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Speaker 1: You're listening to a Muma Mia podcast. Mamma Mia acknowledges

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Speaker 1: the traditional owners of land and waters that this podcast

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Speaker 1: is recorded on.

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Speaker 2: Hi.

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Speaker 1: I'm Claire Murphy. This is Mumma MIA's twice daily news podcast,

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Speaker 1: The Quickie. Are you an organ donor? Do you know

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Speaker 1: if you are? Do you know the process to become one?

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Speaker 1: It's National Donate Life Week and we're going to find

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Speaker 1: out what it's like to have someone else's body part

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Speaker 1: keeping you alive. But before we hop into a former

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Speaker 1: NRL player, Chris and Horro's internal organs, here's the letters

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Speaker 1: from the Quokie Newsroom Monday, July twenty nine. Holly Valance

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Speaker 1: has paid tribute to her on screen Neighbor's mum, Janet

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Speaker 1: Andrew Arthur, who passed away age seventy two. Andrew Arthur

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Speaker 1: played Lynn Scully over a twenty year period on the

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Speaker 1: show from nineteen ninety nine. Her TV children, including The

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Speaker 1: Lance who played Felicity Scully, Carla Bonna who was Steph Scully,

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Speaker 1: and Kate Kelty who played Michelle Scully. The Lance took

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Speaker 1: to Twitter to say she was deeply sad, sharing a

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Speaker 1: pick of the two of them together saying I'm glad

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Speaker 1: it was you who played my mum. You were the

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Speaker 1: real deal, made us feel safe and looked after us

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Speaker 1: when we were also young in the industry. She finished with,

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Speaker 1: it was an honor to work beside you and call

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Speaker 1: you friend. A stack of new Labour Cabinet ministers will

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Speaker 1: be sworn in as Prime Minister. Anthony Albernizi switches up

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Speaker 1: roles in the wake of Linda Bernie and Brendan O'Connor's

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Speaker 1: retirement announcements. Melanderra McCarthy will take over the Indigenous Australian's portfolio.

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Speaker 1: Pat conroy will retain the Defense Industry and Pacific portfolios

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Speaker 1: that he held in the Outer Ministry. Jenny McAllister has

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Speaker 1: been promoted to the Outer Ministry in the Cities and

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Speaker 1: Emergency Management portfolios. Tony Burke has picked up Home Affairs

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Speaker 1: and Immigration, with Clara O'Neill and Andrew Giles moved out

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Speaker 1: of those portfolios. Claire O'Neil will remain in cabinet as

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Speaker 1: the Housing and Homelessness Minister, while Giles will take on

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Speaker 1: Skills and Training in the Outer Ministry. Murray Watts takes

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Speaker 1: up Tony Burke's old job as Employment Minister, with his

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Speaker 1: agriculture portfolio passed on to Julie Collins. Israel has promised

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Speaker 1: to strike hard against the Iran backed group Hezbolah after

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Speaker 1: a rocket attack that killed twelve children and teenagers on

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Speaker 1: a football field in Golan Heights. Hesbelah has denied responsibility

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Speaker 1: for the attack. The strike raising fears of a wider

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Speaker 1: conflict in the region, where tensions have been increasing due

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Speaker 1: to the war in Gaza that has killed tens of

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Speaker 1: thousands of Palestinians and caused a humanitarian crisis. The U

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Speaker 1: S Secretary of State Anthony Blincoln says he doesn't want

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Speaker 1: to see an escalation of the conflict on Israel's northern border,

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Speaker 1: but says Israel does have a right to defend its citizens.

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Speaker 1: A year after her death, the details of what led

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Speaker 1: to the passing of Irish singer Sinead O'Connor have been released.

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Speaker 1: The Irish Times are reporting that the fifty six year old,

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Speaker 1: who was found unresponsive in her London home in July

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Speaker 1: twenty twenty three, died from chronic obstructive poenry disease and asthma.

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Speaker 1: The death certificate specifies that the nothing compares to Usinger

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Speaker 1: was also suffering a low grade lower respiratory tract infection.

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Speaker 1: The iconic singer is survived by her three children, her

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Speaker 1: son Shane, having passed away in twenty twenty two. The

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Speaker 1: Pulse on Paris thanks to move by Mamma Mia the

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Speaker 1: exercise app he'll actually enjoy over in Paris. Australia has

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Speaker 1: added another goal to the tally overnight with Jess Box

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Speaker 1: winning the women's canoe Slalom K one. She still has

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Speaker 1: the Sea one and Kayak cross time trials ago. The

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Speaker 1: Matildas have come from behind in their second group match

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Speaker 1: against Zambia to win after trailing four too at half time.

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Speaker 1: Zambia scored again in the second half to put the

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Speaker 1: Matilda's even further behind, but the goals piled on from

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Speaker 1: there and ahead of from Michelle Hayman the final goal,

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Speaker 1: making it a six ' five win to the Aussies.

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Speaker 1: And the rugby seven's girls have won their second group

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Speaker 1: match stage beating Great Britain thirty six to five. That's

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Speaker 1: what's happening around the globe today. Next, Chris has someone

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Speaker 1: else's vital organ keeping him alive. This Donate Life Week,

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Speaker 1: we find out what it feels like to be the

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Speaker 1: recipient of an incredibly precious gift. When former NRL player

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Speaker 1: Chris Ennaho was just eighteen, he was told he was

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Speaker 1: suffering from kidney disease.

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Speaker 2: I didn't really believe it. I was still quite healthy

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Speaker 2: and a fit. I had just signed a contract with

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Speaker 2: the Canry Bulldogs to play football. I just left my

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Speaker 2: junior club at South So initially it was just like, Okay,

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Speaker 2: this will be something that'll be cleared up in a

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Speaker 2: week or two.

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Speaker 1: The diagnosis hit the young footy player's life pretty hard,

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Speaker 1: but after a period of time coming to terms with

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Speaker 1: his limitations, he pushed on.

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Speaker 2: So sick for what three or four years where I

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Speaker 2: couldn't play football, I wasn't allowed I signed a contract

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Speaker 2: and the club wouldn't let me play, and obviously the

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Speaker 2: doctors wouldn't let me play because of my blood pressure

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Speaker 2: and my heart rate and things like that. After I

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Speaker 2: got better, I think I didn't want any sympathy. I

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Speaker 2: didn't want to be treated any different to anyone else.

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Speaker 2: So anything I kind of dealt with, I kind of

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Speaker 2: dealt with silently in terms of not letting the club known,

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Speaker 2: but my family, my friends, all knew that there were

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Speaker 2: certain things that I couldn't couldn't do.

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Speaker 1: Seven years later, Chris went into remission, the now twenty

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Speaker 1: five year old making the most of his time, ending

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Speaker 1: up playing for the South Sydney rabbit Os. But kidney

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Speaker 1: disease is often a ticking time bomb, and eventually Chris's

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Speaker 1: time and remission had come to an end.

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Speaker 2: You can't really do anything about kidney failure until you

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Speaker 2: actually go into failure, and that took me eighteen years

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Speaker 2: until I actually went into kidney failure. Once you do

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Speaker 2: hit a certain level of what they call EGFI, which

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Speaker 2: is basically the filtration rate of your kidneys, they start saying, look,

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Speaker 2: you should be looking for someone.

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Speaker 1: Chris's sister ended up being a match, a hugely for

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Speaker 1: him and his family, and so while he waited for

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Speaker 1: the transplant to happen, he went through the isolating process

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Speaker 1: of dialysis.

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Speaker 2: It takes a lot of time. I started it was

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Speaker 2: probably five hours, three days a week. I'm about one

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Speaker 2: hundred and twenty tis. So generally the bigger you are,

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Speaker 2: the more dialysis you need. They couldn't really do any

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Speaker 2: more than five hours at the hospital I was at.

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Speaker 2: I then moved home. I was doing dallasts of vincents

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Speaker 2: for about eighteen months, I think, and then moved home

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Speaker 2: for about six months, which gave me a little bit

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Speaker 2: more Freedomselve was with my family, you know, my kids,

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Speaker 2: my two daughters fair at Maturita eight and five, and

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Speaker 2: my wife, so that made it a lot easier.

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Speaker 3: But it is quite.

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Speaker 2: Lonely a person that's used to being around people.

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Speaker 3: You know.

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Speaker 2: I got a lot of energy. I run a gym.

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Speaker 2: I like to give energy and share energy with people,

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Speaker 2: and I think the biggest and the hardest thing for

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Speaker 2: me was feeling that I wanted to give but not

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Speaker 2: having that energy to give.

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Speaker 1: It was through the pandemic years that Chris was going

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Speaker 1: through the process of having his sister be a living

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Speaker 1: donor for him. But at the final hour something was revealed.

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Speaker 2: About two weeks before my transplant with Due, I got

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Speaker 2: a phone call from one of the surgeons saying, look,

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Speaker 2: we've made a bit of an error. My sister's kidney

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Speaker 2: was compatible, but it had an adder in the back

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Speaker 2: of it that nanda couldn't be transplanted. So that was

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Speaker 2: really obviously quite difficult mentally for both myself and my

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Speaker 2: sister and my family. She took it quite hard, you know,

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Speaker 2: lots of tears, lots of talking. But it also did

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Speaker 2: bring me and my sister a lot closer together, which

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Speaker 2: I guess if you're looking for good things and gratitude,

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Speaker 2: like I was really grateful for that.

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Speaker 1: That meant Chris had to go back on dialysis, and

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Speaker 1: with the knowledge that with his blood type the average

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Speaker 1: weight for a kidney is ten years, hope was starting

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Speaker 1: to dim. But then the call came.

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Speaker 2: Thursday, the eighteenth of May twenty twenty three. I got

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Speaker 2: a phone call at five thirty in the afternoon. I

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Speaker 2: thought it was someone trying to sell me energy, so

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Speaker 2: I was quite short to the person on the phone.

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Speaker 2: They asked me all these questions about my health. I

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Speaker 2: asked who was and what were calling about? And I said,

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Speaker 2: I had a kidney. How quickly can you get to

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Speaker 2: the hospital. So I think we got there in about

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Speaker 2: three seconds, jumped into my last dialysis, and then by

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Speaker 2: six am the next morning I was on the table.

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Speaker 1: When he woke up from that surgery, Chris says the

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Speaker 1: relief and the gravity of what that donation will allow

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Speaker 1: for the rest of his life to become it was

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Speaker 1: almost overwhelming.

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Speaker 2: When I woke up, I could see better, and I

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Speaker 2: feel like a fog was just lifted straight off me.

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Speaker 2: I could see better, I could smell better, my eyes

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Speaker 2: were clearer, I had better color, or people told me

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Speaker 2: I had better color. The biggest thing I noticed is food,

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Speaker 2: Like I was just scoffing down the hospital food, which is,

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Speaker 2: you know, unheard of. Really, one of the biggest things

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Speaker 2: I couldn't do was eat a lot of meat and

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Speaker 2: protein while I was on dialysis. Was a huge part

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Speaker 2: of my diet. So yeah, it was really good to

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Speaker 2: eat a steak and not feel sick and looked. Just grateful,

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Speaker 2: I guess was the biggest thing. Grateful to the donor family,

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Speaker 2: which in Australia unfortunately not allowed to have any contact with,

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Speaker 2: and I think six months prior I got to send

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Speaker 2: a letter to them, which was really quite cathartic for me.

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Speaker 2: I just felt so grateful and just really hard that

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Speaker 2: couldn't give them anything. If that makes sense, I'm going.

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Speaker 3: To be theory.

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Speaker 2: Yes, So just grateful to everyone, to my family, to

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Speaker 2: my friends, to the medical system. Yeah, it was just

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Speaker 2: a really good time.

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Speaker 1: Loads of assies support being an organ donor. Four in

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Speaker 1: every five of us in fact, but only thirty six

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Speaker 1: percent are actually on the Australian Organ Donor Register. Being

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Speaker 1: on that register is really important because while the final

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Speaker 1: decision is up to your family, the data shows that

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Speaker 1: if they find out that you are a registered donor,

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Speaker 1: eighty percent of families will give their consent. Consents in

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Speaker 1: what is possibly the worst moment of their lives, grieving

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Speaker 1: the loss of their loved one. If you are an

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Speaker 1: organ donor and the worst possible thing happens, your body

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Speaker 1: could help save the lives of seven people and change

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Speaker 1: the lives of countless others who may benefit from iron

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Speaker 1: tissue donation. Liscinda Barry is the CEO of Donate Life

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Speaker 1: and a member of the board of the Organ and

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Speaker 1: Tissue Authority Listend. Can you take us through the steps

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Speaker 1: to become an organ donor? I understand it's actually pretty easy.

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Speaker 3: It is really simple and easy. It's less than a minute.

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Speaker 3: If you go to Donatelife dot gov dot AU, it'll

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Speaker 3: take you straight to the registration page, so very easy

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Speaker 3: to do it, or you can just do it in

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Speaker 3: three taps on your Medicare app. You will see that

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Speaker 3: there is organ register and all you need to do

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Speaker 3: is actually pick the box and it's done so easy.

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Speaker 1: Can you give us a little snapshot of what organ

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Speaker 1: donation waiting lists look like in Australia right now? What's

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Speaker 1: the organ that has the longest waitlist.

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Speaker 3: In Australia At the moment, there's around eighteen hundred people

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Speaker 3: on a waitlist and that includes all organs, but definitely

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Speaker 3: the most needed organ is a kidney. There's around fourteen

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Speaker 3: hundred people waiting for a kidney. If you're on the

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Speaker 3: weight lift for a kidney at the moment in Australia,

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Speaker 3: it's on average about two and a half years.

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Speaker 1: You could be a living donor for a kidney too, right,

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Speaker 1: Can you do that if you're not a friend or

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Speaker 1: family member?

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Speaker 3: Absolutely so. With living kidney donation last year we had

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Speaker 3: two hundred and fifty three people donate. Usually it is

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Speaker 3: a family member or a friend. But even if you've

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Speaker 3: got somebody who wants to donate a kidney here in Australia,

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Speaker 3: but you're not a match because you have to be

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Speaker 3: matched to donate, such as your blood type and tissue typing,

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Speaker 3: you can actually go into a program called the Australian

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Speaker 3: and New Zealand Paired Exchange. And what that means is

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Speaker 3: that you go into this program together and your person

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Speaker 3: who wants to donate a kidney to you will go

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Speaker 3: in a chain and donate somewhere else and you'll get

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Speaker 3: a match kidney back.

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Speaker 1: It's awesome, amazing.

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Speaker 3: So yeah, and there is no doubt getting a kidney

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Speaker 3: before you go on dialysis, so before your kidney is

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Speaker 3: fully failing, can give you much better outcomes. So that's

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Speaker 3: where living is really important.

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Speaker 1: When I was speaking to Chris, I was actually quite

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Speaker 1: shocked that he got very teary when talking about his

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Speaker 1: donation process and about the donor family and about what

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Speaker 1: it was like to wake up and feel that relief

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Speaker 1: that he wouldn't have to struggle with this anymore. Is

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Speaker 1: that really common amongst organ recipients that it's quite an

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Speaker 1: emotional journey for them.

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Speaker 3: It's absolutely an emotional journey. So to need an organ transplant,

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Speaker 3: your exceptionally unwell yourself, and you are waiting to get

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Speaker 3: that organ, and you know that if you can get

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Speaker 3: an organ, you've got a chance of going back to

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Speaker 3: a really full life and living a healthy life and

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Speaker 3: normal life again. But unfortunately, for many people who receive

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Speaker 3: that organ, they also know that that's come at a

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Speaker 3: time when another family is absolutely grieving for the loss

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Speaker 3: of some in their family, so it is very very

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Speaker 3: emotional for them. So they have the exhilaration of receiving

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Speaker 3: an organ and knowing that they're going to survive the

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Speaker 3: majority of people, but they know that somebody's died in

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Speaker 3: that process.

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Speaker 1: Why do we still have the legislation in place here

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Speaker 1: that there is no contact between donor families and donor recipients.

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Speaker 1: Why is that still in place. It seems like there's

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Speaker 1: so many instances where people wish to reach out to

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Speaker 1: each other.

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Speaker 3: In this instance, look, yeah, here in Australia it is anonymous.

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Speaker 3: That is because for the privacy of the donor and

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Speaker 3: the recipient. What we need to remember is organ donation

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Speaker 3: is a gift. And when you're going and families are

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Speaker 3: saying yes, they're not saying yes because they want to

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Speaker 3: meet a recipient. They're saying yes because they want to

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Speaker 3: give that gift at the end of their life. We

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Speaker 3: have to remember as well that quite often there will

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Speaker 3: be families who don't want to be in contact and

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Speaker 3: sometimes it can result in not great communications between families.

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Speaker 3: So Australia's policy is definitely to remain anonymous.

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Speaker 1: Do you find it frustrating that this remains an opt

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Speaker 1: in thing for you to become an organdona rather than

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Speaker 1: an opt out option.

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Speaker 3: There's often debate on opt in and opt out, but look,

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Speaker 3: what's really important is that no matter whether it's opt

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Speaker 3: in or opt out, families are actually approached about donation

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Speaker 3: in the hospital because it's your family that will answer

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Speaker 3: whether donation goes ahead or not because you won't be

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Speaker 3: in a position to do that you're normally on a

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Speaker 3: ventilator in intensive care. So what's really critically important no

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Speaker 3: matter what the consent system is that contact with families

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Speaker 3: and if a family says yes, that's amazing. But if

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Speaker 3: a family says no, donation won't go ahead. And even

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Speaker 3: in opt out countries, if a family objects, donation doesn't proceed.

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Speaker 1: So ultimate opt in or opt out, speak to your

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Speaker 1: family about.

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Speaker 3: It, yep, talk to your family. And the other key

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Speaker 3: strengths of having an opt in on the register. We

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Speaker 3: know that you know eighty to ninety percent of the

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Speaker 3: time family say yes if you're registered because they know

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Speaker 3: what you want, whereas in opt out they may not

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Speaker 3: actually know what you wanted. If everyone out there can

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Speaker 3: really have that chat. This Donate Life week about organ

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Speaker 3: and tissue donation and if you support, take that minute

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Speaker 3: and go and register and talk to your family.

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Speaker 1: Chris is currently working in Bali. The last time he

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Speaker 1: was there with his family, he had to be hooked

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Speaker 1: up to a dialysis machine for up to eight hours

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Speaker 1: a day while his wife and children swam and explored.

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Speaker 1: This time, he's free, and he's forever grateful to the

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Speaker 1: life that was lost to save.

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Speaker 2: His It's something that, you know, it's unexplainable, really, Gratitude

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Speaker 2: is one word. I noticed the little things like I sweat

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Speaker 2: a lot more, which is kind of strange. But yeah,

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Speaker 2: it's so hard to explain. I guess the biggest thing

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Speaker 2: I can say is gratitude to the family. And you know,

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Speaker 2: obviously a bit of sorrow that someone has passed away

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Speaker 2: to donate a kidney, but in saying that, it's completely

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Speaker 2: changed my life.

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Speaker 1: If you want to become an organ donor, you can

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Speaker 1: go through your Medicare app, but we'll also have the

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Speaker 1: donate lifelink in our show notes. Thanks for tuning in

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Speaker 1: today and to all the families who have given their

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Speaker 1: consent to donate their loved ones organs to save others.

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Speaker 1: Thank you. The quickie is produced by me Claire Murphy

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Speaker 1: and our Executive producer Taylor Strano, with audio production by

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Speaker 1: Tom Lyon.