1 00:00:03,840 --> 00:00:06,920 Speaker 1: From The Australian. Here's what's on the front. I'm Claire Harvey. 2 00:00:07,000 --> 00:00:14,000 Speaker 1: It's Friday, November twenty nine. Dementia is on track to 3 00:00:14,040 --> 00:00:18,600 Speaker 1: become Australia's leading cause of death, overtaking cancer, and there 4 00:00:18,600 --> 00:00:21,600 Speaker 1: are steps you can take now to reduce your risk. 5 00:00:22,400 --> 00:00:26,600 Speaker 1: One of them is drinking less, because alcohol related dementia, 6 00:00:26,640 --> 00:00:31,000 Speaker 1: including in young people, is a real risk today. The 7 00:00:31,160 --> 00:00:35,720 Speaker 1: inspiring love story of one couple who faced a diagnosis 8 00:00:35,920 --> 00:00:45,080 Speaker 1: that was hard to comprehend late summer at Bondi, the 9 00:00:45,120 --> 00:00:49,839 Speaker 1: perfect place to fall in love. Louise Bryant was a 10 00:00:49,920 --> 00:00:53,960 Speaker 1: media executive in her thirties, a volunteer life saver who'd 11 00:00:54,000 --> 00:00:57,000 Speaker 1: spent the season on patrol keeping the kids and the 12 00:00:57,040 --> 00:01:01,920 Speaker 1: backpackers safe at the world's most faith beach. Her patrol 13 00:01:02,040 --> 00:01:04,880 Speaker 1: captain invited the crew to the clubhouse at the beach's 14 00:01:04,920 --> 00:01:10,160 Speaker 1: south end Icebergs. There's a famous aquamarine ocean pool, and 15 00:01:10,200 --> 00:01:13,920 Speaker 1: it was their end of season celebration. And then someone 16 00:01:14,000 --> 00:01:18,479 Speaker 1: walked in who would change Louise's life. The tall, handsome, 17 00:01:18,760 --> 00:01:23,480 Speaker 1: drop dead charming Craig Moore. He was an advertising copywriter, 18 00:01:23,880 --> 00:01:29,000 Speaker 1: a charming wordsmith and a huge personality. His nickname was Moose. 19 00:01:29,720 --> 00:01:32,720 Speaker 1: Everyone at the table seemed to know Moose, but his 20 00:01:32,800 --> 00:01:36,080 Speaker 1: attention settled on Loo, and before she knew it, she 21 00:01:36,240 --> 00:01:39,680 Speaker 1: was swept up in a whirl of dinners and dates. 22 00:01:40,560 --> 00:01:42,920 Speaker 2: I guess you could say we instantly fell in love. 23 00:01:43,520 --> 00:01:46,240 Speaker 2: He's very very charismatic, a bit of a bon vivant 24 00:01:46,560 --> 00:01:50,080 Speaker 2: sort of character. He's incredibly witty and very funny, and 25 00:01:50,120 --> 00:01:52,440 Speaker 2: he just had a real mac with being able to 26 00:01:52,720 --> 00:01:55,200 Speaker 2: solve a kind of client problem, I guess in a 27 00:01:55,320 --> 00:01:58,720 Speaker 2: creative advertising setting. But he was also an avid letter 28 00:01:58,720 --> 00:02:01,440 Speaker 2: writer to The Citny Morning in particular, and he wrote 29 00:02:01,480 --> 00:02:04,480 Speaker 2: some very funny letters that were published every other week. 30 00:02:04,800 --> 00:02:07,640 Speaker 2: You'd often write me bitiful cards and letters, which I've 31 00:02:07,680 --> 00:02:10,520 Speaker 2: of course still kept. But yeah, very special. 32 00:02:10,680 --> 00:02:13,480 Speaker 1: And over the years you started to notice some changes 33 00:02:13,520 --> 00:02:16,160 Speaker 1: in his behavior. Looking back now, what was the first 34 00:02:16,160 --> 00:02:19,000 Speaker 1: thing that made you aware that something was different? 35 00:02:19,520 --> 00:02:22,400 Speaker 2: Look, I think it was a lot of just unusual 36 00:02:22,480 --> 00:02:24,600 Speaker 2: sort of behavior that I couldn't quite put my finger on. 37 00:02:24,760 --> 00:02:28,520 Speaker 2: He seemed to genuinely love me. He was very caring 38 00:02:28,600 --> 00:02:32,080 Speaker 2: and kind. He was very supportive, but in the next breath, 39 00:02:32,160 --> 00:02:34,960 Speaker 2: he wouldn't turn up to things. He would become a 40 00:02:34,960 --> 00:02:37,640 Speaker 2: little bit erratic. Some of his friends would often say 41 00:02:37,680 --> 00:02:42,280 Speaker 2: things to me that were concerning, and yeah, I think 42 00:02:42,560 --> 00:02:45,919 Speaker 2: there were many moments where I look back and think, oh, okay, 43 00:02:45,960 --> 00:02:48,240 Speaker 2: that makes sense. Now, that makes sense. 44 00:02:48,440 --> 00:02:51,160 Speaker 1: Yeah, you describe in a story that we're publishing in 45 00:02:51,160 --> 00:02:54,040 Speaker 1: The Australian today a moment where he was supposed to 46 00:02:54,080 --> 00:02:56,960 Speaker 1: do a big ocean swim and he didn't finish with 47 00:02:57,000 --> 00:02:59,080 Speaker 1: the rest of the swimmers. That must have sent you 48 00:02:59,120 --> 00:02:59,720 Speaker 1: into a panic. 49 00:03:00,120 --> 00:03:03,840 Speaker 2: Absolutely, I remember it so vividly. It was the Palm 50 00:03:03,840 --> 00:03:06,720 Speaker 2: Beach to Well Beach swim. It was a sparkling day, 51 00:03:06,800 --> 00:03:09,520 Speaker 2: the conditions were perfect. We'd made a weekend out of it. 52 00:03:09,600 --> 00:03:12,519 Speaker 2: We'd stayed at friends the night before. I remember dropping 53 00:03:12,560 --> 00:03:15,240 Speaker 2: him down to the marshaling area and I said to hear, Mom, 54 00:03:15,240 --> 00:03:17,680 Speaker 2: meet you at the other end. And an hour later, 55 00:03:17,760 --> 00:03:20,800 Speaker 2: he hadn't emerged from the water, and his friends and 56 00:03:20,840 --> 00:03:23,760 Speaker 2: everyone in his age group had obviously arrived, and I 57 00:03:23,760 --> 00:03:26,760 Speaker 2: started to sort of make some inquiries had anyone seen Moose? 58 00:03:26,880 --> 00:03:30,239 Speaker 2: And eventually I looked down and I could see him 59 00:03:30,720 --> 00:03:33,360 Speaker 2: wandering up the beach and he hadn't been in the water, 60 00:03:33,680 --> 00:03:36,720 Speaker 2: And I think I was a bit shocked and taken 61 00:03:36,720 --> 00:03:38,680 Speaker 2: aback by that, and I thought, that's really strange. And 62 00:03:38,760 --> 00:03:42,520 Speaker 2: he then said, oh, my goalals broke, which in ocean 63 00:03:42,920 --> 00:03:46,120 Speaker 2: swimming circles is a big like it's just the worst excuse. 64 00:03:46,280 --> 00:03:48,240 Speaker 2: And I think a friend overheard and she's turned on 65 00:03:48,280 --> 00:03:50,960 Speaker 2: the heel and said you're so full of shit boos, 66 00:03:50,960 --> 00:03:54,320 Speaker 2: and it was yeah, it was a sort of troubled me. 67 00:03:54,480 --> 00:03:58,040 Speaker 2: But we moved on from that point and I just thought, okay, 68 00:03:58,560 --> 00:04:00,920 Speaker 2: he was able to atone about a year later, and 69 00:04:01,360 --> 00:04:04,360 Speaker 2: he did eventually do and another ocean swim over at 70 00:04:04,360 --> 00:04:08,120 Speaker 2: Manly and he loved it. But now, of course he's 71 00:04:08,200 --> 00:04:11,440 Speaker 2: completely terrified of open water and he won't go anywhere 72 00:04:11,480 --> 00:04:14,840 Speaker 2: near a Paul or indeed the ocean or the beach. 73 00:04:14,960 --> 00:04:16,560 Speaker 2: He gets quite anxious. 74 00:04:19,600 --> 00:04:23,560 Speaker 1: Something was in fact seriously wrong, but it was something 75 00:04:23,640 --> 00:04:26,640 Speaker 1: lew and Craig couldn't have even imagined. At that point. 76 00:04:27,120 --> 00:04:31,520 Speaker 1: They were in midlife, fit and active. Craig had a 77 00:04:31,560 --> 00:04:37,680 Speaker 1: young onset dementia, alcohol induced dementia, something lou didn't even 78 00:04:37,720 --> 00:04:41,279 Speaker 1: know was possible. In Australia, it's hard to find a 79 00:04:41,320 --> 00:04:43,719 Speaker 1: man who hasn't at some point in their lives drunk 80 00:04:43,800 --> 00:04:47,719 Speaker 1: a lot of alcohol, whether it's weekend partying or the steady, 81 00:04:47,800 --> 00:04:51,520 Speaker 1: quiet chug of drinks after work with dinner, catching up 82 00:04:51,560 --> 00:04:55,000 Speaker 1: with friends. The kind of always on consumption that seems 83 00:04:55,040 --> 00:04:58,640 Speaker 1: okay day to day but can look quite confronting when 84 00:04:58,680 --> 00:05:01,200 Speaker 1: you write down the number of sta and drinks in 85 00:05:01,240 --> 00:05:05,960 Speaker 1: one of those forms at the GP. After Craig's diagnosis, 86 00:05:06,040 --> 00:05:09,159 Speaker 1: he and Lou carried on with their life in beautiful BONDI, 87 00:05:09,760 --> 00:05:12,839 Speaker 1: enjoying the good times, trying not to think too much 88 00:05:13,120 --> 00:05:16,440 Speaker 1: about what the future might hold. He was in hospital 89 00:05:16,760 --> 00:05:20,880 Speaker 1: recovering from an unrelated surgery, and he started talking to 90 00:05:21,120 --> 00:05:23,200 Speaker 1: others about what was going on in your life? That 91 00:05:23,279 --> 00:05:24,839 Speaker 1: wasn't quite right? What was he saying? 92 00:05:25,279 --> 00:05:29,280 Speaker 2: Well, there was a moment where he was suffering this delirium, 93 00:05:29,360 --> 00:05:32,720 Speaker 2: I suppose, but I remember at one point a lot 94 00:05:32,760 --> 00:05:34,880 Speaker 2: of he had streams of visitors coming in and they 95 00:05:35,360 --> 00:05:37,839 Speaker 2: had some incredible supporting that time, because we weren't really 96 00:05:37,880 --> 00:05:41,960 Speaker 2: sure what was going on, and a friend, many friends 97 00:05:41,960 --> 00:05:44,000 Speaker 2: would come in and he'd tell them, and he looked 98 00:05:44,000 --> 00:05:46,680 Speaker 2: so serene and happy that we were having a baby, 99 00:05:46,839 --> 00:05:49,559 Speaker 2: Melanie Moore, a baby girl, and he was very happy 100 00:05:49,600 --> 00:05:50,040 Speaker 2: about that. 101 00:05:50,560 --> 00:05:55,960 Speaker 1: So he named this baby that wasn't real And in 102 00:05:56,000 --> 00:05:59,080 Speaker 1: that moment, do you remember how you felt about that? 103 00:05:59,160 --> 00:06:02,119 Speaker 1: And that's the moment you can't really pretend that nothing 104 00:06:02,160 --> 00:06:02,599 Speaker 1: is wrong. 105 00:06:02,880 --> 00:06:04,720 Speaker 2: Yeah, look it was. Sometimes you need to look for 106 00:06:04,800 --> 00:06:07,320 Speaker 2: the humor in the dark moments. I was literally running 107 00:06:07,320 --> 00:06:10,120 Speaker 2: down the corridor of telling friends, look, please don't ring 108 00:06:10,120 --> 00:06:12,720 Speaker 2: your wife to tell them this wonderful news, because it's 109 00:06:12,760 --> 00:06:13,920 Speaker 2: actually not the case. 110 00:06:15,080 --> 00:06:17,880 Speaker 1: While all this was going on, Luise was managing editor 111 00:06:17,880 --> 00:06:21,839 Speaker 1: of The Australian, a huge job. She wasn't sharing much 112 00:06:21,839 --> 00:06:24,359 Speaker 1: of what was going on in her personal life, but 113 00:06:24,440 --> 00:06:27,240 Speaker 1: at the time we were making a podcast, Head Noise, 114 00:06:27,600 --> 00:06:31,839 Speaker 1: all about degenerative brain conditions. In Head Noise, we followed 115 00:06:31,839 --> 00:06:35,599 Speaker 1: a superstar, retired rugby league player James Graham, as he 116 00:06:35,720 --> 00:06:38,480 Speaker 1: explored what years of football had done to his brain, 117 00:06:39,080 --> 00:06:43,479 Speaker 1: and we heard his neurologist, doctor Rowena Mobbs, telling James 118 00:06:43,520 --> 00:06:46,800 Speaker 1: his scans showed a reduction in volume of his brain 119 00:06:47,240 --> 00:06:51,120 Speaker 1: that shouldn't be happening in someone so young. That podcast 120 00:06:51,200 --> 00:06:53,839 Speaker 1: prompted Lou to go and see doctor Mobs with Craig 121 00:06:54,279 --> 00:06:57,840 Speaker 1: because Lou wondered if head knocks Craig suffered while playing 122 00:06:57,880 --> 00:07:02,640 Speaker 1: American football could have contributed to his condition. Eventually, doctor 123 00:07:02,640 --> 00:07:05,960 Speaker 1: Mobs said Craig needed to go into full time care. 124 00:07:06,680 --> 00:07:10,280 Speaker 1: Now he lives safe and happy in a group home 125 00:07:10,760 --> 00:07:13,680 Speaker 1: where lou knows he's getting the care he needs. 126 00:07:14,920 --> 00:07:17,480 Speaker 2: When you're talking about it dementia diagnosis, there's often no 127 00:07:18,320 --> 00:07:22,080 Speaker 2: start and end. Rowena describes it like a rolling ball. 128 00:07:22,320 --> 00:07:24,480 Speaker 2: I prefer to describe it like throwing a ball off 129 00:07:24,480 --> 00:07:27,280 Speaker 2: a cliff, because you don't know where it's going to land. 130 00:07:29,240 --> 00:07:31,440 Speaker 1: One of the factors lew and Craig we're dealing with 131 00:07:31,680 --> 00:07:35,240 Speaker 1: was the shame associated with dementia. It's not easy for 132 00:07:35,280 --> 00:07:38,320 Speaker 1: anyone to talk about the loss of dignity and privacy, 133 00:07:38,760 --> 00:07:41,840 Speaker 1: the loss of independence and connection that any kind of 134 00:07:41,840 --> 00:07:42,800 Speaker 1: dementia causes. 135 00:07:43,560 --> 00:07:46,160 Speaker 2: I'd love to one day talk about dementia positivity, but 136 00:07:46,320 --> 00:07:49,880 Speaker 2: there really isn't now because there's no cure, there's no 137 00:07:50,000 --> 00:07:53,720 Speaker 2: happy story, there's no surgery, there's no magic pill at 138 00:07:53,720 --> 00:07:57,160 Speaker 2: the moment, and it's something that I think we really 139 00:07:57,160 --> 00:08:02,000 Speaker 2: need to start thinking about shifting our tension to dementia 140 00:08:02,080 --> 00:08:06,360 Speaker 2: as as an important area that's becoming more and more urgent, 141 00:08:06,720 --> 00:08:10,160 Speaker 2: particularly and I'm sure you're aware of the statistics but 142 00:08:10,560 --> 00:08:13,160 Speaker 2: it will overtake cats as a leading cause of death 143 00:08:13,760 --> 00:08:18,080 Speaker 2: next year in Australia, and cases are expected to triple 144 00:08:18,200 --> 00:08:21,360 Speaker 2: by twenty fifty in the Western Asia region of which 145 00:08:21,400 --> 00:08:24,080 Speaker 2: Australia is of course part of. So it's going to 146 00:08:24,120 --> 00:08:26,360 Speaker 2: have a significant impact on us, and I think we 147 00:08:26,440 --> 00:08:30,160 Speaker 2: need to start talking about various ways we can prevent 148 00:08:30,680 --> 00:08:32,640 Speaker 2: or it will intervene. 149 00:08:32,920 --> 00:08:35,920 Speaker 1: The world's pre eminent medical journal, The Lancet, has a 150 00:08:35,960 --> 00:08:40,320 Speaker 1: standing commission on dementia Prevention, Intervention and care. It's twenty 151 00:08:40,360 --> 00:08:44,439 Speaker 1: twenty four report talks about increasing and stronger evidence about 152 00:08:44,440 --> 00:08:47,880 Speaker 1: the factors that can help reduce the risk. Those are 153 00:08:47,920 --> 00:08:52,679 Speaker 1: things like improving education, preventing hearing laws, preventing high blood pressure, 154 00:08:52,880 --> 00:08:59,000 Speaker 1: reducing smoking and obesity, and preventing excessive alcohol consumption. The 155 00:08:59,080 --> 00:09:03,480 Speaker 1: Lancets reports suggests that means consuming fewer than two glasses 156 00:09:03,520 --> 00:09:07,400 Speaker 1: of wine or beers a day to avoid increasing your 157 00:09:07,480 --> 00:09:11,560 Speaker 1: risk of dementia. What do you wish you could say 158 00:09:11,600 --> 00:09:14,040 Speaker 1: to yourself of ten years ago, We wish that you 159 00:09:14,080 --> 00:09:15,480 Speaker 1: had known if awareness had been. 160 00:09:15,400 --> 00:09:18,240 Speaker 2: Greater than Maybe it's just my experience, but I just 161 00:09:18,320 --> 00:09:20,080 Speaker 2: wonder if when we go to the GP and we 162 00:09:20,080 --> 00:09:23,600 Speaker 2: start if those issues are raised. Often that conversation leaves 163 00:09:23,640 --> 00:09:28,120 Speaker 2: down the path of cancer risk, or heart risk or diabetes. 164 00:09:28,200 --> 00:09:32,960 Speaker 2: But very rarely in those early stages is dementia thought of. 165 00:09:33,640 --> 00:09:35,840 Speaker 2: And I think that's because a lot of people assume 166 00:09:35,880 --> 00:09:39,240 Speaker 2: that dementia is an old person's disease, which of course 167 00:09:39,240 --> 00:09:39,640 Speaker 2: it isn't. 168 00:09:40,000 --> 00:09:43,240 Speaker 1: Also, when you're talking to your GP about modifiable behavior, 169 00:09:43,400 --> 00:09:45,360 Speaker 1: the GP is saying you should really give up smoking, 170 00:09:45,480 --> 00:09:47,160 Speaker 1: or maybe you should eat a bit less, try and 171 00:09:47,200 --> 00:09:50,080 Speaker 1: lose a bit of way, or do more exercise. The 172 00:09:50,160 --> 00:09:52,640 Speaker 1: reasons to do those things feel like they're a long 173 00:09:52,679 --> 00:09:55,360 Speaker 1: way off, don't they. You could live longer if you 174 00:09:55,480 --> 00:09:58,559 Speaker 1: eat better now that can feel quite intangible. 175 00:09:59,400 --> 00:10:03,360 Speaker 2: Yeah, absolutely, And I think the more we can raise awareness, 176 00:10:03,480 --> 00:10:06,640 Speaker 2: it is an urgent conversation, and I think we need 177 00:10:06,679 --> 00:10:11,000 Speaker 2: to collectively think about, well, how we can adjust our thinking. 178 00:10:11,040 --> 00:10:14,679 Speaker 2: I guess around the fact that dementia is a significant 179 00:10:15,120 --> 00:10:15,840 Speaker 2: risk factor. 180 00:10:17,760 --> 00:10:21,319 Speaker 1: After the break lose message to others who are touched 181 00:10:21,400 --> 00:10:25,320 Speaker 1: by dementia. Luis's story is told in The Australian Today 182 00:10:25,400 --> 00:10:29,160 Speaker 1: by one of the Australian's most gifted writers, Fiona Harari. 183 00:10:29,600 --> 00:10:32,360 Speaker 1: You can read it right now at the Australian dot 184 00:10:32,400 --> 00:10:45,840 Speaker 1: com au and we'll be back after this break. You 185 00:10:45,920 --> 00:10:49,120 Speaker 1: and I have been friends for years, and you've been 186 00:10:49,200 --> 00:10:51,120 Speaker 1: very supportive to me as I watched my mother go 187 00:10:51,240 --> 00:10:54,600 Speaker 1: through the diagnosis of dementia, and you've listened patiently to me, 188 00:10:54,720 --> 00:10:58,000 Speaker 1: talking about that a lot. You didn't talk much about 189 00:10:58,040 --> 00:11:00,800 Speaker 1: your own situation. You would allude to it in passing, 190 00:11:00,840 --> 00:11:02,600 Speaker 1: but this is the first time we really talked about 191 00:11:02,640 --> 00:11:05,600 Speaker 1: it in detail. What made the difference for you? Why 192 00:11:05,720 --> 00:11:06,960 Speaker 1: do you want to talk about it now? 193 00:11:07,760 --> 00:11:09,959 Speaker 2: I received it. It was actually a video of Craig 194 00:11:10,480 --> 00:11:13,199 Speaker 2: Loose standing at a kitchen bench in his care home 195 00:11:13,720 --> 00:11:17,400 Speaker 2: and he was struggling to write his name, And even 196 00:11:17,440 --> 00:11:19,960 Speaker 2: though it was a bitiful video and it was sent 197 00:11:20,000 --> 00:11:23,120 Speaker 2: with the writing tent, it was heartbreaking for me because 198 00:11:23,160 --> 00:11:27,280 Speaker 2: I realized then that this insidious disease had robbed him 199 00:11:27,320 --> 00:11:29,920 Speaker 2: of his skills that he was so good at. 200 00:11:30,480 --> 00:11:34,000 Speaker 1: So, yeah, it must have been a moment of just 201 00:11:34,040 --> 00:11:37,240 Speaker 1: pure empathy for you, of feeling that this beautiful man 202 00:11:37,400 --> 00:11:40,880 Speaker 1: who you have made sure is happy and safe, was 203 00:11:41,160 --> 00:11:44,479 Speaker 1: not who he used to be. Yeah, it's our cohort 204 00:11:44,600 --> 00:11:47,439 Speaker 1: who will have to face to mentor as we get 205 00:11:47,480 --> 00:11:50,000 Speaker 1: older and this is clearly something that's coming for us. 206 00:11:51,160 --> 00:11:54,440 Speaker 1: But we're also the careers, whether we're caring for elderly 207 00:11:54,520 --> 00:11:57,720 Speaker 1: parents or our partners who are going through this. What 208 00:11:57,760 --> 00:11:59,679 Speaker 1: would you say to other people who are caring for 209 00:11:59,679 --> 00:12:04,240 Speaker 1: someone either who has a diagnosis or who is concerned 210 00:12:04,280 --> 00:12:06,120 Speaker 1: about their partner or someone they love. 211 00:12:06,679 --> 00:12:10,319 Speaker 2: I think it's absolutely get to look after yourself, to 212 00:12:10,800 --> 00:12:13,720 Speaker 2: ensure that you have support around you. It's not often 213 00:12:13,720 --> 00:12:15,440 Speaker 2: you feel like it is a one person job. 214 00:12:15,480 --> 00:12:16,040 Speaker 1: You feel very. 215 00:12:16,000 --> 00:12:19,440 Speaker 2: Alone, you're very vulnerable, but it's really important that you 216 00:12:19,480 --> 00:12:23,160 Speaker 2: are reaching out to get support. I chose to be 217 00:12:23,320 --> 00:12:25,880 Speaker 2: very private about it and only have very small select 218 00:12:26,960 --> 00:12:30,400 Speaker 2: network of very close friends and my family who really 219 00:12:30,600 --> 00:12:35,400 Speaker 2: provided that level of support, which was wonderful. But yeah, 220 00:12:36,080 --> 00:12:40,160 Speaker 2: I guess you just need to yet actually have support 221 00:12:40,200 --> 00:12:40,720 Speaker 2: around you. 222 00:12:40,800 --> 00:12:45,600 Speaker 1: Yeah. Not be ashamed, No, not at all. Louise, Thank 223 00:12:45,600 --> 00:12:46,120 Speaker 1: you very much. 224 00:12:46,200 --> 00:12:46,840 Speaker 2: Thanks Claire. 225 00:12:56,080 --> 00:12:58,920 Speaker 1: Louise Bryant's story is in The Australian and at the 226 00:12:59,000 --> 00:13:01,680 Speaker 1: Australian Home dot are you right now