WEBVTT - Hearing Voices

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<v Faydra Aldridge>Welcome to Look again, mental illness re-examined, I'm Faydra Aldridge.

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<v S2>Teddy, please, please don't do this. -- A year ago,

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<v S2>I met a man who was down on his luck.

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<v S2>He's got a gift. Thought I might be able to help.

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<v Faydra Aldridge>Are you out of your mind?

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<v S2>She paints, she reads...

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<v Dr. Randall White>Yeah, she paints, she reads, she lights things on fire.

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<v Dr. Randall White>I got a fire extinguisher, just bring her. Help you? Do I look like I

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<v Dr. Randall White>could help you? What are you doing? You threw the goddamn ball into the fence -- you threw the ball into the fence - Christ almighty -- there's nobody there!

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<v Dr. Randall White>John has Schizophrenia. P eople with this disorder are often paranoid... I'm not.

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<v Faydra Aldridge>If Hollywood is to be believed, all people with schizophrenia

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<v Faydra Aldridge>hear voices telling them to do bad things. The truth, though,

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<v Faydra Aldridge>is a little more complex than that. Hearing voices can

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<v Faydra Aldridge>be a symptom of mental illness. Some people do hear

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<v Faydra Aldridge>voices or experience other kinds of hallucinations, of course, but

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<v Faydra Aldridge>others do not. Some hallucinations are actually not negative or violent. Well,

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<v Faydra Aldridge>some cause a person to want to harm themselves or others.

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<v Faydra Aldridge>So what's it really like to hear voices anyway? Why

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<v Faydra Aldridge>is there so much stigma around this? And what can

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<v Faydra Aldridge>we do about it if we do encounter someone who

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<v Faydra Aldridge>seems to be experiencing hallucinations? These are just some of

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<v Faydra Aldridge>the fascinating questions we're going to be looking at on

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<v Faydra Aldridge>today's episode of Look Again. Today, I'm very happy to

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<v Faydra Aldridge>introduce you to Dr. Randall White. Dr. White is the

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<v Faydra Aldridge>medical director of Community Mental Health in Vancouver and the

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<v Faydra Aldridge>clinical director of the BC Psychosis Program at UBC Hospital.

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<v Faydra Aldridge>He is also a clinical professor of psychiatry at UBC

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<v Faydra Aldridge>and on the Medical Advisory Board of the BC Schizophrenia Society.

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<v Faydra Aldridge>And Dr. White has also been awarded the status of

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<v Faydra Aldridge>Distinguished Fellow by the American Psychiatric Association this year. Randall,

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<v Faydra Aldridge>welcome to Look Again.

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<v Dr. Randall White>Thank you, Faydra.

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<v Faydra Aldridge>Now, before we really get into things, I want to

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<v Faydra Aldridge>kick things off by sharing some thoughts from our panel.

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<v Faydra Aldridge>We're going to hear from some people with lived experience

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<v Faydra Aldridge>about what it's actually like to hear voices. So let's

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<v Faydra Aldridge>take a listen now.

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<v S2>I have experienced auditory hallucinations and olfactory hallucinations and physical hallucinations.

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<v S2>I thought I was in labor and that was very interesting,

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<v S2>to say the least. Needless to say, I didn't go

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<v S2>to the hospital. My family was with me and they said, oh,

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<v S2>it's just your imagination, which I accepted. And then I

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<v S2>had olfactory hallucinations where I smell things.

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<v S4>I started hearing audio hallucinations again and they actually were

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<v S4>about hallucinations. And I actually get up on the psych

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<v S4>ward and I don't know if you feel like I

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<v S4>don't have to listen this. So but yeah, I did

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<v S4>have them anyways and it just kind of scared me just

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<v S4>having them. So I went to the psych ward and

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<v S4>I'm doing much better. I was really, really anxious when

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<v S4>I took myself to the psych ward.

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<v Faydra Aldridge>So those were some thoughts from our panel. People living

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<v Faydra Aldridge>with mental illness, pretty powerful. Dr. White, we just heard

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<v Faydra Aldridge>from people living with mental illness and the fact that

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<v Faydra Aldridge>many of them hear voices, but not all people with

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<v Faydra Aldridge>schizophrenia hear voices. In your clinical experience, how prevalent is

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<v Faydra Aldridge>this symptom?

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<v Dr. Randall White>Hallucinations are one of the five main symptoms listed in

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<v Dr. Randall White>the diagnostic manual we use to diagnose schizophrenia. They're very common,

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<v Dr. Randall White>but as you said, they're not universal. I would say

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<v Dr. Randall White>that probably three quarters or more of people with schizophrenia

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<v Dr. Randall White>experience that at some point it can be episodic. So

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<v Dr. Randall White>at a given time, somebody with this diagnosis might not

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<v Dr. Randall White>be having that, but then we may have relapse or

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<v Dr. Randall White>illness gets worse. It may come back.

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<v Faydra Aldridge>You talk about psychosis and sometimes I've heard people use

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<v Faydra Aldridge>schizophrenia and the term psychosis as the same term they

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<v Faydra Aldridge>use it synonymously. Can we delve into that? Because hearing

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<v Faydra Aldridge>voices is a symptom of psychosis, which is associated with

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<v Faydra Aldridge>many mental illnesses, not just schizophrenia. Can you tell us

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<v Faydra Aldridge>more about that?

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<v Dr. Randall White>Correct. Hallucinations, hearing voices or auditory hallucinations is one symptom

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<v Dr. Randall White>of psychosis, and psychosis refers to an abnormal state of

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<v Dr. Randall White>mind that could be due to any variety of causes.

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<v Dr. Randall White>Schizophrenia is one one of the more common causes of

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<v Dr. Randall White>especially chronic or ongoing hallucinations. When we talk about psychosis

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<v Dr. Randall White>in general, we talk about this abnormal mental state that

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<v Dr. Randall White>lasts for anywhere from usually days to weeks. And in

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<v Dr. Randall White>the case of schizophrenia, it could be years. Another common

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<v Dr. Randall White>form of psychosis is schizoaffective disorder, which is similar to schizophrenia,

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<v Dr. Randall White>but also has elements of depression or mania or mood

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<v Dr. Randall White>problems mixed in as well.

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<v Faydra Aldridge>We all hear voices right now. There's a voice in

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<v Faydra Aldridge>my head saying, sit up, don't talk so fast, remember

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<v Faydra Aldridge>to breathe. So how do we know the difference between

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<v Faydra Aldridge>the voice that's in... or example, my head right now,

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<v Faydra Aldridge>my inner voice and an auditory hallucination?

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<v Dr. Randall White>Well, yeah, we talk about our inner voice. And another

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<v Dr. Randall White>way people describe that is maybe their conscience. That's not

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<v Dr. Randall White>what people with schizophrenia are experiencing when they talk about

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<v Dr. Randall White>hearing voices. They talk about an experience that's very similar

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<v Dr. Randall White>to what our listeners are having right now, where someone

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<v Dr. Randall White>else is talking to them. They don't necessarily call it

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<v Dr. Randall White>their inner voice. They call it often an alien voice

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<v Dr. Randall White>that's coming from outside their head. Sometimes it sounds more

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<v Dr. Randall White>like it's hitting their head, but it can vary. But

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<v Dr. Randall White>frequently it's completely alien. They may or may not give

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<v Dr. Randall White>an identity to it. It may say things that seem

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<v Dr. Randall White>totally uncharacteristic for the thoughts they usually have. It may

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<v Dr. Randall White>tell them to do risky, dangerous things. And so it's

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<v Dr. Randall White>a very compelling experience in many cases that could lead

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<v Dr. Randall White>to irresponsible or dangerous. That's very different from what we

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<v Dr. Randall White>might call our inner voice or our conscience or even

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<v Dr. Randall White>our repetitive thoughts,

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<v Faydra Aldridge>And when we think about auditory hallucinations, there are many

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<v Faydra Aldridge>other kinds, and you alluded to this earlier, including tactile,

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<v Faydra Aldridge>which you don't really hear a lot about. Can we

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<v Faydra Aldridge>talk about those other hallucinations that we may not hear

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<v Faydra Aldridge>a lot about?

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<v Dr. Randall White>Yes. So in psychosis and especially in schizophrenia, the hallucinations

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<v Dr. Randall White>can occur in any sense. We call them sensory modalities.

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<v Dr. Randall White>So touch, smell, vision and hearing, of course, so people

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<v Dr. Randall White>can have visual hallucinations, they can see other people, they

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<v Dr. Randall White>can see animals or other things that aren't present. They

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<v Dr. Randall White>can have odors, they can smell strange things, even their

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<v Dr. Randall White>taste can be distorted. And then they can feel things

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<v Dr. Randall White>on their skin like someone is touching them. That may

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<v Dr. Randall White>be very complex. They may feel as though they're being

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<v Dr. Randall White>sexually assaulted, which is obviously very distressing. These can occur

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<v Dr. Randall White>in different combinations. So they might hear the voice and

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<v Dr. Randall White>then they feel something and they think someone is trying

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<v Dr. Randall White>to harm them or possess them. And that can lead

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<v Dr. Randall White>into another symptom, very common in psychosis, which is delusions.

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<v Dr. Randall White>Delusions are false beliefs. So somebody who's having a hallucination

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<v Dr. Randall White>where they feel like they're being sexually assaulted may then

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<v Dr. Randall White>develop a delusion that an unseen person or their neighbor

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<v Dr. Randall White>or whoever is repeatedly assaulting them.

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<v Faydra Aldridge>Now, if somebody does experience hallucinations, what are some treatment

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<v Faydra Aldridge>options with schizophrenia?

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<v Dr. Randall White>The cause is not completely understood. Therefore, we only have

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<v Dr. Randall White>treatments that can sometimes partially, sometimes fully suppress that symptom,

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<v Dr. Randall White>but not necessarily cure it. And it comes down to medications,

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<v Dr. Randall White>antipsychotic medications. At the same time, I should mention, we

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<v Dr. Randall White>have some psychological and behavioral interventions that can help as well.

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<v Dr. Randall White>They won't necessarily eliminate it, but it can help people

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<v Dr. Randall White>to manage the distress that goes along with the experience

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<v Faydra Aldridge>You're listening to. Look Again, Mental Illness Re-Examined, a podcast

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<v Faydra Aldridge>brought to you by the BC Schizophrenia Society and B.C.

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<v Faydra Aldridge>partner organizations. I'm your host, Faydra Aldridge . This podcast would

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<v Faydra Aldridge>not be possible without the support of the entire community.

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<v Faydra Aldridge>From the bottom of our hearts, we want to thank

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<v Faydra Aldridge>you for caring about mental illness together. We truly can

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<v Faydra Aldridge>make a difference. So we're speaking with Dr. White about hallucinations, earlier,

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<v Faydra Aldridge>we heard from people with lived experience and what it's

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<v Faydra Aldridge>like to experience these hallucinations, and now we're going to

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<v Faydra Aldridge>hear from family members and what it's like for them

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<v Faydra Aldridge>to see a loved one experiencing them.

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<v S5>I remember one day coming home, it still upsets me

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<v S5>to this day. He was walking around my living room

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<v S5>and then just kneeling, staring, and then slowly get up

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<v S5>and take a few steps to the left or the

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<v S5>right and he'd kneel down on one knee again. And

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<v S5>he did that -- just in a circle in my living room.

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<v S5>And I just couldn't reach him in that moment, just

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<v S5>watching his body move so slowly in response to something

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<v S5>that I couldn't see or hear. It's quite it's very terrifying.

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<v S5>I mean, I remember those those years. And I'm just

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<v S5>so grateful that we're past those.

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<v S4>The feeling of helplessness, not not so much fear, but

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<v S4>you just see the torment that these folks are going through.

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<v S4>It's just distressing to see them. Sometimes it's his paranoia

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<v S4>how it bothers him. And it's there. It's really unfortunate.

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<v S4>There are places where people have tried to reproduce auditory

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<v S4>hallucinations on YouTube. And if some of those are true,

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<v S4>it is scary if if in fact those renditions are

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<v S4>even close to what people are hearing in their heads.

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<v S4>And I just feel so, so sad for the torture

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<v S4>that this symptom gives to gives to these folks, to

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<v S4>my sons.

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<v S5>You can just see the torment that they're going through

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<v S5>and how how badly he felt about himself because of

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<v S5>what the voices were telling him about how awful he was.

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<v S5>And he's going to go to hell. You know, he

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<v S5>didn't want to live anymore. You wanted to be put

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<v S5>out of his misery when he was so afraid they

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<v S5>were right that he's going to go to hell.

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<v S2>I can see my son's eyes. They go flat when

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<v S2>he's somewhere else. They were a comfort to him and

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<v S2>they told him he was really smart. But they also

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<v S2>warned him that people were after him all the time

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<v S2>and stuff, too. So that's been stolen, the candle is blown out, feeling pretty awful

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<v S2>to witness in your child.

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<v Faydra Aldridge>So those were just a few thoughts from some family members,

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<v Faydra Aldridge>from our family panel made up of families of people

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<v Faydra Aldridge>with schizophrenia. And we asked them to share what it's

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<v Faydra Aldridge>like to witness someone who is experiencing active hallucinations from

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<v Faydra Aldridge>the outside. We're back with Dr. Randall White, clinical professor

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<v Faydra Aldridge>in the U.S. Department of Psychiatry and distinguished fellow in

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<v Faydra Aldridge>the American Psychiatric Association. Randall, that was tough to hear

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<v Faydra Aldridge>families express. Obviously, a lot of concern about seeing their

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<v Faydra Aldridge>loved one going through psychosis. And it's not easy to see.

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<v Faydra Aldridge>It certainly wasn't easy to to listen to, that's for sure.

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<v Faydra Aldridge>So in your experience, what does it look like from

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<v Faydra Aldridge>the outside for someone to witness that?

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<v Dr. Randall White>Well, I know that this is a really mystifying disease

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<v Dr. Randall White>for families or for anyone who is observing. And it

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<v Dr. Randall White>can look different, obviously, because everyone is unique. But I

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<v Dr. Randall White>think one of the family members was describing somebody probably

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<v Dr. Randall White>in the midst of of hearing intense voices who was

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<v Dr. Randall White>kind of overwhelmed by it, showing a lot of disorganized

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<v Dr. Randall White>or amped up behavior, doing repetitive movement. And that's something

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<v Dr. Randall White>that I observed. And the patients that I treat commonly,

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<v Dr. Randall White>they have gestures or pacing, grimacing, talking to themselves, laughing,

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<v Dr. Randall White>all those things. And it's the hallmark of what I

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<v Dr. Randall White>guess historically was called madness. Sometimes it's clear that the

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<v Dr. Randall White>patients are in anguish. Other times they might smile and

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<v Dr. Randall White>laugh and it might look like they're enjoying themselves. But

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<v Dr. Randall White>at the same time, we know they're cut off from

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<v Dr. Randall White>others around them when they're in this experience and it

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<v Dr. Randall White>takes them away from meaningful relationships. And that's what hurts

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<v Dr. Randall White>the family so much.

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<v Faydra Aldridge>So I'd like to talk about the danger part of it.

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<v Faydra Aldridge>How much of a danger to others is someone in

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<v Faydra Aldridge>the state likely to be? Because I think there's a

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<v Faydra Aldridge>lot of misconceptions around this.

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<v Dr. Randall White>People with schizophrenia are more likely to be harmed or

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<v Dr. Randall White>assaulted than they are to commit an assault or to

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<v Dr. Randall White>commit murder. And they're actually quite vulnerable when they're in

0:13:57.570 --> 0:14:01.560
<v Dr. Randall White>that state. They're vulnerable to being exploited because they're not

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<v Dr. Randall White>as aware of their surroundings to getting, let's say, hit

0:14:04.440 --> 0:14:07.380
<v Dr. Randall White>by a car. At the same time, it's important to

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<v Dr. Randall White>be truthful and honest about the fact that certain kinds

0:14:11.520 --> 0:14:16.230
<v Dr. Randall White>of psychosis do elevate the risk for assault or harming

0:14:16.230 --> 0:14:20.580
<v Dr. Randall White>other people, because people who are very paranoid and fearful

0:14:20.640 --> 0:14:26.130
<v Dr. Randall White>may react unpredictably. In some cases, people with psychosis can

0:14:26.130 --> 0:14:31.290
<v Dr. Randall White>develop a very intense, specific delusion about maybe someone in

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<v Dr. Randall White>their environment. It's rare, but it does happen. But I

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<v Dr. Randall White>still need to emphasize that the average person with schizophrenia

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<v Dr. Randall White>who is not adequately cared for and treated wandering on

0:14:44.400 --> 0:14:48.990
<v Dr. Randall White>the street is really not dangerous to the public at large.

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<v Faydra Aldridge>I've been hearing this term a lot lately, psychotic breaks.

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<v Faydra Aldridge>So I'd love to get your professional opinion on the

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<v Faydra Aldridge>difference between hearing voices and an actual psychotic break. What

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<v Faydra Aldridge>is a difference between those two?

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<v Dr. Randall White>Well, psychotic break is it's not actually a diagnosis. It's

0:15:07.560 --> 0:15:10.410
<v Dr. Randall White>it's a term that we use a bit casually. The

0:15:10.410 --> 0:15:14.850
<v Dr. Randall White>word break refers to a break with reality that sometimes

0:15:14.850 --> 0:15:19.620
<v Dr. Randall White>our psychosis is characterized because in the psychotic state of mind,

0:15:19.620 --> 0:15:24.360
<v Dr. Randall White>the person is preoccupied with these internal things that don't

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<v Dr. Randall White>reflect reality. A psychotic break means the person becomes psychotic,

0:15:30.000 --> 0:15:33.660
<v Dr. Randall White>and it often refers to the first episode of psychosis.

0:15:33.810 --> 0:15:38.430
<v Dr. Randall White>Sometimes we call it the first break episode. Sometimes it

0:15:38.430 --> 0:15:42.900
<v Dr. Randall White>occurs abruptly, sometimes and more often it's rather gradual. And

0:15:42.900 --> 0:15:45.210
<v Dr. Randall White>it typically would involve hearing voices...

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<v Faydra Aldridge>If we ignore the fact that one out of a

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<v Faydra Aldridge>hundred people have schizophrenia and even more experience psychosis. So

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<v Faydra Aldridge>if we as a society choose to either ignore or

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<v Faydra Aldridge>keep it hidden that these illnesses exist, where will that

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<v Faydra Aldridge>take us?

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<v Dr. Randall White>I think the fear, the stigma result in the people

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<v Dr. Randall White>affected in the patients, so to speak, not getting the

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<v Dr. Randall White>care they need. So it just prolongs, I think, suffering

0:16:20.070 --> 0:16:26.000
<v Dr. Randall White>when there's ignorance and stigma attached to an illness.

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<v Faydra Aldridge>I'd like to talk about stigma. And I think stigma

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<v Faydra Aldridge>is a huge part of this, which is why I'm

0:16:30.690 --> 0:16:33.930
<v Faydra Aldridge>so happy we're doing this podcast. Randall, what do you think?

0:16:33.930 --> 0:16:37.350
<v Faydra Aldridge>As a frontline clinician, what do you think we can

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<v Faydra Aldridge>do as a society? To start to break down those

0:16:40.580 --> 0:16:45.740
<v Faydra Aldridge>silos and to really address the stigma associated with serious

0:16:45.740 --> 0:16:46.480
<v Faydra Aldridge>mental illness,

0:16:47.030 --> 0:16:51.380
<v Dr. Randall White>Although it's still substantial that stigma, I think there is

0:16:51.380 --> 0:16:54.740
<v Dr. Randall White>some improvement. But, you know, there are plenty of books,

0:16:54.740 --> 0:16:58.340
<v Dr. Randall White>you know, memoirs people have written about their experiences. So

0:16:58.340 --> 0:17:01.250
<v Dr. Randall White>I think, you know, when we have people who can

0:17:01.250 --> 0:17:04.490
<v Dr. Randall White>talk about their experience, that helps a lot more than

0:17:04.490 --> 0:17:07.700
<v Dr. Randall White>some doctor preaching to the public. I think I think

0:17:07.700 --> 0:17:11.560
<v Dr. Randall White>things like what the Schizophrenia Society does like this, a

0:17:11.570 --> 0:17:15.920
<v Dr. Randall White>podcast to try to demystify, I think, getting family members,

0:17:15.920 --> 0:17:20.320
<v Dr. Randall White>if they're able to write into newspapers, op ed, you know,

0:17:20.359 --> 0:17:24.859
<v Dr. Randall White>talking about how important it is to to stop stigmatizing

0:17:24.859 --> 0:17:28.310
<v Dr. Randall White>and to be honest about mental illness. And I know

0:17:28.310 --> 0:17:32.270
<v Dr. Randall White>that families and schizophrenia society are very active in their communities.

0:17:32.300 --> 0:17:34.240
<v Dr. Randall White>So basically, it's a team effort.

0:17:34.940 --> 0:17:37.820
<v Faydra Aldridge>Well Randall, thank you so much for joining me today.

0:17:37.830 --> 0:17:41.120
<v Faydra Aldridge>So that was Dr. Randall White. And we will be

0:17:41.119 --> 0:17:44.630
<v Faydra Aldridge>sure one hundred percent to post all our relevant links and

0:17:44.630 --> 0:17:48.360
<v Faydra Aldridge>items we talked about today from our conversation on our website.

0:17:48.410 --> 0:17:55.040
<v Faydra Aldridge>That website, again, w w w dot BCSS dot org. Dr. White. Thank

0:17:55.040 --> 0:17:56.510
<v Faydra Aldridge>you so much for joining us today.

0:17:57.200 --> 0:17:58.070
<v Dr. Randall White>It was a pleasure.

0:17:58.700 --> 0:18:01.610
<v Faydra Aldridge>And now it's time to thank my incredible guests today

0:18:01.619 --> 0:18:05.360
<v Faydra Aldridge>on Look Again, Mental Illness Re-Examined. And I want to thank

0:18:05.359 --> 0:18:11.480
<v Faydra Aldridge>you for listening. Your support means absolutely everything. Mental illness

0:18:11.480 --> 0:18:15.979
<v Faydra Aldridge>literacy is so important. It's important to you, to me

0:18:16.250 --> 0:18:19.550
<v Faydra Aldridge>and to us as an entire society. We have to

0:18:19.550 --> 0:18:22.429
<v Faydra Aldridge>talk about this. And together, I know we can do

0:18:22.430 --> 0:18:25.820
<v Faydra Aldridge>a better job of taking action. Talk to you soon.

0:18:28.600 --> 0:18:31.150
<v Faydra Aldridge>This podcast is brought to you by the B.C. Schizophrenia

0:18:31.150 --> 0:18:34.120
<v Faydra Aldridge>Society and the B.C. Partners for Mental Health and Substance

0:18:34.119 --> 0:18:37.540
<v Faydra Aldridge>Use Information, where a group of non-profit agencies providing good

0:18:37.540 --> 0:18:41.230
<v Faydra Aldridge>quality information to help individuals and families maintain or improve

0:18:41.230 --> 0:18:45.250
<v Faydra Aldridge>their mental well-being. The B.C. Partners Members are Anxiety. Canada,

0:18:45.250 --> 0:18:49.930
<v Faydra Aldridge>BC Schizophrenia Society, Canadian Institute for Substance Use Research. Canadian

0:18:49.930 --> 0:18:54.310
<v Faydra Aldridge>Mental Health Associations, B.C. Division, Family Smart, Jessie's Legacy, the

0:18:54.310 --> 0:18:58.600
<v Faydra Aldridge>North Shore Family Services Program and Mood Disorders Association of B.C.,

0:18:58.600 --> 0:19:01.510
<v Faydra Aldridge>a branch of Lookout, Housing and Health Society. The B.C.

0:19:01.510 --> 0:19:04.570
<v Faydra Aldridge>partners are funded and stewarded by B.C. Mental Health and

0:19:04.570 --> 0:19:08.340
<v Faydra Aldridge>Substance Use Services, an agency of the Provincial Health Services Authority.

0:19:08.470 --> 0:19:11.260
<v Faydra Aldridge>For more information, visit Here to Help dot BC dot CA.