WEBVTT - ‘We Are So F-ed Up’: The True Cost Of Caring For A Complicated Parent

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<v Speaker 1>You're listening to a MoMA Mia podcast. Mamma Mere acknowledges

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<v Speaker 1>the traditional owners of land and waters that this podcast

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<v Speaker 1>is recorded on. She cared for you, so now you

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<v Speaker 1>care for her. It sounds so simple and sane, But

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<v Speaker 1>what mother daughter relationship after a lifetime or so is

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<v Speaker 1>simple and sane. Whose life lines up to provide just

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<v Speaker 1>the right measurements of time, patience, and funds to be

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<v Speaker 1>able to return what was hopefully maybe given to you

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<v Speaker 1>at precisely the moment it's needed. Whose home has the

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<v Speaker 1>emotional and literal space to quickly expand to the escalating

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<v Speaker 1>needs of the person whose home you left long ago.

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<v Speaker 1>Caring for your aging parents can be a privilege, a joy.

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<v Speaker 1>It can be a burden, a chore. It can be

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<v Speaker 1>all of these things at the same time. Once, hopefully,

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<v Speaker 1>maybe they were the firmly planted legs you hid behind

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<v Speaker 1>as you looked out at the intimidating world hostile to

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<v Speaker 1>the young and small. Now, hopefully maybe it's you who's

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<v Speaker 1>the protective force between them and the intimidating world hostile

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<v Speaker 1>to the old and frail. You're the translator of scams

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<v Speaker 1>and online everything. Medical administrative assistant advocate in infuriating systems,

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<v Speaker 1>and likely maybe your interventions are met sometimes with rage,

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<v Speaker 1>not grace. They've lived this long and seen so much,

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<v Speaker 1>only to be infantilized again, learned a great deal, only

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<v Speaker 1>to end up with the doctor turning towards you, not them,

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<v Speaker 1>to ask about their bowel movements, their eating, their state

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<v Speaker 1>of mind. For the waiter to address you, not them,

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<v Speaker 1>Does he take sugar? Watching your parents, beloved or distant,

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<v Speaker 1>diminish and fade is one of the cruelest tricks midlife

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<v Speaker 1>has squirreled away for a slow reveal. The worry settles

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<v Speaker 1>on your shoulders, the fear of that phone call, the

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<v Speaker 1>fear of the fall, the fear of the moment when

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<v Speaker 1>everything changes. Muddling through what the hell happens now that

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<v Speaker 1>caring responsibilities have expanded is one of the complications that

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<v Speaker 1>it's hard to discuss because this is just what families do, right.

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<v Speaker 1>They take care of each other, They mop each other up,

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<v Speaker 1>They defend against the worst humiliations age has in store. Yes,

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<v Speaker 1>it is, but if you find yourself are raised in

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<v Speaker 1>that process, then it's not only the elderly who are

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<v Speaker 1>transported back to being young and voiceless, but you too,

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<v Speaker 1>and yet love and duty have no end date. The

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<v Speaker 1>great fortune of having a mum or dad, of still

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<v Speaker 1>having a mum or dad, the kind of mum or

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<v Speaker 1>dad you can pick up the phone to to share

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<v Speaker 1>the manutia of your day, or the big things that

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<v Speaker 1>are keeping you awake and the little things that make

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<v Speaker 1>a world with someone who has carried you literally and

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<v Speaker 1>figuratively through a lifetime or so. That's a fortune worth repaying.

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<v Speaker 1>But airbrushing the complexity of caring to such a simple exchange,

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<v Speaker 1>it leaves.

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<v Speaker 2>Us all poorer.

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<v Speaker 3>Hello.

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<v Speaker 1>I am Holly Wainwright, and I am mid, midlife, mid family,

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<v Speaker 1>mid Sandwich generation. Welcome to our show mid vagen X

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<v Speaker 1>women who are anything but now. Look, I worry sometimes

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<v Speaker 1>that I tell you that the conversations we're having on

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<v Speaker 1>mid are extraordinary every week, and one day you might

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<v Speaker 1>stop believing me. This is not the week to stop

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<v Speaker 1>believing me, friends, Because of course, it's true that every

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<v Speaker 1>why woman I get to sit down with his extraordinary.

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<v Speaker 1>But I can honestly say that I haven't heard a

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<v Speaker 1>conversation like the one you're about to hear between me

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<v Speaker 1>and Caroline Baum anywhere else her story is unique and

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<v Speaker 1>her telling of it is exquisite. It's actually a family

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<v Speaker 1>story with a few parts, so let me unpack that

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<v Speaker 1>bit for you. Caroline Baalum is a writer, a broadcaster

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<v Speaker 1>and a speaker with a long list of achievements. Will

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<v Speaker 1>put a link to Away and find out more about

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<v Speaker 1>those and to her writings in the show notes of

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<v Speaker 1>this episode. But the essay of Carolines that made me

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<v Speaker 1>want to invite her on MID was about placing her

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<v Speaker 1>mother in elder care here in Australia and what she

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<v Speaker 1>wanted people to know about the complexities of doing it,

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<v Speaker 1>of finding a place, of what matters in finding a

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<v Speaker 1>good place and so on. I knew that lots of

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<v Speaker 1>people who listen to MID are dealing with aiding parents

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<v Speaker 1>and that this beautifully written piece of Carolines would be

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<v Speaker 1>really useful to them, and we do talk a lot

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<v Speaker 1>about that towards the end of this week conversation. But

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<v Speaker 1>what Caroline and I ended up discussing is also so

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<v Speaker 1>much more what it's like when you're aging parent or parents,

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<v Speaker 1>like almost everyone's, are not the compliant, gentle wise, little

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<v Speaker 1>old people of easy narrative, but sometimes complicated, difficult, angry, resentful,

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<v Speaker 1>and hard to live with. You're going to hear about how,

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<v Speaker 1>after Caroline's father's death, her mother invited herself to come

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<v Speaker 1>and live with Caroline and her husband, and how complicated

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<v Speaker 1>that was, and how Caroline and her mother ended up

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<v Speaker 1>in therapy aged sixty and ninety respectively, to try to

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<v Speaker 1>find a way to cohabit, about whether or not that worked,

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<v Speaker 1>and how it worked for a while but at great

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<v Speaker 1>cost to Caroline's wellbeing, And you're going to hear about

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<v Speaker 1>what it's like to feel profound guilt again, something I

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<v Speaker 1>know a lot of people feel, if they're honest at

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<v Speaker 1>not feeling like you've done all you can to give

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<v Speaker 1>your parent the final years you owe them. And you're

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<v Speaker 1>going to hear about the difficult hand delt to the

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<v Speaker 1>solo child of troubled people. It's truly an extraordinary conversation.

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<v Speaker 1>I have not stopped thinking about it since we talked,

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<v Speaker 1>and I hope that you are as impressed as I

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<v Speaker 1>am at Caroline's willingness to speak with so much eloquence

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<v Speaker 1>and honesty, as well as respect and love about something

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<v Speaker 1>that we're supposed to think is simple doing your duty

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<v Speaker 1>to your parent. That is actually anything, but sit down

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<v Speaker 1>with us and listen. Caroline. You're a journalist and editor,

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<v Speaker 1>a broadcaster who's written many many things about many many things.

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<v Speaker 1>But the thing I want to start talking to you

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<v Speaker 1>about today is specifically an essay that you've wrote about

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<v Speaker 1>navigating the process of placing your mum in aged care

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<v Speaker 1>that went kind of viral. It was very shared and

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<v Speaker 1>talked about, certainly in my circles, and I wanted to

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<v Speaker 1>start there today. But before we get into it, can

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<v Speaker 1>you tell me a bit about your mum?

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<v Speaker 2>Okay, Well, it's funny, you know, Holly. I've realized that

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<v Speaker 2>since writing that piece, and also since writing my memoir Only,

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<v Speaker 2>which came out about five or six years ago, often

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<v Speaker 2>now the first question people ask me is how's your mum?

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<v Speaker 2>And I've become defined in terms of that relationship more

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<v Speaker 2>than anything else in my life. And I do feel

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<v Speaker 2>quite ambivalent about that. So interesting, isn't it? It is?

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<v Speaker 2>And it's unfavorable.

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<v Speaker 1>No, And do you think it's because certainly the wave

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<v Speaker 1>depicted her in what I have read. It's it's fascinating.

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<v Speaker 1>People are fascinated by that relationship.

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<v Speaker 2>Yeah, I suppose because it's a relationship which is so

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<v Speaker 2>complex and shifting, and people can relate to some of it,

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<v Speaker 2>but not necessarily all of it. And I guess the

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<v Speaker 2>thing that really colors and defines my mother if you

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<v Speaker 2>ask me about her, is that she's French. And when

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<v Speaker 2>I say she's French, I would say that she's pretty

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<v Speaker 2>well French vinegar. So she's a strong personality and quite spiky.

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<v Speaker 2>And I guess that the defining moment in her life

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<v Speaker 2>I now understand happened many many years ago when she

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<v Speaker 2>was five, and she was basically orphaned as a result

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<v Speaker 2>of domestic violence, a murder suicide in which my grandfather

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<v Speaker 2>murdered my grandmother and then turned the gun on himself

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<v Speaker 2>and shot himself. So my mother was five years old.

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<v Speaker 2>She was immediately rejected by her family, as I think

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<v Speaker 2>they called her the fruit of a damned marriage. They

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<v Speaker 2>were conservative and religious, and they thought that this child

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<v Speaker 2>was a sort of manifestation of the terrible shame that

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<v Speaker 2>this murder suicide brought on their standing, and so she

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<v Speaker 2>was fostered. She was passed around like a parcel. Some

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<v Speaker 2>of the people who fostered her were kind, some of

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<v Speaker 2>them were not. But basically, at the age of five,

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<v Speaker 2>my mother felt absolutely abandoned and unloved, and because she

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<v Speaker 2>belongs to a generation where you didn't go to therapy,

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<v Speaker 2>you didn't talk to a professional about that, You just

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<v Speaker 2>kept it all inside. Apparently, I've heard since from psychologists

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<v Speaker 2>that at five that's quite an important age in terms

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<v Speaker 2>of child development. If something earth shattering happens to you,

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<v Speaker 2>one of your survival techniques can be to build a

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<v Speaker 2>carapace around yourself in order to survive, where everything becomes

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<v Speaker 2>entirely and only about you. That is the beginnings of narcissism.

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<v Speaker 2>I know it's a very overused word now, but I

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<v Speaker 2>would say that my mother has very strong traits that

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<v Speaker 2>seemed to be a manifestation of a form of narcissistic

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<v Speaker 2>personality disorder.

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<v Speaker 1>Did you grow up knowing this story about your mum.

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<v Speaker 2>No. A story that took precedence in my family home

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<v Speaker 2>was my father's story, which is tragic as well, and

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<v Speaker 2>because he told it and was more outgoing about it,

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<v Speaker 2>my mother's story sort of was overshadowed. So my father

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<v Speaker 2>was a Viennese Jew, and he left Vienna in nineteen

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<v Speaker 2>thirty eight at the age of ten with his older

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<v Speaker 2>sister as part of something remarkable called Kindertransport, and Kindertransport

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<v Speaker 2>was the largest refugee rescue program for children ever attempted,

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<v Speaker 2>which took Jewish children out of Hungary, Poland, etc. To

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<v Speaker 2>get them away from the threat of the Nazis. So

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<v Speaker 2>my grandparents in Vienna put my father and his sister

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<v Speaker 2>on a train, told them that they were going to

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<v Speaker 2>England on holiday and that they would join them in

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<v Speaker 2>a couple of weeks. They were taken to a camp

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<v Speaker 2>where they were with many many other children like themselves,

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<v Speaker 2>and every Sunday prospective families would come and view the

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<v Speaker 2>children to take them and adopt them. My father wore glasses.

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<v Speaker 2>Children with glasses were not considered as desirable as children

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<v Speaker 2>without glasses. Boys were considered less desirable than girls. My

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<v Speaker 2>father and his sister insisted on not being separated, which

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<v Speaker 2>meant if you took one, you had to take the

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<v Speaker 2>other one. So they were in the camp for a

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<v Speaker 2>long long time. Some families took them out on a

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<v Speaker 2>Sunday and then gave them back, which must have been devastating.

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<v Speaker 2>Eventually he landed with a family of Quakers in Yorkshire

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<v Speaker 2>who were incredibly kind and looked after him until he

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<v Speaker 2>graduated from university. But I think the big difference wholly

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<v Speaker 2>between the story of my mother and my father is

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<v Speaker 2>my father was a victim of history, a great, big

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<v Speaker 2>sweep of history that scooped up all these children, ten

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<v Speaker 2>thousand children, flung them into another world and another country.

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<v Speaker 2>He did end up seeing his mother again. He managed

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<v Speaker 2>to get the Red Cross and various other organizations to

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<v Speaker 2>help him sponsor his mother out of Austria. She was

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<v Speaker 2>able to follow on condition that she get work as

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<v Speaker 2>a domestic servant. That was the rule that the British

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<v Speaker 2>government imposed on parents who followed their children. My grandfather

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<v Speaker 2>never made it, and it's believed that he was shot

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<v Speaker 2>on a forced march somewhere outside ki If we don't

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<v Speaker 2>really know the details, that's all we've got from the

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<v Speaker 2>Red Cross from doing research subsequently. But his story is

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<v Speaker 2>big and grand, and many other people can relate to

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<v Speaker 2>some part of this story. My mother's story is much

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<v Speaker 2>smaller and much more personal. And because my father loved

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<v Speaker 2>to tell the Kinder Transport story to me to make

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<v Speaker 2>sure that I knew what had happened and how good

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<v Speaker 2>the Quakers were and how grateful we should be to

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<v Speaker 2>this particular family. I never really heard my mother's story

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<v Speaker 2>until much later. She didn't tell me anything about what

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<v Speaker 2>had happened to her until I think I was in

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<v Speaker 2>my twenties, and it probably wasn't until I was in

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<v Speaker 2>my forties that I started to join the dots. And think,

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<v Speaker 2>from what I've read about domestic violence, a murder suicide

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<v Speaker 2>doesn't come out of the blue. So it's highly likely

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<v Speaker 2>that my mother experienced other forms of violence at home

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<v Speaker 2>first before this happened. Maybe my grandfather beat my grandmother,

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<v Speaker 2>Maybe there were terrible fights at home. We don't know.

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<v Speaker 2>My mother has complete amnesia for anything and everything that

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<v Speaker 2>happened before the age of five, but she does think

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<v Speaker 2>that in theory, she probably witnessed things that she has

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<v Speaker 2>completely blocked.

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<v Speaker 1>What would this I mean, this is an extraordinary picture

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<v Speaker 1>to be painted of a family, and you're the solo

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<v Speaker 1>child of that family, right, the only child as it were.

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<v Speaker 1>What would you say your relationship with your mother was,

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<v Speaker 1>like you know, before she came to live with you,

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<v Speaker 1>and all the story we're going to get into. But

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<v Speaker 1>this complicated woman, Vinegary woman, teal in your explanation through

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<v Speaker 1>most of your adult life until you're sort of back

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<v Speaker 1>together in that way.

0:14:37.367 --> 0:14:39.887
<v Speaker 2>You know. There's a really good word for this in French.

0:14:40.447 --> 0:14:43.447
<v Speaker 2>It's the word fusionelle, and it's usually used about a

0:14:43.487 --> 0:14:46.807
<v Speaker 2>couple and couple of fusionelle is a couple that's kind

0:14:46.847 --> 0:14:52.847
<v Speaker 2>of I suppose totally blended, maybe codependent. So I would

0:14:52.847 --> 0:14:57.407
<v Speaker 2>say that my mother saw me completely as an extension

0:14:57.487 --> 0:15:00.487
<v Speaker 2>of and a projection of herself. We were dressed alike

0:15:00.527 --> 0:15:05.047
<v Speaker 2>in matching dresses. Right up into my adolescence. I fel

0:15:05.087 --> 0:15:10.487
<v Speaker 2>into an embarrassing age. She smothered me with love and

0:15:10.527 --> 0:15:14.007
<v Speaker 2>affection until I was about twelve, and then as I

0:15:14.127 --> 0:15:18.447
<v Speaker 2>started to separate and individuate, there was an enormous amount

0:15:18.487 --> 0:15:22.007
<v Speaker 2>of conflict between us. But I do remember. I mean,

0:15:22.007 --> 0:15:25.287
<v Speaker 2>it is extraordinary the instincts that we have as children

0:15:25.367 --> 0:15:29.127
<v Speaker 2>that we just ignore, but they're telling us something. I

0:15:29.247 --> 0:15:33.567
<v Speaker 2>remember being a child of about seven or eight and

0:15:33.647 --> 0:15:37.607
<v Speaker 2>going into a shop with my mother and introducing myself

0:15:37.647 --> 0:15:41.647
<v Speaker 2>to the greengrocer and saying, I'm the mother and this

0:15:41.847 --> 0:15:48.447
<v Speaker 2>is my daughter. I felt responsible for this adult, and

0:15:48.607 --> 0:15:52.687
<v Speaker 2>I felt I was the adult in the relationships. Somehow,

0:15:53.047 --> 0:15:56.327
<v Speaker 2>even though I didn't know the backstory, I knew this

0:15:56.407 --> 0:16:01.887
<v Speaker 2>person was vulnerable and damaged and not really fully able

0:16:01.927 --> 0:16:05.087
<v Speaker 2>to parent. So she smothered me with the affections she

0:16:05.207 --> 0:16:09.007
<v Speaker 2>didn't get. And then the moment I started to pull

0:16:09.007 --> 0:16:15.367
<v Speaker 2>away from that, we were pretty well in conflict. And also,

0:16:15.407 --> 0:16:17.567
<v Speaker 2>you've got to remember the thing about being an only child.

0:16:17.647 --> 0:16:21.087
<v Speaker 2>This is the really vivid image for me is it's

0:16:21.127 --> 0:16:24.967
<v Speaker 2>a triangle, and a triangle to me is an awkward shape.

0:16:24.967 --> 0:16:28.567
<v Speaker 2>It's all elbows. It's not the harmony of a square.

0:16:28.687 --> 0:16:32.127
<v Speaker 2>It's not the sort of beautiful elegance of a circle.

0:16:32.847 --> 0:16:36.087
<v Speaker 2>There's something about a triangle. I associate it with those

0:16:36.127 --> 0:16:38.287
<v Speaker 2>traffic signs on the side of the road that are

0:16:38.327 --> 0:16:40.207
<v Speaker 2>warning you wrong way, go back.

0:16:42.007 --> 0:16:45.887
<v Speaker 1>Yes, you've built a life on the other side of

0:16:45.927 --> 0:16:49.927
<v Speaker 1>the world, right, So, but your relationship was always connected.

0:16:50.167 --> 0:16:54.967
<v Speaker 1>You've said you'd go back, you'd You didn't separate from

0:16:55.007 --> 0:16:56.727
<v Speaker 1>each other entirely during those years.

0:16:57.287 --> 0:17:00.167
<v Speaker 2>No, But it was interesting that when I came to

0:17:00.207 --> 0:17:02.367
<v Speaker 2>Australia when I was twenty four, when I fell in

0:17:02.407 --> 0:17:04.687
<v Speaker 2>love and married my first husband, a lot of my

0:17:04.927 --> 0:17:07.367
<v Speaker 2>kind of kluey friends said, oh, you're going as far

0:17:07.447 --> 0:17:09.967
<v Speaker 2>away as possible to get away from your pa. It's no,

0:17:10.047 --> 0:17:13.047
<v Speaker 2>I'm not. I just happened to have fallen in love

0:17:13.087 --> 0:17:17.287
<v Speaker 2>with an Australian and he misses the climate, and he's

0:17:17.327 --> 0:17:20.327
<v Speaker 2>been off at a fantastic job. And I had absolute

0:17:20.647 --> 0:17:27.207
<v Speaker 2>blindness about whether I was in fact fleeing and trying

0:17:27.247 --> 0:17:29.807
<v Speaker 2>to make more space for myself in what was a

0:17:29.967 --> 0:17:36.007
<v Speaker 2>very claustrophobic family dynamic. My parents were incredibly overprotective. As

0:17:36.007 --> 0:17:39.247
<v Speaker 2>a child, I was never allowed to go for sleepovers.

0:17:39.367 --> 0:17:42.087
<v Speaker 2>They were people who naturally and when you think about

0:17:42.087 --> 0:17:46.247
<v Speaker 2>their past, it's not surprising they catastrophized about everything. You know,

0:17:46.527 --> 0:17:50.767
<v Speaker 2>long before mobile phones, I had to wring from wherever

0:17:50.847 --> 0:17:54.087
<v Speaker 2>I was to say that I'd arrived safely. There were

0:17:54.127 --> 0:17:58.407
<v Speaker 2>always contingency plans to come and rescue me from imminent

0:17:58.527 --> 0:18:03.407
<v Speaker 2>danger and threat. I mean, they were two extremely, extremely

0:18:03.487 --> 0:18:07.127
<v Speaker 2>anxious people, and now I can see that at twenty

0:18:07.207 --> 0:18:11.287
<v Speaker 2>four I did take the first available opportunity to get

0:18:11.287 --> 0:18:15.567
<v Speaker 2>away from them. But I was absolutely, stubbornly convinced when

0:18:15.567 --> 0:18:18.527
<v Speaker 2>I was twenty four that I was just madly in love.

0:18:18.527 --> 0:18:21.327
<v Speaker 1>And it had nothing to do with that, and that

0:18:21.407 --> 0:18:23.727
<v Speaker 1>the whole family thing that was separate. I am an

0:18:23.927 --> 0:18:28.247
<v Speaker 1>entirely separate human doing my own separate adventure I think

0:18:28.327 --> 0:18:30.487
<v Speaker 1>probably one of the reasons that people are so fascinated

0:18:30.487 --> 0:18:32.447
<v Speaker 1>with the story of your mother is because with all

0:18:32.487 --> 0:18:36.167
<v Speaker 1>of that context, everybody's story is very different. But many

0:18:36.207 --> 0:18:39.327
<v Speaker 1>people's relationship with their parents are very complicated. Their parents

0:18:39.367 --> 0:18:41.807
<v Speaker 1>are not saints, their parents are their own damaged people.

0:18:42.047 --> 0:18:44.167
<v Speaker 1>But it's not the story we like to tell. We

0:18:44.367 --> 0:18:47.567
<v Speaker 1>like to always see mothers as being nurturing angels to

0:18:47.567 --> 0:18:50.887
<v Speaker 1>a point, who we all owe a great deal when

0:18:50.967 --> 0:18:53.127
<v Speaker 1>it gets a little further along in life, and is

0:18:53.127 --> 0:18:56.727
<v Speaker 1>maybe our turn to take care of them? Right? And

0:18:56.767 --> 0:19:00.127
<v Speaker 1>I'd love to know, given all the context you've just

0:19:00.207 --> 0:19:02.967
<v Speaker 1>painted for us, the point at which you realized you

0:19:03.007 --> 0:19:06.247
<v Speaker 1>did need to or want to, or feel obliged to.

0:19:06.327 --> 0:19:09.607
<v Speaker 1>I don't know. You can tell me that in your

0:19:09.647 --> 0:19:13.567
<v Speaker 1>mother to be with you? How did that? What led

0:19:13.687 --> 0:19:15.407
<v Speaker 1>up to that? Holly?

0:19:15.847 --> 0:19:19.327
<v Speaker 2>I love that question because it presupposes that the initiative

0:19:19.527 --> 0:19:24.167
<v Speaker 2>was mine and it was no, not at all. So

0:19:24.407 --> 0:19:28.887
<v Speaker 2>my father got dementia and had been put into care

0:19:29.687 --> 0:19:34.687
<v Speaker 2>in the UK. And when he died, my mother was

0:19:34.927 --> 0:19:38.567
<v Speaker 2>eighty eight. And I remember we were at an art

0:19:38.607 --> 0:19:42.487
<v Speaker 2>gallery having lunch, and she leaned across the table and

0:19:42.567 --> 0:19:45.447
<v Speaker 2>she said, and now I'm going to come and live

0:19:45.487 --> 0:19:50.247
<v Speaker 2>with you. And there was this look of glee on

0:19:50.327 --> 0:19:54.087
<v Speaker 2>her face, but it was a kind of glee that

0:19:54.207 --> 0:19:57.887
<v Speaker 2>had a little streak of a sort of malice or

0:19:57.967 --> 0:20:04.567
<v Speaker 2>mischief in it, as in, I'm going to create absolute havoc. Now,

0:20:06.167 --> 0:20:08.287
<v Speaker 2>I can't even explain that to you, but I just

0:20:08.407 --> 0:20:10.447
<v Speaker 2>know the look on her her face when she said

0:20:10.447 --> 0:20:14.087
<v Speaker 2>that to me was now, I've got you. I've got you.

0:20:15.087 --> 0:20:18.127
<v Speaker 2>And I think that I'm such an optimist. To be

0:20:18.247 --> 0:20:20.167
<v Speaker 2>perfectly honest, I thought.

0:20:20.007 --> 0:20:22.047
<v Speaker 1>I'm not sure how you've ended up being an optimist.

0:20:22.127 --> 0:20:23.927
<v Speaker 2>No, well, with a lot of work, a lot of

0:20:25.647 --> 0:20:31.367
<v Speaker 2>and a very good second husband. Yes, I genuinely thought, Holly, Okay,

0:20:33.007 --> 0:20:37.327
<v Speaker 2>my mother has had a really tough life, a really

0:20:37.767 --> 0:20:44.367
<v Speaker 2>unhappy marriage, terrible years looking after my father while he

0:20:44.447 --> 0:20:48.487
<v Speaker 2>was demented. I mean, visiting him in care and accompanying

0:20:48.567 --> 0:20:53.247
<v Speaker 2>him and witnessing all of that, you know, dilapidation happening

0:20:53.287 --> 0:20:56.927
<v Speaker 2>in some someone's brilliant mind. A terrible thing to have

0:20:56.967 --> 0:20:59.847
<v Speaker 2>to witness for anybody who's gone through that. And I

0:20:59.967 --> 0:21:04.727
<v Speaker 2>thought to myself, Okay, we are going to give her

0:21:05.167 --> 0:21:07.807
<v Speaker 2>the best final years of her life we can. We

0:21:07.887 --> 0:21:11.567
<v Speaker 2>are going to turn this woman's life around and give

0:21:11.607 --> 0:21:15.647
<v Speaker 2>her joy, and we're going to give her affection, and

0:21:15.847 --> 0:21:18.407
<v Speaker 2>she's going to get a new start, and eighty eight

0:21:18.527 --> 0:21:24.967
<v Speaker 2>isn't too late. I just really built a fantasy around

0:21:25.087 --> 0:21:30.527
<v Speaker 2>her throwing this bomb at us. I just thought, Okay,

0:21:31.167 --> 0:21:34.207
<v Speaker 2>we'll make this work. And obviously I did that with

0:21:34.367 --> 0:21:37.527
<v Speaker 2>a husband who was completely supportive and who didn't say

0:21:39.127 --> 0:21:42.407
<v Speaker 2>no way, no way, is she coming to live with us?

0:21:42.487 --> 0:21:46.847
<v Speaker 2>He just said, yeah, okay. And I guess in terms

0:21:46.887 --> 0:21:48.407
<v Speaker 2>of the sort of push and pull and all the

0:21:48.487 --> 0:21:52.007
<v Speaker 2>dynamics of relationships, I should say because this has occurred

0:21:52.007 --> 0:21:56.007
<v Speaker 2>to me since when I met my second husband. He

0:21:56.487 --> 0:21:59.207
<v Speaker 2>had a little boy who was nine at the time,

0:21:59.287 --> 0:22:03.527
<v Speaker 2>who'd been very seriously ill between the ages three and seven,

0:22:03.567 --> 0:22:07.287
<v Speaker 2>with a life threatening illness, and then whethered his parents

0:22:07.367 --> 0:22:11.487
<v Speaker 2>divorce very badly. Are very se to very delicate boy.

0:22:11.967 --> 0:22:14.007
<v Speaker 2>I don't have children of my own, but Louis came

0:22:14.047 --> 0:22:17.607
<v Speaker 2>into my life. I learned an enormous amount from being

0:22:17.647 --> 0:22:21.927
<v Speaker 2>a stepmother. Some of it was extremely difficult and some

0:22:21.967 --> 0:22:25.767
<v Speaker 2>of it was immensely rewarding. But I guess that in

0:22:25.807 --> 0:22:29.087
<v Speaker 2>the sort of give and take of a relationship, I

0:22:29.207 --> 0:22:32.527
<v Speaker 2>had done a lot for Louis, and now it was

0:22:32.567 --> 0:22:36.567
<v Speaker 2>my husband's turn to do the same back for me

0:22:36.807 --> 0:22:39.727
<v Speaker 2>with my mother. So I think that without any of

0:22:39.727 --> 0:22:44.967
<v Speaker 2>that being said, that was just implicit that that's what

0:22:45.047 --> 0:22:46.807
<v Speaker 2>we were going to do.

0:22:50.727 --> 0:22:54.647
<v Speaker 1>After this little break. What happens when Caroline's mum, Judith

0:22:55.047 --> 0:23:03.007
<v Speaker 1>does move in. So you were optimistic, but you're also

0:23:03.447 --> 0:23:08.087
<v Speaker 1>clear eyeding that you knew this was going to be interesting.

0:23:08.127 --> 0:23:11.207
<v Speaker 1>You might have to make particul killer provisions and changes

0:23:11.207 --> 0:23:13.567
<v Speaker 1>to your living situation and to the way that your

0:23:13.607 --> 0:23:17.247
<v Speaker 1>relationship worked. How did you prepare for this, or rather,

0:23:17.287 --> 0:23:19.247
<v Speaker 1>how did you make it happen?

0:23:19.967 --> 0:23:22.647
<v Speaker 2>Well, again, a bit of delusion and optimism there, because

0:23:22.687 --> 0:23:26.007
<v Speaker 2>my mother we thought might live independently of us, just

0:23:26.087 --> 0:23:28.607
<v Speaker 2>down the road, and so we started to look at

0:23:28.647 --> 0:23:30.047
<v Speaker 2>places that might be suitable.

0:23:30.367 --> 0:23:34.607
<v Speaker 1>And now this involved you, theoretically, this involved your moving house.

0:23:35.407 --> 0:23:37.847
<v Speaker 2>No, we thought that we would stay put, but that

0:23:37.887 --> 0:23:40.007
<v Speaker 2>she we would find a place for her to live

0:23:40.207 --> 0:23:45.647
<v Speaker 2>near us, and that soon became not really what she wanted.

0:23:46.047 --> 0:23:48.527
<v Speaker 2>And then she said what she wanted to do was

0:23:48.567 --> 0:23:51.647
<v Speaker 2>she wanted to live with us in our house and

0:23:51.727 --> 0:23:54.967
<v Speaker 2>pay for us to build a second story on the house.

0:23:55.127 --> 0:23:57.487
<v Speaker 1>So sort of an integrated granny flat.

0:23:57.887 --> 0:23:59.727
<v Speaker 2>Yeah, but she didn't want to live on the ground floor,

0:23:59.727 --> 0:24:01.727
<v Speaker 2>which would have made more sense given that she already

0:24:01.727 --> 0:24:04.927
<v Speaker 2>had mobility issues. She didn't like ground floors, so she said, no,

0:24:05.167 --> 0:24:07.847
<v Speaker 2>I will have a top floor built and you will

0:24:07.887 --> 0:24:10.127
<v Speaker 2>put in a stair chair. And she had all of

0:24:10.127 --> 0:24:13.647
<v Speaker 2>that worked out. She's very practical. She did the sort

0:24:13.647 --> 0:24:16.967
<v Speaker 2>of assessment of the architect and the beauty pageant with

0:24:17.047 --> 0:24:21.087
<v Speaker 2>the builders, and when the builders came to talk about

0:24:21.087 --> 0:24:23.487
<v Speaker 2>the contract, if they made no eye contact with her,

0:24:23.567 --> 0:24:26.607
<v Speaker 2>she'd say, no, I'm not dealing with them. So she

0:24:26.727 --> 0:24:29.767
<v Speaker 2>chose the youngest, least experienced builder who looked her in

0:24:29.807 --> 0:24:32.007
<v Speaker 2>the eye and who understood that she was the client.

0:24:32.167 --> 0:24:35.167
<v Speaker 2>We were not the clients. Yes, And she made a

0:24:35.367 --> 0:24:38.287
<v Speaker 2>very very good call there. He did a fantastic job,

0:24:38.407 --> 0:24:41.327
<v Speaker 2>and so we moved out of our house together just

0:24:41.407 --> 0:24:44.647
<v Speaker 2>before COVID. Round the corner, the three of us found

0:24:44.647 --> 0:24:46.607
<v Speaker 2>a house that we could live in for the seven

0:24:46.647 --> 0:24:49.727
<v Speaker 2>months that a new story was built on our house,

0:24:50.567 --> 0:24:53.527
<v Speaker 2>and just before COVID, thank god, we were able to

0:24:53.567 --> 0:24:58.767
<v Speaker 2>move back into the house. And at the time, again

0:24:59.007 --> 0:25:03.127
<v Speaker 2>optimist and delusional, I thought, well, there's a kitchenette up there,

0:25:03.207 --> 0:25:07.207
<v Speaker 2>she's going to make herself most meals and come down

0:25:07.327 --> 0:25:11.247
<v Speaker 2>maybe for dinner two or three times a week. But no,

0:25:11.767 --> 0:25:17.327
<v Speaker 2>that's not what happened. So she made herself breakfast up there,

0:25:17.647 --> 0:25:21.167
<v Speaker 2>and she never made dinner, and she never made lunch.

0:25:21.167 --> 0:25:24.287
<v Speaker 2>She came downstairs for lunch every day, and she came

0:25:24.367 --> 0:25:27.247
<v Speaker 2>downstairs for dinner every night, and then after dinner, she

0:25:27.327 --> 0:25:30.087
<v Speaker 2>didn't exactly read the room. Even though she had a

0:25:30.087 --> 0:25:32.807
<v Speaker 2>lovely sitting room upstairs and a television with every streaming

0:25:32.847 --> 0:25:35.687
<v Speaker 2>service under the sun, she always wanted to sit and

0:25:35.727 --> 0:25:38.647
<v Speaker 2>watch something with us in the evening, which usually meant

0:25:38.687 --> 0:25:42.367
<v Speaker 2>that halfway through whatever we were watching, she'd be snoring,

0:25:42.687 --> 0:25:46.247
<v Speaker 2>or David and I would be sitting watching something which

0:25:46.287 --> 0:25:49.647
<v Speaker 2>suddenly had an incredibly explicit, graphic sex scene in it,

0:25:49.687 --> 0:25:53.487
<v Speaker 2>and we'd be sitting there feeling as embarrassed as teenagers,

0:25:53.927 --> 0:25:56.127
<v Speaker 2>while my mother would be sort of glue eyed to

0:25:56.207 --> 0:25:59.047
<v Speaker 2>the rumpy pumpy, you know, like she never looked away.

0:25:59.247 --> 0:26:04.567
<v Speaker 2>It was excruciating, and it got so bad, Holly, that

0:26:04.727 --> 0:26:09.167
<v Speaker 2>the sound of the stairchair coming down the mechanical were

0:26:09.487 --> 0:26:12.767
<v Speaker 2>of the chair became a trigger for me, Like I

0:26:12.887 --> 0:26:18.367
<v Speaker 2>started to feel physically sick when I heard that chair moving,

0:26:18.447 --> 0:26:21.527
<v Speaker 2>because it meant here she comes for lunch, and being

0:26:21.567 --> 0:26:25.327
<v Speaker 2>French for her lunch is a non negotiable. You stop

0:26:25.367 --> 0:26:28.327
<v Speaker 2>your day, whatever you're doing, and you have lunch, and

0:26:28.367 --> 0:26:32.007
<v Speaker 2>it's two courses. It's a main meal. I mean, you

0:26:32.047 --> 0:26:33.727
<v Speaker 2>know in France it would be three. So I suppose

0:26:33.727 --> 0:26:35.647
<v Speaker 2>we were getting off lightly, but you know it would

0:26:35.647 --> 0:26:37.487
<v Speaker 2>be a main dish that'd have to be dessert. And

0:26:37.647 --> 0:26:40.567
<v Speaker 2>I resented this because you were cooking this. I was

0:26:40.607 --> 0:26:44.607
<v Speaker 2>cooking this. I resented it. I'm ashamed of how much

0:26:44.647 --> 0:26:46.367
<v Speaker 2>I resented it, but I did resent it.

0:26:46.407 --> 0:26:50.407
<v Speaker 1>This is an enormous disruption in your life and your marriage. Yeah,

0:26:50.447 --> 0:26:52.007
<v Speaker 1>how did your husband.

0:26:52.447 --> 0:26:59.327
<v Speaker 2>With total grace and calm, I mean extraordinary, extraordinary, but

0:26:59.767 --> 0:27:02.047
<v Speaker 2>he did find himself. So here we are again in

0:27:02.127 --> 0:27:03.607
<v Speaker 2>triangle two point zero.

0:27:05.407 --> 0:27:07.927
<v Speaker 1>The spiking elbows out.

0:27:07.567 --> 0:27:11.567
<v Speaker 2>So it became pretty bad and dysfunctional. And my husband

0:27:11.607 --> 0:27:13.607
<v Speaker 2>said to me, you know, the way you two speak

0:27:13.647 --> 0:27:16.207
<v Speaker 2>to each other is so disturbing to me. He comes

0:27:16.207 --> 0:27:20.647
<v Speaker 2>from a very loving, very well adjusted family. He had

0:27:20.287 --> 0:27:26.847
<v Speaker 2>an obscenely happy, uncomplicated childhood that he said to me,

0:27:27.167 --> 0:27:31.967
<v Speaker 2>I don't know how we're going to survive if you

0:27:32.047 --> 0:27:35.167
<v Speaker 2>two don't find a new way of talking to each other.

0:27:35.327 --> 0:27:38.647
<v Speaker 1>From his outside as eye, the way that you and

0:27:38.687 --> 0:27:42.127
<v Speaker 1>your mother communicated was are we talking about shouting? Are

0:27:42.127 --> 0:27:44.207
<v Speaker 1>we just talking about cruelty? We're talking about bobs? Are

0:27:44.207 --> 0:27:46.207
<v Speaker 1>we talking about out and out insults like what.

0:27:46.767 --> 0:27:54.007
<v Speaker 2>She deploys biting, sarcasm, biting and also furious and relentless

0:27:54.087 --> 0:27:59.207
<v Speaker 2>judgment of me, of the food, of opinions of other people.

0:27:59.407 --> 0:28:02.287
<v Speaker 2>So if other people came to the house afterwards, she'd

0:28:02.287 --> 0:28:06.167
<v Speaker 2>give us a kind of blow by blow of their deficiencies.

0:28:06.247 --> 0:28:10.567
<v Speaker 2>You know, they were ugly, they were badly dressed, They

0:28:10.567 --> 0:28:12.847
<v Speaker 2>didn't have anything interesting to say. I mean, you know,

0:28:13.087 --> 0:28:17.447
<v Speaker 2>really very vinegar. You remember I said vinegar vinegar. So

0:28:17.927 --> 0:28:21.127
<v Speaker 2>that's when I said to my mother, I think we

0:28:21.167 --> 0:28:23.967
<v Speaker 2>need a circuit breaker. I don't think there's anything that

0:28:24.007 --> 0:28:27.007
<v Speaker 2>we can do here. Would you consider coming to see

0:28:27.007 --> 0:28:31.287
<v Speaker 2>a family therapist with me? And, to my amazement, since

0:28:31.287 --> 0:28:34.167
<v Speaker 2>she'd never done therapy, she said yes.

0:28:34.487 --> 0:28:36.287
<v Speaker 1>Why do you think she did? Do you think that

0:28:36.327 --> 0:28:40.247
<v Speaker 1>she knew that you were you know, when you just

0:28:40.287 --> 0:28:44.727
<v Speaker 1>described the trigger of hearing the stairchair going. Do you

0:28:44.767 --> 0:28:47.247
<v Speaker 1>think she knew that you were on your last nerve

0:28:47.607 --> 0:28:50.327
<v Speaker 1>or do you think she had maybe always wanted to

0:28:50.327 --> 0:28:51.567
<v Speaker 1>go to therapy in some way.

0:28:51.727 --> 0:28:54.807
<v Speaker 2>No, but I think she knew that the household was

0:28:54.887 --> 0:28:58.607
<v Speaker 2>becoming very dysfunctional. She can read my face and my

0:28:58.647 --> 0:29:00.287
<v Speaker 2>body language pretty well.

0:29:00.007 --> 0:29:02.327
<v Speaker 1>And when she's pushed you a little too far.

0:29:02.727 --> 0:29:06.247
<v Speaker 2>Yes, maybe. And I think she also at the same time,

0:29:06.287 --> 0:29:09.727
<v Speaker 2>as in a sort of very coquettish French way, she'd

0:29:09.767 --> 0:29:12.647
<v Speaker 2>flirt with my husband and thinks my husband is, you know,

0:29:12.767 --> 0:29:18.287
<v Speaker 2>God's gift. She was realizing that that triangulating that wedging

0:29:18.647 --> 0:29:22.167
<v Speaker 2>was doing some damage, and whilst it gave her some power,

0:29:22.567 --> 0:29:25.287
<v Speaker 2>it definitely gave her some power. I think some part

0:29:25.327 --> 0:29:27.847
<v Speaker 2>of her must have realized that we were becoming a

0:29:28.007 --> 0:29:32.887
<v Speaker 2>very unhappy home, and so she said to me, I'll go,

0:29:33.407 --> 0:29:35.847
<v Speaker 2>but I don't want to open Pandora's box. So I

0:29:35.887 --> 0:29:39.047
<v Speaker 2>don't want us to unpack all of what's happened before,

0:29:39.207 --> 0:29:41.047
<v Speaker 2>or we'll never be able to put it all back

0:29:41.087 --> 0:29:44.287
<v Speaker 2>in the box. So I'll go, but I'll only go

0:29:44.967 --> 0:29:48.727
<v Speaker 2>for six sessions. I thought, well, you know that's not bad.

0:29:50.167 --> 0:29:52.247
<v Speaker 1>You said that the therapist had never said with the

0:29:52.767 --> 0:29:53.927
<v Speaker 1>first mother daughter.

0:29:53.727 --> 0:29:57.727
<v Speaker 2>In this age bracket, well, we were sixty and ninety

0:29:58.127 --> 0:30:01.527
<v Speaker 2>when we went, which is pretty game of my mother.

0:30:01.647 --> 0:30:02.807
<v Speaker 2>I have to hand it to her.

0:30:02.967 --> 0:30:05.047
<v Speaker 1>Going to therapy for the first time at ninety is

0:30:05.087 --> 0:30:06.287
<v Speaker 1>a big deal.

0:30:07.287 --> 0:30:08.327
<v Speaker 2>So how did it go?

0:30:08.487 --> 0:30:09.007
<v Speaker 1>Caroline?

0:30:10.807 --> 0:30:14.167
<v Speaker 2>The lovely therapist was probably, I suppose about twenty years

0:30:14.167 --> 0:30:16.367
<v Speaker 2>younger than me, and I remember walking into her rooms

0:30:16.367 --> 0:30:19.127
<v Speaker 2>and thinking, we are gonna eat you for breakfast. We

0:30:19.247 --> 0:30:24.327
<v Speaker 2>are so fucked up. But you know what, she did

0:30:24.407 --> 0:30:27.047
<v Speaker 2>not appear to be thrown by us at all, and so,

0:30:27.407 --> 0:30:29.207
<v Speaker 2>you know, she said, why are you here? What seems

0:30:29.247 --> 0:30:31.367
<v Speaker 2>to be the problem? And I thought, I'll pick something

0:30:31.447 --> 0:30:35.367
<v Speaker 2>really small, because something small might be fixable. The other

0:30:35.407 --> 0:30:39.407
<v Speaker 2>stuff maybe isn't. But I just said, I'm really struggling

0:30:39.487 --> 0:30:41.567
<v Speaker 2>with the fact that my mother never says please and

0:30:41.607 --> 0:30:43.767
<v Speaker 2>thank you for anything at home. You know, she just

0:30:43.807 --> 0:30:48.727
<v Speaker 2>says wine, butter, bread. It's like we're her staff and

0:30:48.767 --> 0:30:52.207
<v Speaker 2>it's just wearing us down. And the therapist turned to

0:30:52.247 --> 0:30:54.327
<v Speaker 2>my mother and said, is that true, Judith, And my

0:30:54.407 --> 0:30:57.527
<v Speaker 2>mother sort of ruffled out her feathers like a great, big,

0:30:57.567 --> 0:31:01.207
<v Speaker 2>sort of Siberian owl, and she said, I've never believed

0:31:01.207 --> 0:31:07.407
<v Speaker 2>in gratitude. I think it's demeaning that's so interesting, And honestly,

0:31:08.047 --> 0:31:12.527
<v Speaker 2>I mean really, I had never heard a statement like

0:31:12.567 --> 0:31:16.167
<v Speaker 2>that in my entire life. And in the big sort

0:31:16.207 --> 0:31:22.247
<v Speaker 2>of computer of my brain, I was suddenly thinking, but gratitude.

0:31:22.247 --> 0:31:27.207
<v Speaker 2>Gratitude is the lubricant in all social exchange. We are

0:31:27.327 --> 0:31:32.287
<v Speaker 2>all giving and taking and receiving and bartering things and

0:31:32.367 --> 0:31:38.047
<v Speaker 2>emotions and transactions all the time. If you don't have gratitude,

0:31:38.087 --> 0:31:41.767
<v Speaker 2>then it is all purely transactional. And that is so

0:31:42.127 --> 0:31:48.927
<v Speaker 2>cold and so unrewarding and so stark. It's just so stark.

0:31:49.007 --> 0:31:50.407
<v Speaker 2>It just felt terrible what.

0:31:50.447 --> 0:31:52.967
<v Speaker 1>She just said, and you'd never heard her say that. No,

0:31:53.607 --> 0:31:56.087
<v Speaker 1>did it also click a lot of things into place

0:31:56.127 --> 0:31:57.447
<v Speaker 1>for you in that room?

0:31:58.047 --> 0:32:01.127
<v Speaker 2>It did? It did not in that room because it

0:32:01.207 --> 0:32:03.767
<v Speaker 2>was too much of a bombshell to process everything. But

0:32:03.887 --> 0:32:08.567
<v Speaker 2>then when I went back over my life and thought, gratitude, gratitude,

0:32:08.647 --> 0:32:11.007
<v Speaker 2>let me see, let's go back in the files and

0:32:11.007 --> 0:32:12.327
<v Speaker 2>think about gratitude.

0:32:12.567 --> 0:32:12.767
<v Speaker 1>Hmm.

0:32:13.127 --> 0:32:17.727
<v Speaker 2>Interesting. Never enjoys giving presents for Christmas and birthdays. Interesting, hmm.

0:32:17.927 --> 0:32:20.167
<v Speaker 2>When she gets presents for Christmas and birthdays and she

0:32:20.247 --> 0:32:22.647
<v Speaker 2>doesn't like them, she immediately pulls her face and says,

0:32:23.007 --> 0:32:24.767
<v Speaker 2>I don't like it. Can I give it back?

0:32:25.327 --> 0:32:25.527
<v Speaker 1>You know.

0:32:25.727 --> 0:32:29.207
<v Speaker 2>Suddenly a whole lot of memories flooded in and I thought,

0:32:29.407 --> 0:32:35.487
<v Speaker 2>that's right. She doesn't do gratitude. It was a complete

0:32:35.807 --> 0:32:40.567
<v Speaker 2>epiphany moment. The therapist said to her, well, you know

0:32:40.607 --> 0:32:42.927
<v Speaker 2>what they say, Jude is just fake it until you

0:32:42.967 --> 0:32:46.007
<v Speaker 2>make it. Why don't you just try, just try saying

0:32:46.047 --> 0:32:47.567
<v Speaker 2>please and thank you a bit and see how you

0:32:47.607 --> 0:32:50.007
<v Speaker 2>go with that. And my mother said, well, I can

0:32:50.087 --> 0:32:53.247
<v Speaker 2>do that, but of course I won't mean it anyway.

0:32:53.647 --> 0:32:56.007
<v Speaker 2>In the car on the way home, to my amazement,

0:32:56.127 --> 0:32:59.767
<v Speaker 2>my mother said I liked her, whereas I thought she

0:32:59.847 --> 0:33:01.047
<v Speaker 2>was going to say, well, I never want to go

0:33:01.087 --> 0:33:06.727
<v Speaker 2>there again. And that evening we normally put out a

0:33:06.767 --> 0:33:08.887
<v Speaker 2>glass of wine for her at about six o'clock, and

0:33:08.967 --> 0:33:11.327
<v Speaker 2>she pre emptied the glass of wine, and she said,

0:33:11.367 --> 0:33:14.647
<v Speaker 2>in a sort of child's voice, please thank you, please

0:33:14.687 --> 0:33:16.647
<v Speaker 2>thank you, please thank you. Ken, I have a glass

0:33:16.687 --> 0:33:17.767
<v Speaker 2>of wine. Please thank you.

0:33:17.887 --> 0:33:25.887
<v Speaker 3>Oh my gosh, and you're going then, please thank you.

0:33:26.967 --> 0:33:29.607
<v Speaker 2>My husband just pushed the glass of wine towards her

0:33:29.607 --> 0:33:32.607
<v Speaker 2>and said, you know, instead of saying you're welcome, he said,

0:33:33.727 --> 0:33:36.967
<v Speaker 2>don't mention it. He said mention it. He just pushed

0:33:36.967 --> 0:33:38.647
<v Speaker 2>the glass of wine towards me and said, mention it. There's

0:33:38.647 --> 0:33:41.847
<v Speaker 2>a sort of little provocation. She loves being teased by him.

0:33:42.287 --> 0:33:47.007
<v Speaker 2>She loves being teased. She thinks it's affectionate, which it can.

0:33:46.887 --> 0:33:48.847
<v Speaker 1>Be, but also maybe a little outlet for him.

0:33:49.047 --> 0:33:52.407
<v Speaker 2>Yeah, So every evening with the wine, she would do

0:33:52.447 --> 0:33:54.407
<v Speaker 2>the please, thank you, please, thank you, and he would

0:33:54.407 --> 0:33:58.047
<v Speaker 2>do the mention it routine, and after about ten days

0:33:58.647 --> 0:34:01.927
<v Speaker 2>she dropped the baby voice and she just said, please,

0:34:01.967 --> 0:34:04.687
<v Speaker 2>can I have a glass of wine? We taught my

0:34:04.887 --> 0:34:10.247
<v Speaker 2>mother manners one oh one at ninety. At ninety it's extraordinary.

0:34:11.487 --> 0:34:17.007
<v Speaker 3>So this whole experience, the therapy, I'm still combs backed

0:34:17.047 --> 0:34:18.927
<v Speaker 3>a boy, that whole thing, particularly these days when we're

0:34:18.967 --> 0:34:21.487
<v Speaker 3>so obsessed with gratitude and how it's the cornerstone, as

0:34:21.487 --> 0:34:23.047
<v Speaker 3>you say, of everything, and now we've got to write

0:34:23.047 --> 0:34:24.927
<v Speaker 3>our gratitude journals and we have to think of all

0:34:24.967 --> 0:34:25.887
<v Speaker 3>the things we're grateful for.

0:34:25.927 --> 0:34:29.127
<v Speaker 1>And I'm like, yeah, okay, anyway.

0:34:30.327 --> 0:34:32.047
<v Speaker 2>I did try that, by the way, with my mother.

0:34:32.127 --> 0:34:34.567
<v Speaker 2>I don't think the therapist suggested this, but I said

0:34:34.567 --> 0:34:36.887
<v Speaker 2>to my mother in a kind of Pollyannis moment, when

0:34:36.927 --> 0:34:40.127
<v Speaker 2>she said she was suffering from depression and loneliness and isolation.

0:34:40.207 --> 0:34:42.847
<v Speaker 2>I said, have you tried a gratitude journal? And she said,

0:34:42.847 --> 0:34:45.047
<v Speaker 2>what's that? And I explained to her what it was,

0:34:45.087 --> 0:34:47.087
<v Speaker 2>and she said, oh, try give me a notebook. So

0:34:47.207 --> 0:34:49.167
<v Speaker 2>you know, I gave her a notebook to write three

0:34:49.207 --> 0:34:51.567
<v Speaker 2>things down. And after about two weeks, I said, how's

0:34:51.567 --> 0:34:53.647
<v Speaker 2>it going, and she said, I can't think of three things?

0:34:53.927 --> 0:34:57.247
<v Speaker 2>I said, well, just think of one. Then doesn't work,

0:34:57.327 --> 0:34:59.167
<v Speaker 2>she said, about three weeks later, and that was the

0:34:59.247 --> 0:35:01.927
<v Speaker 2>end of gratitude journaling that when.

0:35:01.767 --> 0:35:03.567
<v Speaker 1>Did it I mean not that it was an enormous

0:35:03.567 --> 0:35:05.807
<v Speaker 1>surprise after this story, but when did it become apparent

0:35:05.847 --> 0:35:07.327
<v Speaker 1>that your mother wasn't going to be able to keep

0:35:07.367 --> 0:35:07.887
<v Speaker 1>living with you?

0:35:08.727 --> 0:35:13.727
<v Speaker 2>Oh? Well, you know, these things generally happen very suddenly.

0:35:14.527 --> 0:35:21.207
<v Speaker 2>So she had a tendency to get UTIs UTIs I

0:35:21.247 --> 0:35:25.167
<v Speaker 2>didn't know this at the time can lead to extreme delirium,

0:35:25.807 --> 0:35:29.887
<v Speaker 2>and so she suddenly started behaving like a truly crazy

0:35:29.927 --> 0:35:34.487
<v Speaker 2>person and hallucinating in front of us, seeing all sorts

0:35:34.527 --> 0:35:38.047
<v Speaker 2>of figures from her childhood in France from stories she'd read.

0:35:38.087 --> 0:35:42.687
<v Speaker 2>So she'd say, oh, a pretty pass Dona charp, you know,

0:35:42.927 --> 0:35:46.167
<v Speaker 2>the little princess come into the room or something, or Tattaila,

0:35:46.527 --> 0:35:52.407
<v Speaker 2>you know, Tintin is here. Incredibly pleasant hallucinations, but hallucinations nonetheless.

0:35:52.527 --> 0:35:54.887
<v Speaker 2>Or she'd bang on the floor at three o'clock in

0:35:54.927 --> 0:35:58.127
<v Speaker 2>the morning from upstairs and say, I have to discuss

0:35:58.167 --> 0:36:00.607
<v Speaker 2>the film we've just watched, and we'd be thinking, oh

0:36:00.607 --> 0:36:03.247
<v Speaker 2>my god, it's three in the morning, what is going on.

0:36:04.207 --> 0:36:07.687
<v Speaker 2>The kind of behavior she exhibited was not the same

0:36:07.727 --> 0:36:11.607
<v Speaker 2>as my father in the earth stages of dementia when

0:36:11.607 --> 0:36:14.407
<v Speaker 2>he was still at home. So I didn't think that

0:36:14.487 --> 0:36:18.767
<v Speaker 2>she was becoming demented. I didn't think it was progressive

0:36:18.887 --> 0:36:22.887
<v Speaker 2>cognitive decline. I did wait quite a long time to

0:36:22.967 --> 0:36:25.727
<v Speaker 2>call the doctor, and when I called the doctor, the

0:36:25.767 --> 0:36:31.887
<v Speaker 2>doctor said, ambulance immediately, uti delirium. Off she goes, And

0:36:32.047 --> 0:36:34.807
<v Speaker 2>sadly for my mother, not that any of us knew

0:36:34.847 --> 0:36:38.567
<v Speaker 2>this at the time, that day when she was taken

0:36:38.607 --> 0:36:42.807
<v Speaker 2>to hospital suffering from delirium was the last day that

0:36:42.927 --> 0:36:47.047
<v Speaker 2>she was at home, because after that, various other things

0:36:47.287 --> 0:36:51.207
<v Speaker 2>ensued that made it impossible, according to the medical team

0:36:51.807 --> 0:36:54.487
<v Speaker 2>supervising her, for her to come home, and those were

0:36:54.527 --> 0:36:57.967
<v Speaker 2>a combination of things to do with continence and mobility,

0:36:58.207 --> 0:37:02.927
<v Speaker 2>and I racked my brains. I thought, I have got

0:37:03.087 --> 0:37:05.687
<v Speaker 2>to be able to bring her home, because she kept

0:37:05.727 --> 0:37:09.127
<v Speaker 2>begging and begging. In her lucid moments, she would just

0:37:09.447 --> 0:37:12.807
<v Speaker 2>the word home, home, home, over and over and over again.

0:37:13.087 --> 0:37:16.567
<v Speaker 2>She also said home, home, home even when she was delirious,

0:37:16.927 --> 0:37:20.887
<v Speaker 2>so it was really a powerful, powerful idea in her head.

0:37:20.967 --> 0:37:24.047
<v Speaker 2>I tried to cost out what it would be like

0:37:24.167 --> 0:37:27.767
<v Speaker 2>to have a nurse come in and change her pads

0:37:27.807 --> 0:37:30.207
<v Speaker 2>three times a day and put her to bed and

0:37:30.607 --> 0:37:35.767
<v Speaker 2>do all the things. And the medical team said to me, really,

0:37:35.847 --> 0:37:38.687
<v Speaker 2>this is not going to be feasible. And the agencies

0:37:38.727 --> 0:37:40.927
<v Speaker 2>that I spoke to that would have provided the staff

0:37:40.927 --> 0:37:43.207
<v Speaker 2>and made a lot of money out of us, said,

0:37:43.407 --> 0:37:46.167
<v Speaker 2>this is going to ruin your life. You will be

0:37:46.207 --> 0:37:50.647
<v Speaker 2>perpetually chasing after carers that don't show up. You will

0:37:50.647 --> 0:37:54.287
<v Speaker 2>be forced to have strangers in your house three times

0:37:54.327 --> 0:37:56.487
<v Speaker 2>a day because you'll never get the same people. We

0:37:56.607 --> 0:37:59.647
<v Speaker 2>just can't guarantee that, even though this would be a

0:37:59.767 --> 0:38:02.687
<v Speaker 2>very profitable contract for us, we have to say to you,

0:38:02.727 --> 0:38:04.167
<v Speaker 2>in all honesty, don't do this.

0:38:06.487 --> 0:38:09.007
<v Speaker 1>When we come back. Caroline sets out on what can

0:38:09.087 --> 0:38:12.607
<v Speaker 1>own only be described as an aged care odyssey, stay

0:38:12.607 --> 0:38:17.647
<v Speaker 1>with us. This is where this part of your story

0:38:18.847 --> 0:38:21.087
<v Speaker 1>is very relatable. I think to a lot of people

0:38:21.087 --> 0:38:24.767
<v Speaker 1>who come to this point with their parents, and that

0:38:24.967 --> 0:38:28.847
<v Speaker 1>thing about old age of the going into hospital, and

0:38:28.967 --> 0:38:32.647
<v Speaker 1>is that the end of home life is very common,

0:38:32.847 --> 0:38:36.607
<v Speaker 1>terrifyingly common. What you've written and talked about then about

0:38:36.767 --> 0:38:39.127
<v Speaker 1>how to find the right place for your mother, and

0:38:39.247 --> 0:38:41.527
<v Speaker 1>you know what, and this is probably a really glib

0:38:41.567 --> 0:38:44.247
<v Speaker 1>thing to say, so I apologize in advance. But given

0:38:44.367 --> 0:38:47.967
<v Speaker 1>everything that you've just laid out then, the amount of

0:38:48.207 --> 0:38:52.807
<v Speaker 1>care and effort and that you went to even in

0:38:52.847 --> 0:38:54.967
<v Speaker 1>that explanation just then to try and keep her home

0:38:55.007 --> 0:38:57.287
<v Speaker 1>with you when really having a home with you is

0:38:57.407 --> 0:39:01.687
<v Speaker 1>ruining your life, it's extraordinary. Do you just think that's

0:39:01.727 --> 0:39:06.367
<v Speaker 1>a very deep seated instinct to want to protect and

0:39:07.527 --> 0:39:09.647
<v Speaker 1>love her as much as you can, even though actually

0:39:10.247 --> 0:39:12.127
<v Speaker 1>it's probably better for both of you if she's not.

0:39:12.367 --> 0:39:16.007
<v Speaker 2>There, Holly, I don't think it's about love, but I

0:39:16.047 --> 0:39:20.167
<v Speaker 2>do think it's about duty, and I'm very interested in

0:39:20.287 --> 0:39:24.367
<v Speaker 2>duty and the sense of responsibility. I think I was

0:39:24.447 --> 0:39:27.727
<v Speaker 2>inculcated with having a sense of duty to my parents

0:39:27.927 --> 0:39:32.927
<v Speaker 2>very early. I owed them a lot. They were very

0:39:32.967 --> 0:39:35.767
<v Speaker 2>conditional in their love of me, so it was very

0:39:35.767 --> 0:39:39.447
<v Speaker 2>dependent on me getting good marks, being compliant and being obedient.

0:39:40.487 --> 0:39:43.247
<v Speaker 2>And I also got a sense of a kind of

0:39:43.607 --> 0:39:49.967
<v Speaker 2>huge weight of tragedy on both their shoulders, where all

0:39:50.047 --> 0:39:54.207
<v Speaker 2>their expectations were invested in me, and my duty was

0:39:54.247 --> 0:39:59.527
<v Speaker 2>to deliver. I couldn't disappoint them because everything else had

0:39:59.567 --> 0:40:03.847
<v Speaker 2>disappointed them, and with my father, I was able. My

0:40:03.927 --> 0:40:06.647
<v Speaker 2>mother had a nervous breakdown when my father got diagnosed

0:40:06.687 --> 0:40:11.487
<v Speaker 2>with dementia, and she became completely useful and passive. So

0:40:11.727 --> 0:40:15.767
<v Speaker 2>I went to London and I managed to negotiate and

0:40:15.847 --> 0:40:19.887
<v Speaker 2>navigate my way through the British healthcare system and I

0:40:19.967 --> 0:40:22.647
<v Speaker 2>got my father into what is regarded as the best

0:40:22.647 --> 0:40:26.807
<v Speaker 2>care in Britain, and I was incredibly proud of doing that.

0:40:26.927 --> 0:40:30.607
<v Speaker 2>It was very difficult. I outlined what I had to

0:40:30.647 --> 0:40:34.167
<v Speaker 2>do in my memoir, but I had to basically create

0:40:34.207 --> 0:40:38.287
<v Speaker 2>a narrative around his identity as a Jew, which was

0:40:38.327 --> 0:40:41.487
<v Speaker 2>not entirely honest, but I had to play that up

0:40:41.647 --> 0:40:44.927
<v Speaker 2>to get him into Jewish care, which is regarded as

0:40:44.967 --> 0:40:51.807
<v Speaker 2>the best in Britain. I felt with my mother that

0:40:51.927 --> 0:40:55.287
<v Speaker 2>I had to do exactly the same thing, but I

0:40:55.367 --> 0:41:01.287
<v Speaker 2>could I couldn't build a narrative in the Australian healthcare

0:41:01.367 --> 0:41:05.607
<v Speaker 2>system where I could find the right place for her,

0:41:05.727 --> 0:41:10.407
<v Speaker 2>So she's ended up somewhere where she's completely a fish

0:41:10.407 --> 0:41:14.647
<v Speaker 2>out of water. This is a very sophisticated, very well read,

0:41:14.887 --> 0:41:20.127
<v Speaker 2>very cosmopolitan woman who's lived an extremely privileged life, materially

0:41:20.127 --> 0:41:23.647
<v Speaker 2>privileged life, but also has an extraordinary mind. You know,

0:41:23.727 --> 0:41:27.967
<v Speaker 2>she's really interested in contemporary politics and affairs. She's interested

0:41:27.967 --> 0:41:31.647
<v Speaker 2>in contemporary cinema. She's reading in three languages, English, French

0:41:31.687 --> 0:41:35.367
<v Speaker 2>and Russian to this day. And she's sitting somewhere very

0:41:35.407 --> 0:41:39.607
<v Speaker 2>whitebread with people who mostly haven't traveled, who are deeply

0:41:39.647 --> 0:41:43.687
<v Speaker 2>suspicious of anything that's foreign, who don't like spicy food

0:41:43.887 --> 0:41:49.007
<v Speaker 2>or anything that's too you know, pronounced. She has no

0:41:49.047 --> 0:41:51.167
<v Speaker 2>one to talk to about the things that matter to her.

0:41:51.207 --> 0:41:52.807
<v Speaker 2>So the other day I took her on and outing

0:41:52.887 --> 0:41:55.687
<v Speaker 2>to the Margrete exhibition at the Art Gary of New

0:41:55.727 --> 0:41:57.487
<v Speaker 2>South Wales. And the next day she said to me,

0:41:57.927 --> 0:42:00.367
<v Speaker 2>I couldn't tell anyone about the exhibition because none of

0:42:00.407 --> 0:42:03.567
<v Speaker 2>them had heard of Margreete. Well, you know, Magreete is

0:42:03.607 --> 0:42:08.167
<v Speaker 2>not something or someone that everybody needs to have heard of.

0:42:08.327 --> 0:42:10.847
<v Speaker 2>But there are so many examples I can give you

0:42:10.927 --> 0:42:14.447
<v Speaker 2>of where I do feel every day that I have

0:42:14.567 --> 0:42:17.887
<v Speaker 2>failed her and I have betrayed her because I have

0:42:18.087 --> 0:42:20.407
<v Speaker 2>not been able to do for her what I did

0:42:20.407 --> 0:42:21.007
<v Speaker 2>for my father.

0:42:21.967 --> 0:42:26.327
<v Speaker 1>That's incredibly difficult, but it sounds like, given the context,

0:42:26.327 --> 0:42:29.047
<v Speaker 1>in the situation that you were in, you did try

0:42:29.087 --> 0:42:30.727
<v Speaker 1>incredibly hard to get her in the best care that

0:42:30.767 --> 0:42:33.887
<v Speaker 1>you could. What did you learn about that system here

0:42:33.887 --> 0:42:35.287
<v Speaker 1>in Australia.

0:42:34.807 --> 0:42:37.287
<v Speaker 2>Oh my god. Well, first of all, the first place

0:42:37.327 --> 0:42:39.647
<v Speaker 2>I took her to, I was fooled by the rooms

0:42:39.647 --> 0:42:43.927
<v Speaker 2>which were glossy and looked sort of hotel lukesish and

0:42:44.167 --> 0:42:48.087
<v Speaker 2>nicely maintained gardens. And one of the most stupid things

0:42:48.127 --> 0:42:50.927
<v Speaker 2>that we do is somehow we think if they can

0:42:50.967 --> 0:42:52.927
<v Speaker 2>take care of the plants, they can take care of

0:42:52.967 --> 0:42:55.807
<v Speaker 2>the people. Well, I'm sorry, but the gardening team are

0:42:55.807 --> 0:43:00.007
<v Speaker 2>not the nursing teams, so you should not make that equation.

0:43:00.687 --> 0:43:03.527
<v Speaker 2>And that case turned out to be so bad, so

0:43:03.727 --> 0:43:07.127
<v Speaker 2>badly run, and so bad in every way that I

0:43:07.167 --> 0:43:10.607
<v Speaker 2>actually had to stage an intervention and take out and

0:43:10.687 --> 0:43:12.647
<v Speaker 2>put her into a new place, which of course is

0:43:12.767 --> 0:43:16.527
<v Speaker 2>extremely disruptive for her. But she agreed with me. I

0:43:16.607 --> 0:43:18.767
<v Speaker 2>mean she obviously she wanted to go. I would never

0:43:18.807 --> 0:43:21.367
<v Speaker 2>have done that against her wishes. She's still not in

0:43:21.407 --> 0:43:24.687
<v Speaker 2>the right place. So look, one of the problems is

0:43:24.727 --> 0:43:28.007
<v Speaker 2>that we lived in the Illawarra. The Illawarra has a

0:43:28.127 --> 0:43:31.327
<v Speaker 2>chronic bed shortage of more than one hundred and sixty

0:43:31.367 --> 0:43:36.167
<v Speaker 2>two beds short when I was looking in our area,

0:43:37.247 --> 0:43:38.967
<v Speaker 2>so this was at the end of last year. I

0:43:39.007 --> 0:43:41.247
<v Speaker 2>don't know what the shortage is now, but it's probably

0:43:41.327 --> 0:43:45.007
<v Speaker 2>just as acute, which has forced me outside our community,

0:43:45.047 --> 0:43:48.167
<v Speaker 2>which means I don't have the same GP, I don't

0:43:48.167 --> 0:43:51.327
<v Speaker 2>have the same Allied health services. I've had to start

0:43:51.367 --> 0:43:54.527
<v Speaker 2>again in a completely new suburb where I know no

0:43:54.567 --> 0:43:57.407
<v Speaker 2>one and nothing, and I am driving up and down

0:43:57.447 --> 0:44:01.167
<v Speaker 2>the highway halfway to Sydney three times a week to

0:44:01.527 --> 0:44:04.607
<v Speaker 2>compensate for all the things that are wrong with the

0:44:04.607 --> 0:44:07.567
<v Speaker 2>place where mum is. And the place where mum is

0:44:07.567 --> 0:44:10.407
<v Speaker 2>is regarded as one of the better places in the

0:44:10.447 --> 0:44:13.847
<v Speaker 2>Sydney metropolitan area, but it's not great.

0:44:14.807 --> 0:44:18.207
<v Speaker 1>What do you think with all of those things said,

0:44:18.487 --> 0:44:22.167
<v Speaker 1>what have you learned both in your experience in Britain?

0:44:22.167 --> 0:44:24.727
<v Speaker 1>And here are the things that matter? As you were saying,

0:44:24.767 --> 0:44:26.847
<v Speaker 1>you know, like don't be fooled by the nice rooms.

0:44:26.887 --> 0:44:31.127
<v Speaker 1>Don't be fooled by the shiny plants. What matters, what

0:44:31.287 --> 0:44:33.847
<v Speaker 1>makes it right? I mean, And given also what you've

0:44:33.847 --> 0:44:37.727
<v Speaker 1>said about the cultural fit, is probably not going to

0:44:37.767 --> 0:44:38.167
<v Speaker 1>be right.

0:44:39.047 --> 0:44:41.287
<v Speaker 2>No, I think that's probably the hardest thing of all.

0:44:41.367 --> 0:44:43.847
<v Speaker 2>I think there's only one place that Mum would fit,

0:44:43.967 --> 0:44:46.847
<v Speaker 2>and it would probably be even though she's not Jewish herself.

0:44:47.887 --> 0:44:50.567
<v Speaker 2>I think it probably would be Jewish care simply because

0:44:50.607 --> 0:44:53.607
<v Speaker 2>the mix of residents would be more European and they

0:44:53.647 --> 0:44:57.047
<v Speaker 2>have the same background culture. Look in the end, Holly,

0:44:57.287 --> 0:45:00.887
<v Speaker 2>it's very very simple to say what the problem is,

0:45:01.367 --> 0:45:05.327
<v Speaker 2>and it's impossible to fix. And it's the staff, the

0:45:05.407 --> 0:45:09.887
<v Speaker 2>training of the staff, and the retention. So I'll just

0:45:09.967 --> 0:45:11.887
<v Speaker 2>give you an example of something that I think is

0:45:11.967 --> 0:45:16.167
<v Speaker 2>so poignant about where Mum is. Most of the staff

0:45:16.407 --> 0:45:22.687
<v Speaker 2>where she is are wonderful young people from Nepal, probably

0:45:22.727 --> 0:45:27.167
<v Speaker 2>from rural families, probably from quite extreme poverty. Most of

0:45:27.207 --> 0:45:30.647
<v Speaker 2>them are studying to be nurses or engineers if they're males.

0:45:31.767 --> 0:45:35.607
<v Speaker 2>The training is so basic and so rudimentary that the

0:45:35.687 --> 0:45:39.047
<v Speaker 2>other day I was in the kitchen area of Mum's place.

0:45:39.527 --> 0:45:42.687
<v Speaker 2>They welcome you being in the kitchen, and the nice

0:45:42.727 --> 0:45:44.847
<v Speaker 2>thing about where she is is there is an open

0:45:44.847 --> 0:45:47.767
<v Speaker 2>planned kitchen and the food is cooked on her floor,

0:45:48.047 --> 0:45:50.727
<v Speaker 2>so you can smell the food cooking, which is great

0:45:51.247 --> 0:45:53.807
<v Speaker 2>and it's one of the things that Maggie Beer, for example,

0:45:53.847 --> 0:45:57.167
<v Speaker 2>has really championed in that fantastic program of hers because

0:45:57.167 --> 0:46:00.167
<v Speaker 2>the smell of the food triggers your salivary glands, so

0:46:00.207 --> 0:46:04.167
<v Speaker 2>it actually has a physiological benefit. Anyway, as in the kitchen,

0:46:05.127 --> 0:46:08.287
<v Speaker 2>and I was making mum a piece of toast, and

0:46:08.447 --> 0:46:11.487
<v Speaker 2>one of the care is said to me, oh, is

0:46:11.527 --> 0:46:14.207
<v Speaker 2>that what toast is? And I said, yeah, of course

0:46:14.207 --> 0:46:16.207
<v Speaker 2>that's what toast is. What did you think toast was?

0:46:16.247 --> 0:46:18.807
<v Speaker 2>And she said, well, we don't eat toasts, so I

0:46:18.807 --> 0:46:20.927
<v Speaker 2>didn't know what toast was. So I just always put

0:46:20.927 --> 0:46:22.527
<v Speaker 2>the bread in the machine to warm it up. But

0:46:22.567 --> 0:46:25.527
<v Speaker 2>I didn't know it had to change color. Oh okay,

0:46:25.647 --> 0:46:28.767
<v Speaker 2>so that's really basic. Let me give you another example. Porridge.

0:46:28.767 --> 0:46:31.607
<v Speaker 2>My mother has porridge in the morning. Sometimes the porridge

0:46:31.607 --> 0:46:34.367
<v Speaker 2>comes with lumps. It's absolutely inedible. So I go to

0:46:34.407 --> 0:46:38.887
<v Speaker 2>the cares and I say, the porridge is lumpy, how's

0:46:38.887 --> 0:46:42.607
<v Speaker 2>about you try and make it like congy And immediately

0:46:42.847 --> 0:46:44.927
<v Speaker 2>there's a light that goes on in their eyes because

0:46:44.967 --> 0:46:48.607
<v Speaker 2>they know conngy. They eat congy, Suddenly the porridge has

0:46:48.607 --> 0:46:52.647
<v Speaker 2>no lumps in it. If you don't train people who

0:46:52.687 --> 0:46:55.647
<v Speaker 2>don't eat any of the food that you're dishing up

0:46:55.687 --> 0:46:59.247
<v Speaker 2>to your residence to know what the barometer is of

0:46:59.287 --> 0:47:01.327
<v Speaker 2>should it be salty or sweet, Should it be lumpy

0:47:01.367 --> 0:47:04.007
<v Speaker 2>or smooth, should it be brown or white? You know,

0:47:04.087 --> 0:47:06.647
<v Speaker 2>these are basics that we take for granted, but you

0:47:06.767 --> 0:47:10.127
<v Speaker 2>take away the quality of life. A good piece of

0:47:10.207 --> 0:47:14.727
<v Speaker 2>toast and a smooth bowl of porridg It sounds so simple,

0:47:15.327 --> 0:47:18.727
<v Speaker 2>but if that's not part of the training, it's really

0:47:19.407 --> 0:47:22.047
<v Speaker 2>you know, this stuff is really upsettingly basic.

0:47:22.167 --> 0:47:26.207
<v Speaker 1>Yes, because it's it makes such a difference to the

0:47:26.247 --> 0:47:28.767
<v Speaker 1>everyday experience of being there and the dignity and any

0:47:28.767 --> 0:47:29.967
<v Speaker 1>little pockets of joy.

0:47:30.287 --> 0:47:33.167
<v Speaker 2>That's right, So the pocket of joy rests on the

0:47:33.207 --> 0:47:37.127
<v Speaker 2>fact that you have enough butter and marmalade on your

0:47:37.167 --> 0:47:39.687
<v Speaker 2>properly browned piece of toast.

0:47:40.447 --> 0:47:44.687
<v Speaker 1>Tell me about asking you you wrote in that essay

0:47:44.767 --> 0:47:48.207
<v Speaker 1>about how the word was I was gonna say pushy,

0:47:48.247 --> 0:47:50.807
<v Speaker 1>but that's the wrong word. But like, how involved as

0:47:51.607 --> 0:47:56.007
<v Speaker 1>as a family member to be in like, not necessarily

0:47:56.007 --> 0:47:58.727
<v Speaker 1>in that specific example, but to be asking about the

0:47:58.767 --> 0:48:01.287
<v Speaker 1>care and the small things that happen and that you know,

0:48:01.567 --> 0:48:03.687
<v Speaker 1>you wrote about whether or not they lose garments in

0:48:03.727 --> 0:48:07.807
<v Speaker 1>the cleaning process, whether or not if you are a

0:48:07.847 --> 0:48:12.487
<v Speaker 1>family member who is very involved and you're there and saying, look,

0:48:12.527 --> 0:48:14.967
<v Speaker 1>my mother needs things like this or like that, or

0:48:16.047 --> 0:48:19.247
<v Speaker 1>is it well received, does the squeaky wheel get the grease.

0:48:19.527 --> 0:48:23.047
<v Speaker 2>Yeah, that's an interesting question. Look, I have been told

0:48:23.127 --> 0:48:26.007
<v Speaker 2>that people like me who are really on their case

0:48:27.007 --> 0:48:30.767
<v Speaker 2>are regarded as absolute nightmares. But I've also been told

0:48:30.767 --> 0:48:33.887
<v Speaker 2>that families where there is a high level of advocacy

0:48:34.567 --> 0:48:37.887
<v Speaker 2>tend to get better treatment. I think though, that all

0:48:37.927 --> 0:48:42.967
<v Speaker 2>of that has come with a very high price in

0:48:43.047 --> 0:48:46.847
<v Speaker 2>terms of my mental health. So I have had several

0:48:46.967 --> 0:48:51.207
<v Speaker 2>kind of moments of absolute mental wobble and collapse where

0:48:51.207 --> 0:48:55.847
<v Speaker 2>I have felt completely overwhelmed by the advocacy role and

0:48:56.167 --> 0:49:00.447
<v Speaker 2>by being sometimes the mediator between this very vinegary mother

0:49:01.167 --> 0:49:06.847
<v Speaker 2>and these very sweet, very overworked, under trained staff. So,

0:49:07.127 --> 0:49:09.207
<v Speaker 2>you know, funny enough, when we go back to the

0:49:09.287 --> 0:49:14.687
<v Speaker 2>gratitude thing, there was an incident where I was called

0:49:14.727 --> 0:49:18.287
<v Speaker 2>by my mother and there was some sort of standoff

0:49:18.367 --> 0:49:22.007
<v Speaker 2>between her and a nurse who had complained that my

0:49:22.087 --> 0:49:25.647
<v Speaker 2>mother didn't say please or thank you. So we're right

0:49:25.687 --> 0:49:30.287
<v Speaker 2>back at that. You'll remember I learned well, you know,

0:49:30.527 --> 0:49:34.407
<v Speaker 2>I had to say to the nurse, your job is

0:49:34.447 --> 0:49:37.927
<v Speaker 2>not to teach my mother manners. Your job is to

0:49:37.967 --> 0:49:41.007
<v Speaker 2>care for her. I agree with you. My mother is

0:49:41.127 --> 0:49:45.007
<v Speaker 2>not the most grateful person in the world. She's French,

0:49:45.367 --> 0:49:49.247
<v Speaker 2>she's blunt, she's spiky. I acknowledge all of those things.

0:49:49.527 --> 0:49:52.247
<v Speaker 2>But it is not your job to tell her to

0:49:52.287 --> 0:49:55.887
<v Speaker 2>say please and thank you. The other day, my mother

0:49:56.047 --> 0:49:59.247
<v Speaker 2>was in high dudgeon because the caress had said to her,

0:49:59.727 --> 0:50:04.767
<v Speaker 2>you should smile more. And my mother said, you're all

0:50:04.807 --> 0:50:08.087
<v Speaker 2>obsessed with smiling here. This is a smiling culture. In Australia,

0:50:08.127 --> 0:50:11.247
<v Speaker 2>you smile all the time, and it's completely meaningless. In France,

0:50:11.367 --> 0:50:14.447
<v Speaker 2>we don't smile all the time. And I thought about that,

0:50:14.567 --> 0:50:17.247
<v Speaker 2>and I thought, you know, you're right. We do smile

0:50:17.327 --> 0:50:20.887
<v Speaker 2>a lot. We do use that facial expression as a

0:50:20.927 --> 0:50:26.767
<v Speaker 2>way of navigating, you know, unfamiliar situations, et cetera. And

0:50:26.887 --> 0:50:31.087
<v Speaker 2>it is true that the French dispense their smiles a

0:50:31.167 --> 0:50:36.967
<v Speaker 2>little more sparingly, you know. So these are cultural things

0:50:37.407 --> 0:50:40.647
<v Speaker 2>and she's clashing with people all the time, and then

0:50:40.727 --> 0:50:42.887
<v Speaker 2>I'm having to come in and kind of try and

0:50:42.927 --> 0:50:47.447
<v Speaker 2>settle everybody down, apologize for her rudeness and high handedness

0:50:47.447 --> 0:50:51.207
<v Speaker 2>to the staff, try and get my mother's feathers kind

0:50:51.247 --> 0:50:54.407
<v Speaker 2>of smooth down, and remind her that there is some

0:50:54.447 --> 0:50:57.327
<v Speaker 2>things about this place that are good, and there's some

0:50:57.407 --> 0:50:59.567
<v Speaker 2>cares that she likes, as well as some cares that

0:50:59.607 --> 0:51:05.447
<v Speaker 2>she doesn't. But it's incredibly taxing, and I do feel guilty.

0:51:06.007 --> 0:51:09.927
<v Speaker 1>Yes, it's also for many families who are in the

0:51:09.927 --> 0:51:12.807
<v Speaker 1>situation that you are in, and you have been. You

0:51:12.807 --> 0:51:14.847
<v Speaker 1>are your mother's primary carer. I guess, for one of

0:51:14.847 --> 0:51:18.887
<v Speaker 1>a better term, for that period before she went into

0:51:18.967 --> 0:51:22.727
<v Speaker 1>the facility, that must have been a lot of mental

0:51:22.727 --> 0:51:25.647
<v Speaker 1>load and physical work of its own kind. And I

0:51:25.687 --> 0:51:27.727
<v Speaker 1>think that people often think, well, once I've got her

0:51:27.767 --> 0:51:30.807
<v Speaker 1>in the right place, that will be lifted from me.

0:51:30.927 --> 0:51:33.647
<v Speaker 1>But it sounds like that is all still there.

0:51:34.567 --> 0:51:37.727
<v Speaker 2>Look, I think that that is really a miss in

0:51:37.767 --> 0:51:41.487
<v Speaker 2>this whole situation. And so many people have said to me, oh,

0:51:41.527 --> 0:51:44.967
<v Speaker 2>you must be so relieved she's not at home anymore. Well, yes,

0:51:45.167 --> 0:51:47.807
<v Speaker 2>I don't have the trigger of the stairchair sound. I

0:51:47.847 --> 0:51:50.687
<v Speaker 2>don't have the interruption of having to make lunch every day.

0:51:50.927 --> 0:51:53.287
<v Speaker 2>She's not there watching television with us in the evening.

0:51:53.367 --> 0:51:56.847
<v Speaker 2>All of those things are a great reprieve. However, to

0:51:56.967 --> 0:51:59.607
<v Speaker 2>compensate for how unhappy she is, how much of a

0:51:59.647 --> 0:52:02.567
<v Speaker 2>fish out of water she is, I've hired a companion

0:52:02.607 --> 0:52:07.087
<v Speaker 2>whom she refers to dismissively as my jiggelow. I've hired

0:52:07.087 --> 0:52:09.087
<v Speaker 2>a couple of physios to try and help her with

0:52:09.967 --> 0:52:15.767
<v Speaker 2>improving her mobility. But the myth is that you give

0:52:15.847 --> 0:52:19.807
<v Speaker 2>these people over into professional care and that suddenly you're

0:52:19.887 --> 0:52:23.007
<v Speaker 2>footloose and fancy free and you've got oodles of time. No,

0:52:23.287 --> 0:52:29.287
<v Speaker 2>you're still bringing things from home. You're often supplementing little

0:52:29.527 --> 0:52:35.527
<v Speaker 2>or no social activities. You are advocate, you are the

0:52:35.607 --> 0:52:41.967
<v Speaker 2>first port of care for any medical interventions appointments. I

0:52:42.047 --> 0:52:44.887
<v Speaker 2>still take my mother on an outing once a week

0:52:44.927 --> 0:52:47.007
<v Speaker 2>to try and give her something to look forward to.

0:52:47.647 --> 0:52:49.967
<v Speaker 2>And what is staggering to me is that there are

0:52:50.007 --> 0:52:54.407
<v Speaker 2>statistics that bear this out. I think in the twenty

0:52:54.487 --> 0:52:59.207
<v Speaker 2>twenty four survey that carers New South Wales did, they

0:52:59.247 --> 0:53:03.567
<v Speaker 2>discovered that one third of carers of people who were

0:53:03.967 --> 0:53:08.567
<v Speaker 2>in residential aged care were providing between eight and forty

0:53:08.847 --> 0:53:13.047
<v Speaker 2>hours of support a week, and that forty three percent

0:53:13.487 --> 0:53:16.127
<v Speaker 2>we're providing more than twenty hours. Now, that is a

0:53:16.287 --> 0:53:20.127
<v Speaker 2>lot for someone that you've technically handed over to be

0:53:20.247 --> 0:53:23.447
<v Speaker 2>looked after by other people. You are still doing a

0:53:23.487 --> 0:53:27.407
<v Speaker 2>fair amount. And so when I discovered that the cares allowance,

0:53:27.607 --> 0:53:31.567
<v Speaker 2>if you're eligible for it, stops the day you put

0:53:31.607 --> 0:53:34.807
<v Speaker 2>someone into care, I thought this is out of step

0:53:34.847 --> 0:53:39.647
<v Speaker 2>with reality. The reality surely should be that you should

0:53:39.727 --> 0:53:42.567
<v Speaker 2>continue to receive the care as allowance at least for

0:53:42.727 --> 0:53:46.727
<v Speaker 2>three to six months as an adjustment buffer while you

0:53:46.927 --> 0:53:50.607
<v Speaker 2>work out what your role and responsibility is going to be,

0:53:50.607 --> 0:53:53.167
<v Speaker 2>because you are not going to be able to suddenly

0:53:53.327 --> 0:53:57.367
<v Speaker 2>find a job magically the moment you've handed your parent over,

0:53:58.247 --> 0:54:01.207
<v Speaker 2>and you are still going to be required, especially in

0:54:01.247 --> 0:54:03.807
<v Speaker 2>those first three to six months, to ease them in.

0:54:05.007 --> 0:54:08.967
<v Speaker 1>Absolutely the attention that the piece that you've read about

0:54:08.967 --> 0:54:12.247
<v Speaker 1>this got, because it obviously struck a big nerve. Tell

0:54:12.287 --> 0:54:14.007
<v Speaker 1>me a little bit about the response and whether or

0:54:14.007 --> 0:54:17.487
<v Speaker 1>not you think that this is an issue, because we've

0:54:17.527 --> 0:54:20.367
<v Speaker 1>been seeing a lot about age care in the headlines

0:54:21.087 --> 0:54:25.367
<v Speaker 1>for several years now. Do you think it's a fixable issue?

0:54:25.407 --> 0:54:27.367
<v Speaker 1>And do you think that any of the responses and

0:54:27.407 --> 0:54:30.207
<v Speaker 1>the conversations you've had around this since you started talking

0:54:30.247 --> 0:54:32.207
<v Speaker 1>about it actually have an impact.

0:54:32.927 --> 0:54:36.407
<v Speaker 2>It's been really poignant and very overwhelming, and I'm sorry

0:54:36.407 --> 0:54:39.807
<v Speaker 2>that I haven't been able to answer the hundreds of comments.

0:54:39.847 --> 0:54:42.807
<v Speaker 2>So I think when the peace in the Guardian first appeared,

0:54:42.807 --> 0:54:45.887
<v Speaker 2>there were nearly seventy comments almost immediately, and most of

0:54:45.927 --> 0:54:49.367
<v Speaker 2>them were along the lines of I feel seen, I

0:54:49.407 --> 0:54:54.607
<v Speaker 2>feel heard, thank you for sharing an experience that identifies

0:54:54.607 --> 0:54:58.527
<v Speaker 2>absolutely or correlates absolutely with my own. Then there's another

0:54:58.927 --> 0:55:01.687
<v Speaker 2>lot of people saying this is all the problem of

0:55:01.687 --> 0:55:05.047
<v Speaker 2>this being a for profit business. The moment you mondetize

0:55:05.087 --> 0:55:08.727
<v Speaker 2>old age, you're never going to get anything good happening.

0:55:09.407 --> 0:55:12.087
<v Speaker 2>Most people seem to agree with me that the training

0:55:12.127 --> 0:55:16.207
<v Speaker 2>of staff is the bottom line problem, and I have

0:55:16.287 --> 0:55:20.447
<v Speaker 2>to say that I think that the Star rating system.

0:55:20.487 --> 0:55:23.367
<v Speaker 2>I know we're all completely obsessed with rating systems, whether

0:55:23.407 --> 0:55:26.247
<v Speaker 2>it's our holidays or our meals or our ubers or

0:55:26.247 --> 0:55:30.647
<v Speaker 2>whatever it is, but the Star rating system for aged

0:55:30.687 --> 0:55:36.527
<v Speaker 2>care facilities is not done by an independent assessment that

0:55:36.687 --> 0:55:41.407
<v Speaker 2>is in any way a reliable guide or marker standards.

0:55:42.247 --> 0:55:46.087
<v Speaker 2>It can provide you with some warning of some places

0:55:46.167 --> 0:55:49.967
<v Speaker 2>where things look a little bit ropey and you might

0:55:50.007 --> 0:55:52.887
<v Speaker 2>want to avoid them. But I think we need a

0:55:53.047 --> 0:55:59.007
<v Speaker 2>completely different system of independent assessment, and that we haven't

0:55:59.047 --> 0:56:03.647
<v Speaker 2>got any of the safeguards in place that we need,

0:56:03.887 --> 0:56:07.207
<v Speaker 2>and that we are not at the moment able to

0:56:07.367 --> 0:56:10.607
<v Speaker 2>recruit the right people into this profession and make it

0:56:10.647 --> 0:56:14.647
<v Speaker 2>in any way attractive. And I can, having seen what

0:56:14.687 --> 0:56:17.287
<v Speaker 2>my mother's cares have to do, I can see that

0:56:17.367 --> 0:56:21.367
<v Speaker 2>it is not an attractive profession. But that, for example,

0:56:22.047 --> 0:56:24.167
<v Speaker 2>I was saying to the care home the other day,

0:56:24.367 --> 0:56:27.487
<v Speaker 2>you know, most of the staff here very well meaning,

0:56:27.727 --> 0:56:30.567
<v Speaker 2>very kind. The Nepalese are very kind and very patient

0:56:30.607 --> 0:56:35.767
<v Speaker 2>and gentle people. Their English is absolutely terrible and almost

0:56:35.807 --> 0:56:39.607
<v Speaker 2>completely incomprehensible. So if you add in the difficulty of

0:56:39.687 --> 0:56:44.487
<v Speaker 2>hearing aids, these these two lots of people are not

0:56:44.767 --> 0:56:48.887
<v Speaker 2>able to communicate. So I said to Mum's care provider,

0:56:49.327 --> 0:56:51.567
<v Speaker 2>just think how you would stand out from the pack

0:56:51.727 --> 0:56:56.447
<v Speaker 2>as an attractive prospect if you offered ongoing English lessons

0:56:56.447 --> 0:56:59.807
<v Speaker 2>to your staff. And you know they wrote that down

0:56:59.847 --> 0:57:01.887
<v Speaker 2>in a notebook and said, what a fabulous idea.

0:57:02.807 --> 0:57:08.527
<v Speaker 1>Well I'm waiting, Caroline, Thank you so much for telling

0:57:08.527 --> 0:57:11.487
<v Speaker 1>me your story in your mother's story, there is actually

0:57:11.487 --> 0:57:13.447
<v Speaker 1>one more thing I wanted to ask you, how has

0:57:13.487 --> 0:57:16.887
<v Speaker 1>this experience affected what you're thinking about your lady is.

0:57:17.527 --> 0:57:20.847
<v Speaker 2>Oh my god. Well, this is where being an only

0:57:20.967 --> 0:57:24.287
<v Speaker 2>child really sucks a in terms of my responsibility for

0:57:24.407 --> 0:57:26.487
<v Speaker 2>my mother, but also in terms of the fact that

0:57:26.527 --> 0:57:29.527
<v Speaker 2>as an only child with no children, I have to

0:57:29.567 --> 0:57:33.047
<v Speaker 2>think to myself, Okay, what are the options going to

0:57:33.087 --> 0:57:37.167
<v Speaker 2>be for me? And I've decided, Holly, that my preferred

0:57:37.247 --> 0:57:41.927
<v Speaker 2>option is going to be robot care. I want a

0:57:42.047 --> 0:57:45.927
<v Speaker 2>robot to wipe my bump. I don't want a person

0:57:45.967 --> 0:57:50.407
<v Speaker 2>to have to do that. And I'm also a very,

0:57:50.647 --> 0:57:56.447
<v Speaker 2>very big believer in voluntary assisted dying. I hope that

0:57:56.487 --> 0:57:58.487
<v Speaker 2>we will be able to roll that out to a

0:57:58.607 --> 0:58:02.527
<v Speaker 2>wider group of people. My mother says to me about

0:58:02.527 --> 0:58:05.527
<v Speaker 2>once a month, I want to go to Dignitas in Switzerland.

0:58:05.927 --> 0:58:08.287
<v Speaker 2>I need to go to Switzerland. She doesn't say how

0:58:08.327 --> 0:58:11.287
<v Speaker 2>we're going to get her to Switzerland, but basically she's

0:58:11.287 --> 0:58:13.487
<v Speaker 2>had enough and she would like to check out. And

0:58:14.087 --> 0:58:15.367
<v Speaker 2>I completely agree with that.

0:58:16.687 --> 0:58:21.007
<v Speaker 1>Thank you so much. This has been an extraordinary, wonderful conversation,

0:58:21.167 --> 0:58:23.247
<v Speaker 1>and I know very many of our listeners are going

0:58:23.287 --> 0:58:25.327
<v Speaker 1>to feel exactly the way the readers did and say

0:58:25.367 --> 0:58:26.327
<v Speaker 1>I feel seen after that.

0:58:26.727 --> 0:58:32.687
<v Speaker 2>Thankk you, Holly, thank you. Okay.

0:58:32.847 --> 0:58:35.487
<v Speaker 1>All I have to say after that interview is thank

0:58:35.527 --> 0:58:39.087
<v Speaker 1>you to Caroline for her honesty and grace, to all

0:58:39.127 --> 0:58:40.967
<v Speaker 1>of you for giving us a reason to make this

0:58:41.047 --> 0:58:43.767
<v Speaker 1>show and me a chance to sit down and listen

0:58:43.807 --> 0:58:49.407
<v Speaker 1>to stories like Caroline's. It is an honor and I

0:58:49.407 --> 0:58:51.767
<v Speaker 1>I'm so grateful for it. As I said, if you

0:58:51.807 --> 0:58:54.047
<v Speaker 1>want to find out more about Caroline and her impressive

0:58:54.047 --> 0:58:56.607
<v Speaker 1>work and her beautiful writing, there's a link in the

0:58:56.647 --> 0:59:00.047
<v Speaker 1>show notes. Go and do that. And if you're struggling

0:59:00.127 --> 0:59:02.967
<v Speaker 1>with the loss or preemptive loss of a parent, please

0:59:03.007 --> 0:59:05.767
<v Speaker 1>scroll back to our episode on grief. It was in

0:59:05.807 --> 0:59:08.767
<v Speaker 1>the first season of mid with Jackie Bailey. It's called

0:59:08.847 --> 0:59:11.807
<v Speaker 1>Grief Has No Time for Your Bullshit, And again it's

0:59:11.807 --> 0:59:14.967
<v Speaker 1>about the reality of loss, not the greening card version.

0:59:15.767 --> 0:59:17.967
<v Speaker 1>And if you want to hear another story from a

0:59:18.007 --> 0:59:21.767
<v Speaker 1>wise woman about the complexity of family and mothers, go

0:59:21.807 --> 0:59:24.447
<v Speaker 1>and listen to the interview I did with Virginia Trioli.

0:59:24.967 --> 0:59:27.367
<v Speaker 1>It's about food on the surface of it, but it's

0:59:27.407 --> 0:59:30.727
<v Speaker 1>actually about so much more, and she tells an extraordinary

0:59:30.767 --> 0:59:36.367
<v Speaker 1>story about her own Vinegary mother. The executive producer of

0:59:36.487 --> 0:59:40.687
<v Speaker 1>this show is named A. Brown, Senior producer is Grace Rufrey,

0:59:41.047 --> 0:59:44.407
<v Speaker 1>the producer is Tarlie Blackman, and we've had audio production

0:59:44.527 --> 0:59:46.607
<v Speaker 1>from Jacob Brown. And I want to thank all of

0:59:46.647 --> 0:59:50.127
<v Speaker 1>them for making mid so special. I hope this episode

0:59:50.127 --> 0:59:52.647
<v Speaker 1>made you feel seen. I hope it helped. I hope

0:59:52.687 --> 0:59:53.887
<v Speaker 1>you come back next week