WEBVTT - Jamila Rizvi on the diagnosis that turned her world upside down

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<v Speaker 1>This episode of Headgame was recorded on Gadigal Lands.

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<v Speaker 2>August twenty seventeen. And Jamilla Risve is walking into her

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<v Speaker 2>GP's office. She thinks she might be pregnant. Being just

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<v Speaker 2>two years since she and her husband welcome their son,

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<v Speaker 2>she is a little concerned about managing two children under

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<v Speaker 2>the age of three. Her GP orders the usual tests,

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<v Speaker 2>an ultrasound and bloods, With results inconclusive. She's sent to

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<v Speaker 2>specialists for a closer examination. Instead of finding a baby,

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<v Speaker 2>doctors discover a rare tumor in Jimilla's brain. The diagnosis

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<v Speaker 2>triggers a harrowing treatment plan, two rounds of surgery and

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<v Speaker 2>thirty six rounds of radiation, the effects of which she

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<v Speaker 2>still battles to this day. I'm at Middleton and this

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<v Speaker 2>is Headgame today, Australian author and journalist Jamilla Risve on

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<v Speaker 2>fighting a one in a million brain tumor. Now, Jamila,

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<v Speaker 2>you wear many hats, don't you. Yeah?

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<v Speaker 3>I do.

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<v Speaker 1>Actually, I look really good in hats. That's one of Like,

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<v Speaker 1>that's one of my that's my I don't have one today,

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<v Speaker 1>but like it's my humble brag. I'm someone when you

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<v Speaker 1>get told to put on a hat I look good. Yeah,

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<v Speaker 1>I think I'm someone who, uh most people when they

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<v Speaker 1>describe me when I've left jobs and stuff like that,

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<v Speaker 1>enthusiastic tends to be the word that gets thrown around

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<v Speaker 1>the most.

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<v Speaker 2>I can feel that. I can feel that energy.

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<v Speaker 1>Or any But when you're enthusiastic, you try. You tend

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<v Speaker 1>to want to do all the things right. And I'm

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<v Speaker 1>someone who has always sort of felt like there's not

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<v Speaker 1>enough time to do all the things I'd like to do,

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<v Speaker 1>so try and wear as many hats as i can.

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<v Speaker 2>Yes, I've seen and journalists as well. I'm sort of

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<v Speaker 2>reading through the list and I'm loving it because I

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<v Speaker 2>completely relate to that. You know, jumping from from hat

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<v Speaker 2>to hat, you know, people to people, different environments, different locations,

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<v Speaker 2>surrounding yourself with different people, You're always going to learn

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<v Speaker 2>and grow and become a better version of who you are.

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<v Speaker 2>Take me back though, to your Mama Mia days, Yeah,

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<v Speaker 2>because that's ultimately where it's sort of not all started,

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<v Speaker 2>but that's where you know, you sort of were thrust

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<v Speaker 2>into into the limelight as such, and your messaging and

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<v Speaker 2>then you know your values behind what Mama Mia encapsulated

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<v Speaker 2>taught me through that. Yeah.

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<v Speaker 1>Sure, So I'd been working in politics, so I'd very

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<v Speaker 1>much been around media and around that spotlight you talk about,

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<v Speaker 1>but very much not in it.

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<v Speaker 2>I was.

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<v Speaker 1>I was behind the scenes helping prime ministers and ministers

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<v Speaker 1>get their message across. But the worst thing in that

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<v Speaker 1>job you could possibly do was get caught on camera.

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<v Speaker 1>Your job was to never be, never be seen.

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<v Speaker 2>Oh so that's what you were. You were you were

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<v Speaker 2>ultimately were you scripting stuff for politicians.

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<v Speaker 3>And media advisor and buchw of different things.

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<v Speaker 2>I love that.

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<v Speaker 1>And then I could see that the government wasn't likely

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<v Speaker 1>to win, and to be honest, I was really pragmatic.

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<v Speaker 1>I could see a lot of people with the same

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<v Speaker 1>skills as me. We're about to be unemployed at the

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<v Speaker 1>same time, and I was looking ahead and thinking.

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<v Speaker 3>Well what would I do?

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<v Speaker 1>And Lisa Wilkinson tweeted the job at Mamma Mia and

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<v Speaker 1>I wouldn't have seen it otherwise. I clicked on it

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<v Speaker 1>and I applied and I got the job and moved

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<v Speaker 1>to Sydney and it all happened in about two weeks.

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<v Speaker 3>So it was a real whirlwind.

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<v Speaker 2>So you went some Ultimately, you went from the political

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<v Speaker 2>realm into what realm is Mama Mia, because it's quite

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<v Speaker 2>quite a jump from one jib bowl to another.

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<v Speaker 1>And actually I think what Mamma Mia is today is

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<v Speaker 1>quite different to what it was in twenty twelve. So

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<v Speaker 1>in twenty twelve, Mia Friedman had turned her blog into

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<v Speaker 1>a website and she had a company that was running

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<v Speaker 1>this women's website and publishing every day and they probably

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<v Speaker 1>had three, maybe three writers I think working there. The

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<v Speaker 1>whole company was about a dozen people. We were working

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<v Speaker 1>out of this tiny little office in Lime Street, down

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<v Speaker 1>by the wharf in Sydney. We didn't have a meeting room,

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<v Speaker 1>so we used to have all our meetings out on

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<v Speaker 1>the balcony because there was a table out there that

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<v Speaker 1>was a bit bigger.

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<v Speaker 2>Good old startups.

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<v Speaker 1>It was a proper startup. It was a proper startup.

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<v Speaker 1>But it really suited me actually because I think to

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<v Speaker 1>thrive in politics, you've got to be happy with chaos

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<v Speaker 1>and you've got to be happy with making what you

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<v Speaker 1>can out of what you've got, and a startup isn't

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<v Speaker 1>dissimilar in that regard. You've just got to hit the

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<v Speaker 1>ground running. There's no time to say, oh, I don't

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<v Speaker 1>want to do that. Job, or I think I'd be

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<v Speaker 1>better suited to this. You just like you just start right,

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<v Speaker 1>you roll your sleeves up, and you do whatever you're

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<v Speaker 1>asked to do. And I loved working there, and I

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<v Speaker 1>worked there for almost four years. And during those four

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<v Speaker 1>years we went from twelve to one hundred and twenty staff,

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<v Speaker 1>so it was a massive expansion.

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<v Speaker 2>Wow, so you're going along and I take it you're

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<v Speaker 2>working all hours under the sun here right. What was

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<v Speaker 2>the messaging behind Mama Mia? How did that look on

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<v Speaker 2>a day to day basis going into work.

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<v Speaker 1>Yeah, it was incredibly empowering to work there. I've got

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<v Speaker 1>to say I had a great time. I loved working

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<v Speaker 1>with a lot of women because in politics, certainly when

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<v Speaker 1>I was there, so we didn't work with a lot

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<v Speaker 1>of women. At the time, it was almost all women,

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<v Speaker 1>so it kind of gone. It was a real shift

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<v Speaker 1>from vast majority men who I was working with the

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<v Speaker 1>politics to vast majority women at Mama Mea. It certainly

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<v Speaker 1>was back then a website with a really strong feminist message,

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<v Speaker 1>and I enjoyed that. I enjoyed putting a gender lens

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<v Speaker 1>on whatever happened to be going on that day, whether

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<v Speaker 1>it was celebrity or current affairs or politics or sport, whatever.

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<v Speaker 3>It happened to be.

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<v Speaker 1>And we didn't have a lot of boundaries because it

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<v Speaker 1>was new and it was a startup. There weren't many

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<v Speaker 1>processes in place, not many systems that could be tricky

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<v Speaker 1>at times. But it also gave us enormous freedom in

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<v Speaker 1>that if we felt like launching something new or doing

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<v Speaker 1>something differently, like, we didn't have to ask anyone, We'd

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<v Speaker 1>just do it.

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<v Speaker 2>I find that fascinating. And also, like you said, there's

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<v Speaker 2>no boundaries to it. You can you can ultimately say

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<v Speaker 2>and try and get away with what you can right

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<v Speaker 2>in a pure way. And I found it really interesting

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<v Speaker 2>that you said went from a sort of male dominant

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<v Speaker 2>political realm to being, you know, amongst women and free.

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<v Speaker 2>Did it Do you felt like that give you a

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<v Speaker 2>sense of freedom, a sense of liberation, and a sense

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<v Speaker 2>of power.

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<v Speaker 3>Yeah, maybe a little bit.

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<v Speaker 2>I think.

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<v Speaker 1>I think I was confused at the start because I

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<v Speaker 1>started working in politics at twenty one, and so I

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<v Speaker 1>hadn't really had another grown up job in my head,

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<v Speaker 1>and so the first thing you do is what you

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<v Speaker 1>think is normal, and so working in politics, i'd been

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<v Speaker 1>there four or five years, and that was how I

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<v Speaker 1>thought the world worked, I suppose, and that's what I

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<v Speaker 1>was used to. And I was really used to quite

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<v Speaker 1>a masculine environment without recognizing it as that. Yeah, I

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<v Speaker 1>was used to an environment where people were extremely confident.

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<v Speaker 1>There was a lot of bravado and you never admitted

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<v Speaker 1>you were wrong.

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<v Speaker 3>And I walked into this.

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<v Speaker 1>This all being politics everywhere, all these young women every day,

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<v Speaker 1>like sorry was the most commonly used word in the office.

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<v Speaker 3>It was like, Oh, I'm so sorry, do you mind

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<v Speaker 3>if I just go to the bathroom? It was like,

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<v Speaker 3>you don't to be sorry for going to please, please go?

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<v Speaker 1>But there was always there was so much apology, and

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<v Speaker 1>I think it really did start to cement a lot

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<v Speaker 1>of my views around what makes people feel confident and

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<v Speaker 1>why it is that women are made to feel not

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<v Speaker 1>so confident, what it is about society that makes women

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<v Speaker 1>not feel confident, and a lot of that is about inequality.

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<v Speaker 1>It does strip your confidence away a lot of the time.

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<v Speaker 1>And there are people who don't fall victim to that, absolutely,

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<v Speaker 1>but for a lot of women, I think the voice

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<v Speaker 1>in their head has been put there by living in

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<v Speaker 1>a pretty gendered society, and one of the things I

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<v Speaker 1>did love about that Mum and me are setting, is

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<v Speaker 1>I suspect similar to an all girls' school, right, was

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<v Speaker 1>that it did give women a place to thrive without

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<v Speaker 1>feeling like they were being pushed out or muscled out

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<v Speaker 1>because it was an all female environment.

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<v Speaker 2>And how important is that is, you know, to give

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<v Speaker 2>people the opportunity to have an all female environment so

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<v Speaker 2>they can gain their confidence, be around like minded people,

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<v Speaker 2>be around you know that home, shall we say, because

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<v Speaker 2>it is really important because when something goes wrong, you

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<v Speaker 2>go back to your own people. You know, you go

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<v Speaker 2>back to your own circle, You go back to your

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<v Speaker 2>own environment, You go back to somewhere where you feel

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<v Speaker 2>comfortable and confident.

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<v Speaker 1>Yeah, I do think that, you know, at a personal level,

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<v Speaker 1>I do think there is something extraordinary about being in

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<v Speaker 1>a room full of women and I get a lot

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<v Speaker 1>of enjoyment and energy from that. Having said that, I

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<v Speaker 1>think my preference would be that we had less gender

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<v Speaker 1>segregated workplaces.

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<v Speaker 3>And interestingly, Australia is one of the worst at this.

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<v Speaker 1>If you look at sort of other OECD countries and stuff,

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<v Speaker 1>Australian workplaces are more gender segregated, which means most of

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<v Speaker 1>us work in a workplace that is dominated by men

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<v Speaker 1>or dominated by women. We don't have as many industries

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<v Speaker 1>professions where it's kind of even and sort of if

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<v Speaker 1>you think about it off the top of your head,

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<v Speaker 1>it tends to be true in your own life. You know,

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<v Speaker 1>my kid goes to a school where he hasn't had

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<v Speaker 1>a male teacher. Yet, there's not many male primary school

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<v Speaker 1>teachers other than the principal. Sometimes you don't get as

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<v Speaker 1>many men who are nurses. You don't get as many

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<v Speaker 1>men who are hairdressers. In the same way, you don't

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<v Speaker 1>get as many women who are electricians, or as many

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<v Speaker 1>women who work in finance. We have quite a gender

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<v Speaker 1>segregative workforce, and I don't think that's a good thing.

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<v Speaker 1>I think that betrays a whole lot of inequalities in

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<v Speaker 1>pay and things like that. But also, the best decisions

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<v Speaker 1>are made when you've got a group of people around

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<v Speaker 1>the table with very different experiences and backgrounds. It avoids

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<v Speaker 1>group think. It means that you can challenge one another.

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<v Speaker 1>Usually means you're representative of whoever you're trying to serve

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<v Speaker 1>or sell to, etc. So I'm kind of I've worked

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<v Speaker 1>in these gender segregated workplaces but actually I'd like to

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<v Speaker 1>see on the whole US move to a place where

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<v Speaker 1>it's more usual to go to work and have a

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<v Speaker 1>mix of people.

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<v Speaker 2>Love that. And so you go from this political career

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<v Speaker 2>to jumping in into the limelight, I suppose because you

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<v Speaker 2>went from behind the scenes, people are starting to know

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<v Speaker 2>your name, starting to recognize you, You start to build

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<v Speaker 2>a profile in the limelight. How did you manage that

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<v Speaker 2>and how did that feel when you were subconsciously doing

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<v Speaker 2>it without really realizing that you were right?

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<v Speaker 1>Yeah, look, I think you felt really good. I'm a

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<v Speaker 1>bit of a show off, and you know, I was

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<v Speaker 1>a kid who liked being in the school plays and

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<v Speaker 1>stuff like.

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<v Speaker 3>I quite enjoyed it.

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<v Speaker 1>And also, in politics, being part of a political party

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<v Speaker 1>or a government means that your opinion sort of has

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<v Speaker 1>to fall in step with the government, right, you have

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<v Speaker 1>to parrot the lines of the government, even if you

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<v Speaker 1>personally disagree. And so I found there was a lot

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<v Speaker 1>of freedom in being able to have my own opinion publicly,

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<v Speaker 1>and so I really, I think reveled in it for

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<v Speaker 1>a while. But I did find that as a writer,

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<v Speaker 1>the more I felt like people knew who I was,

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<v Speaker 1>the less well I wrote because I found that I

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<v Speaker 1>started to write scared.

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<v Speaker 2>I would be writing interesting, really interesting, and.

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<v Speaker 1>I'd be so worried about who might read it and

0:10:56.400 --> 0:10:59.120
<v Speaker 1>who might hate it, and if I get criticized, and

0:10:59.160 --> 0:11:00.839
<v Speaker 1>I think, I certainly.

0:11:00.600 --> 0:11:02.040
<v Speaker 3>I'm interested to know what it was like for you.

0:11:02.440 --> 0:11:05.959
<v Speaker 1>I found an effect of my work for the worse

0:11:06.880 --> 0:11:09.400
<v Speaker 1>because I was I'd sort of write something really boring

0:11:09.679 --> 0:11:11.720
<v Speaker 1>because I'd sit down to write an opinion I had,

0:11:12.160 --> 0:11:14.560
<v Speaker 1>and then I'd almost pull back a little bit here

0:11:14.640 --> 0:11:17.000
<v Speaker 1>because I didn't want to upset anyone. There, Like a

0:11:17.000 --> 0:11:18.640
<v Speaker 1>little bit here, and you pull it right back till

0:11:18.679 --> 0:11:20.880
<v Speaker 1>it was just boring. It was a really vanilla.

0:11:21.120 --> 0:11:24.480
<v Speaker 2>There's no substance in it. Yeah, there's nothing in there, right.

0:11:24.800 --> 0:11:27.160
<v Speaker 1>And it did take me, I think, a good few

0:11:27.280 --> 0:11:31.040
<v Speaker 1>years to genuinely be comfortable with the fact that there

0:11:31.080 --> 0:11:33.160
<v Speaker 1>were always going to be people out there who disagreed

0:11:33.200 --> 0:11:34.760
<v Speaker 1>with me, and there were always going to.

0:11:34.679 --> 0:11:35.960
<v Speaker 3>Be people out there who didn't like me.

0:11:36.679 --> 0:11:41.160
<v Speaker 1>And I also think I kind of got there by

0:11:41.200 --> 0:11:44.040
<v Speaker 1>working with a team and watching younger team members come

0:11:44.080 --> 0:11:46.000
<v Speaker 1>through and go through the same thing and sort of

0:11:46.040 --> 0:11:50.000
<v Speaker 1>supporting them. I think it was almost like I had

0:11:50.040 --> 0:11:52.280
<v Speaker 1>to do the teaching to start believing myself.

0:11:52.559 --> 0:11:55.040
<v Speaker 2>Yeah, yeah, of course. And how important is it to

0:11:55.080 --> 0:11:58.160
<v Speaker 2>stay true to yourself ultimately through writing.

0:11:58.080 --> 0:12:02.080
<v Speaker 1>Yeah, enormously important. But I also think what you can't

0:12:02.160 --> 0:12:05.160
<v Speaker 1>do is give in to the idea that criticism doesn't matter.

0:12:05.360 --> 0:12:07.440
<v Speaker 1>Because criticism does matter, and you should be open to

0:12:07.440 --> 0:12:10.880
<v Speaker 1>taking criticism. But a nameless, faceless person on the internet

0:12:11.040 --> 0:12:13.520
<v Speaker 1>is not the person to take your critique from.

0:12:13.600 --> 0:12:13.800
<v Speaker 3>Right.

0:12:14.760 --> 0:12:16.400
<v Speaker 1>One of the things that I found really helpful and

0:12:16.480 --> 0:12:18.320
<v Speaker 1>that I used to try and make all the team

0:12:18.360 --> 0:12:21.400
<v Speaker 1>members do back in the day was to sit down

0:12:21.559 --> 0:12:24.400
<v Speaker 1>and assemble a group of people in your head, or

0:12:24.520 --> 0:12:26.440
<v Speaker 1>cut their pictures out of the newspaper, whatever you wanted

0:12:26.480 --> 0:12:26.640
<v Speaker 1>to do.

0:12:26.760 --> 0:12:28.520
<v Speaker 3>It could be a mix of people.

0:12:28.240 --> 0:12:32.840
<v Speaker 1>You knew, tro darts of them, and a mix of

0:12:32.880 --> 0:12:35.280
<v Speaker 1>people you didn't whose opinion you cared about, you know.

0:12:35.360 --> 0:12:36.920
<v Speaker 1>For me, it was I remember saying, like, I care

0:12:36.920 --> 0:12:40.000
<v Speaker 1>about my dad's opinion on my writing. I care about

0:12:41.000 --> 0:12:43.280
<v Speaker 1>I was very close to my former boss in politics,

0:12:43.400 --> 0:12:45.679
<v Speaker 1>Kate Elis. I cared about her opinion. I remember think

0:12:45.800 --> 0:12:48.560
<v Speaker 1>I remember saying, I think I care about Oprah's opinion.

0:12:48.760 --> 0:12:50.520
<v Speaker 1>You know, it was a mixture of people I knew

0:12:50.520 --> 0:12:53.240
<v Speaker 1>and didn't know, And so when I did get criticized,

0:12:53.600 --> 0:12:57.240
<v Speaker 1>I would, sometimes practically or sometimes just in my head,

0:12:57.760 --> 0:13:01.320
<v Speaker 1>run what i'd written or what i'd see by those people,

0:13:01.480 --> 0:13:03.800
<v Speaker 1>and I go, what would they say?

0:13:03.880 --> 0:13:05.679
<v Speaker 3>What would they think? And sometimes I call them and

0:13:05.720 --> 0:13:06.200
<v Speaker 3>find out.

0:13:07.240 --> 0:13:09.160
<v Speaker 1>And what I tried to do is narrow it down

0:13:09.200 --> 0:13:12.480
<v Speaker 1>and say, absolutely, I am up for criticism because I

0:13:12.520 --> 0:13:14.760
<v Speaker 1>can get it wrong sometimes, I can be off base sometimes,

0:13:16.200 --> 0:13:18.680
<v Speaker 1>but I'm not just taking it from everyone. I'm going

0:13:18.760 --> 0:13:20.280
<v Speaker 1>to choose a few people who I care about and

0:13:20.280 --> 0:13:22.720
<v Speaker 1>who I respect, and I'm going to think about what

0:13:22.760 --> 0:13:24.679
<v Speaker 1>they would say. And that sort of kept me honest

0:13:24.720 --> 0:13:27.160
<v Speaker 1>and made sure I was, I think, more nuanced and

0:13:27.240 --> 0:13:29.439
<v Speaker 1>careful in what I wrote and what I said publicly,

0:13:30.600 --> 0:13:32.920
<v Speaker 1>but meant that I didn't give in to the horrible

0:13:33.200 --> 0:13:34.160
<v Speaker 1>trolls on the internet.

0:13:42.360 --> 0:13:44.720
<v Speaker 2>While you're going for all of this, you've got family

0:13:44.760 --> 0:13:45.720
<v Speaker 2>in the background, right.

0:13:45.920 --> 0:13:47.200
<v Speaker 3>Well, sort of just at the start.

0:13:47.320 --> 0:13:49.760
<v Speaker 1>Actually, when I was working at MoMA me Or, I

0:13:49.800 --> 0:13:56.319
<v Speaker 1>met my husband, and yeah, we started a long distance relationship.

0:13:56.360 --> 0:13:59.839
<v Speaker 1>Originally he was in Melbourne, I was in Sydney, and

0:14:00.040 --> 0:14:01.480
<v Speaker 1>then yeah, I was working at my meal when I

0:14:01.480 --> 0:14:05.199
<v Speaker 1>felt pregnant as well, and we had our little boy.

0:14:05.040 --> 0:14:09.559
<v Speaker 2>After that, and did your work affect that relationship between

0:14:09.559 --> 0:14:12.000
<v Speaker 2>you and your husband or did you manage to find

0:14:12.040 --> 0:14:14.920
<v Speaker 2>a great balance and everything was work as a child

0:14:14.960 --> 0:14:18.800
<v Speaker 2>as well doing what you're doing. You're definitely double hatting there.

0:14:18.800 --> 0:14:20.000
<v Speaker 2>It's tough, right, oh for sure.

0:14:20.160 --> 0:14:22.120
<v Speaker 1>And you know, I think we had to figure that

0:14:22.160 --> 0:14:25.920
<v Speaker 1>out together in those early days, and I really thought

0:14:26.080 --> 0:14:27.960
<v Speaker 1>I'd just be able to go I was so naive.

0:14:28.120 --> 0:14:29.320
<v Speaker 1>I just thought I'd be able to go back to

0:14:29.320 --> 0:14:31.760
<v Speaker 1>work and work the way that I used to. I

0:14:31.760 --> 0:14:33.800
<v Speaker 1>think I was thinking of a baby like an accessory

0:14:33.880 --> 0:14:37.240
<v Speaker 1>rather than like I just really did not know what

0:14:37.280 --> 0:14:41.680
<v Speaker 1>I was getting myself into. And I had kids, like

0:14:41.880 --> 0:14:43.680
<v Speaker 1>I had my son much earlier than most of my mates,

0:14:44.000 --> 0:14:45.840
<v Speaker 1>and so I didn't really have a model of how

0:14:45.840 --> 0:14:47.920
<v Speaker 1>to do things, and so I didn't have a lot

0:14:47.960 --> 0:14:50.320
<v Speaker 1>of friends who had kids already, and I think as

0:14:50.320 --> 0:14:53.360
<v Speaker 1>a result, I just sort of was muddling along trying

0:14:53.360 --> 0:14:56.440
<v Speaker 1>to figure it out. But one of the things that

0:14:56.480 --> 0:14:59.560
<v Speaker 1>really helped for us, at least was that my husband

0:14:59.600 --> 0:15:02.400
<v Speaker 1>and I shared care pretty early, so we both went

0:15:02.480 --> 0:15:04.920
<v Speaker 1>part time when my son was about five months old.

0:15:04.960 --> 0:15:06.680
<v Speaker 1>I did the first five months and then from there,

0:15:07.080 --> 0:15:11.960
<v Speaker 1>we shared it together, and for me, that has been

0:15:12.040 --> 0:15:15.560
<v Speaker 1>the game changer in allowing both of us to have

0:15:15.640 --> 0:15:19.160
<v Speaker 1>careers that we love and also have really great relationships

0:15:19.160 --> 0:15:22.960
<v Speaker 1>with our son. And that's not an easy thing to

0:15:23.000 --> 0:15:24.760
<v Speaker 1>do because you've both got to want to do that.

0:15:25.120 --> 0:15:27.880
<v Speaker 1>It's got to be financially possible for you to do that,

0:15:28.440 --> 0:15:31.640
<v Speaker 1>and I know that's not easy for a lot of people,

0:15:31.680 --> 0:15:33.840
<v Speaker 1>but I do think in a partnership, if you can

0:15:33.880 --> 0:15:37.000
<v Speaker 1>find a way early to share the care, it.

0:15:36.920 --> 0:15:38.040
<v Speaker 3>Means no one's the expert.

0:15:38.640 --> 0:15:42.960
<v Speaker 1>Because I think the danger for mums, especially if they're

0:15:43.000 --> 0:15:46.240
<v Speaker 1>in a relationship with a man, is that you have

0:15:46.360 --> 0:15:48.560
<v Speaker 1>the baby and so there's already this like, oh, look,

0:15:48.560 --> 0:15:50.440
<v Speaker 1>you're the one that did all the things. You grew

0:15:50.480 --> 0:15:52.480
<v Speaker 1>the baby, so you must know things when actually don't

0:15:52.520 --> 0:15:55.160
<v Speaker 1>know anything. And then you become the expert in the

0:15:55.160 --> 0:15:57.480
<v Speaker 1>baby because you're the one at home. And once you're

0:15:57.520 --> 0:15:59.680
<v Speaker 1>the expert, you're always the expert. And so you know

0:15:59.760 --> 0:16:01.600
<v Speaker 1>all things, and you're in charge of all the stuff,

0:16:01.840 --> 0:16:03.960
<v Speaker 1>and you're the keeper of the knowledge, and you know

0:16:04.000 --> 0:16:06.800
<v Speaker 1>what snacks at what time, and when bottles have to happen,

0:16:06.840 --> 0:16:08.920
<v Speaker 1>and you know when's too late for a nap and

0:16:09.320 --> 0:16:11.920
<v Speaker 1>the more expertise that you hold and nobody else has

0:16:12.440 --> 0:16:14.080
<v Speaker 1>means that you have to be the one doing all

0:16:14.120 --> 0:16:16.840
<v Speaker 1>of the care. And I think what my husband and I,

0:16:17.160 --> 0:16:20.120
<v Speaker 1>probably by accident rather than design, were able to do

0:16:20.800 --> 0:16:23.360
<v Speaker 1>was that neither of us was the expert in how

0:16:23.400 --> 0:16:25.880
<v Speaker 1>to look after our son. And it means that now

0:16:26.840 --> 0:16:29.560
<v Speaker 1>where I would say we're pretty balanced as parents still,

0:16:30.040 --> 0:16:33.840
<v Speaker 1>and we've established those that shared care and that equality

0:16:33.880 --> 0:16:36.720
<v Speaker 1>between us really really early, and it's followed through our

0:16:36.760 --> 0:16:37.600
<v Speaker 1>son's whole life.

0:16:37.880 --> 0:16:40.040
<v Speaker 2>Wow, and what year was your son born in?

0:16:40.600 --> 0:16:42.360
<v Speaker 3>He was born in June of twenty fifteen.

0:16:42.560 --> 0:16:47.960
<v Speaker 2>And then in twenty seventeen, you feel like you're pregnant again,

0:16:48.400 --> 0:16:53.600
<v Speaker 2>but you have these same sort of symptoms. You think, oh,

0:16:53.600 --> 0:16:56.680
<v Speaker 2>we've got another one on the way, and you go

0:16:56.800 --> 0:17:01.040
<v Speaker 2>to the doctor to confirm. Right, take me back to

0:17:01.400 --> 0:17:03.160
<v Speaker 2>that moment in twenty seventeen.

0:17:03.400 --> 0:17:07.600
<v Speaker 1>Yeah, so I I'd skipped a period and I thought,

0:17:07.720 --> 0:17:12.399
<v Speaker 1>oh God, I must be pregnant. And my first reaction,

0:17:12.480 --> 0:17:14.960
<v Speaker 1>and I will admit, was no, it's too soon, ye

0:17:15.080 --> 0:17:15.480
<v Speaker 1>ready to go?

0:17:16.720 --> 0:17:20.680
<v Speaker 3>Not yet? Not yet. I was gonna wait another year, but.

0:17:20.680 --> 0:17:23.320
<v Speaker 1>The pregnancy test at home said I wasn't pregnant, and

0:17:23.359 --> 0:17:25.400
<v Speaker 1>I thought, oh, maybe that's not right. So I went

0:17:25.400 --> 0:17:29.600
<v Speaker 1>and saw my GP. I wasn't pregnant, and at the time,

0:17:29.640 --> 0:17:31.320
<v Speaker 1>I was on a book tour, and so we sort

0:17:31.359 --> 0:17:34.280
<v Speaker 1>of thought, well, I'm probably just really anxious and sort

0:17:34.280 --> 0:17:36.399
<v Speaker 1>of stressed. My body stressed out doing a lot of

0:17:36.400 --> 0:17:39.280
<v Speaker 1>travel promoting this book, and I'm a bit nervous about

0:17:39.280 --> 0:17:42.399
<v Speaker 1>it all. Maybe that's what's going on. Also, you know,

0:17:42.440 --> 0:17:45.000
<v Speaker 1>my son was only two. I'd only stopped breastfeeding a

0:17:45.040 --> 0:17:46.560
<v Speaker 1>year or so earlier, so maybe things were just a

0:17:46.640 --> 0:17:50.320
<v Speaker 1>bit not back on schedule. Yet. I had a really

0:17:50.320 --> 0:17:52.880
<v Speaker 1>great GP who took me really seriously, which is important.

0:17:53.359 --> 0:17:55.680
<v Speaker 1>I think a lot of gps in that situation would

0:17:55.680 --> 0:17:57.760
<v Speaker 1>have said, you're just a bit stressed, don't worry. She

0:17:57.760 --> 0:17:59.840
<v Speaker 1>had me do some blood tests which showed I had

0:17:59.880 --> 0:18:03.480
<v Speaker 1>no estrogen, and I was like, what was that mean?

0:18:04.960 --> 0:18:08.240
<v Speaker 1>And she said, look, I don't know, because if you

0:18:08.240 --> 0:18:11.679
<v Speaker 1>were in menopause or something early, everything else would be

0:18:11.680 --> 0:18:13.719
<v Speaker 1>different too, like your other hormones would be changing. But

0:18:13.800 --> 0:18:17.080
<v Speaker 1>it's just your estrogen. So she sent me off to

0:18:17.119 --> 0:18:19.800
<v Speaker 1>some specialists and that took a bit of time. I

0:18:19.800 --> 0:18:22.639
<v Speaker 1>think one of the gynecologists was very fancy gynecologist. It

0:18:22.640 --> 0:18:24.280
<v Speaker 1>took me like eight weeks to get in to see her,

0:18:24.720 --> 0:18:27.760
<v Speaker 1>and I also got sent to an endocrinologist, and everything

0:18:27.800 --> 0:18:30.640
<v Speaker 1>sort of happened like they were investigating, but no one

0:18:30.680 --> 0:18:32.520
<v Speaker 1>made me feel panicked. It was very much like, oh,

0:18:32.520 --> 0:18:34.280
<v Speaker 1>I we'll just figure out what's going on with this thing.

0:18:35.720 --> 0:18:37.639
<v Speaker 1>But as part of that, both of them said, you know,

0:18:37.680 --> 0:18:39.480
<v Speaker 1>we're going to do all these different tests to figure

0:18:39.480 --> 0:18:41.600
<v Speaker 1>out what's happening. We do do a brain scan, but

0:18:41.960 --> 0:18:43.760
<v Speaker 1>don't worry about that. It's just to rule things out.

0:18:44.359 --> 0:18:46.639
<v Speaker 1>And the day of the brain scan, I went in

0:18:46.680 --> 0:18:50.359
<v Speaker 1>and I had an MRI in the morning, and that

0:18:50.440 --> 0:18:53.160
<v Speaker 1>afternoon I went to lunch with a woman I didn't

0:18:53.160 --> 0:18:55.359
<v Speaker 1>know very well, and I was trying to be more present,

0:18:55.600 --> 0:18:58.080
<v Speaker 1>so I left my phone in the car and I

0:18:58.119 --> 0:19:00.440
<v Speaker 1>had this lunch which I was very distracted anyway, I

0:19:00.440 --> 0:19:02.600
<v Speaker 1>think because of the scan. And I got back to

0:19:02.600 --> 0:19:04.200
<v Speaker 1>the carr and I had a miscall from the GP,

0:19:04.520 --> 0:19:08.960
<v Speaker 1>the endocrinologist and the gynecologist, so I knew something was up,

0:19:09.440 --> 0:19:11.760
<v Speaker 1>and I called the gynocologist just because she'd called first,

0:19:12.400 --> 0:19:14.680
<v Speaker 1>and I called her office and they said, oh, we'd

0:19:14.720 --> 0:19:16.159
<v Speaker 1>like you to come in to talk about the results

0:19:16.160 --> 0:19:18.240
<v Speaker 1>of your scan. And I sort of got up my

0:19:18.280 --> 0:19:21.240
<v Speaker 1>calendar and was like, yeah, okay, when and they said, oh, well,

0:19:21.240 --> 0:19:23.840
<v Speaker 1>when would you like to come in? And this was

0:19:23.880 --> 0:19:25.000
<v Speaker 1>the woman I'd waited eight.

0:19:24.880 --> 0:19:25.400
<v Speaker 3>Weeks to see.

0:19:25.480 --> 0:19:28.560
<v Speaker 1>I was like, ah, now is that up to me?

0:19:29.400 --> 0:19:30.680
<v Speaker 1>And they said, you know what, why don't you just

0:19:30.720 --> 0:19:33.680
<v Speaker 1>come in now? That's when you know things are really grim.

0:19:34.200 --> 0:19:36.960
<v Speaker 1>If the very very busy important people can suddenly see

0:19:36.960 --> 0:19:40.560
<v Speaker 1>you in fifteen minutes, things are moving fast.

0:19:41.160 --> 0:19:42.880
<v Speaker 2>And did you go straight straight there?

0:19:42.920 --> 0:19:43.639
<v Speaker 3>I drove straight there.

0:19:43.680 --> 0:19:48.960
<v Speaker 1>I called my husband on the way and he said,

0:19:49.160 --> 0:19:51.200
<v Speaker 1>he just said, I'll meet you there. So he drove

0:19:51.320 --> 0:19:56.960
<v Speaker 1>and met me at her offices. And I called my

0:19:57.000 --> 0:20:00.080
<v Speaker 1>sister and just said, you need to distract me so

0:20:00.160 --> 0:20:04.280
<v Speaker 1>I don't like to drive off the road. And then

0:20:04.480 --> 0:20:07.240
<v Speaker 1>when we arrived at the gynocologist's office, she saw us

0:20:07.320 --> 0:20:12.000
<v Speaker 1>very quickly and she told me I had the scanchow

0:20:12.040 --> 0:20:15.199
<v Speaker 1>that there was a growth in my brain brain tumor,

0:20:15.760 --> 0:20:18.040
<v Speaker 1>and they thought they knew what it was, but you know,

0:20:18.040 --> 0:20:19.840
<v Speaker 1>it was a bit a bit earlier. And she was

0:20:19.840 --> 0:20:23.959
<v Speaker 1>a gynecologist and this wasn't her area of expertise, and

0:20:24.040 --> 0:20:25.600
<v Speaker 1>she referred us to a neurosurgeon.

0:20:27.000 --> 0:20:30.160
<v Speaker 2>Wow, what's your thought process from the moment you get

0:20:30.200 --> 0:20:32.720
<v Speaker 2>that phone called say listen, come in now, trying to

0:20:32.800 --> 0:20:35.159
<v Speaker 2>keep your you know, what's going on your your alarm

0:20:35.160 --> 0:20:41.040
<v Speaker 2>bells are ringing to sitting down and then ultimately passing

0:20:41.040 --> 0:20:46.680
<v Speaker 2>you on to someone else. Right, what's going through your head?

0:20:46.960 --> 0:20:48.520
<v Speaker 3>It's really hard to describe it.

0:20:50.320 --> 0:20:54.160
<v Speaker 1>I didn't take in anything she said after the word

0:20:54.200 --> 0:20:56.439
<v Speaker 1>she used was lesion. She said, there's a lesion on

0:20:56.480 --> 0:20:58.879
<v Speaker 1>your brain. And after that I didn't take anything in

0:20:58.960 --> 0:21:02.720
<v Speaker 1>for a bit because I was like, lesion, isn't lesion

0:21:02.760 --> 0:21:03.240
<v Speaker 1>a cut?

0:21:03.520 --> 0:21:05.200
<v Speaker 3>And then I was like, how did I cut my brain?

0:21:06.440 --> 0:21:08.959
<v Speaker 1>And so I asked for clarification and she said, oh,

0:21:09.000 --> 0:21:11.520
<v Speaker 1>it's like a growth, and my husband said like a tumor.

0:21:12.240 --> 0:21:16.240
<v Speaker 1>And after that, I don't really remember anything that happened

0:21:16.240 --> 0:21:18.840
<v Speaker 1>in that appointment. Thank goodness, my husband was there actually

0:21:18.880 --> 0:21:22.879
<v Speaker 1>listened to some of what was happening. The only thing

0:21:22.920 --> 0:21:26.840
<v Speaker 1>I can say it was just sheer panic, not panic

0:21:26.880 --> 0:21:30.440
<v Speaker 1>that I came down from, Like it was like that

0:21:30.200 --> 0:21:33.240
<v Speaker 1>that that high. I'm someone who's quite scared of heights.

0:21:33.760 --> 0:21:36.800
<v Speaker 1>Felt that's the closest I felt to it is having

0:21:36.840 --> 0:21:40.160
<v Speaker 1>been up somewhere very very very high and being told

0:21:40.160 --> 0:21:42.879
<v Speaker 1>to jump. I imagine that's how I would have, But

0:21:42.920 --> 0:21:45.200
<v Speaker 1>I didn't come down like I felt like I was

0:21:45.240 --> 0:21:47.800
<v Speaker 1>in that heightened state for weeks after that, and it

0:21:47.920 --> 0:21:52.760
<v Speaker 1>just there was no relief or release. Because I'm someone

0:21:52.800 --> 0:21:54.840
<v Speaker 1>who is a real problem solver and I like to

0:21:54.840 --> 0:21:56.320
<v Speaker 1>think about a problem too. I can come to a

0:21:56.320 --> 0:22:00.400
<v Speaker 1>solution or a plan, and you can't think your way

0:22:00.400 --> 0:22:03.240
<v Speaker 1>out of a brain tumor. There's no Once you get

0:22:03.280 --> 0:22:05.520
<v Speaker 1>to what if I die of because of this brain tumor,

0:22:05.560 --> 0:22:08.000
<v Speaker 1>there's no there's no solution to that, right, And I

0:22:08.280 --> 0:22:10.359
<v Speaker 1>sort of could look got trapped in this panic loop.

0:22:10.400 --> 0:22:12.679
<v Speaker 2>I think, just talk to me about the rarity of

0:22:12.720 --> 0:22:15.880
<v Speaker 2>the of the tumor. Yeah, and what your your your

0:22:15.960 --> 0:22:20.560
<v Speaker 2>ultimatums were, because you know you had basically one one

0:22:20.640 --> 0:22:24.040
<v Speaker 2>choice and one choice only. Yeah, And when did when

0:22:24.040 --> 0:22:26.600
<v Speaker 2>did your mind start to accept what was going on?

0:22:27.600 --> 0:22:32.040
<v Speaker 1>So I ended up with a neurosurgeon who was outstanding

0:22:33.880 --> 0:22:37.480
<v Speaker 1>and he was very clear with me, and I think

0:22:37.520 --> 0:22:41.560
<v Speaker 1>the reason I liked him so much was he didn't sugarcoat,

0:22:42.040 --> 0:22:44.119
<v Speaker 1>and so I felt like, Okay, he's not lying to me.

0:22:44.240 --> 0:22:46.680
<v Speaker 1>I had this real fear that people would go, oh,

0:22:46.760 --> 0:22:49.480
<v Speaker 1>young mum, will just soften the blows of things, which

0:22:49.760 --> 0:22:50.959
<v Speaker 1>they were not not going to do.

0:22:51.000 --> 0:22:52.080
<v Speaker 3>But that was my fear.

0:22:52.400 --> 0:22:54.640
<v Speaker 1>And he was so straightforward and black and white about

0:22:54.640 --> 0:22:55.840
<v Speaker 1>everything I felt.

0:22:56.040 --> 0:22:56.359
<v Speaker 3>I felt.

0:22:56.359 --> 0:22:58.760
<v Speaker 1>I felt a lot of trust with him, and he

0:22:58.800 --> 0:23:00.720
<v Speaker 1>said to me that the first time I met him,

0:23:00.800 --> 0:23:05.840
<v Speaker 1>he said, he told me that the tumor was very unusual.

0:23:05.880 --> 0:23:08.480
<v Speaker 1>What I have is called a cranio for ingioma, which

0:23:08.960 --> 0:23:11.399
<v Speaker 1>happens to about everyone in one in a million to

0:23:11.480 --> 0:23:14.320
<v Speaker 1>one and a half million people. You're born with it,

0:23:14.960 --> 0:23:16.720
<v Speaker 1>but you're just born with a couple of extra cells,

0:23:16.760 --> 0:23:18.159
<v Speaker 1>so you wouldn't be able to see it on a

0:23:18.160 --> 0:23:20.840
<v Speaker 1>scan until it starts to grow, and for most people

0:23:20.840 --> 0:23:23.280
<v Speaker 1>it grows when they're a kid, so I was kind

0:23:23.280 --> 0:23:26.360
<v Speaker 1>of behind, and I'm really lucky that it didn't grow

0:23:26.359 --> 0:23:29.520
<v Speaker 1>when i was a kid. But he said to me

0:23:29.520 --> 0:23:35.040
<v Speaker 1>in that very first appointment, he said, what you have

0:23:35.160 --> 0:23:39.760
<v Speaker 1>is extremely serious and the next part of this process

0:23:39.840 --> 0:23:43.119
<v Speaker 1>is going to be incredibly hard, and you're going to

0:23:43.119 --> 0:23:46.760
<v Speaker 1>have to be incredibly strong, but we are going to

0:23:46.760 --> 0:23:50.280
<v Speaker 1>get you through this. And I held on to that

0:23:51.000 --> 0:23:54.159
<v Speaker 1>for years to come. I would go back to myself

0:23:54.160 --> 0:23:56.520
<v Speaker 1>and say, he said, we're going to get me through this.

0:23:56.920 --> 0:24:01.080
<v Speaker 1>And I'm a kid who trusts authority. Oh you know,

0:24:01.119 --> 0:24:04.439
<v Speaker 1>I worked in politics, think about authority, and I respect authority.

0:24:04.480 --> 0:24:05.520
<v Speaker 2>I was like, right, he knows.

0:24:05.760 --> 0:24:09.040
<v Speaker 1>So I listened to him and that that definitely helped me.

0:24:09.320 --> 0:24:12.320
<v Speaker 1>But if I'm honest in terms of that panic head space,

0:24:12.800 --> 0:24:14.680
<v Speaker 1>I genuinely don't think I came out of it until

0:24:14.680 --> 0:24:18.520
<v Speaker 1>after the surgery. I think I was close to that

0:24:18.600 --> 0:24:20.879
<v Speaker 1>state for a couple of months.

0:24:21.359 --> 0:24:24.200
<v Speaker 2>And it is so important. It's you know, the old saying,

0:24:24.200 --> 0:24:26.360
<v Speaker 2>it's not it's not what you say, it's how you

0:24:26.400 --> 0:24:30.080
<v Speaker 2>say it. Just those few words are so powerful in

0:24:30.119 --> 0:24:32.760
<v Speaker 2>that moment. And like you said, putting your trust into

0:24:32.800 --> 0:24:35.800
<v Speaker 2>someone is all that you had, the only option that

0:24:35.840 --> 0:24:38.679
<v Speaker 2>you had. You go into surgery. What does that look like?

0:24:38.720 --> 0:24:40.840
<v Speaker 2>What are they what are they doing? Are they cutting part?

0:24:40.840 --> 0:24:43.840
<v Speaker 2>Are your brain away? And you know? Is it? Is it?

0:24:43.920 --> 0:24:46.960
<v Speaker 2>Touch and go? How bad is the tumor? How how

0:24:47.160 --> 0:24:48.280
<v Speaker 2>grown is the tumor?

0:24:48.520 --> 0:24:51.440
<v Speaker 1>Yeah, so it was when they found it, it was

0:24:51.520 --> 0:24:53.440
<v Speaker 1>about two and a half centimeters by one and a

0:24:53.440 --> 0:24:59.680
<v Speaker 1>half centimeters. My tumor grows in a really densely populated

0:24:59.720 --> 0:25:01.840
<v Speaker 1>part of the brain. So a lot of the brain

0:25:01.920 --> 0:25:05.080
<v Speaker 1>is gray matter, right, it doesn't really do anything you

0:25:05.080 --> 0:25:06.760
<v Speaker 1>don't want to. You still don't want to tumor there either,

0:25:06.840 --> 0:25:09.360
<v Speaker 1>but you definitely don't want a tumor where it's right

0:25:09.359 --> 0:25:11.520
<v Speaker 1>in the middle of all the important stuff. And for

0:25:11.600 --> 0:25:15.440
<v Speaker 1>me that was the case. So my tumor grows between

0:25:16.280 --> 0:25:18.640
<v Speaker 1>just underneath the optic chiasm, which is sort of where

0:25:18.680 --> 0:25:23.560
<v Speaker 1>your eyesight crosses over, like the I'm going to explain

0:25:23.600 --> 0:25:25.320
<v Speaker 1>this terribly, but like the bit that goes to both

0:25:25.359 --> 0:25:28.479
<v Speaker 1>of your eyes, where it touches in the middle. It

0:25:28.520 --> 0:25:33.280
<v Speaker 1>grows right underneath the hypothalamus, which is responsible for hunger, first, metabolism,

0:25:33.320 --> 0:25:34.560
<v Speaker 1>and a whole bunch of other things.

0:25:34.840 --> 0:25:37.200
<v Speaker 3>You couldn't live without your hypothalamus.

0:25:37.640 --> 0:25:40.080
<v Speaker 1>And then just above the petuitary gland, which is in

0:25:40.119 --> 0:25:42.359
<v Speaker 1>charge of all your hormones, which is why my period

0:25:42.359 --> 0:25:45.840
<v Speaker 1>had stopped and I had no estrogen. The blood supply

0:25:45.880 --> 0:25:50.480
<v Speaker 1>to my petuitary was being cut off. So that first

0:25:50.520 --> 0:25:54.000
<v Speaker 1>surgery for me, I've just done a spoiler alert that

0:25:54.000 --> 0:25:54.360
<v Speaker 1>it was the.

0:25:54.320 --> 0:25:56.119
<v Speaker 3>First, which has to be a second.

0:25:56.840 --> 0:25:59.879
<v Speaker 1>That first surgery for me, like if I can take

0:26:00.040 --> 0:26:01.880
<v Speaker 1>myself out of it for a moment. I still am

0:26:01.880 --> 0:26:06.600
<v Speaker 1>amazed by what doctors can do. So to access my tumor,

0:26:06.600 --> 0:26:10.400
<v Speaker 1>they went up through my nose. So they went up

0:26:10.480 --> 0:26:13.600
<v Speaker 1>through my nose with cameras as well as instruments. They

0:26:13.640 --> 0:26:15.840
<v Speaker 1>cut a small hole in my skull once they got

0:26:15.880 --> 0:26:19.120
<v Speaker 1>to that point, and they operated on my brain through there,

0:26:19.920 --> 0:26:22.520
<v Speaker 1>which is a less invasive brain surgery.

0:26:23.320 --> 0:26:25.920
<v Speaker 2>Well so rather than cutting your head open, yeah, they

0:26:25.920 --> 0:26:27.040
<v Speaker 2>went up through your nose.

0:26:27.200 --> 0:26:30.359
<v Speaker 1>Yeah, which was still I remember when they said that,

0:26:30.440 --> 0:26:32.919
<v Speaker 1>I was like what, But I didn't even know that

0:26:32.960 --> 0:26:35.040
<v Speaker 1>they could do that. But it's quite common now, and

0:26:35.480 --> 0:26:37.919
<v Speaker 1>if possible, that's how they'll If that's where they can

0:26:37.920 --> 0:26:40.520
<v Speaker 1>get to the tumor best, that's what they'll do. I

0:26:40.560 --> 0:26:42.720
<v Speaker 1>think the whole theme of my health journey is naive

0:26:42.760 --> 0:26:44.720
<v Speaker 1>to like, I just didn't know what I was in for.

0:26:45.160 --> 0:26:48.240
<v Speaker 1>I was so focused on the possibility that I might

0:26:48.280 --> 0:26:51.720
<v Speaker 1>not survive the surgery. I didn't really understand the complexity

0:26:51.760 --> 0:26:53.520
<v Speaker 1>of recovery and what was going to be ahead of

0:26:53.520 --> 0:26:58.320
<v Speaker 1>me because I was not experiencing any symptoms except having

0:26:59.640 --> 0:27:02.880
<v Speaker 1>not had a period. I ran ten K's the day

0:27:02.880 --> 0:27:04.800
<v Speaker 1>before I went into the hospital. I was still I think,

0:27:05.080 --> 0:27:07.640
<v Speaker 1>up until the night before, expecting someone to say, oh, no,

0:27:07.800 --> 0:27:08.400
<v Speaker 1>we mixed up.

0:27:08.359 --> 0:27:11.240
<v Speaker 2>A scared yeah, yeah, we've got it wrong. Yeah yeah, yeah.

0:27:11.480 --> 0:27:13.440
<v Speaker 1>There was this feeling of like, how could I possibly

0:27:13.440 --> 0:27:15.400
<v Speaker 1>be sick? I don't feel sick.

0:27:15.600 --> 0:27:18.200
<v Speaker 2>And sometimes that's the best way to tackle things sometimes,

0:27:18.240 --> 0:27:22.119
<v Speaker 2>you know, it's you know, when you overthink, over analyze

0:27:22.119 --> 0:27:26.280
<v Speaker 2>and overstress, and you know, it can really drain you, you know,

0:27:26.440 --> 0:27:28.840
<v Speaker 2>psychologically and emotionally and physically.

0:27:28.960 --> 0:27:31.800
<v Speaker 1>You know, it reminds me after that, after that surgery,

0:27:31.800 --> 0:27:33.720
<v Speaker 1>it was would have been only been a couple maybe

0:27:33.720 --> 0:27:36.879
<v Speaker 1>two days after that surgery. I remember my surgeon came

0:27:36.880 --> 0:27:39.040
<v Speaker 1>around and I hadn't stood up yet, and he got

0:27:39.160 --> 0:27:41.760
<v Speaker 1>very grumpy with everyone and was like, why isn't she standing?

0:27:41.800 --> 0:27:43.920
<v Speaker 1>And I was looking at him being like, oh, because

0:27:43.960 --> 0:27:46.600
<v Speaker 1>I had brain surgery, and but he was like, no,

0:27:46.680 --> 0:27:48.040
<v Speaker 1>I want to standing. I want her up and standing

0:27:48.040 --> 0:27:49.480
<v Speaker 1>before the end of the day, because it is true

0:27:49.520 --> 0:27:52.040
<v Speaker 1>that the sooner you're up and standing and moving and walking,

0:27:52.119 --> 0:27:55.760
<v Speaker 1>the better for your recovery. But at the time, I

0:27:55.800 --> 0:27:58.880
<v Speaker 1>remember thinking, I don't even know if I can, like yeah,

0:27:59.560 --> 0:28:01.400
<v Speaker 1>but I remember, but they got everyone on either side

0:28:01.440 --> 0:28:02.800
<v Speaker 1>of me, and they had my husband on one side

0:28:02.800 --> 0:28:04.720
<v Speaker 1>my sister on the other and nurses holding all like

0:28:04.760 --> 0:28:06.760
<v Speaker 1>I had so many cords coming out of me still

0:28:07.119 --> 0:28:10.199
<v Speaker 1>in front of me, and the sort of helped me

0:28:10.200 --> 0:28:12.120
<v Speaker 1>slide off the bed and stand up. And as soon

0:28:12.160 --> 0:28:15.040
<v Speaker 1>as I did, I started vomiting and it was pitch

0:28:15.119 --> 0:28:18.600
<v Speaker 1>black like itoked. It looked like tar to me, and

0:28:19.320 --> 0:28:22.439
<v Speaker 1>I remember just thinking, oh, this is it now, this

0:28:22.520 --> 0:28:26.440
<v Speaker 1>is I'm dying like this. It was sheer panic because

0:28:26.440 --> 0:28:30.080
<v Speaker 1>it was black, and my sister, like I remember, she

0:28:30.200 --> 0:28:32.720
<v Speaker 1>grab clenched my arm and so I looked at her

0:28:32.760 --> 0:28:37.399
<v Speaker 1>and she said, this is fine. This is completely normal.

0:28:37.640 --> 0:28:40.080
<v Speaker 1>They knew this was going to happen. You just have

0:28:40.160 --> 0:28:42.440
<v Speaker 1>to ride it out. And she was like rubbing my

0:28:42.480 --> 0:28:44.479
<v Speaker 1>back and she was one hundred percent right, it is

0:28:44.640 --> 0:28:48.080
<v Speaker 1>completely normal. I swallowed a lot of blood during surgery

0:28:48.120 --> 0:28:50.160
<v Speaker 1>and it was just dried. It was dried blood coming up,

0:28:50.160 --> 0:28:54.720
<v Speaker 1>which is gross. Sorry everybody, But she didn't know that.

0:28:54.840 --> 0:28:55.600
<v Speaker 1>She had no idea.

0:28:55.760 --> 0:28:57.239
<v Speaker 3>She just said that she's made it up.

0:28:57.480 --> 0:28:58.080
<v Speaker 2>Oh she did.

0:28:58.280 --> 0:28:59.920
<v Speaker 1>She was just trying to keep me calm because she

0:29:00.320 --> 0:29:02.960
<v Speaker 1>also thought it was like and she was like better

0:29:03.040 --> 0:29:06.160
<v Speaker 1>to die, horb. Yeah, And you know, I do think

0:29:06.200 --> 0:29:13.200
<v Speaker 1>people sometimes our naivety does protect us, and sometimes that

0:29:13.240 --> 0:29:16.160
<v Speaker 1>includes not realizing what we're capable of. And my sister

0:29:16.200 --> 0:29:18.520
<v Speaker 1>would have been one of those people. You know, she's

0:29:18.520 --> 0:29:20.160
<v Speaker 1>a baby of the family. She's the one we always

0:29:20.200 --> 0:29:22.880
<v Speaker 1>looked after, and with me not being the one doing

0:29:22.920 --> 0:29:25.480
<v Speaker 1>the looking after, she really stepped up in the most

0:29:25.520 --> 0:29:29.240
<v Speaker 1>incredible way for my whole family. She supported everyone, including me,

0:29:29.560 --> 0:29:31.960
<v Speaker 1>And I think sometimes we don't know what we can

0:29:32.000 --> 0:29:34.120
<v Speaker 1>do until we're put in the circumstance where there's no

0:29:34.200 --> 0:29:34.800
<v Speaker 1>choice anymore.

0:29:44.280 --> 0:29:47.520
<v Speaker 2>What does the recovery look like? Because, like you said,

0:29:48.040 --> 0:29:50.280
<v Speaker 2>all of a sudden, you find yourself on a on

0:29:50.360 --> 0:29:53.280
<v Speaker 2>a you know, for in for a second operation. How

0:29:53.320 --> 0:29:55.040
<v Speaker 2>does that journey look up to that second op?

0:29:55.280 --> 0:29:58.280
<v Speaker 3>Yeah, the recovery was tough, uh.

0:29:59.720 --> 0:30:02.000
<v Speaker 1>Not, not least of which that I had quite a

0:30:02.000 --> 0:30:03.800
<v Speaker 1>weak nose afterwards because they.

0:30:03.720 --> 0:30:05.440
<v Speaker 2>Had to take a lot of cart can imagine kill

0:30:06.200 --> 0:30:09.800
<v Speaker 2>pulled the tumor from your from your brain through your

0:30:09.880 --> 0:30:12.680
<v Speaker 2>nose and I don't put it in mid.

0:30:14.560 --> 0:30:17.600
<v Speaker 1>Wow, But to do that, they had to take a

0:30:17.640 --> 0:30:19.280
<v Speaker 1>bit of cartilage out to just make more space I

0:30:19.320 --> 0:30:22.680
<v Speaker 1>suppose in my nose. And the recovery was going all right,

0:30:22.800 --> 0:30:27.719
<v Speaker 1>It was hard and I was so tired, and at

0:30:27.800 --> 0:30:30.560
<v Speaker 1>that stage they just left it with the surgery. So

0:30:30.920 --> 0:30:32.520
<v Speaker 1>it was a very much wait and see what happens

0:30:32.560 --> 0:30:36.560
<v Speaker 1>next kind of situation. But my two and a half

0:30:36.640 --> 0:30:38.920
<v Speaker 1>year old flew a spider Man dole into my nose

0:30:38.960 --> 0:30:44.280
<v Speaker 1>by accident, and my whole nose just collapsed.

0:30:44.440 --> 0:30:46.880
<v Speaker 2>It was like through a spider Man dole.

0:30:47.120 --> 0:30:47.680
<v Speaker 3>Yeah, because it was.

0:30:49.040 --> 0:30:51.080
<v Speaker 1>And then the spider Man happened, and it happened over

0:30:51.120 --> 0:30:53.680
<v Speaker 1>a few days. It was like a tent and you

0:30:53.840 --> 0:30:55.880
<v Speaker 1>just like you pull the poles out of it and it.

0:30:55.880 --> 0:30:57.120
<v Speaker 3>Just sort of crum crumble.

0:30:57.960 --> 0:31:01.440
<v Speaker 1>My nose just sort of crumpled, and I I remember saying,

0:31:02.040 --> 0:31:03.120
<v Speaker 1>should I get it fixed?

0:31:03.400 --> 0:31:05.120
<v Speaker 3>And my husband was like, yeah.

0:31:04.800 --> 0:31:07.520
<v Speaker 1>But not now, Like we're just we've got bigger things

0:31:07.560 --> 0:31:11.120
<v Speaker 1>to deal with than the nose. We'll deal with that

0:31:11.400 --> 0:31:13.560
<v Speaker 1>another time. But I think that really did add to

0:31:13.600 --> 0:31:17.040
<v Speaker 1>my sense of like like it was this another thing,

0:31:17.080 --> 0:31:20.200
<v Speaker 1>another thing. There was that sort of feeling nonetheless like

0:31:20.240 --> 0:31:22.160
<v Speaker 1>we had a huge party. One of the things I

0:31:22.200 --> 0:31:23.560
<v Speaker 1>had wanted was like I'm going to get through this

0:31:23.560 --> 0:31:24.040
<v Speaker 1>and we're gonna have.

0:31:24.040 --> 0:31:25.840
<v Speaker 3>A big party. We had a big party.

0:31:26.520 --> 0:31:29.160
<v Speaker 2>In so you still got the all clear, Yes, it's out,

0:31:29.240 --> 0:31:29.760
<v Speaker 2>it's done.

0:31:30.040 --> 0:31:31.880
<v Speaker 1>They were like, we've left a little bit in there

0:31:31.920 --> 0:31:34.520
<v Speaker 1>because it was too dangerous to take it out. But

0:31:34.520 --> 0:31:37.120
<v Speaker 1>they weren't expecting it to grow again. They said, good odds,

0:31:37.160 --> 0:31:39.640
<v Speaker 1>we think it's going to be fine from here. We

0:31:39.680 --> 0:31:41.880
<v Speaker 1>had this huge party. I remember, it was awesome. My

0:31:41.920 --> 0:31:44.040
<v Speaker 1>husband I bought a house and this is all in

0:31:44.040 --> 0:31:46.959
<v Speaker 1>a few months, and we moved into the house on

0:31:47.000 --> 0:31:50.920
<v Speaker 1>the Saturday. We unpacked a bit on the Sunday, and

0:31:50.960 --> 0:31:54.160
<v Speaker 1>then on the Monday they told me it had grown back,

0:31:54.200 --> 0:31:56.320
<v Speaker 1>and it had grown back really aggressively, so we had

0:31:56.360 --> 0:31:57.720
<v Speaker 1>to move quite fast.

0:31:58.320 --> 0:31:58.880
<v Speaker 2>Oh wow.

0:31:59.080 --> 0:32:00.960
<v Speaker 1>In my head, I was it's like when you prune

0:32:00.960 --> 0:32:02.720
<v Speaker 1>the bushes outside the house and then they grow. But

0:32:02.800 --> 0:32:03.960
<v Speaker 1>I'm sure that's not how it works.

0:32:03.960 --> 0:32:06.520
<v Speaker 2>But that was yeah, yeah, yeah, yeah.

0:32:06.000 --> 0:32:08.680
<v Speaker 1>Like it just yeah, it had grown back quite aggressively.

0:32:08.720 --> 0:32:11.560
<v Speaker 1>I had my first surgery in January. Formal recovery was

0:32:11.600 --> 0:32:16.440
<v Speaker 1>done by end of March, and they told me that

0:32:16.720 --> 0:32:18.880
<v Speaker 1>the first weekend of July, so it was it wasn't long.

0:32:18.920 --> 0:32:20.560
<v Speaker 1>I was back in hospital again in September.

0:32:21.040 --> 0:32:23.320
<v Speaker 2>Yeah, where's your head space right now? When they tell

0:32:23.360 --> 0:32:25.200
<v Speaker 2>you again that it's going back. Not only is it

0:32:25.200 --> 0:32:27.520
<v Speaker 2>going back, but it's aggressive. We need to get you

0:32:27.560 --> 0:32:31.400
<v Speaker 2>in a sap. Where's your head space go? Just devastating, devastation.

0:32:31.840 --> 0:32:34.600
<v Speaker 1>It wasn't the same shock, of course, because it's not possible,

0:32:34.640 --> 0:32:37.760
<v Speaker 1>because I had some adjustment, but it was just devastation.

0:32:38.400 --> 0:32:40.600
<v Speaker 1>And I remember saying, I can't do it again, like

0:32:41.720 --> 0:32:44.400
<v Speaker 1>I didn't feel strong anymore. I went into that first

0:32:44.400 --> 0:32:46.880
<v Speaker 1>one being a really fit, healthy, strong.

0:32:46.640 --> 0:32:49.560
<v Speaker 2>Thirty, but I hadn't.

0:32:49.680 --> 0:32:53.120
<v Speaker 1>I hadn't recovered I recovered that much and in only

0:32:53.160 --> 0:32:58.160
<v Speaker 1>six months, and I remember just thinking I can't, Like I.

0:32:57.280 --> 0:32:59.440
<v Speaker 3>How will I do it? I don't feel strong.

0:32:59.520 --> 0:33:03.480
<v Speaker 1>I remember saying I don't feel strong, and I think

0:33:03.480 --> 0:33:05.040
<v Speaker 1>I meant that in every sense of the word. I

0:33:05.040 --> 0:33:08.560
<v Speaker 1>didn't feel strong enough. But I was less scared, I

0:33:08.600 --> 0:33:12.280
<v Speaker 1>will say I was. I was terrified still, but I

0:33:12.320 --> 0:33:14.680
<v Speaker 1>had less of this certain sense that I would not

0:33:14.760 --> 0:33:18.040
<v Speaker 1>be able to survive the surgery. I was, you know,

0:33:18.080 --> 0:33:20.080
<v Speaker 1>I think I thought, well, I've done it before, so

0:33:20.120 --> 0:33:22.520
<v Speaker 1>I can do it again, and that that gave me

0:33:22.800 --> 0:33:26.240
<v Speaker 1>more confidence, which is it probably not very logical, but

0:33:27.360 --> 0:33:28.920
<v Speaker 1>I did have this sense of like my body got

0:33:29.000 --> 0:33:31.400
<v Speaker 1>through it, so it must be able to do it again,

0:33:33.480 --> 0:33:35.840
<v Speaker 1>and that probably didn't take into account how intense that

0:33:35.880 --> 0:33:39.760
<v Speaker 1>surgery was going to be, and that surgery was life changing, because.

0:33:41.040 --> 0:33:44.360
<v Speaker 3>After that surgery, I acquired.

0:33:44.120 --> 0:33:47.920
<v Speaker 1>Like quite a significant brain injury, which was necessary like that,

0:33:47.960 --> 0:33:49.640
<v Speaker 1>they had no choice to cut the tumor out.

0:33:49.640 --> 0:33:50.880
<v Speaker 3>They had to. They had to do that.

0:33:51.200 --> 0:33:53.120
<v Speaker 2>So they left the part of the tumor that they

0:33:53.120 --> 0:33:56.040
<v Speaker 2>thought would be okay that was attached a certain part

0:33:56.080 --> 0:33:56.880
<v Speaker 2>of the brain.

0:33:57.120 --> 0:34:00.000
<v Speaker 3>That to preserve the brain if they got wrong.

0:33:59.800 --> 0:34:02.760
<v Speaker 2>Then and that it could potentially have devastating effects on you.

0:34:03.040 --> 0:34:04.760
<v Speaker 2>But now they had to take that risk. They had

0:34:04.800 --> 0:34:07.760
<v Speaker 2>to cut it all out and just take away the

0:34:07.800 --> 0:34:10.279
<v Speaker 2>risk of it ever ever being not not being there

0:34:10.280 --> 0:34:11.360
<v Speaker 2>but ever growing again.

0:34:11.640 --> 0:34:14.480
<v Speaker 1>Yeah, So they took probably ninety eight percent of it.

0:34:15.040 --> 0:34:17.759
<v Speaker 1>They left the two percent that was directly on my

0:34:17.800 --> 0:34:20.040
<v Speaker 1>optic chiasm because if they'd taken that, I would have

0:34:20.040 --> 0:34:26.000
<v Speaker 1>been blind. So they chose not to. But they took

0:34:26.040 --> 0:34:30.080
<v Speaker 1>everything else, which meant I lost progressively took a bit

0:34:30.080 --> 0:34:32.520
<v Speaker 1>of time, but I lost all hormone function in the

0:34:32.520 --> 0:34:36.800
<v Speaker 1>pituitary gland, which is really considerable impact on your life.

0:34:36.800 --> 0:34:39.279
<v Speaker 1>It means I take seven eight types of medication every day.

0:34:39.760 --> 0:34:41.960
<v Speaker 1>I don't make cortisol anymore, which is the big one,

0:34:42.040 --> 0:34:45.719
<v Speaker 1>because you can't you can't be alive without cortisol. My

0:34:45.760 --> 0:34:51.800
<v Speaker 1>body doesn't balance water on its own, and so without medication,

0:34:52.160 --> 0:34:56.200
<v Speaker 1>I would just be ferociously thirsty and but wouldn't make

0:34:56.239 --> 0:34:58.000
<v Speaker 1>your own properly, Like I'd just drink lots of water

0:34:58.040 --> 0:35:01.000
<v Speaker 1>and then I just it would come out. But I

0:35:01.000 --> 0:35:03.160
<v Speaker 1>would not My body would do what it needed to do,

0:35:04.239 --> 0:35:08.279
<v Speaker 1>and so I would eventually just dehydrate entirely and die

0:35:08.320 --> 0:35:10.520
<v Speaker 1>from that if I didn't have the medication. I don't

0:35:10.560 --> 0:35:14.479
<v Speaker 1>make estrogen or testosterone or growth hormone or prolactin, there's

0:35:14.719 --> 0:35:19.000
<v Speaker 1>so many of them. Progesterone and so just completely changed

0:35:19.000 --> 0:35:20.560
<v Speaker 1>my life, completely change my life.

0:35:21.520 --> 0:35:25.520
<v Speaker 2>Wow, And how has that changed your outlook on life?

0:35:26.920 --> 0:35:29.560
<v Speaker 1>I would say, now, you know, five years after that,

0:35:30.200 --> 0:35:33.680
<v Speaker 1>I am somewhere back near that headspace again. I don't

0:35:33.680 --> 0:35:38.479
<v Speaker 1>feel indestructible, but I feel like I have the same

0:35:38.640 --> 0:35:42.520
<v Speaker 1>enthusiasm and enjoyment and determination for life. But I will

0:35:42.520 --> 0:35:44.359
<v Speaker 1>say it took a really long time to get there,

0:35:44.440 --> 0:35:46.319
<v Speaker 1>Like I had a good few years of really not

0:35:46.440 --> 0:35:47.200
<v Speaker 1>being myself.

0:35:47.920 --> 0:35:49.640
<v Speaker 2>How did you get through that to be where you

0:35:49.680 --> 0:35:50.200
<v Speaker 2>are today?

0:35:50.520 --> 0:35:51.000
<v Speaker 3>Yeah?

0:35:51.320 --> 0:35:53.120
<v Speaker 1>To be honest, I think I had to get to acceptance.

0:35:53.400 --> 0:35:56.160
<v Speaker 1>You know, they talk about the stages of grief and

0:35:57.480 --> 0:36:01.919
<v Speaker 1>the stages of grief. I didn't do them in order.

0:36:02.280 --> 0:36:03.920
<v Speaker 1>I just kept like bobbing around in them all and

0:36:03.920 --> 0:36:06.799
<v Speaker 1>not getting to acceptance, going backwards and you know, going

0:36:06.800 --> 0:36:09.200
<v Speaker 1>through the rage period and going through the bargaining period,

0:36:09.239 --> 0:36:10.719
<v Speaker 1>going through the denial. I just seem to go back

0:36:10.760 --> 0:36:11.920
<v Speaker 1>and forth. And I think I did that for a

0:36:11.960 --> 0:36:15.640
<v Speaker 1>good few years. It didn't help that I came out

0:36:15.680 --> 0:36:19.000
<v Speaker 1>of treatment into a pandemic and I live in Melbourne,

0:36:19.000 --> 0:36:20.560
<v Speaker 1>so it'd got locked in my house for a while.

0:36:21.400 --> 0:36:23.920
<v Speaker 3>That didn't help. But I and.

0:36:23.840 --> 0:36:25.480
<v Speaker 1>I won't say that there were moments of joy in

0:36:25.520 --> 0:36:28.040
<v Speaker 1>those years. There were, right, like it's never all dark

0:36:28.440 --> 0:36:32.720
<v Speaker 1>or all light, but I hadn't accepted what had happened

0:36:32.760 --> 0:36:35.400
<v Speaker 1>to me. I kept putting myself in hospital because I

0:36:35.440 --> 0:36:38.400
<v Speaker 1>didn't really accept my own limits. I'd keep trying to

0:36:38.440 --> 0:36:40.480
<v Speaker 1>push and do the things that I live the way

0:36:40.520 --> 0:36:41.840
<v Speaker 1>I used to live, and do things the way I

0:36:41.920 --> 0:36:44.560
<v Speaker 1>used to do things, and then it would end up

0:36:44.560 --> 0:36:47.480
<v Speaker 1>being very dangerous. And I think it did take me

0:36:47.520 --> 0:36:49.400
<v Speaker 1>a good couple of years to get to the point

0:36:49.400 --> 0:36:54.160
<v Speaker 1>of going. You know, I was someone who believed I

0:36:54.200 --> 0:36:56.720
<v Speaker 1>was living life without limits, that I could do anything,

0:36:57.239 --> 0:36:59.520
<v Speaker 1>and to accept that there were some really firm limits

0:36:59.560 --> 0:37:01.640
<v Speaker 1>for me. That didn't mean I couldn't do a whole

0:37:01.640 --> 0:37:03.160
<v Speaker 1>bunch of other things, but that I did have to

0:37:03.200 --> 0:37:07.600
<v Speaker 1>work within those limits or I wouldn't survive. And that

0:37:07.920 --> 0:37:10.439
<v Speaker 1>sounds really negative, but I actually think it was really

0:37:10.440 --> 0:37:13.760
<v Speaker 1>helpful for me once I finally reframed and went, Okay,

0:37:13.920 --> 0:37:17.239
<v Speaker 1>these limits aren't everything, but they are this, and I

0:37:17.320 --> 0:37:19.759
<v Speaker 1>have to respect that or I'm not respecting what my

0:37:19.760 --> 0:37:22.239
<v Speaker 1>body can do. Otherwise I'm expecting my body to fly.

0:37:22.719 --> 0:37:24.239
<v Speaker 1>None of us are sitting here thinking I can fly.

0:37:24.560 --> 0:37:26.840
<v Speaker 1>My body can't do things anymore. It's never going to

0:37:26.880 --> 0:37:29.000
<v Speaker 1>be able to do those things. Unless there's some huge

0:37:29.000 --> 0:37:32.040
<v Speaker 1>scientific revolution. It's never going to be able to do

0:37:32.080 --> 0:37:35.200
<v Speaker 1>those things again. So what is possible for me?

0:37:35.880 --> 0:37:36.359
<v Speaker 3>Knowing that?

0:37:36.760 --> 0:37:39.279
<v Speaker 1>And I think focusing on what is possible for me

0:37:39.400 --> 0:37:40.960
<v Speaker 1>knowing that has been really helpful.

0:37:41.680 --> 0:37:45.080
<v Speaker 2>How did it affect your family and your little one

0:37:45.320 --> 0:37:48.600
<v Speaker 2>and your husband and how's that relationship today?

0:37:48.840 --> 0:37:52.960
<v Speaker 3>Yeah, my husband was just extraordinary.

0:37:54.239 --> 0:37:57.600
<v Speaker 1>I think it was my mum who said he was

0:37:57.600 --> 0:37:59.640
<v Speaker 1>worth marrying just for the first few weeks after I

0:37:59.640 --> 0:38:00.200
<v Speaker 1>got die.

0:38:00.000 --> 0:38:01.920
<v Speaker 3>He knowsed to nothing else. She was like, it was

0:38:01.960 --> 0:38:03.080
<v Speaker 3>worth it. For those three weeks.

0:38:04.640 --> 0:38:08.240
<v Speaker 1>He was so steady, and he figured out really quickly

0:38:08.440 --> 0:38:10.600
<v Speaker 1>what I needed. And that's not what everyone needs, but

0:38:10.640 --> 0:38:14.080
<v Speaker 1>what I needed was like a fierce belief I was

0:38:14.120 --> 0:38:16.279
<v Speaker 1>going to be okay. I needed to be surrounded by that.

0:38:16.280 --> 0:38:19.080
<v Speaker 1>That's what worked for me. I think for some people

0:38:19.080 --> 0:38:20.880
<v Speaker 1>that would be quite distressing, but for me, that's what

0:38:20.960 --> 0:38:21.440
<v Speaker 1>I needed.

0:38:21.520 --> 0:38:22.400
<v Speaker 3>And so he did that.

0:38:22.840 --> 0:38:25.640
<v Speaker 1>And I'm sure he had moments with other people and

0:38:25.760 --> 0:38:28.919
<v Speaker 1>away from me where he had an enormous amount of doubt.

0:38:28.920 --> 0:38:31.359
<v Speaker 1>He must have, but he just did not show that.

0:38:31.840 --> 0:38:33.960
<v Speaker 1>After that first week. He never cried in front of me.

0:38:34.400 --> 0:38:36.320
<v Speaker 1>He never showed Whenever I would bring things up, he

0:38:36.360 --> 0:38:38.160
<v Speaker 1>would be like, no, I'm not worried about that, because

0:38:38.160 --> 0:38:41.440
<v Speaker 1>you're going to be fine. And he was so certain,

0:38:43.560 --> 0:38:46.240
<v Speaker 1>and it was I think like it was his belief

0:38:46.280 --> 0:38:48.680
<v Speaker 1>in me being okay that made me believe it was true.

0:38:50.920 --> 0:38:52.560
<v Speaker 1>But I think after a couple of years of that,

0:38:52.600 --> 0:38:56.000
<v Speaker 1>once I was through the worst of it living in

0:38:56.000 --> 0:38:58.320
<v Speaker 1>that lockdown in Melbourne, I think that really affected him.

0:38:58.719 --> 0:39:02.480
<v Speaker 1>You know, he'd sort of been so stoic and not

0:39:02.560 --> 0:39:05.399
<v Speaker 1>really gotten to fall apart at all, and I think

0:39:05.400 --> 0:39:06.520
<v Speaker 1>it caught up with him for a bit.

0:39:06.760 --> 0:39:08.160
<v Speaker 3>I think now he's doing really.

0:39:08.040 --> 0:39:10.720
<v Speaker 1>Well, but I think he had a tough period then

0:39:11.360 --> 0:39:13.720
<v Speaker 1>it was almost like it was delayed because he couldn't

0:39:13.719 --> 0:39:15.239
<v Speaker 1>feel the trauma at the time because he had a

0:39:15.320 --> 0:39:18.080
<v Speaker 1>job to do. Yes, exactly, once I was okay, he

0:39:18.480 --> 0:39:22.799
<v Speaker 1>could come for par when I was I've written this

0:39:22.840 --> 0:39:24.720
<v Speaker 1>book with my friend Rosie.

0:39:24.640 --> 0:39:28.960
<v Speaker 2>Yeah, broken brains, Yes, we're going to beat.

0:39:29.120 --> 0:39:32.120
<v Speaker 1>It, thank you, which is about which is about all

0:39:32.200 --> 0:39:33.400
<v Speaker 1>of this. But in that book, I talked to a

0:39:33.440 --> 0:39:36.160
<v Speaker 1>whole lot of experts about the experience of people who

0:39:36.160 --> 0:39:39.279
<v Speaker 1>are unwell, and one of the questions I was quite

0:39:39.360 --> 0:39:41.840
<v Speaker 1>scared to ask was around what happens to the children

0:39:42.000 --> 0:39:44.160
<v Speaker 1>of people who are quite unwell and how does that

0:39:44.200 --> 0:39:48.920
<v Speaker 1>affect those kids, because I kind of didn't want to know. Actually,

0:39:49.640 --> 0:39:52.960
<v Speaker 1>for kids who are careers to their parents, not necessarily

0:39:53.080 --> 0:39:55.560
<v Speaker 1>primary carers, where it's all on that kid's shoulders, but

0:39:55.640 --> 0:39:58.040
<v Speaker 1>if they're a secondary care if they're sort of helping

0:39:58.120 --> 0:40:00.759
<v Speaker 1>with the care but they're not the main one, it

0:40:00.920 --> 0:40:04.799
<v Speaker 1>can be extraordinary for them. Most of the outcomes are

0:40:04.920 --> 0:40:09.680
<v Speaker 1>positive that those kids have greater sense of responsibility, greater

0:40:10.280 --> 0:40:16.160
<v Speaker 1>capacity for empathy, that they're more likely to understand the

0:40:16.239 --> 0:40:19.120
<v Speaker 1>importance of putting others first, that they're more helpful, they

0:40:19.160 --> 0:40:21.960
<v Speaker 1>have a greater sense of self and a sense of purpose.

0:40:22.760 --> 0:40:26.759
<v Speaker 1>And I remember hearing about this from a psychologist, a

0:40:26.840 --> 0:40:28.320
<v Speaker 1>child psychologist, when I was writing.

0:40:28.120 --> 0:40:30.880
<v Speaker 3>The book, and just thinking, that's my kid. You're just

0:40:30.960 --> 0:40:31.919
<v Speaker 3>describing my kids.

0:40:32.920 --> 0:40:35.799
<v Speaker 1>Who is that he's that he grew up around all

0:40:35.880 --> 0:40:39.520
<v Speaker 1>of this, and he grew up at two not being

0:40:39.560 --> 0:40:42.239
<v Speaker 1>the person in the house who was first. You know,

0:40:42.400 --> 0:40:44.600
<v Speaker 1>his needs were second, because he was constantly being told

0:40:44.640 --> 0:40:46.560
<v Speaker 1>you gotta be quiet because mum's resting, or you know,

0:40:46.640 --> 0:40:49.040
<v Speaker 1>got to not fly Spider Man into Mum's head.

0:40:49.040 --> 0:40:51.439
<v Speaker 2>That stuff. For a kid to compute that at that age,

0:40:51.440 --> 0:40:55.120
<v Speaker 2>because it's all about me, me, me, me me, they

0:40:55.120 --> 0:40:57.279
<v Speaker 2>should be Yeah, of course, of course, and he sort

0:40:57.320 --> 0:40:58.000
<v Speaker 2>of didn't get to be.

0:40:58.440 --> 0:41:01.320
<v Speaker 1>But as a result, he is such a compassionate and

0:41:01.480 --> 0:41:04.279
<v Speaker 1>kind kid. And you know, I always worry we're going

0:41:04.360 --> 0:41:06.680
<v Speaker 1>to see the damage that me being sick has done

0:41:06.719 --> 0:41:09.120
<v Speaker 1>to him, But he's nine going on ten, and I

0:41:09.200 --> 0:41:11.600
<v Speaker 1>don't see it yet. All I see is that he's

0:41:11.680 --> 0:41:13.640
<v Speaker 1>just an extraordinary person as a result.

0:41:13.760 --> 0:41:17.600
<v Speaker 2>With parents like yourself, absolutely positive that he's going to

0:41:18.040 --> 0:41:22.000
<v Speaker 2>grow up driven, positive, compassionate and pathetic like you are.

0:41:22.640 --> 0:41:26.560
<v Speaker 2>So a final question for you, what is next for you?

0:41:28.440 --> 0:41:30.160
<v Speaker 1>That's really that's the first time in my life I

0:41:30.200 --> 0:41:32.000
<v Speaker 1>think that's a really hard question to answer because I

0:41:32.120 --> 0:41:35.160
<v Speaker 1>really wanted to write this book, and now it's done, and.

0:41:35.200 --> 0:41:37.279
<v Speaker 3>I'm going to now I'm going to figure out.

0:41:37.200 --> 0:41:39.840
<v Speaker 2>What to do next, your next goal, your next purpose.

0:41:40.320 --> 0:41:43.760
<v Speaker 1>Because I've written it with my friend Rosie, who experienced

0:41:43.760 --> 0:41:46.880
<v Speaker 1>some pretty horrific childhood trauma, and we look at her

0:41:46.960 --> 0:41:49.279
<v Speaker 1>experience of mental illness and mine of physical illness, and

0:41:49.360 --> 0:41:52.480
<v Speaker 1>how she has had experience of physical ill health as

0:41:52.560 --> 0:41:54.400
<v Speaker 1>the result of her mental health, and I've had an

0:41:54.480 --> 0:41:56.640
<v Speaker 1>experience of mental ill health as a result of what

0:41:56.680 --> 0:41:59.879
<v Speaker 1>I've gone through. And we've sort of explored this false

0:42:00.040 --> 0:42:01.680
<v Speaker 1>binary we all come up with where it's like, oh,

0:42:01.719 --> 0:42:04.320
<v Speaker 1>the mentals over here and the physicals over there, Like

0:42:04.400 --> 0:42:06.759
<v Speaker 1>they're both happening in your body. In my case, they're

0:42:06.760 --> 0:42:09.560
<v Speaker 1>both happening in the brain. These lines we draw around them,

0:42:09.640 --> 0:42:12.640
<v Speaker 1>these barriers, they might be helpful for diagnosis and things

0:42:12.680 --> 0:42:15.080
<v Speaker 1>like that, but they're not helpful as a human being.

0:42:17.200 --> 0:42:19.879
<v Speaker 1>And it's been such a joy sort of having those conversations.

0:42:19.960 --> 0:42:21.600
<v Speaker 1>And I've found that for a lot of people with

0:42:21.680 --> 0:42:25.160
<v Speaker 1>mental health challenges, they found my experience quite validating because

0:42:26.040 --> 0:42:28.120
<v Speaker 1>I tell you, I've been through some of the hardest

0:42:28.120 --> 0:42:30.759
<v Speaker 1>physical stuff a human body can go through. And I

0:42:30.880 --> 0:42:33.360
<v Speaker 1>would have brain surgery ten times over again before I

0:42:33.400 --> 0:42:35.720
<v Speaker 1>had to go through that period of being mentally unwell

0:42:35.760 --> 0:42:38.040
<v Speaker 1>before the first surgery. That was the worst thing I've

0:42:38.040 --> 0:42:41.360
<v Speaker 1>ever done. It was harder than the physical way harder.

0:42:43.200 --> 0:42:44.600
<v Speaker 1>And I know that's helped a lot of people who

0:42:44.640 --> 0:42:48.680
<v Speaker 1>felt like their experience wasn't significant or relevant or important.

0:42:50.320 --> 0:42:52.279
<v Speaker 1>So that's a real joy, I think being allowed to

0:42:52.320 --> 0:42:53.919
<v Speaker 1>talk about this book finally rather than.

0:42:53.880 --> 0:42:54.239
<v Speaker 3>Just write it.

0:42:55.000 --> 0:42:55.960
<v Speaker 2>And why can we get the book?

0:42:56.000 --> 0:42:56.400
<v Speaker 1>Do you know?

0:42:56.520 --> 0:43:00.440
<v Speaker 3>Oh, you should be able to get everywhere everywhere, bad bookstores, like.

0:43:03.040 --> 0:43:05.160
<v Speaker 2>I know my books have ended up in some little

0:43:05.200 --> 0:43:10.000
<v Speaker 2>bookstores and you know, probably probably free now. But Jimiller,

0:43:10.160 --> 0:43:12.480
<v Speaker 2>thank you so much. Listen, best of luck with everything

0:43:12.560 --> 0:43:14.240
<v Speaker 2>you do, and send my love to your family.

0:43:14.320 --> 0:43:15.920
<v Speaker 3>Of course, thank you, thank you, thank you for your

0:43:15.960 --> 0:43:16.800
<v Speaker 3>wonderful questions.

0:43:18.360 --> 0:43:22.560
<v Speaker 2>Jimiller's book is called Broken Brains and it's out now.

0:43:23.320 --> 0:43:26.560
<v Speaker 2>You can also follow Jumilla on Instagram. I'll put all

0:43:26.600 --> 0:43:30.040
<v Speaker 2>the details in the show notes. Thanks for joining me

0:43:30.200 --> 0:43:33.600
<v Speaker 2>on this episode of Headgame. If you love listening to

0:43:33.680 --> 0:43:37.480
<v Speaker 2>this podcast, please share it with a friend, or you

0:43:37.600 --> 0:43:40.799
<v Speaker 2>can leave me a review on your favorite listening app.

0:43:41.560 --> 0:43:44.680
<v Speaker 2>I'm Att Middleton. Catch you in the next episode.