WEBVTT - Kellie Finlayson on Thriving With Terminal Cancer

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<v Speaker 1>We'd like to acknowledge that traditional custodians of the land

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<v Speaker 1>on which this podcast was produced, the Galligall people of

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<v Speaker 1>the Orination. We pay our respects to elder's past and present.

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<v Speaker 2>It's November twenty twenty one and we're in Adelaid's Flinders

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<v Speaker 2>Hospital with Kelly Finlayson. Kelly gave birth to baby Sophia

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<v Speaker 2>just three months ago, her first child with AFL star

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<v Speaker 2>Jeremy Finlayson. But today she isn't here for a postpartum checkup.

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<v Speaker 2>She's here for a kolonoscopy, the one she's been waiting

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<v Speaker 2>months for, which was canceled in the height of the pandemic.

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<v Speaker 2>Almost immediately the kolonoscopy takes a turn for the worst.

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<v Speaker 2>The gastro enterologist turns to Kelly and says, this is

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<v Speaker 2>what cancer looks like for the twenty five year old mum.

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<v Speaker 2>Her world changes in an instant. In the days, she'd

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<v Speaker 2>be told she has stage four bow cancer. I'm at

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<v Speaker 2>Middleton and this is head Game today, resilience in the

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<v Speaker 2>face of an unthinkable diagnosis. Kelly Finlayson, thank you so

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<v Speaker 2>much for joining me on my podcast head Game. Now

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<v Speaker 2>cop talk about head Game and you're someone that needs

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<v Speaker 2>to have your head in the game. You need to

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<v Speaker 2>be headstrong with what's going on in your life at

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<v Speaker 2>the moment. Wow, we'll get into that very very shortly.

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<v Speaker 2>But how are you.

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<v Speaker 3>Yeah, I'm actually doing okay today.

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<v Speaker 2>Okay? Is okay? Kelly? Take me back to your childhood.

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<v Speaker 3>So I lived a pretty mundane, easy, ordinary childhood. I

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<v Speaker 3>have a younger brother, mum and dad, same house, still

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<v Speaker 3>live in the same house that I was born in.

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<v Speaker 3>They do, I don't, but so yeah, like a pretty

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<v Speaker 3>easy country town, Port Lincoln, so right on the beach

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<v Speaker 3>here an essay, and played every sport you can think of.

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<v Speaker 3>So I was just a busy little girl with lots

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<v Speaker 3>of energy and not much has changed. Really, just a confident,

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<v Speaker 3>little independent person.

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<v Speaker 2>Sounds like you just see it, like myself. A normal

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<v Speaker 2>upbring in, happy, go lucky. What was your first ever job?

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<v Speaker 3>Yeah, my mum was a manager of a hotel, So

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<v Speaker 3>a housekeeper.

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<v Speaker 2>Oh really? Yeah, so you went around changing the sheets

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<v Speaker 2>and clean bathrooms and stuff like that.

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<v Speaker 3>Yeah, very underage, but that's how we would get like

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<v Speaker 3>that's my pocket money, I guess, would be whatever four

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<v Speaker 3>hours on a Sunday morning or whatever, and that would

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<v Speaker 3>be me housekeeping. Yep.

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<v Speaker 2>How old are you if you don't mind me asking, Kelly.

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<v Speaker 3>Yeah, I'm twenty eight. I'm twenty nine in December.

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<v Speaker 2>Twenty nine, December. And what age were you when you

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<v Speaker 2>met Jeremy?

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<v Speaker 3>I was twenty one at a Justin Bieber concert.

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<v Speaker 2>Take me back to that, Justinean, How did you set

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<v Speaker 2>eyes on him? And how was it love at first

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<v Speaker 2>sight or was it just a case of exchange phone

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<v Speaker 2>numbers and we're going on a date?

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<v Speaker 3>Exchanged snapchats because we were young twenty one year olds.

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<v Speaker 3>But I didn't actually meet him at the concert. I

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<v Speaker 3>was just insandnely for the concert and we met at

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<v Speaker 3>a pub later. But he is a big Justin Bieber fan,

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<v Speaker 3>so I like to drop that in.

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<v Speaker 2>Yes, Jeremy, listen, he's is it a believer? A belief?

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<v Speaker 3>Yeah, that's it.

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<v Speaker 2>So that moment changes your life, really, doesn't it. You

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<v Speaker 2>You meet Jeremy and did the relationship develop quite fast?

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<v Speaker 3>Yeah? Very quick? Moving our relationship so again, yeah, rekindled

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<v Speaker 3>in twenty nineteen when I moved back to Australia and

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<v Speaker 3>then by June twenty twenty we were living together. So

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<v Speaker 3>six months later really.

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<v Speaker 2>No, messing around their kedesis later, are you moving because

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<v Speaker 2>that's serious, right, moving in together?

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<v Speaker 3>Yeah, Well, it was the time of COVID, so it

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<v Speaker 3>was either moving together or in no, one'm going to

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<v Speaker 3>see each other again.

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<v Speaker 2>Did it feel nice? Did it feel good during COVID

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<v Speaker 2>that you had each other?

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<v Speaker 3>Yeah? Definitely. I think that obviously fast tracked a lot

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<v Speaker 3>of people's relationships, but it definitely made it, I guess

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<v Speaker 3>known that we were the people for each other.

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<v Speaker 2>And when did you start realizing that you had a

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<v Speaker 2>few issues or you had a few symptoms or maybe

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<v Speaker 2>need to go to hospital.

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<v Speaker 3>Yeah. So the first time that I actually sought help

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<v Speaker 3>was at the start of twenty twenty two days actually

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<v Speaker 3>before lockdown happened in Victorious, So I had a colonostu

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<v Speaker 3>to be booked for the twenty second of March, and

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<v Speaker 3>then obviously locked down and elective procedures got canceled, so

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<v Speaker 3>I never actually got the procedure, but I did seek

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<v Speaker 3>help that month. But looking back now, I've had issues

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<v Speaker 3>for up to probably five years prior to diagnosis.

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<v Speaker 2>And what are or what were these issues?

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<v Speaker 3>So in frequency, in bow movements, weight fluctuation, A lot

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<v Speaker 3>of the issues I guess that I was having were

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<v Speaker 3>really common with just being a female, So like abdominal

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<v Speaker 3>bloating usually once a month, which obviously comes with the

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<v Speaker 3>mental cycle as well, the pain there as well, the

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<v Speaker 3>changing weight, the changeing tiredness. Like, all of the symptoms

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<v Speaker 3>that I were having, I guess weren't uncommon, but the

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<v Speaker 3>way that I was having them were probably more often

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<v Speaker 3>than others were.

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<v Speaker 2>And what was the moment Why did you decide why

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<v Speaker 2>I need to go and check this out? Because if

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<v Speaker 2>you say it's been going on for five years, you're

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<v Speaker 2>obviously just thinking that these are normal problems, just that

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<v Speaker 2>they go away. You know, it's just just the monthly

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<v Speaker 2>thing that happens. But what made what was that mindset

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<v Speaker 2>switch where you thought, actually, no, I need to go

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<v Speaker 2>and get this checked out.

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<v Speaker 3>Yeah. So I ended up having blood in my store,

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<v Speaker 3>well on the toilet paper, so obviously I couldn't tell

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<v Speaker 3>whether that was in my store or not. But that's

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<v Speaker 3>what made me go seek more help. I was seeing

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<v Speaker 3>an actual path. I thought maybe I was intolerant or something,

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<v Speaker 3>maybe I had yeah ibs or something like that. I

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<v Speaker 3>don't know, something obviously not right, But it was kind

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<v Speaker 3>of cool to be lactose intolerant at that time or

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<v Speaker 3>have a gluten intolerant, so they didn't really take me

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<v Speaker 3>very seriously. And then yeah, obviously I had blood in

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<v Speaker 3>a stall sample, so that's why I had the colonists

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<v Speaker 3>could be booked, which was later canceled as an elective procedure.

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<v Speaker 2>Wow. So do you think they didn't take you seriously

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<v Speaker 2>because you were young? You know you? Yeah, agile and

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<v Speaker 2>just a case of you know, you don't need you

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<v Speaker 2>don't need to check out, you're good to go.

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<v Speaker 3>Yeah. Well at that point I was twenty four, so

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<v Speaker 3>I was quite young. I was writing marathons like I

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<v Speaker 3>was the pinnacle of health. Nothing that would scream about cancer,

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<v Speaker 3>do you know what I mean?

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<v Speaker 2>Yeah? Yeah, And during lockdown, the relationship with Jeremy Blossoms

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<v Speaker 2>and you fell pregnant.

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<v Speaker 3>Yeah. COVID babies, there's lots of them. Yeah, so we

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<v Speaker 3>actually felt pregnant at the six months after we were

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<v Speaker 3>living together, so it was really quickly turned around.

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<v Speaker 2>So you don't mess around, Kelly, No.

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<v Speaker 3>We don't. When you know, you know exactly when you know,

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<v Speaker 3>you know. And we just spent three months in Queensland

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<v Speaker 3>with all of our teammates for Jeremy's teamates babies, and

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<v Speaker 3>I guess he saw how maternal I was, so when

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<v Speaker 3>we did fell pregnant, it was a no brainer and

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<v Speaker 3>obviously that was something we're really excited about. We ended

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<v Speaker 3>up having Sophia for giving birth to Sophia in the

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<v Speaker 3>hubs the next year, so that was really interesting. Jeremy

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<v Speaker 3>guests had to call time on his season otherwise he

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<v Speaker 3>would risk being locked out of the state that we

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<v Speaker 3>were already a foreign state. We're already in Queensland, whereas

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<v Speaker 3>we were living in Sydney. So yeah, it was a

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<v Speaker 3>big messy time of our life, but the best time

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<v Speaker 3>of our life all the same time.

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<v Speaker 2>Is there anything that you know that stood out? Is

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<v Speaker 2>there anything that because you went through your whole pregnancy

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<v Speaker 2>with all your checkups and all your tests and then

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<v Speaker 2>you give birth, was there any major signs or major

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<v Speaker 2>sort of symptoms where you know, the doctor, the nurse

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<v Speaker 2>or whatever would go well, something's not right here, or

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<v Speaker 2>was no signs?

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<v Speaker 3>Yeah, there was nothing more than I'd already experienced. I

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<v Speaker 3>did present to the hospital the emergency department a few

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<v Speaker 3>times prior to my pregnancy with the pains and stuff,

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<v Speaker 3>but every time I would just get told I had

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<v Speaker 3>COVID and to go home and have and rest, which

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<v Speaker 3>at the time, I guess everyone was scared of this

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<v Speaker 3>viral disease, so I can't blame them. But during my pregnancy,

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<v Speaker 3>I had a lot of pressure in my pelvis, which

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<v Speaker 3>obviously makes sense now, but at the time we thought

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<v Speaker 3>we just had a big baby. So it wasn't until

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<v Speaker 3>she was born and she was tiny that we were like,

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<v Speaker 3>where do all this pain come from? And also when

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<v Speaker 3>giving birth, they my placenter was like it looked like

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<v Speaker 3>a state had been like cut up basically, Like it

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<v Speaker 3>wasn't a big bore, a big plate. It was like

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<v Speaker 3>all cut up meat, basically my placenter. So once they

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<v Speaker 3>saw that, they were like, there's something not right here. Yeah,

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<v Speaker 3>But they were the only signs really that something else

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<v Speaker 3>was wrong, and I wasn't just a pregnant woman.

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<v Speaker 2>How hard was it to get an appointment or booking

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<v Speaker 2>that you needed because you already had it counceled, you

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<v Speaker 2>had it counseled before you gave birth, and now they

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<v Speaker 2>see these signs. How long after to you actually revisit

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<v Speaker 2>the hospital for your colonoscopy?

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<v Speaker 3>So I was in complete denial and kind of just

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<v Speaker 3>putting everything I was experiencing down to being postpartum. I

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<v Speaker 3>guess I never had another berth to compare it to

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<v Speaker 3>to know that this wasn't really normal, Like not going

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<v Speaker 3>to the toilet for ten days at a time, and

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<v Speaker 3>then when I'm going, I'm going fifteen times in an

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<v Speaker 3>hour like that. I didn't realize that that's not normal.

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<v Speaker 3>And I was terrified to go the toil after giving birth.

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<v Speaker 3>Don't get me wrong, most women are, but I guess

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<v Speaker 3>I just had an extreme case of that. And it

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<v Speaker 3>wasn't until three months postpartum that Jeremy actually made a

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<v Speaker 3>joke about me needing a porterloo because of the frequency

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<v Speaker 3>that I needed to go every time we went for

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<v Speaker 3>a drive, I'd make him fully to the service station

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<v Speaker 3>or whatever it may be, and he, yeah, made a

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<v Speaker 3>joke about needing a portaloo. And then that was kind

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<v Speaker 3>of my last straw that I didn't think was very funny,

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<v Speaker 3>and went and saw a GP who had me booked

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<v Speaker 3>to see a gastro ontologist the next day. So once

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<v Speaker 3>she heard my symptoms, which I'm really quite lucky because

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<v Speaker 3>I had just moved back to here, to Adelaide. We

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<v Speaker 3>got a trade with Jeremy's work. Had only been here

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<v Speaker 3>for two weeks and had to go see just a

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<v Speaker 3>bolk build GP, the closest one that I could find

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<v Speaker 3>the next available appointment, and I got really lucky that

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<v Speaker 3>it was a female GP that took me really seriously

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<v Speaker 3>as soon as I told her, I guess what was

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<v Speaker 3>going on?

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<v Speaker 2>And take me back to the day that you go.

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<v Speaker 2>It's three months after you've given birth, or they're thereabouts.

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<v Speaker 2>You go back in for your for your colonoscopy. Take

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<v Speaker 2>me through that day. Was it just you just thought

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<v Speaker 2>you're going to go in do this and then you're

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<v Speaker 2>going to walk out and you get the results whenever.

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<v Speaker 2>What was going through your mind on that day?

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<v Speaker 3>Yeah, Well, the hardest part of a kolonoscopy is the prep,

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<v Speaker 3>which I learned the hard way, and when you have

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<v Speaker 3>a complete bower block, it's quite hard to pass the prep.

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<v Speaker 3>I thought that I was just constipated, but obviously it

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<v Speaker 3>turned out that there was a fat tumor in my ass.

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<v Speaker 3>I say that very easily because that's just how it is.

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<v Speaker 3>But yeah, so I was at home with Sophia, so

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<v Speaker 3>my three month old breastfeeding still by myself because Jeremy

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<v Speaker 3>just started this new job here in Adelaide and he

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<v Speaker 3>had to do all the media and stuff around that,

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<v Speaker 3>and I was taking the prep at the same time.

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<v Speaker 3>And he got home from wherever he had to be

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<v Speaker 3>that day and I was asleep on the shower floor

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<v Speaker 3>with the shower running, and she was asleep on the

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<v Speaker 3>bath mat next to me. So it kind of puts

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<v Speaker 3>in perspective how hard the prep was on my body

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<v Speaker 3>because I couldn't pass it the way you meant to.

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<v Speaker 3>I was throwing it back up. So that was the

0:12:34.480 --> 0:12:39.600
<v Speaker 3>morning of my colonoscopy. I presented to the day suite

0:12:40.280 --> 0:12:43.560
<v Speaker 3>at about midday. My kolonoscopy was booked for about two

0:12:43.600 --> 0:12:46.640
<v Speaker 3>o'clock that afternoon, And the part that I was the

0:12:46.640 --> 0:12:48.800
<v Speaker 3>most angry about, I guess was the fact that I

0:12:48.800 --> 0:12:50.960
<v Speaker 3>hadn't eaten for twenty four hours and it was kept

0:12:50.960 --> 0:12:55.520
<v Speaker 3>being delayed, which in hindsight obviously like really not the

0:12:55.559 --> 0:12:58.960
<v Speaker 3>biggest deal. I'm angry, Oh, I was, And when I

0:12:59.000 --> 0:13:01.640
<v Speaker 3>woke up and the nurses being so beautiful to me,

0:13:01.760 --> 0:13:04.000
<v Speaker 3>and like, obviously they knew exactly what was going on,

0:13:04.040 --> 0:13:05.640
<v Speaker 3>but I thought they were just being so nice because

0:13:05.640 --> 0:13:10.679
<v Speaker 3>I was starving. Yeah, and then I woke up thinking

0:13:10.800 --> 0:13:12.880
<v Speaker 3>not much of it. Maybe I'd get given a diet

0:13:12.920 --> 0:13:16.320
<v Speaker 3>plan or something like that. Like I had this little

0:13:16.320 --> 0:13:17.719
<v Speaker 3>baby that I had to look after. I couldn't be

0:13:17.760 --> 0:13:22.760
<v Speaker 3>looking after myself. I walked into the gastrotologist's little room

0:13:22.880 --> 0:13:24.560
<v Speaker 3>and he just turned around a piece of paper which

0:13:24.600 --> 0:13:27.120
<v Speaker 3>had photos of the insides of my bow. Obviously I

0:13:27.120 --> 0:13:29.000
<v Speaker 3>didn't know that that's what it was. But when he

0:13:29.040 --> 0:13:30.840
<v Speaker 3>turned it around, he's like, this is what bow cancer

0:13:30.840 --> 0:13:33.199
<v Speaker 3>looks like. And I was like, oh, yeah, and what

0:13:33.320 --> 0:13:35.520
<v Speaker 3>does my bows look like? And he's like, this is

0:13:35.720 --> 0:13:36.120
<v Speaker 3>your bow.

0:13:36.360 --> 0:13:39.400
<v Speaker 2>I was like, oh, that's how they broke.

0:13:39.240 --> 0:13:40.280
<v Speaker 3>That, that's how it was delivered.

0:13:40.480 --> 0:13:42.440
<v Speaker 2>Yeah, what bow cancer looks like.

0:13:43.120 --> 0:13:45.760
<v Speaker 3>Yeah. So I think that he does this every day

0:13:45.800 --> 0:13:48.400
<v Speaker 3>of his life. That it's kind of like if we

0:13:48.400 --> 0:13:49.760
<v Speaker 3>don't say it like this and we make a big

0:13:49.800 --> 0:13:52.320
<v Speaker 3>deal about it, I don't know, it was so weird.

0:13:53.480 --> 0:13:56.000
<v Speaker 2>Well, it is a pretty big deal, to be fair,

0:13:56.480 --> 0:13:59.280
<v Speaker 2>And what's your first initial thought process after that?

0:14:00.600 --> 0:14:02.959
<v Speaker 3>Yeah, so I kind of yeah, I just went blank

0:14:03.080 --> 0:14:05.920
<v Speaker 3>a little bit. I didn't give him much, so he

0:14:06.000 --> 0:14:08.480
<v Speaker 3>kept giving me more information. I guess he was just

0:14:08.520 --> 0:14:12.040
<v Speaker 3>speaking and speaking and speaking and speaking, And basically we

0:14:12.120 --> 0:14:14.680
<v Speaker 3>left off with he'd already spoken to his mate, a

0:14:14.720 --> 0:14:17.040
<v Speaker 3>surgeon here in Adelaide, and I was booked in to

0:14:17.040 --> 0:14:21.280
<v Speaker 3>see him tomorrow, like the day after after hours, So

0:14:21.360 --> 0:14:23.440
<v Speaker 3>as soon as he'd knocked off from work, basically he

0:14:23.480 --> 0:14:27.240
<v Speaker 3>was just squeezing me in And that's how we left off.

0:14:27.280 --> 0:14:29.400
<v Speaker 3>So I left off with very little knowledge, knowing that

0:14:29.440 --> 0:14:31.640
<v Speaker 3>I had bow cancer with a piece of paper that

0:14:31.680 --> 0:14:34.320
<v Speaker 3>has photos of it, and knowing that I was going

0:14:34.320 --> 0:14:35.560
<v Speaker 3>to see the surgeon the next day.

0:14:37.000 --> 0:14:40.960
<v Speaker 2>Wow, so that's the only news you get. You don't

0:14:40.960 --> 0:14:43.400
<v Speaker 2>notice severity of it. Obviously, the next day you're going

0:14:43.440 --> 0:14:45.960
<v Speaker 2>to meet someone who's going to really really break it down.

0:14:46.280 --> 0:14:50.600
<v Speaker 2>What was that that period before that next meeting the

0:14:50.640 --> 0:14:54.760
<v Speaker 2>next day? What's going through your head? Where's your head at?

0:14:54.880 --> 0:14:55.600
<v Speaker 2>Where are you at?

0:14:56.560 --> 0:14:58.440
<v Speaker 3>Yeah? So I actually sat in the back seat of

0:14:58.480 --> 0:15:01.360
<v Speaker 3>the car with Sophia in her bascinette, which I hadn't

0:15:01.400 --> 0:15:05.200
<v Speaker 3>done for ages. I feel like I couldn't let her

0:15:05.200 --> 0:15:07.920
<v Speaker 3>out of my sight. It was almost like she was

0:15:08.320 --> 0:15:10.960
<v Speaker 3>gone without any even starting anything or even knowing what

0:15:11.000 --> 0:15:14.240
<v Speaker 3>I was doing. Like that bond that we had was

0:15:14.280 --> 0:15:16.200
<v Speaker 3>about to be broken. Like It's like I knew before

0:15:16.200 --> 0:15:21.720
<v Speaker 3>I knew it was animalistic, almost how destrayed I was.

0:15:22.680 --> 0:15:25.720
<v Speaker 3>My husband, well, my boyfriend at the time, was on

0:15:25.800 --> 0:15:28.640
<v Speaker 3>the phone to my mum basically telling her to get

0:15:28.640 --> 0:15:31.080
<v Speaker 3>on the next flight with Again, we had no information,

0:15:31.160 --> 0:15:33.800
<v Speaker 3>so we couldn't even tell her the severity of it

0:15:33.840 --> 0:15:37.320
<v Speaker 3>because we didn't know. He also caught a couple of

0:15:37.320 --> 0:15:40.360
<v Speaker 3>friends that were meeting me. They were at home when

0:15:40.360 --> 0:15:43.320
<v Speaker 3>I got home for them to try and help out,

0:15:43.360 --> 0:15:44.920
<v Speaker 3>I guess, But at the same time, I was like

0:15:45.600 --> 0:15:47.680
<v Speaker 3>not wanting help because I was like, I'm still able

0:15:47.720 --> 0:15:49.760
<v Speaker 3>to look after my own daughter. Like I'm like, I've

0:15:49.840 --> 0:15:52.000
<v Speaker 3>got a diagnosis, whatever it may be, but I'm still

0:15:52.080 --> 0:15:54.520
<v Speaker 3>nothing's happened, nothing's changed in the last day other than

0:15:54.560 --> 0:15:55.960
<v Speaker 3>a few words.

0:15:56.680 --> 0:16:04.000
<v Speaker 2>Psychologically, you're looking at your daughter, do you does it

0:16:04.040 --> 0:16:07.280
<v Speaker 2>break you? Does it? Or are you just thinking? Right?

0:16:07.280 --> 0:16:09.800
<v Speaker 2>I need to find out the severity of it. I

0:16:09.840 --> 0:16:11.600
<v Speaker 2>need to find out exactly what it is.

0:16:11.640 --> 0:16:11.840
<v Speaker 3>You know?

0:16:12.760 --> 0:16:15.640
<v Speaker 2>Or is your world literally crumbling in that car?

0:16:16.800 --> 0:16:21.360
<v Speaker 3>Yeah? Like I was, I was nowhere. I was literally nowhere.

0:16:21.400 --> 0:16:24.560
<v Speaker 3>My thoughts were complete, Marsh. I was incomplete denial or

0:16:24.560 --> 0:16:28.000
<v Speaker 3>I had I'd never heard of cancer and had it

0:16:28.080 --> 0:16:31.200
<v Speaker 3>linked to anyone younger than my grandparents. So it was

0:16:31.280 --> 0:16:35.200
<v Speaker 3>like it was just a weird, really weird reality to

0:16:35.240 --> 0:16:38.800
<v Speaker 3>be living in, especially knowing that it was directed at me.

0:16:39.320 --> 0:16:42.080
<v Speaker 3>Wasn't like I wasn't hearing on the news. I wasn't.

0:16:42.200 --> 0:16:45.120
<v Speaker 3>It was like it was real and I kind of

0:16:45.160 --> 0:16:47.440
<v Speaker 3>had to try and process that while also trying to

0:16:47.800 --> 0:16:52.440
<v Speaker 3>keep my head my head strong, funnily enough so that

0:16:52.560 --> 0:16:54.760
<v Speaker 3>my husband didn't crumble because I needed him to be

0:16:54.800 --> 0:16:56.640
<v Speaker 3>able to parent as well as me try to parent.

0:16:56.680 --> 0:16:59.080
<v Speaker 3>It was just there was so much happening, but at

0:16:59.080 --> 0:17:01.040
<v Speaker 3>the same time we didn't even know what we had

0:17:01.080 --> 0:17:03.000
<v Speaker 3>ahead of us, so it was so hard to try

0:17:03.040 --> 0:17:07.720
<v Speaker 3>and put things in place. But yeah, it was wild,

0:17:07.840 --> 0:17:11.120
<v Speaker 3>and I don't I don't think he really realized what

0:17:11.200 --> 0:17:13.400
<v Speaker 3>that was going to mean for us until obviously we'd

0:17:13.440 --> 0:17:14.800
<v Speaker 3>sat down and we'd gone through it.

0:17:15.160 --> 0:17:17.879
<v Speaker 2>How does the next day play out? And did do

0:17:17.920 --> 0:17:22.119
<v Speaker 2>your parents fly in and who's there when you realize

0:17:22.160 --> 0:17:25.520
<v Speaker 2>the severity of the bow cancer that you have.

0:17:26.280 --> 0:17:28.560
<v Speaker 3>So one of my friends is quite medically inclined, and

0:17:28.600 --> 0:17:32.119
<v Speaker 3>she happened to show up that night that I was diagnosed,

0:17:32.200 --> 0:17:34.200
<v Speaker 3>so she was going through the paperwork and I guess

0:17:34.240 --> 0:17:36.639
<v Speaker 3>filling everyone in that was contacting me because I just

0:17:36.680 --> 0:17:39.840
<v Speaker 3>went completely mute and didn't speak to anyone, didn't reply

0:17:39.920 --> 0:17:42.600
<v Speaker 3>to anyone, didn't answer phone calls. So she was, I guess,

0:17:42.720 --> 0:17:47.080
<v Speaker 3>being that person that everyone went through, and she could

0:17:47.080 --> 0:17:49.240
<v Speaker 3>tell mum just by looking at the photos that it

0:17:49.359 --> 0:17:53.199
<v Speaker 3>definitely wasn't stage one or two, potentially stage three, but

0:17:53.440 --> 0:17:56.360
<v Speaker 3>looking it was huge and it was everywhere like it's

0:17:56.359 --> 0:17:59.680
<v Speaker 3>probably going to be stage four. But so I bring

0:17:59.720 --> 0:18:02.400
<v Speaker 3>her with me to the surgeon's appointment, and my mum

0:18:02.520 --> 0:18:05.439
<v Speaker 3>rocked up that morning as well. So there was my mum,

0:18:05.640 --> 0:18:10.600
<v Speaker 3>my best friend, my Jeremy, my boyfriend, and Sophia were

0:18:10.600 --> 0:18:12.240
<v Speaker 3>all in the surgeon's office and he just had to

0:18:12.280 --> 0:18:15.480
<v Speaker 3>try and I guess explain. He quite literally drew pictures

0:18:15.520 --> 0:18:17.560
<v Speaker 3>to explain kind of what was going to go on,

0:18:17.760 --> 0:18:19.920
<v Speaker 3>because it was going in one ear and out the other.

0:18:20.040 --> 0:18:24.000
<v Speaker 3>But it wasn't until we had scan the following week

0:18:24.240 --> 0:18:27.280
<v Speaker 3>that we realized I guess that it had spread elsewhere,

0:18:27.320 --> 0:18:29.000
<v Speaker 3>so that it was stage.

0:18:28.640 --> 0:18:41.320
<v Speaker 2>Four, stage four cancer. What is stage four cancer?

0:18:41.760 --> 0:18:46.159
<v Speaker 3>Yes, it's actually stage four terminal cancer, which we wow.

0:18:46.200 --> 0:18:49.920
<v Speaker 3>The media loves to pick up that word, but it's

0:18:50.000 --> 0:18:54.280
<v Speaker 3>essentially just means that it's spread from the primary tumor,

0:18:54.320 --> 0:18:58.040
<v Speaker 3>which was in my rectum, to another organ. So if

0:18:58.080 --> 0:19:01.040
<v Speaker 3>it's only spread to the lymph nodes, it would be

0:19:01.080 --> 0:19:03.359
<v Speaker 3>stage three. If it was the primary tumor, and just

0:19:03.440 --> 0:19:05.960
<v Speaker 3>outside of the primary tumor in those linkhodes I be

0:19:06.000 --> 0:19:08.760
<v Speaker 3>stage two and stage one is just that tumor.

0:19:09.320 --> 0:19:14.199
<v Speaker 2>So you literally get told that you've got terminal cancer,

0:19:14.480 --> 0:19:18.520
<v Speaker 2>the worst possible outcome that you could have, you know,

0:19:19.920 --> 0:19:25.680
<v Speaker 2>hopeful and wished for. What's the atmosphere like in the

0:19:25.800 --> 0:19:30.719
<v Speaker 2>room when that word comes out, you've got terminal cancer?

0:19:31.000 --> 0:19:35.320
<v Speaker 3>It was a lot of confusion, I guess, only because

0:19:35.480 --> 0:19:39.000
<v Speaker 3>we've just heard of this cancer and now it's terminal.

0:19:40.000 --> 0:19:44.920
<v Speaker 3>And my surgeon's body language went from we will cure

0:19:45.000 --> 0:19:48.160
<v Speaker 3>you you're twenty five years old to or will try

0:19:48.320 --> 0:19:51.679
<v Speaker 3>prolong your life as soon as he realized the extent

0:19:51.800 --> 0:19:55.320
<v Speaker 3>as well. It's not one that's easily cured, but it

0:19:55.720 --> 0:20:01.520
<v Speaker 3>is curable. About cancer is curable, it's just I'm one

0:20:01.520 --> 0:20:04.919
<v Speaker 3>of the unlucky cases that have yet to hit remissions.

0:20:05.000 --> 0:20:10.760
<v Speaker 3>So yeah, it was a lot at the time, and

0:20:10.920 --> 0:20:13.520
<v Speaker 3>all I was worried about was my fertility, and I

0:20:13.560 --> 0:20:18.919
<v Speaker 3>guess the collateral damage that I know cancer brings obviously

0:20:19.000 --> 0:20:20.720
<v Speaker 3>a three month old, and that was my forefront of

0:20:20.800 --> 0:20:23.440
<v Speaker 3>my mind. Even having this diagnosis. All I was thinking

0:20:23.440 --> 0:20:26.760
<v Speaker 3>about was her future and her having siblings. And my

0:20:27.359 --> 0:20:29.080
<v Speaker 3>surgeon looked me dead in the eye and said, would

0:20:29.080 --> 0:20:32.680
<v Speaker 3>you rather give her a sibling or a mum? So

0:20:32.840 --> 0:20:35.000
<v Speaker 3>that kind of was my wake up call, like, holy shit,

0:20:35.080 --> 0:20:35.600
<v Speaker 3>this is real.

0:20:37.760 --> 0:20:41.560
<v Speaker 2>Wow, how does that affect you as a mother.

0:20:42.320 --> 0:20:43.800
<v Speaker 3>It's like I've failed her?

0:20:46.240 --> 0:20:46.720
<v Speaker 2>Why was that?

0:20:48.119 --> 0:20:51.520
<v Speaker 3>Well, yeah, I guess you have all these ideas and preconceived,

0:20:51.600 --> 0:20:54.800
<v Speaker 3>like lived experience of how you've grown up and how

0:20:54.880 --> 0:20:58.639
<v Speaker 3>you want your family to grow up, and then like

0:20:58.800 --> 0:21:02.320
<v Speaker 3>this little three month old, she can't do anything. She

0:21:02.480 --> 0:21:04.680
<v Speaker 3>doesn't have an opinion to be like I'd rather siblings,

0:21:04.720 --> 0:21:06.879
<v Speaker 3>Like obviously she's never gonna say that, but do you

0:21:06.960 --> 0:21:08.400
<v Speaker 3>know what I mean? Like, she doesn't get a say

0:21:08.440 --> 0:21:11.399
<v Speaker 3>in this, and we dictate how her life lives. And

0:21:11.560 --> 0:21:16.120
<v Speaker 3>in that moment, I was basically selfishly choosing myself over

0:21:16.840 --> 0:21:17.359
<v Speaker 3>her life.

0:21:19.640 --> 0:21:23.600
<v Speaker 2>And how does Jeremy and your family take the news,

0:21:23.680 --> 0:21:27.160
<v Speaker 2>Because again, going from zero to one hundred, like you said,

0:21:27.200 --> 0:21:31.760
<v Speaker 2>I've got cancer, then terminal and cah, How did your

0:21:31.800 --> 0:21:36.000
<v Speaker 2>family and especially Jeremy, your husband, what was there you know?

0:21:36.080 --> 0:21:37.920
<v Speaker 2>Initial response? I suppose.

0:21:38.800 --> 0:21:41.719
<v Speaker 3>I don't think anyone really processed it until we were

0:21:41.880 --> 0:21:43.720
<v Speaker 3>out of her, if that makes sense. So, like the

0:21:43.880 --> 0:21:47.120
<v Speaker 3>nine months of doing the treatment and the surgeries, because

0:21:47.119 --> 0:21:50.880
<v Speaker 3>it was surgery after surgery, it wasn't until we had

0:21:51.600 --> 0:21:54.879
<v Speaker 3>no appointment booked that we were like, that just happened,

0:21:54.920 --> 0:21:56.480
<v Speaker 3>and now we've got all of this to deal with.

0:21:58.440 --> 0:22:00.720
<v Speaker 3>And that was probably the hardest part because we weren't

0:22:00.800 --> 0:22:02.800
<v Speaker 3>then relying on any medical stuff. We had to rely

0:22:02.960 --> 0:22:06.919
<v Speaker 3>on our own thoughts and our own I guess decisions,

0:22:06.960 --> 0:22:09.879
<v Speaker 3>and yeah, we really had to guess, take control of

0:22:10.359 --> 0:22:12.600
<v Speaker 3>what had just happened, and deal with the collateral, which

0:22:13.040 --> 0:22:16.560
<v Speaker 3>no one talks about. When you're coming out of this battle,

0:22:16.840 --> 0:22:21.560
<v Speaker 3>as they call it, is what you're left without. A

0:22:21.640 --> 0:22:24.280
<v Speaker 3>lot's taken from you, and it's not just taken from

0:22:24.320 --> 0:22:27.280
<v Speaker 3>the patient, it's taken from everyone around you. My mom

0:22:27.440 --> 0:22:29.399
<v Speaker 3>had to quit her job, so she lost income. My

0:22:29.720 --> 0:22:31.520
<v Speaker 3>mom had to move in with us, so she was

0:22:31.560 --> 0:22:34.240
<v Speaker 3>away from my dad for nine months, so then he

0:22:34.440 --> 0:22:36.240
<v Speaker 3>was without her. He had to learn how to cook

0:22:36.320 --> 0:22:40.359
<v Speaker 3>and clean, which she's never done in his life. My husband,

0:22:40.480 --> 0:22:44.800
<v Speaker 3>lall fiance at the time, was without a mother. He

0:22:44.920 --> 0:22:46.840
<v Speaker 3>was being a dad and a mum or relying on

0:22:46.960 --> 0:22:49.520
<v Speaker 3>my mom to help him parent, which it's just not

0:22:49.960 --> 0:22:52.560
<v Speaker 3>something you would ever expect. And obviously they had to

0:22:52.600 --> 0:22:55.440
<v Speaker 3>grow a really good connection and learn how to parent

0:22:55.520 --> 0:23:00.439
<v Speaker 3>together as in laws. So yeah, there was a lot happening,

0:23:00.520 --> 0:23:03.920
<v Speaker 3>and I was kind of just in bed, rodding away,

0:23:04.640 --> 0:23:08.200
<v Speaker 3>trying to leave each day, trying my best when I could.

0:23:08.320 --> 0:23:10.240
<v Speaker 3>But there's not a lot of good days that I

0:23:10.359 --> 0:23:12.040
<v Speaker 3>had in those first nine months.

0:23:12.119 --> 0:23:14.560
<v Speaker 2>So but you've got to quick, right, You've got you

0:23:14.680 --> 0:23:18.680
<v Speaker 2>get this news terminal. Time's not on your side. What's

0:23:18.720 --> 0:23:22.360
<v Speaker 2>the first first thing that happens? And I you know, treatment,

0:23:22.520 --> 0:23:26.240
<v Speaker 2>how do you how do you progress with going right? Terminal?

0:23:26.800 --> 0:23:30.800
<v Speaker 2>Does that mean that it's irreversible or like you said,

0:23:30.920 --> 0:23:33.359
<v Speaker 2>you know they can cure bow camp. But that's so

0:23:33.560 --> 0:23:36.080
<v Speaker 2>what's the what's the the immediate treatment for that?

0:23:37.119 --> 0:23:39.760
<v Speaker 3>Yeah, like you said, as soon as I said terminal,

0:23:39.840 --> 0:23:43.800
<v Speaker 3>I assumed irreversible and obviously hoped and prayed and like

0:23:44.040 --> 0:23:47.840
<v Speaker 3>promised myself that I'd get through it. But the reality

0:23:48.040 --> 0:23:49.600
<v Speaker 3>was I was about to go through a hell of

0:23:49.640 --> 0:23:52.480
<v Speaker 3>a fight to try and even stay alive each day.

0:23:54.080 --> 0:23:58.080
<v Speaker 3>But my first point of call was weaning for breastfeeding.

0:23:58.119 --> 0:23:59.919
<v Speaker 3>And I obviously you've never done that, you're a man,

0:24:00.160 --> 0:24:05.320
<v Speaker 3>but weaning from breastfeeding hurts. It's a painful experience. And

0:24:05.440 --> 0:24:08.399
<v Speaker 3>then because I stopped breastfeeding, I got my first period,

0:24:08.480 --> 0:24:12.679
<v Speaker 3>which is a whole nother game. As I was literally

0:24:12.720 --> 0:24:14.639
<v Speaker 3>going to the hospital to get a stoma, so my

0:24:14.920 --> 0:24:18.040
<v Speaker 3>bows reverted to my stomach to pass. Because I had

0:24:18.080 --> 0:24:20.399
<v Speaker 3>a block, I couldn't go to the toilet, so I

0:24:20.520 --> 0:24:23.040
<v Speaker 3>was laying in the bed with these two fake stonmas

0:24:23.119 --> 0:24:25.680
<v Speaker 3>to choose which side to have it on. When I

0:24:25.760 --> 0:24:28.040
<v Speaker 3>got my first period, and I had massed artists because

0:24:28.040 --> 0:24:30.280
<v Speaker 3>I was weaning from breastfeeding. So that was all within

0:24:30.440 --> 0:24:34.320
<v Speaker 3>seven days of diagnosis, So it was absolutely crazy. I

0:24:34.680 --> 0:24:36.440
<v Speaker 3>like what I tell you, I had no time to

0:24:36.560 --> 0:24:39.560
<v Speaker 3>process it, and as much as I'm so glad, I

0:24:39.640 --> 0:24:42.160
<v Speaker 3>didn't because I wasn't able to, I guess go down

0:24:42.240 --> 0:24:46.399
<v Speaker 3>any dark thought paths or whatever. But yeah, I had

0:24:46.480 --> 0:24:48.680
<v Speaker 3>no time to process anything. It was just go, go, go,

0:24:48.960 --> 0:24:52.440
<v Speaker 3>trust what the doctor's saying and do what you told basically.

0:24:52.600 --> 0:24:55.840
<v Speaker 2>And what does that process look like. So you get

0:24:55.880 --> 0:25:00.359
<v Speaker 2>the news. I suppose they give you a program straight away.

0:25:00.640 --> 0:25:01.760
<v Speaker 2>What does that program look like?

0:25:02.880 --> 0:25:06.360
<v Speaker 3>Yep? So the stoma and then on my twenty sixth

0:25:06.359 --> 0:25:09.360
<v Speaker 3>birthday of the week after, I started radiotherapy every day

0:25:10.080 --> 0:25:14.920
<v Speaker 3>for five weeks as well as oral chemotherapy, So that

0:25:15.040 --> 0:25:17.520
<v Speaker 3>was over Christmas. That was from the sixth of December

0:25:17.600 --> 0:25:21.920
<v Speaker 3>until mid jan and then I had two weeks off

0:25:22.160 --> 0:25:25.800
<v Speaker 3>because who two weeks off before I started intravenous chemotherapy

0:25:25.960 --> 0:25:30.720
<v Speaker 3>for six months. So yeah, from November the twenty seventh

0:25:30.800 --> 0:25:34.960
<v Speaker 3>when I had my stoma surgery to what the end

0:25:35.080 --> 0:25:38.600
<v Speaker 3>of July, I was just go, go, go with treatment.

0:25:39.520 --> 0:25:43.200
<v Speaker 2>Do you feel like that, Well, it obviously did robbed

0:25:43.240 --> 0:25:45.720
<v Speaker 2>your time as a mother. You know, you've got Sophia.

0:25:46.480 --> 0:25:50.200
<v Speaker 2>Obviously the main thing is yourself to get to get treated.

0:25:50.320 --> 0:25:55.360
<v Speaker 2>But how does it affect your relationship with Sophia?

0:25:56.119 --> 0:25:58.760
<v Speaker 3>Yeah, so I went from her obviously needing me and

0:25:58.840 --> 0:26:02.040
<v Speaker 3>no one else really realistically because I was her breastfeeding

0:26:02.160 --> 0:26:06.399
<v Speaker 3>parent too, not many months later having her come to

0:26:06.520 --> 0:26:08.760
<v Speaker 3>the see me in hospital because I was there a lot,

0:26:09.720 --> 0:26:12.119
<v Speaker 3>and no longer like if she wanted a bottle, no

0:26:12.320 --> 0:26:15.040
<v Speaker 3>longer being like mummy, mummy. It was always Namma, which.

0:26:14.920 --> 0:26:15.440
<v Speaker 2>Is my mum.

0:26:16.119 --> 0:26:18.760
<v Speaker 3>So I guess I went from watching her need me

0:26:19.040 --> 0:26:22.400
<v Speaker 3>to not need me at all, and it was absolutely crazy.

0:26:22.400 --> 0:26:26.120
<v Speaker 3>It was definitely the hardest part was watching that, I guess,

0:26:26.200 --> 0:26:27.840
<v Speaker 3>disconnect between the two of us.

0:26:29.240 --> 0:26:31.480
<v Speaker 2>And how did you deal with that psychologically? How did

0:26:31.520 --> 0:26:33.840
<v Speaker 2>you think to yourself? Right, you know, I've got to

0:26:33.920 --> 0:26:36.119
<v Speaker 2>got no choice, I've got to get through this. It

0:26:36.240 --> 0:26:37.080
<v Speaker 2>must have been horrible.

0:26:37.880 --> 0:26:40.440
<v Speaker 3>Yeah, it was, like I said, the hardest part, But

0:26:40.520 --> 0:26:42.840
<v Speaker 3>it was definitely. There was a point where I was

0:26:42.920 --> 0:26:47.040
<v Speaker 3>almost jealous or envious of the people in my daughter's

0:26:47.119 --> 0:26:49.320
<v Speaker 3>life that she called five women in her life mum

0:26:49.440 --> 0:26:51.800
<v Speaker 3>before she realized that she only had one mom like

0:26:52.359 --> 0:26:54.399
<v Speaker 3>she had all these people, and I had to I

0:26:54.480 --> 0:26:57.320
<v Speaker 3>guess I had to really teach myself to know that

0:26:57.480 --> 0:27:00.080
<v Speaker 3>they were there to help and they weren't trying to

0:27:00.119 --> 0:27:02.840
<v Speaker 3>step on my toes. They were doing things because I couldn't.

0:27:04.000 --> 0:27:05.920
<v Speaker 3>It took a lot for me to realize that she

0:27:06.080 --> 0:27:08.879
<v Speaker 3>was lucky to have them, not unlucky to not have me,

0:27:09.480 --> 0:27:12.960
<v Speaker 3>If that makes sense, like it, Yeah, I had to

0:27:13.040 --> 0:27:16.800
<v Speaker 3>play a lot of mind games with myself. I guess

0:27:17.040 --> 0:27:20.639
<v Speaker 3>rephrasing things or flipping the switch and making sure that

0:27:20.720 --> 0:27:26.159
<v Speaker 3>I could really be grateful rather than absolutely hating on

0:27:26.280 --> 0:27:29.320
<v Speaker 3>these people that were doing everything for me, not against me.

0:27:30.119 --> 0:27:35.600
<v Speaker 2>Were you given a timeline, are you in your head

0:27:35.600 --> 0:27:37.400
<v Speaker 2>as well? Are you planning for worst case scenario?

0:27:38.200 --> 0:27:41.320
<v Speaker 3>So we were working twelve week blocks, myself and my

0:27:41.440 --> 0:27:44.960
<v Speaker 3>medical professionals. So once we got through each twelve week block,

0:27:45.040 --> 0:27:46.800
<v Speaker 3>that was another scan, and I guess that would tell

0:27:46.880 --> 0:27:49.800
<v Speaker 3>us what the next twelve weeks would look like. So

0:27:49.960 --> 0:27:52.960
<v Speaker 3>my first year of diagnosis was definitely in those twelve

0:27:53.000 --> 0:27:56.040
<v Speaker 3>week blocks, and maybe sometimes six weeks, depending on I

0:27:56.080 --> 0:27:59.639
<v Speaker 3>guess what stage we were at. But I never I

0:27:59.760 --> 0:28:02.399
<v Speaker 3>never thought that it would beat me. I never it

0:28:02.560 --> 0:28:04.760
<v Speaker 3>never consumed my mind at all at all.

0:28:05.119 --> 0:28:05.280
<v Speaker 2>Never.

0:28:05.400 --> 0:28:09.320
<v Speaker 3>I was never giving in to the disease. I was

0:28:09.359 --> 0:28:13.720
<v Speaker 3>always stronger than it. People would suggest like writing books

0:28:13.800 --> 0:28:18.600
<v Speaker 3>for Sophia for different milestones, or putting my voice into

0:28:18.640 --> 0:28:20.320
<v Speaker 3>a teddy Bear or all these things, but I did

0:28:20.400 --> 0:28:23.720
<v Speaker 3>none of that because I genuinely believed that I would

0:28:24.000 --> 0:28:26.240
<v Speaker 3>be there to see those milestones and I would be

0:28:26.280 --> 0:28:27.960
<v Speaker 3>able to tell her that I loved her. She didn't

0:28:27.960 --> 0:28:29.600
<v Speaker 3>need a Teddy Bear to tell her that she loved,

0:28:29.960 --> 0:28:33.399
<v Speaker 3>that she was loved. So yeah, I think by not

0:28:33.640 --> 0:28:36.160
<v Speaker 3>giving into these things, and like even like my life insurance,

0:28:36.200 --> 0:28:38.000
<v Speaker 3>they were like, yeah, you can have it, you're dying.

0:28:38.760 --> 0:28:41.080
<v Speaker 3>I was like, absolutely not. I need that for when

0:28:41.160 --> 0:28:43.760
<v Speaker 3>I do die. So but I believe that if I

0:28:43.840 --> 0:28:45.560
<v Speaker 3>took that, that would be like some sort of calm

0:28:45.680 --> 0:28:49.800
<v Speaker 3>or me accepting that I was dying. And I didn't. Yeah,

0:28:50.000 --> 0:28:52.640
<v Speaker 3>I didn't let my body believe that I was dying.

0:28:52.680 --> 0:28:54.880
<v Speaker 3>And I obviously I'm still here three years later. So

0:28:56.320 --> 0:28:57.680
<v Speaker 3>whatever I'm doing, I'm doing okay.

0:28:58.720 --> 0:29:02.480
<v Speaker 2>And the pross Is it painful?

0:29:03.320 --> 0:29:03.480
<v Speaker 3>Is it?

0:29:04.480 --> 0:29:07.680
<v Speaker 2>Is it shocking? Is there a physical change with yourself

0:29:08.640 --> 0:29:09.800
<v Speaker 2>during the period after?

0:29:10.680 --> 0:29:13.480
<v Speaker 3>Yeah, so I was really concerned about losing my hair.

0:29:13.560 --> 0:29:16.800
<v Speaker 3>I think any woman would be. But the chemotherapy that

0:29:16.880 --> 0:29:19.480
<v Speaker 3>I was on, I didn't lose my hair, so I

0:29:19.520 --> 0:29:21.600
<v Speaker 3>guess that was that's your main appearance as a woman,

0:29:21.680 --> 0:29:23.800
<v Speaker 3>especially when you have long I had long, blonde hair,

0:29:23.880 --> 0:29:25.920
<v Speaker 3>So this is not this is my regrowth because I

0:29:26.000 --> 0:29:30.320
<v Speaker 3>did end up losing my hair eventually, and then yeah,

0:29:30.400 --> 0:29:35.120
<v Speaker 3>so I looked like me, which also helped people treat

0:29:35.200 --> 0:29:39.120
<v Speaker 3>me like me and not like a patient, which allowed

0:29:39.160 --> 0:29:42.160
<v Speaker 3>me to act like me, which was really really helpful.

0:29:42.680 --> 0:29:44.760
<v Speaker 3>But I did. I lost a shit ton of weight.

0:29:44.960 --> 0:29:46.600
<v Speaker 3>I mean I had a stoma, so I had a

0:29:46.720 --> 0:29:51.760
<v Speaker 3>foreign object on my stomach. I didn't. I wasn't the

0:29:51.960 --> 0:29:54.920
<v Speaker 3>normal mum that she should have had. But I was

0:29:55.000 --> 0:29:58.240
<v Speaker 3>as good as I possibly could be. It was hard.

0:29:58.320 --> 0:30:01.240
<v Speaker 3>I was allergic to one of the brands of that chemotherapy,

0:30:01.320 --> 0:30:03.520
<v Speaker 3>which is why when I did relapse, I had to

0:30:03.680 --> 0:30:08.920
<v Speaker 3>change chemotherapy, which meant lost my hair. But yeah, it

0:30:09.080 --> 0:30:11.520
<v Speaker 3>was I was on my deathbed. I was getting anaphyletic

0:30:11.600 --> 0:30:14.480
<v Speaker 3>reactions every three weeks to this chemotherapy, so I was

0:30:14.600 --> 0:30:18.320
<v Speaker 3>I was essentially dying every three weeks just to get better.

0:30:27.480 --> 0:30:31.880
<v Speaker 2>It must take its toll on your body, on your headspace,

0:30:32.080 --> 0:30:35.560
<v Speaker 2>on the family, on you know, the people around you.

0:30:37.120 --> 0:30:42.720
<v Speaker 2>How who's been the obviously Jeremy, I assume has been

0:30:43.000 --> 0:30:45.360
<v Speaker 2>a rock for you, But how important it is to

0:30:45.480 --> 0:30:48.080
<v Speaker 2>have those positive people around you in order for you

0:30:48.920 --> 0:30:51.720
<v Speaker 2>to maintain your positive mindset. Because I love that you

0:30:51.840 --> 0:30:54.200
<v Speaker 2>went through that process of you know, I'm not going

0:30:54.280 --> 0:30:56.680
<v Speaker 2>to give up. I'm not going to plan for the worst.

0:30:56.720 --> 0:30:59.440
<v Speaker 2>I'm not going to tell myself that, you know, I'm

0:30:59.560 --> 0:31:02.360
<v Speaker 2>not going to be hear, how important is it to

0:31:02.400 --> 0:31:05.240
<v Speaker 2>have those people around you to support you.

0:31:06.040 --> 0:31:09.280
<v Speaker 3>Yeah, I got so lucky, so lucky with a little

0:31:09.320 --> 0:31:12.800
<v Speaker 3>community or village that I had around me. They really

0:31:12.880 --> 0:31:15.080
<v Speaker 3>allowed me to be me still, and they allowed me

0:31:15.200 --> 0:31:17.160
<v Speaker 3>to not just be this patient. Obviously they were there

0:31:17.160 --> 0:31:21.800
<v Speaker 3>for me when I needed that help, especially because chemotherapy

0:31:21.880 --> 0:31:25.240
<v Speaker 3>does it knocks you, but they also allowed me to

0:31:25.360 --> 0:31:28.320
<v Speaker 3>do as much as I possibly could, and they allowed

0:31:28.360 --> 0:31:31.640
<v Speaker 3>me to still be a human, which was so so

0:31:32.040 --> 0:31:35.680
<v Speaker 3>great and it helped me get through completely. My medical

0:31:35.720 --> 0:31:39.800
<v Speaker 3>team was just insane. They were so supportive, Like my

0:31:39.920 --> 0:31:42.640
<v Speaker 3>surgeon literally left his eighteenth his daughter's eighteenth birthday to

0:31:42.680 --> 0:31:44.040
<v Speaker 3>come and see me to make sure that I was

0:31:44.080 --> 0:31:47.760
<v Speaker 3>okay in hospital one night. Like the things that people did,

0:31:47.920 --> 0:31:50.960
<v Speaker 3>I don't didn't realize at the time how much I

0:31:51.040 --> 0:31:54.960
<v Speaker 3>needed it, But now looking back, it's incredible, and I

0:31:55.120 --> 0:31:57.160
<v Speaker 3>know how much this affects so many more people than

0:31:57.240 --> 0:32:00.840
<v Speaker 3>just the patient, which at the time, again, you're very

0:32:01.000 --> 0:32:02.880
<v Speaker 3>much selfish and just trying to get through it, and

0:32:03.000 --> 0:32:06.240
<v Speaker 3>you think everything's just being like only you're being affected.

0:32:06.360 --> 0:32:08.800
<v Speaker 3>But now, yeah, looking back, the amount of people that

0:32:08.920 --> 0:32:11.720
<v Speaker 3>lost their life that year, as well, is just crazy.

0:32:12.040 --> 0:32:15.880
<v Speaker 2>The treatment it's in blocks, and after three months is

0:32:16.040 --> 0:32:19.200
<v Speaker 2>that you just get given the h this isn't and

0:32:19.800 --> 0:32:23.240
<v Speaker 2>you relapse. That's when you start. That's when you go right, listen.

0:32:24.000 --> 0:32:25.560
<v Speaker 3>I had a major surgery and they said there was

0:32:25.600 --> 0:32:27.440
<v Speaker 3>no evidence of disease, and what did that look like?

0:32:28.240 --> 0:32:31.680
<v Speaker 3>Antior a lower ultra lower anterior resection. So they removed

0:32:31.760 --> 0:32:34.920
<v Speaker 3>my inner sphincter, my rectum, my sigmoid colon, and part

0:32:35.000 --> 0:32:39.440
<v Speaker 3>of my colon, so a whole chunk of my bower basically. Yeah,

0:32:39.520 --> 0:32:42.360
<v Speaker 3>so they removed that and then they said there's no

0:32:42.440 --> 0:32:44.480
<v Speaker 3>evidence of disease, which is obviously the words you want

0:32:44.520 --> 0:32:46.760
<v Speaker 3>to hear. I wish I got remission. I've never gotten that,

0:32:47.240 --> 0:32:51.280
<v Speaker 3>but yeah, and then only I had my stoma reversed

0:32:51.280 --> 0:32:53.560
<v Speaker 3>three months after that, and then in December that year,

0:32:53.680 --> 0:32:56.200
<v Speaker 3>So a few months later I was relapsed and it

0:32:56.320 --> 0:32:59.000
<v Speaker 3>was in my lung, it was in my pelverse, it

0:32:59.040 --> 0:33:01.600
<v Speaker 3>was in my stomach, it was everywhere.

0:33:01.560 --> 0:33:02.520
<v Speaker 2>And is it still there?

0:33:03.960 --> 0:33:06.960
<v Speaker 3>So I mopped out all up with chemotherapy and radiotherapy.

0:33:08.280 --> 0:33:10.360
<v Speaker 3>Was doing really well, was really stable. I've never been

0:33:10.440 --> 0:33:12.920
<v Speaker 3>no evidence of disease since then, but I've been really

0:33:13.000 --> 0:33:15.160
<v Speaker 3>stable and being able to live a life like an

0:33:15.240 --> 0:33:18.520
<v Speaker 3>actual life and not being on my deathbed each week

0:33:19.680 --> 0:33:22.800
<v Speaker 3>like my new oncologists has just managed to. I guess,

0:33:22.840 --> 0:33:25.480
<v Speaker 3>make sure quality of life is also met, knowing that

0:33:25.560 --> 0:33:27.240
<v Speaker 3>I'm going to be living with this for the rest.

0:33:27.120 --> 0:33:29.480
<v Speaker 2>Of my life likely and what does that look like

0:33:29.520 --> 0:33:30.560
<v Speaker 2>on a day to day basis.

0:33:31.440 --> 0:33:34.480
<v Speaker 3>Yeah, so after the initial relapse, I did a really

0:33:34.520 --> 0:33:39.320
<v Speaker 3>aggressive chemotherapy again and then just managed it twelve weekly

0:33:39.560 --> 0:33:42.400
<v Speaker 3>scans and blood tests every fourth three to four weeks

0:33:42.480 --> 0:33:45.240
<v Speaker 3>and making sure. I guess I'm one of the lucky

0:33:45.320 --> 0:33:49.360
<v Speaker 3>ones that my cancer is really responsive and my blood

0:33:49.800 --> 0:33:51.520
<v Speaker 3>will show if something's wrong, so we'll be able to

0:33:51.640 --> 0:33:55.840
<v Speaker 3>act on that. But yeah, now at the moment, I'm

0:33:55.960 --> 0:33:59.040
<v Speaker 3>back in chemotherapy, which I said I never would do again.

0:33:59.200 --> 0:34:03.360
<v Speaker 3>But it's just oral, just oral chemotherapy, so I'm able

0:34:03.440 --> 0:34:05.360
<v Speaker 3>to not be in the hospital, so I'm able to

0:34:05.400 --> 0:34:08.480
<v Speaker 3>be at home. I don't hear the beeping sound, so

0:34:08.480 --> 0:34:12.960
<v Speaker 3>I've got really bad PTSD from beeping sounds because one

0:34:13.000 --> 0:34:15.200
<v Speaker 3>of the ways you can do chemotherapy is with a

0:34:15.320 --> 0:34:17.720
<v Speaker 3>pump that hangs around your neck for forty eight hours.

0:34:18.400 --> 0:34:20.440
<v Speaker 3>So I can be home, not in the hospital. But

0:34:20.800 --> 0:34:22.680
<v Speaker 3>that gives me PTSD and it just sends me into

0:34:22.719 --> 0:34:25.279
<v Speaker 3>a spiral, and I get side effects that aren't even

0:34:25.320 --> 0:34:28.960
<v Speaker 3>from the chemotherapy that are presenting because I'm so traumatized

0:34:29.000 --> 0:34:34.000
<v Speaker 3>from having chemotherapy. Yes, so now I do two week

0:34:34.080 --> 0:34:36.920
<v Speaker 3>blocks of oral chemotherapy. I'm in a week off at

0:34:36.960 --> 0:34:38.719
<v Speaker 3>the moment, and then I'll start again on one day

0:34:38.760 --> 0:34:41.840
<v Speaker 3>and do another two weeks of that chemo for the

0:34:41.960 --> 0:34:43.400
<v Speaker 3>next six months.

0:34:43.800 --> 0:34:47.279
<v Speaker 2>And you you're on this because you've relapsed, Is that right?

0:34:48.840 --> 0:34:49.080
<v Speaker 3>Yeah?

0:34:51.239 --> 0:34:54.239
<v Speaker 2>And how what does that look like? The relapse is it?

0:34:54.520 --> 0:34:54.680
<v Speaker 3>Is it?

0:34:55.960 --> 0:34:59.759
<v Speaker 2>Is it an extension or is the chemo treating it?

0:35:01.040 --> 0:35:03.719
<v Speaker 2>And then it's coming back? What does that look like?

0:35:04.480 --> 0:35:06.719
<v Speaker 3>Yeah? So I stopped chemotherapy for a little bit. There

0:35:07.440 --> 0:35:10.719
<v Speaker 3>was looking at alternate stuff and doing different trials like

0:35:10.800 --> 0:35:15.600
<v Speaker 3>clinical trials and stuff. But I got pneumonia not long ago,

0:35:15.800 --> 0:35:19.080
<v Speaker 3>forget all the time, but it just wouldn't go away.

0:35:19.160 --> 0:35:21.040
<v Speaker 3>So I went I had a scan and it was

0:35:21.600 --> 0:35:23.839
<v Speaker 3>the three I've got three mets, or had three mets

0:35:23.880 --> 0:35:26.719
<v Speaker 3>in my lung and they had grown by a really

0:35:26.800 --> 0:35:30.200
<v Speaker 3>really small margin. But any growth in my cancer is

0:35:30.440 --> 0:35:34.560
<v Speaker 3>quite aggressive and needs to I guess be addressed straight

0:35:34.600 --> 0:35:39.240
<v Speaker 3>away because it's not the original tumor, so's it grows

0:35:39.280 --> 0:35:41.200
<v Speaker 3>really really quickly, and we don't want it to obviously

0:35:41.280 --> 0:35:43.759
<v Speaker 3>spread from the lung where it is. That's the only

0:35:43.800 --> 0:35:47.480
<v Speaker 3>place that is now. So now I'm doing chemotherapy until December,

0:35:47.520 --> 0:35:50.239
<v Speaker 3>so then I can have a surgery to remove what's left.

0:35:51.000 --> 0:35:54.200
<v Speaker 2>And again, if I know this probably a tough question, Kelly,

0:35:54.400 --> 0:35:57.880
<v Speaker 2>and you know, again excuse me ignorance, but if you

0:35:58.000 --> 0:36:03.920
<v Speaker 2>didn't go back on chemo, what would that look like

0:36:04.080 --> 0:36:07.480
<v Speaker 2>as in time wise, because you said it's aggressive, would

0:36:07.480 --> 0:36:10.040
<v Speaker 2>it be would it be months? Would it be years?

0:36:10.920 --> 0:36:15.120
<v Speaker 3>My original relapse, they gave me my option was palliative care,

0:36:15.160 --> 0:36:19.680
<v Speaker 3>which is about three months, and that was two years

0:36:19.719 --> 0:36:20.239
<v Speaker 3>ago nearly.

0:36:20.600 --> 0:36:22.680
<v Speaker 2>How do you cope with that in your head? Do

0:36:22.719 --> 0:36:24.640
<v Speaker 2>you just block that out and you just focus on

0:36:25.200 --> 0:36:27.000
<v Speaker 2>what needs to be done? You just take it day

0:36:27.040 --> 0:36:30.920
<v Speaker 2>by day, you know, treatment by treatment? How do you

0:36:31.000 --> 0:36:32.120
<v Speaker 2>run your life in your head?

0:36:32.960 --> 0:36:34.680
<v Speaker 3>Yeah? Well, I try not to take it day by

0:36:34.760 --> 0:36:36.840
<v Speaker 3>day only because I don't want my life to be

0:36:36.920 --> 0:36:39.120
<v Speaker 3>defined by the disease. Like I know that it's a

0:36:39.280 --> 0:36:41.440
<v Speaker 3>huge portion of who I am, and I have to

0:36:41.520 --> 0:36:43.279
<v Speaker 3>be near my doctors I need to be close to

0:36:43.320 --> 0:36:45.520
<v Speaker 3>a hospital whatever it may be. But I also want

0:36:46.200 --> 0:36:51.640
<v Speaker 3>I really like pride myself in thriving with cancer. I

0:36:52.320 --> 0:36:55.200
<v Speaker 3>do everything that I possibly can. I'm still working, I'm

0:36:55.280 --> 0:36:59.480
<v Speaker 3>still advocating for this disease that i'm quite literally being

0:36:59.600 --> 0:37:04.320
<v Speaker 3>treated for. I am still parenting really quite well. I'm

0:37:04.440 --> 0:37:06.960
<v Speaker 3>doing all the things that a normal parent would do

0:37:07.520 --> 0:37:09.360
<v Speaker 3>for the most part. And I feel like if I

0:37:09.440 --> 0:37:13.480
<v Speaker 3>lived each day or day by day, then I'm doing

0:37:13.560 --> 0:37:17.480
<v Speaker 3>it a disservice, like I'm not. I really, I guess

0:37:17.680 --> 0:37:21.280
<v Speaker 3>want to make sure that I'm alive for a reason,

0:37:21.400 --> 0:37:24.200
<v Speaker 3>like I don't want. If I'm alive, I might as

0:37:24.200 --> 0:37:25.920
<v Speaker 3>well live. I'm living on borrowed time. I need to

0:37:25.960 --> 0:37:26.600
<v Speaker 3>make the most of it.

0:37:27.440 --> 0:37:31.120
<v Speaker 2>Early detection. What are the signs and symptoms of early

0:37:31.200 --> 0:37:32.280
<v Speaker 2>detection of bow cancer?

0:37:33.120 --> 0:37:35.640
<v Speaker 3>Yeah, so obviously, bloody Napoo's a big red flag and

0:37:36.000 --> 0:37:39.719
<v Speaker 3>not one that should be passed on ever, even some

0:37:39.920 --> 0:37:42.080
<v Speaker 3>new toilet paper. Just go get it checked out. It

0:37:42.160 --> 0:37:44.480
<v Speaker 3>doesn't mean it's going to be cancer. But blood is

0:37:44.480 --> 0:37:46.080
<v Speaker 3>a red flag. It's red for a reason.

0:37:46.239 --> 0:37:46.439
<v Speaker 2>Yeah.

0:37:47.640 --> 0:37:50.760
<v Speaker 3>But then also, like abdominal pains, change in bower habits

0:37:50.880 --> 0:37:54.880
<v Speaker 3>that last more than two weeks, unexplained weight loss, unexplained tiredness.

0:37:55.640 --> 0:37:58.480
<v Speaker 3>If any of these happen, which they can happen so easily,

0:37:58.600 --> 0:38:01.560
<v Speaker 3>but they if they last I get persist, that's probably

0:38:01.640 --> 0:38:03.920
<v Speaker 3>where you need to look into it more. If it's

0:38:03.960 --> 0:38:05.839
<v Speaker 3>persisting more than that two weeks.

0:38:06.000 --> 0:38:09.960
<v Speaker 2>And you've you've taken to social media to to to

0:38:10.040 --> 0:38:13.640
<v Speaker 2>give back uptimately to help raise awareness for this. How's

0:38:13.719 --> 0:38:15.520
<v Speaker 2>your social media campaign going?

0:38:16.040 --> 0:38:19.560
<v Speaker 3>Yeah? Yeah, No. The feedback that I get is just incredible,

0:38:19.640 --> 0:38:21.480
<v Speaker 3>Like the amount of lives I save, And that sounds

0:38:21.520 --> 0:38:24.160
<v Speaker 3>so cocky, but the amount of lives that I've saved

0:38:24.239 --> 0:38:28.320
<v Speaker 3>through simply talking about my own life is just incredible.

0:38:28.560 --> 0:38:30.400
<v Speaker 3>Like the amount of people that I've gone to get

0:38:30.440 --> 0:38:33.399
<v Speaker 3>a colonoscopy found poll ups being diagnosed at stage one.

0:38:33.800 --> 0:38:37.279
<v Speaker 3>One of my daughter's dance friends parents literally went and

0:38:37.360 --> 0:38:39.600
<v Speaker 3>got checked and she has stage three bal cancer. Like

0:38:39.680 --> 0:38:44.759
<v Speaker 3>the fact that me just talking is saving lives or

0:38:45.000 --> 0:38:48.040
<v Speaker 3>making people I guess second guess whether they're being taken

0:38:48.120 --> 0:38:52.280
<v Speaker 3>seriously or pushing and advocating for themselves saving their own lives.

0:38:52.400 --> 0:38:55.520
<v Speaker 3>It's just it really is so incredible. Like it took

0:38:55.560 --> 0:38:57.759
<v Speaker 3>me a really long time to realize I guess the

0:38:57.800 --> 0:39:00.440
<v Speaker 3>impact that I'm able to have, but soon I did.

0:39:00.480 --> 0:39:03.920
<v Speaker 3>I've just gone full throttle and doing as much as

0:39:03.960 --> 0:39:07.200
<v Speaker 3>I possibly can while also trying to like nurture and

0:39:07.440 --> 0:39:08.359
<v Speaker 3>save my own life.

0:39:09.600 --> 0:39:12.719
<v Speaker 2>Yeah, exactly focus on yourself or that's very selfish of you.

0:39:14.160 --> 0:39:15.440
<v Speaker 2>And what does a check up look like?

0:39:16.080 --> 0:39:18.680
<v Speaker 3>Yeah, well, I guess it's different for everyone, but your

0:39:18.760 --> 0:39:20.600
<v Speaker 3>GPS there for a reason. And I know it can

0:39:20.680 --> 0:39:23.080
<v Speaker 3>be really intimidating to go see a doctor, especially when

0:39:23.120 --> 0:39:28.880
<v Speaker 3>they are symptoms of being a female generally. But they

0:39:29.040 --> 0:39:32.640
<v Speaker 3>talk about shit every day like that. That's the uncomfortable

0:39:32.719 --> 0:39:37.560
<v Speaker 3>part about this disease. But it doesn't discriminate either, which

0:39:37.640 --> 0:39:39.840
<v Speaker 3>is really frustrating because it doesn't care if you're a

0:39:40.040 --> 0:39:42.640
<v Speaker 3>young twenty five year old woman that doesn't want to

0:39:42.640 --> 0:39:47.040
<v Speaker 3>talk about whoo, he doesn't care. But yeah, I guess

0:39:47.040 --> 0:39:50.319
<v Speaker 3>seeing a GPS the easiest part. But then the colonoscopy

0:39:51.560 --> 0:39:53.920
<v Speaker 3>is where you usually get put after that, and that

0:39:54.239 --> 0:39:56.840
<v Speaker 3>is their prep is shocking. But then you have a

0:39:56.960 --> 0:39:59.000
<v Speaker 3>nice little sleep and wake up to sandwiches like it's

0:39:59.120 --> 0:40:02.439
<v Speaker 3>really is a really easy procedure to be having.

0:40:03.200 --> 0:40:06.759
<v Speaker 2>And where where are you at right now in your life?

0:40:06.800 --> 0:40:10.960
<v Speaker 2>Where's your your mindset, where's your vision? Where's Kelly at

0:40:11.080 --> 0:40:11.399
<v Speaker 2>right now?

0:40:12.320 --> 0:40:14.759
<v Speaker 3>Yeah, well, just getting through another about of treatment at

0:40:14.760 --> 0:40:17.800
<v Speaker 3>the moment. But my daughter actually turned three today, so

0:40:17.960 --> 0:40:20.279
<v Speaker 3>that's a huge milestone that we've been able to hear.

0:40:20.400 --> 0:40:23.440
<v Speaker 2>Wow, congratulations birthday, little one.

0:40:23.640 --> 0:40:27.520
<v Speaker 3>And started Kindy and started KINDI, which means that's something

0:40:27.560 --> 0:40:30.600
<v Speaker 3>called my bucket list that I never thought i'd be

0:40:30.719 --> 0:40:32.880
<v Speaker 3>well when I was diagnosed, didn't think i'd be here

0:40:32.920 --> 0:40:34.719
<v Speaker 3>to see and I got taken to a first day

0:40:34.719 --> 0:40:35.719
<v Speaker 3>of KINDI, which was humane.

0:40:35.760 --> 0:40:38.040
<v Speaker 2>I love that you've got the positive mindset like that.

0:40:38.320 --> 0:40:39.840
<v Speaker 2>That's phenomenal. I love that.

0:40:40.560 --> 0:40:43.520
<v Speaker 3>Yeah, now it's just trying to live life as normal

0:40:43.560 --> 0:40:47.800
<v Speaker 3>as possible, like still planning holidays, still booking weddings and

0:40:48.120 --> 0:40:50.400
<v Speaker 3>all those things that I still want to see my

0:40:50.440 --> 0:40:52.920
<v Speaker 3>friends do good and like, yeah, just trying to live

0:40:52.960 --> 0:40:56.480
<v Speaker 3>as normal as possible while also knowing that my life's

0:40:56.560 --> 0:40:57.280
<v Speaker 3>really not normal.

0:40:58.800 --> 0:41:02.000
<v Speaker 2>Kelly, Thank you ever so much for sharing your story.

0:41:02.680 --> 0:41:04.960
<v Speaker 2>Your mindset is phenomenal. I love the way that you

0:41:05.120 --> 0:41:09.600
<v Speaker 2>have this positive outlooking life and cracking on the way

0:41:09.640 --> 0:41:13.640
<v Speaker 2>you do it is hugely inspirational. And this podcast alone

0:41:14.920 --> 0:41:18.160
<v Speaker 2>will continue to save lives. So Thank you so much, Kelly,

0:41:18.719 --> 0:41:21.680
<v Speaker 2>Thank you so much for having me on. Kelly is

0:41:21.719 --> 0:41:25.319
<v Speaker 2>an ambassador for the Jodie Lee Foundation. To find out

0:41:25.360 --> 0:41:28.920
<v Speaker 2>more about bow cancer screening and early detection, head to

0:41:29.600 --> 0:41:33.640
<v Speaker 2>Trust your Gut dot org dot au. Thank you so

0:41:33.760 --> 0:41:37.320
<v Speaker 2>much for joining me on Headgame. If you enjoyed this episode,

0:41:37.440 --> 0:41:40.239
<v Speaker 2>make sure you're subscribed so you don't miss any of

0:41:40.280 --> 0:41:44.240
<v Speaker 2>our incredible stories and leave me a review wherever you're listening,

0:41:45.239 --> 0:41:48.000
<v Speaker 2>I'm Att Middleton. Catch you again next time.