WEBVTT - The spine surgery that changed 12-year-old Oscar’s life

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<v Speaker 1>From The Australian. Here's what's on the front. I'm Claire Harvey.

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<v Speaker 1>It's Friday May two, twenty twenty six. Penny Wong says

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<v Speaker 1>Australia's job will never be done pushing back on Chinese

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<v Speaker 1>influence in the Pacific. The Foreign Minister says Australia's willing

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<v Speaker 1>to boost security ties with the Solomon Islands. Now they've

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<v Speaker 1>elected a new Prime minister who's skeptical about China. A

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<v Speaker 1>beautiful story today about.

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<v Speaker 2>Courage and love, a young boy with a powerful will

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<v Speaker 2>to live, a mother's devotion, and the doctors and nurses

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<v Speaker 2>in our public hospitals who make magic happen every single day.

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<v Speaker 1>Stay with us today on The Australian, there's the most

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<v Speaker 1>beautiful video of a twelve year old boy standing up

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<v Speaker 1>from his wheelchair. His name's Oscar Tanna and joining me

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<v Speaker 1>is our associate editor Helen Trinker, who's been following Oscar's story.

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<v Speaker 1>Helen tell Us, who is Oscar Tanner.

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<v Speaker 3>Well, Oscar Tanner is a twelve year old boy. He

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<v Speaker 3>lives on the central coast of New South Wales. We

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<v Speaker 3>came upon him because we're doing series on surgeons and

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<v Speaker 3>surgery Oscar has cerebral palsy. He had a extreme curvature

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<v Speaker 3>of the spine. So the spine specialists who were talking

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<v Speaker 3>to did this operation on him, and we had tremendous access,

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<v Speaker 3>so gave us permission. The family and the surgeons gave

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<v Speaker 3>us permission to view the operation. And it's been a

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<v Speaker 3>wonderful story, perfect, perfect thing and beauty.

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<v Speaker 1>There are four wonderful characters in this story. Oscar Tanner,

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<v Speaker 1>his mother Janet Tanner, and two surgeons, Angus Gray and

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<v Speaker 1>Patrick Limb. Let's get to them each in turn. Starting

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<v Speaker 1>with Oscar. He's twelve years old, as you said, but

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<v Speaker 1>he only weighs about twenty five kilos. That is about

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<v Speaker 1>half what a normal twelve year old would weigh. Tell

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<v Speaker 1>me how Oscar came to have cerebral palsy, in what

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<v Speaker 1>his life's journey has been like.

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<v Speaker 3>Oscar's biological mother had a virus CMV virus, which is

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<v Speaker 3>not uncommon and often it doesn't do any harm. But

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<v Speaker 3>because she was pregnant, and because sometimes fetuses are affected,

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<v Speaker 3>and so he was born and it was realized a

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<v Speaker 3>little later that he had cerebral palsy. His disability, I

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<v Speaker 3>suppose was made worse by the fact that he developed

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<v Speaker 3>very severe epilepsy. So about fifteen months Oscar's biological mother

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<v Speaker 3>riched out for help. She had another child, and she

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<v Speaker 3>was pregnant with her third child, and so that's when

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<v Speaker 3>Oscar's adoptive parents came into play. And that's Janet, who

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<v Speaker 3>is just Janet Tanna, who's wonderful person really and as

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<v Speaker 3>her wife, Ali died a couple of years ago, which

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<v Speaker 3>is again a very sad part of this story. But

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<v Speaker 3>Janet and Alie loved this little boy from the minute

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<v Speaker 3>they fostered him. They had decided that they wouldn't have

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<v Speaker 3>their own children, and they had fostered other little children before,

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<v Speaker 3>but when Oscar came along, I think it was kind

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<v Speaker 3>of love at first sight, and eventually they adopted him.

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<v Speaker 3>He was eight. Sadly, two years after that, Ali died

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<v Speaker 3>from colon cancer, so Janet was a single mother, but

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<v Speaker 3>she is quite amazing.

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<v Speaker 4>Just because his body doesn't work like ours, it doesn't

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<v Speaker 4>mean his mind doesn't. So I made sure that as

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<v Speaker 4>much as he can, he's part of everything that happens

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<v Speaker 4>to him.

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<v Speaker 3>This is a story that's quite common across Australia. There

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<v Speaker 3>are many many wonderful people dealing and growing rearing children

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<v Speaker 3>who have got quite severe needs. And Janet does have help.

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<v Speaker 3>She has an NDIS package, so she has a care

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<v Speaker 3>in the morning and in the evening, but a lot

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<v Speaker 3>of the time she's on her own. And she's just wonderful.

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<v Speaker 3>And when I asked her how, she said, well, you

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<v Speaker 3>just do. She said it sucked when how when Ali died?

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<v Speaker 3>Obviously understanding, yes, that's right, but she said, you just

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<v Speaker 3>keep going, because you do. But she keeps going in

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<v Speaker 3>an amazing way. She's got tremendous communication with Oscar sadly

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<v Speaker 3>is nonverbal, and that's I think an effect that originally

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<v Speaker 3>he did have some words, but the epilepsy really set

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<v Speaker 3>him back again. So he has got very strong needs.

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<v Speaker 1>She clearly believes that he is taking everything in and

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<v Speaker 1>is feeling things very deeply. And they seem to have

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<v Speaker 1>a wonderful connection.

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<v Speaker 2>Don't they.

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<v Speaker 3>It is an amazing connection. And look, I think she's right.

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<v Speaker 3>I think he is all there. He blinks, that's really

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<v Speaker 3>the only way. But also as well as that, I

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<v Speaker 3>think he's got facial expression. She is so close to him,

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<v Speaker 3>so she'll ask him questions that require a year so

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<v Speaker 3>or no answer, and he'll blink. But much more than that,

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<v Speaker 3>I think she can sense his needs. You know, he

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<v Speaker 3>watches quite a lot of TV and a lot of

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<v Speaker 3>old movies, you know, and things like that, and she

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<v Speaker 3>can sort of sense when he's happy. I am unhappy.

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<v Speaker 3>He's terribly happy about the oberration. I'm convinced of that

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<v Speaker 3>myself too, having met them a few times, because he

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<v Speaker 3>was in a lot of pain beforehand, because he had

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<v Speaker 3>a very severe curvature of the spine. That curve has

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<v Speaker 3>now been straight, and we're not completely straight, but it

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<v Speaker 3>means that he can lie straight in bed, he can

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<v Speaker 3>sit up straight in his wheelchair, and as you said

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<v Speaker 3>at the beginning, Claire, he was able for the first

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<v Speaker 3>time in a year with the help of his wheelchair,

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<v Speaker 3>which is a seek to stand in a wheelchair, to

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<v Speaker 3>stand up for a few minutes, and that would increase.

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<v Speaker 4>Yeah, Oscartana standing out for his first time with his

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<v Speaker 4>brand new legs and he's brand new back.

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<v Speaker 3>And that sort of sense of freedom that little twelve

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<v Speaker 3>year old boy gets from being upright, I think it

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<v Speaker 3>is amazing.

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<v Speaker 1>One of the surgeons he spoke to, he spoke very

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<v Speaker 1>movingly about assessing children who have cerebral palsy for this

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<v Speaker 1>kind of surgery, that for some of them it's the

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<v Speaker 1>right thing to do and for others it's not. It's

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<v Speaker 1>gone pretty smoothly.

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<v Speaker 3>I mean he's skinny as it bled much as I

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<v Speaker 3>missed Behinved.

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<v Speaker 4>So it's been a pretty stand.

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<v Speaker 1>A day grimed. Oscar is the perfect candidate. But it

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<v Speaker 1>is a harrowing and long surgery. Can you tell us

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<v Speaker 1>just in simple terms, what's happening in this surgery?

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<v Speaker 3>So the surgeon wy referred to as Angus Gray, and

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<v Speaker 3>he and Patrick Limb are co surgeons. They operate every

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<v Speaker 3>Friday together and they do a lot of work together.

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<v Speaker 3>But Angus was I suppose the lead person on this.

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<v Speaker 3>So a lot of people with scoliosis, which is really

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<v Speaker 3>a version of this which Oscar has. He has a

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<v Speaker 3>twisted spine. Many children who don't have Oscar's difficulties have

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<v Speaker 3>an operation that actually takes about eight hours. It's longer operation,

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<v Speaker 3>and they fuse a lower spine and they put in

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<v Speaker 3>boats to sort of straighten the spine. In Oscar's case,

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<v Speaker 3>because he's quite frey on and he could not withstand

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<v Speaker 3>an eight hour operation. This operation took about three and

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<v Speaker 3>a half hours. And what it is is there is

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<v Speaker 3>bots inserted in the pelvic area and then hooks at

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<v Speaker 3>the upper spine and then effectively a series of rods

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<v Speaker 3>are put down each side and it's joined up. And

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<v Speaker 3>what that does is that sort of forces the spine

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<v Speaker 3>to straighten. Effectively, it straightens. It's so immediately almost Angus

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<v Speaker 3>could see when the operation we're still in the theater

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<v Speaker 3>that the spine is swung into a better position. It's

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<v Speaker 3>gone from one hundred and twenty eight degrees off center

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<v Speaker 3>effectively to forty five degrees I've center. Now that is

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<v Speaker 3>a good outcome. Angus Gray told me the other day

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<v Speaker 3>that that's better than they expected. You know, a few

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<v Speaker 3>years ago, as Patrick Mihm said to me, Oscar wouldn't

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<v Speaker 3>have been able to have any relief in a way

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<v Speaker 3>from the pain.

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<v Speaker 5>We have said this, I'm sorry, but there's nothing else

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<v Speaker 5>we can do for you. And they just progressively get worse.

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<v Speaker 5>And so now we can do an operation where they

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<v Speaker 5>lose a lot less blood. We can do a corrective

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<v Speaker 5>operation and get good outcome.

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<v Speaker 3>See, the curvature of oscar spine was worsening a couple

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<v Speaker 3>of years ago he could stand up, not straight, but

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<v Speaker 3>a lot straight. And when he stood up, but it

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<v Speaker 3>got worse and worse. And what this operation attempts to

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<v Speaker 3>do is to stop any worstening and to try to

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<v Speaker 3>make it better. And that's succeeded in this case.

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<v Speaker 1>Coming up the Village of extraordinary people inside the operating room.

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<v Speaker 1>I loved reading about Angers describing why he'd become a

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<v Speaker 1>final surgeon. You know, he had the normal path that

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<v Speaker 1>doctors have, exploring what they want to do with their careers.

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<v Speaker 1>And you know, you often hear surgeons say this too,

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<v Speaker 1>that they want to do something practical, why this kind

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<v Speaker 1>of surgery?

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<v Speaker 3>For one of the great aims of this series we're

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<v Speaker 3>trying to do is to try to really understand what

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<v Speaker 3>motivates surgeons and what it's like, because most of us think,

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<v Speaker 3>oh my god, how can you do it. Anger says

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<v Speaker 3>that he decided to be an orthopedic surgeon and specialized

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<v Speaker 3>eventually in spine because he he said, there are two

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<v Speaker 3>tribes of people. There are the surgeons that are the

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<v Speaker 3>non surgeons, and the surgeons liked working on practical stuff.

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<v Speaker 3>They want outcomes. He said, it's great to be able

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<v Speaker 3>to analyze a patient, decide whether or not surgery can help,

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<v Speaker 3>decide what the plan is, and then do it. And then,

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<v Speaker 3>as he said, it's a good day's work. Kids aren't miserable,

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<v Speaker 3>they don't do self pity. They just want to get

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<v Speaker 3>better now. He said. Sometimes that process can take weeks, months, years,

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<v Speaker 3>it's not immediate, but it's what surgeons like to do.

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<v Speaker 3>And he also, I think he likes the operating theater too.

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<v Speaker 3>He said it was quite a flat hierarchy in the theater,

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<v Speaker 3>and you can see that because they work as a team,

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<v Speaker 3>the scrub nurse, the anthesist, the scout nurses, everybody else. Says,

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<v Speaker 3>it's quite an equal feeling, and Angus and Patrick go

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<v Speaker 3>out of their way to sort of acknowledge the role

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<v Speaker 3>of the whole team, and it is really team weeks.

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<v Speaker 3>So he loves that, and I think he loves being

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<v Speaker 3>able to work with a team. And he said something

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<v Speaker 3>beautifully said, we're all sort of on the same wavelength.

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<v Speaker 4>We're very stable, we get on very very well. Everyone's

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<v Speaker 4>on the same frequency.

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<v Speaker 6>So it's a great thing to come to work and

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<v Speaker 6>work with those people.

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<v Speaker 3>Most of us that's what we want with our own jobs,

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<v Speaker 3>you know, to be able to enjoy that.

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<v Speaker 1>Just finally, one of the things that really moved me

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<v Speaker 1>about your story was Janet the mother, describing bringing a

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<v Speaker 1>priest into bless Oscar before the surgery. And you wrote

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<v Speaker 1>in the story that Janet is not Catholic, but Oscar

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<v Speaker 1>is that level of respect that she has for this

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<v Speaker 1>nonverbal child who maybe in another society or in generations past,

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<v Speaker 1>for most of human history, would have been regarded as

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<v Speaker 1>someone who wasn't really worth bothering with. She has this

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<v Speaker 1>amazing respect for him, doesn't she.

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<v Speaker 3>I think that's a wonderful thing to recognize. Claire. Even

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<v Speaker 3>the other day I was on the phone to her

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<v Speaker 3>and I said, did Oscar enjoy standing up? And I said, oh,

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<v Speaker 3>can I talk to you about it? She immediately calls

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<v Speaker 3>out Joshcoa said, is it okay, Oscar? If I talked

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<v Speaker 3>to Helen about the story, you know, like, that's incredible

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<v Speaker 3>to me. She was getting his permission at every point she,

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<v Speaker 3>I think, is amazing. It's a wonderful example of how

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<v Speaker 3>it takes a village. You know, many parents of children

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<v Speaker 3>with disabilities and with needs are overwhelmed by it especially,

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<v Speaker 3>and families are very, very vulnerable and in this case,

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<v Speaker 3>it's a remarkable story really because we now have, as

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<v Speaker 3>I understand, a family, you know, a good functioning family

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<v Speaker 3>of the biological parents, and Janet is a very functioning

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<v Speaker 3>family unit as well, and she is the adoptive mother.

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<v Speaker 3>She's got a great sense of commitment, the sort of

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<v Speaker 3>commitment that parents have to their children. It's quite a

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<v Speaker 3>moving story. And I think that combination of that and

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<v Speaker 3>two surgeons who in their own way also were both thoughtful, reflective, interesting,

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<v Speaker 3>and really committed to it. It's nice to mention too

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<v Speaker 3>that it was in the public section of the children's

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<v Speaker 3>hospital around Wig and Angus again when I asked him

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<v Speaker 3>to find this case. Half of his work is private

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<v Speaker 3>patients and half is public, and he went out of

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<v Speaker 3>his way to do this in the public section because

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<v Speaker 3>he really believes strongly in the public health system and

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<v Speaker 3>says it's a wonderful thing that we need to kind

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<v Speaker 3>of showcase and remember. And so I think overall it's

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<v Speaker 3>been a very nice, affecting story to do.

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<v Speaker 6>He has been the bravest little monkey. Oscar is already

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<v Speaker 6>in so much less pain. He kicks up his legs

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<v Speaker 6>I call them happy legs, ready to go out the

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<v Speaker 6>door and see the world.

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<v Speaker 1>It's an inspiring story and what an inspiring family.

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<v Speaker 3>Thanks Helen, Thank you.

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<v Speaker 1>Helen Trinker is an associate editor with The Australian. Her

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<v Speaker 1>story about OSCAR and all the nation's best coverage of

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<v Speaker 1>health and the medical system is live right now at

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<v Speaker 1>the Australian dot com dot a u slash health