WEBVTT - Dealing With TAPS: One Of The Rarest Twin Complications Ever

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<v Speaker 1>You're listening to a Mama Mia podcast.

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<v Speaker 2>Mamma Mia acknowledges the traditional owners of land and waters

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<v Speaker 2>that this podcast is recorded on. We pay our respects

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<v Speaker 2>to elders past, present and emerging, and feel privileged to

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<v Speaker 2>continue the sharing of birth stories and knowledge that has

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<v Speaker 2>been a fundamental part of Indigenous culture. Hi.

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<v Speaker 3>I'm Cassanya Lukich and this is diary of a birth.

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<v Speaker 3>When Marnie Cochrane fell pregnant through IVF at forty two,

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<v Speaker 3>she thought the hardest part of her fertility journey was

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<v Speaker 3>behind her. But she was in for a big surprise.

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<v Speaker 3>Her single embryo transfer turned into identical twin girls. Then

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<v Speaker 3>a routine scan at twenty two weeks revealed a complication

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<v Speaker 3>that would change everything.

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<v Speaker 4>Everything had been fine prior with the scans in between

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<v Speaker 4>thirteen and twenty two weeks. And when I walked in

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<v Speaker 4>that day to the hospital, you know that were scanning

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<v Speaker 4>me and everything seemed normal. At the end of the scan,

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<v Speaker 4>they said, oh, look, we're just going to bring in

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<v Speaker 4>a doctor, and you know, we waited for what seemed

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<v Speaker 4>like forever.

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<v Speaker 3>In today's episode, Marnei shares her extraordinary story of navigating

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<v Speaker 3>one of the rarest twin complications taps, where one twin

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<v Speaker 3>becomes dangerously anemic while the other develops too many red

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<v Speaker 3>blood cells.

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<v Speaker 1>So let's meet today's marm.

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<v Speaker 4>My name's Many and this is the diary of my

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<v Speaker 4>birth with my twins, Billy and Poppy.

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<v Speaker 3>You know, your journey to getting pregnant obviously took a

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<v Speaker 3>little bit of time. But what was your life like

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<v Speaker 3>before you fell pregnant with the twins.

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<v Speaker 4>I have been with my husband for a really long time,

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<v Speaker 4>so we had been together, I think for about six

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<v Speaker 4>years before we settled on the Gold Coast and bought

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<v Speaker 4>our first townhouse together, and we had plan to get

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<v Speaker 4>pregnant pretty soon.

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<v Speaker 5>And yeah, it.

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<v Speaker 4>Took obviously many years, but in that time, I guess

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<v Speaker 4>we just spent a lot of time together.

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<v Speaker 5>He's fantastic.

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<v Speaker 4>We have adopted five birds, and we eventually upgraded to

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<v Speaker 4>a bigger house on the Gold Coast. We hoped for

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<v Speaker 4>a child and for the birds as well, so somewhere

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<v Speaker 4>a little bit bigger that would house the birds and

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<v Speaker 4>us and hopefully a child.

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<v Speaker 1>Yeah, when you got pregnant, you went through IVF. They

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<v Speaker 1>just put one embryo in and lo and behold.

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<v Speaker 4>Yes, Well we didn't actually find that out until about

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<v Speaker 4>thirteen weeks. So the IVF journey I was so nervous

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<v Speaker 4>about that. I really was quite reluctant to do it.

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<v Speaker 4>But we needed it obviously as I got older. But

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<v Speaker 4>we had a bit of a triple whammy. So my

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<v Speaker 4>age was against me. I had suspected endo and also

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<v Speaker 4>my husband has a male fertility issue as well.

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<v Speaker 5>Like everything was against us.

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<v Speaker 4>And yeah, so we found a newer specialist and it

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<v Speaker 4>went like a dream, like they got more eggs than

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<v Speaker 4>they thought they would get.

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<v Speaker 5>They told me maybe three, like zero to three. We

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<v Speaker 5>got five.

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<v Speaker 4>I think they expected maybe one to fertilize out of those,

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<v Speaker 4>and we got three embryos out of that, and then

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<v Speaker 4>they implanted one and at first we thought it was

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<v Speaker 4>just one child. So I'd had a couple of scans

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<v Speaker 4>at seven weeks and then at eleven weeks and the

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<v Speaker 4>child was developing quite nicely. But yeah, we found out

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<v Speaker 4>at thirteen weeks that that embryo had actually split and

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<v Speaker 4>we were pregnant with identical twins.

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<v Speaker 1>Was it that the embryo split quite late in the process.

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<v Speaker 1>Is that why they wouldn't see it? Or was baby

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<v Speaker 1>be hiding.

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<v Speaker 4>So the first couple of scans I had wasn't like

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<v Speaker 4>a professional ultrasound place. It was with my utility specialist,

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<v Speaker 4>which is what they usually do just in the early weeks,

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<v Speaker 4>just to make sure that there's a heartbeat and that

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<v Speaker 4>you know, you go along and you do your.

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<v Speaker 5>Nipped test and stuff like that.

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<v Speaker 4>So they were really quite quick, and I think she

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<v Speaker 4>was just looking for a baby and a heartbeat and

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<v Speaker 4>didn't go looking for that second because we had one

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<v Speaker 4>embryo implanted. I was forty two. It was amazing that

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<v Speaker 4>I got pregnant first round at my age with one embryo.

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<v Speaker 4>So yeah, I just don't think she went looking for it.

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<v Speaker 1>So your partner, Lee and you, when you find out

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<v Speaker 1>you're having twins, what was your reaction?

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<v Speaker 4>Well, if I'm going to be really honest, the first

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<v Speaker 4>reaction was an internal screaming no. I guess A few

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<v Speaker 4>thoughts run through my mind. One was, oh my god,

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<v Speaker 4>how am I going to cope with twins? My finances

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<v Speaker 4>went through my head. Complications because I knew, like, we

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<v Speaker 4>did everything that they told us to do during the round,

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<v Speaker 4>so I knew that were identical twins, and so I

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<v Speaker 4>was scared for the risks, you know, to me to

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<v Speaker 4>the babies.

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<v Speaker 5>So yeah, I was immediately.

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<v Speaker 4>Fearful, but it's interesting what you do in that moment,

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<v Speaker 4>like lower scanning the one. All I wanted to find

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<v Speaker 4>out was if the other one was healthy. So I

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<v Speaker 4>just had that instinct to protect them and that they

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<v Speaker 4>were my babies, like immediately, even though I was like,

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<v Speaker 4>oh crap, what am I going to do? So but

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<v Speaker 4>once we started telling family members and workmates, you know,

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<v Speaker 4>that fear turned into excitement and we were just like,

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<v Speaker 4>oh my god, they're going to have a best friend

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<v Speaker 4>for life.

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<v Speaker 1>How cool is that? And a connection for life?

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<v Speaker 4>Absolutely yeah, And we'll never understand this. We'll never understand

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<v Speaker 4>this bond, but they will have it, and it was

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<v Speaker 4>just incredible.

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<v Speaker 1>Unfortunately, at twenty two weeks you did find out that

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<v Speaker 1>there was a complication. Will you run us through that?

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<v Speaker 6>Sure?

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<v Speaker 4>So, because we found out quite late in the piece

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<v Speaker 4>that I was having twins and that they were identical

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<v Speaker 4>and that they shared a placenta, my referral to the

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<v Speaker 4>hospital was, I guess a.

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<v Speaker 5>Little bit later than normal.

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<v Speaker 4>So at twenty two weeks I walked into my maternal

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<v Speaker 4>fetal medicine scan. Everything had been fine prior with the

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<v Speaker 4>scans in between thirteen and twenty two weeks. And when

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<v Speaker 4>I walked in that day to the hospital, you know,

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<v Speaker 4>they were scanning me and everything seemed normal. And then

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<v Speaker 4>at the end of the scan, they said, oh, look,

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<v Speaker 4>we're just going to bring in the doctor. And you know,

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<v Speaker 4>we waited for what seemed like forever, and I've just

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<v Speaker 4>had no thought in my mind that anything was wrong,

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<v Speaker 4>even though I'd read the paperwork and the recommendations and

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<v Speaker 4>things like that. And yeah, they told us that they

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<v Speaker 4>suspected that the girls had twin anemia polypcythemia sequence or TAPS.

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<v Speaker 1>So basically, one baby was anemic and one baby had

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<v Speaker 1>too much by.

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<v Speaker 5>Red blood cells.

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<v Speaker 4>Yeah, exactly, Yeah, Yeah, so yeah, bloodtoothin, blood tooth thick

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<v Speaker 4>they say, like lemonade and tomato sauce.

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<v Speaker 5>That's the kind of consistency of the blood.

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<v Speaker 1>Yeah, And what's the treatment for that? How do they

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<v Speaker 1>help you get to term?

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<v Speaker 4>Yeah, it's a really difficult thing because one TAPS is

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<v Speaker 4>really quite newly discovered, like only in the last eighteen

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<v Speaker 4>years or so, so the best treatment still hasn't been

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<v Speaker 4>found out. So what they do is really individual to

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<v Speaker 4>each person. In our case, there were options that were

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<v Speaker 4>available to me and options that weren't. So in some cases,

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<v Speaker 4>they can do laser surgery to laser the tiny connections

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<v Speaker 4>in the BLAS center, doing in uterotransfusion, they can birth

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<v Speaker 4>the babies early, or they can just wait and see,

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<v Speaker 4>depending on that. So I had a bit of a combination.

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<v Speaker 4>They wanted to wait and see how the girls went

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<v Speaker 4>because in some cases they can adapt to their new

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<v Speaker 4>I guess environment in the womb. But it did progress

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<v Speaker 4>and did get worse, and that's where we had to

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<v Speaker 4>look to treatment.

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<v Speaker 3>Yeah, so, as I understand it, you had a blood transfusion.

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<v Speaker 1>Yes, how does that work in utero? Yeah?

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<v Speaker 4>Sure, So this is very interesting, especially when it comes

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<v Speaker 4>to twins. So an in uterotransfusion for a normal anemic

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<v Speaker 4>singleton baby is quite common, but in twins it's really uncommon.

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<v Speaker 4>So what they actually had to do was transfuse adult

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<v Speaker 4>donor blood to my anemic baby and take out small

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<v Speaker 4>amounts of blood out of the polycyphemic baby and replace

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<v Speaker 4>that with warm saline. So it was a very scary

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<v Speaker 4>procedure and the way they do it. So I had

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<v Speaker 4>an anterior placenta. It was right in front, so easy

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<v Speaker 4>access to the placenta and umbilical cords. And they go

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<v Speaker 4>in with a big needle, one by one and they

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<v Speaker 4>go into the placenta and then the umbilical cord and

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<v Speaker 4>they that's when they transfuse the blood. And then obviously

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<v Speaker 4>they go into the next baby, big needle through the

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<v Speaker 4>plazender and the umbilical cord and take out small amounts

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<v Speaker 4>of blood and replace that with warm, salty water.

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<v Speaker 1>And were you awake for this procedure?

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<v Speaker 5>Yeah, so the first.

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<v Speaker 4>One at twenty eight weeks, that one was actually just

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<v Speaker 4>done in an ultrasound room. They set up a sterile

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<v Speaker 4>environment and they actually have blood testing on site, so

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<v Speaker 4>there's a formula attached to it as well. They find

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<v Speaker 4>out how much blood they need and the doctors calculate

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<v Speaker 4>all that. But yeah, I was awake, felt everything. There's

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<v Speaker 4>only a local anesthetic on your belly, yep, just to

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<v Speaker 4>numb where the injection site or the needles go in.

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<v Speaker 4>And I had like a little bit of medication to

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<v Speaker 4>I guess keep me calm, and medications to stop the

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<v Speaker 4>uterus contracting and things like that.

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<v Speaker 5>But I could see and feel everything.

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<v Speaker 4>So they had the ultrasound screen up so I could see,

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<v Speaker 4>you know, I just wanted to check that the baby

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<v Speaker 4>girls were still moving and hearts were still beating and

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<v Speaker 4>things like that.

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<v Speaker 5>And Lee happened to be there with me during that one.

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<v Speaker 4>I mean, it was very scary and surreal just to

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<v Speaker 4>think about it, Like when I think about myself in

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<v Speaker 4>that ultrasound chair looking at the screen. Yeah, it's just

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<v Speaker 4>it's amazing what they can do. A bit at the

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<v Speaker 4>same time, you're thinking, oh my god, is this my life?

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<v Speaker 1>So yeah, I mean it's one thing to be pregnant

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<v Speaker 1>after you know, years of infertility. It's enough to be

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<v Speaker 1>pregnant with twins, and it's another thing on top of

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<v Speaker 1>that when there's complications. Definitely, So in terms.

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<v Speaker 3>Of like your mental health and how you were coping.

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<v Speaker 1>Yeah, how was that time for you?

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<v Speaker 5>Yeah? It was very hard.

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<v Speaker 4>I mean, the thought of having something wrong with your

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<v Speaker 4>babies in utero. Like I think the first thing I

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<v Speaker 4>went to was, you know, what did I do? You know, like,

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<v Speaker 4>this must be my fault. It must be something I ate,

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<v Speaker 4>something I did in my you know, like pre pregnant life.

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<v Speaker 4>You know, you think of all the things things and

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<v Speaker 4>mum guilt sets in really quickly, But really I just

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<v Speaker 4>had to turn to the focus of putting my trust

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<v Speaker 4>in the doctors. We have such an incredible medical system,

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<v Speaker 4>especially in Queensland, and access to the brilliant doctors at

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<v Speaker 4>Martyr Hospital in Brisbane. It's incredible, Like the doctors up

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<v Speaker 4>there are just world class and what they do is

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<v Speaker 4>just unbelievable. So I did really feel like I was

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<v Speaker 4>in good hands. I just had to trust that, yeah,

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<v Speaker 4>that we would be okay. It was definitely hard. There

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<v Speaker 4>were a lot of tears and I just had to

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<v Speaker 4>lean on my supports.

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<v Speaker 5>Like I had to.

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<v Speaker 4>Like, there weren't many people going through what I was

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<v Speaker 4>going through.

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<v Speaker 5>It's so rare.

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<v Speaker 4>It only happens in like three to five percent of

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<v Speaker 4>identical twin pregnancies, so yeah, it's it's extremely rare. There's

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<v Speaker 4>not a lot of people you can reach out to.

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<v Speaker 4>But like I had my family and then I also

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<v Speaker 4>had a tach support for them who were just wonderful.

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<v Speaker 4>So yeah, sought some help online as well. You know

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<v Speaker 4>what questions to ask and you know what's it like

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<v Speaker 4>and can anyone tell me if they've had any UTEROI

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<v Speaker 4>transfusion before, so really just reaching out to all the

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<v Speaker 4>resources I could to help get me by.

0:12:35.613 --> 0:12:37.893
<v Speaker 5>It was just really like survival mode, to be honest.

0:12:38.933 --> 0:12:43.573
<v Speaker 3>I imagine that there was a discussion of how far

0:12:43.813 --> 0:12:46.773
<v Speaker 3>into the pregnancy they would like you to get, and

0:12:47.333 --> 0:12:50.732
<v Speaker 3>I imagine that they were suggesting.

0:12:50.213 --> 0:12:53.053
<v Speaker 1>A c section because you were higher risk.

0:12:53.453 --> 0:12:56.333
<v Speaker 3>Did they have a goal for you and can you

0:12:56.373 --> 0:12:59.173
<v Speaker 3>tell us a little bit about going into labor?

0:12:59.693 --> 0:12:59.973
<v Speaker 1>Sure?

0:13:00.573 --> 0:13:03.893
<v Speaker 4>So, yes, the goal, and in most cases with taps

0:13:04.173 --> 0:13:06.973
<v Speaker 4>is thirty two weeks. Getting to thirty two weeks usually

0:13:07.013 --> 0:13:10.253
<v Speaker 4>the placenta is not happy by the end of thirty

0:13:10.293 --> 0:13:12.893
<v Speaker 4>two weeks and it's a good idea to birth them

0:13:13.173 --> 0:13:15.813
<v Speaker 4>because it gets riskier. There's no more treatment that can

0:13:15.853 --> 0:13:18.413
<v Speaker 4>be done at that stage. So the aim for me

0:13:18.533 --> 0:13:21.693
<v Speaker 4>was to get to thirty two weeks. Unfortunately, at thirty

0:13:21.733 --> 0:13:24.732
<v Speaker 4>two weeks I went to my local hospital. They didn't

0:13:24.733 --> 0:13:28.733
<v Speaker 4>have any nick Cure special care beds available for the girls,

0:13:28.773 --> 0:13:31.293
<v Speaker 4>so they turned me back around, referred me back to

0:13:31.333 --> 0:13:34.893
<v Speaker 4>the martyr and said, let's see what they think they

0:13:34.893 --> 0:13:39.653
<v Speaker 4>should do with you, and they suggested another transfusion, which

0:13:39.653 --> 0:13:41.053
<v Speaker 4>we did at thirty two weeks.

0:13:41.333 --> 0:13:43.293
<v Speaker 5>Very very risky, but this time.

0:13:43.373 --> 0:13:46.493
<v Speaker 4>It was in theater with an epidural, so I felt

0:13:46.493 --> 0:13:49.013
<v Speaker 4>a lot safer if something went wrong, they could just

0:13:49.053 --> 0:13:54.133
<v Speaker 4>birth the girls. Thankfully, it was very successful and they

0:13:54.173 --> 0:13:56.853
<v Speaker 4>sent me home the next morning and just said it

0:13:56.893 --> 0:13:58.492
<v Speaker 4>could be any time. If we get a couple of

0:13:58.573 --> 0:14:00.733
<v Speaker 4>days out of this, it'll be great, And I was like,

0:14:00.893 --> 0:14:04.853
<v Speaker 4>oh wow, Like reality just really set in. Then I

0:14:04.893 --> 0:14:09.333
<v Speaker 4>got to thirty three plus two and my waters broke.

0:14:09.773 --> 0:14:13.173
<v Speaker 4>So sitting on the couch on a Saturday night and

0:14:13.253 --> 0:14:16.252
<v Speaker 4>my waters broke and I went to hospital.

0:14:17.093 --> 0:14:18.892
<v Speaker 5>Now, my local hospital still.

0:14:18.613 --> 0:14:21.613
<v Speaker 4>Didn't have nick cure or special care beds, so I

0:14:21.653 --> 0:14:24.453
<v Speaker 4>stayed a couple of days there with antibiotics and there

0:14:24.533 --> 0:14:27.413
<v Speaker 4>was no labor progressing aside from the water's breaking.

0:14:27.853 --> 0:14:30.773
<v Speaker 5>So they sent me up to Marta and.

0:14:30.933 --> 0:14:34.573
<v Speaker 4>When I got there, we made it through one night.

0:14:34.813 --> 0:14:37.813
<v Speaker 4>The aim was to get me to thirty four weeks,

0:14:37.973 --> 0:14:39.573
<v Speaker 4>so that was the plan. I was like, we had

0:14:39.573 --> 0:14:43.213
<v Speaker 4>it in our minds Oka thirty four weeks, I was

0:14:43.253 --> 0:14:46.973
<v Speaker 4>thirty three plus six and I went for a well

0:14:46.973 --> 0:14:50.053
<v Speaker 4>being scan and everything seemed fine. That was at four

0:14:50.053 --> 0:14:55.373
<v Speaker 4>o'clock in the afternoon. At ten pm during a routine CTG,

0:14:56.173 --> 0:14:59.933
<v Speaker 4>my baby be had a very high heart rate.

0:15:00.693 --> 0:15:01.933
<v Speaker 5>So they were like all of.

0:15:01.893 --> 0:15:05.613
<v Speaker 4>A sudden, doctors and nurses swarming around me and said

0:15:05.733 --> 0:15:09.213
<v Speaker 4>it's time to get the girls out. So my husband

0:15:09.253 --> 0:15:12.133
<v Speaker 4>was still at home an hour away and didn't quite

0:15:12.213 --> 0:15:12.933
<v Speaker 4>make the birth.

0:15:13.493 --> 0:15:14.853
<v Speaker 5>Oh no, yeah.

0:15:15.653 --> 0:15:17.613
<v Speaker 4>I asked them to hold on, like cut, you just

0:15:17.693 --> 0:15:21.293
<v Speaker 4>hold on an hour until he gets here, but expecting

0:15:21.333 --> 0:15:24.653
<v Speaker 4>to birth the next day. He rushed up the motorway

0:15:25.253 --> 0:15:27.893
<v Speaker 4>but still didn't quite make it. But I found out

0:15:28.013 --> 0:15:31.253
<v Speaker 4>later that it was probably like a category one sea section.

0:15:31.373 --> 0:15:33.733
<v Speaker 4>They were like, these babies have to come now. It's

0:15:33.893 --> 0:15:36.853
<v Speaker 4>really bad, but I didn't realize like they made me

0:15:36.973 --> 0:15:40.613
<v Speaker 4>feel like, yes, it's an emergency, but everything's going to

0:15:40.693 --> 0:15:43.213
<v Speaker 4>be okay.

0:15:43.253 --> 0:15:43.773
<v Speaker 1>Coming up.

0:15:44.973 --> 0:15:48.093
<v Speaker 4>My husband arrived just as Poppy had been born, so

0:15:48.453 --> 0:15:51.813
<v Speaker 4>Billy was born first and she was the one whose

0:15:51.853 --> 0:15:54.573
<v Speaker 4>heart rate had caused the emergency sea section.

0:15:59.253 --> 0:16:02.373
<v Speaker 1>So by yourself, were you scared?

0:16:02.933 --> 0:16:03.653
<v Speaker 5>Absolutely?

0:16:03.853 --> 0:16:06.013
<v Speaker 4>I burst into tears a minute that they told me

0:16:06.093 --> 0:16:08.413
<v Speaker 4>that the babies had to come right that minute. I

0:16:08.733 --> 0:16:13.613
<v Speaker 4>was frantic, like calling my husband. I just I couldn't breathe.

0:16:14.133 --> 0:16:17.413
<v Speaker 4>It was really awful. At one point when we got

0:16:17.493 --> 0:16:20.173
<v Speaker 4>when I got to theater and I had everyone around me,

0:16:20.213 --> 0:16:21.853
<v Speaker 4>and they asked you all the questions, what are we

0:16:21.893 --> 0:16:26.293
<v Speaker 4>doing today having a C section? I started to calm

0:16:26.333 --> 0:16:29.093
<v Speaker 4>down once I saw my medical team and I asked, someone,

0:16:29.213 --> 0:16:32.453
<v Speaker 4>can you put on my playlist? Because I had organized

0:16:32.453 --> 0:16:34.893
<v Speaker 4>a playlist and it was all my favorite songs. Forty

0:16:34.893 --> 0:16:37.733
<v Speaker 4>five minutes of my favorite songs. They said, yep, we

0:16:37.773 --> 0:16:40.413
<v Speaker 4>can absolutely do that. I was like, oh my god,

0:16:40.453 --> 0:16:43.373
<v Speaker 4>thank you so much, started crying again, and then one

0:16:43.373 --> 0:16:45.933
<v Speaker 4>of them put their hand on my shoulder and went, okay,

0:16:46.013 --> 0:16:49.413
<v Speaker 4>let's have a birthday party. And that's where I was like, Okay,

0:16:49.533 --> 0:16:52.413
<v Speaker 4>I feel well looked after now. So even though I

0:16:52.413 --> 0:16:55.013
<v Speaker 4>didn't have my husband, I had my music, I had

0:16:55.013 --> 0:16:57.493
<v Speaker 4>an incredible medical team, and I just really had to

0:16:58.533 --> 0:16:59.733
<v Speaker 4>be grateful for what I.

0:16:59.653 --> 0:17:01.213
<v Speaker 5>Did have, not what I didn't have.

0:17:01.413 --> 0:17:04.533
<v Speaker 4>So yeah, yeah, and I knew that the babies were

0:17:04.532 --> 0:17:05.812
<v Speaker 4>going to be safe as well.

0:17:06.332 --> 0:17:08.292
<v Speaker 1>So the babies come out, did they go straight to

0:17:08.693 --> 0:17:09.253
<v Speaker 1>the niku?

0:17:09.693 --> 0:17:11.372
<v Speaker 5>Yeah, So they showed the girls to me.

0:17:11.453 --> 0:17:14.013
<v Speaker 4>Their cards had to be cut straight away and they

0:17:14.052 --> 0:17:17.613
<v Speaker 4>were whisked away. My husband arrived just as Poppy had

0:17:17.653 --> 0:17:21.852
<v Speaker 4>been born, So Billy was born first, and she was

0:17:21.893 --> 0:17:25.213
<v Speaker 4>the one whose heart rate had caused the emergency C section,

0:17:25.853 --> 0:17:29.213
<v Speaker 4>so she was born first, and then Poppy was born

0:17:29.493 --> 0:17:32.333
<v Speaker 4>and Lee just arrived, so he was able to follow

0:17:32.333 --> 0:17:33.893
<v Speaker 4>them up, which was amazing.

0:17:34.333 --> 0:17:36.973
<v Speaker 1>Yeah that's good. That would have made you feel a

0:17:37.013 --> 0:17:38.133
<v Speaker 1>little bit calmer.

0:17:38.373 --> 0:17:39.013
<v Speaker 5>Yeah. Yeah.

0:17:39.053 --> 0:17:42.133
<v Speaker 4>All I could like at that point was about the babies,

0:17:42.333 --> 0:17:44.733
<v Speaker 4>and so he was like, do you mind if I

0:17:44.773 --> 0:17:48.453
<v Speaker 4>go up and I was like, yes, please go, yeah, go,

0:17:48.973 --> 0:17:50.813
<v Speaker 4>and he named them up there and everything.

0:17:50.893 --> 0:17:55.173
<v Speaker 1>So, yeah, tell me about your first time holding them. Yeah.

0:17:55.213 --> 0:17:58.693
<v Speaker 4>So I actually didn't get to hold them what was

0:17:58.733 --> 0:18:03.133
<v Speaker 4>one by one at first? They were in the nicku

0:18:03.253 --> 0:18:06.133
<v Speaker 4>in separate CODs at separate ends of the room because

0:18:06.173 --> 0:18:08.693
<v Speaker 4>that's all they had at the time. Yeah, it was

0:18:08.733 --> 0:18:11.612
<v Speaker 4>a little bit sad, but I mean, the facilities up

0:18:11.613 --> 0:18:14.213
<v Speaker 4>there are just so wonderful and the nurses are incredible.

0:18:14.733 --> 0:18:17.213
<v Speaker 4>So I didn't get to hold them until about twelve

0:18:17.253 --> 0:18:20.213
<v Speaker 4>hours after the birth, and that was separately, and it

0:18:20.213 --> 0:18:21.933
<v Speaker 4>was all about of a whirlwind. I think I was

0:18:21.973 --> 0:18:24.653
<v Speaker 4>a little bit drugged up still, to be honest, and

0:18:24.973 --> 0:18:26.933
<v Speaker 4>I just couldn't believe everything that happened.

0:18:26.933 --> 0:18:28.973
<v Speaker 5>I was just I think I was just in shock.

0:18:29.133 --> 0:18:31.933
<v Speaker 4>But I do remember the moment that I held them

0:18:31.933 --> 0:18:34.653
<v Speaker 4>both together, which was a couple of days later, and

0:18:34.693 --> 0:18:37.653
<v Speaker 4>that was just the best thing ever, Like they were

0:18:37.693 --> 0:18:41.092
<v Speaker 4>finally safe, they were finally together, they were finally with me,

0:18:41.413 --> 0:18:45.092
<v Speaker 4>And yeah, it was just a beautiful, beautiful moment just

0:18:45.173 --> 0:18:45.773
<v Speaker 4>holding them.

0:18:46.173 --> 0:18:48.453
<v Speaker 1>Yeah. Well, you had, you know, months and months of

0:18:48.613 --> 0:18:55.213
<v Speaker 1>stress and anxiety and stressful birth. To have them safe

0:18:55.253 --> 0:18:56.933
<v Speaker 1>would have just been so special.

0:18:57.293 --> 0:19:01.133
<v Speaker 5>Absolutely, Yeah, it was just wonderful. Yeah.

0:19:01.173 --> 0:19:04.453
<v Speaker 3>And the question that I'm sure everybody asks a twin mom,

0:19:05.093 --> 0:19:06.133
<v Speaker 3>did you mix them up?

0:19:06.813 --> 0:19:06.893
<v Speaker 5>No?

0:19:08.733 --> 0:19:12.813
<v Speaker 4>So well, I guess from the beginning. So we actually

0:19:12.853 --> 0:19:16.733
<v Speaker 4>discovered that the reason that Billy caused the emergency c

0:19:16.933 --> 0:19:20.573
<v Speaker 4>section was because I got an infection after the waters broke.

0:19:21.293 --> 0:19:24.173
<v Speaker 4>So I ended up getting an ecoli infection on my

0:19:24.213 --> 0:19:29.052
<v Speaker 4>placenta which spread to Billy because only her amniotic sac broke.

0:19:29.853 --> 0:19:32.133
<v Speaker 4>So it was really easy to tell them apart because

0:19:32.173 --> 0:19:35.333
<v Speaker 4>she had a line with antibiotics. So I know that

0:19:35.373 --> 0:19:37.613
<v Speaker 4>sounds it's quite sad, but at the same time that

0:19:37.693 --> 0:19:40.133
<v Speaker 4>it was impossible to mix them up, so we definitely

0:19:40.213 --> 0:19:43.413
<v Speaker 4>knew who was who. But even after we got home,

0:19:43.573 --> 0:19:44.733
<v Speaker 4>I never mixed them up.

0:19:44.773 --> 0:19:46.133
<v Speaker 5>I just knew who was who.

0:19:46.413 --> 0:19:49.493
<v Speaker 4>And I think the way that I answer that because

0:19:49.533 --> 0:19:51.773
<v Speaker 4>everyone says, oh my god, they look exactly the same.

0:19:52.413 --> 0:19:54.493
<v Speaker 4>I just say, I'm their mum and I can tell.

0:19:54.533 --> 0:19:59.493
<v Speaker 4>So they're so different in personality, even their laughs, their voices,

0:20:00.413 --> 0:20:03.573
<v Speaker 4>They've got opposite sides, like hair worlds.

0:20:04.173 --> 0:20:06.133
<v Speaker 5>Yeah, they're just so different to us.

0:20:06.933 --> 0:20:07.973
<v Speaker 1>How old are they now?

0:20:08.333 --> 0:20:10.733
<v Speaker 5>They're two years old. Yeah, they just turned too.

0:20:10.973 --> 0:20:12.973
<v Speaker 1>Yeah, and how was your recovery?

0:20:13.813 --> 0:20:14.812
<v Speaker 5>Yeah it was rocky.

0:20:15.853 --> 0:20:20.613
<v Speaker 4>My pain was definitely not controlled in the first few days.

0:20:21.173 --> 0:20:23.613
<v Speaker 5>Yeah, my pain level was just through the roof.

0:20:23.693 --> 0:20:26.693
<v Speaker 4>And the way they explained that is sometimes because of

0:20:26.733 --> 0:20:29.653
<v Speaker 4>the extra stretching and things with twins, the pain level

0:20:29.693 --> 0:20:32.533
<v Speaker 4>can be higher, so it was really hard to get

0:20:32.533 --> 0:20:35.813
<v Speaker 4>that under control. So yeah, definitely for the first couple

0:20:35.853 --> 0:20:38.293
<v Speaker 4>of weeks, I actually had to go home with pain relief,

0:20:38.373 --> 0:20:41.892
<v Speaker 4>which is apparently not that common, so I need an

0:20:42.013 --> 0:20:46.653
<v Speaker 4>extra extra week with the painkillers. But after that it

0:20:46.813 --> 0:20:49.013
<v Speaker 4>was it was fairly okay, I think.

0:20:49.453 --> 0:20:52.532
<v Speaker 1>Yeah, yeah, well you were sleep deprived and looking up

0:20:52.693 --> 0:20:53.532
<v Speaker 1>through newborns.

0:20:53.813 --> 0:20:55.213
<v Speaker 5>Yeah, I barely remember that.

0:20:55.453 --> 0:20:58.373
<v Speaker 4>So, yeah, pumping eight times a day and you know,

0:20:58.533 --> 0:21:02.532
<v Speaker 4>feeding eight times a day, and yeah, sterilizing and trying

0:21:02.533 --> 0:21:06.453
<v Speaker 4>to get maybe an hour and a half combined sleep was. Yeah,

0:21:06.533 --> 0:21:08.893
<v Speaker 4>it was definitely a whirlwind, and you kind of forget

0:21:08.893 --> 0:21:11.693
<v Speaker 4>your own needs when you're going through all that, and

0:21:12.093 --> 0:21:15.413
<v Speaker 4>certainly with twins in nick you and special care as well,

0:21:15.493 --> 0:21:18.453
<v Speaker 4>you're you know, coming back and forth for feeds and

0:21:18.493 --> 0:21:20.572
<v Speaker 4>doing as much as you can while they're in hospital.

0:21:21.133 --> 0:21:24.453
<v Speaker 1>Yeah. Well, thank you Mony so much for sharing your story.

0:21:24.693 --> 0:21:28.453
<v Speaker 1>It's really remarkable and I'm really glad that the twins

0:21:28.533 --> 0:21:32.373
<v Speaker 1>and you are okay. And how are they today? Are

0:21:32.373 --> 0:21:32.973
<v Speaker 1>they wild?

0:21:33.493 --> 0:21:34.893
<v Speaker 5>Yeah, they're amazing.

0:21:35.053 --> 0:21:39.933
<v Speaker 4>So they've just been so determined since the beginning, and

0:21:40.253 --> 0:21:41.973
<v Speaker 4>it's really blown me away.

0:21:41.853 --> 0:21:44.813
<v Speaker 5>How robust and strong they are.

0:21:45.133 --> 0:21:49.013
<v Speaker 4>They're still a little short and little, i'd say for

0:21:49.133 --> 0:21:53.053
<v Speaker 4>two year olds, but they've been so active since the beginning.

0:21:53.293 --> 0:21:57.213
<v Speaker 4>They walked, you know, twelve months. They're talking a lot,

0:21:57.573 --> 0:22:01.813
<v Speaker 4>they love reading books, they're just they love climbing over things.

0:22:02.133 --> 0:22:04.293
<v Speaker 5>Yeah, I guess they're just normal two year olds.

0:22:04.373 --> 0:22:07.053
<v Speaker 4>And to be honest, we're quite scared of, you know,

0:22:07.133 --> 0:22:11.013
<v Speaker 4>what would happen with all the complications and how delayed

0:22:11.053 --> 0:22:13.812
<v Speaker 4>they might be, because that's a very real possibility with

0:22:14.413 --> 0:22:18.213
<v Speaker 4>twins with taps. And I think it's really like testament

0:22:18.293 --> 0:22:21.933
<v Speaker 4>to the treatment that we had and the treatment that

0:22:21.973 --> 0:22:26.133
<v Speaker 4>was available to us that it really helped them, especially

0:22:26.373 --> 0:22:28.773
<v Speaker 4>you know now with their development as well.

0:22:28.893 --> 0:22:31.253
<v Speaker 5>So yeah, I'm just so thankful.

0:22:30.893 --> 0:22:32.973
<v Speaker 4>To the doctors for getting us where we are today,

0:22:33.013 --> 0:22:37.173
<v Speaker 4>and they're just lovely little girls.

0:22:38.493 --> 0:22:41.332
<v Speaker 3>Because TABS is such a rare condition, I wanted to

0:22:41.373 --> 0:22:45.613
<v Speaker 3>ask our resident ob and gynecologist, doctor Bromin Devine about

0:22:45.773 --> 0:22:47.773
<v Speaker 3>how likely it is to come across it.

0:22:47.853 --> 0:22:52.173
<v Speaker 6>In Australia, we see monocoreonic twins in about one in

0:22:52.213 --> 0:22:55.893
<v Speaker 6>four hundred berths. It is more likely if you get

0:22:56.093 --> 0:22:59.933
<v Speaker 6>monocoreonic identical twins where the embryo splits, but they share

0:22:59.933 --> 0:23:03.853
<v Speaker 6>a placenter with IVF pregnancies, and that's probably because of

0:23:03.973 --> 0:23:06.292
<v Speaker 6>the way that we manipulate the embryos a little bit

0:23:06.293 --> 0:23:08.653
<v Speaker 6>in the lab or the media that we use. But

0:23:09.133 --> 0:23:13.773
<v Speaker 6>TABS or twin anemia polypcythemia sequence occurs in about three

0:23:13.933 --> 0:23:19.213
<v Speaker 6>to fifteen percent of monocoreonic twin pregnancies or MCDA twin

0:23:19.333 --> 0:23:24.133
<v Speaker 6>pregnancies that we see in Australia. Now, there's two reasons

0:23:24.133 --> 0:23:27.613
<v Speaker 6>that it can occur. Sometimes it's spontaneous and other times

0:23:27.613 --> 0:23:30.773
<v Speaker 6>it's because we do laser therapy. So when there's a

0:23:30.813 --> 0:23:34.733
<v Speaker 6>shared placenta, there are blood vessels that communicate between the

0:23:34.733 --> 0:23:37.693
<v Speaker 6>two twins because they've got one placenta between the two

0:23:37.773 --> 0:23:40.893
<v Speaker 6>of them. Sometimes, if there's a big blood vessel that's

0:23:40.893 --> 0:23:44.733
<v Speaker 6>connecting them, the twins can have major shifts in their

0:23:44.853 --> 0:23:47.173
<v Speaker 6>amniotic fluid and they can become very sick with the

0:23:47.173 --> 0:23:50.293
<v Speaker 6>condition that we've talked about before called twin twin transfusion.

0:23:50.773 --> 0:23:53.292
<v Speaker 6>One of the ways of treating twin twin transfusion is

0:23:53.333 --> 0:23:57.013
<v Speaker 6>to use laser therapy to disrupt that connecting blood vessel,

0:23:57.133 --> 0:23:58.852
<v Speaker 6>and one of the things that can happen as a

0:23:58.893 --> 0:24:02.173
<v Speaker 6>result of that is you can get little partial connections

0:24:02.333 --> 0:24:05.693
<v Speaker 6>or what we call partial anastemosis in the placenta, where

0:24:05.733 --> 0:24:08.813
<v Speaker 6>you get a little connection between an artery and a vein,

0:24:09.293 --> 0:24:12.213
<v Speaker 6>and that leads to one twin giving all their blood

0:24:12.253 --> 0:24:14.773
<v Speaker 6>cells to the other twin. So that twin that gives

0:24:14.813 --> 0:24:17.613
<v Speaker 6>the blood cells is called the donor, and it gets

0:24:17.653 --> 0:24:21.373
<v Speaker 6>a very low quantity of red blood cells and become anemic,

0:24:22.173 --> 0:24:24.812
<v Speaker 6>and the other twin, which is the recipient, gets a

0:24:24.933 --> 0:24:28.572
<v Speaker 6>much increased number of red blood cells, and that's a

0:24:28.613 --> 0:24:33.093
<v Speaker 6>condition called polycythemia, or that twin becomes polycythemic. Now it's

0:24:33.173 --> 0:24:36.093
<v Speaker 6>bad to be anemic and it's bad to be polycythemic.

0:24:36.453 --> 0:24:39.133
<v Speaker 6>So the poor little anemic twin doesn't grow, doesn't get

0:24:39.133 --> 0:24:41.773
<v Speaker 6>anywhere near as much oxygen or nutrients, and the other

0:24:41.853 --> 0:24:45.853
<v Speaker 6>twin can get really overloaded with a really sluggish blood

0:24:45.853 --> 0:24:49.773
<v Speaker 6>flow and get clots in blood vessels and things like that,

0:24:49.893 --> 0:24:53.893
<v Speaker 6>so it's dangerous for both twins. Interview. Turine transdusion is

0:24:53.893 --> 0:24:57.013
<v Speaker 6>one of the forms of treatment, or a partial exchange transdusion,

0:24:57.413 --> 0:24:59.773
<v Speaker 6>one of the forms of treatment that they do for

0:24:59.853 --> 0:25:03.173
<v Speaker 6>this condition. That's done by very specialist obstetricians known as

0:25:03.253 --> 0:25:06.693
<v Speaker 6>maternal fetal medicine specialists, and it's usually done at a

0:25:06.773 --> 0:25:10.613
<v Speaker 6>maternal feedal medicine clinic in one of the big tertiary hospitals.

0:25:10.853 --> 0:25:14.453
<v Speaker 6>They have specialist obstetricians who've done additional training in really

0:25:14.533 --> 0:25:17.453
<v Speaker 6>high risk pregnancies. And the other thing we do is

0:25:17.493 --> 0:25:20.573
<v Speaker 6>we monitor these twins very carefully by keeping a very

0:25:20.693 --> 0:25:23.092
<v Speaker 6>close eye on the blood flow in the brain because

0:25:23.133 --> 0:25:26.493
<v Speaker 6>we can see the sluggish blood flow to the polycythemic

0:25:26.573 --> 0:25:29.413
<v Speaker 6>twin and quite a rapid blood flow to the donor twin.

0:25:29.893 --> 0:25:33.053
<v Speaker 6>By checking on the blood flows using ultrasounds, so there's

0:25:33.093 --> 0:25:36.813
<v Speaker 6>a lot of intense monitoring that's done, and then sometimes

0:25:36.813 --> 0:25:38.493
<v Speaker 6>it's just a case of if it's getting out of

0:25:38.493 --> 0:25:40.773
<v Speaker 6>control or it's getting to a situation where it would

0:25:40.773 --> 0:25:43.133
<v Speaker 6>be better for the babies to be born, they will

0:25:43.173 --> 0:25:46.092
<v Speaker 6>actually make plans to deliver the babies earlier.

0:25:49.773 --> 0:25:52.293
<v Speaker 3>Darry of a Birth was hosted by me Kasi Luk.

0:25:52.293 --> 0:25:55.453
<v Speaker 3>It's with expert input from doctor Broman Divine. If you

0:25:55.573 --> 0:25:57.653
<v Speaker 3>like our show, don't forget to subscribe and rate. It

0:25:57.733 --> 0:26:00.612
<v Speaker 3>goes a long way to allowing us to continue sharing

0:26:00.653 --> 0:26:04.292
<v Speaker 3>your stories. This episode was produced by Ella Maitland with

0:26:04.413 --> 0:26:06.413
<v Speaker 3>audio production by Tina Mattlov