Speaker 1: You're on the air with Jason Lauren. Clint's here as well.
Speaker 1: Let's say hello to our next guest.
Speaker 2: Our next guest has had a very impressive entertainment career.
Speaker 3: He's done radio, here's done television.
Speaker 4: He's released to I Rean nominated albums. Really, sometimes it
Speaker 4: pays to simply just be annoying.
Speaker 3: The only thing more impressive is perhaps the greatest charity
Speaker 3: work he's been doing with Fight MND.
Speaker 5: Please welcome to the shows, Mada, Good morning.
Speaker 4: Rodeo has come a long way. Like a fully produced intro.
Speaker 4: Oh yeah, we don't around, but still getting the facts
Speaker 4: wrong like we used to did we What did we
Speaker 4: get wrong? Four albums not two?
Speaker 6: And then nicely flex.
Speaker 4: Because I know a lot of it will come off Wikipedia,
Speaker 4: which also has the wrong place for where I was conceived.
Speaker 7: Oh Wikipedia, anyone can make things up, I think.
Speaker 4: Seven years anyone can edit it. But I do know
Speaker 4: that someone famous got court editing their own. They difficult.
Speaker 4: I can't tell you.
Speaker 7: You can tell half the story, yeah, Commentator Brian Taylor,
Speaker 7: Bruce mcave.
Speaker 4: I want to talk about other things.
Speaker 6: We'll get to that now.
Speaker 7: Many people, I mean you are now the CEO of
Speaker 7: fight MND. But many people will remember you if they're
Speaker 7: in the cars and they're just hearing your voice, will
Speaker 7: remember you from your radio days.
Speaker 4: Ye possibly how many years so old are they've still
Speaker 4: got their license?
Speaker 6: Many years?
Speaker 4: Did you do Brecky twenty five?
Speaker 7: Wow? Because Matt Tilly was the reason I wanted to
Speaker 7: get into radio, because we did do right at a
Speaker 7: time when Matt was doing the Matt and Joe Show.
Speaker 7: Joe was off I think for a week and I
Speaker 7: was maybe twenty, and I feeled.
Speaker 6: It did you how did you go? Or how did she?
Speaker 4: Was brilliant and can I say backed up on the
Speaker 4: Tuesday after the Brownlow, Oh yeah, she.
Speaker 6: Would have been a treat to work with that.
Speaker 4: Well, I'd a walk of shame, doown Clarendon.
Speaker 7: It was actually a walk of shame, I think because
Speaker 7: I'd worn this really expensive necklace to the brown Load.
Speaker 7: It was like three hundred thousand dollars and I've had
Speaker 7: a few too many champagnes the night before and we
Speaker 7: couldn't get it off, so like to turn up to
Speaker 7: the radio.
Speaker 4: Showing his like just hung our headphones off.
Speaker 3: It was that in this building as well.
Speaker 4: Yeah, yeah, you spent many years in this building, if
Speaker 4: only the walls could talk.
Speaker 6: We always say everything was recorded.
Speaker 1: We always wonder if we'll be hanging out together in
Speaker 1: ten years. Do you still hang out with the your co hosts?
Speaker 4: Oh we text?
Speaker 6: Yeah?
Speaker 4: Yeah, yeah groups?
Speaker 6: Yeah?
Speaker 5: Do you like WhatsApp groups?
Speaker 4: Hey, good old taste, let's talk.
Speaker 1: The Big Freeze come out this weekend, most important day
Speaker 1: on the Melbourne calendar.
Speaker 6: I reckon, are you enjoying your work with Fighter and
Speaker 6: d Yeah?
Speaker 4: Loving it? Like getting to go to the footy and
Speaker 4: getting a free beanie like you know, I know you
Speaker 4: guys get concert tickets and stuff. That's my jam and
Speaker 4: sausages in bread Bunnings beanie there.
Speaker 7: I was down at Bunnings with you the other day
Speaker 7: doing a In fact, Jason, you popped down to and
Speaker 7: said hello. Now, the Big Freeze is a massive event
Speaker 7: on the calendar here in Melbourne. In fact, I would
Speaker 7: say it's one of the conic footy games of the year.
Speaker 7: You've got the big slide. Who have we got going
Speaker 7: down at so far?
Speaker 4: Likeiconic Australians is the theme and they all some could
Speaker 4: go as themselves Mark Taylor. So there's a bit of sporty.
Speaker 5: Stuff slide, you should be going down the side.
Speaker 4: I've been iced a bit in the last week. I
Speaker 4: got to say I went down. I went down a
Speaker 4: slide in a Gold Coast yesterday. We're not regional. I
Speaker 4: went down a slide ahead of mac Andrew on the
Speaker 4: Gold Coast yesterday. Man, he's a ruckman for the Suns
Speaker 4: and he was wearing just hot pink speedos of Heritage.
Speaker 4: Look magnificent. I've never felt more middle aged and white
Speaker 4: and flabby in my life.
Speaker 5: Did you wear hot pink speeder?
Speaker 4: I did not.
Speaker 3: Well, Hey, Matt, it's one thing to to sort of
Speaker 3: look outside in at a charity like fight M and D.
Speaker 3: What's it like to immerse yourself in it? Because the
Speaker 3: Dana her family, we've had Jan on the program, We've
Speaker 3: had you know, the girls and as well, you know, what,
Speaker 3: what is it like being inside? Because they are truly
Speaker 3: I mean inspirational is a little bit cliche, but they are.
Speaker 4: It started around a kitchen table, right and literally it
Speaker 4: is like this this couple of weeks, Jan's getting dinner
Speaker 4: ready like she is just a dynamo. She's in there first,
Speaker 4: she's out there last, she's on the phone, she's like
Speaker 4: run down the street, grab me ten more piece of socks,
Speaker 4: like it's fabulous. That's a really great energy to be around.
Speaker 4: But we also have like a team of seven scientists
Speaker 4: who're speaking to the top researchers around the world assessing
Speaker 4: their grants, seeing you know, how many millions we're going
Speaker 4: to give to this particular research project. And then we
Speaker 4: often deal with people who have M and D who
Speaker 4: aren't in the same situation as Neil. The average life
Speaker 4: expectance is just twenty seven months. They move through our
Speaker 4: organization quickly, and that's a very emotionally, that's quite a
Speaker 4: big burden to sort of be. You get to know people,
Speaker 4: you know them really well, and then you realize we're
Speaker 4: going to lose them.
Speaker 5: That's so sad. How long ago was Neil diagnosed, well,
Speaker 5: eleven years he's eleven, so here is an absolute outline
Speaker 5: five as well.
Speaker 7: Yeah, I don't think many people in Australia had heard
Speaker 7: about MND until Neil Duneaher. I really put it on
Speaker 7: the map and the people that were familiar with it
Speaker 7: were obviously this is so true.
Speaker 4: Connection to I was chatting, I don't often say this.
Speaker 4: I was chatting to an Oxford professor the other day
Speaker 4: who was out here, and he said, all his life
Speaker 4: he's been researching and getting out research for MND. And
Speaker 4: when he goes out to dinner party still and says
Speaker 4: what he does, they're like, oh mind, what's that? And
Speaker 4: he goes like, come here, and the bloke and the
Speaker 4: servoy knows what it is, wearing a beanie like the
Speaker 4: whole city and we are now a global epicenter for
Speaker 4: research and investment.
Speaker 5: Amazing.
Speaker 3: Neil down Her spoke to the Melbourne Boys yesterday. He
Speaker 3: gives them a rev up before King's Birthday every year,
Speaker 3: and we covered on the news last night here it is.
Speaker 2: Don't wait for a crisis to learn that you are
Speaker 2: more powerful than you think, and never underestimate the ripple
Speaker 2: effect of one small act of courage on the field
Speaker 2: or off it.
Speaker 3: Now in that room, well, what's extraordinary or more extraordinary
Speaker 3: about that is the technology that let's Kneil speak again,
Speaker 3: find his voice. It's AI technology. How does that work?
Speaker 3: Matt And and you actually can give people M and
Speaker 3: D sufferers who lose their voice their voice back to
Speaker 3: an extent.
Speaker 4: Yeah, eventually people only really have their eyes and their
Speaker 4: conscience to communicate with the world. So what they can
Speaker 4: do now the technology is incredible. If you are diagnosed,
Speaker 4: now you can go and put down fifty phrases their
Speaker 4: key phrases that they have and then will do your
Speaker 4: whole vocabulary and intonation and everything else.
Speaker 5: So you do that yourself early.
Speaker 7: But with Neil well, because he had so many recordings
Speaker 7: of him speaking to.
Speaker 4: Yeah, once we took all the swearing out, it limited
Speaker 4: the recordings. You know, he's a coach. Yeah, so it's phenomenal. Yeah,
Speaker 4: they've just gone and done that from media grabs.
Speaker 5: And it makes me goosebumps hearing that. I feel like
Speaker 5: it is for.
Speaker 6: Their independence to get that back with their prices.
Speaker 4: Neil wasn't that keen for it right? Probably I don't
Speaker 4: want to. I never like to speak beyond the family's boundaries.
Speaker 4: But I think they're comfortable with this. But his grandkids
Speaker 4: want to hear what their grandfather sound like rather than
Speaker 4: a computers. Isn't that beautiful? And he was like, Okay,
Speaker 4: let's do it.
Speaker 1: Can I also say a massive thank you to Nil
Speaker 1: and the team because as someone who looks more like
Speaker 1: a garden gnome and a beanie, this year there's a digital.
Speaker 4: Arts bicre launched. Yes, people with big heads, girls that
Speaker 4: don't want to make up their hair, hotheads.
Speaker 5: If you're a hothead, looks like he's going to rob
Speaker 5: your house.
Speaker 4: He's going to look like a cyber criminal. Right, give
Speaker 4: them a hoodie, so big freeze dot com dot you
Speaker 4: we grabbed that website. Right, and you go there and
Speaker 4: you donate by buying a digital beanie. Right, so twenty
Speaker 4: five bucks same as the other beanie, except this one's
Speaker 4: tax deductible.
Speaker 5: Hello, don't get anything in turn.
Speaker 4: Then you can personalize it, so across the band of
Speaker 4: the beanie, you can put your name, your nickname, your brother's,
Speaker 4: sister's kids' names.
Speaker 6: We've got one on the screen. Now you put Jason
Speaker 6: Lauren on the front.
Speaker 1: Is it true that there was a meeting in the
Speaker 1: back end to ban words that you can't put on?
Speaker 4: There are three hundred and sixty eight words of shame
Speaker 4: that we have removed from the soft Oh my god,
Speaker 4: So you can try all you like.
Speaker 5: And was that meeting? Were there a few that you
Speaker 5: were like, let's just sneak that one through anywhere.
Speaker 4: No one would think of that.
Speaker 1: I feel about bringing something up, don't judge me, but
Speaker 1: I have heard you to use this.
Speaker 4: The plan is to like we want to fill the
Speaker 4: g by Queen's birthday, so you want to sell one
Speaker 4: hundred thousand of them. It's a little bit like the
Speaker 4: mcgrah test wanting to fill the ground. But this is
Speaker 4: the whole of Australia and you get some fun to
Speaker 4: put on socials.
Speaker 5: You posted on socials on Big Free's day.
Speaker 4: Yeah, you do it today, getting early. They could sell out.
Speaker 4: They can't sell out. It's digital. Big Free still take
Speaker 4: all the money.
Speaker 6: Are you just twenty five bucks?
Speaker 1: Otherwise you can get the beanies, Bunning stores, goals, you
Speaker 1: got it ready express.
Speaker 7: Hey Matt, congratulations. The campaign seems to get bigger and
Speaker 7: bigger every year.
Speaker 4: Yeah, well that's because more and more people get behind it.
Speaker 4: We can't take all the credit.
Speaker 5: It's awesome.
Speaker 4: It's just a beautiful community moment.
Speaker 7: Well done for everything you and the Donna Hers and
Speaker 7: everyone else behind the scenes are doing.
Speaker 6: Matt Tilley join us on the air. Goodavy back on
Speaker 6: the air this span.
Speaker 4: Thank you guys.
Speaker 6: Great to see you.
Speaker 7: Jason, Lauren Lauren wake up feeling good following them on
Speaker 7: the socials.
Speaker 2: Yeah, I