1 00:00:10,888 --> 00:00:14,808 Speaker 1: You're listening to a Mother Me podcast, Muma Me, your 2 00:00:14,848 --> 00:00:17,927 Speaker 1: acknowledges the traditional owners of the land and waters. This 3 00:00:18,088 --> 00:00:28,448 Speaker 1: podcast is recorded on in sickness and in health. Their 4 00:00:28,448 --> 00:00:32,008 Speaker 1: words usually reserved for traditional wedding vows. Not the beginning 5 00:00:32,007 --> 00:00:35,408 Speaker 1: of a relationship in your early twenties, But for Lucian Lars, 6 00:00:35,448 --> 00:00:37,528 Speaker 1: that was exactly how their story began. 7 00:00:37,928 --> 00:00:40,128 Speaker 2: So he would often come home from work and say 8 00:00:40,128 --> 00:00:44,327 Speaker 2: that I can't work I'm too sick. I was thinking, oh, 9 00:00:44,448 --> 00:00:46,888 Speaker 2: I don't know, this is not looking good, and then 10 00:00:47,008 --> 00:00:49,688 Speaker 2: he started saying, yeah, I just feel really I'm feeling 11 00:00:49,768 --> 00:00:50,848 Speaker 2: quite nauseous a lot. 12 00:00:51,408 --> 00:00:53,848 Speaker 1: The thing about sickness in your twenties is that you 13 00:00:53,928 --> 00:00:57,008 Speaker 1: carry an unshakable belief that you'll bounce back. You're young, 14 00:00:57,088 --> 00:01:00,968 Speaker 1: after all. But what happens when sickness lingers an unsolved 15 00:01:01,008 --> 00:01:04,128 Speaker 1: mystery that slowly takes over your life, your love and 16 00:01:04,168 --> 00:01:05,528 Speaker 1: the person you once work. 17 00:01:05,648 --> 00:01:08,967 Speaker 2: You're caring for this adult you know twenty four to seven, 18 00:01:09,048 --> 00:01:12,688 Speaker 2: you're you're in a care role. It's not partnership. You 19 00:01:12,768 --> 00:01:15,447 Speaker 2: can't go out together. You can't walk down the street together, 20 00:01:15,488 --> 00:01:17,368 Speaker 2: you can't go for a meal together. You can't go 21 00:01:17,408 --> 00:01:21,167 Speaker 2: see a film together. You can't do anything together. You're 22 00:01:21,208 --> 00:01:22,408 Speaker 2: missing out big time. 23 00:01:32,048 --> 00:01:34,768 Speaker 1: I'm Georgia Love and this is everyone has an eggs. 24 00:01:34,928 --> 00:01:37,088 Speaker 1: Come with me as we dive into a collection of 25 00:01:37,208 --> 00:01:41,208 Speaker 1: unconventional stories about relationships passed through the eyes and the 26 00:01:41,248 --> 00:01:44,488 Speaker 1: hearts of the very people who lived them. Are the 27 00:01:44,688 --> 00:01:47,728 Speaker 1: nineties a time of suburban freedom, the dawn of the 28 00:01:47,808 --> 00:01:51,528 Speaker 1: digital age, and truly iconic pop culdjure. But amid all 29 00:01:51,528 --> 00:01:54,448 Speaker 1: that goodness, it was also the moment Lucy found herself 30 00:01:54,488 --> 00:01:57,648 Speaker 1: freshly untethered from a less than desirable relationship. 31 00:01:58,008 --> 00:02:01,528 Speaker 2: I was twenty four. I had a daughter from a 32 00:02:01,568 --> 00:02:07,168 Speaker 2: previous relationship, she would have been about four, and I 33 00:02:07,208 --> 00:02:10,848 Speaker 2: left it by myself in a little flatgate hill in Brisbane, 34 00:02:10,888 --> 00:02:13,928 Speaker 2: one of the inner city suburbs there. And I had 35 00:02:13,928 --> 00:02:17,448 Speaker 2: just come from a relationship or dating somebody that turned 36 00:02:17,488 --> 00:02:20,968 Speaker 2: out to be paranoid, schizophrenic, and it became quite a 37 00:02:21,088 --> 00:02:26,048 Speaker 2: dangerous situation and he continued to stalk me. So I 38 00:02:26,088 --> 00:02:29,048 Speaker 2: was in quite a nervous state at that time. 39 00:02:29,488 --> 00:02:32,728 Speaker 1: Thankfully she wasn't alone. A wonderful group of friends rallied 40 00:02:32,728 --> 00:02:35,488 Speaker 1: around her, lifting her spirits and finding moments of joy 41 00:02:35,488 --> 00:02:36,088 Speaker 1: along the way. 42 00:02:36,728 --> 00:02:39,968 Speaker 2: So there was a group of us. We all were 43 00:02:39,968 --> 00:02:44,448 Speaker 2: a colorful bunch. I guess, a lot of different areas 44 00:02:44,448 --> 00:02:48,248 Speaker 2: of study going on and different types of work musicians 45 00:02:48,768 --> 00:02:52,688 Speaker 2: or photographer. Was another friend, a Jewelo, who was my 46 00:02:52,768 --> 00:02:56,608 Speaker 2: best female friend. I was studying fine art at the time. 47 00:02:57,208 --> 00:02:59,688 Speaker 2: We all used to go to a club called Babylon 48 00:02:59,728 --> 00:03:01,328 Speaker 2: and it was kind of under the ground in the 49 00:03:01,328 --> 00:03:04,008 Speaker 2: Brisbane CBD. And it was a place where lots of 50 00:03:04,048 --> 00:03:08,407 Speaker 2: alternate sort of groups or people went regularly. And because 51 00:03:08,448 --> 00:03:11,008 Speaker 2: Brisbane was a small place like that back then, you 52 00:03:11,328 --> 00:03:14,608 Speaker 2: kind of got to know people over time. But I 53 00:03:14,808 --> 00:03:19,248 Speaker 2: was at the Babylon one night and I was just 54 00:03:19,328 --> 00:03:21,567 Speaker 2: with a couple of my friends and I looked across 55 00:03:21,728 --> 00:03:24,688 Speaker 2: and he must have been sitting under a light, but 56 00:03:24,928 --> 00:03:29,368 Speaker 2: I noticed this fellow. I don't know what it was. 57 00:03:29,488 --> 00:03:35,048 Speaker 2: I found his appearance just absolutely striking. He was slightly 58 00:03:35,248 --> 00:03:38,448 Speaker 2: Viking esquy cord. He had a very strong sort of 59 00:03:38,528 --> 00:03:42,448 Speaker 2: Norwegian look. But it wasn't necessarily that it was just 60 00:03:42,568 --> 00:03:46,008 Speaker 2: something about him. It was his behavior, his body language. 61 00:03:46,728 --> 00:03:49,368 Speaker 2: He appeared to be really jovial when he was having 62 00:03:49,408 --> 00:03:52,848 Speaker 2: a lot of fun with his friends. And I was 63 00:03:52,968 --> 00:03:57,808 Speaker 2: just absolutely just so curious about him. I kept going 64 00:03:57,848 --> 00:04:01,408 Speaker 2: to the same place for a few more months, probably 65 00:04:01,448 --> 00:04:04,848 Speaker 2: once a fortnight or something, and I kept seeing him there. 66 00:04:05,208 --> 00:04:10,248 Speaker 2: And then one night I was dancing and he was dancing. 67 00:04:10,288 --> 00:04:14,648 Speaker 2: He bumped straight into me, and I turned around, thinking, 68 00:04:14,688 --> 00:04:17,848 Speaker 2: who is that? And you know who just bumped into me? 69 00:04:18,368 --> 00:04:22,488 Speaker 2: And it was him. And the first thing he said 70 00:04:22,488 --> 00:04:25,688 Speaker 2: to me was sorry, Bub, are you all right? And 71 00:04:26,207 --> 00:04:27,848 Speaker 2: I said yeah. I kind of felt a little bit 72 00:04:27,888 --> 00:04:32,967 Speaker 2: irritated at being called bub. But he was six foot 73 00:04:33,048 --> 00:04:37,328 Speaker 2: four and just a really large bill, and he had 74 00:04:37,327 --> 00:04:42,088 Speaker 2: a really kind face and really kind gestures about him, 75 00:04:42,207 --> 00:04:47,688 Speaker 2: very protective. I felt that immediately. I felt like this 76 00:04:47,768 --> 00:04:50,208 Speaker 2: person is safe. He felt safe to me, and I 77 00:04:50,248 --> 00:04:54,008 Speaker 2: think maybe, coming through what I had been through, this 78 00:04:54,048 --> 00:04:57,927 Speaker 2: seemed like somebody that I could really spend time with. 79 00:04:58,528 --> 00:05:03,647 Speaker 2: He said, let's not have an accident interfere with a 80 00:05:03,688 --> 00:05:08,248 Speaker 2: good dance, words to that effect. So we danced and 81 00:05:08,288 --> 00:05:10,688 Speaker 2: then we sort of left the dance floor. 82 00:05:10,688 --> 00:05:14,168 Speaker 1: Eventually, his name was Lars and he was a regular 83 00:05:14,288 --> 00:05:17,208 Speaker 1: Babylon too, So the next time Lucy went back, it 84 00:05:17,327 --> 00:05:20,207 Speaker 1: was no surprise she'd seen there again, but this time, 85 00:05:20,248 --> 00:05:22,928 Speaker 1: instead of losing each other in the loud pulsing chaos 86 00:05:22,928 --> 00:05:25,647 Speaker 1: of the dance floor. They slipped away, sneaking out to 87 00:05:25,688 --> 00:05:28,288 Speaker 1: somewhere quieter to learn a little more about each other. 88 00:05:28,688 --> 00:05:32,448 Speaker 2: We went outside and sat on a bench and he 89 00:05:33,248 --> 00:05:39,288 Speaker 2: was chainsmoking. He'd left school at fourteen, and he spoke 90 00:05:39,368 --> 00:05:41,007 Speaker 2: in a way that I guess a lot of people 91 00:05:41,048 --> 00:05:46,488 Speaker 2: would have described as incredibly rough. Definitely, it became clear too, 92 00:05:46,568 --> 00:05:50,647 Speaker 2: really quickly that he came from a pretty low socioeconomic 93 00:05:50,847 --> 00:05:53,527 Speaker 2: kind of background, from a family that really had a 94 00:05:53,528 --> 00:05:58,807 Speaker 2: lot of struggles, but were also really close. And we 95 00:05:58,888 --> 00:06:01,208 Speaker 2: talked a little bit about music. It was clear we 96 00:06:01,248 --> 00:06:05,767 Speaker 2: had very similar interests there, and I just felt endeared 97 00:06:05,847 --> 00:06:09,128 Speaker 2: to him. I thought, well, this is somebody who comes 98 00:06:09,168 --> 00:06:14,808 Speaker 2: from a background of adversity and struggle. I started asking 99 00:06:14,847 --> 00:06:19,008 Speaker 2: him about his family and he said, you know, my 100 00:06:19,087 --> 00:06:22,847 Speaker 2: dad's been in prison since I was two, and I 101 00:06:22,888 --> 00:06:27,087 Speaker 2: was like, okay, another thing. I'd never really known anybody 102 00:06:27,128 --> 00:06:31,488 Speaker 2: before who knew anyone who was incarcerated. So I said, oh, 103 00:06:31,568 --> 00:06:34,568 Speaker 2: what is since you were two is a long time 104 00:06:34,648 --> 00:06:36,608 Speaker 2: and he said, oh, well, he's been in and out, 105 00:06:36,888 --> 00:06:38,967 Speaker 2: but you know, the last time he got put away 106 00:06:39,168 --> 00:06:42,767 Speaker 2: was quite a long sentence. His mother had quite a 107 00:06:42,768 --> 00:06:47,888 Speaker 2: few abusive partners between his father and the time we 108 00:06:47,888 --> 00:06:52,047 Speaker 2: were at He also said that he had had trouble 109 00:06:52,048 --> 00:06:55,608 Speaker 2: with the police. He was nineteen and I was twenty four, 110 00:06:55,967 --> 00:06:58,087 Speaker 2: so it was quite an age gap. I just presumed 111 00:06:58,128 --> 00:07:00,048 Speaker 2: he was older than me. I didn't think he was 112 00:07:00,207 --> 00:07:02,847 Speaker 2: younger than me at all. He had quite a beard, 113 00:07:02,888 --> 00:07:06,128 Speaker 2: and I guess maybe his height and everything as well. 114 00:07:06,168 --> 00:07:08,448 Speaker 2: It just didn't occur to me that he was actually 115 00:07:08,448 --> 00:07:12,448 Speaker 2: younger than me. Anyway, we went back inside the club, 116 00:07:12,528 --> 00:07:15,088 Speaker 2: and then might have been a couple of weeks after 117 00:07:15,128 --> 00:07:18,047 Speaker 2: that we met up again and I ended up saying, 118 00:07:18,528 --> 00:07:20,688 Speaker 2: do you want to have a sleepover at my place? 119 00:07:21,848 --> 00:07:24,807 Speaker 2: He said, are you sure? And I said yeah, just 120 00:07:25,208 --> 00:07:28,008 Speaker 2: they had to catch huge taxi rides back out to 121 00:07:28,528 --> 00:07:31,128 Speaker 2: Sunny Bank where they were living, and I lived in 122 00:07:31,128 --> 00:07:32,968 Speaker 2: a city, and I said, well, it's close for you. 123 00:07:33,048 --> 00:07:35,807 Speaker 2: If you want to stay, you'd be very welcome. I 124 00:07:35,808 --> 00:07:37,408 Speaker 2: did feel really safe. 125 00:07:37,288 --> 00:07:40,248 Speaker 1: And so the first sleep over Milestone was reached, and 126 00:07:40,328 --> 00:07:42,408 Speaker 1: for the most part it went off without a hitch. 127 00:07:42,688 --> 00:07:45,288 Speaker 1: But there was one small thing Lucy couldn't quite ignore, 128 00:07:45,607 --> 00:07:47,648 Speaker 1: something that felt a little odd. 129 00:07:48,168 --> 00:07:51,208 Speaker 2: We caught a taxi that night together and in the taxi. 130 00:07:51,248 --> 00:07:55,127 Speaker 2: On the way, he started doing his shoelaces up really tight. 131 00:07:56,448 --> 00:07:58,248 Speaker 2: I was sort of watching him, and I was thinking, Oh, 132 00:07:58,288 --> 00:08:02,448 Speaker 2: that's strange. And then we got out of the taxi 133 00:08:02,848 --> 00:08:04,608 Speaker 2: got to the place where I lived. It was a 134 00:08:04,727 --> 00:08:07,568 Speaker 2: very old house divided into small flats. So we walked 135 00:08:07,607 --> 00:08:10,848 Speaker 2: up the hallway and got to my flat door. He 136 00:08:11,008 --> 00:08:14,288 Speaker 2: was looking around everywhere in this hallway, and he was 137 00:08:14,328 --> 00:08:16,727 Speaker 2: looking at the big entry door that we'd just come through, 138 00:08:16,968 --> 00:08:20,448 Speaker 2: and he was just scoping everything out. He was quite 139 00:08:20,528 --> 00:08:22,728 Speaker 2: on edge. And we got into the flat and he 140 00:08:22,768 --> 00:08:24,568 Speaker 2: started looking around and he asked me if there were 141 00:08:24,607 --> 00:08:27,168 Speaker 2: any other doors to the flat and I said, oh, yeah, 142 00:08:27,208 --> 00:08:29,608 Speaker 2: there's this one here, but it doesn't go to anything. 143 00:08:29,648 --> 00:08:32,528 Speaker 2: It just has a drop off into a back piece 144 00:08:32,568 --> 00:08:35,727 Speaker 2: of land there. And he was like, oh yeah, oh yeah. 145 00:08:35,848 --> 00:08:39,208 Speaker 2: I said, are you okay? You just seem really on edge. 146 00:08:39,288 --> 00:08:42,288 Speaker 2: He said, oh, we'll see. I kind of thought that 147 00:08:43,128 --> 00:08:45,368 Speaker 2: for a girl like you to invite me to stay, 148 00:08:46,288 --> 00:08:48,488 Speaker 2: it could be a trap or a setup. And I 149 00:08:48,568 --> 00:08:53,128 Speaker 2: was like, oh no, not at all, honestly, and he 150 00:08:53,208 --> 00:08:55,648 Speaker 2: was like it just seemed too good to be true, really, 151 00:08:55,848 --> 00:09:00,488 Speaker 2: And I said no, no, it's fine. He said, oh, yeah, yeah, yeah, 152 00:09:00,568 --> 00:09:02,088 Speaker 2: So if I need to get out, I can just 153 00:09:02,248 --> 00:09:04,448 Speaker 2: go through that door. We came through and I said yes, 154 00:09:04,528 --> 00:09:06,688 Speaker 2: and you know what, I won't lock it or anything, 155 00:09:06,968 --> 00:09:10,048 Speaker 2: and he said no, Yeah, that's all right, that's all right. 156 00:09:10,328 --> 00:09:13,208 Speaker 2: He relaxed after a while and we had a nice night, 157 00:09:13,328 --> 00:09:15,608 Speaker 2: and then he went home in the morning and asked 158 00:09:15,648 --> 00:09:18,808 Speaker 2: if he could call me and I said yes. So 159 00:09:18,928 --> 00:09:21,288 Speaker 2: we exchange phone numbers. 160 00:09:21,248 --> 00:09:23,808 Speaker 1: And then it happened again the next weekend and the 161 00:09:23,808 --> 00:09:27,088 Speaker 1: one after that. With each passing visit, Lucy felt safe 162 00:09:27,088 --> 00:09:30,288 Speaker 1: in Lars's company, and from that sense of ease, something 163 00:09:30,328 --> 00:09:33,968 Speaker 1: deeper began to grow between them. Things were just easy. 164 00:09:34,568 --> 00:09:36,928 Speaker 2: We might watch the odd film, but mostly we just 165 00:09:37,128 --> 00:09:40,368 Speaker 2: laid in bed and talked. He would talk about what 166 00:09:40,448 --> 00:09:42,688 Speaker 2: he would love to do with life, like he'd love 167 00:09:42,728 --> 00:09:46,368 Speaker 2: to live in a city somewhere, he would love to travel. 168 00:09:46,408 --> 00:09:48,368 Speaker 2: He'd like to see what else there was in the world. 169 00:09:48,728 --> 00:09:51,808 Speaker 2: Traveling is something I'd done a lot of, and I 170 00:09:51,888 --> 00:09:54,808 Speaker 2: said I'd love to travel with you one day. He 171 00:09:54,808 --> 00:09:56,768 Speaker 2: said he'd really love to live in a place where 172 00:09:56,768 --> 00:09:59,088 Speaker 2: you could grow food, which was something I had a 173 00:09:59,128 --> 00:10:02,008 Speaker 2: big interest in as well. At that stage, it was 174 00:10:02,048 --> 00:10:04,408 Speaker 2: clear we just grew up on completely different sides of 175 00:10:04,448 --> 00:10:08,128 Speaker 2: the track, but we were also very similar in our 176 00:10:08,328 --> 00:10:11,128 Speaker 2: sort of level of compassion for the people and kindness 177 00:10:11,168 --> 00:10:14,688 Speaker 2: for one another. It just grew, and it grew really 178 00:10:14,968 --> 00:10:17,728 Speaker 2: really deep as well. It was an understanding that we 179 00:10:17,768 --> 00:10:20,128 Speaker 2: had between us that we didn't speak a lot of 180 00:10:20,168 --> 00:10:25,888 Speaker 2: the time, just a connection like I hadn't known possible 181 00:10:25,968 --> 00:10:28,448 Speaker 2: before when you meet somebody who comes from such different 182 00:10:28,648 --> 00:10:32,568 Speaker 2: background and circumstances. He worked at a press metal factory, 183 00:10:33,328 --> 00:10:35,487 Speaker 2: and I went to stay at his place, and his 184 00:10:35,528 --> 00:10:39,408 Speaker 2: mother was really amazing. She said, since this fellow has 185 00:10:39,448 --> 00:10:41,488 Speaker 2: been bothering you where you live, would you like to 186 00:10:41,648 --> 00:10:44,808 Speaker 2: stay with us for a while. That means you're away 187 00:10:44,808 --> 00:10:47,048 Speaker 2: from the area you were in. He doesn't know where 188 00:10:47,088 --> 00:10:49,368 Speaker 2: you are, and you can be here for six weeks 189 00:10:49,448 --> 00:10:51,968 Speaker 2: or something. And then I took them up on the offer, 190 00:10:52,408 --> 00:11:00,368 Speaker 2: and I lived there for six weeks. When I was 191 00:11:00,648 --> 00:11:03,528 Speaker 2: out there at his mother's place, I was studying, so 192 00:11:03,968 --> 00:11:06,168 Speaker 2: you know, we'd get up in the morning. He would 193 00:11:06,208 --> 00:11:09,488 Speaker 2: often be gone to his work around six in the morning, 194 00:11:10,208 --> 00:11:13,368 Speaker 2: but I had my daughter there. Sometimes I'd be getting 195 00:11:13,368 --> 00:11:15,288 Speaker 2: her ready to go to daycare, and I would often 196 00:11:15,328 --> 00:11:18,408 Speaker 2: have a class to attend later in the day and 197 00:11:18,448 --> 00:11:21,128 Speaker 2: we'd just meet up back at his place later on 198 00:11:21,168 --> 00:11:22,928 Speaker 2: if I didn't have a class in town, I didn't. 199 00:11:22,928 --> 00:11:25,008 Speaker 2: I stayed there and I helped his mother with things. 200 00:11:25,848 --> 00:11:28,248 Speaker 2: She was setting up a veggy garden and things like that. 201 00:11:28,808 --> 00:11:30,808 Speaker 2: He said to me when we were out there that 202 00:11:30,888 --> 00:11:34,328 Speaker 2: he needed a word that he couldn't find, and I said, well, 203 00:11:34,328 --> 00:11:37,808 Speaker 2: what to describe? And then he said, to describe love 204 00:11:37,888 --> 00:11:40,528 Speaker 2: that isn't just love, it's more than love. And then 205 00:11:40,568 --> 00:11:43,448 Speaker 2: he said to me, is it loath? And I said no, 206 00:11:43,968 --> 00:11:46,448 Speaker 2: I don't think it's loth And he was saying, well, 207 00:11:46,488 --> 00:11:48,888 Speaker 2: it's like I just need a word to describe love 208 00:11:48,928 --> 00:11:52,288 Speaker 2: that is something you want for the rest of your life. 209 00:11:52,328 --> 00:11:55,448 Speaker 2: And I said I'm not really sure. And he said, well, well, 210 00:11:55,488 --> 00:11:57,848 Speaker 2: if you find the word, that's how I feel about you. 211 00:11:58,648 --> 00:12:03,088 Speaker 2: And I said I felt the same. I absolutely did. 212 00:12:03,648 --> 00:12:07,607 Speaker 2: I loved how kind he was. What I noticed when 213 00:12:07,688 --> 00:12:10,928 Speaker 2: we were out at his mother this house was that 214 00:12:11,408 --> 00:12:15,808 Speaker 2: he'd go to work sometimes, which sounded really rough, this workplace, 215 00:12:16,608 --> 00:12:20,608 Speaker 2: and there were often fights there and things. I was 216 00:12:20,648 --> 00:12:26,208 Speaker 2: starting to see this picture of this person was always 217 00:12:26,328 --> 00:12:32,968 Speaker 2: getting into terrifying situations, and he was his anxiety was growing, 218 00:12:34,288 --> 00:12:38,408 Speaker 2: and I just put it down to these probably frightening experiences. 219 00:12:38,968 --> 00:12:41,168 Speaker 2: So he would often come home from work and say 220 00:12:41,168 --> 00:12:44,448 Speaker 2: that I can't work I'm too sick. And I was thinking, oh, 221 00:12:44,688 --> 00:12:47,248 Speaker 2: this is starting to feel a bit hopeless. As much 222 00:12:47,288 --> 00:12:49,128 Speaker 2: as I loved him, I felt like this is kind 223 00:12:49,128 --> 00:12:52,368 Speaker 2: of seeming hopeless. And I said, well, what sort of 224 00:12:52,448 --> 00:12:54,848 Speaker 2: sick is it? And he said, oh, I just I 225 00:12:54,888 --> 00:12:56,928 Speaker 2: have to keep leaving work to have a cigarette to 226 00:12:57,008 --> 00:13:00,528 Speaker 2: calm down. And I was thinking, oh, I don't know, 227 00:13:00,808 --> 00:13:04,128 Speaker 2: this is not looking good. And then he started saying, yeah, 228 00:13:04,168 --> 00:13:06,727 Speaker 2: I just feel really I'm feeling quite nauseous a lot. 229 00:13:06,768 --> 00:13:09,368 Speaker 2: And I was saying, oh, that might be because you're 230 00:13:09,368 --> 00:13:13,488 Speaker 2: anxiety highness. Yeah, no, no shit, you know, my anxiety 231 00:13:13,608 --> 00:13:14,368 Speaker 2: is through the roof. 232 00:13:14,768 --> 00:13:16,568 Speaker 1: So they decided to make a change. 233 00:13:16,928 --> 00:13:18,968 Speaker 2: We did make the decision just to move into the 234 00:13:19,008 --> 00:13:22,448 Speaker 2: city together and try to start the beginning of what 235 00:13:22,528 --> 00:13:25,008 Speaker 2: that life looked like to us. I would finish my 236 00:13:25,688 --> 00:13:29,768 Speaker 2: finer degree. He quit his job in the press metal 237 00:13:29,808 --> 00:13:33,208 Speaker 2: factory and wanted to get a job in the city somewhere. 238 00:13:34,008 --> 00:13:37,488 Speaker 2: I loved him. I wanted to do anything I could 239 00:13:37,528 --> 00:13:41,568 Speaker 2: to help him. I had a respect for him as well. 240 00:13:41,768 --> 00:13:47,448 Speaker 2: It was somebody who had faced all of these struggles 241 00:13:47,488 --> 00:13:50,888 Speaker 2: and hurdles but had such a desire to make a 242 00:13:50,928 --> 00:13:55,328 Speaker 2: different life to what he'd had. I loved his warmth 243 00:13:55,528 --> 00:13:59,648 Speaker 2: and his compassion and his kindness. He was so kind, 244 00:14:00,728 --> 00:14:04,968 Speaker 2: He was kind to everybody. That speaks a lot to me, 245 00:14:05,808 --> 00:14:08,248 Speaker 2: the level of compassion that he had for his mother 246 00:14:08,328 --> 00:14:13,088 Speaker 2: and understand her situation, the way he was very protective 247 00:14:13,168 --> 00:14:17,728 Speaker 2: of his siblings as well, and just really protective of me. 248 00:14:18,648 --> 00:14:22,808 Speaker 2: He loved my little daughter. I just loved who he was. 249 00:14:23,768 --> 00:14:28,128 Speaker 2: Who he was deep down was just so special. But 250 00:14:28,208 --> 00:14:30,888 Speaker 2: by the time we moved to the city, he was 251 00:14:30,928 --> 00:14:34,608 Speaker 2: finding it very hard to function normally. 252 00:14:36,968 --> 00:14:39,728 Speaker 1: Something felled off, but Lucy couldn't quite put her finger 253 00:14:39,768 --> 00:14:42,608 Speaker 1: on what. And around that same time, the people who 254 00:14:42,648 --> 00:14:45,728 Speaker 1: loved her most had started to quietly and some not 255 00:14:45,848 --> 00:14:50,528 Speaker 1: so quietly, way in on the relationship too. 256 00:14:52,088 --> 00:14:55,008 Speaker 2: My parents did not like the idea of this at all. 257 00:14:56,008 --> 00:14:58,648 Speaker 2: I didn't talk to my family about it. I just 258 00:14:58,728 --> 00:15:01,848 Speaker 2: knew that for who Las was and what his background was, 259 00:15:02,088 --> 00:15:05,688 Speaker 2: it would not be accepted. My friends were split. I 260 00:15:05,728 --> 00:15:09,488 Speaker 2: had some friends who were very cynical about him and 261 00:15:09,768 --> 00:15:13,368 Speaker 2: saying you know, don't you notice that he's unwell quite 262 00:15:13,408 --> 00:15:17,088 Speaker 2: often these days? And I was saying, well, yeah, I 263 00:15:17,128 --> 00:15:19,408 Speaker 2: think it has something to do with anxiety, and they 264 00:15:19,408 --> 00:15:24,528 Speaker 2: were saying, it's clearly he's using substances. He smokes like 265 00:15:24,568 --> 00:15:27,888 Speaker 2: a chimney, you know, no wonder he's unwell. Very judgmental. 266 00:15:28,328 --> 00:15:31,248 Speaker 2: Also in saying to me that they were worried for me, 267 00:15:31,768 --> 00:15:35,368 Speaker 2: is this guy violent? He's a very big fellow. He's 268 00:15:35,408 --> 00:15:38,608 Speaker 2: really rough in the way he speaks. I just couldn't 269 00:15:38,608 --> 00:15:42,368 Speaker 2: be bothered trying to convince those people that he was 270 00:15:42,448 --> 00:15:45,288 Speaker 2: anything than what they wanted to think he was. On 271 00:15:45,328 --> 00:15:48,168 Speaker 2: the other hand, I had some friends who started to 272 00:15:48,768 --> 00:15:52,968 Speaker 2: become friends with him and really respected him. It made 273 00:15:53,048 --> 00:15:56,288 Speaker 2: me sad for him because I thought, if a lot 274 00:15:56,328 --> 00:15:58,808 Speaker 2: of people are judging people this way, how do people 275 00:15:58,888 --> 00:16:02,368 Speaker 2: get out of their situation? Because these people have decided 276 00:16:02,408 --> 00:16:05,048 Speaker 2: this about him. And these people, too, were what you 277 00:16:05,088 --> 00:16:09,048 Speaker 2: would call open minded people, but they had decided that 278 00:16:09,448 --> 00:16:13,248 Speaker 2: by the looks of him, because of his behavior. There's 279 00:16:13,248 --> 00:16:15,728 Speaker 2: obviously stuff going on, the fact that his father was 280 00:16:15,768 --> 00:16:18,368 Speaker 2: in prison. It just made me think, well, how can 281 00:16:18,408 --> 00:16:23,168 Speaker 2: anybody get anywhere when they're being judged like that? So harshly, 282 00:16:23,848 --> 00:16:28,608 Speaker 2: so I cut off from people who were judging him badly. 283 00:16:29,088 --> 00:16:30,768 Speaker 2: I didn't want to hear from them. I didn't want 284 00:16:30,768 --> 00:16:33,768 Speaker 2: anything to do with them. Obviously, my friendships with the 285 00:16:33,768 --> 00:16:38,248 Speaker 2: people who did accept and love Lars became stronger friendships. 286 00:16:38,688 --> 00:16:42,488 Speaker 2: It sort of divided my friendship group. It was us 287 00:16:42,528 --> 00:16:45,488 Speaker 2: and these few people around us that did accept and 288 00:16:45,528 --> 00:16:47,448 Speaker 2: did love him also. 289 00:16:47,808 --> 00:16:50,528 Speaker 1: And then there was also the most unexpected advocate of all, 290 00:16:50,968 --> 00:16:53,608 Speaker 1: Lucy's ex Robert, the father of her daughter. 291 00:16:54,088 --> 00:16:57,968 Speaker 2: Although we had separated, we cared for one another immensely 292 00:16:58,088 --> 00:17:02,128 Speaker 2: and we were friends and just had our daughter's best 293 00:17:02,128 --> 00:17:09,568 Speaker 2: interest at heart. Robert is a mathematical physicist, and he 294 00:17:10,687 --> 00:17:16,447 Speaker 2: had some unusual interests. I guess I really appreciate the 295 00:17:16,488 --> 00:17:22,728 Speaker 2: culture about Robert, but I think he actually found Lars 296 00:17:22,808 --> 00:17:27,888 Speaker 2: just super interesting. And I guess because he is the 297 00:17:27,968 --> 00:17:31,888 Speaker 2: father of my daughter, he had an extra I guess 298 00:17:32,248 --> 00:17:36,447 Speaker 2: level of concern we both did for each other, because 299 00:17:36,488 --> 00:17:40,808 Speaker 2: whoever we partnered with would be exposed to our child. 300 00:17:41,568 --> 00:17:44,408 Speaker 2: In the beginning too, feeling that he didn't have a concern, 301 00:17:44,528 --> 00:17:47,447 Speaker 2: whereas I had these other people saying, oh, you know, 302 00:17:49,128 --> 00:17:51,608 Speaker 2: you don't know where he's come from, and he's this 303 00:17:51,728 --> 00:17:55,088 Speaker 2: and he's that. But immediately I felt like Robert took 304 00:17:55,168 --> 00:17:57,248 Speaker 2: to him and appreciated him. 305 00:17:57,568 --> 00:18:00,288 Speaker 1: Of course, there were tensions within the wider friendship group, 306 00:18:00,528 --> 00:18:03,128 Speaker 1: but Lucy and Lars had their own close circle and 307 00:18:03,168 --> 00:18:06,007 Speaker 1: the promise of new beginnings on the horizon, even if 308 00:18:06,048 --> 00:18:08,288 Speaker 1: those beginnings carried their own set of challenges. 309 00:18:08,808 --> 00:18:13,088 Speaker 2: It must have been a nine months we'd been together, 310 00:18:13,288 --> 00:18:16,408 Speaker 2: and then we got a little house together in West End. 311 00:18:17,248 --> 00:18:20,768 Speaker 2: He was making attempts to find work but finding it 312 00:18:20,848 --> 00:18:24,728 Speaker 2: really difficult. He did get a couple of interviews for 313 00:18:24,848 --> 00:18:28,328 Speaker 2: warehouse jobs, and he tried to go, but started to 314 00:18:28,368 --> 00:18:30,848 Speaker 2: feel really sick when the time came to go, and 315 00:18:30,888 --> 00:18:35,288 Speaker 2: I would say, it's just anxiety. I felt really sorry 316 00:18:35,288 --> 00:18:38,167 Speaker 2: for him, but I did it sometimes start to get impatient. 317 00:18:38,688 --> 00:18:42,088 Speaker 2: It was very hard to get to the bottom of 318 00:18:42,128 --> 00:18:45,368 Speaker 2: this anxiety. It was just this thing. I don't get it. 319 00:18:45,408 --> 00:18:51,688 Speaker 2: He's got everything it takes to be this incredible person, 320 00:18:52,808 --> 00:18:56,768 Speaker 2: but it's not happening. And I couldn't understand what it was. 321 00:18:56,928 --> 00:18:59,048 Speaker 2: And it was hard for me to not listen to 322 00:18:59,088 --> 00:19:02,208 Speaker 2: people who were saying that there might be substances involved. 323 00:19:04,928 --> 00:19:11,368 Speaker 2: He did go from being a really funny fun person 324 00:19:12,248 --> 00:19:15,368 Speaker 2: who would go out of his way to help anybody 325 00:19:16,488 --> 00:19:20,288 Speaker 2: to somebody who just couldn't even help himself. He couldn't 326 00:19:20,328 --> 00:19:24,368 Speaker 2: even leave his bed, couldn't reach the front door without 327 00:19:24,408 --> 00:19:28,408 Speaker 2: a panic attack, couldn't check the ladder box. Even though 328 00:19:28,448 --> 00:19:32,048 Speaker 2: he was super fun and funny, there were these other things, 329 00:19:32,448 --> 00:19:35,408 Speaker 2: quickly checking the room to see where the exits were 330 00:19:35,528 --> 00:19:38,368 Speaker 2: and making sure your shoes were on tight in case 331 00:19:38,408 --> 00:19:41,768 Speaker 2: you had to run things that back then seemed to 332 00:19:41,808 --> 00:19:45,248 Speaker 2: me there's a little bit of paranoia about him. It's 333 00:19:45,288 --> 00:19:49,288 Speaker 2: a strange mix, because when he wasn't showing signs of 334 00:19:49,328 --> 00:19:52,888 Speaker 2: a little bit of paranoia, he was super good, fun 335 00:19:53,248 --> 00:19:56,608 Speaker 2: and funny. We'd wake up in the morning on a 336 00:19:56,648 --> 00:20:00,687 Speaker 2: regular day and I might have a class to go to, 337 00:20:00,968 --> 00:20:02,688 Speaker 2: or I have my daughter to get to day care. 338 00:20:03,448 --> 00:20:06,288 Speaker 2: So my days were very there was pattern, but you know, 339 00:20:06,328 --> 00:20:09,048 Speaker 2: I was coming and going at different times, and so 340 00:20:09,208 --> 00:20:11,608 Speaker 2: I might go to UNI and then come home at 341 00:20:11,608 --> 00:20:15,167 Speaker 2: around two o'clock and he would just be sitting in 342 00:20:15,208 --> 00:20:17,768 Speaker 2: the living room looking like he really hadn't done much 343 00:20:17,768 --> 00:20:22,967 Speaker 2: at all. I was starting to get frustrated, and I 344 00:20:23,008 --> 00:20:27,288 Speaker 2: just couldn't understand it. Was trying. For a while, I 345 00:20:27,288 --> 00:20:29,768 Speaker 2: would say, well, let's let's go somewhere, let's go for 346 00:20:29,808 --> 00:20:32,407 Speaker 2: a walk, let's go down and have a coffee. And 347 00:20:32,448 --> 00:20:35,128 Speaker 2: he would say, yep, yep, that sounds good, that sounds good, 348 00:20:35,168 --> 00:20:38,648 Speaker 2: and he'd sort of put his shoes on and then say, oh, 349 00:20:38,688 --> 00:20:40,608 Speaker 2: you know, don't sort of feel like it right now. 350 00:20:40,648 --> 00:20:43,328 Speaker 2: And I was like, why, you know, I'm just feeling 351 00:20:43,328 --> 00:20:45,608 Speaker 2: really anxious at the moment, and I just I would 352 00:20:45,648 --> 00:20:47,928 Speaker 2: love to go with you, but I you know, sometimes 353 00:20:47,968 --> 00:20:51,528 Speaker 2: he would just get so frustrated and upset with himself 354 00:20:51,568 --> 00:20:53,568 Speaker 2: and he'd say, I don't care, I'm going to do it. 355 00:20:53,568 --> 00:20:55,088 Speaker 2: I'm going to do it. I'm just going to do it. 356 00:20:55,568 --> 00:20:58,927 Speaker 1: But the reality was he couldn't, and that frustrating cycle 357 00:20:59,088 --> 00:21:02,768 Speaker 1: soon became the norm. Determined to finances, Lucy started to 358 00:21:02,768 --> 00:21:05,288 Speaker 1: take matters into her own hands and sort out the 359 00:21:05,328 --> 00:21:09,048 Speaker 1: expertise of a professional to unravel the health related mystery. 360 00:21:09,248 --> 00:21:12,248 Speaker 2: We got an appointment in a clinic, so we went 361 00:21:12,288 --> 00:21:16,488 Speaker 2: to that clinic once a week for about eight or 362 00:21:16,488 --> 00:21:19,488 Speaker 2: twelve weeks, I think it was. He had a really 363 00:21:19,568 --> 00:21:24,768 Speaker 2: lovely counselor there, and she said that I believe that 364 00:21:24,808 --> 00:21:28,207 Speaker 2: you're agoraphobic and you have a panic disorder. So what 365 00:21:28,248 --> 00:21:30,728 Speaker 2: you're experiencing when you want to go to a job 366 00:21:30,728 --> 00:21:36,048 Speaker 2: interview is a panic attack, and what you're experiencing when 367 00:21:36,088 --> 00:21:39,048 Speaker 2: you're struggling to get out the front door is what 368 00:21:39,088 --> 00:21:41,808 Speaker 2: we call agrophobia, is the fear of the outdoors and 369 00:21:41,848 --> 00:21:45,648 Speaker 2: open spaces. That made a lot of sense to him. 370 00:21:46,008 --> 00:21:49,248 Speaker 2: It was like, oh, wow, Wow, we finally have some 371 00:21:49,288 --> 00:21:52,608 Speaker 2: sort of diagnosis to work with. Now we can actually 372 00:21:53,368 --> 00:21:56,328 Speaker 2: we can do this. Part of getting him into the 373 00:21:56,368 --> 00:21:59,768 Speaker 2: program at the hospital was that they gave him certain 374 00:21:59,848 --> 00:22:03,248 Speaker 2: exercises to do where he would sort of learn to 375 00:22:03,768 --> 00:22:08,848 Speaker 2: become more desensitized to the feelings of their anxiety and 376 00:22:08,888 --> 00:22:11,448 Speaker 2: the fear and going outdoors. So he would say, yeah, 377 00:22:11,568 --> 00:22:12,967 Speaker 2: I'm going to do this. I'm going to do this, 378 00:22:13,288 --> 00:22:15,808 Speaker 2: and so we'd oh, okay, So we would get our 379 00:22:15,848 --> 00:22:19,968 Speaker 2: stuff together, put our shoes on, go to the front door, 380 00:22:20,008 --> 00:22:22,488 Speaker 2: walk out, go down the street, and he'd sort of 381 00:22:22,528 --> 00:22:26,488 Speaker 2: have to stop, sit down wherever he was. He would say, 382 00:22:26,488 --> 00:22:29,967 Speaker 2: I think I'm going to pass out, and I oh, no, 383 00:22:30,568 --> 00:22:33,927 Speaker 2: I just want to have a cigarette, and it just 384 00:22:33,968 --> 00:22:38,967 Speaker 2: seemed hopeless. It was just hopeless. And then he would say, yet, Na, 385 00:22:39,048 --> 00:22:41,208 Speaker 2: I'm sorry I'm just going to have to go back home, 386 00:22:41,248 --> 00:22:44,088 Speaker 2: but you go ahead, and I couldn't go ahead. It 387 00:22:44,208 --> 00:22:48,008 Speaker 2: was so upsetting, it was so distressing. No matter how 388 00:22:48,048 --> 00:22:50,407 Speaker 2: long we went to the program at the hospital, no 389 00:22:50,488 --> 00:22:54,368 Speaker 2: matter how many of the exercises he did or tried 390 00:22:54,408 --> 00:22:58,248 Speaker 2: to do, it just wasn't getting any better. And in fact, 391 00:22:58,368 --> 00:23:00,168 Speaker 2: it just seemed to be getting worse. 392 00:23:00,488 --> 00:23:03,888 Speaker 1: And they continued to get worse. A year later, still 393 00:23:03,928 --> 00:23:05,128 Speaker 1: no signs of recovery. 394 00:23:05,448 --> 00:23:10,208 Speaker 2: He was becoming really incapacitated. He was starting to get 395 00:23:10,248 --> 00:23:13,407 Speaker 2: to the point where he couldn't go and get food 396 00:23:13,448 --> 00:23:17,008 Speaker 2: for himself during the day. I couldn't just leave him 397 00:23:17,048 --> 00:23:20,248 Speaker 2: like that. I did have the friends that we were 398 00:23:20,248 --> 00:23:23,488 Speaker 2: closed to would go around and check on him sometimes. 399 00:23:24,288 --> 00:23:27,208 Speaker 2: One day, after about a year and a half or so, 400 00:23:27,528 --> 00:23:30,687 Speaker 2: it was a really really hot Brisbane day, and a 401 00:23:30,728 --> 00:23:34,808 Speaker 2: friend said to me, I'm really worried about him. I've 402 00:23:34,888 --> 00:23:37,328 Speaker 2: just been over there to check on him. He's sitting 403 00:23:37,368 --> 00:23:41,568 Speaker 2: inside with all the doors and windows closed. He wouldn't 404 00:23:41,608 --> 00:23:44,088 Speaker 2: answer the door when this friend was knocking, but when 405 00:23:44,168 --> 00:23:46,608 Speaker 2: Lars realized who it was, he did answer the door. 406 00:23:47,328 --> 00:23:50,768 Speaker 2: My friend said he was sweating a lot and he 407 00:23:50,968 --> 00:23:55,128 Speaker 2: had really bad anxiety, but let him in and he 408 00:23:55,248 --> 00:23:57,408 Speaker 2: just sort of said to him, I'm right, No need 409 00:23:57,448 --> 00:23:59,488 Speaker 2: to worry about me. No, I'm fine, I'm just yet. 410 00:23:59,568 --> 00:24:01,208 Speaker 2: It is hot, isn't it. And then he sort of 411 00:24:01,248 --> 00:24:04,207 Speaker 2: opened a window or two, and my friend went on 412 00:24:04,248 --> 00:24:07,088 Speaker 2: their way. He was just sort of going past. Lars 413 00:24:07,128 --> 00:24:10,568 Speaker 2: also had a best friend called Eric. They were really 414 00:24:10,608 --> 00:24:13,728 Speaker 2: great friends and they met through the same club and 415 00:24:14,208 --> 00:24:18,248 Speaker 2: Eric started to be more involved at this stage in 416 00:24:18,368 --> 00:24:22,728 Speaker 2: Lars's life, which was lovely, and could see there was 417 00:24:22,768 --> 00:24:26,968 Speaker 2: something going on, and there was this agrophobia and panic disorder, 418 00:24:27,008 --> 00:24:31,407 Speaker 2: and could see that he was becoming incapacitated and needed 419 00:24:31,568 --> 00:24:34,288 Speaker 2: help with some things just in terms of getting food 420 00:24:34,448 --> 00:24:37,247 Speaker 2: or he couldn't go anywhere. If he could go anywhere, 421 00:24:37,288 --> 00:24:39,447 Speaker 2: he could never have gone by himself. He had to 422 00:24:39,448 --> 00:24:42,608 Speaker 2: have someone with him. Around the two year mark, we 423 00:24:42,728 --> 00:24:45,447 Speaker 2: had a ring and he put it on my finger 424 00:24:45,528 --> 00:24:49,128 Speaker 2: and he said, I still don't have the love for 425 00:24:49,208 --> 00:24:51,888 Speaker 2: the rest of my life word for you, but if 426 00:24:51,928 --> 00:24:56,328 Speaker 2: you were this, that's the best I can do. I 427 00:24:56,408 --> 00:25:00,408 Speaker 2: felt certain I would marry him when he got when 428 00:25:00,408 --> 00:25:04,448 Speaker 2: he got through this, I felt certain we would travel together. 429 00:25:05,048 --> 00:25:07,608 Speaker 2: It was just how can we find the right help. 430 00:25:07,608 --> 00:25:10,208 Speaker 2: We're doing everything, but we can't get the right help. 431 00:25:10,608 --> 00:25:13,488 Speaker 2: At the same time, I had a couple of people 432 00:25:13,568 --> 00:25:17,768 Speaker 2: saying to me, this is ridiculous. These are the people 433 00:25:17,848 --> 00:25:20,608 Speaker 2: that weren't in my closer circle, but sort of saying 434 00:25:20,648 --> 00:25:24,688 Speaker 2: to me, you're a part time single mum and you're 435 00:25:24,688 --> 00:25:27,768 Speaker 2: caring for this adult. You know, twenty four to seven. 436 00:25:27,848 --> 00:25:31,048 Speaker 2: You're in a care a role. It's not a partnership. 437 00:25:31,568 --> 00:25:33,608 Speaker 2: You can't go out together. You can't walk down the 438 00:25:33,608 --> 00:25:35,927 Speaker 2: street together. You can't go for a meal together, you 439 00:25:35,928 --> 00:25:39,088 Speaker 2: can't go see a film together, you can't do anything together. 440 00:25:39,888 --> 00:25:42,528 Speaker 2: You're missing out big time. You know other people your 441 00:25:42,568 --> 00:25:45,848 Speaker 2: age are out there having a lovely time. And I 442 00:25:45,928 --> 00:25:49,048 Speaker 2: did stop feeling like it's missing out. None of the 443 00:25:49,288 --> 00:25:54,687 Speaker 2: help he was getting was helping. It was just getting 444 00:25:54,688 --> 00:25:57,808 Speaker 2: worse and worse. There were times I'd come home and 445 00:25:57,888 --> 00:26:01,048 Speaker 2: he hadn't even left the bed. He was still in 446 00:26:01,128 --> 00:26:05,488 Speaker 2: bed and nothing had changed, he hadn't eaten. It just 447 00:26:05,488 --> 00:26:10,768 Speaker 2: seemed hopeless. So I made a really difficult decision and said, 448 00:26:11,248 --> 00:26:13,967 Speaker 2: I can't do this anymore and I'm not helping, like 449 00:26:14,048 --> 00:26:18,048 Speaker 2: that's clear no matter what I'm doing. I became scared, 450 00:26:18,088 --> 00:26:21,608 Speaker 2: what if I'm enabling this. What if by me taking 451 00:26:21,648 --> 00:26:24,208 Speaker 2: care of him all the time and trying to help 452 00:26:24,248 --> 00:26:28,328 Speaker 2: all the time, is actually just keeping him stuck. What 453 00:26:28,368 --> 00:26:31,408 Speaker 2: if this means that he can't get better because I'm 454 00:26:31,448 --> 00:26:35,848 Speaker 2: doing the wrong thing. His friend Eric was really in 455 00:26:35,888 --> 00:26:39,608 Speaker 2: the picture a lot then. I really liked Eric a lot. 456 00:26:39,968 --> 00:26:43,768 Speaker 2: We stayed very good friends. But he was moving into 457 00:26:43,808 --> 00:26:46,768 Speaker 2: a house nearby and said to Lars, would you like 458 00:26:46,848 --> 00:26:49,728 Speaker 2: to move into this house? And Lars took him up 459 00:26:49,768 --> 00:26:52,368 Speaker 2: on it. So I stayed in the house that I 460 00:26:52,408 --> 00:26:56,407 Speaker 2: had lived with Lars. And it was really hard. Oh, 461 00:26:56,568 --> 00:26:59,968 Speaker 2: such a difficult time. I still wanted to be with him. 462 00:27:00,128 --> 00:27:02,928 Speaker 2: I worried about him all the time, but I knew 463 00:27:02,928 --> 00:27:05,488 Speaker 2: I had to try to see if by me not 464 00:27:05,608 --> 00:27:06,768 Speaker 2: being around would help. 465 00:27:07,488 --> 00:27:10,208 Speaker 1: It was a decision Lucy had to make, and one 466 00:27:10,248 --> 00:27:12,248 Speaker 1: that Lars understood and supported. 467 00:27:13,488 --> 00:27:18,408 Speaker 2: He was so sad, but he said, this is good 468 00:27:18,488 --> 00:27:21,008 Speaker 2: for you. You need to do this, Bob. He always got 469 00:27:21,048 --> 00:27:23,608 Speaker 2: me bump. I want to see you go out with 470 00:27:23,648 --> 00:27:28,088 Speaker 2: your friends. It's awful seeing you not living a full 471 00:27:28,128 --> 00:27:32,328 Speaker 2: life because you're looking after me. I want to see 472 00:27:32,368 --> 00:27:35,368 Speaker 2: you travel. Now. I'm starting to think it's never going 473 00:27:35,408 --> 00:27:38,848 Speaker 2: to get better for me. But you can and you should. 474 00:27:39,008 --> 00:27:43,768 Speaker 2: You know, that was just typical Lars. He just one 475 00:27:43,808 --> 00:27:48,008 Speaker 2: of the best for other people. We kept seeing each 476 00:27:48,048 --> 00:27:52,408 Speaker 2: other on a friendship basis. I did start getting out more. 477 00:27:53,408 --> 00:27:57,088 Speaker 2: I couldn't say I was enjoying myself at all. In fact, 478 00:27:57,128 --> 00:28:00,407 Speaker 2: I was making some really weird choices and decisions at 479 00:28:00,408 --> 00:28:03,328 Speaker 2: that point. Like I went on a few dates with 480 00:28:03,608 --> 00:28:06,687 Speaker 2: a couple of people, and I just I would just 481 00:28:06,728 --> 00:28:09,967 Speaker 2: be there thinking, I hate this, I'm not you know 482 00:28:10,008 --> 00:28:12,927 Speaker 2: where I want to be. I'm just going to have 483 00:28:12,968 --> 00:28:15,447 Speaker 2: to ride this out, you know, and see if he 484 00:28:15,488 --> 00:28:19,328 Speaker 2: gets better without me. And we saw each other as friends. 485 00:28:19,488 --> 00:28:21,648 Speaker 2: We were in walking distance from each other, so I 486 00:28:21,688 --> 00:28:25,968 Speaker 2: could walk over there whenever I wanted. I started painting 487 00:28:25,968 --> 00:28:30,648 Speaker 2: a lot, so studying painting. Even though I had the 488 00:28:30,688 --> 00:28:33,447 Speaker 2: opportunity to be going out more and doing more, I 489 00:28:33,528 --> 00:28:36,808 Speaker 2: just tended to throw myself into my painting a lot 490 00:28:36,848 --> 00:28:39,848 Speaker 2: and spend a lot of time on my own at home, 491 00:28:40,168 --> 00:28:42,968 Speaker 2: and then I'd walk over and visit. After about three 492 00:28:42,968 --> 00:28:45,168 Speaker 2: months of him moving out, I was going over there 493 00:28:45,208 --> 00:28:47,408 Speaker 2: a lot to visit. It was clear that he wasn't 494 00:28:47,448 --> 00:28:50,568 Speaker 2: getting any better, and that he was getting worse Eric, 495 00:28:50,688 --> 00:28:54,088 Speaker 2: his friend called me and I went over there to 496 00:28:54,168 --> 00:28:59,248 Speaker 2: their place and Lars was just really ill. He was 497 00:28:59,288 --> 00:29:03,928 Speaker 2: in pain, he had a really bad headache, he'd been sick. 498 00:29:03,968 --> 00:29:07,928 Speaker 2: He couldn't hold any water down, he was getting dehydrated, 499 00:29:09,248 --> 00:29:13,768 Speaker 2: and so we took him to the Royal Brisbane Hospital. 500 00:29:14,768 --> 00:29:18,168 Speaker 2: They took ages. We had to wait for so long. 501 00:29:18,608 --> 00:29:20,888 Speaker 2: Eventually they took him in and they said we're going 502 00:29:20,928 --> 00:29:23,648 Speaker 2: to run some tests and he can be here overnight 503 00:29:23,688 --> 00:29:27,048 Speaker 2: and we'll keep we'll observe him. They did that, and 504 00:29:27,088 --> 00:29:29,408 Speaker 2: then I was at home again and I got a 505 00:29:29,408 --> 00:29:33,728 Speaker 2: call from Lars at about six in the morning saying, yeah, 506 00:29:33,808 --> 00:29:35,888 Speaker 2: you know what, they want me out of here. And 507 00:29:35,968 --> 00:29:38,488 Speaker 2: I said why, what's going on? And he said they 508 00:29:38,568 --> 00:29:40,248 Speaker 2: just told me they need the bed and I've got 509 00:29:40,328 --> 00:29:42,928 Speaker 2: to go. And I said, well, what have they done 510 00:29:43,008 --> 00:29:45,168 Speaker 2: for you and he said nothing. They just ran some 511 00:29:45,288 --> 00:29:47,288 Speaker 2: tests and I said what tests and he said, I 512 00:29:47,328 --> 00:29:50,728 Speaker 2: don't know, blood test your own sample. And I said, well, 513 00:29:51,048 --> 00:29:52,448 Speaker 2: what are they going to do to help you and 514 00:29:52,528 --> 00:29:55,088 Speaker 2: he said nothing. They just said, you know, you need 515 00:29:55,128 --> 00:29:57,848 Speaker 2: to go home. They gave him a follow up appointment 516 00:29:57,888 --> 00:30:01,648 Speaker 2: about three days after this, so his mother came and 517 00:30:01,688 --> 00:30:04,768 Speaker 2: we went together and took him to the hospital. I mean, 518 00:30:04,768 --> 00:30:08,208 Speaker 2: he was a huge fellow as she was on one 519 00:30:08,288 --> 00:30:10,368 Speaker 2: side under one arm and I was the other, and 520 00:30:10,408 --> 00:30:14,368 Speaker 2: we walked him into the waiting room. I was asking, please, 521 00:30:14,408 --> 00:30:17,168 Speaker 2: can we have someone to see him sooner? He's really unwell. 522 00:30:18,368 --> 00:30:20,288 Speaker 2: So he was laying on the concrete floor at that 523 00:30:20,368 --> 00:30:22,608 Speaker 2: point with my bag under his head for a pillow. 524 00:30:22,888 --> 00:30:26,488 Speaker 2: He couldn't sit up at all. Then the specialist called 525 00:30:26,568 --> 00:30:29,088 Speaker 2: him in. His mum and I had to help him up. 526 00:30:29,608 --> 00:30:33,168 Speaker 2: We took him into the specialist appointment, and she looked 527 00:30:33,168 --> 00:30:37,768 Speaker 2: like she just could not be fucked with us. She 528 00:30:38,808 --> 00:30:41,088 Speaker 2: said to him, right last, your tests have all come 529 00:30:41,128 --> 00:30:44,488 Speaker 2: back negative. There's nothing wrong with you. And I was saying, 530 00:30:44,488 --> 00:30:46,808 Speaker 2: how can you say there's nothing wrong with him? How 531 00:30:46,808 --> 00:30:51,128 Speaker 2: can you say there's nothing wrong this? Obviously? She said, no, 532 00:30:51,288 --> 00:30:54,248 Speaker 2: we can't find anything, and you just really need to 533 00:30:54,288 --> 00:30:57,568 Speaker 2: go home and get your lifestyle sorted. There was an 534 00:30:57,608 --> 00:31:01,328 Speaker 2: assumption that he had a less than ideal lifestyle. I 535 00:31:01,328 --> 00:31:03,448 Speaker 2: don't know what that meant. At the time, I was thinking, 536 00:31:03,528 --> 00:31:08,408 Speaker 2: is she suggesting substance abuse? Is she suggesting that we 537 00:31:08,568 --> 00:31:11,288 Speaker 2: just don't know how to look after ourselves. I couldn't. 538 00:31:11,568 --> 00:31:13,608 Speaker 2: I said, well, I come not going anywhere, and I 539 00:31:13,648 --> 00:31:16,928 Speaker 2: want a psychiatric evaluation. Then if you're saying there's nothing 540 00:31:16,928 --> 00:31:19,608 Speaker 2: physically wrong with him, then I want a psychiatric evaluation, 541 00:31:19,648 --> 00:31:22,408 Speaker 2: and I won't leave until we get one. It became 542 00:31:22,448 --> 00:31:24,768 Speaker 2: a bit of a standoff. She said, I'm not getting 543 00:31:24,808 --> 00:31:28,688 Speaker 2: you a psychiatric evaluation. I'm not wasting their time with this. 544 00:31:29,768 --> 00:31:33,048 Speaker 2: And she said, look, my advice to you is if 545 00:31:33,128 --> 00:31:35,888 Speaker 2: you're saying you can't see properly and you can't stand 546 00:31:35,968 --> 00:31:39,568 Speaker 2: up properly, go home and have a proper meal. You're 547 00:31:39,608 --> 00:31:43,208 Speaker 2: probably hyperglyss semic. I couldn't believe what I was hearing. 548 00:31:43,448 --> 00:31:46,248 Speaker 2: And then she said, when I say a proper meal, 549 00:31:46,328 --> 00:31:50,128 Speaker 2: I don't mean beer and chips. And then we left. 550 00:31:50,728 --> 00:31:54,208 Speaker 2: It was an awful way to be treated. And I 551 00:31:54,248 --> 00:31:58,168 Speaker 2: think the thing for Lars was he kept being told 552 00:31:58,208 --> 00:32:00,648 Speaker 2: that this is all in your head. This is all 553 00:32:00,688 --> 00:32:03,488 Speaker 2: because you're not living properly. This is all in your head. 554 00:32:03,848 --> 00:32:06,208 Speaker 2: I said to her when we were leaving. He can't 555 00:32:06,448 --> 00:32:09,048 Speaker 2: hold down water, he's not eating peer and chips, he 556 00:32:09,088 --> 00:32:12,288 Speaker 2: can't even hold water. And she just didn't want a 557 00:32:12,368 --> 00:32:13,728 Speaker 2: bar of us. 558 00:32:14,848 --> 00:32:16,768 Speaker 1: No one could seem to figure out what was going 559 00:32:16,808 --> 00:32:20,088 Speaker 1: on with Lars. The hospital visits brought no answers, and 560 00:32:20,128 --> 00:32:23,048 Speaker 1: nothing they tried seemed to help. Through it all, Lucy 561 00:32:23,088 --> 00:32:26,088 Speaker 1: did her best to hold everything together, clinging to some 562 00:32:26,128 --> 00:32:28,248 Speaker 1: sense of normality amid the uncertainty. 563 00:32:29,048 --> 00:32:34,128 Speaker 2: I had a birthday dinner at my place and Robert 564 00:32:34,528 --> 00:32:37,528 Speaker 2: was invited with the few other close friends that really 565 00:32:38,168 --> 00:32:41,528 Speaker 2: were very supportive of my relationship with Lars. And I 566 00:32:41,568 --> 00:32:44,328 Speaker 2: invited Lars and he said, I don't think I'm going 567 00:32:44,368 --> 00:32:47,688 Speaker 2: to be able to come, because it just physically I can't. 568 00:32:47,768 --> 00:32:50,088 Speaker 2: Robert went and made sure that he picked him up 569 00:32:50,408 --> 00:32:52,728 Speaker 2: and coaxed him out the door and brought him to 570 00:32:52,768 --> 00:32:57,408 Speaker 2: the birthday dinner, which was amazing. But when he arrived 571 00:32:57,448 --> 00:33:00,448 Speaker 2: at my birthday dinner, I could see he was just 572 00:33:00,608 --> 00:33:03,848 Speaker 2: so unwell, but doing everything he could to just be 573 00:33:04,048 --> 00:33:06,888 Speaker 2: there and just sit there. And I was in the 574 00:33:06,968 --> 00:33:10,128 Speaker 2: kitchen and Robert came in and he said, you know, 575 00:33:10,448 --> 00:33:15,528 Speaker 2: on the way here, Lars dropped something on the car floor. 576 00:33:16,448 --> 00:33:18,568 Speaker 2: And he said, I noticed that when he tried to 577 00:33:18,648 --> 00:33:21,128 Speaker 2: lean forward to pick it up, he was trying to 578 00:33:21,208 --> 00:33:26,528 Speaker 2: pick up this thing in several different places, and it 579 00:33:26,608 --> 00:33:30,528 Speaker 2: was really odd. He just couldn't seem to see where 580 00:33:30,528 --> 00:33:33,448 Speaker 2: this coin was that he dropped on the floor. And 581 00:33:33,608 --> 00:33:37,528 Speaker 2: I said to Lars later that night, you're in a 582 00:33:37,528 --> 00:33:39,888 Speaker 2: really bad way, and you said, yes. See. The funny 583 00:33:39,888 --> 00:33:42,648 Speaker 2: thing is is I can see several of you right now. 584 00:33:42,968 --> 00:33:46,648 Speaker 2: And I said, oh, okay, and then I was looking 585 00:33:46,648 --> 00:33:48,368 Speaker 2: at him and I could see that one of his 586 00:33:48,488 --> 00:33:52,208 Speaker 2: eyes wasn't pointing in the same direction as the other eye. 587 00:33:53,128 --> 00:33:55,208 Speaker 2: I said, okay, I'm going to come to your place 588 00:33:55,288 --> 00:33:57,968 Speaker 2: now with you, and I'm going to stay there until 589 00:33:58,008 --> 00:34:02,088 Speaker 2: we can get some help. It was really desperate. Day 590 00:34:02,128 --> 00:34:05,448 Speaker 2: after my birthday was the Saturday morning. I called the 591 00:34:05,488 --> 00:34:09,368 Speaker 2: optometrist in town and I said, please, can you see 592 00:34:09,408 --> 00:34:12,688 Speaker 2: my We were saying friend then, because we had supposed 593 00:34:12,688 --> 00:34:15,527 Speaker 2: to have separated. Can you see my friend. He's got 594 00:34:15,527 --> 00:34:17,968 Speaker 2: one eye going the wrong way and he said, yeah, 595 00:34:18,008 --> 00:34:22,128 Speaker 2: bring him in. I took him in, and this fellow 596 00:34:22,688 --> 00:34:27,768 Speaker 2: was really kind and said, I want you to go 597 00:34:27,848 --> 00:34:31,568 Speaker 2: straight to the Princess Alexandra emergency rooms. I'm going to 598 00:34:31,648 --> 00:34:34,127 Speaker 2: call ahead and let them know you're coming. And so 599 00:34:34,208 --> 00:34:38,968 Speaker 2: we got to the Princess Alexandra Hospital in the waiting room, 600 00:34:39,008 --> 00:34:41,208 Speaker 2: but then they kind of came and said, Las, come 601 00:34:41,248 --> 00:34:43,288 Speaker 2: through this way, and they said to me, you're best 602 00:34:43,288 --> 00:34:46,288 Speaker 2: to go home for a little while. Lars will call 603 00:34:46,368 --> 00:34:48,728 Speaker 2: you when we're done with We're going to run some tests. 604 00:34:48,848 --> 00:34:50,768 Speaker 2: And I thought to myself, I bet not do a 605 00:34:50,888 --> 00:34:54,088 Speaker 2: CT scan, which is what I felt should have happened 606 00:34:54,128 --> 00:34:57,688 Speaker 2: before this, but they wouldn't give him one. Then I 607 00:34:57,728 --> 00:35:01,168 Speaker 2: got a call, not from Lars, but from the technician thing, 608 00:35:01,768 --> 00:35:04,488 Speaker 2: can you come in when we need to speak to you. 609 00:35:04,568 --> 00:35:07,127 Speaker 2: So I went in and waited and they called my name. 610 00:35:08,288 --> 00:35:11,047 Speaker 2: I went in and the technician said I'm going to 611 00:35:11,088 --> 00:35:13,768 Speaker 2: leave you and Lars to talk, and he walked out 612 00:35:13,808 --> 00:35:17,048 Speaker 2: of the room and Lars just sort of propped himself 613 00:35:17,168 --> 00:35:19,848 Speaker 2: up a little bit on the bed and he said, 614 00:35:19,848 --> 00:35:30,008 Speaker 2: to me, they're saying I've got a brain tumor. They said, 615 00:35:30,168 --> 00:35:33,248 Speaker 2: you know, it's okay. We're going to take care of you. 616 00:35:33,328 --> 00:35:35,607 Speaker 2: We'll get you through this and it'll be okay. And 617 00:35:35,968 --> 00:35:39,888 Speaker 2: medicine is so good now, it's so good. And there's 618 00:35:39,928 --> 00:35:43,968 Speaker 2: also alternate therapies. I'd heard there's alternate therapies. You know, 619 00:35:44,968 --> 00:35:49,568 Speaker 2: we'll do everything, and I need to protect him. Just no, 620 00:35:49,808 --> 00:35:54,168 Speaker 2: this can't be happening. This can't be true the realization 621 00:35:54,848 --> 00:35:58,768 Speaker 2: two of my love. At that point, it had never 622 00:35:58,848 --> 00:36:01,687 Speaker 2: gone anywhere, had been there the whole time. Even though 623 00:36:01,728 --> 00:36:04,728 Speaker 2: we tried to see if me not being around would 624 00:36:04,768 --> 00:36:10,768 Speaker 2: help them, none of my feelings had diminished grown stronger. 625 00:36:11,208 --> 00:36:15,488 Speaker 1: Doctors performed a brain biopsy and began chemotherapy. Eric and 626 00:36:15,568 --> 00:36:18,608 Speaker 1: Lucy were by his side constantly at the hospital. The 627 00:36:18,688 --> 00:36:23,288 Speaker 1: diagnosis was devastating, a nine by nine centimeter glia blastoma 628 00:36:23,448 --> 00:36:27,687 Speaker 1: multiform tumor. It was inoperable. The cancer has bided into 629 00:36:27,768 --> 00:36:31,008 Speaker 1: surrounding areas of the brain, and attempting surgery would have 630 00:36:31,048 --> 00:36:33,488 Speaker 1: destroyed the little healthy tissue Lars had left. 631 00:36:34,248 --> 00:36:36,768 Speaker 2: A different doctor came in and asked if he could 632 00:36:36,768 --> 00:36:39,968 Speaker 2: speak to Lars's mother and I. We went into his 633 00:36:40,088 --> 00:36:42,648 Speaker 2: room and I said, what is going to happen? And 634 00:36:43,288 --> 00:36:46,567 Speaker 2: he said, well, this could kill him, and as what 635 00:36:46,648 --> 00:36:49,008 Speaker 2: do we tell him? He doesn't really know, and he said, 636 00:36:49,048 --> 00:36:52,527 Speaker 2: I don't think you tell him anything. He's twenty one 637 00:36:52,768 --> 00:36:57,288 Speaker 2: turning twenty two year old young man. You know, if 638 00:36:57,328 --> 00:37:00,648 Speaker 2: he survives for a while, why destroy the time that 639 00:37:00,688 --> 00:37:04,928 Speaker 2: he has has left. I couldn't quite get my head 640 00:37:04,928 --> 00:37:10,248 Speaker 2: around whether he should be told or not, so his 641 00:37:10,368 --> 00:37:14,208 Speaker 2: mother and I went back in to sit with him. 642 00:37:14,528 --> 00:37:17,768 Speaker 2: The same doctor familiar on just came over to us 643 00:37:17,888 --> 00:37:20,208 Speaker 2: and said, I'm just going to show you a chart here, Lars. 644 00:37:20,848 --> 00:37:23,448 Speaker 2: This shows the number of people with your type of 645 00:37:23,648 --> 00:37:26,848 Speaker 2: brain tumor that survived to five years of having the 646 00:37:26,888 --> 00:37:29,647 Speaker 2: timber from start to go, and it was about two 647 00:37:29,688 --> 00:37:35,368 Speaker 2: percent that survived five years. And so, in one way, 648 00:37:35,728 --> 00:37:38,087 Speaker 2: Lars was he said to me, In one way, I'm 649 00:37:38,128 --> 00:37:40,768 Speaker 2: relieved it wasn't all in my head like people had 650 00:37:40,808 --> 00:37:45,848 Speaker 2: me believing. It actually is something that's caused this. We 651 00:37:45,888 --> 00:37:49,167 Speaker 2: did look into alternative therapies. There were books that said, 652 00:37:49,168 --> 00:37:52,288 Speaker 2: if you follow every step in this book, no matter 653 00:37:52,328 --> 00:37:56,488 Speaker 2: you're cancer, no matter the stage, you can recover. But 654 00:37:56,528 --> 00:37:58,968 Speaker 2: you can't it's impossible to follow all the steps in 655 00:37:59,008 --> 00:38:02,768 Speaker 2: the book. Robert had looked into a clinic in South 656 00:38:02,768 --> 00:38:07,808 Speaker 2: America with alternate sort of therapies and was ready to 657 00:38:08,008 --> 00:38:11,408 Speaker 2: get our airfares together for that. Just said we might 658 00:38:11,448 --> 00:38:14,607 Speaker 2: as well try everything. I just stayed with him. Then. 659 00:38:15,568 --> 00:38:19,888 Speaker 2: It might have been about three weeks he was at home, 660 00:38:20,088 --> 00:38:24,128 Speaker 2: and it is true that the release of pressure in 661 00:38:24,168 --> 00:38:27,087 Speaker 2: the brain, he could actually get out of bed, he 662 00:38:27,128 --> 00:38:29,728 Speaker 2: could go to the front door, we walked down the street, 663 00:38:29,928 --> 00:38:32,168 Speaker 2: we went to a movie, we went and did things 664 00:38:32,208 --> 00:38:35,448 Speaker 2: that we could never do before. And he was saying, 665 00:38:36,168 --> 00:38:39,448 Speaker 2: isn't this just amazing? Isn't this amazing? 666 00:38:39,528 --> 00:38:39,968 Speaker 1: Look at me? 667 00:38:40,168 --> 00:38:42,808 Speaker 2: Look at me? And I was saying, I know. And 668 00:38:42,888 --> 00:38:45,648 Speaker 2: he was saying, what if we can beat this? What 669 00:38:45,728 --> 00:38:48,368 Speaker 2: if we can beat this? Look see, without the pressure 670 00:38:48,928 --> 00:38:52,167 Speaker 2: in my brain, I can do anything. And I was saying, yeah, no, 671 00:38:52,248 --> 00:38:56,328 Speaker 2: it's incredible. And we actually did have hope. So it 672 00:38:56,408 --> 00:39:00,168 Speaker 2: might have been about three weeks after the biopsy on 673 00:39:00,208 --> 00:39:03,288 Speaker 2: the brain, we went to the GP just to get 674 00:39:03,288 --> 00:39:06,127 Speaker 2: the stitches out and to be checked on. He'd been 675 00:39:06,168 --> 00:39:10,368 Speaker 2: put on some fairly strong medications. Las had a sort 676 00:39:10,368 --> 00:39:13,408 Speaker 2: of said to the GP, you see, there's this one 677 00:39:13,448 --> 00:39:15,607 Speaker 2: thing I'm worried about. One of these medicines i'm on 678 00:39:16,608 --> 00:39:18,648 Speaker 2: says one of the side effects is that your gums 679 00:39:18,688 --> 00:39:21,768 Speaker 2: start growing down over your teeth. And he said, I'm 680 00:39:21,808 --> 00:39:23,768 Speaker 2: just I'm a little bit worried about that. That doesn't 681 00:39:23,808 --> 00:39:26,808 Speaker 2: sound too good. And the GP said to him, oh, 682 00:39:26,968 --> 00:39:30,248 Speaker 2: don't worry. That takes about six months before that starts happening. 683 00:39:30,848 --> 00:39:32,968 Speaker 2: And Lars said to him, oh, well, how long am 684 00:39:33,008 --> 00:39:36,687 Speaker 2: I going to be taking it for and the GP said, 685 00:39:36,768 --> 00:39:39,448 Speaker 2: well for the rest of your life. Lars looked at 686 00:39:39,448 --> 00:39:43,248 Speaker 2: me again. His eyes were huge and frightened, and it 687 00:39:43,288 --> 00:39:47,928 Speaker 2: was dawning on him. Then. Oh. We hadn't explicitly said 688 00:39:47,968 --> 00:39:51,647 Speaker 2: to him, doesn't look like you will survive, but we 689 00:39:51,648 --> 00:39:54,928 Speaker 2: were beginning to get the idea. It was strained because 690 00:39:54,968 --> 00:39:58,368 Speaker 2: we still didn't really know. Nobody had really explicitly sat 691 00:39:58,448 --> 00:40:01,688 Speaker 2: us down and said, look, he's not long for the world. 692 00:40:02,928 --> 00:40:05,448 Speaker 2: We went home that day and I was sitting on 693 00:40:05,608 --> 00:40:09,848 Speaker 2: his bed and he was looking at me, and she 694 00:40:09,928 --> 00:40:13,928 Speaker 2: used to hold my face in his hands, and he 695 00:40:14,048 --> 00:40:17,008 Speaker 2: was sitting up. He said, he was just looking in 696 00:40:17,088 --> 00:40:19,527 Speaker 2: my eyes, and he said, you know that you are 697 00:40:19,608 --> 00:40:23,288 Speaker 2: the best friend I've ever had in my life. And 698 00:40:23,688 --> 00:40:27,208 Speaker 2: I said, you're You're my best friend too. He said, 699 00:40:27,528 --> 00:40:31,087 Speaker 2: I mean that with everything in my heart. I love 700 00:40:31,128 --> 00:40:33,848 Speaker 2: you more than anything. I said, thank you, I love 701 00:40:33,928 --> 00:40:37,087 Speaker 2: you too the same. I just laid on the bed 702 00:40:37,128 --> 00:40:40,728 Speaker 2: with him and he helped me for ages. I think 703 00:40:40,848 --> 00:40:45,008 Speaker 2: he was much braver than I was. His mother came 704 00:40:45,048 --> 00:40:49,528 Speaker 2: over later that day and we'd cooked dinner. We tried 705 00:40:49,568 --> 00:40:53,047 Speaker 2: to give him dinner, but he was starting to say 706 00:40:53,088 --> 00:40:56,047 Speaker 2: that day that I'm actually starting to feel quite a 707 00:40:56,088 --> 00:40:58,768 Speaker 2: bit of pain again. He started going down here really 708 00:40:58,848 --> 00:41:03,488 Speaker 2: quickly that day and he was saying, oh, I've got 709 00:41:03,488 --> 00:41:06,768 Speaker 2: a splitting headache. And I was saying, okay, okay, you 710 00:41:06,888 --> 00:41:09,047 Speaker 2: just need rest. You know, we've probably been doing a 711 00:41:09,048 --> 00:41:11,488 Speaker 2: lot in the last three weeks while he's been able 712 00:41:11,528 --> 00:41:14,607 Speaker 2: to enjoy life a little bit. And then his mother 713 00:41:14,648 --> 00:41:16,208 Speaker 2: and I were sitting in the living room and we 714 00:41:16,368 --> 00:41:20,968 Speaker 2: heard a terrible noise. We could hear his bed shaking 715 00:41:21,008 --> 00:41:24,968 Speaker 2: around a lot, and his mother immediately jumped up and said, 716 00:41:25,568 --> 00:41:31,607 Speaker 2: he's having a seizure. We ran in and then we 717 00:41:32,328 --> 00:41:34,808 Speaker 2: called the GP that we had seen and he said, 718 00:41:34,848 --> 00:41:36,728 Speaker 2: I'll come straight up. It was sort of seven at 719 00:41:36,808 --> 00:41:39,968 Speaker 2: night or something. He said, I'll come straight up, and 720 00:41:40,848 --> 00:41:44,527 Speaker 2: he was in the bedroom with myself and Lahs and 721 00:41:44,568 --> 00:41:47,168 Speaker 2: he said, just just be with him. I'm going to 722 00:41:47,168 --> 00:41:49,168 Speaker 2: give him an injection. I'm going to give him a 723 00:41:49,168 --> 00:41:55,008 Speaker 2: good dose of morphine. And I said okay, And then 724 00:41:55,048 --> 00:41:56,607 Speaker 2: he just looked at me and he said, have they 725 00:41:56,648 --> 00:41:59,768 Speaker 2: told you what to expect? And I said no, I'm 726 00:41:59,768 --> 00:42:02,808 Speaker 2: not really sure what you mean. And he said, all right, well, 727 00:42:02,848 --> 00:42:05,248 Speaker 2: I'm just going to give him this big dose now, 728 00:42:05,328 --> 00:42:08,448 Speaker 2: a really good dose. It means he'll be comfortable. And 729 00:42:08,528 --> 00:42:10,928 Speaker 2: I said okay, and he did that, and then he 730 00:42:11,008 --> 00:42:15,448 Speaker 2: said if anything changes, call an ambulance. Immediately. Lars went 731 00:42:15,488 --> 00:42:21,288 Speaker 2: to sleep, and then he started vomiting and his mother 732 00:42:21,408 --> 00:42:26,087 Speaker 2: said call an ambulance. So we did, and the ambulance came. 733 00:42:26,448 --> 00:42:29,087 Speaker 2: They sat in the front with the ambulance driver while 734 00:42:29,128 --> 00:42:31,928 Speaker 2: the other paramedic was in the back trying to work 735 00:42:31,968 --> 00:42:34,647 Speaker 2: on him. And when we got to the hospital, they 736 00:42:34,648 --> 00:42:37,087 Speaker 2: told me to wait in the waiting area. His mother 737 00:42:37,168 --> 00:42:39,808 Speaker 2: joined me in the waiting area. Then they called us 738 00:42:39,848 --> 00:42:44,888 Speaker 2: into a little room and a doctor met us and 739 00:42:44,928 --> 00:42:48,488 Speaker 2: she sat us down, and it was strange. She said, 740 00:42:49,408 --> 00:42:51,607 Speaker 2: you know, we're sorting him out, but we think he's 741 00:42:51,648 --> 00:42:56,728 Speaker 2: probably dying now. It was just the most surreal thing. 742 00:42:58,008 --> 00:42:59,848 Speaker 2: I kept saying, can I see him? Please? Can we go? 743 00:42:59,968 --> 00:43:02,168 Speaker 2: And they said, no, you don't see him at the moment. 744 00:43:02,288 --> 00:43:04,488 Speaker 2: He's got a lot of tubes going in and out 745 00:43:04,488 --> 00:43:06,248 Speaker 2: at the moment. But you know, when we get him 746 00:43:06,288 --> 00:43:08,328 Speaker 2: sort of cleaned up a bit and sorted, you'll be 747 00:43:08,368 --> 00:43:12,488 Speaker 2: able to be with him. So they eventually said we 748 00:43:12,528 --> 00:43:16,808 Speaker 2: can take him upstairs to a room. I was quite amazed. 749 00:43:16,888 --> 00:43:19,448 Speaker 2: We went upstairs. They had him in a room. They 750 00:43:19,488 --> 00:43:22,008 Speaker 2: had a little sort of warm lamp on in the 751 00:43:22,008 --> 00:43:24,888 Speaker 2: corner rather than the big hospital lights, and they also 752 00:43:24,928 --> 00:43:27,008 Speaker 2: had an in a room one of his own as well, 753 00:43:27,688 --> 00:43:30,607 Speaker 2: which was I was amazed that the nurses did that 754 00:43:31,088 --> 00:43:34,648 Speaker 2: for us, and I immediately laid on the bed with 755 00:43:34,768 --> 00:43:38,607 Speaker 2: him with my head on his chest, and his mum 756 00:43:38,728 --> 00:43:42,288 Speaker 2: put his arm over me. I started feeling like he 757 00:43:42,448 --> 00:43:48,968 Speaker 2: wasn't in there. Eventually I felt his hand going really cold, 758 00:43:49,128 --> 00:43:52,968 Speaker 2: his hand on me and his arm was going really cold. 759 00:43:53,208 --> 00:43:55,888 Speaker 2: I kept during the night, I was having breaks and 760 00:43:55,928 --> 00:43:58,248 Speaker 2: getting up and walking around and going back and laying 761 00:43:58,248 --> 00:44:01,808 Speaker 2: with him, and I noticed his hand going blue, and 762 00:44:02,288 --> 00:44:05,768 Speaker 2: I noticed various other parts of him changing color. I 763 00:44:05,848 --> 00:44:07,888 Speaker 2: knew he was around me then, and he wasn't in 764 00:44:07,888 --> 00:44:13,808 Speaker 2: his body anymore. Heartpit grew really really strong, and then 765 00:44:13,888 --> 00:44:19,328 Speaker 2: it just stopped. It was very hard to leave. It 766 00:44:19,408 --> 00:44:21,208 Speaker 2: was really hard to walk away. 767 00:44:22,488 --> 00:44:25,448 Speaker 1: Lars was just twenty two years old when he passed away, 768 00:44:25,808 --> 00:44:29,008 Speaker 1: a mere three and a half weeks after his diagnosis. 769 00:44:29,448 --> 00:44:33,048 Speaker 1: And then in the quiet that followed, strange and inexplicable 770 00:44:33,048 --> 00:44:36,127 Speaker 1: things began to happen. Moments that made Lucy feel as 771 00:44:36,128 --> 00:44:39,088 Speaker 1: though Lars hadn't completely left her side just yet. 772 00:44:39,408 --> 00:44:43,888 Speaker 2: We had some stranger electrical disturbances at home. I moved 773 00:44:43,888 --> 00:44:47,168 Speaker 2: into his room and I lived with Eric, his best friend, 774 00:44:47,408 --> 00:44:49,648 Speaker 2: and we were just so close for the next six months. 775 00:44:49,648 --> 00:44:53,208 Speaker 2: We really got each other through. Lars used to crack 776 00:44:53,248 --> 00:44:57,368 Speaker 2: his knuckles several times. I woke up in those first 777 00:44:57,368 --> 00:45:00,048 Speaker 2: few days and I could hear us cracking his knuckles, 778 00:45:00,048 --> 00:45:03,728 Speaker 2: and I thought, that can't be happening. And I dreamt 779 00:45:03,768 --> 00:45:06,768 Speaker 2: about him a lot. I would have dreams where I 780 00:45:06,848 --> 00:45:09,527 Speaker 2: might be in the city somewhere and I would hear 781 00:45:09,528 --> 00:45:11,527 Speaker 2: as voice and I'd turn and I'd see him in 782 00:45:11,568 --> 00:45:15,087 Speaker 2: a crowd, and you'd be saying, quick, quick, I don't 783 00:45:15,208 --> 00:45:17,728 Speaker 2: have long. Quick. I would run over to him and 784 00:45:17,808 --> 00:45:20,368 Speaker 2: he would just sort of fold me into his chest 785 00:45:20,408 --> 00:45:22,808 Speaker 2: and he would say, it's all right, Bob, it's all right. 786 00:45:22,928 --> 00:45:25,928 Speaker 2: I'm here, and it's all right. You could go back now. 787 00:45:26,008 --> 00:45:28,728 Speaker 2: I don't have long have to go, but it's all right. 788 00:45:30,008 --> 00:45:32,208 Speaker 2: That would be the end of the dream. Used to 789 00:45:32,728 --> 00:45:36,288 Speaker 2: waking up from them. I belong to the skeptic society. 790 00:45:36,368 --> 00:45:41,288 Speaker 2: I don't believe in anything supernatural. I have no faith religion. 791 00:45:42,328 --> 00:45:47,408 Speaker 2: But about maybe eight months after Lars died, a friend 792 00:45:47,488 --> 00:45:50,248 Speaker 2: of mine who was also a friend of Las, said 793 00:45:50,288 --> 00:45:55,207 Speaker 2: to me, Lucy girl, there's this amazing Cleavoyan. You've got 794 00:45:55,208 --> 00:45:57,008 Speaker 2: to come and see hi. My Winnesstor and the other day. 795 00:45:57,048 --> 00:45:59,248 Speaker 2: You've got to come and see him. And I'm like, oh, 796 00:45:59,328 --> 00:46:02,248 Speaker 2: I don't do you don't do that stuff. Come on, 797 00:46:02,368 --> 00:46:03,848 Speaker 2: come on and then we can have a coffee and 798 00:46:03,848 --> 00:46:07,368 Speaker 2: we'll have lunch afterwards. He's like my best gay boyfriend. 799 00:46:08,448 --> 00:46:12,368 Speaker 2: And I said, oh, all right. I went and this 800 00:46:12,488 --> 00:46:16,128 Speaker 2: fellow was in a dark room, all the incense and 801 00:46:16,208 --> 00:46:19,608 Speaker 2: everything else that I don't have a very good attitude 802 00:46:19,608 --> 00:46:23,208 Speaker 2: about sometimes. But I sat down and he said, he 803 00:46:23,288 --> 00:46:27,648 Speaker 2: said there is someone around. There's a boy and I said, 804 00:46:27,808 --> 00:46:31,047 Speaker 2: oh yeah. And he said it's a man and I 805 00:46:31,128 --> 00:46:35,167 Speaker 2: said yeah. And he said, or he's indicating that he 806 00:46:35,208 --> 00:46:38,368 Speaker 2: won't leave until you're ready for him to leave. But 807 00:46:38,488 --> 00:46:40,968 Speaker 2: he does have to leave, but he can't do it 808 00:46:41,048 --> 00:46:43,928 Speaker 2: until you let him go. He's not going to go 809 00:46:44,088 --> 00:46:47,848 Speaker 2: until you're ready, saying this to me, and I said okay, 810 00:46:47,968 --> 00:46:49,928 Speaker 2: and then he said then he just said to me, 811 00:46:50,128 --> 00:46:53,087 Speaker 2: this man is someone you cared about or cared for 812 00:46:53,208 --> 00:46:54,888 Speaker 2: did you have to care for him? And I said, 813 00:46:54,928 --> 00:46:59,888 Speaker 2: I did have to care for someone recently, and he said, well, 814 00:47:00,888 --> 00:47:03,368 Speaker 2: it will come back to you in a different way. 815 00:47:03,448 --> 00:47:05,047 Speaker 2: It will come back to you in the way it 816 00:47:05,088 --> 00:47:08,008 Speaker 2: should be. And who you care for in the future 817 00:47:08,128 --> 00:47:12,168 Speaker 2: is the correct relationship of carer forth somebody. It's funny 818 00:47:12,208 --> 00:47:15,647 Speaker 2: to me because at the age of forty five, completely accidentally, 819 00:47:16,968 --> 00:47:19,448 Speaker 2: I had a son and I look at him and 820 00:47:19,568 --> 00:47:23,368 Speaker 2: his big blue eyes. He comes from a long line 821 00:47:23,408 --> 00:47:25,688 Speaker 2: of brown eyed people. But I do look at him 822 00:47:25,728 --> 00:47:28,728 Speaker 2: and his big blue eyes, and I feel like I 823 00:47:28,808 --> 00:47:32,127 Speaker 2: see Las just a little bit sometimes. 824 00:47:32,808 --> 00:47:35,888 Speaker 1: But beneath it all, the grief was overwhelming at times, 825 00:47:35,928 --> 00:47:39,648 Speaker 1: heavy and all consuming, and the road to emotional recovery 826 00:47:39,928 --> 00:47:41,728 Speaker 1: was long and anything but simple. 827 00:47:42,328 --> 00:47:47,008 Speaker 2: It was so painful. I didn't know that emotional grief 828 00:47:47,088 --> 00:47:50,728 Speaker 2: could cause so much physical pain. Just the pain in 829 00:47:50,768 --> 00:47:56,368 Speaker 2: my chest, in my heart. It was just so intolerable. 830 00:47:56,488 --> 00:48:00,648 Speaker 2: Sometimes became quite unwell. But I painted a lot. I 831 00:48:00,688 --> 00:48:05,128 Speaker 2: got really into my painting, and when I painted, I 832 00:48:05,208 --> 00:48:08,008 Speaker 2: felt like he was with me. That you know, if 833 00:48:08,048 --> 00:48:09,968 Speaker 2: I could say there was a time when he was me, 834 00:48:10,008 --> 00:48:14,567 Speaker 2: it was when I was painting. I also eventually did 835 00:48:14,688 --> 00:48:17,448 Speaker 2: quite a bit of traveling, and I often felt like 836 00:48:17,488 --> 00:48:19,648 Speaker 2: he was with me then as well. I felt like 837 00:48:19,688 --> 00:48:23,127 Speaker 2: I would hear him in my mind say, look at that, 838 00:48:23,248 --> 00:48:26,968 Speaker 2: Look at where you are, feeling like he was very 839 00:48:27,008 --> 00:48:31,208 Speaker 2: happy for me as well at those times, feeling like 840 00:48:31,688 --> 00:48:35,128 Speaker 2: he was loving for me to recover. I feel like 841 00:48:35,688 --> 00:48:38,928 Speaker 2: seven years after I felt like I reached a good 842 00:48:39,648 --> 00:48:45,328 Speaker 2: turning point. I think I probably remained vulnerable for quite 843 00:48:45,328 --> 00:48:50,527 Speaker 2: some time even after that seven years, but I think 844 00:48:50,568 --> 00:48:53,488 Speaker 2: the last few years have been some of the best 845 00:48:53,568 --> 00:48:57,248 Speaker 2: years of my life, and I don't think I would 846 00:48:57,368 --> 00:49:01,728 Speaker 2: have as wonderful a life if that had never happened. 847 00:49:01,968 --> 00:49:06,488 Speaker 2: I am so pleased that I met him, that I 848 00:49:06,568 --> 00:49:08,888 Speaker 2: knew him, that I was there with him at the end. 849 00:49:10,168 --> 00:49:12,208 Speaker 2: I mean, it'd be great if he didn't have a 850 00:49:12,208 --> 00:49:15,087 Speaker 2: brain tumor, but he didn't, and it's nothing that can 851 00:49:15,128 --> 00:49:17,687 Speaker 2: be done about that. Nobody knows what causes them. It's 852 00:49:17,808 --> 00:49:23,648 Speaker 2: just an indiscriminate thing. And I'm just very grateful that 853 00:49:23,768 --> 00:49:29,808 Speaker 2: I was there even as he changed from being who 854 00:49:29,808 --> 00:49:33,688 Speaker 2: he was or what he appeared to be when I 855 00:49:33,688 --> 00:49:38,567 Speaker 2: first met him, to what he became towards the end. 856 00:49:39,288 --> 00:49:45,328 Speaker 2: My love was unwavering. It never it never changed, It 857 00:49:45,448 --> 00:49:52,888 Speaker 2: just grew and grew around him. The biggest takeaway for 858 00:49:53,048 --> 00:49:55,888 Speaker 2: me was that sometimes the worst thing that can happen 859 00:49:55,968 --> 00:49:58,848 Speaker 2: to you can also be the very best thing that 860 00:49:58,968 --> 00:50:05,048 Speaker 2: happened to you. It sounds strange, it's a juxtaposition, but yeah, 861 00:50:05,208 --> 00:50:09,368 Speaker 2: life is awful, and life is very beautiful. It's very fragile, 862 00:50:09,408 --> 00:50:13,448 Speaker 2: and it's very strong. Definitely better to have loved and 863 00:50:13,568 --> 00:50:18,408 Speaker 2: lost than to never have loved at all. And also 864 00:50:18,488 --> 00:50:21,368 Speaker 2: that you can get through. When I listen to other 865 00:50:21,488 --> 00:50:25,008 Speaker 2: stories and are you here, that people are in the 866 00:50:25,048 --> 00:50:27,848 Speaker 2: depths of despair, but they do, they do get through. 867 00:50:27,928 --> 00:50:31,488 Speaker 2: I remember the funeral director saying to me the day 868 00:50:31,528 --> 00:50:35,248 Speaker 2: we buried Lars, I know what you're going through right now. 869 00:50:35,288 --> 00:50:38,167 Speaker 2: I had a similar experience. And you feel like this 870 00:50:38,248 --> 00:50:41,448 Speaker 2: can never ever get better. But it does. I promise 871 00:50:41,488 --> 00:50:45,528 Speaker 2: you it does. And I was a bit irritated. I thought, 872 00:50:45,608 --> 00:50:48,848 Speaker 2: you just don't know. You don't know how I love him. 873 00:50:49,128 --> 00:50:53,368 Speaker 2: I can't. But it did. It does get better eventually. 874 00:50:54,088 --> 00:50:57,808 Speaker 2: I still think of him every day, so many, I 875 00:50:57,808 --> 00:51:03,047 Speaker 2: mean decades now. I'm really glad I have that. I 876 00:51:03,128 --> 00:51:05,968 Speaker 2: used to be terrified of my own mortality, but I'm 877 00:51:06,008 --> 00:51:09,728 Speaker 2: not so much anymore. It's okay, it's okay. Everyone does it, 878 00:51:09,848 --> 00:51:14,128 Speaker 2: and it just yeah, I'd like to be here for 879 00:51:14,208 --> 00:51:16,368 Speaker 2: as long as I can, but it's all right. And 880 00:51:16,408 --> 00:51:18,768 Speaker 2: if there's nothing after this, I'm fine with that too. 881 00:51:19,248 --> 00:51:21,888 Speaker 2: The most important thing for me going forward is that 882 00:51:22,048 --> 00:51:26,008 Speaker 2: my children will be okay. And also the way I 883 00:51:26,048 --> 00:51:29,248 Speaker 2: know Lars lives fond in me. I hear him laugh 884 00:51:29,408 --> 00:51:31,808 Speaker 2: all the time at certain situations, and I know he 885 00:51:31,848 --> 00:51:35,247 Speaker 2: would find that's so funny. He had a great sense 886 00:51:35,288 --> 00:51:39,647 Speaker 2: of humor. He was very witty, very quick, and yeah, 887 00:51:39,728 --> 00:51:42,408 Speaker 2: I just I love that he's living through me in 888 00:51:42,448 --> 00:51:46,368 Speaker 2: that way. And I'll even say to my son sometimes, oh, 889 00:51:46,648 --> 00:51:48,888 Speaker 2: Lars would have laughed so much, or I'll tell him 890 00:51:48,928 --> 00:51:51,368 Speaker 2: stories that Lars told me that are really funny, you know, 891 00:51:51,408 --> 00:51:52,768 Speaker 2: and it's like, that's how we live on. 892 00:52:11,248 --> 00:52:13,928 Speaker 1: Everyone has an ex It's a Minti Media production and 893 00:52:14,048 --> 00:52:16,888 Speaker 1: proudly part of the Mum and mea Network. This interview 894 00:52:17,008 --> 00:52:20,408 Speaker 1: was conducted and episode narrated by me Georgia Love and 895 00:52:20,448 --> 00:52:23,087 Speaker 1: written and produced by Linda Scott. If you have a 896 00:52:23,088 --> 00:52:26,127 Speaker 1: story you'd like to share, email podcast at momamea dot 897 00:52:26,168 --> 00:52:28,768 Speaker 1: com dot You. You can support us by following the 898 00:52:28,808 --> 00:52:31,248 Speaker 1: show in your favorite podcast app and leaving a five 899 00:52:31,328 --> 00:52:34,808 Speaker 1: star review. We'll see you for the next episode.