1 00:00:00,200 --> 00:00:07,480 Speaker 1: This episode of Headgame was recorded on Gadigal Lands. 2 00:00:05,400 --> 00:00:09,160 Speaker 2: August twenty seventeen. And Jamilla Risve is walking into her 3 00:00:09,200 --> 00:00:13,800 Speaker 2: GP's office. She thinks she might be pregnant. Being just 4 00:00:13,880 --> 00:00:16,640 Speaker 2: two years since she and her husband welcome their son, 5 00:00:17,000 --> 00:00:20,200 Speaker 2: she is a little concerned about managing two children under 6 00:00:20,239 --> 00:00:24,320 Speaker 2: the age of three. Her GP orders the usual tests, 7 00:00:24,560 --> 00:00:30,240 Speaker 2: an ultrasound and bloods, With results inconclusive. She's sent to 8 00:00:30,280 --> 00:00:34,720 Speaker 2: specialists for a closer examination. Instead of finding a baby, 9 00:00:35,159 --> 00:00:40,279 Speaker 2: doctors discover a rare tumor in Jimilla's brain. The diagnosis 10 00:00:40,280 --> 00:00:44,519 Speaker 2: triggers a harrowing treatment plan, two rounds of surgery and 11 00:00:44,640 --> 00:00:48,360 Speaker 2: thirty six rounds of radiation, the effects of which she 12 00:00:48,440 --> 00:00:53,320 Speaker 2: still battles to this day. I'm at Middleton and this 13 00:00:53,600 --> 00:00:59,040 Speaker 2: is Headgame today, Australian author and journalist Jamilla Risve on 14 00:00:59,240 --> 00:01:05,640 Speaker 2: fighting a one in a million brain tumor. Now, Jamila, 15 00:01:05,800 --> 00:01:07,560 Speaker 2: you wear many hats, don't you. Yeah? 16 00:01:07,560 --> 00:01:07,880 Speaker 3: I do. 17 00:01:07,920 --> 00:01:10,000 Speaker 1: Actually, I look really good in hats. That's one of Like, 18 00:01:10,000 --> 00:01:13,200 Speaker 1: that's one of my that's my I don't have one today, 19 00:01:13,240 --> 00:01:15,200 Speaker 1: but like it's my humble brag. I'm someone when you 20 00:01:15,200 --> 00:01:17,800 Speaker 1: get told to put on a hat I look good. Yeah, 21 00:01:18,040 --> 00:01:22,280 Speaker 1: I think I'm someone who, uh most people when they 22 00:01:22,480 --> 00:01:24,440 Speaker 1: describe me when I've left jobs and stuff like that, 23 00:01:24,560 --> 00:01:27,120 Speaker 1: enthusiastic tends to be the word that gets thrown around 24 00:01:27,120 --> 00:01:27,480 Speaker 1: the most. 25 00:01:27,600 --> 00:01:29,680 Speaker 2: I can feel that. I can feel that energy. 26 00:01:29,520 --> 00:01:33,840 Speaker 1: Or any But when you're enthusiastic, you try. You tend 27 00:01:33,840 --> 00:01:35,240 Speaker 1: to want to do all the things right. And I'm 28 00:01:35,240 --> 00:01:37,480 Speaker 1: someone who has always sort of felt like there's not 29 00:01:37,640 --> 00:01:39,360 Speaker 1: enough time to do all the things I'd like to do, 30 00:01:39,680 --> 00:01:41,360 Speaker 1: so try and wear as many hats as i can. 31 00:01:41,800 --> 00:01:44,360 Speaker 2: Yes, I've seen and journalists as well. I'm sort of 32 00:01:44,400 --> 00:01:48,240 Speaker 2: reading through the list and I'm loving it because I 33 00:01:48,320 --> 00:01:51,960 Speaker 2: completely relate to that. You know, jumping from from hat 34 00:01:52,000 --> 00:01:56,000 Speaker 2: to hat, you know, people to people, different environments, different locations, 35 00:01:56,240 --> 00:01:58,640 Speaker 2: surrounding yourself with different people, You're always going to learn 36 00:01:58,720 --> 00:02:01,360 Speaker 2: and grow and become a better version of who you are. 37 00:02:02,280 --> 00:02:06,280 Speaker 2: Take me back though, to your Mama Mia days, Yeah, 38 00:02:06,320 --> 00:02:09,160 Speaker 2: because that's ultimately where it's sort of not all started, 39 00:02:09,160 --> 00:02:11,799 Speaker 2: but that's where you know, you sort of were thrust 40 00:02:11,840 --> 00:02:16,640 Speaker 2: into into the limelight as such, and your messaging and 41 00:02:16,720 --> 00:02:21,120 Speaker 2: then you know your values behind what Mama Mia encapsulated 42 00:02:21,200 --> 00:02:22,440 Speaker 2: taught me through that. Yeah. 43 00:02:22,480 --> 00:02:25,040 Speaker 1: Sure, So I'd been working in politics, so I'd very 44 00:02:25,120 --> 00:02:28,680 Speaker 1: much been around media and around that spotlight you talk about, 45 00:02:28,680 --> 00:02:29,799 Speaker 1: but very much not in it. 46 00:02:30,240 --> 00:02:30,560 Speaker 2: I was. 47 00:02:30,600 --> 00:02:33,400 Speaker 1: I was behind the scenes helping prime ministers and ministers 48 00:02:33,440 --> 00:02:35,840 Speaker 1: get their message across. But the worst thing in that 49 00:02:35,960 --> 00:02:38,240 Speaker 1: job you could possibly do was get caught on camera. 50 00:02:38,919 --> 00:02:41,200 Speaker 1: Your job was to never be, never be seen. 51 00:02:41,639 --> 00:02:43,360 Speaker 2: Oh so that's what you were. You were you were 52 00:02:43,440 --> 00:02:47,120 Speaker 2: ultimately were you scripting stuff for politicians. 53 00:02:46,560 --> 00:02:49,680 Speaker 3: And media advisor and buchw of different things. 54 00:02:50,000 --> 00:02:50,520 Speaker 2: I love that. 55 00:02:50,760 --> 00:02:53,680 Speaker 1: And then I could see that the government wasn't likely 56 00:02:53,760 --> 00:02:57,000 Speaker 1: to win, and to be honest, I was really pragmatic. 57 00:02:57,080 --> 00:02:58,799 Speaker 1: I could see a lot of people with the same 58 00:02:58,840 --> 00:03:01,200 Speaker 1: skills as me. We're about to be unemployed at the 59 00:03:01,200 --> 00:03:04,040 Speaker 1: same time, and I was looking ahead and thinking. 60 00:03:03,800 --> 00:03:05,120 Speaker 3: Well what would I do? 61 00:03:06,160 --> 00:03:09,440 Speaker 1: And Lisa Wilkinson tweeted the job at Mamma Mia and 62 00:03:09,480 --> 00:03:12,120 Speaker 1: I wouldn't have seen it otherwise. I clicked on it 63 00:03:12,160 --> 00:03:14,079 Speaker 1: and I applied and I got the job and moved 64 00:03:14,080 --> 00:03:16,120 Speaker 1: to Sydney and it all happened in about two weeks. 65 00:03:16,680 --> 00:03:17,799 Speaker 3: So it was a real whirlwind. 66 00:03:18,200 --> 00:03:21,000 Speaker 2: So you went some Ultimately, you went from the political 67 00:03:21,040 --> 00:03:24,799 Speaker 2: realm into what realm is Mama Mia, because it's quite 68 00:03:25,120 --> 00:03:28,680 Speaker 2: quite a jump from one jib bowl to another. 69 00:03:29,000 --> 00:03:30,880 Speaker 1: And actually I think what Mamma Mia is today is 70 00:03:30,919 --> 00:03:32,960 Speaker 1: quite different to what it was in twenty twelve. So 71 00:03:33,120 --> 00:03:36,520 Speaker 1: in twenty twelve, Mia Friedman had turned her blog into 72 00:03:36,600 --> 00:03:40,040 Speaker 1: a website and she had a company that was running 73 00:03:40,040 --> 00:03:43,720 Speaker 1: this women's website and publishing every day and they probably 74 00:03:43,760 --> 00:03:46,440 Speaker 1: had three, maybe three writers I think working there. The 75 00:03:46,440 --> 00:03:49,440 Speaker 1: whole company was about a dozen people. We were working 76 00:03:49,440 --> 00:03:52,200 Speaker 1: out of this tiny little office in Lime Street, down 77 00:03:52,240 --> 00:03:55,440 Speaker 1: by the wharf in Sydney. We didn't have a meeting room, 78 00:03:55,520 --> 00:03:58,080 Speaker 1: so we used to have all our meetings out on 79 00:03:58,200 --> 00:04:00,760 Speaker 1: the balcony because there was a table out there that 80 00:04:00,840 --> 00:04:01,840 Speaker 1: was a bit bigger. 81 00:04:01,640 --> 00:04:02,680 Speaker 2: Good old startups. 82 00:04:02,960 --> 00:04:05,200 Speaker 1: It was a proper startup. It was a proper startup. 83 00:04:05,920 --> 00:04:08,160 Speaker 1: But it really suited me actually because I think to 84 00:04:08,240 --> 00:04:10,480 Speaker 1: thrive in politics, you've got to be happy with chaos 85 00:04:10,760 --> 00:04:13,120 Speaker 1: and you've got to be happy with making what you 86 00:04:13,160 --> 00:04:15,800 Speaker 1: can out of what you've got, and a startup isn't 87 00:04:16,080 --> 00:04:18,040 Speaker 1: dissimilar in that regard. You've just got to hit the 88 00:04:18,040 --> 00:04:20,600 Speaker 1: ground running. There's no time to say, oh, I don't 89 00:04:20,600 --> 00:04:23,279 Speaker 1: want to do that. Job, or I think I'd be 90 00:04:23,279 --> 00:04:26,520 Speaker 1: better suited to this. You just like you just start right, 91 00:04:26,560 --> 00:04:28,040 Speaker 1: you roll your sleeves up, and you do whatever you're 92 00:04:28,040 --> 00:04:31,880 Speaker 1: asked to do. And I loved working there, and I 93 00:04:31,920 --> 00:04:34,400 Speaker 1: worked there for almost four years. And during those four 94 00:04:34,480 --> 00:04:36,800 Speaker 1: years we went from twelve to one hundred and twenty staff, 95 00:04:37,000 --> 00:04:38,960 Speaker 1: so it was a massive expansion. 96 00:04:39,160 --> 00:04:41,680 Speaker 2: Wow, so you're going along and I take it you're 97 00:04:41,720 --> 00:04:45,040 Speaker 2: working all hours under the sun here right. What was 98 00:04:45,080 --> 00:04:48,159 Speaker 2: the messaging behind Mama Mia? How did that look on 99 00:04:48,200 --> 00:04:50,040 Speaker 2: a day to day basis going into work. 100 00:04:50,400 --> 00:04:53,040 Speaker 1: Yeah, it was incredibly empowering to work there. I've got 101 00:04:53,080 --> 00:04:56,240 Speaker 1: to say I had a great time. I loved working 102 00:04:56,680 --> 00:04:59,280 Speaker 1: with a lot of women because in politics, certainly when 103 00:04:59,279 --> 00:05:00,919 Speaker 1: I was there, so we didn't work with a lot 104 00:05:00,960 --> 00:05:02,719 Speaker 1: of women. At the time, it was almost all women, 105 00:05:02,839 --> 00:05:04,560 Speaker 1: so it kind of gone. It was a real shift 106 00:05:04,600 --> 00:05:06,680 Speaker 1: from vast majority men who I was working with the 107 00:05:06,720 --> 00:05:11,320 Speaker 1: politics to vast majority women at Mama Mea. It certainly 108 00:05:11,400 --> 00:05:15,880 Speaker 1: was back then a website with a really strong feminist message, 109 00:05:16,040 --> 00:05:19,680 Speaker 1: and I enjoyed that. I enjoyed putting a gender lens 110 00:05:19,839 --> 00:05:22,799 Speaker 1: on whatever happened to be going on that day, whether 111 00:05:22,880 --> 00:05:27,200 Speaker 1: it was celebrity or current affairs or politics or sport, whatever. 112 00:05:26,920 --> 00:05:27,600 Speaker 3: It happened to be. 113 00:05:28,240 --> 00:05:32,200 Speaker 1: And we didn't have a lot of boundaries because it 114 00:05:32,279 --> 00:05:34,520 Speaker 1: was new and it was a startup. There weren't many 115 00:05:34,560 --> 00:05:37,839 Speaker 1: processes in place, not many systems that could be tricky 116 00:05:37,880 --> 00:05:40,960 Speaker 1: at times. But it also gave us enormous freedom in 117 00:05:41,000 --> 00:05:43,200 Speaker 1: that if we felt like launching something new or doing 118 00:05:43,200 --> 00:05:45,840 Speaker 1: something differently, like, we didn't have to ask anyone, We'd 119 00:05:45,920 --> 00:05:46,360 Speaker 1: just do it. 120 00:05:46,960 --> 00:05:50,640 Speaker 2: I find that fascinating. And also, like you said, there's 121 00:05:50,640 --> 00:05:53,080 Speaker 2: no boundaries to it. You can you can ultimately say 122 00:05:53,279 --> 00:05:56,160 Speaker 2: and try and get away with what you can right 123 00:05:57,400 --> 00:05:59,599 Speaker 2: in a pure way. And I found it really interesting 124 00:05:59,640 --> 00:06:01,839 Speaker 2: that you said went from a sort of male dominant 125 00:06:01,839 --> 00:06:06,400 Speaker 2: political realm to being, you know, amongst women and free. 126 00:06:06,960 --> 00:06:08,560 Speaker 2: Did it Do you felt like that give you a 127 00:06:08,600 --> 00:06:12,120 Speaker 2: sense of freedom, a sense of liberation, and a sense 128 00:06:12,160 --> 00:06:12,559 Speaker 2: of power. 129 00:06:13,440 --> 00:06:14,520 Speaker 3: Yeah, maybe a little bit. 130 00:06:14,600 --> 00:06:14,920 Speaker 2: I think. 131 00:06:15,200 --> 00:06:18,159 Speaker 1: I think I was confused at the start because I 132 00:06:18,200 --> 00:06:20,960 Speaker 1: started working in politics at twenty one, and so I 133 00:06:21,000 --> 00:06:23,680 Speaker 1: hadn't really had another grown up job in my head, 134 00:06:24,080 --> 00:06:26,200 Speaker 1: and so the first thing you do is what you 135 00:06:26,240 --> 00:06:29,159 Speaker 1: think is normal, and so working in politics, i'd been 136 00:06:29,200 --> 00:06:31,719 Speaker 1: there four or five years, and that was how I 137 00:06:31,720 --> 00:06:33,880 Speaker 1: thought the world worked, I suppose, and that's what I 138 00:06:33,920 --> 00:06:36,680 Speaker 1: was used to. And I was really used to quite 139 00:06:36,720 --> 00:06:40,560 Speaker 1: a masculine environment without recognizing it as that. Yeah, I 140 00:06:40,600 --> 00:06:43,279 Speaker 1: was used to an environment where people were extremely confident. 141 00:06:43,440 --> 00:06:45,880 Speaker 1: There was a lot of bravado and you never admitted 142 00:06:45,880 --> 00:06:46,360 Speaker 1: you were wrong. 143 00:06:47,120 --> 00:06:49,279 Speaker 3: And I walked into this. 144 00:06:48,960 --> 00:06:53,479 Speaker 1: This all being politics everywhere, all these young women every day, 145 00:06:53,520 --> 00:06:56,479 Speaker 1: like sorry was the most commonly used word in the office. 146 00:06:56,480 --> 00:06:57,880 Speaker 3: It was like, Oh, I'm so sorry, do you mind 147 00:06:57,880 --> 00:06:59,240 Speaker 3: if I just go to the bathroom? It was like, 148 00:06:59,600 --> 00:07:02,640 Speaker 3: you don't to be sorry for going to please, please go? 149 00:07:03,640 --> 00:07:06,600 Speaker 1: But there was always there was so much apology, and 150 00:07:07,200 --> 00:07:10,720 Speaker 1: I think it really did start to cement a lot 151 00:07:10,720 --> 00:07:13,760 Speaker 1: of my views around what makes people feel confident and 152 00:07:13,840 --> 00:07:15,560 Speaker 1: why it is that women are made to feel not 153 00:07:15,640 --> 00:07:17,920 Speaker 1: so confident, what it is about society that makes women 154 00:07:17,960 --> 00:07:20,680 Speaker 1: not feel confident, and a lot of that is about inequality. 155 00:07:21,280 --> 00:07:23,520 Speaker 1: It does strip your confidence away a lot of the time. 156 00:07:23,640 --> 00:07:26,720 Speaker 1: And there are people who don't fall victim to that, absolutely, 157 00:07:26,800 --> 00:07:28,800 Speaker 1: but for a lot of women, I think the voice 158 00:07:28,800 --> 00:07:30,800 Speaker 1: in their head has been put there by living in 159 00:07:30,840 --> 00:07:34,520 Speaker 1: a pretty gendered society, and one of the things I 160 00:07:34,560 --> 00:07:36,280 Speaker 1: did love about that Mum and me are setting, is 161 00:07:36,400 --> 00:07:39,040 Speaker 1: I suspect similar to an all girls' school, right, was 162 00:07:39,080 --> 00:07:42,600 Speaker 1: that it did give women a place to thrive without 163 00:07:42,680 --> 00:07:44,840 Speaker 1: feeling like they were being pushed out or muscled out 164 00:07:46,800 --> 00:07:48,360 Speaker 1: because it was an all female environment. 165 00:07:48,720 --> 00:07:51,600 Speaker 2: And how important is that is, you know, to give 166 00:07:51,680 --> 00:07:55,040 Speaker 2: people the opportunity to have an all female environment so 167 00:07:55,120 --> 00:07:58,240 Speaker 2: they can gain their confidence, be around like minded people, 168 00:07:58,280 --> 00:08:00,880 Speaker 2: be around you know that home, shall we say, because 169 00:08:00,880 --> 00:08:03,800 Speaker 2: it is really important because when something goes wrong, you 170 00:08:03,840 --> 00:08:05,560 Speaker 2: go back to your own people. You know, you go 171 00:08:05,640 --> 00:08:07,360 Speaker 2: back to your own circle, You go back to your 172 00:08:07,400 --> 00:08:09,800 Speaker 2: own environment, You go back to somewhere where you feel 173 00:08:09,800 --> 00:08:11,280 Speaker 2: comfortable and confident. 174 00:08:11,520 --> 00:08:13,960 Speaker 1: Yeah, I do think that, you know, at a personal level, 175 00:08:13,960 --> 00:08:16,120 Speaker 1: I do think there is something extraordinary about being in 176 00:08:16,160 --> 00:08:17,720 Speaker 1: a room full of women and I get a lot 177 00:08:17,720 --> 00:08:22,440 Speaker 1: of enjoyment and energy from that. Having said that, I 178 00:08:22,440 --> 00:08:26,480 Speaker 1: think my preference would be that we had less gender 179 00:08:26,520 --> 00:08:27,920 Speaker 1: segregated workplaces. 180 00:08:28,000 --> 00:08:30,840 Speaker 3: And interestingly, Australia is one of the worst at this. 181 00:08:31,000 --> 00:08:33,520 Speaker 1: If you look at sort of other OECD countries and stuff, 182 00:08:33,760 --> 00:08:37,320 Speaker 1: Australian workplaces are more gender segregated, which means most of 183 00:08:37,400 --> 00:08:39,760 Speaker 1: us work in a workplace that is dominated by men 184 00:08:39,960 --> 00:08:43,079 Speaker 1: or dominated by women. We don't have as many industries 185 00:08:43,120 --> 00:08:46,040 Speaker 1: professions where it's kind of even and sort of if 186 00:08:46,040 --> 00:08:47,400 Speaker 1: you think about it off the top of your head, 187 00:08:47,800 --> 00:08:49,840 Speaker 1: it tends to be true in your own life. You know, 188 00:08:49,920 --> 00:08:52,400 Speaker 1: my kid goes to a school where he hasn't had 189 00:08:52,400 --> 00:08:55,360 Speaker 1: a male teacher. Yet, there's not many male primary school 190 00:08:55,400 --> 00:08:58,880 Speaker 1: teachers other than the principal. Sometimes you don't get as 191 00:08:58,880 --> 00:09:00,520 Speaker 1: many men who are nurses. You don't get as many 192 00:09:00,520 --> 00:09:02,280 Speaker 1: men who are hairdressers. In the same way, you don't 193 00:09:02,280 --> 00:09:05,600 Speaker 1: get as many women who are electricians, or as many 194 00:09:05,600 --> 00:09:07,920 Speaker 1: women who work in finance. We have quite a gender 195 00:09:07,960 --> 00:09:11,600 Speaker 1: segregative workforce, and I don't think that's a good thing. 196 00:09:11,760 --> 00:09:14,880 Speaker 1: I think that betrays a whole lot of inequalities in 197 00:09:14,920 --> 00:09:18,680 Speaker 1: pay and things like that. But also, the best decisions 198 00:09:18,679 --> 00:09:21,559 Speaker 1: are made when you've got a group of people around 199 00:09:21,600 --> 00:09:24,920 Speaker 1: the table with very different experiences and backgrounds. It avoids 200 00:09:24,960 --> 00:09:27,440 Speaker 1: group think. It means that you can challenge one another. 201 00:09:27,640 --> 00:09:30,640 Speaker 1: Usually means you're representative of whoever you're trying to serve 202 00:09:30,760 --> 00:09:34,840 Speaker 1: or sell to, etc. So I'm kind of I've worked 203 00:09:34,880 --> 00:09:37,480 Speaker 1: in these gender segregated workplaces but actually I'd like to 204 00:09:37,480 --> 00:09:40,400 Speaker 1: see on the whole US move to a place where 205 00:09:40,720 --> 00:09:42,280 Speaker 1: it's more usual to go to work and have a 206 00:09:42,320 --> 00:09:42,880 Speaker 1: mix of people. 207 00:09:43,520 --> 00:09:48,120 Speaker 2: Love that. And so you go from this political career 208 00:09:48,200 --> 00:09:51,840 Speaker 2: to jumping in into the limelight, I suppose because you 209 00:09:51,880 --> 00:09:54,600 Speaker 2: went from behind the scenes, people are starting to know 210 00:09:54,720 --> 00:09:57,840 Speaker 2: your name, starting to recognize you, You start to build 211 00:09:57,840 --> 00:10:01,880 Speaker 2: a profile in the limelight. How did you manage that 212 00:10:01,960 --> 00:10:05,400 Speaker 2: and how did that feel when you were subconsciously doing 213 00:10:05,440 --> 00:10:07,760 Speaker 2: it without really realizing that you were right? 214 00:10:08,000 --> 00:10:10,760 Speaker 1: Yeah, look, I think you felt really good. I'm a 215 00:10:10,760 --> 00:10:12,920 Speaker 1: bit of a show off, and you know, I was 216 00:10:13,880 --> 00:10:15,840 Speaker 1: a kid who liked being in the school plays and 217 00:10:15,840 --> 00:10:16,240 Speaker 1: stuff like. 218 00:10:16,280 --> 00:10:17,360 Speaker 3: I quite enjoyed it. 219 00:10:18,400 --> 00:10:21,200 Speaker 1: And also, in politics, being part of a political party 220 00:10:21,280 --> 00:10:24,400 Speaker 1: or a government means that your opinion sort of has 221 00:10:24,440 --> 00:10:26,400 Speaker 1: to fall in step with the government, right, you have 222 00:10:26,480 --> 00:10:28,400 Speaker 1: to parrot the lines of the government, even if you 223 00:10:28,440 --> 00:10:31,200 Speaker 1: personally disagree. And so I found there was a lot 224 00:10:31,240 --> 00:10:34,640 Speaker 1: of freedom in being able to have my own opinion publicly, 225 00:10:35,160 --> 00:10:37,520 Speaker 1: and so I really, I think reveled in it for 226 00:10:37,559 --> 00:10:41,720 Speaker 1: a while. But I did find that as a writer, 227 00:10:42,679 --> 00:10:45,280 Speaker 1: the more I felt like people knew who I was, 228 00:10:46,280 --> 00:10:49,720 Speaker 1: the less well I wrote because I found that I 229 00:10:49,760 --> 00:10:50,800 Speaker 1: started to write scared. 230 00:10:51,640 --> 00:10:54,480 Speaker 2: I would be writing interesting, really interesting, and. 231 00:10:54,480 --> 00:10:56,360 Speaker 1: I'd be so worried about who might read it and 232 00:10:56,400 --> 00:10:59,120 Speaker 1: who might hate it, and if I get criticized, and 233 00:10:59,160 --> 00:11:00,839 Speaker 1: I think, I certainly. 234 00:11:00,600 --> 00:11:02,040 Speaker 3: I'm interested to know what it was like for you. 235 00:11:02,440 --> 00:11:05,959 Speaker 1: I found an effect of my work for the worse 236 00:11:06,880 --> 00:11:09,400 Speaker 1: because I was I'd sort of write something really boring 237 00:11:09,679 --> 00:11:11,720 Speaker 1: because I'd sit down to write an opinion I had, 238 00:11:12,160 --> 00:11:14,560 Speaker 1: and then I'd almost pull back a little bit here 239 00:11:14,640 --> 00:11:17,000 Speaker 1: because I didn't want to upset anyone. There, Like a 240 00:11:17,000 --> 00:11:18,640 Speaker 1: little bit here, and you pull it right back till 241 00:11:18,679 --> 00:11:20,880 Speaker 1: it was just boring. It was a really vanilla. 242 00:11:21,120 --> 00:11:24,480 Speaker 2: There's no substance in it. Yeah, there's nothing in there, right. 243 00:11:24,800 --> 00:11:27,160 Speaker 1: And it did take me, I think, a good few 244 00:11:27,280 --> 00:11:31,040 Speaker 1: years to genuinely be comfortable with the fact that there 245 00:11:31,080 --> 00:11:33,160 Speaker 1: were always going to be people out there who disagreed 246 00:11:33,200 --> 00:11:34,760 Speaker 1: with me, and there were always going to. 247 00:11:34,679 --> 00:11:35,960 Speaker 3: Be people out there who didn't like me. 248 00:11:36,679 --> 00:11:41,160 Speaker 1: And I also think I kind of got there by 249 00:11:41,200 --> 00:11:44,040 Speaker 1: working with a team and watching younger team members come 250 00:11:44,080 --> 00:11:46,000 Speaker 1: through and go through the same thing and sort of 251 00:11:46,040 --> 00:11:50,000 Speaker 1: supporting them. I think it was almost like I had 252 00:11:50,040 --> 00:11:52,280 Speaker 1: to do the teaching to start believing myself. 253 00:11:52,559 --> 00:11:55,040 Speaker 2: Yeah, yeah, of course. And how important is it to 254 00:11:55,080 --> 00:11:58,160 Speaker 2: stay true to yourself ultimately through writing. 255 00:11:58,080 --> 00:12:02,080 Speaker 1: Yeah, enormously important. But I also think what you can't 256 00:12:02,160 --> 00:12:05,160 Speaker 1: do is give in to the idea that criticism doesn't matter. 257 00:12:05,360 --> 00:12:07,440 Speaker 1: Because criticism does matter, and you should be open to 258 00:12:07,440 --> 00:12:10,880 Speaker 1: taking criticism. But a nameless, faceless person on the internet 259 00:12:11,040 --> 00:12:13,520 Speaker 1: is not the person to take your critique from. 260 00:12:13,600 --> 00:12:13,800 Speaker 3: Right. 261 00:12:14,760 --> 00:12:16,400 Speaker 1: One of the things that I found really helpful and 262 00:12:16,480 --> 00:12:18,320 Speaker 1: that I used to try and make all the team 263 00:12:18,360 --> 00:12:21,400 Speaker 1: members do back in the day was to sit down 264 00:12:21,559 --> 00:12:24,400 Speaker 1: and assemble a group of people in your head, or 265 00:12:24,520 --> 00:12:26,440 Speaker 1: cut their pictures out of the newspaper, whatever you wanted 266 00:12:26,480 --> 00:12:26,640 Speaker 1: to do. 267 00:12:26,760 --> 00:12:28,520 Speaker 3: It could be a mix of people. 268 00:12:28,240 --> 00:12:32,840 Speaker 1: You knew, tro darts of them, and a mix of 269 00:12:32,880 --> 00:12:35,280 Speaker 1: people you didn't whose opinion you cared about, you know. 270 00:12:35,360 --> 00:12:36,920 Speaker 1: For me, it was I remember saying, like, I care 271 00:12:36,920 --> 00:12:40,000 Speaker 1: about my dad's opinion on my writing. I care about 272 00:12:41,000 --> 00:12:43,280 Speaker 1: I was very close to my former boss in politics, 273 00:12:43,400 --> 00:12:45,679 Speaker 1: Kate Elis. I cared about her opinion. I remember think 274 00:12:45,800 --> 00:12:48,560 Speaker 1: I remember saying, I think I care about Oprah's opinion. 275 00:12:48,760 --> 00:12:50,520 Speaker 1: You know, it was a mixture of people I knew 276 00:12:50,520 --> 00:12:53,240 Speaker 1: and didn't know, And so when I did get criticized, 277 00:12:53,600 --> 00:12:57,240 Speaker 1: I would, sometimes practically or sometimes just in my head, 278 00:12:57,760 --> 00:13:01,320 Speaker 1: run what i'd written or what i'd see by those people, 279 00:13:01,480 --> 00:13:03,800 Speaker 1: and I go, what would they say? 280 00:13:03,880 --> 00:13:05,679 Speaker 3: What would they think? And sometimes I call them and 281 00:13:05,720 --> 00:13:06,200 Speaker 3: find out. 282 00:13:07,240 --> 00:13:09,160 Speaker 1: And what I tried to do is narrow it down 283 00:13:09,200 --> 00:13:12,480 Speaker 1: and say, absolutely, I am up for criticism because I 284 00:13:12,520 --> 00:13:14,760 Speaker 1: can get it wrong sometimes, I can be off base sometimes, 285 00:13:16,200 --> 00:13:18,680 Speaker 1: but I'm not just taking it from everyone. I'm going 286 00:13:18,760 --> 00:13:20,280 Speaker 1: to choose a few people who I care about and 287 00:13:20,280 --> 00:13:22,720 Speaker 1: who I respect, and I'm going to think about what 288 00:13:22,760 --> 00:13:24,679 Speaker 1: they would say. And that sort of kept me honest 289 00:13:24,720 --> 00:13:27,160 Speaker 1: and made sure I was, I think, more nuanced and 290 00:13:27,240 --> 00:13:29,439 Speaker 1: careful in what I wrote and what I said publicly, 291 00:13:30,600 --> 00:13:32,920 Speaker 1: but meant that I didn't give in to the horrible 292 00:13:33,200 --> 00:13:34,160 Speaker 1: trolls on the internet. 293 00:13:42,360 --> 00:13:44,720 Speaker 2: While you're going for all of this, you've got family 294 00:13:44,760 --> 00:13:45,720 Speaker 2: in the background, right. 295 00:13:45,920 --> 00:13:47,200 Speaker 3: Well, sort of just at the start. 296 00:13:47,320 --> 00:13:49,760 Speaker 1: Actually, when I was working at MoMA me Or, I 297 00:13:49,800 --> 00:13:56,319 Speaker 1: met my husband, and yeah, we started a long distance relationship. 298 00:13:56,360 --> 00:13:59,839 Speaker 1: Originally he was in Melbourne, I was in Sydney, and 299 00:14:00,040 --> 00:14:01,480 Speaker 1: then yeah, I was working at my meal when I 300 00:14:01,480 --> 00:14:05,199 Speaker 1: felt pregnant as well, and we had our little boy. 301 00:14:05,040 --> 00:14:09,559 Speaker 2: After that, and did your work affect that relationship between 302 00:14:09,559 --> 00:14:12,000 Speaker 2: you and your husband or did you manage to find 303 00:14:12,040 --> 00:14:14,920 Speaker 2: a great balance and everything was work as a child 304 00:14:14,960 --> 00:14:18,800 Speaker 2: as well doing what you're doing. You're definitely double hatting there. 305 00:14:18,800 --> 00:14:20,000 Speaker 2: It's tough, right, oh for sure. 306 00:14:20,160 --> 00:14:22,120 Speaker 1: And you know, I think we had to figure that 307 00:14:22,160 --> 00:14:25,920 Speaker 1: out together in those early days, and I really thought 308 00:14:26,080 --> 00:14:27,960 Speaker 1: I'd just be able to go I was so naive. 309 00:14:28,120 --> 00:14:29,320 Speaker 1: I just thought I'd be able to go back to 310 00:14:29,320 --> 00:14:31,760 Speaker 1: work and work the way that I used to. I 311 00:14:31,760 --> 00:14:33,800 Speaker 1: think I was thinking of a baby like an accessory 312 00:14:33,880 --> 00:14:37,240 Speaker 1: rather than like I just really did not know what 313 00:14:37,280 --> 00:14:41,680 Speaker 1: I was getting myself into. And I had kids, like 314 00:14:41,880 --> 00:14:43,680 Speaker 1: I had my son much earlier than most of my mates, 315 00:14:44,000 --> 00:14:45,840 Speaker 1: and so I didn't really have a model of how 316 00:14:45,840 --> 00:14:47,920 Speaker 1: to do things, and so I didn't have a lot 317 00:14:47,960 --> 00:14:50,320 Speaker 1: of friends who had kids already, and I think as 318 00:14:50,320 --> 00:14:53,360 Speaker 1: a result, I just sort of was muddling along trying 319 00:14:53,360 --> 00:14:56,440 Speaker 1: to figure it out. But one of the things that 320 00:14:56,480 --> 00:14:59,560 Speaker 1: really helped for us, at least was that my husband 321 00:14:59,600 --> 00:15:02,400 Speaker 1: and I shared care pretty early, so we both went 322 00:15:02,480 --> 00:15:04,920 Speaker 1: part time when my son was about five months old. 323 00:15:04,960 --> 00:15:06,680 Speaker 1: I did the first five months and then from there, 324 00:15:07,080 --> 00:15:11,960 Speaker 1: we shared it together, and for me, that has been 325 00:15:12,040 --> 00:15:15,560 Speaker 1: the game changer in allowing both of us to have 326 00:15:15,640 --> 00:15:19,160 Speaker 1: careers that we love and also have really great relationships 327 00:15:19,160 --> 00:15:22,960 Speaker 1: with our son. And that's not an easy thing to 328 00:15:23,000 --> 00:15:24,760 Speaker 1: do because you've both got to want to do that. 329 00:15:25,120 --> 00:15:27,880 Speaker 1: It's got to be financially possible for you to do that, 330 00:15:28,440 --> 00:15:31,640 Speaker 1: and I know that's not easy for a lot of people, 331 00:15:31,680 --> 00:15:33,840 Speaker 1: but I do think in a partnership, if you can 332 00:15:33,880 --> 00:15:37,000 Speaker 1: find a way early to share the care, it. 333 00:15:36,920 --> 00:15:38,040 Speaker 3: Means no one's the expert. 334 00:15:38,640 --> 00:15:42,960 Speaker 1: Because I think the danger for mums, especially if they're 335 00:15:43,000 --> 00:15:46,240 Speaker 1: in a relationship with a man, is that you have 336 00:15:46,360 --> 00:15:48,560 Speaker 1: the baby and so there's already this like, oh, look, 337 00:15:48,560 --> 00:15:50,440 Speaker 1: you're the one that did all the things. You grew 338 00:15:50,480 --> 00:15:52,480 Speaker 1: the baby, so you must know things when actually don't 339 00:15:52,520 --> 00:15:55,160 Speaker 1: know anything. And then you become the expert in the 340 00:15:55,160 --> 00:15:57,480 Speaker 1: baby because you're the one at home. And once you're 341 00:15:57,520 --> 00:15:59,680 Speaker 1: the expert, you're always the expert. And so you know 342 00:15:59,760 --> 00:16:01,600 Speaker 1: all things, and you're in charge of all the stuff, 343 00:16:01,840 --> 00:16:03,960 Speaker 1: and you're the keeper of the knowledge, and you know 344 00:16:04,000 --> 00:16:06,800 Speaker 1: what snacks at what time, and when bottles have to happen, 345 00:16:06,840 --> 00:16:08,920 Speaker 1: and you know when's too late for a nap and 346 00:16:09,320 --> 00:16:11,920 Speaker 1: the more expertise that you hold and nobody else has 347 00:16:12,440 --> 00:16:14,080 Speaker 1: means that you have to be the one doing all 348 00:16:14,120 --> 00:16:16,840 Speaker 1: of the care. And I think what my husband and I, 349 00:16:17,160 --> 00:16:20,120 Speaker 1: probably by accident rather than design, were able to do 350 00:16:20,800 --> 00:16:23,360 Speaker 1: was that neither of us was the expert in how 351 00:16:23,400 --> 00:16:25,880 Speaker 1: to look after our son. And it means that now 352 00:16:26,840 --> 00:16:29,560 Speaker 1: where I would say we're pretty balanced as parents still, 353 00:16:30,040 --> 00:16:33,840 Speaker 1: and we've established those that shared care and that equality 354 00:16:33,880 --> 00:16:36,720 Speaker 1: between us really really early, and it's followed through our 355 00:16:36,760 --> 00:16:37,600 Speaker 1: son's whole life. 356 00:16:37,880 --> 00:16:40,040 Speaker 2: Wow, and what year was your son born in? 357 00:16:40,600 --> 00:16:42,360 Speaker 3: He was born in June of twenty fifteen. 358 00:16:42,560 --> 00:16:47,960 Speaker 2: And then in twenty seventeen, you feel like you're pregnant again, 359 00:16:48,400 --> 00:16:53,600 Speaker 2: but you have these same sort of symptoms. You think, oh, 360 00:16:53,600 --> 00:16:56,680 Speaker 2: we've got another one on the way, and you go 361 00:16:56,800 --> 00:17:01,040 Speaker 2: to the doctor to confirm. Right, take me back to 362 00:17:01,400 --> 00:17:03,160 Speaker 2: that moment in twenty seventeen. 363 00:17:03,400 --> 00:17:07,600 Speaker 1: Yeah, so I I'd skipped a period and I thought, 364 00:17:07,720 --> 00:17:12,399 Speaker 1: oh God, I must be pregnant. And my first reaction, 365 00:17:12,480 --> 00:17:14,960 Speaker 1: and I will admit, was no, it's too soon, ye 366 00:17:15,080 --> 00:17:15,480 Speaker 1: ready to go? 367 00:17:16,720 --> 00:17:20,680 Speaker 3: Not yet? Not yet. I was gonna wait another year, but. 368 00:17:20,680 --> 00:17:23,320 Speaker 1: The pregnancy test at home said I wasn't pregnant, and 369 00:17:23,359 --> 00:17:25,400 Speaker 1: I thought, oh, maybe that's not right. So I went 370 00:17:25,400 --> 00:17:29,600 Speaker 1: and saw my GP. I wasn't pregnant, and at the time, 371 00:17:29,640 --> 00:17:31,320 Speaker 1: I was on a book tour, and so we sort 372 00:17:31,359 --> 00:17:34,280 Speaker 1: of thought, well, I'm probably just really anxious and sort 373 00:17:34,280 --> 00:17:36,399 Speaker 1: of stressed. My body stressed out doing a lot of 374 00:17:36,400 --> 00:17:39,280 Speaker 1: travel promoting this book, and I'm a bit nervous about 375 00:17:39,280 --> 00:17:42,399 Speaker 1: it all. Maybe that's what's going on. Also, you know, 376 00:17:42,440 --> 00:17:45,000 Speaker 1: my son was only two. I'd only stopped breastfeeding a 377 00:17:45,040 --> 00:17:46,560 Speaker 1: year or so earlier, so maybe things were just a 378 00:17:46,640 --> 00:17:50,320 Speaker 1: bit not back on schedule. Yet. I had a really 379 00:17:50,320 --> 00:17:52,880 Speaker 1: great GP who took me really seriously, which is important. 380 00:17:53,359 --> 00:17:55,680 Speaker 1: I think a lot of gps in that situation would 381 00:17:55,680 --> 00:17:57,760 Speaker 1: have said, you're just a bit stressed, don't worry. She 382 00:17:57,760 --> 00:17:59,840 Speaker 1: had me do some blood tests which showed I had 383 00:17:59,880 --> 00:18:03,480 Speaker 1: no estrogen, and I was like, what was that mean? 384 00:18:04,960 --> 00:18:08,240 Speaker 1: And she said, look, I don't know, because if you 385 00:18:08,240 --> 00:18:11,679 Speaker 1: were in menopause or something early, everything else would be 386 00:18:11,680 --> 00:18:13,719 Speaker 1: different too, like your other hormones would be changing. But 387 00:18:13,800 --> 00:18:17,080 Speaker 1: it's just your estrogen. So she sent me off to 388 00:18:17,119 --> 00:18:19,800 Speaker 1: some specialists and that took a bit of time. I 389 00:18:19,800 --> 00:18:22,639 Speaker 1: think one of the gynecologists was very fancy gynecologist. It 390 00:18:22,640 --> 00:18:24,280 Speaker 1: took me like eight weeks to get in to see her, 391 00:18:24,720 --> 00:18:27,760 Speaker 1: and I also got sent to an endocrinologist, and everything 392 00:18:27,800 --> 00:18:30,640 Speaker 1: sort of happened like they were investigating, but no one 393 00:18:30,680 --> 00:18:32,520 Speaker 1: made me feel panicked. It was very much like, oh, 394 00:18:32,520 --> 00:18:34,280 Speaker 1: I we'll just figure out what's going on with this thing. 395 00:18:35,720 --> 00:18:37,639 Speaker 1: But as part of that, both of them said, you know, 396 00:18:37,680 --> 00:18:39,480 Speaker 1: we're going to do all these different tests to figure 397 00:18:39,480 --> 00:18:41,600 Speaker 1: out what's happening. We do do a brain scan, but 398 00:18:41,960 --> 00:18:43,760 Speaker 1: don't worry about that. It's just to rule things out. 399 00:18:44,359 --> 00:18:46,639 Speaker 1: And the day of the brain scan, I went in 400 00:18:46,680 --> 00:18:50,359 Speaker 1: and I had an MRI in the morning, and that 401 00:18:50,440 --> 00:18:53,160 Speaker 1: afternoon I went to lunch with a woman I didn't 402 00:18:53,160 --> 00:18:55,359 Speaker 1: know very well, and I was trying to be more present, 403 00:18:55,600 --> 00:18:58,080 Speaker 1: so I left my phone in the car and I 404 00:18:58,119 --> 00:19:00,440 Speaker 1: had this lunch which I was very distracted anyway, I 405 00:19:00,440 --> 00:19:02,600 Speaker 1: think because of the scan. And I got back to 406 00:19:02,600 --> 00:19:04,200 Speaker 1: the carr and I had a miscall from the GP, 407 00:19:04,520 --> 00:19:08,960 Speaker 1: the endocrinologist and the gynecologist, so I knew something was up, 408 00:19:09,440 --> 00:19:11,760 Speaker 1: and I called the gynocologist just because she'd called first, 409 00:19:12,400 --> 00:19:14,680 Speaker 1: and I called her office and they said, oh, we'd 410 00:19:14,720 --> 00:19:16,159 Speaker 1: like you to come in to talk about the results 411 00:19:16,160 --> 00:19:18,240 Speaker 1: of your scan. And I sort of got up my 412 00:19:18,280 --> 00:19:21,240 Speaker 1: calendar and was like, yeah, okay, when and they said, oh, well, 413 00:19:21,240 --> 00:19:23,840 Speaker 1: when would you like to come in? And this was 414 00:19:23,880 --> 00:19:25,000 Speaker 1: the woman I'd waited eight. 415 00:19:24,880 --> 00:19:25,400 Speaker 3: Weeks to see. 416 00:19:25,480 --> 00:19:28,560 Speaker 1: I was like, ah, now is that up to me? 417 00:19:29,400 --> 00:19:30,680 Speaker 1: And they said, you know what, why don't you just 418 00:19:30,720 --> 00:19:33,680 Speaker 1: come in now? That's when you know things are really grim. 419 00:19:34,200 --> 00:19:36,960 Speaker 1: If the very very busy important people can suddenly see 420 00:19:36,960 --> 00:19:40,560 Speaker 1: you in fifteen minutes, things are moving fast. 421 00:19:41,160 --> 00:19:42,880 Speaker 2: And did you go straight straight there? 422 00:19:42,920 --> 00:19:43,639 Speaker 3: I drove straight there. 423 00:19:43,680 --> 00:19:48,960 Speaker 1: I called my husband on the way and he said, 424 00:19:49,160 --> 00:19:51,200 Speaker 1: he just said, I'll meet you there. So he drove 425 00:19:51,320 --> 00:19:56,960 Speaker 1: and met me at her offices. And I called my 426 00:19:57,000 --> 00:20:00,080 Speaker 1: sister and just said, you need to distract me so 427 00:20:00,160 --> 00:20:04,280 Speaker 1: I don't like to drive off the road. And then 428 00:20:04,480 --> 00:20:07,240 Speaker 1: when we arrived at the gynocologist's office, she saw us 429 00:20:07,320 --> 00:20:12,000 Speaker 1: very quickly and she told me I had the scanchow 430 00:20:12,040 --> 00:20:15,199 Speaker 1: that there was a growth in my brain brain tumor, 431 00:20:15,760 --> 00:20:18,040 Speaker 1: and they thought they knew what it was, but you know, 432 00:20:18,040 --> 00:20:19,840 Speaker 1: it was a bit a bit earlier. And she was 433 00:20:19,840 --> 00:20:23,959 Speaker 1: a gynecologist and this wasn't her area of expertise, and 434 00:20:24,040 --> 00:20:25,600 Speaker 1: she referred us to a neurosurgeon. 435 00:20:27,000 --> 00:20:30,160 Speaker 2: Wow, what's your thought process from the moment you get 436 00:20:30,200 --> 00:20:32,720 Speaker 2: that phone called say listen, come in now, trying to 437 00:20:32,800 --> 00:20:35,159 Speaker 2: keep your you know, what's going on your your alarm 438 00:20:35,160 --> 00:20:41,040 Speaker 2: bells are ringing to sitting down and then ultimately passing 439 00:20:41,040 --> 00:20:46,680 Speaker 2: you on to someone else. Right, what's going through your head? 440 00:20:46,960 --> 00:20:48,520 Speaker 3: It's really hard to describe it. 441 00:20:50,320 --> 00:20:54,160 Speaker 1: I didn't take in anything she said after the word 442 00:20:54,200 --> 00:20:56,439 Speaker 1: she used was lesion. She said, there's a lesion on 443 00:20:56,480 --> 00:20:58,879 Speaker 1: your brain. And after that I didn't take anything in 444 00:20:58,960 --> 00:21:02,720 Speaker 1: for a bit because I was like, lesion, isn't lesion 445 00:21:02,760 --> 00:21:03,240 Speaker 1: a cut? 446 00:21:03,520 --> 00:21:05,200 Speaker 3: And then I was like, how did I cut my brain? 447 00:21:06,440 --> 00:21:08,959 Speaker 1: And so I asked for clarification and she said, oh, 448 00:21:09,000 --> 00:21:11,520 Speaker 1: it's like a growth, and my husband said like a tumor. 449 00:21:12,240 --> 00:21:16,240 Speaker 1: And after that, I don't really remember anything that happened 450 00:21:16,240 --> 00:21:18,840 Speaker 1: in that appointment. Thank goodness, my husband was there actually 451 00:21:18,880 --> 00:21:22,879 Speaker 1: listened to some of what was happening. The only thing 452 00:21:22,920 --> 00:21:26,840 Speaker 1: I can say it was just sheer panic, not panic 453 00:21:26,880 --> 00:21:30,440 Speaker 1: that I came down from, Like it was like that 454 00:21:30,200 --> 00:21:33,240 Speaker 1: that that high. I'm someone who's quite scared of heights. 455 00:21:33,760 --> 00:21:36,800 Speaker 1: Felt that's the closest I felt to it is having 456 00:21:36,840 --> 00:21:40,160 Speaker 1: been up somewhere very very very high and being told 457 00:21:40,160 --> 00:21:42,879 Speaker 1: to jump. I imagine that's how I would have, But 458 00:21:42,920 --> 00:21:45,200 Speaker 1: I didn't come down like I felt like I was 459 00:21:45,240 --> 00:21:47,800 Speaker 1: in that heightened state for weeks after that, and it 460 00:21:47,920 --> 00:21:52,760 Speaker 1: just there was no relief or release. Because I'm someone 461 00:21:52,800 --> 00:21:54,840 Speaker 1: who is a real problem solver and I like to 462 00:21:54,840 --> 00:21:56,320 Speaker 1: think about a problem too. I can come to a 463 00:21:56,320 --> 00:22:00,400 Speaker 1: solution or a plan, and you can't think your way 464 00:22:00,400 --> 00:22:03,240 Speaker 1: out of a brain tumor. There's no Once you get 465 00:22:03,280 --> 00:22:05,520 Speaker 1: to what if I die of because of this brain tumor, 466 00:22:05,560 --> 00:22:08,000 Speaker 1: there's no there's no solution to that, right, And I 467 00:22:08,280 --> 00:22:10,359 Speaker 1: sort of could look got trapped in this panic loop. 468 00:22:10,400 --> 00:22:12,679 Speaker 2: I think, just talk to me about the rarity of 469 00:22:12,720 --> 00:22:15,880 Speaker 2: the of the tumor. Yeah, and what your your your 470 00:22:15,960 --> 00:22:20,560 Speaker 2: ultimatums were, because you know you had basically one one 471 00:22:20,640 --> 00:22:24,040 Speaker 2: choice and one choice only. Yeah, And when did when 472 00:22:24,040 --> 00:22:26,600 Speaker 2: did your mind start to accept what was going on? 473 00:22:27,600 --> 00:22:32,040 Speaker 1: So I ended up with a neurosurgeon who was outstanding 474 00:22:33,880 --> 00:22:37,480 Speaker 1: and he was very clear with me, and I think 475 00:22:37,520 --> 00:22:41,560 Speaker 1: the reason I liked him so much was he didn't sugarcoat, 476 00:22:42,040 --> 00:22:44,119 Speaker 1: and so I felt like, Okay, he's not lying to me. 477 00:22:44,240 --> 00:22:46,680 Speaker 1: I had this real fear that people would go, oh, 478 00:22:46,760 --> 00:22:49,480 Speaker 1: young mum, will just soften the blows of things, which 479 00:22:49,760 --> 00:22:50,959 Speaker 1: they were not not going to do. 480 00:22:51,000 --> 00:22:52,080 Speaker 3: But that was my fear. 481 00:22:52,400 --> 00:22:54,640 Speaker 1: And he was so straightforward and black and white about 482 00:22:54,640 --> 00:22:55,840 Speaker 1: everything I felt. 483 00:22:56,040 --> 00:22:56,359 Speaker 3: I felt. 484 00:22:56,359 --> 00:22:58,760 Speaker 1: I felt a lot of trust with him, and he 485 00:22:58,800 --> 00:23:00,720 Speaker 1: said to me that the first time I met him, 486 00:23:00,800 --> 00:23:05,840 Speaker 1: he said, he told me that the tumor was very unusual. 487 00:23:05,880 --> 00:23:08,480 Speaker 1: What I have is called a cranio for ingioma, which 488 00:23:08,960 --> 00:23:11,399 Speaker 1: happens to about everyone in one in a million to 489 00:23:11,480 --> 00:23:14,320 Speaker 1: one and a half million people. You're born with it, 490 00:23:14,960 --> 00:23:16,720 Speaker 1: but you're just born with a couple of extra cells, 491 00:23:16,760 --> 00:23:18,159 Speaker 1: so you wouldn't be able to see it on a 492 00:23:18,160 --> 00:23:20,840 Speaker 1: scan until it starts to grow, and for most people 493 00:23:20,840 --> 00:23:23,280 Speaker 1: it grows when they're a kid, so I was kind 494 00:23:23,280 --> 00:23:26,360 Speaker 1: of behind, and I'm really lucky that it didn't grow 495 00:23:26,359 --> 00:23:29,520 Speaker 1: when i was a kid. But he said to me 496 00:23:29,520 --> 00:23:35,040 Speaker 1: in that very first appointment, he said, what you have 497 00:23:35,160 --> 00:23:39,760 Speaker 1: is extremely serious and the next part of this process 498 00:23:39,840 --> 00:23:43,119 Speaker 1: is going to be incredibly hard, and you're going to 499 00:23:43,119 --> 00:23:46,760 Speaker 1: have to be incredibly strong, but we are going to 500 00:23:46,760 --> 00:23:50,280 Speaker 1: get you through this. And I held on to that 501 00:23:51,000 --> 00:23:54,159 Speaker 1: for years to come. I would go back to myself 502 00:23:54,160 --> 00:23:56,520 Speaker 1: and say, he said, we're going to get me through this. 503 00:23:56,920 --> 00:24:01,080 Speaker 1: And I'm a kid who trusts authority. Oh you know, 504 00:24:01,119 --> 00:24:04,439 Speaker 1: I worked in politics, think about authority, and I respect authority. 505 00:24:04,480 --> 00:24:05,520 Speaker 2: I was like, right, he knows. 506 00:24:05,760 --> 00:24:09,040 Speaker 1: So I listened to him and that that definitely helped me. 507 00:24:09,320 --> 00:24:12,320 Speaker 1: But if I'm honest in terms of that panic head space, 508 00:24:12,800 --> 00:24:14,680 Speaker 1: I genuinely don't think I came out of it until 509 00:24:14,680 --> 00:24:18,520 Speaker 1: after the surgery. I think I was close to that 510 00:24:18,600 --> 00:24:20,879 Speaker 1: state for a couple of months. 511 00:24:21,359 --> 00:24:24,200 Speaker 2: And it is so important. It's you know, the old saying, 512 00:24:24,200 --> 00:24:26,360 Speaker 2: it's not it's not what you say, it's how you 513 00:24:26,400 --> 00:24:30,080 Speaker 2: say it. Just those few words are so powerful in 514 00:24:30,119 --> 00:24:32,760 Speaker 2: that moment. And like you said, putting your trust into 515 00:24:32,800 --> 00:24:35,800 Speaker 2: someone is all that you had, the only option that 516 00:24:35,840 --> 00:24:38,679 Speaker 2: you had. You go into surgery. What does that look like? 517 00:24:38,720 --> 00:24:40,840 Speaker 2: What are they what are they doing? Are they cutting part? 518 00:24:40,840 --> 00:24:43,840 Speaker 2: Are your brain away? And you know? Is it? Is it? 519 00:24:43,920 --> 00:24:46,960 Speaker 2: Touch and go? How bad is the tumor? How how 520 00:24:47,160 --> 00:24:48,280 Speaker 2: grown is the tumor? 521 00:24:48,520 --> 00:24:51,440 Speaker 1: Yeah, so it was when they found it, it was 522 00:24:51,520 --> 00:24:53,440 Speaker 1: about two and a half centimeters by one and a 523 00:24:53,440 --> 00:24:59,680 Speaker 1: half centimeters. My tumor grows in a really densely populated 524 00:24:59,720 --> 00:25:01,840 Speaker 1: part of the brain. So a lot of the brain 525 00:25:01,920 --> 00:25:05,080 Speaker 1: is gray matter, right, it doesn't really do anything you 526 00:25:05,080 --> 00:25:06,760 Speaker 1: don't want to. You still don't want to tumor there either, 527 00:25:06,840 --> 00:25:09,360 Speaker 1: but you definitely don't want a tumor where it's right 528 00:25:09,359 --> 00:25:11,520 Speaker 1: in the middle of all the important stuff. And for 529 00:25:11,600 --> 00:25:15,440 Speaker 1: me that was the case. So my tumor grows between 530 00:25:16,280 --> 00:25:18,640 Speaker 1: just underneath the optic chiasm, which is sort of where 531 00:25:18,680 --> 00:25:23,560 Speaker 1: your eyesight crosses over, like the I'm going to explain 532 00:25:23,600 --> 00:25:25,320 Speaker 1: this terribly, but like the bit that goes to both 533 00:25:25,359 --> 00:25:28,479 Speaker 1: of your eyes, where it touches in the middle. It 534 00:25:28,520 --> 00:25:33,280 Speaker 1: grows right underneath the hypothalamus, which is responsible for hunger, first, metabolism, 535 00:25:33,320 --> 00:25:34,560 Speaker 1: and a whole bunch of other things. 536 00:25:34,840 --> 00:25:37,200 Speaker 3: You couldn't live without your hypothalamus. 537 00:25:37,640 --> 00:25:40,080 Speaker 1: And then just above the petuitary gland, which is in 538 00:25:40,119 --> 00:25:42,359 Speaker 1: charge of all your hormones, which is why my period 539 00:25:42,359 --> 00:25:45,840 Speaker 1: had stopped and I had no estrogen. The blood supply 540 00:25:45,880 --> 00:25:50,480 Speaker 1: to my petuitary was being cut off. So that first 541 00:25:50,520 --> 00:25:54,000 Speaker 1: surgery for me, I've just done a spoiler alert that 542 00:25:54,000 --> 00:25:54,360 Speaker 1: it was the. 543 00:25:54,320 --> 00:25:56,119 Speaker 3: First, which has to be a second. 544 00:25:56,840 --> 00:25:59,879 Speaker 1: That first surgery for me, like if I can take 545 00:26:00,040 --> 00:26:01,880 Speaker 1: myself out of it for a moment. I still am 546 00:26:01,880 --> 00:26:06,600 Speaker 1: amazed by what doctors can do. So to access my tumor, 547 00:26:06,600 --> 00:26:10,400 Speaker 1: they went up through my nose. So they went up 548 00:26:10,480 --> 00:26:13,600 Speaker 1: through my nose with cameras as well as instruments. They 549 00:26:13,640 --> 00:26:15,840 Speaker 1: cut a small hole in my skull once they got 550 00:26:15,880 --> 00:26:19,120 Speaker 1: to that point, and they operated on my brain through there, 551 00:26:19,920 --> 00:26:22,520 Speaker 1: which is a less invasive brain surgery. 552 00:26:23,320 --> 00:26:25,920 Speaker 2: Well so rather than cutting your head open, yeah, they 553 00:26:25,920 --> 00:26:27,040 Speaker 2: went up through your nose. 554 00:26:27,200 --> 00:26:30,359 Speaker 1: Yeah, which was still I remember when they said that, 555 00:26:30,440 --> 00:26:32,919 Speaker 1: I was like what, But I didn't even know that 556 00:26:32,960 --> 00:26:35,040 Speaker 1: they could do that. But it's quite common now, and 557 00:26:35,480 --> 00:26:37,919 Speaker 1: if possible, that's how they'll If that's where they can 558 00:26:37,920 --> 00:26:40,520 Speaker 1: get to the tumor best, that's what they'll do. I 559 00:26:40,560 --> 00:26:42,720 Speaker 1: think the whole theme of my health journey is naive 560 00:26:42,760 --> 00:26:44,720 Speaker 1: to like, I just didn't know what I was in for. 561 00:26:45,160 --> 00:26:48,240 Speaker 1: I was so focused on the possibility that I might 562 00:26:48,280 --> 00:26:51,720 Speaker 1: not survive the surgery. I didn't really understand the complexity 563 00:26:51,760 --> 00:26:53,520 Speaker 1: of recovery and what was going to be ahead of 564 00:26:53,520 --> 00:26:58,320 Speaker 1: me because I was not experiencing any symptoms except having 565 00:26:59,640 --> 00:27:02,880 Speaker 1: not had a period. I ran ten K's the day 566 00:27:02,880 --> 00:27:04,800 Speaker 1: before I went into the hospital. I was still I think, 567 00:27:05,080 --> 00:27:07,640 Speaker 1: up until the night before, expecting someone to say, oh, no, 568 00:27:07,800 --> 00:27:08,400 Speaker 1: we mixed up. 569 00:27:08,359 --> 00:27:11,240 Speaker 2: A scared yeah, yeah, we've got it wrong. Yeah yeah, yeah. 570 00:27:11,480 --> 00:27:13,440 Speaker 1: There was this feeling of like, how could I possibly 571 00:27:13,440 --> 00:27:15,400 Speaker 1: be sick? I don't feel sick. 572 00:27:15,600 --> 00:27:18,200 Speaker 2: And sometimes that's the best way to tackle things sometimes, 573 00:27:18,240 --> 00:27:22,119 Speaker 2: you know, it's you know, when you overthink, over analyze 574 00:27:22,119 --> 00:27:26,280 Speaker 2: and overstress, and you know, it can really drain you, you know, 575 00:27:26,440 --> 00:27:28,840 Speaker 2: psychologically and emotionally and physically. 576 00:27:28,960 --> 00:27:31,800 Speaker 1: You know, it reminds me after that, after that surgery, 577 00:27:31,800 --> 00:27:33,720 Speaker 1: it was would have been only been a couple maybe 578 00:27:33,720 --> 00:27:36,879 Speaker 1: two days after that surgery. I remember my surgeon came 579 00:27:36,880 --> 00:27:39,040 Speaker 1: around and I hadn't stood up yet, and he got 580 00:27:39,160 --> 00:27:41,760 Speaker 1: very grumpy with everyone and was like, why isn't she standing? 581 00:27:41,800 --> 00:27:43,920 Speaker 1: And I was looking at him being like, oh, because 582 00:27:43,960 --> 00:27:46,600 Speaker 1: I had brain surgery, and but he was like, no, 583 00:27:46,680 --> 00:27:48,040 Speaker 1: I want to standing. I want her up and standing 584 00:27:48,040 --> 00:27:49,480 Speaker 1: before the end of the day, because it is true 585 00:27:49,520 --> 00:27:52,040 Speaker 1: that the sooner you're up and standing and moving and walking, 586 00:27:52,119 --> 00:27:55,760 Speaker 1: the better for your recovery. But at the time, I 587 00:27:55,800 --> 00:27:58,880 Speaker 1: remember thinking, I don't even know if I can, like yeah, 588 00:27:59,560 --> 00:28:01,400 Speaker 1: but I remember, but they got everyone on either side 589 00:28:01,440 --> 00:28:02,800 Speaker 1: of me, and they had my husband on one side 590 00:28:02,800 --> 00:28:04,720 Speaker 1: my sister on the other and nurses holding all like 591 00:28:04,760 --> 00:28:06,760 Speaker 1: I had so many cords coming out of me still 592 00:28:07,119 --> 00:28:10,199 Speaker 1: in front of me, and the sort of helped me 593 00:28:10,200 --> 00:28:12,120 Speaker 1: slide off the bed and stand up. And as soon 594 00:28:12,160 --> 00:28:15,040 Speaker 1: as I did, I started vomiting and it was pitch 595 00:28:15,119 --> 00:28:18,600 Speaker 1: black like itoked. It looked like tar to me, and 596 00:28:19,320 --> 00:28:22,439 Speaker 1: I remember just thinking, oh, this is it now, this 597 00:28:22,520 --> 00:28:26,440 Speaker 1: is I'm dying like this. It was sheer panic because 598 00:28:26,440 --> 00:28:30,080 Speaker 1: it was black, and my sister, like I remember, she 599 00:28:30,200 --> 00:28:32,720 Speaker 1: grab clenched my arm and so I looked at her 600 00:28:32,760 --> 00:28:37,399 Speaker 1: and she said, this is fine. This is completely normal. 601 00:28:37,640 --> 00:28:40,080 Speaker 1: They knew this was going to happen. You just have 602 00:28:40,160 --> 00:28:42,440 Speaker 1: to ride it out. And she was like rubbing my 603 00:28:42,480 --> 00:28:44,479 Speaker 1: back and she was one hundred percent right, it is 604 00:28:44,640 --> 00:28:48,080 Speaker 1: completely normal. I swallowed a lot of blood during surgery 605 00:28:48,120 --> 00:28:50,160 Speaker 1: and it was just dried. It was dried blood coming up, 606 00:28:50,160 --> 00:28:54,720 Speaker 1: which is gross. Sorry everybody, But she didn't know that. 607 00:28:54,840 --> 00:28:55,600 Speaker 1: She had no idea. 608 00:28:55,760 --> 00:28:57,239 Speaker 3: She just said that she's made it up. 609 00:28:57,480 --> 00:28:58,080 Speaker 2: Oh she did. 610 00:28:58,280 --> 00:28:59,920 Speaker 1: She was just trying to keep me calm because she 611 00:29:00,320 --> 00:29:02,960 Speaker 1: also thought it was like and she was like better 612 00:29:03,040 --> 00:29:06,160 Speaker 1: to die, horb. Yeah, And you know, I do think 613 00:29:06,200 --> 00:29:13,200 Speaker 1: people sometimes our naivety does protect us, and sometimes that 614 00:29:13,240 --> 00:29:16,160 Speaker 1: includes not realizing what we're capable of. And my sister 615 00:29:16,200 --> 00:29:18,520 Speaker 1: would have been one of those people. You know, she's 616 00:29:18,520 --> 00:29:20,160 Speaker 1: a baby of the family. She's the one we always 617 00:29:20,200 --> 00:29:22,880 Speaker 1: looked after, and with me not being the one doing 618 00:29:22,920 --> 00:29:25,480 Speaker 1: the looking after, she really stepped up in the most 619 00:29:25,520 --> 00:29:29,240 Speaker 1: incredible way for my whole family. She supported everyone, including me, 620 00:29:29,560 --> 00:29:31,960 Speaker 1: And I think sometimes we don't know what we can 621 00:29:32,000 --> 00:29:34,120 Speaker 1: do until we're put in the circumstance where there's no 622 00:29:34,200 --> 00:29:34,800 Speaker 1: choice anymore. 623 00:29:44,280 --> 00:29:47,520 Speaker 2: What does the recovery look like? Because, like you said, 624 00:29:48,040 --> 00:29:50,280 Speaker 2: all of a sudden, you find yourself on a on 625 00:29:50,360 --> 00:29:53,280 Speaker 2: a you know, for in for a second operation. How 626 00:29:53,320 --> 00:29:55,040 Speaker 2: does that journey look up to that second op? 627 00:29:55,280 --> 00:29:58,280 Speaker 3: Yeah, the recovery was tough, uh. 628 00:29:59,720 --> 00:30:02,000 Speaker 1: Not, not least of which that I had quite a 629 00:30:02,000 --> 00:30:03,800 Speaker 1: weak nose afterwards because they. 630 00:30:03,720 --> 00:30:05,440 Speaker 2: Had to take a lot of cart can imagine kill 631 00:30:06,200 --> 00:30:09,800 Speaker 2: pulled the tumor from your from your brain through your 632 00:30:09,880 --> 00:30:12,680 Speaker 2: nose and I don't put it in mid. 633 00:30:14,560 --> 00:30:17,600 Speaker 1: Wow, But to do that, they had to take a 634 00:30:17,640 --> 00:30:19,280 Speaker 1: bit of cartilage out to just make more space I 635 00:30:19,320 --> 00:30:22,680 Speaker 1: suppose in my nose. And the recovery was going all right, 636 00:30:22,800 --> 00:30:27,719 Speaker 1: It was hard and I was so tired, and at 637 00:30:27,800 --> 00:30:30,560 Speaker 1: that stage they just left it with the surgery. So 638 00:30:30,920 --> 00:30:32,520 Speaker 1: it was a very much wait and see what happens 639 00:30:32,560 --> 00:30:36,560 Speaker 1: next kind of situation. But my two and a half 640 00:30:36,640 --> 00:30:38,920 Speaker 1: year old flew a spider Man dole into my nose 641 00:30:38,960 --> 00:30:44,280 Speaker 1: by accident, and my whole nose just collapsed. 642 00:30:44,440 --> 00:30:46,880 Speaker 2: It was like through a spider Man dole. 643 00:30:47,120 --> 00:30:47,680 Speaker 3: Yeah, because it was. 644 00:30:49,040 --> 00:30:51,080 Speaker 1: And then the spider Man happened, and it happened over 645 00:30:51,120 --> 00:30:53,680 Speaker 1: a few days. It was like a tent and you 646 00:30:53,840 --> 00:30:55,880 Speaker 1: just like you pull the poles out of it and it. 647 00:30:55,880 --> 00:30:57,120 Speaker 3: Just sort of crum crumble. 648 00:30:57,960 --> 00:31:01,440 Speaker 1: My nose just sort of crumpled, and I I remember saying, 649 00:31:02,040 --> 00:31:03,120 Speaker 1: should I get it fixed? 650 00:31:03,400 --> 00:31:05,120 Speaker 3: And my husband was like, yeah. 651 00:31:04,800 --> 00:31:07,520 Speaker 1: But not now, Like we're just we've got bigger things 652 00:31:07,560 --> 00:31:11,120 Speaker 1: to deal with than the nose. We'll deal with that 653 00:31:11,400 --> 00:31:13,560 Speaker 1: another time. But I think that really did add to 654 00:31:13,600 --> 00:31:17,040 Speaker 1: my sense of like like it was this another thing, 655 00:31:17,080 --> 00:31:20,200 Speaker 1: another thing. There was that sort of feeling nonetheless like 656 00:31:20,240 --> 00:31:22,160 Speaker 1: we had a huge party. One of the things I 657 00:31:22,200 --> 00:31:23,560 Speaker 1: had wanted was like I'm going to get through this 658 00:31:23,560 --> 00:31:24,040 Speaker 1: and we're gonna have. 659 00:31:24,040 --> 00:31:25,840 Speaker 3: A big party. We had a big party. 660 00:31:26,520 --> 00:31:29,160 Speaker 2: In so you still got the all clear, Yes, it's out, 661 00:31:29,240 --> 00:31:29,760 Speaker 2: it's done. 662 00:31:30,040 --> 00:31:31,880 Speaker 1: They were like, we've left a little bit in there 663 00:31:31,920 --> 00:31:34,520 Speaker 1: because it was too dangerous to take it out. But 664 00:31:34,520 --> 00:31:37,120 Speaker 1: they weren't expecting it to grow again. They said, good odds, 665 00:31:37,160 --> 00:31:39,640 Speaker 1: we think it's going to be fine from here. We 666 00:31:39,680 --> 00:31:41,880 Speaker 1: had this huge party. I remember, it was awesome. My 667 00:31:41,920 --> 00:31:44,040 Speaker 1: husband I bought a house and this is all in 668 00:31:44,040 --> 00:31:46,959 Speaker 1: a few months, and we moved into the house on 669 00:31:47,000 --> 00:31:50,920 Speaker 1: the Saturday. We unpacked a bit on the Sunday, and 670 00:31:50,960 --> 00:31:54,160 Speaker 1: then on the Monday they told me it had grown back, 671 00:31:54,200 --> 00:31:56,320 Speaker 1: and it had grown back really aggressively, so we had 672 00:31:56,360 --> 00:31:57,720 Speaker 1: to move quite fast. 673 00:31:58,320 --> 00:31:58,880 Speaker 2: Oh wow. 674 00:31:59,080 --> 00:32:00,960 Speaker 1: In my head, I was it's like when you prune 675 00:32:00,960 --> 00:32:02,720 Speaker 1: the bushes outside the house and then they grow. But 676 00:32:02,800 --> 00:32:03,960 Speaker 1: I'm sure that's not how it works. 677 00:32:03,960 --> 00:32:06,520 Speaker 2: But that was yeah, yeah, yeah, yeah. 678 00:32:06,000 --> 00:32:08,680 Speaker 1: Like it just yeah, it had grown back quite aggressively. 679 00:32:08,720 --> 00:32:11,560 Speaker 1: I had my first surgery in January. Formal recovery was 680 00:32:11,600 --> 00:32:16,440 Speaker 1: done by end of March, and they told me that 681 00:32:16,720 --> 00:32:18,880 Speaker 1: the first weekend of July, so it was it wasn't long. 682 00:32:18,920 --> 00:32:20,560 Speaker 1: I was back in hospital again in September. 683 00:32:21,040 --> 00:32:23,320 Speaker 2: Yeah, where's your head space right now? When they tell 684 00:32:23,360 --> 00:32:25,200 Speaker 2: you again that it's going back. Not only is it 685 00:32:25,200 --> 00:32:27,520 Speaker 2: going back, but it's aggressive. We need to get you 686 00:32:27,560 --> 00:32:31,400 Speaker 2: in a sap. Where's your head space go? Just devastating, devastation. 687 00:32:31,840 --> 00:32:34,600 Speaker 1: It wasn't the same shock, of course, because it's not possible, 688 00:32:34,640 --> 00:32:37,760 Speaker 1: because I had some adjustment, but it was just devastation. 689 00:32:38,400 --> 00:32:40,600 Speaker 1: And I remember saying, I can't do it again, like 690 00:32:41,720 --> 00:32:44,400 Speaker 1: I didn't feel strong anymore. I went into that first 691 00:32:44,400 --> 00:32:46,880 Speaker 1: one being a really fit, healthy, strong. 692 00:32:46,640 --> 00:32:49,560 Speaker 2: Thirty, but I hadn't. 693 00:32:49,680 --> 00:32:53,120 Speaker 1: I hadn't recovered I recovered that much and in only 694 00:32:53,160 --> 00:32:58,160 Speaker 1: six months, and I remember just thinking I can't, Like I. 695 00:32:57,280 --> 00:32:59,440 Speaker 3: How will I do it? I don't feel strong. 696 00:32:59,520 --> 00:33:03,480 Speaker 1: I remember saying I don't feel strong, and I think 697 00:33:03,480 --> 00:33:05,040 Speaker 1: I meant that in every sense of the word. I 698 00:33:05,040 --> 00:33:08,560 Speaker 1: didn't feel strong enough. But I was less scared, I 699 00:33:08,600 --> 00:33:12,280 Speaker 1: will say I was. I was terrified still, but I 700 00:33:12,320 --> 00:33:14,680 Speaker 1: had less of this certain sense that I would not 701 00:33:14,760 --> 00:33:18,040 Speaker 1: be able to survive the surgery. I was, you know, 702 00:33:18,080 --> 00:33:20,080 Speaker 1: I think I thought, well, I've done it before, so 703 00:33:20,120 --> 00:33:22,520 Speaker 1: I can do it again, and that that gave me 704 00:33:22,800 --> 00:33:26,240 Speaker 1: more confidence, which is it probably not very logical, but 705 00:33:27,360 --> 00:33:28,920 Speaker 1: I did have this sense of like my body got 706 00:33:29,000 --> 00:33:31,400 Speaker 1: through it, so it must be able to do it again, 707 00:33:33,480 --> 00:33:35,840 Speaker 1: and that probably didn't take into account how intense that 708 00:33:35,880 --> 00:33:39,760 Speaker 1: surgery was going to be, and that surgery was life changing, because. 709 00:33:41,040 --> 00:33:44,360 Speaker 3: After that surgery, I acquired. 710 00:33:44,120 --> 00:33:47,920 Speaker 1: Like quite a significant brain injury, which was necessary like that, 711 00:33:47,960 --> 00:33:49,640 Speaker 1: they had no choice to cut the tumor out. 712 00:33:49,640 --> 00:33:50,880 Speaker 3: They had to. They had to do that. 713 00:33:51,200 --> 00:33:53,120 Speaker 2: So they left the part of the tumor that they 714 00:33:53,120 --> 00:33:56,040 Speaker 2: thought would be okay that was attached a certain part 715 00:33:56,080 --> 00:33:56,880 Speaker 2: of the brain. 716 00:33:57,120 --> 00:34:00,000 Speaker 3: That to preserve the brain if they got wrong. 717 00:33:59,800 --> 00:34:02,760 Speaker 2: Then and that it could potentially have devastating effects on you. 718 00:34:03,040 --> 00:34:04,760 Speaker 2: But now they had to take that risk. They had 719 00:34:04,800 --> 00:34:07,760 Speaker 2: to cut it all out and just take away the 720 00:34:07,800 --> 00:34:10,279 Speaker 2: risk of it ever ever being not not being there 721 00:34:10,280 --> 00:34:11,360 Speaker 2: but ever growing again. 722 00:34:11,640 --> 00:34:14,480 Speaker 1: Yeah, So they took probably ninety eight percent of it. 723 00:34:15,040 --> 00:34:17,759 Speaker 1: They left the two percent that was directly on my 724 00:34:17,800 --> 00:34:20,040 Speaker 1: optic chiasm because if they'd taken that, I would have 725 00:34:20,040 --> 00:34:26,000 Speaker 1: been blind. So they chose not to. But they took 726 00:34:26,040 --> 00:34:30,080 Speaker 1: everything else, which meant I lost progressively took a bit 727 00:34:30,080 --> 00:34:32,520 Speaker 1: of time, but I lost all hormone function in the 728 00:34:32,520 --> 00:34:36,800 Speaker 1: pituitary gland, which is really considerable impact on your life. 729 00:34:36,800 --> 00:34:39,279 Speaker 1: It means I take seven eight types of medication every day. 730 00:34:39,760 --> 00:34:41,960 Speaker 1: I don't make cortisol anymore, which is the big one, 731 00:34:42,040 --> 00:34:45,719 Speaker 1: because you can't you can't be alive without cortisol. My 732 00:34:45,760 --> 00:34:51,800 Speaker 1: body doesn't balance water on its own, and so without medication, 733 00:34:52,160 --> 00:34:56,200 Speaker 1: I would just be ferociously thirsty and but wouldn't make 734 00:34:56,239 --> 00:34:58,000 Speaker 1: your own properly, Like I'd just drink lots of water 735 00:34:58,040 --> 00:35:01,000 Speaker 1: and then I just it would come out. But I 736 00:35:01,000 --> 00:35:03,160 Speaker 1: would not My body would do what it needed to do, 737 00:35:04,239 --> 00:35:08,279 Speaker 1: and so I would eventually just dehydrate entirely and die 738 00:35:08,320 --> 00:35:10,520 Speaker 1: from that if I didn't have the medication. I don't 739 00:35:10,560 --> 00:35:14,479 Speaker 1: make estrogen or testosterone or growth hormone or prolactin, there's 740 00:35:14,719 --> 00:35:19,000 Speaker 1: so many of them. Progesterone and so just completely changed 741 00:35:19,000 --> 00:35:20,560 Speaker 1: my life, completely change my life. 742 00:35:21,520 --> 00:35:25,520 Speaker 2: Wow, And how has that changed your outlook on life? 743 00:35:26,920 --> 00:35:29,560 Speaker 1: I would say, now, you know, five years after that, 744 00:35:30,200 --> 00:35:33,680 Speaker 1: I am somewhere back near that headspace again. I don't 745 00:35:33,680 --> 00:35:38,479 Speaker 1: feel indestructible, but I feel like I have the same 746 00:35:38,640 --> 00:35:42,520 Speaker 1: enthusiasm and enjoyment and determination for life. But I will 747 00:35:42,520 --> 00:35:44,359 Speaker 1: say it took a really long time to get there, 748 00:35:44,440 --> 00:35:46,319 Speaker 1: Like I had a good few years of really not 749 00:35:46,440 --> 00:35:47,200 Speaker 1: being myself. 750 00:35:47,920 --> 00:35:49,640 Speaker 2: How did you get through that to be where you 751 00:35:49,680 --> 00:35:50,200 Speaker 2: are today? 752 00:35:50,520 --> 00:35:51,000 Speaker 3: Yeah? 753 00:35:51,320 --> 00:35:53,120 Speaker 1: To be honest, I think I had to get to acceptance. 754 00:35:53,400 --> 00:35:56,160 Speaker 1: You know, they talk about the stages of grief and 755 00:35:57,480 --> 00:36:01,919 Speaker 1: the stages of grief. I didn't do them in order. 756 00:36:02,280 --> 00:36:03,920 Speaker 1: I just kept like bobbing around in them all and 757 00:36:03,920 --> 00:36:06,799 Speaker 1: not getting to acceptance, going backwards and you know, going 758 00:36:06,800 --> 00:36:09,200 Speaker 1: through the rage period and going through the bargaining period, 759 00:36:09,239 --> 00:36:10,719 Speaker 1: going through the denial. I just seem to go back 760 00:36:10,760 --> 00:36:11,920 Speaker 1: and forth. And I think I did that for a 761 00:36:11,960 --> 00:36:15,640 Speaker 1: good few years. It didn't help that I came out 762 00:36:15,680 --> 00:36:19,000 Speaker 1: of treatment into a pandemic and I live in Melbourne, 763 00:36:19,000 --> 00:36:20,560 Speaker 1: so it'd got locked in my house for a while. 764 00:36:21,400 --> 00:36:23,920 Speaker 3: That didn't help. But I and. 765 00:36:23,840 --> 00:36:25,480 Speaker 1: I won't say that there were moments of joy in 766 00:36:25,520 --> 00:36:28,040 Speaker 1: those years. There were, right, like it's never all dark 767 00:36:28,440 --> 00:36:32,720 Speaker 1: or all light, but I hadn't accepted what had happened 768 00:36:32,760 --> 00:36:35,400 Speaker 1: to me. I kept putting myself in hospital because I 769 00:36:35,440 --> 00:36:38,400 Speaker 1: didn't really accept my own limits. I'd keep trying to 770 00:36:38,440 --> 00:36:40,480 Speaker 1: push and do the things that I live the way 771 00:36:40,520 --> 00:36:41,840 Speaker 1: I used to live, and do things the way I 772 00:36:41,920 --> 00:36:44,560 Speaker 1: used to do things, and then it would end up 773 00:36:44,560 --> 00:36:47,480 Speaker 1: being very dangerous. And I think it did take me 774 00:36:47,520 --> 00:36:49,400 Speaker 1: a good couple of years to get to the point 775 00:36:49,400 --> 00:36:54,160 Speaker 1: of going. You know, I was someone who believed I 776 00:36:54,200 --> 00:36:56,720 Speaker 1: was living life without limits, that I could do anything, 777 00:36:57,239 --> 00:36:59,520 Speaker 1: and to accept that there were some really firm limits 778 00:36:59,560 --> 00:37:01,640 Speaker 1: for me. That didn't mean I couldn't do a whole 779 00:37:01,640 --> 00:37:03,160 Speaker 1: bunch of other things, but that I did have to 780 00:37:03,200 --> 00:37:07,600 Speaker 1: work within those limits or I wouldn't survive. And that 781 00:37:07,920 --> 00:37:10,439 Speaker 1: sounds really negative, but I actually think it was really 782 00:37:10,440 --> 00:37:13,760 Speaker 1: helpful for me once I finally reframed and went, Okay, 783 00:37:13,920 --> 00:37:17,239 Speaker 1: these limits aren't everything, but they are this, and I 784 00:37:17,320 --> 00:37:19,759 Speaker 1: have to respect that or I'm not respecting what my 785 00:37:19,760 --> 00:37:22,239 Speaker 1: body can do. Otherwise I'm expecting my body to fly. 786 00:37:22,719 --> 00:37:24,239 Speaker 1: None of us are sitting here thinking I can fly. 787 00:37:24,560 --> 00:37:26,840 Speaker 1: My body can't do things anymore. It's never going to 788 00:37:26,880 --> 00:37:29,000 Speaker 1: be able to do those things. Unless there's some huge 789 00:37:29,000 --> 00:37:32,040 Speaker 1: scientific revolution. It's never going to be able to do 790 00:37:32,080 --> 00:37:35,200 Speaker 1: those things again. So what is possible for me? 791 00:37:35,880 --> 00:37:36,359 Speaker 3: Knowing that? 792 00:37:36,760 --> 00:37:39,279 Speaker 1: And I think focusing on what is possible for me 793 00:37:39,400 --> 00:37:40,960 Speaker 1: knowing that has been really helpful. 794 00:37:41,680 --> 00:37:45,080 Speaker 2: How did it affect your family and your little one 795 00:37:45,320 --> 00:37:48,600 Speaker 2: and your husband and how's that relationship today? 796 00:37:48,840 --> 00:37:52,960 Speaker 3: Yeah, my husband was just extraordinary. 797 00:37:54,239 --> 00:37:57,600 Speaker 1: I think it was my mum who said he was 798 00:37:57,600 --> 00:37:59,640 Speaker 1: worth marrying just for the first few weeks after I 799 00:37:59,640 --> 00:38:00,200 Speaker 1: got die. 800 00:38:00,000 --> 00:38:01,920 Speaker 3: He knowsed to nothing else. She was like, it was 801 00:38:01,960 --> 00:38:03,080 Speaker 3: worth it. For those three weeks. 802 00:38:04,640 --> 00:38:08,240 Speaker 1: He was so steady, and he figured out really quickly 803 00:38:08,440 --> 00:38:10,600 Speaker 1: what I needed. And that's not what everyone needs, but 804 00:38:10,640 --> 00:38:14,080 Speaker 1: what I needed was like a fierce belief I was 805 00:38:14,120 --> 00:38:16,279 Speaker 1: going to be okay. I needed to be surrounded by that. 806 00:38:16,280 --> 00:38:19,080 Speaker 1: That's what worked for me. I think for some people 807 00:38:19,080 --> 00:38:20,880 Speaker 1: that would be quite distressing, but for me, that's what 808 00:38:20,960 --> 00:38:21,440 Speaker 1: I needed. 809 00:38:21,520 --> 00:38:22,400 Speaker 3: And so he did that. 810 00:38:22,840 --> 00:38:25,640 Speaker 1: And I'm sure he had moments with other people and 811 00:38:25,760 --> 00:38:28,919 Speaker 1: away from me where he had an enormous amount of doubt. 812 00:38:28,920 --> 00:38:31,359 Speaker 1: He must have, but he just did not show that. 813 00:38:31,840 --> 00:38:33,960 Speaker 1: After that first week. He never cried in front of me. 814 00:38:34,400 --> 00:38:36,320 Speaker 1: He never showed Whenever I would bring things up, he 815 00:38:36,360 --> 00:38:38,160 Speaker 1: would be like, no, I'm not worried about that, because 816 00:38:38,160 --> 00:38:41,440 Speaker 1: you're going to be fine. And he was so certain, 817 00:38:43,560 --> 00:38:46,240 Speaker 1: and it was I think like it was his belief 818 00:38:46,280 --> 00:38:48,680 Speaker 1: in me being okay that made me believe it was true. 819 00:38:50,920 --> 00:38:52,560 Speaker 1: But I think after a couple of years of that, 820 00:38:52,600 --> 00:38:56,000 Speaker 1: once I was through the worst of it living in 821 00:38:56,000 --> 00:38:58,320 Speaker 1: that lockdown in Melbourne, I think that really affected him. 822 00:38:58,719 --> 00:39:02,480 Speaker 1: You know, he'd sort of been so stoic and not 823 00:39:02,560 --> 00:39:05,399 Speaker 1: really gotten to fall apart at all, and I think 824 00:39:05,400 --> 00:39:06,520 Speaker 1: it caught up with him for a bit. 825 00:39:06,760 --> 00:39:08,160 Speaker 3: I think now he's doing really. 826 00:39:08,040 --> 00:39:10,720 Speaker 1: Well, but I think he had a tough period then 827 00:39:11,360 --> 00:39:13,720 Speaker 1: it was almost like it was delayed because he couldn't 828 00:39:13,719 --> 00:39:15,239 Speaker 1: feel the trauma at the time because he had a 829 00:39:15,320 --> 00:39:18,080 Speaker 1: job to do. Yes, exactly, once I was okay, he 830 00:39:18,480 --> 00:39:22,799 Speaker 1: could come for par when I was I've written this 831 00:39:22,840 --> 00:39:24,720 Speaker 1: book with my friend Rosie. 832 00:39:24,640 --> 00:39:28,960 Speaker 2: Yeah, broken brains, Yes, we're going to beat. 833 00:39:29,120 --> 00:39:32,120 Speaker 1: It, thank you, which is about which is about all 834 00:39:32,200 --> 00:39:33,400 Speaker 1: of this. But in that book, I talked to a 835 00:39:33,440 --> 00:39:36,160 Speaker 1: whole lot of experts about the experience of people who 836 00:39:36,160 --> 00:39:39,279 Speaker 1: are unwell, and one of the questions I was quite 837 00:39:39,360 --> 00:39:41,840 Speaker 1: scared to ask was around what happens to the children 838 00:39:42,000 --> 00:39:44,160 Speaker 1: of people who are quite unwell and how does that 839 00:39:44,200 --> 00:39:48,920 Speaker 1: affect those kids, because I kind of didn't want to know. Actually, 840 00:39:49,640 --> 00:39:52,960 Speaker 1: for kids who are careers to their parents, not necessarily 841 00:39:53,080 --> 00:39:55,560 Speaker 1: primary carers, where it's all on that kid's shoulders, but 842 00:39:55,640 --> 00:39:58,040 Speaker 1: if they're a secondary care if they're sort of helping 843 00:39:58,120 --> 00:40:00,759 Speaker 1: with the care but they're not the main one, it 844 00:40:00,920 --> 00:40:04,799 Speaker 1: can be extraordinary for them. Most of the outcomes are 845 00:40:04,920 --> 00:40:09,680 Speaker 1: positive that those kids have greater sense of responsibility, greater 846 00:40:10,280 --> 00:40:16,160 Speaker 1: capacity for empathy, that they're more likely to understand the 847 00:40:16,239 --> 00:40:19,120 Speaker 1: importance of putting others first, that they're more helpful, they 848 00:40:19,160 --> 00:40:21,960 Speaker 1: have a greater sense of self and a sense of purpose. 849 00:40:22,760 --> 00:40:26,759 Speaker 1: And I remember hearing about this from a psychologist, a 850 00:40:26,840 --> 00:40:28,320 Speaker 1: child psychologist, when I was writing. 851 00:40:28,120 --> 00:40:30,880 Speaker 3: The book, and just thinking, that's my kid. You're just 852 00:40:30,960 --> 00:40:31,919 Speaker 3: describing my kids. 853 00:40:32,920 --> 00:40:35,799 Speaker 1: Who is that he's that he grew up around all 854 00:40:35,880 --> 00:40:39,520 Speaker 1: of this, and he grew up at two not being 855 00:40:39,560 --> 00:40:42,239 Speaker 1: the person in the house who was first. You know, 856 00:40:42,400 --> 00:40:44,600 Speaker 1: his needs were second, because he was constantly being told 857 00:40:44,640 --> 00:40:46,560 Speaker 1: you gotta be quiet because mum's resting, or you know, 858 00:40:46,640 --> 00:40:49,040 Speaker 1: got to not fly Spider Man into Mum's head. 859 00:40:49,040 --> 00:40:51,439 Speaker 2: That stuff. For a kid to compute that at that age, 860 00:40:51,440 --> 00:40:55,120 Speaker 2: because it's all about me, me, me, me me, they 861 00:40:55,120 --> 00:40:57,279 Speaker 2: should be Yeah, of course, of course, and he sort 862 00:40:57,320 --> 00:40:58,000 Speaker 2: of didn't get to be. 863 00:40:58,440 --> 00:41:01,320 Speaker 1: But as a result, he is such a compassionate and 864 00:41:01,480 --> 00:41:04,279 Speaker 1: kind kid. And you know, I always worry we're going 865 00:41:04,360 --> 00:41:06,680 Speaker 1: to see the damage that me being sick has done 866 00:41:06,719 --> 00:41:09,120 Speaker 1: to him, But he's nine going on ten, and I 867 00:41:09,200 --> 00:41:11,600 Speaker 1: don't see it yet. All I see is that he's 868 00:41:11,680 --> 00:41:13,640 Speaker 1: just an extraordinary person as a result. 869 00:41:13,760 --> 00:41:17,600 Speaker 2: With parents like yourself, absolutely positive that he's going to 870 00:41:18,040 --> 00:41:22,000 Speaker 2: grow up driven, positive, compassionate and pathetic like you are. 871 00:41:22,640 --> 00:41:26,560 Speaker 2: So a final question for you, what is next for you? 872 00:41:28,440 --> 00:41:30,160 Speaker 1: That's really that's the first time in my life I 873 00:41:30,200 --> 00:41:32,000 Speaker 1: think that's a really hard question to answer because I 874 00:41:32,120 --> 00:41:35,160 Speaker 1: really wanted to write this book, and now it's done, and. 875 00:41:35,200 --> 00:41:37,279 Speaker 3: I'm going to now I'm going to figure out. 876 00:41:37,200 --> 00:41:39,840 Speaker 2: What to do next, your next goal, your next purpose. 877 00:41:40,320 --> 00:41:43,760 Speaker 1: Because I've written it with my friend Rosie, who experienced 878 00:41:43,760 --> 00:41:46,880 Speaker 1: some pretty horrific childhood trauma, and we look at her 879 00:41:46,960 --> 00:41:49,279 Speaker 1: experience of mental illness and mine of physical illness, and 880 00:41:49,360 --> 00:41:52,480 Speaker 1: how she has had experience of physical ill health as 881 00:41:52,560 --> 00:41:54,400 Speaker 1: the result of her mental health, and I've had an 882 00:41:54,480 --> 00:41:56,640 Speaker 1: experience of mental ill health as a result of what 883 00:41:56,680 --> 00:41:59,879 Speaker 1: I've gone through. And we've sort of explored this false 884 00:42:00,040 --> 00:42:01,680 Speaker 1: binary we all come up with where it's like, oh, 885 00:42:01,719 --> 00:42:04,320 Speaker 1: the mentals over here and the physicals over there, Like 886 00:42:04,400 --> 00:42:06,759 Speaker 1: they're both happening in your body. In my case, they're 887 00:42:06,760 --> 00:42:09,560 Speaker 1: both happening in the brain. These lines we draw around them, 888 00:42:09,640 --> 00:42:12,640 Speaker 1: these barriers, they might be helpful for diagnosis and things 889 00:42:12,680 --> 00:42:15,080 Speaker 1: like that, but they're not helpful as a human being. 890 00:42:17,200 --> 00:42:19,879 Speaker 1: And it's been such a joy sort of having those conversations. 891 00:42:19,960 --> 00:42:21,600 Speaker 1: And I've found that for a lot of people with 892 00:42:21,680 --> 00:42:25,160 Speaker 1: mental health challenges, they found my experience quite validating because 893 00:42:26,040 --> 00:42:28,120 Speaker 1: I tell you, I've been through some of the hardest 894 00:42:28,120 --> 00:42:30,759 Speaker 1: physical stuff a human body can go through. And I 895 00:42:30,880 --> 00:42:33,360 Speaker 1: would have brain surgery ten times over again before I 896 00:42:33,400 --> 00:42:35,720 Speaker 1: had to go through that period of being mentally unwell 897 00:42:35,760 --> 00:42:38,040 Speaker 1: before the first surgery. That was the worst thing I've 898 00:42:38,040 --> 00:42:41,360 Speaker 1: ever done. It was harder than the physical way harder. 899 00:42:43,200 --> 00:42:44,600 Speaker 1: And I know that's helped a lot of people who 900 00:42:44,640 --> 00:42:48,680 Speaker 1: felt like their experience wasn't significant or relevant or important. 901 00:42:50,320 --> 00:42:52,279 Speaker 1: So that's a real joy, I think being allowed to 902 00:42:52,320 --> 00:42:53,919 Speaker 1: talk about this book finally rather than. 903 00:42:53,880 --> 00:42:54,239 Speaker 3: Just write it. 904 00:42:55,000 --> 00:42:55,960 Speaker 2: And why can we get the book? 905 00:42:56,000 --> 00:42:56,400 Speaker 1: Do you know? 906 00:42:56,520 --> 00:43:00,440 Speaker 3: Oh, you should be able to get everywhere everywhere, bad bookstores, like. 907 00:43:03,040 --> 00:43:05,160 Speaker 2: I know my books have ended up in some little 908 00:43:05,200 --> 00:43:10,000 Speaker 2: bookstores and you know, probably probably free now. But Jimiller, 909 00:43:10,160 --> 00:43:12,480 Speaker 2: thank you so much. Listen, best of luck with everything 910 00:43:12,560 --> 00:43:14,240 Speaker 2: you do, and send my love to your family. 911 00:43:14,320 --> 00:43:15,920 Speaker 3: Of course, thank you, thank you, thank you for your 912 00:43:15,960 --> 00:43:16,800 Speaker 3: wonderful questions. 913 00:43:18,360 --> 00:43:22,560 Speaker 2: Jimiller's book is called Broken Brains and it's out now. 914 00:43:23,320 --> 00:43:26,560 Speaker 2: You can also follow Jumilla on Instagram. I'll put all 915 00:43:26,600 --> 00:43:30,040 Speaker 2: the details in the show notes. Thanks for joining me 916 00:43:30,200 --> 00:43:33,600 Speaker 2: on this episode of Headgame. If you love listening to 917 00:43:33,680 --> 00:43:37,480 Speaker 2: this podcast, please share it with a friend, or you 918 00:43:37,600 --> 00:43:40,799 Speaker 2: can leave me a review on your favorite listening app. 919 00:43:41,560 --> 00:43:44,680 Speaker 2: I'm Att Middleton. Catch you in the next episode.