WEBVTT - For Simon, For the Ones Still Standing | Tracie Lund - 909

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<v Speaker 1>She said, it's now never I got fighting in my blood.

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<v Speaker 2>I'm tiff. This is Roll with the Punches and we're

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<v Speaker 2>turning life's hardest hits into wins. Nobody wants to go

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<v Speaker 2>to court, and don't. My friends are test Art Family Lawyers.

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<v Speaker 2>Know that they offer all forms of alternative dispute resolution.

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<v Speaker 2>Their team of Melbourne family lawyers have extensive experience in

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<v Speaker 2>all areas of family law to facto and same sex couples,

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<v Speaker 2>custody and children, family violence and intervention orders, property settlements

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<v Speaker 2>and financial agreements. Test Art is in your corner, so

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<v Speaker 2>reach out to Mark and the team at www dot

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<v Speaker 2>test Artfamilylawyers dot com dot au. Tracy Lund, welcome to

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<v Speaker 2>Roll with the Punches.

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<v Speaker 3>The're going Ticknye. It's good to be here.

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<v Speaker 2>Thank you for coming on. I appreciate it. I wish

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<v Speaker 2>that I could have my usual tone of excitement, and

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<v Speaker 2>I wish that I could say I've been excited about this,

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<v Speaker 2>I'm looking forward to it. I'm looking forward to making

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<v Speaker 2>a difference. But you popped up on my LinkedIn feed

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<v Speaker 2>the other day with stuff I didn't want to have

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<v Speaker 2>to be reading.

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<v Speaker 3>Yeah, and I am sorry that I did that to you.

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<v Speaker 3>Our family is facing some really significant trauma that the

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<v Speaker 3>news for us was catastrophic that my husband is has

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<v Speaker 3>been diagnosed with stage four esophagal cancer that has spread

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<v Speaker 3>throughout his body. So we are at the moment on

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<v Speaker 3>very very limited time, you know, maybe weeks left with Simon.

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<v Speaker 3>And I would just say to your listeners, you know,

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<v Speaker 3>I know there's so many people out there experiencing supporting

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<v Speaker 3>loved ones that are terminally ill, and I just my

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<v Speaker 3>heart goes out to them, and you know, it's a

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<v Speaker 3>big emotional rollercoaster. In our case. Simon has worked for

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<v Speaker 3>the CFA for over twenty five nearly twenty six years.

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<v Speaker 3>Actually I think it is twenty six years. I could

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<v Speaker 3>have that day slightly wrong. It's been a long time

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<v Speaker 3>and quord of a century, yeah, as sweet a long time.

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<v Speaker 3>And the reason you did see that post is not

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<v Speaker 3>because that we were wanting to make any announcements about

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<v Speaker 3>Simon's condition. In fact, for the last seven odd months,

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<v Speaker 3>we have kept it very close and very to us.

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<v Speaker 3>It's a deeply personal journey and the very last thing

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<v Speaker 3>that we wanted for our family and our children and

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<v Speaker 3>the limited time that we had together was to be

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<v Speaker 3>discussing Simon's condition publicly. As we've moved through, I guess

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<v Speaker 3>the processes that are involved when somebody is exposed at

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<v Speaker 3>work and has a you know, I guess a workplace injury.

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<v Speaker 3>We you know, we've been working through quite a lot

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<v Speaker 3>of things and one of the things that has come up,

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<v Speaker 3>and I guess in some ways, we you know, we are,

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<v Speaker 3>we're aware, but not actually understanding the implications of the legislation.

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<v Speaker 3>And that's presumptive legislation that I'm talking about, and who

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<v Speaker 3>it does and who it doesn't cover. So what we

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<v Speaker 3>are the presumptive legislation as it stands now covers fire,

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<v Speaker 3>firefighters and dmos, and that means that the bitterment of

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<v Speaker 3>proof is already there that you know, if they have

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<v Speaker 3>one of those cancers that is under that legislation, that

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<v Speaker 3>it is given that they were they were exposed at

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<v Speaker 3>work or during their their working time. Assimon's title isn't

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<v Speaker 3>firefighter or demo. He predominantly works in logistics and he

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<v Speaker 3>so you know, he is frontline. So CFA staff that

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<v Speaker 3>are given movement orders to get to attend incidents become frontline.

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<v Speaker 3>They are on the front line and they have the

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<v Speaker 3>same exposure as our firefighters and our demos. But and

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<v Speaker 3>they work as one.

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<v Speaker 2>So the what DMO stands for.

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<v Speaker 3>District Mechanical Officer so and they were added about two

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<v Speaker 3>years ago to the legislation. So what's become obvious is

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<v Speaker 3>that there is a glaring gap in the legislation that

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<v Speaker 3>doesn't cover CFA staff who are frontline, who are and

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<v Speaker 3>I'll use the term operational, who become operational during those

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<v Speaker 3>emergencies that we have and we know, you know, just

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<v Speaker 3>in Victoria, there's been so many that we have had

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<v Speaker 3>responding to fires and big incidents that us quite a

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<v Speaker 3>long time. So there's a number of staffing roles that

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<v Speaker 3>are there and that are required to support those incidents

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<v Speaker 3>to happen. Those you know, they're logistic pieces and we

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<v Speaker 3>can't do it, you know, you can't have those responses

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<v Speaker 3>without them. So a motto in the among the emergency

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<v Speaker 3>services is we work as one. So you know, we

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<v Speaker 3>work as one, and I keep reflecting on that. So

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<v Speaker 3>we do work as one, and they do, they absolutely do.

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<v Speaker 3>So the agencies all come together and all parts of

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<v Speaker 3>them come together to respond to incidents like we see

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<v Speaker 3>black Saturday Black. Some are you know, all of them,

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<v Speaker 3>but they're not covered as one under the legislation, and

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<v Speaker 3>that has been the I guess the take home piece

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<v Speaker 3>for us that we as a family feel really deeply

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<v Speaker 3>strongly about that needs to be addressed and needs to

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<v Speaker 3>be changed because it change the outcome for Simon and

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<v Speaker 3>myself and my family, but families that come after us

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<v Speaker 3>and staff that come after us, and there will be

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<v Speaker 3>people that will be exposed and will be find themselves

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<v Speaker 3>with terminal illnesses or lifelong health issues because of their work,

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<v Speaker 3>because of their frontline response, that will not be covered.

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<v Speaker 3>And so we want to change that. And Simon knows

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<v Speaker 3>that this is a legacy piece and it's a piece

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<v Speaker 3>that he's probably not going to see happen, but we

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<v Speaker 3>have committed as a family to raise awareness about it,

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<v Speaker 3>to ensure our community understands it, because even being in

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<v Speaker 3>the services as long as we have, we probably didn't

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<v Speaker 3>have that broader understanding of the implications of some being

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<v Speaker 3>covered and some not under the presumptive legislation. But we

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<v Speaker 3>do now. And when you know something's wrong, you know

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<v Speaker 3>you you know you do do what you can to

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<v Speaker 3>improve it or change that. So we're committed to raising

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<v Speaker 3>awareness and ultimately having the legislation amended to address this

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<v Speaker 3>gap so that frontline CFA. Sed UP are covered.

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<v Speaker 2>Ah okay, can we.

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<v Speaker 3>It's a lot soide.

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<v Speaker 2>Oh, so much running through my mind and so much

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<v Speaker 2>kind of emotion like this I'm processing so much, but

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<v Speaker 2>also processing perhaps for the sake of myself and those

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<v Speaker 2>of us who aren't familiar with one the legislation for

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<v Speaker 2>frontline workers and policies and people like even just like

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<v Speaker 2>part of me was going, what what you can be

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<v Speaker 2>a fight? You can go and be a the amazing

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<v Speaker 2>heroic fireman and you and you might get a terminal illness.

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<v Speaker 2>Like that's a thing, and that's the thing that people

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<v Speaker 2>know about. So that's a thing that has something in

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<v Speaker 2>place for some people, Like, so can you explain what's

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<v Speaker 2>in place and how it's protecting people and then who

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<v Speaker 2>it's leaving out.

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<v Speaker 3>So I think it was back in twenty nineteen we

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<v Speaker 3>had the introduction of presumptive legislation, and that means that

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<v Speaker 3>there's a number of cancers and illnesses that are considered

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<v Speaker 3>job related exposure. So if you know, if you if

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<v Speaker 3>you're a firefighter and you find yourself with one of

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<v Speaker 3>those diseases. You know, it's automatically covered. So what that

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<v Speaker 3>means is that you don't then have the burden of proof.

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<v Speaker 3>And this is very you know, very much my simplified

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<v Speaker 3>version of this. I'm not a lawyer or anything, so

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<v Speaker 3>I just want to don't take I don't want any

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<v Speaker 3>of your viewers to think that that's what I'm speaking from,

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<v Speaker 3>because I'm not. It's just a wife's experience of this.

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<v Speaker 3>That means that the burden of proof is not on you.

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<v Speaker 3>It's just accepted that that was a result of the

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<v Speaker 3>exposure of the carcinogens that you've breathed in during your

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<v Speaker 3>time of responding to incidences, so a smoke related and

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<v Speaker 3>toxic because that's what happens. That's part of your role.

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<v Speaker 3>And if you are a DMO, a district mechanical officer,

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<v Speaker 3>and a firefighter, then you won't have that burden of

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<v Speaker 3>proof if you're not. And so in the case of

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<v Speaker 3>Simon his PTA staff IT technical support, he goes out

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<v Speaker 3>onto staging grounds and sets you know, sets up the

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<v Speaker 3>staging grounds and the it IT systems, things like that,

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<v Speaker 3>and he goes in and out of different exposures during

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<v Speaker 3>various incidents and when he gets a movement order. So

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<v Speaker 3>for example, when we had the mind fire here back

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<v Speaker 3>in twenty fourteen, Simon sent up the incident Control Center

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<v Speaker 3>at the mine and moved at two different times before

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<v Speaker 3>it was moved into to realganized CC in Church dreat

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<v Speaker 3>and Terraalgen, So there's significant exposure there for example. So

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<v Speaker 3>because he's not one of those two roles, what it

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<v Speaker 3>meant was that we have to work through a work

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<v Speaker 3>safe sorry, we have to work through a work cover

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<v Speaker 3>claim and that means the burden of proof is then

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<v Speaker 3>on Simon to prove that he during his employment he

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<v Speaker 3>has been exposed. So you know, it's things like getting

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<v Speaker 3>together like pay slips, movement orders like there's you know,

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<v Speaker 3>there's a body of information that has to be presented.

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<v Speaker 3>So that for us was something we worked through and

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<v Speaker 3>we were able to do, but it costs us precious

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<v Speaker 3>time and it meant when he was ADDIE's most vulnerable

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<v Speaker 3>and most done well, we were trying to pull together

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<v Speaker 3>documentation that was required for the work cover process. So

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<v Speaker 3>what we would like to see is the CEFA staff

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<v Speaker 3>that are frontline, that have movement orders that go to

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<v Speaker 3>incidences and if there is exposure that is recorded, and

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<v Speaker 3>they do find themselves in a situation like you. We

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<v Speaker 3>are that the burden of proof is not on them

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<v Speaker 3>like that, because it's it's quite a lot of work

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<v Speaker 3>to backtrack through twenty five years of work to remember

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<v Speaker 3>we you know, the mean work out we were and

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<v Speaker 3>put all that information together and it's actually having gone

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<v Speaker 3>through it's a burden that you shouldn't have to carry

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<v Speaker 3>when you're already dealing with what is a life changing

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<v Speaker 3>event for your entire family and you are supporting somebody

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<v Speaker 3>that is terminally ill and will pass away. The enormity

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<v Speaker 3>of the emotions and the rollercoaster our family has been

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<v Speaker 3>on cannot be underestimated. And it's such a like I

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<v Speaker 3>can't tell you when we found out you know, what

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<v Speaker 3>his illness was, and how sick he was going to get,

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<v Speaker 3>and how very little time that we had this is

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<v Speaker 3>a very aggressive cancer. It just took my breath away.

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<v Speaker 3>And the sense of helplessness around a diagnosis like this

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<v Speaker 3>is so compounding in your life. But then to have

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<v Speaker 3>to somehow manage yourself and your family and get all

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<v Speaker 3>these documents together and go through this process that you know,

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<v Speaker 3>and as we got through it. You know, we started,

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<v Speaker 3>I started to really look at that. You know, if

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<v Speaker 3>he was a firefighter, we wouldn't have to do all that, like,

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<v Speaker 3>we wouldn't have all this burden as well. And I

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<v Speaker 3>think the gap is dangerously out of step with community

0:12:59.720 --> 0:13:04.320
<v Speaker 3>expectations as well as people understand the role of our

0:13:04.440 --> 0:13:09.080
<v Speaker 3>frontline and emergency responders and the exposure they have in

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<v Speaker 3>their day to day jobs to protect us. And you know,

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<v Speaker 3>we're seeing more and more incidents happen with climate change.

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<v Speaker 3>You know, these fires and emergency situations that we are

0:13:20.960 --> 0:13:25.040
<v Speaker 3>having are lasting longer, are happening more often, so there's

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<v Speaker 3>more exposure than ever before. And I think that as

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<v Speaker 3>a whole, as a community, as a society, we need

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<v Speaker 3>our frontline workers, and we need every single one of them,

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<v Speaker 3>but we also need to ensure that they're valued equally

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<v Speaker 3>and they are supported equally. And I think for me,

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<v Speaker 3>that is a glaring gap, and it's something that we

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<v Speaker 3>can and we will fix.

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<v Speaker 2>I don't even know how you are holding it together

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<v Speaker 2>right now in this moment talking about it and also

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<v Speaker 2>right now in your life dealing with it.

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<v Speaker 3>So I'm not really Tiffany. I'll tell you that I

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<v Speaker 3>I do have a public profile, and I do a

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<v Speaker 3>lot of frontline work and have for a very long time.

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<v Speaker 3>And over that decade or more, I've I've you know,

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<v Speaker 3>developed skills around speaking around what I'm probably not that

0:14:24.920 --> 0:14:30.480
<v Speaker 3>great today, pretty good our you know, issues that are

0:14:31.040 --> 0:14:36.000
<v Speaker 3>important to our community, social justice issues, and I've always

0:14:36.080 --> 0:14:38.760
<v Speaker 3>had that level of distance, if that makes sense, is

0:14:38.800 --> 0:14:41.640
<v Speaker 3>that you know, it's not always you know, apart from

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<v Speaker 3>this time, it's not necessarily happening to me or to

0:14:44.520 --> 0:14:49.920
<v Speaker 3>my family. So one of the reasons that has taken

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<v Speaker 3>us a while to I guess sort of bring this

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<v Speaker 3>to a more public light is because there was it

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<v Speaker 3>was such a heavy load for our entire family that

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<v Speaker 3>it took us a number of months to work through

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<v Speaker 3>and get to a point that we could publicly speak

0:15:08.000 --> 0:15:14.560
<v Speaker 3>about one what was happening, and to the legislation, you know,

0:15:14.640 --> 0:15:17.360
<v Speaker 3>the pieces around the legislation and what that looks like.

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<v Speaker 3>Because for us and for as a family, and that

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<v Speaker 3>you know, as you know Simon and I as life partners,

0:15:24.440 --> 0:15:29.200
<v Speaker 3>I'll just share something maybe funny, but you know it's

0:15:29.400 --> 0:15:32.480
<v Speaker 3>like when we first met all those years ago, we

0:15:32.840 --> 0:15:36.520
<v Speaker 3>probably shouldn't have stayed together. We were absolutely polar opposites,

0:15:36.680 --> 0:15:38.880
<v Speaker 3>So you know that song and it was around at

0:15:38.920 --> 0:15:42.240
<v Speaker 3>the time when we were dating. It was polar Abdul

0:15:42.360 --> 0:15:44.600
<v Speaker 3>opposites attract and it was you know, he liked to

0:15:44.680 --> 0:15:47.400
<v Speaker 3>smoke and she doesn't, and he likes he's noisy and

0:15:47.400 --> 0:15:49.240
<v Speaker 3>she's quite well that was us, and that was kind

0:15:49.240 --> 0:15:53.000
<v Speaker 3>of our It's like like this song was made about us.

0:15:53.040 --> 0:15:58.120
<v Speaker 3>You drive me crazy and very For such a long time,

0:15:58.560 --> 0:16:01.600
<v Speaker 3>we were you know, as a very young you know,

0:16:01.800 --> 0:16:04.520
<v Speaker 3>early twenties, we were sort of we always you know,

0:16:04.600 --> 0:16:06.840
<v Speaker 3>I guess we're sort of that pull and push of

0:16:07.840 --> 0:16:11.360
<v Speaker 3>you know, differences that we had, and I think many

0:16:11.360 --> 0:16:14.880
<v Speaker 3>couples experienced that. And then over time and I can't

0:16:14.880 --> 0:16:19.280
<v Speaker 3>tell you when, but at some point we started to

0:16:19.320 --> 0:16:22.320
<v Speaker 3>look at what we had in common rather than what

0:16:22.480 --> 0:16:25.600
<v Speaker 3>was what we didn't like about each other or how

0:16:25.640 --> 0:16:29.640
<v Speaker 3>we were opposite. And the one thing that I think

0:16:29.720 --> 0:16:33.280
<v Speaker 3>has made our relationship really strong, and certainly the work

0:16:33.280 --> 0:16:38.600
<v Speaker 3>that we've done across both of our careers was our

0:16:38.680 --> 0:16:44.400
<v Speaker 3>desire to respond to social justice issues in a service response.

0:16:44.680 --> 0:16:48.000
<v Speaker 3>So Simon has stayed and worked at the CFA, and

0:16:48.040 --> 0:16:50.080
<v Speaker 3>he's done an incredible amount of work. I can tell

0:16:50.080 --> 0:16:54.040
<v Speaker 3>you now, the CFA brothers and sisters that have reached

0:16:54.040 --> 0:16:58.920
<v Speaker 3>out from across the state has been like, yeah, it's

0:16:59.680 --> 0:17:02.600
<v Speaker 3>just been overwhelming. So many people know him, so many

0:17:02.640 --> 0:17:07.280
<v Speaker 3>people know his work. He's interacted with an enormous amount

0:17:07.280 --> 0:17:13.200
<v Speaker 3>of people and had really positive influence engagement in some

0:17:13.320 --> 0:17:19.119
<v Speaker 3>place change supported work. It's just been I actually knew

0:17:19.160 --> 0:17:23.159
<v Speaker 3>that he was well known and well supported, but you know,

0:17:23.240 --> 0:17:28.640
<v Speaker 3>to find out how big that is, it's just blown

0:17:28.720 --> 0:17:31.720
<v Speaker 3>us all the way. And then support locally from our

0:17:32.400 --> 0:17:36.479
<v Speaker 3>local brigades and local people is you know, second tan

0:17:36.600 --> 0:17:40.040
<v Speaker 3>on it. It's been absolutely phenomenal. And then for me,

0:17:40.680 --> 0:17:44.280
<v Speaker 3>my work has been around grassroots response in the Enabled

0:17:44.359 --> 0:17:49.240
<v Speaker 3>House and I guess being quite vocal around what happened

0:17:49.320 --> 0:17:53.320
<v Speaker 3>at the mind Fire and escalating that as a health

0:17:53.359 --> 0:17:57.400
<v Speaker 3>disaster that was impacting our community. And we still see

0:17:57.400 --> 0:17:59.439
<v Speaker 3>the legacy of you know, we see the legacy of

0:17:59.480 --> 0:18:03.560
<v Speaker 3>that today. So it ended up being the common ground

0:18:03.720 --> 0:18:08.359
<v Speaker 3>the service and the social justice responses and the need

0:18:08.400 --> 0:18:11.280
<v Speaker 3>to respond was what we had in common. It wasn't

0:18:11.280 --> 0:18:13.239
<v Speaker 3>the fact that he liked the TV loud and I

0:18:13.359 --> 0:18:16.840
<v Speaker 3>liked it low and he's you know, you know, it

0:18:16.880 --> 0:18:19.840
<v Speaker 3>was just you know, he liked to dance and I didn't.

0:18:19.920 --> 0:18:22.159
<v Speaker 3>And you know, he's far more of an extrovert and

0:18:22.200 --> 0:18:24.320
<v Speaker 3>I'm more of an introvert. I'm just thinking of the

0:18:24.320 --> 0:18:26.159
<v Speaker 3>words of the songs. There was a whole bunch in

0:18:26.160 --> 0:18:29.119
<v Speaker 3>that song. I'd have to play it again, but of opposites,

0:18:29.160 --> 0:18:31.199
<v Speaker 3>and I don't know. Over the years, and as you

0:18:31.200 --> 0:18:34.000
<v Speaker 3>get older and you start to appreciate different things about

0:18:34.040 --> 0:18:36.760
<v Speaker 3>your partner and then realize it's actually not the differences,

0:18:36.960 --> 0:18:39.680
<v Speaker 3>is my point. It's the you know, and you might

0:18:39.720 --> 0:18:42.600
<v Speaker 3>only have a few common threads, but they are the

0:18:42.680 --> 0:18:46.440
<v Speaker 3>powerful things that bring you back home to each other

0:18:46.520 --> 0:18:50.080
<v Speaker 3>each night, and that you open the bottle of wine

0:18:50.080 --> 0:18:53.040
<v Speaker 3>and you talk about your day, and you work out,

0:18:53.119 --> 0:18:56.920
<v Speaker 3>and you map out what's next, and you know that

0:18:56.960 --> 0:18:59.680
<v Speaker 3>person that's in your corner. And it's because of that

0:18:59.680 --> 0:19:04.880
<v Speaker 3>that rounding of you know, of that belief that we've

0:19:04.920 --> 0:19:10.760
<v Speaker 3>had around social justice issues being kinder, you know, there

0:19:10.760 --> 0:19:12.480
<v Speaker 3>has to be a kinder in a better way, and

0:19:13.280 --> 0:19:18.080
<v Speaker 3>our commitment to service and to serve. Yeah, so and

0:19:18.119 --> 0:19:22.000
<v Speaker 3>that's something you know, we've certainly been reflecting on a lot,

0:19:22.040 --> 0:19:26.440
<v Speaker 3>and we think we really both believe strongly that that

0:19:26.840 --> 0:19:29.320
<v Speaker 3>is what we'll get this legislation change because we are

0:19:29.359 --> 0:19:32.959
<v Speaker 3>committed to it, and we will just keep going, you know,

0:19:33.080 --> 0:19:36.800
<v Speaker 3>until we get it changed and we raise awareness around

0:19:37.640 --> 0:19:41.479
<v Speaker 3>what it actually looks like for staff that have movement

0:19:41.600 --> 0:19:44.840
<v Speaker 3>orders that are then out in the field and then

0:19:44.920 --> 0:19:48.800
<v Speaker 3>our front line at times when our state needs them

0:19:48.800 --> 0:19:49.280
<v Speaker 3>the most.

0:19:51.760 --> 0:19:56.919
<v Speaker 2>It's twenty nineteen feels so recent for a change like

0:19:57.000 --> 0:19:59.320
<v Speaker 2>that as well. Like when you said twenty nineteen, I'm like,

0:19:59.560 --> 0:20:00.600
<v Speaker 2>that was you yesterday.

0:20:00.600 --> 0:20:07.440
<v Speaker 3>Look, look I guess I'm not really I won't. I

0:20:07.480 --> 0:20:11.120
<v Speaker 3>won't be across. I know that that was certainly a

0:20:11.160 --> 0:20:15.400
<v Speaker 3>push during the fire services reform. I'm not across you know,

0:20:15.840 --> 0:20:20.800
<v Speaker 3>the detail or and there would be reasons why that

0:20:21.520 --> 0:20:25.600
<v Speaker 3>it was firefighters to start with, and then later DMOS

0:20:25.640 --> 0:20:30.240
<v Speaker 3>the district mechanical offices have been added, but it falls

0:20:30.240 --> 0:20:33.080
<v Speaker 3>short in covering the people that are needed on the

0:20:33.080 --> 0:20:36.879
<v Speaker 3>front line to actually, you know, support our community, our

0:20:36.920 --> 0:20:39.639
<v Speaker 3>great state when it needs it the most. There are

0:20:39.880 --> 0:20:43.520
<v Speaker 3>so many pieces to those operational works, and like I

0:20:43.560 --> 0:20:46.080
<v Speaker 3>said that, we work as one. You know, we hear

0:20:46.119 --> 0:20:48.719
<v Speaker 3>that a lot, and certainly am I work on the

0:20:48.720 --> 0:20:51.040
<v Speaker 3>fringes of this, you know, I've heard that a lot

0:20:51.080 --> 0:20:54.280
<v Speaker 3>over the last decade or more. And I couldn't help

0:20:54.359 --> 0:20:57.399
<v Speaker 3>but think, but we're not covered as one. You know,

0:20:57.520 --> 0:21:00.439
<v Speaker 3>we work as one, we are needed, we're all needed

0:21:00.560 --> 0:21:04.760
<v Speaker 3>as one, but we're you know where the legislation treats

0:21:04.760 --> 0:21:08.119
<v Speaker 3>some workers differently, and we need to fix that.

0:21:09.080 --> 0:21:11.320
<v Speaker 2>It's a tough pill to swallow because, like as you

0:21:11.400 --> 0:21:15.040
<v Speaker 2>were describing it, I was processing and thinking about it,

0:21:15.080 --> 0:21:19.600
<v Speaker 2>and it's like it it's not like a work cover

0:21:19.720 --> 0:21:22.240
<v Speaker 2>thing where I'll make and break his leg in footy

0:21:22.280 --> 0:21:24.560
<v Speaker 2>and be like, oh, just wruck and I'll work cover.

0:21:24.760 --> 0:21:29.800
<v Speaker 2>You know, it's like and numbers I wouldn't imagine in

0:21:29.920 --> 0:21:34.199
<v Speaker 2>statistically are enormous that some bloody work cover place is

0:21:34.200 --> 0:21:36.000
<v Speaker 2>going to be out of pocket for the whole thing. Like,

0:21:36.960 --> 0:21:40.679
<v Speaker 2>but people are slipping through the cracks and it's not fair.

0:21:41.600 --> 0:21:44.320
<v Speaker 3>Oh no, they definitely are. And I think that's the thing.

0:21:44.400 --> 0:21:48.080
<v Speaker 3>You know, if you know, if we look at a

0:21:48.080 --> 0:21:50.199
<v Speaker 3>work cover claim and it isn't like you described that,

0:21:50.240 --> 0:21:52.280
<v Speaker 3>you may have broken a leg or you know, you

0:21:52.320 --> 0:21:54.959
<v Speaker 3>know and I don't, you know, it is there as

0:21:55.000 --> 0:21:59.720
<v Speaker 3>a safety net to support workers when injuries and accidents happen,

0:22:00.000 --> 0:22:03.080
<v Speaker 3>and you know, it's absolutely should be but what we're

0:22:03.119 --> 0:22:07.479
<v Speaker 3>talking about in terms of terminal illnesses and exposure to

0:22:07.600 --> 0:22:13.080
<v Speaker 3>carcinogens and toxic smoke things like that. You know, it's

0:22:13.240 --> 0:22:15.160
<v Speaker 3>very hard for me to wrap my head around how

0:22:15.200 --> 0:22:20.000
<v Speaker 3>that is. You know, how you navigate that well through

0:22:20.000 --> 0:22:22.720
<v Speaker 3>a work cover claim as well. And it's been it's

0:22:22.760 --> 0:22:26.600
<v Speaker 3>been really tricky. So and I probably you know, am

0:22:26.640 --> 0:22:29.320
<v Speaker 3>not keen to sort of talk about or unpack that

0:22:29.359 --> 0:22:31.280
<v Speaker 3>too much because you know, it's a whole web that

0:22:31.320 --> 0:22:36.119
<v Speaker 3>we you know, it's probably too complicated for me to

0:22:36.200 --> 0:22:40.440
<v Speaker 3>go into. So the safe that safety net is there,

0:22:40.640 --> 0:22:43.000
<v Speaker 3>but you still have then the burden of proof. So

0:22:43.040 --> 0:22:45.760
<v Speaker 3>it's then not like I fell off the ladder and

0:22:45.760 --> 0:22:47.360
<v Speaker 3>broke my leg and do you know what I mean

0:22:47.359 --> 0:22:51.400
<v Speaker 3>on Wednesday and this is what happened, and my coworker

0:22:51.440 --> 0:22:55.760
<v Speaker 3>called an ambulance and exposure like these and cancel cancers

0:22:55.800 --> 0:23:02.560
<v Speaker 3>like these take a very long time you develop in

0:23:02.560 --> 0:23:03.880
<v Speaker 3>your body, do you know what I mean? Like it's

0:23:03.920 --> 0:23:05.919
<v Speaker 3>not like you were at an incident and then the

0:23:05.960 --> 0:23:09.199
<v Speaker 3>next day you have a cancer, and you know, like

0:23:09.440 --> 0:23:12.639
<v Speaker 3>they take such a long time to come out. So

0:23:12.800 --> 0:23:16.960
<v Speaker 3>being able to track all your records and where you've

0:23:16.960 --> 0:23:19.960
<v Speaker 3>been and you know we I mean, I'm guilty of it.

0:23:20.040 --> 0:23:21.280
<v Speaker 3>You know, you just go to work and you do

0:23:21.320 --> 0:23:26.840
<v Speaker 3>your thing. I don't necessarily track every thing I've got

0:23:26.880 --> 0:23:29.600
<v Speaker 3>to do in the day, eat like that, and certainly

0:23:29.640 --> 0:23:32.320
<v Speaker 3>with my you know, I wouldn't be looking at it going, oh,

0:23:32.359 --> 0:23:34.000
<v Speaker 3>I must you know, I must make sure I write

0:23:34.040 --> 0:23:35.840
<v Speaker 3>that down and where I've been and you know, and

0:23:36.200 --> 0:23:37.600
<v Speaker 3>do all that in case I need it in ten

0:23:37.680 --> 0:23:42.000
<v Speaker 3>years time, you know, because you're off doing your work,

0:23:42.040 --> 0:23:45.000
<v Speaker 3>like there's an assumption that you are covered and looked after.

0:23:47.200 --> 0:23:49.240
<v Speaker 3>But you know, it's a different I guess it's you know,

0:23:49.720 --> 0:23:52.439
<v Speaker 3>it's it's a very different process to then have to

0:23:52.480 --> 0:23:55.560
<v Speaker 3>track that amount of time and work to prove exposure

0:23:56.480 --> 0:24:00.920
<v Speaker 3>as opposed to a single incident. Yeah that has happened.

0:24:00.960 --> 0:24:07.080
<v Speaker 3>So it's I think, you know, for us, we're really

0:24:07.359 --> 0:24:09.879
<v Speaker 3>we're really committed to raising the awareness and it has

0:24:09.960 --> 0:24:14.600
<v Speaker 3>given us a purpose, if that makes any sense. Sometimes

0:24:14.600 --> 0:24:19.199
<v Speaker 3>when I say it to go as then like we

0:24:19.320 --> 0:24:22.399
<v Speaker 3>have no control over what is happening to us and

0:24:22.440 --> 0:24:26.840
<v Speaker 3>what will happen. Simon will lose this battle, and he

0:24:26.920 --> 0:24:31.879
<v Speaker 3>will lose it soon, you know, in weeks, maybe maybe

0:24:32.040 --> 0:24:34.080
<v Speaker 3>a month or two, if we're lucky, but you know,

0:24:34.160 --> 0:24:39.240
<v Speaker 3>he's very, very sick. But having something that we can

0:24:39.359 --> 0:24:42.480
<v Speaker 3>focus on and a purpose for change is really really

0:24:42.520 --> 0:24:48.800
<v Speaker 3>important for our family, and it's important for our healing journey,

0:24:48.960 --> 0:24:53.640
<v Speaker 3>but most importantly, it's vital for the people that come

0:24:53.680 --> 0:24:57.359
<v Speaker 3>after us. Like it won't make any difference for us,

0:24:58.440 --> 0:25:03.040
<v Speaker 3>but I think I would can reconcile some of this

0:25:04.400 --> 0:25:08.560
<v Speaker 3>in my heart when I and when this legislation is changed,

0:25:08.600 --> 0:25:12.560
<v Speaker 3>when I know that you know, we've improved the safety

0:25:12.600 --> 0:25:17.040
<v Speaker 3>net for workers after us, Can.

0:25:16.960 --> 0:25:19.600
<v Speaker 2>I ask what it's like. I'm feel free not to

0:25:19.640 --> 0:25:23.280
<v Speaker 2>answer any questions. I ask, really, but what's it like

0:25:23.440 --> 0:25:28.560
<v Speaker 2>to sit in the middle and and process what you

0:25:28.680 --> 0:25:31.080
<v Speaker 2>know you're in the middle of and when you know

0:25:31.240 --> 0:25:38.240
<v Speaker 2>you don't even have the time to really process within

0:25:38.280 --> 0:25:41.160
<v Speaker 2>the time that you've been given, Like it feels so

0:25:41.320 --> 0:25:43.560
<v Speaker 2>enormous to me, I can't even wrap my mind around.

0:25:44.440 --> 0:25:48.040
<v Speaker 3>Oh. Look, I when he was first diagnosed, I think

0:25:48.080 --> 0:25:53.439
<v Speaker 3>I lost a month. I probably lost longer, but I

0:25:53.560 --> 0:26:03.159
<v Speaker 3>was just constantly in this state of that. I'm gonna sorry, sorry,

0:26:05.080 --> 0:26:12.320
<v Speaker 3>just dread. Why what does this look like? And I

0:26:12.359 --> 0:26:19.840
<v Speaker 3>can't even now talk about how it was when we

0:26:19.880 --> 0:26:22.600
<v Speaker 3>had to how difficult it was to tell the kids

0:26:24.320 --> 0:26:27.679
<v Speaker 3>and that I have so many unknowns around. It was

0:26:28.040 --> 0:26:33.640
<v Speaker 3>just it was the hardest thing we have ever had

0:26:33.640 --> 0:26:39.600
<v Speaker 3>to do as a couple as parents, and just their

0:26:39.600 --> 0:26:47.560
<v Speaker 3>physical reaction, Oh my god when we told so not

0:26:47.640 --> 0:26:53.280
<v Speaker 3>just even the emotional but you know, just watching them

0:26:53.359 --> 0:27:01.280
<v Speaker 3>just fall to the ground. So mostly I'm together, and

0:27:01.280 --> 0:27:07.440
<v Speaker 3>mostly I'm not. But it's it's just a it's been

0:27:07.440 --> 0:27:12.479
<v Speaker 3>a rollercoaster of really strong, heightened emotions and some times

0:27:12.480 --> 0:27:16.520
<v Speaker 3>where you know, I know, for me, like sometimes I'm

0:27:16.560 --> 0:27:20.159
<v Speaker 3>really focused on something, like when I focus on the

0:27:20.280 --> 0:27:26.199
<v Speaker 3>legislation change, I can you know, it gives me something

0:27:26.320 --> 0:27:31.399
<v Speaker 3>concrete to work on. It means my brain's not going,

0:27:31.720 --> 0:27:34.480
<v Speaker 3>you know, in other places, and I can get out

0:27:34.520 --> 0:27:39.240
<v Speaker 3>of bed. And then other days it just feels like

0:27:39.280 --> 0:27:41.159
<v Speaker 3>I can't get out of bed and I'm not going

0:27:41.200 --> 0:27:47.000
<v Speaker 3>to be able to function today. And They're closer, it

0:27:47.080 --> 0:27:50.399
<v Speaker 3>gets to the end, and the sicker Simon's becoming, the

0:27:50.480 --> 0:27:53.679
<v Speaker 3>harder it is to keep it all together because you

0:27:53.760 --> 0:28:00.840
<v Speaker 3>know what's happening and what what's going to happen, and

0:28:00.880 --> 0:28:03.800
<v Speaker 3>he's so young, you know, he's fifty six. It just

0:28:03.840 --> 0:28:07.840
<v Speaker 3>seems like any couples out there and parents out there

0:28:07.880 --> 0:28:10.560
<v Speaker 3>that are in their fifties and their kids are in

0:28:10.600 --> 0:28:13.480
<v Speaker 3>their late teens and early twenties. You're kind of getting

0:28:13.520 --> 0:28:17.359
<v Speaker 3>into your groove, you know, like the kids are really

0:28:17.400 --> 0:28:20.400
<v Speaker 3>independent and they're finding their own way in life, and

0:28:20.720 --> 0:28:23.560
<v Speaker 3>you know, we were starting to carve out time for

0:28:23.600 --> 0:28:27.120
<v Speaker 3>ourselves in different ways, and you know, look at our

0:28:27.119 --> 0:28:31.959
<v Speaker 3>careers differently, and you know, look at the future, you know,

0:28:32.040 --> 0:28:38.080
<v Speaker 3>and all of that is gone, like and how we

0:28:40.600 --> 0:28:43.360
<v Speaker 3>support our children through that has you know, has been

0:28:43.400 --> 0:28:51.080
<v Speaker 3>our primary primary concern, alongside supporting Simon's health journey. So

0:28:51.160 --> 0:28:53.840
<v Speaker 3>it's been a lot, and it's meant that I've had

0:28:53.840 --> 0:28:56.240
<v Speaker 3>to you know, I've made decisions about I've taken some

0:28:56.320 --> 0:29:00.280
<v Speaker 3>time off work and I'm reducing my workload, you know,

0:29:00.320 --> 0:29:02.160
<v Speaker 3>so that i can do all the things that I

0:29:02.200 --> 0:29:05.880
<v Speaker 3>need to do for my family, and part about time

0:29:06.000 --> 0:29:10.160
<v Speaker 3>to ensure that I can work on having this legislation change,

0:29:10.200 --> 0:29:13.200
<v Speaker 3>because for me, that is the real it's the only

0:29:13.240 --> 0:29:16.000
<v Speaker 3>thing that will make any sense out of this whole, sorry,

0:29:17.880 --> 0:29:23.080
<v Speaker 3>awful thing that we are experiencing, and that is life changing.

0:29:23.160 --> 0:29:25.880
<v Speaker 3>Like we will lose I'll lose my life partner, the

0:29:25.960 --> 0:29:31.000
<v Speaker 3>kids are going to lose their father and it's I

0:29:31.080 --> 0:29:34.400
<v Speaker 3>don't know, you know, I always I've heard stories where

0:29:34.440 --> 0:29:42.200
<v Speaker 3>people have lost significant family members and the impact that

0:29:42.280 --> 0:29:46.240
<v Speaker 3>has had and the grieving process and how unfair it is.

0:29:46.280 --> 0:29:47.960
<v Speaker 3>And you see it all the time in the news

0:29:47.960 --> 0:29:52.480
<v Speaker 3>when people are just ripped out away from us, you know,

0:29:52.600 --> 0:29:56.959
<v Speaker 3>in cruel, unimaginable ways, or they've been dealing with illnesses,

0:29:59.120 --> 0:30:04.720
<v Speaker 3>you know, And I you always look at those situations

0:30:04.760 --> 0:30:07.360
<v Speaker 3>with your heart open and you can't even imagine what

0:30:07.360 --> 0:30:12.280
<v Speaker 3>it feels like to be there. And I guess that's

0:30:12.320 --> 0:30:15.000
<v Speaker 3>the way I viewed it until it was until it's

0:30:15.080 --> 0:30:17.160
<v Speaker 3>you and then one day, because one day it will

0:30:18.000 --> 0:30:22.920
<v Speaker 3>be you. So trying to make any sense of it

0:30:22.960 --> 0:30:26.040
<v Speaker 3>to us has been really about what we can change?

0:30:26.840 --> 0:30:27.840
<v Speaker 3>Does that make sense?

0:30:27.960 --> 0:30:32.280
<v Speaker 2>Like it does? I met you at in Gippsland.

0:30:31.760 --> 0:30:36.480
<v Speaker 3>Right, yeah, So I had the girls with hammers with yeah, Karen, Yeah.

0:30:36.480 --> 0:30:39.880
<v Speaker 2>And what I can't what And this is this is

0:30:39.880 --> 0:30:41.680
<v Speaker 2>the reality of the stuff I talk about. And I

0:30:41.720 --> 0:30:47.040
<v Speaker 2>feel like this is an example of an example, a

0:30:47.120 --> 0:30:49.600
<v Speaker 2>made up example. This is a real life example of

0:30:49.600 --> 0:30:52.680
<v Speaker 2>something I've said along a lot, which is like here

0:30:52.720 --> 0:30:54.600
<v Speaker 2>we are in this room that Girls with Hammers a

0:30:54.640 --> 0:30:58.640
<v Speaker 2>couple of years ago, and I remember being moved to

0:30:58.720 --> 0:31:04.400
<v Speaker 2>tears hearing this the story from Kate Gail and her

0:31:04.560 --> 0:31:08.640
<v Speaker 2>daughter and her turning up with that second bout of leukemia,

0:31:08.760 --> 0:31:13.120
<v Speaker 2>and this gut wrenching story of you know, and you're

0:31:13.160 --> 0:31:15.840
<v Speaker 2>in the audience, and I'm in the audience, and then

0:31:16.520 --> 0:31:19.120
<v Speaker 2>now we're here, and it's like, we never know, like

0:31:19.160 --> 0:31:21.440
<v Speaker 2>you said, we never know, it's never going to be us,

0:31:21.480 --> 0:31:24.200
<v Speaker 2>and then it's us. And I often say to people,

0:31:24.240 --> 0:31:27.840
<v Speaker 2>I say, we have these conversations and I host them

0:31:27.840 --> 0:31:31.400
<v Speaker 2>and I listen, but I don't know what's happening in

0:31:31.440 --> 0:31:34.240
<v Speaker 2>my life or my body. I don't know what tomorrow.

0:31:34.400 --> 0:31:36.360
<v Speaker 2>I don't know if there's going to be an accident tomorrow.

0:31:36.520 --> 0:31:39.440
<v Speaker 2>I don't know if there's something already in my world

0:31:39.440 --> 0:31:43.800
<v Speaker 2>that I have not been aware of yet. And it's

0:31:43.840 --> 0:31:47.120
<v Speaker 2>hard to fathom. And when you're faced with it, like

0:31:47.160 --> 0:31:53.200
<v Speaker 2>I feel so sad and confronted by having that thought

0:31:53.320 --> 0:31:55.160
<v Speaker 2>and this conversation right now.

0:31:56.960 --> 0:32:03.280
<v Speaker 3>Yeah, I feel that because I have the same issue,

0:32:03.440 --> 0:32:06.760
<v Speaker 3>like the same experience. When I'm at work. It's that

0:32:06.960 --> 0:32:10.160
<v Speaker 3>I will hear and be a part of somebody's story

0:32:10.240 --> 0:32:12.320
<v Speaker 3>for a very you know, for a short time, sometimes

0:32:12.320 --> 0:32:16.200
<v Speaker 3>a longer time, and I walk beside them in that

0:32:16.240 --> 0:32:21.200
<v Speaker 3>and I always, you know, just feel so strongly around

0:32:21.240 --> 0:32:24.040
<v Speaker 3>what you know, they are experiencing. But I can never

0:32:24.640 --> 0:32:31.800
<v Speaker 3>put myself in that same situation of how deeply painful

0:32:31.840 --> 0:32:36.280
<v Speaker 3>it is. And you know, I mean, you know, and

0:32:36.320 --> 0:32:40.560
<v Speaker 3>we can be quite well meaning, you know, to you know,

0:32:40.640 --> 0:32:43.640
<v Speaker 3>in our support, but we'll never really understand what it's

0:32:44.120 --> 0:32:49.080
<v Speaker 3>like until it is happening to you. And I think

0:32:49.360 --> 0:32:53.160
<v Speaker 3>over the last few years, there's been a number of

0:32:53.200 --> 0:32:55.640
<v Speaker 3>things that have happened in our lives sort of that

0:32:55.720 --> 0:33:01.080
<v Speaker 3>has really made me realize how finite our time is.

0:33:02.360 --> 0:33:04.880
<v Speaker 3>You know. A couple of years ago, my best friend

0:33:04.920 --> 0:33:06.760
<v Speaker 3>was killed in a car accident, and it was like

0:33:06.840 --> 0:33:10.160
<v Speaker 3>she was literally there one day and then gone the next,

0:33:10.240 --> 0:33:15.760
<v Speaker 3>and I, you know, we didn't have, you know, those goodbyes,

0:33:16.000 --> 0:33:20.640
<v Speaker 3>you didn't like she was just cruelly taken. And that

0:33:20.800 --> 0:33:24.440
<v Speaker 3>took me such a long time to work through. And

0:33:24.520 --> 0:33:29.760
<v Speaker 3>so when Simon was diagnosed, the one thing that we

0:33:30.440 --> 0:33:32.760
<v Speaker 3>I guess hung on to at the time is that

0:33:32.800 --> 0:33:37.440
<v Speaker 3>we we had time to say our goodbyes, We had

0:33:37.480 --> 0:33:41.520
<v Speaker 3>time to do the things that we wanted to do

0:33:41.600 --> 0:33:44.720
<v Speaker 3>with our family and prepare our family the best we

0:33:44.800 --> 0:33:50.120
<v Speaker 3>can and I and that is just really around the practicalities,

0:33:50.200 --> 0:33:54.320
<v Speaker 3>like there is no preparing for the waves of grief

0:33:55.000 --> 0:33:57.240
<v Speaker 3>that will be the tsunami in our lives, but you

0:33:57.280 --> 0:34:02.080
<v Speaker 3>know the practicalities of what we could do to we've

0:34:02.200 --> 0:34:05.760
<v Speaker 3>done so in very much contrast to what happened to

0:34:05.800 --> 0:34:10.719
<v Speaker 3>my friend where she was just ripped promise. So it

0:34:10.800 --> 0:34:15.319
<v Speaker 3>has given us that time and that is something you know,

0:34:15.360 --> 0:34:19.520
<v Speaker 3>both Simon and I are we're extremely grateful for because

0:34:19.560 --> 0:34:22.040
<v Speaker 3>you don't know when it's going to be ripped from you.

0:34:22.600 --> 0:34:27.480
<v Speaker 3>And he's certainly allowed him time to look at what

0:34:27.680 --> 0:34:30.319
<v Speaker 3>he wants his legacy to be, which is part of

0:34:30.320 --> 0:34:35.000
<v Speaker 3>this conversation today now where if he had a terrible

0:34:35.040 --> 0:34:37.600
<v Speaker 3>accident and he was just taken from us, we wouldn't

0:34:37.600 --> 0:34:41.440
<v Speaker 3>have ever been able to work through the things that

0:34:41.440 --> 0:34:44.200
<v Speaker 3>we've been able to now or have the time that

0:34:44.239 --> 0:34:48.279
<v Speaker 3>we have had. So we have been very clear that

0:34:48.360 --> 0:34:51.239
<v Speaker 3>we don't have a lot of time and it's a

0:34:51.280 --> 0:34:54.239
<v Speaker 3>finite piece for us, and we needed to do and

0:34:54.880 --> 0:35:00.000
<v Speaker 3>be everything that we wanted to see in the next time.

0:35:00.000 --> 0:35:02.239
<v Speaker 3>Twenty years it all happened to happen now, and we

0:35:02.360 --> 0:35:05.120
<v Speaker 3>had to support our family and make sure our children

0:35:05.200 --> 0:35:07.359
<v Speaker 3>had the wrap arounds that they're going to need. And

0:35:07.400 --> 0:35:10.000
<v Speaker 3>so we have been able to do that, and we

0:35:10.040 --> 0:35:14.120
<v Speaker 3>are really really grateful, but having the experience of both

0:35:14.880 --> 0:35:17.960
<v Speaker 3>the other flip side of having time. And I'm not

0:35:18.000 --> 0:35:22.360
<v Speaker 3>sure if this all makes sense to your listeners, and

0:35:22.920 --> 0:35:25.520
<v Speaker 3>it may, and I've tried to unpack this a little bit.

0:35:27.160 --> 0:35:29.600
<v Speaker 3>Is as much as we have loved time, we've also

0:35:29.960 --> 0:35:35.560
<v Speaker 3>hated it because we know we don't like it's every

0:35:35.680 --> 0:35:40.480
<v Speaker 3>day we are living on the edge, and that the

0:35:41.120 --> 0:35:44.120
<v Speaker 3>neutral part. I was so grateful We've at least got time.

0:35:44.239 --> 0:35:46.239
<v Speaker 3>You know, some people don't get time. We've at least

0:35:46.280 --> 0:35:48.480
<v Speaker 3>got that. And people have said that to me and

0:35:48.680 --> 0:35:53.120
<v Speaker 3>well meaning, but as I've got through that time's also

0:35:53.200 --> 0:35:58.760
<v Speaker 3>our enemy and it is live trauma every day knowing

0:35:58.760 --> 0:36:00.680
<v Speaker 3>that you get up and you don't know is today

0:36:02.200 --> 0:36:04.799
<v Speaker 3>is today? When it changes, is today the end? You know?

0:36:04.800 --> 0:36:07.560
<v Speaker 3>How much do I have to fit in today? And

0:36:07.600 --> 0:36:12.040
<v Speaker 3>the trauma of that now has become a really big

0:36:12.080 --> 0:36:16.880
<v Speaker 3>piece in our lives is that, you know, Simon hanging on,

0:36:17.239 --> 0:36:19.000
<v Speaker 3>trying to hang on as long as he can. He

0:36:19.080 --> 0:36:21.240
<v Speaker 3>wants to be here, and he is fighting and fighting,

0:36:21.239 --> 0:36:24.000
<v Speaker 3>but the trauma of what that looks like on his body,

0:36:24.080 --> 0:36:27.919
<v Speaker 3>on his health, on the family is also plays out

0:36:28.040 --> 0:36:31.040
<v Speaker 3>and when it you know, and it will be abruptly

0:36:31.160 --> 0:36:35.440
<v Speaker 3>taken from us. So time isn't our friend? Does that

0:36:35.480 --> 0:36:39.000
<v Speaker 3>make I'm sort makes it perfect? Kind of like this,

0:36:39.440 --> 0:36:44.040
<v Speaker 3>you know, we're grateful, but and we absolutely are, but

0:36:44.080 --> 0:36:46.680
<v Speaker 3>there's this other side of it that is actually enemy

0:36:46.760 --> 0:36:47.479
<v Speaker 3>at the same time.

0:36:47.880 --> 0:36:51.239
<v Speaker 2>Yeah, it's a it's a prison, it's a gift in

0:36:51.280 --> 0:36:56.000
<v Speaker 2>a prison. And the reality is it's not just it's

0:36:56.040 --> 0:37:00.839
<v Speaker 2>not just a ticking clock. It's a deteriorating clock where

0:37:00.880 --> 0:37:02.560
<v Speaker 2>his quality of life goes down.

0:37:02.680 --> 0:37:05.239
<v Speaker 3>His quality of life is going down as well. Yeah,

0:37:05.360 --> 0:37:06.439
<v Speaker 3>that's exactly right.

0:37:06.600 --> 0:37:09.399
<v Speaker 2>There'll be that confronting moment where you're like, at what

0:37:09.440 --> 0:37:13.399
<v Speaker 2>point is like, it's it's just hard. I had an

0:37:13.480 --> 0:37:21.640
<v Speaker 2>auntie that passed from leukemia and her last you know, weeks,

0:37:21.760 --> 0:37:25.680
<v Speaker 2>months and weeks were really hard to watch, really hard.

0:37:27.280 --> 0:37:30.600
<v Speaker 3>And then you're on this fine. You know, it's a

0:37:30.680 --> 0:37:34.759
<v Speaker 3>roll of the dice because you you just don't know

0:37:34.760 --> 0:37:36.600
<v Speaker 3>when that number is going to come up, that it's

0:37:36.640 --> 0:37:40.520
<v Speaker 3>going to be today. You know, so that has been

0:37:40.840 --> 0:37:44.680
<v Speaker 3>you know, it's a gift and an enemy. It's it's

0:37:44.800 --> 0:37:47.640
<v Speaker 3>it's something that I've really struggled with, especially in the

0:37:47.719 --> 0:37:50.960
<v Speaker 3>last couple of months, where like I have to actually

0:37:51.080 --> 0:37:56.120
<v Speaker 3>turn my mind deliberately off from it because it keeps

0:37:56.160 --> 0:38:00.239
<v Speaker 3>me up at night. You know, am I being ungreatful?

0:38:00.280 --> 0:38:03.200
<v Speaker 3>I'm so glad we've got time, but I just this

0:38:03.400 --> 0:38:07.040
<v Speaker 3>is I'm giving me high levels of anxiety and you know,

0:38:07.160 --> 0:38:11.480
<v Speaker 3>I just know that I don't have time, and you know,

0:38:11.880 --> 0:38:13.759
<v Speaker 3>you know, I can't explain it, but it just kind

0:38:13.800 --> 0:38:18.160
<v Speaker 3>of sends my head a little bit crazy. And I

0:38:18.400 --> 0:38:20.719
<v Speaker 3>just and I don't want to be ungrateful, and I

0:38:20.800 --> 0:38:24.759
<v Speaker 3>want to be just living in the moment. And that's

0:38:24.800 --> 0:38:28.520
<v Speaker 3>another thing. That's another thing, living in the moment. I

0:38:28.600 --> 0:38:31.279
<v Speaker 3>you know, and well meaning good people and you know,

0:38:31.320 --> 0:38:33.319
<v Speaker 3>and I think that and I have said that to

0:38:33.360 --> 0:38:36.800
<v Speaker 3>people as well, but that is just the reality is

0:38:36.840 --> 0:38:38.759
<v Speaker 3>when you're living with and.

0:38:39.000 --> 0:38:39.879
<v Speaker 2>This moment is shit.

0:38:40.440 --> 0:38:41.200
<v Speaker 3>It's shit.

0:38:42.400 --> 0:38:44.600
<v Speaker 2>Like if I could live at any moment, it probably

0:38:44.719 --> 0:38:45.799
<v Speaker 2>probably wouldn't be my way.

0:38:46.440 --> 0:38:48.480
<v Speaker 3>You know. I'm just like, we're trying to live in

0:38:48.520 --> 0:38:50.960
<v Speaker 3>the moment. But oh, you know, it's you know, he

0:38:51.000 --> 0:38:55.640
<v Speaker 3>can be in agonizing pain and need lots of medication.

0:38:56.239 --> 0:39:00.360
<v Speaker 3>And you know, the kids are really struggling watching him

0:39:00.600 --> 0:39:03.840
<v Speaker 3>like this, and we're struggling to support these health needs

0:39:03.920 --> 0:39:09.920
<v Speaker 3>and like it's not we're not on holidays in Fiji,

0:39:10.080 --> 0:39:13.800
<v Speaker 3>like it's you know, so there's I think there's different

0:39:15.200 --> 0:39:17.160
<v Speaker 3>living in the moments, if that makes sense.

0:39:17.239 --> 0:39:22.120
<v Speaker 2>So, and I'm sure it's awkward. People don't know what.

0:39:22.200 --> 0:39:27.759
<v Speaker 3>To say, yeah, and I I can actually appreciate that,

0:39:27.800 --> 0:39:31.520
<v Speaker 3>and I keep I've certainly had people say to me

0:39:31.600 --> 0:39:33.960
<v Speaker 3>they just they don't know what to say or what

0:39:34.080 --> 0:39:38.320
<v Speaker 3>to do. And the reality is there's nothing that anyone

0:39:38.400 --> 0:39:43.239
<v Speaker 3>can do, but there's some practicalities people can support with

0:39:43.280 --> 0:39:47.160
<v Speaker 3>when they want. So I've like we've been really fortunate.

0:39:47.200 --> 0:39:51.360
<v Speaker 3>And I'll just give a shout out to the local

0:39:51.680 --> 0:39:57.399
<v Speaker 3>CFA crew that have been absolutely have just jumped in

0:39:57.680 --> 0:40:01.160
<v Speaker 3>and they're dropping off meals. I had surgery the other week.

0:40:01.239 --> 0:40:03.120
<v Speaker 3>Simon's in hospital. I've got no one to drive me.

0:40:03.200 --> 0:40:07.160
<v Speaker 3>Someone drives me to Queue all the way from Gippsland

0:40:07.239 --> 0:40:10.919
<v Speaker 3>for the surgery. Someone from Trades and Labor picked me up.

0:40:11.120 --> 0:40:13.879
<v Speaker 3>You know, people have just been making sure we get

0:40:13.920 --> 0:40:18.000
<v Speaker 3>to those things and that We've got everything that we

0:40:18.040 --> 0:40:24.480
<v Speaker 3>need around us. So those practicalities are really important. And

0:40:24.520 --> 0:40:29.080
<v Speaker 3>when people jump in like they have for us, you know,

0:40:29.120 --> 0:40:32.080
<v Speaker 3>it just means it was really hard for me At

0:40:32.120 --> 0:40:36.160
<v Speaker 3>first to say I need help like that was huge.

0:40:36.280 --> 0:40:38.279
<v Speaker 3>I was like, I can't even say that, no, no, no,

0:40:38.480 --> 0:40:41.680
<v Speaker 3>because my role is to help others and you know,

0:40:41.840 --> 0:40:47.000
<v Speaker 3>so it was really difficult. And then I've got some

0:40:47.040 --> 0:40:50.560
<v Speaker 3>conversations and people had reached out, and I thought I

0:40:50.719 --> 0:40:53.040
<v Speaker 3>have to and I know from my role at the

0:40:53.040 --> 0:40:56.200
<v Speaker 3>neighbood house one of the really important things you can

0:40:56.239 --> 0:41:00.000
<v Speaker 3>give people when they're trying to support somebody in crisis

0:41:00.200 --> 0:41:02.880
<v Speaker 3>is a job. Like when they offer and you say,

0:41:03.440 --> 0:41:06.240
<v Speaker 3>now I'm more good, which as you go to nobody

0:41:06.239 --> 0:41:10.920
<v Speaker 3>wants to burden anybody else. It's not that they start

0:41:11.080 --> 0:41:14.600
<v Speaker 3>to stop offering, but they start to not know how

0:41:14.640 --> 0:41:16.719
<v Speaker 3>to you know what I mean, There's no direction. So

0:41:17.560 --> 0:41:20.279
<v Speaker 3>I kept coming back to my work role, going I

0:41:20.360 --> 0:41:22.799
<v Speaker 3>have to I have to put some words around it.

0:41:22.920 --> 0:41:26.000
<v Speaker 3>So and I couldn't cook. I've still got some injury.

0:41:26.040 --> 0:41:30.360
<v Speaker 3>I'll be six weeks before I can do anything useful,

0:41:31.760 --> 0:41:34.399
<v Speaker 3>and so I just said, I, you know, we can

0:41:34.480 --> 0:41:37.239
<v Speaker 3>get some meals and honestly, my freezers are full. People

0:41:37.280 --> 0:41:40.600
<v Speaker 3>are dropping things off, people are buying stuff from a pantry.

0:41:40.640 --> 0:41:42.640
<v Speaker 3>I'm not sure I'll need to shop again for a while.

0:41:42.680 --> 0:41:47.719
<v Speaker 3>But those practical things just started to come. And so

0:41:47.840 --> 0:41:51.000
<v Speaker 3>instead of people talking to me and ringing me saying

0:41:51.040 --> 0:41:55.120
<v Speaker 3>I don't know what to say, they've actually stopped and

0:41:55.160 --> 0:41:58.520
<v Speaker 3>they're focused on you know. You know, we've got another

0:41:58.560 --> 0:42:01.560
<v Speaker 3>delivery of food, We've picked up some toilet paper. You know,

0:42:01.600 --> 0:42:05.319
<v Speaker 3>do you need help walking the dog? You know, I've

0:42:05.320 --> 0:42:07.640
<v Speaker 3>got a seventeen year old. I've got you know, one

0:42:07.719 --> 0:42:12.120
<v Speaker 3>hundred and twenty hours to do for driving lessons. You know,

0:42:12.200 --> 0:42:14.200
<v Speaker 3>there's some offers around that, like we can help with

0:42:14.239 --> 0:42:16.880
<v Speaker 3>the driving lessons. You know, we haven't sort of moved

0:42:16.880 --> 0:42:19.120
<v Speaker 3>into that yet because we've been you know, there's been

0:42:19.160 --> 0:42:22.640
<v Speaker 3>a lot on, but lots of practical support and help

0:42:22.640 --> 0:42:26.239
<v Speaker 3>has started to come. When I lifted that, you know that,

0:42:26.600 --> 0:42:30.080
<v Speaker 3>I guess that up and you know, put words around

0:42:30.280 --> 0:42:33.040
<v Speaker 3>we do need some help, So they weren't then in

0:42:33.080 --> 0:42:35.440
<v Speaker 3>that awkward I'm not sure what to say or do,

0:42:36.040 --> 0:42:39.160
<v Speaker 3>And that has been really freeing for me because when

0:42:39.239 --> 0:42:41.040
<v Speaker 3>people say to me, I don't know what to say,

0:42:41.760 --> 0:42:44.640
<v Speaker 3>I almost cry because I don't know what to say

0:42:44.840 --> 0:42:48.239
<v Speaker 3>like and it puts me, it puts pressure on me.

0:42:48.480 --> 0:42:53.320
<v Speaker 3>Where now it's really just it's about the practicalities of support.

0:42:54.200 --> 0:42:56.480
<v Speaker 3>So I would say to anyone that is going through this,

0:42:57.560 --> 0:43:00.960
<v Speaker 3>but it is I know it's extreme difficult. But if

0:43:01.000 --> 0:43:03.759
<v Speaker 3>you can put some words around that too, you know

0:43:03.880 --> 0:43:07.799
<v Speaker 3>a few key people in your life, they will do

0:43:07.880 --> 0:43:10.600
<v Speaker 3>the rest. They you know, they will come in with

0:43:10.640 --> 0:43:13.040
<v Speaker 3>the supports that are needed and help you get through

0:43:13.080 --> 0:43:16.840
<v Speaker 3>that really tough time, and those practicality is will just

0:43:17.360 --> 0:43:20.920
<v Speaker 3>it's just taken that burden of those awkward conversations away,

0:43:22.560 --> 0:43:25.440
<v Speaker 3>but it's also allowed people to come in and support

0:43:25.480 --> 0:43:27.280
<v Speaker 3>us when we when we need it the most.

0:43:28.600 --> 0:43:31.359
<v Speaker 2>How do you find the with your kids? The age

0:43:31.440 --> 0:43:35.600
<v Speaker 2>they are, so they're children, but their independent children, they're they're.

0:43:35.760 --> 0:43:37.080
<v Speaker 3>They're young adults.

0:43:37.880 --> 0:43:42.520
<v Speaker 2>So the role of being the mum and the protector,

0:43:42.600 --> 0:43:47.239
<v Speaker 2>but also the role of you're you're suffering a significant

0:43:47.280 --> 0:43:52.000
<v Speaker 2>loss as as an independent woman as well, So how

0:43:52.000 --> 0:43:54.960
<v Speaker 2>are you navigating that, what that looks like? Who do

0:43:55.000 --> 0:43:55.640
<v Speaker 2>you need to be.

0:43:57.080 --> 0:44:02.520
<v Speaker 3>So you that That's something that has been quite fluid

0:44:02.719 --> 0:44:05.880
<v Speaker 3>for me. One of the things that we decided early

0:44:05.920 --> 0:44:09.840
<v Speaker 3>in the piece is to as difficult as it was,

0:44:09.880 --> 0:44:12.279
<v Speaker 3>we needed to be very clear and honest with the

0:44:12.360 --> 0:44:16.560
<v Speaker 3>kids about everything that was happening. So I don't, you know,

0:44:16.640 --> 0:44:20.560
<v Speaker 3>think there's any point trying to protect them and just

0:44:20.640 --> 0:44:26.600
<v Speaker 3>causing issues later because they're adults, you know, they're you know,

0:44:26.760 --> 0:44:31.680
<v Speaker 3>they've got high emotional and intelligence. It's their father. There's

0:44:31.680 --> 0:44:35.480
<v Speaker 3>no point pretending it's not hurting me or I'll be okay,

0:44:35.719 --> 0:44:39.880
<v Speaker 3>so because they know I'm not, and it's just and

0:44:39.920 --> 0:44:45.120
<v Speaker 3>it also I didn't want to model something that wasn't

0:44:45.160 --> 0:44:48.640
<v Speaker 3>sustainable as well, like it you shouldn't talk about your feelings,

0:44:48.920 --> 0:44:53.120
<v Speaker 3>because you absolutely should. So we've tried to be open

0:44:53.160 --> 0:44:56.560
<v Speaker 3>and honest with them, but sometimes we'll be talking and

0:44:56.760 --> 0:45:00.040
<v Speaker 3>I'll just break down and you know, and it's it

0:45:00.719 --> 0:45:03.960
<v Speaker 3>really difficult, I know, for them to see me up

0:45:04.040 --> 0:45:10.000
<v Speaker 3>set like that. But the reality is that I can't

0:45:10.200 --> 0:45:14.399
<v Speaker 3>be everything to everyone all the time, and I don't want,

0:45:14.520 --> 0:45:16.600
<v Speaker 3>especially my girls, I don't want them to think that

0:45:16.600 --> 0:45:19.200
<v Speaker 3>that's how they have to live and be because sometimes

0:45:19.200 --> 0:45:22.720
<v Speaker 3>you're just not okay and you can't be the mum

0:45:23.160 --> 0:45:26.200
<v Speaker 3>in that way. You're just emotionally just not able to

0:45:26.239 --> 0:45:31.200
<v Speaker 3>be there, and so I've tried to make sure that

0:45:32.560 --> 0:45:34.719
<v Speaker 3>if I am upset that they you know, I'm not

0:45:34.840 --> 0:45:37.359
<v Speaker 3>hiding that from them, and I'm talking through with them

0:45:37.480 --> 0:45:41.520
<v Speaker 3>what is going on, and you know what our future

0:45:41.520 --> 0:45:44.239
<v Speaker 3>looks like. There's lots of questions about you know, what

0:45:44.280 --> 0:45:46.520
<v Speaker 3>does it look like? Is it okay to talk about

0:45:46.520 --> 0:45:51.400
<v Speaker 3>a future without dad? And you know, you know, unpacking

0:45:51.440 --> 0:45:53.400
<v Speaker 3>I can't explain it trying to unpack those things that

0:45:53.480 --> 0:45:57.920
<v Speaker 3>it is okay, you know. And so for example, my

0:45:58.040 --> 0:46:01.799
<v Speaker 3>seventeen year old earlier in the PA was worried we

0:46:01.880 --> 0:46:05.279
<v Speaker 3>might have to move house or you know, will we

0:46:05.320 --> 0:46:07.480
<v Speaker 3>have to move or do we have to sell the house?

0:46:07.520 --> 0:46:10.440
<v Speaker 3>Are we going to stay here? So we had those conversations,

0:46:10.480 --> 0:46:13.359
<v Speaker 3>if we know this is our home, we're staying here,

0:46:13.520 --> 0:46:16.640
<v Speaker 3>will anchor here? You know, we're not going to move,

0:46:18.000 --> 0:46:20.720
<v Speaker 3>you know, we'll stay here. You'll do year eleven and twelve,

0:46:20.960 --> 0:46:22.640
<v Speaker 3>and we're going to get you through that and it

0:46:22.719 --> 0:46:25.880
<v Speaker 3>might look a bit different for you than the other kids,

0:46:25.920 --> 0:46:27.759
<v Speaker 3>but we're going to lean on all the supports we

0:46:27.800 --> 0:46:30.600
<v Speaker 3>can to get you to the atar you need because

0:46:30.640 --> 0:46:33.360
<v Speaker 3>this is a period in time and it's really awful

0:46:33.440 --> 0:46:36.120
<v Speaker 3>and it's life changing, but you will have a life

0:46:36.120 --> 0:46:38.920
<v Speaker 3>after this. You've got to be working towards that. Your

0:46:38.920 --> 0:46:42.719
<v Speaker 3>father and I don't want you to give up. We

0:46:42.719 --> 0:46:43.640
<v Speaker 3>don't want you to.

0:46:45.440 --> 0:46:45.799
<v Speaker 1>Not be.

0:46:47.280 --> 0:46:50.319
<v Speaker 3>Living your best life in the future. So we will

0:46:50.360 --> 0:46:52.439
<v Speaker 3>work through this now. So being able to have those

0:46:52.440 --> 0:46:56.160
<v Speaker 3>conversations where they can talk to me and about their

0:46:56.200 --> 0:47:01.239
<v Speaker 3>fears rational or not, and we can through those and say,

0:47:01.360 --> 0:47:03.280
<v Speaker 3>you know, like, no, we're not going to be moving.

0:47:03.360 --> 0:47:05.319
<v Speaker 3>If that's you know, that's a concern for you, I

0:47:05.360 --> 0:47:08.399
<v Speaker 3>can tell you now, you know we're not. We'll stay here,

0:47:08.640 --> 0:47:10.879
<v Speaker 3>like this will be the base. So that's just an

0:47:10.920 --> 0:47:16.000
<v Speaker 3>example of one of the I guess many really you know,

0:47:16.280 --> 0:47:18.520
<v Speaker 3>tough conversations that I never thought i'd have to have

0:47:18.800 --> 0:47:24.440
<v Speaker 3>with my kids, and especially as young adults you know,

0:47:24.719 --> 0:47:29.400
<v Speaker 3>about to go into the world themselves. But I've just

0:47:30.360 --> 0:47:34.080
<v Speaker 3>had to be prepared to have them and and be vulnerable.

0:47:34.800 --> 0:47:38.360
<v Speaker 3>And that is, you know, for for a lot of people,

0:47:38.400 --> 0:47:41.400
<v Speaker 3>and as for parents, it's really challenging to be that

0:47:41.520 --> 0:47:46.880
<v Speaker 3>vulnerable with your your children and and you know, share

0:47:46.960 --> 0:47:53.400
<v Speaker 3>those deepest, you know, thoughts and feelings that you're having

0:47:53.440 --> 0:47:58.160
<v Speaker 3>and that you know, that uncertainty of you know, what's

0:47:58.200 --> 0:48:00.920
<v Speaker 3>in front of you, and this many times where I

0:48:01.000 --> 0:48:03.080
<v Speaker 3>just don't know the answers and I'm like, I don't

0:48:03.120 --> 0:48:05.120
<v Speaker 3>know what it looks like like I you know, I

0:48:05.160 --> 0:48:08.600
<v Speaker 3>have to be honest about that. I don't know what

0:48:08.760 --> 0:48:11.960
<v Speaker 3>happens next, but I can tell you the practicalities around

0:48:11.960 --> 0:48:15.560
<v Speaker 3>these things. Or but you know, I don't know what

0:48:15.560 --> 0:48:18.040
<v Speaker 3>the grief is going to look like for us and

0:48:18.080 --> 0:48:22.640
<v Speaker 3>how we're going to navigate our life without Simon. And

0:48:22.680 --> 0:48:25.919
<v Speaker 3>he's in our lives, he's larger than life in our lives.

0:48:25.960 --> 0:48:32.239
<v Speaker 3>He's larger than life in many people's lives. So yeah,

0:48:32.280 --> 0:48:35.120
<v Speaker 3>I just I don't know that I've got good answer

0:48:35.120 --> 0:48:39.680
<v Speaker 3>for that, but just just do what you can, Like

0:48:39.760 --> 0:48:41.440
<v Speaker 3>I don't know, I'm just like the best you can

0:48:41.480 --> 0:48:43.400
<v Speaker 3>because sometimes you just can't do anything.

0:48:44.680 --> 0:48:48.480
<v Speaker 2>I think you've got a like a really good handle

0:48:48.520 --> 0:48:53.200
<v Speaker 2>on that part of things, because that was I don't

0:48:53.239 --> 0:48:56.640
<v Speaker 2>know what I expected. I guess when I get this

0:48:56.800 --> 0:49:00.480
<v Speaker 2>sense of how for other people you are the You're

0:49:00.520 --> 0:49:02.640
<v Speaker 2>the person that cares for other people, You're the person

0:49:02.680 --> 0:49:05.160
<v Speaker 2>that gets it done. So I felt like in the

0:49:05.200 --> 0:49:11.600
<v Speaker 2>middle of this incredibly intense tsunami as you described it,

0:49:11.640 --> 0:49:15.000
<v Speaker 2>of emotion trying to make decisions or have any clarity

0:49:15.080 --> 0:49:18.080
<v Speaker 2>about that would be a mess. But you've, like you

0:49:18.200 --> 0:49:22.480
<v Speaker 2>sound like you're finding as good a way as you can.

0:49:23.680 --> 0:49:26.640
<v Speaker 3>That's that's what we're doing, Just trying. For me, it's

0:49:26.719 --> 0:49:28.959
<v Speaker 3>just trying to deal with each day and each thing

0:49:29.080 --> 0:49:33.520
<v Speaker 3>that comes in, but just having some reality around. And

0:49:33.560 --> 0:49:39.000
<v Speaker 3>I think that it's really important for me that I'm

0:49:40.440 --> 0:49:48.480
<v Speaker 3>pecking in because sometimes I'm really not sure I'm in

0:49:48.520 --> 0:49:51.120
<v Speaker 3>the right space to be making decisions. And so I've

0:49:51.160 --> 0:49:57.040
<v Speaker 3>got a few key people that all ticking with as well,

0:49:57.080 --> 0:49:59.160
<v Speaker 3>like you just got I think there's like I'm really

0:49:59.200 --> 0:50:01.279
<v Speaker 3>feeling really crazy today and I'm just not sure what

0:50:01.320 --> 0:50:03.000
<v Speaker 3>to do on you know, and they'll remind me to

0:50:03.040 --> 0:50:04.920
<v Speaker 3>take some time, you know, when I feel like I

0:50:04.960 --> 0:50:06.600
<v Speaker 3>can't take the time. No, you don't have to make

0:50:06.640 --> 0:50:09.960
<v Speaker 3>that decision now, or yes, I do, you know. But

0:50:10.080 --> 0:50:13.120
<v Speaker 3>sometimes being able to check in with people because you know,

0:50:13.520 --> 0:50:17.000
<v Speaker 3>emotionally you just can't regulate in the same way. It's

0:50:17.040 --> 0:50:21.480
<v Speaker 3>really important to have a couple of key people to

0:50:21.520 --> 0:50:24.440
<v Speaker 3>be able to do that with. And I feel like

0:50:24.600 --> 0:50:29.040
<v Speaker 3>I've you know, I've leaned into that a lot as well,

0:50:29.520 --> 0:50:31.880
<v Speaker 3>and just making sure I've got the supports, you know,

0:50:33.400 --> 0:50:35.480
<v Speaker 3>you know, last year, I sort of reached out and

0:50:35.520 --> 0:50:39.240
<v Speaker 3>made sure that I had I've never seen a psychologist before,

0:50:40.239 --> 0:50:43.799
<v Speaker 3>probably should have long before now, but never have. But

0:50:43.920 --> 0:50:46.360
<v Speaker 3>I knew as we're you know, we were tapping the

0:50:46.440 --> 0:50:49.680
<v Speaker 3>kids in and making sure that with those wraparounds were

0:50:49.719 --> 0:50:52.439
<v Speaker 3>well in place, because it can take such a long

0:50:52.480 --> 0:50:56.680
<v Speaker 3>time to get those wraparounds for your young people or

0:50:56.719 --> 0:51:02.320
<v Speaker 3>anyone service light times hideously long. So I wanted to

0:51:02.320 --> 0:51:04.319
<v Speaker 3>make sure everybody was tapped in earlier. And once I

0:51:04.400 --> 0:51:08.920
<v Speaker 3>got all, you know, the kids all sorted and you know,

0:51:09.400 --> 0:51:16.040
<v Speaker 3>Simon's therapy and health needs were sort of in playing,

0:51:16.080 --> 0:51:18.719
<v Speaker 3>we had some structure around that. The very next thing

0:51:18.760 --> 0:51:21.160
<v Speaker 3>I did was make a call and book by myself

0:51:21.200 --> 0:51:24.840
<v Speaker 3>as psychologists to make sure that I had somebody outside

0:51:24.920 --> 0:51:28.560
<v Speaker 3>of my immediate friend group, because see, you know, and

0:51:28.600 --> 0:51:33.160
<v Speaker 3>I guess that sort of that mental kind of group,

0:51:33.239 --> 0:51:38.200
<v Speaker 3>the people that you lean into that was completely independent

0:51:38.400 --> 0:51:41.920
<v Speaker 3>to that, so that you know, there was somebody else

0:51:41.960 --> 0:51:45.000
<v Speaker 3>I could check in with as well and maybe say

0:51:45.040 --> 0:51:47.560
<v Speaker 3>the things that I can't always say when you know

0:51:47.600 --> 0:51:49.920
<v Speaker 3>you're in your roles and you're trying to support other

0:51:49.920 --> 0:51:57.759
<v Speaker 3>people and you're also navigating this incredible life changing experience

0:51:57.840 --> 0:52:02.800
<v Speaker 3>while you're supporting your life partner and their health needs,

0:52:04.880 --> 0:52:08.960
<v Speaker 3>you know, and the needs are just so intense. You know,

0:52:09.080 --> 0:52:13.360
<v Speaker 3>there's so much medication. You know, there's lots of supports,

0:52:13.400 --> 0:52:16.319
<v Speaker 3>there's lots of good days, there's an incredible amount of

0:52:16.320 --> 0:52:20.720
<v Speaker 3>bad days with pain they can't you know, huge sense

0:52:21.160 --> 0:52:24.280
<v Speaker 3>an overwhelming sense of helplessness across all of those things.

0:52:24.360 --> 0:52:28.000
<v Speaker 3>So being able to check in with somebody that's independent

0:52:28.040 --> 0:52:33.200
<v Speaker 3>and that you know has the skills and the professional

0:52:33.280 --> 0:52:37.880
<v Speaker 3>support for you is really important as well. So I

0:52:38.239 --> 0:52:40.759
<v Speaker 3>and again, that is a gift that time gave us.

0:52:41.160 --> 0:52:42.919
<v Speaker 3>It allowed us to be able to get all those

0:52:42.960 --> 0:52:47.200
<v Speaker 3>things in place. So yeah, so I guess you know

0:52:47.640 --> 0:52:50.320
<v Speaker 3>it sort of again speaks to why I'm torn sometimes

0:52:50.360 --> 0:52:53.759
<v Speaker 3>now about time is a gift, but it's also it's

0:52:53.800 --> 0:52:57.279
<v Speaker 3>also not so so it gave us the opportunity to

0:52:57.360 --> 0:52:59.719
<v Speaker 3>really unbat Simon and I by nature, and we're very

0:52:59.719 --> 0:53:03.800
<v Speaker 3>extra only practical boy scout type material. Were your people

0:53:03.800 --> 0:53:07.800
<v Speaker 3>in this in a time of emergency. We've got the list,

0:53:07.920 --> 0:53:11.960
<v Speaker 3>we'll get it all sorted. We do very different roles,

0:53:12.000 --> 0:53:14.560
<v Speaker 3>but you know, we kind of dive head on into

0:53:14.560 --> 0:53:18.160
<v Speaker 3>those things and that's where we shine. So when it

0:53:18.239 --> 0:53:22.080
<v Speaker 3>was then us, that was you know, not only confronting

0:53:22.160 --> 0:53:26.520
<v Speaker 3>and heartbreaking. We had to really I can remember one

0:53:26.600 --> 0:53:29.440
<v Speaker 3>night we sat and we had a bottle of wine

0:53:30.160 --> 0:53:32.000
<v Speaker 3>and just started to really look at what are the

0:53:32.120 --> 0:53:34.640
<v Speaker 3>what are the practicalities, what are the what are the

0:53:34.680 --> 0:53:38.440
<v Speaker 3>things that we can control here? And immediately it was

0:53:38.480 --> 0:53:42.439
<v Speaker 3>things like rewriting our wheels. You know, we hadn't done

0:53:42.440 --> 0:53:44.439
<v Speaker 3>that since the kids were small, you know, those set

0:53:44.480 --> 0:53:47.680
<v Speaker 3>and forget things like, you know, checking on your super.

0:53:47.920 --> 0:53:49.719
<v Speaker 3>I'm only saying this because this is all stuff I've

0:53:49.760 --> 0:53:53.440
<v Speaker 3>learned along the way. And when we checked the super,

0:53:53.640 --> 0:53:56.360
<v Speaker 3>you know all those years ago, we put each other's

0:53:56.440 --> 0:54:00.640
<v Speaker 3>names down, but of course that expires in every three years.

0:54:00.680 --> 0:54:04.600
<v Speaker 3>I didn't know that. So I've learned lots. So we started, yeah,

0:54:05.000 --> 0:54:09.120
<v Speaker 3>check check that you're binding nomination. I think it is.

0:54:09.360 --> 0:54:11.160
<v Speaker 3>I'm not quite sure what the wording is, but it

0:54:11.200 --> 0:54:14.920
<v Speaker 3>needs to be done every three years otherwise it you know,

0:54:15.080 --> 0:54:17.200
<v Speaker 3>just falls into your estate and then if you don't

0:54:17.239 --> 0:54:21.200
<v Speaker 3>have a will, then it goes into probate. So we

0:54:21.320 --> 0:54:23.239
<v Speaker 3>started to make a list. We made a list of

0:54:23.440 --> 0:54:25.520
<v Speaker 3>what are the practicalities here? These are the things that

0:54:25.560 --> 0:54:28.160
<v Speaker 3>we can control, and they were sort of the practicalities.

0:54:28.200 --> 0:54:32.239
<v Speaker 3>We know, book make sure the kids have got therapists.

0:54:32.280 --> 0:54:34.400
<v Speaker 3>Now we need to tap them in. How to you know,

0:54:34.440 --> 0:54:37.440
<v Speaker 3>speak to the schools. Have we done our wills? We

0:54:37.440 --> 0:54:40.840
<v Speaker 3>really did those, checked our soupers, you know, life insurance,

0:54:40.920 --> 0:54:46.400
<v Speaker 3>checking on those. The gift of time, you know, we

0:54:46.840 --> 0:54:49.759
<v Speaker 3>could do the practicalities and that has sort of kind

0:54:49.840 --> 0:54:55.000
<v Speaker 3>of helped us support the kids through all of this

0:54:55.160 --> 0:54:59.960
<v Speaker 3>as well, and kind of it's kind of kept me

0:55:00.120 --> 0:55:02.840
<v Speaker 3>a little bit focused because I can come back to things,

0:55:03.200 --> 0:55:04.879
<v Speaker 3>if that makes sense, and go all right, now we've

0:55:04.960 --> 0:55:06.919
<v Speaker 3>checked on that. You know, I don't feel like it's

0:55:06.960 --> 0:55:10.239
<v Speaker 3>completely out of control because the things I can work

0:55:10.280 --> 0:55:14.680
<v Speaker 3>on I've you know, we've done and that that's meant

0:55:14.719 --> 0:55:17.799
<v Speaker 3>now that we you know, we have this time, but

0:55:17.880 --> 0:55:20.440
<v Speaker 3>we can just concentrate on that and we can work

0:55:20.480 --> 0:55:23.319
<v Speaker 3>on the pieces around the legislation and we you know,

0:55:23.400 --> 0:55:26.600
<v Speaker 3>like I'm not. Time gave us the gift of sorting

0:55:26.640 --> 0:55:29.640
<v Speaker 3>out those practicalities, and it has been it did give

0:55:29.719 --> 0:55:32.680
<v Speaker 3>us a bit of a sense of control back as well,

0:55:32.800 --> 0:55:34.840
<v Speaker 3>which I did say, sorry.

0:55:34.520 --> 0:55:40.120
<v Speaker 2>Yeah no, but yeah, it's good to like that's it's incredible.

0:55:40.600 --> 0:55:44.960
<v Speaker 2>So how can I will have a link to the

0:55:45.000 --> 0:55:48.719
<v Speaker 2>petition to get another setting that you has changed that legislation.

0:55:48.920 --> 0:55:52.080
<v Speaker 2>Is there anything else that myself and the listeners of

0:55:52.120 --> 0:55:53.040
<v Speaker 2>the show can do?

0:55:54.080 --> 0:55:58.160
<v Speaker 3>So what there is? So sign the petition, friends and family,

0:55:58.400 --> 0:56:02.240
<v Speaker 3>encourage them to sign it. Become informed, find out about

0:56:02.280 --> 0:56:05.520
<v Speaker 3>presumptive legislation and who is missing in the gaps, because

0:56:05.600 --> 0:56:08.720
<v Speaker 3>chances are you will have a friend or a family

0:56:08.760 --> 0:56:13.080
<v Speaker 3>member that is in the gap. And we know that

0:56:14.560 --> 0:56:14.920
<v Speaker 3>we know.

0:56:16.640 --> 0:56:24.879
<v Speaker 4>These, you know, really dreadful experiences that we have through

0:56:24.920 --> 0:56:30.879
<v Speaker 4>fire and emergencies are becoming longer and more intense, and

0:56:31.680 --> 0:56:33.879
<v Speaker 4>I think we, you know, we as a collective need

0:56:33.920 --> 0:56:38.520
<v Speaker 4>to understand who needs our support because more broadly, and

0:56:38.560 --> 0:56:42.799
<v Speaker 4>I'm only speaking about CFA staff today because that's where

0:56:42.800 --> 0:56:46.080
<v Speaker 4>my links are, but you know, there's a lot of emergency.

0:56:45.520 --> 0:56:50.600
<v Speaker 3>Responders that probably won't be covered. I you know, can

0:56:50.640 --> 0:56:54.600
<v Speaker 3>focus on certain things, but you know, raise awareness, speak

0:56:54.640 --> 0:56:57.920
<v Speaker 3>to your local member of parliament. You know, I know

0:56:59.480 --> 0:57:03.080
<v Speaker 3>I'm quite politically active and quiet. You know, I have

0:57:03.120 --> 0:57:06.439
<v Speaker 3>an advocate voice and I use that quite a lot

0:57:06.520 --> 0:57:09.400
<v Speaker 3>in my roles and I know for some people it

0:57:09.440 --> 0:57:12.040
<v Speaker 3>can be really difficult to reach out to your members

0:57:12.040 --> 0:57:17.560
<v Speaker 3>of parliament around issues that matter and how to frame

0:57:17.640 --> 0:57:20.640
<v Speaker 3>that and what to do. But these are people too,

0:57:21.720 --> 0:57:26.800
<v Speaker 3>and honestly reaching out to them and just you know,

0:57:26.880 --> 0:57:29.840
<v Speaker 3>trying to make a time to have that discussion or

0:57:30.040 --> 0:57:33.440
<v Speaker 3>send an email about it, it puts it on their agenda.

0:57:33.920 --> 0:57:35.920
<v Speaker 3>You know, you get enough emails about something or enough

0:57:35.920 --> 0:57:38.360
<v Speaker 3>phone calls, you know, one or two, you might go, oh, no,

0:57:38.480 --> 0:57:40.560
<v Speaker 3>that was a thing. You get twenty you go, there's

0:57:40.600 --> 0:57:42.880
<v Speaker 3>a real thing around that. I need to become informed.

0:57:43.720 --> 0:57:46.280
<v Speaker 3>And that's your way of helping them become informed about

0:57:46.640 --> 0:57:50.160
<v Speaker 3>the amendments that are required. That's how legislation is changed,

0:57:50.200 --> 0:57:52.440
<v Speaker 3>that's how it's moved. That's how we get the society

0:57:52.480 --> 0:57:57.560
<v Speaker 3>that we have today. Is when issues of importance matter

0:57:57.640 --> 0:58:01.000
<v Speaker 3>to our community, we can make that change. We can

0:58:01.160 --> 0:58:05.440
<v Speaker 3>actually navigate that pathway to ensure that people are included

0:58:05.480 --> 0:58:08.520
<v Speaker 3>that should be included in this legislation. We have to

0:58:08.560 --> 0:58:10.720
<v Speaker 3>be informed to know that there's a gap and what

0:58:10.760 --> 0:58:13.240
<v Speaker 3>the gaps are, and we have the power through our

0:58:13.320 --> 0:58:16.920
<v Speaker 3>voice to actually raise the awareness and speak to our

0:58:16.960 --> 0:58:20.320
<v Speaker 3>local members of parliament about it and encourage them to

0:58:20.360 --> 0:58:24.280
<v Speaker 3>become advocates surrounded as well. They're might take homes. You

0:58:24.320 --> 0:58:25.840
<v Speaker 3>can do anyone can do that.

0:58:25.840 --> 0:58:29.040
<v Speaker 2>You will said like that, you're good at this, You're

0:58:29.080 --> 0:58:31.520
<v Speaker 2>good at that informing.

0:58:31.960 --> 0:58:36.080
<v Speaker 3>Just like I'm really passionate about it. And now you know,

0:58:36.160 --> 0:58:39.720
<v Speaker 3>I've got a host of issues along the way that

0:58:39.800 --> 0:58:44.680
<v Speaker 3>I've championed. I've worked on it, and we've bought change.

0:58:44.960 --> 0:58:46.920
<v Speaker 3>And it might be a change, just a small change

0:58:46.920 --> 0:58:49.600
<v Speaker 3>in our patch, and it could be a bigger change

0:58:49.600 --> 0:58:52.920
<v Speaker 3>and a bigger platform of influence. But the important thing

0:58:52.960 --> 0:58:56.000
<v Speaker 3>is to understand is as everyday people, we do have

0:58:56.040 --> 0:59:00.959
<v Speaker 3>influence and becoming informed about something and it doesn't even

0:59:01.040 --> 0:59:04.440
<v Speaker 3>just have to be about this, but you know, by nature,

0:59:05.400 --> 0:59:07.680
<v Speaker 3>when we become informed and we know there's you know,

0:59:07.720 --> 0:59:10.120
<v Speaker 3>we recognize there could be a better option here, or

0:59:10.120 --> 0:59:13.960
<v Speaker 3>a better way forward, or a more inclusive way, then

0:59:14.240 --> 0:59:16.280
<v Speaker 3>you know, we want that for our community. We want

0:59:16.320 --> 0:59:18.600
<v Speaker 3>that for our neighbors and our family and our friends

0:59:18.680 --> 0:59:21.440
<v Speaker 3>and our broader society. And I just think as a collective,

0:59:21.520 --> 0:59:24.600
<v Speaker 3>the more we focus on improvements that we can make,

0:59:24.840 --> 0:59:28.240
<v Speaker 3>how we collectively do that, how we respectfully do that,

0:59:28.240 --> 0:59:30.400
<v Speaker 3>Because there's always going to be a difference of opinion

0:59:30.760 --> 0:59:34.240
<v Speaker 3>and agenda and that's okay because that you know, those

0:59:35.760 --> 0:59:39.480
<v Speaker 3>diversified voices is really important that but that makes up

0:59:39.480 --> 0:59:42.480
<v Speaker 3>the fabric of community. But at the end of the day,

0:59:42.840 --> 0:59:46.080
<v Speaker 3>it's a focus on the shared goal. I think that

0:59:46.160 --> 0:59:51.120
<v Speaker 3>gets us over the line. So, you know, having being

0:59:51.120 --> 0:59:55.480
<v Speaker 3>able to influence using your voice, coming informed means that

0:59:55.560 --> 0:59:58.440
<v Speaker 3>eventually you will be on that shared goal with somebody

0:59:58.640 --> 1:00:00.960
<v Speaker 3>and we you know, no one' you carry it alone.

1:00:01.040 --> 1:00:02.840
<v Speaker 3>We can't actually do it alone. We need to do

1:00:02.880 --> 1:00:06.760
<v Speaker 3>it as a collective. So this is super important to me.

1:00:07.200 --> 1:00:11.360
<v Speaker 3>Now I almost feel ashamed that I wasn't aware of

1:00:11.400 --> 1:00:13.920
<v Speaker 3>it in the context that I am now, you know,

1:00:14.440 --> 1:00:18.120
<v Speaker 3>three years ago I just wasn't and that's about life

1:00:18.160 --> 1:00:20.640
<v Speaker 3>experience and what comes your way and what doesn't as well.

1:00:21.400 --> 1:00:25.640
<v Speaker 3>But now that I am, I'm extremely committed to getting

1:00:25.640 --> 1:00:29.240
<v Speaker 3>this change. So I'm so grateful to Tiffany for reaching

1:00:29.240 --> 1:00:32.520
<v Speaker 3>out and allowing me to have this conversation with you.

1:00:33.120 --> 1:00:36.000
<v Speaker 3>And I would really encourage your readers to sorry your

1:00:36.000 --> 1:00:40.480
<v Speaker 3>listeners to actually find out more, become informed and advocate

1:00:40.560 --> 1:00:41.760
<v Speaker 3>to their local MP.

1:00:43.600 --> 1:00:45.840
<v Speaker 2>Thank you so much. Thank you for being brave and

1:00:45.960 --> 1:00:50.840
<v Speaker 2>vulnerable and real and I'm understanding you all the love

1:00:50.920 --> 1:00:54.680
<v Speaker 2>and whatever you need over the coming weeks, months and

1:00:55.440 --> 1:00:56.040
<v Speaker 2>what's ahead.

1:00:56.960 --> 1:00:58.800
<v Speaker 3>Thank you, and I'd love to be able to touch

1:00:58.840 --> 1:01:01.960
<v Speaker 3>base with you again, hopefully to tell you that it's changed.

1:01:02.760 --> 1:01:05.880
<v Speaker 2>Yes, so I just got toose bumps. I'm like, let's

1:01:05.880 --> 1:01:07.960
<v Speaker 2>make okay, listeners, Let's make sure that I get that

1:01:08.120 --> 1:01:08.520
<v Speaker 2>all real.

1:01:09.560 --> 1:01:11.480
<v Speaker 3>Yeah. I hope so so.

1:01:11.960 --> 1:01:16.480
<v Speaker 2>But thank you so much, Thanks Tracy, Thanks everyone.

1:01:17.760 --> 1:01:34.800
<v Speaker 1>She said, it's now never. I got fighting in my blood.