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Speaker 1: Five Double A Knights with Matthew Pantalas. A South Australian

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Speaker 1: foundation charity called the HASS Foundation is having its annual

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Speaker 1: fundraiser Walk with a Powell on Sunday, November two. So

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Speaker 1: that's not just a month less than that away, now,

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Speaker 1: yeah it is. It's only a couple of weeks, isn't it.

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Speaker 1: The walk brings together family, friends, community to raise awareness

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Speaker 1: of pediatric palliative care and highlight the importance of providing

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Speaker 1: emotional and financial support to families going through such a

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Speaker 1: heartbreaking journey. As I imagine that is. The founder of

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Speaker 1: the HASS Foundation is Ella Stratton and Ella joins us. Now, hello, Ella,

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Speaker 1: how are you?

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Speaker 2: Hi? Matthew, I'm well, how are you all right?

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Speaker 1: Thank you? Tell us about the HAS Foundation and I

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Speaker 1: understand your son went through this journey what some eleven

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Speaker 1: years ago?

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Speaker 2: Correct? So HAS stands for Hunter Alfred Stratton who is

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Speaker 2: ald a son who was in palliative care for the

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Speaker 2: last three years of his life after a long battle

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Speaker 2: with a life limiting condition that caused him to have

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Speaker 2: all sorts of medical challenges. The palliative care team stepped

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Speaker 2: in and really supported us and after Hunter passed away

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Speaker 2: in twenty fourteen. We decided to start the Has Foundation

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Speaker 2: in his honor and to work towards raising awareness and

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Speaker 2: funds to support families in palliative care the same way

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Speaker 2: we were.

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Speaker 1: Okay, so all right, you've obviously gone strength to strength

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Speaker 1: then over the last decade or so.

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Speaker 2: Ah, I wouldn't say that some days it doesn't feel

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Speaker 2: like that.

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Speaker 1: You know.

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Speaker 2: We all try our best, but the foundation has certainly grown.

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Speaker 2: But of course the heartache of losing a son is

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Speaker 2: always there. But we love that we can do what

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Speaker 2: we can and use that strength to support other families.

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Speaker 1: So is that the aim of the work of the

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Speaker 1: House Foundation. To supporters, I said, you do work with

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Speaker 1: other families going through this very tough time, as I

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Speaker 1: can only imagine more. In fact, I can't imagine what

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Speaker 1: that's like, to be honest, but just be awful. So

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Speaker 1: there'd be a lot of support needed, no doubt.

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Speaker 2: Absolutely, It's a bit of an area that a lot

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Speaker 2: of people don't really understand. They think of palliative care

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Speaker 2: of grandma and Grandpa going into a hospice and passing

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Speaker 2: away with only a short amount of time, but for

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Speaker 2: many pediatric families it may be years, and it's really

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Speaker 2: about that quality of life and about creating as many

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Speaker 2: memories and moments together as a family and giving every

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Speaker 2: member of the family time to be together and making

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Speaker 2: that child's life as comfortable and as enjoyable as it

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Speaker 2: can be during such a stressful and heartbreaking time.

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Speaker 1: Okay, so how do you do that? How do you

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Speaker 1: help people? Is it a matter of just talking? Is

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Speaker 1: it about helping provide experiences?

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Speaker 2: Absolutely? We work in conjunction with the palliative team at

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Speaker 2: the Women's and Children Hospital, who do a fantastic job,

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Speaker 2: and we try and provide a lot of relief in

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Speaker 2: care packages which are for the whole family, but also

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Speaker 2: really practical items with supermarket vouchers and memory making moments

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Speaker 2: within that, whether it's trips to the zoo or games

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Speaker 2: and toys for the siblings, fun things for dad, maybe

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Speaker 2: some pampering products for mum. And we also deliver Christmas

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Speaker 2: packages with two hundred dollars vouchers in it at Christmas

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Speaker 2: time to really relieve some of that financial burden that

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Speaker 2: comes with caring for a child with life limiting condition

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Speaker 2: and also for first year bereave, Mother's Day and Father's

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Speaker 2: Day packages we send out. Also, we run well being

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Speaker 2: workshops for bereaved mums to support them during such a

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Speaker 2: heartbreaking time, and we try and do a lot of

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Speaker 2: other little bespoke things, from putting money on the tab

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Speaker 2: at the Cathedral hotel opposite the hospital so families can

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Speaker 2: just go and have a nice meal together and get

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Speaker 2: away from the hospital during such long stays while they're there.

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Speaker 2: So we try and do lots of little things, and

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Speaker 2: the little things make a really big difference.

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Speaker 1: Well, that's it is not And as you were saying

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Speaker 1: a lot of that, I am thinking, yeah, it is

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Speaker 1: the little things and they're so important, and perhaps we

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Speaker 1: don't realize just how important they are.

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Speaker 2: Absolutely the impact that we have and the hope that

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Speaker 2: we give to families in such challenging times. I mean,

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Speaker 2: the clinicians and the hospital team do an incredible job

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Speaker 2: of supporting them in that way. But if we can

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Speaker 2: do those little things just to make their time and

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Speaker 2: their journey a little bit gentler and to make them

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Speaker 2: be able to have time together as a family and

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Speaker 2: create memories and moments, then we know that those things

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Speaker 2: are so important because we've lived through it that we

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Speaker 2: know that's all you have in the end is those

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Speaker 2: beautiful memories and those moments together.

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Speaker 1: Yeah, all right, so the walk Walk with a Power.

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Speaker 1: What's the thinking behind this? This is obviously the big

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Speaker 1: event for the House Foundations, So how did this come about?

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Speaker 2: Well, it's a space that we've walked with prams, with

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Speaker 2: babies with wheelchairs all of our life, from Henley Beach

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Speaker 2: to Grange. It became a place of solitude for me

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Speaker 2: after Hunter passed away, to walk and to really have

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Speaker 2: some space and connect also with him after he passed away.

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Speaker 2: So we decided to create a walk that's a very

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Speaker 2: easy walk. It's a lovely community walk. It's not a

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Speaker 2: big trek or a long challenge, and we come together

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Speaker 2: to walk with a power, meaning walk with your dog,

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Speaker 2: walk with your family, walk with your friends, in memory

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Speaker 2: of a loved one, or just in memory of someone

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Speaker 2: that you know, or just to get together and connect

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Speaker 2: and make families realize how special just so simple moments

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Speaker 2: can be just walking down the beach together and creating

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Speaker 2: those memories. So the walk is just about coming together.

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Speaker 2: Obviously it helps raise funds for the work that we

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Speaker 2: do with it has foundation, but we love just the

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Speaker 2: community atmosphere and the beautiful walk down along the beach

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Speaker 2: to Henley and Grange and back and connect and reflect

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Speaker 2: on all of our loved ones.

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Speaker 1: Yeah, fantastic. So if people want more information, it's on

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Speaker 1: November the second, a Sunday morning, and I imagine the

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Speaker 1: website has foundation dot org dot au has got all

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Speaker 1: the information.

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Speaker 2: Absolutely plus on our social media Instagram, Facebook and LinkedIn

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Speaker 2: that you can find out any information. But the website

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Speaker 2: has all of the registration details on there.

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Speaker 1: Yeah, you talk about prams and everything else. You can

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Speaker 1: bring dogs, I see you. You know, people can walk, jog,

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Speaker 1: kick a footy, whatever it takes, just turn up.

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Speaker 2: And lately absolutely we love having all the dogs down there.

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Speaker 2: There certainly are good pals.

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Speaker 1: Yeah. Got any aims for the foundation to you know,

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Speaker 1: is there an overriding kind of ambition for it that

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Speaker 1: you'd like to see achieved? Oh?

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Speaker 2: I have too many. I don't know where to start.

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Speaker 2: But it would be wonderful one day if there was

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Speaker 2: a pediatric hospice here in South Australia, which there isn't currently.

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Speaker 2: The Women's and children have obviously a dedicated team, but

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Speaker 2: one day it would be amazing if there was enough

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Speaker 2: funding and enough support that we could have a hospice

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Speaker 2: for families to be able to utilize that are in

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Speaker 2: palliative care.

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Speaker 1: Are there. I don't know if this is a question

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Speaker 1: you'd be able to answer, but do we know how

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Speaker 1: many families per year or children per year would go

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Speaker 1: through this process would use that hospice.

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Speaker 2: At the moment, there's on average around one hundred families

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Speaker 2: per year in the palliative care service, and out of that,

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Speaker 2: between thirty five to forty children pass away each year

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Speaker 2: is the number. So it doesn't seem like huge numbers,

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Speaker 2: but that's over a classroom full of children that unfortunately

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Speaker 2: their lives are cut too short.

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Speaker 1: It's terrible, all right.

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Speaker 2: And a lot of heartbroken family.

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Speaker 1: Yeah. Absolutely, Ella, thank you so much for your time.

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Speaker 1: I hope it goes well for you. On November the second,

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Speaker 1: what time in the morning, I imagine what nine or

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Speaker 1: ten or so?

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Speaker 2: We meet about nine thirty for a ten o'clock kickoff.

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Speaker 2: You've got time to grab a coffee. Register. You can

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Speaker 2: register on the day as well, so if you decide

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Speaker 2: on the morning that you want to come down and

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Speaker 2: join us, just rock up and we'll be there and

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Speaker 2: you can enjoy a beautiful walk with all of us.

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Speaker 1: And that's from Henley Square to Grange and back. Correct, beautiful,

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Speaker 1: lovely second of November. Thank you, hope the weather is

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Speaker 1: beautiful for you as well.

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Speaker 2: Fingers cross, Thank you for your time.

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Speaker 1: No worries, Thank you all the best with it. Ella

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Speaker 1: Stratton from the Hass Foundation on the Walk with a power.

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Speaker 1: On the second of November, nine thirty at all commences.

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Speaker 1: The walk starts at ten but from nine thirty at

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Speaker 1: Henley Square down to Grange and back, so a great

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Speaker 1: court