54.280 --> 0:48:57.239
<v Speaker 1>to go back to work. He was already back at work.

0:48:57.239 --> 0:48:59.920
<v Speaker 1>Actually he went back to work after Evan and Jasper

0:49:00.080 --> 0:49:03.200
<v Speaker 1>were born, and he used to come into the hospital

0:49:03.200 --> 0:49:05.480
<v Speaker 1>before work and after work, and then I would spend

0:49:05.520 --> 0:49:11.560
<v Speaker 1>all day at the hospital. And so going home, I

0:49:11.640 --> 0:49:15.160
<v Speaker 1>mean once, you know, I was busy organizing Jasper's funeral.

0:49:15.160 --> 0:49:18.440
<v Speaker 1>We'd had a funeral for Evan and Henry together, and

0:49:18.480 --> 0:49:21.440
<v Speaker 1>then we'd had a funeral for Jasper. So I was

0:49:21.480 --> 0:49:23.959
<v Speaker 1>busy organizing Justper's funeral. And so that was good because

0:49:24.000 --> 0:49:25.560
<v Speaker 1>I had a lot to do and I wanted to

0:49:25.680 --> 0:49:31.000
<v Speaker 1>give him a beautiful funeral. And then and then it

0:49:31.040 --> 0:49:34.040
<v Speaker 1>was as the weeks passed and I was on maternity

0:49:34.120 --> 0:49:38.799
<v Speaker 1>leave and sitting at home in this house that was

0:49:38.880 --> 0:49:45.680
<v Speaker 1>like definitely quiet. And I remember we still had the buggy,

0:49:45.960 --> 0:49:49.000
<v Speaker 1>the triplet buggy, sitting in the hallway, and we had

0:49:49.000 --> 0:49:52.200
<v Speaker 1>a cot that we'd already set up in the spare room.

0:49:52.200 --> 0:49:54.640
<v Speaker 1>We had two bedrooms. The spare room was going to

0:49:54.640 --> 0:49:56.759
<v Speaker 1>be the baby's room, and we'd heard that you could

0:49:56.800 --> 0:49:59.680
<v Speaker 1>put triplets in the same cot for the first few months,

0:50:00.080 --> 0:50:01.880
<v Speaker 1>set up a cop. So there was a cot and

0:50:01.920 --> 0:50:04.920
<v Speaker 1>there was a buggy. And I used to do something

0:50:04.920 --> 0:50:10.200
<v Speaker 1>which was really like weird sometimes when I was at

0:50:10.239 --> 0:50:14.520
<v Speaker 1>home and it was quiet, because it was just I

0:50:14.600 --> 0:50:19.239
<v Speaker 1>used to actually pretend makes me sound really odd. I

0:50:19.320 --> 0:50:21.880
<v Speaker 1>used to pretend sometimes I'd sit down on the sofa

0:50:21.960 --> 0:50:26.400
<v Speaker 1>with a cup of tea and I'd listen to the silence,

0:50:27.719 --> 0:50:33.719
<v Speaker 1>and I actually would pretend that Henry, Jasper and Evan

0:50:33.880 --> 0:50:38.359
<v Speaker 1>had just fallen asleep in the cot next door, and

0:50:38.400 --> 0:50:42.120
<v Speaker 1>I was finally going to get just a few moments

0:50:42.120 --> 0:50:43.960
<v Speaker 1>of peace before they woke up.

0:50:44.400 --> 0:50:46.919
<v Speaker 2>And that's why it was so quiet, And.

0:50:46.840 --> 0:50:49.000
<v Speaker 1>That's why it was so quiet, an oh, a bit

0:50:49.000 --> 0:50:52.640
<v Speaker 1>of silence. It was such a sort of mad thing.

0:50:53.560 --> 0:50:58.320
<v Speaker 1>And then and then I would realize. Obviously I knew

0:50:58.360 --> 0:51:00.840
<v Speaker 1>I was just pretending. And then I'd kind of realize,

0:51:00.880 --> 0:51:03.560
<v Speaker 1>you know, I think that I was never going to

0:51:03.680 --> 0:51:08.560
<v Speaker 1>know the exhaustion of looking after three babies. I was

0:51:08.640 --> 0:51:11.840
<v Speaker 1>never going to hear three babies screaming for a feed.

0:51:12.520 --> 0:51:15.319
<v Speaker 1>I was never going to know the challenges of I

0:51:15.360 --> 0:51:17.160
<v Speaker 1>was never going to take them for a walk around

0:51:17.200 --> 0:51:25.280
<v Speaker 1>the park. And and and I knew that I couldn't

0:51:25.719 --> 0:51:30.520
<v Speaker 1>keep pretending, and that I couldn't change what had happened.

0:51:31.640 --> 0:51:34.840
<v Speaker 1>There was nothing in my power to change what had happened,

0:51:35.239 --> 0:51:38.360
<v Speaker 1>but there was everything in my power to decide what

0:51:38.480 --> 0:51:41.400
<v Speaker 1>to do next. And that was a turning point.

0:51:42.320 --> 0:51:45.359
<v Speaker 2>And how did that turning point come? Well?

0:51:45.440 --> 0:51:48.120
<v Speaker 1>Ash, I didn't know how, but Ash and I would

0:51:48.120 --> 0:51:50.160
<v Speaker 1>talk about them all the time we talked about Ash

0:51:50.239 --> 0:51:53.600
<v Speaker 1>was amazing. He held every day we spoke and every

0:51:53.680 --> 0:52:00.840
<v Speaker 1>day forever, Ash, the last thing he would say to

0:52:00.880 --> 0:52:04.279
<v Speaker 1>me at night was Henry Jasper and ever he would

0:52:04.520 --> 0:52:08.120
<v Speaker 1>always the last the last thing he'd say to me

0:52:08.200 --> 0:52:12.360
<v Speaker 1>before we went to sleep was he would speak their names.

0:52:13.000 --> 0:52:16.319
<v Speaker 1>And so he was amazing, and he helped support me.

0:52:16.360 --> 0:52:20.720
<v Speaker 1>Obviously he was grieving, but he was an incredible support

0:52:20.760 --> 0:52:25.719
<v Speaker 1>for me, and we were always talked about the fact

0:52:25.760 --> 0:52:31.080
<v Speaker 1>that we were still Henry, Jasper and Evans parents. They

0:52:31.120 --> 0:52:34.200
<v Speaker 1>had gone, but that didn't change the fact that we

0:52:34.200 --> 0:52:36.279
<v Speaker 1>were here and we were their parents, and we would

0:52:36.320 --> 0:52:41.000
<v Speaker 1>always be their parents. And so I felt I had

0:52:41.000 --> 0:52:44.319
<v Speaker 1>a job to do to ensure their lives mattered, and

0:52:44.400 --> 0:52:47.800
<v Speaker 1>that's I wanted to find a way to make their lives,

0:52:48.239 --> 0:52:54.240
<v Speaker 1>to bring something good from them. And Ash one day said,

0:52:55.400 --> 0:52:59.239
<v Speaker 1>I've had an idea. What about let's run a half

0:52:59.280 --> 0:53:01.839
<v Speaker 1>marathon and let's raise a bit of money for the

0:53:01.840 --> 0:53:04.520
<v Speaker 1>hospital in memory of Henry, Jesper and Evan.

0:53:04.560 --> 0:53:07.680
<v Speaker 3>Because he was a runner. Ash was, but you wouldn't, well,

0:53:07.800 --> 0:53:09.879
<v Speaker 3>not really. I'd run a little bit with Ash. We've

0:53:09.920 --> 0:53:13.200
<v Speaker 3>done a couple of little events together, but I wasn't.

0:53:13.400 --> 0:53:16.719
<v Speaker 3>I certainly wasn't a half marathon runner. And and Ash

0:53:16.800 --> 0:53:18.279
<v Speaker 3>was a good runner, but he hadn't done a half

0:53:18.280 --> 0:53:18.879
<v Speaker 3>marathon either.

0:53:18.960 --> 0:53:20.160
<v Speaker 1>But he liked to run. He used to run at

0:53:20.239 --> 0:53:23.000
<v Speaker 1>lunch time at work and stuff. And he said, look,

0:53:23.000 --> 0:53:25.239
<v Speaker 1>come on, there's a half marathon in a few months time.

0:53:25.280 --> 0:53:31.360
<v Speaker 1>Let's do it. And then I found out that the

0:53:31.400 --> 0:53:34.560
<v Speaker 1>hospital I'd realized, we had realized when our boys were

0:53:34.600 --> 0:53:36.680
<v Speaker 1>in hospital that a lot of the equipment that was

0:53:36.719 --> 0:53:40.200
<v Speaker 1>helping our boys was donated equipment. And we learned that

0:53:40.239 --> 0:53:43.800
<v Speaker 1>the hospital relies on seventy percent of its equipment is

0:53:44.280 --> 0:53:48.759
<v Speaker 1>from donations. And this was something I had had didn't

0:53:48.800 --> 0:53:51.840
<v Speaker 1>have any idea about before, And so I knew also

0:53:51.960 --> 0:53:54.680
<v Speaker 1>that the hospital was in need of more equipment. And

0:53:54.719 --> 0:53:58.040
<v Speaker 1>also I'd remembered the shortage of if he made a

0:53:58.080 --> 0:54:01.560
<v Speaker 1>cribs yes in the before the and so I thought,

0:54:02.680 --> 0:54:08.000
<v Speaker 1>great idea. A very basic humidity crip was twenty thousand

0:54:08.040 --> 0:54:10.399
<v Speaker 1>dollars and they needed one. So I thought, well, that's great,

0:54:10.440 --> 0:54:13.160
<v Speaker 1>let's run the half marathon. Let's raise twenty thousand dollars.

0:54:12.800 --> 0:54:16.000
<v Speaker 1>Let's do this in memory of Henry just whenever, And

0:54:16.480 --> 0:54:18.560
<v Speaker 1>I thought, well, I need people to help me. I'm

0:54:18.560 --> 0:54:22.360
<v Speaker 1>not I can't insult my own. I asked all my friends,

0:54:22.520 --> 0:54:25.719
<v Speaker 1>said please, can you come and run with us? And

0:54:25.760 --> 0:54:27.560
<v Speaker 1>most of them had never run before, and they all

0:54:27.600 --> 0:54:30.560
<v Speaker 1>said yes, and even though none of them what liked

0:54:30.600 --> 0:54:34.040
<v Speaker 1>running or wanted to run. And then and then I

0:54:34.719 --> 0:54:37.000
<v Speaker 1>made a little flyer and I put it. And at

0:54:37.040 --> 0:54:40.440
<v Speaker 1>this stage I remember ash getting a little worried because

0:54:40.760 --> 0:54:45.799
<v Speaker 1>I had this new sense of purpose and he wasn't

0:54:45.800 --> 0:54:47.440
<v Speaker 1>worried about that, but he was worried I was going

0:54:47.440 --> 0:54:51.360
<v Speaker 1>to be disappointed when I told him I'm making a flyer.

0:54:52.120 --> 0:54:54.040
<v Speaker 1>I'm going to print it. I'm going to put it

0:54:54.080 --> 0:54:58.960
<v Speaker 1>in playgrounds and cafes around my around Randwick and where

0:54:58.960 --> 0:55:01.839
<v Speaker 1>we live, and I'm going to ask people to come

0:55:01.840 --> 0:55:04.680
<v Speaker 1>and join. And he was worried that I was going

0:55:04.719 --> 0:55:08.239
<v Speaker 1>to be terribly disappointed because nobody was. This was before

0:55:08.280 --> 0:55:10.200
<v Speaker 1>the days of like social media and stuff. So I

0:55:10.239 --> 0:55:11.920
<v Speaker 1>just literally put my phone number on there, said call

0:55:11.960 --> 0:55:13.480
<v Speaker 1>me if you want to come I run this half

0:55:13.480 --> 0:55:16.040
<v Speaker 1>marathon with me. And he said, so if no one's

0:55:16.080 --> 0:55:18.080
<v Speaker 1>going to no one's going to call. And I'm worried

0:55:18.080 --> 0:55:20.399
<v Speaker 1>that you're gonna you know, you're going to crash. You're

0:55:20.400 --> 0:55:22.120
<v Speaker 1>going to be really upset. And I said, no, I

0:55:22.120 --> 0:55:24.759
<v Speaker 1>promise I won't. I just want to try. And so

0:55:24.840 --> 0:55:27.600
<v Speaker 1>I put these flyers out. And the very first day

0:55:27.600 --> 0:55:31.000
<v Speaker 1>I've put the flyers out, my phone rang and this

0:55:31.040 --> 0:55:33.879
<v Speaker 1>woman called Hailey was on the phone and she said,

0:55:33.920 --> 0:55:37.080
<v Speaker 1>I've just picked up your flyer. She said, ten years ago,

0:55:37.400 --> 0:55:42.600
<v Speaker 1>I had twins that died at their birth prematurely. They

0:55:42.600 --> 0:55:46.000
<v Speaker 1>were called Olivia and Maizie and she said it's their

0:55:46.040 --> 0:55:49.919
<v Speaker 1>tenure anniversary coming up, and I've always wanted to do

0:55:50.040 --> 0:55:53.680
<v Speaker 1>something good in their name, and I never have. And

0:55:53.719 --> 0:55:55.759
<v Speaker 1>I've just picked up your flyer and would you mind

0:55:55.800 --> 0:55:58.680
<v Speaker 1>if I came along and did it for Olivia Amaze?

0:55:58.719 --> 0:56:02.400
<v Speaker 1>And I couldn't believe it. This was just, you know, incredible.

0:56:02.480 --> 0:56:04.600
<v Speaker 1>I'm so sad to hear about Olivia Amaze, but I

0:56:04.640 --> 0:56:07.120
<v Speaker 1>was so happy to hear that she could also do

0:56:07.160 --> 0:56:09.560
<v Speaker 1>it for her babies. And so then other people were

0:56:09.640 --> 0:56:12.200
<v Speaker 1>ringing and saying, oh, I have a child born prematurely.

0:56:13.000 --> 0:56:14.960
<v Speaker 1>I know how lucky I am. I'd love to come

0:56:14.960 --> 0:56:15.680
<v Speaker 1>and help.

0:56:16.560 --> 0:56:20.600
<v Speaker 2>Stay with us. My conversation with Sophie continues after this break.

0:56:22.200 --> 0:56:25.919
<v Speaker 2>So you ended up raising eighty thousand dollars the first year?

0:56:28.160 --> 0:56:32.400
<v Speaker 2>How much of you raised so far? Because I know

0:56:32.520 --> 0:56:34.919
<v Speaker 2>you got you got an OIM is that an Order

0:56:34.960 --> 0:56:36.279
<v Speaker 2>of Australia.

0:56:35.760 --> 0:56:38.600
<v Speaker 1>Or oh Australia into twenty one?

0:56:39.960 --> 0:56:42.880
<v Speaker 2>How much how much of you raised with your for

0:56:42.960 --> 0:56:44.319
<v Speaker 2>premiature It's not me.

0:56:44.640 --> 0:56:47.040
<v Speaker 1>It's running for premature babies. So we called it running

0:56:47.040 --> 0:56:50.960
<v Speaker 1>for Premature Babies. Lots of people came and ran with me.

0:56:51.360 --> 0:56:53.760
<v Speaker 1>And they have now we've been this is now twenty

0:56:53.840 --> 0:56:58.399
<v Speaker 1>years later. We've now raised over twelve million dollars and

0:56:58.680 --> 0:57:04.480
<v Speaker 1>we've provided equipment hospitals all over Australia, every state and territory,

0:57:04.719 --> 0:57:08.720
<v Speaker 1>regional remote hospitals through to hospitals in our major cities

0:57:08.760 --> 0:57:13.239
<v Speaker 1>with big neonatal intensive care units, maternity units in the

0:57:13.280 --> 0:57:19.320
<v Speaker 1>Northern Territory and far far from major hospitals. We've also

0:57:19.400 --> 0:57:24.880
<v Speaker 1>funded neonatal transfer services. We've donated three ambulance a neonatal ambulances,

0:57:25.000 --> 0:57:30.080
<v Speaker 1>some equipment to take onto flights in the Northern Territory

0:57:30.080 --> 0:57:33.040
<v Speaker 1>with care Flight so that they can retrieve babies from

0:57:33.640 --> 0:57:36.560
<v Speaker 1>very remote locations and bring them for neonacal intensive care.

0:57:37.080 --> 0:57:39.920
<v Speaker 1>And it's estimated that over twenty thousand babies have now

0:57:39.960 --> 0:57:42.040
<v Speaker 1>benefited from running for premature babies.

0:57:43.160 --> 0:57:48.200
<v Speaker 2>So it seems that in the running that Ash had suggested,

0:57:49.640 --> 0:57:54.520
<v Speaker 2>and in the finding a purpose outside motivated by but

0:57:54.640 --> 0:58:00.680
<v Speaker 2>outside of your loss, that you gained in lace of

0:58:00.720 --> 0:58:04.800
<v Speaker 2>life yourself, as exemplified by the fact that you then

0:58:04.840 --> 0:58:06.360
<v Speaker 2>became pregnant again.

0:58:07.080 --> 0:58:10.640
<v Speaker 1>Yes, So the first year we ran the first half marathon,

0:58:10.720 --> 0:58:17.520
<v Speaker 1>I loved it and we had shirts printed and I

0:58:17.520 --> 0:58:19.800
<v Speaker 1>put Henry, Jasper Andevan's handprints on the back and I

0:58:19.840 --> 0:58:22.800
<v Speaker 1>told everybody to remember that, you know, they can give

0:58:22.800 --> 0:58:24.880
<v Speaker 1>you a push in the race, and it was just wonderful. Anyway,

0:58:24.880 --> 0:58:26.680
<v Speaker 1>we ran that first race, that was fantastic, and then

0:58:26.720 --> 0:58:28.600
<v Speaker 1>the second year we did it all over again. But

0:58:28.640 --> 0:58:34.080
<v Speaker 1>that then I was pregnant with Owen, so that was yeah,

0:58:34.200 --> 0:58:39.320
<v Speaker 1>we were That was just amazing. Owen he was born

0:58:39.600 --> 0:58:44.480
<v Speaker 1>two years after Jasper died, just under two years later,

0:58:44.760 --> 0:58:52.080
<v Speaker 1>And yeah, Owen brought this inredible joy into our lives.

0:58:52.560 --> 0:58:54.840
<v Speaker 2>How was it leaving the hospital?

0:58:56.760 --> 0:59:03.520
<v Speaker 1>Yeah, oh, it was just incredible. Well, having Owen and

0:59:03.600 --> 0:59:08.080
<v Speaker 1>being allowed to hold my baby whenever I wanted, being

0:59:08.120 --> 0:59:10.680
<v Speaker 1>allowed to feed my baby whenever I want, It was

0:59:10.760 --> 0:59:14.720
<v Speaker 1>just so incredible. And also I'd again a slightly sort

0:59:14.760 --> 0:59:18.720
<v Speaker 1>of you know, maybe unusual thing, but I'd made a

0:59:18.760 --> 0:59:23.120
<v Speaker 1>promise to myself after Jasper died that I did not

0:59:23.320 --> 0:59:29.360
<v Speaker 1>want to hold another baby until I held my own baby.

0:59:29.560 --> 0:59:31.640
<v Speaker 1>So my next baby I was going to hold be

0:59:31.720 --> 0:59:35.160
<v Speaker 1>my own. So I didn't touch another baby for two years.

0:59:35.600 --> 0:59:38.440
<v Speaker 1>I managed to just avoid babies, or if a baby

0:59:38.480 --> 0:59:40.640
<v Speaker 1>was being handed around, i'd just say, oh, I've got

0:59:40.640 --> 0:59:44.120
<v Speaker 1>a colder, I won't thanks. And so holding Owen and

0:59:44.600 --> 0:59:46.480
<v Speaker 1>being allowed to you know, not being told to put

0:59:46.560 --> 0:59:51.080
<v Speaker 1>him back, and and you know, being able to feed.

0:59:51.160 --> 0:59:53.360
<v Speaker 1>It was just incredible. But one and I'd thought about

0:59:53.360 --> 0:59:56.000
<v Speaker 1>that when I was pregnant. I thought about, Gosh, it's

0:59:56.000 --> 0:59:58.160
<v Speaker 1>going to be incredible being allowed to hold my baby.

0:59:58.240 --> 1:00:02.560
<v Speaker 1>But the thing I hadn't thought about was what it

1:00:02.600 --> 1:00:05.280
<v Speaker 1>was going to feel like to walk out of the

1:00:05.320 --> 1:00:11.200
<v Speaker 1>hospital doors with my baby. And it was so my god.

1:00:14.040 --> 1:00:17.400
<v Speaker 1>We I remember the day that we left the hospital,

1:00:18.360 --> 1:00:20.680
<v Speaker 1>you know, we collexed him all up. They said okay, bye,

1:00:21.120 --> 1:00:25.280
<v Speaker 1>and I started walking down the corridor holding him, and

1:00:25.360 --> 1:00:28.200
<v Speaker 1>I just kept thinking, I felt like I was stealing him.

1:00:28.320 --> 1:00:30.680
<v Speaker 1>I felt like I was. I felt like there was

1:00:31.120 --> 1:00:34.680
<v Speaker 1>something and hang on, can you put the baby back?

1:00:36.080 --> 1:00:39.600
<v Speaker 1>And then we got outside and we obviously they got

1:00:39.600 --> 1:00:43.000
<v Speaker 1>the baby's captle in the car and I sat next

1:00:43.040 --> 1:00:45.320
<v Speaker 1>to him in the car, so in the back seat,

1:00:45.360 --> 1:00:50.240
<v Speaker 1>and she was driving, and as we drove out, I

1:00:50.920 --> 1:00:53.200
<v Speaker 1>hadn't even you know, it was just just I literally

1:00:53.240 --> 1:01:00.240
<v Speaker 1>had tears pouring down my face and I was they

1:01:00.240 --> 1:01:04.440
<v Speaker 1>were tears of joy for this beautiful baby that we

1:01:04.440 --> 1:01:08.160
<v Speaker 1>were taking home. And they were also tears of grief

1:01:08.440 --> 1:01:11.520
<v Speaker 1>for the three little boys who never came home, and

1:01:11.600 --> 1:01:15.920
<v Speaker 1>that was all wrapped up into one. But Owen brought

1:01:16.200 --> 1:01:19.480
<v Speaker 1>the greatest joy. He was he was an easy baby,

1:01:19.640 --> 1:01:25.000
<v Speaker 1>is his and I just loved, you know that hearing

1:01:25.080 --> 1:01:31.280
<v Speaker 1>him cry and the night was just amazing. And everyone

1:01:31.320 --> 1:01:34.240
<v Speaker 1>told him I was gonna I was, you know, spoiling

1:01:34.280 --> 1:01:37.400
<v Speaker 1>him because I fed him on demand and I carried

1:01:37.440 --> 1:01:39.320
<v Speaker 1>him around with me. He was always with me, and

1:01:39.400 --> 1:01:41.920
<v Speaker 1>he was in a little sling and I pretty much

1:01:41.960 --> 1:01:44.280
<v Speaker 1>didn't put him down for six months.

1:01:44.400 --> 1:01:46.280
<v Speaker 2>And Ash was equally besotted.

1:01:46.680 --> 1:01:51.600
<v Speaker 1>He was besotted, absolutely besotted. He would, you know, rush

1:01:51.640 --> 1:01:53.640
<v Speaker 1>home from work and say, don't give him a bath

1:01:53.720 --> 1:01:56.200
<v Speaker 1>until I'm home, don't. I'm going to read him the story.

1:01:56.320 --> 1:01:58.320
<v Speaker 1>I'm going to say. He was literally reading him stories

1:01:58.320 --> 1:02:02.560
<v Speaker 1>from day one. And yeah, just so you know, just

1:02:02.560 --> 1:02:04.440
<v Speaker 1>just we were both besotted.

1:02:04.520 --> 1:02:04.720
<v Speaker 2>It was.

1:02:04.760 --> 1:02:07.640
<v Speaker 1>It was a very wonderful time, actually, yes.

1:02:08.640 --> 1:02:13.560
<v Speaker 2>A very sweet spot. And then you had Harvey.

1:02:15.000 --> 1:02:18.160
<v Speaker 1>We had Harvey. Yeah, Harvey two and a half years later,

1:02:19.000 --> 1:02:23.160
<v Speaker 1>but it was Yeah, it was when Owen was six

1:02:23.200 --> 1:02:27.120
<v Speaker 1>months that Ash was diagnosed, actually diagnosed.

1:02:27.120 --> 1:02:34.919
<v Speaker 2>That sweet spot was not allowed to linger longer. So

1:02:35.080 --> 1:02:37.720
<v Speaker 2>ash started having headaches.

1:02:38.280 --> 1:02:42.760
<v Speaker 1>Yeah, he started having bad headaches. He was very fit.

1:02:42.840 --> 1:02:47.240
<v Speaker 1>He'd actually just run the half marathon in a he'd

1:02:47.280 --> 1:02:51.880
<v Speaker 1>done a PB of ninety nine minutes and so and

1:02:51.920 --> 1:02:56.880
<v Speaker 1>he was what thirty five, and he loved the water.

1:02:58.160 --> 1:02:59.520
<v Speaker 1>He was a good surfer.

1:02:59.760 --> 1:03:00.479
<v Speaker 2>He is fit.

1:03:01.080 --> 1:03:04.320
<v Speaker 1>He was, Yeah, he was. He was a fit and

1:03:04.360 --> 1:03:09.720
<v Speaker 1>healthy young man. And he's just started having headaches and

1:03:09.720 --> 1:03:12.760
<v Speaker 1>and eventually, you know, he got checked out and he

1:03:12.880 --> 1:03:18.720
<v Speaker 1>was diagnosed with a seven centimeter grade four GBM brand

1:03:18.840 --> 1:03:21.800
<v Speaker 1>humor when he was six months old.

1:03:23.080 --> 1:03:27.680
<v Speaker 2>How did you feel? Because you don't strike me as

1:03:27.720 --> 1:03:33.000
<v Speaker 2>a why me person? But how many things happened to

1:03:33.200 --> 1:03:37.120
<v Speaker 2>you before you say why me? Or whatever?

1:03:37.600 --> 1:03:44.480
<v Speaker 1>Like, I personally find why me very unhelpful. I don't

1:03:45.000 --> 1:03:48.160
<v Speaker 1>think that God or the universe is pointing at me

1:03:48.240 --> 1:03:51.960
<v Speaker 1>and saying, here, you know you there's a reason for this.

1:03:53.440 --> 1:03:57.960
<v Speaker 1>I think, you know, adversity as part and part of

1:03:58.000 --> 1:04:00.320
<v Speaker 1>the parcel of being humor everybody, you know, it's just

1:04:01.080 --> 1:04:04.680
<v Speaker 1>it's just life, and there's nothing you know, there's I

1:04:04.760 --> 1:04:07.560
<v Speaker 1>just don't find why me helpful, And I find you know,

1:04:07.680 --> 1:04:11.960
<v Speaker 1>sometimes sometimes people have said to me, I always find

1:04:11.960 --> 1:04:16.800
<v Speaker 1>this quite strange, but I have had people say to me, gosh,

1:04:17.280 --> 1:04:19.760
<v Speaker 1>you must have done something really bad in a past

1:04:19.800 --> 1:04:23.320
<v Speaker 1>life for this, for all these bad things to happen,

1:04:23.360 --> 1:04:26.000
<v Speaker 1>And I'm just like, not helpful. I don't find that

1:04:26.080 --> 1:04:28.800
<v Speaker 1>helpful at all to think that I've somehow deserve it.

1:04:29.360 --> 1:04:31.440
<v Speaker 1>I don't think that I've done something to deserve it.

1:04:31.520 --> 1:04:33.880
<v Speaker 1>But I also don't think that, you know, it's.

1:04:33.800 --> 1:04:39.000
<v Speaker 2>Just it is what it is. And and Ash was

1:04:39.000 --> 1:04:42.080
<v Speaker 2>of a similar resolve because he went he was in

1:04:42.120 --> 1:04:46.240
<v Speaker 2>fact operated on by doctor Charlie Tao and it was

1:04:46.320 --> 1:04:55.840
<v Speaker 2>successfully removed the tumor, and Ash was like, we've got this. Yeah,

1:04:55.920 --> 1:04:59.440
<v Speaker 2>even though he was initially given one one year to leave.

1:04:59.600 --> 1:05:03.640
<v Speaker 1>That's right, yeah, he was. He was given after the

1:05:03.680 --> 1:05:06.960
<v Speaker 1>operation which was successful, but when we discovered what kind

1:05:07.000 --> 1:05:11.480
<v Speaker 1>of cancer it was, we were told that with chemo

1:05:11.600 --> 1:05:19.240
<v Speaker 1>and radiotherapy, we were looking at one year. And he

1:05:19.360 --> 1:05:24.680
<v Speaker 1>was really he helped me actually to towards you know,

1:05:24.920 --> 1:05:27.160
<v Speaker 1>he was the one that kind of drove it when

1:05:27.160 --> 1:05:29.280
<v Speaker 1>he was first diagnosed. He was so lovely when he

1:05:29.320 --> 1:05:32.880
<v Speaker 1>was first diagnosed. When we got walked out of the

1:05:32.920 --> 1:05:36.960
<v Speaker 1>doctor's office, the first thing he said to me was, so,

1:05:37.640 --> 1:05:40.680
<v Speaker 1>I'm so sorry that you're having that I'm putting you

1:05:40.760 --> 1:05:44.000
<v Speaker 1>through this. So he immediately thought of me, which is

1:05:44.080 --> 1:05:46.480
<v Speaker 1>just incredible seeing as it was him that was losing

1:05:46.480 --> 1:05:51.960
<v Speaker 1>his life. But he said, I never want to hear that,

1:05:51.760 --> 1:05:56.560
<v Speaker 1>and I'm never gonna to even think about that. We are,

1:05:57.800 --> 1:06:00.800
<v Speaker 1>he said, I'm here, I'm going to I'm going to live.

1:06:01.560 --> 1:06:06.640
<v Speaker 1>And I'm so glad that he did say to unt

1:06:06.680 --> 1:06:09.480
<v Speaker 1>to be let's, you know, let's focus on living. Let's

1:06:09.520 --> 1:06:12.680
<v Speaker 1>focus on today rather than worrying about tomorrow. And I'm

1:06:12.720 --> 1:06:14.960
<v Speaker 1>so glad we did because instead of one year, we

1:06:15.040 --> 1:06:19.960
<v Speaker 1>got seven years, and we got Harvey and and they

1:06:20.000 --> 1:06:28.760
<v Speaker 1>were so you know, even Ash's treatment was not he

1:06:29.480 --> 1:06:31.800
<v Speaker 1>tolerated it fine. He had a whole year off work

1:06:32.160 --> 1:06:34.560
<v Speaker 1>and in that year we had so much fun together

1:06:34.600 --> 1:06:36.520
<v Speaker 1>with Owen as a six month old. You know, you

1:06:36.520 --> 1:06:39.480
<v Speaker 1>can't sit around feeling sorry for yourself when you've got

1:06:39.480 --> 1:06:40.880
<v Speaker 1>a six year old, a six month of the whole

1:06:40.920 --> 1:06:45.240
<v Speaker 1>crawling around and causing havoc. And we just we were

1:06:45.480 --> 1:06:48.080
<v Speaker 1>like a little unit and we got on with stuff

1:06:48.120 --> 1:06:51.920
<v Speaker 1>and we had fun and we focused on on on

1:06:52.400 --> 1:06:55.800
<v Speaker 1>living and Ash felt well again. In fact, sometimes he'd

1:06:55.800 --> 1:06:57.560
<v Speaker 1>say to me, oh, maybe that I'm sure, Like I

1:06:57.560 --> 1:06:59.480
<v Speaker 1>feel like a real fraud, Like have I really had

1:06:59.520 --> 1:07:03.320
<v Speaker 1>brain cans? I'm fine. And he was lucky that, you know.

1:07:03.440 --> 1:07:07.640
<v Speaker 1>I mean, Charlie did an amazing job with his operation

1:07:07.800 --> 1:07:13.080
<v Speaker 1>and we had five years Harvey was born. When Harvey

1:07:13.160 --> 1:07:17.600
<v Speaker 1>was born, we had to have IVF for Harvey and

1:07:17.960 --> 1:07:20.920
<v Speaker 1>because of Ash's treatment, and we wanted to get straight

1:07:20.960 --> 1:07:25.480
<v Speaker 1>on and get cracking with IVF because even though Ash

1:07:25.560 --> 1:07:27.280
<v Speaker 1>said he was going to live, at the back of

1:07:27.320 --> 1:07:31.120
<v Speaker 1>my mind, I knew he had a diagnosis of a

1:07:31.160 --> 1:07:34.080
<v Speaker 1>prognosis of a year and I wanted him to be

1:07:34.160 --> 1:07:37.320
<v Speaker 1>around when his child was born. But it took a while,

1:07:37.360 --> 1:07:39.960
<v Speaker 1>and it took two years. Two years later, Harvey was born,

1:07:41.240 --> 1:07:45.040
<v Speaker 1>and Ash was in remission, well as much as remission

1:07:45.040 --> 1:07:46.640
<v Speaker 1>you can be in with that kind of cancer, but

1:07:46.680 --> 1:07:51.080
<v Speaker 1>he was well and having six monthly scans, and Harvey

1:07:51.200 --> 1:07:55.160
<v Speaker 1>was just, oh my goodness, Harvey was such just it

1:07:55.200 --> 1:07:58.280
<v Speaker 1>was so wonderful, you know. He was a big, healthy,

1:07:58.440 --> 1:08:04.240
<v Speaker 1>full term bouncing boy. And Owen was a doting big brother.

1:08:04.560 --> 1:08:09.440
<v Speaker 1>And the four of us, yeah, just lived life.

1:08:09.680 --> 1:08:15.200
<v Speaker 2>When you when it became apparent that the tumors had

1:08:15.200 --> 1:08:18.360
<v Speaker 2>come back for the I think the third time they

1:08:18.400 --> 1:08:24.400
<v Speaker 2>were inoperable, and you had to tell your boys that

1:08:24.520 --> 1:08:29.800
<v Speaker 2>they were going to lose their dad. How do you

1:08:29.920 --> 1:08:30.320
<v Speaker 2>do that?

1:08:32.800 --> 1:08:39.000
<v Speaker 1>So we never shielded the boys from from ashes decline

1:08:39.160 --> 1:08:47.120
<v Speaker 1>and over the last I guess two years before Ash passed,

1:08:47.960 --> 1:08:51.320
<v Speaker 1>he had recurrent tumors. So he was going into hospital

1:08:51.400 --> 1:08:53.680
<v Speaker 1>having you know, brain surgery. Then he was having to

1:08:53.760 --> 1:08:56.120
<v Speaker 1>have chemo and so. But then he get well again,

1:08:56.439 --> 1:09:00.840
<v Speaker 1>and so the boys and also Owen had been six

1:09:00.880 --> 1:09:03.120
<v Speaker 1>months old when Ash was diagnosed. So Owen grew up

1:09:03.640 --> 1:09:07.599
<v Speaker 1>with brain cancer. Because Ash said right from the beginning,

1:09:07.600 --> 1:09:11.960
<v Speaker 1>he said, I'm bringing Owen to every doctor's appointment because

1:09:12.000 --> 1:09:13.880
<v Speaker 1>I want the doctors to know what I'm what I

1:09:13.920 --> 1:09:15.760
<v Speaker 1>have to live for. I want them to know that

1:09:15.800 --> 1:09:18.040
<v Speaker 1>this is how hot, you know, how much I have

1:09:18.120 --> 1:09:20.280
<v Speaker 1>to live is for this child. And then when Harvey

1:09:20.320 --> 1:09:23.800
<v Speaker 1>was born, we bought Harvey along. So Owen used to

1:09:23.920 --> 1:09:26.120
<v Speaker 1>you know, grew up coming to all of the appointments.

1:09:26.160 --> 1:09:31.200
<v Speaker 1>He grew up around you know, chemo and surgery and

1:09:31.240 --> 1:09:36.439
<v Speaker 1>hospitals and things. But they and they adored their dad.

1:09:36.640 --> 1:09:40.360
<v Speaker 1>He was just such a great and he adored them,

1:09:40.880 --> 1:09:44.880
<v Speaker 1>and so when he wasn't well, they knew that they

1:09:44.880 --> 1:09:46.960
<v Speaker 1>had to be careful with daddy because he's not well.

1:09:47.160 --> 1:09:49.519
<v Speaker 1>But one of the things that they loved, funny things

1:09:49.520 --> 1:09:51.160
<v Speaker 1>he used to do was to throw them on the bed.

1:09:51.200 --> 1:09:53.320
<v Speaker 1>So they wrestle, and one of the fun things they say,

1:09:53.400 --> 1:09:55.280
<v Speaker 1>Daddy throw us on their bed, throw us on the bed.

1:09:55.720 --> 1:09:58.519
<v Speaker 1>And then they'd say, oh, can Daddy throw us on

1:09:58.560 --> 1:09:59.960
<v Speaker 1>the bed? And I have to say no, you know,

1:10:00.040 --> 1:10:01.400
<v Speaker 1>he's not well enough to throw you on the bed.

1:10:01.439 --> 1:10:06.680
<v Speaker 1>So that was the measure, is Daddy well enough to

1:10:06.680 --> 1:10:09.840
<v Speaker 1>throw us on the bed. And then as he got

1:10:09.960 --> 1:10:16.400
<v Speaker 1>really sick, and when I actually told Harvey was only small,

1:10:16.439 --> 1:10:19.800
<v Speaker 1>he was only just he wasn't even five, and Owen

1:10:19.880 --> 1:10:24.599
<v Speaker 1>was seven. And I remember when I told, I thought

1:10:24.880 --> 1:10:27.800
<v Speaker 1>I was telling Owen because he said, when's Daddy going

1:10:27.840 --> 1:10:29.519
<v Speaker 1>to be better? When's he going to be better? When

1:10:29.560 --> 1:10:30.880
<v Speaker 1>could he throw us on the bed? And I said

1:10:30.880 --> 1:10:32.639
<v Speaker 1>to him, I sat him down and I said, darling,

1:10:33.400 --> 1:10:38.240
<v Speaker 1>Daddy's not getting better. He's not going to get better.

1:10:38.720 --> 1:10:41.639
<v Speaker 1>And Owen looked at me and said, well, he's going

1:10:41.640 --> 1:10:45.519
<v Speaker 1>to be sick forever. So I realized that that wasn't

1:10:45.680 --> 1:10:47.840
<v Speaker 1>enough for a child that doesn't They didn't join the

1:10:47.840 --> 1:10:53.080
<v Speaker 1>dots but at that stage, Owen started to realize. And

1:10:53.120 --> 1:10:55.400
<v Speaker 1>I remember a few days later he said to me, Mum,

1:10:56.280 --> 1:11:00.600
<v Speaker 1>would you rather be sick forever or dead? And it

1:11:00.680 --> 1:11:04.360
<v Speaker 1>was the first time he talked about dying. And then

1:11:04.400 --> 1:11:07.880
<v Speaker 1>when I I told, by the.

1:11:07.800 --> 1:11:09.160
<v Speaker 2>Way, what's the answer to that?

1:11:10.600 --> 1:11:12.880
<v Speaker 1>Oh, I can't even remember. I think we, you know,

1:11:13.120 --> 1:11:16.960
<v Speaker 1>kind of talked about quality of life. But when I

1:11:17.040 --> 1:11:23.360
<v Speaker 1>finally knew I needed to tell them it was it

1:11:23.400 --> 1:11:28.920
<v Speaker 1>was heartbreaking because Owen he had you know, I told him, Dad,

1:11:28.920 --> 1:11:34.559
<v Speaker 1>He's going to die. And you could see how like

1:11:34.680 --> 1:11:39.920
<v Speaker 1>Owen was. He had a hundred questions, and he was

1:11:40.040 --> 1:11:43.439
<v Speaker 1>quite he sounded quite angry, and he said, well, I'm

1:11:43.479 --> 1:11:45.360
<v Speaker 1>not going to have a dad. And I said, no,

1:11:45.479 --> 1:11:47.680
<v Speaker 1>you always have a dad, Darling, you always have your

1:11:47.720 --> 1:11:49.519
<v Speaker 1>dal Your Dad's always going to be your dad. And

1:11:49.560 --> 1:11:52.679
<v Speaker 1>he said, what, but not a dad I can play with?

1:11:53.760 --> 1:11:56.320
<v Speaker 1>And it was And anyway, Owen then asked a thousand

1:11:56.439 --> 1:12:00.240
<v Speaker 1>questions of and I wasn't really prepared, you know, questions

1:12:00.280 --> 1:12:06.479
<v Speaker 1>about where, you know, can his teacher come to his funeral?

1:12:06.560 --> 1:12:08.160
<v Speaker 1>Am I going to get married again? Is he going

1:12:08.160 --> 1:12:10.880
<v Speaker 1>to get a new dad? Here? All these other questions.

1:12:10.880 --> 1:12:12.240
<v Speaker 1>I was like, whoa.

1:12:12.680 --> 1:12:16.479
<v Speaker 2>And then but yeah, then there was a which I

1:12:16.479 --> 1:12:20.479
<v Speaker 2>think a lot of people, you know, praise be do

1:12:20.600 --> 1:12:23.920
<v Speaker 2>not know what this looks like. But when someone's dying

1:12:23.960 --> 1:12:30.679
<v Speaker 2>of a brain tumor, terrible things happened to them, their

1:12:30.720 --> 1:12:36.040
<v Speaker 2>personality changes. They may be prone to as Ash was,

1:12:37.160 --> 1:12:42.880
<v Speaker 2>violent outbursts and frustration. And at what point did you

1:12:43.000 --> 1:12:52.879
<v Speaker 2>go from hoping that he would stay to being prepared

1:12:52.920 --> 1:12:53.679
<v Speaker 2>to let him go?

1:12:55.720 --> 1:12:59.840
<v Speaker 1>Yeah, that's a that's a really big question, because yeah,

1:13:00.240 --> 1:13:05.840
<v Speaker 1>it was it was brain cancer is horrible and and

1:13:05.880 --> 1:13:08.880
<v Speaker 1>Ash was such a beautiful man, and brain cancer took

1:13:08.960 --> 1:13:14.519
<v Speaker 1>him really before he died. So it was very difficult

1:13:14.600 --> 1:13:20.200
<v Speaker 1>because he the treatment as well affected his brain and

1:13:22.240 --> 1:13:27.479
<v Speaker 1>in the last few months he he became very different

1:13:28.800 --> 1:13:32.800
<v Speaker 1>because his brain wasn't working properly. And and that was

1:13:32.840 --> 1:13:37.040
<v Speaker 1>that was really hard. So there were and it was

1:13:37.080 --> 1:13:42.080
<v Speaker 1>hard trying to hold the family together, you know, because

1:13:42.080 --> 1:13:45.840
<v Speaker 1>I wanted to protect the boys from Ash if he

1:13:45.920 --> 1:13:49.680
<v Speaker 1>wasn't behaving himself in a you know, kind of appropriately.

1:13:50.720 --> 1:13:56.240
<v Speaker 1>But I but also you know, there, Ash wasn't awful.

1:13:56.360 --> 1:13:58.839
<v Speaker 1>It wasn't like he was awful all the time. He

1:13:59.080 --> 1:14:01.800
<v Speaker 1>was so sweet. Even actually the last week of his

1:14:01.880 --> 1:14:04.760
<v Speaker 1>life was. It was very beautiful actually in that strange way.

1:14:05.160 --> 1:14:07.240
<v Speaker 1>And the boys spent a lot of time with him,

1:14:07.280 --> 1:14:11.160
<v Speaker 1>coloring in and reading to him and lying in his bed,

1:14:11.240 --> 1:14:16.920
<v Speaker 1>and that was very peaceful, very peaceful. But yes, when

1:14:17.200 --> 1:14:20.320
<v Speaker 1>when life did get quite difficult, and then I did,

1:14:20.720 --> 1:14:22.960
<v Speaker 1>there were times when I would sort of think, gosh,

1:14:23.040 --> 1:14:26.160
<v Speaker 1>how long is this going to take? But that was

1:14:26.200 --> 1:14:29.920
<v Speaker 1>also it's also hard to admit that, yes, because you.

1:14:29.880 --> 1:14:32.800
<v Speaker 2>Know, but there comes a time if you've loved anybody

1:14:32.840 --> 1:14:37.400
<v Speaker 2>who's gravely ill, there comes a time where you go

1:14:37.479 --> 1:14:41.599
<v Speaker 2>from praying for them to stay to praying for them

1:14:41.640 --> 1:14:42.120
<v Speaker 2>to leave.

1:14:42.720 --> 1:14:45.040
<v Speaker 1>Yeah, definitely for everybody.

1:14:45.080 --> 1:14:48.799
<v Speaker 2>And that's just a part of the reality of loving

1:14:48.880 --> 1:14:51.120
<v Speaker 2>somebody is that you have to love them enough to

1:14:51.240 --> 1:14:51.800
<v Speaker 2>let them go.

1:14:53.560 --> 1:14:55.559
<v Speaker 1>And do you know what when he did, when he

1:14:55.600 --> 1:15:00.400
<v Speaker 1>did die, I had and I said to him before

1:15:00.400 --> 1:15:04.120
<v Speaker 1>he'd you know, one of the probably a few days

1:15:04.120 --> 1:15:06.840
<v Speaker 1>before he died, for the last thing he said, I

1:15:06.880 --> 1:15:08.439
<v Speaker 1>actually took him down to Bondi and we had this

1:15:08.560 --> 1:15:11.360
<v Speaker 1>amazing morning at Bondi and I took him for a

1:15:11.439 --> 1:15:14.400
<v Speaker 1>swim and he seemed to suddenly be a little bit better,

1:15:14.479 --> 1:15:16.320
<v Speaker 1>and we had this wonderful time and then I took

1:15:16.400 --> 1:15:19.679
<v Speaker 1>him home and he was really sick, and he said

1:15:19.720 --> 1:15:22.479
<v Speaker 1>it was the only time we talked about him dying.

1:15:22.600 --> 1:15:27.800
<v Speaker 1>He said, so, I don't know if I can go on.

1:15:28.800 --> 1:15:33.280
<v Speaker 1>And I said to him, that's okay, we'll we'll, We're

1:15:33.320 --> 1:15:36.360
<v Speaker 1>going to be okay. You don't have to stay. And

1:15:36.479 --> 1:15:39.759
<v Speaker 1>I said to him, you have three little boys waiting

1:15:39.800 --> 1:15:40.120
<v Speaker 1>for you.

1:15:41.000 --> 1:15:41.320
<v Speaker 2>Yeah.

1:15:41.360 --> 1:15:44.840
<v Speaker 1>And that actually gave me a lot of comfort, and

1:15:45.000 --> 1:15:47.160
<v Speaker 1>Owen and Harvey a lot of comfort to know that

1:15:47.760 --> 1:15:49.760
<v Speaker 1>Daddy was going to Henry, Jasper and ever.

1:15:51.960 --> 1:15:56.880
<v Speaker 2>Because you have known such grief, but you also have

1:15:57.120 --> 1:16:02.439
<v Speaker 2>such you seem position of a great amount of faith.

1:16:03.920 --> 1:16:06.240
<v Speaker 2>Do you believe that you will see them again?

1:16:06.600 --> 1:16:08.800
<v Speaker 1>Yeah, My faith is sort of complicated. I do, I

1:16:08.800 --> 1:16:14.160
<v Speaker 1>don't have Yeah, I do, I I've I definitely believe

1:16:14.240 --> 1:16:17.479
<v Speaker 1>that we'll all well, we'll see each other again. I

1:16:17.600 --> 1:16:21.320
<v Speaker 1>more believe that they're they're here, you know, they're with us,

1:16:22.000 --> 1:16:26.160
<v Speaker 1>and they're cheering us on, and they're you know in

1:16:26.240 --> 1:16:30.040
<v Speaker 1>every wave that Harvey and Owen catch out in the

1:16:30.200 --> 1:16:33.280
<v Speaker 1>you know, they're both surfers. And I always say to that,

1:16:33.360 --> 1:16:36.040
<v Speaker 1>I'm sure Dad's with you in every wave. And just

1:16:36.080 --> 1:16:38.000
<v Speaker 1>the other day, Harvey was saying he was in really

1:16:38.000 --> 1:16:41.320
<v Speaker 1>big surf at Bondai and he said, Mum, the surf

1:16:41.439 --> 1:16:44.519
<v Speaker 1>was really big, and but you know, I just I

1:16:44.600 --> 1:16:47.000
<v Speaker 1>just felt really I don't know why, but when I

1:16:47.000 --> 1:16:49.040
<v Speaker 1>was out in the surf, it was very big, and

1:16:49.080 --> 1:16:52.240
<v Speaker 1>I felt really calm, and I said, I, reckon, that's dad,

1:16:52.600 --> 1:16:55.120
<v Speaker 1>Dad with you just going come on, you can do this, Harvey.

1:16:56.439 --> 1:17:01.240
<v Speaker 1>So I'm more believe that we you know, that they're

1:17:01.280 --> 1:17:02.160
<v Speaker 1>all around.

1:17:01.840 --> 1:17:04.960
<v Speaker 2>Us, and when we speak of them, we keep them

1:17:05.000 --> 1:17:06.960
<v Speaker 2>alive for sure.

1:17:07.439 --> 1:17:10.639
<v Speaker 1>For sure, And I feel like running for premature Babies

1:17:11.479 --> 1:17:16.080
<v Speaker 1>has given me permission to bring Henry, Jasper and Evan

1:17:17.080 --> 1:17:19.760
<v Speaker 1>along with me through the last twenty years. You know.

1:17:20.000 --> 1:17:26.360
<v Speaker 1>I this year, this year is our twentieth year of

1:17:26.439 --> 1:17:28.400
<v Speaker 1>running for parmat Or Babies, and it's Henry, Jasper and

1:17:28.400 --> 1:17:33.640
<v Speaker 1>Evans twentieth birthday, and we are so excited that like

1:17:33.800 --> 1:17:38.479
<v Speaker 1>I'm still pinching myself that it's the We've done so

1:17:38.520 --> 1:17:41.040
<v Speaker 1>many events over the years, but this year this is

1:17:41.040 --> 1:17:44.400
<v Speaker 1>the TCS Sydney Marathon, which is now World International World

1:17:44.479 --> 1:17:48.840
<v Speaker 1>Marathon Major, so it's like the biggest marathon in the world,

1:17:48.960 --> 1:17:53.880
<v Speaker 1>Sydney Marathon, and running for Premature Babies are the headline

1:17:54.000 --> 1:17:58.400
<v Speaker 1>or is the headline charity of the TCS Sydney Marathon,

1:17:59.000 --> 1:18:03.200
<v Speaker 1>and we have about seven hundred people running in Sydney,

1:18:04.439 --> 1:18:08.960
<v Speaker 1>and coincidentally, the marathon weekend is the twenty ninth and

1:18:09.040 --> 1:18:12.000
<v Speaker 1>thirtieth of August. On the twenty ninth of August they

1:18:12.040 --> 1:18:13.880
<v Speaker 1>hold them and they call it the Mini Marathon. It's

1:18:13.960 --> 1:18:16.439
<v Speaker 1>five kilometer fun run the day before the marathon, and

1:18:16.479 --> 1:18:19.720
<v Speaker 1>the twenty ninth of August happens to be Evans anniversary

1:18:19.720 --> 1:18:24.559
<v Speaker 1>of his passing, and I can think of no greater

1:18:24.680 --> 1:18:30.560
<v Speaker 1>way than to mark his anniversary than to run. In fact,

1:18:30.160 --> 1:18:35.559
<v Speaker 1>I've been, I've got a whole heap of people signing

1:18:35.640 --> 1:18:38.640
<v Speaker 1>up for the Mini Marathon who have had who have

1:18:38.800 --> 1:18:42.519
<v Speaker 1>themselves started their lives in equipment donated by Running for

1:18:42.560 --> 1:18:46.240
<v Speaker 1>Premature Babies. So there's a whole heap of hoids. For sure,

1:18:46.360 --> 1:18:50.920
<v Speaker 1>we have children who would not have survived if it

1:18:50.960 --> 1:18:52.840
<v Speaker 1>wasn't for the equipment that Running for prom Your Babies

1:18:52.840 --> 1:18:56.680
<v Speaker 1>has donated, especially ventilators. We talked before about ventilators not

1:18:56.720 --> 1:19:00.760
<v Speaker 1>being able to support Jasper. The technology of ventilators is

1:19:00.800 --> 1:19:03.519
<v Speaker 1>so incredible these days, but they're very expensive and a

1:19:03.520 --> 1:19:05.559
<v Speaker 1>lot of the time hospitals can't afford them. So we

1:19:05.680 --> 1:19:09.439
<v Speaker 1>have provided state of the art neonate or ventilators that

1:19:10.880 --> 1:19:14.240
<v Speaker 1>mean that a baby like Jasper, babies smaller than Jasper

1:19:15.120 --> 1:19:21.280
<v Speaker 1>are able to survive with these equipment. So we've got

1:19:21.320 --> 1:19:24.880
<v Speaker 1>to children. I've got children coming along to run them

1:19:24.880 --> 1:19:26.720
<v Speaker 1>an the marathon, and then we've got people running in

1:19:26.720 --> 1:19:30.719
<v Speaker 1>the Sydney Marathon whose children started their lives in equipment

1:19:30.720 --> 1:19:32.800
<v Speaker 1>don't need to bear. Running for premature babies, we have

1:19:32.800 --> 1:19:35.880
<v Speaker 1>people who were premature babies themselves. We have people who

1:19:36.640 --> 1:19:39.519
<v Speaker 1>are running in memory of their own babies who've passed away,

1:19:39.560 --> 1:19:44.240
<v Speaker 1>and that is something that I have. It's been a

1:19:44.240 --> 1:19:47.320
<v Speaker 1>great privilege over the years for me to be able

1:19:47.439 --> 1:19:51.800
<v Speaker 1>to support in some way families who are going through

1:19:51.840 --> 1:19:55.000
<v Speaker 1>the terrible tragedy of losing their own children. And because

1:19:55.120 --> 1:20:02.000
<v Speaker 1>just last week, this lovely woman contacted called Katia who

1:20:02.360 --> 1:20:05.680
<v Speaker 1>his little baby Enzo was in the neonatal intensive care

1:20:05.760 --> 1:20:07.800
<v Speaker 1>unit and she had just received he was twenty one

1:20:07.880 --> 1:20:10.799
<v Speaker 1>days old, and she knew that he was using equipment

1:20:10.800 --> 1:20:13.479
<v Speaker 1>donated by Running for Premature Babies, but she'd also received

1:20:13.479 --> 1:20:17.160
<v Speaker 1>the devastating news that Enzo probably wasn't going to survive,

1:20:17.200 --> 1:20:18.760
<v Speaker 1>and she rang me and asked me to come up

1:20:18.800 --> 1:20:20.439
<v Speaker 1>to the hospital. So last week I went up to

1:20:20.439 --> 1:20:23.400
<v Speaker 1>the hospital and I met this beautiful little boy, Enzo,

1:20:23.439 --> 1:20:26.360
<v Speaker 1>and I met his mum, Cartia, and I was able

1:20:26.479 --> 1:20:29.759
<v Speaker 1>to support them in some way. Now, Enzo has since

1:20:29.840 --> 1:20:33.160
<v Speaker 1>passed away, and Cartia has already reached out to me

1:20:33.560 --> 1:20:37.599
<v Speaker 1>to say that she wants to honor Enzo's life by

1:20:37.680 --> 1:20:41.519
<v Speaker 1>supporting money for premature babies. And I find it quite

1:20:41.600 --> 1:20:47.519
<v Speaker 1>amazing that in her moment of heartbreak, that she's already

1:20:47.520 --> 1:20:51.479
<v Speaker 1>thinking about how can Enzo's spirit help other babies? And

1:20:51.920 --> 1:20:53.680
<v Speaker 1>people have told me over the years how running in

1:20:53.680 --> 1:20:57.720
<v Speaker 1>their baby's name to help other babies has actually helped

1:20:57.760 --> 1:20:59.320
<v Speaker 1>them heal well.

1:20:59.360 --> 1:21:03.679
<v Speaker 2>Speaking of for instance, this episode's going to go out

1:21:04.080 --> 1:21:09.559
<v Speaker 2>soon after Mother's Day, which is such a challenging time

1:21:09.840 --> 1:21:17.400
<v Speaker 2>for anyone who's had any loss like this. How was

1:21:17.479 --> 1:21:21.799
<v Speaker 2>it for you your first Mother's Day after losing the boys,

1:21:22.000 --> 1:21:23.200
<v Speaker 2>and how are you now?

1:21:23.880 --> 1:21:27.840
<v Speaker 1>So on Mother's Day, I like to shout from the

1:21:27.960 --> 1:21:33.160
<v Speaker 1>rooftops that I am a mother of five, and right

1:21:33.240 --> 1:21:36.080
<v Speaker 1>from the very beginning, I actually have a card on

1:21:36.120 --> 1:21:42.639
<v Speaker 1>my bedside table. That was my first Mother's Day card actually,

1:21:43.800 --> 1:21:48.600
<v Speaker 1>and Ash wrote me the most beautiful card and he

1:21:48.760 --> 1:21:52.400
<v Speaker 1>always did. Every Mother's Day. Ash would write me a

1:21:52.439 --> 1:21:55.080
<v Speaker 1>card from Henry, Jasper and Evan as if they had

1:21:55.080 --> 1:21:58.639
<v Speaker 1>written it. And it's such a sweet card that says,

1:21:58.680 --> 1:22:00.920
<v Speaker 1>you know, thank you for being the very best mummy

1:22:00.960 --> 1:22:03.439
<v Speaker 1>we could. We are so lucky to have you as

1:22:03.479 --> 1:22:07.400
<v Speaker 1>our mom. And now Owen and Harvey when they will

1:22:07.439 --> 1:22:10.719
<v Speaker 1>give me a Mother's Day card on Sunday, they will

1:22:10.800 --> 1:22:14.320
<v Speaker 1>sign the Mother's Day card from them and Henry, Jasper

1:22:14.320 --> 1:22:17.280
<v Speaker 1>and Evan. And so for me, it's about you know,

1:22:17.320 --> 1:22:23.160
<v Speaker 1>we are still moms when our babies die. And for me,

1:22:23.200 --> 1:22:27.200
<v Speaker 1>it's an opportunity to tell people I'm a mum of

1:22:27.280 --> 1:22:28.320
<v Speaker 1>five boys.

1:22:28.640 --> 1:22:33.320
<v Speaker 2>And I think a very lovely message contained in your

1:22:33.320 --> 1:22:39.519
<v Speaker 2>book is that it's important to talk to women who

1:22:39.600 --> 1:22:43.240
<v Speaker 2>have lost their babies and to acknowledge those babies and

1:22:43.280 --> 1:22:44.880
<v Speaker 2>to say their names.

1:22:44.760 --> 1:22:47.920
<v Speaker 1>And to speak aloud the baby's names. I found after

1:22:48.120 --> 1:22:51.400
<v Speaker 1>you know, everybody nobody wants to do the wrong thing,

1:22:51.560 --> 1:22:54.040
<v Speaker 1>you know, but nobody knows what to do. And so

1:22:54.120 --> 1:22:59.280
<v Speaker 1>people often think, oh, we better not mention, yes, the

1:22:59.280 --> 1:23:01.559
<v Speaker 1>baby that died, because we don't know what, we don't

1:23:01.600 --> 1:23:03.559
<v Speaker 1>want to we don't know what to say, so we

1:23:03.640 --> 1:23:06.679
<v Speaker 1>won't mention the baby. But what I would say is

1:23:07.160 --> 1:23:09.479
<v Speaker 1>as a as a mother whose babies have died, is

1:23:09.520 --> 1:23:14.400
<v Speaker 1>there's nothing more beautiful than hearing your baby's name spoken aloud,

1:23:14.800 --> 1:23:21.000
<v Speaker 1>hearing or seeing your baby's name written down you We

1:23:21.120 --> 1:23:24.600
<v Speaker 1>haven't forgotten that our babies have died. To be reminded

1:23:24.840 --> 1:23:28.960
<v Speaker 1>is actually very beautiful. Even though you know, even though

1:23:29.000 --> 1:23:33.000
<v Speaker 1>it's painful, even though we're sad, we still you know,

1:23:33.400 --> 1:23:36.840
<v Speaker 1>we still want our babies. We still want our babies acknowledged.

1:23:36.880 --> 1:23:39.280
<v Speaker 1>I guess, and I think with running for premature babies,

1:23:39.320 --> 1:23:43.080
<v Speaker 1>it gives people an opportunity as well to you know,

1:23:43.240 --> 1:23:45.920
<v Speaker 1>to tell to speak aloud the names and to say

1:23:46.000 --> 1:23:50.960
<v Speaker 1>I'm doing this for my baby and little Enzo, you know.

1:23:51.200 --> 1:24:02.120
<v Speaker 2>I Yeah, Sophie Smith, mother of sons Henry and Evan

1:24:02.240 --> 1:24:07.280
<v Speaker 2>and Jasper and Owen and Harvey. Very lucky to have you,

1:24:07.360 --> 1:24:12.840
<v Speaker 2>as are we England's loss was very much down again.

1:24:14.640 --> 1:24:17.880
<v Speaker 2>And may the wind be at your back as you

1:24:18.000 --> 1:24:20.120
<v Speaker 2>run and through the rest of your life.

1:24:20.439 --> 1:24:22.120
<v Speaker 1>We have a big goal in Sydney. Can I just

1:24:22.120 --> 1:24:24.080
<v Speaker 1>mention that, which is to raise one million dollars, which

1:24:24.120 --> 1:24:26.040
<v Speaker 1>will be the most ever raised by any charity in

1:24:26.080 --> 1:24:30.160
<v Speaker 1>a marathon in Australia's history. And we want to raise

1:24:30.200 --> 1:24:33.680
<v Speaker 1>a million dollars this August. So we'd love people to

1:24:33.680 --> 1:24:34.400
<v Speaker 1>come and join us.

1:24:34.640 --> 1:24:40.080
<v Speaker 2>Well, if anyone will, you will. So for people listening

1:24:40.120 --> 1:24:43.479
<v Speaker 2>to these who may be in the midst of their

1:24:43.520 --> 1:24:46.920
<v Speaker 2>own grief and their own loss that feels unbearable, what

1:24:47.000 --> 1:24:48.439
<v Speaker 2>would you like them to know?

1:24:49.920 --> 1:24:52.439
<v Speaker 1>Do you know? What I would like them to know

1:24:53.400 --> 1:24:58.800
<v Speaker 1>is something that I was really frightened of when my

1:24:58.880 --> 1:25:01.760
<v Speaker 1>babies died, just but i'd on the sixteenth of October,

1:25:01.960 --> 1:25:07.160
<v Speaker 1>I was I remember New Year's Eve that year. I

1:25:07.240 --> 1:25:11.200
<v Speaker 1>it was I did not want the clock to tick

1:25:11.240 --> 1:25:14.479
<v Speaker 1>over to two thousand and seven because I felt like

1:25:15.400 --> 1:25:20.800
<v Speaker 1>time was separating me from my babies. I didn't you

1:25:20.840 --> 1:25:23.160
<v Speaker 1>know when I could say when I could feel like

1:25:23.320 --> 1:25:27.040
<v Speaker 1>last week my baby died, or last month my baby died.

1:25:27.479 --> 1:25:30.320
<v Speaker 1>Somehow to say last year my baby died. And I

1:25:30.360 --> 1:25:34.040
<v Speaker 1>felt like this awful passage of time was separating me

1:25:34.560 --> 1:25:37.800
<v Speaker 1>and that somehow that bond, that love that I felt

1:25:37.800 --> 1:25:41.160
<v Speaker 1>for them was going to just disappear with time and

1:25:41.200 --> 1:25:44.439
<v Speaker 1>I and that frightened me and then going on and

1:25:44.479 --> 1:25:47.320
<v Speaker 1>having future children. I was worried that the you know,

1:25:47.920 --> 1:25:51.559
<v Speaker 1>I didn't I didn't want to my babies to be forgotten.

1:25:51.560 --> 1:25:56.120
<v Speaker 1>I didn't want my love to fade. And what I

1:25:56.160 --> 1:26:00.519
<v Speaker 1>would say to anybody who's baby has a recent died

1:26:01.479 --> 1:26:04.320
<v Speaker 1>is that your love will never fade, and that grief

1:26:04.439 --> 1:26:08.040
<v Speaker 1>is something which your life, just your life grows around,

1:26:08.080 --> 1:26:11.600
<v Speaker 1>and grief does change, does change over the years, but

1:26:11.800 --> 1:26:15.559
<v Speaker 1>what doesn't change is the core of that grief is love,

1:26:16.080 --> 1:26:21.000
<v Speaker 1>and that does not change. And now I wish I'd

1:26:21.040 --> 1:26:25.080
<v Speaker 1>known that twenty years ago and not feared that, because

1:26:26.680 --> 1:26:30.080
<v Speaker 1>my love for my five boys is here today just

1:26:30.120 --> 1:26:32.080
<v Speaker 1>as much as it was for my three boys twenty

1:26:32.160 --> 1:26:32.559
<v Speaker 1>years ago.

1:26:33.840 --> 1:26:35.439
<v Speaker 2>Thanks Sophie, Thank.

1:26:35.280 --> 1:26:36.880
<v Speaker 1>You, Thank you, Kate, thank you.

1:26:38.040 --> 1:26:41.639
<v Speaker 2>After everything Sophie's endured, the loss of her three boys,

1:26:42.120 --> 1:26:44.960
<v Speaker 2>the loss of her husband, Ash, and the years she's

1:26:45.000 --> 1:26:49.760
<v Speaker 2>spent living alongside grief, what struck me most was not

1:26:50.000 --> 1:26:54.559
<v Speaker 2>just her resilience, but her capacity to keep choosing hope,

1:26:55.200 --> 1:27:00.360
<v Speaker 2>to keep finding meaning, to keep loving so deeply running

1:27:00.400 --> 1:27:04.280
<v Speaker 2>for premature babies. The legacy of Henry, Evan and Jasper

1:27:04.560 --> 1:27:08.559
<v Speaker 2>continues to live on in thousands of families around the country.

1:27:09.800 --> 1:27:12.800
<v Speaker 2>If this conversation brought anything up for you, or if

1:27:12.840 --> 1:27:17.519
<v Speaker 2>you've experienced pregnancy loss, infant loss, or grief of any kind,

1:27:18.280 --> 1:27:21.800
<v Speaker 2>will leave support resources in the show notes, and if

1:27:21.840 --> 1:27:24.759
<v Speaker 2>you'd like to learn more about running for premature babies

1:27:24.960 --> 1:27:27.599
<v Speaker 2>or support the work Sophie and her team are doing,

1:27:27.800 --> 1:27:31.960
<v Speaker 2>you can find those details there too. Thank you so

1:27:32.080 --> 1:27:35.280
<v Speaker 2>much for listening to No Filter. I am Kate Lanebrook

1:27:35.640 --> 1:27:37.280
<v Speaker 2>and I will see you next Monday.