WEBVTT - Bonus: Matt Tilley talks about FightMND

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<v Speaker 1>You're on the air with Jason Lauren. Clint's here as well.

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<v Speaker 1>Let's say hello to our next guest.

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<v Speaker 2>Our next guest has had a very impressive entertainment career.

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<v Speaker 3>He's done radio, here's done television.

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<v Speaker 4>He's released to I Rean nominated albums. Really, sometimes it

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<v Speaker 4>pays to simply just be annoying.

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<v Speaker 3>The only thing more impressive is perhaps the greatest charity

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<v Speaker 3>work he's been doing with Fight MND.

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<v Speaker 5>Please welcome to the shows, Mada, Good morning.

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<v Speaker 4>Rodeo has come a long way. Like a fully produced intro.

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<v Speaker 4>Oh yeah, we don't around, but still getting the facts

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<v Speaker 4>wrong like we used to did we What did we

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<v Speaker 4>get wrong? Four albums not two?

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<v Speaker 6>And then nicely flex.

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<v Speaker 4>Because I know a lot of it will come off Wikipedia,

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<v Speaker 4>which also has the wrong place for where I was conceived.

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<v Speaker 7>Oh Wikipedia, anyone can make things up, I think.

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<v Speaker 4>Seven years anyone can edit it. But I do know

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<v Speaker 4>that someone famous got court editing their own. They difficult.

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<v Speaker 4>I can't tell you.

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<v Speaker 7>You can tell half the story, yeah, Commentator Brian Taylor,

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<v Speaker 7>Bruce mcave.

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<v Speaker 4>I want to talk about other things.

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<v Speaker 6>We'll get to that now.

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<v Speaker 7>Many people, I mean you are now the CEO of

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<v Speaker 7>fight MND. But many people will remember you if they're

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<v Speaker 7>in the cars and they're just hearing your voice, will

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<v Speaker 7>remember you from your radio days.

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<v Speaker 4>Ye possibly how many years so old are they've still

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<v Speaker 4>got their license?

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<v Speaker 6>Many years?

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<v Speaker 4>Did you do Brecky twenty five?

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<v Speaker 7>Wow? Because Matt Tilly was the reason I wanted to

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<v Speaker 7>get into radio, because we did do right at a

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<v Speaker 7>time when Matt was doing the Matt and Joe Show.

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<v Speaker 7>Joe was off I think for a week and I

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<v Speaker 7>was maybe twenty, and I feeled.

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<v Speaker 6>It did you how did you go? Or how did she?

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<v Speaker 4>Was brilliant and can I say backed up on the

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<v Speaker 4>Tuesday after the Brownlow, Oh yeah, she.

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<v Speaker 6>Would have been a treat to work with that.

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<v Speaker 4>Well, I'd a walk of shame, doown Clarendon.

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<v Speaker 7>It was actually a walk of shame, I think because

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<v Speaker 7>I'd worn this really expensive necklace to the brown Load.

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<v Speaker 7>It was like three hundred thousand dollars and I've had

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<v Speaker 7>a few too many champagnes the night before and we

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<v Speaker 7>couldn't get it off, so like to turn up to

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<v Speaker 7>the radio.

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<v Speaker 4>Showing his like just hung our headphones off.

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<v Speaker 3>It was that in this building as well.

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<v Speaker 4>Yeah, yeah, you spent many years in this building, if

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<v Speaker 4>only the walls could talk.

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<v Speaker 6>We always say everything was recorded.

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<v Speaker 1>We always wonder if we'll be hanging out together in

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<v Speaker 1>ten years. Do you still hang out with the your co hosts?

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<v Speaker 4>Oh we text?

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<v Speaker 6>Yeah?

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<v Speaker 4>Yeah, yeah groups?

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<v Speaker 6>Yeah?

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<v Speaker 5>Do you like WhatsApp groups?

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<v Speaker 4>Hey, good old taste, let's talk.

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<v Speaker 1>The Big Freeze come out this weekend, most important day

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<v Speaker 1>on the Melbourne calendar.

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<v Speaker 6>I reckon, are you enjoying your work with Fighter and

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<v Speaker 6>d Yeah?

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<v Speaker 4>Loving it? Like getting to go to the footy and

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<v Speaker 4>getting a free beanie like you know, I know you

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<v Speaker 4>guys get concert tickets and stuff. That's my jam and

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<v Speaker 4>sausages in bread Bunnings beanie there.

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<v Speaker 7>I was down at Bunnings with you the other day

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<v Speaker 7>doing a In fact, Jason, you popped down to and

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<v Speaker 7>said hello. Now, the Big Freeze is a massive event

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<v Speaker 7>on the calendar here in Melbourne. In fact, I would

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<v Speaker 7>say it's one of the conic footy games of the year.

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<v Speaker 7>You've got the big slide. Who have we got going

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<v Speaker 7>down at so far?

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<v Speaker 4>Likeiconic Australians is the theme and they all some could

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<v Speaker 4>go as themselves Mark Taylor. So there's a bit of sporty.

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<v Speaker 5>Stuff slide, you should be going down the side.

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<v Speaker 4>I've been iced a bit in the last week. I

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<v Speaker 4>got to say I went down. I went down a

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<v Speaker 4>slide in a Gold Coast yesterday. We're not regional. I

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<v Speaker 4>went down a slide ahead of mac Andrew on the

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<v Speaker 4>Gold Coast yesterday. Man, he's a ruckman for the Suns

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<v Speaker 4>and he was wearing just hot pink speedos of Heritage.

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<v Speaker 4>Look magnificent. I've never felt more middle aged and white

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<v Speaker 4>and flabby in my life.

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<v Speaker 5>Did you wear hot pink speeder?

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<v Speaker 4>I did not.

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<v Speaker 3>Well, Hey, Matt, it's one thing to to sort of

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<v Speaker 3>look outside in at a charity like fight M and D.

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<v Speaker 3>What's it like to immerse yourself in it? Because the

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<v Speaker 3>Dana her family, we've had Jan on the program, We've

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<v Speaker 3>had you know, the girls and as well, you know, what,

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<v Speaker 3>what is it like being inside? Because they are truly

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<v Speaker 3>I mean inspirational is a little bit cliche, but they are.

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<v Speaker 4>It started around a kitchen table, right and literally it

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<v Speaker 4>is like this this couple of weeks, Jan's getting dinner

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<v Speaker 4>ready like she is just a dynamo. She's in there first,

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<v Speaker 4>she's out there last, she's on the phone, she's like

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<v Speaker 4>run down the street, grab me ten more piece of socks,

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<v Speaker 4>like it's fabulous. That's a really great energy to be around.

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<v Speaker 4>But we also have like a team of seven scientists

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<v Speaker 4>who're speaking to the top researchers around the world assessing

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<v Speaker 4>their grants, seeing you know, how many millions we're going

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<v Speaker 4>to give to this particular research project. And then we

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<v Speaker 4>often deal with people who have M and D who

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<v Speaker 4>aren't in the same situation as Neil. The average life

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<v Speaker 4>expectance is just twenty seven months. They move through our

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<v Speaker 4>organization quickly, and that's a very emotionally, that's quite a

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<v Speaker 4>big burden to sort of be. You get to know people,

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<v Speaker 4>you know them really well, and then you realize we're

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<v Speaker 4>going to lose them.

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<v Speaker 5>That's so sad. How long ago was Neil diagnosed, well,

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<v Speaker 5>eleven years he's eleven, so here is an absolute outline

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<v Speaker 5>five as well.

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<v Speaker 7>Yeah, I don't think many people in Australia had heard

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<v Speaker 7>about MND until Neil Duneaher. I really put it on

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<v Speaker 7>the map and the people that were familiar with it

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<v Speaker 7>were obviously this is so true.

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<v Speaker 4>Connection to I was chatting, I don't often say this.

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<v Speaker 4>I was chatting to an Oxford professor the other day

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<v Speaker 4>who was out here, and he said, all his life

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<v Speaker 4>he's been researching and getting out research for MND. And

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<v Speaker 4>when he goes out to dinner party still and says

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<v Speaker 4>what he does, they're like, oh mind, what's that? And

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<v Speaker 4>he goes like, come here, and the bloke and the

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<v Speaker 4>servoy knows what it is, wearing a beanie like the

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<v Speaker 4>whole city and we are now a global epicenter for

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<v Speaker 4>research and investment.

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<v Speaker 5>Amazing.

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<v Speaker 3>Neil down Her spoke to the Melbourne Boys yesterday. He

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<v Speaker 3>gives them a rev up before King's Birthday every year,

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<v Speaker 3>and we covered on the news last night here it is.

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<v Speaker 2>Don't wait for a crisis to learn that you are

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<v Speaker 2>more powerful than you think, and never underestimate the ripple

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<v Speaker 2>effect of one small act of courage on the field

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<v Speaker 2>or off it.

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<v Speaker 3>Now in that room, well, what's extraordinary or more extraordinary

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<v Speaker 3>about that is the technology that let's Kneil speak again,

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<v Speaker 3>find his voice. It's AI technology. How does that work?

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<v Speaker 3>Matt And and you actually can give people M and

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<v Speaker 3>D sufferers who lose their voice their voice back to

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<v Speaker 3>an extent.

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<v Speaker 4>Yeah, eventually people only really have their eyes and their

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<v Speaker 4>conscience to communicate with the world. So what they can

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<v Speaker 4>do now the technology is incredible. If you are diagnosed,

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<v Speaker 4>now you can go and put down fifty phrases their

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<v Speaker 4>key phrases that they have and then will do your

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<v Speaker 4>whole vocabulary and intonation and everything else.

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<v Speaker 5>So you do that yourself early.

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<v Speaker 7>But with Neil well, because he had so many recordings

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<v Speaker 7>of him speaking to.

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<v Speaker 4>Yeah, once we took all the swearing out, it limited

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<v Speaker 4>the recordings. You know, he's a coach. Yeah, so it's phenomenal. Yeah,

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<v Speaker 4>they've just gone and done that from media grabs.

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<v Speaker 5>And it makes me goosebumps hearing that. I feel like

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<v Speaker 5>it is for.

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<v Speaker 6>Their independence to get that back with their prices.

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<v Speaker 4>Neil wasn't that keen for it right? Probably I don't

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<v Speaker 4>want to. I never like to speak beyond the family's boundaries.

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<v Speaker 4>But I think they're comfortable with this. But his grandkids

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<v Speaker 4>want to hear what their grandfather sound like rather than

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<v Speaker 4>a computers. Isn't that beautiful? And he was like, Okay,

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<v Speaker 4>let's do it.

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<v Speaker 1>Can I also say a massive thank you to Nil

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<v Speaker 1>and the team because as someone who looks more like

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<v Speaker 1>a garden gnome and a beanie, this year there's a digital.

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<v Speaker 4>Arts bicre launched. Yes, people with big heads, girls that

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<v Speaker 4>don't want to make up their hair, hotheads.

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<v Speaker 5>If you're a hothead, looks like he's going to rob

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<v Speaker 5>your house.

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<v Speaker 4>He's going to look like a cyber criminal. Right, give

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<v Speaker 4>them a hoodie, so big freeze dot com dot you

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<v Speaker 4>we grabbed that website. Right, and you go there and

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<v Speaker 4>you donate by buying a digital beanie. Right, so twenty

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<v Speaker 4>five bucks same as the other beanie, except this one's

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<v Speaker 4>tax deductible.

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<v Speaker 5>Hello, don't get anything in turn.

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<v Speaker 4>Then you can personalize it, so across the band of

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<v Speaker 4>the beanie, you can put your name, your nickname, your brother's,

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<v Speaker 4>sister's kids' names.

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<v Speaker 6>We've got one on the screen. Now you put Jason

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<v Speaker 6>Lauren on the front.

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<v Speaker 1>Is it true that there was a meeting in the

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<v Speaker 1>back end to ban words that you can't put on?

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<v Speaker 4>There are three hundred and sixty eight words of shame

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<v Speaker 4>that we have removed from the soft Oh my god,

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<v Speaker 4>So you can try all you like.

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<v Speaker 5>And was that meeting? Were there a few that you

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<v Speaker 5>were like, let's just sneak that one through anywhere.

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<v Speaker 4>No one would think of that.

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<v Speaker 1>I feel about bringing something up, don't judge me, but

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<v Speaker 1>I have heard you to use this.

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<v Speaker 4>The plan is to like we want to fill the

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<v Speaker 4>g by Queen's birthday, so you want to sell one

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<v Speaker 4>hundred thousand of them. It's a little bit like the

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<v Speaker 4>mcgrah test wanting to fill the ground. But this is

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<v Speaker 4>the whole of Australia and you get some fun to

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<v Speaker 4>put on socials.

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<v Speaker 5>You posted on socials on Big Free's day.

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<v Speaker 4>Yeah, you do it today, getting early. They could sell out.

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<v Speaker 4>They can't sell out. It's digital. Big Free still take

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<v Speaker 4>all the money.

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<v Speaker 6>Are you just twenty five bucks?

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<v Speaker 1>Otherwise you can get the beanies, Bunning stores, goals, you

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<v Speaker 1>got it ready express.

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<v Speaker 7>Hey Matt, congratulations. The campaign seems to get bigger and

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<v Speaker 7>bigger every year.

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<v Speaker 4>Yeah, well that's because more and more people get behind it.

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<v Speaker 4>We can't take all the credit.

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<v Speaker 5>It's awesome.

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<v Speaker 4>It's just a beautiful community moment.

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<v Speaker 7>Well done for everything you and the Donna Hers and

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<v Speaker 7>everyone else behind the scenes are doing.

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<v Speaker 6>Matt Tilley join us on the air. Goodavy back on

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<v Speaker 6>the air this span.

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<v Speaker 4>Thank you guys.

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<v Speaker 6>Great to see you.

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<v Speaker 7>Jason, Lauren Lauren wake up feeling good following them on

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<v Speaker 7>the socials.

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<v Speaker 2>Yeah, I